National Alliance on Mental Illness Find Help. Find Hope A Publication of NAMI Tri -County Illinois P.O. Box 10167 Peoria, IL 61612 309 693-0541 http://namitri -county.org Helping to meet the needs of persons with severe and persistent mental illness and their families in Peoria, Tazewell, and Woodford Counties in Central Illinois April—May 2015 22d Annual Mental Health Mile Run/Walk June 27, 2015 (rain or shine) Detweiller Park, Moose Shelter Announcing a New NAMI Class NAMI Homefront NAMI Homefront is a free, 6-session educational program for families, caregivers and friends of military service members and vets with mental health conditions. Based on the nationally recognized NAMI Family-toFamily program, NAMI Homefront is designed to address the unique needs of families, caregivers and friends of those who have served or are currently serving our country. The program is taught by trained family members of service members/veterans living with mental health conditions. What You’ll Gain We are planning to offer a 5k this year. Please watch the newspaper and our website for more details about registration, signup and cost to enter. This is a major event for NAMI Tri-County. Please plan to come walk or run with us, or cheer us on. Together we can make a difference in mental health services in our community. With questions, call 309 693-0541 Recovery is a journey and there is hope for all people affected by mental illness. This in-person group experience provides the opportunity for mutual support and shared positive impact. You will experience compassion and reinforcement from people who relate to your experiences. NAMI Homefront teaches you how to: Manage crises, solve problems and communicate effectively Learn to care for yourself, including managing your stress Develop the confidence and stamina to support your family member with compassion Identify and access federal, state and local services Stay informed on the latest research and information on mental health, including posttraumatic stress disorder and substance abuse Understand current treatments, including evidence-based therapies, medications and side effects Navigate the challenges and impact of mental health conditions on the entire family Sign Up for a Class A class will be scheduled locally when 10 to 12 individuals register. Please contact Roger, 309 696-1824 or Bill, 309 370-9424 for information or to sign up. Family Forum April—May 2015 Educational Opportunities Family to Family Class Please call to register for the next class Parents, spouses, friends, or adult children of people with mental illnesses are invited to participate in the next 12-week course. There is no charge for this NAMI signature program. Participants will learn valuable information to help them understand and support an ill relative while maintaining their own well being. Please call 309 693-0541 for information or to register for the upcoming class. Peer to Peer Class Please call to register for the next class The next class will be held when there are sufficient numbers to offer it. Please call Dean at 840-0915 or Larry at 745-8359 to register. To take the 9-week class you must be 18 or older, have a psychiatric diagnosis, and have someone with whom you can talk about any issues/problems the classes unearth. The classes teach information about the various mental illnesses, tell how different medications function, help you create a relapse prevention plan, and start you toward creating an advance medical directive. The class will be facilitated by Dean and Larry. There is no charge for this NAMI signature program. NAMI Basics Education Program Current Class is in Session Please call to register for the next class This course is for parents and caregivers of children and adolescents with mental illness. Basics is taught by parents who have lived similar experiences with their own kids and have received training to teach the course. The class covers the biology of mental illness, treatment, and the latest research as well as the trauma of brain disorders for the child and the family. If you are interested in this class, please call Beth at 691-5830. There is no charge for this NAMI signature program but registration is required. Also, check out www.NAMI.org "Basics" video on You Tube for further description of the course. With Sympathy We extend sympathy to the family and friends of Betty M. Knoblett of Washington who passed away on Jan. 20, 2015. Betty was a volunteer for NAMI Tri-County Illinois for many years during its early years. We appreciate what Mrs. Knoblett did for the organization. Thanks also that memorial donations were designated for NAMI Tri-County where the funds will be used to continue its mission. Page 2 Inside this issue Mental Health Mile Information ....................... NAMI Homefront Class.................................... Educational Opportunities ................................ Thank You! ....................................................... President’s Letter .............................................. Education Meetings Announced ....................... Trivia Night Report ........................................... Clay Hunt SAV Act .......................................... Education Meeting Nuggets .............................. Important Contact Information ........................ Book Reviews ................................................... NAMI Board, Phone Numbers ........................ Calendar ............................................................ PTSD ................................................................ Michelle Effect ................................................. Healing Touch .................................................. Membership Form ............................................ 1 1 2 2 3 4 4 4 5 5 6 6 7 8-10 11 11 12 Thank You! Monetary Donations Roger & Dianne Geiss Joyce Harant Heartland Festival Orchestra Bruce & Marjorie Leman Pekin High School Students—Change for Charity Research Group James & Harriet White In Memory of Betty Knoblett Kelly Abraham Sally Abraham Dan & Janet Baker Arlene Brocksmith Joel & Barb Carter William & Sharon Conger Keith & Jean Graff Mary Grace Kelly Martin & Sheila Matthews Mark & Susan Milford Laura Nelson OSF Healthcare Systems, Performance Improvement Division John & Gina Vozenilek Randy Wolfe For Services Phyllis Jordan and her team at EP!C for the many printing , collating, and mailing services that are provided to NAMI Tri-County Illinois Illinois Central College, North Campus for providing meeting room space for meetings as well as our office. April—May 2015 Family Forum Letter from the President We are fortunate that spring appears to have arrived a little earlier than usual this year, and after a very cold winter we are grateful. NAMI got off to a good start with excellent speakers in February and March. We held a Trivia Night at the American Legion in Bartonville in late February where many braved the snowy roads to enjoy the trivia competition as well as old and new friends. We had previously been selected by the Heartland Festival Orchestra at Five Points in Washington as a community partner for the Mozart Concert on March 21. We were fortunate to have Director Commanday attend the NAMI education meeting on March 5 in order to increase his knowledge of the services NAMI Tri-County Illinois provides. He along with the rest of us heard Dr. Lisa Burkhartzmeyer offer an informative update on “Childhood Mood Disorders.” NAMI is fortunate to have the number of multi-talented professionals who give of themselves and their free time to support us in so many ways. The topic for this newsletter is Posttraumatic Stress Disorder (PTSD). We hope by choosing this topic that we will reach enough family and friends of individuals suffering from PTSD to be able to offer the first educational class for families of veterans and others suffering from PTSD. NAMI National is currently running a pilot program in several states on the topic to see if there is enough interest to add this 6-week class to the current complement of signature programs. Two of our members, Bill Bott and Roger Mohn, have been trained to teach the class. Please contact either one of them if you have questions or might be interested in attending this class. You will find their contact information in the newsletter. I want to take this opportunity to invite you to consider a volunteer role with our local affiliate. As you probably know, we are entirely dependent upon contributions and volunteers in order to be able to offer our classes free of charge. Having the classes as well as the support groups, the fun events, the fund raisers, the newsletter and the telephone helpline depends upon the ongoing support of volunteers. Volunteers are the most pressing need that we have at this time. Please seriously consider volunteering your time to this longstanding organization in the TriCounty area. We need you now and we thank you for considering this opportunity. You can reach me through the helpline at 309.593.0591. Page 3 Thanks to the Heartland Festival Orchestra for honoring NAMI Tri-County Illinois as its Community Partner at the beautiful Make it Mozart concert on March 21. Can you help? Carolyn Jakopin is piecing together the history of NAMI Tri-County which began in 1981. We need pictures, newspaper articles or advertisements, jotted down notes regarding a class, picnic, dinner, fundraiser, etc. for all years since the early 1980s. Please send paper copies or electronic data to: Carolyn Jakopin 5200 N. Knoxville, Apt. 3085 Peoria, IL 61614 Or email to [email protected] Thanks so much! EMAIL ALERTS and NEWSLETTER DELIVERY Do you want to keep up to date on the latest happenings at NAMI Tri-County and in mental health? If so, sign up for our email notices! NAMI Tri-County sends legislative alerts and general meeting information to those who have submitted email addresses. An additional service will be an