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CHILD HEALTH RESOURCE MANUAL
State of Georgia – Department of Public Health
Maternal and Child Health Program
Office of Child Health
May 2012 CH RESOURCE MANUAL: May 2012 Table of Contents
Section:
Page Number:
Introduction…………………………………………………………………
3
General Internet Sites……………………………………………………..
4
Universal Newborn Hearing Screening
and Intervention (UNHSI)…………………………………………………
7
Newborn Metabolic and Genetic Screening……………………………
10
Children 1st (C1st)………………………………………………………….
13
Babies Can’t Wait (BCW)………………………………………………….
20
Children’s Medical Services (CMS)……………………………..……….
27
Health Check (Early Periodic Screening, Diagnosis and
Treatment/ EPSDT)………………………………………………………..
34
Early Childhood Comprehensive Systems (ECCS)………….…………
39
Sudden Unexpected Infant Death (SUID) and Sudden Infant
Death Syndrome (SIDS)…………………………………………………..
44
Oral Health………………………………………………………………….
46
Special Supplemental Nutrition Program for Women,
Infants and Children (WIC) and Nutrition…………………….. …………
49
Injury Prevention……………………………………………………………
54
Glossary……………………………………………………………………...
57
2 CH RESOURCE MANUAL: May 2012 INTRODUCTION
The Office of Child Health in the Maternal and Child Health Program, in the Georgia Department
of Public Health consists of multiple programs that provide services to families with children
ranging from birth to twenty-one years of age. Some programs may only serve children of a
certain age, for example, from birth to age three or birth to five years of age. State and federal
regulatory requirements for program implementation and service delivery vary across the Child
Health programs. However, the common denominator among the programs is that they are
providing services to families with children, who may receive services from more than one Child
Health or other Public Health program, or from other state or community service agencies.
Therefore, it is important to look cross-programs and cross-agencies at the commonalities in the
age groups and conditions being served in order to maximize effectiveness and efficiency of the
services being provided.
This web-based Child Health Manual, consisting of key internet sites for each program, was
prompted by the need to have a current and readily accessible resource for public health staff at
state, district and county levels. The purpose of this resource is to provide a common tool for
the orientation of new Public Health staff. The expectation is that the Manual will become an
integrated part of the orientation process, where the program manager or other appropriate staff
member will provide direction regarding which sites are most important for new staff to review
initially and as part of on-going professional development.
During the process of gathering and developing the information for the Manual, it became clear,
that age-appropriate content from cross-cutting programs, such as Oral Health, Injury
Prevention and WIC-Nutrition must be better integrated into all Child Health Programs. This is
an opportunity to enhance the integration of all Child Health programs and to enlarge the scope
of services being provided by the Child Health programs to Georgia’s families and children.
3 CH RESOURCE MANUAL: May 2012 General Internet Sites for All Programs
Bright Futures: Guidelines for Health Supervision of Infants, Children and
Adolescents, 3rd Ed.
http://brightfutures.aap.org/
Bright Futures (BF) is a national health promotion and disease prevention initiative that
addresses children's health needs in the context of family and community. In addition to use in
pediatric practice, many states implement BF principles, guidelines and tools to strengthen the
connections between state and local programs, pediatric primary care, families, and local
communities. Bright Futures materials are used across all Child Health programs.
American Public Health Association (APHA)
http://apha.org
APHA is the national organization for public health professionals and serves as a resource to
governmental officials and agencies for information related to public health issues. APHA
conducts the annual APHA Meeting and Exposition that attracts over 13,000 national and
international participants.
Includes:
American Journal of Public Health
http://ajph.aphapublictions.org
The American Journal of Public Health is the official journal of APHA.
Georgia Public Health Association (GPHA)
http://www.gapha.org
GPHA’s mission is to advocate for conditions in which all people and communities can be
healthy; to promote the scientific foundation of public health practice and policy and to assure a
continuous voice broadly representing public health in Georgia.
Association of Maternal and Child Health Programs (AMCHP)
http://www.amchp.org
AMCHP is the national organization for public health professionals and partners that are
involved in promoting and advocating for the health of women, infants and children through
public health programs.
Georgia Public Health Information Library (PHIL)
http://www.health.state.ga.us/phil/dch/pandp.asp
PHIL is the Department of Public Health’s intranet and serves as the central standard place to
access all forms, procedures and policies and an e-suggestion box. Also includes a link to
SABA Learning.
Governor’s Office for Children and Families (GOFC)
http://children.georgia.gov
GOCF supports and strengthens families to improve outcomes for Georgia’s children and youth
through a community-based system of prevention and intervention services, known as Caring
Communities for Children and Families.
4 CH RESOURCE MANUAL: May 2012 Maternal and Child Health Block Grant, 2012 Application and 2010 Annual Report
http://health.state.ga.us/pdfs/familyhealth/Title%20V%20Narrative%2007-06-11.pdf
Information includes statewide Needs Assessment, Performance Measures and Health Status
Indicators, program activities, and budget for Georgia’s Maternal and Child Health Program.
Healthy People 2020
http://www.healthypeople.gov/2020
This is an on-line site that provides background information about the Healthy People initiative
that is updated every ten years. The newly released topics and objectives for 2020 Healthy
People can be accessed.
Georgia Department of Public Health
Public Health Billing Resource Manual
http://www.health.state.ga.us/publications/manuals.asp
This manual serves as a guide for the billing of public health services to insurance companies
and Medicaid, and includes information on all Office of Child Health services that are billable.
The manual will be revised and updated on a quarterly basis to reflect changes in public and
private payers billing policies, procedures and fee schedules.
Georgia Department of Public Health, Office of Nursing
http://health.state.ga.us/programs/nursing
Includes:
1. Office of Nursing Organizational Chart
http://health.state.ga.us/pdfs/nursing/Org%20Chart%20-%20Bios%2002-2011.pdf
2. Office of Nursing Public Health Nursing Strategic Plan, FY2011-2014
http://health.state.ga.us/pdfs/nursing/OON%20Strategic%20Plan%20Aligned%20with%20IO
M%20Recommendations%203-28-11.pdf
3. Health Assessment Competency Development Program
http://health.state.ga.us/programs/nursing/clinical.asp
4. Publications and Manuals
http://health.state.ga.us/programs/nursing/publications.asp
Includes:
 Statewide Standard List: Abbreviations, Acronyms and Symbols
http://www.health.state.ga.us/pdfs/nursing/Final_%20Abbrev_List_10.04.pdf

Documentation of Nursing License and Certification, July 2008
http://www.health.state.ga.us/pdfs/nursing/Documentation%20of%20Nursing%20Licens
e-Certification%20-%20signed.pdf

Nursing Protocol Manual, 2010 http://www.health.state.ga.us/pdfs/nursing/Protocol%20Manual/2010/2010%20Nurse%2
0Protocol%20Manual.pdf

Quality Assurance/Quality Improvement (QA-QI) for Public Health Nursing
Practice Manual, December 2010
http://health.state.ga.us/pdfs/nursing/QA-QIManual/QA-QI%20Manual.pdf
5. Protocol for Activation of Nursing Resources in Emergencies or Disasters
http://health.state.ga.us/programs/nursing/emerprep/activationprotocol.asp 5 CH RESOURCE MANUAL: May 2012 6. Public Health Nursing Network
http://health.state.ga.us/programs/nursing/nursingnetwork.asp The Public Health (PH) Nursing Network is comprised of multiple entities, each with specific
responsibilities and expectations for enhancing the practice of PH nursing in Georgia. The
site describes the eight different workgroups or committees that interact to serve the overall
mission of PH, which is “to promote and protect the health of Georgians.”
Georgia Web Portal
https://www.mmis.georgia.gov/portal/default.aspx
Information for providers including enrollment information, member-specific information, and
specific program services information are located here. Handbooks/manuals are updated
periodically; therefore links to those references change as updates are made. Links on this
website provide access to manuals such as the Policies and Procedures for Diagnostic,
Screening and Preventive Services, (DSPS), which includes Medicaid information related to
several Child Health Programs (Children 1st program and Children’s Medical Services
program), as well as Policies and Procedures for Health Check Services (EPDST). To
access the manuals from the home page, click on Provider Information and then on Provider
Manuals.
Guidelines for Mandatory Reporting of Suspected Child Abuse & Neglect
http://www.health.state.ga.us/phil/dch/pandp.asp
The Georgia Child Abuse Law, O.C.G.A. §19-7-5, requires public health personnel to report
suspected child abuse. This document provides guidance to public health employees in
identifying and reporting suspected child abuse.
6 CH RESOURCE MANUAL: May 2012 Universal Newborn Hearing Screening and Intervention
(UNHSI)
National Centers
Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov/features/newbornhearing/
Information provided on newborn hearing screening results.
Includes:
Hearing Loss in Children
http://www.cdc.gov/ncbddd/hearingloss/facts.html
http://www.cdc.gov/ncbddd/hearingloss/screening.html/
http://www.cdc.gov/ncbddd/hearingloss/types.html
http://www.cdc.gov/ncbddd/hearingloss/sound.html
http://www.cdc.gov/ncbddd/hearingloss/index.html
http://www.cdc.gov/ncbddd/hearingloss/treatment.html
http://www.cdc.gov/ncbddd/hearingloss/language.html
http://www.cdc.gov/ncbddd/hearingloss/research.html
http://www.cdc.gov/ncbddd/hearingloss/publichealth.html
National Center for Hearing Assessment and Management (NCHAM)
http://www.infanthearing.org
NCHAM serves as the national resource center for the implementation and improvement of
comprehensive and effective Early Hearing Detection and Intervention (EDHI) systems. As a
multidisciplinary Center, the goal is to ensure that all infants and toddlers with hearing loss are
identified as early as possible and provided with timely and appropriate audiological,
educational and medical intervention. NCHAM provides access to comprehensive resources
regarding hearing assessment, management and also to state data.
National Center for Medical Home Implementation (NCMHI)
http://medicalhomeinfo.org/
The mission of NCMHI is to work in cooperation with federal agencies, particularly MCHB and
other partners and stakeholders, to ensure that all children and youth, including children with
special health care needs have access to a medical home. American Society of Deaf Children (ASDC)
http://www.deafchildren.org/
ASDC supports and educates families of children who are deaf or hard of hearing and
advocates for high quality services and programs.
National Hands and Voices
http://www.handsandvoices.org
Hands & Voices is dedicated to supporting families with children who are Deaf or Hard of
Hearing without a bias around communication modes or methodology. They are a parent-driven,
non-profit organization providing families with the resources, networks, and information they
need to improve communication access and educational outcomes for their children.
7 CH RESOURCE MANUAL: May 2012 Georgia Departments and Offices
Georgia Department of Public Health (GDPH)
http://health.state.ga.us/programs/unhs/index.asp http://health.state.ga.us/programs/unhs/factsheet http://health.state.ga.us/programs/nsmscd/index.asp
http://health.state.ga.us/programs/bcw/index.asp
http://health.state.ga.us/programs/cms/index.asp
http://health.state.ga.us/programs/childrenfirst/index.asp
Family Support Services
Georgia PINES (Parents Infant Network for Educational Services)
http://www.gapines.info
Georgia PINES is a statewide intervention program for families of children birth to five years of
age with a diagnosed hearing impairment and/or a visual impairment.
Georgia Chapter of Hands and Voices
http://www.gahandsandvoices.org
Hands and Voices support families with children who are deaf or hard of hearing without a bias
around communication modes or methodology.
Parent to Parent of Georgia (P2P)
http://p2pga.org
Parent to Parent serves children and youth with disabilities and their families. Services include
an on-line data base of various resources, such as respite care, child care, or support groups
that are available in local areas and provide training sessions for parents on a wide variety of
topics and a parent-to-parent matching program. Parent to Parent serves as the central office
for:
 Family to Family (F2F) Health Information, Center (HIC)
 Georgia’s Family Voices
 Parent Training and Information Center (PTI)
 Family Support 360 Project (Navigator 360 Project)
 Babies Can’t Wait Central Directory
Additional Resources
Boys Town National Research Center
http://www.boystownhospital.org/pages/default.aspx
Center recognized for hearing research.
8 CH RESOURCE MANUAL: May 2012 Marion Downs Hearing Center Foundation
http://www.mariondowns.com
Organization encompasses family and consumer programs, intervention and educational
services, research, and clinical services.
