Kidney Care A guide to recording activity within renal units for national reporting FIRST EDITION | JUNE 2011 Better Kidney Care for All Reader Page Title A guide to recording activity within renal units for national reporting Authors Hugh Cairns - Expert Working Group, NHS Information Centre Julie Renfrew - NHS Kidney Care Beverley Matthews - NHS Kidney Care James Medcalf - KQIP Jill Cockrill - NHS Information Centre Lynn Bracewell - Connecting for Health Publication Date June 2011 Target Audience Clinicians, coders, and information system managers working with renal units. Circulation List NHS Trust CEOs, Directors of Finance, Clinical Coders, Connecting for Health leads, renal IT advocates, commissioners and information leads in specialised commissioning, PCTs and emerging pathfinder consortia, clinical directors in kidney services, specialist registrars in kidney services. Description/purpose This document has been written to support accurate clinical coding in renal services, rather than as a precise guide. It contains an introduction to clinical coding and its importance, gives detailed examples of how renal activity should be recorded, and contains useful reference materials and links to further sources. Cross Ref www.connectingforhealth.nhs.uk/systemsandservices/data/ clinicalcoding Superseded Docs n/a Action Required n/a Timing n/a Contact details [email protected] Contents 1Chapter 1: Introduction and background 04 Foreword 05 Clinical coding and its importance 06 What information should be recorded? 07 Using this guide 1Chapter 2: Recording and coding of renal activity - examples : Acute kidney injury examples 19 2.1 Acute kidney injury 22 2.2 Diverticulitis with a generalised peritonitis 23 2.3 Thrombotic thrombocytopenic purpura (TTP) Nephrology examples 24 3.1 Nephrotic syndrome 24 3.2 Brachial PTFE graft insertion CONTENTS Renal dialysis examples 09 1.1 Haemodialysis 12 1.2 Peritoneal dialysis 14 1.3 Haemodialysis 17 1.4 Haemodialysis Kidney transplantation examples 25 4.1 Pre and post-transplant care at non-transplanting centre Chapter 3: Recording and coding of renal activity within paediatric renal units - examples : Chronic renal failure and dialysis in an infant 29 1.1 Inpatient admission from birth 30 1.2 Each session of Peritoneal dialysis 31 1.3 Each session of Haemodialysis Acute renal failure 32 Acute renal failure General nephrology 33 General nephrology 1Appendices 34 Appendix 1: Common renal terms and acronyms 36 Appendix 2: Mapping common renal procedures to OPCS-4 codes 40 Appendix 3: UK Renal Registry list of possible adult renal comorbidities 41 Appendix 4: Additional sources of information 03 Foreword In healthcare, coding of clinical information is not just an administrative necessity. Recording accurate information about the treatment patients receive underpins the provision of high quality, safe and efficient care. In simple terms, coding is the process through which clinical information recorded in patient notes is translated into coded data and entered onto hospital information systems in a consistent way. The information collected is vitally important for: • • • • • • Enabling good clinical governance Monitoring the provision of health services across the UK Research and the monitoring of health trends and variations Local and national clinical audit and case-mix analysis Providing information to enable effective service planning Ensuring that hospitals are paid for the work they carry out through Payment by Results In renal services, a Payment by Results tariff for dialysis was introduced from April 2011. This means that it is more important than ever that renal services are coded accurately. Renal units will need to ensure they are appropriately reimbursed for the care they provide and there will also be incentives to provide treatments in ways that are proven to have better clinical outcomes. Improved coding will support the development of the National Renal Dataset (NRD) which enables kidney care networks to assess progress against the national clinical strategy. By ensuring information from different networks is accurate and directly comparable, the NRD will help drive improvements in the quality, safety and cost effectiveness of renal services for the benefit of all patients. This document has been produced to support clinicians, coders and information system managers working with renal units to ensure that patients’ diagnoses and treatments are recorded accurately. It contains an introduction to clinical coding and its importance, gives detailed examples of how renal activity should be recorded, and contains useful reference materials and links to further sources. Hugh Cairns Consultant Nephrologist, King’s College Hospital, London Chair, Expert Working Group, NHS Information Centre 04 Beverley Matthews Director NHS Kidney Care Clinical coding and its importance Coded data has many uses, as shown in this diagram from NHS Connecting for Health: Cost analysis Commissioning Epidemiological studies Aetiology studies 1 Treatment effectiveness Outcome measurement Clinical Clinical audit Statistical Health Trends Clinical Indicators Casemix planning Financial flows CHAPTER ONE Clinical Governance The NHS Classifications Service is the definitive source of clinical coding standards and guidance for clinical classifications ICD-10 and OPCS-4: • ICD-10 is the internationally defined set of codes for diagnostic clinical data • OPCS-4 is the UK-specific set of codes for surgical interventions and procedures. 2 Information about a patient’s condition and treatment is recorded on the patient’s notes by the clinician. Coders use these notes, other clinical records, local databases and correspondence (such as discharge letters) to extract the patient’s clinical information and translate this in to the correct codes to record their complaint, diagnosis and treatment. 3 Accurate records are important because they are the primary source of information for all healthcare professionals and may form the basis of a discharge summary to inform the patient’s GP of the treatment provided in hospital. Accurate coding, consistent with national standards, ensures that: • units are able to easily report activity based on the national casemix measures (the classification recognised by commissioners and finance teams) • accurate information related to patient care is reported to commissioners • national reference cost returns (relating to renal) are as accurate as possible. 05 What information should be recorded? 06 4 Clinicians should record all information on a patient’s diagnoses, including any comorbidities (see below), as accurately and completely as possible. To support the clinical coder, the clinician should ensure the information they record: • is clear, detailed and as comprehensive as possible • accurately reflects the care the patient has received • avoids the use of abbreviations where possible • is legible and in pen, if hand-written (not pencil, as this fades). 5 Coders should take into account all the information available about a patient’s episode of care and ensure they are coding accurately and in line with the latest classification version, rules and national standards. 6 Any comorbidity (a condition in addition to the primary disease or disorder) that affects the management of a patient and contributes to an accurate clinical picture of their current episode of care must be recorded within the patient notes. Conditions that relate to an earlier episode but do not have a bearing on the current episode should not be recorded. 7 The UK Renal Registry specifies a list of possible renal comorbidities that must be recorded and this is included at Appendix 3. Using this guide 8 This guide contains an introduction to clinical coding and its importance, gives detailed examples of how renal activity should be recorded, and contains useful reference materials and links to further sources. 9 This document has been written to support accurate clinical coding in renal services, rather than as a precise guide. It does not replace the standards and guidance provided by the NHS Classifications Service. The codes assigned by a clinical coder for an episode of care will depend on the information within the individual patient clinical record, classification version, rules and latest national standards which are available at: 10 The document mainly focuses on the recording and coding of inpatient activity. However, there is a drive towards more detailed reporting of outpatient activity and an example has been included to illustrate this (see Example 4.1). Coding of outpatient activity is also referenced in Appendix 2. 