Depression Pathway LCFT localised Map pathway June 2009 Instructions: Instructions: Throughout this pathway if you click on the Bookmarks tab to the left of the screen and then click on the various documents you will find additional information to explain the steps in the process People may enter the pathway at different steps, depending on severity and previous history. Within the steps, there are choices for people about the type of treatment that suits them best. It is a needs led process; people may move directly to the appropriate level and move between levels, to suit their needs. Presentation of Depression in Primary Care Box 1 Screening e Nic 6 pg Box 2 KEY Step 1 Assessment Box 3 Step 2 Patient Education Box 4 Step 3 Step 5 Where mild depression persists after other interventions or is associated with psychosocial and medical problems, or if a patient has a history of moderate or severe depression and presents with mild depression. Consider move to Step 3 moderate to severe depression Box 6 Possible treatment options Box 7 Watchful Waiting Box 8 e c i N 7 pg Signposting Box 15 Sleep & Anxiety Management Box 16 Exercise Box 17 e Nic 7 pg Guided self help Box 18 e Nic 7 pg e Nic 7 pg Further assessment after 2 weeks Box 9 Improving Box 10 Consider another Step 2 Option Box 14 Discharge Box 13 Treatment of Moderate Depression Box 21 Treatment of Severe Depression Box 22 Social Interventions Box 20 Consider referral/joint working with Specialist Mental Health Services Box 24 Treatment options (consider patient choice) Box 23 e Nic 8pg 0 1 Anti depressant medication (in moderate depression offer anti depressant medication routinely before psychological interventions Box 25 Psychological Interventions also consider MBCT (mindfulness based cognitive therapy) Box 19 e Nic 7 pg Throughout the Step 2 process, use clinicaljudgement and patient choice to decide the number of Step 2 options to try before considering a move to Step 3. Consider a move to Step 3 if: Two interventions have been tried at Step 2 with no improvement One intervenetion has been tried with no improvement and there are employment/ accommodation issues or physical health is at risk Completely improved Box 12 Further assessment after 2 weeks Box 11 Consider move to Step 3 Moderate or Severe Depression Throughout the pathway continued to consider: Risk review and management as indicated by the needs identified Safeguarding Children and Protecting Vulnerable Adults Support Needs of Carers and family Socially Inclusive Practice Consider identifying occupational need Treatment of mild depression Box 5 Step 4 e Nic 11 pg Combination of Antidepressant medication and individual CBT (in severe depression a combination should be considered as it is more cost effective than other treatments on their own) Box 26 Treatment of depression by mental health specialists Box 27 Referral received at single point of access Box 28 Allocation of care co-ordinator Box 29 See ECPA Policy bookmark Full Assessment Box 30 e Nic 12 pg Severly depressed and at risk of self harm or suicide Box 31 Depression.vsd No Box 32 Discuss diagnosis and treatment options with the patient with a view to gaining agreement about the treatment plan Box 35 Yes Box 33 Straight to Step 5 Box 34 e Nic 13 pg Psychotic Depression Box 36 e Nic 12 pg Treatment Resistent Depression Box 37 Inpatient Care via Crisis/Home Treatment Teams Box 40 e Nic 14 pg e Nic 13 pg Recurrent Depression Box 38 Atypical Depression Box 39 e Nic 13 pg If individual refuses treatment consider assessment under Mental Health Act Box 41 1 Pathway Principles We will work in partnership with service users and their carers to support them in remaining as well as possible and in maintaining and improving their health and quality of life. Our services will focus on mental wellbeing as well as mental ill health. People with mental health problems have the same rights as other citizens. In particular, they have the right to be consulted and actively involved in the planning of their care, regardless of their level of disability. The service will, at all times, treat individuals with dignity and respect. This involves: x Being sensitive to issues of age, gender, race, disability and sexual orientation. x Respecting the rights of the individual and separate rights of carers and addressing these rights separately, or together with, the cared for person. x Promoting wellbeing through inclusion and independence x Developing opportunity through learning and providing information. x Working in partnership with service users and their carers x Offering treatment and care with hope and optimism. x Taking time to build supportive and empathic relationships The stepped care model. In line with NICE Guidelines, this pathway is presented within a stepped care framework that aims to match the needs of individual people with depression to the most appropriate services, depending on the characteristics of their illness and their personal and social circumstances. Each step represents increased complexity of intervention, with higher steps assuming interventions in previous steps remain relevant. People enter the clinical pathway at different steps, depending on severity and previous history. Within steps, there are choices for people about the type of treatment that suits them best. It is a needs led process; people may move directly to the appropriate level and move between levels, to suit their needs. Step 1: Recognition in primary care and general hospital settings Step 2: Treatment of mild depression in primary care Step 3: Treatment of moderate to severe depression in primary care Step 4: Treatment of depression by mental health specialists Step 5: Inpatient treatment for depression X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Pathway Principles.doc Page 1 of 3 Things to take into consideration when using this map. This map should provide a useful reference for professionals in the diagnosis and treatment of depression. However, these guidelines do not override the individual responsibility of health professionals to make decisions appropriate to the circumstances of the individual patient, in consultation with the patient and, if appropriate, their carers or independent mental health advocate. Depression in Children These guidelines do not address the assessment or treatment of children/young people under the age of 18 with depression. Older Adults These guidelines can be used with older adults, with specific differences in assessment and treatment being taken into account. Bipolar Disorder Also known as Manic Depression, Bipolar Disorder is an illness that affects mood, causing a person to switch between feeling very low (depression) and very high (mania). Treatment of Bipolar Disorder is not covered by these guidelines. Check for history of hypomania in all adults presenting with depression. Co-morbidities Psychiatric and other co-morbidities (e.g. physical illness) need to be taken into consideration when following these guidelines. When symptoms of depression are accompanied by symptoms of anxiety, the first priority should usually be to treat the depression. Consideration needs to be given to depression as a possible side effect of current medication. Competency Level Consideration must be given to the level of competency required to deliver effective care. Capacity to Consent The capacity of the person to consent to treatment should be assessed each time a change is being considered. An individual is presumed to have the capacity to make an admission and/or treatment decision unless s/he, on the balance of probabilities, is unable to: • Understand and believe the main elements of their treatment plan; and/or • Retain such information for long enough to make a judgment about it; and/or • Weigh such information in the balance; and/or • Take and communicate an informed choice regarding it. X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Pathway Principles.doc Page 2 of 3 Early Detection and Recognition of Depression x x x x x x x x x x The socially isolated Those with ongoing relationship problems Past history of depression Family history of depression Anticipated or actual adverse events Concurrent physical illness (particularly chronic conditions) Women up to 12 months post childbirth (Ten percent of new mothers are likely to develop a depressive illness) Drug and alcohol misusers Care home residents Men aged over 75 years Presentations of Depression x x x x x Vague physical symptoms – tiredness, aches and pains, poor sleep, weight or appetite change, poor concentration Repeated consultation for minor physical symptoms Patient whose symptom severity/disability is out of proportion to its causes Social dysfunction – drug/alcohol use, relationship failure, anger, aggression, frequent absence from work Bonding difficulties Suicide Risk x x Suicide risk is not solely dependent upon a diagnosis of depression. For example, amongst young people experiencing their first onset of untreated psychosis 20 to 30% are a danger to themselves or others, including suicide attempts The possibility that the person is at risk of suicide should be fully assessed in the presence of known high risk factors X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Pathway Principles.doc Page 3 of 3 Depression Pathway Guidance Notes Box 1 Presentation Individual presents in a primary care location for example, GP surgery etc Box 2 Screening NICE guidance recommends primary care routinely screens certain high risk groups x Patients with significant physical illness x Patients with other mental health problems, such as dementia x Patients suffering major life events, eg. Childbirth, long-term/recent unemployment and bereavement x Patients with a history of relationship difficulties and physical, sexual or emotional abuse Screening questions: During the last month have you been bothered by feeling down, depressed or hopeless? During the last month, have you often been bothered by having little interest or pleasure in doing things? Box 3 3a Assessment and categorization If screening identifies a possible depression, a more comprehensive assessment must be conducted. The assessment should involve standardized measures of: x Severity of depression; mild, moderate or severe x Risk: patients with depression should always be asked directly about suicidal thoughts and intent x Other relevant psychosocial factors: o Previous mental health problems including treatment and outcome o If history of hypomania see NICE Guidelines for Bipolar/Affective Disorder o Family history of mental health problems o Associated disability (ask how the patient is when s/he is well o Availability of social support X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Guidance notes.doc Page 1 of 10 o Social problems (family disputes, financial, employment) o Alcohol and drug use x Ruling out of other causes (testing of thyroid function) x Checking for Seasonal Affective Disorder (clear seasonal pattern). 3b Assessment This may be most appropriately done by the GP but could be completed by a variety of appropriately trained health professionals, eg Health Visitor 3c Factors Assessment must take into account that depression can present differently in different groups: eg young/old men/women, ethnic groups etc. Older Adults: x Older adults are more likely to report altered sleep, loss of appetite, agitation and somatic complaints. They are less likely to express low mood and suicidal intent x Depression may appear as dementia due to poor nutrition or other physical condition x Key symptoms for older adults might include complaints that memory is poor, and somatic complaints x Associated symptoms for older adults might include negative and nihilistic thoughts, withdrawal and disengagement 3d Key Symptoms x x x Persistent sadness or low mood Loss of interests or pleasure Fatigue or low energy At least one of these, most days, most of the time for at least 2 weeks 3d Associated Symptoms x x x x x x x Disturbed sleep Poor concentration or indecisiveness Low self-confidence Poor or increased appetite Suicidal thoughts or acts Agitation or slowing of movements Guilt or self-blame X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Guidance notes.doc Page 2 of 10 Box 4 Patient Education There is a need for discussion with the patient about diagnosis and treatment options, with a view to gaining agreement about the treatment plan. This will involve: x Consideration of the person’s capacity to consent x Feedback to patient on the outcome of the assessment x Providing patient information leaflets and other sources of information (eg. NHS Direct website, Patient Advice and Liaison Service, NICE Patient Information Leaflet, Beyond Blue website) x Discussing treatment options x Give patient information on who to contact if they have questions or concerns x Consideration of any advance directives/statements or other expression of patient choice x Provide information on recovery statistics Box 5 Mild depression x Has four symptoms including at least one key symptom Box 6 No further information. Box 7 Possible treatment options – mild depression x x Consider patient choice and availability Arrange follow up to monitor progress (telephone follow-up reduces workload and can almost double remission) If post natal consider health visitor support X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Guidance notes.doc Page 3 of 10 Box 8 Watchful waiting x x For individuals who do not want to have an intervention The health professional thinks the individual will recover without an intervention Box 9 Further assessment after 2 weeks Box14 No additional information Box 15 Signposting Help the individual to find appropriate local or national statutory or voluntary organizations, depending on cause of depression and contributing factors Box 16 Sleep and Anxiety Management x x Look at lifestyle habits not conducive to sleep Refer to NICE Guidelines for anxiety managment Box 17 Exercise: Advise patients of all ages with mild depression of the benefits of following a structured and supervised exercise programme. Effective duration of such programmes is up to 3 sessions per week of moderate duration (45 minutes to 1 hour) for between 10 to 12 weeks. X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Guidance notes.doc Page 4 of 10 Box 18 Guided Self Help For patients with mild depression, consider a guided self-help programme that consists of the provision of appropriate written materials and limited support over 6 to 9 weeks, including follow up, from a professional who typically introduces the self-help programme and reviews progress and outcome. Box 19 Psychological Interventions: x x x x In mild and moderate depression, consider psychological treatment specifically focused on depression (problem-solving therapy, brief CBT and counseling) of 6 to 8 sessions over 10 to 12 weeks Offer the same range of treatments to older people as to younger people In psychological interventions, therapist competence and therapeutic alliance have significant bearing on the outcome of intervention Where significant co-morbidity exists, consider extending treatment duration or focusing specifically on co-morbid problems Box 20 Social Interventions: Social Services, Citizen Advice Bureau, Housing, Community work etc Box 21 Moderate Depression: Has 5-6 symptoms including at least 1 key symptom Box 22 Severe Depression: Has over 7 symptoms including at least 1 key symptom X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Guidance notes.doc Page 5 of 10 Box 23 Possible Treatment Options: x Consider patient choice Box 24 Consider referral and joint working with specialist mental health services if: x x x x High risk of suicide or self-harm, or Significant degree of functional impairment Presence of significant physical or psychiatric co-morbidity Medical history suggests referral to secondary care as the most appropriate step Box 25 Antidepressant medication x In moderate depression offer anti depressant medication to all patients routinely before psychological interventions. Refer to NICE Guidance, Page 8-10) Box 26 Combination of anti depressant medication and individual CBT x When individual presents initially with severe depression, a combination should be considered as it is more cost effective than either treatment alone, (NICE Guidance, page 11) Box 30 Step 4: Treatment by depression by mental health specialists including crisis teams x Assess patients with depression referred to specialist care, including their symptom profile and suicide risk and, where appropriate, previous treatment history. Where the depression is chronic or recurrent, assess psychosocial stressors, personality factors and significant relationship difficulties as well x Consider re-introducing any previous treatments that were inadequately delivered to adhered to x Crisis resolution teams should be used as a means of managing crises for patients who have severe depression and are assessed as presenting significant risk X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Guidance notes.doc Page 6 of 10 x Medication in specialist services should be initiated under the supervision of a consultant psychiatrist Full Assessment x x x x Symptom profile Suicide risk Consider social factors Consider carer needs Box 32-34 No additional information Box 35 Discuss diagnosis and treatment options with patient, with a view to gaining agreement about the treatment plan. This will involve: x x x x x Feedback to patient on the outcome of the assessment Provide patient information leaflets and other sources of info (eg NHS Direct website) Discussing treatment options Give patient information on who to contact if they have questions or concerns Consider any advance directives/statements or other expression of patient choice Box 36 Special considerations Psychotic depressions x For patients with psychotic depression, consider augmentation of the current treatment plan with antipsychotic medication Box 37 Treatment-resistant depression: x For all people whose depression is treatment resistant, consider the combination of antidepressant medication with individual CBT of 16-20 sessions over 6 to 9 months X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Guidance notes.doc Page 7 of 10 x For patients with treatment-resistant moderate depression who have relapsed while taking, or after finishing, a course of antidepressants, consider the combination of antidepressant medication with CBT x Consider a trial of lithium augmentation for patients whose depression has failed to respond to several antidepressants and who are prepared to tolerate the burdens associated with its use x Before initiating lithium augmentation carry out an ECG x If venlafaxine has not been used before, it may be considered for patients whose depression has failed to respond to two adequate trials of alternative antidepressants. The dose can be increased up to BNF limits if required, provided patients can tolerate the side effects. See step 3 for prescribing advice x Consider augmenting an antidepressant with another antidepressant (there is evidence for benefits of adding mianserin or mirtazapine to SSRIs) x When augmenting one antidepressant with another, monitor carefully (particularly for the symptoms of serotonin syndrome), and explain the importance of this to the patient x When augmenting an antidepressant with mianserin be aware of the risk of agranulocytosis, particularly in older adults x Re-evaluate the adequacy of previous treatments and consider seeking a second opinion if considering using combinations of antidepressants other than mianserin or mirtazapine with SSRIs. Document the content of any discussion in the notes x Consider phenelzine for patients who have failed to respond to alternative antidepressants and who are prepared to tolerate the side effects and dietary restrictions associated with its use. Consider its toxicity in overdose when prescribing for patients at high-risk of suicide x Augmentation of an antidepressant with carbamazepine, lamotrigrine, buspirone, pindolol, valproate or thyroid supplementation is not recommended in the routine management of treatment-resistant depression x Consider referring patients who have failed to respond to various strategies for augmentation and combination treatments to a clinician with a specialist interest in treating depression x Dosulepin should not be used routinely because the evidence supporting its tolerability relative to other antidepressants is outweighed by the increased cardiac risk and its toxicity in overdose x There is insufficient evidence to recommend augmentation of antidepressants with benzodiazepines X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Guidance notes.doc Page 8 of 10 Box 38 Recurrent depression and relapse prevention Pharmacological treatments x Continue antidepressants for 2 years for people who have had two or more depressive episodes in the recent past and who have experienced significant functional impairment during the episodes x Re-evaluate patients on maintenance treatment, taking into account age, comorbid conditions and other risk factors in the decision to continue the treatment beyond 2 years x Maintain the antidepressant dose used for relapse prevention at the level at which acute treatment was effective x Patients who have had multiple episodes of depression, and who have had a good response to treatment with an antidepressant and lithium augmentation, should remain on the combination for at least 6 months x When patients are taking an antidepressant with lithium augmentation, if one drug is to be discontinued, this should be lithium in preference to the antidepressant Box 39 Atypical depression x Consider prescribing phenelzine for women whose depression has atypical features, and who have not responded to, or who cannot tolerate, an SSRI. Consider its toxicity in overdose when prescribing for patients at high risk of suicide x All patients receiving phenelzine require careful monitoring (including taking blood pressure) and advice on interactions with other medicines and foodstuffs, and should have their attention drawn to the product information leaflet Box 40 Step 5: Inpatient treatment for depression Inpatient care Inpatient treatment should be considered for people with depression where the patient is as significant risk of suicide or self-harm X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Guidance notes.doc Page 9 of 10 Crisis resolution teams should be considered for patients with depression who might benefit from an early discharge from hospital after a period of inpatient care Box 41 See Adult Admission/Discharge Pathway X:\1 Service Transformation\Current Projects\Supporting Clinical Decision Making\Care Pathways\Authoring Teams\2009.04.07 Depression\LCFT Pathway June\Guidance notes.doc Page 10 of 10 Issue date: December 2004, with amendments April 2007 Quick reference guide (amended) Depression: management of depression in primary and secondary care Amendment of recommendations concerning venlafaxine: April 2007 On 31 May 2006 the MHRA issued revised prescribing advice for venlafaxine*. This amendment brings the guideline into line with the new advice but does not cover other areas where new evidence may be available. NICE expects to make a decision on a full update later in 2007. The revised sections are marked in italics on pages 8, 9,10 and 12 of this quick reference guide. *See www.mhra.gov.uk/home/idcplg?IdcService=SS_GET_PAGE&useSecondary=true&ssDocName=CON2023843&ssTargetNodeId=389 Clinical Guideline 23 (amended) Developed by the National Collaborating Centre for Mental Health Contents Contents Which NICE guideline? 3 The stepped care model 3 Key priorities for implementation 4 General principles of care – all steps 5 Step 1: Recognition of depression in primary care and general hospital settings 6 Step 2: Treatment of mild depression in primary care 7 Treatment of moderate to severe depression in primary care 8 Step 3: Step 4: Step 5: Special patient characteristics Limited response to initial treatment in moderate and severe depression Chronic depression Enhanced care in primary care 9 10 11 11 Treatment of depression by mental health specialists 12 Treatment-resistant depression Recurrent depression and relapse prevention Special considerations 12 13 13 Inpatient treatment for depression 14 Inpatient care Electroconvulsive therapy 14 14 Grading of the recommendations 15 Implementation 15 Further information Back cover This guidance is written in the following context: This guidance represents the view of the Institute, which was arrived at after careful consideration of the evidence available. Healthcare professionals are expected to take it fully into account when exercising their clinical judgement. The guidance does not, however, override the individual responsibility of healthcare professionals to make decisions appropriate to the circumstances of the individual patient, in consultation with the patient and/or guardian or carer. National Institute for Health and Clinical Excellence MidCity Place 71 High Holborn London WC1V 6NA ISBN: 1-84629-402-9 Published by the National Institute for Health and Clinical Excellence April 2007 Artwork by LIMA Graphics Ltd, Frimley, Surrey Printed by Abba Litho Sales Limited, London www.nice.org.uk © National Institute for Health and Clinical Excellence, April 2007. All rights reserved. This material may be freely reproduced for educational and not-for-profit purposes. No reproduction by or for commercial organisations, or for commercial purposes, is allowed without the express written permission of the Institute. 2 NICE Guideline: quick reference guide – depression (amended) Which NICE guideline? Which NICE guideline? What are the patient’s symptoms? Low mood or loss of interest, usually accompanied by one or more of the following: low energy, changes in appetite, weight or sleep pattern, poor concentration, feelings of guilt or worthlessness and suicidal ideas? Yes Enter depression guideline (this guideline) No Apprehension, cued panic, spontaneous panic attacks, irritability, poor sleeping, avoidance, poor concentration? Yes Enter NICE clinical guideline on anxiety (www.nice.org.uk/CG022) The stepped care model The recommendations in this guideline are presented within a stepped care framework that aims to match the needs of people with depression to the most appropriate services, depending on the characteristics of their illness and their personal and social circumstances. Each step represents increased complexity of intervention, with higher steps assuming interventions in previous steps. Step 1: Recognition in primary care and general hospital settings Step 2: Treatment of mild depression in primary care Step 3: Treatment of moderate to severe depression in primary care Step 4: Treatment of depression by mental health specialists Step 5: Inpatient treatment for depression Who is responsible for care? Step 5: Step 4: Step 3: Step 2: Step 1: Inpatient care, crisis teams What is the focus? What do they do? Risk to life, severe self-neglect Medication, combined treatments, ECT Mental health specialists, including crisis teams Treatment-resistant, recurrent, atypical and psychotic depression, and those at significant risk Medication, complex psychological interventions, combined treatments Primary care team, primary care mental health worker Moderate or severe depression Medication, psychological interventions, social support Primary care team, primary care mental health worker Mild depression GP, practice nurse Recognition Watchful waiting, guided self-help, computerised CBT, exercise, brief psychological interventions Assessment NICE Guideline: quick reference guide – depression (amended) 3 Key priorities for implementation Key priorities for implementation Screening in primary care and general hospital settings • Screening should be undertaken in primary care and general hospital settings for depression in high-risk groups – for example, those with a past history of depression, significant physical illnesses causing disability, or other mental health problems such as dementia. Watchful waiting • For patients with mild depression who do not want an intervention or who, in the opinion of the healthcare professional, may recover with no intervention, a further assessment should be arranged, normally within 2 weeks (‘watchful waiting’). Antidepressants in mild depression • Antidepressants are not recommended for the initial treatment of mild depression, because the risk–benefit ratio is poor. Guided self-help • For patients with mild depression, healthcare professionals should consider recommending a guided self-help programme based on cognitive behavioural therapy (CBT). Short-term psychological treatment • In both mild and moderate depression, psychological treatment specifically focused on depression (such as problem-solving therapy, brief CBT and counselling) of 6 to 8 sessions over 10 to 12 weeks should be considered. Prescription of an SSRI • When an antidepressant is to be prescribed in routine care, it should be a selective serotonin reuptake inhibitor (SSRI), because SSRIs are as effective as tricyclic antidepressants and are less likely to be discontinued because of side effects. Tolerance and craving, and discontinuation/withdrawal symptoms • All patients prescribed antidepressants should be informed that, although the drugs are not associated with tolerance and craving, discontinuation/withdrawal symptoms may occur on stopping, missing doses or, occasionally, on reducing the dose of the drug. These symptoms are usually mild and self-limiting but can occasionally be severe, particularly if the drug is stopped abruptly. Initial presentation of severe depression • When patients present initially with severe depression, a combination of antidepressants and individual CBT should be considered as the combination is more cost-effective than either treatment on its own. Maintenance treatment with antidepressants • Patients who have had two or more depressive episodes in the recent past, and who have experienced significant functional impairment during the episodes, should be advised to continue antidepressants for 2 years. Combined treatment for treatment-resistant depression • For patients whose depression is treatment resistant, the combination of antidepressant medication with CBT should be considered. CBT for recurrent depression • CBT should be considered for patients with recurrent depression who have relapsed despite antidepressant treatment, or who express a preference for psychological interventions. 4 NICE Guideline: quick reference guide – depression (amended) General principles of care – all steps General principles of care – all steps Depression and anxiety • In comorbid depression and anxiety, treat the depression as a priority. GPP Patient preference • Consider patient preference and the experience and outcome of previous treatment(s) when deciding on treatment. GPP Information • Give patients and carers appropriate information on the nature, course and treatment of depression, including the use and likely side effects of medication. GPP • Inform patients, families and carers about self-help and support groups, and encourage them to participate where appropriate. GPP • Keep use of clinical language to a minimum and, where possible, provide interventions in a language understood by the patient. GPP Consent • Ensure that a patient can give meaningful and properly informed consent, especially when he or she has a more severe depression or is subject to the Mental Health Act. GPP Management of care • Where management is shared between primary and secondary care, establish a clear agreement between all professionals on the responsibility for monitoring and treatment; this should be shared with the patient and, where appropriate, with families and carers. GPP • Consider advance directives, especially for people who have recurrent severe or psychotic depressions, and for those who have been treated under the Mental Health Act. GPP NICE Guideline: quick reference guide – depression (amended) 5 Step 1: Recognition of depression in primary care and general hospital settings General principles of care Assessment • Consider the psychological, social and physical characteristics of the patient and the quality of interpersonal relationships. Assess impact on: GPP – depression – choice of treatment – monitoring. • Consider alternatives when discussing treatment options. Factors influencing choice include past or family history of depression, response to previous interventions, and the presence of associated problems in social or interpersonal relationships. GPP • In older patients, consider their physical health, their living conditions, and their social situation. GPP Risk • Always ask patients with depression directly about suicidal ideas and intent, and advise patients and carers to be vigilant for changes in mood, negativity and hopelessness, and suicidal intent, particularly during high-risk periods such as during initiation of and changes to medication and increased personal stress. Advise patients and carers to contact the appropriate healthcare practitioner if concerned. GPP • Assess whether patients with suicidal ideas have adequate social support and are aware of appropriate sources of help, and advise them to seek appropriate help if the situation deteriorates. GPP • Where a patient presents considerable immediate risk to self or others, consider urgent referral to a specialist mental health service. GPP • Make contact with patients with depression who do not attend follow-up. C Step 1: Recognition of depression in primary care and general hospital settings • In – – – primary care and general hospital settings, screen patients with: C a past history of depression significant physical illnesses causing disability other mental health problems, such as dementia. • Bear in mind the potential physical causes of depression and the possibility that depression can be caused by medication. C • Use two screening questions, such as: B – “During the last month, have you often been bothered by feeling down, depressed or hopeless?” and – “During the last month, have you often been bothered by having little interest or pleasure in doing things?” 6 NICE Guideline: quick reference guide – depression (amended) Step 2: Treatment of mild depression in primary care Step 2: Treatment of mild depression in primary care Watchful waiting • In mild depression, if the patient does not want treatment or may recover with no intervention, arrange further assessment – normally within 2 weeks. C Sleep and anxiety management • Consider advice on sleep hygiene and anxiety management. C Exercise • Advise patients of all ages with mild depression of the benefits of following a structured and supervised exercise programme. Effective duration of such programmes is up to 3 sessions per week of moderate duration (45 minutes to 1 hour) for between 10 and 12 weeks. C Guided self-help • For patients with mild depression, consider a guided self-help programme that consists of the provision of appropriate written materials and limited support over 6 to 9 weeks, including follow up, from a professional who typically introduces the self-help programme and reviews progress and outcome. C Computerised cognitive behavioural therapy • Computerised CBT should be considered for the treatment of mild depression. GPP Psychological interventions • In mild and moderate depression, consider psychological treatment specifically focused on depression (problem-solving therapy, brief CBT and counselling) of 6 to 8 sessions over 10 to 12 weeks. B • Offer the same range of treatments to older people as to younger people. C • In psychological interventions, therapist competence and therapeutic alliance have significant bearing on the outcome of intervention. C • Where significant comorbidity exists, consider extending treatment duration or focusing specifically on comorbid problems. C Antidepressants • Antidepressants are not recommended for the initial treatment of mild depression, because the risk–benefit ratio is poor. C • Where mild depression persists after other interventions, or is associated with psychosocial and medical problems, consider use of an antidepressant. C • If a patient with a history of moderate or severe depression presents with mild depression, consider use of an antidepressant (see Step 3 on pages 8 to 11). C Review in mild depression • Consider contacting all patients with mild depression who do not attend follow-up appointments. C NICE Guideline: quick reference guide – depression (amended) 7 Step 3: Treatment of moderate to severe depression in primary care Step 3: Treatment of moderate to severe depression in primary care Starting treatment • In moderate depression, offer antidepressant medication to all patients routinely, before psychological interventions. B • Discuss the patient’s fears of addiction or other concerns about medication. For example, explain that craving and tolerance do not occur. GPP • When starting treatment, tell patients about: C – the risk of discontinuation/withdrawal symptoms – potential side effects. • Inform patients about the delay in onset of effect, the time course of treatment and the need to take medication as prescribed. Make available written information appropriate to the patient’s needs. GPP Monitoring risk • See patients who are considered to be at increased risk of suicide or who are younger than 30 years old 1 week after starting treatment. Monitor frequently until the risk is no longer significant. C • If there is a high risk of suicide, prescribe a limited quantity of antidepressants. C • If there is a high risk of suicide consider additional support such as more frequent contacts with primary care staff, or telephone contacts. C • Monitor for signs of akathisia, suicidal ideas, and increased anxiety and agitation, particularly in the early stages of treatment with an SSRI. C • Advise patients of the risk of these symptoms, and that they should seek help promptly if these are at all distressing. C • If a patient develops marked and/or prolonged akathisia or agitation while taking an antidepressant, review the use of the drug. C Continuing treatment • See patients who are not considered to be at increased risk of suicide 2 weeks after starting treatment and regularly thereafter – for example, every 2–4 weeks in the first 3 months – reducing the frequency if response is good. C • For patients with a moderate or severe depressive episode, continue antidepressants for at least 6 months after remission. A • Once a patient has taken antidepressants for 6 months after remission, review the need for continued antidepressant treatment. This review may include consideration of the number of previous episodes, presence of residual symptoms, and concurrent psychosocial difficulties. C Choice of antidepressants • For routine care, use an SSRI because they are as effective as tricyclic antidepressants and less likely to be discontinued because of side effects. A • Consider using a generic form of SSRI. Fluoxetine or citalopram, for example, would be reasonable choices because they are generally associated with fewer discontinuation/withdrawal symptoms. C • Treatments such as dosulepin, phenelzine, combined antidepressants, and lithium augmentation of antidepressants should be routinely initiated only by specialist mental healthcare professionals (including General Practitioners with a Special Interest in Mental Health). C • Consider toxicity in overdose in patients at significant risk of suicide. Note that the highest risk is with tricyclic antidepressants (with the exception of lofepramine) but that venlafaxine is also more dangerous than other equally effective drugs recommended for routine use in primary care. C • Be aware of clinically significant interactions with concomitant drugs (particularly when prescribing fluoxetine, fluvoxamine, paroxetine, tricyclic antidepressants or venlafaxine). Consider consulting appendix 1 of the British National Formulary. C 8 NICE Guideline: quick reference guide – depression (amended) Step 3: Treatment of moderate to severe depression in primary care continued • If increased agitation develops early in treatment with an SSRI, provide appropriate information and, if the patient prefers, either change to a different antidepressant or consider a brief period of concomitant treatment with a benzodiazepine followed by a clinical review within 2 weeks. C • St John’s wort may be of benefit in mild or moderate depression, but its use should not be prescribed or advised because of uncertainty about appropriate doses, variation in the nature of preparations, and potential serious interactions with other drugs. C • Tell patients taking St John’s wort about the different potencies of the preparations available and the uncertainty that arises from this, and about the interactions of St John’s wort with other drugs (including oral contraceptives, anticoagulants and anticonvulsants). C Pharmacological treatment of atypical depression • Treat patients with features of atypical depression with an SSRI. C • If there is no response to an SSRI and there is significant functional impairment, consider referral to a mental health specialist. GPP Stopping or reducing antidepressants • Inform patients about the possibility of discontinuation/withdrawal symptoms on stopping or missing doses or reducing the dose. These symptoms are usually mild and self-limiting but can occasionally be severe, particularly if the drug is stopped abruptly. C • Advise patients to take their drugs as prescribed, particularly drugs with a shorter half-life (such as paroxetine and venlafaxine). C • Reduce doses gradually over a 4-week period; some people may require longer periods, and fluoxetine can usually be stopped over a shorter period. C • For mild discontinuation/withdrawal symptoms, reassure the patient and monitor symptoms. C • For severe symptoms, consider reintroducing the original antidepressant at the effective dose (or another antidepressant with a longer half-life from the same class) and reduce gradually while monitoring symptoms. C • Ask patients to seek advice from their medical practitioner if they experience significant discontinuation/withdrawal symptoms. GPP Special patient characteristics Gender • Note that women have a poorer toleration of imipramine. B Age • For older adults with depression, give antidepressant treatment at an age-appropriate dose for a minimum of 6 weeks before considering that it is ineffective. If there is a partial response within this period, treatment should be continued for a further 6 weeks. C • When prescribing antidepressants for older adults, consider: – the increased risk of drug interactions GPP – careful monitoring of side effects, particularly with tricyclic antidepressants. C Patients with dementia • Treat depression in people with dementia in the same way as depression in other older adults. C Patients with cardiovascular disease • When initiating antidepressant treatment in patients with recent myocardial infarction or unstable angina, sertraline is the treatment of choice and has the best evidence base. B • Perform an ECG and measure blood pressure before prescribing a tricyclic antidepressant for a depressed patient at significant risk of cardiovascular disease. GPP • Do not prescribe venlafaxine or a tricyclic antidepressant (except lofepramine) for patients with a high risk of serious cardiac arrhythmias or recent myocardial infarction. C NICE Guideline: quick reference guide – depression (amended) 9 Step 3: Treatment of moderate to severe depression in primary care continued Limited response to initial treatment in moderate and severe depression Pharmacological approaches • When a patient fails to respond to the first antidepressant prescribed, check that the drug has been taken regularly and at the prescribed dose. GPP • If response to a standard dose of an antidepressant is inadequate, and there are no significant side effects, consider a gradual increase in dose in line with the schedule suggested by the Summary of Product Characteristics. C • Consider switching to another antidepressant if there has been no response after a month. If there has been a partial response, a decision to switch can be postponed until 6 weeks. C • If an antidepressant has not been effective or is poorly tolerated and, after considering a range of other treatment options, the decision is made to offer a further course of antidepressants, then switch to another single antidepressant. C • Choices for a second antidepressant include a different SSRI or mirtazapine; alternatives include moclobemide, reboxetine and lofepramine. Consider other tricyclic antidepressants (except dosulepin) and venlafaxine, especially for more severe depression. B (See notes below about switching.) • When switching from one antidepressant to another, be aware of the need for gradual and modest incremental increases of dose, of interactions between antidepressants, and the risk of serotonin syndrome when combinations of serotonergic antidepressants are prescribed. Features include confusion, delirium, shivering, sweating, changes in blood pressure, and myoclonus. C Special considerations when switching to mirtazapine, moclobemide or reboxetine • If switching to mirtazapine, be aware that it can cause sedation and weight gain. A • If switching to moclobemide, be aware of the need to wash out previously prescribed antidepressants. A • If switching to reboxetine, be aware of its relative lack of data on side effects, and monitor carefully. B Special considerations when switching to a new tricyclic antidepressant • Consider their poorer tolerability compared with other equally effective antidepressants, and the increased risk of cardiotoxicity and toxicity in overdose. B • Start on a low dose and, if there is a clear clinical response, maintain on that dose with careful monitoring. C • Gradually increase dose if there is lack of efficacy and no major side effects. GPP • Lofepramine is a reasonable choice because of its relative lack of cardiotoxicity. C Special considerations when switching to venlafaxine • Before prescribing: – take into account the increased likelihood of patients stopping treatment because of side effects, and its higher cost, compared with equally effective SSRIs B – ensure pre-existing hypertension is controlled in line with the current NICE guideline (www.nice.org.uk/CG034). C • Do not prescribe for patients with uncontrolled hypertension. C • Venlafaxine should only be prescribed at 300 mg per day or more under the supervision or advice of a specialist mental health medical practitioner. C • Monitoring: – measure blood pressure at initiation and regularly during treatment (particularly during dosage titration); reduce the dose or consider discontinuation if there is a sustained increase in blood pressure. C – check for signs and symptoms of cardiac dysfunction, particularly in people with known cardiovascular disease, and take appropriate action as necessary. C 10 NICE Guideline: quick reference guide – depression (amended) Step 3: Treatment of moderate to severe depression in primary care continued Psychological treatments • CBT is the psychological treatment of choice. Consider interpersonal psychotherapy (IPT) if the patient expresses a preference for it or if you think the patient may benefit from it. B • CBT and IPT should be delivered by a healthcare professional competent in their use – treatment typically consists of 16 to 20 sessions over 6 to 9 months. B • Consider CBT (or IPT) for patients with moderate or severe depression who do not take or refuse antidepressant treatment. B • For patients who have not made an adequate response to other treatments for depression (for example, antidepressants and brief psychological interventions), consider giving a course of CBT of 16 to 20 sessions over 6 to 9 months. C • Consider CBT for patients with severe depression for whom avoiding the side effects often associated with antidepressants is a clinical priority or personal preference. B • For patients with severe depression, consider providing 2 sessions of CBT per week for the first month of treatment. C • Where patients have responded to a course of individual CBT or IPT, consider offering follow-up sessions – typically 2 to 4 sessions over 12 months. C Initial presentation of severe depression • When patients present initially with severe depression, a combination of antidepressants and individual CBT should be considered as it is more cost-effective than either treatment on its own. B Couple-focused therapy • Consider couple-focused therapy for people with depression who have a regular partner and who have not benefited from a brief individual intervention. An adequate course is 15 to 20 sessions over 5 to 6 months. B Chronic depression • In chronic depression, offer a combination of individual CBT and antidepressant medication. A • For men with chronic depression who have not responded to an SSRI, consider a tricyclic antidepressant, as men tolerate the side effects of tricyclic antidepressants reasonably well. C • Consider offering befriending (by trained volunteers offering weekly meetings for 2 to 6 months) as an adjunct to pharmacological or psychological treatments to people with chronic depression. C • Consider a rehabilitation programme for patients who are unemployed, or have been disengaged from social activities over a longer term. C Enhanced care in primary care • For all patients, consider telephone support from the primary care team, informed by clear treatment protocols, particularly for monitoring antidepressant medication regimes. B • Primary care organisations should consider establishing multi-faceted care programmes, which integrate through clearly specified protocols the delivery and monitoring of appropriate psychological and pharmacological interventions for the care of people with depression. C NICE Guideline: quick reference guide – depression (amended) 11 Step 4: Treatment of depression by mental health specialists including crisis teams Step 4: Treatment of depression by mental health specialists including crisis teams • Assess patients with depression referred to specialist care, including their symptom profile and suicide risk and, where appropriate, previous treatment history. Where the depression is chronic or recurrent, assess psychosocial stressors, personality factors and significant relationship difficulties as well. GPP • Consider re-introducing any previous treatments that were inadequately delivered or adhered to. GPP • Crisis resolution teams should be used as a means of managing crises for patients who have severe depression and are assessed as presenting significant risk. C • Medication in specialist services should be initiated under the supervision of a consultant psychiatrist. GPP Treatment-resistant depression • For all people whose depression is treatment resistant, consider the combination of antidepressant medication with individual CBT of 16 to 20 sessions over 6 to 9 months. B • For patients with treatment-resistant moderate depression who have relapsed while taking, or after finishing, a course of antidepressants, consider the combination of antidepressant medication with CBT. B • Consider a trial of lithium augmentation for patients whose depression has failed to respond to B several antidepressants and who are prepared to tolerate the burdens associated with its use. ● • Before initiating lithium augmentation carry out an ECG. ● C • If venlafaxine has not been used before, it may be considered for patients whose depression has failed to respond to two adequate trials of alternative antidepressants. The dose can be increased up to BNF limits if required, provided patients can tolerate the side effects. C See Step 3 (page 10) for prescribing advice. • Consider augmenting an antidepressant with another antidepressant (there is evidence for benefits of adding mianserin or mirtazapine to SSRIs). C • When augmenting one antidepressant with another, monitor carefully (particularly for the symptoms of serotonin syndrome), and explain the importance of this to the patient. GPP • When augmenting an antidepressant with mianserin be aware of the risk of agranulocytosis, particularly in older adults. C • Re-evaluate the adequacy of previous treatments and consider seeking a second opinion if considering using combinations of antidepressants other than mianserin or mirtazapine with SSRIs. Document the content of any discussion in the notes. C • Consider phenelzine for patients who have failed to respond to alternative antidepressants and who are prepared to tolerate the side effects and dietary restrictions associated with its use. Consider its toxicity in overdose when prescribing for patients at high-risk of suicide. C • Augmentation of an antidepressant with carbamazepine, lamotrigrine, buspirone, pindolol, valproate or thyroid supplementation is not recommended in the routine management of treatment-resistant depression. B • Consider referring patients who have failed to respond to various strategies for augmentation and combination treatments to a clinician with a specialist interest in treating depression. GPP • Dosulepin should not be used routinely because the evidence supporting its tolerability relative to other antidepressants is outweighed by the increased cardiac risk and its toxicity in overdose. C • There is insufficient evidence to recommend augmentation of antidepressants with benzodiazepines. C 12 NICE Guideline: quick reference guide – depression (amended) Step 4: Treatment of depression by mental health specialists including crisis teams continued Recurrent depression and relapse prevention Pharmacological treatments • Continue antidepressants for 2 years for people who have had two or more depressive episodes in the recent past and who have experienced significant functional impairment during the episodes. B • Re-evaluate patients on maintenance treatment, taking into account age, comorbid conditions and other risk factors in the decision to continue the treatment beyond 2 years. GPP • Maintain the antidepressant dose used for relapse prevention at the level at which acute treatment was effective. C • Patients who have had multiple episodes of depression, and who have had a good response to treatment with an antidepressant and lithium augmentation, should remain on the combination for at least 6 months. B • When patients are taking an antidepressant with lithium augmentation, if one drug is to be discontinued, this should be lithium in preference to the antidepressant. C Psychological treatments • CBT should be considered for: – patients with recurrent depression, who have relapsed despite antidepressant treatment, or who express a preference for psychological interventions ● C – patients with a history of relapse and poor or limited response to other interventions ● B – patients who have responded to another intervention but are unable or unwilling to continue with that intervention, and are assessed as being at significant risk of relapse ● B B • Mindfulness-based CBT should be considered for patients with recurrent depression. ● Special considerations Psychotic depression • For patients with psychotic depression, consider augmentation of the current treatment plan with antipsychotic medication. C Atypical depression • Consider prescribing phenelzine for women whose depression has atypical features, and who have not responded to, or who cannot tolerate, an SSRI. Consider its toxicity in overdose when prescribing for patients at high risk of suicide. C • All patients receiving phenelzine require careful monitoring (including taking blood pressure) and advice on interactions with other medicines and foodstuffs, and should have their attention drawn to the product information leaflet. C NICE Guideline: quick reference guide – depression (amended) 13 Step 5: Inpatient treatment for depression Step 5: Inpatient treatment for depression Inpatient care • Inpatient treatment should be considered for people with depression where the patient is at significant risk of suicide or self-harm. C • Crisis resolution teams should be considered for patients with depression who might benefit from an early discharge from hospital after a period of inpatient care. C Electroconvulsive therapy • Electroconvulsive therapy (ECT) should only be used to achieve rapid and short-term improvement of severe symptoms after an adequate trial of other treatments has proven ineffective, and/or when the condition is considered to be potentially life-threatening, in a severe depressive illness. N • When considering ECT, review risks and potential benefits to the individual, including: the risks associated with the anaesthetic; current comorbidities; anticipated adverse events, particularly cognitive impairment; and the risks of not having treatment. N • Particular care is needed when considering ECT treatment during pregnancy, in older people, and in children and young people, because the risks may be increased. N • Valid consent should be obtained in all cases where the individual has the ability to grant or refuse consent. The decision to use ECT should be made jointly by the individual and the clinician(s) responsible for treatment, on the basis of an informed discussion. This discussion should be enabled by the provision of full and appropriate information about the general risks associated with ECT and about the risks and potential benefits specific to that individual. N • Advance directives should be taken fully into account and the individual’s advocate and/or carer should be consulted. N • Clinical status should be assessed after each ECT session and treatment should be stopped when a response has been achieved, or sooner if there is evidence of adverse effects. Cognitive function should be monitored on an ongoing basis, and at a minimum at the end of each course of treatment. N • A repeat course of ECT should be considered under the circumstances indicated above only for individuals who have severe depressive illness, and who have previously responded well to ECT. N • In patients who are experiencing an acute episode but have not previously responded, a repeat trial of ECT should be undertaken only after all other options have been considered and following discussion of the risks and benefits with the individual and/or where appropriate their carer/ advocate. N • As the longer-term benefits and risks of ECT have not been clearly established, it is not recommended as a maintenance therapy in depressive illness. N 14 NICE Guideline: quick reference guide – depression (amended) Implementation/Grading of the recommendations Grading of the recommendations This guidance is evidence based and the recommendations are graded as follows. A Based on level I evidence (meta-analysis of randomised controlled trials [RCTs] or at least one RCT) B Based on level II or level III evidence (well-conducted clinical studies but no RCTs) or extrapolated from level I evidence C Based on level IV evidence (expert committee reports or opinions and/or clinical experience of respected authorities) GPP Recommended good practice based on clinical experience of the Guideline Development Group N Evidence from NICE technology appraisal guidance For further information, see the NICE guideline (www.nice.org.uk/CG023NICEguideline) or the full guideline (www.nice.org.uk/CG023fullguideline) Implementation and includes a template that local communities can use (www.nice.org.uk/CG023costtemplate). Local health communities should review their existing practice in the treatment and management of depression against this guideline. The review should consider the resources required to implement the recommendations set out in the NICE guideline (www.nice.org.uk/CG023NICEguideline), the people and processes involved and the timeline over which full implementation is envisaged. It is in the interests of patients that the implementation timeline is as rapid as possible. Relevant local clinical guidelines, care pathways and protocols should be reviewed in light of this guidance and revised accordingly. Information on the cost impact of this guideline in England is available on the NICE website The implementation of this guideline will build on the National Service Frameworks for Mental Health in England and Wales and should form part of the service development plans for each local health community in England and Wales. The National Service Frameworks are available for England from http://www.dh.gov.uk/en/Publicationsandstatistics/ Publications/PublicationsPolicyAndGuidance/ DH_4009598, and for Wales from www.wales.nhs.uk/sites/home.cfm?orgid=438 Suggested audit criteria are listed in Appendix D of the NICE guideline. These can be used as the basis for local clinical audit, at the discretion of those in practice. NICE Guideline: quick reference guide – depression (amended) 15 Further information Distribution The distribution list for this quick reference guide is available from www.nice.org.uk/CG023distributionlist NICE guideline The NICE guideline, ‘Depression: management of depression in primary and secondary care’, is available from the NICE website (www.nice.org.uk/CG023NICEguideline). The NICE guideline contains the following sections: Key priorities for implementation; 1 Guidance; 2 Notes on the scope of the guidance; 3 Implementation in the NHS; 4 Key research recommendations; 5 Other versions of this guideline; 6 Related NICE guidance; 7 Review date. It also gives details of the grading scheme for the evidence and recommendations, the Guideline Development Group, the Guideline Review Panel and technical detail on the criteria for audit. Information for the public NICE has produced a version of this guidance for people with depression, their advocates and carers, and the public. The information is available, in English and Welsh, from the NICE website (www.nice.org.uk/CG023publicinfo). Printed versions are also available – see below for ordering information. Full guideline The full guideline includes the evidence on which the recommendations are based, in addition to the information in the NICE guideline. It is published by the National Collaborating Centre for Mental Health. It is available from www.bps.org.uk/publications, from www.nice.org.uk/CG023fullguideline and on the website of the National Library for Health (www.library.nhs.uk). Related NICE guidance For information about NICE guidance that has been issued or is in development, see the website (www.nice.org.uk). Antenatal and postnatal mental health. NICE clinical guideline 45 (2007). Available from: www.nice.org.uk/CG045 Hypertension: management of hypertension in adults in primary care. NICE clinical guideline 34 (2006). Available from: www.nice.org.uk/CG034 Depression in children and young people: identification and management in primary, secondary and community care. NICE clinical guideline 28 (2006). Available from: www.nice.org.uk/CG028 Anxiety: management of generalised anxiety disorder and panic disorder (with or without agoraphobia) in adults in primary, secondary and community care. NICE clinical guideline 22 (amended 2007). Available from: www.nice.org.uk/CG022 Guidance on the use of computerised cognitive behavioural therapy for anxiety and depression. NICE technology appraisal guidance 51 (2002). Available from: www.nice.org.uk/TA051 Guidance on the use of electroconvulsive therapy. NICE technology appraisal guidance 59 (2003). Available from: www.nice.org.uk/TA059 Review date NICE expects to make a decision on a full update of this guideline later in 2007. Ordering information Copies of this quick reference guide can be obtained from the NICE website at www.nice.org.uk/CG023quickrefguide or from the NHS Response Line by telephoning 0870 1555 455 and quoting reference number N1237. Information for the public is also available from the NICE website or from the NHS Response Line (quote reference number N1238). N1237 1P 35k Apr 07 (ABA) National Institute for Health and Clinical Excellence MidCity Place 71 High Holborn London WC1V 6NA www.nice.org.uk Effective Care Co-Ordination Policy - CPA Policy EFFECTIVE CARE CO-ORDINATION POLICY POLICY NO DATE RATIFIED NEXT REVIEW DATE CL 012 AUGUST 2008 AUGUST 2011 POLICY STATEMENT/KEY OBJECTIVES: To ensure a consistent and thorough approach to the application of the Care Programme Approach across Lancashire ACCOUNTABLE DIRECTOR: Director of Nursing POLICY AUTHOR: Lancashire Multi Agency Effective Care Co-ordination Sub Group x x x x Date of Issue: AUGUST 2008 1 of 28 KEY POLICY ISSUES Care Programme Approach Effective Care Co-Ordination Integration of CPA/Care Management Application of the Policy across all service areas Effective Care Co-Ordination Policy - CPA Policy CONTENTS PAGE NO. 1. Definitions And Principles 3 2. Scope Of The Policy 5 3. Assessment 6 4. Allocation of Co-Ordinator 6 5. Principles Of Care Planning 10 6. 7 Day Follow Up 12 7. Caring about Carers (National Service Framework Six, Carers Act) 12 8. Review 13 9. Discharge and Re-accessing Specialist Mental Health Services 15 10. Section 117 After Care 15 11. Rejection, Refusal, Non Compliance and Missing Person 16 12. Service Users who lose touch with or go missing from Services 16 13. Transition Protocols 17 14. Care Co-ordination within the Criminal Justice System 18 15. Meeting The Needs of Children 22 16. CPA and Confidentiality 23 17. Training 24 18. Audit 24 20. References 25 Appendix 1 Appendix 2 Appendix 3 Date of Issue: AUGUST 2008 26 27 28 2 of 28 Effective Care Co-Ordination Policy - CPA Policy 1. DEFINITION AND PRINCIPLES “REFOCUSING THE CARE PROGRAMME APPROACH” (CPA) 1.1 This document reflects the ongoing partnership between the Lancashire Care NHS Trust, the Primary Care Trusts and Blackburn with Darwen, Blackpool and Lancashire Social Services. All these agencies are committed to working together to improve the delivery of Mental Health Services within the CPA framework and the scope of this policy. Service Users, Carers and other organisations delivering Mental Health Services, have also participated in the process of developing this Policy. 1.2 The aim of this policy is to promote an optimistic and positive approach to all people who use mental health services. “The vast majority have real prospects of recovery – if they are supported by appropriate services, driven by the right values and attitudes” (The Journey of Recovery, Department of Health). It also incorporates the guidance issued by the Department of Health on refocusing the Care Programme Approach. From October 2008 the term Care Programme Approach will describe the approach used in Secondary mental health care to assess, plan, review and coordinate the range of treatment, care and support needs for people in contact with secondary mental health services who have complex needs and who are most at risk. 1.3 There are four main principles in delivering the CPA: x The person for whom the Care Programme is being developed must be central to the process as far as possible, involved and informed at all stages. x A needs and strengths led, rather than Service led approach should be adopted. x The foundation of the Care Programme Approach is good multi-professional and interagency working and co-ordination of care in respect of people with a Mental Health disorder. x Carers needs will be assessed and a Care Plan agreed to meet their needs where this is appropriate. This enables them to continue to contribute to the service user’s care. 1.4 There are five main elements to the Care Co-ordination process: x Systematic arrangements for assessing Health and Social Care Needs x An agreed Care Plan (including a contingency plan identifying who will provide support in the absence of the Care Coordinator and a Crisis Plan for Individuals on an enhanced CPA). x The appointment of a Care Co-ordinator. Date of Issue: AUGUST 2008 3 of 28 Effective Care Co-Ordination Policy - CPA Policy x Monitoring of the Service Users progress x Regular review and where appropriate discharge from Services. 1.5 The new guidance does not make any fundamental changes to the values and Principles that underpin the Care programme approach. These are described in detail in the new guidance (see appendix 1) The new guidance builds on existing policy and follows a national consultation. The full document can be accessed at www.nihme.csip.uk/our-work/reviewing-the-care-programme-appraoch-cpa-.html The link also provides access to a range of best practice guidance. 1.6 The principles and values outlined above are underpinned by a number of Standards. All practitioners, teams and services must strive to meet these standards, which are outlined below: x One assessment and care plan will follow the service user through the whole range of care settings. x The care plan must incorporate a full risk assessment and management plan supported by crisis and contingency plan x The assessment will consider issues relating to housing, employment and Social inclusion x All service users will have a HONOS (or Honos 65+ or HONOSCA if appropriate) assessment completed at least annually x All service users will be provided with a Credit/Business Card which provides information about their care coordinators contact number and details a number they will contact in case of emergency x The care plan must provide evidence of service user involvement i.e. it is signed, the service user has a copy and there is a record that this has taken place x A carer’s assessment should be offered to all carers, and where indicated a plan of support should be in place. The clinical record must record the date of assessment, the carer’s need for support and how this support will be provided. This must be reviewed on a regularly basis. Again this is recorded in the clinical record. x The service users status is reviewed at every Care Programme Approach review Date of Issue: AUGUST 2008 4 of 28 Effective Care Co-Ordination Policy - CPA Policy 2. SCOPE OF THE POLICY 2.1 This Policy will apply for all Service Users in contact with Specialist Mental Health Services who are subject to the Care Programme Approach. However, the application will differ across service networks. It is important to consider the relationship with the Single Assessment Process (SAP) in Older Adult Services and the very specific needs of CAMHS. Local procedures will be in place where required. Service users treated by the Primary Care Mental Health Teams or steps 2 and 3 are not subject to formal CPA. Whilst Individuals are free to refuse services, (unless subject to certain sections of the MHA 1983) they cannot refuse to be part of the CPA, as this is a locally and nationally agreed process by which Mental Health Services are delivered. 2.2 For Service Users who are in contact with Drug/Alcohol Services or Learning Disability Services, where there are no co-existing mental health needs requiring Specialist Services, the CPA will not apply. Should Clients of these services develop severe mental health problems and become involved with Specialist Mental Health Services the CPA will apply as per Policy. In these cases the Care Co-ordinator should ordinarily be a member of the Specialist Mental Health Service and the case will need to be managed jointly. 