PATIENT EDUCATION DO IT FOR YOUR BABY 17-8641-1905 Table of Contents Welcome Letter Neonatal Abstinence Scoring (NAS) and Withdrawal Child Protective Services (CPS) Drug Specific Information All about Methadone Breastfeeding and Your Diet Effects of Smoking, Alcohol, and Medicines on Breastfeeding Stress Stress Management Shaken Baby Syndrome Sudden Infant Death Syndrome (SIDS) Fetal Alcohol Syndrome (FAS) CAMC Family Resource Center (FRC) Community Resource List 2 3-5 6-8 9-21 22 23-25 26-29 30-34 35-37 38-41 42-44 45 46 47 1 Dear Mom and Mother-to-be, You are receiving this booklet because you have shared some very important information with us. You are using or have used alcohol or drugs during your pregnancy. This is very important information for you and your newborn or unborn baby. Drugs are very bad for your baby and can cause serious problems during and after delivery. There are many resources available to help you come clean and stay clean. Do it for your baby. Participating in a rehabilitation program can decrease the possibility of CPS placing your baby in foster care. Drugs during pregnancy can cause the following problems with your baby: Parts of your baby may be abnormal or malformed. Problems with the central nervous system Your baby’s brain may be small. They may not eat well. They may be small at birth. They may have seizures. They may have drug withdrawal. They may have a stroke before birth. They may have learning and behavioral problems later in life. Your baby may come before your due date and need to spend time in the intensive care unit. He or she may have to be put on a ventilator. You may have a miscarriage and lose your baby. If you are using drugs while pregnant please tell your doctor or nurse. Your baby will thank you. We are committed to helping you and your baby. Let’s work together to care for you, so you can care for your baby. 2 17-8641-1905 12/09 NAS Neonatal Abstinence Syndrome (NAS) - A group of problems that babies may have because of a mothers drug use during pregnancy. Possible problems before delivery Possible problems after delivery Low Birth Weight Decreased Sleep Premature Birth Crying/Agitated Mental Retardation Scares Easily Learning Problems Shaking of Arms and Legs Behavioral Problems Stiff Movements Birth Defects High Temperature/Sweating Breathing Problems Nasal Stuffiness, Sneezing, Vomiting Loose Watery Stools Treatment: The baby may be on medication in the hospital. The dose may be increased or decreased based on the baby’s drug withdrawal (NAS) score. Mom can give the baby its pacifier, swaddle the baby, touch gently, talk softly, keep in a comfortable position, and snuggle. Decreasing the baby’s stimulation and activity is VERY important. Babies’ urine, stool, or cord tissue may be tested for drugs. 3 Front Page of the NAS CAMC Form this is the link… http://camnet/departmentprintingservices/forms/17-8837.pdf 4 17-8641-1905 12/09 Page for back of NAS score sheet…here is the link http://camnet/departmentprintingservices/forms/17-8837.pdf 5 Everyone Can Use Help at Sometime CPS also known as Child Protective Services is a state program. They see to it that our children are safe. Does a CPS visit mean I am a bad parent? No not at all. Being a parent is very hard. Part of being a good parent is knowing when you need help. A visit from a CPS worker is the chance for you to get help. What do they mean by safe? This means your child is safe from: Abuse (Being Hurt) Neglect (Not being taken care of) Not at risk of being neglected or abused in the future What signs do they look for when it comes to abuse and neglect? Abuse Bruises, burns, cuts, broken bones Biting, punching, or kicking Torture or cruel punishment Verbally putting down the child or making them feel unloved or scared Not stopping others from hurting the child Sexual Abuse Pictures (sexual) Sexual contact with the child’s body Using the child for prostitution 6 17-8641-1905 12/09 Neglect Going to school Child care Healthcare Food, shelter, and being clean Being a Parent is hard work There are services to help you. You don’t have to do it alone. CPS can help you with: Housing, clothing, food, or money Counseling to help manage stress Drug or alcohol problems Family violence Job training Legal help Classes for parenting skills Childcare Alcohol and Drugs can make you lose control, but there is help. Just ask your CPS worker. CPS is notified anytime your infant has a positive drug screen. You may have to go to court, but CPS does NOT take parents to court most of the time. You have Rights Too: Have a lawyer. If you cannot afford an attorney the courts will provide you with one. Tell your side of the story. 7 If my child goes to a new home, where will they go? It is likely your child will stay with relatives or foster parents. You can visit unless the courts tell you that you cannot. Can I find out who reported me? No, it is against the law for CPS to tell you who made the report. You can see the records CPS has on you. These are just a few groups that can provide help. CPS can provide you with other resources. Client Service Hotline 1-800-642-8589 Right From The Start Program 1-800-642-8522 WIC 1-800-445-5818 WV CHIP (Insurance) 1-877-WVA-CHIP Domestic Violence Hotline 1-800-681-8663 Alcoholic’s Anonymous 1-800-333-5051 HUD (Housing) 1-304-347-7000 Early and Periodic Screening, Diagnosis, and Treatment 1-800-642-7904 8 17-8641-1905 12/09 List of Drugs and Effects on Mom and Baby Never Take Any Drug Not Prescribed for You When Pregnant or Breastfeeding!! 9 Tobacco Other names: Snuff Chew Tobacco Cigarettes Length of Action: Nicotine reaches the brain 7 seconds after inhaling cigarette smoke and it lasts 15 minutes to 2 hours. Effects on the Mom: Decreases anxiety and stress, relaxes and enhances mood. Increases heart rate. Decreases appetite. Effects on the Baby: Tobacco use and exposure to cigarette smoke during pregnancy introduces harmful toxins and chemicals to you and your baby. Your baby is at greater risk of: Decreased oxygen to the baby. Growth restriction (low birth weight). Premature birth. Stillbirth. Sudden Infant Death Syndrome (SIDS). Heart problems. Asthma and other lung problems. Ear infections. Behavior and learning problems. Treatment Options: Talk to your doctor or nurse if you want to quit. Various nicotine replacement therapies and treatment programs are available. It is recommended if using replacement therapies to chew nicotine gum after breastfeeding and if using a patch, to remove it at bedtime to lower the nicotine in nighttime feedings. Effects on Breastfeeding: Breastfeeding IS recommended. Mothers who smoke should do so AFTER each infant feeding. Nicotine passes into breastmilk in the amount equal to passive (secondhand) smoking. High levels of nicotine in your baby can cause vomiting, diarrhea, irritability (colic) and increased heart rate. Can decrease breastmilk production. 10 17-8641-1905 12/09 Caffeine Other names: No-Doz Coffee Tea Midol Excedrin Pop/Soda drinks including colas and Mountain Dew Chocolate Length of Action: Each dose lasts 2-12 hours for an adult, but up to 96 hours in a newborn! Effects on the Mom: Restlessness Stomach upset Alertness Decreased fatigue Increases physical endurance Increases urine output Effects on the Baby: Doses higher than 300mg per day (3 cups of coffee) may cause a miscarriage. No significant effects documented unless taken regularly. Some babies may be jittery or irritable after birth, have nausea or urinate often. Treatment Options: Drink caffeine free beverages. Do not use over-the-counter drugs with caffeine in them. Drink plenty of water, juice and milk to remain well hydrated. Effects on Breastfeeding: Breastfeeding IS recommended. Minimal amounts of caffeine found in breastmilk. May decrease infant iron levels. Can cause increased stimulation and sleeplessness (colic). 11 Marijuana Other names: Cannabis Grass Dope Weed Pot Hemp THC *Marijuana is usually laced with other drugs. (Rarely Pure) —It may contain up to 400 other chemicals including other drugs and pesticides. Length of Action: Complete elimination requires 3 weeks or more after a single dose! Effects on the Mom: Relaxation Increased heart rate and blood pressure Loss of concentration Hallucinations Blood shot eyes Food cravings Impairs thinking, causing confusion Distorts perceptions and impairs coordination Effects on the Baby: Increased risk of infant death! Problems with nervous system development including: Tremors, high-pitched cry, changes in ability to respond to visual stimulation. Growth restriction (low birth weight) and premature birth. Increased behavioral problems—Problems with impulsive behavior and attention, academic performance. Decreased motor development Effects on Breastfeeding: IT IS NOT SAFE TO BREASTFEED! Marijuana accumulates in the fatty tissues of the baby increasing the risk of SIDS and impairs the baby’s ability to control its’ muscles. Poor feeding and weight gain. 12 17-8641-1905 12/09 Alcohol Other Names: Ethanol Wine Beer Liquor Length of Action: Depends on dose. Effects on the Mom: Slurred speech Loss of inhibition Relaxation May feel good or depressed Effects on Pregnancy: Causes Fetal Alcohol Syndrome— which includes mental retardation, growth restriction, central nervous system dysfunction, defects of the face, heart and other organs and learning, behavioral and emotional problems. (See attached section on Fetal Alcohol Syndrome) Sleep disturbances Miscarriage, premature birth, stillbirth and low birth weight Small brain growth and small eyes. Decreased motor development and poor coordination ―All drinks containing alcohol can hurt an unborn baby. A standard drink is defined as .60 ounces of pure alcohol. This is equivalent to one 12-ounce beer or wine cooler, one 5-ounce glass of wine, or 1.5 ounces of 80 proof distilled spirits (hard liquor).