NEWS REVIEW 4 / Politicians should represent all of us, not just the able-bodied W hen your legs don’t work like they used to before. And I can’t sweep you off of your feet.” Ed Sheeran’s Thinking Out Loud must be a rare choice for the first dance at a wedding. Yet for my partner and I, it struck a chord. The lyrics are about two people growing old together, something we know sadly we will never do. “Why bother with a first dance? Save yourself the indignity,” was the advice. But at the last minute, we did it. Crutch in one hand, I clung to my husband with the other. It was more of an awkward shuffle than dancing, but we did it. It was our first dance. Disability now affects every aspect of my life. That is what motor neurone disease (MND) does. The progressive nature of the condition means challenges keep on coming, but I take comfort in knowing that today is my best day, my healthiest day. It is that mindset that gets me out of bed in the morning. As my body gets weaker, I have to develop workarounds. Instead THE MOTOR NEURONE DIARIES GORDON AIKMAN of standing to recite our wedding vows, we sat on stools. Hidden under my black woolly kilt socks were my Forrest Gump leg splints to keep me vertical. Disability inspires innovation. Life with a disability means I have to plan and think about the inane. Where is the nearest dropped kerb? Are there stairs? Will I be able to open the door? Is the toilet accessible? Life is harder, physically and psychologically, but it is rarely impossible. Faced with a choice between stares as I am wheeled into a pub with friends or not having a drink at all, make mine a double. Until last year, disability was other people. Call me naive but I assumed it was something people were born with, or the result of a terrible accident. It was nothing I had ever properly considered. How times change. I am living proof that disability can affect any one of us, in any number of ways, at any time. Last year I would run to the gym with ease. Last week I hobbled down the aisle with a walking stick. One in five working-age people in Scotland is disabled. My disability is now obvious, but many are invisible. Yet disability doesn’t mean inability — quite the contrary. As someone with an ever-evolving physical disability, I have an insight into the challenges faced by disabled people. It is the barriers, attitudes and exclusion — whether deliberate or inadvertent — that disable people like me. It is the taxi ramp that fails to work; the stairs to the restaurant door; the glare of the pedestrian trying to get past; and the sigh of the shop worker. As we look to the general election, I feel a healthy democracy means a parliament that reflects all those it seeks to serve. And yet there is evidence that disabled people face significant barriers to selection as parliamentary candidates and are generally less likely to say that they can influence local decisions. I asked the Scottish and UK parliaments historically how many disabled elected members we have had. The answer: “Sorry, we don’t collect this information.” I don’t know about you, but as election candidates troop in front of the TV cameras, I see the same old male, stale and pale faces. It is time our parliament and politics Aikman, left, defied his degenerative disease to share a first dance with his husband Joe Pike at their wedding reception truly reflected our people: one in five elected representatives should be disabled people. How do we get there? A good first step would be for political parties to ensure meetings and materials are accessible. A beefed-up Democracy Diversity Fund to support disabled parliamentary candidates would also help. And I ask, is there even a case for all-disabled candidate shortlists? More disabled people in politics means more who understand our challenges. That in turn means policies that work for everyone. Surely that is something all parties can agree on. Gordon Aikman is an MND patient and political campaigner. For more on the One in Five campaign, visit oneinfive.scot. To donate to Gordon’s Fightback text “MNDS85 £10” to 70070 or visit gordonsfightback.com MARILYN KINGWILL Ask any mum, Kate — a tiny twosome can be gruesome Angela Lansbury says she does not burn the candle at both ends — ‘except for fun’ Kathy Brewis M It takes excruciating effort to last like this, my dear After making millions on American TV, Angela Lansbury has made a triumphant return to the London stage in Blithe Spirit. She tells Oliver Thring how to win an Olivier at 89 ‘D on’t kid yourself, my dear,” Angela Lansbury scolds me down the phone from her suite at the Rosewood hotel. (This is a beautiful Edwardian building in central London, only 11 years older than the dame herself, gutted to a bland internationalism by its Texan owners. She has aged better.) “Let me tell you something. Everybody has plastic surgery. I haven’t done it foranumberofyears,butintheearly days — good