2.3 From October 2008 the term CPA will no longer apply to those individuals who have contact with one professional or agency providing mental health services. 2.4 From October 2008 service users with a severe mental health problem and the following characteristics will be subject to the Care Programme Approach. (this is taken directly from the national guidance) x Severe mental disorder (including personality disorder) with a high degree of clinical complexity. x Current or potential risk(s) including: Suicide, self harm, harm to others (including history of offending), Relapse history requiring urgent response, Self neglect/non concordance with treatment plan, Vulnerable adult with safeguarding issues x Current or significant history of severe distress/instability or disengagement. x Presence of non-physical co-morbidity e.g. Substance /alcohol/prescription drug misuse, learning disability. x Multiple service provision from different agencies, including: housing, physical care, employment, criminal justice, voluntary agencies. x Currently/recently detained under the Mental Health Act or referred to crisis/home treatment team x Significant reliance on carer(s) or has own significant caring responsibilities Date of Issue: AUGUST 2008 5 of 28 Effective Care Co-Ordination Policy - CPA Policy x Experiencing disadvantage or difficulty as a result of: parenting responsibilities, physical health problems/disability, unsettled accommodation/housing issues, employment issues when mentally ill, significant impairment of function due to mental illness, ethnicity (e.g. immigration status, race/cultural issues, language difficulties, religious practices, sexuality or gender issues) Appendix 2 provides further guidance on how to differentiate between service users on the Care programme Approach and service users who are not. 3. ASSESSMENT Assessment of Health and Social Care Needs 3.1 Assessment of need is pivotal to the whole CPA process. Systematic arrangements for assessing Health and Social Needs of people accepted into specialist Mental Health Services must be in place. 3.2 This assessment, inclusive of risk assessment will be the initial process in formulating the service user’s needs and be carried out by a suitably qualified mental health professional. Specialist assessments will support and enhance this initial assessment. The assessment process must include an Assessment of Risk and the development of a Risk Management Plan where risk factors are identified. Further guidance is provided in the trust policy on clinical risk management. 4. ALLOCATION OF CARE CO-ORDINATOR: 4.1 The role of the Care Co-ordinator is essential in the delivery of well-coordinated and high quality Mental Health Services. The joint agencies within Lancashire have agreed that the Care Co-ordinator function can only be carried out by a Mental Health Practitioner who is identified by both Health and Social Service organisations as being employed for that purpose. The Care Co-ordinator will also be a person whose practice is regulated by a regulatory professional body or professional codes of conduct (NSF). 4.2 Professionals who can be CPA Care Co-ordinators Only STR Workers who are Team Leaders can be Care Co-ordinators - Community Mental Health Nurses Mental Health Social Workers Consultant Psychiatrists Staff Grade Doctors Psychologists Occupational Therapists Psychotherapists Counsellors Date of Issue: AUGUST 2008 6 of 28 Effective Care Co-Ordination Policy - CPA Policy 4.3 Support, Time and recovery workers (Team Leaders only) The responsibilities of the Care Co-ordinator are as follows: 1. To co-ordinate the Assessment of Need and to ensure that where necessary, an assessment of the Carer’s needs is undertaken. 2. To remain in touch when a Service User is admitted to hospital and actively participating in the process of assessment, care planning, review and discharge. 3. To develop with the Service User, Carers (usually with Service User’s consent) and others involved in the service users care (where necessary), an agreed Care Plan that addresses the Service User’s Health and Social Care Needs, including the management of any associated risks. 4. To offer the service user a direct payment as an alternative to any Social Services, other than residential care, which would otherwise be commissioned as part of the care package. To assist in the planning, and then monitoring, the delivery of the agreed Care Package, record decisions made about it and ensure that it is reviewed in accordance with this Policy. 5. To develop, where appropriate, a Contingency Plan (as part of the Care Plan), which provides the Service User and any Informal Carers with a contact number and a named representative to contact in the event of the Care Co-ordinator’s absence or if part of the care plan breaks down or is not available. This will need to incorporate information relating to the provision of Out of Hour’s Services e.g. Crisis Resolution and Home Treatment. 6. To ensure that the care process is documented on eCPA. 7. To co-ordinate and participate in regular formal reviews of the Service User’s Care Plan and to convene where necessary, urgent reviews or mobilise Emergency Services. 8. To provide a consistent point of contact for the Service Network (where applicable), the Service User and informal Carers and to monitor that all relevant caring agencies are contributing as agreed to the Service User’s Care Plan. 9. Wherever feasible to discuss with the service user, in advance any change of the Care Co-ordinator. 10. To inform other members of the Team, the Service User’s family (where applicable), their GP and any relevant others such as a Probation Officer, if the Service User is found to be missing. Date of Issue: AUGUST 2008 7 of 28 Effective Care Co-Ordination Policy - CPA Policy 11. To use their professional skills collaboratively, assisting the Service User and maintaining regular contact with them. This should include, where appropriate, consultation with Carers. 12. To provide support and care in a positive, non-discriminatory manner, which is acceptable to the Service User. 13. To ensure the Service User is registered with a GP and then to work in close contact with the Primary Care Team and other involved professionals informing other members of the Team of changes in the Service User’s circumstances. If the Care Co-ordinator is unable to register the Service User with a GP, the reasons should be fully documented and discussed with the Multi-Disciplinary Team. Further action may then be necessary. 14. To ensure that the Service User has regular physical health checks and the process is clearly documented in the record. 15. Ensuring information is provided regarding medication and other aspects of treatment. 16 To actively offer Advocacy Services to the Service User. 17 To be aware of resources available and provide information or refer as appropriate. 18 Access updates in CPA training to ensure up-to-date knowledge of the process. Allocation of role 4.4 The role of the Care Co-ordinator in respect of an Individual Service User will already be agreed at the earliest opportunity. Before accepting the role of Care Co-ordinator the Practitioner should be aware of the Service Users presentation, their needs and their risk potential. 4.5 All Service Users must be allocated a Care Co-Coordinator and if disputes arise this must be resolved quickly and safely through the Local Team Management arrangements. If this fails to occur the matter must be referred to the Service manager. In the event of an ongoing dispute the Service Manager will make a decision over the allocation of Care Co-Coordinator and this will be binding. 4.6 The Service User has a right to request a change of Care Co-ordinator and there should be flexibility to enable the Service User to exercise choice. Requests for a change of Care Co-ordinator should be discussed at an arranged CPA Review Meeting. Any change of Care Coordinator should be kept to a minimum. Should a change occur it is the responsibility of the Care Co-coordinator to ensure that a thorough handover takes place. Date of Issue: AUGUST 2008 8 of 28 Effective Care Co-Ordination Policy - CPA Policy 4.7 All members of the Care Team must be aware of whom the Care Cocoordinator is, and where they can be contacted and this must be stated in the Care Plan. 4.8 Team Mangers need to ensure, and be able to demonstrate, that Staff in Care Co-ordination roles are maintaining caseloads of suitable sizes dependant on the needs of Individuals on caseload. Where workload issues are problematic this must be brought to the attention of the Service Manager and/or Assistant Network Director and if serious risks are identified then the Network Director must be informed. 4.9 The views and wishes of the Service User and their Carers must also be given due consideration with attention to gender, culture and language. If their wishes or preferences still cannot be fulfilled then clear reasons why must be documented and given in writing to the Line Manager. Case transfer / Fostering Cases, Short & Long Term Absence / Reallocation 4.10 It is the responsibility of the Line Manager to ensure that any absence is communicated to the Service User and where necessary temporary allocation, alternative appointments or arrangements must be made depending on need. 4.11 Where complete reallocation of a Care Co-ordinator’s caseload is required, for example when they terminate their employment or move to a different position, the Line Manager and Care Co-ordinator should, when possible, meet for Caseload Management, to discuss how best to manage the situation. 4.12 No Service User will be left in the position of having no identifiable Care Coordinator, and where possible a formal hand over involving the Service User and, where appropriate the Carer, should take place. 4.13 It is the responsibility of the Line Manager and the Care Co-ordinator to ensure that changes in Care Co-ordinator are recorded and passed onto the relevant CPA Manager / Co-ordinator / Lead Officer. Date of Issue: AUGUST 2008 9 of 28 Effective Care Co-Ordination Policy - CPA Policy PRINCIPLES OF CARE PLANNING 5.1 The Care Co-ordinator should engage the Service User and/or their Carer(s) in the Care Planning process by prompting the inclusion of Service User goals and actions. Access to Advocacy Services should be included on the Care Plan as well as an opportunity for the Service User to record their agreement or disagreement with the plan. 5.2 The Care Plan should be formulated by the professional acting in the role of Care Co-ordinator and detail the interventions of the Care Coordinator and of other professionals engaging in the plan (as agreed with the Service User). The Service User and, where appropriate his/her Care Coordinator, should be involved in writing their Care Plan, and if this is not possible this must be clearly documented. 5.3 The Service User must receive full information on the CPA process and a copy of the agreed Care Plan. 5.4 Service users on CPA will have a Care Plan which includes: x Arrangements for Mental Health Care including medication. x An assessment of the nature of any risk posed and the plans for managing this risk. x A Crisis Plan, which should include who the Service User is most responsive to; how to make contact with that person; and previous strategies that have been successful in engaging the Service User. This information must be in a separate section of the Care Plan that should be easily accessible out of normal office hours. x Explicit contingency arrangements so that the Service User or their Carer can contact Specialist Services. x Arrangements for physical health care x Action needed to secure accommodation, appropriate to the Service User’s needs. x Arrangements to provide domestic support. x Action needed for employment, education or training or another occupation. x Arrangements needed for adequate income. x Action to provide for cultural and faith need. x Arrangements to promote independence and sustain social contact, including therapeutic leisure activity. Date of Issue: AUGUST 2008 10 of 28 Effective Care Co-Ordination Policy - CPA Policy x The date of the next planned review. 5.5 The written Care Plan should be drawn up by the named Care Co-ordinator, with the involvement of the Service User, and the Carer (where appropriate). 5.6 In all cases (with some possible exceptions due to risk factors) copies of the Care Plan including Risk Management Plans and Crisis and Contingency Plans should be given to the following people (in addition to the Service User) after discussion with the Service User: x x x Each professional involved in the Care Plan The Service User’s General Practitioner The Carer (where appropriate) Discharge Care Plans 5.7 Discharge Planning should ideally begin at the commencement of the Service Users stay in hospital. 5.8 If the MDT has identified the need for follow-up, then a Care Co-ordinator should be identified as early as possible within the admission process. 5.9 The responsibility for organising the final discharge meeting and ensuring that all key personnel are aware of the date and time of the meeting, is the responsibility of the Care Co-ordinator in liaison with the ward. 5.10 The final Care Plan will have developed over the period of the individuals stay in hospital. The responsibility for formulating the Care Plan will now have shifted to the Care Co-ordinator. 5.11 The final discharge Care Plan will be written by the Care Co-ordinator, who will have ensured that the Service User and Carers are fully conversant with the aftercare arrangements. 5.12 The Care Co-ordinator is also responsible for ensuring that all the required information is contained within the Care Plan, including arrangements for 7-day follow up. (or 48hour follow up when appropriate) 5.13 Particular attention will be made to the Care Plans of those Service Users at risk of suicide and, where indicated, will include more intensive provision for the first three months after discharge from hospital (or intervention at home). 5.14 All Service Users, upon discharge from In Patient care, should be provided with a copy of their written Care Plan. 5.15 These arrangements should be detailed in the Discharge Care Plan. The MDT must review plan within one month of discharge. Date of Issue: AUGUST 2008 11 of 28 Effective Care Co-Ordination Policy - CPA Policy 5.16 The discharge of Service Users from other NHS or independent facilities must be In accordance with the process described above. The Principles and Procedures associated with the CPA apply equally to those Service Users treated outside the area or in the Independent sector. 5.17 Where a service user is not subject to CPA the professional involved will be responsible for coordinating care. Formal designated paperwork for CPA will not be required. However, a statement of care agreed with the service user must be recorded. This will be clearly documented in the clinical record. This documentation constitutes the care plan. This process must never be used where more than one professional and/or agency is involved. All essential information will be recorded on eCPA and there must be evidence of assessment (including risk assessment), intervention and review. In Older Adult Services those Service Users not subject to CPA will be managed by SAP. In primary care separate arrangements are also in place. Both these procedures are supported by separate procedural guidance. 5.18 The eCPA system is used in all cases for our Service Users regardless of whether they are subject to CPA. 6. 7 DAY FOLLOW UP 7-Day follow up visits are an important intervention aimed at supporting Users and Carer’s and promoting recovery, social inclusion and suicide prevention. All Service Users on the care programme approach, discharged from an Acute Psychiatric Inpatient Unit (including periods of Home Leave) must be followed up through face-to-face contact with a Community Mental Health professional within 7 days of discharge. (or 48 hours when appropriate) Where Service Users are discharged to another district (i.e. from one trust to another) the 7-day follow up becomes the responsibility of the mental health provider in that area. However, it is important that the new provider is involved in the planning of discharge. If 7 Day follow up does not take place the reason why must be clearly documented in the client record 7. CARING ABOUT CARERS (NSF STANDARD 6), CARERS (RECOGNITION AND SERVICES) ACT 1995 7.1 The Carers (Recognition and Services) Act 1995 places a duty on Local Authorities to assess the ability of any persons caring for vulnerable Service Users. Authorities are required to provide services to Carers if the assessment indicates that the Carer’s efforts should be supplemented by Social Service provision. In order that Local Services should meet Standard 6 of the NSF, Care Co-ordinators and other Staff in contact with Service Users must offer Carers an assessment of their caring needs. The Care Co-ordinator should ensure that: Date of Issue: AUGUST 2008 12 of 28 Effective Care Co-Ordination Policy - CPA Policy x Carers are informed of their rights to an assessment under the Carers (Recognition and Services) Act 1995, complying with Standard 6 of the NSF. x Each Carer’s needs are assessed as appropriate. x Carers receive easy to understand information about both the help available to them and the services provided. x A written Care Plan is completed as appropriate and agreed with the Carer, covering their caring, physical and Mental Health Needs, and also educational and welfare needs for Young Carers. x The Care Plan is reviewed annually or earlier if appropriate. Service Users who are also Carer’s are entitled to a Carer’s assessment, in addition to an assessment of their own Health and Social Care needs. Who should undertake the assessment? 7.2 The NSF indicates that local arrangements should be made to ensure that the Service User and Carer’s Care Plans are considered together. The Care Coordinator also has an essential role in informing the Service User and their Carer of the Carer's right to request an assessment and also to ensure coordination of the Service User’s and their Carer’s Assessment Plans. 7.3 In most cases the Care Co-ordinator is likely to be working with both the Service User and the Carer and will therefore be the most appropriate person to undertake the Carer Assessment and draw up the Carer’s Care Plan. 7.4 However, in some situations, especially when there is a conflict of interest or opinion between the Carer and the Service User, it may be more appropriate for another Mental Health Worker to assess the needs of the Carer. 7.5 On completion (or receipt) of the Carer's Assessment it is the responsibility of the Care Co-ordinator to complete the Carer's Care Plan and arrange Services and support outlined in the plan. 8. REVIEW 8.1 Review and evaluation of the effectiveness of the Care Plan should take place with the Care Co-ordinator as part of the Multi-Disciplinary Team (MDT), in collaboration with the Service User and those others identified in the Care Planning arrangements. 8.2 The Care Co-ordinator is responsible for ensuring reviews take place. (For In Patient Services where a Care Co-ordinator has not yet been identified this responsibility will fall to the Primary/Named Nurse.) 8.3 An assessment of risk will be repeated at each formal CPA Review. Date of Issue: AUGUST 2008 13 of 28 Effective Care Co-Ordination Policy - CPA Policy 8.4 The timing or frequency of reviews should take place in response to the Service User’s needs and in negotiation with the Service User and their Carers, the MDT, GP and other relevant parties in keeping with protocols and standards. As a minimum requirement each Service User must be reviewed at least once in every twelve month period. Separate arrangements exist for Service Users on supervised community treatment orders. 8.5 Review and evaluation of the service user’s care plan should be ongoing. The regularity of reviews will depend on the needs of the individual but should always take into account care management requirements and the care team should agree which issues will trigger emergency reviews (e.g. non compliance). Review of risk is an ongoing process carried out on each and every contact with the service user. In all circumstances, the date of the next CPA review must be set and recorded at each review meeting, with the knowledge and agreement of the Service User and the Care Team. This date must include the time, day, month and the year. 8.6 Reviews should be pre-planned and confirmed with all interested parties. Anyone involved in the delivery of care to the Service User, including the Service User and their GP, should be invited to attend or contribute. If any member of the Care Team cannot attend the review meeting, it is their responsibility to ensure that any significant/relevant information regarding the Service User should be communicated for the purposes of the review. 8.7 The purpose of the review is to consider the progress the Service User has made and how they have responded to the services provided, to consider ways in which their needs may have changed and, therefore, the extent to which the Care Plan requires amending. 8.8 Priority should be given to the review of the Risk Management Plan, identifying those aspects that have been successful, those that have not and any alternative strategies. 8.9 All aspects of the Service User’s Care should be reviewed simultaneously including the Service User’s statutory status. 8.10 A member of the Care Team, the Service User or Carer, can call an early review at any time via the Care Co-ordinator. The Care Team must consider calls for an early review and, if this is not considered appropriate, then reasons why must be given and documented. A Review should be arranged when: significant adverse events occur, they are requested by service user / carer, risk increases, inpatient admission, prior to discharge, breakdown of current care plan, before services are changed through withdrawal, reduction, transfer or transition. Date of Issue: AUGUST 2008 14 of 28 Effective Care Co-Ordination Policy - CPA Policy 9. DISCHARGE SERVICES AND RE-ACCESSING SPECIALIST MENTAL HEALTH 9.1 When a Service User is discharged from Specialist Mental Health Services, they should be provided with written information that explains how they can readily access Mental Health Services if their situation deteriorates. 9.2 For those Service Users who have previously been significantly disabled by their mental health problem, and/or have had a diagnosis of severe and enduring mental illness, clear Discharge Plans which inform how to reengage with services in the event of signs of relapse/ deterioration must be in place. 9.3 Crisis and Contingency Plans must be as robust as possible and inform the GP, the Primary Health Care Team, the Carers and the Service User how to reaccess Mental Health Services. These must be written, communicated and understood before discharge can take place. 10. SECTION 117 AFTERCARE 10.1 Section 117 of the Mental Health Act 1983, places a statutory duty on authorities to provide aftercare services of certain detained Service Users. 10.2 Section 117 aftercare only applies to those detained under Section 3, 37 and transfer orders made under Section 45A, 47 and 48. 10.3 Given that the principles of CPA and after-care are the same, Section 117 needs should be incorporated into the CPA care plan. Therefore Section 117 care planning should be incorporated into the CPA review process. Section 117 runs in parallel and is complementary to the Care Programme Approach. 10.4 The duty to provide aftercare lasts until both authorities are satisfied that the Service User is no longer in need of such Services. 10.5 When it is felt that the service user is no longer in need of Section 117 aftercare, the signature of both agencies, even where only one agency is involved, is required. In all cases a Social Worker should consult with their Team Manager before signing to agree that Section 117 aftercare is no longer appropriate. The Social Worker will then complete the Section 117 discharge form. 10.6 The Service User can refuse to accept the offer of aftercare services. Under these circumstances the Care Coordinator should continue to attempt to persuade the service user to accept the service until it is agreed at a formal CPA review meeting that this is no longer appropriate. 10.7 The Service User should be identified as being subject to Section 117 by completing the relevant details on the relevant form. 10.8 Supervised community treatment orders. (See policy on SCTO) Date of Issue: AUGUST 2008 15 of 28 Effective Care Co-Ordination Policy - CPA Policy 11. REJECTION, REFUSAL, NON-COMPLIANCE AND MISSING PERSON 11.1 It is the responsibility of each worker to ensure that his or her part of the Care Package is carried out. However, in some cases relationships between the Service User and the worker can break down and jeopardise the Care Plan. In this case the responsibility falls to the Care Co-ordinator to find out why the service user no longer wishes to co-operate with the plan so that the situation can be redressed to the satisfaction of all involved. 11.2 Service Users who meet the criteria for the CPA and have a history of severe and enduring mental illness must not be discharged solely on the grounds they are uncooperative. All possible efforts should be made by the Care Coordinator to stay in touch with the Service User and work at developing a relationship that will enable increased care in the long term. The Care Plan should acknowledge the MDT’s difficulty in attaining engagement with the Service User. This acknowledgement must be communicated with all those involved in that Service User’s care and documented. 11.3 If there is a serious risk of suicide, self-neglect or harm to others through the Service User’s refusal, then compulsory admission and treatment under the Mental Health Act should be considered. This would necessitate MultiDisciplinary consultation and the subsequent arrangement of a joint assessment visit with the GP, ASW and Consultant Psychiatrist. 11.4 When working with Service Users who have a history of rejection, refusal or non-compliance, a thorough risk management strategy should be in place that considers the range of actions that should be taken at times of greatest concern. 11.5 Decision to discharge must be agreed by the Multi-Disciplinary Team through a formal CPA Review meeting. Service Users must not be discharged following failure to keep a fixed number of appointments. 12. SERVICE USES WHO LOSE TOUCH WITH OR GO MISSING FROM SERVICES 12.1 If a Service User fails to attend for an appointment or is not at home for a prearranged visit, consideration should be given to the Service User’s previous reliability with respect to such arrangements. If contact cannot be reestablished, the Care Co-ordinator should be informed and the appropriate action taken. This may include contacting a third party such as relatives, the GP, support agencies or the police. 12.2 For those Service Users with a history of a loss of contact, trigger factors should be identified and action should be documented within the risk management strategies recorded on the Care Plan in relation to relapse. This would ensure that all professionals involved would respond in the same way without periods of time elapsing without action. Date of Issue: AUGUST 2008 16 of 28 Effective Care Co-Ordination Policy - CPA Policy 12.3 A CPA Review meeting should be called as soon as the Service User loses contact with services to share information and determine action. 12.4 It will be necessary to take into account the Service User’s current mental state, previous history; potential and actual risk to self or others and the other available support networks, in order to plan intervention. 12.5 Where a Service User seems to disappear from Services there is a duty of care to make all reasonable efforts to locate them to negotiate arrangements for their care and treatment. Actions to achieve this should be clearly recorded. 12.6 The Care Co-ordinator should contact any Carers, other members of the Care Team, relatives and known associates to try to locate the Service User and to offer support and monitor their wellbeing. Use of the National Tracking Service may assist in checking their location via GP registration. 12.7 Where there are dependent children within the household of a Service User with mental health needs, special consideration should be given to the implications this may have for those children. Children’s welfare is a paramount consideration for all professionals. Where there are issues of concern, the Trust’s Public Health Advisor for Children and Families and the relevant Child Care Services from the transferring and receiving district should be involved in the planning arrangements for the transfer, so that children’s needs may be properly identified and managed. 12.8 Where a child is on the Child Protection Register and is moving to another Local Authority area, it is imperative that a speedy exchange of information is carried out between districts. The Trust’s Public Health Advisor for Children and Families must be informed in order to liaise with the appropriate Lead Child Protection Health Professional within that area. There will be a transfer Child Protection Conference held which Staff transferring care must attend. Staff must at all times follow the relevant Trust and Local Authority Protection Procedures. 13. TRANSITION PROTOCOLS 13.1 Periods of transition in the care process represent a time of increased risk. For this reason a number of transition protocols are in place to support the delay of effective and efficient clinical services. These protocols must be read in conjunction with this policy and all operate in accordance with the framework provided by the CPA. The transition protocols are as follows: x Protocol for the transit of Clients from Child & Adolescent Mental Health Services. x Protocol for the transition of Clients between Adult & Older Adult Mental Health Services. x Protocol for the transition of Clients between HM Prison (Lancashire Locality) and Mental Health Services (Lancashire). Date of Issue: AUGUST 2008 17 of 28 Effective Care Co-Ordination Policy - CPA Policy x Protocol for good practice in the transfer of Service Users care between districts. 14. CARE CO-ORDINATION WITHIN THE CRIMINAL JUSTICE SYSTEM MAPPA 14.1 The link between mental illness and offending is noteworthy, however it is complex. There are distinct differences in offending patterns between men and women, which clearly affect their care and treatment needs under the CPA. 14.2 A significant number of individuals within the Criminal Justice System will require the support of the Mental Health System at some point in their lives and not necessarily just when in prison. For some people with mental health problems, their first contact with Mental Health Services will come through the Criminal Justice System. The CPA applies to these people regardless of the setting. Where Service Users are the shared responsibility of Mental Health and Criminal Justice Systems, close liaison and effective communication over care arrangements, including ongoing Risk Assessment and Management are essential. 14.3 Where a Service User is not in formal contact with the criminal justice system, but is assessed as being a potential risk to others, careful liaison with the Police to manage any immediate risks is necessary. In this context it is important to note that the common law duty of confidence requires that, in the absence of a statutory requirement to share information provided in confidence, such information should only be shared with the informed consent of the Individual. However, this duty is not absolute and can be over-ridden if the holder of the information can justify disclosure as being in the public interest (including a risk to public safety). The Caldicott Principles and Data Protection Act 1998 should be adhered to at all times. Further guidance on the operation of the common law is included in the DH publication HSG (96) 18 The Protection and Use of Patient Information. Decisions to disclose information against the wishes of an individual should be fully documented and the public interest justification clearly stated. Service Users considered as High Risk to Others 14.4 Some Service Users of mental health services will also have co-existing risk issues, which may or may not be diagnostically related. Service Users who present a significant risk to the public and have previous convictions for assaultative, abusive or threatening behaviour may also be subject to MAPPA protocols and procedures. Mental Health Services have a responsibility to participate fully within the MAPPA framework to ensure protection of the public. Most high risk mentally disordered offenders will be registered as Level 2 MAPPA cases, unless a multi-agency decision, particularly the police and probation consider the case as highly dangerous requiring very close Date of Issue: AUGUST 2008 18 of 28 Effective Care Co-Ordination Policy - CPA Policy monitoring and special arrangement where an Individual may be recorded as MAPPA 3. 14.5 However, there are also a number of Service Users who appear to present a considerable risk to others, family, staff and the public, but who do not have recent, relevant or significant previous convictions, which precludes them from registration and monitoring under the MAPPA framework; i.e. Level 1. This means that the responsibility for Care Delivery and monitoring lies with Mental Health Services, specifically the RMO and Care Co-ordinator. For further information regarding MAPPA Framework i.e. levels 1, 2 and 3 refer to the Criminal Justice Act 2002. Multi-disciplinary, Cross Agency CPA Reviews Incorporating Risk Assessment/Management 14.6 CPA Reviews encourage attendance of all Staff involved in the care of the Individual Service User, in addition to the User and the Carer. However, it is difficult for partnership agencies to prioritise CPA Reviews when they do not fully understand the CPA process are not formally invited by letter and if reviews do not take account of the individual agencies remit and Service objectives. 14.7 In order to develop effective risk management plans for Mental Health Service Users it may be beneficial to invite the police, probation and other agencies e.g. Child Protection Social Workers. Clearly, these Staff will not necessarily have a direct interest or involvement in the review of the Mental Health Care Plan. Therefore, it would be advantageous to hold a CPA Review, which directly focuses on Risk Management – a CPA/Risk Review. Multi-Disciplinary Risk Review 14.8 To be arranged by the Care Co-ordinator or RMO when a person presents a significant risk to self or others and the current Care Plan has become ineffective and/or the person presents such a high level of risk and complexity that it appears impossible to construct a care/risk plan within current resources. 14.9 A multi-agency Risk/CPA Review should be arranged to discuss the elevation of risk/breakdown of the care plan in order to amend intervention to ensure safety of the Service User, Carer, Staff and the Public. 14.10 The Care Co-ordinator will formally invite all relevant parties involved with the Service User and Carer, if appropriate. NB. Due to the level and nature of the risk presented by the Individual Service User, it may be necessary to hold professionals’ only meeting (or have a closed section of the meeting). Where possible, efforts should be made to provide feedback to the service user and carer. The Care Co-ordinator in discussion with the Multi-Disciplinary Mental Health Team should determine who needs to attend the Risk Review: 14.11 Examples of possible invitees include the local Community Affairs Inspector (or nominated deputy) to represent the police, the local Senior Probation Officer (or Date of Issue: AUGUST 2008 19 of 28 Effective Care Co-Ordination Policy - CPA Policy nominated deputy) if a current or previous probation Service Client, the Criminal Justice Liaison Worker and a representative of the Forensic Community Mental Health Team, if possible. 14.12 Summaries of the Risk Assessment and current Risk Management Plan should be distributed with the invitation letter to allow attendees to be appraised of the specific areas of concern, prior to the meeting. 14.13 The Mental Health Team should ensure: x x x x x x x The development of a standard letter of invitation for partnership agencies that succinctly explains the importance of the Risk Review Meeting. This letter should include a confidentiality clause outlining the highly confidential nature of content and minutes of the meeting. It may also be necessary to have a ‘restricted, not for disclosure’ section in the minutes, which contains highly confidential information such as surveillance information from the police, 3rd party names who may be at risk etc. Minutes of the meeting should be circulated only to invited participants, and other necessary professionals as agreed at the meeting. The minutes should be stored in the 3rd party section of the medical case notes Sufficient advance notice to maximise attendance, unless the meeting is urgent/emergency An appropriate venue to host the meeting The Risk Review Meeting commences on time A formal style of meeting – Chair and Minute Taker 14.14 The chairperson should: x x x x x x x x Be a Senior Practitioner/Manager who is not directly involved in the care of the Service User. Formally introduce the purpose of the meeting i.e. to review the current/previous risk profile, relevant historical factors, level and context of risk and areas where the current Care/Risk Plan is ineffective. Reiterate the confidentiality clause for all participants Ensure that all attendees are able to contribute to the discussion about risk features and areas of concern from their individual professional/agency perspective. Progress the meeting to establish possible cross agency communication and strategies to manage identified risks. Conclude the meeting to summarise specific risks, management strategies, Individuals responsible for intervention, contingency arrangements and timescales for review. Attendees should formally sign as acceptance of the Risk Management Plan determined by the meeting, prior to leaving. Any contentious views should be noted with the signature. Minutes and the Risk Management Plan should be circulated promptly to all attendees as appropriate. Date of Issue: AUGUST 2008 20 of 28 Effective Care Co-Ordination Policy - CPA Policy 14.15 The above structure is designed to focus CPA meetings on the multi-faceted management of Individual Service Users who may present significant risks to themselves or others and require the construction of a robust risk management plan owned by representatives of relevant agencies. Service Users not registered under the CPA 14.16 A&E and Criminal Justice Liaison Teams for example; may encounter Service Users who appear to display significant risk features, but are not registered under the CPA. The above system is applicable for such Individuals and the Team Leader/Manager should determine who is most appropriately placed to take on the co-ordination role to arrange the Risk Review. Prison Based Health Care 14.17 Prison based Health Care staff and NHS Mental Health Services share responsibility for ensuring appropriate liaison on the care of mentally disordered prisoners. It is particularly important that effective links are made to ensure sound discharge planning when prisoners are released from prison. 14.18 If a Service User is being held on remand or has received a sentence shorter than twelve months, the Care Co-ordinator must ensure that they maintain contact with the Service User and review the care and treatment they receive when they enter the prison system, thus ensuring the continuity of the care. 14.19 As soon as the Care Co-ordinator is made aware that a Service User has been detained or entered the prison system early communication of his or her involvement must take place. This communication will be followed up by a fax message (number to be made available to each Line Manager). The name of the Health Care Staff member with whom communication has taken place must also be recorded. 14.20 The Care Co-ordinator will discuss the arrangements for an early CPA review with those involved including the identified Mental Health in reach team or prison based Health Care Staff where possible. Particular emphasis should be made to risk assessment and management. 14.21 Following review, a Care Plan should be agreed with the service user (and if appropriate, their carers and others involved in their care) prior to release from prison with contingencies in the event of early release. 14.22 In particular the Care Co-ordinator needs to make sure that they are, wherever possible, aware of the Service User’s prison establishment and location and likely release date, so that appropriate planned care can be implemented when they are released. Discharging Service Users who enter the Prison System 14.23 If a Service User has been sentenced and is likely to be detained in prison for longer than twelve months the existing Care Co-ordinator in most cases is Date of Issue: AUGUST 2008 21 of 28 Effective Care Co-Ordination Policy - CPA Policy unlikely to be the person ‘best placed’ to ensure care is co-ordinated effectively. Therefore, clear arrangements for discharge from local Specialist Mental Health Services must be in place. 14.24 The arrangements for discharge from local Mental Health Services are best delivered through a formal review meeting. Ideally all those involved should be present (the review can take place in the prison setting if deemed the most appropriate place). 14.25 At the review a Care Co-ordinator or equivalent will be identified and the arrangements for re-accessing Mental Health Services once the sentence has passed must also be in place (within a care plan). Other Service Users In Contact with the Criminal Justice System 14.26 The principles outlined above should also be applied to other Service Users who may be in contact with the Criminal Justice System. For example, Individuals who are subject to probation orders or where regular communication with the Police may occur through the MAPPA arrangements. In such cases it is important that effective links are made in order to facilitate effective care planning and robust risk assessment management. . 15. MEETING THE NEEDS OF CHILDREN 15.1 Specific Policies and Procedures must be in place within the Community Mental Health Services in particular, and the rest of Mental Health Services for those Service Users who have dependent children and/or children who are identified as being in need or where there are Child Protection concerns. It is important that reference is made to the Adult Mental health and Child Protection guidance and Multi-Agency protocol 15.2 The relevant Child Protection Procedures must be followed where there are concerns for the welfare/safety of children and young people. Service Users who may pose a risk to Children and Young People 15.3 During the assessment and provision of care, it may become known that the Service User may pose a risk or potential risk to children/young people or adults. The protection of children and vulnerable adults is paramount and integral to the provision of any Healthcare Service. 15.4 The Care Co-ordinator and all Staff providing care must be made aware of any disclosures made and Police Public Protection Unit notified as well as Children’s Social Care, in line with LSCB procedures. Staff must identify if Multi-agency Public Protection Arrangements (MAPPA) have been put into place. 15.5 In a ward environment staff must consider any young person currently being cared on the same ward who must be protected from disturbed and/or dangerous situations and arrangements should be sought to find alternative Date of Issue: AUGUST 2008 22 of 28 Effective Care Co-Ordination Policy - CPA Policy accommodation providing a safe environment away from known offenders or those who pose a risk to children/young people. 15.6 Information regarding the arrangements for identification of child protection issues, referral and assessment arrangements, co-ordination of follow up of assessment outcomes are contained in Lancashire Care Trust’s policy for Safeguarding Children and the relevant Local Authority Policy documents. 16. CPA AND CONFIDENTIALITY 16.1 The implementation of CPA does not affect the service user’s right to confidentiality in any way. All information relating to service users remains confidential within the usual exceptions. 16.2 In order to deliver appropriate care for those Service Users, it is vital that those involved have ready access to the information necessary for the safe, sound and supportive implementation of the care package. However, it is also important that Service Users and their Carers can trust that personal information will be kept confidential and that their privacy will be respected. 16.3 All Staff have an obligation to safeguard the confidentiality of personal information. This is to comply with the law, contracts of employment and in many cases, professional codes of conduct. All staff should be made aware that breaches of confidentiality could be a matter for disciplinary action and provides grounds for complaint against them. 16.4 It is neither practicable nor necessary to seek a service user’s specific consent every time information needs to be passed on for the particular purpose of delivering care and treatment for the Service User. This is contingent on the service user having been fully informed of the uses to which information about them may be divulged. 16.5 Clarity about the purposes to which personal information is to be divulged is essential and only the minimum identifiable information necessary to satisfy that purpose should be made available. Access to personal information should be on a strict need to know basis. 16.6 It is the responsibility of the Care Co-ordinator to seek out and relay the relevant information to other agents who have a legitimate need to know. This is particularly important in circumstances where there may be family and child welfare issues, probation, or housing, health and social issues involving other agencies. 16.7 There may be other circumstances in which the disclosure of information is required by statute or court order, or the absence of consent can be justified in the public interest. 16.8 Specific consent is required prior to personal information being transferred for purposes other than those defined in this policy, unless there are exceptional circumstances as outlined above. Where Service Users are unable to give Date of Issue: AUGUST 2008 23 of 28 Effective Care Co-Ordination Policy - CPA Policy consent to their information being shared, the decision should be made on the Service User’s behalf by those responsible for providing care, taking into account the views of the Service User and Carers with the Service User’s best interest being paramount. 17 TRAINING 17.1 Training and development is an essential requirement for the successful delivery of Mental Health Services within Lancashire. The development and delivery of training to support CPA is part of the Trust’s/Local Authorities training plan. This training will focus on the key principles underlying the care process, i.e. assessment, core planning and intervention. All training and monitoring for this policy will be undertaken in line with the requirements set out in the Statutory / Mandatory Training Policy. 17.2 All recording and mandatory training will be undertaken in line with the requirements sent out in the Statutory Training Policy 18. AUDIT 18.1 “Audit and monitoring are essential components of successful implementation of CPA” (ECC paragraph 72). 18.2 All Staff and their Managers have crucial roles in respect of providing audit information for Service Users on their caseload, they must be aware that completion of the audit is mandatory. 18.3 The responsibility for auditing the ‘quality’ of care plans lies with each departmental manager in line with the NSF. Utilising supervision mechanisms together with other audit initiatives, they will ensure that standards for Care Planning are met. The CPA leads will support these processes. 18.4 Evidence of CPA audit activity must be built into the activity of both Clinical Governance and Best Value as part of both each organisations drive towards continuous improvement. Also evidence of any required actions stemming out of these audits must be made available when required. 18.5 Audit will be on an annual basis and will be based on the standards outlined in this policy Date of Issue: AUGUST 2008 24 of 28 Effective Care Co-Ordination Policy - CPA Policy REFERENCES DEPARMENT OF HEALTH: The National Service Framework (1999). L46/01 16575 com 30k 1P Sep 1999 THE MENTAL HEALTH ACT (1983) DEPARTMENT OF HEALTH: Effective Care Co-ordination in Mental Health Services Modernising the Care Programme Approach, NHSE (1999). DEPARTMENT OF HEALTH: The Care Programme Approach (1991). (Joint Health & Social Services Circular HC (90) 23/LASSL (90) 11) DEPARTMENT OF HEALTH (2007) Best practice in managing risk DEPARTMENT OF HEALTH (2008) Refocusing the Care programme Approach SOCIAL SERVICES INSPECTORATE: Still Building Bridges (1999) C1 (1999). ‘An Audit Pack for the Monitoring of the Care Programme Approach (2001) The CPA Handbook – The CPA Association (2001) NATIONAL HEALTH SERVICE EXECUTIVE: Audit Pack for Monitoring the CPA, (HSG (96) 6). NATIONAL CONFIDENTIAL ENQUIRY INTO SUICIDE AND HOMICIDE BY PEOPLE WITH MENTAL ILLNESS (1999) Date of Issue: AUGUST 2008 25 of 28 Effective Care Co-Ordination Policy - CPA Policy Appendix 1 Statement of Values and Principles Table 1 The approach to individuals’ care and support puts them at the centre and promotes social inclusion and recovery. It is respectful – building confidence in individuals with an understanding of their strengths, goals and aspirations as well as their needs and difficulties. It recognizes the individual as a person first and patient/service user second. Care assessment and planning views a person ‘in the round’ seeing and supporting them in their individual diverse roles and the needs they have, including: family; parenting; relationships; housing; employment; leisure; education; creativity; spirituality; self-management and self-nurture; with the aim of optimising mental and physical health and well-being. Self-care is promoted and supported wherever possible. Action is taken to encourage independence and self-determination to help people maintain control over their own support and care. Carers form a vital part of the support required to aid a person’s recovery. Their own needs should also be recognized and supported. Services should be organised and delivered in ways that promote and co-ordinate helpful and purposeful mental health practice based on fulfilling therapeutic relationships and partnerships between the people involved. These relationships involve shared listening, communicating, understanding, clarification, and organization of diverse opinion to deliver valued, appropriate, equitable and co-coordinated care. The quality of the relationship between service user and the care-coordinator is one of the most important determinants of success. Care planning is underpinned by long-term engagement, requiring trust, team work and commitment. It is the daily work of mental health services and supporting partner agencies, not just the planned occasions where people meet for reviews. Date of Issue: AUGUST 2008 26 of 28 Effective Care Co-Ordination Policy - CPA Policy Appendix 2 Table 2 Service users needing (new) CPA Other service users An individual’s characteristics Complex needs; multi-agency input; higher risk. See detailed definition in Table 1. More straightforward needs; one agency or no problems with access to other agencies/support; lower risk. What the service users should expect Support from CPA care co-ordinator (trained, part of job description, coordination support recognised as significant part of caseload) Support from professional(s) as part of clinical/practitioner role. Lead professional identified. Service user selfdirected care, with support. A comprehensive multi-disciplinary, multi- A full assessment of need for clinical agency assessment covering the full care and treatment, including risk range of needs and risks. assessment. An assessment of social care needs against FACS eligibility criteria (plus Direct Payments) An assessment of social care needs against FACS eligibility criteria (plus Direct Payments) Comprehensive formal written care plan; including risk and safety/contingency/crisis plan. Clear understanding of how care and treatment will be carried out, by whom, and when (can be a clinician’s letter) On-going review, formal multidisciplinary, multi-agency review at least once a year but likely to be needed more regularly. On-going review as required. At review, consideration of on-going need On-going consideration of need for for (new) CPA support. move to (new) CPA if risk or circumstances change. Increased need for advocacy support. Self-directed care, with some support if necessary. Carers identified and informed of rights to own assessment. Carers identified and informed of rights of own assessment. Date of Issue: AUGUST 2008 27 of 28 Appendix 3 Date of Issue: AUGUST 2008 Effective Care Co-Ordination Policy - CPA Policy 28 of 28 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults POLICY AND PROCEDURE FOR SAFEGUARDING AND PROTECTING VULNERABLE ADULTS POLICY NO DATE RATIFIED NEXT REVIEW DATE CL 022 Feb 2009 Feb 2012 POLICY STATEMENT/KEY OBJECTIVES: The Trust has policy and procedures in place for all Lancashire Care NHS Foundation Trust Staff to promote the welfare of vulnerable adults and ensure their safety and protection. ACCOUNTABLE DIRECTOR: Director of Nursing POLICY AUTHOR: Public Health Advisor Children and Families Named Nurse Child Protection Date of issue – March 2009 1 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Executive Summary Subject Safeguarding and protecting procedures Applicable to All employees of Lancashire Care NHS Foundation Trust Key Policy Issues To ensure all staff have an awareness of their roles and responsibilities To provide clarity of referral processes where there are concerns for an adult in need of support or protection General vulnerable adult procedure if abuse is suspected Date Issued Dates Policy reviewed Next review due date Policy written by February 2009 February 2009 January 2012 Public Health Advisor Children and Families/ named Nurse Child Protection / LCFT Safeguarding Practitioner Executive Directors Senior Management Team Safeguarding Committee Safeguarding Committee Director of Nursing Consultation Policy reviewed by: Lead responsible for policy Monitoring arrangements Approved by Authorised by Signature Related procedural documents Date of issue – March 2009 Vulnerable Adult The Public Health Advisor Children and Families/ named Nurse Child Protection will be responsible for monitoring this procedure and will provide assurance to Safeguarding Committee and EMT Governance via quarterly and annual reports the Risk Management Annual Report Safeguarding Committee Senior Management Team Policy & Governance Patrick Sullivan Director of Nursing Procedure for the reporting and management of incidents including the management of serious untoward incidents No Secrets in Lancashire: A Joint Strategy to Protect Vulnerable Adults From Abuse Blackpool Vulnerable Adults Committee, Code of Practice and Procedures and Blackburn with Darwen Adult Protection Policy and Procedures 2 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Contents 1.0 2.0 3.0 4.0 5.0 6.0 7.0 8.0 9.0 10.0 11.0 12.0 13.0 14.0 15.0 16.0 17.0 18.0 19.0 20.0 21.0 Page Summary Introduction Standards Definitions Scope Principles Duties Confidentiality Capacity and consent Concerns Regarding Poor Practice “Whistle blowing” Record Keeping Concerns about Abuse from staff Concerns regarding Abuse from one Vulnerable Adult to Another Abuse/concern within the Home Environment Training Support for staff Monitoring Equality and Diversity Impact Assessment Review Other associated Policies and Procedure References References Appendix 1 Appendix 2 Appendix 3 Appendix 4 Appendix 5 Appendix 6 Date of issue – March 2009 Procedure for Safeguarding and Protecting Vulnerable Adults Blackburn with Darwen Flowchart for Reporting Lancashire Flowchart for Reporting Blackpool Flowchart for Reporting Female Body Map Male Body Map 4 4 4 5 7 7 7 10 10 10 11 11 11 11 11 11 12 13 13 13 13 15 27 28 29 30 31 3 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 1.0 Summary The Department of Health’s No Secrets document (DoH, 2000) provides guidance that requires all agencies to have arrangements in place to effectively safeguard, protect and respond to known or suspected abuse of vulnerable adults. Lancashire Care Foundation Trust (LCFT) Policy and Procedures have been developed in line with current evidence and follows the principles outlined in the following Local Authority Procedures: x x x No Secrets in Lancashire: A Joint Strategy to Protect Vulnerable Adults From Abuse Blackpool Vulnerable Adults Committee, Code of Practice and Procedures and Blackburn with Darwen Adult Protection Policy and Procedures This document be should read in conjunction with the appropriate mentioned documents, depending on the residence of the vulnerable adults. The abuse of vulnerable adults constitutes a clear infringement of their rights and freedoms as citizens. 2.0 Introduction This policy aims to promote the protection of vulnerable adults, who are at risk of all forms of abuse, and ensure that they receive a safe, sound and supportive service, through the process of identifying, investigating, managing and preventing such abuse. 3.0 Standards LCFT Safeguarding Adult practice reflects the standards within the national framework for Safeguarding adults October 2005 - Produced in Oct 2005 by the Association of Directors of Social Service (ADSS) x Accountability for and ownership of ‘Safeguarding Adults’ work is recognised by each partner organisation’s executive body x Each partner agency has a clear, well-publicised policy of Zero-Tolerance of abuse within the organisation x Each partner agency has a set of internal guidelines, consistent with the local multiagency ‘Safeguarding Adults’ policy and procedures, which sets out the responsibilities of all workers to operate within it x The Trust will work in partnership with the local authority and other agencies as needed, where Adult Safeguarding incidents are identified Date of issue – March 2009 4 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults x The safeguarding procedures are accessible to all adults covered by the policy. “Safeguarding adults is the responsibility of all agencies and cannot exist in isolation. It must be effectively linked to other initiatives, as part of a network of measures aimed at enabling all citizens to live lives that are free from violence, harassment, humiliation and degradation.” (ADSS Framework) x As a service we are committed to promoting equality of opportunity to all members of our community. It is every adult’s right to live in safety and to be free from abuse or fear of abuse from others. It is every adult’s right to live an independent life based on ‘self-determination’ and personal choice. An independent life style may involve risk for vulnerable adults. LCFT respects this choice and will support them in making such decisions. It is the responsibility of all the agencies and professionals to actively work together to help prevent abuse of vulnerable adults. This will be achieved by raising awareness, empowering people to make their own decisions and putting safeguards in place x To ensure all adult protection incidents are recorded, reported and investigated in line with Trust serious untoward incident and risk management arrangements x Manage the risks associated with Adult Safeguarding in line with the Trust Adult Safeguarding procedure in Appendix 1. A CRIMINAL INVESTIGATION BY THE OVER ALL OTHER LINES OF ENQUIRY. ALL LINES OF ENQUIRY. AN INTERNAL CONDUCTED WHERE LCFT STAFF ARE ABUSE. 4.0 POLICE WILL TAKE PRIORITY LCFT WILL COOPERATE WITH INVESTIGATION WILL STILL BE ALLEGED PERPERTRATORS OF Definitions Safeguarding adults is defined for the purpose of this policy and its procedure as: x x x protecting adults from harm or maltreatment preventing impairment of health ensuring that adults live in circumstances consistent with the provision of safe and effective care Adult at risk is a person aged 18 or over and who may already be in receipt or in need of community care services by reason of mental or other disabilities, age or illness. This person may be unable to take care of him or herself, or unable to safeguard themselves against significant harm or exploitation. The concept of significant harm introduced in the Children Act can be applied to the consideration of harm to vulnerable adults. This suggests that: Date of issue – March 2009 5 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Harm should be taken to include not only ill treatment (including sexual abuse and forms of ill treatment which are not physical) but also the impairment of or an avoidable deterioration in physical or mental health, and the impairment of physical, intellectual, emotional, social or behavioural development. Emotional harm can be caused by a vulnerable adult being exposed to domestic violence or being aware of domestic violence within the home. Neglect is the persistent failure to meet an adult’s basic physical and / or psychological needs, likely to result in the serious harm to that persons health and welfare. The consequences of neglect can have a life long impact. Safeguarding adults encompasses all aspects of adult protection. Abuse is a violation of an individual’s human and civil rights by other person or persons. Abuse may consist of single or repeated acts. It may be physical, verbal or psychological, it may be an act of neglect or an omission to act, or it may occur when a vulnerable person is persuaded to enter into a financial or sexual transaction to which he or she has not consented, or is unable to consent to. Abuse can occur in any relationship and may result in significant harm, or exploitation of the person subjected to it. Abuse may take one or more of the following forms: x x x x x x x x Physical abuse, including hitting, slapping, pushing, kicking, misuse of medication, restraint, or inappropriate sanctions Sexual abuse, including rape and sexual assault or sexual acts to which the adult has not consented, could not consent to, or was pressured into consenting Psychological abuse, including emotional abuse, threats of harm or abandonment, deprivation of contact, humiliation, blaming, controlling, intimidation, coercion, harassment, verbal abuse, isolation or withdrawal from services or supportive networks Financial or material abuse, including theft, fraud, exploitation, pressure in connection with wills, property or inheritance or financial transactions, or the misuse or misappropriation of property, possessions or benefits Neglect and acts of omission, including ignoring medical or physical care needs, failure to provide access to appropriate health, social care or educational services, the withholding of the necessities of life, such as medication, adequate nutrition and heating Discriminatory abuse, including racist, sexist, that based on a person’s disability, and other forms of harassment, slurs or similar treatment Domestic abuse is any incident of threatening behaviour, violence abuse (psychological, physical, sexual, financial or emotional) between adults who are or have been intimate partners or family members, regardless of gender or sexuality. It is a pattern of abusive and controlling behaviour by which the perpetrator seeks to exert power over the victim Institutional abuse can include any of the above and poor or unsatisfactory professional practice, or pervasive ill treatment or gross misconduct. It is abuse or mistreatment by a regime as well as by individuals, within any setting where care is provided Date of issue – March 2009 6 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults x 5.0 Bullying behaviour is a form of abuse, defined as ‘the unjustified display of verbal or physical aggression on the part of one individual or group towards another’ Scope This policy must be followed by all staff employed and independently contracted by Lancashire Care Foundation Trust (LCFT). This policy is supplementary to and not a replacement for individual Local Safeguarding Adult multi agency policy and procedure and must be read in conjunction with them. x This policy applies to all vulnerable adults 18 years or over x This policy is to be followed irrespective of the setting in which abuse is either suspected or alleged. This will ensure that the need of the vulnerable adult remains the focus of all interventions and actions and that staff will also be supported and protected. 6.0 Principles In the provision of services to all Trust service users, the Trust has a commitment to deliver these services in a non-discriminatory manner. No assumption can or should be made that people with mental health problems, those in receipt of substance misuse services or those with a learning disability constitute a risk to children simply by virtue of their difficulties. Vulnerable adults have the right to be protected from harm and to receive services when their health or welfare is at risk. All interventions should enable an adult "who is or may be eligible for Community care services" to retain independence, well being and choice and to access their human right to live a life that is free from abuse and neglect (No Secrets). Protection will be provided to those who do not have the mental capacity to access it themselves in line with: Human Rights Act 1988, Mental Capacity Act 2005 Mental Health Act 2007 & Mental Capacity Act Amendments – Deprivation of Liberty Standards Domestic Violence Crime and Victims Act 2004 7.0 Duties 7.1 Chief Executive The Chief Executive as the Accountable Officer has overall responsibility for ensuring the implementation of effective Safeguarding Adult arrangements and meets all statutory requirements. Executive responsibility is delegated to the Director of Nursing. Date of issue – March 2009 7 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 7.2 Director of Nursing x The Director of Nursing is the executive lead for LCFT and reports directly to the Chief Executive on related issues and is a representative on the local authority safeguarding boards. x The Director of Nursing also has responsibility for ensuring the Trust as a partner agency meets the standards for good practice embodied in “No Secrets” D.H. 2000 and the ADSS National Framework and ensures that local arrangements and protocols are in place to support compliance with local authority multi agency adult protection policy and procedure. x Providing assurance to the Trust Board of compliance with this procedure via the Governance report 7.3 Deputy Director of Nursing Line manages the LCFT Safeguarding Team and sits on local authority safeguarding boards. 7.4 Public Health Advisor Children and Families/Named Nurse Child Protection and the Safeguarding Practitioner general responsibilities include: x Liaison and links with local authority Safeguarding Adult leads x Ensuring that the Safeguarding of Adults and Children are linked and considered together x Development of safeguarding practice x Provision of safeguarding advice and support x Identification of safeguarding/vulnerable adult training needs and facilitate access to appropriate training x Facilitating advice on legal matters in conjunction with the Trust’s legal advisors x Close liaison with the management structures within LCFT and other agencies to address both strategic and operational issues relating to the safeguarding adult agenda x Providing assurance to the Safeguarding Committee of compliance with this procedure x Developing an action plan to address issues of non compliance with this procedure 7.5 Network Directors are responsible for: x Ensuring policy implementation in their service area x Ensuring staff receive proper supervision in relation to safeguarding incidents in line with the Trust’s Supervision Policy x Ensuring that Adults Safeguarding issues are a standing item in all service meetings x Ensuring that local arrangements and protocols are in place that supports compliance with the local multi-agency Adult Protection Policies and that they are adhered to by all managers and their staff x Ensuring that all serious Adult Safeguarding Incidents are managed in line with the trust incident reporting procedures x Ensuring and monitor that all staff in their area are appropriately skilled and have up to date knowledge of Safeguarding procedures through their KSF and PDP outline Date of issue – March 2009 8 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 7.6 Service Managers, Modern Matrons, Professional Leads, Senior Nurses and Managers are responsible for: x Ensuring staff receive proper supervision in relation to safeguarding incidents in line with the Trust’s Supervision Policy x Ensuring all adult protection alerts are reported in line with local authority multi agency safeguarding adult policy and procedures x Responding to instances of suspected or actual adult abuse in a clinical proactive way to ensure the protection and safeguarding vulnerable adults x Coordinating investigations, chair adult protection strategy meetings and ongoing investigations in line with local authority multi agency safeguarding adult policy and procedures x Ensuring that all Team Leaders and Ward Mangers are aware of local authority multi agency safeguarding adult policy and procedures through their KSF and PDP outline 7.7 Team Leaders and Ward Managers are responsible for: x Ensuring that staff are aware of local authority multi agency safeguarding adult policy and procedures through their KSF and PDP outline x Ensuring that all staff are aware of the process for raising an adult protection alert x Ensuring that staff have access to the Trust Intranet Safeguarding and Protecting adult page x Ensuring staff receive proper supervision in relation to safeguarding incidents in line with the Trust’s Supervision Policy x Providing support for staff involved in any incident relating to vulnerable adults x Ensuring staff receive training as highlighted in the trust’s Training Needs Analysis 7.8 Safeguarding Champions These are identified practitioners in teams who liaise and work closely with the Safeguarding Team and they are responsible for: x Appraising existing care plans to ensure safeguarding issues are included and that they are sensitive to the current needs of the child and family x Clarifying roles and responsibilities of staff in line with LCFT and LSCB procedures x Establishing that practice is compliant with national and local safeguarding policies, procedures and guidance x Providing appropriate supervision and support, to enable safe and effective practice x Promoting professional development, identifying with the practitioner, gaps in knowledge and skills and directing staff into appropriate training x Ensuring that there is close communication with the Safeguarding Team/line managers, regarding safeguarding and protecting issues arising from practice 7.9 All Staff are responsible for: x Protecting and safeguarding vulnerable adults. x Understanding and implement the Trust Safeguarding and Protecting Vulnerable Adult Policy and Procedures x Familiarising themselves with the risk factors and signs/symptoms of abuse, and to be aware of the action to be taken should such an incident present itself x Attending training as required by the Trust’s Training Needs Analysis 7. 