children’s progress fall 2013 serving children through philanthropy Strength beyond his years 18 Strength beyond his years From double setbacks, a singular strength emerges. 4 Akron Children’s Hospital’s Beeghly campus celebrates 5th anniversary letter from the executive director Dear Friends, As we head into fall after a busy summer, we begin the season of winding down, taking a deep breath before easing into winter and the holiday season. But here at Akron Children’s Hospital, fall typically leads us into a busy season of childhood illness and increased patient volumes. And our work in research, to translate new information into improved outcomes for our patients, never stops. From the breadth and depth of our services, to our donor support network, we continue our growth as a premier integrated pediatric healthcare system. As you read the stories in this issue of Children’s Progress, you’ll have an idea of the work being done for kids. See our progress and celebrate the upcoming fifth anniversary of the Beeghly campus in the Mahoning Valley – a true success story by all measures. Learn about the very first child born at Akron Children’s thanks to our outstanding team of high risk delivery physicians and clinicians. Hear how a recent grant helps us provide needed interpretive services to refugees in our area. There is also an uplifting story about how our patient, Caleb Thurman, and his mother, Charice Fort, are becoming hospital advocates and ambassadors on a national scale. Officers foundation board members Philip H. Maynard Chairman William H. Considine President Michael P. Trainer Treasurer Michael E. George Secretary John D. Zoilo Executive Director Directors John R. Adams Wealth Management Advisor Northwestern Mutual Susan Berk President Women’s Board of Akron Children’s Hospital James P. Berry SiebertKeck Insurance Agency (Retired) Frank Bevilacqua President/Co-owner Winer and Bevilacqua David A. Bouffard Vice President, Public Relations Sterling Jewelers Inc. Madeline Bozzelli President Friends of Akron Children’s Hospital Paul Catania Senior Vice President Oswald Companies As our hospital system grows, so does our Foundation. We are reaching new donors throughout our service area including Medina, Wayne and Tuscarawas counties. Expansion of our donor network enables us to continue to provide care to every child who comes through our doors, regardless of ability to pay. It also gives us the resources to continue the outreach and programs needed to give children the best chance for a healthy future. Your continued support is vital to maintaining and expanding our programs. I want to thank everyone who works on behalf of Akron Children’s Hospital, whether you’re a donor, volunteer or enthusiastic supporter. Our success and growth would not be possible without you. John D. Zoilo Executive Director Akron Children’s Hospital Foundation Robert B. Cooper Director, Licensed Real Estate CB Richard Ellis Inc. John P. Crow, MD Chairman, Department of Surgery Akron Children’s Hospital William W. Cushwa Jr. Manager The Braveheart Group LLC Paul M. Dutton Member/Partner Harrington, Hoppe & Mitchell Ltd. Charles Freeman First Vice President, Wealth Management Merrill Lynch Valerie A. Geiger Senior Vice President, Corporate Banking PNC Bank Richard R. Grigg Chairman, Board of Directors Akron Children’s Hospital Raymond Hexamer CEO First Communication Will T. Holland Partner Expand Interactive Patrick James Chairman Hawthorn Manufacturing Corp. Kara H. Lewis President/Principal Winslow Asset Management Inc. Robert M. Littman CEO & Managing Director SS&G, Inc. John T. McBride, MD Vice Chair, Department of Pediatrics and Director, Robert T. Stone MD Respiratory Center, Akron Children’s Hospital Greg A. McDermott President FirstMerit Insurance Group Gregory J. Michalec Senior Vice President of Sales and Marketing Superior Beverage Group Eveline Nordhauss President item North America Mark W. Oelschlager Portfolio Manager Oak Associates Ltd. Ernest Pouttu President & CEO Harwick Standard Distribution Corp. Alexis Rizopulos President Emerging Leaders of Akron Children’s Hospital Walton A. Silver CEO Akrochem Corporation James Sisek, Esq. President & CEO Farmers Trust Company Dennis Wieland Chief Financial Officer Summit Racing Equipment Honorary Director Willard R. Holland Chairman and CEO FirstEnergy Corp. & Pennsylvania Power Co. (Retired) features 06 Advances and Innovations 10 Recent Events 12 Save the Date 18Strength beyond his years From double setbacks, a singular strength emerges. 16 Beeghly campus fifth anniversary 23 Grants 24 Of Note 26 Memorial and Tribute Gifts Akron Children’s Hospital embraces a philosophy of family-centered care. We believe that every child has the right to world-class medical care, regardless of a family’s ability to pay. Member, Children’s Hospital Association (CHA). Member, Children’s Miracle Network Hospitals children’s progress is published quarterly by the Akron Children’s Hospital Foundation One Perkins Square Akron, OH 44308-1062 330-543-8340 An Equal Opportunity Employer President and CEO William H. Considine Executive Director, Foundation John D. Zoilo Editor Anne C. Merchant Contributing Writers Becky Badar Linda Beck Daryl Dirham Holly Pupino Andrea Rogers Nicole Winkleman Contributing Photographers Julie M. Pawlowski Lew Stamp Ted Stevens Tiffany Swift Graphic Design Dawn Tindal and Assoc. Inc. Printing Star Printing Co. Inc. ©2013 Akron Children’s Hospital All rights reserved. Akron Children’s Hospital realizes that individuals enjoy learning more about our services, programs and developments. We also fully respect the privacy of our patients. If you do not wish to receive fundraising materials from Akron Children’s Hospital, you may make the request by sending your name and address to the Akron Children’s Hospital Foundation, One Perkins Square, Akron, Ohio 44308. We will use our best efforts to honor such a request. departments from our cover Building on the Promise Employee campaign co-chairs Kim Firestone, Vicki Parisi and Jim Madden present a check on behalf of the 1,289 employees who participated in the 3-month employee campaign to Akron Children’s President Bill Considine. Employees keep the promise Employee campaign raises nearly $4 million Bubbles, balloons and cupcakes marked the end of the “My Promise. My Children’s.” employee campaign in July. When the final number was revealed, attendees celebrated $3,843,938 donated by employees during the 3-month campaign. The “My Promise. My Children’s.” campaign raised money for the $200 million “Building on the Promise” expansion program that will bring another patient care building to the Akron campus. The campaign also benefited the “Vision for Our Valley’s Children” campaign, which supports capital and programmatic needs in the Mahoning Valley. On July 23, employees gathered in Perkins Square Park on the Akron campus to enjoy cupcakes and hear the total amount employees donated to the hospital. The total was revealed with the help of employees’ children, all patients of the hospital, and seven numbered balloons. “You believe in the mission of this hospital and what we have the privilege of doing every day,” said Bill Considine, president and CEO of Akron Children’s Hospital. “That belief has translated into this very generous gift.” “We’re investing in healthcare for the children in our region with this $200 million project,” he added. “I hope you have the same level of pride that I do in being a part of this investment.” “My Promise. My Children’s.” co-chairs Kim Firestone, Vicki Parisi and Jim Madden attended the event and presented the check to Considine, on behalf of all the employees. Mahoning Valley employees also celebrated the end of the campaign on July 24 during an employee meal in which the total amount was announced. Employees received tickets for a Mahoning Valley Scrappers game as a thank you for their participation. Overall, 1,289 (28 percent) employees, at the more than 80 Akron Children’s locations throughout northern Ohio, participated in the campaign. “It is very impressive that so many employees were able to come together to support the hospital and our patients,” said Pam Holtz, director of annual giving at Akron Children’s Hospital’s Foundation. “A gift to Akron Children’s Hospital is not just a gift, but an investment for our community and the children and families we serve every day.” Considine concluded the event by thanking employees for their dedication throughout the campaign. 