11 Although this document is not focused specifically on the National Renal Dataset (NRD), it recognises the importance and significance of this coding dataset in supporting the implementation of the National Service Framework for Renal Services. It is hoped, as the NRD develops, that future editions of this document will be developed to reflect this. CHAPTER ONE www.connectingforhealth.nhs.uk/systemsandservices/data/clinicalcoding Additional sources of information are detailed in Appendix 4. 07 Recording and coding of renal activity - examples The coding used in the following examples (1.1 – 1.4) is ICD-10 (diagnosis code) and OPCS-4.6 (procedure code). The 2011/12 Local Payment Grouper has been used to generate the Healthcare Resource Groups (known as HRGs, they are groups of clinically similar treatments that use similar levels of resources). The coding of renal activity can be complicated and involves the application of both specific and general national standards, rules and guidance which have not been included in these examples to avoid confusion. The diagnoses and procedures in the tables are for the different elements of care over a period of time and not strictly separated for each attendance/episode of care. The sequencing of ICD-10 codes provided in these tables may change depending on the main condition treated or investigated. It may also be possible that certain procedure codes would either be added in addition or excluded depending if any other procedures were performed concurrently or during the same episode of care or according to certain classification standards. Haemodialysis and Peritoneal dialysis HRG are no longer generated from OPCS procedure codes. Whilst it remains good coding practice to include these codes in the clinical coding of an episode, the dialysis HRG are separately generated from data items in the National Renal Dataset (NRD). 08 Renal dialysis examples Example 1.1: Haemodialysis A 58 year old patient with known chronic renal disease (CKD) secondary to type 2 diabetes progresses to end stage renal disease (ESRD) requiring dialysis. The patient wishes to have haemodialysis (HD) as their first form of renal replacement therapy (RRT). An arteriovenous fistula has already been created (this activity would have previously been recorded in patient notes) but the fistula is not yet ready for use. Therefore a tunnelled line is inserted as a daycase and HD is started in satellite unit. The patient then receives HD as an outpatient three times per week and, after four weeks, they start using the fistula for access and the tunnelled line is removed. Diagnosis Recorded by clinician in patient notes Specific notes on recording ESRD due to type 2 diabetes It is important to log any comorbidities Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned N18.0 End-stage renal disease E11.2D Non-insulin-dependent diabetes mellitus with renal complications CHAPTER TWO Daycare admission for insertion of tunnelled line: N08.3A Glomerular disorders in diabetes mellitus (E10-E14D with common fourth character .2) Procedure/Clinical Intervention Tunnelled line insertion L91.5 Insertion of tunnelled venous catheter This clinical coded activity would generate the following HRG: QZ13A - Vascular Access for Renal Replacement Therapy with CC 09 Initial dialysis session at satellite unit: Recorded in notes and renal system Diagnosis NRD data elements recorded. Those used to derive HRGs in bold ESRD due to type 2 diabetes Cause kidney disease (Renal Care 10 – Type 2 diabetes – 81) Co-morbidity codes at ESRD need completing (Renal Care codes 22 – 44) Blood Tests Relevant blood tests i.e. indicate isolation required Blood test HBV surface antigen (Renal Care 75 - NEG) Blood test HCV antibody (Renal Care 77 - NEG) Blood test HIV (Renal Care 79 - NEG) Procedure/Clinical Haemodialysis via tunnelled Date referred for access (Dialysis 180 – date) Intervention CV line Date of access creation (Dialysis 181 – date) Type of dialysis access (Dialysis 182 – 02 Tunnelled line) Site, side and anaesthetic used (Dialysis 183 – 185) Start date of renal treatment modality (Renal Care 2 – date) Date 1st ESRF treatment (Renal Care code 5 – date) Access used first dialysis (Dialysis 2 – 02 Tunnelled line) Renal treatment modality (Renal Care 1 - 05 Haemodialysis) Treatment supervision code (Renal Care 6 – 03 Satellite unit) Dialysis times per week (Dialysis 23 - 3) Treatment centre code (Dialysis 1 – code) For each session of dialysis the HRG generated would be: LD05A Satellite Haemodialysis/Filtration with access via haemodialysis catheter 19 years and over Subsequent outpatient attendance for removal of tunnelled line: Recorded by clinician in patient notes Procedure/Clinical Intervention Tunnelled line removal Specific notes on recording Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned L91.4 Removal of central venous catheter This clinical coded activity would generate the HRG: QZ13B - Vascular Access for Renal Replacement Therapy without CC Note, as no diagnosis codes are recorded in outpatients no CC 10 Subsequent dialysis session at satellite unit: Recorded in notes and renal system Diagnosis NRD data elements recorded. Those used to derive HRGs in bold ESRD due to type 2 diabetes Cause kidney disease (Renal Care 10 – Type 2 diabetes – 81) Co-morbidity codes at ESRD need completing (Renal Care 22 – 44) Blood Tests Relevant blood tests i.e. indicate isolation required Blood test HBV surface antigen (Renal Care 75 - NEG) Blood test HCV antibody (Renal Care 77 - NEG) Blood test HIV (Renal Care 79 - NEG) Start date of renal treatment modality (Renal Care 2 – date) Date 1st ESRF treatment (Renal Care code 5 – date) Access used first dialysis (Dialysis 2 – 02 Tunnelled line) Renal treatment modality (Renal Care 1 - 05 Haemodialysis) Treatment supervision code (Renal Care 6 – 03 Satellite unit) Dialysis times per week (Dialysis 23 - 3) Treatment centre code (Dialysis 1 – code) CHAPTER TWO Procedure/Clinical Haemodialysis via AV fistula Date referred for access (Dialysis 180 – date) Intervention Date of access creation (Dialysis 181 – date) Type of dialysis access (Dialysis 182 – 03 Arteriovenous fistula (AVF)) Site, side and anaesthetic used (Dialysis 183 – 185) For each session of dialysis the HRG generated would be: LD06A Satellite Haemodialysis/Filtration with access via arteriovenous fistula or graft 19 years and over 11 Example 1.2: Peritoneal Dialysis A 49 year old patient with hypertension and chronic renal failure CKD due to type 2 diabetes progresses to end stage renal disease (ESRD). Patient now requires dialysis. In view of biochemistry, peritoneal dialysis (PD) planned. PD catheter inserted as a daycase. PD started and patient trained to do own exchanges (APD). Machine and fluids delivered to patient’s home. Daycase admission for insertion of PD catheter Recorded by clinicians Specific notes in patient notes on recording Diagnosis Hypertension and ESRD due to type 2 diabetes. It is important to log any comorbidities Examples of ICD-10 (diagnosis) codes assigned and OPCS-4 (procedure) codes assigned I12.0 Hypertensive renal disease with renal failure E11.2D Non-insulin-dependent diabetes mellitus with renal complications N08.3A Glomerular disorders in diabetes mellitus (E10-E14D with common fourth character .2) Procedure/Clinical Intervention Insertion of ambulatory PD catheter, started on PD X41.1 Insertion of ambulatory peritoneI dialysis catheter X40.5 Automated peritoneal dialysis This coded clinical activity would generate the HRG: LA05A - Renal Replacement Peritoneal Dialysis Associated Procedure with CC 12 For each day of PD: Recorded in notes and renal system Diagnosis NRD data elements recorded. Those used to derive HRGs in bold ESRD due to type 2 diabetes Cause kidney disease (Renal Care 10 – Type 2 diabetes – 81) Co-morbidity codes at ESRD need completing (Renal Care 22 – 44) Relevant blood tests i.e. indicate isolation required Procedure/Clinical APD at home Intervention Blood test HBV surface antigen (Renal Care 75 - NEG) Blood test HCV antibody (Renal Care 77 - NEG) Blood test HIV (Renal Care 79 - NEG) Date referred for access (Dialysis 180 – date) Date of access creation (Dialysis 181 – date) Type of dialysis access (Dialysis 182 – 06 PD catheter) Site, side and anaesthetic used (Dialysis 183 – 185) Start date of renal treatment modality (Renal Care 2 – date) Date 1st ESRF treatment (Renal Care code 5 – date) Access used first dialysis (Dialysis 2 – 06 PD catheter) Renal treatment modality (Renal Care 1 - 04 CCPD (6/7 nights/wk)) Treatment supervision code (Renal Care 6 – 01 Home) Dialysis times per week (Dialysis 23 - 7) Treatment centre code (Dialysis 1 – code) CHAPTER TWO Blood Tests For each day of dialysis the HRG generated would be: LD12A Automated Peritoneal Dialysis 19 years and over 13 Example 1.3: Haemodialysis A 53 year old patient known to renal service for one month with small kidneys requires urgent haemodialysis as in-patient due to poor biochemistry. The cause of CKD is unknown. A temporary (non-tunnelled) vascular catheter is inserted on the ward by the renal physicians and haemodialysis is started. Two dialysis sessions are required as an inpatient. The temporary vascular catheter is changed to a tunnelled line on the ward by the renal physicians and the patient is discharged home to continue HD three times per week in main HD unit. Inpatient admission for emergency dialysis: Recorded by clinicians Specific notes in patient notes on recording Diagnosis ESRD with Bilateral Small Kidney Examples of ICD-10 (diagnosis) codes assigned and OPCS-4 (procedure) codes assigned N18.0 End-stage renal disease N27.1 Small kidney, bilateral Procedure/Clinical Intervention Temporary non-tunnelled CV line insertion L91.2 insertion of central venous catheter NEC Y70.5 Temporary operations Haemodialysis X40.3 Haemodialysis NEC Note: X40.3 must be assigned twice here. A code from category X40.- Compensation for renal failure must be assigned every time dialysis is carried out Replacement of temporary with tunnelled line L91.5 Insertion of tunnelled venous catheter This coded clinical activity would generate the following HRG: LA08C Chronic Kidney Disease with length of stay 2 days or more without CC 14 For each session of dialysis while an inpatient: Recorded in notes and renal system NRD data elements recorded. Those used to derive HRGs in bold Diagnosis ESRD unknown cause Cause kidney disease (Renal Care 10 – unknown) Blood Tests Relevant blood tests i.e. indicate isolation required Blood test HBV surface antigen (Renal Care 75 - NEG) Blood test HCV antibody (Renal Care 77 - NEG) Blood test HIV (Renal Care 79 - NEG) Date referred for access (Dialysis 180 – date) Date of access creation (Dialysis 181 – date) Type of dialysis access (Dialysis 182 – 01 Non-tunnelled line) Site, side and anaesthetic used (Dialysis 183 – 185) Start date of renal treatment modality (Renal Care 2 – date) Date 1st ESRF treatment (Renal Care code 5 – date) Access used first dialysis (Dialysis 2 – 01 Non-tunnelled line) Renal treatment modality (Renal Care 1 - 05 Haemodialysis) Treatment supervision code (Renal Care 6 – 02 Hospital) Dialysis times per week (Dialysis 23 - 3) Treatment centre code (Dialysis 1 – code) CHAPTER TWO Procedure/Clinical Haemodialysis via Intervention temporary non-tunnelled CV line For each session of dialysis the HRG generated would be: LD01A Hospital Haemodialysis/Filtration with access via heamodialysis catheter 19 years and over 15 For each subsequent session of dialysis: Recorded in notes and renal system NRD data elements recorded. Those used to derive HRGs in bold Diagnosis ESRD unkown cause Cause kidney disease (Renal Care 10 – unknown) Blood Tests Relevant blood tests i.e. indicate isolation required Blood test HBV surface antigen (Renal Care 75 - NEG) Blood test HCV antibody (Renal Care 77 - NEG) Blood test HIV (Renal Care 79 - NEG) Procedure/Clinical Haemodialysis via tunnelled Date referred for access (Dialysis 180 – date) Intervention CV line Date of access creation (Dialysis 181 – date) Type of dialysis access (Dialysis 182 – 02 Tunnelled line) Site, side and anaesthetic used (Dialysis 183 – 185) Start date of renal treatment modality (Renal Care 2 – date) Date 1st ESRF treatment (Renal Care 5 – date) Access used first dialysis (Dialysis 2 – 02 Tunnelled line) Renal treatment modality (Renal Care 1 - 05 Haemodialysis) Treatment supervision code (Renal Care 6 – 02 Hospital) Dialysis times per week (Dialysis 23 - 3) Treatment centre code (Dialysis 1 – code) For each session of dialysis the HRG generated would be: LD01A Hospital Haemodialysis/Filtration with access via haemodialysis catheter 19 years and over 16 Example 1.4: Haemodialysis A 35 year old patient with ESRD due to a chronic glomerulonephritis (IgA nephropathy) and who is Hepatitis B positive, is already on haemodialysis via brachial fistula. It is noted that the fistula is clotted when in haemodialysis unit and the patient is admitted for fistula declotting in radiology. This was unsuccessful. Tunnelled line was therefore inserted and the patient was discharged home to continue HD in satellite unit (i.e. no change in dialysis site or schedule although access changed). Diagnosis Recorded by clinicians Specific notes in patient notes on recording Examples of ICD-10 (diagnosis) and OPCS-4 (procedure) codes assigned ESRD due to chronic glomerulonephritis (IgA nephropathy) Hep B positive N18.0 End-stage renal disease N03.9 Chronic nephritic syndrome, unspecified N02.8 Recurrent and persistent haematuria, other B16.9 Acute hepatitis B without delta-agent and without hepatic coma Note: ICD-10 code Z22.5 Carrier of viral hepatitis would instead be recorded if the patient is a carrier. Procedure/clinical intervention Patient already on HD via fistula which is clotted Z99.2 Dependence on renal dialysis Unsuccessful fistula declotting in radiology Note: The declotting was unsuccessful, therefore OPCS-4 codes for the intended procedure would not be assigned. The procedure would be coded up to the stage reached at the time of abandonment of the operation or procedure; the intention must not be coded. If the declotting had been successful, information regarding how the fistula was declotted would define the OPCS-4 code. If done under image control a code from category Y53.Approach to organ under image control would also be assigned in a secondary position Insertion of tunnelled line instead L91.5 Insertion of tunnelled venous catheter CHAPTER TWO Daycase admission for AV fistula declotting: T82.8 Other complications of cardiac and vascular prosthetic devices, implants and grafts This coded clinical activity would generate the following HRG: QZ13A - Vascular Access for Renal Replacement Therapy with CC 17 Initial dialysis session at satellite unit: Diagnosis Recorded in notes and renal system NRD data elements recorded. Those used to derive HRGs in bold ESRD due to glomerulonephritis (IgA Cause kidney disease (Renal Care 10 – Glomerulonephritis) Co-morbidity codes at ESRD need completing (Renal Care codes 22 – 44) Hep B positive Blood test HBV surface antigen (Renal Care 75 - POS) Blood test HCV antibody (Renal Care 77 - NEG) Blood test HIV (Renal Care 79 - NEG) nephropathy), Blood Tests Procedure/Clinical Haemodialysis via tunnelled Date referred for access (Dialysis 180 – date) Intervention CV line Date of access creation (Dialysis 181 – date) Type of dialysis access (Dialysis 182 – 02 Tunnelled line) Site, side and anaesthetic used (Dialysis 183 – 185) Start date of renal treatment modality (Renal Care 2 – date) Date 1st ESRF treatment (Renal Care 5 – date) Access used first dialysis (Dialysis 2 – 03 Arteriovenous Fistula) Renal treatment modality (Renal Care 1 - 05 Haemodialysis) Treatment supervision code (Renal Care 6 – 03 Satellite unit) Dialysis times per week (Dialysis 23 - 3) Treatment centre code (Dialysis 1 – code) For each session of dialysis the HRG generated would be: LD07A Satellite Haemodialysis/Filtration with access via haemodialysis catheter with blood borne virus 19 years and over 18 Acute kidney injury Example 2.1: Acute kidney injury A 69 year old patient presents to a district general hospital with acute kidney injury. Investigations reveal likely cause is glomerular. Patient is then transferred to a specialist renal unit at a neighbouring trust, as an inpatient, for investigation. A renal biopsy is performed (percutaneous needle biopsy of lesion of kidney), which