Alexander Graham Bell Association for the Deaf
http://nc.agbell.org/netcommunity/page.aspx?pid=348
The Alexander Graham Bell Association for the Deaf and Hard of Hearing helps families, health
care providers and education professionals understand childhood hearing loss and the
importance of early diagnosis and intervention.
Joint Committee on Infant Hearing (JCIH) Position Statement 2007
http://pediatrics.aappublications.org/content/120/4/898.full?ijkey=oj9BAleq21OlA&keytype=ref&s
iteid=aapjournals
Link to: Supplement: Improving the System of Care for Infants and Children with
Early Hearing Loss
http://pediatrics.aappublications.org/content/126/Supplement_1.toc
Professional Organizations
Georgia Academy of Audiology (GAA)
http://www.georgiaaudiology.org/ Georgia Chapter of American Academy of Pediatrics (GAAAP)
http://www.gaaap.org American Speech and Hearing Association (ASHA)
www.asha.org
American Academy of Audiology (AAA)
www.audiology.org
American Academy of Pediatrics (AAP)
www.aap.org
9 CH RESOURCE MANUAL: May 2012 Newborn Metabolic and Genetic Screening
National Centers:
National Coordinating and Evaluation Center: Sickle Cell Disease and Newborn
Screening (NCEC)
http://www.sicklecelldisease.net
The Sickle Cell Disease (SCD) and Newborn Screening Program (SCD-NBS) is comprised of
17 national funded community based sickle cell disease (SCD) projects, including Georgia and
the National Coordinating and Evaluation Center-Sickle Cell Disease Association of America
project (NCEC-SCDAA).
National Newborn Screening and Genetics Resources Center (NNSGRC)
http://www.genes-r-us.uthscsa.edu
This site provides information and resources in the area of newborn screening and genetics to
benefit health professionals, the public health community, consumers and government officials.
There are links to resources for families.
National Organizations:
Expanded Newborn Screening using Tandem Mass Spectrometry: Financial,
Ethical, Legal and Social Issues (FELSI)
http://www.newbornscreening.info
This site provides information for families and professionals about expanded newborn
screening, specific genetic disorders and issues surrounding financial, ethical, legal and social
aspects of expanded screening. Information is available in English and Spanish.
Saving Babies through Screening Foundation
http://www.savebabies.org
The non-profit Foundation advocates for comprehensive newborn screening. Resources are
available for pregnant families, practitioners, families with initial positive screen and those with
diagnoses.
Georgia Department and Offices
Georgia Department of Public Health
http://www.health.state.ga.us/programs/nsmscd/index.asp On the right hand side, click to access screening, list of genetic disorders tested for in Georgia,
diagnosis, follow up and treatment
10 CH RESOURCE MANUAL: May 2012 http://health.state.ga.us/programs/unhs/index.asp http://health.state.ga.us/programs/bcw/index.asp http://health.state.ga.us/programs/cms/index.asp http://health.state.ga.us/programs/childrenfirst/index.asp Specific Genetic/Metabolic Conditions
Sickle Cell Information Center
http://www.scinfo.org
The mission of this site is to provide patients and professionals with education, news, research,
updates and worldwide sickle cell resources. This site is HON (Health on the Net) code
certified.
Sickle Cell Disease Association of America (SCDAA)
http://www.sicklecelldisease.org
The mission is to advocate for and enhance the quality of health, life and services for
individuals, families and communities affected by sickle cell disease and related conditions,
while promoting the search for a cure for all people affected by sickle cell disease.
National Heart Lung Blood Institute (NHLBI)
http://www.nhlbi.nihgov/guidelines.scd/index.htm
The NHLBI is preparing evidenced-based clinical practice guidelines for managing SCD across
the lifespan. Full Guidelines expected to be released Fall 2011- Spring 2012.
Sickle Cell Foundation of Georgia, Inc
http://www.sicklecellga.org
The mission of the Sickle Cell Foundation (SCF) is to provide education, screening and
counseling to those with sickle cell disease. SCF also supports New Hope Camp for children
ages six to 17 years of age with SCD. Georgia law requires all newborns to be tested for SC
trait and disease.
Georgia Health Science University: Comprehensive Sickle Cell Center
www.georgiahealth.edu/centers/sicklecell
The Center provides services to both pediatric and adult clients with SCD and
hemoglobinopathies. Out-reach clinics for children and adults are provided in several cities
across the state.
Georgia Comprehensive Sickle Cell Center: Grady Hospital
http://www.emory.edu/grady/multimedia/slide-shows/slide-show-sicklecell.html The Center provides comprehensive care to children and adults with SCD. The center is the
first to provide 24 hour comprehensive primary care clinic for clients with sickle cell syndromes.
Cystic Fibrosis (CF) Foundation
http://www.cff.org/AboutCF This site provides a description of CF, with links to frequently ask questions, testing for CF,
living with CF and treatments that are available and those that are in development.
11 CH RESOURCE MANUAL: May 2012 Congenital Hypothyroidism
http://www.nlm.nih.gov/medlineplus/ency/article/001193.htm
This site provides a comprehensive description of causes, symptoms, examination, tests and
treatments for congenital hypothyroidism. (Information updated 6/28/2011).
Parents of Galactosemic Children (PCG)/Galactosemia Foundation
http://www.galactosemia.org
This site provides a link to a description of galactosemia; frequently ask questions, diet
information, potential complications, web resources and survey results.
Genetic Resources
Genetic Alliance
http://www/geneticalliance.org
This site provides the ability to search an extensive database of both genetic diseases and of
organizations that provide support, education or research related to those conditions.
Genetest.org
www.genetest.org
This site describes gene testing, the types of gene tests, and tests by types of disease.
University of Kansas Medical Center, Medical Genetics
http://www.kumc.edu/gec/support/ This site provides a description of multiple genetic and rare disorders that can be searched from
an alphabetical list. This is an HON (Health on the Net) certified site.
12 CH RESOURCE MANUAL: May 2012 Children 1st (C1st)
National Centers
National Center for Medical Home Implementation (NCMHI)
http://medicahomeinfo.org/
The mission of NCMHI is to work co-operatively with Maternal Child Health Bureau and other
partners to ensure all children, including children with special health care needs have a medical
home. This site provides information about each state and their medical home activities.
National Center for Children in Poverty (NCCP)
http://www.nccp.org/
NCCP is the nation’s leading public policy center dedicated to promoting economic security,
health and wellbeing of America’s low income families and children.
National Sudden Unexpected Infant Death (SUID) and Sudden Infants Death
Syndrome (SIDS) Resource Center (Georgetown University)
http://www.sidscenter.org
This center is funded by Maternal and Child Health Bureau and provides links to a
comprehensive list of resources, including bereavement support and statistical data.
Other MCHB funded partners include:
1. Project Impact
http://www.suid-im-projectimpact.org
2. Program Support Center (PSC) at First Candle
http://www.firstcandle.org/
3. Link to: A Program Manual and Trainer’s Guide for Sudden and Unexpected
Infant/Child Death and Pregnancy Loss
http://www.programmanual.info/intro_manual/intro.html
The National Center on Shaken Baby Syndrome
http://dontshake.org/
The mission is to educate and train parents and professionals and to conduct research that will
prevent the shaking and abuse of infants in the United States.
National Center for Infants, Toddlers and Families: Zero to Three
http://zerotothree.org/
A national non-profit organization that informs, trains and provides support to parents in order to
improve the lives of infants and toddlers.
Technical Assistance Center on Social Emotional Intervention (TACSEI)
http://www.challengingbehavior.org/
The Center creates products and resources, based on practices supported by research, to help
decision-makers, caregivers, and service providers apply these best practices in improving
social-emotional outcomes in young children. Most of these free products are available from
this website.
13 CH RESOURCE MANUAL: May 2012 Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov/Features/DetectAutismEarly/
Includes:
1. Learn the Signs, Act Early
http://www.cdc.gov/ncbddd/actearly/index.html
“Learn the Signs, Act Early” is a national campaign to inform professionals and parents
regarding typical milestones of child development. Materials on several developmental
disabilities are available for download.
2. Sudden Unexpected Infant Death and Sudden Infant Death Syndrome
http://www.cdc.gov/sids/index.htm
This site provides a description of Sudden Unexpected Infant Deaths (SUID) and Sudden
Infant Death Syndrome (SIDS) and links to additional resources for professionals and
families.
Healthy Child Care America (HCCA)
http://www.healthychildcare.org/
The HCCA program is a collaborative effort of health professionals and child care providers
working to improve the early education and health and safety of children in out-of-home child
care. This includes increasing access to preventive health services, safe physical environments,
and a medical home for all children.
Georgia Departments and Offices
Georgia Department of Public Health
http://health.state.ga.us/programs/bcw/index.asp
http://health.state.ga.us/programs/bcw/factsheet
http://health.state.ga.us/programs/childrenfirst/index.asp http://health.state.ga.us/programs/childrenfirst/factsheet
http://health.state.ga.us/programs/cms/index.asp http://health.state.ga.us/programs/cms.factsheet/ http://health.state.ga.us/hccg (Healthy Child Care Georgia)
http://health.state.ga.us/programs/immunization/index.asp
http://www.health.state.ga.us/programs/immunization/grits/index.asp
http://www.health.state.ga.us/programs/sids/index.asp
http://www.health.state.ga.us/programs/injuryprevention/shakenbaby.asp
Governor’s Office for Children and Families (GOCF)
http://children.georgia.gov
Supports and strengthens families to improve outcomes for Georgia’s children and youth
through a community-based system of prevention and intervention services, known as Caring
Communities for Children and Families.
Georgia Department of Community Health (DCH)
http://dch.georgia.gov 14 CH RESOURCE MANUAL: May 2012 Provides links to Medicaid, Peach Care and Georgia Families: Care Management Organizations
(CMO’s); the three CMO’s in Georgia providing Medicaid or PeachCare health services to
enrollees are Welfare, Peach State and AmeriGroup.
Includes:
1. Medicaid Division, DCH
http://www.dch.georgia.gov/00/channel_title/0,2094,31446711_31944826,00.html
Georgia Medicaid program provides health care for children, pregnant women and people
who aging, blind and disabled. This site provides information on Medicaid programs, such
as the Care Management Organizations (CMO’s), PeachCare (State Children’s Health
Insurance Plan, or S-CHIP) and the Health Insurance Premium Payment (HIPP) and waiver
programs, including Georgia Pediatric Program (GAPP).
2. Georgia Web Portal
https://www.mmis.georgia.gov/portal/default.aspx
Information for providers including enrollment information, member-specific information, and
specific program services information are located here. Handbooks/manuals are updated
periodically; therefore links to those references change as updates are made. Links on this
website provide access to manuals such as the Policies and Procedures for Diagnostic,
Screening and Preventive Services, (DSPS), which includes Medicaid information related to
several Child Health Programs (Children 1st program and Children’s Medical Services
program), as well as Policies and Procedures for Health Check Services (EPDST). To
access the manuals from the home page, click on Provider Information and then on Provider
Manuals.
Georgia Department of Early Care and Learning (DECAL): Bright from the Start.
http://decal.ga.gov
Responsible for meeting the child care and early education needs of Georgia’s children, birth to
school age and their families. DECAL administers Georgia’s Pre-K Program; license and
monitors center-based and home-based child care facilities and promotes family literacy.
Georgia Department of Education (GaDOE)
http://www.doe.k12.ga.us
Includes:
1. Division for Exceptional Students
http://www.doe.k12.ga.us/ci_exceptional.aspx
2. Office of Education Support and Improvement - Title 1:
Improving the Academic Achievement of the Disadvantaged
http://www.doe.k12.ga.us/tss_ title_ lea.aspx
The purpose of Title 1 is to ensure that all children have a fair, equal and significant
opportunity to obtain a high-quality education and reach at a minimum, proficiency on
challenging State academic achievement standards and state assessments.
Georgia Department of Human Services (DHS)
http://www.dhr.state.ga.us/portal/site/DHS/
Includes:
Division of Family and Children Services (DFCS)
http://dfcs.dhs.georgia.gov
15 CH RESOURCE MANUAL: May 2012 Responsible for investigating child abuse, finding foster homes for abused and neglected
children; assists with childcare costs for low income parents who are working or in job training
and other support services.
Agencies Serving Families and Children
Georgia Association of Young Children (GAYC)
http://gayconline.org/ The mission is to encourage and support healthy development in young children by working with
others (1) to increase public awareness of the importance of early childhood education, and (2)
to improve the quality of programs for young children through learning opportunities for early
childhood educators.