heavens, yes.” I mention another famous British actress of Lansbury’s generation, who has always rejected the allegation that she has any familiarity with scalpel or needle. “Ha! Her? Please! I know her and she’s no fool.” She denies it, I say. “Well, if she denies it and looks as good as she does, then God bless her.” I loved Dame Angela instantly, not least from Bedknobs and Broomsticks, the video of which was worn to tissue when we were children; then I remembered she was astonishing in The Manchurian Candidate too. And, of course, she seems to be perpetually on television as Jessica Fletcher in repeats of Murder, She Wrote. Lansbury made millions from that programme, which ran for 12 long and exhausting series. By the end she owned the company that produced it. Last week she became one of the oldest recipients of an Olivier, the most prestigious award in British theatre, when she won best supporting actress for her performance as Madame Arcati, the loopy, heavily laced “clairvoyant” in Noël Coward’s Blithe Spirit. That had been her first appearance on a London stage in about 40 years and she almost broke down when she accepted what she tells me is a “jewel”: the statuette of “Sir Laurence, whom I had known and worked with”. Of course she did. She is 89 and says that she has never considered retiring: “As a character actor you need energy. To take on another person’s physical attributes and play them fully needs huge amounts of energy. And I thank God I have that: if I’m not acting, I’m washing the dishes or polishing the floor.” Where does this longevity come from, I ask. “I take excruciatingly good care of my body,” she says. “And I don’t burn the candle at both ends” — briefest pause — “except for fun.” She really is a character actor, too. With most of her older female acting contemporaries, people pay to see the woman: a popular celebrity who plays more or less the same part every time. A scan through Lansbury clips on YouTube shows how different dramatically — which is to say in the application of talent — she is in every role. (The clever, diligent, mischievous Jessica Fletcher, she tells me, was “the only part I ever played myself in”.) One paradox of this talent is that Lansbury is probably less recognisable than, say, Judi Dench or Maggie Smith. Plus, as someone who knows her says: “She is modest. She said to me once: ‘I don’t think I really mean anything in London any more.’ Well, she came over to do a benefit concert for Aids, walked on stage at the Palladium and 2,200 people leapt to their feet. It showed her that she really did matter.” In a long and conscientious career, Lansbury doesn’t seem to have taken anything for granted. Her first husband, a thespy Lord Alfred Douglas lookalike named Richard Cromwell, married her when she was 19 and he was 35. He had hoped to distract or convert himself from his homosexuality, but one morning less than a year into theirmarriage, she came downstairs to find a note: “I’m sorry darling, I can’t go on.” She filed for divorce, but they remained good friends until he died in 1960. The great union of her life, of course, was with Peter Shaw. Their marriage lasted 53 years. He had been a vastly successful Hollywood agent and producer who abandoned everything to support her. When he died in 2003, Lansbury said it was like a “rift in time” — depression almost broke her. Then Emma Thompson rang and offered her a part as the villain Aunt Adelaide in the children’s film Nanny McPhee, and that, she later said, “pulled me out of the abyss”. “Unquestionably, the hardest time in my life was the early 1970s,” As a character actor you need energy. And I thank God I have that: if I’m not acting, I’m washing the dishes or polishing the floor she tells me. “So many disastrous things occurred. Two of our children were heavily involved with drugs.” Anthony and Deirdre, who were in their teens, were using heroin with a prototypical Rich Kids of Instagram set gadding about the Malibu hills. Deirdre even became involved with the Manson family, the hypnotised harem led by the serial killer, racist and psychopath Charles Manson (now 80 years old and still in jail). “We just had nothing to keep us in America,” Lansbury says. “So we upped sticks, as they say.” They moved the family to a house near Cork in southern Ireland, where she and Peter rescued the children from their chaotic lives. “They learnt things that they never would have had the opportunity to get into back in California,” she says. “[They learnt] how to cook and garden. They got jobs as waiters and learnt what it’s like to earn a bit of a living — not that they had to.” It worked: the children, now in their sixties, work respectively in the cinema and as a restaurateur. Lansbury, who says that her “homestead” is Los Angeles, seems genuinely thrilled to tell me the precise date of her granddaughter’s wedding in New York later this year. Our time is