THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND Interviews In August 2013 the following people were interviewed for this report and we are grateful to all participants: Adrian Brown St. George’s Healthcare NHS Trust Joss Gaynor Adfam Dr Carsten Grimm Locala CIC Dr Linda Harris Spectrum Community Health Dr Francis Keaney South London & Maudsley NHS FT Dr Jack Leach Cheshire Substance Misuse Services Dr Tony Rao South London and Maudsley NHS FT Paul Richardson Royal Liverpool University Contributors to the report Acknowledgement of Funding Lundbeck is grateful for the advice given by the following expert reviewers: This is an independent report initiated and sponsored by Lundbeck Ltd. Andrew Langford British Liver Trust Tom Smith Alcohol Concern britis h liv er trus t Lundbeck provided funding for the writing, design and printing of this document as well as administrative support through Munro & Forster, who facilitated the production and launch of the report. The views expressed in this document do not necessarily represent the views of, and should not be attributed to, Lundbeck. Lundbeck supports an increase in access levels to treatment for dependent drinkers. UK/NAL/1309/0288 | Date of preparation: September 2013 Foreword The human impact of alcohol dependence cannot be underestimated. Behind the statistics, people with alcohol dependence are real individuals, living in real communities. They are someone’s spouse, partner, father, mother, son, daughter, brother or sister. The impact of alcohol dependence is therefore felt far more widely than by the dependent drinker themselves. As a society, we also feel the impact, in terms of crime levels or antisocial behaviour due to binge drinking, for example. And alcohol dependence affects us as a nation, costing public health and the health services in England dearly. Against the backdrop of the farreaching burden of harmful and dependent drinking, the evidence set out in this report demonstrates the potentially enormous benefit of improving alcohol treatment rates – for individuals, families, communities, public health, the workforce and the NHS. These are difficult times for the public sector, particularly local government who carry the responsibility of commissioning the majority of alcohol services in England and who are now prioritising services whilst managing unprecedented cuts in government funding. stage, including in those people who may not obviously be seen to have a problem. People who are dependent on alcohol often do not look like stereotypical alcoholics. They may be holding down a job – in fact, someone with alcohol dependence may be working alongside any one of us without our realising. A range of professionals in health and social care, and other services, can play an important role in recognising alcohol problems, and helping people to access the care they need. However, local authorities, with their new public health role, have an important opportunity to address alcohol problems and reduce the widespread burden, by ensuring that alcohol treatment services are adequately funded. Local commissioners should ensure there is effective screening and intervention for alcohol misuse, and greater awareness of treatment services. Of course, better screening means there will be a need for timely brief intervention and structured alcohol treatment services. If access to alcohol treatment is to be improved, another key factor is recognising harmful drinking and alcohol dependence at an earlier At a national level the Government has an important role to play, firstly through Public Health England and its role in tackling stigma, 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND analysing and disseminating health intelligence about alcohol, and ensuring resources are made available for population based initiatives that reduce health inequalities, and secondly through the Government’s drive to ensure newly established Health and Wellbeing Boards address the barriers to accessing alcohol treatment at a local level. We are faced with a clear choice. National and local policymakers can pull together to tackle the barriers to improving alcohol treatment rates that are highlighted in this report, and the benefit – both economic and societal – can be felt across the country. Alternatively, if no action is taken, alcohol dependence will continue to exact a toll on people’s lives and health, and avoidable costs to society and the NHS will continue to mount. Dr Linda Harris Chief Executive Spectrum Community Health 3 Recommendations Increased funding for alcohol treatment services Treatment access for under-represented groups The enormous burden of alcohol dependence necessitates adequate funding for alcohol treatment services. Commissioners should “invest to save” and increase funding for alcohol treatment services, to save both money and lives. Building on the Department of Health’s work to examine the in-need population, Health and Wellbeing Boards should ensure that there is a clear picture at local level of which groups of people are under-represented in alcohol treatment, and that any specific barriers to treatment access for these groups are addressed. Clear responsibility for identifying and addressing alcohol problems Commissioners should ensure that there is clear responsibility around helping people to access the care they need, from identification of alcohol problems through to provision of integrated care, e.g. through clear care pathways. There should also be responsibility for funding across the different parts of the care pathway. Effective screening for alcohol misuse Directors of Public Health should ensure effective screening for alcohol misuse, in line with the principle of “making every contact count”, in order to identify problems before people become severely dependent. The Government should ensure that NHS Health Checks, including alcohol harm screening, are properly rolled out, monitored for uptake and assessed for effectiveness. Uptake of health checks should be encouraged. Training on alcohol issues In order to ensure that “every contact counts”, the Government and local authorities should ensure that alcohol awareness training forms part of the compulsory training of all front line staff. All such staff need to feel confident and capable of screening for alcohol both formally using a tool, and informally, be able to develop simple tailored advice and be aware of local referral pathways to specialist support. 