Georgia Association of Child Care Resource and Referral Agencies (GACCRRA)
http://www.gaccrra.org/ The GACCRRA is a non-profit, membership organization composed of 6 regional Child Care
Resource and Referral Agencies (CCR&Rs) serving the state of Georgia. CCR&Rs play a
catalyst role as change agents in their communities, improving child care and family support
systems.
Georgia Head Start and Early Head Start Programs
http://www.georgiaheadstart.org/
Georgia Head Start and Early Head Start programs provide comprehensive early childhood and
family development services to children from birth to five-years-old, pregnant women and
families. The programs have a long tradition of delivering comprehensive and high quality
services designed to foster healthy development in low-income children and their families.
Georgia PINES (Parents Infant Network for Educational Services)
http://www.gapines.info
Georgia PINES is a statewide intervention program for families of children birth to five years of
age with a diagnosed hearing impairment and/or a visual impairment.
Georgia Chapter of Hands and Voices
http://www.handsandvoices.org/chapters/ga.html
Hands and Voices support families with children who are deaf or hard of hearing without a bias
around communication modes or methodology.
Georgia State University (GSU) Project Skilled Credentialed Early Interventionists
(SCEI’s)
http://education.gsu.edu/sceis
Project SCEI’s is part of Georgia’s Comprehensive System of Personnel Development (CSPD)
for Georgia’s Part C program, Babies Can’t Wait. Personnel from five universities collaborate to
implement specific components of Project SCEI’s.
Includes:
Project SCEI’s Parent Educators
http://education.gsu.edu/sceis/HTML/SCEIs_parentEd.html
16 CH RESOURCE MANUAL: May 2012 Parent Educators are parents who have a child with a disability or delay and have received
services through Babies Can’t Wait. They participate in trainings and provide an important
parent/family perspective to the state office.
Family Support Services
Parent to Parent of Georgia (P2P)
http://p2pga.org
P2P serves children and youth with disabilities and their families. Services include an on-line
data base of various resources, such as respite care, child care, or support groups that are
available in local areas. P2P provides training sessions for parents on a wide variety of topics
and a parent-to-parent matching program. Parent to Parent serves as the central office for:
 Family to Family (F2F) Health Information, Center (HIC)
 Georgia’s Family Voices
 Parent Training and Information Center (PTI)
 Family Support 360 Project (Navigator 360 Project)
 Babies Can’t Wait Central Directory
Georgia’s Families Matters
http://georgiafamiliesmatter.org
A web site developed specifically for the Babies Can’t Program. The site provides links to
resources and information for families, physicians, child care providers and program providers.
March of Dimes (MOD), Georgia Chapter
http://www.marchofdimes.com/georgia
The mission of the MOD is to improve the health of babies by preventing birth defects,
premature births and infant mortality.
Includes:
1. Medical Resources (Newborn Screening Tests)
http://www.marchofdimes.com/professionals/bringinghome_screening.html
Provides a description of the newborn metabolic/genetic screening tests performed at birth.
2. Your Premature Baby
http://www.marchofdimes.com/baby/premature_indepth.html
This site provides a discussion of premature births, possible causes and common medical
problems of babies born prematurely.
3. Home After the NICU (Neonatal Intensive Care Unit)
http://www.marchofdimes.com/baby/homeafternicu.html
This site provides a link to a discussion of medications and equipment used in the home
environment for premature babies.
United Way of Metropolitan Atlanta
http://www.unitedwayatlanta.org/Pages/home.aspx
Includes:
Early Childhood Division: Smart Start
http://www.smartstartga.org 17 CH RESOURCE MANUAL: May 2012 Smart Start of the Early Learning Division is part of a coalition of advocates and professionals to
implement four Early Reading First (ERF) grants throughout the metro Atlanta area.
Sheltering Arms: Early Education and Family Center
http://www.shelteringarmsforkids.com/
Sheltering Arms is Georgia’s oldest non-profit early childhood education programs. It currently
serves over 3,600 children from six weeks to five years of age, in 17 centers in seven metro
Atlanta counties.
Healthy Mothers, Healthy Babies (HMHB) Coalition of Georgia
http://hmhbga.org HMHB provides free, statewide access to healthcare referrals and information through its
PowerLine. One call can provide access to medical or dental providers, WIC, low cost health
resources for the uninsured or for prenatal referrals and assistance with breastfeeding.
Medical and Dental Academies/Associations
Georgia Chapter of American Academy of Pediatrics (GAAAP)
http://www.gaaap.org Georgia Academy of Family Physicians (GAFP)
http://www.gafp.org
Georgia Dental Association (GDA)
http://gadental.org American Academy of Pediatrics (AAP)
http://aap.org http://www.healthychildren.org
http://aap.org/healthtopics/oralhealth.cfm
Clinical Information for First Care
Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov/parents/infants/diseases_conditions.html
This site provides a list of 36 conditions that are common in infants and toddlers, from antibiotics
to jaundice to infections and rotaviruses.
Emory University Medical School, Department of Pediatrics, Developmental
Progress Clinic (DPC)
http://www.pediatrics.emory.edu/divisions/neonatology/dpc1.html
The DPC provides developmental follow-up to a selected group of premature infants discharged
from the Emory Regional Perinatal Center. This site provides a “resource guide” describing
18 CH RESOURCE MANUAL: May 2012 medical conditions commonly associated with prematurity, medical complications, impact on
development and a short summary of each condition. On the left hand side of the home page,
link to “Parent Information” for a discussion of apnea of prematurity and bradycardia. Note the
medical disclaimer.
Developmental Screening Tools
Ages and Stages Questionnaire (ASQ)
http://agesandstages.com/what-is-asq/
The Ages and Stages Questionnaire (ASQ) is a screening tool used by professionals to identify
developmental issues in children from ages one month to 5 ½ years. Highly reliable and valid,
ASQ looks at strengths and trouble spots, educates parents about developmental milestones,
and incorporates parents’ expert knowledge about their children.
Modified Check List for Autism in Toddlers (M-CHAT)
http://www2.gsu.edu/~psydlr/DianaLRobins/Official_M-CHAT_Website.html
The M-CHAT is validated for screening toddlers between sixteen (16) and thirty months of age,
to assess risk for autism spectrum disorders (ASD).
Data Sources
The Annie E. Casey Foundation
www.aecf.org
Kids Count Data Book: State Profiles of Child Well-Being
www.datacenter.kidscount.org
OASIS: Online Analytical Statistical Information System
http://oasis.state.ga.us
OASIS is the Georgia Department of Public Health’s data warehouse and contains a suite of
interactive tools used to access standardized health data repository. Data is available for
multiple variables for maternal health, births and mortality by county, health district or for the
state.
National Survey of Children’s Health, Data Resource Center
http://www.childhealthdata.org/ This is a national, random sample telephone survey of households with children birth to 17
years of age. State specific data is available with the ability to compare state data to national or
regional data. 19 CH RESOURCE MANUAL: May 2012 Babies Can’t Wait (BCW)
National Centers
National Early Childhood Technical Assistance Center (NECTAC)
http://www.nectac.org/
NECTAC serves Part C-Infant and Toddlers with Disabilities Programs and Part B-619 Pre
School Programs for children with disabilities in all 50 states and 10 jurisdictions to improve
service systems and outcomes.
Technical Assistance Center on Social Emotional Intervention (TACSEI)
http://www.challengingbehavior.org/
The Center creates products and resources, based on practices supported by research, to help
decision-makers, caregivers, and service providers apply these best practices in improving
social-emotional outcomes in young children. Most of these free products are available from this
website.
Southeast Regional Resource Center (SERRC)
http://www.rrcprograms.org/serrc
The SERRC is one of six regional centers funded by the U.S. Department of Education’s Office
of Special Education. They assist states in implementing activities that support programs for
infants, toddlers, children and youth with disabilities and their families.
National Center for Medical Home Implementation (NCMHI)
http://medicalhomeinfo.org/
The mission of NCMHI is to work in cooperation with federal agencies, particularly MCHB and
other partners and stakeholders to ensure that all children and youth, including children with
special health care needs, have access to a medical home. National Center for Children in Poverty (NCCP)
http://www.nccp.org/
NCCP is the nation’s leading public policy center dedicated to promoting economic security,
health and wellbeing of America’s low income families and children.
National Center for Infants, Toddlers and Families: Zero to Three
http://www.zerotothree.org
This center is a national non-profit organization that informs, trains and supports parents in
order to improve the lives of infants and toddlers.
National Dissemination Center for Children with Disabilities
http://www.nichcy.org/babies/effectivepractices/pages/default.aspx
This is a central source of information on disabilities in infants, toddlers, children, and youth.
Resources include easy-to-read information on IDEA, the law authorizing early intervention
services and special education. The State Resource Sheets will help readers connect with the
disability agencies and organizations in their state.
20 CH RESOURCE MANUAL: May 2012 Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov/Features/DetectAutismEarly/
Includes:
Learn the Signs, Act Early
http://www.cdc.gov/ncbddd/actearly/index.html
“Learn the Signs, Act Early” is a national campaign to inform professionals and parents
regarding typical milestones of child development. Materials on several developmental
disabilities are available for download.
The National Center on Shaken Baby Syndrome
http://dontshake.org/
The mission is to educate and train parents and professionals and to conduct research that will
prevent the shaking and abuse of infants in the United States.
National Organizations
Individuals with Disabilities Education Act (IDEA)
http://idea.ed.gov
IDEA is the law ensuring services to children with disabilities throughout the nation. IDEA
governs how states and public agencies provide early intervention, special education and
related services to more than 6.5 million eligible infants, toddlers, children and youth with
disabilities. Part C of IDEA serves infants and toddlers birth to three years of age; Part B serves
children from three to 21 years of age.
U.S. Department of Education, Office of Special Education and Rehabilitation
Services (OSERS), Office of Special Education Programs (OSEP)
http://www2.ed.gov/about/offices/list/osers/osep/index.html
The OSEP is dedicated to improving the results for infants, toddlers, children and youth with
disabilities by providing leadership and financial support to assist states and local districts.
National Institute of Child Health and Development (NICHD)
http://www.nichd.nih.gov/health/topics
Provides an alphabetical list, from which can select health and developmental topics from
autism to various genetic syndromes. Conditions are those in which are in the NICHD research
portfolio.
U.S. Consumer Product Safety Commission: Safer Cribs for Babies Available
Today, June 28, 2011 Press Release
http://cpsc.gov/cpscpub/prerel/prhtml11/11260.html
Describes the new mandatory rules for cribs and includes a picture of the five new federal
requirements for cribs. By December 28, 2012 child care facilities, including family child care
homes and infant Head Start centers, as well as public accommodations (hotels/motels) and
rental companies must use only cribs that meet the new crib standards.
Family, Infant Pre-School Program (FIPP)
http://www.fipp.org
21 CH RESOURCE MANUAL: May 2012 FIPP is an early childhood and family support program that specializes in services to special
populations, including teen parents, parents with special needs and families with children with
special needs. Products include on-line learning modules on evidenced based practices and
other training opportunities.
Frank Porter Graham (FPG) Child Development Institute
http://www.fpg.unc.edu/about/index.cfm
FPG is one the nation’s largest multidisciplinary centers for research on young children and their
families.
Georgia Departments and Offices
Georgia Department of Public Health (GDPH)
http://health.state.ga.us/programs/bcw/index.asp http://health.state.ga.us/programs/bcw/factsheet http://health.state.ga.us/programs/childrenfirst/index.asp http://health.state.ga.us/programs/childrenfirst/factsheet http://health.state.ga.us/programs/cms/index.asp http://health.state.ga.us/programs/cms/factsheet Governor’s Office of Children and Families (GOCF)
http://children.georgia.gov
This office supports and strengthens families to improve outcomes for Georgia’s children and
youth through a community-based system of prevention and intervention services, known as
Caring Communities for Children and Families.
Georgia Department of Community Health (DCH)
http://dch.georgia.gov
Provides links to Medicaid, Peach Care and Georgia Families: Care Management Organizations
(CMO’s); the three CMO’s in Georgia providing Medicaid or PeachCare health services to
enrollees are: WellCare, Peach State and AmeriGroup.
Georgia Department of Early Care and Learning (DECAL): Bright from the Start
http://decal.ga.gov
Birth to school age and their families. DECAL administers Georgia’s Pre-K Program; licenses
and monitors center-based and home-based child care facilities and promotes family literacy.
Responsible for meeting the child care and early education needs of Georgia’s children.