up. “Sorry we had to do this under such hurried circumstances but you’ve dealt with it all terribly well,” she says. “I’ll try and do my part now too for the rest of the day. That’s all I can hope to do, really — just keep up my end.” @oliverthring y friend Rebecca had just thrown a birthday party for her one-year-old when she dropped the bombshell: “We’re expecting another child.” She gave a small, scared smile. Obviously there was nothing to do but reassure her. Brilliant news! Two tiny children, twice as much fun! Each would have the gift of the other — to love and be loved by. Or something. “It’s mostly a fog,” recalls a friend. “But I distinctly remember sitting in the kitchen with a girlfriend, crying and saying, ‘Never have a second baby!’ It just felt totally impossible.” Toddler plus newborn is a fiendish combination, as Prince William and Kate are about to find out. Just as the older one is learning to throw epic tantrums, into the mix comes an anarchic howling infant. A year into fatherhood, William confessed: “Since George arrived on the scene, my one burning ambition is to get a good night’s sleep.” Mini Prince George was reportedly always hungry and reluctant to sleep through the night — a typical baby. With luck the second mini royal might settle quickly into a civilised sleeping pattern. More likely she/he (pink paint has been delivered to Anmer Hall in Norfolk) will not. Some people will tell you it’s wonderful when siblings are close in age. That there’s less competition, the children have a constant playmate and you’ll be “out of the chaos” sooner. They are lying. Or else they have blanked out the memory. The facts of the matter are: Sleep. You won’t get any. For a brief few weeks you will power through on adrenaline. Then you will turn into a frazzled harridan, barking orders and/or weeping freely. A sinister diminutive tag team will wake you up at random intervals between dusk and dawn, just because they can. It will take years to recover from this sleep deficit. Years. Sex. You won’t get any. The baby will probably be in your bedroom at first and even if not they will strike up a piercing scream the moment they supernaturally sense your attention leaving them. Your sexy new look will consist of flat sandals and supermarket jeans covered in baby sick. Any fitness you managed to claw back will have gone and mummy-and-baby yoga classes are not an option since mummy is engaged in activities such as stopping the kamikaze toddler stepping into the road. The jealous older sibling will discover the fun new game of showing up in your bed every night. Having ignored your efforts to brainwash them into believing they are simply acquiring a fantastic new friend, they Prince George is said to have given his parents many interrupted nights will be unimpressed by the wriggling newcomer and will do anything to get your attention, by fair means or (mostly) foul. One father laughed as he told me how his little boy had dropped a heavy toy lorry on his newborn brother’s head. From a height. Social life. You’ll have one, of sorts, but it will consist of hanging out with other women with whom you may have little in common other than having produced two sprogs. Gatherings that involve wine will offer brief windows of time in which everything seems hilarious and manageable. Brief, brief windows. The endless list of small yet essential tasks will clutter your brain, making it impossible to think freely or coherently as you once did. Catching up with fancy-free friends will take second place to catching up with the laundry. Feed-me time will be the new me-time. Kindly meant platitudes will rub salt in the wounds. “Sleep when the baby sleeps”? Ho-ho! You will console yourself with the thought that it’s only 18 years until they (hopefully) leave home. What else to look forward to? Further unsolicited parenting advice, all confusing. You spoonfed mush to your first infant? Tut tut. Now it’s “baby-led weaning”. Child-rearing gurus have become even more polarising, as you will discover through the terrible daytime TV show you briefly flirt with in an attempt to reconnect with the world. Which brings us to leaving the house. You have to do it. You want to do it. And you will do it. You will. With your double buggy and your nappies in two sizes and your pretending-to-bethick-skinned attitude that’s necessary because not only do you look a sight but complete strangers will again criticise you openly when your baby cries. Only this time they will also ask why you can’t control your toddler, who is lying face-down on the pavement refusing to move. None of this is avoidable, unless you are extremely wealthy, do not have to work and have the most amazing support network — not just grandparents but paid professionals. Unless, say, you won the lottery or married into royalty. Oh, you did? Nice one. It’ll be a doddle.
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