4 Implementation of NICE guidelines Commissioners should ensure that alcohol treatment services follow NICE and other appropriate guidelines, meet quality standards and have outcome measures in place. Reduced waiting times for treatment Local commissioners and providers should continue to reduce waiting times for alcohol treatment, and ensure that treatment is appropriate to the level of dependence. Improved awareness of alcohol treatment services Directors of Public Health should ensure greater awareness of alcohol treatment services among potential service users. De-stigmatising seeking help Public Health England, in partnership with relevant expert voluntary sector organisations and other stakeholders such as providers and professional groups, should explore options to de-stigmatise ‘seeking help’ for alcohol problems, e.g. through a public health campaign. 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND Executive summary Every year, alcohol-related harm is estimated to cost society £21 billion1 and the NHS in England £3.5 billion.2 Despite this enormous economic impact, and the burden on individuals and families, only about 6% of people in England who are dependent on alcohol receive treatment.2,3,4 The 6% access rate to alcohol treatment in England is very low, not only in relation to what is considered a ‘medium’ level of access (15%)5, but also compared to treatment rates in other European countries (23% in Italy, for example).6 at an earlier stage, before people become more severely dependent and require more specialist treatment. This makes sense for individuals and families, and also in terms of making the best use of commissioners’ and providers’ resources. A number of barriers need to be addressed for access to alcohol treatment to be improved. For example, alcohol services have been historically underfunded compared to drugs services, which impacts on service provision and waiting times. Alcohol services should receive a level of investment that is not only comparable with drugs services, but also proportionate to addressing the burden of alcohol dependence. Clinical Commissioning Groups (CCGs) as well as local authorities have an important role in providing appropriate treatments in a primary care setting. Improving access to treatment for alcohol dependence would lead to significant benefits, for example in improving public health7 and saving the NHS considerable sums of money.8 With the new public health responsibility for commissioning alcohol services, now is the right time to tackle the shamefully low access rate to alcohol treatment in England. Furthermore, low referral rates could be improved by identifying and addressing alcohol dependence 5 Introduction There are 1.6 million people in England2,3 – one in 20 adults – who are dependent on alcohol.9 Yet only around 6% of dependent drinkers in England receive treatment,2,3,4 compared to more than half of people who are addicted to drugs.9 This means that every year there are huge numbers of people who, according to the National Institute for Health and Care Excellence (NICE), “are either not seeking help, do not have access to the relevant services, or whose symptoms are not being appropriately identified by healthcare professionals.”4 Meanwhile, alcohol dependence accounts for a “substantial proportion” of all alcohol-related harm.7 Research shows that the rate of alcohol dependence amongst men and women is higher in England than in all Western European countries apart from Norway,9 as well as Bulgaria and Romania in Eastern Europe.7 And it is just as much a problem at local as at national level; in a community of 100,000 people, the Government estimates that each year 3,000 people show some signs of alcohol dependence.1 However, there is a danger that treatment services will fall by the wayside as Local Authorities, newly responsible for public health, struggle to balance their budgets. But spending money on treatment services is not simply a case of competing health and social care priorities. 6 With evidence showing that for every £1 invested in specialist alcohol treatment, £5 is saved on health, welfare and crime costs,10 we can’t afford not to. Notably, Local Authority budgets will be a main beneficiary of these savings. According to the North American Rush model of access, which is the best currently available yardstick, 10% of people with alcohol dependence entering treatment per annum is regarded as a low level of access, 15% a medium level, and 20% a high level of access.5 Alcohol Concern has called for increased expenditure on alcohol treatment in order to provide 15% of dependent drinkers – the medium level of access – with alcohol treatment.11 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND The Department of Health has also recommended “the provision and uptake of evidence-based specialist treatment for at least 15% of estimated dependent drinkers” in local populations.12 Similarly, NICE has called on commissioners to ensure that at least one in seven (around 15%) dependent drinkers can access treatment locally.13 Urgent action is needed not only to help people with alcohol dependence access the help that they require, but also to address the significant economic and societal burdens that this illness creates. Alcohol treatment rates should therefore be increased to 15% by 2015 (‘15:15’) across all groups of dependent drinkers. Directors of Public Health in Local Authorities are now responsible for commissioning alcohol services from public health budgets, with CCGs responsible for providing treatment for alcohol dependence and complications such as liver disease. The reconfiguration of responsibilities for alcohol services presents a timely opportunity to address the problem of low access to alcohol treatment in England. This report sets out evidence to demonstrate the wide-ranging burden of alcohol dependence, and examines why alcohol treatment rates are so low in England, looking at the barriers that are preventing an improvement in treatment rates. 