10 Trust Board is responsible for: Date of issue – March 2009 9 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Receiving assurances that this policy is being implemented, also EMT Governance in respect of receiving assurance from the safeguarding committee and providing assurance to the Trust Board 7.11 EMT Governance EMT Governance is responsible for: x Receiving assurance of compliance with this procedure from the Safeguarding Committee x Providing assurance to the Trust Board of compliance with tis procedure via the Director of Nursing’s Governance Report 7.12 LCFT Safeguarding Committee is responsible for: x To oversee the development, implementation and monitoring of systems, processes and policies to ensure Children, Young People and Vulnerable Adults are safeguarded whilst accessing services provided by LCFT x To approve performance processes and agree strategic direction for Safeguarding within LCFT x To monitor implementation of current legislation and policy in relation to Safeguarding Children and Vulnerable Adults x To agree quality standards, audit priorities/tools and support a training strategy for Safeguarding Children, Young People and Vulnerable Adults x Reporting to the Trust Board and will provide assurances that Safeguarding Children, Young People and Vulnerable Adults procedures are implemented according to the committee structure in the Risk Management Standard the Safeguarding Committee reports to EMT Governance 8.0 Confidentiality Information regarding Safeguarding of Adults must be handled in line with the Trust’s Policy for the lifecycle management of records. All staff and practitioners must protect all confidential information concerning patients and clients obtained in the course of professional practice and abide by their professional codes of conduct 9.0 Capacity and Consent All capacity and consent issues will be handled in line with the Mental Health Capacity Act 2005 and the Mental Health Act of 2008 10.0 Concerns Regarding Poor Practice “Whistle Blowing” If a criminal offence is alleged or suspected, police in the Police Public Protection Unit must be contacted for advice or to report directly. Date of issue – March 2009 10 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 11.0 Record Keeping Record keeping will be handled in line with the Trust’s Record Keeping Policy. Further guidance helpful to record keeping for Safeguarding incidents is included in the procedure. 12.0 Concerns about Abuse from Staff Inappropriate behaviour by a staff member towards any patients will not be tolerated and will be dealt with in line with the Trust’s Disciplinary Procedure. 13.0 Concerns Regarding Abuse from One Vulnerable Adult to Another Inappropriate behaviour between patients will not be tolerated and will be stopped immediately and handled in line with the Trust’s procedure. 14.0 Abuse/Concern Within the Home Environment Any issues or concerns regarding abuse within the home environment will be dealt with swiftly and in line with he Trust’s procedure in Appendix 1. 15.0 Training Staff will be trained in line with the Trust’s Training Needs Analysis See statutory and mandatory training procedure. Attendance and non attendance will be monitored in accordance with the statutory and mandatory training procedure. Expertise and knowledge levels of staff will be monitored in line with KSF and PDP outlines. Links to further training are available via the Trust’s Safeguarding and Protecting Adult intranet site. 16.0 Support For Staff x All managers have a duty to respond and take appropriate action, to provide support for staff and implement strategies to manage subsequent actions and care strategies to manage subsequent actions and care in line with LCFT Procedure for Supporting Staff following Traumatic/Stressful Incidents, Complaints or Claims. x Occupational Health is available for counselling and staff can either self refer or be referred by their manager. Further support please is available via LCFT Safeguarding Team Date of issue – March 2009 11 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 17.0 Monitoring The process for monitoring the effectiveness of these procedures and of the safeguarding arrangements for children within the Trust will be by the Trust Safeguarding Committee. An Annual Report from the Safeguarding Committee will be submitted to the Executive Management Team (EMT) Governance who will feedback to the Trust Board each year. The Trust Board has overall accountability for ensuring these procedures are in place. The Trust’s Safeguarding and Protecting Adults procedures and compliance will be monitored through a number of means, which are outlined in the following table. Standard Duties Timeframe/ Format Annually in report to the Board Review of reported safeguarding incidents to establish themes and trends Quarterly in reports to the Board Training as per Trust’s Training Needs Analysis Annually in report to the Board Local Safeguarding arrangements are being followed Quarterly in reports to the Board Date of issue – March 2009 How Whom Review of a sample of EMT and Safeguarding Committee minutes, Local Authority training records and LCFT Oracle Learning Management system (OLM), work plans, objectives Quarterly reports, reported incidents and SUI’s regarding concerns about an adult’s safety, reviewed. Attendance records Quarterly training reports Public Health Advisor Children/Families Review of Incident reports, minutes Safeguarding Committee meetings, Safeguarding Champions meetings. LASB meetings and subgroups LCFT Safeguarding Annual Report, programme of audit. Public Health Advisor Children/Families Public Health Advisor Children/Families/ Training and development Manager Public Health Advisor Children/Families LCFT Safeguarding Committee 12 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Supporting Staff Annually in report to the Board Specific audit activity of Safeguarding practice, findings and direct action will be monitored by LCFT Safeguarding Committee. Safeguarding Team Advice records Safeguarding Champions meeting minutes. Public Health Advisor Children/Families LCFT Safeguarding Committee Public Health Advisor Children/Families is responsible for proving assurance of compliance with this procedure to the Safeguarding Committee. The Safeguarding Committee will provide assurance to EMT Governance of compliance with this procedure via quarterly and annual reports. An action plan to address issues of non compliance with this procedure will be developed and monitored by the Safeguarding Committee 18.0 Equality and Diversity Impact Assessment See appendix 7 19.0 Review This procedure will be reviewed every 3 years or earlier if there is a change in NHS or DH Guidance. 20.0 x x x x Procedure for the reporting and management of incidents including the management of serious untoward incidents No Secrets in Lancashire: A Joint Strategy to Protect Vulnerable Adults From Abuse Blackpool Vulnerable Adults Committee, Code of Practice and Procedures and Blackburn with Darwen Adult Protection Policy and Procedures 21.0 x Other Associated Polices and Procedures References Blackburn with Darwen Inter Agency Policy and Procedures For the Protection of Vulnerable Adults From Abuse (April 2004) Blackpool Borough Council & Social Services, Blackpool Vulnerable Adults Committee (2004), Code of Practice and Procedure Date of issue – March 2009 13 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Lancashire Social Services (2001) No Secrets in Lancashire: A Joint Strategy to Protect Vulnerable Adults from Abuse, Lancashire Social Services Department of Health (2000) No Secrets: Guidance on Developing and Implementing Multi-Agency Policies and Procedures to Protect Vulnerable Adults From Abuse, Department of Health, London Department of Health (November 2003), Confidentiality, NHS Code of Practice, Department of Health, London Lord Chancellor’s Department, 1999), Making Decision, London Safeguarding Adults National Framework of Standards for Good Practice and Outcomes in Adult Protection Work Oct 2005 ADSS Date of issue – March 2009 14 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Appendix 1 PROCEDURE FOR SAFEGUARDING AND PROTECTING VULNERABLE ADULTS STATEMENT/KEY OBJECTIVES: The Trust has procedures in place to support LCFT policy 022 to promote the welfare of vulnerable adults and ensure their safety and protection. ACCOUNTABLE DIRECTOR: Director of Nursing AUTHOR: Public Health Advisor Children and Families/Named Nurse Child Protection Date of issue – March 2009 15 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Contents Page 1.0 2.0 3.0 17 18 4.0 5.0 6.0 7.0 8.0 9.0 10.0 11.0 Introduction Capacity & Consent Local Arrangements and Procedure for Risk where Abuse is Recognised or Suspected The Alert The Investigation Strategy/Discussion Meetings Case Conference/Safeguarding Planning Meeting Action/Safeguarding Plans Case Monitoring and Review Record Keeping Abuse/Concern from one Adult to another 18 21 23 23 24 24 24 25 25 References Appendix 2 Appendix 3 Appendix 4 Appendix 5 Appendix 6 Date of issue – March 2009 Blackburn with Darwen Flowchart for Reporting Lancashire Flowchart for Reporting Blackpool Flowchart for Reporting Female Body Map Male Body Map 27 28 29 30 31 16 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 1.0 Introduction This document covers the procedures and actions to be taken when an allegation of abuse is made. In line with LCFT Safeguarding and Protecting Adults Policy CL022, LCFT is required to maintain procedures for ensuring instances of adult abuse are reported and investigated. These procedures are in place to support compliance with local authority multi agency adult protection policy and procedure. These procedures should not be read in isolation but used in conjunction with the LA Safeguarding and Protecting Adult Procedures. Across the geographical area covered by LCFT, these are: x x x No Secrets in Lancashire: A Joint Strategy to Protect Vulnerable Adults From Abuse, Blackpool Vulnerable Adults Committee, Code of Practice and Procedures Blackburn with Darwen Adult Protection Policy and Procedures The Local Authority are the lead agency co-ordinating the response to adult abuse allegations. They have an important responsibility to work closely with other agencies and organisations including health. When a situation is discovered in which a vulnerable adult reports, or is thought to be at risk of abuse, then agencies will act quickly in a co-ordinated manner to address issues and concerns. LCFT recognises the potential for people to be discriminated against on the basis of race, culture, gender, age, disability or sexual orientation, and is committed to working with vulnerable adults in a positive manner that values people as individuals. The first priority of staff should be to ensure the safety and protection of the vulnerable adult. Service users should be made aware of the limitations of and exceptions to confidentiality in relation to adult protection, and that information will be shared if they or others are at significant risk. They should be assured that they will be treated in a fair and equitable manner. Those who have a role in working with adults identified as vulnerable who may be parents/carers must consider any risks to children within the home, family or who they may have caring responsibility for. Where there may be risks identified that impact on a child/young persons welfare, staff must ensure that appropriate referrals are made to Children’s Integrated Services (CIS) or partner agencies, in line with LCFT and Local Safeguarding Children Board Procedures.(Refer to LCFT Procedures for Safeguarding and Protecting Children CP001) . All mental health/substance misuse services including forensic services have a role to play in assessing the risk posed by adult perpetrators, and in the provision of treatment services for perpetrators. Date of issue – March 2009 17 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 2.0 Capacity and Consent 2.1 One of the overriding principles in safeguarding adults is capacity and consent. Whenever possible every effort must be made to obtain the consent of an adult to report abuse taking into consideration the definitions of the Mental Capacity Act 2005. This is underpinned by the principle that every adult has the right to make his /her own decisions, and must be assumed to have capacity to do so unless it is proved otherwise. However when there is a duty of care and the adult does not have the capacity to protect him/ herself the matter must be discussed with a senior manager and Multi Disciplinary Team (MDT) or Safeguarding Team on how best to proceed. 2.2 Any patient affected by abuse, who has capacity, should be consulted as to whether or not they wish action to be taken in relation to their own situation. However, their response will be viewed in the context of the need for any intervention in order to protect other service users and / or staff from harm or risk of harm. If the individual does not wish to report the abuse a discussion must take place with the MDT, Service/Team Manager or Modern Matron as to the appropriate course of action to safeguard other service users and staff or in the public interest. 2.3 Anything done for or on behalf or people without capacity must be in their best interests. 3.0 Local Arrangements and Procedure for Risk Where Abuse is Recognised or Suspected 3.1 An overview of local procedures for Lancashire, Blackburn with Darwen and Blackpool are set out in appendix 2, 3 & 4. There are links and detailed guides of Local Authority procedures on LCFT Safeguarding and Protecting Adult intranet site and the Local Authority internet. The procedures are good practice and contain advice to be followed at each stage of the adult protection process. 3.2 Clinical staff must undertake assessments of risk using LCFT Safety Profile , as part of assessment and review processes in line with LCFT Clinical Risk Management Policy (CL028). Risk Assessment is important. Staff must be aware of situations, which could place people at particular risk. These may include: x The need for close personal assistance e.g. with bodily functions x Situations where one person is heavily dependent on another x Where a person has communication difficulties x Where a vulnerable person lives in the vicinity of, knows or has contact with a known abuser x Where a person is living in, and may be isolated within, an environment which is unsupportive, inappropriate, hostile or dangerous x Where there is a change of lifestyle for whatever reason Date of issue – March 2009 18 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 3.2.1 Both actual and potential risks should be considered together with interventions aiming to reduce risk to the vulnerable person. Staff must establish the current risk to the individual, staff and/or other people including children. 3.2.2 The vulnerable person could be the carer. Consider too that the challenging behaviour of a vulnerable adult could lead to acts of abuse towards their carer, who is also vulnerable within the definitions of "No Secrets". 3.3 Where there is concern that a crime has taken place the Service Manager must ensure that the local multi agency policy and procedures are followed and the incident reported to the police as appropriate. The Director of Nursing, Network Director and Associate Director must be contacted and notified that the police have been contacted. 3.4 x x x Actions to be taken when abuse is suspected: When a member of staff has a cause for concern that a vulnerable adult is suffering or at risk of suffering significant harm through abuse, the following procedures must be implemented immediately All staff must ensure that all concerns are discussed with their manager and identified within the client’s care plan Investigation of all allegations should be undertaken by managers and staff in line with: a) LCFT Incident Reporting Procedures b) LCFT Standing Operating Procedures For The Notification of Serious Untoward Incidents and Resulting Review and Enquires HS 001A c) In accordance with Local Authority Procedural Frameworks When allegations meet the criteria for referral laid down within local authority procedures staff must inform Adult Social Services of concerns or allegations to initiate a multi agency adult protection investigation 3.5 Other relevant policies and procedures that may need to be accessed as a result of the incident are for example the LCFT: x x x x x Disciplinary Procedure HR 014 Complaints Policy and Procedure RM 001 Whistle Blowing Policy HR 007 Preventing Bullying and Harassment at Work HR 006 Being Open Procedure HR 010(1) 3.6 The Trust has a duty of care to all its patients and a clear mandate to intervene whenever care provided does not meet expected standards. If the abuse of a patient is suspected by staff working within the Trust, staff are required to raise an adult protection alert with their line manager, following the locally agreed multi agency Adult Protection Procedures. However, there will be a presumption that other patients might also be at risk or be likely to be affected. 3.6.1 Adult protection issues can also be identified through other LCFT Trusts structures and must be raised where identified through: Date of issue – March 2009 19 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults x x x Analysis of the incident reporting system Accumulation of complaints about individuals or service areas Feedback from service users and carers about individuals and services 3.6.2 All staff have a duty to raise concerns with their line manager through the above processes if they are made aware of adult protection issues. The line managers should raise this concern in the first place with the Network Director who will agree the level of investigation in line with local and Trust policy and procedures. 3.7 Concern about Abuse by Staff. 3.7.1 If an allegation involves inappropriate behaviour by another staff member, regardless of the agency they work for, you must inform your line manager or another member of your service’s senior management team immediately. 3.7.2 In the event of a complaint/allegation against a manager within the Trust, you must inform the manager’s line manager (i.e. a person senior to the individual). 3.7.3 Where the perpetrator of the abuse is a member of staff, immediately following the alert the Manager should seek guidance from Human Resources, to take the most appropriate course of action, which may include suspending the person from duty whilst the Adult Protection investigation takes place. Staff must be supported and offered regular supervision throughout the investigative process. 3.8 The first priority should always be to ensure the safety and protection of the vulnerable adult. Medical attention or diagnosis should be sought according to the patient’s clinical need and in accordance with this policy. This should be sought without delay from either the patient/client’s GP or hospital staff as required in consultation with the Social Services Department and the Police. Where the alleged perpetrator is a member of staff, managers should ensure the employee has no subsequent contact with service users. 3.9 Where medical attention is necessary the examining doctor must be made aware of any suspicions of abuse. The doctor may be required to provide a report of findings and opinion for use in any subsequent legal or disciplinary proceedings. 3.9.1 x x x When to seek Medical Attention Injury to the genital/rectal area. This may indicate sexual abuse and both Social Services Department/ Police should be notified immediately so that arrangements can be made for appropriate medical attention and examination Injuries which are life threatening Injuries where the patient/client appears to be in great pain. N.B. Inform and support the patient/client on the appropriate actions and medical attention required Date of issue – March 2009 20 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 3.10 If a vulnerable adult makes a disclosure, focus on what the person is saying. Do not make comment other than to be sympathetic and reassuring. Do however allow the person to speak freely and remember to make an accurate written record of the content of the disclosure as soon as possible. Do not however attempt to interview the patient/client or suggest words/phrases to describe what has occurred. 3.11 In cases of actual abuse the protection and preservation of evidence is critical to the investigative process. Failure to secure evidence may result in a failed investigation and lack of prosecution of an offender. Early reporting is therefore essential. Forensic examinations in cases of suspected sexual abuse will be conducted by designated police surgeons in accordance with local protocols as arranged by the police and subject of appropriate consent. Either the patient/client’s GP or hospital staff as necessary will conduct examinations of suspected physical abuse. 3.12 When complaints about alleged abuse suggest that a criminal offence may have been committed the Police must be informed immediately. Early referral or consultation with the police will enable them to establish whether a criminal act has been committed. Referral can be made either by the professional involved, the line manager or social services. Referral of physical and sexual abuse should be to the local Public Protection Unit (PPU). A CRIMINAL INVESTIGATION BY THE POLICE TAKES PRIORITY OVER ALL OTHER LINES OF ENQUIRY. 4.0 Alert Alerting is the first stage in the safeguarding adult process. It is the responsibility of any member of staff if they suspect abuse of an adult is likely or has taken place. It is a formal process to raise a concern. 4.1 Staff must seek advice from the MDT, line manager as appropriate providing this does not cause significant delay in referral. 4.2 Staff must arrange for emergency medical attention if required. For IMMEDIATE medical treatment dial 999 for an ambulance. 4.3 Members of staff must, with immediate effect, inform an appropriate team or line manager. Where appropriate, with the adults consent, you as an individual officer, or you're team or line manager will make the Alert to the appropriate Adult Social Care Services or the Emergency Duty Team (out of hours) including weekends and bank holidays. Contact details : Lancashire 0845-053-0028 www.lancashire.gov.uk/safeguardingadults Date of issue – March 2009 21 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Blackburn with Darwen 01254 587547 www.blackburn.gov.uk/server.php?show=ConWebDoc.15125 Blackpool 01253 477592 EDT 01253 477600 www.blackpool.gov.uk/Services/M-R/ProtectionofVulnerableAdults 4.4 Alerters, (with their line manager) must complete an on line Alert form within 24 hours of making the alert. Links to all local authority Safeguarding Adult internet sites are above and on LCFT Safeguarding and Protecting Intranet site. 4.5 Staff must inform their line manager, service user’s GP and other relevant members of Primary Health Care Team. 4.6 The purpose of an adult protection investigation is to establish: x x If the person is a vulnerable adult as defined within local Authority Policy and Procedure If abuse is likely to have taken place The risk factors To inform the vulnerable adult and carer of concerns To gather views from the vulnerable adult and carer concerning the allegation of abuse and what has happened To make preliminary assessment of the mental capacity of the vulnerable adult x x To gather background information To establish what support is available x x x x 4.7 All those involved in the provision of care within LCFT are committed to providing follow-up support to all service users who continue to require health needs. 4.8 Where English is not the first language of the adult concerned, and communication is necessary for the purpose of safeguarding and promoting the adult’s welfare, the use of an interpreter must be considered. If the use of an interpreter is dispensed with, the reason for doing so must be recorded in the records. 4.9 Advice must be sought from staff’s line manager or named social worker prior to discussion with families and carers, however they should be informed of the incident immediately, if it is agreed safe to do so. The partner/relative/carer of the alleged abused person should only be informed if it is felt that such information will not place the individual in increased danger, nor will it prejudice the investigation or in rare cases, prompt a suicide. 4.10 It is important that service users are aware of procedures at all times, and that they are enabled to express their own fears/concerns/points of view. Date of issue – March 2009 22 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 4.11 The alert will be communicated and forwarded to the locality Adult Social Care Team Manager who will identify an investigating officer to gather information, consider any immediate actions and have initial discussions with the alerter and partner agencies. 4.12 It is the decision of the investigating officer as to whether a referral to Safeguarding Adult Procedures is made. 4.13 If it is suspected that a child/young person (under 18) may be at risk of harm then a referral must be made in line with LSCB and LCFT Safeguarding and Protecting Children Procedures. 5.0 The Investigation The object of a preliminary investigation is: x To establish relevant facts x Assess the needs of the vulnerable adult for protection, support and redress; and make decisions with regard to what follow-up action should be taken with regard to the perpetrator, and the service or its management, if they have been culpable, ineffective or negligent. x Establish any criminal offences e.g. assault (physical or psychological), sexual assault and rape, theft, fraud (or any other form of financial exploitation), and certain forms of discrimination whether on racial or gender grounds. 6.0 Strategy Discussion/Meetings The primary aim of the meeting is to discuss in a multi-disciplinary setting any information which has come to light as a result of a referral, complaint, assessment, any other information pertinent to the investigation or safeguarding arrangements, or any other intervention, and amounts to an allegation of or suspicion of the abuse of a vulnerable adult. 6.1 The Professionals attending the meeting will consider what, if any, response should be provided by their respective agencies in the light of the reported/suspected abuse and agree how any further actions, enquiries or investigations should be handled and by whom. 6.2 The Professionals/Strategy meetings will: x x x x x x Establish facts Establish if the incident amounts to a criminal act and warrants a criminal investigation Deal with any immediate risk(s) Gather further information Assess needs and what actions need to be undertaken to prevent the risk of further abuse of the patient/vulnerable adult or others who might be vulnerable Decide on what action is to be taken in respect of the alleged abuser Date of issue – March 2009 23 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults x x x x x 7.0 Establish what internal investigative procedure will need to take place Be managed in line with Trust policy e.g. staff suspension, transfer of patient, internal investigation Keep relevant others informed Refer to all relevant organisational policies Implement an interim safeguarding plan Case Conference/ Safeguarding Planning Meeting This is required to review the outcomes of the investigation, draw conclusions and develop a Safeguarding Plan (please refer to Local Authority Safeguarding Adult Policy and Procedures). LCFT must attend as requested and provide a written report of their service involvement, care, interventions and findings of their own investigation. 8.0 Action/Safeguarding Plans Local procedures and protocols will make clear the agency responsibility for co-ordinating the multi agency response to an adult protection concern, and all agencies retain their statutory responsibilities. 8.1 Agencies assigned to undertake specific tasks within the agreed action/safeguarding plan remain responsible for ensuring these are completed. 8.2 Any unachievable actions agreed within the action/safeguarding plan should be communicated to the chair of the Professionals/Strategy meeting as a matter of urgency. 9.0 Case Monitoring and Review Monitoring is vital where vulnerability remains and is an important part of risk management. LCFT staff must continue to work with a vulnerable adult if their service is required. Anyone monitoring an abusive situation can ask Social Services to reconvene a review strategy meeting to discuss escalating or new concerns. 9.1 Safeguarding review meetings will be held in line with Local Authority Safeguarding Adult Policy and Procedures to review the safeguarding plan, risk, and ensure agreed actions have been implemented. 9.2 LCFT staff must ensure that CPA, care and discharge plans consider and incorporate safeguarding adult alerts, investigations and safeguarding plans. Date of issue – March 2009 24 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 10.0 Record Keeping LCFT staff must maintain records in line with the Trust Policy for Professional Clinical Record Keeping (CL 027). This policy describes the expected clinical record keeping practice (either electronic or paper based) building on professional requirements. 10.1 Records are an essential source of evidence for investigations and inquiries, and may also be required to be disclosed in court/legal proceedings. 10.2 x x x x x x x x x x x x When recording Safeguarding concerns or incidents staff must note, in particular: Sign and date the report Note the time of day, date and location of the incident Describe how the disclosure came about Describe what happened and any injuries or consequences for the victim Where appropriate, use a body map to indicate where there are cuts or bruises (appendix 4 & 5) and keep the information as concise and factual as possible, including your description of any injuries seen All telephone conversations must be recorded If it is appropriate to include an opinion or third party information, ensure this is made clear Record the words used by the vulnerable person in making the allegation Establish who are the key people in the alleged abused adult’s life, e.g. family, neighbours, children, and grandchildren If the individual has parent/caring responsibility for children/young people Is the current investigation for physical, sexual, emotional or financial abuse or for neglect Is there any form of physical evidence available, e.g. soiled or bloodstained clothing 11.0 Abuse/Concern regarding Abuse by one Vulnerable Adult to another Members of staff who have reason to think that a vulnerable adult has been abused by another vulnerable adult within LCFT or another establishment should inform their manager/person in charge of the establishment as soon as possible and follow the appropriate procedures. This principle must also be put into practice when visiting another establishment; e.g. day service, group homes, nursing homes, schools etc. 12.0 References x Blackburn with Darwen Inter Agency Policy and Procedures for the Protection of Vulnerable Adults from Abuse (April 2004) Blackpool Borough Council & Social Services, Blackpool Vulnerable Adults Committee (2004), Code of Practice and Procedure Date of issue – March 2009 25 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Lancashire Social Services (2001) No Secrets in Lancashire: A Joint Strategy to Protect Vulnerable Adults from Abuse, Lancashire Social Services Department of Health (2000) No Secrets: Guidance on Developing and Implementing Multi-Agency Policies and Procedures to Protect Vulnerable Adults from Abuse, Department of Health, London Department of Health (November 2003), Confidentiality, NHS Code of Practice, Department of Health, London Lord Chancellor’s Department (1999), Making Decision, London Safeguarding Adults National Framework of Standards For Good Practice and Outcomes in Adult Protection Work Oct 2005 ADSS Date of issue – March 2009 26 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Blackburn with Darwen Appendix 2 Flowchart for Investigation Process An Alert May Come From Outside social services e.g. member of the public, professional worker or volunteer from another agency/organisation Within social services e.g. service user is already known; it is an open case Referral is taken by Customer Liaison Officer Customer Liaison Officer (Form SA2 completed) (Form SA2 completed) Responsible Manager is identified Strategy meeting is convened (either on the telephone or in a formal meeting) within 24 hours of receiving the referral Decision to commence an abuse investigation or not. If proceeding, two investigating officers will be identified Investigation starts within 24 hours of the strategy meeting Case Conference is convened within 15 working days from the strategy meeting Minutes and Protection Plan to be circulated within 10 working days of conference Review Case Conference within 3 months (depending on level of risk) Responsible Manager completes Form SA3 Date of issue – March 2009 27 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Lancashire Safeguarding Adults – Partner Agencies Procedures for Recording & Reporting Abuse Appendix 3 Do you have any concerns or think someone is being abused? Is the person at risk in any immediate danger of further abuse? YES NO In an emergency dial 999 Do not ask questions Respond Sensitively Do not ask questions Write down any disclosure/incident information you have as soon as possible, sign and date it Is your manager a potential suspect or you think is in any way implicated in the suspected abuse? YES Contact a more Senior Manager within the organisation, in authority, immediately, who will begin the process of investigation by ensuring the safety of the adult at risk securing evidence and HR issues NO Report to your manager or responsible person, who will begin the process of investigation by ensuring the safety of the adult at risk securing evidence and HR issues Report an alert: How to report any concerns or suspected incidents of abuse by making an alert to The Safeguarding Adults, Adult Social Care dedicated telephone number: 0845 053 0028 Alternatively, visit the Safeguarding Adults web page and complete an on-line Partner Alert Form at: www.lancashire.gov.uk/safeguardingadults Date of issue – March 2009 28 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults Appendix 4 Blackpool Flowchart for Investigation of Safeguarding Adult Concerns Alert :Refer to Social Services Direct tel (01253) 477592 Referral Decision Strategy Formulation Assessment & Investigation Assessment/Investigation Outcome Post Assessment /investigation action Review Social Services - Who To Refer To Situation Refer to The exact circumstances of the person are unknown Refer to Social Services Direct tel (01253) 477592 Email: [email protected] Person is receiving a social care service but social worker and team commissioning service is not known Person is receiving a social care service and social worker and team commissioning service is known Refer to Social Services Direct tel (01253) 477592 Email: [email protected] Out of Hours – Between 5 pm and 9 am Mon - Fri & weekend Safeguarding Children contact Date of issue – March 2009 Refer to Team Manager of Team involved – if not contactable directly the refer immediately to Social Services Direct tel (01253) 477592 Email: [email protected] Emergency Duty Team Tel 01253 477600 Office Hours 01253 477668 Out of hours 01253 477600 29 APPENDIX 5 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults FEMALE BODY MAP SKIN MAP Date of Issue: March 2009 30 of 33 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults APPENDIX 6 SKIN MAP adult male Date of Issue: March 2009 31 of 33 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults APPENDIX 7 LANCASHIRE CARE NHS FOUNDATION TRUST INITIAL EQUALITY IMPACT ASSESSMENT Department/Function Safeguarding Adults Person responsible Bridget Welch – Public Health Advisor Children and Family Contact details 01772 645790 Name of policy/procedure/service to be assessed Policy and Procedure for safeguarding and protecting adults Date of assessment 4 February 2009 Is this a new or existing policy/procedure/service? Existing 1. Briefly describe the aims, objectives and purpose of the policy/procedure/service? Ensure arrangements are in place to effectively safeguard, protect and respond to known or suspected abuse of vulnerable adults. 2. Who is intended to benefit? Service users and staff 3. What outcomes are wanted? Ensure adult service users are safeguarded effectively 4. Who are the main stakeholders? To be completed in full impact assessment in March 09 5. Who is responsible for implementation? Date of Issue: March 2009 Public Health Advisor Children and Families Named Nurse Child Protection 32 of 33 Policy and Procedure for Safeguarding and Protecting Vulnerable Adults 6. Are there concerns that there could be differential impact on the following groups and what existing evidence do you have for this? Race/ethnicity Full impact assessment to be completed March 2009 Full impact assessment to be completed March 2009 Gender Full impact assessment to be completed March 2009 Disability Full impact assessment to be completed March 2009 Religion/belief Full impact assessment to be completed March 2009 Sexual orientation Full impact assessment to be completed March 2009 Age Full impact assessment to be completed March 2009 7. Could any differential impact identified above be potentially adverse? 8. Can any adverse impact be justified on the grounds of promoting equality of opportunity? 9. Have you consulted with those who are likely to be affected? 10. Should the policy/procedure/service proceed to full impact assessment? Full impact assessment to be completed March 2009 Full impact assessment to be completed March 2009 Full impact assessment to be completed March 2009 Full impact assessment to be completed March 2009 I understand the impact assessment of this policy/procedure/service is a statutory obligation and take responsibility for the completion of this process. Names of assessors: Bridget Welch, Public Health Advisor Children & Family Date of assessment: 5 February 2009 Date of next review: 3yrs January 2012 Date of Issue: March 2009 33 of 33 Safeguarding and Protecting Children Procedures SAFEGUARDING AND PROTECTING CHILDREN PROCEDURES PROCEDURE NO DATE RATIFIED NEXT REVIEW DATE CP 001 February 2009 February 2011 PROCEDURES STATEMENT/KEY OBJECTIVES: The Trust has procedures in place to ensure the safety and protection of all children and Young People under the guiding principles within the Children Act 1989, statutory guidance on making arrangements to safeguard and promote the welfare of children under section 11 of the Children Act 2004. and Working Together to Safeguard Children 2006. ACCOUNTABLE DIRECTOR: Director of Nursing POLICY AUTHOR: Date of Issue: March 2009 Public Health Advisor Children and Families/ named Nurse Child Protection LCFT Safeguarding Practitioner 1 Safeguarding and Protecting Children Procedures Executive Summary Subject Safeguarding and protecting children procedures Applicable to All employees of Lancashire Care NHS Foundation Trust Key Policy Issues To ensure all staff have an awareness of their roles and responsibilities To provide clarity of referral processes to Social Services where there are concerns for a child and family in need of support or protection. General procedure if abuse is suspected. Guidelines for Child Protection meetings and report writing. February 2009 February 2009 January 2011 Public Health Advisor Children and Families/ named Nurse Child Protection / LCFT Safeguarding Practitioner Date Issued Dates Policy reviewed Next review due date Policy written by Consultation Policy reviewed by: Lead responsible for policy Monitoring arrangements Approved by Authorised by Signature Related procedural documents Date of Issue: March 2009 Executive Directors Senior Management Team Safeguarding Committee Safeguarding Committee Director of Nursing The Public Health Advisor Children and Families/ named Nurse Child Protection will be responsible for monitoring this procedure and will provide assurance to Safeguarding Committee and EMT Governance via quarterly and annual reports the Risk Management Annual Report Safeguarding Committee Policy & Governance EMT Patrick Sullivan Director of Nursing Working Together to Safeguard Children 2006, Local Safeguarding Board Procedures, CP002 Policy for Safeguarding Young People Admitted to Adult Wards, CP003 Policy on Children Visiting Wards and Other Clinical Areas Within Lancashire Care Trust Premises 2 Safeguarding and Protecting Children Procedures CONTENTS PAGE NO 1. Summary 4 2. Introduction 4 3. Definitions 5 4. Rationale 6 5. Scope 7 6. Principles 7 7. Duties 8 8. Confidentiality 13 9. Local Arrangements/Procedures 13 10. Disclosure of Abuse 17 11. Actions to be Taken in Specific Circumstances 18 12. Child Protection Conference/Meetings 21 13. Record Keeping 23 14. Profession Conflict, Concerns or Complaints 23 15. Incomplete/Confliction Details & Missing Families 24 16. Child of School Age Not Registered with School 25 17. Effective Care Co-ordination 25 18. Service Users Admitted under MH Act with Carers Responsibility for Child 26 19. Home Leave and Pre Discharge Planning 26 20. Children Visiting Adult Wards 26 21. Responsibility for Looked After Children 27 22. Private Fostering 27 Date of Issue: March 2009 3 Safeguarding and Protecting Children Procedures 23. Requests for Information 28 24. Statements for Legal Proceedings 28 25. Attendance at Court 29 26. Incident Reporting 29 27. Child Death Overview Panel 29 28. Serious Case Reviews 29 29. Aggression Violence and Intimidation 30 30. Professional Development 31 31. Support 31 32. Training 31 33. Implementation & Compliance 32 34. Monitoring the Effectiveness 32 Appendix 1 Appendix 2 Appendix 3 Appendix 4 Appendix 5 Appendix 6 Appendix 7 Appendix 8 Appendix 9 Appendix 10 Appendix 11 34 37 38 40 43 45 46 47 48 49 51 Date of Issue: March 2009 4 Safeguarding and Protecting Children Procedures 1.0 Summary The purpose of these safeguarding children procedures is to enable the Trust to: x x x Provide a structured approach for all healthcare staff with regard to arrangements for safeguarding children. Working Together to Safeguard Children – A guide to interagency working to safeguard and promote the welfare of children (2006), sets out how organisations and individuals should work together to safeguard and promote the welfare of children. Provide a mechanism that will allow audit of Child Protection compliance with Section 11 of the Children Act (2004), national standards e.g. National Service Framework (DfES 2004), Every Child Matters, (DOH 2003). Provide necessary interventions for the child and family, an understanding of multidisciplinary partnerships and the systems that may be utilised to safeguard children. 2.0 Introduction 2.1 Lancashire Care Trust (LCFT) staff have a duty of care to safeguard and protect children at risk of harm and neglect from the subsequent negative outcomes and enable all children to reach their full potential. Every child has the right to be protected from potential significant harm. 2.2 LCFT also takes into account the standards within the National Service Framework for Children, young people and maternity services and reflects the requirements of Statutory guidance on making arrangements to safeguard and promote the welfare of children under section 11 of the Children Act 2004. Section 11 of the Children Act 2004 states that NHS Trusts ‘must make arrangements for ensuring that its functions are discharged having regard to the need to safeguard and promote the welfare of children’. The Children Act 1989 places specific duties on agencies to co-operate in the interests of vulnerable children. The Children Act 1989 introduced the concept of significant harm as the threshold that justifies compulsory intervention in family life in the best interest of the children. Decisions about significant harm are complex. 2.3 The Department of Health (DOH) guidance listed below is issued under Section 7 of the 1970 Local Services Act, which means it is secondary legislation and therefore must be complied with unless local circumstances indicate exceptional reasons, which could justify a variation. It advises further involvement of Health Professionals by collaborating and working together with Social Services. These procedures are based on: x The principles of the Children Act 1989 and 2004 x The UN Convention on the Rights of the Child x The Human Rights Act 1998 x The Data Protection Act 1999 x The Adoption and Children Act 2002 x Local Safeguarding Children’s Boards guidance and procedures Date of Issue: March 2009 5 Safeguarding and Protecting Children Procedures Department of Health guidance on Working Together to Safeguard Children 2006 The Framework for the Assessment of Children in Need and their Families 2000 Safeguarding Children Involved in Prostitution 2002 What to do if you are worried a child is being abused 2003-12-16 The Laming Report 2003 Statutory guidance on making arrangements to safeguard and promote the welfare of children under section 11 of the Children Act 2004. National service Framework for Children Young People and Maternity Services 2004 Every Child Matters DOH 2004 2.4 These procedures apply to all children up to their 18th birthday, whether the children are service users of the Trust in their own right, or children cared for by adults who are receiving services from the Trust. Children of Service users may be providing an active caring role and this must be considered in assessing and providing interventions through Care Programme Approach Policy. 2.5 Staff working with adults with carers responsibilities for children are now clearly viewed as part of the ‘children’s workforce’ in terms of safeguarding. Local Safeguarding Children Boards have been given statutory powers to ensure that agencies comply with this statutory guidance 2.6 Each case should be informed by careful assessment of the child’s circumstances and discussions between the statutory agencies and with the child and family. Where the question of whether harm suffered by a child is significant, their health or development shall be compared with that which could reasonably be expected of a similar child. 3.0 Definitions 3.1 Safeguarding and promoting the welfare of children is defined for the purpose of these procedures as: protecting children from harm or maltreatment; preventing impairment of children’s health or development; ensuring that children are growing up in circumstances consistent with the provision of safe and effective care; and undertaking that role so as to enable those children to have optimum life chances and enter adulthood successfully. 3.2 Harm is defined by the Children Act 1989 as: III treatment (including sexual abuse and physical abuse) Impairment of health (physical or mental) or development (physical, intellectual, emotional, social or behavioural) as compared to a similar child Harm suffered by seeing or hearing ill treatment of another particularly in the home Date of Issue: March 2009 6 Safeguarding and Protecting Children Procedures The Adoption and Children Act 2002 broadens the definition of significant harm to include the emotional harm suffered by those children who witness domestic violence or are aware of domestic violence within the home 3.3 Neglect is the persistent failure to meet a child’s basic physical and / or psychological needs, likely to result in the serious impairment of the child’s health or development. The consequences of neglect can have a life long impact. 3.4 Safeguarding children and young people encompasses all aspects of child welfare an child protection. These procedures are intended to be followed by all staff employed and independently contracted by Lancashire Care Trust (LCFT). This policy is supplementary to and not a replacement for individual Local Safeguarding Children Board procedures and must be read in conjunction with them. (Links to all the LSCB procedures here) It is not a replacement for one to one consultation, discussion, support or supervision with the LCFT Safeguarding Team (Appendix 9) 4.0 Rationale (why) These procedures outline LCFT safeguarding children’s arrangements and implementation of Local Safeguarding Children’s Board policy and procedures. 4.1 The purpose of these procedures is to ensure a structured and systematic approach to child protection across the organisation. To provide a mechanism that will demonstrate compliance with the Children Acts 1989 and 2004 and national standards for safeguarding and protecting children. The Children Act 1989 and 2004 places a statutory duty on Health Professionals to help Social Services with their enquires so long as it is compatible with their own statutory duties or other duties and obligations. 4.2 “Every Child Matters” (2004) states that all children deserve to achieve their full potential. The Outcomes Framework sets out the 5 areas that are key to achieving children’s well-being: Be healthy; Stay safe; Enjoy and achieve; Make a positive contribution; and Achieve economic well-being 4.3 The Common Assessment Framework (CAF) promotes more integrated multi-agency working, where information is shared and service planning and delivery is coordinated, and provided at an early stage to ensure the child meets the 5 outcomes from Every Child Matters (see 2.1). 4.4 Information Sharing promotes multi-disciplinary and multi-agency working at an early stage in order to identify and provide services to children in need of additional support before their needs escalate. Date of Issue: March 2009 7 Safeguarding and Protecting Children Procedures 4.5 Adult mental health services, including those providing general adult and community, forensic, psychotherapy, alcohol and substance misuse and learning disability services, have a responsibility in safeguarding children when they become aware of or identify a child at risk of harm. This may be as a result of service’s direct work with those who may be mentally ill, a parent, a parent-to-be, or a non-related abuser, or in response to a request for the assessment of an adult perceived to represent a potential or actual risk to a child or young person. 5.0 Scope (Who, Where & When) 5.1 This policy applies to all children from unborn to 18 years of age (Section 105 Children Act 1989) (and up to 25yrs of age where there is a continuing duty of public care) whether the children are service users of the Trust in their own right or children cared for by adults who are receiving services from the trust. 5.2 Children under 1 year of age are most at risk of abuse. It is therefore imperative that the welfare of unborn children of service users who are pregnant is considered including the risk from domestic abuse. 5.3 Every member of staff has an individual responsibility for the protection and safeguarding of children. All levels of staff and management must understand and implement the Trust Safeguarding and Protecting Children Procedures and the national guidance “What to do if you’re worried about a child” (DOH 2003). 5.4 These procedures are to be followed by all staff working for LCFT. Staff seconded to LCFT are also required to follow these procedures. 5.5 Any student/trainee should be aware and adhere to these procedures. 6.0 Principles 6.1 In the provision of services to all Trust service users, the Trust has a commitment to deliver these services in a non-discriminatory manner. 6.2 No assumption can or should be made that people with mental health problems, those in receipt of substance misuse services or those with a learning disability constitute a risk to children simply by virtue of their difficulties. 6.3 Children’s needs are best met when parents are supported, but the needs of the child remain paramount. 6.4 The Children Act 1989 established an unambiguous principle the ‘Paramountcy Principle’ that states that the welfare of the child is paramount. 6.5 Children have the right to be protected from harm and to receive services when their health or development is at risk. Date of Issue: March 2009 8 Safeguarding and Protecting Children Procedures 6.6 Service users should be made aware of the limitations of, and exceptions to confidentiality in relation to child protection. 7.0 Duties 7.1 Each NHS Trust has to have a named Doctor and Nurse with appropriate Child Protection expertise, to take a lead on Child Protection matters. These roles and responsibilities are in line with Working Together to Safeguard Children 2006 They will take the professional lead within the Trust on safeguarding matters. 7.2 Chief Executive The Chief Executive as the Accountable Officer has overall responsibility for ensuring the implementation of an effective Safeguarding and Protecting Children Policy and Procedure and meeting all statutory requirements. The Chief Executive delegates executive responsibility to the Director of Nursing 7.3 Director of Nursing The post holder is the lead director and holds the executive lead for the safeguarding and protecting children’s agenda within LCFT and reports directly to the Chief Executive on related issues. The post holder is a member of Lancashire Safeguarding Children’s Board. The Director of Nursing is responsible for providing assurance to the Trust Board of compliance with this procedure 7.4 Deputy Director of Nursing The post holder directly line manages the LCFT Safeguarding Team and reports to the Director Nursing. 7.5 Public Health Advisor Children and Families/Named Nurse Child Protection and Safeguarding Practitioner Their general responsibilities include: Liaison and links with Designated Nurses and local Safeguarding Children’s Boards Development of safeguarding practice Provision of safeguarding advice and support Identification of safeguarding training needs and the co-ordination/provision of appropriate training Participation in single and multi-agency safeguarding training. Initiating and facilitating the monitoring and audit of safeguarding practice Facilitating advice on legal matters in conjunction with the Trust legal advisors Facilitating the provision of child protection clinical supervision to practitioners as appropriate The management of internal child protection/ safeguarding reviews relating to child protection practice and contribute to multi-agency serious case reviews when a child has died or been seriously injured and abuse or neglect is known or suspected to be a factor Close liaison with the management structures within LCFT and other agencies to address both strategic and operational issues relating to the safeguarding agenda Date of Issue: March 2009 9 Safeguarding and Protecting Children Procedures Close liaison with LCFT Safeguarding Teams in the PCT’s and acute Trusts, to address and implement local and national responsibilities and practice 7.6 Medical Director The post holder is the executive lead for the medical profession and liaises directly with the Chief Executive and Director Nursing. 7.7 Named Doctor (see appendix 9) The Named Doctor liaises with the Medical Director and LCFT Safeguarding Team. The named Doctor is responsible for: Taking the lead in supporting medical staff in relation to their safeguarding responsibilities Carrying the usual professional accountability to their professional body. Providing expertise, advice and consultancy to the LCFT Safeguarding Team Professional child protection supervision Facilitation of training Contributing to the serious case review and analysis of critical child protection incidents Linking with the Designated Doctors who work in partnership with commissioners and providers 7.8 Modern Matrons, Professional Leads, Senior Nurses and Managers must provide effective leadership and ensure that: They maintain their knowledge and expertise and are therefore able to offer staff advice and support on issues relating to the agenda All staff within their area of responsibility are aware of, respond to instances of suspected or actual child abuse and have contact details for the safeguarding and protecting lead professionals within their organisation Clinical practice takes a proactive approach to protecting and safeguarding children Staff within their areas of responsibility access training, which provides information regarding, known indicators and predictors of abuse, and an awareness of the Local Safeguarding Board procedures and protocols for safeguarding children Utilise resources appropriately to provide caseload cover where there are areas of concern regarding a child’s welfare All staff are trained in line with the Trust Training Needs Analysis NB Doctors, Professional Leads, Senior Nurses or Managers may recognise limits to their own experience/knowledge in relation to safeguarding and protecting children and should seek advice from the Trust’s Safeguarding Team 7.9 The roles, responsibilities and accountabilities of all Mental Health/ substance misuse staff 7.9.1 Initial Contacts Front line staff in any part of the Trust who come into contact with children or their families must ensure that basic information about the child is routinely recorded at each new contact .Both the children’s needs and patients who are parents/carers needs must be considered using the Care Programme Approach. Date of Issue: March 2009 10 Safeguarding and Protecting Children Procedures The needs of these children in terms of parenting capacity, family and environment and child’s developmental needs must be considered and documented. 7.9.2 Requests for information regarding children in the families staff care for, must be handled sensitively, in the context of the need to complete a holistic assessment to best identify any risks, stressors and meet the needs of the service user in terms of appropriate advice and support. 7.9.3 Those who have a role in working with these parents/carers must ensure that both the expertise of adult mental health workers and childcare workers is used to inform any assessment regarding the welfare of the children 7.9.4 All mental health/substance misuse services including forensic services have a role to play in assessing the risk posed by adult perpetrators, and in the provision of treatment services for perpetrators. 7.10 Safeguarding Champions These are identified practitioners in teams who liaise and work closely with The Safeguarding Team. The role of the Safeguarding Champion is to support staff working with child welfare / child protection issues in a planned, proactive process by: Appraising existing care plans to ensure safeguarding issues are included and that they are sensitive to the current needs of the child and family Clarifying roles and responsibilities of staff in line with LCFT and LSCB procedures Establishing that practice is compliant with national and local safeguarding policies, procedures and guidance Providing appropriate supervision and support, to enable safe and effective practice Promoting professional development, identifying with the practitioner, gaps in knowledge and skills and directing staff into appropriate training Ensuring that there is close communication with the Safeguarding Team/Line managers, regarding safeguarding and protecting issues arising from practice 7.11 Trust Board The Trust Board is responsible for: x Ensuring robust systems and processes are in place for safeguarding children x Receiving assurance of compliance with this procedure from EMT Governance 7.12 EMT Governance EMT Governance is responsible for: x Receiving assurance of compliance with this procedure from the Safeguarding Committee x Providing assurance to the Trust Board of compliance with tis procedure via the Director of Nursing’s Governance Report Date of Issue: March 2009 11 Safeguarding and Protecting Children Procedures 7.11 Role of LCFT Safeguarding Committee Overseeing the development, implementation and monitoring of systems, processes and policies to ensure Children, Young People and Vulnerable Adults are safeguarded whilst accessing services provided by LCFT Approving performance process’s and agree strategic direction for Safeguarding within LCFT Monitoring implementation of current legislation and policy in relation to Safeguarding Children and Vulnerable Adults. Approving performance process’s and agree strategic direction for Safeguarding within LCFT Agreeing quality standards, audit priorities/tools and support a training strategy for Safeguarding Children, Young People and Vulnerable Adults Monitoring compliance with this procedure Developing and monitoring an action plan to address issues of non compliance with this procedure Providing assurance to EMT Governance of compliance with this procedure via minutes of meeting and an annual report Date of Issue: March 2009 12 Safeguarding and Protecting Children Procedures 7.12 Organisational/Accountability Structure Chief Executive Medical Director Director of Nursing Named Doctor Designated / Named Professionals within the PCT’s (PCT’s have overarching responsibility for Safeguarding and Protecting Children) Deputy Director Nursing PHACF/Named Nurse Child Protection Safeguarding Practitioner Managers/Snr Nurses /Lead Professionals Safeguarding Champions All Lancashire Care Staff Date of Issue: March 2009 13 Safeguarding and Protecting Children Procedures 8.0 Confidentiality and Information Sharing All practitioners have a duty to be aware of their responsibilities from the Data Protection Act 1998, the Human Rights Act 1998, the Common Law Duty of confidentiality and Caldicott principles. 8.1 All staff and practitioners must protect all confidential information concerning patients and clients obtained in the course of professional practice and abide by their professional codes of conduct. Disclosures should only be made with consent, where required by the order of a Court, where justification of disclosure is in the wider public interest or where there is an issue of child protection (Code of Professional Conduct, (5.3) page 7, Nursing and Midwifery Council 2002) All staff and practitioners must make themselves aware of Information Sharing Protocols both high level and locally in place with partners agencies and organisations. They must understand the agreements made to the sharing of information and the acceptable methods in which this may happen. Best Practice would indicate that any member of staff who has reasonable belief/concern that a child is: At risk of Significant Harm or is a Child in Need of Service. should seek parental consent and or the child’s agreement for referral to Social Services UNLESS Seeking agreement to referral, places a child at increased risk of significant harm (see above). If permission is refused and the concern is of a child protection nature, then a referral can be made without consent. 9.0 Local Arrangements Procedures The following procedures illustrate the local arrangements for implementing LSCB policy and procedure. 9.1 Abuse of a child is caused by inflicting harm or failing to act to prevent harm. Children may be abused in a family or in an institutional setting, by those known to them or more rarely a stranger. Children may be physically, sexually, emotionally abused and neglected. Often a child suffers a combination of the types of abuse. 9.2 If staff have concerns that a child is suffering or, is at risk of suffering abuse or neglect or has suffered abuse or neglect a telephone referral must be made to Children’s Integrated Services (CIS) in line with the LSCB procedures within one working day. 9.3 Any staff member who is involved in any case where there is child protection concerns must follow the flow chart diagram in ‘What to do if you are Worried a Child is Being Abused’ outlined in Appendix 2 and follow the Local Safeguarding Children Board (LSCB) Date of Issue: March 2009 14 Safeguarding and Protecting Children Procedures procedures. Local flow charts are available on LCFT Safeguarding and Protecting Children Intranet page. 9.4 Staff should consult their line manager or the Safeguarding Team unless to do so would cause undue delay. On making a referral to Children’s Integrated Services staff must routinely enquire if the child or family is already known to the department or if the child/children are subject to a child protection plan. Staff must always send a copy of referrals made to the LCFT Safeguarding Team 9.5 When making enquires or consulting regarding a child welfare issue either in house or external to the Trust, practitioners must clearly identify the name, role of the person consulted with, whether this was in person or by telephone along with the time and date the consultation took place. This information should be recorded in the service users records. 9.6 Staff must always follow LSCB procedures for a Child Protection referral. Telephone referrals must be confirmed with a written referral within 2 working days 9.7 Staff must liaise appropriately with universal services involved with the family and General Practitioner when concerns are identified and child protection referrals are made. 9.8 Where English is not the first language of the child concerned, and communication is necessary for the purpose of safeguarding and promoting the child’s welfare, the use of an interpreter who is not a family member must be considered. If the use of an interpreter is dispensed with, the reason for doing so must be recorded. 9.9 A chronology of significant events must be compiled (see appendix 7 and 8 for guidance and form template) 9.10 Each Local Safeguarding Children Board(LSCB) have developed their individual levels along the welfare continuum. Levels of need and risk may change in response to changes in family circumstances, illness and lifestyles. Staff should be sensitive to those changes and reassess risk as required. Within Lancashire the following definitions are used: Most operate within four levels as defined nationally (Levels 1, 2, 3 & 4): Level 1 – Children and Young People whose needs are met by universal services which every child/ family is offered i.e. midwife, health visitor, GP, school nurse, school Level 2 –Children and Young People who are at risk of poor outcomes and thus in need of extra support from services. This could be provided by a single agency, but where multiagency working is required then the CAF process should be initiated Level 3 – Children and Young people who meet the threshold for statutory assessment and a multi agency response is required. (Section 17 of the Children Act 1989) Level 4 – Children and Young People who are in need of protection and require intensive support. Those at risk of significant harm or who have suffered significant harm (Section 47 of the Children Act 1989). Other Date of Issue: March 2009 15 Safeguarding and Protecting Children Procedures agencies have a duty to cooperate (Section 27 of the Children Act) this includes the sharing of appropriate information 9.10.1 Making a child protection referral (section 47) level 3-4 All staff are directed to follow procedures laid down by Local Safeguarding Children’s Board (LSCB) and must have access to an electronic version of the LSCB Procedures. The procedures are updated regularly therefore it is not advised that staff print off a hard copy. These are available on the Trust intranet or LSCB website. 9.10.2 Referrals should be made by telephone to the local CIS Office. Please see flowcharts on LCFT Safeguarding and Protecting Children’s Intranet Site 9.10.3 The initial call will be received by a customer care officer who will receive the preliminary details. The referrer should offer a clear, concise account of concerns about a child’s welfare, whether there are issues of significant harm and whether these require urgent action to safeguard the child. The referrer should clearly state whether their concerns are of an immediate child protection nature or a child in need of support. The referrer should ask to speak to a duty social worker specifying the referral is of a child protection nature. 9.10.4 All decisions and outcomes/actions must be recorded on the service users file. The telephone referral must be followed up in writing within 48 hours to CIS using the appropriate referral form for that area in line with LSCB procedures. Staff must attach a recent risk assessment to the referral. A copy must be stored within the service users file and a copy sent to the LCFT Safeguarding Team. 9.10.5 Staff will receive a reply from CIS within 3 working days regarding the outcome of the referral. If this is not the case staff should contact CIS to enquire as to the outcomes of their referral and where there are any concerns contact the LCFT Safeguarding Team 9.10.6 At the end of any referral discussion, the referrer and the CIS must be clear about who will be taking what action if any. Professionals must record, the discussion and decisions taken, document the name of the person accepting the referral and date and sign the records. 9.10.7 All cases causing concern must be reviewed and discussed with Line Manager/LCFT Safeguarding Team /Modern Matron /Safeguarding Champion. 9.10.8 Any concerns relating to a response from CIS or difference in professional opinion as to the level of risk of harm should be discussed with LCFT Safeguarding Team. 9.10.9 Some Section 47 investigations (Children Act 1989) when a child is considered to have suffered or be at risk of significant harm are complex. At the outset of complex Section 47 investigations staff may be invited to a strategy discussion meeting. Staff should prioritise their attendance. If there are resource issues staff should inform their manager. Staff are obliged to co-operate with Section 47 enquiries (Children Act 1989) 9.11 Emergency situation Where the child requires IMMEDIATE medical treatment: x Dial 999 for an ambulance x Inform CIS by telephone Date of Issue: March 2009 16 Safeguarding and Protecting Children Procedures x x Inform Line Manager / LCFT Safeguarding team Inform GP and family health visitor 9.12 Referring a child and family for family support (section 17) (level 3 see app 2) 9.13 When a member of staff has concerns about the welfare of a child, a request for other services may be appropriate when they meet the threshold for statutory assessment and a multi agency response is required 9.14 Referrals should only be made after discussion and with the consent of the family. Families must be made aware that a referral constitutes consent for CIS to contact them to facilitate the provision of services and enables CIS to make enquiries of other agencies. 