4 CHILDREN’S PROGRESS | FALL 2013 High-tech: Akron Children’s is one of healthcare’s Most Wired Akron Children’s Hospital is making a substantial investment in information technology, and the industry is taking note. also catches possible medication errors by verifying the clinician is giving the correct medication at the right dose and is giving it to the right patient at the right time. This summer, the hospital was named one of the country’s “Most Wired” hospitals. This prestigious honor is based on an extensive survey and recognizes those with exceptionally high IT integration throughout their organization. The high usage of CPOE and bedside medication verification puts Akron Children’s in a category with the top 2 percent of hospitals nationwide. The honor comes just six months after Akron Children’s was ranked at Stage 6 (out of seven) and in the top 10 percent of hospitals nationally for implementation and use of inpatient electronic medical records (EMR) by HIMSS Analytics, a not-for-profit subsidiary of the Healthcare Information and Management Systems Society. “Where Stage 6 reflects our extensive implementation and use of the EMR, the Most Wired honor is broader and looks at an organization’s entire information technology efforts,” said Tom Ogg, chief information officer. “This designation reflects a dedication to making sure we have the best technologies and resources to deliver high-quality and safe healthcare throughout the organization. This is a big ‘win’ for the Akron Children’s team and, more importantly, the patients we serve.” Most Wired hospitals treat information technology as a strategic asset. “Among other aspects, the survey looks at how we capture and use information to enhance operations like purchasing, billing and communications, the security of our information, who has access, where they have access, and how fast we can restore access to it in the event of a disaster or system outage,” said Ogg. One of Akron Children’s solutions, computerized provider order entry (CPOE), is an area evaluated in the survey and also for Stage 6. Akron Children’s has reported an overall CPOE rate of 94 percent, which includes orders for patients’ medications, tests, therapies and treatments. With CPOE, instead of a handwritten medication order, the provider enters the order electronically and the system checks it for conflicts with other orders, other medications, the patient’s diet and allergies. The system AKRONCHILDRENS.ORG/GIVING 5 “The best hospitals today have strong IT cultures and I am proud to say Akron Children’s is now in that company,” says Grace Wakulchik, chief operating officer. “It’s evident by the commitment of our Board to invest $50+ million in an EMR system and other technologies, by our recruitment of a chief medical information officer (Dr. Amy Maneker), a chief nursing information officer (Pam Baker) and by the efforts of our human resources and public relations staffs to use the latest technology, including social media, to communicate with our employees, patient families and the public. The fact that we have 29 nurses now working in our IT department is another good example of the integration we have achieved between our IT department and our clinical staff, and the value we place on using technology to improve care delivery.” advances and innovations Akron Children’s set to deliver high-risk newborns Earlier this year, Akron Children’s broke ground on the newest building on our Akron campus, and if you’ve driven by the hospital, it’s evident that construction is well underway for the new Emergency Department, Neonatal Intensive Care Unit (NICU), outpatient surgical suites and other amenities that will be housed in our new building. Now it’s time to announce yet another milestone in the hospital’s history: after much discussion and planning, Akron Children’s has committed to creating space in the new building for high-risk deliveries which are situations in which the mom is healthy, but the baby is high risk. The Maternal Fetal Medicine team, with help from our surgical and nursing leadership, performed the first of such high-risk deliveries on the Akron campus on May 10. Ashton Daniell was successfully delivered at Akron Children’s after a large cyst was discovered on his neck during an ultrasound. “Our neonatal transport team is one of the best in the country, but we estimate that each year we have about 100 deliveries where there is an especially high risk in transporting a newborn to our hospital,” said Akron Children’s President and CEO Bill Considine. Examples include babies identified with congenital heart defects, neural tube defects, diaphragmatic hernias, abnormalities which may affect the airway, and other conditions that require the baby to have immediate access to pediatric specialists upon birth. Another benefit is that the labor, delivery and recovery rooms would keep mothers close to their newborns as they would just be an elevator ride away from our new NICU. As with other aspects of the building, the building planning team will organize kaizens for these new operating and labor/delivery/recovery rooms. Drs. Stephen Crane and Melissa Mancuso and their teams in Maternal Fetal Medicine and the Fetal Treatment Center will work closely with our Center for Operations Excellence team, architects, engineers and others to design this space. “This is a perfect extension of our commitment to family-centered care,” Considine said. “Our neonatal transport team is one of the best in the country, but we estimate that each year we have about 100 deliveries where there is an especially high risk in transporting a newborn to our hospital.” – Bill Considine, President and CEO, Akron Children’s Hospital 6 CHILDREN’S PROGRESS | FALL 2013 Angela Daniell looks at baby Ashton following his birth, the first delivery at Akron Children’s Hospital. Ashton was born via Cesarean section on May 10 because of a large cyst on his neck. Special delivery: Baby Ashton’s birth story is one for the history books It all began with a routine ultrasound toward the end of Angela Daniell’s pregnancy. With only 3 weeks left to go, her son, Ashton, was diagnosed in utero with a baseball-sized cyst on his neck caused by a lymphatic malformation. Because of the size of the mass and the closeness to his airway, there was concern that Ashton might need emergency surgery immediately after birth. His mother had a choice to make – transfer to another hospital for the delivery or be a part of a historic moment at Akron Children’s – the first planned birth in our hospital’s history. Placing her trust in our team, and to stay close to home, she chose Akron Children’s. Maternal-fetal medicine specialist Melissa Mancuso, MD, and her team in the Fetal Treatment Center made arrangements to have the necessary team in place to deliver Ashton. “The logistics of this were incredible and we are very grateful,” said Andrew Daniell, Ashton’s father. “There had to be a neonatologist, pediatric ENT surgeon, AKRONCHILDRENS.ORG/GIVING 7 pediatric surgeon and a pediatric anesthesiologist on call at all times. This is in addition to the team needed to perform Angie’s C-section.” Fortunately, Ashton’s mass didn’t require emergency surgery immediately upon birth. Instead, surgeons John Crow, MD, and Marc Nelson, MD, decided it was best to give Ashton some time to grow and put on weight before the procedure to remove the cyst. After a 5-day neonatal intensive care unit stay, Ashton was able to grow and bond with his family at home in Bath Township. On July 12, Ashton returned to Akron Children’s for surgery. After a weekend stay in the hospital, he returned home to big brother Anderson on July 15. “Ashton should be able to lead a normal life now that the cyst is removed,” said Dr. Crow, chairman of the department of surgery. “His prognosis is excellent.” advances and innovations Cultivating a growing presence in Stark County Akron Children’s continues to expand pediatric care throughout northern Ohio Providing high-quality care, close to home, is the driving force behind Akron Children’s expansion into Stark County. The hospital is expanding its services in several key areas in the region, including: • Inpatient pediatric care and pediatric subspecialties at Aultman Hospital in Canton. • Maternal fetal medicine at Mercy Medical Center in Canton. these subspecialties, as well as plastic and reconstructive surgery, while operating Aultman’s inpatient pediatric unit, opening this fall. “Through our staff of nurses and pediatric hospitalists, we’ll provide care to children ages zero to 17 who have medical issues that require hospitalization,” says Aurilio. “It could be anything from flu to gastrological infections to diabetes and pulmonary issues.” • New Akron Children’s Hospital Pediatrics (ACHP) locations. “We’re ensuring that we can offer the latest advancements to patients at the facilities closest to their families and friends,” says Lisa Aurilio, vice president of patient services and chief nursing officer. “Doing so also enables us to forge better partnerships with families so we can fully manage the care of their children.” Inpatient Pediatric Care and Pediatric Subspecialties – Aultman Hospital For the past five years, Akron Children’s has provided outpatient pediatric subspecialty services – including cardiology, orthopedics, physiatry and neurology – on the Aultman Hospital campus in Canton. “The core of what we’re doing is to position ourselves to better serve our families in greater Stark County by providing more accessibility to subspecialty services that parents would normally need to drive a half hour to an hour to receive,” says Cindy Dormo, vice president, department of pediatrics. In the expanded agreement with Aultman, Akron Children’s will continue to offer “It’s about providing care for families in their own communities.” – Lisa Aurilio, vice president of patient services and chief nursing officer Maternal-Fetal Medicine – Mercy Medical Center In early 2013, Akron Children’s Maternal Fetal Medicine Center began offering services at Mercy Medical Center in Canton. Twice a week, a staff of Akron Children’s physicians, ultrasound technicians and genetic counselors provide outpatient and ultrasound services to women with high-risk pregnancies. Aurilio notes that it offers comfort and convenience to these patients. 