Foundation for a Healthy Kentucky Request for Proposal (RFP) Creating a Culture of Health in Appalachia: Disparities and Bright Spots April 2015 1 1. Introduction 1.1 Purpose The Foundation for a Healthy Kentucky is collaborating with the Robert Wood Johnson Foundation (RWJF) and the Appalachian Regional Commission (ARC) to invite proposals from qualified research teams and consultants to document and examine health conditions in the 420county Appalachian Region. The research will: 1. Document disparities in health outcomes in the Appalachian Region and investigate the causes for and variability of local and regional disparities; 2. Identify “Bright Spots,” or communities that have better-than-expected health outcomes given their economic status;1 3. Profile Bright Spots, using social/anthropological approaches, and identify communitybased models and policy implications; and 4. Propose a findings dissemination strategy, complete with a communications plan to accompany the research. Appalachian Regional Commission In the mid-1960s, at the urging of two U.S. presidents, Congress enacted legislation to address the persistent poverty and growing economic despair of the Appalachian Region. This legislation, the Appalachian Regional Development Act of 1965, established the Appalachian Regional Commission as a regional economic development agency representing a partnership of federal, state, and local government. ARC is composed of the governors of the 13 Appalachian states and a federal co-chair, who is appointed by the president. Local participation is provided through multi-county local development districts. ARC invests in the health of the Appalachian Region via grantmaking, strategic partnerships, research, and advocacy, both to improve individual and community health outcomes and to 1 See Pascale, Sternin, & Sternin. (2010). The Power of Positive Deviance: How Unlikely Innovators Solve the World’s Toughest Problems. Harvard Business Press. 2 strengthen the economic competitiveness of the Region. ARC is the only federal entity exclusively devoted to the unique concerns of Appalachia. The Commission believes that a healthy population is critical for the Region’s economic and community development; supporting a healthy population is a key component of ARC's strategic goal of strengthening the capacity of the people of Appalachia to compete in the global economy. ARC has focused attention on regional health concerns since the agency’s inception in 1965. In the 1970s, substantial resources were invested in infant mortality reduction, ultimately bringing regional rates to parity with the rest of the nation. Another major initiative sought to make primary care services available to every Appalachian, resulting in the construction and operation of hundreds of rural hospitals and clinics. Since 2000, a series of ARC-funded research projects has documented Appalachia’s health conditions, identifying unique geographic disparities in chronic disease, substance abuse, mental health, oral health, access to care, cost of care, and availability of health insurance. At present, ARC’s health program activities include grantmaking and partnership activities that respond to these health disparities in an economic development context. A small portfolio of grants targets improved health care access and community-based public health initiatives, mostly in rural communities. The agency manages long-term regional partnerships on diabetes and cancer prevention, control, and treatment with the Centers for Disease Control and Prevention, and advocates for Appalachian health issues among federal partners in Washington. Foundation for a Healthy Kentucky The Foundation for a Healthy Kentucky is a nonprofit, philanthropic organization with the mission to address the unmet health care needs of Kentuckians. Founded in 2001, the Foundation’s approach centers on developing and influencing health policy to improve access to care, reduce health risks and disparities and promote health equity. Foundation staff have expertise in public health, health policy, health systems and services, communications and program and grants management. 3 Since 2001, the Foundation has invested more than $24 million in grants, health policy research, educational forums, and training. Robert Wood Johnson Foundation For more than 40 years the Robert Wood Johnson Foundation (RWJF) has worked to improve health and health care. RWJF is working with others to build a Culture of Health where attaining the best health possible is a fundamental and guiding social value that helps define American culture. It’s an America in which all people—no matter what their background, heritage, socioeconomic status or current state of well-being happens to be—have an equal right to live longer, healthier lives. 1.2 Background Appalachia The Appalachian Region, as defined in ARC's authorizing legislation, is a 205,000-square-mile region that follows the spine of the Appalachian Mountains from southern New York to northern Mississippi. It includes all of West Virginia and parts of 12 other states: Alabama, Georgia, Kentucky, Maryland, Mississippi, New York, North Carolina, Ohio, Pennsylvania, South Carolina, Tennessee, and Virginia. Forty-two percent of the Region's population is rural, compared with 20 percent of the national population. The Region's economy, once highly dependent on mining, forestry, agriculture, chemical industries, and heavy industry, has become more diversified in recent times, and now includes a variety of manufacturing and service industries. In 1965, one in three Appalachian residents lived in poverty; during the 2008–2012 period, the Region's poverty rate was nearly 17 percent. Approximately 70 percent of Appalachian counties (295 of 420) were considered high poverty in 1960 (at least one and a half times the U.S. average); during the 2008–2012 period, that number went down to 107. These gains have transformed the Region from one of widespread poverty to one of economic contrasts: some communities have successfully diversified their economies, while others still 4 require basic infrastructure such as roads, clinics, and water and sewer systems. The contrasts are not surprising in light of the Region's size and diversity—the Region includes 420 counties in 13 states, extends more than 1,000 miles from southern New York to northeastern Mississippi, and is home to more than 25 million people. 