Georgia Department of Education (GaDOE)
http://www.doe.k12.ga.us
Includes:
1. Division for Exceptional Students
http://www.doe.k12.ga.us/ci_exceptional.aspx
2. Office of Education Support and Improvement - Title 1: Improving the
Academic Achievement of the Disadvantaged
http://www.doe.k12.ga.us/tss_title lea.aspx
22 CH RESOURCE MANUAL: May 2012 The purpose of Title 1 is to ensure that all children have a fair, equal and significant
opportunity to obtain a high-quality education and reach at a minimum, proficiency on
challenging state academic achievement standards and state assessments.
Georgia Department of Human Services (DHS)
http://www.dhr.state.ga.us/portal/site/DHS/
Includes:
Division of Children and Family Services (DFCS)
http://dfcs.dhs.georgia.gov
Responsible for investigating child abuse, finding foster homes for abused and neglected
children; assists with childcare costs for low income parents who are working or in job training
and other support services.
Georgia Council on Developmental Disabilities (GCDD)
http://www.gcdd.org/
GCDD is a federally funded independent state agency that serves as a leading catalyst for
systems change for individuals and families living with developmental disabilities.
Georgia’s Families Matters
http://georgiafamiliesmatter.org
A web site developed specifically for the Babies Can’t Program. The site provides links to
resources for families, physician providers, child care providers and program providers.
Agencies that Support Families and Children
Georgia Head Start and Early Head Start Programs
http://www.georgiaheadstart.org/
Georgia Head Start and Early Head Start programs provide comprehensive early childhood and
family development services to children from birth to five-years-old, pregnant women and
families. The programs have a long tradition of delivering comprehensive and high quality
services designed to foster healthy development in low-income children and their families. United Way of Metropolitan Atlanta
http://www.unitedwayatlanta.org/Pages/home.aspx Includes:
Early Childhood Division of United Way: Smart Start
http://www.smartstartga.org Smart Start of the Early Learning Division is part of a coalition of advocates and professionals to
implement four Early Reading First (ERF) grants throughout the metro Atlanta area.
Georgia Association of Young Children (GAYC)
http://gayconline.org/
The mission of GAYC is to encourage and support healthy development in young children by
working with others (1) to increase public awareness of the importance of early childhood
education, and (2) to improve the quality of programs for young children through learning
opportunities for early childhood educators.
23 CH RESOURCE MANUAL: May 2012 Sheltering Arms: Early Education and Family Center
http://www.shelteringarmsforkids.com/
Sheltering Arms is Georgia’s oldest non-profit early childhood education programs. It currently
serves over 3,600 children from six weeks to five years of age, in 17 centers in seven metro
Atlanta counties.
Georgia State University (GSU) Project Skilled Credentialed Early Interventionists
(SCEI’s)
http://education.gsu.edu/sceis
Project SCEI’s is part of Georgia’s Comprehensive System of Personnel Development (CSPD)
for Georgia’s Part C program, Babies Can’t Wait. Personnel from five universities collaborate to
implement specific components of Project SCEI’s.
Project SCEI’s Parent Educators
http://education.gsu.edu/sceis/HTML/SCEIs_parentEd.html
Parent Educators are parents who have a child with a disability or delay and have received
services through Babies Can’t Wait. They participate in trainings and provide an important
parent/family perspective to the state office.
March of Dimes (MOD), Georgia Chapter
http://www.marchofdimes.com/georgia
The mission of the MOD is to improve the health of babies by preventing birth defects,
premature births and infant mortality.
Includes:
1. http://www.marchofdimes.com/baby/bringinghome_screening.html
Provides a description of the newborn metabolic/genetic screening tests performed at birth
in Georgia.
2. http://www.marchofdimes.com/baby/premature_indepth.html
This site provides a discussion of premature births, possible causes and common medical
problems of babies born prematurely.
3. http://www.marchofdimes.com/baby/homeafternicu.html
Discusses medications and equipment used in the home environment for premature babies.
Voices for Georgia’s Children
http://georgiavoices.org
Voices are a non-profit organization that advocates for the well-being of children and youth
across the state; they provide research based information, measures and collective voices to
proposed legislation to guide decision makers. The Georgia Birth to Five Coalitions (GB5) is
made up of organizations and individuals who work to improve public policies that impact early
child development, or children from birth through age five.
Children’s Health Care of Atlanta (CHOA)
http://www.choa.org
Includes CHOA at Egleston, at Scottish Rite and at Hughes Spalding.
Healthy Mothers, Healthy Babies (HMHB) Coalition of Georgia
http://hmhbga.org
24 CH RESOURCE MANUAL: May 2012 HMHB provides free, statewide access to healthcare referrals and information through its
PowerLine. One call can provide access to medical or dental providers, WIC, low cost health
resources for the uninsured or for prenatal referrals and assistance with breastfeeding.
Medical and Dental Academies/Associations
Georgia Chapter of American Academy of Pediatrics (GAAAP)
http://www.GAaap.org
Georgia Academy of Family Physicians (GAFP)
http://www.gafp.org
Georgia Dental Association (GDA)
http://gadental.org
American Academy of Pediatrics (AAP)
http://aap.org
http://www.healthychildren.org
Family Support Services
Parent to Parent of Georgia
http://p2pga.org
Parent to Parent serves children and youth with disabilities and their families. Services include
an on-line data base of various resources, such as respite care, child care, or support groups
that are available in local areas and provide training sessions for parents on a wide variety of
topics and a parent-to-parent matching program. Parent to Parent serves as the central office
for:
 Family to Family (F2F) Health Information Center (HIC)
 Georgia’s Family Voices
 Parent Training and Information Center (PTI)
 Family Support 360 Project (Navigator 360 Project)
 Babies Can’t Wait Central Directory
Family Voices
www.familyvoices.org
Family Voices aims to achieve family-centered care for all children and youth with special health
care needs and/or disabilities. Through their national network, they provide families tools to
make informed decisions, advocate for improved public and private policies, build partnerships
among professionals and families, and serve as a trusted resource on health care.
.
Georgia PINES (Parents Infant Network for Educational Services)
http://www.gapines.info
25 CH RESOURCE MANUAL: May 2012 Georgia PINES is a statewide intervention program for families of children birth to five years of
age with a diagnosed hearing impairment and/or a visual impairment.
Georgia Chapter of Hands and Voices
http://www.handsandvoices.org/chapters/ga.html
Georgic Chapter provides support to families with children who are deaf or hard of hearing
without a bias around communication modes or methodology.
Developmental Screening Tools:
Ages and Stages Questionnaire (ASQ)
http://agesandstages.com/what-is-asq/
The Ages and Stages Questionnaire (ASQ) is a screening tool used by professionals to identify
developmental issues in children from ages one month to 5 ½ years. Highly reliable and valid,
ASQ looks at strengths and trouble spots, educates parents about developmental milestones,
and incorporates parents’ expert knowledge about their children.
Modified Check List for Autism in Toddlers (M-CHAT)
http://www2.gsu.edu/~psydlr/DianaLRobins/Official_M-CHAT_Website.html
The M-CHAT is validated for screening toddlers between sixteen (16) and thirty months of age,
to assess risk for autism spectrum disorders (ASD).
26 CH RESOURCE MANUAL: May 2012 Children’s Medical Services (CMS)
National Centers
National Center for Cultural Competence (NCC)
http://nccc.georgetown.edu/
The mission of the NCCC is to increase the capacity of health care and mental health care
programs to design, implement, and evaluate culturally and linguistically competent service
delivery systems to address growing diversity, persistent disparities and to promote health and
mental health equity.
National Center on Health Insurance and Financing: Catalyst Center
http://hdwg.org/catalyst/
The Catalyst Center is a national center dedicated to improving health care coverage and
financing for Children and Youth with Special Health Care Needs (CYSHCN).
National Center for Family/Professional Partnerships (NCFPP)
http://www.fv-ncfpp.org
NCFPP promotes families as partners in the decision-making of healthcare for
youth with special health care needs (CYSHCN) at all levels of care.
children and
National Center for Medical Home Implementation (NCMHI)
http://medicalhomeinfo.org/ The mission of NCMHI is to work in cooperation with federal agencies, particularly MCHB and
other partners and stakeholders to ensure that all children and youth, including children with
special health care needs, have access to a medical home.
National Center for Ease of Use of Community Based Services
http://communitybasedservices.org/
The center will address policy and practice strategies that improve the ease of use of
community-based services for families with a child with a special health care need. The Center
will focus on four domains of ease of use: universality, access, value, and affordability.
National Health Care Transition Center
http://www.gottransition.org/
The Center serves as a national resource for health care professionals, families, youth and
state policy makers focusing on young adults transitioning from pediatric to adult health care.
Other National Centers
National Center on Birth Defects and Developmental Disabilities (NCBDDD)
http://www.cdc.gov/ncbddd/index.html
http://www.cdc.gov/Features/Disabilities/
27 CH RESOURCE MANUAL: May 2012 The Center has three divisions: Division of Birth Defects and Developmental Disabilities, the
Division of Human Development and Disability, and the Division of Blood Disorders. The
mission of the center is to promote health and enhance the full potential of all people with birth
defects, disabilities and those with blood disorders.
National Maternal Child Oral Health Resource Center (MCH OHRC)
http://www.mchoralhealth.org/
The OHRC responds to the needs of professionals working to address current and emerging
public oral health issues, at both the state and community level. The web site offers online
access to current information and materials as well as an extensive resource database.
Insure Kids Now!
http://www.insurekidsnow.gov/
Insure Kids Now! provides information about Medicaid and CHIP services for families who need
health insurance coverage. These programs are designed to be affordable for families who are
not able to afford health insurance coverage in the private market or do not have coverage
available to them.
National Dissemination Center for Children with Disabilities
http://nichcy.org/laws/idea/partb
For school-aged children with disabilities, including preschooler’s, Part B of Individuals with
Disabilities Education Act (IDEA) provides the foundation upon which special education and
related services rest.
National Institute of Child Health and Development (NICHD)
http://www.nichd.nih.gov/health/topics
Provides an alphabetical list, from which can select health and developmental topics from
autism to various genetic syndromes. Conditions are those in which are in the NICHD research
portfolio.
Centers for Disease Control (CDC)
http://www.cdc.gov/oralhealth/topics/child.htm
http://www.cdc.gov/Features/dsTBI_BrainInjury/
http://www.cdc.gov/chronicdisease/index.htm
http://www.cdc.gov/healthyyouth/
Includes:
Division of Adolescent and School Health (DASH)
Includes topics on injury and violence, nutrition, obesity, sexual risk behaviors,
tobacco and alcohol use, health disparities and Youth, Risk Behaviors Surveillance Systems
(YRBSS).
U.S. Consumer Product Safety Commission: Safer Cribs for Babies Available
Today, June 28, 2011 (Press Release)
http://cpsc.gov/cpscpub/prerel/prhtml11/11260.html
Describes the new mandatory rules for cribs and includes a picture of the five new federal crib
requirements. By December 28, 2012 child care facilities, including family child care homes and
infant Head Start centers, as well as public accommodations (hotels/motels) and rental
companies must use only cribs that meet the new crib standards.
28 CH RESOURCE MANUAL: May 2012 Family Support Services
Parent to Parent of Georgia
http://p2pga.org
Provide services to children and youth with disabilities and their families. Services include an
on-line data base of various resources, such as respite care, child care, or support groups, that
are available in local areas, training sessions for parents on a wide variety of topics and a
parent-to-parent matching program. Parent to Parent serves as the central office for:
 Family to Family (F2F) Health Information, Center (HIC)
 Georgia’s Family Voices
 Parent Training and Information Center (PTI)
 Family Support 360 Project (Navigator 360 Project)
 Babies Can’t Wait Central Directory
Federation for Children with Special Needs (FCSN)
http://fcsn.org/index.php
The Federation is a center for parents and parent organizations to work together on behalf of
children with special needs and their families. Organized in 1975 as a coalition of parent groups
representing children with a variety of disabilities, the Federation offers workshops and training,
advocacy and resources to parents of children with special needs and the professionals who
serve them
Governor’s Office for Children and Families (GOCF)
http://children.georgia.gov
Supports and strengthens families to improve outcomes for Georgia’s children and youth
through a community-based system of prevention and intervention services, known as Caring
Communities for Children and Families.
Family Voices
http://www.familyvoices.org/
Family Voices aims to achieve family-centered care for all children and youth with special health
care needs and/or disabilities. Through their national network, they provide families tools to
make informed decisions, advocate for improved public and private policies, build partnerships
among professionals and families, and serve as a trusted resource on health care.