8 CHILDREN’S PROGRESS | FALL 2013 Dr. J.R. Bockoven cares for a patient in the cardiology specialty clinic at Aultman Hospital. As part of Akron Children’s commitment to serving the children of northern Ohio, we are expanding our services at Aultman Hospital and Mercy Medical Center, as well as opening several primary care offices. “We love that we’re bringing care to these women closer to home,” she says. “They can deliver their baby right in Stark County, and if they need it, they’ve already established a close relationship with our hospital and our pediatric subspecialists, as these patients have their prenatal care coordinated through our Fetal Treatment Center.” New ACHP Locations While some families may be willing to travel for sub-specialty care, they may feel less inclined to do so when their children need primary care. That’s where the hospital’s new ACHP locations can help. “It really is expanding pediatrics to the community,” says Dormo. “The dedication our hospital gives to building our primary care network is exceptional. We are adding more sites and more providers to serve our families.” AKRONCHILDRENS.ORG/GIVING 9 On July 1, the pediatrics department at North Canton Medical Foundation became Akron Children’s Hospital Pediatrics – North Canton. And on Sept. 9, the hospital opened Akron Children’s Hospital Pediatrics – Alliance and Akron Children’s Hospital Pediatrics – Perry, bringing the hospital’s total ACHP locations to 23. “It’s important in our strategy to grow in such a way that we continue to build strong relationships with the private pediatricians and community hospitals,” says Dormo. “They are our community partners.” As Akron Children’s continues to expand its reach, Dormo notes that one important thing remains constant: its mission. “We’re providing accessible care to any child who needs it, regardless of a family’s ability to pay,” she says. “And we’ll continue to carry that philosophy with us wherever we go.” recent events Miracles & Promises Radiothon The 5th annual Mix 98.9 Miracles and Promises radiothon took place on the Beeghly campus Sept. 18 – 20. This year, the radiothon raised $193,971 for Mahoning Valley’s programs and services. During the event, awareness was raised about the services offered in the Mahoning Valley and patient stories are shared with listeners. LOPen Bill Considine, president and CEO of Akron Children’s Hospital, along with Mark Sutton of Brother Trouble, address the crowd during the 2013 LOPen charity golf outing in June, which raised $70,000 for the Showers Family Center for Childhood Cancer and Blood Disorders. In addition to golf, the LOPen charity golf outing featured several concerts by Eddie Money and Brother Trouble, as well as a dinner, raffle and celebrity meet-and-greets. 10 CHILDREN’S PROGRESS | FALL 2013 Harness Race Rally The Friends of Akron Children’s Hospital held the 52nd annual Harness Race Rally Aug. 2 at Northfield Park to raise money for the School and Community Oncology and Outreach Program (S.C.O.O.P.), which raises awareness about childhood cancer in schools and communities. This year’s event raised $46,000 for the program. Since it began in 1962, the Harness Race has raised more than $3 million through ticket sales and sponsorships. Martha Campbell (L), Rosemarie George (center) and Betsy Clark (R) chaired this year’s race. Children’s Cheer Classic American Elite Director of Events Sarah Tedrick (right) along with Kristi Greer, a member of the junior level 4 team (Fame), present Akron Children’s Reach Out and Read Program Coordinator Karen Carbaugh (center) a check with proceeds from the 2013 Children’s Cheer Classic. The 8th annual event raised nearly $26,000. Since 2006, Children’s Cheer Classic has raised $122,262, and collected more than 54,000 gently-used books for the Reach Out and Read early literacy program. Thank you for your generosity! Each year, more than 90 special events are held to raise money on behalf of Akron Children’s Hospital. Listed below are other events held between June and September that raised more than $10,000. > Giant Eagle Register Campaign: $78,350 > Strides for Autism: $20,409 > Showcase for the Cure: $31,854 > Clubs for Kids: $50,000 A special thank you to our Children’s Miracle Network Hospitals partners in the Akron and the Mahoning Valley for their successful campaigns! > Walmart and Sam’s Club register campaign: $317,315 > Circle K register campaign: $134,183 > Rite Aid register campaign: $62,871 > RE/MAX: $10,260 AKRONCHILDRENS.ORG/GIVING 11 save the date New venue, same values The 111th Charity Ball takes place this December The 111th Charity Ball, presented by the Women’s Board of Akron Children’s Hospital, will make its grand entrance at E.J. Thomas Hall on Saturday, Dec. 28, 2013. Twenty-four debutantes will be presented at the annual cotillion in recognition of their parents’ and grandparents’ volunteer contributions to the community. The 2013 Ball marks the first in many years that it takes place outside Goodyear Hall. “We’re continuing to uphold our time-honored traditions – from the presentation, dresses and first dance to the elegant décor and the history wall,” says Cyndy Myer, event chairperson. “But, we’re also extremely excited to introduce new things, as well.” The evening will feature an updated timeline and dinner format with assorted cuisine selections, intimate table settings and seating throughout the lobbies of the hall. Doors will open at 6 p.m. The debutante presentation will take place at 7 p.m., with dining and dancing to follow. “These are just a few of the many new ways we’re catering to our guests,” says Myer. To continue the commitment of service demonstrated by their families, the debutantes also participated in a service project for Project Linus. The national non-profit organization makes and then donates homemade blankets to children in the hospital or others in need. This year’s debutantes spent a day making blankets to give to Akron Children’s Hospital patients. “The whole idea of the Charity Ball is based on service to the community,” says Myer. “There’s always something you can do to make people’s lives, our hospital, or our community, better. And it’s our hope that these girls will continue in the endeavors set forth by their parents and grandparents.” If you’re interested in attending, please contact Jessica Jones at 330-543-5019 or [email protected]. Tickets cost $175 each. Reservations are due Dec. 1, 2013, and space is limited. All proceeds benefit Akron Children’s Hospital. Kelsey Nicole Baumgardner Daughter of Mr. and Mrs. Bruce Baumgardner (Tracie) Katelyn Elizabeth Hissong Daughter of Mr. and Mrs. Thomas Hissong (Amy) Abbe Elizabeth Marchetta Daughter of Mr. and Mrs. David Marchetta (Kimberly) Claudia Maria Behrens Daughter of Ms. Kelley Ann Behrens Megan Lynn Klamert Daughter of Mr. and Mrs. Ronald Klamert (Margaret) Allison Elizabeth Martin Daughter of Mr. and Mrs. John Martin (Karen) Sarah Therese Kornick Daughter of Dr. and Mrs. Jeffrey J. Kornick (Sandra) Barbara Dilley Martucci Daughter of Mr. Brian Martucci Megan Joy Dunphy Daughter of Mr. and Mrs. Patrick Dunphy (Cheryl) Julia Anne Geiger Daughter of Mr. and Mrs. Dennis Geiger (Valerie) Allison Marie Griffith Daughter of Mr. and Mrs. T.K. Griffith (Amy) Melanie Frances Harvey Daughter of Mrs. Sheila L. Harvey and Mr. Robert S. Harvey Madison Taylor McIntyre Daughter of Mr. and Mrs. Arthur T. McIntyre (Kay) Maria Francesca Locastro Daughter of Dr. and Mrs. Anthony Locastro (Jeanne) Madeline Grace Medkeff Daughter of Mr. Daniel E. Medkeff and Mrs. Barbara Stamatis Olivia Margaret Lombardi Daughter of Mr. Marcus M. Lombardi and Ms. Mary Klakulak 12 CHILDREN’S PROGRESS | FALL 2013 Kimberly Berk is presented by her father, Robert, during the 2012 Charity Ball. The elegance and tradition of the ball will continue when it moves to its new location, E.J. Thomas Hall, this December. Become a Charity Ball Sponsor The Women’s Board is offering five sponsorship levels for this year’s annual event. For more information, please contact Donna Axson at 330-573-8766. Olivia Lee Musci Daughter of Mr. John G. Musci and Mrs. Barbara Ball Musci Kelly Elizabeth Robson Daughter of Mr. and Mrs. Jeffrey M. Robson (Ann E.) Elizabeth Matina Papas Daughter of Mr. and Mrs. William A. Papas (Katarina) Morgan Yu Rong Schroeder Daughter of Mr. and Mrs. Brad S. Schroeder (S. Renee) Kassandra Ann Pawuk Daughter of Mr. and Mrs. Mark E. Pawuk (Bonnie) Audrey Elizabeth Sheeks Daughter of Mr. and Mrs. Paul Sheeks III (Laura) Sierra Grace Radik Daughter of Mr. and Mrs. Randy Radik (Shelley) Adrienne Rose Trecaso Daughter of Ms. Christina Carter Trecaso AKRONCHILDRENS.ORG/GIVING 13 2013 Debutantes Akron Children’s celebrates the holidays As the holiday season draws near, join our volunteers, board members and staff at several events benefiting Akron Children’s Hospital. “A Children’s Holiday” Tree Lighting and Anniversary Celebration Thursday, Dec. 5 | 5:30 p.m