Europe in Action 2015
‘Families and Self-Advocacy’
21 - 22 May 2015
Rome, Italy
Inclusion Europe and ANFFAS are organising
the Europe in Action conference.
The conference will talk about self-advocacy and families.
Self-advocates are people with disabilities who speak up for themselves.
The conference will also talk about the United Nations Convention
on the Rights of Persons with Disabilities. In short, this is the UN CRPD.
The UN CRPD is very important for the lives
of people with intellectual disabilities.
The conference will talk about the personal
and political side of self-advocacy.
The conference will deal with many different topics.
Some of the topics are legal capacity, education, health,
community living, political participation and accessibility.
www.EuropeInAction.org
Europe in Action Programme
Thursday, 21 May 2015
9.00Registration
10.30 Opening Plenary Session - Rooms Smeraldo & Zaffiro
Welcome
Roberto Speziale - Anffas Onlus Italy
Maureen Piggot - Inclusion Europe
I do it my way! The personal dimension
of self-advocacy
Senada Halilčević- European Platform of Self-Advocates
Self-Advocacy - Past and future paths in Italy
towards self-determination and empowerment
Laura Mazzone - Anffas Onlus, Italy
The political dimensions of self-advocacy
Maureen Piggot - Inclusion Europe
European support for self-advocates and families
Annelisa Cotone - European Commission
Support for self-advocates and families in Italy
Raffaele Ciambrone - Ministry of Education, Italy
12.30 Lunch break
www.EuropeInAction.org
Europe in Action Programme
Thursday, 21 May 2015
14.00 The basics of self-advocacy - Parallel Sessions
Self-advocacy and decision-making at personal level
(English/Italian) - Room Smeraldo
How to be an active self-advocate
Jean-Baptiste Briol - Nous Aussi, France
Project “Trepuntozero”: from services to activities for people
Marco Zanisi - Legnano Anffas Onlus, Italy
Self-advocacy in sports
Marco Borzacchini - CIP/FISDIR, Italy
Supporting self-advocates (English/Italian) - Room Zaffiro
The accessibility to information on consumers’ rights
Mostaccio Alessandro - Movimento Consumatori, Italy
Support, not protection
Elisabeta Moldovan - ”Ceva de Spus” Association, Romania
Experts by experience: building new paths
to inclusive community
Slavenka Martinović - Centre for Adult Education Validus, Croatia
www.EuropeInAction.org
Europe in Action Programme
Thursday, 21 May 2015
Families and self-advocacy
(Italian only) - Room Acquamarina
Sisters: Our history
Debora Enderle, Giulia Enderle - Trentino Anffas Onlus, Italy
Families and self-advocacy: The educational perspective
Luigi Pati - Catholic Univ. of the Sacred Heart, Brescia, Italy
How families can promote self-advocacy from early age
Franco Nardocci - SINPIA, Italy
Participation in politics
(English only) - Room Cristallo
What should we focus on?
Making the best out of limited resources
Oliver Linz - Bundesvereinigung Lebenshilfe e.V., Germany
What it takes to be a community councillor
Sara Pickard - Mencap, United Kingdom
What participation in political life
for person with disabilities in the European Union?
Giampiero Griffo - Disabled Peoples’ International and
European Disability Forum
www.EuropeInAction.org
Europe in Action Programme
Thursday, 21 May 2015
15.30 Sustainable self-advocacy in our organisations Parallel Sessions
How to organise self-advocacy groups at local level
(English/Italian) - Room Smeraldo
Towards self-advocacy for persons with intellectual
disabilities in Epernay
Jean Caron - Papillons Blancs Epernay, France
Self-representation processes of people
with intellectual disabilities in the Region of Madrid
Jesus Fuentes Bajo - Fundacion ADEMO\FEAPS Madrid, Spain
Advocacy and self-advocacy in Bosnia and Herzegovina
Haris Memisevic - Union Sumero, Bosnia and Herzegovina
Roundtable: Challenges in supporting self-advocacy at local,
European and International level (English/Italian) - Room Zaffiro
Local level: the case of Italy
Roberto Speziale - Anffas Onlus, Italy
Pietro Cirrincione - Autism Europe, Gruppo Asperger, Italy
Challenges for self-advocacy in Europe
Harry Roche - Mencap, EPSA
Sandra Marques - Inclusion Europe
Challenges for self-advocacy in at an international level
Mark Mapemba - PODCAM/Inclusion International
Connie Laurin-Bowie - Inclusion International
www.EuropeInAction.org
Europe in Action Programme
Thursday, 21 May 2015
First experiences of self-advocacy in Italy
(Italian only) - Room Acquamarina
The importance of self-help groups for self-advocacy
Gabriella Di Giovanni and Cristiana Tacconella-Pescara, Anffas Onlus, Italy
You did not expect it, did you?
Maria Cristina Schiratti, Francesca Stella - Udine Anffas Onlus, Italy
To work for or to work with?