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND The report also outlines evidence to show the potential benefit for public health, families, wider society and the NHS of improved treatment rates, and makes recommendations aimed at increasing alcohol treatment rates across the country. The findings of this report were informed by interviews conducted by telephone during August 2013. Interviewees included experts in the field of alcohol dependence, treatment providers and the third sector. Extensive desk-based research was also undertaken. 7 Alcohol dependence and the burden it creates Alcohol dependence and misuse place a significant burden not only on the health and quality of life of individuals and their families, but also on public health, wider society and communities, the workforce and the NHS. At a time when public services are facing budgetary pressures, investment in access to alcohol treatment services is vital to ease that pressure and ensure that people stay well and are able to contribute to the economic recovery by staying in work. What is alcohol dependence? Alcohol dependence is defined by NICE as being “characterised by craving, tolerance, a preoccupation with alcohol and continued drinking in spite of harmful consequences (for example, liver disease or depression caused by drinking).”3 NICE explains that alcohol dependence may be diagnosed as mild, moderate or severe.3 Both genetic and environmental factors are important in the development of alcohol dependence, with genetic factors accounting for an estimated 60% of the risk of developing the disorder.14 The term ‘alcohol misuse’ can include dependent drinkers as well as those who are not dependent but consistently drink above recommended limits.15 The consumption of more than 40g of alcohol per day in women and more than 60g per day in men is considered to be a ‘high risk’ level of drinking16 or ‘heavy drinking’.17 A wide-ranging burden Burden on public health Alcohol is toxic to most organs of the body and is a causal factor in more than 60 types of disease and injury.18 Alcohol misuse has been linked to disorders including high blood pressure, heart disease, liver disease, stroke, depression and some cancers. Cancer Research UK has noted that the more alcohol a person drinks, “the higher the risk of developing cancer and other diseases.”19 Excessive alcohol consumption is also seen as “a major source of morbidity and premature death in the UK”20 and the number of alcohol-related deaths has doubled since 1991.9 There were around 15,500 deaths from alcohol-related causes in England in 2010,2 compared to 1,625 deaths related to drug misuse.21 Alcohol is also “strongly linked to health inequalities”, with those from deprived groups suffering far greater alcohol-related harm than people from higher socio-economic groups.22 This considerable burden on public health is highly relevant for Directors of Public Health, who are now responsible for commissioning alcohol services. 8 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND Burden on society and communities The Government’s 2012 Alcohol Strategy estimates that alcoholrelated harm costs society £21 billion annually.1 Alcohol contributes to around 1.2 million incidents of violent crime, and people injured from drink driving constitute 6% of all road casualties.10 Alcohol dependence is linked with increased criminal activity,3 and the annual cost of alcohol-related crime in England is estimated at £11 billion (at 2010-11 costs).23 At a community level, increased criminal activity is clearly undesirable, not least from a community safety perspective. Burden on families NICE notes that alcohol dependence has considerable adverse effects on family members3; this has clear relevance for local authorities’ services for children and families. Alcohol contributes to 40% of cases of domestic violence10 and parental alcohol misuse is present in a number of cases of child abuse and neglect; the NSPCC notes that it was present in 22% of Serious Case Reviews in England between 2007 and 2009.24 It is estimated that in England, 780,000 to 1.3 million children under 16 have parents whose drinking is classed as harmful or dependent, with around 26,000 babies under one having a parent who is a dependent drinker.24 Around 31,000 (33%) adults in alcohol treatment are parents with childcare responsibilities and a further 20% are parents with a child who lives elsewhere.1 And a report by the Children’s Commissioner for England noted that, “Overall, parental alcohol misuse is seen as a much bigger problem than parental drug misuse. […] it appears to be a problem that (largely because of social acceptance of alcohol and stigma attached to its misuse) remains in fact largely hidden and which, as a result, means that children often come to the attention of services much later.”25 Burden on the workforce Lost productivity due to alcohol is estimated at around £7.3 billion per year (at 2009–10 costs, UK estimate).23 It is thought that alcohol dependent employees miss around 11 million working days through alcohol per year, with sickness absence because of alcohol estimated at around 17 million missed working days per year among both alcohol dependent and non-alcohol dependent employees.26 And that is not counting the cost of presenteeism, where