KIDS AS Self Advocates (KASA)
http://www.fvkasa.org/index.php
KASA is a national, grassroots project created by youth with disabilities for youth. National
KASA is a youth-run project of Family Voices.
Georgia Departments and Offices
Georgia Department of Public Health
http://health.state.ga.us/
http://www.health.state.ga.us/programs/cms/index.asp
http://health.state.ga.us/programs/cms/factsheet/
29 CH RESOURCE MANUAL: May 2012 http://health.state.ga.us/programs/childrenfirst/index.asp
http://health.state.ga.us/programs/childrenfirst/factsheet
http://health.state.ga.us/programs/bcw/index.asp
http://health.state.ga.us/programs/bcw/factsheet http://health.state.ga.us/programs/lead/
http://www.health.state.ga.us/programs/immunization/index.asp
http://health.state.ga.us/programs/asthma/index.asp
http://health.state.ga.us/programs/nsmscd/index.asp
http://health.state.ga.us/programs/unhs/index.asp
http://health.state.ga.us/programs/oral/index.asp
http://health.state.ga.us/programs/injuryprevention/occsafety.asp
Georgia Department of Community Health (DCH)
http://dch.georgia.gov
Provides links to Medicaid, PeachCare and Georgia Families: Care Management Organizations
(CMO’s); the three CMO’s in Georgia providing Medicaid or PeachCare services to enrollees
are: WellCare, Peach State and AmeriGroup.
Includes:
1. Medicaid Division, DCH
http://www.dch.georgia.gov/00/channel_title/0,2094,31446711_31944826,00.html
Georgia Medicaid program provides health care for children, pregnant women and people
who aging, blind and disabled. This site provides information on Medicaid programs, such
as the Care Management Organizations (CMO’s), PeachCare (State Children’s Health
Insurance Plan, or S-CHIP) and the Health Insurance Premium Payment (HIPP) and waiver
programs, including Georgia Pediatric Program (GAPP).
2. Georgia Web Portal
https://www.mmis.georgia.gov/portal/default.aspx
Information for providers including enrollment information, member-specific information, and
specific program services information are located here. Handbooks/manuals are updated
periodically; therefore links to those references change as updates are made. Links on this
website provide access to manuals such as the Policies and Procedures for Diagnostic,
Screening and Preventive Services, (DSPS), which includes Medicaid information related to
several Child Health Programs (Children 1st program and Children’s Medical Services
program), as well as Policies and Procedures for Health Check Services (EPDST). To
access the manuals from the home page, click on Provider Information and then on Provider
Manuals.
Georgia Department of Human Services (DHS)
http://www.dhr.state.ga.us/portal/site/DHS/
Includes:
Division of Family and Children Services (DCFS)
http://dfcs.dhs.georgia.gov
Responsible for investigating child abuse, finding foster homes for abused and neglected
children; assists with childcare costs for low income parents who are working or in job training
and other support services:
1. Subsidized Child Care: Child Care and Parent Services (CAPS)
http://dfcs.dhs.georgia.gov/portal/site/DHSDFCS/menuitem.5d32235bb09bde9a50c8798dd03036a0/?vgnextoid=16fa2b48d9a4ff00Vg
nVCM100000bf01010aRCRD
30 CH RESOURCE MANUAL: May 2012 CAPS help low income families afford early childhood and school age care programs. Local
DFCS county offices determine eligibility. Children are eligible from birth to age 13 or up to
age 18, if they have special needs or court ordered supervision.
2. Promoting Safe and Stable Families (PSSF) grantees
www.pssfnet.com
The PSSF program in Georgia provides federal funding, training and technical assistance to
community-based child and family service agencies to help prevent child abuse and neglect,
protects children from further abuse and places children in permanent family settings.
Georgia Department of Behavioral Health and Developmental Disabilities
(DBHDD)
http://www.dbhdd.georgia.gov
Provides treatment and support services to people with mental illness and addictive diseases;
also supports people with mental retardation and related developmental disabilities.
Includes:
Child and Adolescent Mental Health Services Unit of DBHDD
http://dbhdd.georgia.gov/portal/site/DBHDDOld/menuitem.
Services include crisis stabilization, outpatient, community supports, intensive family
intervention and outdoor therapeutic programs.
Georgia Department of Labor (GDOL)
http://www.dol.state.ga.us
Includes:
Rehabilitation Services, Vocational Rehabilitation (VR) Program
http://www.vocrehabga.org
Rehabilitation services’ goal is to help people with disabilities become fully productive members
of society, including independence and employment.
Georgia Department of Education (GaDOE)
http://www.doe.k12.ga.us
Includes:
1. Division for Exceptional Students
http://www.doe.k12.ga.us/ci_exceptional.aspx
2. Georgia Parent Mentor Partnerships
http://www.parentmentor.org:
Parent Mentors are parents or grandparents who have or had a child with a disability. They are
hired by the by local school systems to work with the Special Education Director, other parents,
school teams, teachers and the community. Currently there are almost 100 parent mentors in
approximately 88 school districts. The 2010 Tool Kit can be accessed from this link.
Georgia Association of School Nurses (GASN)
http://www.gasn.org/GASN/
There are about one and half million school age children in Georgia. Approximately 30% have
chronic health conditions, such as dental caries, asthma, diabetes or other conditions affecting
their ability to learn.
Medical/Dental Academies/Associations
31 CH RESOURCE MANUAL: May 2012 Georgia Chapter of American Academy of Pediatrics (GAAAP)
http://www.gaaap.org
Georgia Academy of Family Physicians (GAFP)
http://www.gafp.org
Georgia Dental Association (GDA)
http://gadental.org
American Academy of Pediatrics (AAP)
http://aap.org
http://www.healthychildren.org
Agencies Providing Services to Children with Special Needs
Georgia PINES (Parents Infant Network for Educational Services)
http://www.gapines.info
Georgia PINES is a statewide intervention program for families of children birth to five years of
age with a diagnosed hearing impairment and/or a visual impairment.
Georgia Chapter of Hands and Voices
http://www.handsandvoicesofga.org
Hands and Voices support families with children who are deaf or hard of hearing without a bias
around communication modes or methodology
The Georgia Council on Developmental Disabilities
http://www.gcdd.org
The Georgia Council on Developmental Disabilities is a federally funded, independent state
agency that serves as a leading catalyst for systems change for individuals and families living
with developmental disabilities. Advocate for and provides resources for independent living and
employment.
Brain Injury Association of Georgia (BIAG)
http://www.braininjurygeorgia.org/about.htm
An advocacy group consisting of brain injury survivors, family members, friends, and
professionals who work together to provide information and resources to persons experiencing
brain injury.
Georgia Brain & Spinal Injury Trust Fund Commission
http://www.gatrustfund.org/
As the state’s lead agency on Traumatic Injuries, the commission administers the central
registry to identify those who are injured, distributes resources through the Trust Fund and
advocates for improvement in statewide services.
Children’s Health Care of Atlanta (CHOA)
http://www.choa.org/
32 CH RESOURCE MANUAL: May 2012 Includes Children’s Hospitals at Egleston, Scottish Rite and Hughes Spalding.
Easter Seals North Georgia (ESNG)
http://northgeorgia.easterseals.com/aovides high‐quality services to ensure that all children with ESNG provides services to children and adults with disabilities. Services may include: medical
rehabilitation, respite care/family support program, comprehensive day program for adults and a
home for medically fragile children.
Easter Seals East Georgia (ESEG)
http://ga-ea.easterseals.com/
The Champion for Children Program is designed to primarily assist children and families who do
not meet the eligibility requirements for the Tax Equity and Fiscal Responsibility Act (TEFRA)/
Katie Beckett Medicaid program. The program will provide direct financial assistance and
support services for Georgia’s medically fragile and special needs and their families.
Easter Seals West Georgia (ESWG) http://westgeorgia.easterseals.com/
The mission of ESWG is to provide services that enable individuals with disabilities or special
needs and their families to achieve their maximum potential. Services include providing
assistive technology and soon will be opening Megan’s House for respite care for children two
to 17 years of age with disabilities. .
Easter Seals of Southern Georgia (ESSG)
http://southerngeorgia.easterseals.com/
Easter Seals of Southern Georgia assists children, adults and families with disabilities or special
needs by offering a variety of programs and services that enable individuals to lead lives of
equality, dignity and independence. ESSG operates the only respite home south of Atlanta for
medically fragile children.
Data Resources
HRSA: National Survey of Children with Special Needs
http://mchb.hrsa.gov/cshcn05/
Links to national indicators, core outcomes, state findings and more.
National Survey of Child and Adolescent Health (NSCH), Data Resource Center
http://www.chil dhealthdata.org/
National Survey of Children with Special Health Care Needs (NS-CSHCN), Data
Resource Center
http://www.cshcndata.org/ The Annie E. Casey Foundation
www.aecf.org
Kids Count Data Book: State Profiles of Children
www.datacenter.kidscount.org 33 CH RESOURCE MANUAL: May 2012 Health Check (Early Periodic Screening, Diagnosis and
Treatment/EPSDT)
National Centers
Bright Futures: Guidelines for Health Supervision of Infants, Children and
Adolescents, 3rd Ed. http://brightfutures.aap.org/ Bright Futures (BF) is a national health promotion and disease prevention initiative that
addresses children's health needs in the context of family and community. In addition to use in
pediatric practice, many states implement BF principles, guidelines and tools to strengthen the
connections between state and local programs, pediatric primary care, families, and local
communities.
Includes links to:
1. BF Videos and Training Materials
http://brightfutures.aap.org/video_landingpg.html
This link provides access to: 1) videos describing what’s new in 3rd edition of BF as well as
videos for families discussing infant development; 2) link to Putting BF to Work in states and
examples how BF is used for health professional education.
2. BF Clinical Practice Resources
http://brightfutures.aap.org/clinical_practice.html
This link provides access to the BF Tool and Resource Kit and to the BF/AAP Periodicity
Schedule (Recommendations for Preventive Pediatric Health Care from Infancy thru
Adolescence).
Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov/oralhealth/
http://www.cdc.gov/chronicdisease/index.htm
http://www.cdc.gov/Features/DetectAutismEarly/
Includes:
1. Clinical Growth Charts
http://www.cdc.gov/growthcharts/
This site includes CDC and World Health Organization growth charts.
2. Division of Adolescent and School Health (DASH)
http://www.cdc.gov/healthyyouth
This site includes topics on injury and violence, nutrition, obesity, sexual risk behaviors,
tobacco and alcohol use, health disparities and Youth, Risk Behaviors Surveillance Systems
(YRBSS).
National Center for Medical Home Implementation (NCMHI)
http://medicalhomeinfo.org/
The mission of NCMHI is to work in cooperation with federal agencies, particularly MCHB and
other partners and stakeholders to ensure that all children and youth, including children with
special health care needs, have access to a medical home. 34 CH RESOURCE MANUAL: May 2012 Maternal and Child Oral Health Resource Center (MCH OHRC)
http://www.mchoralhealth.org/
The OHRC responds to the needs of professionals working to address current and emerging
public oral health issues, at both the state and community level. The web site offers online
access to current information and materials as well as a resource data base.
Georgia Departments and Offices
Georgia Department of Public Health (GDPH)
http://health.state.ga.us/programs http://health.state.ga.us/programs/healthcheck/index.asp
http://health.state.ga.us/pdfs/publications/factsheets/InfantAndChildHealth_HealthCheckProgra
m.pdf
http://health.state.ga.us/programs/lead/
http://health.state.ga.us/programs/nursing/protocols.asp
http://health.state.ga.us/programs/oral/
http://health.state.ga.us/programs/bcw/index.asp
http://health.state.ga.us/programs/childrenfirst/index.asp
http://health.state.ga.us/programs/cms/index.asp
http://health.state.ga.us/programs/unhs/index.asp
http://health.state.ga.us/programs/nsmscd/index.asp
http://health.state.ga.us/programs/immunizations/index.asp
http://health.state.ga.us/programs/std/index.asp
http://health.state.ga.us/programs/tb/index.asp
http://health.state.ga.us/programs/women/index.asp
http://wic.ga.gov/
Includes:
SABA: The People Management Solution
http://dhrprod-sabaapp.dhr.state.ga.us/Saba/Web/Main
Sign in to SABA (available to Department of Public Health employees only). Contains links to:
 Bright Futures Overview (Video)
 Bright Futures Tool and Resources Kit
Georgia Department of Community Health (DCH)
http://dch.georgia.gov
Provides links to Medicaid, PeachCare and Georgia Families: Care Management Organizations
(CMO’s); the three CMO’s in Georgia providing Medicaid or PeachCare health services to
enrollees are: WellCare, Peach State and AmeriGroup.