9.15 To refer a family/child with needs, the appropriate referral form for the area should be completed and attached completed risk assessment. All relevant information held by the professional must be included on the form and forwarded to CIS. All out of hour’s concerns regarding child protection should be referred to the local CIS out of hour’s duty social work team in line with local procedures . 9.16 Referring a child and family for a Common Assessment Framework (CAF) level 2 9.16.1 The Common Assessment Framework (CAF) is a key part of delivering frontline services that are integrated and focused around the needs of children and young people. The CAF is a standardised approach to conducting an assessment of a child's additional needs and deciding how those needs should be met. 9.16.2 The CAF promotes more effective, earlier identification of additional needs. It is intended to provide a simple process for a holistic assessment of a child's needs and strengths, taking account of the role of parents, carers and environmental factors on their development. 9.16.3 Part of the process will be completion of the CAF form and liaison with local CAF coordinator. Please see LCFT Safeguarding and Protecting Children intranet site for flowcharts and CAF contact details 9.16.4 Practitioners will be able to agree, with the child and family, about what support is appropriate. The CAF will also promote co-ordinate service provision. 10.0 Disclosure of abuse – General Procedure 10.1 When commencing any therapeutic work a statement of confidentiality must be used either written or spoken that describes the parameters of confidentiality. It must be made clear that absolute confidentiality cannot be guaranteed e.g. if risk identified to themselves or others including risks to any children. Date of Issue: March 2009 17 Safeguarding and Protecting Children Procedures If the disclosure comes from: A child - reassure and state that you will be informing the appropriate service to help them. Document the information and refer onto CIS. Inform LCFT Safeguarding Team and liaise with the family Health Visitor or School Nurse. A parent/relative/non-professional - explain that they have a responsibility to refer to CIS – if they refuse – explain that now you are in receipt of the information, you have a duty to refer to CIS to protect the child. Document and refer the information to CIS. Another professional – request they make a direct referral following LSCB procedures. Document and follow up the outcome to ensure the information has been referred to CIS in line with these procedures. 10.2 When a service user discloses abuse either to themselves or from them, either current or historic, the practitioner to whom the service user discloses has a duty and responsibility to ascertain if any other children could be at risk of abuse from the alleged perpetrator and take action as set out in the Local Safeguarding Children Board procedures and this document. Advice and support in dealing with such issues is available from LCFT Safeguarding Team. 10.3 Out of hours If a practitioner identifies a suspected case of child abuse out of office hours, at the weekend or on a bank holiday, CIS Emergency Duty Team should be contacted on Lancashire 0845 6021043, Blackpool 01253 477600, Blackburn 01254 587547. The police may be contacted in an emergency situation. 10.4 Guidance for LCFT management team regarding safeguarding issues arising during the evening, weekends or bank holidays All managers and directors are referred to the LCFT’s Internal Safeguarding Procedures and Local Safeguarding Children’s Board Procedures for full guidance on the referral process and the systems involved when child abuse/death is identified. 10.5 The child’s welfare should remain the central concept in the assessment of whether to advise the practitioner to refer to the on-duty social work team. If you have a concern that a child is at risk of significant harm due to actual or perceived child abuse the advice must be immediate referral to CIS by the person raising the cause for concern. The next day might be too late for the child. 10.6 Practitioners during home visits may find children “home alone”. In these circumstances they should be advised to ring the police, stay with or near to the child/ren until the police arrive and make a safeguarding referral to social services. 10.7 Police interviews with LCFT staff witnesses for child abuse investigations should be arranged to take place in normal working hours on LCFT premises. In the absence of LCFT Safeguarding Team, a manager should be present at all police interviews of LCFT Trust staff. LCFT Safeguarding team take the lead for safeguarding support/issues for Managers in normal working hours from Monday to Friday inclusive. The on call director will take the lead out of hours and will notify The Named Nurse For Safeguarding of any untoward incidents. Date of Issue: March 2009 18 Safeguarding and Protecting Children Procedures 11.0 Actions to be Taken in Specific Circumstances 11.1 Children in whom illness is induced or Fabricated by Parents or Carers - previously known as Munchausen’s Syndrome by proxy. Staff must seek advice from LCFT Safeguarding Team if they suspect Fabricated or Induced Illness is occurring. It is important to note that consent from parent/carer should not be sought or anything discussed with them that might jeopardise the course of an investigation as per DOH guidance (2002)– Fabricated or Induced Illness. If an adult service user has a suspected or confirmed diagnosis of Fabricated and Induced Illness or similar condition and they have carers responsibility for a child advice must be taken from LCFT Safeguarding Team 11.2 Sexual Abuse Any suspicion of sexual abuse should be referred immediately to CIS. Sexual abuse investigations are jointly investigated by the police and social services. Referral must be made to the police if sexual abuse is recent to expedite the collection of forensic evidence. Sited in the grounds of the Royal Preston Hospital is the Sexual Assault and Forensic Examination Centre. (SAFE Centre). 11.3 In cases of suspected sexual abuse staff must not take for granted that any parent or carer thought not to be involved would take on a protective role. Collusion can often occur. Staff must not interview the service user about the disclosure or disclose any information to parents or carers without the advice from CIS. To do so could jeopardize any legal action and could put the service user at risk. Staff must also remain vigilant regarding the issue of the use of the internet in relation to child pornography. This is child sexual abuse and the practitioner will inform the LCFT Safeguarding Team. This is a criminal offence and will be referred to the police. 11.4 New offences targeted at those who abuse children through prostitution The Sexual Offences Act 2003 introduced a number of new offences to deal with those who abuse and exploit children in this way. They protect children up to the age of 18 and can attract tough penalties. They include: paying for the sexual services of a child causing or inciting child prostitution arranging or facilitating child prostitution grooming NB In the case of suspected sexual abuse the police will arrange the medical examination In some areas across the county multi agency teams have been established with a specific remit to recognise and support young people who are victims of sexual exploitation. Please see Safeguarding intranet site. 11.5 Domestic violence 11.5.1 Children may suffer both directly and indirectly if they live in households where there is domestic violence. Domestic violence is likely to have a damaging effect on the health and Date of Issue: March 2009 19 Safeguarding and Protecting Children Procedures development of children, and it is often appropriate for such children to be regarded as children in need. Children living in families where they are exposed to domestic violence have been shown to be at risk of behavioural, emotional, physical, cognitive-functioning, attitude and long-term developmental problems. (Working Together to Safeguard Children Chapter 11) 11.5.2 Victims of domestic violence are most at risk when they have decided to leave the abusive relationship. Staff may consequently put themselves at risk when assisting in this process. 11.5.3 Children who are experiencing domestic violence may benefit from a range of support and services, and some may need safeguarding from harm. Often, supporting a non-violent parent is likely to be the most effective way of promoting the child’s welfare.The police and other agencies have defined powers in criminal and civil law that can be used to help those who are subject to domestic violence. 11.5.4 MULTI-AGENCY RISK ASSESSMENT CONFERENCES (MARACS) Maracs are a series of monthly conferences tackling cases of serious domestic abuse. MARACs involve key agencies meeting to share information and expert knowledge about high risk domestic abuse cases and drawing up action plans to help victims. In a single meeting, a domestic violence MARAC combines up to date risk information with a comprehensive assessment of a victim’s needs and links those directly to the provision of appropriate services for all those involved in a domestic violence case: victim, children and perpetrator. 11.5.5 Aims of a MARAC To share information to increase the safety, health and well being of victims – adults and their children To determine whether the perpetrator poses a significant risk to any particular individual or to the general community To construct jointly and implement a risk management plan that provides professional support to all those at risk and that reduces the risk of harm To reduce repeat victimisation To improve agency accountability; and Improve support for staff involved in high-risk DV cases 11.5.6 Representatives attend the meetings from statutory and non statutory partner agencies .LCFT nominated staff from Substance Misuse Services and Adult Mental Health attend and contribute to cases and risk assessments involving individuals known to our services. 11.6 Children of drug-misusing parents Staff must at all times consider, as an integral part of the assessment process ,the impact of a parent/carer’s substance misuse on children within the household and family. Where there is cause for concern about complex substance misuse, the ability of the parent or caregiver to ensure that the child’s needs are being adequately then staff must follow LCFT Protocol for Children of Drug/Alcohol Misusing parents (CP004) and consider the criteria for referral to Children’s social care in order to assess the risk to children and young people. If concerns remain, then a referral to CIS must be made. Date of Issue: March 2009 20 Safeguarding and Protecting Children Procedures 11.7 Child abuse linked to belief in ‘possession’ or ‘witchcraft’, or in other ways related to spiritual or religious belief. The belief in ‘possession’ and ‘witchcraft’ is widespread. It is not confined to particular countries, cultures or religions, nor is it confined to new immigrant communities in this country. The number of known cases of child abuse linked to accusations of ‘possession’ or ‘witchcraft’ is small, but children involved can suffer damage to their physical and mental health, capacity to learn, ability to form relationships and self-esteem. Such abuse generally occurs when a carer views a child as being ‘different’, attributes this difference to the child being ‘possessed’ or involved in ‘witchcraft’, and attempts to exorcise him or her. A child could be viewed as ‘different’ for a variety of reasons, such as disobedience, independence, bedwetting, nightmares, illness or disability. The attempt to ‘exorcise’ may involve severe beating, burning, starvation, cutting or stabbing, and/or isolation, and usually occurs in the household where the child lives. 11.7.1 Staff need to be aware of these indicators, be able to identify children at risk of this type of abuse and intervene to prevent it. They should apply basic safeguarding principles, including sharing information across agencies, being child-focused at all times and keeping an open mind when talking to parents and carers. 11.8 Forced Marriages of Children/Young People Forced marriages of children must, in so far as it is likely to cause significant harm and may involve non-consensual and/or underage sex, be regarded as a child protection issue. In cases of suspected or actual ‘forced marriage’ actions should be conducted wholly in accordance with the agreed Home Office, Foreign & Commonwealth Office and ACPO guidance for Police, “Dealing With Cases of Forced Marriage” (2002). LSCB procedures must be followed and advice taken from LCFT Safeguarding Team. Further information and helplines are available from the Safeguarding and Protecting Children intranet site. Staff must never act as a mediator and need to be aware that mediation as a response to forced marriage can be extremely dangerous. Refusal to go through with a forced marriage has in the past been linked to so called ‘honour crimes’. 11.9 Sharing of information about circumstances of family stress – domestic abuse, mental health of a parent, drug and alcohol misuse 11.9.1 Health Professionals should always act in the child’s best interest – the safety and well being of the child must come first. The welfare of the child is always paramount (Children Act 1989) and over rides the duty of confidentiality to the adult. 11.9.2 A decision whether to disclose information may be particularly difficult if you think it may damage the trust between you and your patient or client. Wherever possible you should explain the problem, seek agreement and explain the reasons if you decide to act against a parent or child’s wishes. It is often helpful to discuss such concerns with a senior colleague or the LCFT Safeguarding Team. 11.9.3 Staff must consider is the proposed disclosure in order to protect the welfare of the child. The amount of confidential information disclosed, and the number of people to whom it is disclosed, should be no more than is strictly necessary to meet the public interest in protecting the health and wellbeing of a child. Disclosure must be based on a Need to Know’ Basis Date of Issue: March 2009 21 Safeguarding and Protecting Children Procedures 11.9.4 CIS have a statutory duty to make enquiries and they need the help from other agencies to do this effectively. When approaching Health Professionals for information, consent for disclosure of information would normally be sought. 11.9.5 In certain circumstances, disclosure is necessary in the interests of others. Adults who pose a risk of harm to a child and children, who may be the subject of abuse, are included in circumstances where information can be released, without the consent of the patient or client. 11.9.6 It is good practice to share information with the Health Visitor/School Nurse if a service user has care of a child. Good practice would indicate the service users consent is sought although there may be times that information is shared on a need to know basis to exclude risk to children /young people. 12.0 Child Protection Conferences/meetings 12.1 Staff must attend all Conferences and Reviews with a written report in the format detailed in this policy. A copy of all reports must be sent to the LCFT Safeguarding Team. The content of the report should be shared with the client/child’s parents prior to the conference if possible. (See Appendix 6 for template report) 12.1.2 Important points to include within the report: Clarify what is fact, and what is your professional judgement. Never include opinion Interventions / referrals made and their outcomes Identify family strengths and weaknesses Analysis of the information presented 12.1.3 The body of the report should include a health profile based on the ‘Assessment Framework’ (DOH 2000). The Summary: should include an analysis of the issues of concern including the risk and protective issues. A conclusion should be reached followed by your professional recommendations regarding future involvement, service provision and anticipated outcomes. Evidence that may have informed your professional judgement may be indicated. Professional opinion should be based on fact and not on assumptions. 12.1.4 Staff invited to attend a Child Protection Conference or a Child Protection review must prioritise attendance and produce a report as in Appendix 5 following guidance in Appendix 4, Staff must not feel that because they may no longer be involved with the service user they do not need to attend or produce a report. A decision has been made by children’s social care that attendance is required in order to obtain relevant information. Staff may hold vital information to inform the conference decision. If there are resource difficulties this should be discussed with their line manager who must attend to represent the Trust if the staff member cannot attend. LCFT Safeguarding Team must be contacted if a member of staff is not attending in order that the individual situation can be risk assessed. 12.1.5 Whenever possible the Child Protection Conference will reach a unanimous decision on whether the child’s/children should have a child protection plan.. All practitioners must make a decision after careful consideration of the evidence presented within the conference. Date of Issue: March 2009 22 Safeguarding and Protecting Children Procedures If, however, any member disagrees with the conclusion of the conference he/she has a responsibility to declare his/her dissent and reasons and ensure that dissent has been recorded by reviewing the Minutes. The date of the child protection review conference will be arranged. 12.1.6 Following a Child Protection Conference if the child is to have a child protection plan a Core group will be formed. The procedure, roles and responsibilities for members of the Core Group are detailed in Local Safeguarding Children Board procedures. Attendance at Core Groups and subsequent Child Protection Reviews with a written report must be prioritised. A date and time for the first core group meeting will be agreed and should be within 7 working days of the conference. 12.1.7 Minutes will be sent to all conference attendees. If you consider the Minutes are not a true record and corrections are necessary, inform the Child Protection Conference chair in writing within one week of receipt of the Minutes. The outcome of the Child Protection Conference must be documented in the appropriate client records. Child Protection conference Minutes must be filed in the records. Where electronic records are in use, minutes must be scanned and saved in line within line with LCFT CL027A A Framework For Professional Clinical Record Keeping Standards and CL027 Policy For Professional Clinical Record Keeping record keeping policy. 12.1.8 If any health practitioner is concerned that a person who may be attending a case conference may pose an aggression, intimidation or violence risk to other conference attendees the chairperson should be made aware, if possible prior to the conference. This will enable the chairperson in their decision making as to whether the person exhibiting the risk behaviour should be excluded. In the event of a conference member exhibiting violent or aggressive behaviour during the conference that person be asked to leave the proceedings by the chairperson. 12.1.9 Other Child Welfare Meetings There are times that staff may wish to hold multi agency meetings to discuss and share concerns and develop actions. These may fall below the threshold for Child Protection Conferences e.g. Child in Need meetings and strategy meetings. The service user must be informed of the meeting and outcomes. 12.1.9.1 Where the outcomes of a meeting are ,that it may be suspected a child may be suffering or likely to suffer significant harm, an immediate referral must be made in line with these procedures. 12.1.9.2 Attendance at meetings should be prioritised and should involve three basic steps: A clear record of the discussion of the meeting should be completed and circulated to all those present and all those with responsibility for an action point A list of action points should be drawn up, including time scale and person responsible A mechanism for reviewing completion of the agreed action must be specified. The date upon which the first such review is to take place should be agreed and documented Date of Issue: March 2009 23 Safeguarding and Protecting Children Procedures 13.0 Record Keeping 13.1 A clear record of conversations must be kept in all cases, recording telephone conversations, face-to-face contacts, discussions and the outcomes of supervision.. 13.2 A chronology of significant events form should be completed for each child about whom there are welfare concerns as described in Appendix 8 13.3 When the Trust is involved with more than one member of the family each case file must contain a full account of all relevant safeguarding information e.g dates of 13.4 Safeguarding Case Conferences and outcomes, or any other minutes of meetings held under LSCB procedures. 13.5 Records must use clear, straightforward language, and should be accurate not only in fact, but also in differentiating between opinion, judgements and hypothesis. All telephone conversations should also be recorded. See LCFT CL027A A Framework For Professional Clinical Record Keeping Standards and CL027 Policy For Professional Clinical Record Keeping record keeping policy.(Children’s records are kept for 25 years.) 14.0 Professional conflict, concerns or complaints 14.1 There will be times when there are difficulties between agencies, sometimes misunderstandings or differing perspectives on the nature of the concerns possibly due to the adult’s needs being in conflict with the child or young person. 14.2 If difficult situations arise that have been discussed but are not able to be resolved at practitioner level or within the normal management processes of the organisation then these concerns can be raised with the LCFT Safeguarding Team who will address it within the Local Safeguarding Children Board framework, to ensure that good multi-disciplinary working is maintained. 14.3 Procedure for safeguarding referrals involving staff members Where allegations of child abuse are made against members of staff the situation requires sensitive but appropriate management. It is important to remember that the allegation will be investigated by other agencies. 14.4 In the event that a Safeguarding referral is made involving a member of staff employed by LCFT, whether or not the alleged offence occurs on Trust premises Local Safeguarding Children’s Board Procedures will be followed to instigate the investigation. 14.5 The employee’s Line Manager will be advised of the situation immediately by the employee making the Safeguarding referral, or just receiving information of the referral. The Safeguarding Team must be made aware who in turn will inform the Director of Nursing of the investigation. Date of Issue: March 2009 24 Safeguarding and Protecting Children Procedures 14.6 Any employee of LCFT may be in a position of trust in relation to a child, young person or their family. It is illegal to abuse this position of trust. It is illegal for anyone in a position of trust to groom or have a sexual relationship with a young person less than 18 yrs of age. 14.7 In line with LSCB Procedures a multi-disciplinary strategy meeting will be convened to decide on the multi-agency response to the referral. 14.8 The police may also need to conduct criminal investigations. Internal investigations should not compromise the criminal process. Advice should be sought via the Trusts legal advisor and Human Resources. 14.9 In order to discharge the duties outlined in ‘Working Together to Safeguard Children’ 2006, any allegations or concerns about staff members must be reported to Human Resources The Local Authority, has an identified person known as the Local Authority Designated Officer (LADO) who is central to conducting investigations and is required to make judgements about a person’s ‘suitability to work with children’. 14.10 In all cases of suspected professional abuse coming to the attention of managers the LCFT Safeguarding Team must be contacted. The LCFT Safeguarding Team will work collaboratively with the manager, human resources and the LADO ensuring that the appropriate Local Safeguarding Children Board procedures and LCFT policy/procedures are adhered to. 15.0 Incomplete or conflicting details and missing families 15.1 As a matter of routine, all practitioners/staff are responsible for making sure that at each new contact with a client who is a parent/carer basic information is checked/obtained and recorded on CPA documentation. This must include the child’s name, date of birth, address, General Practitioner (GP), school and the name of their primary carer. Incomplete details should give rise to concern. Gaps in the basic information available must be addressed, trigger further inquiries and be communicated to the relevant authority, agency or practitioner. 15.2 Staff will give the child’s main carer, information and contact numbers for local GP’s in their area of residence. If the family cannot register with a local GP because their lists are full, give the address and contact number for Lancashire and South Cumbria Agency who will allocate the family a GP. 15.3 When a member of staff has advised a carer to register a child with a GP and given the above information, it is that staff member’s responsibility to liaise with the health visitor/school nurse manager (depending on the age of the child) to ensure that a health visitor/school nurse can follow this up. 15.4 Where a family goes missing, and there are safeguarding /welfare concerns, then LCFT Safeguarding Team and the key social worker should be informed. The information will then be cascaded to the appropriate professional groups. If the child/ children have a child protection plan in place, LCFT Safeguarding Team and key social worker must be informed immediately as there is a mechanism to alert colleagues in other areas of missing families. If Date of Issue: March 2009 25 Safeguarding and Protecting Children Procedures a professional is made aware of the whereabouts of a ‘missing family’ LCFT Safeguarding Team should be informed immediately. 16.0 Child of school age not registered with a school: Inform LCFT and local PCT Safeguarding Team. 17.0 Effective Care Co-ordination ECC 17.1 Effective Care Coordination provides a framework for effective mental health care. All staff should ensure that safeguarding and promoting the welfare of children and young people forms an integral part of all stages of care and assessment. Information about the child/children in families must be recorded at assessment or as soon as possible and recorded on CPA documentation/client records. 17.2 Staff implementing the ECC process must be mindful of service users /carers responsibility for children and consider the welfare of children at every stage of the ECC process utilizing the Framework for Assessment of Children in Need and their Families outlined in Appendix 4 .( LCFT Effective Care Co-ordination Policy – CPA CL012) 17.3 When conducting visits to a family home where there are welfare concerns about a child(ren) staff should establish the whereabouts of the child(ren). Staff should be mindful as to when the child was last seen. This includes siblings within the family group. Where there is a concern that a child(ren) has not been seen, staff should consult with a Senior Colleague, Manager, LCFT Safeguarding Team . 18.0 Service Users who are admitted under a Section of the Mental Health Act 1983 and have carer’s responsibility for a child 18.1 If a service user needs to be sectioned under the Mental Health Act 1983 consideration must always be given to any carers responsibilities that person has and appropriate measures put in place regarding the safety and well being of the child. Consideration always needs to be given to the safety of any children with the Approved Social Worker consulting and liaising closely with children’s services within the local authority. 18.2 If the service user has a child the safeguarding team at the PCT should be informed so that they can share the information with key staff. This information may be communicated in some areas by the paediatric liaison team. 18.3 A children’s social worker may need to be involved in the planning and or implementation stage of a section. If the service user to be sectioned is the sole carer for the child and/or there is potential risk to the child, police presence must be considered when the section is administered in line with Trust policy. Arrangements between Approved Social Workers, Police and Child Care Social Workers must be robust. Date of Issue: March 2009 26 Safeguarding and Protecting Children Procedures 19.0 Considering Home Leave and Pre Discharge Planning 19.1 When service users have responsibility for a child and home leave or discharge is being planned. The needs of children must always be considered. A pre discharge-planning meeting should be called. If the child is under school age the Health Visitor should be invited to the pre discharge-planning meeting. Other professionals working with the child and family should be invited to attend as appropriate e.g. CAMHS, education, school nurse 19.2 If there are welfare concerns, the focus of the meeting should be changed to a Child in Need Meeting at an appropriate stage when the child’s needs become the focus of discussions and an appropriate action plan produced. 19.3 Safeguarding children requires information to be brought together from a number of sources and careful professional judgements to be made on the basis of this information. Good record keeping is essential. 19.4 Liaison with the PHACF/Named Nurse Safeguarding must be considered and sent a copy of the minutes of the meeting. 20.0 Children visiting adult psychiatric wards 20.1 Arrangements for children visiting adult psychiatric wards must be undertaken in line with the Trust policy (CP003). 20.2 A visit by a child or young person should only take place following a decision that such a visit is in the best interests of the child. Decisions to allow such visits are reviewed regularly. 21.0 Responsibilities for looked after children 21.1 Where a child/young person who is looked after, then staff must advise and liaise with the young persons key Social Worker, who is the key professional in respect of communication, and local Lead Nurse for Children Looked After, employed by thr PCT 21.2 Children who are provided with accommodation by the Social Service Departments are described as ‘Children Looked After’. This term pertains to children subject to compulsory care as well as those who are voluntarily accommodated. Looked after children can be accommodated with family and friends, registered foster carers and also in residential units. 21.3 Child/young person accommodated /detained over a period of 3 months In line with the Children Act 1989, the Trust is required to notify the Childrens Integrated Services when a child is accommodated or there are plans to accommodate for a consecutive period of at least 3 months duration, and when the child leaves the accommodation. See Mental Health Act 1983 Code of Practice 31.23 (1999) This notification is the responsibility of the in patient unit . Staff must refer to the Trust policy relating to the Admission of Young People to Adult wards (CP002) Date of Issue: March 2009 27 Safeguarding and Protecting Children Procedures 22.0 Private fostering 22.1 The Children (Private Arrangements for Fostering) Regulations 2005 came into force 1st July 2005 This has particular implications for inpatient services when a service user makes a private arrangement with a non-relative to care for their child for 28 days or more (see 28 day rule below). Also situations could come to the attention of other workers e.g. CAMHS, CMHTs. The law states that the Local Authority Children’s services must be informed in order that they can assess the situation. Where private arrangements are made by a parent, or other with Parental Responsibility to have their child look after who is: under 16 years of age or, if disabled, under 18 years of age and if these arrangements last for more than 28 days, in total – not necessarily consecutive (see footnote) with someone who is not a parent someone with parental responsibility a relative 22.2 A private fostering arrangement differs from a public care fostering arrangement by the fact that it is not arranged or paid for by the Local Authority. 22.3 Notification Both the child’s parents and the private foster carers have a duty to notify the Local Authority of the intention to place the child in private foster care not less than six weeks before and not more than 13 weeks before the arrangement is intended to start, unless it is made as an emergency, in which case notification shall not be more than 48 hours after the child has been placed with the carers. 1 22.4 Local Safeguarding Children Procedures should be followed regarding notification procedures. 23.0 Requests for information from solicitors, children’s guardians, children and family reporters or the police 23.1 In order to ensure a standard approach is used, where there are child welfare issues, the LCFT Safeguarding Team must be contacted. If staff are contacted directly staff must not disclose any verbal or written information. 1 The calculation is based on the child being resident with the carers for a total of 28 days or more at any one time. This means if the intention is for the child to stay with the carer for over 28 days but during this period they return to have a break with their parents for a few days and return to the carers then this remains a private fostering arrangement. However if the child stays with carers on a regular basis for respite for a few days, even though over a year this might accumulate to over 28 days this does not constitute private fostering. (ref Surrey CC v Battersby 1965 1 AIIER 277.Cited in Hershman & McFarlan Date of Issue: March 2009 28 Safeguarding and Protecting Children Procedures 23.2 Requests must be made via Line Manager or PHACF/Named Nurse for Safeguarding. Staff member may be accompanied by Line Manager/PHACF/Named Nurse for Safeguarding if required. Sight of the final report should be requested. A written request for information is required, a verbal request is not acceptable. Relevant information may be given either by a prepared written statement or by an interview for the purpose of preparing a statement. Statements should be discussed with and seen by the LCFT Safeguarding Team and the Trusts Legal Advisor prior to submission. If taken by interview the named nurse/line manager or a nominated representative must be present. The statement should be signed and dated and a copy kept with the records. 23.3 Sharing of information with the Police may be necessary in the child’s best interests as part of the Trust’s legislative duty to co-operate. Advice must be sought prior to releasing any information from the Trust Records Manager, LCFT Safeguarding Team, Line Manager, one of which will accompany staff when being interviewed or giving statements. Statements must be checked and signed by the practitioner on each page. The Trust record Manager and Line Manager must be notified of any requests for records. 24.0 Statements for Legal Proceedings where there are child welfare issues 24.1 If a member of staff receives a request for a statement for court where there are child welfare issues they should contact their manager and the LCFT Safeguarding Team Trust who will advise and support the staff member. 25.0 Attendance at court as a witness If a member of staff receives a request, witness summons or is subpoenaed to appear in court as a witness where there are child welfare issues they should contact their manager and LCFT Safeguarding Team who will advise and support the staff member. 26.0 Incident reporting 26.1 Serious or untoward incidences must be reported in line with the Trust Serious Untoward Incident Reporting and Management Procedure (HS001A.) LCFT Safeguarding Team must be informed of any serious or untoward incidents involving children/young people unborn to 18 years of age. 27.0 Child Death Overview Panel 27.1 All child deaths whether expected, sudden, accidental or otherwise have to be reported to the above panel. This panel is part of the LSCB procedures. There is a reporting structure that should be adhered to. If a practitioner becomes aware of a child death whether it was sudden or expected they must contact their manager and LCFT Safeguarding Team who will complete the CDOP Date of Issue: March 2009 29 Safeguarding and Protecting Children Procedures notification form and forward it to the panel. This applies to children who are not in the area at the time of death as well as those who die within Lancashire. 27.2 Some of the children reported to the panel will have died as an immediate or longer-term consequence of abuse or neglect. The CDOP panel will then decide whether the case meets the criteria for a Serious Case Review. 28.0 Serious Case Reviews 28.1 These are held when a child dies or receives serious injuries and abuse or neglect are known or suspected to be a factor in the death and the case gives rise to concerns about interagency working. The decision to carry out a serious case review is taken by the LSCB. 28.2 LSCBs will always consider whether a serious case review should be conducted: where a child sustains a potentially life-threatening injury or serious and permanent impairment of health and development through abuse or neglect, where there has been subject to particularly serious sexual abuse, or their parent has been murdered and a homicide review is being initiated, where the child has been killed by a parent with a mental illness, where the case gives rise to concerns about inter-agency working to protect children from harm. or or or 28.3 The purpose of the serious case review is to: Establish whether there are lessons to be learned from the case about the way in which local professionals and agencies work together to safeguard children Identify clearly what those lessons are, how they will be acted upon, and what is expected to change as a result and as a consequence To improve inter-agency working and better safeguarding children 28.4 Immediately it is suspected that a case may become the subject of a serious case review the LCFT Safeguarding Team will arrange to secure all records. 28.5 Cases not meeting the criteria for a Serious Case Review may be subject to an internal management review if it is felt that lessons can be learnt regarding multi agency working (Working Together to Safeguard Children 2006). 28.6 LCFT Safeguarding Team will: Ensure all notes and files relating to child/family are secure. Liaise with manager and consider the circumstances of the incident death and decide whether it needs reporting in line with LCFT Serious Incident/Patient Safety Incident Reporting and Management Procedure HS001 Compile LCFT chronology of service involvement with all relevant family members Date of Issue: March 2009 30 Safeguarding and Protecting Children Procedures liaise with the the Designated Nurse/Doctor (PCT) who will compile the composite health chronology and analysis and alert Chief Executives or nominated representative within the involved health organisations of the need for review of the case. Liaise with the Trusts Legal Advisor 28.7 Review report (report from each discipline must be completed within the timescale set by the LSCB serious case review panel) Designated Nurse/Doctor, Named Nurse/Doctor for Safeguarding working with Service Managers/Named Nurses will ensure each discipline carries out the following management objectives: Establish a factual chronology of all actions/interventions taken by professionals involved with the child/ren family Assess whether actions/interventions in the case areas are per Trust policies/procedures Analyse and identify any significant gaps in organisational systems, service provision and or professional practice Recommend appropriate action 29.0 Aggression, violence and intimidation 29.1 Aggression and violence to practitioners may be an indicator that the children may also be at risk of abuse and is often used by parents to detract from child centeredness. Practitioners must at all times remain aware and seek advice and support in order to prevent the risk of professional collusion and dangerousness. 29.2 Practitioners who have concerns regarding adults who may pose a risk to the public must discuss their concerns with their line manager or the LCFT safeguarding team. An assessment of risk is central to the protection of children and practitioners. A Multi-Agency public protection panel referral (MAPPA) may be indicated. This should only be instigated after consultation with your line manager/LCFT Safeguarding Team who can request the police to provide information relating to possible risk factors relating to adults when they are safeguarding issues/concerns or practitioner’s safety is considered to be at risk. 30.0 Safeguarding and protecting children – professional development 30.1 Safeguarding Supervision Supervision provides a framework for examining a case from different perspectives. Functioning properly, supervision will facilitate quality, innovative reflective practice in a safe environment. 30.2 Staff working with complex families or directly with children/young people must receive safeguarding supervision every three months either on 1:1 basis or group supervision. Other professionals must receive Safeguarding supervision as necessary or as determined by their Line Managers or LCFT Safeguarding Team. (See LCFT Clinical Supervision policy). Date of Issue: March 2009 31 Safeguarding and Protecting Children Procedures 31.0 Support for staff Support in complex cases is available from the safeguarding team. Staff must be offered immediate support if they have been involved in a serious incident and where relevant a debrief must be offered. A leaflet outlining the meaning of a Serious Untoward Incident is available on the Risk Management webpage on the intranet. Relevant staff involved in a traumatic / stressful incident will be offered ongoing appropriate support as required via their managers, occupational health or an outside agency if necessary. Support will be offered for staff experiencing difficulties associated with an event throughout the incident investigation, and will continue once the incident has concluded if necessary. This will also include support as required via their managers, counselling, occupational health, or an outside agency if necessary including Child Protection supervision and Clinical supervision. For further information refer to the Procedure for supporting staff involved in traumatic / stressful incidents complaints or claims 32.0 Training In order to protect and safeguard children, all clinical staff need to have a basic awareness of how to recognise, child in need/child protection issues, how to respond to their findings, and how to refer to social services if necessary. Safeguarding Children and Young People: Roles and Competences for Health Care Staff April 2006 provides a recognised framework for all health care staff to meet the needs of specific practitioners depending upon their particular role in relation to Safeguarding children and Young People. Training Levels Staff groups will have different training needs to fulfil their duties, depending on their degree of contact with vulnerable families, parents, children, young people and their level of responsibility. (Safeguarding Children and Young People: Roles and Competences for Health Care Staff April 2006) .Training for staff will be provided in accordance with the Trust’s Training Needs Analysis. Attendance and non attendance will be monitored in accordance with LCFT statutory and mandatory training procedure. Date of Issue: March 2009 32 Safeguarding and Protecting Children Procedures 33.0 Implementation/compliance 33.1 Managers at all levels are responsible for ensuring that their staff are trained in the use of these procedures and that staff are aware of the location of LCFT and LSCB Safeguarding and protecting Children procedures and that this information is given to all new staff on induction. They are also responsible for keeping staff up to date about any changes to these procedures. All Safeguarding and Protecting Children Procedures are available on the Trust Intranet. 33.2 The process for monitoring the effectiveness of these procedures and of the safeguarding arrangements for children within the Trust will be by the Trust Safeguarding Committee. 34.0 Monitoring 34.1 The Trust’s Safeguarding and Protecting Children procedures and measures will be monitored through a number of means, which are outlined in the table below. Standard Duties Review of reported safeguarding incidents to establish themes and trends Training provided to staff in line with LCFT Safeguarding Children Strategy Preparation of an annual safeguarding action plan that includes actions arising from corporate, national and local safeguarding requirements and developments Date of Issue: March 2009 Timeframe/ Format Annually via the Safeguarding Annual Report How Whom Review of a sample of minutes of relevant committees training records, work plans, objectives Quarterly via Quarterly reports quarterly Reported incidents and reports to EMT SUI’s regarding concerns Governance about a child’s safety, reviewed. Annually Training reports Attendance lists Training calendar Training needs regularly reviewed via evaluation forms Annually via Review of Action Plan the Review of copies of Safeguarding referrals to Children’s annual report Integrated Services and Annually CAF activity 33 Public Health Advisor Children/Families Public Health Advisor Children/Families Public Health Advisor Children/Families Public Health Advisor Children/Families Safeguarding and Protecting Children Procedures Local Safeguarding arrangements are being followed Quarterly via quarterly reports to EMT Governance Sample Incident reports relating to safeguarding issues, minutes of relevant committees. LCFT Safeguarding Action Plan Annual report, programme of audit. Public Health Advisor Children/Families Supporting staff Annually via the Safeguarding Annual Report Review of investigation reports / feedback reports form staff Public Health Advisor Children/Families Public Health Advisor Children/Families is responsible for proving assurance of compliance with this procedure to the Safeguarding Committee. The Safeguarding Committee will provide assurance to EMT Governance of compliance with this procedure via quarterly and annual reports. An action plan to address issues of non compliance with this procedure will be developed and monitored by the Safeguarding Committee. 35.0 Equality and Diversity Impact Assessment See Appendix 11 36.0 Review This procedure will be reviewed every 3 years or earlier if there is a change in legislation or guidance. 37.0 Other Associated Policies and Procedures 38.0 References References and internet links x Safeguarding Children – A Joint Chief Inspectors’ Report on Arrangements to Safeguard Children. London, Department of Health. x Children Act 1989 (1989). London, HMSO. x Children Act 2004.London,HMSO. Website http://www.everychildmatters.gov.uk/ x Data Protection Act 1998 (1998). London, HMSO. http://www.opsi.gov.uk/ACTS/acts1998/19980029.htm x Date of Issue: March 2009 34 Safeguarding and Protecting Children Procedures x Working Together to Safeguard Children DOH 2006 x Responding to Domestic Abuse: A Hand Book for Health Professionals, DH Department of Health (2005) x National Service Framework for Children, Young People and Maternity Services. London, DOH. DfES (2004). Website: x www.dh.gov.uk/PolicyAndGuidance/HealthAndSocialCareTopics/ChildrenSe rvices/ChildenServicesInformation/fs/en. x Framework for the Assessment of Children in Need and their Families. London, The Stationery Office. DOH.DfES(2000). x What To Do If You’re Worried A Child Is Being Abused. London, DOH,DfES Home Office, Department for Culture, Media and Sports, Office of the Deputy Prime Minister and the Lord Chancellor’s Department (2003). x Safeguarding Children in whom illness is Fabricated or Induced (2002); Department of Health, Home Office, Department for Education and Skills x Statutory guidance on making arrangements to safeguard and promote the welfare of children under section 11 of the Children Act 2004. London, Department for Education and Skills.HM Prison Service (2004). Date of Issue: March 2009 35 Safeguarding and Protecting Children Procedures Appendix 1 A GUIDE TO MEETINGS HELD IN RELATION TO PROTECTING AND SAFEGUARDING CHILDREN Health professionals working with vulnerable children and their families involved with LCFT will be invited to attend a variety of multi-agency meetings to share relevant information and develop plans to safeguard children. These multi-agency meetings are the forum for agreeing services for vulnerable children and their families and should be held at regular intervals to review the risks the child is facing and the range of support services provided. Decisions to commission new services or to withdraw services should be reported to the meetings. These meetings should be formally recorded and the Minutes distributed to all those involved. All health staff should record the action plan in the client’s records immediately following any multi-agency meeting they attend. Practitioners attending meetings within the safeguarding and protecting children’s agenda should fully participate in the multi-agency discussions which include constructively challenging decisions that the professional does not consider to be in the best interest of the child. Practitioners should be prepared to take responsibility in the management of the meeting by supporting the chair. Strategy discussion/meeting The discussion or meeting takes place when there is reasonable cause to suspect that a child is suffering or likely to suffer significant harm. It may take place by telephone (within 24 hours of the initial assessment being completed) or by a meeting of all related professionals within 5 working days. It is not usual for family members to take part in strategy discussions/meetings. Strategy meetings are chaired by the team manager, or a senior social worker, from the Social Services Department. The meeting will decide the intervention felt to be appropriate to an individual family. The information shared at this time is crucial to the decision on whether a Section 47 enquiry (see 7.0) will be initiated, how the enquiries will be handled, what action is needed to investigate and how best to protect the child/children. A report with a chronology of significant events may be required. Initial Safeguarding Conference The conference brings together family members, the child where appropriate and professionals involved with the child and family following the completion of Section 47 enquiries (where a child is considered to be at risk of significant harm). It is chaired by an independent reviewing officer. Its purpose is to collate information obtained about the child’s health development and functioning and the parent’s capacity to ensure the child’s safety and promote his/her health and development. From this, the conference will decide whether the child is at risk of Date of Issue: March 2009 36 Safeguarding and Protecting Children Procedures significant harm in the future and decide what action is needed to safeguard the child and promote his/her welfare. A multi-agency decision is made regarding the level of concern and the need to place/not to place the child/children’s names on the Safeguarding Register and under what category of abuse. A safeguarding plan is outlined and will usually involve health professionals. All members of the meeting will be involved in this decision-making and planning process. All initial safeguarding conferences should be attended. Where the practitioner is on leave, a colleague should attend on their behalf. A written report is required. This report should be shared with the family prior to the conference if possible. This is especially necessary if the family’s first language is not English and a translation via the interpreter service is required. Core Group Meetings These are held at monthly intervals in respect of children currently on the Safeguarding Register. The first core group meetings should be arranged at the end of the initial safeguarding conference and should be held within 7 working days of that conference. The core group led by the Children and Family key worker (social services) is responsible for developing and implementing the safeguarding plan as outlined at the safeguarding conference. All practitioners involved in core groups should work in line with and therefore be in receipt of the protection plan. The relevant health professionals identified at the safeguarding conference should attend. A written report is not required if the identified health professional is in attendance and can contribute verbally. If the identified health representative cannot attend, a report must be prepared and submitted to the key worker prior to the meeting. It is also advised that a representative for the health professional attends the meeting. Review Safeguarding Conference Once a child’s name is placed on the Safeguarding Register, a date for a first review safeguarding conference is usually set for 3 months time. Subsequent review conferences will always be planned, unless there has been a change in circumstances, in which case the conference can be brought forward. Health professionals should attend all Review Conferences. A written report is required. The report should be shared with the family prior to the conference if possible. Transfer in Safeguarding Conference When a child on the Safeguarding Register moves to another area, the social services department in the receiving area will convene a safeguarding conference within 14 working days. The transfer conference will decide whether the registration in the new area will continue. All practitioners should liaise will their colleagues in the receiving authority and depending on the distance and/or circumstances, should either attend the conference or provide a report detailing involvement to date. All liaison conversations should be documented. Family Support Meeting This meeting is convened and chaired by the Named Social Worker following the completion of the initial assessment. It should be attended by professionals and agencies involved with the family, an agreed action plan to support the family should be formulated and individual roles and responsibilities to meet the child’s needs should be agreed. Family members are invited to the meeting. Further family support meetings should take place approximately every 2 months to evaluate the support package and monitor the progress of the action plan. Invited health professionals should attend these important meetings. A written report is not Date of Issue: March 2009 37 Safeguarding and Protecting Children Procedures required if the relevant health professional attends the meeting and contributes verbally. If they are not able to attend, a representative must attend in their place and a report must be submitted. The agreed action plan must be recorded in the child’s records by the health representative immediately following the meeting. Staff should also ensure they receive a copy of the Minutes of family support meetings to complete their records. Initial Statutory Review (Looked after Children) The meeting is arranged by the social worker and the review and protection chairperson as soon as possible after a child is accommodated. All relevant agencies and the family members are invited. The meeting is to clarify and consider a child’s care plan whilst in the care of the local authority. Invited practitioners should attend. A concise report on the child’s health and development, information on how the child has settled in the placement and any observations on the interaction between the foster carers and child or parents and child should be presented at the meeting. This report can be written or verbal depending on the individual circumstances. Statutory Review (Looked after Children) A meeting to review the child’s health/education/development and placement and ensure needs are being met is held one month after the placement. Invited health professionals should attend. Planned regular reviews are held thereafter or on demand if there is a change of circumstances. A report as above is required. Professional Abuse Strategy Meeting This meeting is chaired by the independent reviewing officer from the Social Services Department. Its purpose is to clarify whether any further enquiries are required in relation to the safety and welfare of the children, any police investigation into a possible crime and the employer’s disciplinary procedures, which may be invoked. Date of Issue: March 2009 38 Safeguarding and Protecting Children Procedures Appendix 2 What To Do If you are worried a Child is Being Abused PRACTITIONER HAS CONCERNS ABOUT CHILD'S WELFARE Practitioner discusses with manager and/or other senior colleagues as they think appropriate Still has concerns Still has concerns No longer has concerns No longer has concerns Practitioner Practioner refers refersto toSocial Social Services, Services,following following upupininwriting within writing 48 within hours 48 hours Social worker and manager acknowledge receipt of referral and decide on next course of action within one working day Initial assessment required Concerns about child's immediate safety No further child protection action, although may need to act to ensure services provided Feedback to referrer on next course of action No further social services involvment at this stage, although other action may be necessary, eg. onward referral Emergency action taken by Social Services/Police Every Child Matters What to do if you’re worried a child is being abused (Dept for Education & skills) Date of Issue: March 2009 39 Safeguarding and Protecting Children Procedures Appendix 3 DRAFTING A STATEMENT FOR COURT: A STEP BY STEP GUIDE Remember the following key points: 1. To write a successful statement you must be very clear about the kind of information, which is required. You need to ask yourself a number of questions: a. b. c. d. e. Why are you writing the statement? Who will read the document? What are the facts? When is the statement needed? What guidance have I available? 2. All statements must firstly be prepared in draft form and discussed with your line manager/Child Protection Nurse Specialist. 3. Legal advice from is available via the Trust Legal Advisor /Named Nurse Safeguarding and should always be sought in preparation for writing a court report and prior to submission. 4. Think before you write anything down and refer to all your records. 5. Statements must be accurate and written in chronological order. 6. Write down the statement in English, using uncomplicated language. Be clear, comprehensive and concise in your writing skills. Check your spelling and punctuation are correct. 7. Statements must be factual, that is based on what was said, what was heard, what was observed and what was done. What was the result of your assessment? Ensure your assessment is within your own professional limits. What were your concerns? Key events/incidents must be written up in full detail. 8. You may need to include headings and sub-headings to make your statement clearer, particularly if it is a lengthy document. Dates and times of home visits/other contacts should be recorded with a brief summary of what happened, what you observed on each occasion and your action plan. 9. Do not forget to record “No access” visits and the action you took following these. 10. Non-contentious entries in nursing records can be summarised by entries in the following style: ‘Between 1.9.92 and 10.10.93, home visits continued and no problems were identified’. 11. Professional opinion and judgement is valued by the court; however they should be clearly differentiated from fact. 12. Do not include unsubstantiated opinions or assumptions as facts. ‘There is no room for hypothesis or conjecture’. (Barnes et al, 1989) 13. Try to make the statement as brief and concise as possible. 14. Be truthful. 15. Before signing the statement you should consider the content carefully and make any necessary amendments. 16. Sign and date the final draft. Date of Issue: March 2009 40 Safeguarding and Protecting Children Procedures 17. Keep a copy of the statement for your own reference – this is very important. 18. Prior to submission ensure the Trust legal advisor and The Named Nurse For Safeguarding view the report. WRITING A STATEMENT FOR COURT: A SUGGESTED FORMAT To: Date: From: Name: Designation: Professional Qualifications: My experience has been: Work address: Work telephone number: Stages of the Statement 1. Introduction I first became involved with the family/child (ren) in: (Statements must be written in chronological order) 2. Main body of statement The main body of the statement will be a series of dated paragraphs summarising the corresponding entry in your records. Give an account of the contacts and events in chronological order from your records. Each section should have a date as the heading. Statements must be factual. Opinion should be stated as such. Each section must include what was observed, heard, your professional assessment and any actions taken. Signature: Date of Issue: March 2009 Date: 41 Safeguarding and Protecting Children Procedures Appendix 4 THE COMMON ASSESSMENT FRAMEWORK CHILDS DEVELOPMENT NEEDS Consider each child. Consider among other issues: Has the child attended for routine health surveillance and immunisation? Are there any health problems or developmental delay? If school age – is the child attending school? Is there evidence of a stable, affectionate relationship with parent, caregivers and siblings? Is the social presentation appropriate for age, gender, culture and religion? Are there any hygiene issues? Are there appropriate self-care skills If pregnant Expected Date of Delivery………. Is antenatal care being accessed? Date of Issue: March 2009 42 Safeguarding and Protecting Children Procedures Health Include growth and development as well as physical and mental well-being. Includes whether appropriate health care has been accessed, i.e. immunisations, appropriate health assessments, hospital/GP/other medical appointments including dental and optical care. Include centile charts, and Chronology of significant events. Education Include all significant issues relating to the child’s cognitive development e.g. opportunities for play and interaction, attendance at school. Emotional and Behavioural development Include the nature and quality of attachment to parents/carers, and the child’s ability to adapt to change, his response to stress etc. Identity Include the child’s sense of himself as a separate and valued person (self-image and self-esteem). Include issues relating to race, religion, age, gender, sexuality and disability. Family and Social relationships Include whether the child has a stable and affectionate relationship with parents, caregivers and siblings and whether they have age appropriate friends. Social Presentation Include whether the child is dressed appropriately for their age, gender, culture and religion and discuss cleanliness and personal hygiene. Self-Care Skills Include whether the child has developed age appropriate self care skills, if not, why not? DIMENSIONS OF PARENTING CAPACITY Are the parents/carers capable of meeting the child’s basic needs including requirements for secure, secure, stable and affectionate relationships? Are the parents/carers ensuring the child is adequately protected from harm and setting appropriate boundaries? Are the parent/carers providing a sufficiently stable family environment? Basic care Include whether the child’s basic needs are being met i.e. are they receiving appropriate medical and dental care? Do they have adequate provision of food, drink, warmth, shelter and appropriate clothing. Ensuring Safety Include whether the child is being adequately protected from harm or danger e.g. are hazards and dangers in the home recognised by parents, is the child protected from ‘unsafe’ adults etc? Emotional Warmth Include whether the child’s emotional needs are being met e.g. appropriate physical contact, comfort and cuddling sufficient to demonstrate warm regard, praise and encouragement. Stimulation Include whether the child’s cognitive development and potential is being stimulated through interaction, communication, talking, play, attending school etc. Date of Issue: March 2009 43 Safeguarding and Protecting Children Procedures Guidance and Boundaries Include whether parents/carers are providing guidance and setting appropriate and consistent boundaries for their child. Also include, whether parents are demonstrating and modelling appropriate behaviour and control of emotions and interactions with others. FAMILY AND ENVIRONMENTAL FACTORS What are the parental/carers strengths and difficulties? What roles do the wider family including non-related persons have in the care of the child? Does the accommodation have basic amenities and facilities appropriate to the age and development of the child and other resident members? Is there sufficient income to meet the family’s needs? Is there evidence of integration of isolation? What community resources are available and used by the family? Employment Include who is working in the household and any impact this may have on the child. Family History and Functioning Include genetic and psychosocial factors which are impacting on the child. Include any significant changes in the family/household composition; history of childhood experiences of parents; chronology of significant life events and their meaning to family members; nature of family functioning, including sibling relationships and its impact on the child; and parental strengths and difficulties. Wider family Include the wider families’ role and importance to the child and parents. Significant non-related persons can be included here if they have some importance to the child. Housing Include whether the child’s living accommodation has basic amenities i.e. water, sanitation, cooking facilities, adequate sleeping arrangements, hygiene and safety and their impact on the child’s upbringing. Income Include whether there is sufficient income to meet the family’s needs, the way available resources are used and whether there are financial difficulties which affect the child. Family’s Social Integration Include the degree of the family’s integration or isolation, their peer groups, friendship and social networks and what importance is attached to them and how this impacts on the child. Community Resources Include what resources are available in the community (e.g. Sure Start, Day Care facilities, shops, leisure activities, schools, health centres), and how the availability and standard of these resources impact on the family and the child. Date of Issue: March 2009 44 Safeguarding and Protecting Children Procedures Distribution: 1. To case conference / meeting 2. Held on Client Records 3. Named Nurse Child Protection Appendix 5 REPORT FOR SAFEGUARDING CONFERENCE / MEETING NAME OF CLIENT: ……………………………………… SURNAME FORENAME D.O.B. DATE………………………. ADDRESS CHILDREN SIBLINGS MOTHER FATHER/HUSBAND CO-HABITEE HEALTH PROFESSIONAL…………………….. DESIGNATION: ………………………………… BASE………………………………………………………………………………………………………. GP:………………………………….. SOCIAL WORKER: …………………………………………… T OTHER AGENCY INVOLVEMENT DATE OF REGISTRATION: ………DATE OF LAST REVIEW/MEETING: ………………. DATE OF COMMENCMENT OF CURRENT EPISODE OF CARE: …………………………… Date of Issue: March 2009 45 Safeguarding and Protecting Children Procedures REPORT TO CONFERENCE / MEETING Contact Dates Venue Comments / Outcome / Summary The Introduction: should include relevant background information including length of time known to the service, chronology of service involvement a description of the most recent incident, if there has been involvement/assessment of risk and self-involvement with the child/family. The use of the Framework for Assessment should be seen as a positive opportunity to identify and respond to any needs of the children and family identified. It should identify the strengths as well as difficulties. You may only have limited information under some of the headings e.g. Child’s developmental needs - but when all the information is put together in the format of the Framework for Assessment at case conference a fuller picture is available to aid the decision making process. The body of the report should include a health profile based on the ‘Assessment Framework’ (DOH 2000). x Child Development (if known) x Parenting Capacity x Social and Environmental factors The Summary: should include an analysis of the issues of concern including the risk and protective issues. A conclusion should be reached followed by your professional recommendations regarding future involvement, service provision and anticipated outcomes. Evidence that may have informed your professional judgement may be indicated. SIGNED ……………………………………… DATE…………………………… SUPERVISOR / TEAM LEADER ……………………………DATE……………………………. Date of Issue: March 2009 46 APPENDIX 6 Date of Issue: March 2009 If other children’s services are involved: xDiscuss with the client inviting key staff from other services to CPA meetings e.g. CAMHS, Health Visitors, children and families social workers xDiscuss with the client liaison/communication with those professionals outside of the CPA process. Practitioners will consider xWho is in the family? (include age, gender, full names of dependant children) xDoes the child have special needs? xDoes the client have parental responsibility? xWhat symptoms and behaviours does the adult exhibit and what may the impact of these be on children when acute/when chronic? xWhat other adults are involved in parenting? xIs the client pregnant? xIs the family known to children’s services? (CAMHS or Social Services) If so, what current involvement is there? xAre there any previous or current concerns and do these relate specifically to mental illness in the parent? xDoes the client have insight and willingness to accept support / services? xDiscuss with the client the availability of support for their parenting role from family or other services e.g. health visitor, CAMHS, Social Services, Parental Mental Health Service. ASSESSMENT STAGE 47 If you have major concerns about the welfare and safety of the child/ren: xDiscuss with manager/supervisor. xSeek advice from the Trust-named nurse or doctor in Child Protection if you are not sure. xRefer to children & families team. xAgree with children and families team when and how to inform client that referral has been made. If you have minor concerns for the child/ren which are not shared by the adult client, incl. pregnancy: xDiscuss with a senior colleague or line manger and agree plan. xInformal discussion with Children and Families or Parental Mental Health Service to decide whether referral is indicated and level of urgency. xIf appropriate, discuss again with client. xIf concerns are shared by others consider referring without client’s agreement. xIn most instances, the client should be informed of the referral even if it is not with their consent. If you have no concerns for the child/ren: xRecord xInclude parental issues in care plan at every review WHAT TO DO Ref: Central and North London Mental Health NHS Trust If the parent is being looked after at home: xIf the child remains at home, it must be remembered that the welfare of the child is paramount. xEnsure there is ongoing communication between all professionals and services involved. xAs part of the discharge planning, ensure support for the parenting role is included. xThe safety and welfare of the child should be kept under constant review, and consideration should be given to involving specialist childcare services. If the adult is admitted: xConsider how the impact on children can be minimised e.g. agree how contact can be maintained, what support and information the other carer and children need; who will explain the situation to the children and how. xDiscuss with Children and Families Social Services as early as possible when it has been identified that admission may be required. xEnsure written information on the children and arrangements for their care is passed to ward staff and there is ongoing communication between all professionals and services involved. xRefer to the Trust policy on children’s visiting to inpatient areas, if relevant. xAs part of discharge planning, ensure support for the parenting role is included. FOR ADULTS IN CRISIS Principles: •Children’s whose parents/carers have severe and/or on-going mental health needs/ substance misuse problems will usually be children in need in their own right. As part of the assessment Practitioners need to consider how the adult’s illness/problems impacts on their children or those children with whom they have regular contact. •By law, “the welfare of the child is paramount” – this means that children’s needs always override those of the adult and that the welfare principle enshrined in the Children Act 1989 takes precedence over the Mental Health Act 1983 in all events. Practice guidance for mental health/ substance misuse practitioner Safeguarding and Protecting Children Procedures Welfare of children whose parents/carers have mental health /substance misuse problems Safeguarding and Protecting Children Procedures APPENDIX 7 Chronology Of Significant Events A chronology lists in date order all the major changes and events in family, or a child or young person's life. It is seen as a trigger to enable a quick reference to the date and time in the records where a full entry of events is recorded. Using a Chronology A chronology can be a useful way of gaining an overview of events in a family that impacts on a child or a young person's life. The chronology should be used by practitioners as an analytical tool to help them to understand the impact, both immediate and cumulative, of events and changes in clients lives which affect the child or young person's developmental progress. The type of changes and events that should be included in a chronology would include; x Changes in the family composition, significant events and changes in the circumstances of the child and family x Change in address, GP.