1.3 The RFP Process All organizations or teams interested in pursuing the scope of work outlined below are invited to respond with a written outline of their proposed approach, methods and data sources, including existing databases to be used (include source, authorization of access if applicable, and most recent year for which data are available); credentials of the principal parties to be preparing the information, reflecting experience in the preparation of similar studies and reports; timeline for project completion with appropriate milestones; proposed costs; and at least three professional references. More detailed instructions for submitting materials are provided in Section 3. An advisory committee of informed regional and subject-matter expert stakeholders will work with the Foundation, ARC and RWJF to review proposals and select the contractor for this multiyear study. The advisory committee will remain involved in this study as needed, to provide guidance and feedback to the research team. The selected research contractor will be expected to present to the advisory committee twice per year, following submission of the progress and annual reports and to incorporate advisory committee feedback and guidance into the study process and deliverables as appropriate. 2. RFP Submission Information 2.1 General Terms and Conditions Documentation submitted in response to this RFP will be distributed to members of an advisory committee and RWJF, Foundation, and ARC staff. Submissions will remain in the control of this group and will not be used for other purposes without prior written consent of the applicant. 5 Please note that the selected research team will be asked to release the contents of their proposal. Proprietary and confidential information must not be submitted under this request. The successful applicants will be required to enter into an Agreement with the Foundation for a Healthy Kentucky. This Agreement will define programmatic administration, project participant responsibilities and, by signing the Agreement, the participants will agree to work with the Foundation and ARC towards the objectives of the project. The Foundation anticipates a single yearly award (with disbursements based on agreed upon timeline and deliverables) for accomplishment of a mutually agreed scope of work, to be conducted over the study period. 2.2 Scope of Work This multi-year study includes quantitative and qualitative methodologies as well as the development of a robust communications plan and making the information gained webaccessible to various audiences. The scope of work requires a qualified team with expertise to effectively complete all project objectives. The selected team will have an established, successful record of conducting rigorous socioeconomic research focused on rural areas, and engaging local communities in participatory research. This team will include professionals with expertise in a number of areas, including but not limited to: economists and data analysts with expertise in health research; sociologists, anthropologists, or other social science professionals with experience in conducting in-depth qualitative analyses, including community profiles and case studies; professional writers and editors, including local journalists, with experience in making technical information accessible to a broad audience; geographers or others with GIS and mapping expertise; and a professional communications team to work with RWJF, the Foundation for a Healthy Kentucky, ARC and the profiled communities to ensure the successful dissemination of project findings and the replication of policy solutions. Although developing and producing a web site is not a deliverable, part of the communications plan will include 6 planning for a web site, which should include mock-ups or examples using current web sites. Web professionals including an information architect and a graphic designer will need to be part of the communications team to ensure deliverables could be seamlessly integrated into either an existing web platform or one that would be designed. Additional Information Existing research that teams may find useful includes the following: Robert Wood Johnson: Culture of Health http://www.rwjf.org/en/blogs/culture-of-health.html Appalachian Regional Commission: Health-Related Research http://www.arc.gov/research/ResearchReports.asp?F_Category=13 Foundation for a Healthy Kentucky: http://healthy-ky.org/ http://www.kentuckyhealthfacts.org/ http://inequality.org/inequality-health/ Objectives There are four main objectives to this major research project: Objective 1: Document and assess health disparities, and identify “Bright Spots” through a positive deviance framework. Using currently available data sources and accepted research methods, the research team will compile standardized, baseline information necessary to document and assess health and economic disparities in the Appalachian Region, and investigate the causes and variability of local and regional disparities. The research team will analyze economic and demographic data compiled by ARC and others, along with health data such as County Health Rankings, the Behavioral Risk Factor Surveillance System (BRFSS), and the Centers for Disease Control and Prevention’s Community Health Status Indicators.2 Health data will include rates of various health 2 See http://www.countyhealthrankings.org/, http://www.cdc.gov/brfss/ and http://wwwn.cdc.gov/CommunityHealth/home. 7 conditions (such as cancer rates, heart disease, mental health conditions among others) and other key health indicators such as