reveals crescentic glomerulonephritis. immunology tests show anti GBM disease. The patient is started on haemodialysis via femoral vascular catheter initially and then internal jugular vascular catheter. Daily plasma exchange is started. Ten sessions of plasma exchanges are given. The patient develops pulmonary haemorrhage and requires three days on HDU/ITU for CPAP (continuous positive airways pressure) but is not intubated or ventilated. Respiratory status improves and patient returns to renal ward. There is no evidence of recovery of kidney function. A tunnelled line is inserted. Patient is discharged after 16 day admission. Patient continues HD three times per week in main unit. Diagnosis Recorded by clinicians Specific notes in patient notes on recording Acute kidney injury (acute renal failure) likely glomerular Procedure/Clinical Investigations Intervention Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned N17.9 Acute renal failure, unspecified N05.9 Unspecified nephritic syndrome, unspecified N/A CHAPTER TWO Emergency inpatient admission at a District General Hospital: This coded clinical activity would generate the HRG: LA07C - Acute Kidney Injury without CC 19 Inpatient admission at specialist renal centre: Diagnosis Recorded by clinicians Specific notes in patient notes on recording Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned Acute kidney injury (acute renal failure) due to crescentic glomerulonephritis N17.9 Acute renal failure, unspecified Note: Includes acute crescentic glomerulonephritis Anti GBM disease (Goodpastures syndrome) M31.0D Hypersensitivity angiitis N08.5A Glomerular disorders in systemic connective tissue disorders. N00.7 Diffuse concentric glomerulonephritis Note: Includes goodpastures syndrome Patient develops pulmonary haemorrhage Procedure/Clinical Percutaneous kidney Intervention biopsy Femoral vascatheter Internal jugular vascatheter Haemodialysis Plasma exchange x 10 sessions R04.8 Haemorrhage from other sites in respiratory tract The type of biopsy needs M13.1 Percutaneous needle biopsy of lesion to be recorded e.g. open, of kidney percutaneous, endoscopic L91.2 Insertion of central venous catheter NEC Z98.8 Specified vein of lower limb NEC L91.2 Insertion of central venous catheter NEC Z39.8 Specified vein NEC ICU clinicians should add X40.3 Haemodialysis NEC Note: A code from category X40.- Compensation for renal details of treatments to the critical care dataset in failure must be assigned every time dialysis is carried out. the patient record X32.4 Exchange of plasma (10-19) Transferred to ICU for CPAP Note: OPCS-4 code assignment is dependent on the number Insertion of tunnelled line E85.2 Non-invasive ventilation NEC of sessions performed during the episode of care. L91.5 Insertion of tunnelled venous catheter This coded clinical activity would generate the HRG: LB05B - Kidney Intermediate, Endoscopic and Percutaneous Interventions 19 years and over with Intermediate CC Each day on ICU/HDU would generate an unbundled critical care HRG: XC05Z Adult Critical Care - 2 Organs Supported (kidneys and lungs) Note: As the NRD is only for chronic kidney disease, patients with acute kidney injury requiring dialysis do not generate any HRG specific to this dialysis as is the case for patients with chronic kidney disease. In this example, once the patient has been accepted as a chronic kidney disease patient the activity would be recorded in the NRD. 20 For each subsequent session of dialysis: Recorded in notes and renal system NRD data elements recorded. Those used to derive HRGs in bold Diagnosis ESRD due to crescentic glomerulonephritis Cause kidney disease (Renal Care 10 – Glomerulonephritis) Co-morbidity codes at ESRD need completing (Renal Care codes 22 – 44) Blood Tests Relevant blood tests i.e. indicate isolation required Blood test HBV surface antigen (Renal Care 75 - NEG) Blood test HCV antibody (Renal Care 77 - NEG) Blood test HIV (Renal Care 79 - NEG) Start date of renal treatment modality (Renal Care 2 – date) Date 1st ESRF treatment (Renal Care 5 – date) Access used first dialysis (Dialysis 2 – 02 Tunnelled line) Renal treatment modality (Renal Care 1 - 05 Haemodialysis) Treatment supervision code (Renal Care 6 – 02 Hospital) Dialysis times per week (Dialysis 23 - 3) Treatment centre code (Dialysis 1 – code) CHAPTER TWO Procedure/Clinical Haemodialysis via tunnelled Date referred for access (Dialysis 180 – date) Intervention CV line Date of access creation (Dialysis 181 – date) Type of dialysis access (Dialysis 182 – 02 Tunnelled line) Site, side and anaesthetic used (Dialysis 183 – 185) For each session of dialysis the HRG generated would be: LD01A Hospital Haemodialysis/Filtration with access via heamodialysis catheter 19 years and over 21 Example 2.2: Diverticulitis with a generalised peritonitis A 48 year old patient presents to A&E with an acute abdomen injury – this is shown to be due to diverticulitis with a generalised peritonitis. The patient is admitted to a surgical ward. A laparotomy is performed at which a colectomy and a defunctioning colostomy are performed. Following this, the patient is on ITU for five days and develops an acute kidney injury requiring renal support due to acute renal failure. A tunnelled line is inserted. The patient has three days of haemofiltration and is then transferred to the renal ward for continued intermittent haemodialysis. Ten sessions of haemodialysis are given. The patient is an inpatient for a further ten days and becomes dialysis independent two days before discharge. Discharged home for follow up by surgeons and in renal outpatients. Patient does not require continued dialysis. Emergency inpatient admission: Diagnosis Recorded by clinician Specific notes in patient notes on recording by clinical coder Examples of ICD-10 (diagnosis) and OPCS-4 (procedure) codes assigned Acute abdomen due to Diverticulitis with a generalised peritonitis. K57.8 Diverticular disease of intestine, part unspecified, with perforation or abscess Develops acute kidney injury (acute renal failure) N17.9 Acute renal failure, unspecified Procedure/clinical Colectomy and a ICU clinicians should add H11.5 Colectomy and exteriorisation of bowel NEC intervention defunctioning colostomy details of treatments to the critical care dataset in H15.1 Loop colostomy the patient record Transferred to ICU for post-surgical recovery Any treatment provided by L91.5 Insertion of tunnelled venous catheter renal clinicians during stay in ICU would be logged in patient record This clinical coded activity would generate the HRG: FZ08A - Complex Large Intestine Procedures with Major CC Each day on ICU/HDU would generate an unbundled critical care HRG: XC06Z Adult Critical Care - 1 Organ Supported (kidneys) Note: As the NRD is only for chronic kidney disease patients with acute kidney injury requiring dialysis do not generate any HRG specific to this dialysis as is the case for patients with chronic kidney disease. 22 Example 2.3: thrombotic thrombocytopenic purpura (TTP) A 50 year old patients presents to haematology with a thrombotic thrombocytopenic purpura (TTP). Kidney function is normal but the patient requires daily plasma exchange for 10 days. This is performed on the renal ward although the patient remains an inpatient under haematology. After 10 days there is an improvement in platelet count and patient discharged home for haematological follow up. Diagnosis Recorded by clinicians Specific notes in patient notes on recording Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned Thrombotic thrombocytopenic purpura (TTP) M31.1 Thrombotic microangiopathy Procedure/Clinical Kidney function tests Intervention Plasma exchange X 10 sessions All tests requested should X32.4 Exchange of plasma (10-19) be recorded even though Note: OPCS-4 code assignment is dependent on the number they may not be clinically of sessions performed during the episode of care. coded This clinical coded activity would generate HRG: SA15Z - Plasma Exchanges 10 to 19 CHAPTER TWO Inpatient admission for plasma exchanges: Even though renal unit facility is used as no dialysis has taken place no information would be recorded in the NRD 23 Nephrology examples Example 3.1: Nephrotic syndrome A 26 year old patient with nephrotic syndrome with significant localised oedema. Patient is admitted for fluid management and a renal biopsy (percutaneous needle biopsy). The renal biopsy confirms membranous nephropathy. The patient requires 3 days on diuretics and ACEi and warfarin after which they are discharged. Inpatient admission for fluid management: Diagnosis Recorded by clinicians Specific notes in patient notes on recording Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned Nephrotic syndrome with significant oedema N04.8 Nephrotic syndrome, other R60.0 Localised oedema Procedure/Clinical Fluid management and The type of biopsy needs M13.1 Percutaneous needle biopsy of kidney Intervention percutaneous needle to be recorded e.g. open, biopsy of kidney percutaneous, endoscopic Y53.9 Approach to organ under image control Note: A code from category Y53.