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Schedule-at-a-Glance
SYMPOSIUM DIRECTOR
SCIENTIFIC CHAIR
Foundation for Sickle Cell
Disease Research
Keynote Speaker
Lanetta Jordan, M.D., M.P.H., M.S.P.H.
Gregory J. Kato, M.D.
Yvonne T. Maddox, Ph.D.
FRIDAY, APRIL 10, 2015
3:00 – 7:00 PM
7:00 – 8:30 PM
38th National Sickle Cell Disease
Scientific Meeting
Keynote Speaker
Paul S. Frenette, M.D.
April 10-13, 2015
Registration
Corporate Engagement Forum is a patient focused forum designed to address challenging issues faced by patients. There
are a series of topics in this session.
Topic 1: Understanding Blood Products, Araba Afenyi-Annan, MD, MPH, Adjunct Assistant Clinical Professor, Blood Banking/Transfusion Medicine, Department of Pathology & Laboratory Medicine, University of North Carolina Hospitals
Goal: Increase patient knowledge and understanding of the blood they are receiving to advocate for their own medical care when
seen at a hospital other than a sickle cell center.
Focus: Knowledge and understanding of transfusions for patients and parents about the blood products they receive. Understanding matched blood, the long term risks of chronic transfusions, logistics required by the blood center/hospital to obtain matched
blood, and the cost to patients.
SATURDAY, APRIL 11, 2015
7:00 – 8:00 AM
8:00 - 8:10 AM
8:10 – 9:10 AM
Breakfast
Welcome, Opening Remarks, Lanetta Jordan, M.D., M.P.H., M.S.P.H., President, Foundation for Sickle Cell Disease Research, Associate
Professor, Department of Public Health Sciences Division of Health Services Research and Policy, University of Miami Miller School of
Medicine
Partner Meeting Highlights: 2014 Highlights of the 8th Annual Sickle Cell and Thalassemia Advanced Conference 2014
held in London in North America, Baba Inusa, M.D., Evelina Children’s Hospital, St Thomas’ Hospital, London
9:15 – 10:00 AM
Automatic Qualification for SSI Disability – A Game Changer, Foundation for Sickle Cell Disease Research and the University of
Miami Health Rights Clinic
10:15 – 11:45 AM
Interactive Educational Sessions, Abdullah Kutlar, M.D., Interim Chief Professor of Medicine Director, Georgia Regents University
Sickle Cell Center
Section Leaders
1. Clinical – Abdullah Kutlar, M.D.
2. Nursing – Paula Tanabe, R.N., Ph.D.
3. Psychosocial – Allison King, M.D. 4. Basic Science – Punam, Malik, M.D.
12:00 – 2:00 PM
Scientific Chair Opening Remarks, Gregory Kato, M.D., Professor of Medicine, Division of Hematology/Oncology, Heart, Lung,
Blood and Vascular Medicine Institute, Director, Adult Sickle Cell Center of Excellence, University of Pittsburgh;
Foundation for Sickle Cell Disease Research Keynote Speaker and Luncheon, Yvonne T. Maddox, Ph.D., Acting Director, National Institute on Minority Health and Health Disparities
2:15 – 3:45 PM
Interactive Educational Sessions, Abdullah Kutlar, M.D, Chair. Section Leaders
1. Clinical – Abdullah Kutlar, M.D.,
3. Psychosocial – Allison King, M.D.
2. Nursing – Paula Tanabe, R.N., Ph.D.
4. Bone Marrow Transplant - Lakshmanan Krishnamurti, M.D.
3:45 – 4:15 PM
Break
4:15 – 6:15 PM
Pain Symposium, Kalpna Gupta, Ph.D., Professor of Medicine, Division Hematology, Oncology and Transplantation, University of
Minnesota, Practical Aspect of Sickle Pain with Emerging Medical and Integrative Promising Therapies to Treat Sickle Pain
Ticketed session
6:30 – 7:45 PM
Poster Presentations
7:00 – 8:00 AM
Breakfast
8:00 – 8:10 AM
8:10 – 10:10 AM
SUNDAY, APRIL 12, 2015
Welcome, Opening Remarks, José Szapocznik, Ph.D., Professor & Chair, Department of Public Health Sciences, Professor of Architecture, Psychology, and Counseling Psychology & Educational Research, Director, Miami Clinical & Translational Science Institute,
University of Miami Miller School of Medicine
U01 – Centers of Excellence in Hemoglobinopathies Research Presentations, Center Principal Investigators, Gregory Kato,
M.D., and Kalpna Gupta, PhD.
10:00 – 10:30 AM
Break
10:30 – 11:15 AM
38th National Sickle Cell Disease Scientific Meeting Keynote Speaker
Paul S. Frenette, M.D., Chair and Director, The Ruth L. and David S. Gottesman Institute for Stem Cell and Regenerative Medicine Research, Albert Einstein College of Medicine
11:15 – 11:45 AM
National Heart, Lung, and Blood Institute (NHLBI), National Institutes of Health (NIH), W. Keith Hoots, M.D., Director, Division
of Blood Diseases and Resources
11:45 – 12:15 PM
Selected Plenary Abstract Presentations
12:30 – 1:30
PM
3:15 – 3:45
PM
Lunch – Meet the Experts – Ticketed session
Oral Abstract Presentations – Breakout Sessions
1:45 – 3:15
PM
3:45 – 5:45
PM
Investigational Drug Symposium, Susan Perrine, M.D., Professor of Medicine, Pediatrics and Pharmacology and Experimental
Therapeutics, Boston University School of Medicine
6:00 – 7:30
PM
Poster Presentations
7:00 – 8:00
8:00 – 9:30
Break
MONDAY, APRIL 13, 2015
AM
Breakfast
AM
Oral Abstract Presentations
9:30 – 11:00AM
International East Meets West Symposium, Adekunle D. Adekile, Professor of Pediatric Hematology, Department of Pediatrics,
Faculty of Medicine, Kuwait University
11:00 – 11:30 AM
Break
12:15 PM
Closing Remarks, Lanetta Jordan, M.D., M.P.H., M.S.P.H.
11:30 – 12:15 PM
Pending
12:20
Adjourn