Includes:
1. Health Check Medicaid Manual
https://www.mmis.georgia.gov/portal/PubAccess.Provider%20Information/Provider%20Manu
als/tabId/54/Default.aspx
The Medicaid Manual provides the requirements for delivering Health Check services.
2. Medicaid Division, DCH
http://www.dch.georgia.gov/00/channel_title/0,2094,31446711_31944826,00.html
Georgia Medicaid program provides health care for children, pregnant women and people
who are aging, blind and disabled. This site provides information on Medicaid programs,
35 CH RESOURCE MANUAL: May 2012 such as the CMO’s, PeachCare (State Children’s Health Insurance Plan, or S-CHIP) and the
health Insurance Premium Plan (HIPP) and waiver programs, including Georgia Pediatric
Program (GAPP).
3. Georgia Web Portal
https://www.mmis.georgia.gov/portal/default.aspx
Information for providers including enrollment information, member-specific information, and
specific program services information are located here. Handbooks/manuals are updated
periodically; therefore links to those references change as updates are made. Links on this
website provide access to manuals such as the Policies and Procedures for Diagnostic,
Screening and Preventive Services, (DSPS), which includes Medicaid information related to
several Child Health Programs (Children 1st program and Children’s Medical Services
program), as well as Policies and Procedures for Health Check Services (EPDST). To
access the manuals from the home page, click on Provider Information and then on Provider
Manuals.
Georgia Department of Behavioral Health and Developmental Disability (DBHDD)
http://www.dbhdd.georgia.gov
DBHDD provides treatment and support services to those with mental illness and addictive
diseases and those with mental retardation and related development disabilities.
Includes:
Child and Adolescence Mental Health Services
http://dbhdd.georgia.gov/portal/site/DBHDDOld/menuitem.
Services include crisis stabilization, outpatient, community supports, intensive family
intervention and outdoor therapeutic programs.
Georgia Department of Education (GaDOE)
http://www.doe.k12.ga.us
Georgia Department of Human Services (DHS)
http://www.dhr.state.ga.us/portal/site/DHS/
Includes:
Division of Family and Children Services (DFCS)
http://dfcs.dhs.georgia.gov
Responsible for investigating child abuse, finding foster homes for abused and neglected
children; assists with childcare costs for low income parents who are working or in job training
and other support services.
Georgia Association of School Nurses (GASN)
http://www.gasn.org/GASN/
Statewide organization affiliated with the National Association of School Nurses. GASN works to
promote excellent in school nursing practice through continuing education programs and
advocacy.
Medical and Dental Academies/ Associations
Georgia Chapter of American Academy of Pediatrics (GAAAP) http://www.gaaap.org
36 CH RESOURCE MANUAL: May 2012 American Academy of Pediatrics (AAP)
http://aap.org
http://www.healthychildren.org
http://aap.org/healthtopics/oralhealth.cfm
Includes:
Oral Health Risk Assessment Tool
http://www.aap.org/oralhealth/riskassessmenttool.html
This site provides access to the Oral Health Risk Assessment Tool: Tutorial and Download, plus
provides links to other education and training resources, as well as resources for families.
Georgia Academy of Family Physicians (GAFP)
http://www.gafp.org
Georgia Dental Association (GDA)
http://gadental.org
Agencies that Support Families and Children
Georgia Head Start and Early Head Start Program
http://www.georgiaheadstart.org/
Georgia Head Start and Early Head Start programs provide comprehensive early childhood and
family development services to children from birth to five-years-old, pregnant women and
families. The programs have a long tradition of delivering comprehensive and high quality
services designed to foster healthy development in low-income children and their families.
Georgia PINES (Parents Infant Network for Educational Services)
http://www.gapines.info
Georgia PINES is a statewide intervention program for families of children birth to five years of
age with a diagnosed hearing impairment and/or a visual impairment.
Georgia Chapter of Hands and Voices
http://gahandsandvoices.org/
Hands and Voices provides support to families with children who are deaf or hard of hearing
without a bias around communication modes or methodology
Prevent Blindness Georgia
http://www.preventblindness.org/Georgia/index.html
Prevent Blindness Georgia affects the lives of thousands of Georgians’ each year. They provide
public and professional education, advocacy, certified vision screening and training, and
community and individual service programs.
Scoliosis Research Society (SRS)
http://www.srs.org
SRS is an international organization of spinal surgeons dedicated to the education, research
and treatment of spinal deformity. Includes links to patient and family materials as well as
resources for professionals, including information on conditions, treatment and educational
materials.
37 CH RESOURCE MANUAL: May 2012 National Scoliosis Foundation
http://www.scoliosis.org/index.php
This site provides links to information, that includes frequently asked questions, a glossary of
terminology and links to other related scoliosis sites.
Children’s Health Care of Atlanta (CHOA)
http://www.choa.org
CHOA includes Children’s Hospital at Egleston, at Scottish Rite and at Hughes Spalding.
Developmental Screening Tools
Ages and Stages Questionnaire (ASQ)
http://agesandstages.com/what-is-asq/
The Ages and Stages Questionnaire (ASQ) is a screening tool used by professionals to identify
developmental issues in children from ages one month to 5 ½ years. Highly reliable and valid,
ASQ looks at strengths and trouble spots, educates parents about developmental milestones,
and incorporates parents’ expert knowledge about their children.
Modified Check List for Autism in Toddlers (M-CHAT)
http://www2.gsu.edu/~psydlr/DianaLRobins/Official_M-CHAT_Website.html
The M-CHAT is validated for screening toddlers between sixteen (16) and thirty months of age,
to assess risk for autism spectrum disorders (ASD).
Data Resources
National Survey of Children’s Health, Data Resource Center
http://www.childhealthdata.org/
This is a national random sample telephone survey of households with children birth to
17 years of age. State specific data is available with the ability to compare state data to national
or regional data, on a number of health variables.
The Annie E. Casey Foundation
http://www.aecf.org
Kids Count Data Book: State Profiles of Child Well-Being
http://datacenter.kidscount.org/databook/Default.aspx
OASIS: Online Analytical Statistical Information System
http://oasis.state.ga.us/index.asp
This is the Georgia Department of Public Health’s data warehouse, that allows one to create
tables of health statistics on multiple maternal and child health topics, but also to perform data
mapping.
38 CH RESOURCE MANUAL: May 2012 Early Childhood Comprehensive Systems (ECCS)
National Centers
National Early Childhood Comprehensive Systems (ECCS) Initiative
http://eccs.hrsa.gov
Provides access to information and resources for the State ECCS grantees to strengthen the
systems-building work they are doing.
Georgetown University Center for Child and Human Development (GUCCHD)
http://gucchd.georgetown.edu/64271.html
Areas of focus and expertise include: Building Early Childhood Systems, Best Practices in Early
Childhood and Early Childhood Research and Evaluation, plus other topics.
National Technical Assistance for Children’s Mental Health (NTACMH)
http://gucchdtacenter.georgetown.edu/
The NTACMH Works in partnership with families and many other leaders to transform systems
and services for children, adolescents, and young adults who have, or are at risk for, mental
health problems and their families.
National Center for Birth Defects and Developmental Disabilities (NCBDDD)
http://www.cdc.gov/ncbddd/actearly/index.html
“Learn the Signs, Act Early” is a national campaign to inform professionals and parents
regarding typical milestones of child development. Materials on several developmental
disabilities are available for download.
National Center for Children in Poverty (NCCP)
http://www.nccp.org/
NCCP is the nation’s leading public policy center dedicated to promoting economic health and
well-being of low income families and children.
National Center for Infants, Toddlers and Families: Zero to Three
http://www.zerotothree.org/ Zero to three is a national non-profit organization that provides information, training, and
supports parents in order to improve the lives of infants and toddlers. National Dissemination Center for Children with Disabilities
http://nichcy.org/laws/idea/partb
For school age children with disabilities, including those in preschool, Part B of the Individuals
with Disability Education Act (IDEA) is the foundation upon which related services are built. This
site provides multiple links to all aspects of Part B of IDEA.
Center on the Social and Emotional Foundations for Early Learning (CSEFEL)
http://csefel.vanderbilt.edu/
The CSEFEL is focused on promoting the social and emotional development and school
readiness of young children birth to age 5. CSEFEL is a national resource center funded by the
39 CH RESOURCE MANUAL: May 2012 Office of Head Start and Child Care Bureau for disseminating research and evidence-based
practices to early childhood programs across the country.
The BUILD Initiative (Strong Foundations for Our Youngest Children)
http://www.buildinitiative.org/
BUILD helps states construct a coordinated system of programs, policies and services that
responds to the needs of young children and their families. We work with organizations and
agencies that set policies, provide services and advocate for our youngest children to make
sure that they are safe, healthy, and eager to learn and ready to succeed in school.
Healthy Child Care America (HCCA)
http://www.healthychildcare.org/
The HCCA program is a collaborative effort of health professionals and child care providers
working to improve the early education and health and safety of children in out-of-home child
care. This includes increasing access to preventive health services, safe physical environments,
and a medical home for all children.
Administration for Children and Families (ACF)
http://www.acf.hhs.gov/programs/ccb/ta/pubs/fta/federalta.htm
Provides a list of selected federally funded Early Childhood Technical Programs.
Georgia Departments and Offices
Governor’s Office for Children and Families (GOFC)
http://children.georgia.gov
GOFC supports and strengthens families to improve outcomes for Georgia’s children and youth
through a community-based system of prevention and intervention services, known as Caring
Communities for Children and Families.
Georgia Department of Behavioral Health and Developmental Disabilities
(DBHDD)
http://www.dbhdd.georgia.gov
Provides treatment and support services to those with mental illness and addictive diseases;
also supports people with mental impairment and related developmental disabilities.
Includes:
Child and Adolescent Mental Health Services Unit of DBHDD
http://dbhdd.georgia.gov/portal/site/DBHDDOld/menuitem.
Services include crisis stabilization, outpatient, community supports and intensive family
intervention. Outdoor therapeutic programs for children and adolescents with serious
emotional disturbances are also available.
Department of Early Care and Learning (DECAL): Bright from the Start
http://decal.ga.gov
Responsible for meeting the child care and early education needs of Georgia’s children, birth to
school age and their families. DECAL administers Georgia’s Pre-K Program; licenses and
monitors center and home-based child care facilities and promotes family literacy in addition to
other responsibilities.
40 CH RESOURCE MANUAL: May 2012 Georgia Department of Education (GaDOE)
http://www.doe.k12.ga.us
Includes:
1. Division for Exceptional Students
http://www.doe.k12.ga.us/ci_exceptional.aspx
2. Office of Education Support and Improvement - Title 1: Improving the
Academic Achievement of the Disadvantaged
http://www.doe.k12.ga.us/tss_title lea.aspx
The purpose of Title 1 is to ensure that all children have a fair, equal and significant
opportunity to obtain a high-quality education and reach at a minimum, proficiency on
challenging State academic achievement standards and state assessments.
3. Georgia Parent Mentor Partnerships
http://www.parentmentor.org
Parent Mentors are parents or grandparents who have or had a child with a disability. They
are hired by the by local school systems to work with the Special Education Director, other
parents, school teams, teachers and the community. Currently there are almost 100 parent
mentors in approximately 88 school districts. The 2010 Tool Kit can be accessed from this link.
Georgia Department of Human Services (DHS)
http://www.dhr.state.ga.us/portal/site/DHS/
Includes:
Division of Family and Children Services (DFCS)
http://dfcs.dhs.georgia.gov
Responsible for investigating child abuse, finding foster homes for abused and neglected
children; assists with childcare costs for low income parents who are working or in job training
and other support services:
1. Subsidized Child Care: Child Care and Parent Services (CAPS)
http://dfcs.dhs.georgia.gov/portal/site/DHSDFCS/menuitem.5d32235bb09bde9a50c8798dd03036a0/?vgnextoid=16fa2b48d9a4ff00Vg
nVCM100000bf01010aRCRD
CAPS help low income families afford early childhood and school age care programs.
Local DFCS county offices determine eligibility. Children are eligible from birth to age 13 or
up to age 18, if they have special needs or court ordered supervision.