employees may be physically at work, but under-performing due to the effects of alcohol. Burden on the NHS Alcohol-related harm is estimated to cost the NHS in England £3.5 billion per year.2 Alcohol-related hospital admissions have risen year-on-year for the last ten years.22 Of over 1.2 million such admissions in England in 201112, more than 300,000 were for “diseases or injuries that were wholly attributable to alcohol consumption or ‘alcohol-specific’”.27 The most common diagnoses were mental and behaviour disorders due to alcohol use; notably, there was a 150% increase between 2002-12 in the number of people aged 60-74 admitted to hospital in England with mental and behavioural disorders associated with alcohol use.28 Meanwhile, almost 50,000 of the admissions were with alcoholic liver disease.27 The Chief Medical Officer has commented that England is one of the few EU countries where liver disease is on the increase.29 Liver disease is now the fifth most common cause of death in the UK,30 with alcohol-related liver disease accounting for over a third (37%) of all liver disease deaths.1 According to the Government’s Alcohol Strategy, the annual cost to the NHS of managing this could be around £1 billion.1 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND 9 Treatments and treatment rates for alcohol dependence Treatments and interventions It is important to put measures in place to help prevent and reduce alcohol harm, and a great deal has already been written on various methods of doing so. However, until political decision makers take decisive steps it is likely that the need for treatment will grow in the future. The World Health Organization has pointed to “good evidence that treatment can reduce the health burden attributable to substance use and possibly the amount of alcohol and drugs consumed in a country, even if treatment alone cannot completely solve the alcohol or drug problem”.31 Depending on the type and severity of alcohol dependence, a range of effective treatments exist. They include assisted withdrawal, which may be managed in a community setting, or in an inpatient or residential setting for those who are severely dependent. Psychological and psychosocial interventions are provided, such as cognitive behavioural therapy focused specifically on alcohol misuse. Pharmacological interventions may also be prescribed to help reduce drinking, achieve and maintain abstinence, and avoid relapses. Both abstinence and reduction goals should be considered as part of a comprehensive treatment approach for patients with alcohol 10 dependence.32 Research shows that offering patients the option of reduced-risk drinking “brings patients into treatment who would not be inclined to be treated; [and] it engages patients into treatment early in the course of their disorder”.33 Similarly, the British Liver Trust notes that offering reduced drinking as an option may recruit less severely dependent problem drinkers into treatment, who may be put off by abstinencefocused services aimed at more dependent drinkers; at the same time, people with more severe dependence may also benefit from having a range of options.30 Enabling patients to have a choice over their treatment goals could, therefore, contribute to narrowing the treatment gap in England. Under the auspices of Public Health England, data is collected on structured alcohol treatment at the more specialist end of intervention, for people with “multiple or more severe needs”.34 In 2011-12, data showed that 51% of people in structured alcohol treatment in England accessed structured psychosocial interventions, while 10% received inpatient treatment, 11% a prescribing intervention, 9% structured day programmes, 4% residential rehabilitation and 40% interventions logged as ‘other structured intervention’.35 Low treatment rates Only around 6% per year of dependent drinkers in England receive treatment.2,3,4 In 2011-12, there was a slight increase in the number of people entering specialist treatment for alcohol problems in England, but a slight decrease in the number who were in treatment compared to the previous year. Whilst it is positive that the decrease is attributed to the number of successful treatment completions,2 significant progress is required to enable more people to receive the help they need. The 6% treatment rate is well below the 15% rate regarded as ‘medium’ level of access to treatment according to the North American Rush model of access,5 which is the best currently available benchmark. Furthermore, the treatment rate in England is low compared to other countries. In 2012, a European Commissionfunded study ranked England fifth out of six countries in terms of the percentage of the in-need population accessing specialist treatment for alcohol dependence – below Italy (23.3%), Spain (18.1%), Austria (11.2%) and Switzerland (9.4%-15.6%).6 Although factors such as data collection variations need to be taken into account when making comparisons between countries, these figures nonetheless indicate that increasing the rate of access to treatment in England to 15% is a modest goal. 