‖ (CDC 2006) Effects on Breastfeeding: Breastfeeding IS recommended. Women who drink should wait until 2 hours after each standard drink before breastfeeding. Alcohol is freely excreted into breastmilk and changes the taste of the milk. Baby may eat less and have poor weight gain. Also may decrease overall milk supply. 13 Heroin (type of Opiate) Length of Action: Can be smoked, snorted or injected effects usually last 4-6 hours, longer if smoked. Major withdrawal symptoms peak between 48 and 72 hours after the last dose and stop after about a week. Heroin rapidly crosses the placenta. Street heroin can be mixed with toxic additives that can clog the blood vessels in the lungs, liver, kidneys, or brain, causing permanent damage to your organs. If you are using Heroin you MUST contact a doctor as soon as you know you are pregnant it is extremely important for the safety and health of you and your baby! ―A pregnant women who uses Heroin should not attempt to suddenly stop taking the drug. This can put her baby at an increased risk of death.‖ (March of Dimes 2008). Effects on the Mom: Very Addictive! Risk of HIV, Hepatitis B and C if injecting Heroin—You can pass this on to your baby! At risk for fatal overdose and spontaneous abortion Poor nutrition and inadequate prenatal care You should discuss treatment options with your doctor immediately! The March of Dimes recommends that you ―should consult a health care provider or drug treatment center about treatment with a drug called Methadone. Although infants born to mothers taking methadone also have withdrawal symptoms, they can be safely treated in the nursery and generally do better than babies born to women who continue to use heroin.‖ (March of Dimes 2008) and DHHS/NIDA 2008. Effects on the Baby: Increased risk of infant death! Drug withdrawal (NAS) symptoms including: fever, jitteriness, irritability, problems sleeping, vomiting, diarrhea, sneezing and possibly seizures. Growth restriction (low birth weight) Preterm birth and Stillbirth Premature rupture of membranes (PROM)--the fluid around the baby leaks out early which can lead to infection and poor lung development. Increased risk of SIDS Breathing problems Risk of lifelong disabilities, learning and behavioral problems Effects on Breastfeeding: It is NOT safe to breastfeed when using Heroin in any form! May cause tremors, vomiting, restlessness, poor feeding and infant death. 14 17-8641-1905 12/09 Other Types of Opiates Names: Hydrocodone including Lortab and Vicodin Oxycodone including Percocet, Oxycontin, and Tylox Morphine Codeine (found in many prescription cough syrups) Length of Action: Depends on which drug is used and some are slow-release over 12-24 hours. Effects on the Mom: Relieves pain and anxiety Drowsiness, dizziness Mental cloudiness Decreased or irregular breathing Pinpoint pupils Nausea and vomiting Effects on the Baby: Increased risk of infant death! NAS symptoms including: fever, jitteriness, irritability, problems sleeping, vomiting, diarrhea, sneezing and possibly seizures. The baby will have decreased movement, and may have difficulty breathing after delivery. Increased risk of swallowing meconium (infant stool) into the baby’s lungs during pregnancy or delivery, which leads to trouble breathing. Trouble eating and gaining weight Effects on Breastfeeding: It is NOT recommended to breastfeed when using opiates! If you have been prescribed Tylox, Lortab, etc. after delivery check with your physician or lactation consultant first. Small amounts present in breastmilk. May cause tremors, vomiting, restlessness, poor feeding and infant death. Watch for low energy, sleepiness and poor suckling which may be a sign your baby is getting too much of the drug. 15 Benzodiazepines Prescription names: Diazepam (Valium) Midazolam (Versed) Alprazolam (Xanax) Lorazepam (Ativan) Tamazepam (Restoril) Clonazepam (Klonopin) Street names: Roofies, Downers, Tranks Length of Action: Depends on which drug is used. You should discuss your medications with your physician before making any changes, if you suddenly stop taking them you may have withdrawal, which may hurt your baby. Effects on the Mom: Headache, impairs memory and concentration Relieves anxiety and tension Relaxes muscles causing poor coordination Induces sleep Weight loss Weakness Effects on the Baby: NAS symptoms including: fever, jitteriness, irritability, problems sleeping, vomiting, diarrhea, sneezing and possibly seizures. Decreased muscle tone and breathing. Trouble eating and gaining weight after birth. Smaller head size and facial deformities such as cleft palate and cleft lip Mental retardation Delayed motor skills. Effects on Breastfeeding: May be safe to breastfeed depending on which drug is used. Check with your physician or lactation consultant first! Present in breastmilk, and may accumulate in the baby. Watch for low energy, sleepiness and poor suckling which may be a sign your baby is getting too much of the drug. 16 17-8641-1905 12/09 Amphetamines Other names: Methamphetamines Ice Crystal Meth Speed Crank Whiz Uppers Prescription forms: Adderall, Vyvanse, Dexedrine, Dextroamphetamine Duration of action: Very Addictive! Can be smoked, snorted, swallowed, injected or inhaled. Long lasting at least 10-12 hours Effects on the Mom: Impairs judgment and can cause seizures Can cause excessive bleeding at delivery Dental problems Decreased appetite and weight loss Sweating, flushing, dilated pupils, blurred vision Encourages violence Mania, hallucinations, paranoia, and increased anxiety Increased heart rate and blood pressure Dizziness and decreased sleep Effects on the Baby: NAS symptoms including: fever, jitteriness, irritability, problems sleeping, vomiting, diarrhea, sneezing and possibly seizures. Decreased blood flow and oxygen supply to the baby during pregnancy. Miscarriage, premature birth and low birth weight Birth defects such as small heads, cleft lip/palate, and limb malformations Risk of brain injury such as stroke Trouble sleeping and eating Increased risk of SIDS Long term behavioral and learning problems Effects on Breastfeeding: It is NOT safe to breastfeed!! Will pass into breastmilk. Causes irritability in the baby. Long-term effects are unknown. 17 Ecstasy Name: Methylenedioxymethamphetamine (MDMA) Ecstasy is a type of amphetamine and effects on mom and baby are similar to other amphetamine use. Length of Action: Lasts 7-8 hours. Effects on the Mom: Euphoria and changes in perception Enhances feelings of well-being (happiness, love) Can cause confusion, depression, sleep problems, intense fear, and anxiety May be toxic to the central nervous system and cause short-term memory loss Increases heart rate, blood pressure and body temperature (to dangerous levels— called hyperthermia). Decreased appetite. Effects on the Baby: NAS symptoms including: fever, jitteriness, irritability, problems sleeping, vomiting, diarrhea, sneezing and possibly seizures. Decreases blood flow and oxygen supply to the baby during pregnancy. Breathing problems after delivery. Birth defects of the heart. Increased risk of a skeleton defect called clubfoot. Long-term memory and learning problems Effects on Breastfeeding: It is NOT safe to breastfeed! Large amounts present in breastmilk. Causes irritability in the baby. Long-term effects are unknown. 18 17-8641-1905 12/09 Pseudoephedrine Other names: Sudafed Can also be found in combination products for the treatment of colds and allergies! Is used in the production of Methamphetamines. Length of action: 60 mg: Lasts 4-6 hours 120mg: Lasts 10-12 hours. Effects on the Mom: Increases blood pressure Decreases sleep. Effects on the Baby: Decreased blood flow and oxygen supply to the baby during pregnancy. Increased risk of birth defects including gastroschisis, which is when the intestines or other organs develop outside the abdomen. Treatment Options: Consult your physician. Avoid Sudafed, especially in the first trimester. Use nasal sprays, and drink lots of water and juice. Effects on Breastfeeding: Breastfeeding IS recommended. Small amounts present in breastmilk. Can cause irritability and sleep problems. 