(School if client of school age) x Changes in the child or young person's legal status within the family. x Periods of hospitalisation or other significant medical treatment and any injuries (accidental or non-accidental), hospital and A&E attendances. x History of any offences; x Self harm, suicide attempts or overdose x Multi agency meetings attended/ case conferences etc. x Changes in the family, new births/deaths. x Post natal depression, clinical assessment and liaison with Health Visitor. x Non-compliance with health care/treatment/care plans. Missed appointments, DNA’s. x Domestic abuse/violence incident. x Social Incidents, homelessness, housing, financial problems. The Chronology records all significant events and changes in the life of a service user with parent/caring responsibility, a child or young person or those who pose a risk to children and young people. The Chronology is an analytical tool designed to help understand the impact, both immediate and cumulative, of events and changes affecting the child/ young person. . A Chronology can help structure information to inform analysis and decisionmaking. It should draw on various sources of information. Date of Issue: March 2009 48 DOB:___________________________ APPENDIX 8 Domestic violence incident reported by Lisa Core group meeting Child found wandering streets at 9.00 pm asking for food Lisa admitted to hospital with suspected drug overdose following a domestic violence incident 06/8/2002 08/8/2002 17/8/2002 21/08/2002 COMMENTS / ACTION SIGNATURE Date of Issue: March 2009 49 N.B. Definition of significant harm: “A compilation of significant events, both acute and long-standing, which interfere with a child’s on-going development, and interrupt, alter or impair physical or psychological development” or affect parenting capacity Safeguarding case conference 29/7/2002 Example of recording OCCURRENCE / EVENT Bruising noted on John’s face. Safeguarding Investigation initiated AGE 14/7/2002 DATE To include Accident and Emergency attendances, where known, injuries, accidents, self harm, known, GP contacts, complaints, missed appointments, inappropriate minding, changes of address / school / carer, safety issues. NAME OF CLIENT__________________________________ CHRONOLOGY OF SIGNIFICANT Safeguarding and Protecting Children Procedures Safeguarding and Protecting Children Procedures APPENDIX 9 Safeguarding Children within LCFT "Adult mental health services, including general adult and community, forensic, psychotherapy, alcohol and substance misuse have a responsibility in safeguarding children when they become aware of or identify a child at risk of harm”. Working Together to Safeguard Children 2006 All NHS Trusts and NHS Foundation Trusts must identify a named doctor and a named nurse/midwife for child protection with specific roles and responsibilities for safeguarding children and young people Within LCFT Named Nurse Child Protection role is undertaken by: Bridgett Welch Public Health Advisor Children and Families/Named Nurse Child Protection Tel: 01772 64579 Mobile: 07507847567 [email protected] Olivia Guly Consultant Psychiatrist Named Doctor Safeguarding Children [email protected] And Safeguarding Team Bridget Boyle Safeguarding practitioner Tel: 01772 645794 Mobile; 07500 020312 [email protected] Sharon McDonagh Administrator Tel:01772 645794 [email protected] Role and responsibilities include; x x x x x x x x x statutory role, taking a professional lead on all aspects of the Trust contribution to safeguarding children promote good professional practice within the Trust, and provide advice , support and supervision for staff provide expertise in local arrangements for safeguarding and promoting the welfare of children work closely with clinical governance to ensure safeguarding children is integral to the Trust governance arrangements , monitoring and audit of quality work closely with LCFT risk department and support staff in risk management issues pertinent to children and young people provide skilled professional involvement in child safeguarding processes, in line with LSCB procedures, and in serious case reviews. as part of serious case reviews ,review practice and learning ensure and provide safeguarding training and strategy is in place and is delivered . contribute, develop and implement policies and procedures If you have a concern regarding a child’s welfare don’t hesitate to contact the team Protecting & Safeguarding Children is Everyone’s Responsibility Date of Issue: March 2009 50 Tel: (01995) 607624 Mobile: 07801 398778 Email: [email protected] 51 Alice Marquis-Carr Named Nurse, Safeguarding and Vulnerable Children’s Team North Lancashire PCT, Garstang Clinic, Kepple Lane Garstang, Preston PR3 1PB Date of Issue: March 2009 Tel: Mobile: 07788 416457 Email: [email protected] Tel: (01253) 651265 Fax: (01253) 651258 Email: [email protected] Janet Edwards – Named Nurse CP Blackpool PCT Blackpool Stadium, Seasider’s Way Blackpool FYI 6JX Ms Anne Kopcke – Designated/Named Nurse North Lancashire PCT, Garstang Clinic Kepple Lane, Garstang,, Preston PR3 1PB Tel: (01253) 651262 Mobile: 0781 3108252 Fax: (01253) 651258 Email: [email protected] Tel: 01772641471 Fax: Email: [email protected] Tel: (01695) 598113 Fax: (01695) 598163 Email: [email protected] CONTACT DETAILS Dr Cathie Turner - Lead Nurse Safeguardiing and Vulnerable Children/Designated Nurse Blackpool PCT/North Lancashire PCT Blackpool Stadium Seasider’s WayBlackpool FYI 6JX Maria Coll Named Nurse for Safeguarding and Protecting Children (West Lancs ) Central Lancashire PCT, Ormskirk and District Hospital , Wigan Road Ormskirk L39 2AJ Liz Thompson, Named Nurse Central Lancashire PCT, The Willows, Peddar Lane, Preston NAME LANCASHIRE SENIOR NURSES SAFEGUARDING GROUP Safeguarding and Protecting Children Procedures APPENDIX 10 Tel: (01254) 263611 Mobile: Email: [email protected] Tel: (01772) 645790 Mobile: 07507847567 Email: [email protected] Kath Thomson Named Nurse Blackburn with Darwen PCT, Larkhill Health Centre Mount Pleasant, Blackburn BB1 5BJ Bridgett Welch -Named Nurse LCFT Sceptre Point, Sceptre Way, Walton Summit Walton Le Dale Preston Bridget Boyle ,Safeguarding practitioner. Sceptre Point, Sceptre Way, Walton Summit Walton Le Dale Preston Date of Issue: March 2009 52 Tel: (01772) 645794 Mobile: 07500 020312 Email: [email protected] Tel: (01254) 263611 Mobile: Email: Susan Crorken, Safeguarding Lead Nurse Blackburn with Darwen PCT, Larkhill Health Centre Mount Pleasant, Blackburn BB1 5BJ Turner Road, Nelson, BB9 7DR Tel: (01282) 699857 Mobile: 07976 878993 Email: [email protected] Tel: (01282) 699857 Mobile: 07976 878984 Email: [email protected] Tel: (01995) 607623 Mobile: 07795 445309 Email: [email protected] East Lancashire PCT, Suite 200 Biz Spaces Melanie Hartley Named Nurse Suite 200 Biz Spaces, Turner Road, Nelson, BB9 7DR Safeguarding Lead Nurse East Lancashire PCT Janette Abbotts Named Nurse, Safeguarding and Vulnerable Children’s Team North Lancashire PCT, Garstang Clinic, Kepple Lane Garstang,, Preston PR3 1PB Jane Carwardine Safeguarding and Protecting Children Procedures Bridgett Welch Public Health Advisor Children and Families/Named Nurse Child Protection Bridgett Welch Public Health Advisor Children and Families/Named Nurse Child Protection March 2009 Lead person March 2009 Timescale N/A N/A Costs Lancashire Care Trust Equality and Diversity Action Plan Service/ Dept/ Ward ………………Trustwide……………….. Date of Issue: March 2009 53 All completed actions to be fed back to the Equality and Diversity Lead to inform the relevant equality and diversity working group. To improve monitoring of BME groups within child protection referrals made by staff. Establish a data base. Raise awareness of EI for all relevant staff. To liaise with the Local Authority’s to establish a breakdown of children whose names are placed on the child protection register, by area, ethnicity, gender and sexual orientation. Action Appendix 11 Safeguarding and Protecting Children Procedures Update from meetings Safeguarding and Protecting Children Procedures Appendix 11 LANCASHIRE CARE TRUST INITIAL EQUALITY IMPACT ASSESSMENT Department/Function Trustwide Person responsible Public Health Advisor Children and Families/Named Nurse Child Protection Contact details 5 Fulwood Park Caxton Road Preston Tel 01772 645790 [email protected] Name of policy/procedure/service to be assessed SAFEGUARDING AND PROTECTING CHILDREN PROCEDURES CP001 Date of assessment 1/11/07 Is this a new or existing policy/procedure/service? Existing reviewed procedures 1. Briefly describe the aims, objectives and purpose of the policy/procedure/service? To ensure all staff have an awareness of their roles and responsibilities and provide clarity of referral processes to Social Services where there are concerns for a child and family in need of support or protection. The purpose of these procedures is to ensure a structured and systematic approach to child protection across the organisation. To provide a mechanism that will demonstrate compliance with the Children Acts 1989 and 2004 and national standards for safeguarding and protecting children. The Children Act 1989 and 2004 places a statutory duty on Health Professionals to help Social Services with their enquires so long as it is compatible with their own statutory duties or other duties and obligations. 2. Who is intended to benefit? These procedures apply to all children up to their 18th birthday, whether the children are service users of the Trust in their own right, or children cared for by service users who are receiving services from the Trust or children providing an active caring role. 3. What outcomes are wanted? The Trust has procedures in place to ensure the safety and protection of all children and Young People under the guiding principles within the Children Act 1989 , Statutory guidance on making arrangements to safeguard and promote the welfare of children under section 11 of the Children Act 2004.and Working Together to Safeguard Children 2006. Children, young people, parents/carers. Local Safeguarding children,s Boards. Childrens Social Care. 4. Who are the main stakeholders? Date of Issue: March 2009 54 5. Who is responsible for implementation? Safeguarding and Protecting Children Procedures Multi agency health partners , acute services, PCT’s and Commissioners Staff and the Organisation. All LCT staff Safeguarding Team Managers , policy holders and clinical leads. please explain and also include local demographics, monitoring of E and D (e.g. % of BME communities in East Lancashire – is this % reflected in recruitment and/or service use?) 6. Are there concerns that there could be differential impact on the following groups and what existing evidence do you have for this? People from a Black or minority ethnic background No negative equality impact identified the procedures are underpinned by Child Protection legislation and National Standards. N Women or men Including trans people People with disabilities or long term health conditions N Y Where English is not a child or families first language, the procedures refer to staff ensuring that they receive appropriate assistance and access to an interpreter.. Where staff are engaging with safeguarding and child protection procedures as laid out by Local Safeguarding Children’s Boards, the outline child protection plans agreed will address ethnic/ cultural / religious considerations – e.g. necessity for an interpreter, avoidance of appointments with family on significant religious festivals; issues arising from any disability; the plan should be constructed with the family in their preferred language and they should receive a written copy in this language. Equal consideration for intervention, protection and support will be given irrespective of gender The procedures do not make specific reference to children who appear to have a disability as they apply to all, however these children are among the most vulnerable in our society, this will be specifically included in future reviews . Specific reference is made to Child abuse linked to belief in ‘possession’ or ‘witchcraft’, or in other ways related to spiritual or religious belief which cannot be justified on religious or cultural grounds and the fact that is not confined to particular countries, cultures or religions, nor is it confined to new immigrant communities in the UK. Specific reference is made to children/ young people and Forced Marriage where young people are coerced into marrying against their will or their consent. Forced marriage is an abuse of human rights and a form of domestic and child abuse. As of autumn 2008 the Forced Marriage Act will come into force. All children are entitled to the provision and protection provided by the Children Act. The rights of all young people in relation to the development of healthy relationships and sexual health and well being are considered within Lancashire Sexual Health Policy For Children and Young People July 2007 .This provides a broad outline of the roles and responsibilities of everyone who works with young people in relation to the development of healthy relationships and sexual health and well being. It provides a framework for multi agency/partnership working. It is acknowledged that both male and female children and young people suffer as victims of abuse through sexual exploitation. People with or without a religion or beliefs N Lesbian, gay ,bisexual or heterosexual people N Older or younger people N These trust wide wide procedures are explicitly based on the Date of Issue: March 2009 55 Safeguarding and Protecting Children Procedures principle that children of all ages who are harmed or abused will have come from a variety of backgrounds, and in this respect, takes account of all ‘equality strands’ .The child/ young person’s circumstances and needs will be addressed with due regard to their gender, race, ability, culture, religion and sexual orientation. 7. Could any differential impact identified above be potentially adverse? Individual backgrounds , experiences and belief systems could possibly impact on behaviour . Clinical staff must have access to effective supervision systems. Y The legislation , protection and provisions under the Children Act 1989 and 2004 apply to all children and young people across the country. 8. Can any adverse impact be justified on the grounds of promoting equality of opportunity? 9. Have you consulted with those who are likely to be affected? N 10. Should the policy/procedure/service proceed to full impact assessment? N No N No. The procedures are in line with LSCB procedures and a mandatory requirement for the Trust. I understand the impact assessment of this policy/procedure/service is a statutory obligation and take responsibility for the completion of this process. Names of assessors……Bridgett Welch………………………… Signature of assessors …………………………………………………………… Date of assessment…………10/10/08 Date of next review…………………July 2010 ………………………………………………………………………………… Date of Issue: March 2009 56 Capabilities for inclusive practice In collaboration with 7889 Foreword The workforce is key to opening up life opportunities for people who experience social exclusion. In order to make inclusion a reality for people using mental health services, the National Social Inclusion Programme (NSIP) has worked with core mental health professionals to develop a set of capabilities, capturing best practice in order to drive the transformation of services and promote socially inclusive outcomes. In producing these capabilities, NSIP have worked closely with the National Institute for Mental Health in England (NIMHE) National Workforce Programme. This has provided the necessary engagement of staff organisations and enabled the work to link in a complementary way with the key workforce development initiatives already underway. Through this collaboration, there is a need to ensure that effective and positive change in the lives of those with whom services work is secured and sustained. These capabilities for socially inclusive practice are intended to be a resource for reflection, challenge and practice change. Their purpose is to enable the range of organisations and practitioners involved in mental health, whether as commissioners, providers or educators, to make the values of recovery and inclusion a reality. We hope this framework will support people, who use services, to realise their aspirations as contributors to their communities, advancing their choices, independence and participation. David Morris Programme Director for the National Social Inclusion Programme Roslyn Hope Programme Director for the National Workforce Programme 1 Capabilities for inclusive practice Contents Foreword 1 Executive Summary 3 Introduction 4 Using this framework 8 Social inclusion capability framework 2 ESC1 Working in partnership 12 ESC2 Respecting diversity 16 ESC3 Practicing ethically 19 ESC4 Challenging inequality 23 ESC5 Promoting recovery 27 ESC6 Identifying people’s needs and strengths 30 ESC7 Providing service user centred care 33 ESC8 Making a difference 36 ESC9 Promoting safety and positive risk taking 39 ESC10 Personal development and learning 41 References 44 Executive summary The National Social Inclusion Programme (NSIP) has coordinated the delivery of the action plan in the Social Exclusion Unit report Mental Health and Social Exclusion (2004). This report showed that many people with mental health problems experience exclusion and lack equal access to a range of opportunities in society, including paid employment, volunteering, housing and education. This is not only unjust but it lowers self esteem and self confidence. However, improving opportunities for people with mental health problems will enhance recovery, bring hope to people and their families, and ultimately reduce dependence as people are enabled to contribute, in multiple ways, to society and their community. A key action in making this happen is the development of a workforce capable of delivering inclusive opportunities to people using mental health services. Working closely with the National Workforce Programme, NSIP has adapted and developed The 10 Essential Shared Capabilities (ESC) which remains valid as a framework for socially inclusive practice. Consultation on the framework involved a representative from each of the core professional groups in the mental health workforce – nursing, occupational therapy, psychiatry, psychology and social work. A reference group including these professions discussed, reviewed and refined the work, supporting their evolution as a set of inclusion capabilities. The capabilities which include both organisational and individual dimensions, contain ideas for the ways in which they might enhance practice and add value to service development and delivery. To give the capabilities clear meaning and personal application to the people delivering services the organisational capabilities are mapped to the core and developmental standards of the Healthcare Commission as described in Standards for Better Health (2007), and the individual capabilities are mapped to the core dimensions of the Knowledge and Skills Framework (KSF) (2004). Progress in changing practice is best made when people have the opportunity to engage with issues and to contribute their ideas and energy to the formation of a local response. These capabilities can be used by Universities and training bodies, managers and supervisors, training leads, organisational leads, professional bodies, commissioners and practitioners as a resource in that process. 3 Capabilities for inclusive practice Introduction The Social Exclusion Unit (SEU) 2004 report Mental Health and Social Exclusion showed that many people with mental health problems experience exclusion. Frequently, they do not have equal access to a wide range of opportunities in society, including paid employment and volunteering, housing, lifelong learning, financial services, access to civil rights and social participation. This exclusion may be compounded by other issues, such as gender or race. However improving opportunities for people with mental health problems will enhance recovery, bring hope to relatives and ultimately reduce dependence on the State as people make a positive contribution to society, improve their social networks, pay taxes and make less use of hospital and community services. Since the SEU 2004 report was published the case for action has been strengthened by further policy statements, including Improving the life chances of disabled people (2005), the Disability Discrimination Act (2005) and the 2006 White Paper Our health, our care, our say. The SEU report included a 27-point action plan which is being coordinated by the National Social Inclusion Programme (NSIP), a cross government team that works nationally and regionally and has made significant progress. One of the action points focuses on the need to develop a workforce that is fully competent to deliver inclusive opportunities to people using mental health services. The First Annual Report (2005) of the NSIP summarises the situation as follows: “NSIP…has worked closely with the National Workforce Programme to ensure that the development of workforce initiatives are in line with the skills base requirements of social inclusion practice and management. This is focused on appropriate adaptation and development of the ‘Ten Essential Shared Capabilities’ as a framework for inclusion. …The work with professional networks will support its implementation across professional groups by linking it with a new initiative on inclusion capabilities.” Together with representation from the National Mental Health Workforce Programme, the professions; nursing, occupational therapy, psychiatry, psychology, and social work, which all play a substantial role in mental health services, have each identified a steering group member to work with NSIP on developing these capabilities. 4 Part of their contribution has been to provide a link into each profession’s college, group or network, including the Royal College of Nursing and the Mental Health Nurses Association, the College of Occupational Therapists, the Royal College of Psychiatrists, the British Psychological Society, the Social Care Institute for Excellence and the General Social Care Council. This reflects the importance of promoting inclusive practice in the current workforce, and to influence the training programmes for undergraduates, so that the future workforce values and practices within a socially inclusive framework too. Also key to this process is that the professional groups have been involved in the national work underway to progress New Ways of Working-for Everyone (Published by the National Workforce Programme in April 2007) to influence the direction of the workforce of the future. To develop the initial work each representative convened a reference group from interested and expert members of their profession. Through a process of consultation with these reference groups this initial work has evolved into a set of social inclusion capabilities with both an organisational and individual approach, with ideas of how they may enhance practice and add value to service development and delivery. Ten essential shared capabilities The publication of The 10 Essential Shared Capabilities (ESCs) in 2004 identified common ground across practitioners, service users and carers and brought coherence to the array of workforce initiatives in mental health. The ESCs have brought an emphasis on the importance of socially inclusive practice. Sharing a common set of capabilities creates a shared language and acknowledges the common set of purposes and practices that lie at the heart of all effective work in mental health. It facilitates dialogue about the level and mix of capabilities that compose each role but does not diminish the unique contribution of each profession, grade or individual; nor does it seek rigid uniformity. The term ‘capabilities’ is used in this document to refer to values, characteristics and skills. This is in line with other current initiatives that emphasise that work in mental health needs to be both evidence-based and value-driven, while organisational development is stimulated by well-articulated and coherent values that increasingly drive clearly defined and effective practices. 5 Capabilities for inclusive practice Introduction Distinctive skills for inclusive practice This best practice guidance document explores the distinctive skills that explicitly promote socially inclusive opportunities. In doing so, many of the values and skills described in the 10 ESCs are taken for granted. For example, all inclusion work with individuals rests on supporting empowerment, working respectfully with the person and responding positively to diversity and should be present in all services, whether or not they are designed to promote social inclusion. Similarly, there will be a number of features shared by all organisations that support inclusive opportunities: they will be healthy workplaces that continuously strive for excellence; they will harness individual creativity, maintain honest communication and so on. However, these things on their own will not guarantee an inclusive outcome, as additional skills are needed for that. In focusing on inclusion, this guidance lists the distinctive, additional elements that are required, rather than the core skills that one would expect to find in all mental health services, whether they were aiming to promote inclusion or not. Limitations Inclusion work is subject to the following limiting factors: 6 1 The extent to which all staff exercise the Capabilities of an Inclusive Practitioner and utilise opportunities to promote and deliver socially inclusive practice. If staff (whatever their profession or non-professional affiliation, grade or role) adopt inclusive values and practices, then people using services will have more opportunities. Practicing inclusively is everyone’s job and some staff may have a particularly strong focus on particular inclusive goals. 2 The extent to which the mental health service as a whole demonstrates the Capabilities of an Inclusive Organisation. If the service is outwardly focused and builds links with community organisations beyond the welfare system, then individual effort to promote inclusion will flourish. Similarly, if the mental health service values inclusive efforts in its performance management system, then again individual effort will prosper. While a healthy organisation might support inclusive opportunities, an unhealthy organisation can never do so over the long term. 3 The extent to which the wider community adopts inclusive values. This will vary from one organisation or group to another and be influenced by the resources, history and culture of that community as well as by its relationship with the local mental health service, and should take account of other excluded communities and groups, such as refugees and travellers. This guidance focuses upon what mental health services can do, although much of what they can do will be done in collaboration with community partners and some responsibility for the success of inclusive endeavours will remain within the community itself. A critical element will be socially inclusive practices that promote and help to establish community cohesion. 4 It is important to recognise that some practitioners may also experience exclusion, and so organisations need to have clear systems in place to identify and address workforce inequalities. Everyone’s job The following framework shows quotations from The 10 Essential Shared Capabilities that are particularly relevant to social inclusion followed by the Capabilities of an Inclusive Organisation and the Capabilities of an Inclusive Practitioner. Every staff member will have duties in relation to the Capabilities of an Inclusive Organisation as everyone is a contributor to the organisational culture and goals. Most staff will have direct or indirect duties in relation to the Capabilities of an Inclusive Practitioner, for example, through working directly with users and carers, or supervising staff, or making organisational arrangements to support delivery. Those who have greater seniority will increase the proportion of organisational responsibility in their job role. To try and give meaning to this work in relation to the actual delivery of services the individual capabilities are mapped to the core KSF dimensions, and the Healthcare Commissions core and developmental standards described in Standards for Better Health. This guidance describes a framework for mental health service communities to work towards adopting. It is aimed at all professional and non-aligned staff working across the full age range – children, adults and older people, and so reinforces the principle that the capabilities are for the whole of the mental health workforce. It is hoped that everyone within and beyond mental health services will rise to the challenge. One of the most significant challenges for individuals is how they continue to develop their own emotional intelligence and resilience when encountering a range of complex situations and relationship dynamics that occur in dealing with people who have mental health issues, for example working with those who have been subject to violence and abuse. This is combined with working across organisational boundaries and systems in a variety of different situations. 7 Capabilities for inclusive practice Using this framework Each of the capabilities describes a dimension that could be marked with a scale to show specific levels of achievement. Together these dimensions and performance standards can form an audit framework to assist in the assessment of local capability and also help to inform commissioning and the developing of future capacity within community infrastructures. This could help those responsible for staff to undertake a comprehensive training needs analysis, which in turn can provide substantive information for staff training programmes. By enhancing staff capabilities, it is important that the organisation as part of its overall organisational development programme can develop and maintain the capabilities of an inclusive service. This framework describes the capabilities and suggests where and how they might be used. At present, local arrangements for inclusion support vary from site to site. For example, a service user might obtain employment support from the local Jobcentre Plus, a supported employment service, an employment specialist based in primary care or the mental health trust, or a member of the Community Team with a lead role in employment support. Managers will need to make a judgement about who does what based on the local population profile and the landscape of provision, expertise, interests and workload. The Creating Capable Teams Approach (CCTA) published by the NIMHE National Workforce Programme in April 2007 can support this process. The particular role and activities of an individual worker should be shaped by a number of factors, including: > Their professional training, personal skills and experience. > Guidance from their professional body about the match of seniority and responsibility in relation to inclusion activities. > Aligning their personal values and ability to act ethically and with integrity. > Managing their own emotions (including emotional resilience) and developing their social and emotional intelligence. This can provide the basis for a framework for practice. For coherent and comprehensive change, socially inclusive practices should be part of the contracting and commissioning arrangements at an individual, team and organisation level. These should be considered in light of the local arrangements between mental health and community organisations, between functional teams within the mental health service, and between individual staff. 8 The framework has been assembled for professional and organisational groups to use as a range of options for local selection and approval. People who use services need an opportunity to contribute their insights. The voluntary and community sector will have much to contribute alongside their colleagues in statutory services. Many of the organisational and individual capabilities described in this framework are relevant to other groups at risk of exclusion, such as people with learning or physical disabilities, older people, families at risk and black and minority ethnic groups. Staff involved in these services or in cross-cutting reviews may wish to utilise this work too. Integrating inclusion capabilities into practice The best progress is made when people have an opportunity to engage with issues and contribute ideas and energy to the formation of a local response. Communicating the message of this document may be enhanced by the use of creative media. This might include video accounts from service users. The message needs to be in a variety of formats, to communicate to people who have different learning styles. Case study examples illustrating how organisations and individuals have taken the suggested actions (shown below) forward will help to bring the message to life. These capabilities can be used (alongside other resources) by: Universities/training bodies 1 Design and/or amend undergraduate and post-graduate training syllabus. 2 Accredit training programmes. 3 Select suitable students, lecturers and practice placements. 4 Train and accredit lecturers and practice supervisors. 5 Use a variety of media (lectures, posters, video) to inform service users and staff. Professional and operational managers/supervisors 1 Train supervisory staff. 2 Design job roles, task and job descriptions and select staff. 3 Contribute to assigning worker time and reviewing caseload management. 4 Supervise and appraise staff, and review supervision and appraisal frameworks. 5 Form staff personal development plans. 6 Create and audit Care Plans (e.g. whether plans include inclusion goals). 9 Capabilities for inclusive practice Using this framework Training and development leads 1 Audit Continuing Professional Development (CPD) records and staff exit interview records. 2 In conjunction with the CCTA, undertake a skills audit, gap analysis and in-service training and teambuilding programme for individuals and staff teams. 3 Define support competence levels for each team, role and grade of staff (perhaps through the Knowledge and Skills Framework). Organisational development leads 1 Promote inclusive values and practices (e.g. through the public adoption of these capabilities by key staff within the service). 2 Identify and sponsor committed leadership for social inclusion at the frontline and in senior roles. 3 Recognise, endorse and celebrate good practice at a national and local level. 4 Undertake an audit of values, beliefs and priorities that shape organisational cultures. Board level leaders 1 Review governance frameworks. 2 Revise the organisation mission and statement of purpose. 3 Build a shared vision for the future of the organisation and its community. 4 Survey current practice and innovation in other partner and potential partner organisations. Professional bodies 1 Adopt these capabilities as applicable to the whole of the mental health workforce. 10 2 Show how their code of ethics and professional practice links with the inclusion capabilities. 3 Set the research and practice development agenda. 4 Promote and disseminate best practice through professional networks, conferences and publications. 5 Advise on how expectations and levels of responsibility should vary with the grade, seniority, experience and work setting of the member. 6 Revise the guidance on CPD issued to members. Commissioners 1 Specify what local services are commissioned (to include both inclusion capabilities and inclusion outcomes). 2 Support service users to design user satisfaction feedback systems. 3 Enable service users and carers to be a part of local commissioning processes. Practitioners 1 Ensure socially inclusive interventions are built into personal and team objectives. 2 Highlight good and emerging practice both within and beyond the team, service and organisation. 3 Challenge practice which is not inclusive. 4 Contribute to developing a shared vision of local community, through engaging with important individuals and organisations. 11 Capabilities for inclusive practice Social inclusion capability framework ESC1 Working in partnership ’Develop and maintain constructive working relationships with lay people and wider community networks.’ We take ‘community networks’ to include informal friendship networks and formal community organisations that provide access to valued roles in the community – Job Centre Plus, colleges, community associations and the voluntary sector etc. This includes but reaches beyond mental health services and other helping agencies. The terms ‘networks’, ‘organisations’ and ‘agencies’ are used interchangeably. Standards for better care Clinical and cost effectiveness, C6, D5b Accessible and responsive care, C17, C18, D11c Public health, C22a, D13d 12 Capabilities of an inclusive organisation/service > Compared with traditional services, staff resources are invested and more time is dedicated to building relationships with people in community organisations. This activity is valued and monitored. > Assign staff (such as employment specialists and others) to locate, understand and maintain positive relationships with key contacts in under-represented groups and all the major agencies offering access to valued roles in the community. This includes agencies leading economic and community regeneration. > Seek opportunities for service users to contribute advice and guidance to the management of community organisations (e.g. service users on the Student Forum at the College). > Maximise funding and resource opportunities in partnership with universal community agencies to pool budgets, jointly fund projects and create partnership projects that promote inclusive opportunities. > Build alliances with people involved in community engagement and regeneration. > Ensure that relevant governance systems are in place and used (e.g. equality schemes). > Recognise and reward practitioners who consistently work in a socially inclusive way. Capabilities of an inclusive practitioner > Work actively to build, maintain and sustain partnerships with other community agencies so as to foster understanding, access resources and create a wide spectrum of opportunities for people with mental health problems. This work is recognised and valued by the mental health organisation. > Identify and challenge discriminatory attitudes and practices towards people with mental health issues. Promote awareness of and uphold service users’ rights to access all organisations. > Support community organisations to develop new responses as needed (partly through linking with Community Development Workers) so that citizens with mental health problems have fair access and effective support. > Understand the impact upon service users of the value systems, policies, performance indicators and procedures within community organisations. > Work in partnership with people who experience mental health problems to deliver mental health and inclusion training to community organisations (perhaps with mental health promotion colleagues). Agree appropriate training messages and learning outcomes with the organisation. Tailor training to the specific audience and compensate for any limitations that accompany the choice of medium, teaching style and key messages. > In consultation with service users, commissioners, providers and other key stakeholders establish outcome based measures to establish the local impact of interventions/activities. 13 Capabilities for inclusive practice ESC1 Working in partnership Links to the core KSF dimensions 1 Communication Effective communication is a two way process. It involves identifying what others are communicating (e.g. through listening) as well as communicating clearly oneself in order to develop mutually beneficial partnerships. A common language which is jargon free reference mental health issues will need to be agreed and used in order to limit the barriers to effective communication. Communication should be in a form and manner which encourages the active participation of all involved. 2 Personal and people development Individuals will need to identify and acknowledge gaps in their knowledge of potential community networks and determine how these gaps will be filled. Practitioners will need to be clear about the concept of ‘health promotion’ and how this can be incorporated into practice, encouraging others to do the same. Supporting and developing the mental health knowledge of those colleagues working in community services will be essential if working relationships are to be built on a foundation of mutual understanding. Practitioners are ideally placed to encourage, engage and support service users and carers in delivering mental health and inclusion training. They must develop a range of training/teaching techniques if they are to contribute to the training of a wide range of partnership organisations. 3 14 Health, safety and security Support and advice can be offered to community partners enabling individuals and services to learn healthier, safer and more secure ways of working with this client group. Offering information and advice on how to reduce risk will encourage greater confidence across partnership networks, thus encouraging fairer access and effective support. 4 Service improvement Everybody has a role in supporting the implementation of new ways of working and implementing policies as well as improving services. Developing and sustaining partnerships will foster a culture of mutual support and development ensuring resources for service improvement are used creatively and the spectrum of opportunities maximised. 5 Quality Effective team working is an important aspect of maintaining high quality practice. As a member of the ‘community network team’, this relies on, amongst other things, individuals presenting a positive impression of their service, recognising, respecting and promoting the different roles and diversity of services and raising quality issues with partners. 6 Equality and diversity It is the responsibility of every individual to act in ways that support equality and diversity. An inclusive practitioner also needs to develop an increasing understanding of the nature and complexity of equality and diversity in order that they can become more proactive and challenging in the promotion of equality and diversity. 15 Capabilities for inclusive practice ESC2 Respecting diversity ’Work in ways that respect and value diversity including age, race, culture, disability, gender, spirituality and sexuality.’ ‘Understand the impact of discrimination and prejudice on mental health and mental health services.’ ‘Provide care and treatment that recognises the importance of housing, employment, occupational opportunities, advocacy, social networks and welfare benefits.’ Standards for better care Clinical and cost effectiveness, C6, D2b Governance, C7e, D5 Patient focus, C13, D8, D9a/b Accessible and responsive care, C17, C18, D11b Capabilities of an inclusive organisation/service > Alongside colleagues in public health, identify under-served groups in the community and successfully compensate with outreach so that the whole community has equal access to mental health service information, opportunities, goods, services, and employment. > In addition to on-site activities, deliver surgeries, support and supervision sessions in other helping agencies (such as GP surgeries) and in valued community venues, especially in settings that reach under-served groups (such as youth centres). > Provide support for user-led services and community groups, including accommodation, adequate funding, advice and supportive relationships. > Promote socially inclusive practices within the community and maximise funding/resource opportunities to develop and maintain community cohesion. > People from all backgrounds have opportunities to develop socially inclusive practices. > Racism is unacceptable and a sense of belonging and contributing is promoted. > There is a common and shared understanding of the value that difference has to creating a strong and socially inclusive society. Care environment and amenities, D12a Public health, C22a/c, D13b/c 16 Capabilities of an inclusive practitioner > Undertake specific searches for community resources which are targeted at minority and under-served groups (search for resources that target minority and under-served groups, whether or not they have a mental health difficulty). > Respond sensitively to the cultural norms of community organisations. This includes those that serve specific communities and the ways in which; for example, the workplace or sports culture differs from a care setting. > Actively work to link and align activities of other agencies that may be active in supporting social inclusion and focus attention on community cohesion. > Have a strong social awareness of the diversity of customs and practices and values in different social communities and across rural and urban environments. > Develops strong and positive relationships with people from different backgrounds both in the workplace and in the communities in which they serve. > Continuously work to develop their emotional and social intelligence. Links to the core KSF dimensions 1 Communication Non verbal communication i.e. the way we appear and how we conduct ourselves is as important as the content and delivery of what we say. Sensitivity and an appreciation of the cultural norms of community resources and organisations must be demonstrated by communicating with people in a form and manner that is consistent with their level of understanding, culture, background and preferred ways of communicating. 2 Psychology In Nottinghamshire Healthcare NHS Trust, Bob Diamond has been using his expertise in Community Psychology to arrange training on social inclusion and support the development of Community Mental Health Teams through monthly group supervision. These discussions utilise written summary information on themes such as recovery, inclusion and the Essential Shared Capabilities to prompt reflection on case studies brought by group members. For example, a recent discussion explored how a Care Coordinator might work with a service user who consistently rejected all attempts to be ‘included’ in mainstream settings, preferring instead to maintain his identity as a mental health service user and his social network formed within the service. Contact: Bob.diamond @nottshc.nhs.uk (continued overleaf) Personal and people development Practitioners must dedicate time to seeking out and becoming informed of resources which can support individuals and their uniqueness. Practitioners must dedicate time to gaining a greater breadth of knowledge of the cultural norms of specific local communities. 17 Capabilities for inclusive practice ESC2 Respecting diversity Psychology (continued) 3 Health, safety and security A knowledge and appreciation of the cultural norms of specific local communities will reduce the risk of offending or misreading situations, thus reducing the likelihood of antagonism or incident. 4 Service improvement Applying, understanding and learning of diversity issues by adapting ones own practice, and making constructive suggestions as to how services can be changed to better respect diversity, will inevitably lead to service improvement. 5 Quality Contributing to a system which encourages participation by all and relies on individuals assuming responsibility for delivering high quality in all areas of practice. This focus on workforce development illustrates a number of inclusion capabilities: ESC2 staff considered the impact of discrimination and prejudice upon one person using services. ESC3 recognise the rights and aspirations of service users. ESC4 promote support between people who use services. ESC7 care plans are unique. Individuals representing their service and the user population they serve must remain mindful of presenting a positive impression, showing respect and sensitivity for the cultural norms and practices of community organisations. ESC10 participate in professional development and reflective practice. 6 18 Equality and diversity Recognising and valuing difference relies on individual practitioners creating and contributing to a working culture and practices that recognise, respect, value and harness difference. ESC3 Practicing ethically ’Recognise the rights and aspirations of service users and their families, acknowledging power differentials and minimising them whenever possible.’ ‘Demonstrate an understanding of the service user’s wider social networks and the contribution made by carers, family and friends to the recovery process.’ Capabilities of an inclusive organisation/service > Arrange services so that getting help is offered in a manner that nurtures (rather than disrupts) personal roles and relationships beyond the service system. This includes, but goes far beyond, inviting service users to book their own appointment and review times. This will create an environment where inclusive practitioners will be able to ‘understand the importance of informal relationships’. > Use sensitive knowledge and information with integrity. > Recognise there are both rational and emotional elements within relationships formed with partners and stakeholders. > Design services so that packages of care can be personalised to each service user, rather than offering a limited repertoire of standardised options. This includes the promotion of direct payments and individual budgets. > Ensure that mental health services have access to expertise (such as employment support specialists and others), but that inclusion is recognised as part of everyone’s job, rather than being left to inclusion specialists. > The vision and mission statements of the mental health service show that inclusion is a core value. > Reconciles the organisations purpose with the needs of the community and the people it serves. Standards for better care Clinical and cost effectiveness, C5c, C6, D2a/b/c Governance, C7e, D5a/b Patient focus, D9a/b Accessible and responsive care, C17, D11b Care environment and amenities, D12b 19 Capabilities for inclusive practice ESC3 Practicing ethically > Has systems and processes in place which ensure that the behaviour of the organisation is open to scrutiny and that its people act with probity and proper consideration for the environment in which they deliver services. > Complies with emerging good/positive social inclusive practices. Capabilities of an inclusive practitioner > Understand the importance of informal relationships, strengths and aspirations in the service user’s recovery process and show this in assessment and planning processes, such as through the Care Programme Approach. 20 > Provide information, opportunities to visit and try out participation in a variety of community settings, along with personalised support, so that people with mental health problems can make informed choices about their own community participation within a wider approach to empowerment. > Balance accountability to the service user, employing agency, wider community and professional body so that service user’s rights and wishes are respected. This may mean that staff are more accountable to service users than was the case in the past. It also means acknowledging and working constructively with the inherent tensions of exercising legal powers and duties in a way that helps the person make their own choices and retain control of their own lives as far as possible. > Manages the boundaries between formal and informal roles. This includes the ability to: relate to service users in a public place; support service users to develop connections with other citizens; provide support to community organisations; and enable service users to appropriately move beyond the service and its risk assessments and confidentiality protocols. This is likely to be more complex than was the case when buildings, uniforms and user-only groups assisted boundary-keeping. > Is self aware of own limitations in terms of knowledge skills and experience. > Is self regulatory when dealing with difficult situations and dysfunctional relationships. > Recognises when their own values are in conflict with those of other people and has insight into how this may impact on their practice. > Is emotionally resilient when dealing with relationship issues. > Their actions and behaviour are transparent and they are clear about their intentions and how to respond appropriately. > Has highly developed personal insight into how their values are reflected in the way in which they conduct themselves with others. Links to the core KSF dimensions 1 Communication ‘Listening’ and truly ‘hearing’ the voice of the individual will better inform the direction of care. Practitioners need to effectively manage the barriers to effective communication which might be environmental (e.g. noise, lack of privacy), personal (e.g. the health and wellbeing of the people involved) or social (e.g. conflict, violent and abusive situations, ability to read and write in a particular language or style) in order that the service user is fully supported on their journey of recovery. Clarity and confidence in articulating one’s own role and managing boundaries will be essential if practitioners are to effectively advocate on behalf of individuals and are to contribute to decision making, balancing a number of different interests and complexities. 2 Personal and people development An increased knowledge and skills base which promotes and enables working within a recovery framework will be essential for all practitioners. 21 Capabilities for inclusive practice ESC3 Practicing ethically 3 Health, safety and security Whilst is it essential for practitioners to monitor and maintain the health, safety and security of others, working within a recovery framework promotes positive risk taking and skills in supporting others to manage risks more effectively, within healthy and safe practices, will be crucial. Individual practitioners will need to feel competent and confident in utilising robust risk assessments and risk management plans if individuals are to be encouraged to retain greater control over their lives. 4 Service improvement Practitioners have an individual and collective responsibility to modernise service delivery. Inspiring and working collectively with others will enable strategy and direction to be taken forward into service improvements. 5 Quality Individuals will need to ensure they are clear about their role in relation to the individual and in relation to others involved in the individual’s care, including those within the individual’s wider social network. 6 Equality and diversity Equality is about creating a fairer society where everyone can participate and has the opportunity to fulfill their potential. Individual practitioners must consider their own behaviour and its effect on others. 22 ESC4 Challenging inequality ’Recognise and understand the devastating effect that social inequality and exclusion can have on the recovery process that makes it difficult for service users to achieve their potential or take their rightful place in society.’ ‘Challenge and address the causes and effects of stigma, discrimination, inequality and exclusion upon service users, carers and mental health services.’ ‘Create, develop and maintain valued social roles for people in the communities they come from.’ Capabilities of an inclusive organisation/service > Recognise the processes and explanations within services that may disempower and harm users and compensate with empowering approaches. Service users gain a sense of power and agency, including the opportunity to influence the mental health organisation (by sitting on Local Implementation Teams and other planning groups). > Develop services that assist people to stay at home rather that go to hospital, stay in their neighbourhoods rather than move out of the area and receive services on a voluntary rather than a compulsory basis. Where people are already in hospital, out of area or detained, make strenuous efforts to maximise independence. > Commissioners select services that challenge or redress inequality. > Staff and service users who challenge injustice, inequality and discrimination are effectively supported to deal with the pain that this can engender. > Promote support between people who use services so that there are opportunities for peer education, mutual self-help and joint political action (perhaps through an advocacy group that is funded to work within and beyond the mental health service). Standards for better care Clinical and cost effectiveness, D2a/b/c Governance, C7e, C8a, D5b, C13a, D10 Accessible and responsible care, C17, C18, D11b/c Care environment and amenities, D12a Public health, C22a, D13a/d 23 Capabilities for inclusive practice ESC4 Challenging inequality > Create structures that support user involvement in decisionmaking, user-run services, and user directed care (such as individualised funding). > Promote the maintenance and further development of positive roles and relationships between people who use services and other citizens based on shared interests. > Ensures that people are treated with dignity and respect and all actions and interventions are agreed and transacted accordingly. > Seeks opportunities to strengthen the links within different community and social settings. > Promotes participation based on person centred approaches. Capabilities of an inclusive practitioner > Demonstrate an understanding of people with mental health problems, particularly as this relates to access to community inclusion. This includes recognition of the feelings of distress and shame that can be caused by discrimination and how negative reputations can develop and be sustained, and how they can be dismantled. 24 > Recognise the processes of ignorance, fear, abuse of power, stigmatisation and institutional discrimination within communities that lead to the exclusion of people with mental health issues. > Understand and use knowledge of legal rights and obligations to challenge injustice and discrimination and support individuals, families and the community. > Support service users to obtain and retain an included life on their own terms (as evidenced in care and support plans). This includes identifying ways in which community facilities might accommodate the individual by adjusting expectations, increasing feedback and support, and changing physical aspects or procedures in the community setting. It also includes the need to identify strategies for the individual to maintain or regain roles and relationships through the development of specific skills, disclosing personal information and arranging support from a variety of sources. > > Recognises and understands other people’s rational and emotional behaviour and seeks to understand their intentions in order to respond appropriately. Manages self and supports other to deal effectively with emotional behaviour especially when dealing with people who are frightened, angry, stressed or confused. Links to the core KSF dimensions 1 Communication Individual practitioners have a responsibility to advocate in a range of ways on behalf of the service users they work with. The individual practitioner will be required to constructively manage barriers to effective communication to ensure clarity and understanding of the individual’s needs and desires. Confidence and competence in independent decision making, as an autonomous practitioner, within a multidisciplinary and multi-skilled team will be essential, as will the ability to articulate decisions. Individual practitioners will need to develop the confidence and skills for sharing decision making with others, including users of services and their families. They will need confidence and competence in order to advocate on behalf of the individual when they have experienced stigmatisation, discrimination and exclusion. 2 Nursing In Leicestershire, nursing staff at the Glenvale acute day hospital offer short term and intensive intervention to people in crisis as an alternative to hospital admission. Each staff member holds responsibility for one of the following areas of community participation: employment, education, volunteering, arts, sports and faith communities. This ensures that initial assessments include these areas of life, promote retention of these roles whilst the person deals with the crisis, and improves links between the day hospital and mainstream community organisations. Contact: Martin.wyburn @leicspart.nhs.uk (continued overleaf) Personal and people development As well as clinical skills, practitioners will need to acquaint themselves with the principles which underpin the delivery of qualitative mental health services such as recovery and social inclusion. In developing this knowledge, they will also need to truly appreciate the experiences of inequality which systems can often inadvertently create and maintain. It is the service user’s own experience which will provide the most insightful learning opportunity for the practitioner. 25 Capabilities for inclusive practice ESC4 Challenging inequality Nursing (continued) 3 Redesigning roles in this way will give rise to a number of inclusion capabilities: ESC1 assign staff to locate, understand and maintain positive relationships with key contacts in agencies offering access to valued roles in the community. Whilst sharing information with community colleagues may assist them in better accommodating an individual, practitioners must remain mindful of policies and procedures regarding confidentiality. ESC4 support service users to obtain and retain an included life on the own terms. 4 Service improvement The individual practitioner must assume personal responsibility for improving service delivery, supporting others effectively, as current practice is challenged and changed, and should also proactively work with others to overcome problems and tensions which might arise. 5 Quality Practitioners will need to be sufficiently skilled in order to manage or challenge quality issues which have resulted in the service user experiencing stigmatisation, discrimination or exclusion. 6 Equality and diversity Practitioners will need to work closely with other community services, sharing information and knowledge regarding mental health issues which will help them adapt and improve their work practices and which will ensure greater provision of socially inclusive and accessible services to those who experience mental health difficulties. ESC5 provide information about a wide range of opportunities in the community. ESC6 carry out interventions in a way that equips the person to define and reach towards their life ambitions in the community of their choice. ESC7 support service users to participate in mainstream community settings. ESC8 job roles clearly include promoting social inclusion. 26 Health, safety and security Whilst practitioners should actively challenge procedures and protocols, both within their own workplace and in other services, which can result in the individual experiencing inequality, it would be negligent not to appreciate, respect and follow those procedures and policies which have to be in place to ensure healthy, safe and secure working practices. ESC5 Promoting recovery ‘Recovery is what people experience themselves as they become empowered to achieve a meaningful life and a positive sense of belonging in the community.’ ‘Work in partnership to provide care and treatment that enables service users and carers to tackle mental health problems with hope and optimism and to work towards a valued lifestyle within and beyond the limits of any mental health problem.’ ‘Ensure that all efforts are made to present non-stigmatising and positive views of people who experience mental health problems.’ ‘Facilitate access to community groups and networks that enable the service user to participate in community activities.’ Capabilities of an inclusive organisation/service > Service users are employed in the service (perhaps with rates monitored through the Human Resources and Occupational Health services), sit on management teams and monitor quality (with local arrangements specified in quality assurance and governance frameworks). > Support the development of a mentally healthy community. Commission an appropriate level of mental health promotion activity. This will expand the range of respectful and relevant opportunities available to service users and inclusive practitioners. > Ensure compilation and access to an up-to-date database of community-based opportunities. > Create and maintain a culture of hope (evidenced through cultural audits of the service, perhaps within Investors in People or mechanisms for monitoring service user opinion). > Design mental health buildings and processes in a way that reflects service users as citizens (e.g. by the provision of private space on inpatient wards where the person can spend time with their family). Standards for better care Client and cost effectiveness, C6, D2b/c Governance, D5a/b, D7 Patient focus, C13a, D8, D9a/b, D10 Accessible and responsive care, C17, D11b Care environment and amenities, C21, D12a/b Public health, C22c 27 Capabilities for inclusive practice ESC5 Promoting recovery > Commissioners select services that are person centred and promote recovery through socially inclusive practices. > Services are designed to produce impact measures (e.g. through the recovery pathway and evidence socially inclusive practices). This aims to build a body of evidence to inform future service developments. Capabilities of an inclusive practitioner > Support service users to clarify their aspirations, celebrate their successes, find strength in their resilience in the face of adversity, tackle their mental health problems and plan their recovery journeys (as revealed in assessment and care planning documentation). 28 > Demonstrate emotional resilience when coping with your own sensitivities and emotions during times of stress, uncertainty or change. > Exercise a hopeful and optimistic approach toward both service users (recovery and social inclusion is within the reach of everyone) and communities (discrimination can be overcome, opportunities for participation can be found or created, other citizens can offer a respectful welcome). > Demonstrate knowledge of a wide range of opportunities in the community. > Provide information about current opportunities for community participation to service users in an attractive and accessible manner. > Understand and use a range of approaches to matching individuals with community opportunities and adapt as the ‘degree of fit’ changes over time. > Promote opportunities for service users to create and develop friendships with other citizens. Identify factors that enhance ‘friendship-friendly’ organisations. > View service users’ lives as bigger than the services that they receive. Deliver support in a way that promotes the service user’s citizenship and community participation, and enhances independence from formal services in as many life areas as possible. Links to the core KSF dimensions 1 Communication Greater consideration of the content of communications should be given in order that hope and optimism are conveyed within the parameters of the reality of the situation. 2 Personal and people development Practitioners who are accomplished in working within a recovery framework should support and facilitate colleagues in order that a ‘recovery’ culture develops and flourishes. 