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND Why are treatment rates low? A range of factors are thought to contribute to alcohol treatment rates in England remaining low, not least historical underfunding compared to drug services, which impacts on service provision and waiting times. At the same time, there are low referral rates to alcohol dependence treatment, which could be improved with better identification and earlier treatment of alcohol problems. There is no single solution, however; both supply and demand issues need to be addressed if the treatment access rate is to be raised to 15%. Treatment access issues for some groups Only around 6% of people who are alcohol dependent in England currently receive treatment.2,3,4 For the treatment rate to be raised to 15%, it is also important to understand who may be in need of treatment but is not accessing it. The Department of Health has commissioned research to examine the in-need population in detail,36 but there are already some indications as to who is not receiving treatment. For example, there is geographic inequity in access rates to specialist treatment services for dependent drinkers across England, which according to research by Alcohol Concern range from as low as 0.5% in Dudley to 6.4% in Ealing.10 Furthermore, some experts interviewed for this report believe that issues around parenting and childcare create specific access barriers to treatment for women, and NICE has referred to the need for specialist alcohol services to be “sensitive to the particular needs of women”.37 NICE has also discussed the under-representation of people from ethnic minority groups in specialist alcohol treatment services37 and has noted that homeless people who misuse alcohol may find it hard to attend planned appointments.37 Meanwhile, specific access barriers for older people may include lack of transportation and mobility problems.38 Younger people’s access to alcohol treatment may also need to be explored further. Between 2002 and 2012, hospital admissions for alcohol-related liver disease increased by 117% among under30s in England.39 Against this backdrop, the highest levels of alcohol dependence have been identified in younger people – for men in 25-34-year-olds (16.8%) and for women in 16-24-yearolds (9.8%).40 However, “just 16%” of people in alcohol treatment in 2011-12 were aged 18-29.2 Although the data on younger people who are alcohol dependent and those who are in treatment do not match exactly in terms of age groups, they suggest that younger people may be under-represented in treatment. 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND With regard to levels of alcohol dependence, there is some anecdotal evidence from experts that those receiving treatment tend to be at the more severe end of need; this indicates that, whilst there may be some good practice in identifying and treating lower levels of dependence, there are also gaps in early identification and intervention before people become severely dependent. Alcohol Concern has noted a 24% rise in the number of people in England with moderate to severe alcohol dependence between 2000 and 2007,40 which also suggests that lower levels of dependence are not being addressed at an earlier stage. The issue of problems not being identified early on is highlighted by the 2013 National Confidential Enquiry into Patient Outcome and Death (NCEPOD) report on patients who died with alcohol-related liver disease. The report concludes that there may be opportunities for earlier intervention, which could prevent more serious problems developing, and recommends alcohol misuse screening for all patients who present to hospital services.41 11 Improving treatment rates: supply-side barriers Similarly, one reason why only around 6% of dependent drinkers receive treatment in England is thought by NICE to be under-identification of alcohol misuse by health and social care professionals, “leading to missed opportunities to provide effective interventions.”3 A 2013 research report also found that, “Opportunities are also being missed to identify and treat alcohol dependence as early as possible.”22 Alcohol problems are not always obvious, however. For example, NICE notes that the prevalence of alcohol-use disorders among older people may be under-detected “because of a lack of clinical suspicion or misdiagnosis.”37 This is despite an increasing proportion of older people drinking above recommended levels37 and older people being “uniquely vulnerable to alcohol problems” because of changes related to the ageing process.38 More broadly, the charity Adfam explains that many people who misuse alcohol are able to stay in employment and continue to function fairly normally for “considerable periods of time”, which “can add to the confusion about both the existence and severity of the problem.”42 Nonetheless, if treatment access rates are to be improved, it is important that alcohol problems are identified in people who may not be seen as having a problem because they do not look like a stereotypical alcoholic. 12 Underfunding of alcohol treatment services Alcohol treatment services have been historically underfunded in England compared to drugs services. Alcohol Concern has calculated an annual spend of £217 million on alcohol treatment for an estimated 1.6 million dependent drinkers – £136 per dependent drinker.10 In comparison, the annual spend on drug treatment for the estimated 332,000 dependent drug users is £436 million – £1,313 per dependent drug user.10 It is essential that alcohol services receive a level of investment that is not only comparable with drugs services, but also proportionate to addressing the huge burden of alcohol dependence outlined earlier in this report. Limited provision of alcohol treatment services Given the historical under-funding of alcohol treatment services, it is perhaps unsurprising that NICE views “the limited availability of specialist alcohol treatment services in some parts of England” as one of the reasons why only around 6% of dependent drinkers receive treatment.3 Anecdotal evidence from experts also suggests that the provision and capacity of treatment services may vary across the country. Some believe that a range of types of alcohol treatment are provided, whilst other experts perceive issues regarding access to psychosocial treatment, detoxification and rehabilitation services. Similarly, NICE notes “a lack of structured intensive community-based assisted withdrawal programmes”, and “limited access to psychological interventions such as cognitive behavioural therapies specifically focused on alcohol misuse.”3 Waiting times The limited provision of alcohol treatment services means that people wait longer to receive treatment. Although