2. Promoting Safe and Stable Families (PSSF) grantees
www.pssfnet.com
The PSSF program in Georgia provides federal funding, training and technical assistance to
community-based child and family service agencies to help prevent child abuse and neglect,
protects children from further abuse and places children in permanent family settings.
Agencies that Serve Families and Children
Georgia Association of Young Children (GAYC)
http://gayconline.org/
The mission is to encourage and support healthy development in young children by working with
others (1) to increase public awareness of the importance of early childhood education, and (2)
41 CH RESOURCE MANUAL: May 2012 to improve the quality of programs for young children through learning opportunities for early
childhood educators. Georgia Family Connections Partnership (GaFCP)
http://gafcp.org
GaFCP, a nonprofit public-private intermediary, exists to: (1) unify their commitment to
Georgia’s children and families; (2) make sure their efforts to improve the lives of children and
families work; and (3) protects every dime of their investment in Georgia’s future.
Georgia Council on Developmental Disabilities (GCDD)
http://www.gcdd.org/
GCDD is a federally funded independent state agency that serves as a leading catalyst for systems change for individuals and families living with developmental disabilities.
Georgia Head Start and Early Head Start Program
http://www.georgiaheadstart.org/
Programs provide comprehensive early childhood and family development services to children
from birth to five-years-old, pregnant women and families. United Way of Metropolitan Atlanta http://www.unitedwayatlanta.org/Pages/home.aspx
Includes:
Early Childhood Division: Smart Start
http://www.smartstartga.org
Smart Start of the Early Learning Division is part of a coalition of advocates and professionals to
implement four Early Reading First (ERF) grants throughout the metro Atlanta area.
Healthy Mothers, Healthy Babies (HMHB) Coalition of Georgia
http://hmhbga.org
HMHB provides free, statewide access to healthcare referrals and information through its
PowerLine. One call can provide access to medical or dental providers, WIC, low cost health
resources for the uninsured or for prenatal referrals and assistance with breastfeeding.
Georgia Training Institute (GTI)
http://www.georgiatraininginstitute.com/
Sheltering Arms GTI serves early care and education and family development professionals
with researched based training.
Family Support Services
Parent to Parent of Georgia
http://p2pga.org
Parent to Parent serves children and youth with disabilities and their families. Services include
an on-line data base of resources such as respite care, child care, support groups available in
local areas and provide training sessions for parents on a wide variety of topics. A parent-toparent matching program is also available.
42 CH RESOURCE MANUAL: May 2012 Parent to Parent is the central office for the following groups:
 Family to Family (F2F) Health Information Center (HIC)
 Georgia’s Family Voices
 Parent Training and Information Center (PTI)
 Family Support 360 Project (Navigator 360 Project)
 Babies Can’t Wait Central Directory
Data Resources
National Survey of Children’s Health, Data Resource Center
http://www.childhealthdata.org/ This is a national random sample telephone survey of households with children birth to
17 years of age. State specific data is available with the ability to compare state data to national
or regional data, on a number of health variables.
The Annie E. Casey Foundation
www.aecf.org
Kids Count Data Book: State Profiles of Child Well-Being
http://datacenter.kidscount.org/databook/Default.aspx
43 CH RESOURCE MANUAL: May 2012 Sudden Unexpected Infant Death (SUID), Sudden Infant
Death (SIDS), Abusive Head Trauma (AHT)/Shaken Baby
Syndrome (SBS) National Centers
Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov/concussion/HeadsUp/sbs.html
Link to information about head trauma/shaken baby syndrome and provides a link to:
Preventing Shaken Baby Syndrome: Guide for Health Departments and Community-Based
Organizations
National SUID/SIDS Resource Center (Georgetown University)
http://www.sidscenter.org
This center is funded by Maternal and Child Health Bureau and provides links to a
comprehensive list of resources, including bereavement support and statistical data.
Other MCHB funded partners include:
4. Project Impact
http://www.suid-im-projectimpact.org
5. Program Support Center (PSC) at First Candle
http://www.firstcandle.org/
6. Link to: A Program Manual and Trainer’s Guide for Sudden and Unexpected
Infant/Child Death and Pregnancy Loss
http://www.programmanual.info/intro_manual/intro.html
Other National Organizations
U.S. Consumer Product Safety Commission: Safer Cribs for Babies Available
Today, June 28, 2011 Press Release
http://cpsc.gov/cpscpub/prerel/prhtml11/11260.html
Describes the new mandatory federal rules for cribs and includes a picture
of the new requirements. By December 28, 2012 child care facilities, including family child care
homes and infant Head Start centers, as well as public accommodations (hotels/motels) and
rental companies must use only cribs that meet the new federal crib standards.
National Institute of Child Health and Human Development (NICHD)
http://www.nichd.nih.gov/publications/pubs/upload/BTS_safe_environment.pdf
Describes in words and pictures “What a Safe Sleep Environment Looks Like?”
American Academy of Pediatrics (AAP) – Healthy Children
http://www.healthychildren.org/English/Pages/default.aspx
44 CH RESOURCE MANUAL: May 2012 Includes links to multiple home safety prevention articles as listed below:
1. Safety Prevention at Home
http://www.healthychildren.org/English/safety-prevention/at-home/Pages/default.aspx
2. Safe Sleep for Babies (Video)
http://www.healthychildren.org/English/safety-prevention/at-home/Pages/Safe-Sleep-forBabies.aspx (updated 12-6-2010)
3. Abusive Head Trauma
http://www.healthychildren.org/English/safety-prevention/at-home/pages/Abusive-HeadTrauma-Shaken-Baby-Syndrome.aspx (updated 6-10-2010)
4. Keeping Child Safe in Grandparent Home
http://www.healthychildren.org/English/safety-prevention/at-home/Pages/A-Message-forGrandparents-Keeping-Your-Grandchild-Safe-in-Your-Home.aspx
Data Resources
SIDS deaths in Georgia http://oasis.state.ga.us/
Click on “infant deaths”; under “cause”, scroll down to “SIDS”; data displayed for the state,
health district and counties within each health district.
45 CH RESOURCE MANUAL: May 2012 Oral Health
National Centers
Maternal and Child Oral Health Resource Center (MCH OHRC)
http://www.mchoralhealth.org/
The OHRC responds to the needs of professionals working to address current and emerging
public oral health issues, at both the state and community level. The web site offers online
access to current information and materials as well as an extensive resource database.
National Maternal and Child Oral Health Policy Center (NMCOHPC)
http://nmcohpc.net/
The Oral Health Policy Center promotes understanding of effective policy options to address
ongoing disparities in children’s oral health and improve family oral health.
A Health Professionals Guide to Pediatric Oral Health Management
http://www.mchoralhealth.org/PediatricOH/mod1.htm
This site consists of seven self-instructional modules pertaining to promoting oral health in
infants and children. Select a numbered module to identify topics such as oral screening,
anticipatory guidance to parents, or infants and youth with special healthcare needs.
Centers for Disease Control and Prevention (CDC), Division of Oral Health
http://www.cdc.gov/oralhealth
The mission of the Division is to prevent and control oral diseases and conditions by building
knowledge, tools, and networks that promote healthy behaviors and effective public health
practices and programs. Provides links to children’s oral health, school-based sealant
programs, disparities in oral health and much more.
Includes:
1. National Oral Health Surveillance System (NOHSS)
http://www.cdc.gov/nohss
The National Oral Health Surveillance System (NOHSS) tracks the burden of oral disease,
the use of oral health care delivery system and the status of water fluoridation on a state
and national level. Nine Oral Health Indicators are tracked.
2. Children’s Oral Health
http://www.cdc.gov/oralhealth/topics/child.htm
This site consists of children’s oral health information on a large number of topics from oral
health and learning, to school-based dental sealants. (Updated 7 January 2011)
3. CDC Oral Health Strategic Plan 2011-2014
http://www.cdc.gov/oralhealth/strategicplan/plan1.htm
Medical and Dental Academies and Associations
46 CH RESOURCE MANUAL: May 2012 Georgia Dental Association (GDA)
http://gadental.org
GDA, the professional dental organization in the state, was founded in 1859. A link “Find a
Dentist” will assist consumers in finding a GDA member dentist in their local area. Medicaid
members are requested to call their Care Management Organization for a referral to a dentist
who provides services to Medicaid members.
Georgia Dental Hygienists’ Association (GDHA)
http://www.gdha.org/
Professional association of dental hygienists in Georgia and is affiliated with the American
Dental Hygienists’ Association (ADHA). The “Oral Health Information” link accesses multiple
resources on oral health, including the ADHA web site.
American Dental Association (ADA)
http://www.ada.org/
ADA is the national professional association of dentists that fosters the success of its
membership and advances the oral health of the public. An alphabetical list of oral health
topics, from baby bottle tooth decay to teeth implants to teeth whitening, can be accessed by
clicking on Public Resources.
American Academy of Pediatric Dentistry (AAPD)
http://www.aapd.org/
Membership organization of the specialty of pediatric dentistry that serves infants, children and
adolescents, including those with special health care needs. There is a link to the Dental Home
Resource Center.
American Academy of Pediatrics (AAP)
http://aap.org
http://www.healthychildren.org
http://aap.org/healthtopics/oralhealth.cfm Includes:
Link to: Oral Health Risk Assessment Tool
http://www.aap.org/oralhealth/riskassessmenttool.html
This site provides access to the Oral Health Risk Assessment Tool: Tutorial and Download, plus
provides links to other education and training resources, as well as resources for families.
Georgia Departments and Offices
Georgia Department of Public Health (GDPH)
http://health.state.ga.us/programs/oral/
http://health.state.ga.us/programs/bcw/index.asp
http://health.state.ga.us/programs/childrenfirst/index.asp
http://health.state.ga.us/programs/cms/index.asp
Includes:
Link to: Georgia Oral Health Prevention Program Fluoride Varnish Manual,
February 2008
http://health.state.ga.us/pdfs/familyhealth/oral/fluoridemanual.pdf
47 CH RESOURCE MANUAL: May 2012 Georgia Department of Community Health (DCH)
http://dch.georgia.gov
Provides links to Medicaid, PeachCare and Georgia Families: Care Management Organizations
(CMO’s): the three CMO’s in Georgia providing Medicaid or PeachCare health services to
enrollees are: WellCare, Peach State and AmeriGroup.
Georgia Association of School Nurses (GASN)
http://www.gasn.org/GASN/
There are approximately one and half million school age children in Georgia. Approximately
30% have chronic health conditions that affect their ability to learn. Health priorities for 20102016 for students, school faculty, and staff include oral health, obesity, asthma, immunization,
tobacco use prevention, cancer prevention and cardiovascular health. 48 CH RESOURCE MANUAL: May 2012 Special Supplemental Nutrition Program for Women, Infants
and Children (WIC) and Nutrition
Nutrition
National Centers
Centers for Disease Control and Prevention (CDC), National Center for Chronic
Disease Prevention and Health Promotion (NCCDPHP), Division of Nutrition,
Physical Activity and Obesity (DNPAO)
http://www.cdc.gov/nccdphp/dnpao
The DNPOA uses a Public Health approach to address the role of nutrition and physical activity
in preventing and controlling chronic disease; provides links to healthy weight, overweight and
obesity, nutrition and physical activity.
U.S. Department of Agriculture “My Plate” Food Guide
http://www.choosemyplate.gov/
The federal government’s new food icon is “My Plate” which serves to remind consumers to
make healthier food choices; it emphasizes fruits, vegetables, grains, protein and dairy food
groups.
Includes:
1. “My Plate” Materials for Children and General Population
http://www.choosemyplate.gov/specificaudiences.html
2. Materials for Health Professionals
http://www.choosemyplate.gov/professionals/index.html
3. Printable Materials
http://www.choosemyplate.gov/tipsresources/printmaterials.html
Georgia Departments and Offices
Georgia Department of Public Health
http://health.state.ga.us/programs/nutrition/index.asp
Provides links to breastfeeding, Fruits and Veggies Program, Georgia Physical Activity and
Nutrition Initiative, WIC and WIC Infant Formula Guide.
Includes:
Nutrition Publications and Fact Sheets
http://health.state.ga.us/programs/nutrition/publications.asp
49 CH RESOURCE MANUAL: May 2012 Special Supplemental Nutrition Program for Women, Infants
and Children (WIC)
National Centers
U.S. Department of Agriculture, Food & Nutrition Service, WIC Program
http://www.fns.usda.gov/wic/
U.S. Department of Agriculture, WIC Works Resource System: Infant
Nutrition and Health Topics & Educational Materials
http://wicworks.nal.usda.gov/nal_display/index.php?info_center=12&tax_level=1&tax_subject=6
24
This site provides an extensive list of nutrition information during pregnancy, infancy and
childhood, plus nutrition education and assessment tools.