disability, insurance coverage, and access to health care. While the focus will be on health data for the 420-county Appalachian Region, national-level statistics will also be necessary, in order to provide context to the disparities findings. Where possible, analyses should examine changes in health conditions and key indicators over time. As part of the economic data analysis, researchers should note and assess poverty rates, income distribution, and degree of disparity between the highest and lowest income brackets in each studied community. This economic equity gap should be noted in data findings for all communities studied. In addition to disparities, the research will identify Bright Spots, using a positive deviance framework to identify regional Bright Spots—counties and communities in the Appalachian Region that show positive health outcomes despite economic hardship and other determinants associated with negative health outcomes—as well as the converse set of counties where negative health outcomes prevail, despite positive economic measures. Positive deviance is a strength-based approach which is applied to problems requiring behavior and social change. Pascale, Sternin, and Sternin (2010) note that it is based on the following principles: Communities already have the solutions. They are the best experts to solve their problems. Communities self-organize and have the human resources and social assets to solve an agreed-upon problem. Collective intelligence. Intelligence and know-how is not concentrated in the leadership of a community alone or in external experts but is distributed throughout the community. Thus the PD process’s aim is to draw out the collective intelligence to apply it to a specific problem requiring behavior or social change. Sustainability as the cornerstone of the approach. The PD approach enables the community or organization to seek and discover sustainable solutions to a given problem 8 because the demonstrably successful uncommon behaviors are already practiced in that community within the constraints and challenges of the current situation. It is easier to change behavior by practicing it rather than knowing about it. “It is easier to act your way into a new way of thinking than think your way into a new way of acting.” Objective 2: Profile Bright Spots and identify community-based models and policy implications The Bright Spots identified in Objective 1 will be the basis for the research team’s exploration of why positive deviance exists and whether these outcomes might be replicated in other communities. The qualitative analysis will involve local community members throughout its design and implementation, and will include a series of participatory methods to identify causes of regional and local disparities, explain why certain communities exhibit positive deviance, and explore how these outcomes might be replicated. Social scientists will work closely with local community leaders, health professionals, and economic development officials to identify the dimensions that contribute to the quantitative findings and, with communications professionals, communicate in an accessible manner the incidence of Bright Spot communities to a broad audience. In the case that a sufficient number of Bright Spots are not found in the analysis, it is expected that research teams will explore alternatives. These could include identifying communities with positive health status and those with the greatest improvements in health outcomes in the Appalachian Region and assess common traits, practices, and policies employing both quantitative and qualitative methods. Research teams are encouraged to briefly discuss alternative research options in their proposals. Objective 3: Identify and recommend practices and policies that support and nurture Bright Spots. This objective involves identification of promising practices and supportive policies that foster and sustain the Bright Spots. The research team will work closely with the local communities to inform and recommend policy options to RWJF, ARC, and other key stakeholders to promote and 9 expand a culture of health in Appalachia. A literature review of relevant practices and policies will be included as part of this objective, with special attention to literature providing case studies in rural communities. Objective 4: Disseminate findings to initiate change Finally, research teams will outline how to initiate change by promoting Bright Spots, specifically through the dissemination of information from the quantitative and qualitative research as well as recommended policy options. Research teams must propose a comprehensive communications plan to identify key messages, determine target audiences, and propose strategies to best convey information. Other key components of the communications plan include strategies for engaging local residents in efforts to improve health outcomes in their communities, as well as information on how communities can successfully implement promising practices. The communications plan will also include recommendations for the development of a web site, including data and interactive maps, as well as a GIS-based tool to allow users to select datasets and view them in a variety of graphical forms, displaying relationships, patterns, and trends. Ideally, the GIS layers would include datasets assembled in the quantitative analysis, and overlay economic, social, and health factors. The web site recommendations and communications plan will be thoroughly integrated with the quantitative and qualitative elements of the project. The selected contractor team will incorporate planning for the communications and Web site-ready elements in all phases of the work. The research project is expected to begin in July 2015, with a planned release of the final research findings in December 2017. 10 Deliverables The expected deliverables are: 1. A database containing all data and analyses associated with Objective 1. 2. All complete transcripts and reports for qualitative methodology efforts. 