Akron Children’s Beeghly campus – Building C Atrium The entire community is invited to Akron Children’s Hospital Mahoning Valley to celebrate “A Children’s Holiday” and the Beeghly campus’ fifth anniversary. The free event is open to the public and features a visit from Santa, family-friendly activities, hot cocoa, cookies and carols. At 6 p.m. guests will be invited to head outside, join hands, sing “Jingle Bells” and cheer the final countdown to the lighting of the holiday tree. Children’s Tree of Lights Friday, Dec. 6 | 5:30 p.m Akron Children’s Hospital – Atrium Lobby The Women’s Board of Akron Children’s Hospital invites you to attend the annual lighting of the Children’s Tree of Lights. The celebration features refreshments and entertainment, culminating with the lighting of the Children’s Tree in Perkins Square Park. Lights are sold individually, or by the string. To purchase lights, visit akronchildrens.org/childrenstree. All acknowledgements will be included in the event program and the permanent Memory Book outside the hospital’s gift shop. Mahoning Valley Breakfast with Santa Saturday, Dec. 7 | 9 a.m. Antone’s Banquet Centre Children from the Mahoning Valley can enjoy a special breakfast with Santa Claus. Tickets – Adults: $20, Children (ages 12 and under): $10 To purchase tickets, contact 330-746-9122. “Holiday Hopes and Wishes” Luncheon Friday, Dec. 13 | 10 a.m. Mr. Anthony’s On Friday, Dec. 13, attend the 5th annual “Holiday Hopes and Wishes” luncheon. The event features a holiday basket raffle, a luncheon, special treats from the Holiday Bake Shoppe and a raffle for an iPad. Since its founding in 2008, “Holiday Hopes and Wishes,” hosted by the Kids’ Crew of Akron Children’s Hospital Mahoning Valley, has raised more than $80,000. Tickets are $35 each. For information, or to purchase tickets, contact JoAnn Stock, director of development for Akron Children’s Hospital Mahoning Valley, at [email protected], or by calling 330-746-9122. To learn more about these events, please visit akronchildrens.org/events. 14 CHILDREN’S PROGRESS | FALL 2013 Holiday Tree Festival set to dazzle again Every year, the John S. Knight Center transforms from an empty convention hall to a sparkling, winter wonderland during the Holiday Tree Festival, presented by the volunteers of Akron Children’s Hospital. Community members, hospital staff, companies and volunteers donate and decorate hundreds of trees, wreaths, and other holiday decorations that are sold to benefit Akron Children’s Hospital. Since it began in 1982, the Holiday Tree Festival has raised more than $4.2 million for the hospital. The Holiday Tree Festival magic will occur this year Nov. 23 to Dec. 1. “The commitment of the volunteers is a testament to how much they really care about the hospital,” said Vicki Parisi, volunteer services manager. The successful event draws more than 250,000 attendees each year. One such volunteer, Jolea Swann, has been volunteering since 1995, though she assisted with the first Holiday Tree Festival. “I have four children, and three of them spent a lot of time at Children’s Hospital during their younger years,” said Swann. “The Holiday Tree Festival is a way to give back to the hospital for all the nice things they have done for my family.” In 1996, Swann was named chair of the special raffle committee. A part of the special raffle committee’s Disney-themed display, Sully and Mike Wazowski take in the sights at last year’s Holiday Tree Festival. Join the holiday magic! The 32nd annual Holiday Tree Festival will take place Nov. 23 – Dec. 1 at the John S. Knight Center in Akron. Admission to the festival is free. The special raffle is a drawing for themed displays featuring holiday decorations and gifts, including the popular Ohio State University display, which usually includes a big screen TV. Festival hours are: Tickets for the special raffle are one for $1, or six for $5. Thanksgiving: 2 – 6 p.m. “The raffle offers opportunity for a wide variety of community involvement,” said Swann. “We have people who buy hundreds of dollars worth of tickets, and that’s their donation. They don’t want to donate a tree, but they still enjoy participating in the tree festival in that way.” In addition to organizing the special raffle displays, the committee also decorates their own Disney-themed and American Girl® display. “When I inherited the committee, it was just a tradition that the raffle committee decorated the Disney tree,” said Swann. “It is usually related to the latest Disney movie. This year it’s going to be a Mickey Mouse-themed tree.” Swann continues to volunteer each year because she believes the true meaning of the holiday season is to give back to others. “I am always encouraging people to do things for others, and I think there is nothing more wonderful than doing things for children,” Swann added. To learn more about the Holiday Tree Festival or to find out how you can volunteer, contact Volunteer Services at 330-543-8424, or visit akronchildrens.org/treefestival. AKRONCHILDRENS.ORG /GIVING 15 Monday - Wednesday: 11 a.m. – 8 p.m. Friday and Saturday: 10 a.m. – 9 p.m. Sunday: 11 a.m. – 6 p.m. Be part of the fun at these other events! Holiday Tree Festival Preview Gala Friday, Nov. 22, 5:30 p.m. John S. Knight Center Ribbon Cutting and Kids’ Day Saturday, Nov. 23, 10 a.m. John S. Knight Center Breakfast with Santa Saturday, Nov. 23 and Nov. 30, 8:30 a.m. John S. Knight Center Peaks in the Valley This December, Akron Children’s Hospital’s Beeghly campus celebrates its 5th anniversary. Sharon Hrina, vice president of Akron Children’s Hospital Mahoning Valley, reflects on the hospital’s growth, the many lives touched and how philanthropy has played a part. “As I look back over the last five years, I am amazed at the growth of programs and services that we are providing in the Mahoning Valley,” says Sharon Hrina. “Aside from myself, we had one employee when we first acquired the Beeghly Medical Park in early 2008. At the end of 2012, we had 545 employees at six different sites in the Mahoning Valley.” With the opening of the Beeghly campus in December 2008, the hospital provided the foundation for the only freestanding, pediatric hospital in the area by providing inpatient services, a 24/7 pediatric emergency room, laboratory and radiology services supported by pharmacy and rehabilitative therapies. Since that time, services have expanded to include primary care, hematology and oncology services, surgical and advocacy services. “Although the Beeghly campus opened in 2008, Akron Children’s has had a presence in the Mahoning Valley since 2002 with the Heart Center, and we’ve been serving the families of this community for even longer,” explains Hrina. “The Beeghly campus Earlier this year, Akron Children’s Hospital Mahoning Valley was one of six hospitals nationwide that received the NDNQI award for Outstanding Nursing Quality. functions as the hub for other programs and services offered at the hospital’s sites throughout the Valley. It’s difficult to talk about our growth and development without mentioning those sites, including the pediatric subspecialists located on the corner of McClurg and Market; Community Outreach, Education and Support Center located at Southwoods; our pediatric practice in Warren; and the pediatric unit we operate at East Liverpool City Hospital.” 20082009 April The Ronald McDonald McFamily Respite Center opens. December Akron Children’s Beeghly campus, the only freestanding, pediatric hospital in the area, opens. December Akron Children’s Center for Blood and Cancer moves from St. Elizabeth Health Center to the Beeghly campus. May Two integral philanthropic organizations formed: the Community Leadership Advisory Council and the Kids Crew volunteer fundraising committee. October A second Special Care Nursery location for subacute neonatal babies opens on the Beeghly campus. November The Outpatient endocrine/diabetes subspecialty practice begins at the Beeghly campus. 16 CHILDREN’S PROGRESS | FALL 2013 Since the hospital’s opening, it has experienced the following patient encounters (as of August 2013): • • • • • • 112,290 emergency visits 93,733 specialty visits 82,526 primary care visits 47,258 total outpatient visits 22,205 total outpatient radiology procedures 3,694 surgeries In 2008, Akron Children’s Beeghly campus opened its doors to bring quality pediatric care close to home in the Mahoning Valley. It remains the area’s only hospital that exclusively provides pediatric care. The breadth and depth of the hospital’s services has grown since its doors opened five years ago, and so has the community’s overwhelming support. “When we first arrived, nobody was sure how we would be embraced by the community,” says Hrina. “But we found that as people began to support our organization, others quickly followed. It wouldn’t have been possible for us to grow so rapidly without philanthropy.” It was philanthropic support that led to the opening of the Ronald McDonald McFamily Respite Center in 2009, the construction of the Garden of Hope in 2010, and the opening of Alex’s Playground in 2012, among other hospital programs and services. Hrina notes that this support helps the hospital accomplish the goals she and her team set at the beginning of each year while also meeting the needs of unexpected initiatives identified by families and the community. “Our annual list of what we want to accomplish ends up growing as the year goes on and as needs arise,” says Hrina. “Even though these community-fostered initiatives aren’t typically part of our initial plans, we usually find a way to fulfill them since we focus on family-centered care. More often than not, we do so through philanthropy.” Hrina believes providing care for patient families when they need it most, and collaborating with the community, has contributed to the Beeghly campus’ success. “We use Akron Children’s guiding principles in every decision we make: to treat each child as our own, to never turn a child away because of a family’s inability to pay, and to treat others as we’d want to be treated,” says Hrina. “Our community understands that these principles are important to us. Putting these principles in action has helped us earn their respect.” 