3 Health, safety and security As practitioners increasingly work ‘off-site’ as they seek to support the integration of the service user within their community, they will need to ensure they understand the need for and conform to policies, procedures and guidelines which are designed to promote and protect their health, safety and security such as ‘Lone Working Policies’, ‘Community Visiting Policies’, and ‘Security of Premises’ procedures. 4 Service improvement Acquiring a broad knowledge base of the range of opportunities available in the community promotes choice and empowerment for the service users. It is also the responsibility of the practitioner to avail themselves to colleagues, sharing information in order that all service users accessing the service are fully appraised of available opportunities and are not limited to an individual’s knowledge of local resources. 5 Quality If the service user is to feel empowered and a qualitative experience realised, individual practitioners will need to fully engage with a service user on their journey of recovery, appreciating the individual’s strengths and aspirations and will need to create/facilitate opportunities which promote choice. 6 Equality and diversity Treating others with respect and dignity relies upon acknowledgment of differing perspectives. Individual practitioners will need to develop skills which focus on an individual’s ability rather than disability, to consider creative opportunities rather than limited availabilities. 29 Capabilities for inclusive practice ESC6 Identifying people’s needs and strengths ‘Work in partnership with the individual’s support network to collect information to assist understanding of the person and their strengths and needs.’ ‘Agree health and social care needs in the context of the preferred lifestyle and aspirations of service users, their families, carers and friends.’ ‘Carry out or contribute to a systematic, whole systems assessment that has, as its focus, the strengths and needs of the service user and the family and friends who support them.’ ‘Work in a way that acknowledges the personal, social, cultural and spiritual strengths and needs of the individual.’ Standards for better health Clinical and cost effectiveness, C6, D2b/c Governance, C7e, D9a/b, D10 Patient focus, C13, D9a/b, D10 Capabilities of an inclusive organisation/service > Documentation and practice in initial assessments, eligibility decisions and reviews of intervention pays attention to people’s life ambitions and current assets. This includes a focus on job retention and retention of other roles and relationships, especially in early intervention, crisis resolution and inpatient services. Accessible and responsive care, C17, C18, D11b/c > Family, friends and other acquaintances contribute to initial and repeat assessments. Care environment and amenities, D12a > Value and harness the contribution of service users to community life: as employees, volunteers, buddies, mentors, friends and informal acquaintances. In some areas these options will need to be promoted through the development of specific projects. > The local suicide prevention strategy takes full account of the social inclusion agenda. > Ensure primary healthcare needs and mental health needs are addressed simultaneously with supporting the preferred lifestyle and aspirations of the service user. Public health, C22a/b, C23, D13a/b/c 30 Capabilities of an inclusive practitioner > Recognise that people are more complex than our assessments show. Recognise the multiple levels of exclusion and inclusion that might be explored (e.g. a service user has good access to mental health services, but is in conflict with neighbours. He has a part-time job and talks to his old school friend about his feelings that his Jewish faith isolates him from his work colleagues). > Gather information about the service user’s gifts, talents and strengths. > Use initial and repeat assessments that have been developed with the service user and other people in their life to discover the extent of inclusion that a person currently experiences, possible interests and skills to guide inclusion planning, and to identify blockages to inclusion. Carry out interventions in a way that equips the person to make their own choices, manage their own recovery, define and reach towards their own life ambitions in relationship with others and the communities of their choice. Provide just enough support. Social work Amanda Hesford is Head of Social Work at Devon Partnership Trust and is planning a Board-level review of the balance of work of the whole mental health service. This will encompass the mission of the service, its culture, investment, workforce skills and development, partnership with community organisations and experiences of people using the service. Contact: Amanda.Hesford @devonptnrs.nhs.uk (continued overleaf) Links to the core KSF dimensions 1 Communication The development of basic counselling skills will be essential to improve effectiveness. Listening and questioning skills as well as non verbal skills and body language will be essential if the individual worker is to elicit a fuller picture of the service user’s life, the context in which they exist, their strengths and aspirations. Practitioners must work hard to develop and use language which instills hope and optimism. 2 Personal and people development Assuming greater responsibility for personal development will include a more reflective approach and ongoing self evaluation. Practitioners will need to develop a comprehensive understanding (acquiring knowledge and skills) in order that they can undertake assessments and deliver interventions within a recovery and social inclusion framework. 31 Capabilities for inclusive practice ESC6 Identifying people’s needs and strengths Social work (continued) 3 Health, safety and security In order to ‘provide just enough support’ to service users, individual practitioners will need to ensure that they operate within work areas and practices which maintain good health, safety and security. 4 Service improvement There is an ever increasing body of literature which addresses and promotes the recovery framework and social inclusion. Individual practitioners will need to make constructive suggestions, as a result of acquired and applied learning in these areas and gathering feedback from those using mental health services, in order that good practice from elsewhere can lead to local service improvements and developments. 5 Quality Lack of involvement and shared decision making with users of services leads to poor quality service delivery. This essential shared capability demands that individual practitioners not only work collaboratively with the service user, rather that they equip the person to feel confident in directing and defining their own care. 6 Equality and diversity ‘Providing just enough support’ will require individual practitioners to value and harness the difference and individuality of service users in order to understand, appreciate, respect and support the choices they may wish to make. This review could assist the Trust to work towards all the Capabilities, so the following highlights are singled out: ESC2 deliver surgeries, support and supervision sessions in a range of community venues in order to serve hard-to-help groups. ESC3 arrange services so that getting help is offered in a way that nurtures rather than disrupts personal roles beyond the service system. ESC4 develop services that assist people whenever possible to stay at home rather than go to hospital, leave their home area or be detained. ESC7 expand supported employment, links with education and leisure and supported living. ESC8 monitor social inclusion outcomes. ESC10 promote social inclusion as a core value in the organisation. 32 ESC7 Providing service user centred care ’Negotiate achievable and meaningful goals; primarily from the perspective of service users and their families. Influence and seek the means to achieve these goals and clarify the responsibilities of the people who will provide any help that is needed, including systematically evaluating outcomes and achievements.’ ‘Identify the strengths and resources within the service user’s wider network which have a role to play in supporting goal achievement.’ Capabilities of an inclusive organisation/service > Audits show that care plans are unique and support the person to establish and maintain their life in the mainstream community rather than offering a standard package of service in a segregated setting. > The mix of disciplines, grades and individual staff skills is arranged to ensure that health and social care needs can be met alongside their inclusion needs (e.g. access to skilled advice on lifelong learning as well as symptom management). > Commission services to: expand supported employment; link with education and leisure providers; replace congregate residential care with Supported Living; and build community capacity. Standards for better health (core and developmental) Governance, D5a, D6 Patient focus, D8, D9a/b, D10 Accessible and responsive care, C17, D11a/b/c Capabilities of an inclusive practitioner > Work positively and creatively with the service user and their family, including at those times when their goals are in conflict. > Assess the individual qualities of each community opportunity. > Support service users to participate in mainstream community settings to a maximum extent as a full and equal member of the setting. 33 Capabilities for inclusive practice ESC7 Providing service user centred care > Provide support to people in the community agency in order to facilitate inclusion. > Assist service users to transfer from the formal support of a mental health worker to the natural support of reciprocal and informal relationships with people from their local community. > Ensure that language is clear and accessible to service users and carers. > Enable service users to articulate goals that are meaningful to them. Links to the core KSF dimensions 1 Communication The practitioner will need sufficient communication skills to liaise with a number of agencies, building on sound working relationships in order that a smooth transition for the service user, from mainstream mental health services to community services is ensured. The practitioner may need to assume role of ‘broker’ or intermediary, requiring tact, clarity of thinking, persuasion and diplomacy, when the aspirations and goals of the individual service users might not be shared by their family or social networks. Individual practitioners will be required to constructively manage barriers to effective communication to ensure clarity and understanding. 34 2 Personal and people development Practitioners will need to ‘think outside the box’, critiquing the way they conduct their practice, identifying how evidence-based practice could be incorporated into their own practice and then evaluating the outcome. 3 Health, safety and security Practitioners need to ensure that the working practices of other services are safe in relation to the user engaging with the community service and disengaging from mental health services. 4 Service improvement The greater the engagement of the practitioner with community partners, especially those who do not specifically provide services for mental health users, the more successful promotion of inclusion and the broader the spectrum of choice for the service user. 5 Quality All practitioners must ensure rigorous evaluation of goals and outcomes of the individual’s care plan. Individual practitioners will need the skills and be given the support to identify ineffective quality systems and approaches. 6 Equality and diversity Through the development of creative and innovative care plans, service users’ unique needs and qualities will be considered when accessing a range of services. Practitioners will need to equip themselves with knowledge of the less well known agencies and not rely on outdated knowledge of a few tried and tested services in order that services can match the diversity of each individual. 35 Capabilities for inclusive practice ESC8 Making a difference ’Facilitating access to and delivering the best quality, evidence-based, values-based health and social care interventions to meet the needs and aspirations of service users and their families and carers.’ ‘To work in this way practitioners will need to understand the role of evidence-based and values-based ‘best practice’ as enshrined in NICE guidance and Psychosocial Interventions training etc.’ Standards for better health (core and developmental) Clinical and cost effectiveness, C5a/c/d, D2a/d Governance, C7a Public health, C22c, D13a/b/c/d Capabilities of an inclusive organisation/service > Staff job advertisements, job descriptions, person specifications, Continuous Professional Development portfolios, supervision, training and research records reveal that the work is about health, social care and social inclusion interventions and outcomes. > Track the delivery of health, social care and social inclusion interventions and outcomes through assessment documentation, case records, performance monitoring, audit and service level agreements. > Utilise community level indicators (such as measures of economic activity, social capital and community well-being) in service design and monitor staff activity in relation to work with community organisations as well as with service users. Capabilities of an inclusive practitioner > Utilise a thorough knowledge of how to become involved in community life and how relationships are built and maintained. > 36 In partnership with community members, conduct reviews of inclusion arrangements and revise support plans accordingly. > Understand the concepts of both social inclusion and social capital and incorporate insights into work with service users and community organisations (this is more likely to be successful where the organisation recognises the importance of community well-being). > Within the context of personal reflective practice, analyse the processes and strategies used to promote inclusion and extend personal repertoire of effective skills. > Recognise the healthy and inclusive elements of the service user’s current life and help them to sustain these. > Collect evidence, on a regular basis, of what works for service users and carers. Links to the core KSF dimensions 1 Communication Service users themselves often report that practitioners focus on limitations and weaknesses when developing care plans. This approach is a wasted opportunity as there is a richness of information to be gathered from understanding the health and inclusive elements of an individual’s current life, their aspirations and previous successes. Practitioners must develop a language which instills hope, engendering optimism with all those involved in the individual’s care. 2 3 Psychiatry During an A level psychology class, students needed to undertake some work to help them understand the difficulties associated with a diagnosis of schizophrenia. One member of the class happened to be the daughter of a Consultant Psychiatrist, who agreed to spend two hours with the students discussing mental health. Contact: Lindsey.Kemp @icc.wkent.mht.nhs.uk This simple, everyday story illustrates a number of inclusion capabilities: ESC1 Building on informal and personal connections. Almost every school in the area will have parents who are employees of the mental health service. ESC1 Delivering mental health Personal and people development A repertoire of knowledge and skills will be required to facilitate a socially inclusive approach and to ensure that appropriate resources are accessed and that the service user experiences optimum choice. training – and this is especially valuable to train young people at a time in their lives when risk of mental health problems amongst their peer group is high. Practitioners must endeavour to maintain an up-to-date knowledge base of evidence-based interventions, NICE Guidelines and best practice and should evaluate its integration into their practice. ESC3 Acknowledge the Health, safety and security Practitioners can contribute to the development of policies and protocols within their service and those of other services, ensuring they minimise risks to the health, safety and security of service users and colleagues. contribution made by carers, family and friends to the recovery process. Assisting friends to provide informed support provides a useful contribution to early intervention. 37 Capabilities for inclusive practice ESC8 Making a difference 4 Service improvement A systemic approach to the evaluation of services including working collaboratively (such as participation on Steering Groups, attendance at partnership meetings, working closely with other agencies etc) will facilitate greater cohesive service improvement. Individuals must enable and encourage others to understand and appreciate the influences of best practice on the service and why improvements are made. 5 Quality Individual practitioners will contribute to improving quality of service provision by increasing their knowledge and application of evidence-based interventions and values-based practice. 6 Equality and diversity The individual practitioner will need to be able to identify and take action when their own or others’ behaviours undermines equality and diversity. The individual practitioner must be able to support the service user who may need assistance in exercising their rights or enabling them to make the best use of their abilities. When necessary, they must feel equipped to actively challenge individual and organisational discrimination. 38 ESC9 Promoting safety and positive risk taking ’Empowering the person to decide the level of risk they are prepared to take within their health and safety. This includes working with the tension between promoting safety and positive risk-taking, including assessing and dealing with possible risks for service users, carers, family members and the wider public.’ ‘Demonstrate and promote understanding of the factors associated with risk or harm to self or others through violence, self-neglect, self-harm or suicide.’ Capabilities of an inclusive organisation/service > Adopt a positive approach to risk-taking in the delivery of healthcare, social care and inclusion support, so that everyone has a reasonable chance to enjoy good health, develop skills, earn a wage and live as safely as they wish. > Align the organisation’s vision statement, policies and practices on disclosure, risk, lone working and working hours so that they support inclusive practice. > Align staff working hours to facilitate service users’ participation in community opportunities (e.g. support for leisure activities during evenings and weekends rather than just within office hours). Standards for better health (core and developmental) Safety, C1a, D1 Governance, D6, D7 Care environment and amenities, D12a/b Capabilities of an inclusive practitioner > Acknowledge and respond to the trauma and distress caused by exclusion. Include ‘risk of exclusion’ in risk assessments by ensuring that risk assessments are hopeful rather than pessimistic, informed by the service user’s ambitions and increase rather than decrease opportunities for recovery and a valued lifestyle. In this way, the principle of the ‘least restrictive alternative’ is complemented with the principle of the ‘most inclusive alternative’. > Work as part of a team and be creative, flexible, innovative, tenacious and supportive. > Work flexible hours as needed to support the inclusive aspirations of service users. 39 Capabilities for inclusive practice ESC9 Promoting safety and positive risk taking Links to the core KSF dimensions 1 Communication Promoting and ensuring safety and the management of risk relies on honest and open communication networks. Individual practitioners must ensure that accurate and complete records and communications are consistent with legislation, policies and procedures. They will also need to support others to make difficult decisions. 2 Personal and people development Individual practitioners must ensure that they have an understanding of the factors associated with risk or harm to self and others. They will need to equip themselves with knowledge and skills which will facilitate and promote a positive approach to risk taking including developing a comprehensive knowledge and skills base in relation to identifying and managing risk. 3 Health, safety and security Skills will need to be developed in identifying how best to manage risk within the working environment. Skills will also be required in supporting others to manage risks more effectively. 4 Service improvement As an effective team member, one must enable and encourage others to alter their practice, to share achievements (thus creating a work culture of optimism and hope) and to challenge tradition. Changing practice successfully relies heavily on working increasingly closely with service users and the public. 5 Quality It is important that the individual practitioner works within the limits of their own competence and levels of responsibility and accountability, referring issues beyond these limits and consulting with other relevant people to ensure opportunities are maximised safely for service users. As an effective team member one can support and enable others to problem solve and address issues. 6 40 Equality and diversity Efforts must be made to provide a range of options, which positively address issues of diversity, for service users to engage in. ESC10 Personal development and learning ’Keeping up-to-date with changes in practice and participating in life-long learning, personal and professional development for one’s self and colleagues through supervision, appraisal and reflective practice.’ ‘In order to meet this capability practitioners will need a personal/professional development plan that takes account of their hopes and aspirations that is reviewed annually.’ Capabilities of an inclusive organisation/service > Support staff via work/life balance, mentoring and a positive, encouraging culture to learn and solve problems using imagination and creativity. > Utilise thorough management, supervision, mentoring and training systems to identify and meet staff development needs so that healthcare, social care and social inclusion needs can be met. > Exercise effective arm’s length management for staff working independently in the community. > Promote inclusion as a core value in the organisation. > Assist the development of knowledge about how to support inclusive aspirations and lifestyles of service users. Standards for better health (core and developmental) Clinical and cost effectiveness, C5b/c Governance, C8b, C10a/b, C11a/c, D4b/c, D7 Patient focus, C14b/c Accessible and responsible care, C17 Capabilities of an inclusive practitioner > Develop several possible explanations for what is happening in the service user’s life and reflect on these. Understand competing definitions, philosophies and practices of inclusion and recognise the competition between inclusion and other viewpoints and priorities. > As needed, work in a wide variety of community locations rather than just in one office or workplace. > Often work on a 1:1 basis with service users and with people from community organisations. 41 Capabilities for inclusive practice ESC10 Personal development and learning Occupational therapy Thinkarts is a project launched by North East London Mental Health NHS Trust that provides arts-related events, projects and vocational opportunities for people who use mental health services, carers and volunteers. Individuals are supported to form a collective of artists able to respond to requests from the community. Thus they link user groups to commercial businesses, education facilities to charities, and mental health projects to other groups, such as those for refugees. Some service users have progressed from volunteering to being paid for their work. > Engage in independent decision-making alongside appropriate consultation with colleagues or managers and reference to practice guidance. > Design personalised support arrangements for service users that are unlike those developed for others, monitor their effectiveness, adapt them as needed and learn from the process. > Find out what works by harnessing the insight and contribution of service users, other citizens and researchers. Links to the core KSF dimensions 1 Communication Individual practitioners will need to demonstrate sensitivity in what and how they communicate with service users in community locations. It will require an increased awareness of how one relates to a service user or their family in a public place. 2 Thinkarts also provides open forums in community-based arts venues, exhibition visits and art projects, many of which are run with professional artists, poets, signwriters and so on. It is important that the aspirations and hopes of the practitioner are also acknowledged. There is a need to increase the knowledge and skills base by learning from the unique relationship and experience of working with service users, their communities and colleagues. Individual practitioners must recognise the benefits of engaging service users in developing and improving their personal practice by encouraging and facilitating feedback on their performance. (continued opposite) 3 42 Personal and people development As a minimum, all individual practitioners must engage in reflective practice, supervision and a development review process. Health, safety and security Individual practitioners will need to ensure that they appraise themselves of the health, safety and security issues associated with various community locations, in order that work with the service user takes places in the most appropriate environment. 4 Service improvement The experience of the service user will greatly improve if they receive an individually tailored package of care. In turn, being able to review and learn from the process will improve the delivery of the broader service – sharing with colleagues can further enhance their practice. 5 Quality Engaging with service users and their communities lends itself to systems working, assists the bridging of gaps between mental health and non mental health services and facilitates a ‘seamless’ approach. 6 Equality and diversity Equal opportunities are about addressing representation and balance. The practitioner will need to elicit those personal qualities and attributes of the service user which they want to be considered as priority in developing their care plan and will need to address them (e.g. accessing services for women only, engaging with services which can accommodate those with responsibilities for children, identifying services which can support the individual’s cultural or religious beliefs). Occupational therapy (continued) Volunteers support thinkarts by organising and setting up exhibitions, producing design graphics, and co-facilitating workshops. The Serpentine Art Gallery, public transport services and local further education college have been mainstream venues for their work. The project aims to produce and circulate a monthly newsletter to its mailing list of 3000 people and organisations. Contact: vivienne.wheeler @nelmht.nhs.uk As a single project, Thinkarts demonstrates the following inclusion capabilities: ESC5 promote opportunities for service users to create and develop friendships with other citizens. ESC6 value and harness the contribution of service users to community life. ESC9 by providing a number of options for involvement, people using the service can self-manage risks whilst pursuing opportunities for social inclusion and community contribution. 43 Capabilities for inclusive practice References Material from other publications has been substantially re-ordered and extended in this document, so references are not individually cited in the body of the table, but sources are acknowledged here. Bates, P. (ed) (2002) Working for Inclusion: Making social inclusion a reality for people with severe mental health problems London: The Sainsbury Centre for Mental Health Department of Health (2007) Standards for Better Health London: DH Department of Health (2007) Creating Capable Teams Approach (CCTA) London: DH Department of Health (2007) New Ways of Working for Everyone London: DH Department of Health (2006) Our health, our care, our say. London: DH Department of Health (2004) NHS Knowledge and Skills Framework London: DH Department of Health (2001) Mental Health Policy Implementation Guide Department of Work and Pensions, Department of Health, Department for Education and Skills and Office of the Deputy Prime Minister (2005) Improving the life chances of disabled people London: Strategy Unit Disability Discrimination Act 2005 Hope, R. (2004) The 10 Essential Shared Capabilities – A framework for the whole of the Mental Health Workforce London: Department of Health National Social Inclusion Programme (2005) First Annual Report National Social Inclusion Programme (2006) Second Annual Report National Mental Health Partnership November (2006) Promoting gender equality and women’s mental health Ridgway, P. and Press, A. – subsequently edited for use in England by Allott, P. and Higginson, P. (2004) Assessing the recovery-commitment of your mental health service: A user’s guide for the Developing Recovery Enhancing Environments Measure (DREEM) UK Version 1 Ritchie, P., Jones, C. and Broderick, L. (2003) Ways to Work Edinburgh, SHS Ltd Social Exclusion Unit (2004) Mental Health and Social Exclusion London: Office of the Deputy Prime Minister Useful websites and contacts www.socialinclusion.org.uk www.scie.org.uk [email protected] (10 ESCs) 44 Initial framework developed by Peter Bates National Development Team (NDT) Naomi Hankinson National Social Inclusion Programme (NSIP). Thanks to John Alcock National Workforce Programme Peter Bates National Development Team Sarah Davenport Royal College of Psychiatrists Sharon Dennis Royal College of Nursing Marie Diggins Social Care Institute for Excellence Mark Hayward British Psychological Society Roslyn Hope National Workforce Programme Ann Jackson Royal College of Nursing Philip Jones Social Care Institute for Excellence Ian McGonagle National Workforce Programme Sona Peskin National Social Inclusion Programme Jane Rennison North East London Mental Health Trust Brian Rogers Mental Health Nurses Association Trish Stokoe CSIP South West RDC …and also to all those who contributed to the consultation. For further information: contact Naomi Hankinson – [email protected] or [email protected] ©Crown Copyright 2007 Capabilities for inclusive practice can also be made available on request in Braille, on audio cassette tape, on disk and in large print from [email protected] This publication is available on the websites: www.dh.gsi.gov.uk www.socialinclusion.org.uk NATIONAL SOCIAL INCLUSION PROGRAMME VISION AND PROGRESS SOCIAL INCLUSION AND MENTAL HEALTH 2009 TEN KEY MESSAGES Social inclusion is about getting people back to work but it is also about wider participation For people with mental health problems to recover and rebuild their lives they need access to those social, economic, educational, recreational and cultural opportunities, and physical health services, that most citizens take for granted. Social inclusion is not just about access Social inclusion is not just about having access to mainstream services – it is about participation in the community, as employees, students, volunteers, teachers, carers, parents, advisors, residents; as active citizens. The need to work across traditional boundaries Reducing barriers to inclusion requires integrated effort across government and non-government agencies at all levels, horizontally and vertically, influencing policy and practice through direct links to individual experience. Social inclusion is supported through partnership working The whole is more than the sum of its parts. Through partnership working, organisations from all sectors can build the bridges required to support community participation, active citizenship and build social capital. Not just talking about serious mental health problems Social inclusion is also a key issue for people with more common mental health problems. It is about prevention and mental health promotion: about maintaining support, building resilience and community wellbeing. The public sector duty is an active duty, not a passive one Public sector duties on physical and mental health disability provide for active promotion of equality and opportunity within the requirement to act on discrimination. Statutory measures to promote equality are key to eliminating the barriers that exclude. No challenge to exclusion can succeed without the full involvement of people with mental health problems A co-productive approach, working with people with experience of mental health problems, is essential at every level of development and delivery. A sense of personal identity, aside from ill health or disability, supports recovery and inclusion People with mental health problems are more than just a diagnosis and have valuable contributions to make, not just needs to be met. Services should support people to access the opportunities available within the many communities to which they belong and to make valued contributions as active citizens. To promote inclusion we need pathways from segregated service provision into mainstream services Groups or activities solely for people with mental health problems may reinforce segregation unless they are part of a supported pathway into mainstream services accessed by everyone. Healthy workplaces are necessary to mental health and wellbeing Stress, depression and anxiety are the cause of more working days lost than any other work-related illness. Workplaces and learning environments should support good mental health by providing an accommodating environment and showing a positive and enabling attitude. CONTENTS VISION AND PROGRESS SOCIAL INCLUSION AND MENTAL HEALTH 1 FOREWORD 2 EXECUTIVE SUMMARY 4 INTRODUCTION 6 CHAPTER 1 COMMUNITY ENGAGEMENT 12 CHAPTER 2 EMPLOYMENT 17 CHAPTER 3 LEARNING AND SKILLS 20 CHAPTER 4 HOUSING 23 CHAPTER 5 ARTS AND CULTURE 26 CHAPTER 6 LEADERSHIP AND WORKFORCE 32 CHAPTER 7 SOCIALLY INCLUSIVE PRACTICE: THE CAPABLE ORGANISATION AND TRANSFERABILITY OF OUR WORK 38 ANNEX A RESEARCH AND EVIDENCE 40 ANNEX B PUBLICATIONS AND RESOURCES 41 ANNEX C ACKNOWLEDGEMENTS FOREWORD 1 THIS REPORT SETS OUT THE WORK OF THE NATIONAL SOCIAL INCLUSION PROGRAMME (NSIP) AT THE NATIONAL INSTITUTE FOR MENTAL HEALTH IN ENGLAND, FROM THE INCEPTION OF THE PROGRAMME IN 2004 TO DATE. NSIP has worked to implement and influence policy but with people at the centre. It has been enormously fortunate in recruiting the willing and active participation of so many people with passion, commitment, experience and skills from so many places and sectors over time. Though simple in aim, thanks to the variety of systems through which we work and the richness of the people for whom we work, inclusion is diverse in nature. In going about this work, it has been important to resist reductionism; to reduce the complexity of individuals or the interdependent nature of communities to a single element or objective, as part of the change process, may achieve simplicity but it also risks an underestimation of the complexity of human life. Our starting point was to recognise this and from it, build broad consensus of purpose. We have tried to think and act ‘outside the box’, acknowledging the many accounts of people who use mental health services that tell us the clinical or professional box is precisely the problem. These narratives have continued to guide action on social inclusion throughout the programme. We express thanks to everyone who, over the past four years, has helped us to advance our goals. Though not surprised, we have been constantly impressed with the way people from highly diverse backgrounds have so readily brought wide ranging experience from multiple communities to bear, during the course of this work. If that was our starting point, we must acknowledge that there is no finishing point. The challenge is continuing to effect cultural change, through the transformation of thinking and services across complex organisational boundaries. Whole person approaches demand whole system responses. This is neither simple, nor short-term. Having been well informed by the many examples of strong values-based practice that are incorporated in this report, we hope that we have made a good start. We need to make sure that these often inspirational approaches are positioned to inspire others. Locally and regionally this is an agenda that needs to be led for the long haul, ensuring that progress is sustained and shared through innovation in learning and evidence in practice. As an issue of social justice, inclusion in mental health remains a moral imperative. Though this is work in progress for the wider inclusion community, the people who individually and collectively have contributed to our work have set a compass for its achievement. David Morris Programme Director EXECUTIVE SUMMARY THE NATIONAL SOCIAL INCLUSION PROGRAMME HAS ALWAYS SOUGHT TO ENSURE THAT THE SOCIAL INCLUSION AGENDA FOR PEOPLE WITH MENTAL HEALTH PROBLEMS TAKES ACCOUNT OF THE MANY AREAS OF LIFE ON WHICH EXCLUSION IMPACTS. 2 In 2004, the Social Exclusion Unit’s report set out what needed to be done to address mental health and social exclusion. This Vision and Progress report takes stock of the progress we have made and addresses new and future challenges in seven key areas. COMMUNITY ENGAGEMENT Social inclusion is not just about having access to mainstream services but about active participation in the community, as employees, students, volunteers, teachers, carers, parents, advisors and residents. We have: Encouraged day services to be ambitious, to act not just as a window on to mainstream communities but as a bridge, whilst still providing a place for people to feel safe and be mutually supportive. Helped increase the number of people using Direct Payments in lieu of mental health services, resulting in more people now having greater choice and control over the way in which they receive services and support. Highlighted the importance of adult mental health services recognising people’s parenting roles and that young people can be carers too. Joint working across children’s and adults’ mental health services has helped build the impetus to support joined-up thinking and approaches at a national level. Established the ‘Communities of Influence’ programme which enables Foundation Trusts to engage and lead their governors and members to build the community capacity needed to strengthen socially inclusive outcomes for people using their services. EMPLOYMENT Welfare systems can act as an enabler or be a barrier to inclusion, and stress, depression and anxiety are the cause of more lost working days than any other work-related illness. Workplaces and employers should support good mental health by providing an accommodating environment and showing a positive and enabling attitude. We have: Helped to increase employment opportunities for people with mental health problems. This includes the publication of commissioning guidance on vocational rehabilitation and feeding in to ‘Reaching Out: An Action Plan on Social Exclusion’ which led to the establishing of nine Regional Employment Teams (RETs). 3 Worked with Department of Health, Department for Work and Pensions and Cabinet Office colleagues on delivery plans for the Public Service Agreement (PSA) 16 and its implementation. Increased support for employers, such as: establishing and hosting of the Employer Engagement Network; ensuring that the RET initiative increases organisational capacity at a regional level to deliver current strategies and support stakeholders. Developed good working partnerships with a number of national arts bodies to raise awareness of: social inclusion and mental health; arts organisations as employers of people with mental health problems; and the need for staff training. LEADERSHIP AND WORKFORCE Developed a mental health awareness training package for trade union representatives. Organisations, teams and individuals sometimes require guidance, support and leadership to strengthen their capacity for socially inclusive practice. High aspirations, organisational support and a ‘can-do’ attitude are key to improving social inclusion outcomes. We have: EDUCATION AND SKILLS Undertaken the Delivering Effective Local Leadership for Social Inclusion (DELLSI) initiative. Education, learning and skills are all important in their own right and can act as a pathway to potential employment. We have: Supported the Partnership Programme which has changed the climate of support for learners with mental health problems and has consistently advocated for them at a strategic level. Contributed to the 2008 follow-up to the Learning and Skills Council’s 2006 strategy, providing a renewed vision to promote the social and economic inclusion of people with mental health problems through improved access to, and success in, learning and skills. HOUSING Housing is central to providing a stable base from which people can seek and make the most of socially inclusive opportunities. We have: Established the Housing Reference Group which provides advice, and shares and coordinates information on new policy developments. Worked with the Department of Health, Communities and Local Government and the Cabinet Office on the development and implementation of the new Public Service Agreement (PSA) 16. ARTS AND CULTURE Participation in the arts and cultural activity can give people a positive alternative identity to that of ‘service user’ and help them to be part of the wider community by increasing self-esteem, confidence and social networks. We have: Contributed to research to better understand the benefits of taking part in arts projects for people with mental health problems, resulting in a government working group on arts and health. Established a commissioning network for social inclusion to support effective commissioning practice. Worked closely with four Expert Advisors who have experience of mental health problems and a Reference Group of people with mental health problems and carers to ensure social inclusion practice is developed in a co-productive way. SOCIALLY INCLUSIVE PRACTICE: THE CAPABLE WORKFORCE AND TRANSFERABILITY OF OUR WORK Both individual and organisational capabilities are required if socially inclusive practice is to be embedded and sustained. There is considerable potential for applying lessons learned in the mental health domain to other efforts to address social exclusion. Strong leadership is needed to ensure change within and beyond services and to sustain best practice. Social inclusion requires an overarching view of policy, funding and implementation that cuts across a range of sectors including employment, communities, housing, learning and skills, and civic responsibilities. The potential for synergy across other client groups needs to be realised. INTRODUCTION “HAVING BEEN A SERVICE USER FOR 18 YEARS I HAVE BEEN SOCIALLY EXCLUDED FROM SO MUCH BY THE MERE FACT THAT I HAVE A MENTAL ILLNESS. WHILST MANY OF THESE EXCLUSIONS REMAIN, I HAVE BEEN EMPOWERED TO TRY TO ENSURE THAT FURTHER EXCLUSIONS ARE NOT PLACED UPON PEOPLE LIKE ME.” 1 4 ‘Vision and Progress: Social Inclusion and Mental Health’ sets out the achievements of the National Social Inclusion Programme (NSIP) since the 2004 ‘Mental Health and Social Exclusion’ report by the Social Exclusion Unit (SEU).2 It recognises the commitment and hard work of the team (past and present), its Expert Advisors and Reference Group, as well as all those partner organisations who have contributed to these achievements. This report reviews the last four years in light of our activity at national, regional and local level. It highlights the progress that has been made across the statutory and non-statutory sectors and highlights the additional value of work beyond our formal remit; work that has sought to reach out to non-traditional services and partners to champion the social inclusion agenda in sometimes unfamiliar areas. It also provides an assessment of the remaining and continuing challenges that need to be addressed for improved outcomes for people with mental health problems. This is based on feedback from national and regional social inclusion leads across mental health and health services, local authorities and regional bodies, as well as information gathered through an analysis of progress and gaps with provider organisations at a local level. This report is intended to be a further resource for policy makers, regional agencies and services to ensure that this important work is sustained and developed in the future. BACKGROUND TO THE NATIONAL SOCIAL INCLUSION PROGRAMME NSIP is a programme within the National Institute for Mental Health in England (NIMHE) as part of the Care Services Improvement Partnership (CSIP) and it has often taken a high level and strategic cross-government role. The programme’s original remit was to coordinate the implementation of the SEU report. More than 20 government departments and a range of external agencies have worked together with NSIP to successfully implement the report’s 27 cross-cutting action points. However, NSIP’s work has highlighted how complex the reality of this really is. Due to the multiplicity and diversity of the wide number of agencies at all levels, there still remains work to be done locally and nationally to ensure that individuals and services are maximising opportunities for social inclusion. Effective inclusion will contribute significantly to reducing discrimination, and NSIP has worked closely with Shift, a five-year programme to tackle stigma and 5 discrimination (and responsible for action points 1– 4 in the SEU report) by working in partnership on aspects of the employment agenda, having co-terminus locations and shared expert advice. In 2006, the Cabinet Office invited NSIP to contribute to the development of the Social Exclusion Action Plan 3 which led to our overseeing the creation of dedicated regional employment teams (RETs) to provide further support for the implementation of good practice on the employment of people with severe mental health problems. The programme has also worked with the Cabinet Office in developing and implementing the Public Service Agreement (PSA) 16 on employment and settled accommodation outcomes for people with severe and enduring mental health problems, supporting action to ensure that the PSA drives change at local level. THE NSIP APPROACH When NSIP was first established, its primary function was to implement policy. We have however, ensured this implementation is linked back in to further policy development. Our focus is therefore on both what it takes to turn policy into practice and reality on the ground and also on policy development and regulatory frameworks which support positive outcomes. Over the course of the past four years, we have contributed to the development and delivery of a wide range of policy, using the expertise in the team and our co-productive working approach to establish a broad understanding of what ‘good’ policy looks like from a social inclusion perspective and how it can work effectively to promote the core aims of social inclusion. As part of NIMHE, NSIP is also connected to the Department of Health. We have brought together a breadth of skills and expertise in mental health and social inclusion, as well as political and strategic experience. Our small central team comprises secondees drawn from across government, including the Department for Work and Pensions, the Department for Innovation, Universities and Skills, Communities and Local Government and the Cabinet Office. Central team members and regional colleagues from NIMHE/CSIP development centres have worked together as equal partners in the national programme and this has allowed the team to become a hub of expertise through which ideas and action have influenced emerging policy. This is turn has enabled the inclusion agenda to be embedded across life domains in a way that addresses the needs of the most excluded. The network of regional social inclusion leads has also brought an in-depth understanding of regional priorities and pressures. They have identified good practice and accelerated policy implementation by helping us to translate policy into practice for services and individuals at regional and local level. The team also includes people from both the voluntary sector and professional bodies to ensure that our focus is on the most important and influential areas of policy and that staff working in the sector have resources and information to help inform improved practice on social inclusion. We operate in a co-productive way, ensuring that our work is informed by people who use services themselves, and carers. The Expert Advisors are a small group who work with NSIP to ensure the involvement of people with mental health problems is maximised across the programme. They also advise on the direction of certain initiatives and provide specific expertise on a range of inclusion areas, including day services, arts, education and employment. “I find that much of the knowledge, skills and perspective I have acquired at the national programme around policy, strategy, new ways of thinking and good practice have motivated and inspired me to constantly look for opportunities to implement and develop the values and principles of NSIP.” 4 The Reference Group is a wider network of people who use mental health services and carers. It represents people with interests that span the inclusion agenda from all regions across England. Their role is to provide updates from regional and local perspectives, disseminate national messages and respond to government consultations so that people can influence the services they receive. We have also enabled richly diverse partners to come together through extensive arrangements for joint programme work with over 50 affiliated voluntary, academic and professional body organisations. These have committed funding and resources to the programme, without which our successes would not be so many or varied. The following chapters consider the impact that NSIP has had in a range of social inclusion policy areas. They highlight the considerable progress already made, what the remaining challenges are and what more needs to be done both now and in the future. 1 NSIP Expert Advisor 2 Office of the Deputy Prime Minister, 2004, Mental Health and Social Exclusion, Social Exclusion Unit. 3 Cabinet Office, 2006, Reaching Out: An Action Plan on Social Exclusion. 4 NSIP Expert Advisor CHAPTER 1 6 COMMUNITY ENGAGEMENT VISION People need to engage with the wide range of communities that they rely on for their incomes, social support, selfexpression and sense of continuity; these include communities of place (neighbourhoods), common interest, and the major life domains such as employment, education and housing. For this to be successful, services and opportunities need to be accessible, well organised, stable and secure. Our vision is that: Everyone is supported to access the opportunities available within the many communities to which they belong. Everyone understands and appreciates the mutual benefits of contributions made by people with mental health problems towards creating and sustaining a positive community. Mental health services will work with individuals and communities to promote active civic participation and effective social support. There will be equal opportunities for active citizenship, increased social capital and less unwanted service dependency. 7 PROGRESS SINCE 2004 This chapter sets out the progress that has been made in implementing and developing policies to reduce disadvantage in the areas detailed below. It also set out how the process of removing the barriers that inhibit people with mental health problems from achieving a stable base in life has been developed. DAY SERVICES Day services have played a valuable role for many people with mental health problems. They provide a place to go, people to see and something to do. However, they have often not been successful at reaching a wide range of people or enabling them to move on and access resources beyond mental health services. Many services, which have historically provided both segregated activities and a safe social environment, are now focused much more on supporting people to engage with their local community and the resources and activities within it. This means that the term ‘day services’ has become somewhat misleading as activities may take place in the evenings as well as during the day, and are often very different in nature from those that people expect a day service to offer. Indeed many day services have re-named themselves as ‘community support’ or ‘community resource’ services in recognition of their changed role. NSIP has led the work on modernisation of day services with the publication, in February 2006,5 of commissioning guidance on day services for people with mental health problems. It sets out the components that a modernised day service could incorporate and explained how commissioners could work towards them. This guidance was linked to the Department of Health publication ‘Supporting Women into the Mainstream’. 6 Eighteen months later a review of services 7 was carried out to provide a snapshot of progress against the criteria in the commissioning guidance. The review identified where improvement had been made, highlighted common issues and the approaches to addressing them and provided examples of good practice. “Having more things in my life has given me the reason to be more independent.” 8 So far, the modernisation agenda has been primarily focused on resources for providers and commissioners. In response, NSIP produced ‘How will my newly redesigned day service help me?’ 9 a booklet specifically for people using day services that are facing changes to how they are run. Day services have also been concerned with working out how to measure and demonstrate socially inclusive outcomes. To address this we produced a Day Services Outcomes Framework .10 Reflecting the different life domains and functions of mental health day services, it aims to help commissioners and providers to monitor, evaluate and measure the effectiveness of services for people with mental health problems using a number of indicators. The framework was tested in several day services across England during 2008. As a result of this work, and responding to proposals that the framework be widened out beyond day services,11 we have identified the need for an outcome measurement tool, which is currently in development and which will be published in spring 2009. In providing leadership on day services modernisation, NSIP has promoted a role for services to facilitate peer support for others who have shared similar experiences. We have encouraged the development of user-run day services and the use of peer support and co-productive approaches in day service delivery. blueSCI blueSCI, Trafford, is an arts and cultural centre that addresses segregation by opening its doors to a range of mainstream organisations and the general public. Alongside blueSCI’s reception sits a well-equipped internet café, which is open to everyone in the local community to use. By arrangement, anyone can also use the professionally equipped music studio downstairs. The inclusive approach at blueSCI extends to mainstream local organisations as well, with several partners including Jobcentre Plus, Trafford College and a local housing association. In addition to this, a wide range of community organisations regularly run sessions within the building. www.bluesci.org.uk However, challenges within the modernisation agenda remain. Anxiety about change is common amongst people who use services but it is also felt by day services staff themselves and provider organisations. It can sometimes be difficult for services to develop a more appropriate balance of provision that involves both peer support and support to engage with wider communities. This is particularly challenging if commissioners and providers are not assisted to achieve this goal. Many have felt isolated and value contact with others who have shared some of their experiences and from whom they can learn. CHAPTER 1 COMMUNITY ENGAGEMENT In order to address this, we have established a Day Services Modernisation Network. This collaboration, the first in which large voluntary sector agencies have worked together on this agenda, brings together Rethink, Richmond Fellowship and Mind with NSIP, to provide a discussion and learning forum on day services modernisation for senior managers in voluntary and statutory sector provider and commissioning organisations. A further learning and information network has been put in place to support the dissemination of key messages and resources. This wider network comprises some 600 people working on day service modernisation, including more than 80 commissioners. DIRECT PAYMENTS AND PERSONALISATION Direct Payments are known to offer people with mental health problems greater flexibility about their own support arrangements and the means by which they can be met. In particular, Direct Payments can enable them to more easily access mainstream services, helping to promote independence and greater inclusion in local communities by offering opportunities for employment, education and leisure. However, take up in previous years has been low (see below). The SEU report 12 recognised that giving people greater choice and control over the way in which they received services and support, particularly through the mechanism of Direct Payments, was an important way to combat exclusion. In response to this, NSIP oversaw the development and publication of ‘Direct payments for people with mental health problems: A guide to action’ in February 2006.13 It set out good practice in making Direct Payments more accessible to people with mental health problems and encouraged local authorities, PCTs, mental health trusts and non-statutory providers of mental health services to make Direct Payments a standard option within mental health services. This was then followed by an additional publication,14 which set out specific information for people eligible to use mental health services, and carers. It was compiled with the support of people and organisations involved in mental health services and a wide range of Direct Payments activity. NSIP has also been involved in training and development activity at more than 40 training events and forums including people who use mental health services, carers, Direct Payments support staff and commissioners. “More than anything Direct Payments has given me choices and has helped no end with social inclusion. My companion has introduced me to new friends and 8 I am finding it far easier to socialise with people, my family have also noticed that my social skills are improving all of the time. I would not hesitate in recommending Direct Payments to other service users, Direct Payments opens doors and improves lives.” 15 Over the past four years there has been a sustained increase in the numbers of people using Direct Payments in lieu of mental health services. The most recent figures for March 2008 16 show a 62% increase over the previous year taking the number to a total of 3,373, with only four local authorities not making any payments. This compares very favourably to the 520 made at September 2004, when one-third of all local authorities in England were not making any. The findings from the recent Individual Budgets pilots 17 have shown that people with mental health problems had the greatest increases in both social care and psychological wellbeing outcomes, with 71% choosing Direct Payments as the way to manage their money. ‘IS IT FOR ME?’ AND ‘I’LL GIVE IT A GO’ The ‘Is it for Me?’ and ‘I’ll give it a go’ project combines basic skills learning with the opportunity to consider Direct Payments as a support option. This training resource is now being disseminated nationally. It recognises the importance of Direct Payments as a means of developing ‘selfdirected support’ and thereby reflects the significance of Direct Payments as a contribution to policy developments in ‘personalisation’. The Department of Health has indicated that it considers mental health services to be suitable for initial work on Personal Health Budgets. NSIP is already working with the related ‘Staying in Control’ initiative that provides support to the PCTs and local authorities which have selected mental health as an area for the introduction of Personal Health Budgets alongside social care Personal Budgets. Integrating our work on Direct Payments within the Department of Health’s personalisation agenda has led to a range of initiatives, notably the production of a guide to implementation of Personal Budgets within mental health services, and to support this a DVD reflecting the experiences of those using Personal Budgets in mental health. Also, in partnership with the North West development centre and ‘In Control’ (a national programme to increase the control exercised by people who need support over their own lives and fulfil their 9 roles as citizens) we developed and now maintain the national mental health and personalisation group. NSIP’s employment, housing and personalisation policy leads have worked with ‘In Control’ as part of the broader discussion on how best to achieve integration of work on personalisation with that of inclusion. Additionally, NSIP has played an important role in reviewing the exclusion criteria for Direct Payments, including those that relate to certain sections under the Mental Health Act. This issue has recently been consulted upon and the findings are due to be published in 2009. However, some challenges remain. The roll out of Individual Budgets should take account of the lessons learned from the implementation of Direct Payments for people with mental health problems, otherwise the risk is that their low take up will be repeated and people with mental health problems will be further excluded. The personalisation agenda should work to ensure that support is available to enable people with mental health problems to exercise more choice and experience greater dignity. FAMILIES AND CARERS Parental mental health problems can have a significant impact on families, both in terms of a parent’s wellbeing and family life overall. The ‘Action 16’ steering group was set up to oversee the implementation of action 16 of the SEU report 18 and was jointly led by NSIP and the Social Care Institute of Excellence (SCIE). Its broad membership included a range of government departments, voluntary and third sector organisations and PCTs. The group modelled joint working across children’s and adults’ services and helped build the impetus to support joined-up thinking and approaches at a national level. The cross-cutting nature of social inclusion policy supported this approach and the diverse, informed membership combined the skills and the overview necessary to bridge the divide between children’s and adults’ policy and services. It also provided a mechanism for reducing duplication and adding value to other work streams, including the Care Programme Approach review.19 The relationship with SCIE has also been of critical importance. SCIE led the three-year research and development programme on parental mental health and child welfare, now nearing completion with the production of cross-cutting health and social care practice guidance due for publication spring 2009. PARENTS IN HOSPITAL This review of contact arrangements between parents in mental health settings and their children identifies the need to improve visiting arrangements and facilities, and the support offered to parents. The findings draw on data from Mental Health Act Commission visits, hospital staff and importantly, parents and children themselves. www.barnardos.org.uk NSIP also contributed to the Cabinet Office’s crossgovernment Families at Risk Review,20 which found that families often do not get the most effective support when they need it most and that when parents face a number of difficulties in their own lives, such as mental health problems, the impact for both themselves and for their children can be severe and enduring. “You want your mum when she’s ill, especially when you’re just a kid.” 21 The experience of the ‘Action 16’ partnership shows us that involving children, young people and their parents who ‘tell it like it is’ is crucial to understanding the needs of families, identifying service improvement issues and motivating and raising awareness amongst providers and policy makers. The challenge to services is fundamentally one of listening actively to the stories and experiences of all family members including children and young people. TRANSPORT Without appropriate and accessible transport people with mental health problems are at risk of being further excluded from a range of community opportunities. The early implementation phase of the SEU report 22 has seen mental health included within the 2004 Department for Transport’s ‘Technical Guidance on Accessibility Planning in Local Transport Plans’. In response, Local Transport Authorities (LTAs) included accessibility strategies within their Local Transport Plans in March 2006. Regionally, good practice has been identified in the West Midlands by the CENTRO authority area (Birmingham, Solihull, Coventry, Walsall, Wolverhampton, Sandwell and Dudley). A review of concessionary travel has also been undertaken by the Department for Transport resulting in the Concessionary Bus Travel Act 2007 23 and accompanying guidance.24 However, further work needs to be carried out in relation to the review to ensure greater consistency in embedding the eligibility criteria CHAPTER 1 COMMUNITY ENGAGEMENT across all local authorities so that people with mental health problems are not further excluded. ‘ALL ABOARD’ PROJECT The ‘All Aboard’ project with Birmingham and Solihull Mental Health NHS Foundation Trust has incorporated the development of a DVD for train and bus drivers, information road shows at Trust locations and work with Community Safety Teams. People with mental health problems were identified as a target group to benefit from the Accessibility Plan (by focusing on the needs of those using mental health facilities) and addressing these specific needs within the Local Transport Plan. At a local level, we also recognise that more needs to be done so that services can develop and maintain partnerships with travel providers to ensure that the right information about public transport is available and that any future policy development does not impact negatively on people with mental health problems. CIVIC PARTICIPATION Civic participation is key to enabling people to engage within their own community. With Communities and Local Government (and previously the Home Office) identifying community engagement as a priority, it has been essential to ensure that the policy development process represents the needs of people who are on the margins of active citizenship. NSIP worked with these departments, the (then) Disability Rights Commission and organisations such as RADAR to ensure the inclusion of people otherwise excluded because of discrimination from civic opportunities. As a result, ‘Together We Can’, the government strategy on community engagement now addresses the risk of people with mental health problems being excluded from local civic structures. NSIP has continued to influence the preparatory processes behind the forthcoming Community Empowerment Bill. Following identification by the SEU of certain institutional areas of civic participation from which people with mental health problems were being systematically excluded, such as jury service and school governance, NSIP has worked with relevant agencies to pursue the removal of constitutional barriers. This includes contributing to the development of a consultation on jury service eligibility criteria (publication expected 2009). We have also seen the revision of school governance regulations which clarify the disqualification criteria on 10 mental health grounds. This has been published on GovernorNet 25 but more needs to be done to raise awareness of the revision with Local Education Authorities and to promote the positive contribution that people with mental health problems can make to civic institutions. CRIMINAL JUSTICE SYSTEM NSIP has overseen the completion of several of the criminal justice action points from the SEU report but there have been many challenges in this area which have impacted on the successful implementation of these action points such as the mental health awareness training for probation and police officers. These challenges include the division of duties between the Home Office and Ministry of Justice in May 2007, the merging of strategy across prison health, offender health and community pathways throughout 2007/08 and the amalgamation of the police training organisation CENTREX with the National Police Improvement Agency. Furthermore, the Bradley Review, on the treatment of people with severe mental health problems in the criminal justice system (expected spring 2009), is likely to set a new strategic direction. This should provide the opportunity for those working in criminal justice agencies to become knowledgeable of the needs of people with mental health problems and how to respond to them. ‘COMMUNITIES OF INFLUENCE’ PROGRAMME “The Communities of Influence programme has been a shared journey of discovery with other Trusts.” 26 The creation of Mental Health Foundation Trusts provided different opportunities for influencing social inclusion outcomes across trusts and communities. This is a result of constitutional changes to allow for the appointment of governors and members from wider mainstream community audiences. In response, NSIP has created the ‘Communities of Influence’ programme in partnership with the Pacesetters programme in the Department of Health’s Equalities and Human Rights Group and the University of Central Lancashire (UCLan). The programme seeks to enable Foundation Trusts to engage with and lead their governors and members in building the capacity of mainstream organisations required to strengthen socially inclusive outcomes. It involves trusts enabling their local communities to become effective in securing and sustaining the social inclusion of their fellow citizens with significant mental health problems. There are currently 14 Foundation Trusts in the practice network within ‘Communities of Influence’. 