event program - Muscular Dystrophy WA

MD2015 Symposium
23 – 24 April 2015, Murdoch University
Event Program
THURSDAY 23/04
4.30pm
5.00pm
5.10pm
6.00pm
FRIDAY 24/04
9.30am
10.00am
10.10am
Title
Registration
Introduction Welcome to Country by Dave Morrison
Demystifying Mechanical Ventilation in Neuromuscular Disorders - INTERNATIONAL KEYNOTE SPEAKER,
Michel Toussaint, PhD (Belgium)
Chair: Crystal Burke & Vivienne Travlos
Sundowner BBQ with Sit Down Stand Up Perth Comedian, Hayden Stevens
Title
Speakers
Registration
Welcome
Hayley Lethlean – CEO MDWA
Overview of the Muscular Dystrophies
Winthrop Prof Nigel Laing - Laboratory Head, Neurogenetic
Disease, Harry Perkins Institute of Medical Research
Chair: Prof Steve Wilton
10.50am
11.50 - 12.45pm
12.45pm
Genetics & Diagnostics:
Updates, Counselling and the Value
of Registries
Mark Davis - Molecular Geneticist, PathWest
Chair: Caroline Graham
Matt Bellgard - Centre for Comparative Genomics, Murdoch University
Jack Goldblatt – Director, Genetic Services & Familial Cancer
Program of WA
LUNCH & Poster Viewing
Andrew Kornberg - Director of Neurology, Royal Children’s Hospital
Medical Management:
The Neurologist’s, Endocrinologists &
Respiratory Physician’s Perspectives
Melbourne
David Hillman – Respiratory & Sleep Medicine Physician, Dept of
Health, WA
1.40pm
Co-Chairs: Dr Snehal Shah &
Assoc Prof Merrilee Needham
Allied Health Support:
Creating Success at School,
Nutritional Considerations,
Technology for Independence and
‘Taking Care of Mind and Body’
Chair: Nita Vorster
2.30 - 3.00pm
3.00pm
Crossing the Void:
Participation Sports, Duke of
Edinburgh program & Fostering
Social and Romantic Relationships
Co-Chairs: Hayden Stevens & Vivienne
Travlos
James Poysky - Clinical Psychologist & Paediatric Neuro-psychologist,
Katy, Texas
Zoe Davidson - Research Dietician, Royal Children’s Hospital,
Melbourne
Cheryl Lockwood - Manager Assistive Technology, Rocky Bay
Lisa Papas - Manager of Counselling & Social Welfare, MS Society
AFTERNOON TEA
Dylan Needham – President, Western Electric Sporting Association
Rob Kerr - Project Support Officer for The Duke of Edinburgh
International Award
Anthony Ambrosini - The Duke of Edinburgh International Award
Silver Participant
Hayden Stevens – Comedian, coach & disability advocate
Freeth House Guildford Grammar Students - Volunteers
3.55pm
Closing speech
Professor Lyn Beazley AO
All MD2015 Attendees, Speakers and Guests are encouraged to stay to attend the
2015 Muscular Dystrophy WA AGM 4.30 – 5.30pm (Refreshments provided)