19 Cocaine Other names: Pure form of Crack Length of action: Snorting Cocaine: Lasts 15-30 minutes. Injecting Cocaine: Immediate onset and action peaks in a few minutes. Smoking Crack: Lasts 30 minutes to 2 hours. Infants can test positive up to 2-4 days after exposure! Cocaine in any amount or form should be avoided during pregnancy! Effects on the Mom: Increased risk of mom dying from excessive bleeding if placenta detaches before delivery of baby, called placental abruption! Very Addictive! Increased mental alertness and energy Increased heart rate temperature, and blood pressure Decreased appetite and need for sleep Dilated pupils Excited and talkative Euphoria Runny nose and a hole developing between the nares is common with snorting. Can be toxic to the heart Effects on the Baby: Increased risk of infant death! NAS symptoms including: fever, jitteriness, irritability, problems sleeping, vomiting, diarrhea, sneezing and possibly seizures. Increased risk of preterm birth, low birth weight and placental abruption. Decreased blood flow and oxygen supply to the baby during pregnancy. Birth defects of the brain, head (small), face, eyes, heart, intestines, genitals, urinary tract and arms and legs can be seen. Increased risk of SIDS. Central nervous system problems including trouble responding to sensory stimulation, decreased ability to learn and behavioral changes. Lifelong disabilities including visual and hearing problems. Increased risk of bleeding in the brain before or soon after birth. Effects on Breastfeeding: It is NOT safe to breastfeed!! Cocaine IS present in breastmilk and absorbed orally by the baby. Can cause vomiting, diarrhea, irritability, seizures, increased respiratory and heart rate, and infant death. Long-term effects are unknown. 20 17-8641-1905 12/09 Bibliography Dr. Huon O’Sullivan & Dr. Sam Hargreaves. Drug Misuse in Pregnancy and Lactation. (2005) The Royal Women’s Hospital: Pharmacy Department (Australia) see website info below. www.wch.org.au/emplibrary/wads/drugs_in_pregnancy_and_lactation.pdf (Document) http://www.thewomens.org.au/. (Hospital Website) Http://www.nida.nih.gov/MarijBroch/parentpg13-14N.html. , Marijuana: Facts parents need to know. The National Institute on Drug Abuse (NIDA) is part of the National Institute of Health (NIH), a component of the U.S. Department of Health and Human Services. Last updated on April 25, 2005. Http://www.lalecheleague.org/ba/Aug01.html. , Update: Transfer of Drugs and Chemicals into Human Milk. La Leche League International. Last edited August 31, 2006. Jansson, Lauren M., MD, Velez, Martha, MD, and Harrow, Cheryl, RN-BC, MS, CRNP-F, IBCLC. (2004). Methadone Maintenance and Lactation: A review of the Literature and Current Management Guidelines. International Lactation Consultant Association. American Academy of Pediatrics: Committee on Drugs. (2001). The Transfer of Drugs and Other Chemicals Into Human Milk. PEDIATRICS Vol. 108:3, pp.776-789. Howard, Cynthia R. MD, MPH & Lawrence, Ruth A. MD. (1998). Breast-Feeding and Drug Exposure. Obstetrics and Gynecology Clinics. Vol. 25:1, pp. 195-217. American Academy of Pediatrics: Lead Authors: Gartner, Lawrence M. MD & Eidelman, Arthur I. MD. (2005) Policy Statement: Breastfeeding and the Use of Human Milk. PEDIATRICS Vol. 115:2, pp. 496-506. Chapter 22: Drugs, Vitamins, Vaccines and Diagnostic Tests. The Breastfeeding Answer Book. www.Wikipedia.com Online Free Encyclopedia–Wikipedia. 21 Methadone What is Methadone? Methadone is an opioid medication that is used for pain relief. Together with counseling and other services Methadone is used to treat people addicted to heroin and some prescription drugs. Methadone eliminates the appetite and craving for Heroin and blocks the euphoric effects of opioid medications, and prevents withdrawal for 24 hours or more with each dose. Opioids are a group of drugs that act on the central nervous system. They include codeine, morphine, heroin, and other drugs such as oxycodone (aka. Percocet, Tylox), oxycontin, hydrocodone (aka. Lortab, Vicodin), and methadone. Confidentiality. If you are receiving Methadone through a treatment program during pregnancy you are protected by special Federal regulations. No one will be told you are in treatment or what you talk about in treatment without your consent You will be asked many questions. It is very important that you are honest with the counselor or caregiver about the type and amount of drugs you are using. This is important information to provide the best care for you and your baby. The earlier in your pregnancy you come for treatment the better. Remember, WE ARE HERE TO HELP. Mixing Methadone with Other Drugs Can Be Dangerous. Methadone interacts with many medications, which can affect the safety of you and your baby. Be sure to discuss ALL other medications you are taking including prescription, over-the-counter, street drugs or herbal supplements. Taking more opioid medication than prescribed won’t get you high, but could cause you to overdose. If you feel like your dose is not adequate you can talk to your caregiver about adjusting the dose. Sometimes the dose has to be increased throughout the pregnancy due to increased blood/fluid volume and increased metabolism of the drug. How Methadone Affects Your Baby. Your baby will probably have NAS withdrawal symptoms, and may require methadone or morphine medication after delivery, which will be weaned slowly. Breastfeeding IS recommended! Only small amounts transfer into breastmilk regardless of the dose you are taking. Lack of suck and swallow coordination for the baby is usually a problem and we can have a Lactation Specialists help you. Important Resources Substance Abuse and Mental Health Service Administration (SAMHSA): call the helpline: 1-800-662-HELP (4357) or online at www.samhsa.gov. Family Resource Center at Charleston Area Medical Center, Women & Children’s Hospital on Pennsylvania Ave Charleston Treatment Center at 2157 Greenbrier Street, call: 1-866-575-8186 or online at www.methadonetreatment.net. 22 17-8641-1905 12/09 Breastfeeding and Your Diet GENERAL INFORMATION: What is a healthy diet during breast feeding? A healthy diet during breast feeding is one that contains a variety of foods from all the different food groups. During breast feeding, your body needs extra calories, protein and certain vitamins and minerals. You need extra calories because your body uses more calories (energy) during breast feeding. Most breast feeding women need about 200-500 calories more than they needed before being pregnant. Your dietitian or caregiver will tell you how many calories you need. If you eat a healthy diet with the right amount of calories, you can get the extra nutrients you need through food. Women who do not eat certain foods, or do not eat enough calories may need a supplement (vitamin or mineral pill). Should I limit certain foods in my diet while I am breast feeding? Usually, you do not need to limit certain foods while you are breast feeding. Most women find they can eat any type of food without it causing a problem for their baby. Certain babies may be affected by foods their mother has eaten. This usually occurs in families with a history of food allergies or sensitivities. Foods that commonly cause problems are cow's milk, cow's milk products, fish, eggs, peanuts, and wheat. If your baby is sensitive, he/she may be fussy, have a skin rash, diarrhea, or have green stools with mucus. These signs and symptoms usually appear four hours or more after you have eaten a certain food. If you think a food is affecting your baby, avoid eating the food. With time, your baby's signs and symptoms should improve. You may also try eating the food again in small amounts about two to three weeks later to see if the sensitivity has improved. Babies often outgrow food sensitivities as they get older. Should I take vitamins while I breast feed? You should be able to get all the nutrients you need if you eat a variety of foods in the right amounts. Caregivers may suggest that you take a multivitamin over the period of time that you breast feed. Ask your caregiver if you should take a vitamin or mineral supplement. Mothers who avoid or limit certain food groups may not be getting enough of certain vitamins or minerals. The following are common foods that people do not eat, and ways to replace the missing vitamins or minerals: Dairy: Some women are lactose intolerant (cannot digest milk products) or choose not to eat dairy (milk, cheese, yogurt, and ice cream). Because dairy foods are rich in calcium and vitamin D, these women may not be getting enough of these nutrients in their