waiting times have improved, with 85% of people waiting fewer than three weeks to start specialist treatment in 2011-12, compared to 82% in 2010-11, the body which compiled these statistics admits that “there remains plenty of room for further improvement.”2 Indeed, several experts interviewed for this report consider waiting lists to be a major barrier to treatment access. It is important that people are able to enter treatment swiftly, while they are ready to do so. Furthermore, there are indications that waiting times are exacerbated by bureaucracy. With regard to treatment for alcohol dependence, the Government comments that, “Service users are often frustrated at having several assessments before they go into treatment.”43 Dr Carsten Grimm, a GP and clinical lead of the alcohol treatment service in Kirklees, notes that in some areas service users have to “fail” in a treatment tier before being able to access treatment in the next tier (alcohol treatment is categorised in Tiers 1-4, Tier 1 being the lowest). Although the extent to which this process is followed is unclear, appropriate care should not be delayed in this way. 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND Improving treatment rates: demand side barriers Service integration issues Where alcohol dependence has been identified, it is crucial that people are given the help they need. However, there is anecdotal evidence from experts that people with both alcohol dependence and mental health problems find it difficult to access treatment because neither alcohol services nor mental health services are willing to take them on as patients; some people with a dual diagnosis are understood to have been ‘bounced’ between the two services. The extent to which the buck is being passed in this way is unclear; nevertheless, an integrated approach with clear responsibilities for care is essential to meet people’s treatment needs. Low referral rates to alcohol treatment services Evidence indicates that there is significant room for improvement in the extent to which healthcare professionals identify alcohol problems and refer people to treatment services. GPs and A&E are perhaps the most obvious ‘gateway’ professionals who may come into contact with dependent drinkers. Yet only 1% of referrals to specialist alcohol treatment in 2011-12 were by hospital A&E departments, and whilst 19% of referrals were by GPs, it is recognised that “this is not an especially high figure given that around one in five people seeing a GP drinks above lowerrisk levels.”2 A survey of GPs in England found low levels of motivation for addressing problem or dependent drinkers’ alcohol issues, with busyness, lack of training or contractual incentives cited as key barriers. It is also of concern that “GPs were significantly less motivated to work with dependent drinkers than with problem drinkers”.44 More broadly, a range of health and social care professionals could help in addressing alcohol problems. For example, Dr Paul Richardson, a consultant 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND hepatologist, highlights the need for clinicians in secondary care to identify people who would go on to develop severe medical and/or social problems if action was not taken. At Royal Bolton Hospital, a multi-disciplinary Alcohol Care Team has been developed to try and reduce alcohol-related admission; the initiative features as a recommended example in NICE’s QIPP Collection.45 Professionals such as staff in medical wards, community care, housing services and day centres could also play a role in recognising alcohol problems; appropriate training would be required to ensure they felt confident and capable of doing so. Indeed, NICE comments that “the provision of care for people who misuse alcohol is not solely the responsibility of the agencies and staff who specialise in alcohol treatment. Staff across a wide range of health, social care and criminal justice services who are not exclusively working with people who misuse alcohol but regularly come into contact with them in the course of providing other services also have a crucial role to play in helping people to access appropriate care.”37 13 Low awareness of alcohol treatment services Issues around visibility and awareness of alcohol services among healthcare professionals such as GPs could be a barrier to treatment access, as several expert interviewees noted. It was thought that reasons for low awareness/visibility could include the fragmented organisation of alcohol services or even the names of services not clearly denoting what they do. Interviewees also highlighted that awareness of alcohol services among potential service users could be a barrier to accessing treatment. Indeed, research confirms that a lack of awareness about available services may contribute to delays in problem alcohol users seeking help.46 14 Lack of clarity around definitions of dependence Referral rates for alcohol treatment could also be affected by varying interpretations of the term ‘alcohol dependence’; several interviewees thought that a lack of clarity in definitions could be a barrier to treatment. According to the charity Adfam, family members have reported that their difficulties have been compounded by a lack of clarity among professionals, including alcohol practitioners, on what is meant by an ‘alcohol problem’.42 A clear understanding of alcohol dependence, and potentially alcohol problems more broadly, is fundamental in enabling people to receive the help they need. Stigma and readiness for treatment Research shows that stigma acts as a barrier to accessing treatment for problem alcohol users;46 this was confirmed by several experts who were interviewed for this report. Dr Tony Rao, Consultant Old Age Psychiatrist and Visiting Researcher, commented that stigma is even more of a problem for older people, who may view drinking as a moral weakness. Furthermore, several experts note that people with drinking problems may feel that there is stigma attached to using services which also treat drug problems; the charity Adfam has also recognised this issue.42 Some experts note that potential service users’ readiness for treatment could be a barrier to treatment, although services are seen as responsible for engaging people. The role of family support in helping people access treatment was also noted; Joss Gaynor of Adfam explained that families are crucial agents of change, and that working with the family means that they can support the treatment process. 