201020112012 2013 June Child Advocacy Center adds mental health services support on the Beeghly campus. June Garden of Hope opens. June The Mahoning Valley’s first Akron Children’s Hospital Pediatrics (ACHP) location begins seeing patients on the Beeghly campus. October Surgical Services officially opens on the Beeghly campus. AKRONCHILDRENS.ORG/GIVING July Ophthalmology surgical services begin at the Beeghly campus. August Child Advocacy Center finds a permanent home on the Beeghly campus. August Akron Children’s Mahoning Valley receives first distribution from the Kikel Charitable Trust to expand what is now the Kikel Center for Pediatric Surgery on the Beeghly campus – the area’s first and only dedicated pediatric surgery center. August Alex’s Playground opens. 17 October The Mahoning Valley Parent Advisory Council, a group of volunteers who’ve used Akron Children’s Hospital and is interested in offering their input on issues that impact the care of children, holds its first meeting. January Akron Children’s begins operating the 15-bed pediatric unit located at East Liverpool City Hospital. February Akron Children’s Hospital Mahoning Valley is among six hospitals receiving the NDNQI award for Outstanding Nursing Quality at the American Nurses Association’s Nursing Quality Conference™. July Rheumatology services relocate from the Boardman Medical Pavilion to the Beeghly campus. September Construction for a new MAGNETOM Aera 1.5T MRI begins on the Beeghly campus. FROM DOUBLE THE SETBACKS, A SINGULAR STRENGTH EMERGES 18 CHILDREN’S PROGRESS | FALL 2013 AKRONCHILDRENS.ORG/GIVING 19 Caleb’s mother, Charice Fort, encourages her son every day as he deals with his conditions. “I tell my son that yes, there is sickness in life, but his sickness is not a crutch. You have to get up and keep moving.” Every time 13-year-old Caleb Thurman smiles, you can catch a glimpse of it. A subtle wisdom, a seasoned understanding of what it’s like to face life’s challenges head on – day in and day out – and come out the victor. “He’s a wonderful person,” says his mother, Charice Fort. “He’s a young man well beyond his years because of all the things he’s had to endure. He looks the picture of health, but many people don’t know what’s going on behind the scenes.” The last several years have been trying ones for Caleb and Charice. Blindsided by two unexpected chronic disorders, they’ve faced multiple hospital stays, ongoing medical treatment and a change in life as they knew it. However, Charice’s strength coupled with Caleb’s determination demonstrates that this pair has the fortitude to overcome. Two chronic diagnoses In 2007, Caleb became extremely sick, complaining of stomach pain. His pediatrician initially thought it might be a virus. After a week during which Caleb only got worse, he underwent several tests and the results made his doctor grow increasingly concerned. “My doctor looked at me and said, ‘I’m starting to get worried,’” says Charice. “When a physician says that, it sends you into a tailspin. My grandmother died in 2003 of colon cancer, so that fear took over instantly.” Caleb was referred to pediatric gastroenterologist Emory Collins, MD. After performing several more tests, Dr. Collins concluded that Caleb had Crohn’s disease – a chronic inflammatory disease of the gastrointestinal tract that’s characterized by cramping, loss of appetite and weight, and abscesses and scarring, among other things. It’s an autoimmune condition with no known cure. “He underwent every regimen possible to get him feeling better,” says Charice. “He was initially on steroids. When he went off of them, he got so sick that he was in and out of the hospital. He became a hard case to control.” 20 CHILDREN’S PROGRESS | FALL 2013 At the same time as his initial sickness, Caleb started experience pain and swelling in his joints, particularly in his lower body. After visiting Mary Bratovich Toth, MD, director of rheumatology at Akron Children’s, Caleb received another diagnosis: he had juvenile rheumatoid arthritis, and would also soon be dealing with the difficulties of psoriasis. “It’s common for a child diagnosed with one autoimmune disorder to develop another,” says Dr. Toth. “In Caleb’s case, he developed arthritis because of his Crohn’s disease.” To help treat both conditions, Caleb began undergoing IV infusion therapy. “When you treat one condition, the other condition gets better, as well,” says Dr. Toth. “In this type of treatment, the patient receives medication both orally and through an IV that suppresses the immune system, telling it to stop attacking the intestines, as well as the joints.” Caleb has taken his mom’s advice to heart. He loves baseball, and spent this past summer playing in the West Akron Baseball League. He also enjoys swimming and belongs to a local bowling league. On the weekends, he runs the audio visual booth at his church. This year, as an 8th grader at Akron’s Litchfield Middle School, he works in the office, plays clarinet in band and sings in the school choir. Throughout their journey, Caleb and Charice have relied on the support of friends, their church family and the team at Akron Children’s Hospital. “Kids come first at Akron Children’s – I can’t say enough about Dr. Toth and the rest of the hospital staff,” says Charice. “I have a phenomenal support system. There’s a multitude of people who care for, and about, me and my child. Everyone is so caring, kind and personable – from doctors and nurses to therapists and volunteers.” So Caleb and Charice began the long process on what was hopefully a road to improved health. Overcoming the obstacles Every six weeks for the past five years, Caleb visits Akron Children’s Hospital to undergo IV therapy. “His condition has markedly improved,” says Dr. Toth. “He still has some active bouts of the disease, and a side effect of the medication has led him to contract psoriasis, which he uses cream medications to treat. However, both his Crohn’s and arthritis are doing much better.” Because of the weakness in his legs from the arthritis, Caleb wears leg braces to keep his ankles and knees straight. He also frequently visits the hospital for physical therapy and hydrotherapy. “I tell my son that yes, there is sickness in life, but his sickness is not a crutch,” said Charice. “You have to get up and keep moving.” AKRONCHILDRENS.ORG/GIVING 21 Building a strong foundation. Caleb frequently undergoes physical therapy and hydrotherapy at Akron Children’s rehabilitative services. Therapists including Beatrica Kovacova, PTA, work with him to strengthen his lower body, combating the weakness that’s caused by his juvenile rheumatoid arthritis. This past June, Caleb and his mother traveled to Washington, D.C. for the Children’s Hospital Association’s annual “Speak Now for Kids Family Advocacy Day.” Before leaving, he met with hospital leadership, including (L-R) Bernett Williams, vice president for external affairs, Bill Considine, president and CEO and Charlie Solley, government relations director. Becoming a voice for others Their journey took an unexpected turn in June. Nominated by Dr. Toth and selected by the hospital, Charice and Caleb represented Akron Children’s and all its patients during the Children’s Hospital Association’s annual “Speak Now for Kids Family Advocacy Day” in Washington, D.C. The trip gives legislators a chance to meet people affected by healthcare policy decisions. Issues that impact children’s hospitals and their patients include cuts to programs that fund medical education to parents and other parents of special needs children, letting our lawmakers know that this funding needs to be kept in place.” During his time in D.C., Caleb got to walk the halls of Capitol Hill, and meet Congresswoman Nancy Pelosi, Rep. Tim Ryan, and other lawmakers while representing the hospital. “It was an eye-opening experience for both of us,” says Charice. “I do believe one day Caleb will make it to D.C. himself and become part of the movers and shakers of the world. He’s just that kind of person.” 