diet. Your body can make vitamin D after being in the sun. However, you may need a supplement if you get very little sunlight and do not eat dairy foods. You can get calcium from foods other than dairy. These foods include soy beverages, tofu, orange juice, and breakfast cereals that are fortified with calcium (have added calcium). Other foods that contain calcium are turnip greens, mustard greens, kale, and broccoli. Meat products and dairy: Some women choose not to eat meat products and dairy. Meat products and dairy are rich sources of certain vitamins and minerals, 23 such as vitamin B12. Some nonmeat foods such as breakfast cereals, soymilk or rice milk, or vegetarian burger patties are fortified with vitamin B12. However, it may be difficult to get enough vitamin B12 in your diet. Ask your caregiver if you need to take a vitamin or mineral supplement. How much liquid should I drink while I am breast feeding? Women 19 years old and older should drink about 2.2 Liters of liquid each day (close to 9 eight-ounce cups). Ask your caregiver how much liquid you should have each day. A good way to remember to drink enough liquids is by drinking a glass of water, juice, or milk when you breast feed. Some food items such as soup and fruit also add liquid to your diet. Always drink when you are thirsty. A good way to tell if you are getting enough liquids is if your urine is clear or light yellow. If your urine is a dark color or you are constipated you may not be drinking enough liquids. When you have hard, dry stools that are difficult to pass, less often than usual it is called constipation. Drink extra liquids when you exercise. What should I avoid or limit in my diet while breast feeding? Alcohol: Avoid drinking any drinks that contain alcohol while you breast feed. This includes beer, "light" beer, wine, mixed drinks, and all liquids that contain alcohol. Your milk "let-down" and milk supply may be decreased if you drink alcohol. Alcohol can pass to your baby through your breast milk. Regular or heavy drinking may decrease your baby's development and weight gain. Talk to your caregiver about drinking alcohol while breast feeding. Caffeine: Limit caffeine in your diet while breast feeding. Drinking large amounts of caffeine may cause your baby to be fussy or have trouble sleeping. Try to limit your intake of caffeine to 2--8 oz cups of coffee or tea daily or 3-4--12 oz cans of soda. Should I try to lose weight while breast feeding? Extra weight is added during your pregnancy to store energy for making breast milk. Breast feeding makes it easier to lose these extra pounds. Most breast feeding mothers lose weight just by following a normal diet. Crash diets, fad diets, and quick weight loss may be harmful to your body and may decrease your milk supply. A safe weight loss goal is about four pounds per month. To lose weight slowly and safely, you may try decreasing the amount of calories you eat by a small amount. You dietitian or caregiver will tell you how many calories you need. Another healthy way to lose weight is to exercise. Talk to your caregiver before starting an exercise program. Exercise at least three times a week. Do warm-up activities before starting exercise and drink extra liquids during exercise. You need extra liquids during exercise because your body loses water through sweat. Where can I get more information about breast feeding? Make sure caregivers know that breast feeding is important to you. Ask your caregiver for information about breast feeding. Your caregiver can answer your questions about breast feeding and give you the name of a Lactation Consultant. This person is a specially trained caregiver who helps mothers breast feed their babies. Going to a breast feeding class before your baby is born can also be helpful. Call your local hospital for more 24 17-8641-1905 12/09 information about breast feeding classes. Breast feeding support groups can also help you learn about breast feeding your baby. Contact one of the following for more information: La Leche League International 1400 N. Meacham Rd Schaumburg, IL60173-4808 Phone: 1-847-519-7730 Web Address: http://www.lalecheleague.org Women, Infants and Children Program Food and Nutrition Services WIC Program Supplemental Food Programs Division Alexandria, VA22302 Phone: 1-703-305-2196 Web Address: http://www.fns.usda.gov/wic CARE AGREEMENT: You can talk with your caregiver about the best way for you to feed your baby. You have the right to help plan how you are going to feed your baby. To help with this plan, learn as much as you can about breast feeding. Talk to your caregiver if you have questions about breast feeding. 25 Effects of Smoking, Alcohol, and Medicines on Breastfeeding GENERAL INFORMATION: What are the effects of nicotine on my health and the health of my breast fed baby? Nicotine is a chemical found in cigarettes, bidis and kreteks (imported cigarettes), cigars, pipes, "light" cigarettes, and smokeless tobacco (chewing tobacco and snuff). If you use nicotine, you increase your risk of getting many types of cancers and heart disease, and many other medical problems. These medical problems can be very serious, and can kill you. Scientists have found that nicotine spreads throughout your body when you smoke, and has also been found in breast milk. This means that you are feeding your baby this harmful chemical if you use nicotine during the time that you are breast feeding. Cigarette smoking may reduce the amount of milk your body makes. The fat content of your milk may also be reduced. Both of these side effects of smoking may cause your baby to gain weight too slowly. Smoking may also cause you to have to stop breast feeding (wean) earlier than you had planned. Second-hand smoke has many of the same chemicals found in cigarettes. Exposure to second-hand smoke happens when breathing the smoke from someone else's cigarette, or from a person near you who is breathing out smoking a cigarette. This kind of smoke also causes cancer and places a person at higher risk of heart disease. In young children, their risk of SIDS (sudden infant death syndrome), pneumonia, asthma and bronchitis increases. Their risk is even higher than that of an adult because their lungs are not yet fully developed. An asthmatic child's condition will get worse if he is exposed to second-hand smoke. A child may also have more ear infections. If I continue to use nicotine and choose to breast feed, what can I do to decrease the harmful effects of nicotine? Make every attempt to stop using nicotine if you plan to, or are breast feeding your baby. While working towards quitting, do the following: Decrease the number of cigarettes, or amount of nicotine that you use each day. For example, the fewer cigarettes you smoke each day, the more you decrease the health risks to you and your baby. If you need to smoke or use nicotine, wait until after you finish a breast feeding session. Do not use nicotine before or during a breast feeding session. The longer you wait to breast feed since you last smoked or used nicotine, the less nicotine your baby may be exposed to. 26 17-8641-1905 12/09 Never smoke near your baby. If you need to smoke, only smoke outside your home. Never smoke in the car when your baby is with you. Do not expose your baby to secondhand smoke. Talk to your caregiver about how to stop smoking. For more information call: o Smokefree.gov Phone: 1-800-784-8669 Web Address: www.smokefree.gov o American Lung Association 61 Broadway, 6th floor New York City, NY10006 Phone: 1-800-586-4872 Web Address: http://www.lungusa.org Can I breast feed my baby and drink alcohol? You should avoid drinking any drinks that contain alcohol while you breast feed. This includes beer, "light" beer, wine, mixed drinks, and all liquids that contain alcohol. Alcohol affects the central nervous system of both you and your baby. Your milk "let-down" and milk supply may be decreased if you drink alcohol. Drinking alcohol can change the flavor of your milk. Your baby's ability to suckle may change. He may suck too often, and get less milk. All of these things together could cause a health risk for your baby if you drink alcohol. Is it possible to have a drink of alcohol once in a while if I am breast feeding my baby? Ask your caregiver if you should drink alcohol while breast feeding, and consider the following: When you take a drink of alcohol is important. The alcohol in your breast milk is at its highest within 30 to 60 minutes if you drink with an empty stomach. The alcohol in your breast milk is at its highest within 60 to 90 minutes if you drink while eating. Wait at least two hours for every drink consumed before putting your baby to the breast. Some people think that pumping your breasts and throwing away the milk makes the alcohol disappear from your breast milk faster. This is not true and is not necessary. But, you can pump so you are more comfortable or to keep up your milk supply while your wait for the alcohol to leave your breast milk. Try drinking "nonalcoholic" beer instead of regular beer if you drink beer to help increase your milk supply. Also, try nonalcoholic beer if you are trying to relax so your milk will let-down. Other things like how much you weigh and your baby's age are also important. 