3. Written reports for Objectives 1, 2, and 3, and monthly progress reports. 4. A communications and findings dissemination plan. 5. Recommendations for a Web site, with data and GIS-based user tools to aid in mapping and visualizations, as well as highlighted research outcomes and community profiles. Proposals may include plans for integrating findings into either an existing web platform or one that would be designed. 6. A comprehensive executive summary highlighting research results and providing policy implications and implementation recommendations. 7. At minimum, two in-person meetings: a kick-off meeting and a presentation of final results, in addition to periodic presentations to the advisory committee, and RWJF, ARC and Foundation staff. Contractors should propose additional in-person meetings to coincide with appropriate milestones and budget accordingly. The report(s) will relate the narrative discussion to descriptive statistics, analyses, graphs, maps, and tables where appropriate, yet the information should be written in a manner that is be accessible to a non-technical audience. Technical details, data tables, and details regarding methodology must be presented in appendices. ARC will provide the selected contractor with formatting guidance documents for all reports. Consideration should be given as to how tabular and graphic information will be integrated into the narrative structure of the report. Results should include all 1,070 counties in the 13 Appalachian states where possible, or in the case of limited data, just the 420 counties in the Appalachian Region. Results should be aggregated and reported for these geographical areas: United States; Appalachia; five Appalachian subregions; 13 Appalachian states; Appalachian and non-Appalachian portion of the 13 Appalachian states; ARC’s five economic status designations for the current fiscal year 11 (distressed, at-risk, transitional, competitive, attainment); five metro status designations (large metro, small metro, large metro adjacent, small metro adjacent, rural), and 73 multi-county local development districts (LDDs). Geographical classification of ARC and U.S. counties are provided by ARC. Given the complex and evolving geographic boundaries of the Appalachian Region during the past 50 years of development, mapping of findings will be essential to summarizing and presenting the research results. All maps should be accompanied by well-documented supporting databases. The report’s executive summary must be professionally written, edited, proofread, and designed; and must be produced for offset printing and for online publishing using either Adobe InDesign or Quark Xpress publishing software. All work must be at the highest level of quality. Production of the summary will require coordination between ARC, the report authors, writers, graphics designers, and print vendor. The executive summary must be written for a general audience, and edited for clarity, accuracy, readability, and consistency. Charts, graphs, maps, and tables must have clear and consistent titles and labels. Drafts must be produced in Microsoft Word with text and images submitted separately. Maps, charts, graphs, and tables must be supplied in native files. Proofreading for grammar, typographical errors, and inconsistencies in text, charts, maps, graphs, and design elements will be required at every stage of production. The executive summary must be visually appealing and designed for a general audience. The summary will be approximately 24 pages and will include photos, maps, charts, tables and graphs. Design services will include: 1) one meeting with ARC to establish design requirements; 2) creation of two sets of comps showing two different design directions 3) production of a minimum of four to five rounds of page proofs; 4) specifications for offset printing; and 5) preparation of files both for offset printing and for online publishing. 12 Print management, including procuring cost estimates, scheduling, working directly with the print vendor, and reviewing printer’s proofs will be required. Contract manager must approve printer selection. Deliverables for the executive summary must include: final native files for maps, graphs, charts, and tables; page proofs for approval by contract manager; final page layout files (InDesign or Quark Xpress); high-resolution PDF of final page layout files; PDF of final page layout files, optimized for online viewing; 3,000 copies of the offset-printed executive summary. A printed copy of the reports(s) and all electronic files for the reports must be submitted upon completion of the project. Files must be in Microsoft Word and Adobe PDF formats. These should be accompanied by an Excel workbook or Access database of all relevant data and analyses compiled during the study. The contractor will provide metadata (field name description, definition, source, sourced date, and equation if computed) for all raw and computed data fields. Geographic information system mapping databases, map images, and map documents developed for the project should also be provided to ARC. A PDF optimized for Web viewing will be required. The PDF must include bookmarks and other recommended accessibility features. 2.3 Submission Instructions To be considered complete, an application must include all information requested in Section 3, below. The proposal should be typed in black, 12-point font. PLEASE KEEP YOUR PROPOSAL TO TEN (10) PAGES OR LESS TOTAL INCLUDING THE COVER PAGE. 2.4 How to Submit Proposals must be received no later than 5 PM EDT on June 8, 2015, at [email protected], and please copy [email protected]. All proposals must be submitted electronically. Hard-copy submissions will not be accepted. Applicants are also encouraged to register for the applicant webinar (Thursday, May 7, 10:00 am EDT) for an overview of the proposed project and an opportunity to ask questions about the project and the RFP. To register, email Alexa Kerley at [email protected]. 