13-year-old Caleb Thurman was diagnosed with Crohn’s disease and juvenile rheumatoid arthritis at a very young age. Today, he’s on the road to improved health thanks to the team of physicians, specialists and therapists at Akron Children’s Hospital. train future doctors, ongoing concerns about drug shortages, and funding for safety-net programs like Medicaid and the Ohio Department of Health’s Bureau of Children with Medical Handicaps (BCMH) – a program that has brought Charice immense relief. “I’m a single, full-time working mom of a special needs child,” says Charice. “I have good private insurance, but I need help filling in the gaps. BCMH covers all of Caleb’s medical costs above what my insurance covers. I went to D.C. to be a voice for other working As Caleb and Charice continue on their journey, they’re grateful for the care and support they receive from Akron Children’s Hospital. “Akron Children’s loves your child as if they were their own,” says Charice. “There’s no doubt that the hospital provides the highest quality care in the region. As a parent, you always want to do what’s best for your child. And one of the best things I ever did was take my son to Akron Children’s Hospital.” 22 CHILDREN’S PROGRESS | FALL 2013 grants Grant addresses needs of refugee population in Akron Akron Children’s Hospital recently received a $35,000 grant from the Helen V. Brach Foundation to create a position for a bilingual community health worker (CHW). This role will help bridge the gap between the local medical community and the more than 1,400 refugees from Burma and Bhutan who have relocated to the greater Akron area. Natasha Curtis “Creating the CHW position sends a strong message that Akron Children’s is committed to serving our diverse communities,” says Natasha Curtis, Akron Children’s language access services manager. “Relationships are paramount in interactions with these populations; investing and building relationships is the best thing we can do. Our CHW will help us accomplish this.” Akron is a United Nations resettlement community for these refugees. The Burmese fled human rights abuses by the Burmese army. “Refugee families have to overcome many hurdles to access the U.S. healthcare system,” says Curtis. “This population also faces multiple health challenges as a result of living in refugee camps prior to coming to the U.S., including malnutrition, infectious diseases, such as tuberculosis, and poor oral health. Through this position, we want to positively impact the health and health behaviors of these refugee communities.” The bilingual and bicultural CHW will work closely with the Burmese and Bhutanese communities and Akron Children’s, particularly in the hospital’s Locust AKRONCHILDRENS.ORG/GIVING 23 Pediatric Care Group, which counts the Burma and Bhutan refugees as 20 percent of its client base. Locust Pediatrics houses the only healthcare providers for the pediatric refugee population, serving more than 1,400 refugee and immigrant children. Each month, 10 new families enter the clinic. “In addition to addressing immediate health needs, our hope is that the CHW will help us build trust within these communities and engage families,” says Curtis. “We want this person rooted in the community. As that relationship develops, the members of these refugee groups will hopefully become more proactive in reporting health problems so that in time, we can be more preventive than reactive.” Once the position is filled, Curtis believes that this individual will help the hospital deliver its mission in new and innovative ways. “We’re finding a better way to serve and reach these families,” she says. “By focusing on building trust, we’re able to deliver care in a way in which these individuals can understand and assimilate. It’s through this that we recognize our own cultural humility and appreciate that many of the answers to how we deliver their care need to come from them. Our CHW will help us achieve this.” The effort is part of the larger Summit County Refugee Health Task Force, a collaborative effort of agencies that directly serve refugees: Akron Children’s Hospital; Akron General Medical Center; Summa Health System; Summit County Public Health Department; fire and police departments; International Institute of Akron; Asia, Inc.; and Office of Refugee Resettlement. of note Publications Sumru Bilge-Johnson, MD, Program Director, Child Psychiatry Fellowship, wrote “Self-Reported Peer Victimization and Suicidal Ideation in Adolescent Psychiatric Inpatients: The Mediating Role of Negative Self-Esteem in its Current Form” with H. Jones and H. Fishel, Journal of Clinical Child Psychology and Psychiatry, 2013. Kenneth Bono, MD, wrote “Necrotizing Fasciitis in a Pediatric Orthopedic Population” with A. Tancevski, L. Willis and K. Klingele, Orthopedics, June 2013, 36(6):741-45. T. Jeffrey Butler, MD, wrote “A Standardized Nutrition Approach for Very Low Birth Weight Neonates Improves Outcomes, Reduces Cost and is not Associated with Increased Rates of Necrotizing Enterocolitis, Sepsis or Mortality” with L. Szekely and J. Grow, Journal of Perinatology, 2013: 1-7. Jessica S. Castonguay, DO, MPH, wrote “Chapter 11: Vulvovagintis” with E. Berlan, Nationwide Children’s Hospital, Adolescent Medicine Today, 2011. World Scientific, Chapter 11:175-88. Bruce Cohen, MD, Director, Pediatric Neurology, wrote “Alpers-Huttenlocher Syndrome” with R. Saneto, W. Copeland and R. Naviaux, Pediatric Neurology, 2013, 48: 16778; “Neuromuscular and Systemic Presentations in Adults: Diagnoses Beyond MERRF and MELAS,” Neurotherapeutics, 2013, 10: 227-42; “Practice Patterns for Intraoperative Neurophysiologic Monitoring Neurology” with M. Nuwer snd K. Shepard, March 2013, 80(12):1156-60; “The Neurologist as a Medical Home Neighbor” with D. Hoch, M. Homonoff, M. Moawad, G. Esper, A. Becker and N. Busis, Neurol Clin Pract, 2013, 3: 134. John Duby, MD, Director, Developmental-Behavioral Pediatrics, wrote “Partial Deletion of ANKRD11 Results in the KBG Phenotype Distinct From the 16q24.3 Microdeletion Syndrome” with M. Khalifa, J. Stein, L. Grau, V. Nelson, J. Meck and S. Aradhya, American Journal of Medical Genetics, 2013, Part A 9999: 1–6. Kathryn Mosher, MD, Director, Neuromuscular Clinic, wrote “A Multidisciplinary Functional Toileting Pathway for Children with Cerebral Palsy: Preliminary Analysis” with E. Millard and E. Benore, Clinical Practice in Pediatric Psychology, 2013, 1(1): 81-88. Marc Nelson, MD, wrote “Bioresorable Airway Splint Created with a Three-dimensional Printer” with D. Zopf, S. Hollister, R. Ohye and G. Green, New England Journal of Medicine, May 2013, 368(21): 2043-5; “Pediatric Hearing Loss and Radiographic Pericochlear Hypoattenuation, Otol Neurotol, June 2013, 34(4):726-8. Sarah Ostrowski, PhD, Director, Research Program, wrote “Psychometric Properties of the UCLA PTSD Reaction Index with A. Steinberg, M. Brymer, C. Gosh-Ippen, S. Kim, E. Briggs-King and R. Pynoos, Journal of Traumatic Stress, 2013, 26: 1-9; “Psychometric Properties of the UCLA PTSD Reaction Index. Part II: Investigating Factor Structure Findings in a National Clinic-referred Youth Sample” with J. Elhai, C. Layne, A. Steinberg, M. Brymer, E. Briggs and R. Pynoos, Journal of Traumatic Stress, 2013, 26: 10-1; “The Efficacy of Initial Hydrocortisone Administration at Preventing Posttraumatic Distress in Adult Trauma Patients: A Randomized Trial” with D. Delahanty, C. Gabert, N. Nugent, B. Fisher, R. Pitman, J. Bon and W. Fallow, CNS Spectrum, 2013, 18(2): 103-111. M. Cristina Victorio, MD, Director, Headache Clinic, wrote “Diagnosis and Treatment of Idiopathic Intracranial Hypertension (IIH) in Children and Adolescents” with A. Rothner, Curr Neurol Neurosci Rep, 2013, 13:336. Kristine Woods, Pediatric Psychologist, wrote “An Evaluation of Psychosocial Outcomes for Children and Adolescents Attending a Summer Camp for Youth with Chronic Illness” with S. Mayes, E. Bartley, D. Fedele and J. Ryan, Children’s Health Care, 2013, 42(1): 85-9. Thomas Enlow, MD, wrote, “Improving Pediatric Compliance with EEG: Decreasing Procedural Anxiety and Behavioral Distress” with E. Benore, Epilepsy and Behavior, 2013, 27(1):169-73. Nneka Holder, MD, MPH, wrote “Human Papillomavirus Vaccines: Factors That Affect Vaccine Knowledge and Delivery” with R. Katzenellenbogen and A. Middleman, Journal of Adolescent Health, September 2013, 53: 423-5. Mohamed Khalifa, MD, Director, Genetic Center, wrote “Exome Sequencing Identifies a Novel EP300 Frame Shift Mutation in a Patient with Features Overlap with Cornelia de Lange Syndrome,” European Journal of Human Genetics, August, 2013. 