U.S. Department of Agriculture, WIC Works Resource System: Child Nutrition and
Health Topics & Educational Materials
http://wicworks.nal.usda.gov/nal_display/index.php?info_center=12&tax_level=1&tax_subject=6
25
This site provides links to Early Childhood Obesity Prevention and Policies, as well as healthy
tips for active play, picky eaters and healthy sleep.
Georgia Departments and Offices
Georgia Women, Infant and Children (WIC) Program
http://www.wic.ga.gov
Includes:
1. Georgia WIC Procedure Manual and State Plan
http://wic.ga.gov/pdfs/wic/2011_Procedures_Manual.pdf
2. Georgia’s WIC Food Package (revised October 2010)
http://wic.ga.gov/media.asp
3. WIC Clinic Site List
http://health.state.ga.us/wic_clinics/clinic_lookup.aspx
4. WIC Infant Formula and Medical Food Resources
http://wic.ga.gov/wicformula.asp
50 CH RESOURCE MANUAL: May 2012 WIC Breast Feeding
WIC Works: Loving Support
http://1.usa.gov/lovingsupport
WIC Works: Grow and Glow
http://1.usa.gov/growandglow
This site provides access to breast feeding competency training that includes DVD’s
and power point slides with speaker notes.
Breastfeeding: A Magical Bond of Love
http://1.usa.gov/magicalbond
This is the WIC Hispanic Breast Feeding and Promotion Project that provides research-based,
culturally-sensitive breast feeding resources that address perceived barriers to breast feeding
among Hispanic participants. WIC agencies can order free copies of Magical Love materials.
Additional Breast Feeding Resources
The Surgeon’s General’s Call to Action to Support Breastfeeding, 2011 Report
http://www.cdc.gov/breastfeeding/promotion/calltoaction.htm This 88 page document has topics and data related to breastfeeding and includes a section on
Breastfeeding from the Public Health Perspective. Includes:
Link to: The CDC Guide to Breastfeeding Interventions
http://www.cdc.gov/breastfeeding/resources/guide.htm
U.S. Department of Health and Human Service, Office of Women’s Health
http://www.womenshealth.gov/breastfeeding/
Links to multiple sites related to breastfeeding, breastfeeding topics and to the National Breast
Feeding Help Line. (1-800-994-9662).
baby gooroo
http://www.babygooroo.com/
Infant Risk Center (Texas Tech University Health Science Center)
http://www.infantrisk.com/
This site provides research-based information on medications and breastfeeding and a free help
line to answer questions. (1-806-352-2519; Monday-Friday 8 AM-5 PM)
Breastfeeding Made Simple: Seven Natural Laws for Nursing Mothers
http://www.breastfeedingmadesimple.com/
This book describes the seven natural laws to get mothers started on the right track to breast
feeding and avoid common challenges.
51 CH RESOURCE MANUAL: May 2012 Biological Nurturing – “Laid Back Breastfeeding” http://www.biologicalnurturing.com/index.html Evidence-based information for mothers to help them breastfeed successfully, emphasizing the
“laid back” position to improve latch and comfort.
Link to: An Introduction to Biological Nurturing and other publications.
http://www.ibreastfeeding.com/catalog/p246/Introduction-to-Biological-Nurturing,An/product_info.html
U.S. Department of Health and Human Services, Office of Women’s Health:
Your Guide to Breast Feeding, January 20, 2011
http://www.womenshealth.gov/pub/bf.cfm
This easy-to-read, 24 page publication provides information and support needed to breast feed
successfully. It is available in English, Spanish and Chinese with versions for African American
and Alaska Native women. Available for free on-line or call 1-800-994-662.
US Dept. of Labor Fact Sheet # 73: Break Time for Nursing Mothers under the
FLSA (Fair Labor Standards Act)
http://www.dol.gov/whd/regs/compliance/whdfs73.pdf
Explains the legal regulations related to allowing breast feeding mothers time to pump in the
work place.
Physical Activity/Obesity
National Centers/Departments
Centers for Disease Control and Prevention (CDC) Division of Nutrition, Physical
Activity and Obesity (DNPAO)
http://www.cdc.gov/nccdphp/dnpao/
The DNPOA uses a Public Health approach to address the role of nutrition and physical activity
in preventing and controlling chronic disease; provides links to healthy weight, overweight and
obesity, nutrition and physical activity.
Includes:
Childhood Obesity
http://www.cdc.gov/obesity/childhood
This site provides the basics of childhood obesity, strategies and solutions, as well as data and
statistical information.
U.S. Department of Agriculture, WIC Works Resource System: Childhood
Overweight and Obesity Prevention Topics and Materials
http://wicworks.nal.usda.gov/nal_display/index.php?info_center=12&tax_level=2&tax_subject=6
25&level3_id=0&level4_id=0&level5_id=0&topic_id=2489&&placement_default=0
52 CH RESOURCE MANUAL: May 2012 Georgia Nutrition and Physical Activity Resources
Georgia Nutrition and Physical Activity Plan to Prevent and Control Obesity and
Chronic Disease in Georgia, 2010-2015
http://health.state.ga.us/pdfs/familyhealth/nutrition/NutritionandPhysicalActivityPlanFINAL.pdf 53 CH RESOURCE MANUAL: May 2012 Injury Prevention
National Centers
Centers for Disease Control and Prevention (CDC), National Center for Injury
Control and Prevention (mechanism-specific injury topics)
Includes:
1. General Injury Information
http://www.cdc.gov/injury
2. Motor Vehicle Safety
http://www.cdc.gov/motorvehiclesafety/index.html
http://www.cdc.gov/motorvehiclesafety/child-passengersafety/index.html
http://www.cdc.gov/motorvehiclesafety/teen_driver/index.html 3. Falls
http://www.cdc.gov/homeandrecreationalsafety/falls/children.html 4. Infant Safety
http://www.cdc.gov/parents/infants/safety.html 5. Drowning
http://www.cdc.gov/safechild/drowning/index.html 6. Burns
http://www.cdc.gov/safechild/burns/index.html 7. Sports Injuries
http://www.cdc.gov/safechild/Sports_injuries/index.html 8. Child Safety
http://www.cdc.gov/safechild/child_injury_data.html 9. Traumatic Brain Injury
http://www.cdc.gov/TraumaticBrainInjury/index.html http://www.cdc.gov/TraumaticBrainInjury/Causes.html http://www.cdc.gov/TraumaticBrainInjury/Kids_Teens.html Children’s Safety Network (CSN)
http://www.childrenssafetynetwork.org
CSN is a National Resource Center for injury and violence prevention. They work with state,
territorial and community Maternal and Child Health and Injury and Violence prevention
programs.
National Center on Domestic and Sexual Violence
Teen Dating Violence
http://www.ncdsv.org/ncd_linksdateteenviolence.html
National Conference on State Legislatures: Teen Dating Violence
http://www.ncsl.org/?tabid=17582
54 CH RESOURCE MANUAL: May 2012 Georgia Departments and Offices
Georgia Department of Public Health, Injury Prevention Program
http://www.health.state.ga.us/programs/injuryprevention/index.asp
Includes:
1. Child Occupant Safety Programs: Booster Seat Law, 1 July 2011
http://www.health.state.ga.us/programs/injuryprevention/occsafety.asp
2. Special Medical Needs Program: Devices for safe transportation
http://www.health.state.ga.us/programs/injuryprevention/cos/special.asp
3. Georgia Injury Prevention Strategic Plan 2010-2015
http://www.health.state.ga.us/pdfs/environmental/injuryprevention/StrategicPlan2010.pdf
Georgia Injury Prevention Agencies
Emory Center for Injury Control
http://www.emorycenterforinjurycontrol.org/resources/trainings/
Link to: Online trainings on general and injury-specific topics
Georgia Suicide Prevention Action Network
http://www.span-ga.org/span/
Georgia Bullying Prevention Toolkit
http://www.gadoe.org/sia_titleiv.aspx?PageReq=SIABully
Georgia Coalition against Domestic Violence
http://gcadv.org/
Georgia Poison Center
http://www.georgiapoisoncenter.org/
Georgia Brain and Spinal Injury Trust Fund Commission
http://www.ciclt.net/sn/clt/bsitf/default.aspx?ClientCode=bsitf
Georgia Family Connections Partnership
http://www.gafcp.org/
Safe Kids Georgia
http://www.safekids.org/in-your-area/coalitions/list.html?state=GA&localstate=GA
55 CH RESOURCE MANUAL: May 2012 Data Resources
Web Injury Statistics Query and Reporting System (WISQARS)
http://www.cdc.gov/WISQARS National Violent Death Reporting System
http://www.cdc.gov/violenceprevention/nvdrs/index.html
OASIS: Online Analytical Statistical Information System
http://oasis.state.ga.us/
Georgia Violent Death Reporting System
http://health.state.ga.us/epi/cdiee/gvdrs.asp
Governor’s Office of Highway Safety of Georgia
http://www.gohs.state.ga.us/
http://www.gahighwaysafety.org/childpassengersafety/
56 CH RESOURCE MANUAL: May 2012 Glossary of Terms
Term
Definition
AHQI
Agency for Healthcare Quality and Improvement
AMCHP
Association of Maternal Child Health Programs
AUCD
Association of University Centers on Disabilities
APR
Annual Performance Report (for Babies Can’t Wait Program)
BCW
Babies Can’t Wait (Georgia’s Part C program of the Individuals with Disabilities
Education Act)
CHIP
Children’s Health Insurance Plan
CHOA
Children’s Healthcare of Atlanta
CMO
Care Management Organization
CMS
Children’s Medical Services (Georgia’s Title V program for Children and Youth with
Special Health Care Needs)
Children with Special Needs (CSN Unit of the Office of Child Health includes BCW
CSN
and CMS)
CYSHCN
Children and Youth with Special Health Care Needs
DD Council
Developmental Disabilities Council
ECCS
HRSA
Early Childhood Comprehensive Systems Grant (Georgia’s ECCS grant is called
“Peach Partners”)
Early Periodic Screening, Diagnosis and Treatment
Health Check (Georgia’s EPSDT program)
Health Resources Services Administration
HIPPA
Health Insurance Portability and Accountability Act (1996)
ICC
LEND
Inter-agency Collaborating Council
 FICC: Federal ICC
 SICC: State ICC
 LICC: Local ICC
Individuals with Disabilities Education Act
 IDEA, Part B: Provides education services to children three through 21 years
of age
 IDEA, Part C: Provides educational services to infants and toddlers from birth
to three years of age
Leadership Education in Neurodevelopmental and Related Disabilities
MCHB
Maternal and Child Health Bureau
MCH BG
Maternal and Child Health Block Grant
MCH NA
Maternal and Child Health Needs Assessment
Medical Home
NECTAC
Also known as the patient-centered medical home (PCMH,) medical home is defined
as a health care setting that facilitates partnerships between individual patients, and
their personal providers, and when appropriate, the patient’s family.
National Early Childhood Technical Assistance Center
NPM
National Performance Measures (for MCH Block Grant)
EPSDT
IDEA
57 CH RESOURCE MANUAL: May 2012 Term
Definition
OASIS
On-line Analytical Statistical Information System
OSEP
Office of Special Education Programs
PHI
Protected Health Information
PHIL
Public Health Information Library
RPC’s
Regional Perinatal Centers
SENDSS
State Electronic Notifiable Disease Surveillance System
SIDS
Sudden Infant Death Syndrome
SNAP
Supplemental Nutrition Assist Program (formerly Food Stamps)
SPM
State Performance Measures (for MCH Block Grant)
SUID
Sudden Unexplained Infant Death (a broader term of which SIDS may be one cause)
Title V
Title X
Title V of the Social Security Act of 1935 provides for the Maternal and Child Health
Services Block grants to states
Family Planning Program enacted in 1970 as Title X of the Public Health Service Act
Title XIX
Grants to states for medical assistance programs (Medicaid and CHIP)
UCEED
US DHHS
University Centers of Excellence in Disabilities Education, Research and Services
(LEND programs are affiliated with UCEED’s)
U.S. Department of Health and Human Services
UNHSI
Universal Newborn Hearing Screening and Intervention
USDA
U.S. Department of Agriculture
WIC
Women, Infants and Children (Nutrition Program)
58 CH RESOURCE MANUAL: May 2012