27 Can I take medicine while I breast feed? Some medicines are prescribed (given to you) by a medical caregiver. You can buy others without a prescription. These are called "over-the-counter" medicines. Almost all medicines pass through your breast milk. But, only a small number of medicines have been fully studied in breast feeding women. This means that caregivers do not know how they will affect your baby. Breast milk gives your baby the most effective immunity (protection) against disease for his first year of life. The benefits of breast feeding are very great. Most of the time a medicine can be chosen that works well for you while still being safe for your baby. Talk with your caregiver before you take any medicine, whether it you get it with a prescription or over-thecounter. What should I do if I need to use medicine while I am breast feeding? Always talk to both your caregiver and your baby's caregiver about any type of medicine you need. Caregivers think about several things before telling you whether it is OK to use the medicine. They know how long it takes the medicine to reach the highest level in your bloodstream (the medicine's "peak"). Caregivers also know the half-life of the medicine, or when half of the medicine is gone from your blood. Carefully watch your milk supply if you have to take antihistamines. These are found in allergy, cold, and cough medicines and can cause you to become dehydrated. Dehydration means not having enough fluid in your body, which could decrease your milk supply. Watch your milk supply carefully if you are taking birth control pills that are made with estrogen. Your caregiver will work with you to choose the best medicine for you and your baby. If you have to take medicine, breast feed your baby first, and then immediately take your medicine. This gives your body time to get rid of as much medicine as possible before your baby's next feeding. Street drugs are very harmful to your breast fed baby. Never use street drugs when you are breast feeding, or if you are pregnant. Can my baby's caregiver help me if I have breast feeding questions or problems? Ask for information about breast feeding, and make sure caregivers know that breast feeding is important to you. Ask your caregiver for the name of a Lactation Consultant. This person is specially trained to help women breast feed their babies. Ask caregivers about a breast feeding class before your baby is born, or call your hospital for more information. Breast feeding support groups can also help you learn about breast feeding your baby. Call or write one of the following for more information. 28 17-8641-1905 12/09 La Leche League International 1400 N. Meacham Rd Schaumburg, IL60173-4808 Phone: 1-847-519-7730 Web Address: http://www.lalecheleague.org Human Milk Banking Association of North America 1500 Sunday Dr., Suite 102 Raleigh, NC27607 Phone: 1-919-861-4530 Web Address: http://www.hmbana.org Women, Infants and Children Program Food and Nutrition Services WIC Program Supplemental Food Programs Division Alexandria, VA22302 Phone: 1-703-305-2196 Web Address: http://www.fns.usda.gov/wic CARE AGREEMENT: You have the right to help plan your baby's care. To help with this plan, you must learn about your baby's diet. You can then discuss treatment options with your baby's caregivers. Work with them to decide what care may be used to treat your baby. © 1974-2009 Thomson Reuters. All rights reserved. 29 Stress GENERAL INFORMATION: What is stress? Stress is a feeling of tension or strain that can be caused by many different things. Stress is a normal part of life, and sometimes it can be good for you. For example, the stress of having a deadline at work can encourage you to work hard and succeed. However, too much stress can make you feel bad and increase your chance of getting sick. The amount of stress that is "too much" is different for each person. Learning to control and cope with stress will help you live a happier and healthier life. What causes stress? You may feel stress because of changes in your life. The loss of a loved one or your job can cause you to feel very stressed. You may have stress because of a happy event, such as having a baby or buying a house. Health problems or having chronic (long-term) pain can also increase your stress. Becoming overloaded with things you have to do every day can cause stress. What causes one person to feel stressed may not cause stress in someone else. What are some problems caused by having too much stress? Too much stress can cause many physical (body) or emotional (mood) changes. The problems caused by too much stress are different from person to person. It is important to tell your caregiver about any new physical symptoms you have. Your caregiver may need to check you for other health problems that can be mistaken for stress. Some common effects of stress include: Feeling anxious. You may feel "uptight" or tense. You may feel like your mind is always racing with thoughts. You may become more forgetful or have trouble concentrating (staying focused on a task). Mood changes. Your mood may change often and suddenly, for little or no reason. You may be happy one minute, and mad or sad the next. You may get frustrated a lot more than usual. You may feel angry or depressed (very sad) and not know why. Substance abuse. You may find yourself drinking more alcoholic beverages (drinks) to try and decrease your stress. You may be smoking more cigarettes or drugs, or taking other street drugs. You may be taking too many prescription or over-the-counter drugs, or use them too often. You may be drinking alcohol when taking other medicines. Substance abuse is dangerous and leads to even more stress in life. Abusing alcohol or medicines, even over-the-counter medicines, may cause serious health problems. It may even kill you. Physical symptoms. Sometimes stress causes symptoms that can look or feel like a disease or illness. Some physical symptoms of having too much stress may include: 30 17-8641-1905 12/09 o Breathing problems. You may breathe too fast, or feel like you are not getting enough air. You may even feel faint or dizzy. o Chest pain or heartburn (a burning sensation in your chest). o Changes in your ability or desire to have sexual intercourse (sex). o Diarrhea (loose BMs) or constipation (hard, small BMs that are difficult to pass or that occur less often). o Hand tremors (shaking), or hands that are sweaty or cold. o Headaches, backaches, or stiffness in your neck, shoulders, or other muscles. o Heart palpitations (feeling like your heart is beating harder or faster than usual). o Monthly period changes in women. o Sleeping problems, or feeling tired even after a good night's sleep. o Unexplained skin rashes or hives. o Upset stomach, abdominal (belly) pain, or increased gas. o Weight gain, weight loss, or poor appetite (not feeling like eating). Worsening of other health problems. Most diseases and health conditions can become worse if you have too much stress. Stress can cause your blood pressure to increase, which is a risk to your health. If you are diabetic you may have more blood sugar problems during times of stress. If you have heart problems, you may have more chest pain than usual. It is important to call your caregiver if you feel that stress is affecting your health. How can I deal with the stress in my life? The following are some ways for you to decrease your stress. 