24 CHILDREN’S PROGRESS | FALL 2013 Presentations Sumru Bilge-Johnson, MD, Program Director, Child Psychiatry Fellowship, presented “How to Train Your Dragons/ How to Manage Problems” at the NEOMED Master Teacher Guild 3rd Annual Chief Resident Symposium in Rootstown, Ohio, April 2013; “Psychiatric Intake Response Center Revisit Risk Factors and Inpatient Admission Risk Factors Among Youth” at the 26th Children’s Mental Health Research and Conference in Tampa, FL, March 2013. Blaise Congeni, MD, Director, Division of Infectious Diseases, presented “Immunization Update and Impact of Declining Immunization Rates” at Aultman Hospital, Canton, Ohio, April 2013; “Hot Topics in Pediatric Infectious Diseases” at Akron Children’s Hospital, Akron, Ohio, April 2013; “Pediatric Immunization Update” at Union Hospital, Dover, Ohio, May 2013; “Immunization Update” at The Toledo Hospital, Toledo, Ohio, May 2013. Joseph A. Congeni, MD, Director, Sports Medicine Center, presented “Concussion Algorithms within the Akron Children’s Hospital, Akron, Ohio, May 2013; Recognition and Initial Management of Brain Injury/Concussion in Sports, at the Ohio Public Health Conference, Columbus, Ohio, May 2013; “The Use and Abuse of Steroids and Other Performance Enhancing Drugs in Athletes” at the Ohio Public Health Conference, Columbus, Ohio, May 2013; “Healthcare Careers and Sports Medicine” at Healthcare in Progress, Akron, Ohio, June 2013. Bill Considine, president and CEO of Akron Children’s Hospital, presented the advanced degree program commencement speech at Kent State Univesity, Kent, Ohio, August 2013. Kerwyn Jones, MD, Chair, Department of Orthopedics, presented “Gene Expression Differences in Young Male and Female Ruptured Anterior Cruciate Ligament Tissue” with J. Johnson, S. Moen, R. Jaquet, M. Morscher and W. Landis at Ohio Orthopedic Society, Dublin, Ohio, May 2013; “Diagnostic Sensitivity of the Indirect MR Arthrography for Detecting Shoulder Labral Pathology in Young Patients” with A. Razzano, M. Morscher and A. Eghbal at Ohio Orthopedic Society, Dublin, Ohio, May 2013; “Computational Evaluation of Treatment for Patellofemoral Instability” with J. Elias, A. Saranathan, L. Guseila, H. Feng, R. Biyani and M. Morscher at Northeast Ohio Musculoskeletal Research Retreat, Cleveland, Ohio, April 2013. Mohamed Khalifa, MD, Director, Genetic Center, presented “Exome Sequencing Identifies a Novel EP300 Frame Shift Mutation in a Patient with Features Overlap with Cornelia de Lange Syndrome” at European Society of Human Genetics meeting, Paris, 2013. AKRONCHILDRENS.ORG/GIVING 25 Dennis Weiner, MD, Director, Pediatric Orthopedic Research, Co-Director, Regional Skeletal Dysplasia Center, presented “Operative Management of the Severe Genu Valgum Deformity in the Ellis-Van Creveld Syndrome” with J. Tank, M. Morscher, A. Krahe, W. Schrader and D. Jonah at Ohio Orthopedic Society, Dublin, Ohio, May 2013; “Physeal Gene Expression and Structure from Different Anatomic Regions in Two Species” with S. Widmer, R. Jacquet, M. Shasti, R. Steiner, W. Landis, M. Morscher and M. Adamczyk at Ohio Orthopedic Society, Dublin, Ohio, May 2013; “The Anabolic Effects of Electrical Stimulation on Endochondral Bone Formation” with S. Lababidi, R. Kuntz-Willits, K. Novak, R. Razmpour, R. Fitzgerald, W. Landis and F. Safadi at Northeast Ohio Musculoskeletal Research Retreat, Cleveland, Ohio, April 2013. Kristine Woods, Pediatric Psychologist, presented “Preliminary Use of the Psychosocial Assessment Tool for Chronic Pain in Children with Headache” at the American Psychological Association Annual Convention, Honolulu, HI, July 2013. Awards and Honors Sumru Bilge-Johnson, MD, Program Director, Child Psychiatry Fellowship, was awarded the Outstanding Volunteer Faculty award, Northeast Ohio Medical University, May 2013; chair of the NEOMED Master Teacher Guild 3rd Annual Chief Resident Symposium in Rootstown, Ohio, April 2013. John Bower, MD, received Teaching Service Award from the Department of Family Medicine at Summa Akron City Hospital, Akron, Ohio, June 2013. Jessica S. Castonguay, DO, MPH, received Nationwide Children’s Hospital GME Scholarship, Nationwide Children’s Hospital, Columbus, Ohio, 2013. Blaise Congeni, MD, Director, Division of Infectious Diseases, received the Teaching Service Award from the Department of Family Medicine at Summa Akron City Hospital, Akron, Ohio, June 2013; Golden Apple Award for Teaching Excellence from the Department of Pediatrics at Akron Children’s Hospital, Akron, Ohio, June 2013. Joseph A. Congeni, MD, Director, Sports Medicine Center, was awarded the Dr. Carl Krill Award for humanism and excellence in the field of health, 2013; Legends of Sports Medicine award for dedication in the field of sports medicine, Akron, Ohio, 2013. Michael Forbes, MD, Director, Pediatric Intensive Care Unit Clinical Research and Outcomes Analysis Local Medical Leader, was a Trey Whitfield Foundation, Inc. honoree, Brooklyn, NY, 2013. memorial and tribute gifts Gifts received May 1, 2013 - July 31, 2013 In Honor of ... Tyler Allen Mr. and Mrs. Douglas Allen Allie Armstrong Mrs. Elissa Hyatt Alyssa R. Bell Ms. Cara L. Beatty Franklin A. Bell Ms. Cara L. Beatty Esther Bernel Ms. Deborah L. Young Josephine Bolognue Ms. Shelley J. Sabistina Carson Boothe Ms. Melinda M. Boothe Austin Bova Mrs. Marcia J. Koltonski Jessica L. Boyett Mrs. Rachel Sewell Rhonda G. Brightwell Ms. Sara Aguila Gavin Buchanan Ms. Karen D. Wery Payton Buchanan Ms. Karen D. Wery Annika Bunevich Ms. Deanne S. Bunevich Trevor Bunevich Ms. Deanne S. Bunevich Devon Burks Ms. Jennifer A. Burks John Faust Mr. and Mrs. Patrick S. Roberts Nolan D. Fosdick Mr. and Mrs. Stephen R. Fleischer Madison Frase Ms. Marla K. Frase John M. Furino Mr. Robert Taylor Rebecca Geiser Dr. and Mrs. John R. Hansel Jake Gmerek Mr. and Mrs. David J. Brubach Theresa Guttshall Ms. Jill L. Aldridge Vicki Haden-Marty Ms. Michelle Lisco Richard M. Hamlin Mr. and Mrs. Raymond R. Wernig L. Harrelson Ms. Patricia A. Hornacek Dennis K. Hartney Mr. Dana K. Hartney Helena Hejduk Mr. and Mrs. James V. Holmes III Kathy Holmes Mr. David Goldemberg Holy Family School and Parish Mr. Bob and Ms. Vilma Smith Catherine Hord Mr. and Mrs. William Pultinas Rebecca D. Considine Dr. and Mrs. Robert T. Stone Lauren Jackson Mr. Scott McKinney Ms. Deidre Stone-Jackson Ms. Jana Stone Jason Darke Mr. and Mrs. Donald W. Waggoner Lindsey Jackson Ms. Jana Stone Jaquelyn Elbin Mrs. Patricia Elbin Nate Johnston Ms. Susan M. Johnston Emma Estafen Ms. Megan E. Ott Sandy Kahoe Mr. and Mrs. Patrick S. Roberts Noah Kendrick Mrs. Linda L. Carlton Spiegel Burn Foundation Harvey Krieger Mr. and Mrs. Russell S. Krieger John Lamm Jr. Ms. Maci Mae Wells Nicholas Libertin Mrs. Colette S. Libertin Jacob J. Looman Mr. and Mrs. Philip Gefsky Mr. Paul Garfinkle Mrs. Susan Ladd Mrs. Carole Lepilleur Mrs. Susan Palla Dr. Erin Rosenberg Ms. Claire Straus Ms. Hilarie Yankello Aidan Lynch Mr. John W. Solomon Giada Marmula Ms. Leslie M. Markulin Hallie Martin Ms. Emily G. Boda Leyna McCarty Ms. Katherine Dieble Mrs. Teresa McCarty Maddie McCarty Ms. Katherine Dieble Mrs. Teresa McCarty Richard McClinton Ms. Bridgette M. Wright Tyler McHenry Mr. and Mrs. Scott McHenry My grandson Mr. and Mrs. Kenneth Stoffer Oncology Nurses Grandma Mayhugh Robert Pacholewski Mr. and Mrs. Richard R. Grigg Jr. Hayden Patron Mrs. Jennifer L. Patrone 26 CHILDREN’S PROGRESS | FALL 2013 David Pendley Ms. Samantha J. Sauceda Jenny Skerlong Mr. and Mrs. Paul Campbell Dr. Arthur Dobkin Mr. and Mrs. Matthew W. Oby Mr. Stan Priesand Ms. Paul Skerlong Isabella Restaino Ms. Barbara Restaino Jude Sanford Bank of America Drew Squire Mr. Benjamin Adelman Bank of America Mrs. Constance Hunter Camden Schmidt Ms. Tessa E. Schmidt Emerson Schmidt Ms. Tessa E. Schmidt Sunita K. Sharma Dr. and Mrs. Adarsh Gupta Maura Simonik Ms. Mary L. Thomas AKRONCHILDRENS.ORG/GIVING 27 Elaine M. Thompson Mrs. Jackie Amthor Leah VanHorn Mr. Paul Van Horn Joseph Vitale Mr. Robert A. Klaus Sara Vollman Dr. and Mrs. John H. Vollman Amanda H. Sterneckert Mr. Scott H. Sterneckert Blake Watson Mr. and Mrs. Daniel Mohney Mr. and Mrs. James T. Nelson Connor H. Sterneckert Mr. Scott H. Sterneckert Dennis Weiner Mr. and Mrs. David L. Hawk Corina Swartz Students at Louisville Middle School Brock Wilbur Mr. and Mrs. Dustin Wilbur memorial and tribute gifts In Memory of ... Gertrude Aberegg Ms. Helen L. Aberegg Benjamin Adamek Ms. Catherine A. Bixenstine Bobby Allega Mr. and Mrs. Michael D. Allega Gap Foundation Gift Match Program Daniel Bellino Mr. Robert W. Bellino Ralph Bennett Ms. Nadine A. Sassic Curtis Benson Ms. Valerie Vaughn Timothy Benson Ms. Valerie Vaughn Gino Altieri Stow-Monroe Falls Board of Education Alonzo Berry Ms. Cheri L. Berry Chris Anderson Mr. and Mrs. Michael Clark David E. Appleby Mr. and Mrs. Cory Kuzyk Michael Berry Ms. Linda M. Miconi Andrew C. Atkinson Ms. Marti S. Atkinson John P. Bracht Mr. and Mrs. Richard C. Talbert Walter P. Backlund Akron Area Retired Fireman and Widows Association Fred Braden Ms. Melissa S. Braden Pete Bailey Mr. Richard Porter Paul Bonhomme Mr. Brian Bonhomme Carina R. Britz Ms. Donna M. Ruther Daryl H. Brubaker Ms. Arden G. Agnes Anthony Bruno Dr. and Mrs. Joe L. Carpenter Lucille Bungard Ms. Barbara J. Bungard William Bungard Ms. Barbara J. Bungard Mary C. Cafarelli Ms. Janet R. Stark Roy Cain Mrs. Karen S. Cain Dianne Calderone Ms. Lucille M. Altiero Mr. and Mrs. Gary C. Anderson Mr. and Mrs. John R. Baker Ms. Brenda K. Black-Shelkofsky Mr. and Mrs. Michael S. Boone Bruner-Cox LLP Mr. and Mrs. William L. Carr Communications Exhibits Mr. and Mrs. Robert J. DeHoff Mr. and Mrs. John W. Dixon Mr. and Mrs. Craig M. Durr Mr. and Mrs. Allen E. Green Mr. Jerry M. Haynam H-P Products Mr. Michael E. King Krugliak, Wilkins, Griffiths and Dougherty Co. LPA Mr. and Mrs. Andrew Layden Mr. and Mrs. Patrick H. Lonely III Mr. and Mrs. John M. Lupica Innis Maggiore Ms. Karen M. Miller New Bentley Court Condo Association Mr. and Mrs. Jeffrey Porter Richmond Vacuum System Spaner Marketing Communications Mr. and Mrs. Randy J. Stefansic Mr. Robert D. Turnbull Ms. Kelly Wesely Bruce J. Campbell A. Crano Excavating Co. Mr. and Mrs. Charles