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND Why should treatment rates be increased? Alcohol dependence imposes considerable burdens on public health, families and wider society, as well as the workforce and the NHS. Improving treatment rates for alcohol dependence could, therefore, have a positive impact in all of these areas, several of which have direct relevance for local authority budgets. Evidence shows that for every £1 invested in specialist alcohol treatment, £5 is saved on health, welfare and crime costs.10 And treatment for alcohol dependence has proven results; well over half (57%) of people exiting treatment in 2011-12 were no longer dependent on alcohol.35 If access to treatment was much better and there was improved identification of alcohol problems and early intervention, the potential benefits would be more widely felt. Allowing treatment rates to remain low, or even to worsen, would be a missed opportunity not only to improve the lives of individuals and families affected by alcohol dependence, but also to tackle the associated economic and societal costs. The potential positive impact of improving access to treatment means that we can’t afford not to take action now. Benefit to public health Research shows that alcohol dependence treatment “not only helps the individuals affected, but also substantially improves public health in general.”7 The Government’s 2012 Alcohol Strategy also notes that successful treatment of alcohol dependence has “been shown to prevent future illnesses.”1 Similarly, NICE reports that commissioning highquality alcohol services using an integrated, whole-system approach can increase access to evidencebased interventions, which could improve outcomes for people, such as better health, wellbeing and relationships.47 Benefit to society and communities The National Audit Office recognises the cost-effectiveness of many interventions for alcohol misuse, and acknowledges that the cost of providing the interventions is outweighed by ‘full social cost’ savings resulting from lower alcohol consumption – for example, lower criminal justice system costs resulting from a reduction in alcohol-related crime and disorder.49 A US study highlighted by NICE in 2013 also demonstrates that the use of alcohol treatment for people with alcohol dependence results in a reduction in social costs;50 the study examined social costs associated with health care, arrests, and motor vehicle accidents.51 Alcohol treatment experts have indicated that improving alcohol rates could have a significant public health benefit. One NHS Medical Director, commented that, “The impact on public health of improving treatment rates would be great, for example in reducing the stress, psychological distress, mental health issues and chronic illness that go along with alcohol dependence.” At a local level, communities could also benefit from the effects of improved treatment rates for alcohol dependence, particularly with regard to community safety. NICE notes that commissioning high-quality alcohol services using an integrated, whole-system approach could improve “quality of life for the community by reducing alcohol-related crime and anti-social behaviour”.47 In addition, given the current shortage of donated livers for transplantation,48 any intervention that decreased the need for a donated organ would reduce the burden of need. The public health benefit of increasing treatment rates is of direct relevance for Directors of Public Health who are now responsible for commissioning alcohol services. 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND 15 Benefit to families Joss Gaynor of the charity Adfam, which works with families affected by drugs and alcohol, explains that, “Treatment is a real opportunity for families to stay together and for children to stay with parents. It could and should improve the lives of families and enable families to work together towards recovery.” NICE also recognises the potential benefit that alcohol treatment can deliver for families. For example, implementing the NICE guideline on alcohol-use disorders, which aims among other things to “improve access and engagement with treatment and services for people who misuse alcohol”,37 would lead to a reduction in domestic violence associated with harmful alcohol use.8 NICE has also noted that commissioning high-quality alcohol services using an integrated, whole-system approach could prevent family breakdown.47 A German study has shown that alcohol treatment can also result in families being better off financially. The study concluded that monthly family costs which were directly related to a family member’s alcoholism dropped from an average of £529.91 to £113.90 after twelve months of treatment – or a reduction from 20.2% to 4.3% as a proportion of the total pre-tax family income. In addition, there was a reduction in time spent caring for the family member with alcohol dependence, from an average of 32.2 hours to 8.2 hours per month.52 Benefit to the workforce Increasing alcohol treatment rates may also have a positive impact on the workforce, which benefits the economy at both local and national level. For example, NICE states that implementing its guideline on alcohol-use disorders will lead to a reduction in employee absenteeism associated with harmful alcohol use.8 In addition, research by the Chartered