31 o Learn what causes you stress. Take a close look at what makes you feel stressed. Stay away from stressful things whenever possible. Do not worry about things you cannot control, such as traffic or the weather. o Plan quiet time. Take at least 30 minutes a day to be by yourself. Use this time to do something you enjoy. For example, you can wake up before other household members and read the paper. In the evening, you can relax in a warm bath. Even sitting quietly and daydreaming can give you a much-needed break. o Share your workload. Insist that household members help with chores. Be realistic about how much you can get done by yourself. o Learn to put your needs first sometimes. It is OK to say "no" when people demand your time or attention. Ask yourself, "Do I need to pay attention to this person right now? Can it wait for a time that is better for me?" o Manage tasks. Set realistic goals for yourself. You may find it helps to make a list of things you need to get done. Then do the most important things first. Slow down and focus on one task at a time. Having a clean home or work area may help you feel less stress as you do your work. Not all stress can be avoided. The best way to deal with stress that you cannot avoid is to change how you react to it. The following are some things you can do to cope with stress. o Live a healthy lifestyle. Change your diet. Eat healthy foods from all of the five food groups: fruits, vegetables, breads, dairy products, meat and fish. Eating healthy foods may help you feel better and have more energy. You may feel better and sleep better if you avoid foods and drinks that have caffeine. Examples of things that have caffeine include coffee, some teas, colas, and chocolate. Ask your caregiver for more information about planning a healthy diet. Take time to exercise. Begin a regular exercise program to decrease tension and feelings of stress. Something as simple as walking 20 minutes a day, three to four days a week can help. Exercising also makes the heart stronger, lowers blood pressure, and keeps you healthy. Talk to your caregiver before you start exercising. Together you can plan the best exercise program for you. 32 17-8641-1905 12/09 Do not drink alcohol or overuse over-the-counter or prescription medicines. Drinking alcohol can cause sleep problems, depressed feelings, and increases stress. Taking too much medicine, even if it is over-the-counter medicine, can cause serious health problems. o Have a positive attitude. Try to stop yourself when you think negative, angry, or discouraging thoughts. If you have problems controlling negative thoughts, tell your caregiver. A counselor can teach you ways to think more positively. o Learn relaxation techniques. Learn new ways to relax, such as meditation (med-i-TAY-shun), listening to music, or biofeedback. Ask your caregiver for more information about any of these. o Pay attention to your breathing. When you are tense, you may take shallow breaths or hold your breath without knowing it. It may help to do deep breathing during times of increased stress. To do this, sit up straight and take a slow, deep breath in through your nose. Then, breathe out slowly through your mouth. Take twice as long to breathe out as you do when you breathe in. Repeat this a few times until you feel calmer or more focused. o Relax your muscles. Stress often causes muscle tightness, especially in the shoulders and the neck. Simple exercises can help relieve this tension. Tighten and relax the muscles of one body area at a time. Shrug your shoulders up to your ears. Try to tighten your muscles as much as possible while you do this. Then, completely relax your shoulders. Do this a few times, and then move on to another area of the body. Also, stand up and stretch at least once an hour as you do your daily work. Ask your caregiver for more information about muscle relaxation exercises. o Talk it out. No one can handle stress by themselves all of the time. Talk to someone about things that upset you. This person can be a trusted friend, a family member, or a caregiver. Tell your caregiver if you are having trouble coping with stress. Join a support group if you have a major health problem that is causing you stress. o Above all, listen to your body. If you are feeling the effects of stress, talk to your caregiver. This is especially important if you have other health problems. 33 For more information: For more information about coping with stress, contact the following organizations: National Institute of Mental Health (NIMH), Public Information & Communication Branch 6001 Executive Boulevard, Room 8184, MSC 9663 Bethesda, MD20892-9663 Phone: 1-301-443-4513 Phone: 1-866-615-6464 Web Address: http://www.nimh.nih.gov/ American Psychiatric Association 1000 Wilson Boulevard, Suite 1825 Arlington, VA22209 Phone: 1-703-907 Web Address: http://www.psych.org CARE AGREEMENT: You have the right to help plan your care. To help with this plan, you must learn about your health condition and how it may be treated. You can then discuss treatment options with your caregivers. Work with them to decide what care may be used to treat you. You always have the right to refuse treatment. © 1974-2009 Thomson Reuters. All rights reserved. 34 17-8641-1905 12/09 Stress Management 17-8641-0229 Page 1 of 5 Rev. 8-06 Stress is your body’s response to demanding situations. You experience stress whenever you are faced with an event or situation that you think is challenging your ability to cope. Stress is a natural and normal part of life but when stress is prolonged, it can have a negative effect on our bodies and our minds. Signs and symptoms of stress range from mild to extreme- from simply feeling tired at the end of the day to having a heart attack. You need to be aware of the symptoms of stress so you can manage stress and bring back balance in your life. Do you experience any of these symptoms? __appetite change __forgetfulness __headaches __dull senses __tension __poor concentration __fatigue __low productivity __insomnia __negative attitude __weight change __confusion __muscle aches __lethargy __digestive upsets __whirling mind __pounding heart __no new ideas __rash __boredom __restlessness __spacing out __finger drumming __apathy __increased alcohol, drug, tobacco use __looking for magic __decreased concentration __increased perspiration __difficulty maintaining weight __hands/feet usually cool __anxiety __isolation __frustration __intolerance __the ―blues‖ __resentment __mood swings __loneliness __bad temper __hiding __nightmares __clamming up __crying spells __lowered sex drive __‖no one cares‖ __nagging __depression __distrust __worrying __fewer contacts with friends __easily discouraged __lack of intimacy __little joy __using people __emptiness __needing to ―prove‖ self __loss of meaning __dizziness when standing up __abnormal bowel/bladder function 35 Stress Management 17-8641-0229 Page 2 of 5 Rev. 8-06 Choices in dealing with Stress Remove yourself from the situation. This choice does not solve the problem but only allows escape or avoidance which can be a good choice in some but not all situations Remove stressors This choice is not helpful in all situations since some people are not ready to get a divorce, quit job, etc. Learn healthy techniques to deal with the effects of stress to prevent exhaustion Increase awareness of negative thinking been treated unfairly in the past is all the more reason to treat myself fairly in the present‖. This choice creates a balance in your life by developing good sleeping habits, eating properly, exercising regularly, and learning relaxation techniques. Stress Management There are healthy approaches for managing too much stress. These include problem solving, assertiveness, and time management. Problem solving blem issue Think about each solution, considering the needs of those affected Select the best option and begin to make changes Assertiveness Act in your own best interest Stand up for yourself, expressing yourself honestly and appropriately Exercise your own rights while respecting the ideas of the other person until different viewpoints are understood Time Management Decide which tasks are most important Allow a reasonable amount of time to complete all tasks Ask people for help when possible. Proven Stress Reducers Get up fifteen minutes earlier in the morning. This will help prevent stress from morning mishaps that are sure to happen. Prepare for the morning the evening before. Set the breakfast table. Make lunches. Put out the clothes you plan to wear. Don’t rely on your memory. Write down appointment times, when to pick up the laundry, when library books are due, etc. Do nothing you have to lie about later. Make copies of all keys. Bury a house key in secret spot in the garden. Carry a duplicate car key in your wallet, apart from your key ring. 36 17-8641-1905 12/09 Don’t put things off. Whatever you want to do tomorrow, do today; whatever you want to do today, do it now. Don’t put up with something that doesn’t work right. If your alarm clock, wallet, shoelaces, windshield wipers-whatever-are a constant aggravation, get them fixed or get new ones. Allow 15 minutes of extra time to get to appointments. Eliminate or restrict the amount of caffeine in your diet. Relax your standards. The world will not end if the grass doesn’t get mowed this weekend. Taking a few moments to repeat back directions/instructions can save your hours. Say ―NO‖ Saying no to extra projects or invitations takes practice. Simplify, simplify, simplify. Make friends with non-worriers. Chronic worrywarts are contagious. Take many stretch breaks when you sit a lot. Get enough sleep. Set your alarm for bedtime. Check your body for stress signs. If your stomach muscles are knotted and your breathing is shallow, relax your muscles and take some deep, slow breaths. Write your thoughts and feelings down on paper. It can help you clarify your