- is assigned in a secondary position, if image control has been used; if the method of image control is unspecified, Y53.9 is assigned This clinical coded activity would generate the HRG: LB05A - Kidney Intermediate, Endoscopic and Percutaneous Interventions 19 years and over with Major CC Example 3.2: Brachial PTFE graft insertion A 44 year old patient with known chronic kidney disease (not end stage), is admitted for a brachial PTFE graft insertion. The post operative period is complicated by significant arm swelling and wound infection and the patient’s diabetes becomes poorly controlled. The patient remains an inpatient for five days but is not dialysed and is discharged home for continued follow up in the Pre dialysis / Low clearance clinic. Inpatient admission: Diagnosis Recorded by clinicians Specific notes in patient notes on recording Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned CKD N03.9 Chronic nephritic syndrome, unspecified Post-op significant arm swelling and wound infection T81.4 Infection following a procedure, not elsewhere classified R22.3 Localized swelling, mass and lump, upper limb Note: If the swelling was due to the wound infection R22.3 would not be coded. Procedure/Clinical Brachial PTFE graft Intervention insertion L74.1 Insertion of arteriorvenous prosthesis Z36.4 Brachial artery This clinical coded activity would generate the HRG: LA09F General Renal Disorders with length of stay two days or more with Intermediate CC 24 Kidney Transplantation examples Example 4.1: Pre and post kidney transplantation care at non transplanting centre, transplant at specialist transplant centre A 30 year old patient with ESRD due to type I diabetes with retinopathy and previous BK (below knee) amputation for PVD (peripheral vascular disease). Patient is already on automated peritoneal dialysis and now has a live donor transplant workup as an outpatient within a non transplanting renal unit and four sessions of plasma exchange due to ABO incompatibility. The patient is transferred to a transplanting centre for live donor kidney transplant from wife. The transplant is successful and the patient is discharged home after six days. Regular outpatient follow-ups at originating renal unit (non transplanting). Outpatient attendance for pre-transplantation work-up: Procedure/Clinical Transplant work-up Intervention Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned It needs to be flagged that M17.2 Pre-transplantation of kidney the workup has been carried work-up - recipient so that the coder can pick this activity up This clinical coded activity would generate the HRG: LA12A Kidney pre-transplantation work-up of recipient 19 years and over CHAPTER TWO Recorded by clinicians Specific notes on in patient notes recording For each of the four daycase admissions for plasma exchange: Diagnosis Recorded by clinicians Specific notes on in patient notes recording Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned ESRF due to type I diabetes with retinopathy N18.0 End-stage renal disease E10.2D Insulin-dependent diabetes mellitus with renal complications N08.3A Glomerular disorders in diabetes mellitus E10.3D Insulin-dependent diabetes mellitus with ophthalmic complications H36.0A Diabetic retinopathy Z99.2 Dependence on renal dialysis Procedure/Clinical Plasma exchange Intervention X32.2 exchanges of plasma (single) This clinical coded activity would generate the HRG: SA13Z Single Plasma Exchange, Leucophoresis or Red Cell Exchange 25 Inpatient admission at specialist centre for kidney transplant: Diagnosis Recorded by clinicians Specific notes on in patient notes recording Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned ESRF due to type I diabetes with retinopathy N18.0 End-stage renal disease E10.2D Insulin-dependent diabetes mellitus with renal complications N08.3A Glomerular disorders in diabetes mellitus E10.3D Insulin-dependent diabetes mellitus with ophthalmic complications H36.0A Diabetic retinopathy Z99.2 Dependence on renal dialysis Procedure/Clinical Kidney transplant from Intervention live donor M01.2 Allotrasplantation of kidney from live donor This clinical coded activity would generate the HRG: LA03A Kidney Transplant 19 years and over from Live donor Outpatient attendance for post-transplantation follow-up: Recorded by clinicians Specific notes on in patient notes recording Procedure/Clinical Post- transplant Intervention Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned It needs to be flagged that M17.4 Post-transplantation of kidney the post-transplant examination - recipient follow-ups have been carried out so that the coder can pick this activity up. Each post-transplant visit should be recorded and coded separately This clinical coded activity would generate the HRG: LA13A examination for post-transplantation of Kidney of recipient 19 years and over Note: The donor would generate own outpatient attendances and inpatient admission which would be coded and generate HRGs accordingly e.g. LA11Z Kidney pre-transplantation work-up of live donor, LB46Z Live Donation of Kidney and LA14Z Examination for post-transplantation of Kidney of live donor 26 Recording and coding activity within paediatric renal units Introduction Many of the examples shown on pages 8 to 26 (specifically related to adults) are also applicable to children. The presentations and complications of renal disease such as anaemia, renal osteodystrophy and hypertension are similar and many of the operative procedures are the same. However the co-morbidities in children are very different. Cardiovascular disease, cerebro-vascular disease and even diabetes are rare, but other co-morbidities are common. Examples of paediatric specific co-morbidities are shown below. Some specific examples of recording and coding in paediatric renal units are shown on pages 28 to 33. Congenital abnormalities For example a child may have congenital heart disease and develop acute renal failure as part of that. Many children have renal disease as part of a syndrome e.g. Jeune’s syndrome, mitochondrial cytopathies, VATER syndrome, ARC syndrome etc. Adverse peri-natal factors For example prematurity, fetal distress and other adverse peri-natal factors may cause both neurological problems and renal problems. Therefore cerebral palsy, hypoxic ischaemic encephalopathy neuro-developmental delay and renal failure are commonly co-existent. Those who have had renal failure in utero have lungs that do not develop normally and so may have broncho-pulmonary dysplasia. CHAPTER THREE Paediatric renal co-morbidities Failure to thrive/growth failure A fundamental difference between adults and children is that children are growing. Renal failure interferes with that normal growth. Children with renal disease often have failure to thrive, growth failure, feeding difficulties, nasograstric and gastrostomy feeding and gastro-oesophageal reflux require nasogastric and gastrostomy feeding. Associated urological problems Children with renal disease much more commonly have underlying urological abnormalities than their adult counterparts and posterior urethral valves, nephrectomy, mitrofanoff, neuropathic bladder. Self intermittent catheterisation urodynamics are all common. Childhood illness Children with renal disease are more than usually prone to common intercurrent infections and are often more seriously ill with them, for example bronchiolitis , gastroenteritis and chickenpox can be life threatening in children. 