13 2.5 Questions Questions should be directed to Vice President of Policy and Program, Gabriela Alcalde at [email protected] or Susan Zepeda, CEO/President at [email protected]. 1640 Lyndon Farm Court, Suite 100 Louisville KY 40223 Phone: (502) 326-2583 2.6 Reimbursements The Foundation will not reimburse applicants for any costs incurred in connection with preparing proposals in response to this RFQ. 2.7 Schedule The following table details the events and activities associated with this RFP: RFP Issued April 10, 2015 Applicant webinar (Register by emailing May 7, 10:00 am EDT Alexa Kerley at [email protected]) RFP Responses Due June 8, 2015 by 5:00 pm EDT Selected Recipient Notified Early July 2015 Kickoff Teleconference or Meeting Late July 2015 Project start date August 1, 2015 Disparities Draft July 15, 2016 Bright Spots draft completed September 30, 2016 Community profiles/case studies June 30, 2017 completed Reports finalized September 30, 2017 14 3. Proposal Format and Content 3.1 Proposal Outline Elements of the proposal should be presented in the following order: Cover Page (Use form provided) Overview Scope of Work Budget Staff Credentials References Each of these Sections is described below. 3.2 Cover Page Provide the name(s) of the applicant organization(s) and point of contact information. Teams should list all team members and point of contact information for each (to include name, title, organization, street address and P.O. Box if any, e-mail address and telephone number, with extension if any). When submitting point of contact information, please provide both a business/financial and technical point of contact, if they are not the same person. If additional space is needed to list multiple project applicant team members, an addendum to the Cover Page may be attached and will not be counted as an additional page. Overview 3.3 Provide an introduction to the contents of your proposal, the proposed approach and its benefits. Scope of Work 3.4 This section should include: Policy significance of study Objectives and activities 15 Methodology and sources. In this section, please describe your proposed methodology and data sources and approach to reporting each of the proposed data elements and analyses (including those identified in Section 2.2 of this RFP). Clearly identify any barriers to obtaining information from the source(s) named, and how these will be overcome, including the anticipated time-lag between data collection and availability of the data to the researchers How study progress and findings will be reported to the Foundation (twice per study year, for three years, in addition to more regular reporting of a smaller sub-set of measures submitted in the form of infographics) The research will be managed by ARC; the research team will be required to submit monthly progress reports and coordinate with ARC regarding all aspects of the research 3.5 Budget The contract awarded for this research project will be a FIRM FIXED-PRICE CONTRACT not to exceed $715,000 (ARC is providing funds of $250,000). As part of your proposal, please provide a detailed budget and budget narrative for your proposed effort, including data gathering, data analysis, project management, communications, report preparation, travel, and so forth. If different functions are performed by staff compensated at different rates, please clearly indicate the hours of effort to be provided on the project by each staff member. Administrative overhead may not exceed 10 percent of the contract. Please begin this section on a new page so that it can be separated from the main body of your proposal. 3.6 Staff Credentials Provide resumes or curricula vitae for each of the principals on this project. For other personnel who may be retained to assist on the project, please specify the minimum qualifications required in terms of education and experience/proficiencies. Please address specifically past experience with relevant mixed methods research; health policy research; and experience with proposed methodology and data sources. The research team must have demonstrated competency and 16 experience in the proposed methodology, data sources (including experience with rural data issues), and subject matter of the study. 3.7 References Provide a minimum of three professional references, for whom you have completed similar projects. For each indicate: Contact name and title Organizational affiliation Address, current telephone number(with extension, if any), e-mail Brief description of the project completed for that organization Duration of project; year of project completion 3.8 Proposal Review All proposals will be evaluated based on the following criteria: Complete, clearly articulated, logical study design, and technically competent methodology; Qualifications, relevant prior experience, command of existing research on health and regional development issues, and ability to present findings in a useful manner; A credible management proposal for staffing, and the capability to carry out and support the project in a timely fashion; The quality of interviews, focus groups, surveys and/or case study protocols proposed; The quality of the proposed communications and findings dissemination plan, including the web site to be used or developed; The cost effectiveness of the proposal. Members of the advisory committee will review proposals and make recommendations on selection of a contractor research team based on the criteria above. 17 Creating a Culture of Health in Appalachia: Disparities and Bright Spots Proposal Due: June 8, 2015 NAME OF LEAD ORGANIZATION: STREET ADDRESS: CITY, STATE, ZIP: BUSINESS CONTACT NAME & TITLE: PHONE/EXT.: EMAIL: TECHNICAL CONTACT NAME & TITLE: PHONE/EXT: EMAIL: FAX: WEB: http:// ANNUAL OPERATING BUDGET: $ EIN: Other, please describe on line below 501(c)(3) TAX ID NUMBER: PROJECT TITLE: PROJECT TIME FRAME (m/d/y – m/d/y): ESTIMATED PROJECT BUDGET: PROJECT DESCRIPTION ( 50 words): 18
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