thoughts. Visualize success before any experience you fear. Take time to go over every part of the event in your mind. Imagine how great you will look, and how well you will present yourself. Talk about your problems with a friend. It helps to relieve confusion. Everyday, do something your really enjoy. Take a bath or shower to relieve tension. Do a favor for someone every day. Doing things for others can make you feel good about yourself. Focus on understanding, rather than being understood, on loving rather than being loved. Take more time between tasks to relax. Schedule your day so you don’t get overwhelmed with trying, to do too much. Be flexible. Some things are not worth perfection. Change pace on weekends. If your week was slow, be active. If you felt nothing was accomplished during the week, do a weekend project. Do one thing at a time. When you are working on one thing, don’t think about everything else you have to do. Allow time every day for privacy, quiet and thinking. Do unpleasant tasks early and enjoy the rest of the day. Delegate responsibility to capable people. Count to 1,000 instead of 10, before you say something that could make matters worse. Forgive people and events. Accept that we live in an imperfect world. Find the positive in people and situations. For every one thing that goes wrong, there are probably 10 or 50 blessings. Always have a back up plan and accept things you cannot change. Organize. A place for everything and everything in its place. Losing things is stressful. 37 Shaken Baby Syndrome GENERAL INFORMATION: What is shaken baby syndrome? Shaken baby syndrome (SIN-drohm), or SBS, occurs when a baby develops brain injury as a result of physical abuse. This happens when a baby is grasped and shaken violently. A baby still has weak neck muscles and a large, heavy head. This makes it hard for him to control his head when he is shaken forcefully. Babies also have more fluid surrounding their brain. Intense shaking throws their brain back and forth inside the skull, and may cause it to bruise, swell, and bleed. This may lead to permanent, severe brain damage and even death. Shaken baby injuries usually occur in children younger than two years of age. Sometimes, although rarely, it also happens to children up to five years of age. Men more than women are likely to shake a baby. The men are usually the baby's father or the mother's boyfriend. The women are mostly baby-sitters or child care providers. Shaking a child is a serious type of physical child abuse. Shaken baby syndrome may be a serious condition needing life-long medical treatments. What causes shaken baby syndrome? The sudden forward and backward movements of a baby's head cause shaken baby syndrome. This occurs when a baby is forcefully and repeatedly shaken, or thrown down. Intense shaking throws the brain into different places inside the skull, tearing brain tissues and blood vessels. Injury to the brain then causes it to swell. Bleeding in the back of the eyes due to brain swelling is common. Many things may increase the chances of shaking a baby. Persons caring for a baby may get frustrated, frightened, or angry due to the baby's uncontrolled crying. They may shake the baby out of frustration, in a desire to stop the baby from crying. What are the signs and symptoms of shaken baby syndrome? There may be few or no signs of injury in shaken baby syndrome. Symptoms may vary from mild to severe. These depend on how strong and how often the baby was shaken. Your baby may have any of the following symptoms: Mild to moderate: 38 o Fussiness or uncontrolled crying. o Low body temperature. o Poor feeding or vomiting (throwing up). o Sleepiness or difficulty in waking your baby up. o Weakness or limp arms and legs. 17-8641-1905 12/09 Severe: o Blood or blood spots in the eyes. o Bulging or full fontanels (soft spot on the head). o Coma (loss of consciousness). o Fractures (break in the bones). o Pale or bluish skin. o Seizures (convulsions). o Trouble or decreased breathing. How is shaken baby syndrome diagnosed? Caregivers often look for particular injuries to diagnose SBS. These may include bleeding in the brain and eyes, and fractures of the ribs and bones. Your baby may have any of the following tests to look for these injuries: CT scan: This is also called a CAT scan. A special x-ray machine uses a computer to take pictures of your child's body. It may be used to look at your child's bones, muscles, brain, body organs, and blood vessels. Your child may be given dye by mouth or in an IV before the pictures are taken. The dye may help your child's caregiver see the pictures better. People who are allergic to iodine or shellfish (lobster, crab, or shrimp) may be allergic to some dyes. Tell the caregiver if your child is allergic to shellfish, or has other allergies or medical conditions. Lumbar puncture: This procedure may also be called a spinal tap. A small needle is placed into your child's lower back. Fluid will be removed from around your child's spinal cord and sent to the lab for tests. The test is done to check for bleeding around your child's brain and spinal cord, and for infection. This procedure may also be done to take pressure off your child's brain and spinal cord, or to give medicine. Your child may need to be held in place so that he does not move during the procedure. MRI: This test is called magnetic resonance imaging. During the MRI, 3-D (three-dimensional) pictures are taken of your child's body. An MRI may be used to look at your child's brain, muscles, joints, bones, or blood vessels. Your child will need to lie still during his MRI. Never enter the MRI room with an oxygen tank, wrist watch, or any other metal objects. This can cause serious injury. 39 Ophthalmoscopy: This is also called fundoscopy. This test allows caregivers to see the back of the eye using an ophthalmoscope. An ophthalmoscope is a magnifying instrument with a light. Caregivers may use eye drops to dilate (open) the pupil (the dark center part of the eye). This helps caregivers see the back of your baby's eyes clearly. How is shaken baby syndrome treated? Your baby's brain injuries may be lifethreatening. He may need to stay in the hospital for treatments. Intravenous (IV) fluids may be given to control his body fluids and salts. A tube may be inserted into his stomach to empty the stomach or to get food into your baby's stomach. A tube attached to a ventilator (breathing machine) may be used if your baby has trouble breathing. Medicines to decrease brain swelling and prevent seizures may be given. Shunt placements and surgery may be done in severe cases of brain injury. Ask your caregivers for more information about the different treatments that may be done to your baby. What can I do to prevent shaken baby syndrome? Ask your baby's caregiver for more information on the normal growth and development of babies. This will help you better understand what your baby or child is trying to tell you. Crying is normal for a child. Babies do not cry to bother or get their parents or childcare provider mad. A baby cries for many reasons. He may be hungry, needs to have a diaper changed, or may be too cold or hot. Sometimes he cries just because he wants to be held. Crying may also be a way for your baby to release stress or tension. Crying may also tell you that your baby is hurt or sick. Decide carefully who can care for your child. Teach everyone who cares for your baby, including baby-sitters, about the dangers of shaking a child. Make sure they understand how babies normally act, and how they grow both mentally and physically. It is normal to feel upset and angry when your baby cries and cannot be consoled. Learning how to handle these feelings is important. Planning ahead may help you avoid hurting your baby. Call a friend or family member when you feel you are upset with your child. Post hotline numbers where you can see them and use them. Do the following if your baby is crying hard and cannot be consoled: o 40 Stop: Put the baby in a safe place and leave the room. Do not touch the baby if you are very upset or angry. 