Valentina Paulon - Centro Girasole- Mestre Anffas Onlus, Italy
The necessary support for self-advocacy
(English only) - Room Cristallo
Steering FEAPS in the right direction
Horacio Pelaez - Asociación Juan María/FEAPS, Spain
Here I am! Self-advocacy for people with Down syndrome
Monica Berarducci - AIPD, Italy
Peer support in developing self-advocacy
Luminita Caldaras - Pentru Voi, Romania
18.00 Theater performance hosted by Anffas Onlus Rome
at Theatre Ghione
www.EuropeInAction.org
Europe in Action Programme
Friday, 22 May 2015
9.30
Power of self-advocacy to make change happen
Plenary Session - Room Smeraldo and Zaffiro
How to make participation possible
Henriëtte Sandvoort - Ieder(in), The Netherlands
The European experience
Donata Vivanti - European Disability Forum
I live the life I love and I love the life I live
Ellen Goodey - United Kingdom
11.00 Self-advocates and family members fighting together for the implementation of the CRPD - Parallel Sessions
Legal capacity
(English and Italian) - Room Smeraldo
Improving access to justice: when self-advocates train lawyers in their rights
Jordà Vives Rodríguez - FEAPS, Spain
Inés de Araoz Sánchez-Dopico - FEAPS, Spain
Making own choices and getting support
Magdi Birtha - Inclusion Europe
Legal capacity in Italy
Francesco Marcellino - Anffas Onlus, Italy
www.EuropeInAction.org
Europe in Action Programme
Friday, 22 May 2015
Living in the community
(English/Italian) - Room Zaffiro
Smart Angel Project: cloud platform mobile support
Filippo Costa - Softjam, Italy
A true masterpiece! Supporting hope, realization of personal talents and the right to work
Anna Zampino, Piergiorgio Zampino - Patti Anffas Onlus, Italy
Living an included and self-determined life
in the community
Joachim Busch - Bundesvereinigung Lebenshilfe, Germany
Accessibility (Italian only) - Room Acquamarina
SafeSurfing: online data protection for people with
intellectual disabilities
Roberta Speziale, Daniela Cannistraci - Anffas Onlus, Italy
Information for all - Easy-to-read language
Aurora Quarantelli and Matteo Grillo - Fondazione
Comunità la Torre, Italy
A laboratory for teaching human rights
Gabriella Fredduselli - Coop. soc. “Genova Integrazione” a marchio Anffas, Italy
www.EuropeInAction.org
Europe in Action Programme
Friday, 22 May 2015
11.00 General meeting of the European Platform
of Self-Advocates - Room Cristallo (continued 14:00 - 16:00)
12.30 Lunch break
14.00 Towards Conclusions - Parallel sessions:
What can self-advocates do?
(English/Italian) - Room Smeraldo
Present and future role of self-advocacy
Corinne Clermont - Nous Aussi, France
GORATU Project: Learning with people with disAbilities
Diana Cabezas, Conhi Basabe - GORABIDE, Spain
Inclusion depends on me
Sonia Passalacqua, Serena Amato - Ragusa Anffas Onlus, Italy
Challenges for self-advocacy in organisations
(English/Italian) - Room Zaffiro
Legal issues related to self-advocacy in Italy
Gianfranco de Robertis - Anffas Onlus, Italy
Supporting self-advocacy in Ireland
Adrian Noonan - Inclusion Ireland, Ireland
When I listen
Fadya Farah - Inclusion International
www.EuropeInAction.org
Europe in Action Programme
Friday, 22 May 2015
What can family members do?
(Italian only) - Room Acquamarina
UN CRPD: Anffas Onlus and Rotary International synergies for dissemination in the Mediterranean area
Antonio Prestipino - Catania Anffas Onlus, Italy
Alliance for rights. Families for inclusion in
school through the UN CRPD
Lorenzo Fronte - Varese Anffas Onlus, Italy
The family supporting self-advocacy
Franco Masciullo - Toscana Anffas Onlus, Italy
16.00 Closing plenary session - Rooms Smeraldo and Zaffiro
Summary of the conference
Rome Declaration on
“Promoting and Sustaining Self-Advocacy in Europe”
Debate
Policy Conclusions
Roberto Speziale - Anffas Onlus, Italy
Maureen Piggot - Inclusion Europe
Hear our Voices 2015 - “My life, my decision”
European Self-Advocates Conference
2 – 4 October 2015, Madrid, Spain
www.EuropeInAction.org
Europe in Action Programme
Friday, 22 May 2015
Europe in Action 2016
26 - 28 May 2016, Cascais, Portugal
Inclusion International General Assembly and International Forum
27 – 29 October 2016, Orlando, United States
Farewells
20.00 Conference dinner offered by Anffas Onlus
in NH Midas Hotel
Related events
Wednesday, 20 May 2015
9.30-16.30
Round table on the implementation of the UN CRPD (English only) - Room Zaffiro
14.00-16.30 Preparation meeting for self-advocates
(English) - Room Acquamarina
(Italian) - Room Cristallo
www.EuropeInAction.org
Related events
Saturday, 23 May 2015
9.00-15.30 Annual General Assembly of Inclusion Europe
Room Zaffiro
9.00-19.00 National Assembly of Anffas Onlus
(only for Anffas members) - Rooms Smeraldo, Topazio
Sunday, 24 May 2015
9.00-13.00 National Assembly of Anffas Onlus
(only for Anffas members) - Rooms Smeraldo, Topazio
Practical Information
The conference will take place at NH Midas Hotel,
Via Aurelia, 800, 00165 Rome
Contacts:
Anffas Onlus Nazionale email: [email protected]
Telephone: +39 335 144 53 73 (number only available from Wednesday,
20 May, onwards)
NH Midas Hotel: http://www.nh-hotels.it/hotel/nh-roma-midas
www.EuropeInAction.org