11 The project, running initially until April 2009, consists of an action learning set, followed by a series of trustbased development activities to identify and share innovative practice, tailored to each site. A final national conference in April will review what has been achieved and showcase how social inclusion and community engagement plans are to be embedded into the Trusts’ corporate goals. CONCLUSION AND PROPOSED FUTURE ACTION NSIP’s day service modernisation networks represent the most comprehensive picture of mental health day services and the most effective context for supporting the development, available. It is important that they are supported to continue to provide a platform for shared learning and the modernisation agenda. Commissioners and providers sometimes struggle at a local level to make the necessary changes to day services, and there is very little in the way of expert support available to help them do this. Hands on support in relation to both the modernisation process and the development of modernised services would be welcomed and would help increase the chances of effective change happening. There is also a need for research into the new approaches to delivering day services to demonstrate their effectiveness and the outcomes achieved. The revised social inclusion outcome framework and the accompanying outcome measurement tool will give commissioners and providers the opportunity to use and embed it within service specifications and contracts across and beyond the range of mental health services. There is the potential for findings to be pooled and compared to provide benchmarking data, but this would require the allocation of necessary resource. 27 Identification and assessment processes of parental and family support have improved and many innovative arrangements between services are being developed to help to ensure better access support for affected families. However, this is challenging, as working across systems can be complex so we recommend that this area of policy remains a priority for future activity. NSIP has worked across departmental boundaries to promote systems and practices through which people with mental health problems can participate and contribute equitably as active citizens to the civic life of their community. We have tried to do this by influencing the development of policy beyond mental health so that it connects appropriately back to it. As localisation and the empowerment of diverse communities become more central to government policy, so the development of inclusion practice will need to reflect and inform that policy, promoting and connecting inclusive communities with scope for active citizenship and progressive social networks. To support the development of community engagement by participating Foundation Trusts, a certificate course in Community Engagement, Mental Health and Social Inclusion will be developed at UCLan for governors, members and relevant staff in Foundation Trusts who join the ‘Communities of Influence’ network. 5 Department of Health, 2006, From segregation to inclusion: Commissioning guidance on day services for people with mental health problems. 6 Department of Health, 2006, Supporting Women into the Mainstream: Commissioning Women-only Community Day Services. 7 Department of Health, 2008, From segregation to inclusion: where are we now? A review of progress towards the implementation of the mental health day services commissioning guidance. 8 NSIP, 2008, How will my newly redesigned day service help me? socialinclusion.org.uk/publications/DayServicesLeaflet.pdf 9 Ibid. 10 NSIP, 2007, Outcomes Framework for Mental Health Day Services. socialinclusion.org.uk/publications/DSdoccover.1.pdf) 11 NSIP, 2009, Outcomes Framework for Mental Health Services. www.socialinclusion.org.uk/home/index.php 12 Social Exclusion Unit, op. cit., 2004. 13 Department of Health, 2006, Direct payments for people with mental health problems: A guide to action. 14 Department of Health, 2006, An introduction to direct payments in mental health services: Information for people eligible to use mental health services and carers. 15 Ibid. 16 Commission for Social Care Inspectorate, 2009, The state of social care in England 2007–08. 17 Individual Budgets Evaluation Network (IBSEN), 2008, Evaluation of the Individual Budgets Pilot Programme Final Report. The copyright is held by Social Policy Research Unit, University of York. 18 Social Exclusion Unit, op. cit., 2004. 19 Department of Health, 2008, Refocusing the Care Programme Approach: Policy and Positive Practice Guidance. 20 Cabinet Office, 2007, Reaching out: Think Family. 21 Barnardos, 2007, Parents in Hospital: How mental health services can best provide family contact when a parent is in hospital. 22 Social Exclusion Unit op. cit., 2004. 23 Department for Transport, 2007, Concessionary Bus Travel Act 2007. 24 Department for Transport, 2008, Guidance for local authorities on eligibility for disabled people. 25 www.governornet.co.uk 26 Leeds Partnership NHS Foundation Trust 27 NSIP, op. cit., 2009 CHAPTER 2 12 EMPLOYMENT VISION Everybody should be helped to be the best they can and those who want, and are able, to work should receive the right support to achieve their employment aspirations. Our vision is that: Employers are supported to feel confident in recruiting and retaining people with mental health problems and recognise the commercial benefits of promoting mentally healthy workplaces. Employers have positive attitudes and high expectations of what people can do, rather than focusing on what people cannot do. It is recognised that people with mental health problems are just as capable as other employees and can effectively contribute to business objectives. Robust local mechanisms and partnerships support individuals to consider and prepare for work and improve their access to employment opportunities. Strong links exist between employment and both volunteering and learning and skills as important steps to obtaining and sustaining employment. 13 PROGRESS SINCE 2004 “Work helped me to piece my life back together again.” 28 Most people with mental health problems want to work 29 and with the right support, many more would be able to achieve their employment aspirations. There is strong evidence 30 to suggest that a job or another form of occupation is highly effective in improving wellbeing and social inclusion. COMMISSIONING GUIDANCE In response to the SEU report,31 NSIP has published commissioning guidance on vocational services for people with severe mental health problems.32 It highlights how important being in work is in both maintaining good mental health and promoting the recovery and wellbeing of those who have experienced mental health problems. The guidance provides a framework on how to commission evidence-based vocational services and highlights tools for monitoring the effectiveness of such services. It also includes methods that successfully address the employment needs of people with severe mental health problems, one of which is the ‘Individual Placement and Support’ (IPS) model. INDIVIDUAL PLACEMENT AND SUPPORT The ‘Individual Placement and Support’ (IPS) model is based on joining up services in order to deliver tailored support. The approach involves assessing a person’s vocational skills and preferences relatively quickly and then placing them in employment settings that are consistent with their abilities and interests and where they can develop their skills in the work environment whilst getting ongoing support. If needed, support is also given to the employer and individual in the workplace to ensure maintenance of the placement. At a regional level, we have delivered a number of workshops on the commissioning guidance to a broad range of practitioners working in employment and mental health services. They focused on progress since the guidance was published, resolving tensions and developing regional strategies to meet the vocational needs of people with mental health problems. The workshops stimulated the formation of local networks where improvement targets can be set and monitored over time, and have helped staff to clarify local service delivery chains. This has led to improved employment outcomes, the development of local action plans and a reallocation of resources into the employment agenda. To further demonstrate how to develop effective vocational services we have also published ‘Finding and Keeping Work’,33 to support positive employment outcomes for people with mental health problems. DEVELOPING EMPLOYMENT POLICY Nationally, NSIP has supported a number of strategic developments on mental health and employment. This includes supporting the Department of Health and the Cabinet Office on development of the Public Service Agreement (PSA) 16, which sets out a direction of travel for increasing the proportion of socially excluded adults in settled accommodation and employment. The national level indicator 150 34 is the proportion of adults in contact with secondary mental health services who are in employment. PSA 16 in relation to housing is also discussed in Chapter 4. NSIP has worked with government colleagues on the response to Dame Carol Black’s report ‘Working for a healthier tomorrow’ 35 and supported the development of the National Mental Health and Employment Strategy 36 (due spring 2009). We have also helped to establish the cross-government group on mental health and employment to which subsequently we have made significant contributions. Key aspects of this work involve effecting cultural change on mental health and employment, increasing awareness and take up of available services and improving training for a broad range of intermediaries and organisations. To achieve this we have developed several training resources, including one for intermediaries on how to best work with employers on mental health problems, as well as resources for line managers and for trade union representatives. REGIONAL EMPLOYMENT TEAMS (RETS) In 2006 the Cabinet Office published ‘Reaching Out: An Action Plan on Social Exclusion’ 37 which outlined the government’s strategy for targeting effective help at the most excluded groups in society. Working through an NSIP secondee to the Prime Minister’s Strategy Unit, we supported development of action point 23,38 on improving employment outcomes for people with severe mental health problems through developing dedicated regional employment teams (RETs) to promote good practice and have since been responsible for establishing and leading these teams. These nine RETs over the ensuing two years, have formed partnerships that encourage a coordinated and coherent effort among key regional stakeholders such as Jobcentre Plus, Government Offices, Regional Development Agencies and Learning and Skills Councils, as well as health professionals and the voluntary sector. A significant CHAPTER 2 EMPLOYMENT aspect of this effort has entailed working with localities to improve employment outcomes with a particular focus on supporting the mental health employment target in PSA 16. To date, this has been effectively achieved; improved practice being promoted by more effective joined-up working between partners. RETs have also supported local authorities to do more to advance employment opportunities for people with mental health problems with a particular emphasis on those districts that have adopted National Indicator 150. Activities undertaken by the regional partnerships include: Working strategically within partnerships to raise awareness of the need to deliver holistic services. Building capacity in health systems to deliver increased employment opportunities. Supporting and promoting activity that allows individuals to increase capacity for obtaining and retaining employment, such as the development of structured volunteering arrangements. Working to reduce stigma and discrimination, especially in the workplace setting, such as supporting the expansion of Mindful Employer 39 and Shift’s ‘Line Managers’ web resource’.40 Promoting activity aimed at maintaining a mentally healthy workforce. This includes supporting the increase in people being trained on Mental Health First Aid 41 and supporting the expansion of recommended frameworks such as the Health and Safety Executive ‘Stress Management’ standards.42 In addition to exploring links between national policies and regional and local actions to overcome barriers, the RETs have also looked at how best to influence existing and developing policies and strategies, such as the City Strategy Initiative,43 the roll out of Pathways to Work and Increasing Access to Psychological Therapies.44 EMPLOYERS “A successful return to work following an episode of mental illness is possible, but it has to be managed well – long-term recovery is not an accident. Good employers will take ‘return to work’ practice seriously and encourage a staged and supportive – even protected return to work. Part-time work, for a time can be a wonderful investment for long-term good health.” 45 In addition to our high level strategic work on employment, we have also been working closely to 14 support employers and raise awareness and understanding of mental health in the workplace by developing and delivering, for example, a training package for trade union representatives. We have established an Employer Engagement Network to share thinking and best practice on how to support employers in the employment and retention of people with mental health problems. The network has a membership of more than 60 organisations including a range of government departments, practitioners and academics. One output has been that of hosted workshops on key and developing policy issues such as how best to adapt and make the ‘Access to Work’ programme more flexible to help many more people with a mental health problem to remain at work. ROYAL MAIL The Royal Mail is the UK’s second largest employer after the NHS. NSIP is working in partnership with Royal Mail to promote the employment opportunities of people with mental health problems, to support health-promoting initiatives within the workplace and in challenging discrimination. The RET partnerships have also increased organisational capacity in the regions. They have supported the NHS and public sector organisations to become ‘Exemplar Employers’ of people with mental health problems. This has encouraged PCTs and Mental Health Trusts to consider greater volunteering and employment initiatives within their organisations, and enabled trusts to consider how the Care Programme Approach (CPA) process and its outcome measurement tools can increase the proportion of people who wish to (re) gain employment. TRAINING Ensuring that frontline staff are appropriately trained is fundamental to improving employment opportunities for people with mental health problems. NSIP has worked with a wide range of stakeholders to develop a mental health awareness training package for trade union representatives. The training package was piloted during 2007/08, and was followed by the delivery of training events across several regions. The training has been embraced by a wide range of unions, including Unite, Public and Commercial Services (PCS), Prospect and Unison and has been delivered to more than 100 representatives. NSIP has also met with Jobcentre Plus on how to improve the quality of their customer service and 15 employment support that people with mental health problems receive. This led to us working with Jobcentre Plus training experts to develop a training module on mental health and employment awareness, which has now been formally adopted. We are also working to finalise a training product for engaging and working with employers on mental health problems. INCOME, BENEFITS AND THE WELFARE SYSTEM Since 2004, NSIP has supported changes to the Incapacity Benefit linking rules so that returning to work and the claiming of benefits is more flexible and supportive for people with mental health problems. We have also been instrumental in securing some positive changes to the welfare benefits system. BENEFITS DOWN-RATING In 2004, building on a lengthy existing campaign by Derbyshire Patients’ Council and Mind, we worked with ministers and senior officials to highlight issues concerning the impact of benefit down-rating for people with long-term hospital stays. This resulted in the end of ‘down-rating’, securing improvements in the lives of 21,000 people, to the value of £60 million. NSIP has sought clarification of guidance for voluntary work, which now makes it clear that individuals can be reimbursed for travel and meal expenses without it affecting their entitlement to benefits. We welcome Employment and Support Allowance as a move towards a simpler benefits system which recognises that some people need additional support. It also encourages and supports those who can return to work to do so. The extension of the Permitted Work rules (PWRs) within Employment and Support Allowance to apply equally to both income-based and contributionbased claimants enables more people to access employment at a pace that suits them. NSIP’s position on PWRs has also challenged the inequality that exists for people on different types of benefits. We have set out what needs to be done with the Department for Work and Pensions so that PWRs act as an enabler for people with mental health problems trying to return to work. REMAINING CHALLENGES Over the last few years there has been an increasing amount of health, employment and wider support available to employers and people with disabilities, but despite an overall improvement in the disability employment rate, people with mental health problems have not benefited as much as other groups. Specifically, there has been little change in the very low employment levels for people with more severe mental health problems. Improving employment rates for people with mental health problems requires progress on a number of fronts. Individuals may require more specialised and sustained support to ensure that work becomes, or remains an achievable goal. This support should take into account a range of issues, such as low levels of skills or confidence, debt, caring responsibilities and/or other household circumstances. In addition, the attitudes and perceptions of carers, health professionals and families can be unhelpful and stigma and discrimination is still an important issue. Underpinning many of these challenges is the need for more extensive research to develop the evidence base to build and promote a strong case for the employment of people with mental health problems. This will ensure that individuals and employers can quickly access appropriate help and support whenever they need it. For services to be more effective and better utilised, they should meet a wide range of need, be joined-up, simple to access and show the benefits of adopting best practice and delivering tailored support. It is equally important to promote knowledge as to how providers can develop effective employment services and staff skills. Concerns remain about Employment and Support Allowance as it currently stands, in respect of the disparity within the benefit for those who have previously paid contributions and those who have not. It is important that Employment and Support Allowance continues to be evaluated to ensure that it meets the needs of those with mental health problems. CONCLUSION AND PROPOSED FUTURE ACTION Whilst Individual Placement and Support is an effective structured approach to securing sustainable employment, we recognise that it does not always work for everyone, and that for some work is not an immediate option. It will therefore be important to consider what a suite of provision might contain and ensure that appropriate systems and services are in place in each area to meet the needs of individuals. It is important to build upon the momentum created by the RETs since this has provided a coordinated approach to secure better employment outcomes for people with severe and enduring mental health problems and meet expectations of PSA 16. CHAPTER 2 EMPLOYMENT The need to deliver holistic support is even more critical in the current economic downturn when the number of people experiencing poor mental health is likely to increase and when more people may become at risk of long-term unemployment. The challenge will be to demonstrate how the national mental health and employment strategy will help change attitudes, assist the development of an evidence base and promote the creation of a comprehensive range of mainstream and specialised information and support which assists access to, and retention of, good employment opportunities. 16 28 Department of Health, 2006, Action on Stigma: promoting mental health, ending discrimination at work. 29 Within the Patient Survey (Healthcare Commission, 2005), 52% of respondents said they had not received any help with finding work but would have liked it. 30 W Anthony, A Howell and KS Danley, ‘Vocational Rehabilitation of the Psychiatrically Disabled’ in M Mirabi (ed.), The Chronically Mentally ill: Research and Services, (Jamaica/New York, Spectrum Publications, 1084); G Shepherd, ‘The Value of Work in the 1980s’, Psychiatric Bulletin, 13 (1989): 231–233. 31 Social Exclusion Unit, op. cit., 2004. 32 Department of Health/NSIP, 2006, Vocational services for people with severe mental health problems: Commissioning guidance. 33 NSIP, 2008, Finding and Keeping Work. www.socialinclusion.org.uk/publications/Toward_a_MH_employment_strategy_ revsied_after%20repairs.pdf 34 The national indicators are the means of measuring national priorities that have been agreed by government. 35 Dame Carol Black, 2008, Review of the health of Britain’s working age population. Working for a healthier tomorrow. 36 For the announcement of the development of the national mental health and employment strategy see: www.dwp.gov.uk/mediacentre/pressreleases/2007/nov/drc057-271107.asp 37 Cabinet Office, op. cit., 2006. 38 Action 23 reads “Building on current guidance and legislation, the Government will develop dedicated regional teams to provide further support for the implementation of good practice around employment of those with severe mental health problems.” 39 The Mindful Employer initiative is aimed at increasing awareness of mental health at work and providing support for businesses in recruiting and retaining staff. See website www.mindfulemployer.net/ 40 See Shift’s line managers’ web resource site: www.shift.org.uk/employers/ 41 www.mentalhealthfirstaid.csip.org.uk/ 42 See the Health and Safety Executive stress website: www.hse.gov.uk/stress/index.htm 43 See Department for Work and Pensions’ announcement: www.dwp.gov.uk/welfarereform/cities_strategy.asp 44 For information on Increasing Access to Psychological Therapies see: www.iapt.nhs.uk/ 45 Department of Health, op. cit., 2006 CHAPTER 3 17 LEARNING AND SKILLS VISION People with mental health problems, by accessing learning and skills provision, should be able to lead active and fulfilling lives as part of their communities and in employment, in a way that sustains mental wellbeing. Our vision is that: Learners with mental health problems have equal access to the full range and diversity of learning opportunities in their area. Learners take a valued and active part in their education and progress towards their goals in life and work. Collaboration and partnership working with key stakeholders, including learners with mental health problems, ensure that holistic packages of provision meet learners’ learning, skills, employment and mental health needs. CHAPTER 3 LEARNING AND SKILLS PROGRESS SINCE 2004 “Adult learning has enabled me for the first time to have goals that I know, with effort and work, I can achieve.” 46 We know that involvement in learning can often have a positive impact on a person’s mental health. In addition to acquiring new skills, learning can promote confidence, build resilience to stress and give people a greater sense of purpose. It enables people to meet other students and make new friends, and can lead to getting back into employment or finding a better job. As employers demand and need an increasingly skilled workforce, taking up opportunities to participate in learning as a route to employment and learning opportunities at work is becoming more important, particularly at a time of economic downturn. Ensuring that learning and training opportunities support progression to employment and prospects for getting on in the workplace have been key elements of the work that NSIP carries out through the learning and skills work stream. There has been considerable progress since the publication of the SEU report 47 in understanding the learning needs of, and improving the levels of support available to, people with mental health problems who want to learn. CARE PROGRAMME APPROACH (CPA) SOCIAL INCLUSION PROJECT In the East Midlands, work funded by NSIP with support from the Learning and Skills Council (LSC) led to a baseline being set for educational attainment for people on the enhanced Care Programme Approach (CPA) not educated to level 2, which is often seen as the key indicator for employers on employability. The research 48 highlighted the level of educational disadvantage experienced by many people with mental health problems, and how this compounds the disadvantages that they already face in the labour market. “This course has allowed me to get to grips with my new early rises at 8am, my laundry, my shopping and meal arrangements, and begin to learn about the importance of saving my money for a flat… I can still go on and do a university course. Only now I have a little more experience of being in education again. I also have living skills.” 49 PARTNERSHIP PROGRAMME A Partnership Programme between NSIP, the National Institute of Adult Continuing Education (NIACE) and the 18 Learning and Skills Council (LSC) has allowed us to make an impact on the Further Education system and to create a body of work that will have a positive effect on the social inclusion of people with mental health problems and leave an enduring legacy. An LSC Task Group has been set up to oversee and advise on the work of the Partnership Programme whose membership includes the Department for Children, Schools and Families; the Department for Innovation, Universities and Skills; the Department of Health and the Department for Work and Pensions; the Employers’ Federation; learners with mental health problems and the voluntary sector. NSIP contributed to the 2008 follow up strategy ‘refresh’ to the LSC’s 2006 ‘Improving services to people with mental health difficulties’.50 This provides a renewed vision promoting the social and economic inclusion of people with mental health problems through improved access to and success in learning and skills. The final strategy will be launched March 2009 and will incorporate an action plan to 2015 that will help safeguard the interests of learners. The Partnership Programme has successfully changed the climate of support for learners within the LSC. At a national and strategic level the programme has consistently advocated for learners with mental health problems and through it, we have also built the capacity of providers to better meet learners’ needs by developing resources, good practice guides and a quarterly newsletter. NSIP has developed learning resources to support progression into learning and work, such as the ‘Really Useful Book of Learning and Earning’.51 New procedures and forums have been created to allow greater involvement of learners with mental health problems in the development of policy and practice for better education and training provision. We have also successfully encouraged the LSC and other learning providers to sign up to be ‘Mindful Employers’ to support them in their role as an exemplar public sector employer. Regional Project Officers lead the regional implementation of the Partnership Programme, with great effect, resulting in major improvement in our working relationships with each regional LSC. These posts are crucial if we are to ensure national strategy is implemented regionally, that it impacts on providers and consolidates collaborative working with the Regional Employment Team leads. 19 ‘FAST TRACK’ SCHEME In Portsmouth, the PCT’s Early Intervention Team secured funding from the LSC and developed a partnership with local colleges for a ‘fast track’ scheme for clients into Further Education with some excellent outcomes, such as ‘Back on Track’, a project tailored to meet the vocational needs of young people with mental health problems. Within the action plan, the Partnership Programme will need to continue to build on successes and, in particular, to drive further development of the work that has already begun to improve learning and skills opportunities for young people, aim to inform the work of the Integrated Employment and Skills Service, carry out a review of learning and skills within Forensic Services and Secure Units, take a more proactive approach to being an exemplar employer and continue to develop the capacity of the learning and skills workforce. COLLABORATIVE WORKING We have undertaken a range of projects, including the ‘Is it for me?’ initiative, which is described in more detail in chapter 1. We have also encouraged better collaborative working between Early Intervention in Psychosis Services and Child and Adolescent Mental Health Services to ensure that young people experiencing mental health problems are supported to remain in education, training and employment. All of the work we carry out at national and regional level is informed by a co-productive process of sustained dialogue between policy makers, practitioners and learners. Through the dissemination of information and the sharing of good practice, policy informs practice but the voice of the practitioner and the learner clearly informs policy across government and sectors. REMAINING CHALLENGES The continued drive within the Further Education system towards targets on the number of learners achieving qualifications of level 2 and above has led to a loss of the non-accredited and lower level courses in the sector that have often been the first step into learning for many people with mental health problems. Funding for adult education has also been increasingly directed towards work-based learning, yet low take up of these opportunities by people with mental health problems continues to be problematic. The end of the LSC in 2010 as the primary funder of this programme of work and the establishment of two new agencies to take its place presents many challenges in ensuring the continuation of the work of the Partnership Programme. CONCLUSION AND PROPOSED FUTURE ACTION To work towards our vision of learners with mental health problems leading fulfilling lives, we want to safeguard their interests within the structures of the LSC’s successor organisations. The LSC’s action plan should highlight the need to manage that transition to the new agencies and to the new requirements placed on local government. 46 NIACE/NSIP, 2008, The Really Useful Book of Learning and Earning. 47 Social Exclusion Unit, op. cit., 2004. 48 V Utting and C Law, 2008, East Midlands Care Programme Approach (CPA) Social Inclusion Project, Final Report, NIACE downloadable from www.niace.org.uk/mentalhealth/docs/EM/EM-CPA-project-final-report.pdf 49 Ibid 50 Learning and Skills Council, 2006, Improving Services for People with Mental Health Difficulties. 51 NIACE/NSIP, op. cit., 2008. CHAPTER 4 20 HOUSING VISION Stable and appropriate housing is important if people with mental health problems are to work and take part in community life. Being able to live independently is equally important to creating a socially inclusive community. Our vision is that: People with mental health problems have a place to live that provides a sense of well-being, belonging and continuity. Effective joint working between specialist and mainstream housing, health and social care agencies improves outcomes. The barriers to flexible choice are removed. Reliance on specialist accommodation and services is reduced. Commissioning of services meet people’s needs in a holistic way and is effectively integrated. 21 PROGRESS SINCE 2004 “We need our independence and we want support only when we need it, but we still want to be safe and secure.” 52 Since the SEU report,53 NSIP has coordinated implementation of the action points on rent arrears management to reduce non-payment and evictions, leading to the publication of ‘Improving the effectiveness of rent arrears management’,54 and local authority allocations schemes which resulted in ‘Implementing and Developing Choice Based Lettings: A guide to key issues’.55 Following on from these, we produced mental healthspecific briefing documents for housing, health and social care staff on rent arrears management 56 and Choice Based Lettings 57 to encourage better joint working between services and increase support for people with mental health problems to improve their housing situation. This has helped prevent evictions and improve opportunities to achieve independent living. NSIP has also coordinated the SEU report’s actions on homelessness. This includes the revision of the Code of Guidance for local authorities which set out revised definitions of those in priority need of housing.58 We also worked with the NIMHE/CSIP regional development centres on a series of events to engage staff and people using local homelessness services in the research process to inform the development of ‘Getting Through: Access to mental health services for people who are homeless or living in temporary or insecure accommodation: A good practice guide’.59 To help drive progress forward, NSIP has brought together key government departments, housing agencies and stakeholders into a national Housing Reference Group. The group’s role has shifted on from advising on the production of guidance documents to becoming a flexible resource, consulting and disseminating information on new policy and emerging practice. As a result, we have been able to respond rapidly to and advise on any new housing and mental health developments or initiatives. NSIP is committed to ensuring that people with mental health problems using housing services are listened to when developing local and national policy. For example, we have coordinated a series of consultation events, working on behalf of, and across health policy areas to gather the views of the wide range of people using services funded by the Supporting People programme, including people with mental health problems, and to feed them into the development of the Supporting People national strategy.60 MENTAL HEALTH AND LIAISON OFFICER Telford PCT and the local authority mental health service jointly fund a post for a Mental Health and Housing Liaison Officer, whose brief has been to foster understanding and co-working between these two sectors at local level. Key activities include coordinating a mental health and housing referral panel that has highlighted unmet need, providing advice to frontline staff, developing a training package for both sectors, and organising two annual conferences to enhance information sharing and networking between local agencies. We have contributed to the joint Communities and Local Government and Department of Health ‘Housing Learning Improvement Network (LIN) guidance’ on mental health assessments of those who are homeless or insecurely housed.61 We have also worked on other Housing LIN initiatives, such as the current review of the Turnbull ruling on Housing Benefit eligibility, the growing role of ‘extracare housing’, and a study of the experiences of people with mental health problems who have been homeless. NETWORK FOR CHANGE Network for Change, a voluntary sector mental health support service in Leicester, is coordinating an action learning set that brings together specialist mental health housing workers and local homelessness and housing resettlement staff with the aim of increasing awareness of mental health and to improve communications between staff in the related agencies. It has demonstrated how to enhance recognition of mental health issues and how to build networks and relationships. Recognising the importance of the Care Programme Approach (CPA) as a vehicle for promoting social inclusion within secondary services care and support planning, NSIP has contributed to the housing section within the revised CPA guidance,62 helping to raise the profile of homelessness and non-secure housing as priority issues for new CPA allocation. One of the most significant developments concerning housing and mental health since the creation of Supporting People has been the new Public Service Agreement (PSA) 16 to increase the proportion of socially excluded adults in settled accommodation and employment. NSIP has provided expert advice to the Cabinet Office on both housing and mental health but CHAPTER 4 HOUSING also on wider social inclusion issues. We have since worked with the Cabinet Office, Communities and Local Government and the Department of Health to secure agreement on the approach to PSA implementation and continue to provide high level input to the regional roll out. This has been done by raising awareness and securing engagement with regional Government Offices and the Cabinet Office. The NSIP Reference Group (consisting of people with mental health problems and carers) has also made an invaluable contribution to the PSA development and delivery process. Chapter 6 explains the role of the Reference Group in more detail. REMAINING CHALLENGES Although considerable progress has been made, we have identified a number of potential challenges that will need to be addressed. The SEU report called for mainstreaming of mental health awareness training for all housing staff but this has still not been achieved. We would recommend that all new and existing staff receive mental health awareness training to enable them to respond to people in a supportive and flexible way. Improved communications are often needed between those working in housing and mental health services to help support people with severe and enduring mental health problems with independent living. However, PSA 16 should raise awareness of the need for cooperation and local performance framework structures, especially the Joint Strategic Needs Assessment, to identify unmet need and less effective coordination of services. Both the PSA and the CPA guidance stress the need for effective and proactive work with those in secondary care who are, or who become, homeless. Yet there is also work to be done on how to meet the mental health needs of homeless people who are not in contact with secondary mental health care. Here, new approaches may be needed, and Practice-Based Commissioning via primary care could be equally or more suitable. Greater pooling of resources at a local level will help make sure that services respond flexibly to the needs of their local communities and the development of shared local priorities. However the removal of the ‘ring fence’ for the Supporting People grant presents risks to local services and commissioning, such as resulting in funding being diverted away from providing much needed supported housing for people with mental health problems. 22 and Communities Agency and the Tenant Services Authority could bring a risk of the loss of the commitment to housing for the most at risk groups. Certain challenges remain which may act as barriers to the inclusion of people with mental health problems in mainstream communities. For example most people with mental health problems live in their own homes, but those with higher support needs may still be inappropriately living in residential care. Similarly, a lack of suitable move-on accommodation can result in extended stays in hospital. Also people with mental health problems report that they are likely to be allocated less desirable properties and neighbourhoods, than the general population. With greater local accountability for all services, including social housing, it is important that people with mental health problems and carers, and mental health services engage in these local debates on the housing that people need. CONCLUSION AND PROPOSED FUTURE ACTION Commissioning and system change will require vision and local leadership. We believe such a vision comes not just from managers and commissioners but also frontline staff, carers and people using services themselves. Housing has become an increasing focus of concern for mental health services and the work of NSIP has been instrumental in converting generalised concern into a set of achievable actions. With the impetus provided first by the Public Service Agreements and also by new work on inequalities, public health and the social determinants of health, we are confident that this work agenda has a solid foundation and will continue to progress. 52 Telecare Services Association, 2008, Telecare and Telehealth – Centres of Excellence 53 Social Exclusion Unit op. cit., 2004. 54 Office of the Deputy Prime Minister, 2005, Improving the Effectiveness of Rent Arrears Management: Good Practice Guidance. 55 Office of The Deputy Prime Minister, 2005, Implementing and Developing Choice Based Lettings: A guide to key issues. 56 NSIP, 2006, Improving the Effectiveness of Rent Arrears Management for People with Mental Health Problems. www.socialinclusion.org.uk/publications/Rentarrearsbriefing.pdf 57 NSIP, 2006, Choice Based Lettings for People with Mental Health Problems A Briefing Guide. www.socialinclusion.org.uk/publications/NSIP_CBL_briefing.pdf 58 Communities and Local Government, 2006, Code of Guidance for Local Authorities. 59 NSIP, Department for Health, Communities and Local Government, 2007, Getting Through: Access to mental health services for people who are homeless or living in temporary or insecure accommodation: A good practice guide. 60 Communities and Local Government, 2007, Independence and Opportunity – Our Strategy for Supporting People. 61 Communities and Local Government/CSIP Housing Learning and Improvement Network, 2008, Housing LIN Briefing: Understanding Homelessness and Mental Health. 62 Department of Health, op. cit., 2008. Major restructuring of the housing regulatory and funding frameworks took place in December 2008 and the creation of entirely new organisations such as the Homes CHAPTER 5 23 ARTS AND CULTURE VISION Arts, cultural engagement and community participation are fundamental to the development of socially inclusive society. People with mental health problems should have access to the same diverse range of arts and cultural activity as others in the places where they live. Our vision is that: The role that arts and culture play in improving wellbeing, health outcomes and personal identity is recognised and resourced. Community and large-scale arts organisations will work with and alongside people with mental health problems, to understand how to remove barriers, be accessible and reduce stigma. The use of arts and culture raises awareness of mental health problems and supports the challenge against stigma and discrimination. CHAPTER 5 ARTS AND CULTURE PROGRESS SINCE 2004 Arts and culture include all creative activity whether engaging by seeing, listening or taking part. Participation in the arts can give people a positive alternative identity to that of ‘service user’ and help people be part of the wider community by increasing self-esteem, confidence and social networks. Arts and culture also play an important role in health and healthcare provision. They help deliver real and measurable benefits across a wide range of priority areas for health and can enable the Department of Health and the NHS to contribute to key government initiatives. Strong leadership through promotion, development and support, is required to create an environment in which people with mental health problems can prosper through their involvement in arts and health. The SEU report 63 highlighted the need for research to understand improvements in health and social outcomes as a result of participation in arts projects. In response to this, ‘Mental health, social inclusion and arts: developing the evidence base’ 64 was published. It found that: There were significant improvements in empowerment, mental health and social inclusion. There was a significant decrease in the proportion of participants identified as frequent or regular users of services. The improvement in empowerment and mental health amongst people with more severe issues at baseline indicates that arts projects can benefit people with a range of mental health needs, including those with more significant problems. “When I am painting I forget everything else. Realising that I can develop my artistic skills I feel proud of what I have achieved and it has done wonders for my self-esteem.” 65 In response to these findings, NSIP successfully established a working partnership with The Wallace Collection, the Museums, Libraries and Archives Council, Tate Modern, Portugal Prints and the V&A. Museums and galleries can address social exclusion not only by encouraging participation in the arts, but also by connecting people with experience of mental health issues to the wider community, and by promoting access to training, volunteering and employment opportunities. ‘Open to All’, a training package launched by the Health Secretary at a joint NSIP event at The Wallace Collection in September 2008, is designed to encourage museums 24 and galleries to involve people with experience of mental health problems, thereby helping to build the necessary bridges to museums and galleries and the wider community. Commissioned by the partnership, it was developed by the University of Nottingham, Nottingham County Teaching PCT and the Lost Artists Club and will be available for staff in museums, libraries and galleries at a local level throughout the country, from mid 2009 onwards. NSIP has also widened its arts focus to include participatory arts, such as theatre, dance and music. A range of innovative practice is underway through our partnership working with the Arts Council (England) and each of the Arts Council Regions, NIMHE/CSIP regional development centres, theatres and community arts organisations and practitioners. THEATRES SOCIAL INCLUSION PARTNERSHIP A group of London-based theatres including the Royal Court, Roundhouse, National, Southbank, Half Moon and Tricycle are working in partnership with NSIP and the Arts Council to become leaders in social inclusion. They are developing ways to include social inclusion issues through their local communities and policies. A seminar held in November 2008 was hosted by the Roundhouse in order to celebrate this unique partnership, widen the debate and to explore further opportunities. Ongoing work will include the coordination of web-based and real discussion groups to pool experiences, ask questions and define goals for a co-produced programme. We have established a national arts evaluation advisory group with membership from arts practitioners, arts therapists, academics, people with mental health problems, health practitioners and commissioners as part of its work stream on evidence and innovation. The group has developed evaluation guidance and support for arts organisations and practitioners which will both add to the evidence base and help organisations who want to commission arts and cultural initiatives. This guidance will be published spring 2009. Work is also underway in both the North West and South West, where arts organisations are working in co-production with health and social care partners to create healthy, sustainable communities. The South West work will be launched in May 2009 with a conference in Dartington. 25 NSIP has carried out a review of regional and local arts in health programmes in order to develop and build regionally focused networks. These bring together NSIP social inclusion leads, service improvement leads, arts practitioners, voluntary and community arts organisations, academic institutions and arts council regional leads and links these to a pan-European network of arts, inclusion and wellbeing in practice. SING YOUR HEART OUT (SYHO) Singing workshops are run by a professional voice coach in Norfolk, for people who use mental health services, friends, family, support workers and staff. In 2008, NSIP commissioned an evaluation of the socially inclusive benefits of the workshops. Its evaluation looked at the way in which SYHO provided: An opportunity for individuals to develop skills and resilience that support their recovery and social inclusion. A bridge to connect with socially inclusive opportunities within the local community. A vehicle to tackle the stigma, discrimination and inequalities encountered by people who experience mental health problems. The evaluation established significant evidence that SYHO has provided a great opportunity for individuals to develop a range of singing and choral skills. These skills, together with a supportive environment have encouraged the development of varying degrees of interpersonal skills. Social interaction has enabled a sense of inclusion and impacted positively on the recovery of those involved. www.socialinclusion.org.uk REMAINING CHALLENGES There is a risk that arts and culture activity is not given enough attention within a landscape of public service agreements and local area agreements. Projects are often funded for time-limited periods, which can make evaluation and continuity difficult. CONCLUSION AND PROPOSED FUTURE ACTION NSIP has worked with a range of key stakeholders to ensure that arts and culture in relation to mental health and social inclusion retains a high profile within the wider policy agenda. We would like to see more partnership working across central and national structures as the complex nature of this work demands a more co-productive approach in the future. There is greater scope for the Department of Health, Department for Culture, Media and Sport and Department for Innovation, Universities and Skills to focus on arts and cultural development together, enabling more innovative and creative activity. NSIP is working in partnership with the Cultural Olympiad 66 to ensure the social inclusion of people with mental health problems. We are working in partnership with the South West Cultural Olympiad and are part of the advisory group on local cultural activity. This work is in its very early stages and it is envisaged that it will be developed alongside other localities in preparation for 2012. NSIP is working in partnership with the London Arts in Health Forum to establish a network of key organisations to coordinate activity in arts and wellbeing. We have supported the development of evaluation guidance leading to an accessible evidence base. The publication of the Arts Council and Department of Health joint prospectus on arts in health in 2007 has seen the beginnings of positive development in the arts and health sector. This work should be built upon to ensure that it addresses the inclusion needs of people with mental health problems. 63 Social Exclusion Unit, op. cit., 2004. 64 Anglia Ruskin/UCLan Research Team, 2007, Mental Health, Social Inclusion and Arts. 65 Ibid. 66 london2012.com/get-involved/cultural-olympiad/index.php CHAPTER 6 26 LEADERSHIP AND WORKFORCE DEVELOPMENT VISION Strong leadership and a skilled, effective workforce are both essential in setting the direction that makes a positive difference to the lives of people with mental health problems. Our vision is that: Commissioning for socially inclusive outcomes drives the commissioning of all services. Corporate and strategic sign up to social inclusion shapes service delivery. Social Inclusion is an integral part of professional pre-registration training and continuous professional development (CPD). People with mental health problems and their carers lead the development and promotion of socially inclusive services with staff and organisations. 27 PROGRESS SINCE 2004 Lessons learned included: NSIP has supported projects at both local and national level that reflect the importance of leadership and workforce development throughout the NHS and its provider organisations, services and staff. We have also actively developed a close relationship with a number of professional bodies of staff working in mental health services which has had a positive impact on both the national strategy and guidance that they provide. It has also given us a direct route to clinicians and practitioners, and to influencing practice on the ground. The importance of adding value at a strategic level by alignment with organisational priorities, whilst avoiding reliance on a top-down directive approach to motivate participation. DELIVERING EFFECTIVE LOCAL LEADERSHIP FOR SOCIAL INCLUSION (DELLSI) Taking a team approach, so that different groups and individuals pursue their issues of concern and build from their strengths. The aim of the DELLSI initiative has been to facilitate the bringing together of leadership development and service improvement at a local level to promote social inclusion. To achieve this, three NHS Trusts 67 were recruited through the Mental Health Network of the NHS Confederation and these took part in the programme between September 2006 and May 2008. Key features included: Developing the position of participating organisations within their local communities and supporting their work in promoting the social inclusion of people using their services. Focusing on outcomes of agreed local importance. Exposing and promoting the positive core of the participating organisations and the individuals within them. Using assessment tools and research-based approaches to strengthen team working among senior leaders and managers within and across local organisations to promote effective partnerships. A Development and Delivery Team (DDT) was established with support from NIMHE to oversee the initiative and coordinate the work. Working with local staff to help build capacity and sustainability, ‘learning and exchange events’ were held where teams from the three Trusts came together in a supportive atmosphere to share experiences. Bespoke initiatives were developed covering issues such as governors’ awareness of and involvement in social inclusion work as part of the establishment of a Foundation Trust, building relationships with local resources for leisure (based on the assessed need and involvement of people using services), engaging with community leaders and developing care planning processes to be more socially inclusive. The need to ground plans in a systematic assessment of what people using services say they want and need. Building from participants’ own understanding and evaluations of social inclusion locally. Maintaining a ‘can-do’ approach and remaining hopeful even in the face of resistance, apathy or events not going as planned. Using senior stakeholders to broker relationships on behalf of the team. Engaging people who use services to communicate the project messages throughout the organisation. Being realistic about the time frame needed to achieve improvement and consciously promoting sustainability from the outset. The DELLSI initiative has been positively evaluated and work is underway with new partners to develop a second phase with twice the number of sites. EXPERT ADVISORS AND REFERENCE GROUP “There is no doubt that we have set a high and successful standard for service user involvement and this is probably one of our greatest achievements.” 68 NSIP has always recognised the importance of meaningful involvement and participation of people with mental health problems and carers to co-producing our work. We have been working since 2006 with four Expert Advisors, recruited from the existing Shift Board of Advisors. Helping to forge stronger links across the two programmes, participating on recruitment panels and in the active measurement of good practice in a range of service settings, contributing to the development of key resources such as our website, evaluation tenders and publications; the impact and contribution of our advisors has been enormous. In addition, they have contributed to the public profile of inclusion work by playing an integral part in the planning, organisation and delivery of NSIP hosted events, most CHAPTER 6 LEADERSHIP AND WORKFORCE DEVELOPMENT 28 notably at a key conference held at Charlton Athletic Football Club in 2008, and presenting at these events on a range of issues. They have also supported the development of the Reference Group. “Being at the cutting edge of a new form of user involvement, where involvement is no longer the appropriate word, because that puts the onus on the professionals. Cooperation in its literal sense of working together.” 69 The Reference Group, with its 15 formally appointed members, started life in 2005, initially to work specifically on the employment and benefits issues within the programme. However, such is the collective contribution of the group that its perspective has been broadened to cover the entirety of our work, offering NSIP a practical means of integrating its strategic work with individual experience. The Reference Group also provides regional progress updates to the national team and feedback on national progress to the regional groups; a way of gathering local information and inputting to national policy and consultations to empower people to influence the services they receive. Group members reflect the national context of the work undertaken by NSIP both in terms of the rich variety of interests and geographic spread that they represent. The group has contributed to a number of important pieces of work including: i Meeting with government officials to feed in the perspectives of people with mental health problems on a range of policy, such as: HM Treasury’s review of mental health programmes. The operation by the Department for Work and Pensions of Disability Living Allowance. The Department for Work and Pensions’ Disability Standards booklet ‘Help if you are ill or disabled’,70 proposing suggestions for the way forward for improving customer services. ii Working with ministers and senior officials to highlight issues surrounding the impact of benefit down-rating for people with long-term hospital stays, securing £60 million in benefits. iii Providing briefing for Department for Work and Pensions’ ministers on the operation of the benefit system and employment programmes and inputting to a departmental position paper on Permitted Work, to ensure inclusion in the roll out of the Public Service Agreement 16 targets. iv Feeding into the roll out by Jobcentre Plus of Employment and Support Allowance. v Taking part in the consultation on the Independent Living Strategy by the Office for Disability Issues.71 vi Directly feeding into the consultation on future service provision of the Learning and Skills Council. vii Contributing to the Royal College of Psychiatrists’ book on socially inclusive psychiatry, due to be published late 2009. viii Working alongside a community engagement specialist conducting site visits as part of the ‘Communities of Influence’ project. COMMISSIONING NETWORK NSIP has contributed to a number of regional initiatives aimed at supporting commissioners. In response to demand from mental health commissioners, and particularly those with joint commissioning responsibilities, we established a commissioning network for social inclusion in early 2008. As well as the network meetings with workshops held in London and the East Midlands, a considerable amount of activity is self-generated by commissioners, who share ideas and requests with each other. There have been continued close links with the day services programme and network members have requested the production of broader socially inclusive outcomes guidance for commissioners and providers,72 adapted from the day services framework.73 This network is ready for development and will need to find a new host in 2009. NSIP has supported the embedding of inclusive outcomes into ‘World Class Commissioning’ which needs to be delivered within a social as well as clinical framework, and which will be a key driver for delivery organisations. If commissioning is to ‘add years to life and life to years’ 74 then socially inclusive outcomes will need to be pivotal in shaping this agenda. Whilst the statutory responsibility for implementing the social inclusion agenda lies with local authorities and PCTs, it has often been mental health services that have championed action, with many appointing social inclusion leads and staff. Partnerships between all the local players, including third sector organisations, are essential. 29 ACADEMIC AFFILIATES The Collaborative Academic Network is a co-designed learning network, led and coordinated by the University of Central Lancashire (UCLan). Its members work together to advance practical and relevant commissioned research and developmental work on social inclusion in mental health and to facilitate the spread of inclusive learning into practice and evidence. The network’s key tasks are to: Collaborate to clarify a set of metrics that can be used by commissioners and regulators to assess the effectiveness of mental health social inclusion work at a local level. Develop a community of practitioners and researchers who actively link research into practice and vice versa, in order to enhance social inclusion in mental health. Develop and disseminate evidence-based practice to inform every level of the mental health system. Many members of the Academic Network were formerly part of NSIP’s earlier Research and Evidence Coalition. This coordinated and supported a range of research initiatives on inclusion and mental health, some of which attracted significant funding and profile both nationally and internationally.75 For more information please see Annex A. In 2007/08, NSIP produced a data report for each of the regional employment teams (RETs). The reports drew on existing national data sources, as far as possible breaking down data to a local level and exploring trends over a three-year period (2005–2007) in relation to employment, benefits and education issues for people with severe mental health problems. The reports provided each team with information and analysis they could use as a starting point in discussions with service providers, commissioners and other partners to inform the targeting of their interventions. Background information was included on the data sources, including commentary on the data quality and any limitations of the data sets. Ongoing challenges in relation to this work are: Variations between data sources in their definition and classification of mental health problems, in the populations they cover and the frequency of data collection. The extent to which national data can be reliably disaggregated to provide locally relevant information. The need for expertise and continuity of approach to reproduce any of the analysis to monitor progress over time and the resource implications that this would have. The lack of clarity about what is realistic to expect in terms of progress and the extent to which changes can be attributed to national policies and initiatives. PROFESSIONAL NETWORKS Workforces need to have the right professional and leadership skills if they are to reflect the emerging demands of delivering socially inclusive practice. NSIP has supported putting strategic and professional level structures in place to ensure that appropriate development takes place and that frontline workers get the right support at the right time. The SEU report 76 referenced the barrier to inclusion constituted by low expectations and negative assumptions by frontline staff about the capabilities of people with mental health problems. In order to challenge these perceptions and improve the experience of people using services, NSIP commissioned the identification of socially inclusive ways of working, using the framework of the ‘The 10 Essential Shared Capabilities’ (ESCs) 77 to allow staff to reflect on their practice. The Royal College of Nursing (RCN), the College of Occupational Therapists (COT), the British Psychological Society (BPS), the Royal College of Psychiatrists (RCP) and the Social Care Institute for Excellence (SCIE) fielded representatives to a working group which led to the publication of the ‘Capabilities for Inclusive Practice’.78 This provided a mapping of individual capabilities to the ‘Knowledge and Skills Framework’ 79 and organisational capabilities as described by the Healthcare Commission in ‘Standards for Better Health’.80 The professional bodies have continued to show strong commitment to the social inclusion agenda. Good practice examples include: Publication by the BPS of ‘Socially Inclusive Practice’ 81 and supporting the secondment of a clinical psychologist into the NSIP team. The BPS has also established a Social Inclusion Steering Group with work streams on Children and Families, Offenders in prison and Return to work. A two-year secondment of an occupational therapist into NSIP, funded by the COT, and publication of a mental health strategy document ‘Recovering Ordinary Lives’ 82 influenced by the NSIP agenda. Also a joint publication of ‘Work Matters’,83 a guide to CHAPTER 6 LEADERSHIP AND WORKFORCE DEVELOPMENT 30 employment for occupational therapists in mental health services. A Social Inclusion sub group hosted by the RCP, currently working on a publication to help define and develop the role of psychiatry in relation to social inclusion. A joint SCIE and NSIP symposium to support the reengagement of social care staff with social inclusion as a legitimate part of the social work role. A multi-disciplinary event in early 2009 hosted by the RCN with NSIP to showcase policy and practice developments in social inclusion and equality, providing a means of formally consolidating the commitment of all the professional colleges to include socially inclusive oriented practice and associated skills development. All of these professional bodies are looking to influence the incorporation of socially inclusive practice as part of both their undergraduate curricula and continuing professional development (CPD). However, this remains a challenge; while the professional bodies have actively engaged with NSIP during its lifetime, they may have many competing agendas to meet. Promoting social inclusion for socially inclusive practice could depend on individual colleagues who have contributed to this work continuing to be in a strong position to take this forward within their own organisations. STAFF DEVELOPMENT In order to make the capabilities clearly applicable in the workplace for staff, NSIP commissioned the development of two measurement tools. The first 84 measures staff capabilities and was developed by South Essex Partnership NHS Foundation Trust, and the second, developed by people using the services of ‘2gether’ NHS Foundation Trust, is a user and carer-led evaluation tool (due for publication spring 2009) that assesses socially inclusive practice within organisations and Local Implementation Teams. MEASURING INCLUSIVE PRACTICE Sussex Partnership Mental Health Foundation Trust has independently used the ‘Capabilities for Inclusive Practice’ to develop a tool for measuring inclusive team practice,85 and is now sharing this with a local authority housing service to promote good practice across agencies. If we are to see the potential of these tools realised and embedded in changing staff and organisational practice, their greater promotion, dissemination and uptake will need to be secured. This will be a key challenge where the current national network of regional development centre-based social inclusion leads will no longer exist. It may be that both the academic network and professional bodies and their networks will be able to ensure that these tools are accessed by practitioners in the future. ‘COMMUNITIES OF INFLUENCE’ In engaging trusts across England in the ‘Communities of Influence’ project we are linked directly to 14 largescale organisations and their workforces. While the project focuses on members and governors being key to engaging with their local communities, the Trusts have also identified their staff as being an important community to work with. ‘Communities of Influence’ is described in more detail in Chapter 1. It is of vital importance that corporate values and actions reflect inclusion at strategic and operational levels. While many mental health and care trusts include social inclusion in their organisational vision and values, regular revisiting of how this is done needs to take place at corporate, service and team levels to ensure that organisations are meeting their objectives. VOLUNTARY SECTOR CAPACITY BUILDING At a regional level, NSIP has worked with the Mental Health Foundation in delivering a section 64 86 funded project with the voluntary sector in Northamptonshire. Using ‘Capabilities for Inclusive Practice’ 87 as the framework, workshops were provided with the aim of increasing voluntary sector capacity and capability in this area. A further outcome has been the development of an intensive two-day training programme for staff. A one-day intensive training session for trustees is currently in development. CONCLUSION AND PROPOSED FUTURE ACTION Further work is required to achieve our ambitious goals. Practitioners promoting socially inclusive practice can only be effective if the services or organisations that they work in also promote inclusive working. There is outstanding work to be done on the tariff or value to be placed on achieving socially inclusive outcomes in the context of the new model NHS Mental Health (NHSMH) contract. It is believed this may link helpfully to quality premiums and/or Patient Reported Outcome Measures (PROMS). Commissioning is still not always informed by the social inclusion agenda. It can sometimes focus too much on 31 the clinical aspects of mental health and too little on wider outcomes. Integrating commissioning for social inclusion into ‘World Class Commissioning’,88 with inclusion outcomes identified as driving service delivery needs to remain a priority. 67 The three Trusts are Kent, Leeds and West London. At a local level, our work has helped us to identify a number of key learning points about what is needed to support effective local leadership for social inclusion in the future. These include: 72 NSIP op. cit., 2009. 68 NSIP Expert Advisor. 69 NSIP Expert Advisor. 70 See following link: www.jobcentreplus.gov.uk/jcp/stellent/groups/jcp/documents/websitecontent/ dev_015974.pdf 71 Office for Disability Issues, 2008, Independent Living – A cross-government strategy about independent living for disabled people. 73 NSIP op. cit., 2007. 74 Department of Health, 2007a, World Class Commissioning: Vision. 75 As exemplified by the work of Professor Peter Huxley et al in developing, with NSIP, a framework of inclusion measures. 76 Social Exclusion Unit, op. cit., 2004. The need to have senior sponsorship and interest. 77 Department of Health, 2004, The 10 Essential Shared Capabilities – A Framework for the whole of the Mental Health Workforce. Looking at how to align objectives with organisational priorities. 78 Department of Health, 2007, Capabilities for Inclusive Practice. Ensuring that strong local ownership exists at team level. 81 British Psychological Society, 2008, Socially Inclusive Practice. Embedding socially inclusive outcomes in assessments of what local people say they want and need and engaging with a range of stakeholders and partners at the earliest stage. The importance of linking into national developments to add profile to local projects and promote learning and innovation. 79 Department of Health, 2004, NHS Knowledge and Skills Framework. 