17-8641-1905 12/09 o Calm down: Play some soft music. When you get upset, call hotline numbers, a friend or another family member for advice and support. Take a shower, read a book, or think about something nice that happened in the past. Try counting to 10 and take a deep breath. o Try again: When you have calmed down, go back to your baby and try again to help him stop crying. Try putting the baby in a carrier, or take the baby for a walk in a stroller. You may also try and comfort him with his blanket. Where can I get support and more information? You may feel scared, confused, guilty, and anxious because your baby has SBS. You may blame yourself and think you have done something wrong. These feelings are common. Talk to your caregivers, family, or friends about your feelings. You may also want to join a support group for shaken baby syndrome. Such a group can help you find community education and resources. Put together a list of agencies, clinics, and caregiver names, addresses, and phone numbers. List all the people who will be involved with your child's longterm care and therapy. There are also federal, state, and local support services to help people with disabled children. Contact the following for support and more information: National Center on Shaken Baby Syndrome 2955 Harrison Boulevard, Suite 102 Ogden, UT84403 Phone: 1-801-627-3399 Phone: 1-888-273-0071 Web Address: http://www.dontshake.com The Shaken Baby Alliance 4516 Boat Club Rd, Ste 114 Ft. Worth, TX76108 Phone: 1-877-636-3727 Web Address: http://www.shakenbaby.com CARE AGREEMENT: You have the right to help plan your baby's care. To help with this plan, you must learn about your baby's health condition and how it may be treated. You can then discuss treatment options with your baby's caregivers. Work with them to decide what care may be used to treat your baby. © 1974-2009 Thomson Reuters. All rights reserved. 41 Sudden Infant Death Syndrome GENERAL INFORMATION: What is sudden infant death syndrome? Sudden infant death syndrome is also called SIDS. It is the sudden death of a baby under one year of age. The cause of death in SIDS is unknown. The death cannot be explained even after a review of the baby's health history, environment, and autopsy results. What puts my baby at risk of sudden infant death syndrome? Although the cause of SIDS is not yet clearly known, certain factors are believed to increase its risk. It happens mostly to baby boys, 2 weeks to 6 months of age, born premature, and with low birth weights. Your baby may also be at a higher risk of SIDS with one or more of the following: Sleeping in a prone (face down or lying on stomach) position. Being around people who smoke or having a mother who smoked during or after pregnancy. Sleeping on fluffy or soft bedding. Overheating or overwrapping with too much clothing. Sharing his/her bed with others. Poor or no prenatal care. Prenatal care is the regular healthcare visits made throughout pregnancy. What can I do to prevent sudden infant death syndrome? There are no exact ways to prevent SIDS from happening. Some things may be done to decrease your baby's risk of having SIDS. The following are ways that may help protect your baby from SIDS: Back to Sleep: Place your baby on his/her back every time he/she sleeps, including naps and at night. Do this even if you think your baby sleeps more soundly lying on his/her stomach or side. Babies who sleep on their back are not more likely to choke. Do this unless a medical condition requires your baby to lie in another position. Ask your baby's caregiver which sleeping position is best for your baby. 42 17-8641-1905 12/09 You may put your baby on his stomach while he is awake with someone watching. This is called tummy time. Tummy time helps your baby's head, neck, and shoulder muscles get stronger. This may also prevent flat spots from forming on your baby's head. Changing the direction your baby faces when lying down may also help prevent flat spots. Use a firm sleep surface: Place your baby on a firm flat surface to sleep. Do not let him sleep on soft surfaces. These include pillows, soft mattresses, waterbeds, quilts, sheepskins, beanbags, or other forms of bedding. Your baby's crib should be a safety-approved crib. Keep soft objects and loose bedding out of the sleep area: Keep your baby's crib free from other things, such as pillows, comforters, and stuffed toys. If bumper pads are used, they should be thin, firm, well-secured, and not pillow-like. Use a fitted bottom sheet made for your baby's crib. The mattress should be the correct size and against all four sides of the crib. Keep all items away from your baby's face. If a blanket is to be used, your baby's feet should reach the foot of the crib. The blankets can be tucked in around the crib mattress and should reach only to the level of your baby's chest. 43 Smoke-free environment: Do not smoke or let others smoke near you when you are pregnant. Do not let others smoke around your baby. Sleep in separate beds but same room: Place your baby in the same room but not in the same bed when sleeping. Put him in a separate sleep area, such as a bassinet, crib, or cradle. Do not let him sleep on the same bed with other children or adults. Do not share a bed with your baby especially if you have been drinking alcohol, taking drugs, or if you are a smoker. Do not let him sleep on an adult's bed, sofa, or armchair. If you need to breast feed, always put him back in his own bed when finished. At some point you may fall asleep during breastfeeding and accidentally roll over on your baby. Right room temperature: Your baby should be kept warm, but not hot. Do not over-clothe your baby. Dress him in light sleepwear and do not wrap or cover him with too many blankets. Keep the room at a temperature that is comfortable for an adult wearing light clothing. Your baby should not be sweating or feel hot to the touch. Consider using a pacifier: Use the pacifier when placing your baby down to sleep during the first year of life. Do not put it back in your baby's mouth once he falls asleep. If he rejects it, do not force him to take it. Do not coat the pacifier with any sweet solution. Clean it often and replace it regularly. If your baby breast feeds, wait until he is at least one month of age before using the pacifier. Breast feeding: Breast milk may help protect your baby against infections. Infections are believed to increase the risk of SIDS. Where can I find more information about sudden infant death syndrome? National SIDS/Infant Death Resource Center 8280 Greensboro Dr, Ste 300 McLean, VA22102 Phone: 1-703-821-8955 Web Address: www.sidscenter.org National Institute of Child Health and Human Development PO Box 3006 Rockville, MD20847 Phone: 1-800-370-2943 Web Address: www.nichd.nih.gov © 1974-2009 Thomson Reuters. All rights reserved. 44 17-8641-1905 12/09 Fetal Alcohol Syndrome (FAS) Definition: Fetal alcohol Syndrome is a disorder describing permanent birth defects that occur in the babies of women who drink alcohol during pregnancy. It is not known if the amount, how often alcohol is used, or the time during the pregnancy causes a difference in the amount of damage to the fetus. Alcohol crosses the placenta to the baby in the womb causing: Slow growth Decreased weight gain Facial abnormalities Damage to the brain structures Physical, mental, and behavioral problems Fetal alcohol syndrome is the leading cause of mental retardation in the country. The risk of brain damage exists all during pregnancy, since the brain develops during the entire pregnancy. Even if your child doesn’t suffer mental retardation related to alcohol exposure they are more likely to experience a wide range of functional difficulties such as: Learning disabilities Clumsiness Poor school performance Poor balance Problems writing or drawing Short attention span Impulsive behavior Hyperactivity 45 CAMC—Family Resource Center (FRC) Located at CAMC Women’s and Children’s Hospital 800 Pennsylvania Ave. Charleston, WV 25302 The Family Resource Center helps people to deal with issues that hit close to home. Our staff is trained to help you deal with: Parenting Relationships Same gender concerns Loss and crisis Depression Anxiety Substance abuse issues Adjustment to chronic illness or pain The FRC provides a comfortable, caring and safe and environment where your confidentiality is respected. Counseling is available for individuals, couples, adolescents and children. For referral information, call (304) 388-2545. Some of the services we provide include: Psychiatric evaluations / medical interventions Community offerings Support groups Childbirth classes/parenting classes Women's Health Connection Holistic Services - yoga and massage In addition, we now have a new program that focus’ on the needs of pregnant women who are dealing with issues of substance abuse. The Family Resource Center provides individual therapy and a psycho-educational group, which will address topics such as the disease of addiction, relapse prevention, the 12 Steps, and delivering a healthy baby. 2545. 46 17-8641-1905 12/09 Community Resources Alcoholics Anonymous 1-800-333-5051 or 1-304-342-4315 Narcotic Anonymous 1-304-344-4442 Al--A-Non 1-304-345-7420 Highland Hospital 1-304-926-1600 Prestera 1-800-642-3434 Family Resource Center 1-304-388-2545 Charleston Treatment Center 1-304-344-5924 Rea Of Hope Fellowship Home 1-304-344-5363 National Council on Alcoholism and Drug Dependence 1-800-622-2255 Substance Abuse Treatment Facility Locator 1-800-662-4357 WV Tobacco Quitline 1-877-966-8784 CAMC Women and Children’s Hospital 47
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