27 Recording and coding activity within paediatric renal units - some specific examples The coding used in the following examples (1 - 3) is ICD-10 (diagnosis code) and OPCS-4.6 (procedure code). The 2011/12 Local Payment Grouper has been used to generate the HRGs. The coding of renal activity can be complicated and involves the application of both specific and general national standards, rules and guidance which have not been included in these examples to avoid confusion. The diagnoses and procedures in the tables are for the different elements of care over a period of time and not strictly separated for each attendance/episode of care. The sequencing of ICD-10 codes provided in these tables may change depending on the main condition treated or investigated. It may also be possible that certain procedure codes would either be added or excluded depending if any other procedures were performed concurrently or during the same episode of care or according to certain classification standards. In example 1, the relevant National Renal Dataset (NRD) coding is also shown where dialysis has taken place (as NRD coding for dialysis is now a national requirement in order to generate appropriate dialysis HRGs – from 1st April 2011). It should be noted however that the paediatric dialysis HRGs are not yet within the scope of PbR so locally agreed pricing continues to apply in this area. Example 1: Chronic renal failure and dialysis in an infant Baby born at 2.5 kg and 35 weeks gestation with anternatal hydronephrosis, oligohydramnios and suspected urinary tract obstruction. Postnatally required ventilation for bronchopulmonary dysplasia for 48 hours. MCUG confirmed posterior urethral valves and bilateral reflux. Despite valve resection, urinary output was poor and renal function deteriorated to chronic renal failure so a peritoneal dialysis catheter was inserted at five days. Required acute 24 hour dialysis for several weeks before able to tolerate volumes required for overnight cycling dialysis via a cycling machine. Vomiting on nasogastric feeding. Ph studies revealed severe gastro-oesophageal reflux and so gastrostomy and fundoplication performed. Temporary vascular catheter (non tunnelled) inserted and interim haemodialysis (three sessions) delivered whilst abdomen healed. 28 1.1 Inpatient admission from birth: Diagnosis Recorded by clinicians Specific notes in patient notes on recording Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned Prematurity (2.5kg at 35 weeks) P07.3 Other preterm infants Z38.0 singleton, born in hospital Bronchopulmonary dysplasia P27.1 Bronchopulmonary dysplasia originating in the perinatal period Posterior urethral valves and bilateral congenital vesico-ureteric reflux Q64.3 Other atresia and stenosis of urethra and bladder neck Q62.7 Congenital vesico-uretero-renal reflux Renal dysplasia with chronic renal failure Q61.4 Renal dysplasia Gastro- oesophageal reflux Procedure/Clinical Intermittent positive Intervention pressure ventilation Endoscopic destruction Neonatologists should add of urethral valves details of treatments to the neonatal critical care Insertion of PD catheter dataset in the patient and continuous cycling record peritoneal dialsysis Any treatment provided Insertion of temporary by renal clinician or gastrostomy surgeons during stay in neonatal critical care Fundoplication using should be logged in abdominal approach patient record Insertion of temporary non-tunnelled vascular catheter 3 session of haemodialysis K21.9 Gastro-oesophageal reflux disease without oesophagitis E85.2 Non-invasive ventilation NEC Note: Includes intermittent positive pressure ventilation M76.5 Endoscopic destruction of urethral valves CHAPTER THREE N18.9 Chronic renal failure, unspecified X42.1 Insertion of temporary peritoneal dialysis catheter X40.2 Peritoneal dialysis Note: A code from category X40 - Compensation for renal failure must be assigned every time dialysis is carried out G34.2 Creation of temporary gastrostomy G24.3 Antireflux fundoplication using abdominal approach L91.2 Insertion of central venous catheter NEC Y70.5 Temporary operations X40.3 Haemodialysis NEC Note: X40.3 must be assigned 3 times here. A code from category X40 - Compensation for renal failure must be assigned every time dialysis is carried out This coded clinical activity would generate the HRG: FZ05C Major Stomach or Duodenum Procedures 1 year and under Each day on NICU/HDU/SCBU would generate an unbundled critical care HRG: XA01Z Neonatal Critical Care Intensive Care 29 1.2 for each session of peritoneal dialysis: recording of relevant renal dataset codes is now required (from 1.4.11), to generate the correct dialysis HRG. It should be noted however that the paediatric dialysis HRGs are not yet within the scope of PbR so locally agreed pricing continues to apply in this area: Recorded in notes and renal system NRD data elements recorded. Those used to derive HRGs in bold Diagnosis ESRD with renal dysplasia Cause kidney disease (Renal Care 10 – renal Dysplasia) Comorbidity codes at ESRD need completing (Renal Care 22 - 44) Blood Tests Relevant blood tests i.e. indicate isolation required Blood test HBV surface antigen (Renal Care 75 - NEG) Blood test HCV antibody (Renal Care 77 - NEG) Blood test HIV (Renal Care 79 - NEG) Procedure/Clinical Haemodialysis via Intervention temporary non-tunnelled CV line Date referred for access (Dialysis 180 – date) Date of access creation (Dialysis 181 – date) Type of dialysis access (Dialysis 182 – 07 PD catheter temp) Site, side and anaesthetic used (Dialysis 183 – 185) Start date of renal treatment modality (Renal Care 2 – date) Date 1st ESRF treatment (Renal Care code 5 – date) Access used first dialysis (Dialysis 2 – 07 PD catheter temp) Renal treatment modality (Renal Care 1 - 03 CCPD (6/7 nights/wk)) Treatment supervision code (Renal Care 6 – 02 Hospital) Dialysis times per week (Dialysis 23 - 3) Treatment centre code (Dialysis 1 – code) For each session of dialysis the HRG generated would be: LD12B automated Peritoneal Dialysis 18 years and under 30 Recorded in notes and renal system NRD data elements recorded. Those used to derive HRGs in bold Diagnosis ESRD with renal dysplasia Cause kidney disease (Renal Care 10 – Renal dysplasia) Comorbidity codes at ESRD need completing (Renal Care 22 - 44) Blood Tests Relevant blood tests i.e. indicate isolation required Blood test HBV surface antigen (Renal Care 75 - NEG) Blood test HCV antibody (Renal Care 77 - NEG) Blood test HIV (Renal Care 79 - NEG) Procedure/Clinical Hospital haemodialysis Intervention Date referr for access (Dialysis 180 – date) Date of access creation (Dialysis 181 – date) Type of dialysis access (Dialysis 182 – 01 Non-tunnelled line) Site, side and anaesthetic used (Dialysis 183 – 185) Start date of renal treatment modality (Renal Care 2 – date) Date 1st ESRF treatment (Renal Care code 5 – date) Access used first dialysis (Dialysis 2 – 07 PD catheter temp) Renal treatment modality (Renal Care 1 - 05 Haemodialysis) Treatment supervision code (Renal Care 6 – 02 Hospital) Dialysis times per week (Dialysis 23 - 3) Treatment centre code (Dialysis 1 – code) CHAPTER THREE 1.3 For each session of haemodialysis: recording of relevant renal dataset codes is now required (from 1.4.11), to generate the correct dialysis HRG. It should be noted however that the paediatric dialysis HRGs are not yet within the scope of PbR so locally agreed pricing continues to apply in this area: For each session of dialysis the HRG generated would be: LD01B Hospital Haemodialysis/Filtration with access via haemodialysis catheter 18 years and under 31 Example 2: Acute renal failure Six month old child with known Down’s syndrome was admitted with a chest infection requiring oxygen via Vapotherm. Respiratory syncytial virus (RSV) confirmed. Noted to have low platelets, rising creatinine, high LDH and low complement. Diagnosis of atypical haemolytic uremic syndrome made. Non tunnelled vascular line inserted and started on daily plasma exchange. Genetic mutation studies pending. Had a grand mal seizure and was severely hypertensive. MRI inconclusive about cerebral involvement. Received 10 days plasma exchange before going into remission. Discharged and returns three times weekly for plasma exchange. Inpatient admission: Diagnosis Recorded by clinicians Specific notes in patient notes on recording Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned Acute renal failure due to atypical haemolytic uraemic syndrome N17.9 Acute renal failure, unspecified D59.3 