MD2015 Symposium 23 – 24 April 2015, Murdoch University Event Program THURSDAY 23/04 4.30pm 5.00pm 5.10pm 6.00pm FRIDAY 24/04 9.30am 10.00am 10.10am Title Registration Introduction Welcome to Country by Dave Morrison Demystifying Mechanical Ventilation in Neuromuscular Disorders - INTERNATIONAL KEYNOTE SPEAKER, Michel Toussaint, PhD (Belgium) Chair: Crystal Burke & Vivienne Travlos Sundowner BBQ with Sit Down Stand Up Perth Comedian, Hayden Stevens Title Speakers Registration Welcome Hayley Lethlean – CEO MDWA Overview of the Muscular Dystrophies Winthrop Prof Nigel Laing - Laboratory Head, Neurogenetic Disease, Harry Perkins Institute of Medical Research Chair: Prof Steve Wilton 10.50am 11.50 - 12.45pm 12.45pm Genetics & Diagnostics: Updates, Counselling and the Value of Registries Mark Davis - Molecular Geneticist, PathWest Chair: Caroline Graham Matt Bellgard - Centre for Comparative Genomics, Murdoch University Jack Goldblatt – Director, Genetic Services & Familial Cancer Program of WA LUNCH & Poster Viewing Andrew Kornberg - Director of Neurology, Royal Children’s Hospital Medical Management: The Neurologist’s, Endocrinologists & Respiratory Physician’s Perspectives Melbourne David Hillman – Respiratory & Sleep Medicine Physician, Dept of Health, WA 1.40pm Co-Chairs: Dr Snehal Shah & Assoc Prof Merrilee Needham Allied Health Support: Creating Success at School, Nutritional Considerations, Technology for Independence and ‘Taking Care of Mind and Body’ Chair: Nita Vorster 2.30 - 3.00pm 3.00pm Crossing the Void: Participation Sports, Duke of Edinburgh program & Fostering Social and Romantic Relationships Co-Chairs: Hayden Stevens & Vivienne Travlos James Poysky - Clinical Psychologist & Paediatric Neuro-psychologist, Katy, Texas Zoe Davidson - Research Dietician, Royal Children’s Hospital, Melbourne Cheryl Lockwood - Manager Assistive Technology, Rocky Bay Lisa Papas - Manager of Counselling & Social Welfare, MS Society AFTERNOON TEA Dylan Needham – President, Western Electric Sporting Association Rob Kerr - Project Support Officer for The Duke of Edinburgh International Award Anthony Ambrosini - The Duke of Edinburgh International Award Silver Participant Hayden Stevens – Comedian, coach & disability advocate Freeth House Guildford Grammar Students - Volunteers 3.55pm Closing speech Professor Lyn Beazley AO All MD2015 Attendees, Speakers and Guests are encouraged to stay to attend the 2015 Muscular Dystrophy WA AGM 4.30 – 5.30pm (Refreshments provided)
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