Institute of Personnel Development (CIPD) shows that where employers help staff with alcohol and/or drug problems through referral to specialist treatment or rehabilitation support, over 60% of those people continue working for the organisation after overcoming their problems.53 Benefit to the NHS The Government’s 2012 Alcohol Strategy clearly states that, “Increasing effective treatment for dependent drinkers will offer the most immediate opportunity to reduce alcohol-related admissions and to reduce NHS costs.”1 With each alcohol dependent person costing the NHS around £1800 per year,8 the impact of increasing treatment rates could be considerable. Research shows that specialist treatment results in savings of almost £1138 per dependent drinker over a six-month period. Furthermore, it has been estimated that as many as 1,200 alcohol-related hospital admissions could be averted “for every additional £1m invested in appropriate levels of accessible, evidence-based treatment”.12 Meanwhile, Alcohol Concern has called for investment in alcohol services to be doubled, which would save the NHS £1.7billion.10 And whilst increasing the number of people who receive specialist treatment would increase treatment costs, NICE notes that “investing in cost-effective interventions will probably generate sufficient savings to outweigh the additional costs of increasing the number of people that access services.” For example, “considerable potential savings” could result from a reduction in disease burden, with the cost of hospital admissions which are wholly attributable to alcohol estimated at around £1450 per person, and the indicative cost of admissions which are partially attributable to alcohol thought to be around £1750 per person. NICE estimates that fully implementing its guideline on alcohol-use disorders in England would result in a saving of around £9.3 million, with estimated savings of around £18,600 for a population of 100,000.8 16 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND Recommendations Increased funding for alcohol treatment services Treatment access for under-represented groups The enormous burden of alcohol dependence necessitates adequate funding for alcohol treatment services. Commissioners should “invest to save” and increase funding for alcohol treatment services, to save both money and lives. Building on the Department of Health’s work to examine the in-need population, Health and Wellbeing Boards should ensure that there is a clear picture at local level of which groups of people are under-represented in alcohol treatment, and that any specific barriers to treatment access for these groups are addressed. Clear responsibility for identifying and addressing alcohol problems Commissioners should ensure that there is clear responsibility around helping people to access the care they need, from identification of alcohol problems through to provision of integrated care, e.g. through clear care pathways. There should also be responsibility for funding across the different parts of the care pathway. Effective screening for alcohol misuse Directors of Public Health should ensure effective screening for alcohol misuse, in line with the principle of “making every contact count”, in order to identify problems before people become severely dependent. The Government should ensure that NHS Health Checks, including alcohol harm screening, are properly rolled out, monitored for uptake and assessed for effectiveness. Uptake of health checks should be encouraged. Training on alcohol issues In order to ensure that “every contact counts”, the Government and local authorities should ensure that alcohol awareness training forms part of the compulsory training of all front line staff. All such staff need to feel confident and capable of screening for alcohol both formally using a tool, and informally, be able to develop simple tailored advice and be aware of local referral pathways to specialist support. Implementation of NICE guidelines Commissioners should ensure that alcohol treatment services follow NICE and other appropriate guidelines, meet quality standards and have outcome measures in place. Reduced waiting times for treatment Local commissioners and providers should continue to reduce waiting times for alcohol treatment, and ensure that treatment is appropriate to the level of dependence. Improved awareness of alcohol treatment services Directors of Public Health should ensure greater awareness of alcohol treatment services among potential service users. De-stigmatising seeking help Public Health England, in partnership with relevant expert voluntary sector organisations and other stakeholders such as providers and professional groups, should explore options to de-stigmatise ‘seeking help’ for alcohol problems, e.g. through a public health campaign. 15:15 THE CASE FOR BETTER ACCESS TO TREATMENT FOR ALCOHOL DEPENDENCE IN ENGLAND 17 References 1 HM Government, The Government’s Alcohol Strategy, March 2012 2 National Treatment Agency for Substance Misuse, Alcohol Treatment in England 201112, January 2013 3 NICE, Alcohol-use Disorders: Diagnosis, assessment and management of harmful drinking and alcohol dependence, clinical guidance 115, February 2011 4 NICE, New guidance to tackle alcohol problems. Accessible online at: http:// www.nice.org.uk/newsroom/news/ NewGuidanceToTackleAlcoholProblems.jsp (last accessed 5 September 2013) 5 Rush, B (1990) A systems approach to estimating the required capacity of alcohol treatment services, British Journal of Addiction, 85: 49-59 6 Alcohol Public Health Research Alliance, Alcohol Policy in Europe: Evidence from AMPHORA 2012 7 Rehm J et al., Alcohol consumption, alcohol dependence and attributable burden of disease in Europe: Potential gains from effective interventions for alcohol dependence, 2012 8 NICE, Alcohol use disorders: alcohol dependence. Costing report. 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