80 Department of Health, 2007, Standards for Better Health. 82 College of Occupational Therapists, 2006, Recovering Ordinary Lives: The strategy for occupational therapy in mental health services 2007-2017 literature review. 83 College of Occupational Therapists, 2007, Work Matters: Vocational Navigation for Occupational Therapy Staff. 84 South Essex Partnership NHS Foundation Trust, 2008, www.socialinclusion.org.uk 85 Will be available on www.socialinclusion.org.uk 86 Now known as Third Sector Innovation and Excellence in Service Delivery Fund. 87 Department of Health, op. cit., 2007. 88 Department of Health, op. cit., 2007a. CHAPTER 7 32 SOCIALLY INCLUSIVE PRACTICE: THE CAPABLE ORGANISATION AND TRANSFERABILITY OF OUR WORK VISION Mental health services support both individuals and community organisations. Community organisations are flexible enough to allow people with mental health problems to make a contribution. Policy makers, funders and regulators build expectations and ensure that people with mental health problems are involved at all levels. 33 Whilst NSIP’s work has focused on the specific experiences of people with mental health problems, this work should not be entirely separated from the circumstances of other people who experience exclusion. This chapter considers the potential for applying lessons learned in the mental health sphere to other efforts to combat social exclusion. MENTAL HEALTH SERVICES As we set out in ‘Capabilities for Inclusive Practice’,89 both individual and organisational capabilities are required if socially inclusive practice is to be embedded and sustained. Individual capabilities include: A commitment to understand and combat the barriers through which exclusion has a long-term and damaging impact on an individual and their community. The ability to build positive, hope-filled relationships with those who have mental health problems that focus on recovery and inclusion by appropriately addressing mental health problems in the context of the person’s wider ambitions. The ability to build positive relationships with community organisations that open up new opportunities for participation and that challenge instances of discrimination. The skills in matching the person with the right community activity (such as a job, training or leisure activity), negotiating opportunities and adjustments, monitoring progress and helping to repair things if they are at risk of breaking down. Organisational capabilities include: Prioritising a public commitment to social inclusion. Universal and specialist training programmes. Sufficient resources invested in building and maintaining alliances with key community organisations. Effective monitoring arrangements that examine the service outcomes (gaining a job, home or new relationship) and the activities which lead to these outcomes. As already discussed, NSIP has worked to embed these capabilities through a range of interventions including: Contributing to the ‘10 Essential Shared Capabilities Training Materials’ 90 and their uptake by local mental health services. Building commitment by professional bodies so that the values and capabilities are built into pre-qualifying training and continuing professional development for all mental health staff. Publishing guidance for commissioners on day services. Creating learning communities where people have an opportunity to share successes, challenges and solutions. Throughout the development of these resources, we have identified the following as key determinants of socially inclusive practice in mental health organisations: leadership; coherence of policy and practice; and achieving specialisation without fragmentation. Whilst some mental health services have appointed a social inclusion lead and others have sought to embed socially inclusive practice in all roles and activities, we know that progress cannot be made without effective and strong leadership. The culture change necessary in some services creates certain barriers that slow progress. Determined leadership efforts are needed to remain optimistic, to relentlessly pursue change both within and beyond the service, and sustain positive practice. In particular the role of people with mental health problems and carers as ‘experts by experience’ needs to be further recognised and built upon, particularly if the aspirations of co-production are to be realised. This requires a radical rethink about the nature of leadership in public services that pays greater attention to building from strengths, ambitious futures, better outcomes and the challenge of working with complex systems of care and support. If the mental health system is to promote socially inclusive opportunities for people who use their services, its own activities need to be organised in a way that aligns with these priorities. It must create a mentally healthy workplace, employ a representative proportion of people who have mental health problems and listen respectfully to people who use its services, carers and frontline staff. It must build meaningful partnerships with informal community organisations, whilst building up external capacity and promoting creative and responsible risk taking to further the interests of all partners. Promoting social inclusion tends to be seen as important but not urgent work, and so it can be repeatedly pushed aside by crises unless dedicated time is allocated. As well as specialising in inclusion work, substantial progress can be made when workers share out responsibility for community connection and capacity building in CHAPTER 7 SOCIALLY INCLUSIVE PRACTICE mainstream community services. For example, if one staff member builds ongoing links with the local university and another establishes a relationship with the gym or the church, then sustained change can be achieved. Such partnerships create not only opportunities to bring fresh skills and perspectives; they can also be an avenue to obtaining new sources of funding and expertise. ARTS AND MINDS NETWORK Leeds Partnership NHS Foundation Trust (LPFT) has developed a multi-agency partnership with a range of arts organisations as well as voluntary and statutory partners to establish the Arts and Minds Network. The partnership secured Arts Council funding for a series of arts initiatives in health and social care settings and seed-funding for an arts development post. This funding has now been mainstreamed by LPFT with an Arts Development Manager and Development Worker. www.artsandmindsnetwork.org.uk COMMUNITY ORGANISATIONS NSIP has made significant progress because it has ensured action to coordinate strategic and national intervention with local activities. For example, the Castle Museum, in Nottingham has had a long standing association with mental health services and their local work has been enhanced by involvement with the ‘Open to All’ national programme of mental health training for museum staff commissioned by NSIP (see Chapter 5). Similarly, the 15-year history of links between the mental health service and a large Further Education college has been strengthened by the national network of education regional project officers formed through our partnership with NIACE. Our strategic and national interventions have created a supportive climate for local service delivery in several areas of community life including employment, education, the arts and community development. These interventions have blended obligation (such as information to employers about their duties under the Disability Discrimination Act) with good practice examples of what is possible, for example the awareness-raising activities targeted by NIACE at local Further Education providers; and the formation of learning communities, such as the NSIP Affiliates Network. It is also worth noting that while we have worked with large, networked, regulated and centrally funded 34 organisations we have felt it to be as important to work with small, independent and self-run groups. Much community activity is informal, unregulated and shortlived and so the task of assisting such groups to offer people with mental health problems opportunities to contribute must rely upon their individual relationships with mental health services. Achieving spread and sustainability relies largely on effective relationships between mental health services and community groups and organisations. These relationships need to assist people who use mental health services to make the transition into engaging with the community beyond the service, whilst retaining needed supports. They need to monitor what is working and be able to take action when support arrangements are found to be inadequate. They need to collaborate on building sustainable communities whilst ensuring that funding is used for the right purpose. DEVELOP (THE DEVELOPING VALUED LIFESTYLES PARTNERSHIP) Develop was formed in 2003. It is an informal consortium of local mainstream organisations, mental health service providers, people with mental health problems, their families and associates who work together promoting social inclusion in the London Borough of Bromley. Develop coordinates collaborative networks and inclusive practice forums using one comprehensive infrastructure to support inclusion at individual, service and community levels. www.developbromley.com POLICY MAKERS, FUNDERS AND REGULATORS Social inclusion work requires a panoramic view of policy, funding, regional and local implementation, regulation and impact across a range of areas. These include employment, housing, learning and skills, transport, families, relationships and leisure. Also human rights, civic responsibilities, access issues, neighbourhoods, service delivery and development. Sustainable success demands: Effective links with local services and people, so that problems are quickly identified and addressed, while solutions are easily tested to see if they are fit for purpose. This is important as frontline workers sometimes accept ineffective policy and regulation rather than set about changing it, while policy makers sometimes pay insufficient attention to local realities. 35 Resources (people, skills and time) to scan the horizon across a wide range of policy areas and respond to issues that might hinder or advance the inclusion agenda for people with mental health problems. These resources can be scarce at local level. Strategic alliances with mainstream community organisations to create dialogue, workable solutions and convincing cases for change. A long-term approach that combines both insistence that change is not delayed with the recognition that policy, funding priorities and inspection criteria are not changed overnight. TRANSFERABILITY TO OTHER GROUPS There is potential for synergy across traditional client groups. For example, services for people with learning disabilities are currently seeking to increase the numbers in employment as part of the PSA 16 target because there are so few people with learning disabilities in work. As a result there has been little focus to date on job retention for this group, while retention has been a major feature of employment work in mental health. STEPPING STONES A multi-agency programme, launched in 2008, enables Swindon’s key public sector employers to maximise their disability equality initiatives by working together and directly linking to local supported employment agencies. Between them these agencies support hundreds of highly motivated disabled people who are actively seeking employment or work experience opportunities. The initiative is led by Swindon Borough Council and now encompasses Capita, Swindon PCT, Great Western Hospitals NHS Foundation Trust and Wiltshire Police. Similarly, the employment activity in learning disability generates ideas about how to introduce a new group into the workforce and so offers solutions for people with long standing mental health problems who have never worked. Coordination across traditional client groups will be increasingly important as more health and social care services adopt outward-facing approaches and so need to avoid, for example, employer, learning and volunteer organisations being inundated with uncoordinated requests for supported access and reasonable adjustments. There are also positive examples of how links between social inclusion and public health are being brought together to have a positive impact on the experience of people using mental health and other services. SMILE (SERIOUS MENTAL ILLNESS LEARNING AND EVALUATION) The project utilised funding to create innovation schemes that improved the physical health of people with serious mental health problems across a diverse group of agencies using a range of interventions. Much more remains to be done if a socially inclusive approach is to be embedded in the day-to-day practice of frontline mental health staff and if the barriers that remain in mainstream community organisations are to be removed. CONCLUSION “I was in such a hopeless place I ended up in secondary mental health services. Then I took back control of me and have managed to travel quite a distance down my recovery path. I have a life again.” 91 This report has detailed the work that has taken an essentially panoramic view of what was to be done. It has been rich in content and participative in process. We, the NSIP team, have been fortunate in having the opportunity to undertake work that is challenging and satisfying in equal measure and which could lay foundations or set a compass point. We hope to have made the most of the opportunity, building on the previous effort of others to make at least some progress in the wide range of areas at which we have looked, taking the brief to do so from the equally broad remit of the SEU report.92 Thanks to external partnerships of great goodwill and the immense collaborative commitment of so many friends and colleagues, this progress, in a once new, now well-established area of policy, has been cost effective and is progress of which we are proud. The still central role of services and their expectations for people with mental health problems has determined something of the focus of our work. There is a major challenge in how the role of services is to be transformed in the future. The fundamental importance, and value, of engaged communities will need to be affirmed ever more widely. Work on inclusion needs to look critically at the ways in which services become part of, and accountable to communities themselves. We need to see the changes of the last four years embedded in the activity of the next. This will require CHAPTER 7 SOCIALLY INCLUSIVE PRACTICE long-term coordination, regional support and local implementation. It will also demand wide-ranging, robust and imaginative leadership, coupled with rigorous monitoring of person-led, rather than service-led, outcomes and a strong, collaborative and practical approach to evidence development. Combining these efforts will continue to involve passionate commitment to the dignity of the individual but it will need to balance this with closer and active reference to the potential of community life in the many and diverse communities of which people with mental health problems are a part. In this, there will be a need for funding and prioritisation of resources to grow mainstream capacity and to commission it effectively. We have tried to use an opportunity, limited by time, to create a web of action that can impact in such diverse settings because this is work that is often connected and contingent rather than linear. Continuing progress will mean extending this impact. Responsibility, leadership and a level of effective coordination remain vital and the growing commitment of commissioner and regulator alike to the inclusion agenda is both welcome and essential. Nevertheless, the practical requirements of innovation, engagement and shared learning across awkward and complex boundaries over time will demand a pluralism in approach to change. Like much else, inclusion can reasonably be held to be everyone’s responsibility and in this context, simple delivery solutions based on orthodox assumptions of responsibility for action may produce an outcome that is short-lived, especially in a structural environment in which authority for action is highly devolved. This report is a resource to help with the process of local progress in the future. It conveys ideas, reflects experience and points to the range of practical tools and specific resources that we have produced to help with this local progress. Again, we thank everyone who has supported our efforts and allowed us to capitalise theirs. The work continues in ways that are and must be evolutionary. Inclusion in mental health is a moral imperative. Its achievement will necessarily be work in progress. 89 Department of Health, op. cit., 2007. 90 Department of Health, op. cit., 2004. 91 NSIP Reference Group Member. 92 Social Exclusion Unit, op. cit., 2004. 36 37 ANNEXES ANNEX A RESEARCH AND EVIDENCE PROGRESS SINCE 2004 Research and evidence is an underpinning strand of work that has run across the NSIP work streams. In 2004 the key focus was to identify reliable sources and gather national and regional data to establish a baseline against which progress can be assessed over time. However, there have been areas in which routine data are not readily available and areas in which the evidence base is weak. Although research projects have been commissioned as part of the implementation programme to address some of the identified gaps, further work has been needed. NSIP and Shift have both helped to continue strengthening the evidence base on mental health and social inclusion. For example by: i Hosting a symposium bringing together researchers and representatives from a range of organisations and networks with an interest in mental health and social inclusion research and evidence. From this, a collaborative research and evidence coalition has been established as a mechanism for developing a strategic approach to strengthening the evidence base. ii Supporting the INDIGO project (International Study of Discrimination and Stigma Outcomes), which will establish detailed international data on how stigma and discrimination affect the lives of people with a diagnosis of schizophrenia, from the point of view of people with mental health problems themselves. The project has been completed and is due to be published early 2009. iii Establishing an Interactive Inclusion Database to provide a multi-layered search tool allowing a gradually narrowing search across regions, life domains, towns and project names. The database contains good practice and information about existing socially inclusive projects throughout the country and is a useful resource both regionally and nationally. iv Sitting on a mental health group, convened by the Sainsbury Centre for Mental Health (SCMH), to work on key performance indicators for work and employment. It will produce a toolkit that can be used to monitor employment services and outcomes – including indicators on local employment context, client characteristics, service effectiveness indicators and individual level outcomes and this is due for publication in 2009. v Sitting on the advisory group for the Adult Psychiatric Morbidity Survey 2006/07; new topics introduced 38 include social capital and participation, discrimination and sexual identify, religion and spirituality. vi Contributing to a research study on the benefits and outcomes of participation in mental health arts projects. The study was conducted by a team from Anglia Ruskin University and the University of Central Lancashire (UCLan). Its purpose was to identify appropriate indicators of mental health aimed at social inclusion outcomes and, to develop and implement an evaluation framework based on these. The work: Included a survey of arts and mental health projects in England to map the range of activity and establish what evaluation data projects collect. Conducted a retrospective analysis of data from two projects in relation to their health and social benefits. Developed indicators and measures to evaluate arts projects. The research team also validated a measuring tool for the impact of arts participation on promoting social inclusion. NEXT STEPS This work is critical to developing and measuring the impact of social inclusion policy implementation. The research network has supported the development of effective research approaches to inclusion and the move towards evaluating progress in key areas. There is a need to continue to grow an effective and practical evidence base for inclusion. Academic/practice partnerships will be key to this. Through UCLan, NSIP has established an academic network involving some ten universities and is linked to international academic settings to develop this work. Led by UCLan from a new organisation within the International School for Community, Rights and Inclusion, the network will seek to drive the research agenda in practical ways, collaborating on bids and working to support local evaluation and knowledge transfer. A strategic network for social care leads in trusts has been established in partnership with SCIE and a commissioning network has been created to develop socially inclusive outcomes. Specific work is being undertaken in the Eastern region with the regional development centre and Strategic Health Authority to support local PCTs with outcomes development. Equally, it will be important to work in the other domains of community life where there are still major barriers to 39 social participation. We will seek to challenge those barriers and in the process help reduce the discrimination that they cause. We will do this by optimising shared learning and innovation; building further the evidence base for inclusion in practical ways; working with our partners in support of real change at all levels in services and beyond; and taking particular account of new regional and local organisations and the opportunities that they represent. The key priorities for the coming year include: Identifying a range of stakeholders and expanding membership of the group, particularly focusing on the engagement of researchers with experience of people with mental health problems in the process. Developing communication and dissemination systems, including links with service providers and the academic community, as a means of sharing relevant evidence and research findings more widely. Coordinating research activity and facilitating communities of interest around specific topics and issues. Exploring opportunities for collaboration to secure funding for research to strengthen the evidence base. Also for influencing existing research streams to ensure a focus on social inclusion issues and outcomes. ANNEX B PUBLICATIONS AND RESOURCES Outcomes Framework for Mental Health Services Direct Payments for people with mental health problems: A guide to action www.socialinclusion.org.uk/home/index.php www.socialinclusion.org.uk/publications/ 2009 40 Direct_Payments_web.pdf National Social Inclusion Programme Fourth Annual Update www.socialinclusion.org.uk/publications/4th_AnnualReview.pdf An introduction to Direct Payments in mental health services: Information for people eligible to use mental health services and carers 2008 www.socialinclusion.org.uk/publications/Direct_Payments_SU_ How will my newly redesigned day service help me? Guide.pdf www.socialinclusion.org.uk/publications/DayServicesLeaflet.pdf Finding and Keeping Work Choice Based Lettings for People with Mental Health Problems: A Briefing Guide www.socialinclusion.org.uk/publications/Toward_a_MH_emplo www.socialinclusion.org.uk/publications/NSIP_CBL_briefing.pdf yment_strategy_revsied_after%20repairs.pdf ‘Open to All’ Mental health and Social Inclusion Awareness Training for Museums and Galleries www.socialinclusion.org.uk/work_areas/index.php?subid=93 2005 Direct Payments in mental health: What are they being used for? kc.csip.org.uk/upload/Examples%20of%20DP.pdf From segregation to inclusion: Where are we now? www.socialinclusion.org.uk/publications/NSIPDSReview.pdf National Social Inclusion Programme First Annual Report The Really Useful Book of Learning and Earning www.socialinclusion.org.uk/publications/ www.socialinclusion.org.uk/publications/ReallyUsefulBook.pdf NSIP_AnnualReport_FIN.pdf 2007 JOINT OR COMMISSIONED PUBLICATIONS WITH PARTNER ORGANISATIONS National Social Inclusion Programme Third Annual Update www.socialinclusion.org.uk/publications/NSIP32007.pdf Outcome Indicators Framework for Mental Health Day Services Connect and Include – an exploratory study of community development and mental health CDF, commissioned by NSIP www.socialinclusion.org.uk/publications/CDFFINAL.pdf www.socialinclusion.org.uk/publications/DSdoccover1.pdf 2006 National Social Inclusion Programme Second Annual Report Work Matters: Vocational Navigation for Occupational Therapy Staff, jointly published with the College of Occupational Therapists www.socialinclusion.org.uk/publications/ www.socialinclusion.org.uk/publications/NSIP_AR2006.pdf Work%20Matters%20Booklet%20for%20CD.pdf Improving the effectiveness of rent arrears management for people with mental health problems Mental Health, Social Inclusion and Arts: developing the evidence base www.socialinclusion.org.uk/publications/Rentarrearsbriefing.pdf www.socialinclusion.org.uk/publications/MHSIArts.pdf Vocational services for people with severe mental health problems: Commissioning guidance www.socialinclusion.org.uk/publications/ Getting through: Access to mental health services for people who are homeless or living in temporary or insecure accommodation. A good practice guide DOH_Vocational_web.pdf www.socialinclusion.org.uk/publications/Gthroughguide.pdf From segregation to inclusion: Commissioning guidance on day services for people with mental health problems Action on Mental Health: A Guide to Promoting Social Inclusion www.socialinclusion.org.uk/publications/Day_Services_web.pdf Action_on_Mental_Health%20Fact_Sheets.pdf www.socialinclusion.org.uk/publications/ Mental Health and Social Exclusion www.socialinclusion.org.uk/publications/SEU.pdf ANNEX C ACKNOWLEDGEMENTS CURRENT TEAM MEMBERS (INCLUDING SECONDEES AND PART-TIME CONTRIBUTORS) EXPERT ADVISORS Malcolm Barrett Local Liaison and User Development Sona Peskin Peter Bates Development Consultant Rosemary Wilson Victoria Betton Trust Development Associate Diane Hackney Fran Singer REFERENCE GROUP Les Aqil Alex Burner Service User Involvement Lead Susan Ambury Marco Carrera Programme Coordinator Randall Chan David Clarke Regional Employment Team Coordinator Penny Connorton Fabian Davis Associate Director Kaaren Cruse Claire Etches Social Exclusion Lead Lorraine Looker Gerry Bennison Bev Chipp David Cooke John Holmes Tony Martin Dave Gardner Commissioning Associate Naomi Hankinson Assistant Director Fiona Hill PA to David Morris Kathryn James Assistant Director Learning and Skills Robin Johnson Housing Lead Neil Lowther Assistant Director Employment David Morris Programme Director Robin Murray Neill Personalisation Lead Marian Naidoo Arts Lead Steve Onyett Leadership Associate Zoe Robinson Business and Communications Director Stafford Scott ‘Communities of Influence’ Manager Ben Taylor Day Services Lead Micheal Osbourne Lizzie Walker Robert Walker Mike Walsh PAST TEAM MEMBERS Sue Christoforou Voluntary Sector Lead Christa Drennan Assistant Director Community Participation Simon Francis Employment Lead Antonia Furmston Administrator and Events Coordinator Sarah Hill Business and Communications Director Clare Mahoney Children and Families Lead Rebecca Mitchell Programme Coordinator Annette Reinli Programme Coordinator Miles Rinaldi Head of Delivery 41 ANNEX C ACKNOWLEDGEMENTS CSIP Paddy Cooney CSIP Executive Lead NIMHE Peter Horn NIMHE Executive Lead NSIP would like to thank all of the people and organisations that have helped to improve social inclusion outcomes for people with mental health problems, especially: Barnardos British Psychological Society College of Occupational Therapists Community Development Foundation SOCIAL INCLUSION AND REGIONAL EMPLOYMENT TEAM LEADS Carey Bamber Marion Blake Sarah Joy Boldison Stephany Carolan Barbara Crosland Shawn Crowe Trish Crowson Huw Davies Mary Dunleavy Jennette Fields Lynne Hall John Howat Louise Howell Neil Johnson Brendan McLoughlin Kate O’Hara Jude Stansfield Colin Williams Learning and Skills Council Mental Health Foundation Mind New Economics Foundation National Institute of Adult Continuing Learning Richmond Fellowship Royal College of Nursing Royal College of Psychiatrists Rethink Sainsbury Centre for Mental Health Social Care Institute for Excellence University of Central Lancashire 42 design: www.gilldavies.co.uk www.socialinclusion.org.uk Outcomes Framework for Mental Health Services National Social Inclusion Programme 2009 A. INTRODUCTION What this Framework is for This framework is focused on adults of working age with mental health problems. It is a development of the outcomes framework for day services published in 2007 as part of the work of the National Social Inclusion Programme (NSIP) on day services modernisation and the programme’s wider work on the life domains in which exclusion occurs. It sets out some suggested outcomes for inclusion as a resource to commissioners and providers looking to advance inclusion practice through locally established outcomes for monitoring and evaluating service effectiveness. Many health and social care services are being refocused to promote social inclusion, including the role of work and gaining skills, in line with current policy and legislation. Changing the way services are delivered will improve lives and help achieve a range of objectives, including those laid out in the following policy documents and guidance: • • • • • • • • • • Mental Health and Social Exclusion (2004) Reaching Out: An action plan on social exclusion (2006) From Segregation to Inclusion: Commissioning guidance on day services for people with mental health problems (2006) Supporting Women into the Mainstream: Commissioning Women-only Community Day Services (2006) Vocational services for people with severe mental health problems: Commissioning guidance (2006) Direct Payments for people with mental health problems: A guide to action (2006) Our health, our care, our say: a new direction for community services (2006) Putting People First: A shared vision & commitment to the transformation of Adult Social Care (2007) Refocusing the Care Programme Approach (2008) Working for a healthier tomorrow (2008) Monitoring and evaluating outcomes locally is key to ensuring the effectiveness and positive impact of redesigned or refocused services. Fundamental refocusing and redesign takes time, and impact should increase as services develop. It is important to set realistic local targets to clarify what is expected of services in the short and medium term. The initial framework has been broadened to provide for possible application in mental health services more widely, specifically those seeking to support people to become more included such as outreach, employment and housing support services. 2 Outcome measurement is an increasingly important and valued tool in monitoring the effectiveness of health and social care services to improve lives and achieve targets. As such, it is important that commissioners and providers have resources that enable them to do this effectively. Definitions When discussing monitoring and evaluation, terminology is very important as people often have differing understandings of how a term should be used. The definitions used in this paper are taken from those developed by the Charities Evaluation Service (CES, 2004 & 2006; CES/BLF, 2004) and are summarised in Appendix 1. This paper is designed to include both quantitative and qualitative outcomes, which have been aggregated to demonstrate the impact of a service. How to Use the Framework The framework is divided into categories to reflect the different life domains and functions of mental health services. All of the outcomes, with the exception of those under the heading ‘Service Outcomes’, (Service User Satisfaction, Service User Involvement and Diversity) relate to outcomes for individual service users. Neither the outcomes nor the indicators listed are intended to be either definitive or prescriptive. The number of outcomes in each category has been limited to two, as has the small number of key indicators. These were selected as being those felt to be most suited to evidencing progress in each category and there will inevitably be additional intended and unintended outcomes and potential indicators. Outcome Indicators in each category are divided into Key and Additional Indicators in order to support the application of the framework in different ways according to local circumstances. For example, commissioners may want a relatively small number of key indicators for providers to report against but providers may want to measure against a wider range of indicators in order to demonstrate the breadth of their work and to monitor the progress of an individual. The indicators are mostly expressed in terms of the number of people to whom they apply (i.e. those who have chosen this life domain as a personal goal). However, commissioners may choose to request information based on the proportion of service users to whom the indicators apply. 3 There is more than one way of utilising this framework and its use will be locally determined. Possible approaches include: 1. Counting the number or proportion of service users who have achieved each outcome indicator through the support of a service in a given timeframe (e.g. quarterly, six monthly, annually) giving easily comparable data, and to supplement this with a small number of case examples (e.g. two for each outcome area), giving a more detailed sense of the work undertaken and change achieved. 2. Creating a table which, for each indicator, measures a baseline, people supported to achieve that outcome indicator and people supported to sustain that change or activity. 3. Discussing the categories and indicators with people using services as part of a needs assessment or support planning process. People using the service may want to add indicators that feel particularly relevant to them. It is important to recognise that there is some necessary variation in the design of mental health services across the country and that various frameworks of outcome objectives will already be in place (see below). Expectations of services with regard to outcome monitoring may differ according to their design and the indicators that are monitored should be selected according to the aims and purpose of the service. For example, an employment service may major on most, if not all of the employment related indicators, but have fewer or no indicators relating to independent living. Methods for monitoring outcomes and the selection of tools to support this are also a matter of local choice. Section D contains a list of possible tools that could be used to support outcome measurement. It also highlights possible sources of supporting evidence in demonstrating that the outcomes have been achieved. However, in recognition that some commissioners and providers would like an outcome measurement tool which links directly to this framework, a simple measurement tool is currently in development to accompany the framework and will be available on www.socialinclusion.org.uk by spring 2009. Links to National and Regional Outcome Indicators Commissioners and providers will be aware of a range of regional and national outcome indicators against which they are expected to report and against which targets may be set. The outcomes in this framework are designed to incorporate information which contributes to this reporting, but some indicators may need to be adjusted to fit with the expectations in a particular region or locality. Information relating to the new NHS contracting arrangements, HealthCare Commission Standards and PSA targets can be found in Appendix 2. 4 Possible sources of supporting evidence The following may provide sources of evidence that socially inclusive working practices are in place and that social inclusion outcomes are being achieved: • • • • • Individual, holistic assessments of needs Individualised person-centred recovery plans Working partnership agreements with mainstream services and organisations Operational plans and development plans for services Standardised outcome measures. 5 B. INTENDED OUTCOMES & INDICATORS FOR INDIVIDUALS Important It is suggested that services using this framework should only record outcomes against the indicators when the service has been involved in successfully supporting an individual to make the relevant change in their lives. Therefore an outcome for beginning voluntary work in a mainstream organisation should only be recorded when the service user has begun the work, rather than when they receive the support. It should not be assumed that every indicator is appropriate to every individual as a measure of social inclusion. For example, an individual may have a high level of educational attainment and so would find this indicator irrelevant. Conversely, an individual may have low educational attainment but would prefer a vocational route to employment. Indicators should only be used where they relate to a personal goal set by an individual in discussion with their support/key worker or care co-ordinator. Services should only record outcomes against the indicators when the outcome is, at least in part, attributable to the interventions or support of that service, and not when it was achieved independent of and coincidental to the service being provided. Some of the indicators include value judgments (e.g. ‘positive new relationships’). This is necessary to capture significant positive outcomes without inadvertently capturing negative outcomes. It is important that there is self-definition in deciding whether these indicators have been met (i.e. it is the service user who makes the value judgment). Community Participation Intended Outcomes • Increased number of people with mental health problems volunteering in mainstream settings • Increased number of Key Outcome Indicators • Number of people supported to begin volunteering in mainstream organisations • Number of people supported to begin accessing mainstream sports, exercise, arts, cultural or other leisure groups or facilities Additional Outcome Indicators • Number of people supported to take up a new or develop an existing/dormant leisure pursuit 6 people with mental health problems participating in or engaging with local community activities • • • • • • Number of mainstream organisations supported to offer more welcoming access to people with mental health problems Number of people supported to begin voluntary work within a mental health service they are using Number of people supported to apply for voluntary work in a mainstream organisation Number of people supported to begin engaging with local civic organisations, for example, as members of local Foundation Trusts Number of people supported to sustain regular volunteering or access to leisure groups or facilities for six months Number of people supported to access chosen faith activities Social Networks Intended Outcomes • Increase in the size and range of social networks for people with mental health problems • Increased number of people with mental health problems maintaining social and caring roles Key Outcome Indicators • Number of people supported to develop positive new relationships/friendships • Number of people supported to strengthen existing relationships with family or friends Additional Outcome Indicators • Number of people enabled to begin giving support to others • Number of people supported to begin accessing peer support or self-help groups • Number of people supported to access appropriate family interventions • Number of people supported to maintain parenting and caring roles through a crisis period Employment Intended Outcomes • Increased number of people with mental health problems preparing for employment by Key Outcome Indicators • Number of people supported to begin paid employment: Full Time (over 16 hours a week) and Part Time (under 16 hours a week) • Number of people supported to access job broker or other employment support service 7 Additional Outcome Indicators building their work capacity and skills or • Number of people supported to access advice looking for work about employment issues • Number of people supported to develop CVs • Increased number of and/or interview skills people with mental • Number of people supported to develop skills health problems which increase their employability entering and/or • Number of people supported to apply for paid retaining paid employment employment • Number of people supported to attend a job interview • Number of people supported to make reasonable adjustments or change to more suitable employment • Number of people supported to maintain/retain employment through a crisis period • Number of people supported to become selfemployed • Number of people supported to begin work experience or work placement Education and Training Intended Outcomes • Increased number of people with mental health problems accessing education and training opportunities • Increased number of people with mental health problems attaining qualifications Key Outcome Indicators • Number of people supported to begin a mainstream education or training course • Number of people supported to complete a mainstream education or training course Additional Outcome Indicators • Number of people supported to apply for a mainstream education or training course • Number of people supported to attend an interview or information session for a course • Number of people supported to identify funding for an education or training course • Number of people supported to obtain a qualification (state level) • Number of people supported to maintain/retain an education or training course through a crisis period • Number of people supported to begin a discrete (mental health only) education or training course 8 Physical Health Intended Outcomes • Improved physical health for people with mental health problems • Increased number of people with mental health problems taking regular exercise Key Outcome Indicators • Number of people supported to begin regular physical activity/exercise • Number of people supported to begin accessing support relating to their physical health Additional Outcome Indicators • Number of people supported to access health promotion activities such as smoking cessation • Number of people supported to make positive changes to their diet or lifestyle leading to sustained health benefit • Number of people with mental health problems taking regular exercise • Number of people supported to make changes leading to a reduction in physical health symptoms • Number of people supported to address substance misuse issues Mental Wellbeing Intended Outcomes • Improved quality of life, confidence and self-esteem for people with mental health problems • Increased ability to manage own mental distress for people with mental health problems Key Outcome Indicators • Number of people supported to develop and begin using new coping strategies • Number of people supported to decrease their reliance on mental health services Additional Outcome Indicators • Number of people supported to make changes leading to enhanced confidence and self-esteem • Number of people supported to make changes leading to a reduction in mental distress • Number of people supported to be positively involved in decisions about their medication or treatment • Number of people supported to develop a Wellness Recovery Action Plan (WRAP) or similar recovery plan • Number of people supported to train as Peer Support specialists • Number of people supported to avoid the need for a hospital admission 9 Independent Living Intended Outcomes • Increased number of people with mental health problems living in independent accommodation • Increased number of people with mental health problems receiving appropriate benefits/ financial advice Key Outcome Indicators • Number of people supported to move to more independent accommodation • Number of people supported to effectively manage their own finances Additional Outcome Indicators • Number of people supported to move to more suitable (but not more independent) housing • Number of people supported to address and reduce a debt problem • Number of people supported to open a bank account or savings scheme • Number of people supported to develop new skills for independent living (e.g. cooking, shopping) • Number of people supported to access advice regarding their finances, benefits or debts • Number of people supported to begin leaving the house and/or using public transport independently • Number of people supported to manage relationships with neighbours • Number of people supported to resolve issues with their landlord Personalisation & Choice Intended Outcomes • Increased number of people with mental health problems controlling their own support • Increased number of people with mental health problems in receipt of direct payments or individual budgets Key Outcome Indicators • Number of people supported to begin accessing direct payments or individual budgets • Number of people supported to become more actively involved in decision making regarding their support Additional Outcome Indicators • Number of people supported to begin using direct payments to fund daytime activity or community participation • Number of people supported to assert their needs with a health or social care provider • Number of people supported to access exercise, arts or books on prescription 10 C. SERVICE OUTCOME INDICATORS These Indicators refer not to outcomes for the individual, but to outcomes for mental health and related services. They can be used to help identify service gaps and improvements required. Service User Satisfaction NOTE: Achievement against these indicators can be measured using a service user questionnaire incorporating questions directly relating to the indicators Intended Outcomes Key Outcome Indicators • Increased levels of • Proportion of service users expressing that the satisfaction of service helps them engage with their local service users with community the delivery and • Proportion of service users expressing that the outcomes of the service enables them to achieve their personal service goals Additional Outcome Indicators • Increased proportion • Proportion of service users expressing that the of service users service helps them manage their mental health reporting that they needs have achieved their • Proportion of service users expressing that the goals support they receive is responsive to their needs • Proportion of service users expressing that the support they receive assisted them to achieve their life goals • Proportion of service users expressing that the support they receive meets their cultural needs Service User Involvement Intended Outcomes • Increased levels of involvement of service users in the design, delivery, management, review and development of services • Key Outcome Indicators • Number of user run activities taking place within the service • Number of service users involved in service design, delivery, management, review & development Additional Outcome Indicators • Number of service user representatives on the organisation’s Board (or equivalent) • Number of user led evaluations of services Increased number of • Proportion of staff recruitment panels that include people with mental service users health problems • Proportion of people employed in the service who involved in delivering have mental health problems 11 services and/or activities • Number of service users providing training for mental health service staff Diversity Intended Outcomes • Equality of access to day services for all people with mental health problems • Services which specifically meet the needs of underrepresented groups Key Outcome Indicators • Balance of service users responds to the needs of local population in terms of: age, ethnicity, gender, disability, sexuality and faith • Number of specific services or arrangements to meet the needs of under-represented groups Additional Outcome Indicators • Number of people supported to use mainstream organisations to meet their specific diverse needs • Number of mainstream organisations engaged to provide tailored services 12 D. OUTCOME MEASUREMENT Approaches to Outcome Measurement Some of the most commonly used approaches to data collection are: • • • • • Questionnaires Interviews Observation Record Keeping Case note review People who might contribute to making an assessment regarding outcomes include: • • • Service Users (self-assessment) Carers and significant others Staff It is often helpful to incorporate more than one of these approaches and sources of assessment into an outcomes monitoring system in order to achieve as complete and accurate a picture as possible of the outcomes that have been achieved. Recognised Social Inclusion Outcome Measurement Tools These tools may prove useful in helping to measure and monitor outcomes. This is not intended to be a comprehensive list and further tools will emerge over time. 1. Recovery Star (Mental Health Providers Forum/Triangle Consulting) The Recovery Star has been developed by the Mental Health Providers Forum. It is a tool for supporting and measuring change when working with adults of working age who are accessing mental health support services. As an outcomes measurement tool it enables organisations to measure and summarise: the progress being made by service users the service being delivered through a project The Recovery Star is also a key working tool and can be used to undertake a needs assessment, to support planning as well as for outcome measurement. It is designed to support individuals in understanding where they are in terms of recovery and the progress they are making, providing both the client and worker a shared language for discussion mental health and wellbeing. 13 Core dimensions of the Recovery Star The Recovery Star identifies and measures ten core areas of life: Managing mental health Self-care Living skills Social networks Work Relationships Addictive behaviour Responsibilities Identity and self-esteem Trust and hope The Recovery Star helps to identify any difficulties people using service are experiencing in each of these areas and how far they are towards addressing them and moving on. You can find out more about the Recovery Star on the Mental Health Providers Forum website: http://www.mhpf.org.uk/recoveryStarApproach.asp 2. The Outcomes Star (London Housing Foundation/Triangle Consulting) The Outcomes Star (on which the Recovery Star was based) was developed for use in services for homeless people, and has a broader remit than just measuring social inclusion outcomes, although this forms an important element of the tool. It is a visual tool which looks to measure change on a 10 point scale in each of 10 areas of life: • • • • • • • • • • Motivation and Taking Responsibility Self Care and Living Skills Managing Money and Personal Administration Social Networks and Relationships Drug and Alcohol Misuse Physical Health Emotional and Mental Health Meaningful Use of Time Managing Tenancy and Accommodation Offending As with the Recovery Star (and Inclusion Web), this is primarily a tool to promote individual planning, but data can be aggregated as a means of monitoring changes in a population over time. The Outcomes Star and associated materials and guidance are available to download through a Creative Commons Licence from www.homelessoutcomes.org.uk 14 3. Inclusion Web (National Development Team) The ‘inclusion web’ is a visual tool that can be used to enable service users to map significant people and places across life domains (employment, education, volunteering, arts & culture, faith communities, family & neighbourhood, physical activities & services). Whilst this is primarily a tool to promote individual planning, data can be aggregated as a means of monitoring changes in a population over time. Further information about the web can be found at www.ndt.org.uk or at: http://uk.groups.yahoo.com/group/TheSocialInclusionWebGroup/. 15 E. REFERENCES A Prospectus for Arts and Health (DH & ACE, 2007) Advanced Evaluation and Monitoring (Training Pack) CES, 2006 Guidance Paper 3: Key Terms and Definitions, CES, 2004, www.ces-vol.org.uk Capabilities for Inclusive Practice (DH, 2007) CES/BLF, 2004, Your Project and Its Outcomes Supporting Women into the Mainstream (DH), 2006b, Commissioning Women-only Community Day Services Day Services Outcomes Framework (NSIP, 2007) Delivering Race Equality in Mental Health Care (DH, 2005) Developing a Framework for Vocational Rehabilitation (DWP,2004) Direct payments for people with mental health problems: A guide to action (DH, 2006) Ending child poverty: everybody's business (DCFS & DWP, 2008) From Segregation to Inclusion: Commissioning Guidance on Day Services for People with Mental Health Problems (DH), 2006a, Health, work and wellbeing – caring for our future (DWP, DH, HSE, 2005) High Quality Health for All (DH, 2008) Independence, wellbeing and choice (DH, 2005) In work, better off; next steps to full employment (DWP, 2007) Mental Health and Social Exclusion (Office of the Deputy Prime Minister, 2004) Mental Health Social Inclusion and Arts: Developing the Evidence Base (DH), 2007, Our health, our care, our say: a new direction for community services (DH, 2006) National Action Plan on Social Inclusion 2006- 2008 – Working together (2006) National Suicide Prevention Strategy for England (DH, 2002) No one written off, reforming welfare to reward responsibility - Welfare Reform Green Paper (2008) Putting People First: A shared vision & commitment to the transformation of Adult Social Care (DH, Dec 2007) Reaching Out: An action plan on Social Exclusion Report (Sep 2006) Ready for Work: full employment in our generation (DWP, 2007) Ready for Work, Skilled for work (DIUS & DWP, 2008) Refocusing the Care Programme Approach (Mar 2008) Report of the Review of the Arts and Health Working Group (DH, 2007) Supporting Women into the Mainstream (DH/NIMHE, 2006) Tackling Health Inequalities, A Programme for Action (DH, 2003) Vocational services for people with severe mental health problems: Commissioning guidance (DH & DWP, 2006) Working for a Healthier Tomorrow (DH & DWP, 2008) Working Neighbourhoods Fund (DCLG & DWP, 2007) 16 F. ACKNOWLEDGEMENTS This framework was produced by the National Social Inclusion Programme. Many thanks to all those who developed and contributed to the development of this document and its predecessor - the Mental Health Day Services Outcome Indicators Framework, and in particular: The 5 organisations who piloted the Day Services Framework during 2008 and fed back on their experiences: Bromley Mind Community Restart at Lancashire Care NHS Trust Huntingdon Recovery and Partnership Team at Cambridgeshire and Peterborough Mental Health Partnership Trust Quest Day Opportunities at Staffordshire Council Richmond Fellowship in Wigan Plus the 22 mental health commissioners who commented on the framework. 17 G. APPENDICES Appendix 1 Definitions (Adapted from the Charities Evaluation Service) Aims Describes the changes you are trying to achieve Quantitative Measures Those “where you count numbers of things that happen, such as the number of people who found jobs following some computer training” (CES/BLF, 2004) Qualitative Measures Those “where you assess people’s views and experiences, such as how safe older people feel going out at night” (CES/BLF, 2004). Outcomes The changes, benefits, learning or other effects that actually occur as a result of your activities. Outcome Indicators The things you can use to assess whether the expected outcome is occurring. They assess progress towards meeting aims. They are a type of performance indicator and can be qualitative or quantitative. Objectives Describes the mechanism/process and planned activities by which you are going to achieve your aims Outputs The activities, services and products provided by an organisation. Output Indicators The things you can use to assess whether you have achieved your outputs. They assess progress towards meeting objectives and are a type of performance indicator. 18 Appendix 2 NHS Contracting Arrangements A new NHS standard contract, covering agreements between PCTs and providers for the delivery of NHS funded services for mental health, will be implemented from April 2009. The outcome indicators framework can be used by commissioners to support development of each of the three key sections of the contract as appropriate – the mandatory elements (centrally set), mandatory elements to be defined by local agreement, and the additional elements to be defined by local agreement. Visit www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_091451 for more information. Regulation of national standards and targets The Care Quality Commission will come into force in April 2009, and take over the functions of the Healthcare Commission, the Commission for Social Care Inspection (CSCI) and the Mental Health Act Commission (MHAC). Its remit will cover both health and social care services. The existing inspection bodies are responsibly for providing assurance that NHS Trusts and adult social care services in England are meeting essential standards of quality and safety for everyone. This is currently undertaken by the through a variety of methods including the Annual Health Check (HCC), national reviews (HCC & CSCI) and staff and patient surveys. Assessment of services in relation social inclusion domains can be found within each of these elements. For example, the community patient survey asks specific questions relating to employment, support groups and benefits advice. The outcomes framework can be used to generate evidence for commissioners and providers that they are meeting relevant national standards. Summary of key PSA Targets which the refocusing of mental health services can contribute to: • • PSA 8 – PSA 15 – • PSA 16 – Employment opportunity for all. Address the disadvantage that individuals experience because of their gender, race, disability, age, sexual orientation, religion or belief. Increase the proportion of socially excluded adults in settled 19 • PSA 17 – • • • PSA 18 – PSA 19 – PSA 21 – accommodation and employment, education or training employment and housing outcomes for socially excluded adults. Tackle poverty and promote greater independence and wellbeing in later life. Promote better health and wellbeing for all. Ensure better care for all. Build more cohesive, empowered and active communities. 20 Indicators of occupational need: - a brief guide to what may indicate service user need for occupational therapy helping people lead ordinary lives in extraordinary circumstances Occupational therapy focuses on the nature, balance, pattern and context of occupations and activities in the dayto-day lives of individuals, family groups and communities. It is concerned with the meaning and purpose people place on occupations and activities, and with the impact of illness, disability and social or economic deprivation on their ability to carry them out. Occupational therapy uses the knowledge that the relationship between occupation and health is reciprocal – individuals experiencing health problems will likely see it impact on their abilities and occupational performance, whereas positive occupational experience and success undertaking activities carries health benefits and promotes recovery, thus helping people successfully resume ordinary lifestyles despite extraordinary circumstance. The main aim of occupational therapy is to maintain, restore, or create a match, beneficial to the individual, between the: - abilities of the person, - the demands of her/his occupations - the demands of the environment The desired outcome of occupational therapy intervention is that the person achieves a satisfying performance, and balance of occupations, in the areas of self care, productivity and leisure, that will support recovery, health, wellbeing and social participation (Creek 2003). To achieve this, the therapist looks with the service user at her/his range and balance of occupations, and together they identify problems, deficits, and strengths. The therapist then narrows her/his focus of attention and works on the specific activities, tasks or skills that will best utilise the individual’s assets, remediate deficits, and enable the person to enact her/his occupations more effectively. Where this is not possible, the therapist will adapt the desired activity so the individual is able to carry it out, or help make changes to their client’s physical, cultural, institutional or social environments to facilitate occupational performance. The therapist then shifts the focus outwards again, to see what effect the action has had on the person’s overall pattern of occupations. This shift of perspective happens many times during the period of contact between occupational therapist and service user (Creek 2003). Where teams have access to occupational therapy, it is likely to be a limited resource. This can mean the occupational therapist becomes overwhelmed with demand for in-put or conversely, due to unfamiliarity with what can be provided, or belief that the resource cannot be accessed, colleagues may rarely make specific demands for occupational investigation (be it through consultation; full assessment; short or longer term intervention, or any combination of these things) . Discussion with occupational therapists, managers and team leaders is developing consensus on what constitutes a priority for occupational therapy input, The following summary is to assist teams identify when a person might benefit from occupational assessment or intervention. There are three overriding conditions identified as necessary components for occupational therapy to progress appropriately: x that the individual can articulate some level of dissatisfaction regarding the balance, range and meaningfulness of their day-to-day activities, and/or their level of ability in performing occupations; or in circumstances where the service user does not have insight or capacity to express such dissatisfaction, the carer/family member may themselves do so; Occupational Therapy - Indicators Page 1 June 2009 Refs: Creek J (2003) Defining occupational therapy as a complex intervention College of Occupational Therapists, London nd Wilcock A (2006) An occupational perspective of health (2 edition) Slack New Jersey, USA x that the person with capacity to consent, does consent to the occupational therapy intervention; where the person does not have capacity, the therapist is required to observe for signs of implied consent and act accordingly; x that there is a likelihood of the person benefiting from the intervention. The following represents key indicators suggesting a consultation with an occupational therapist be sought, an assessment offered if appropriate, and where indicated, interventions provided. This flow represents the order of priority given to the indicators of need: Occupational assessment should be considered where there is: Urgent need for person to maintain dignified independence in daily living skills, or increase level of safe functioning For example: Where mental illness or cognitive impairment severely impacts on independent living skills; level of support has changed/will imminently change; carers unable to continue with level of input; environmental change necessitates increased independence And/or Marked limitation to range of occupations- severe imbalance between occupational domains For example: All/most of the person’s energy taken up in one area of life resulting in very impoverished lifestyle & range of experiences in other areas; marked dissatisfaction with current occupations expressed as frustration, boredom, and very low esteem & sense of self-efficacy that may arise from loss of independence and reduced choices; And/or Major change in life role/threat to role For example: loss of sense of purpose and few opportunities to be productive; impact of serious or multiple illnesses requiring marked role adaptation/re-assessment of future plans; changes in family structure; repeated losses of friends and opportunities; loss, or threat of loss, or change to, or take-up of work roles. In addition to direct input with individuals working to meet identified occupational goals, the occupational therapist will prioritise working as part of the team contributing expertise on the following issues: x Promoting healthy lifestyles; x Protecting and promoting peoples’ opportunities for social inclusion; x Developing teams’ insights into identifying and addressing occupational risk (Wilcock 2002), working so that the relationship between health and occupation is more fully understood and made use of. We hope the above is helpful in highlighting when to explore occupational performance in more detail, and welcome discussion of service users’ potential needs following consideration of the above factors. Occupational Therapy - Indicators Page 2 June 2009 Refs: Creek J (2003) Defining occupational therapy as a complex intervention College of Occupational Therapists, London nd Wilcock A (2006) An occupational perspective of health (2 edition) Slack New Jersey, USA Welcome to Green Light – Issue 21 October 2009 – Page 1 of 2 NICE Clinical Guideline 23 Update (Depression in Adults) The review of the NICE clinical guideline on Depression in Adults was published in October 2009. The general recommendations re prescribing choices are: ♦ Discuss the choice of an antidepressant with the patient including side effect profile, discontinuation symptoms, any potential interactions with other medication including herbal medicines and the individual perception of previous treatment and its effect. ♦ The initial choice of antidepressant should be an SSRI that is available as a generic drug (currently Citalopram, Fluoxetine, Fluvoxamine, Paroxetine and Sertraline). ♦ Consider that Fluoxetine, Fluvoxamine and Paroxetine have a higher propensity for drug interactions. ♦ Paroxetine is associated with a higher risk of discontinuation symptoms. ♦ Take into account the toxicity in overdose for people at serious risk of suicide and be aware that o Venlafaxine is associated with a greater risk of death in overdose o The greatest risk of overdose is with tricyclic antidepressants (except lofepramine) ♦ When prescribing antidepressants other than an SSRI take into account the increased likelihood of the patient stopping treatment because of side effects and the need to increase the dose gradually with Venlafaxine, Duloxetine and tricyclic antidepressants. ♦ Consider the specific cautions, contraindications and monitoring requirements for some drugs ♦ Prescribing of the following should only be undertaken by a specialist mental health professional. o The non reversible MAOIs such as Phenelzine, the combining of antidepressants and augmentation with lithium ♦ Dosulepin should not be prescribed ♦ When prescribing in older adults the dose prescribed should be age appropriate taking into account the physical health and concomitant medication. ♦ Side effects should be monitored closely when prescribing in older adults. . Dosulepin The NICE review has highlighted again the risks of prescribing Dosulepin (Dothiepin). A recent outcome of an SUI and the annual suicide audit has highlighted that there are still patients who are being prescribed Dosulepin. It is the recommendation of the SUI and the audit that all patients who are currently prescribed Dosulepin should be reviewed. Escitalopram and Duloxetine The NICE committee examined the benefits of prescribing Escitalopram and Duloxetine. For Escitalopram they concluded that the evidence showed only a small advantage over other antidepressants and this was not considered clinically important. There was a small economic advantage over three other antidepressants but this was considered by the committee to have limitations and was insufficient to make a specific recommendation. The NICE committee found that Duloxetine was no more clinically effective than other antidepressants, the economic evidence was contradictory and therefore no recommendation could be made. Agomelatine (Valdoxan) The NICE committee did not review Agomelatine as part of the guideline review although a technical appraisal may be released at a future date. The Scottish Medicines Consortium have not accepted the use of Agomelatine in Scotland on the basis of insufficient robust economic evidence. Welcome to Green Light – Issue 21 October 2009 – Page 2 of 2 Augmentation of an Antidepressant Regime The following recommendations are made for augmentation of an antidepressant regime ♦ The drugs that can be used to augment an antidepressant are lithium, an antipsychotic such as aripiprazole, olanzapine, quetiapine, or risperidone, another antidepressant such as Mianserin or Mirtazapine. ♦ Consideration must be given to the potential increase in side effects ♦ When prescribing lithium the monitoring of lithium should be undertaken as per the Trust guidelines ♦ Patients prescribed antipsychotics must be monitored for weight, lipids, glucose level and relevant side effects. ♦ The following drugs should not be used to augment an antidepressant regime: - buspirone, carbamazepine, lamotrigine, valproate, pindolol and thyroid hormones. ♦ Benzodiazepine should only be used concurrently with an antidepressant for a maximum of two weeks. . The D&T Committee reviewed this drug at the July meeting subject to the outcome of the NICE review. The committee considered that: ♦ ♦ ♦ ♦ The following chart shows a summary of common interactions between individual SSRIs and physical health drugs The drug should be made available for individual patients on a Consultant request in writing to the Medical Director/Chief Pharmacist but would not be placed on the formulary The prescribing cannot be handed back to the GP for ongoing prescribing and should remain in Secondary Care. Where the drug is prescribed the monitoring of the liver function tests must take place as outlined in the product licence i.e. before treatment, after 6, 12 and 24 weeks of treatment and then as appropriate. The prescribing must cease where the liver enzymes exceed three times the upper limit Management of Discontinuation Symptoms with Antidepressant Treatment ♦ ♦ ♦ ♦ ♦ ♦ Advise people that discontinuation symptoms may occur on stopping, missing doses or occasionally reducing doses Explain they are mild and usually self limiting over about 1 week but can be severe if the drug is stopped abruptly. Gradually reduce the drug over 4 weeks (except Fluoxetine) reduce the drug over a longer period for short half life drugs e.g. Paroxetine and Venlafaxine Advise the person to see their practitioner if they experience significant discontinuation symptoms. Monitor and reassure the person if symptoms are mild Consider reintroducing the original antidepressant if symptoms are severe and reduce dose very gradually Swapping Antidepressants Advice on swapping antidepressants is available on the Pharmacy intranet page
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