Haemolytic-uraemic syndrome Q90.9 Down’s syndrome, unspecified Down’s syndrome J21.0 Acute bronchiolitis due to respiratory syncytial virus Grand mal seizure G40.6 Grand mal seizures, unspecified (with or without petit mal) Hypertension with hypertensive encephalopathy Procedure/Clinical Oxygen therapy Intervention 32 I67.4 Hypertensive encephalopathy I10.X Essential primary hypertension Intensivists would add details of treatments to the paediatric critical care dataset in the patient record Insertion of non-tunnelled vascatheter Any treatment provided by renal clinician during stay in paediatric critical care should be logged in patient record L91.2 Insertion of central venous catheter NEC Plasma exchanges X 10 sessions Number of plasma X32.4 exchange of plasma exchange sessions during Note: OPCS-4 code assignment is dependent on the number the episode needs to be of sessions performed during the episode of care recorded MRI scan The location of the MRI U21.1 Magentic resonance imaging NEC scan needs to be specified Y98.1 Radiology of one body area to provide a more specific (or <20 minutes) OPCS-4.6 code This coded clinical activity would generate the following HRGs: SA15Z Plasma Exchanges 10 to 19 RA01Z Magnetic Resonance Imaging Scan, one area, no contrast Each day on PICU or HDU would generate an unbundled critical care HRG: XB05Z Paediatric Critical Care Intensive Care Basic Note: The National Renal Dataset (NRD) only covers activity for patients with chronic kidney disease. Therefore, as this patient has acute kidney injury, any dialysis undertaken would not be recorded in the NRD and therefore no additional HRGs specific to the renal dialysis for acute kidney injury are generated. Diagnosis Recorded by clinicians Specific notes in patient notes on recording Examples of ICD-10 (diagnosis) codes assigned OPCS-4 (procedure) codes assigned Gastroenteritis (rotovirus positive) A08.0 Rotoviral enteritis Athrogryposis Q68.8 Other specified congenital musculoskeletal deformities Cholestasis K83.1 Obstruction of the bile duct Fanconi (-de Toni) (- debre) syndrome E72.0 Disorders of amino-acid transport Note: Include Fanconi syndrome Severe dehydration with hypokalaemia and acidosis E86.X Volume depletion E87.6 Acidosis Rib fractures to two ribs S22.40 Multiple fracture of ribs, closed X59.9 Exposure to unspecified factor, unspecified place Gastrostomy in situ Z93.1 Gastrostomy status Procedure/Clinical IV bolus fluids Intervention CHAPTER THREE Example 3: General nephrology A baby with known arthrogryposis, cholestasis and renal syndrome (Fanconi (ARC) syndrome) was admitted with gastroenteritis (Rotavirus positive). He was found to be severely dehydrated, hypokalemic and acidotic, and required intravenous resuscitation. Although established back on gastrostomy feeds and his usual electrolyte supplements, he remained unsettled with respiratory difficulty and was found to have two rib fractures but no evidence of chest infection. He settled with analgesia and discharged after 10 days. Inpatient admission: Intensivists should add N/A details of treatments to the paediatric critical care dataset in the patient record This coded clinical activity would generate the following HRG: PA21A Infectious and Non-Infectious Gastroenteritis with CC Each day on PICU or HDU would generate an unbundled critical care HRG: XB06Z Paediatric Critical Care High Dependency Care Advanced 33 Appendix 1: Guide to common renal terms/acronyms AKD AKI Advanced kidney disease Acute Kidney injury APKD Adult polycystic kidney disease APD ARF AVF Assisted peritoneal dialysis Acute renal failure Arteriovenous fistula CAPD CKD CRF DM DRIL Continuous ambulatory peritoneal dialysis Chronic kidney disease Chronic renal failure Diabetes Mellitus Distal revascularisation – interval ligation ERF ESKD ESRD Established renal failure End stage kidney disease End stage renal disease ESRF FSGN GN HB End stage renal failure Focal and segmental glomerulonephritis Glomerunephritis Heart beating Haemodiafiltration Haemofiltration HD Haemodialysis HHD Home haemodialysis Kidney transplant 34 See CKD below Occurs when there is a rapid loss of renal function. Formerly known as acute renal failure (ARF) inherited kidney disease leading to cyst development and deteriorating kidney function As PD - machine assisted, often done at night See AKI above Surgical anastomosis between artery and vein, used for haemodialysis As PD - regular exchanges throughout the day Loss of renal function over a period of months or years. see CKD above frequent comorbidity with renal disease Alters the flow into or around a fistula to increase flow to distal arm see ESRD below see ESRD below ESRD refers to kidney function that has deteriorated to a level where renal replacement therapy (RRT) treatment is required to sustain life. ESRD is the main internationally accepted term but is also synonymous with the terms end stage renal failure (ESRF); end stage kidney disease (ESKD) and established renal failure (ERF) see ESRD above glomerular renal disease glomerular renal disease status of deceased kidney donor The combination of haemodialysis and haemofiltration either simultaneously or sequentially Renal replacement therapy similar to haemodialysis which is used almost exclusively in the intensive care setting. Thus, it is almost always used for acute renal failure. It is a slow continuous therapy in which sessions usually last between 12 to 24 hours and are usually performed daily treatment for patients with ESRD. A method for removing waste products, as well as free water from the blood Haemodialysis treatment that happens in people's own homes. Home haemodialysis patients cease to be classed as such if they need longer than two weeks of hospital dialysis when not an in-patient The organ transplant of a kidney into a patient with ESRD. Kidney transplantation is typically classified as deceased-donor (cadaveric) or living-donor transplantation depending on the source of the donor organ. Immunosuppressant drugs are used to suppress the immune system from rejecting the donor kidney Nephropathy NHB PKD PD Non heart beating Polycystic kidney disease Peritoneal dialysis PE Plasma exchange PTFE (artificial vein graft) Polytetrafluorethylene RRT Renal replacement therapy Renal transplant Satellite dialysis unit TX Transplant status of kidney donor glomerular renal disease Concerns the diagnosis and treatment of kidney diseases and other general diseases which have an effect on the kidney Degeneration of the kidney (damage or disease) status of deceased kidney donor as APKD Treatment for patients with ESRD. A method by which fluids and waste products are exchanged from the blood across the peritoneal membrane lining the inside of the abdomen Removal of a volume of blood plasma in an extracorporeal circuit Artificial vein graft - made from various materials including polytetrafluorethylene (PTFE) and bovine vein term used to encompass life-supporting treatments for ESRD. It includes • haemodialysis • peritoneal dialysis • haemofiltration • transplantation See kidney transplant Linked to a main renal centre, not autonomous for medical decisions, provide chronic outpatient maintenance haemodialysis but with no acute or in-patient nephrology beds on site renal transplant (other organs may also be transplanted in conjunction with the kidney) APPENDIX 1 LR Living related MCGN Mesangiocapillary glomerulonephritis Nephrology 35 Appendix 2: Renal services mapping common renal procedures to OPCS-4 codes Renal category sub category procedure OPCS-4 code(s) OPCS-4 code description (with notes added where applicable that are not OPCS-4 classification related) Kidney transplant Kidney insertion Recipient work up (usually done in outpatients) Renal transplant cadaveric heart beating donor (done as non elective only) M17.2 M01.4 Renal transplant cadaveric non heart beating donor (done as non elective only) M01.5 Renal transplant live donor (done as elective only) M01.2 Recipient follow ups - up to 3 months post kidney transplant (outpatients) other open operations on kidney M17.4 M08.4 or M01.1 or M01.3 or M01.8 or M01.9 Pre-transplantation of kidney work-up - recipient Allotransplantation of kidney from cadaver heart beating note: this procedure is carried out as NON ELECTIVE only Allotransplantation of kidney from cadaver heart non-beating note: this procedure is carried out as NON ELECTIVE only Allotransplantation of kidney from live donor note: this procedure is carried out as ELECTIVE only Post-transplantation of kidney examination - recipient Exploration of transplanted kidney Autotransplantation of kidney (note: very rare procedure) Allotransplantation of kidney from cadaver NEC Other specified transplantation of kidney Unspecified transplantation of kidney Kidney donor screening (usually done in outpatients) M17.1 Live donor work up (usually done in outpatients) M17.3 Live donor nephrectomy/donation of kidney – open Live donor nephrectomy/donation of kidney – hand assisted laparoscopic procedure X45.1 X45.1 plus Y75.2 or Y75.4 M02.6 M02.1 or M02.2 or M02.3 or M02.4 or M02.5 or M02.8 or M02.9 or M03.