E. Adolph Mr. and Mrs. Arthur E. Bailey Mr. and Mrs. Lewis A. Baird Mr. and Mrs. Ray Beal Bob Bennett Construction Company Mr. and Mrs. Libert Bozzelli Ms. Elizabeth A. Clark Mr. and Mrs. Joseph Falkenstein Mr. and Mrs. Dominic Iacobucci Johnson and Parish Title Agency Inc. Mr. and Mrs. Orville Jones Mr. and Mrs. Frederick M. Lombardi Ms. Barbara J. Messina Ms. Sandra M. Raines Ms. Elizabeth A. Sheldon Mr. and Mrs. David H. Stoller Tiffany and Tanya Carey Ms. Megan Carey Charles Carman Ms. Carol P. DeMatteis Colin J. Carr Mr. and Mrs. Adam and Valerie E. Carr Dean Christiansen Mr. and Mrs. Sean Merchant 28 CHILDREN’S PROGRESS | FALL 2013 Mychal S. Clayton OMNOVA Solutions Foundation Willavene Clements Ms. Sheryl J. Valentine Peter A. Constantinou Dr. Georgette and Dr. Stavros Constantinou Karrie Dodez Ms. Amy Dodez and Members of Heels from Heaven Ms. Kelsey Edgell and Ms. Karen Gordon Jack R. Donatelli Mr. Brian and Ms. Maria Donatelli Peterson Roy Copeland Mr. Rod Wellman Chester Edwards Ms. Janet L. Sobnosky Billy Cunningham Mrs. Elizabeth and Mr. Richard R. Bryson John R. Edwards Ms. Michelle L. Semko Mary Lou Cunningham Mrs. Elizabeth and Mr. Richard R. Bryson William G. Ellis Mrs. Carol Barber Mrs. G. Dorene Ellis Dr. and Mrs. Robert T. Stone Roseann D’Alesio Ms. Julie A. Costas Felicia Ely Ms. Loretta M. Vasuta Kathy Daly Ms. Martha Menningen Ursula Falther Tracie Tsai Austin M. Davis Mr. and Mrs. Leo McGuinness Richard Fedor Mrs. LeiAne N. Fedor Matthew A. Day Mr. and Mrs. Jeffrey A. Day Roberta Fedor Mrs. LeiAne N. Fedor Samuel D. Dean Mr. and Mrs. Samuel Alio Ms. Bonnie Derer Ms. Angela Di Iorio and Ms. Gina Bigelow Mr. and Mrs. Gerald R. McLean Ms. Arma Scaglione Mr. and Mrs. Ben Surblis Ms. Lisa Zenar Homer Feikert Ms. Tami Drake Ms. Loni N. Dye Mr. and Mrs. Dennis W. Harrold Mr. and Mrs. Edward L. Lytle Mr. and Mrs. Alfred J. Motzko Dr. and Mrs. Andrew J. Naumoff Mr. and Mrs. Merlin S. Pierce Mr. and Mrs. Philip A. Rehm Ms. Frances L. Scott Loretta DeMarco Ms. Eva May Smith Howard L. Flood Ms. Dorothy F. Fitzgerald Sofia I. Dente Ms. LuAnn K. Kuhl Abbey Foltz Mr. and Mrs. Robert W. Cappello Steven R. Diehl Ms. Alyssa M. Portwood James R. Dishong Ms. Coleen Harris Jack Dobrzynski Dr. and Mrs. Eugene M. Mowad AKRONCHILDRENS.ORG/GIVING 29 Brody T. Gartman Ms. Jenna D. Landes Charles E. Griffin Ms. Patricia Galbraith Vicki Guzi Ms. Teresa J. Hedrick Pauline Harden Ms. Susan Harnden Robert L. Harwig Ms. Jacqueline K. Bennett Hennasei Heatherly Ms. Patricia Pence Kendra A. Hesidence Mr. and Mrs. Dennis P. Woodburn Eli J. Hespenheide Ms. Dianne M. Papes Molly Hespenheide Ms. Dianne M. Papes John J. Higgins Ms. Debra A. Kostelic Bruce Hillman Rubber Capital Jim Beam Bottle Club Marica Horst Ms. Tammy D. Smith Katie Houck Mr. Jeffrey Houck Deanna Jerin Ms. Theresa K. Moore Donald P. Johns Mr. and Mrs. James E. Kelley Jennifer A. Kaplan Dominion Foundation Matching Gift Program Cody Kelly Dr. Catherine A. Kelly-Langen James Foulk Ms. Barbara G. Swartz Jacob T. Kerns Mr. and Mrs. William R. Shives Mr. and Mrs. Donald W. Cullison Isabel M. Frost Mr. and Mrs. Christian S. Gerig Matthew Kirven Mr. and Mrs. Ron Endres Karen L. Kleinfeld Ms. Betty K. Siegfried memorial and tribute gifts Ainsley L. Knepper Ms. Judy C. Scull Ms. Kristin A. Juarovisech John D. Kramer Dr. Joseph T. Michels Sr. Benjamin Krebs Ms. Melonie B. Michelson Ryan Krebs Ms. Melonie B. Michelson Gary Lauer Mr. Justin J. Lauer Kayla J. LaVoie Ms. Sharon K. Mick Ms. Bonnie J. Workman John G. Lemon SGM Edward J. Miller USA Ret. Alivia M. Leverknight Mr. Henry E. Hill Ms. Dorothy C. Rassman Rogers United Methodist Church Nicholas Libertin Mrs. Colette S. Libertin Wanda Maas Ms. Patricia Bartosik Baby Maibach Ms. Valerie J. Csepe Claude Massey Mrs. LeiAne N. Fedor Helen Massey Mrs. LeiAne N. Fedor Marvin Maxwell Ms. Sheryl J. Valentine Tommy L. McFadden Mr. and Mrs. Jerry A. Carpenter Mr. and Mrs. Michael D. Hedges Mrs. Barbara McFadden Ms. Bernetta J. McFadden David Meckler Mr. and Mrs. Bernard Kamenir Mr. and Mrs. Jimmy Perelman Mr. and Mrs. Richard W. Reaven Frances P. Milec Ms. Marianne M. Sanders John Milec Ms. Marianne M. Sanders Loretta Mills Mr. Franklin D. Sturgeon Vittle Village Ms. Lynnelle B. Zimmerman Eugene J. Mowad Dr. and Mrs. Eugene M. Mowad Rose C. Parrotto Dr. Cassandra Hirsh and Mr. Brian Harrell David L. Partin Mr. and Mrs. Philip E. Partin Jake Paulocsak Ms. Mary Crabtree Mr. and Mrs. Kenneth J. Goodwin Mr. Michael Grandstaff Ms. Nancy Niemesch Mr. and Mrs. Eric Osborn Nancy M. Pelino-King Mr. and Mrs. Evan L. Case Mr. and Mrs. Ned Goodman Mr. Donald A. King Ms. Pamela D. Ross Mr. and Mrs. Michael L. Stoneking Ms. Melinda S. Zemba Carissa J. Sampsel Mr. and Mrs. Robert C. Berk Ms. Michelle C. Chaido Mr. and Mrs. Brian J. Hollingsworth Mr. and Mrs. Sean Merchant Mr. and Mrs. John Neiss Mr. Larry R. Parsons Ms. Molly A. Ravine Women’s Board of Akron Children’s Hospital Richard Scheidegger Ms. Sandra N. Ashton Emmeline J. Schumacher Mr. Steven Roman Timken Company Charitable and Educational Fund Inc. Dorothy Scott Ms. Suzanne M. Felter Joseph Scott Ms. Suzanne M. Felter Judd W. Seavy Mr. and Mrs. Firestone Anthony Shingelton Ms. Cynthia M. Richards Mrs. Mary Richards Mr. and Mrs. Jess V. Shingleton II Betty L. Slabaugh Ms. Carol A. Eckroate Charles A. Perry Mr. and Mrs. Michael Sadie Matthew G. Smith Mr. and Mrs. Gordon C. Smith Kathleen Post Ms. Frances W. Keller Daniel Snider Mr. and Mrs. Paul Quine Beverly Reese Ms. Beth A. Larch Gwen Spies Mr. Richard Porter Herbert E. Reising Ms. Lynda M. Nossaman Tenley J. Riffle Mr. and Mrs. Gary T. Zahler Stephanie Stanley Mrs. Sharon M. and Floyd W. Juszli Andrew Thomas Mrs. Marnie DeJohn Hatti Rohrer Ms. Kelsi Rohrer Shelly Thornton Mr. and Mrs. Eric J. Alfeld William F. Rosenblatt Mr. and Mrs. Philip H. Maynard 30 CHILDREN’S PROGRESS | FALL 2013 Belva J. Tochinsky Mr. and Mrs. Richard W. Evans Ms. Alice M. Krull Mr. and Mrs. Dale Norton Mr. Walter Staudenmaier Zygmont Tulodzieski Ms. Karyn A. Meeks Cody Vance Ms. Margaret A. Collins Tyler Vance Ms. Margaret A. Collins John Vodila Ms. Patricia F. Vodila Lewis H. Walker Akron Children’s Hospital Human Resources Akron Children’s Hospital Medical Staff Akron Children’s Hospital Social Work Department Akron General Medical Center Dr. Mark and Dr. Sandra K. Auburn Ms. Carol Barber AKRONCHILDRENS.ORG/GIVING 31 Dr. and Mrs. Blaise L. Congeni Mr. and Mrs. Kenneth E. Gui Mr. and Mrs. James W. Hoelscher Mr. and Mrs. Bernard Kamenir Ms. Carol L. Keeler Mr. Jefferson W. Keener Jr. Dr. and Mrs. Joseph L. Kloss Mr. and Mrs. Frank A. Lettieri Ms. Eileen C. McClarnon Ms. Lisa M. Metash Mr. and Mrs. Edward C. Pullekins Dr. and Mrs. John H. Vollman Mr. and Mrs. Christopher L. Walker Mr. John M. Weletyk Dr. Ralph White Harold S. Welner Mr. and Mrs. Robert J. Champlin Ms. Faye J. Haws Mr. and Mrs. Harry B. Stewart Ella F. Young Mr. and Mrs. Bradley Smith Mr. and Mrs. Emerson E. Stull Mrs. Michelle Young In Celebration of ... Adam Burroughs Mr. and Mrs. Walter S. Kidder Non-Profit Organization U.S. Postage PAID O N E P E R K I N S S Q UA R E Akron, OH Permit No. 202 A K R O N , O H I O 4 4 3 0 8 -1 0 6 2 Have you signed up for Developments, our electronic newsletter, which features the latest hospital news and links to relevant podcasts and videos? Scan the tag below or register online at akronchildrens.org/developments. calendar of events november Friday, November 22 Holiday Tree Festival Preview Gala John S. Knight Center 5:30 p.m. Friday, November 22 Wish You Were Here concert to benefit Palliative Care Akron Civic Theatre 8 p.m. Saturday, November 23 – Sunday, December 1 Holiday Tree Festival John S. Knight Center Times vary Saturday, November 23 and November 30 Breakfast with Santa John S. Knight Center 8:30 a.m. Monday, November 25 Quaker Steak and Lube Dine to Donate North Canton Quaker Steak and Lube 4 – 9 p.m. december Tuesday, December 3 Giving Tuesday Support Akron Children’s Hospital akronchildrens.org/givingtuesday Wednesday, December 4 Quaker Steak and Lube Give Back Night Boardman Quaker Steak and Lube 5 – 9 p.m. Thursday, December 5 A Children’s Holiday Tree Lighting and Anniversary Celebration Beeghly campus, Building C 5:30 p.m. Friday, December 6 Children’s Tree of Lights Akron Children’s Hospital Atrium Lobby 5:30 p.m. Saturday, December 7 Mahoning Valley Breakfast with Santa Antone’s Banquet Centre, Boardman 9 – 11 a.m. Friday, December 13 Holiday Hopes and Wishes Luncheon Mr. Anthony’s, Boardman 10 a.m. – 3 p.m. Saturday, December 28 Charity Ball E.J. Thomas Hall 6 p.m Monday, December 30 Quaker Steak and Lube Dine to Donate North Canton Quaker Steak and Lube 4 – 9 p.m. february Thursday, February 13 – February 15 “Have a Heart, Do Your Part” radiothon, presented by 98.1 WKDD Akron Children’s Hospital Atrium Lobby Times Vary For more information about these events or how you can become a special event coordinator, contact: JoAnn Stock, director of development at Akron Children’s Hospital Mahoning Valley, at 330-746-9122 or Sara Lundenberger, special events coordinator at Akron Children’s Hospital, at 330-543-8037. For a complete listing of all Akron Children’s Hospital events, visit akronchildrens.org/events. Get the free mobile app at http://gettag.mobi
© Copyright 2024