- or M04.2 M17.5 Live kidney donor screening note: normally carried out in outpatients Pre-transplantation of kidney work-up - live donor note: normally carried out in outpatients Donation of kidney NEC Donation of kidney Laparoscopic approach to abdominal cavity NEC Hand assisted minimal access approach to abdominal cavity Excision of rejected transplanted kidney Nephrectomy and excision of perirenal tissue Nephroureterectomy NEC Bilateral nephrectomy Excision of horseshoe kidney Nephrectomy NEC Other specified total excision of kidney Unspecified total excision of kidney Partial excision of kidney Open excision of lesion of kidney NEC Post-transplantation of kidney examination - live donor M13.1 plus Y53.M13.1 plus Y53.- Percutaneous needle biopsy of lesion of kidney Approach to organ under image control Percutaneous needle biopsy of lesion of kidney Approach to organ under image control kidney removal Transplant nephrectomy Other open excisions of Kidney (not for donation) Live donor follow ups - up to 3 months post donation (outpatients) percutaneous biopsy percutaneous biopsy needle biopsy of native kidney needle biopsy of transplant kidney 36 APPENDIX 2 Note: The OPCS-4 codes provided below are correct according to the procedure description in the table. Where a number of possibilities exist because the procedure description is too broad and/or non-specific; codes have not been provided. Where codes have been provided we recommend caution is exercised as other more appropriate codes may exist or additional subsidiary codes may be added depending on the actual procedure description recorded. Site codes have not been included. The codes assigned by a clinical coder for an episode of care will depend on the information within the individual patient clinical record and/or the local renal database; the classification version, rules and latest national standards and guidance. 37 Appendix 2: Renal services mapping - common renal procedures to OPCS-4 codes Renal category sub category procedure OPCS-4 code(s) OPCS-4 code description (with notes added where applicable that are not OPCS-4 classification related) Kidney transplant Kidney insertion Recipient work up (usually done in outpatients) Renal transplant cadaveric heart beating donor (done as non elective only) M17.2 M01.4 Renal transplant cadaveric non heart beating donor (done as non elective only) M01.5 Renal transplant live donor (done as elective only) M01.2 Recipient follow ups - up to 3 months post kidney transplant (outpatients) other open operations on kidney M17.4 M08.4 or M01.1 or M01.3 or M01.8 or M01.9 Pre-transplantation of kidney work-up - recipient Allotransplantation of kidney from cadaver heart beating note: this procedure is carried out as NON ELECTIVE only Allotransplantation of kidney from cadaver heart non-beating note: this procedure is carried out as NON ELECTIVE only Allotransplantation of kidney from live donor note: this procedure is carried out as ELECTIVE only Post-transplantation of kidney examination - recipient Exploration of transplanted kidney Autotransplantation of kidney (note: very rare procedure) Allotransplantation of kidney from cadaver NEC Other specified transplantation of kidney Unspecified transplantation of kidney Kidney donor screening (usually done in outpatients) M17.1 Live donor work up (usually done in outpatients) M17.3 Live donor nephrectomy/donation of kidney – open Live donor nephrectomy/donation of kidney – hand assisted laparoscopic procedure X45.1 X45.1 plus Y75.2 or Y75.4 M02.6 M02.1 or M02.2 or M02.3 or M02.4 or M02.5 or M02.8 or M02.9 or M03.- or M04.2 M17.5 Live kidney donor screening note: normally carried out in outpatients Pre-transplantation of kidney work-up - live donor note: normally carried out in outpatients Donation of kidney NEC Donation of kidney Laparoscopic approach to abdominal cavity NEC Hand assisted minimal access approach to abdominal cavity Excision of rejected transplanted kidney Nephrectomy and excision of perirenal tissue Nephroureterectomy NEC Bilateral nephrectomy Excision of horseshoe kidney Nephrectomy NEC Other specified total excision of kidney Unspecified total excision of kidney Partial excision of kidney Open excision of lesion of kidney NEC Post-transplantation of kidney examination - live donor M13.1 plus Y53.M13.1 plus Y53.- Percutaneous needle biopsy of lesion of kidney Approach to organ under image control Percutaneous needle biopsy of lesion of kidney Approach to organ under image control kidney removal Transplant nephrectomy Other open excisions of Kidney (not for donation) Live donor follow ups - up to 3 months post donation (outpatients) percutaneous biopsy percutaneous biopsy needle biopsy of native kidney needle biopsy of transplant kidney 36 APPENDIX 2 Note: The OPCS-4 codes provided below are correct according to the procedure description in the table. Where a number of possibilities exist because the procedure description is too broad and/or non-specific; codes have not been provided. Where codes have been provided we recommend caution is exercised as other more appropriate codes may exist or additional subsidiary codes may be added depending on the actual procedure description recorded. Site codes have not been included. The codes assigned by a clinical coder for an episode of care will depend on the information within the individual patient clinical record and/or the local renal database; the classification version, rules and latest national standards and guidance. 37 Appendix 3: UK Renal Registry List of possible adult renal comorbidities • Amputation for peripheral vascular disease • Angina • Angioplasty, stenting, vascular graft (all non coronary) • Arterial hypertension • Cerebrovascular disease • Chronic obstructive pulmonary disease • Claudication • Diabetes mellitus (not causing ESRD) • Ischaemic / neuropathic ulcers • Liver disease • Malignancy • Smoking • Previous Coronary Artery Bypass Graft (CABG) or coronary angioplasty • Previous episode of heart failure • Previous Myocardial Infarction (MI) within last three months • Previous Myocardial Infarction (MI) longer than three months ago Definitions for each of the above comorbidities can be found section B:5 of the 2009 Renal Registry report at: www.renalreg.com/Report-Area/Report%202009/Appen-B_Renal09_web.pdf 40 Appendix 4: Additional sources of information Development of new HRGs and Tariffs for renal dialysis Department of Health PbR website contains information on the development of new HRGs and tariffs for renal dialysis: http://www.dh.gov.uk/en/Managingyourorganisation/NHSFinancialReforms/DH_105080 The Casemix Service, NHS Information Centre for Health and Social Care NHS Information Centre for Health and Social Care The Casemix Service designs and refines classifications that are used by the English NHS to describe healthcare activity. These classifications underpin PbR from costing through to payment, and support local commissioning and performance management. http://www.ic.nhs.uk/services/the-casemix-service The National Renal Dataset http://www.ic.nhs.uk/services/datasets/dataset-list/renal APPENDIX 3/4 Clinical coding standards and guidance The NHS Classifications Service within Data Standards and Products Directorate, part of the Technology Office, is the definitive source of clinical coding standards and guidance for clinical classifications ICD-10 and OPCS-4. http://www.connectingforhealth.nhs.uk/systemsandservices/data/clinicalcoding/ UK Renal Registry A resource for the development of patient care in renal disease. http://www.renalreg.com/ 41
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