email notification when the new NAMI Tri-County Family Forum newsletter is posted to the web. If you are not receiving the email alerts but would like to, please contact Carolyn at [email protected] Enjoy spring. Suzanne Spears The newsletter can be read at your leisure on our web site at www.namitri-county.org Hyperlinks to additional articles are available when reading the newsletter on the web site If you want to go Green and save postage and paper, contact Lila at [email protected] and you'll be taken off the mailing list for the paper copy. Family Forum April—May 2015 Education Meetings First Thursday of most months New Location: ICC North, Cedar Hall, Room 134 Page 4 Piecing it All Together Conference How Children's Mental Health & Mental Illness Affects Home, School & Community 7:00—8:30 p.m. April 10 & 11, 2015—Edwardsville, IL April 2 Keynote speakers: Michael Trout, PhD & Ron Glodoski Speaker: Marika Wrzosek, MD, Child & Adolescent Psychiatry, UICOM Group Topic: Current Trends in Child Psychiatry May 7 Speaker: Roger Mohn, NAMI Tri-County IL Board Piecing It All Together (PIAT) strives to bring parents/ caregivers of children who have mental health conditions together with school and mental health professionals all under the same roof, hearing the same message of hope for our kids. For the latest information on presenters and sessions, visit The Clay Hunt SAV Act Member & Instructor for NAMI Homefront Class Signed 2-12-15, Source: nami.org Topic: Dealing with PTSD After being held up by a single Senator, this important bill passed both houses of Congress unanimously and today was signed by President Obama. Along with veteran service organizations and the military and veteran communities, NAMI supporters rallied to advocate for this significant legislation. Please see the article on pp. 8 & 9 for a taste of Roger’s passion for this topic. June 4 6:45–8:30 p.m. Election of Officers, 6:45-7:00 p.m. Ask the Professionals Panel The Clay Hunt Suicide Prevention for American Veterans (SAV) Act was named in honor of Clay Hunt a marine who served our country honorably. This law will help provide necessary reforms, accountability and community mental health access for service members and veterans. Ms. Patricia Edwards Judge Kate Gorman Sergeant Willie King Dr. Peter Alahi February Trivia Night Report We had our first “post Shelly and Dennis” trivia event… and we made it! Thanks though to Shelly for her long distance job of putting together the trivia questions, sending us a great food list and even calling during the event to check in on us. That was pretty cool! Roger Mohn stepped up as the MC and organizer so Trivia Night went on as scheduled. We had eight teams with participants who braved the falling snow to come to the event. Everyone seemed to have fun, and we made almost $500, so it was a successful evening. Thanks to all who came to this fundraiser. Thanks for those who helped with decorating, bringing raffle baskets, selling tickets, getting food, and checking the food supply all evening. Special thanks to Samantha and John for doing the scoring, running the score sheets around and helping to make the night go smoothly! We appreciate our contributors for this event: The Catering Company—Donna List, Rod & Becky Dorman, Lila Gammon, Landmark Cinema, Martin-Sullivan Implement—Ben Rodgers, Bob Albers & Sue Spears After serving multiple tours, Clay volunteered in Haiti after the 2010 earthquake. He then focused on helping other veterans, who like himself were dealing with conditions such as PTSD and depression. Clay dedicated himself to helping others. We hope this law will continue his efforts as an important step in addressing the mental health of our veterans and service members. This law shows that our country recognizes the importance of mental health for our veterans and military service members. Save the date for the 6th Annual Hog Roast Saturday, August 1, 2015 $7 for tickets purchased in advance $10 for tickets purchased day of event This is always a fun event; plan to come! April—May 2015 Family Forum Education Meeting Nuggets Psychiatrists Speak about Serving the Old and the Young Submitted by Beth Lawrence Our NAMI Education Meetings this year have given us the benefit of hearing presentations from two local psychiatrists, both of whom graciously allowed questions and interacted with individuals in the audience. Dr. Matthew Preston, of Associates in Mental Health, addressed “Challenges to Treating Mental Health in the Senior Years” for our February Education Meeting. And challenges there are; from the body’s aging process diminishing kidney and liver function affecting the efficacy of medication and increasing the risk of side effects to complications of every other physical ailment a body experiences and even thoughts of suicide. The progression of dementia frequently makes affected individuals progressively less able to communicate their own difficulties and their loved ones more responsible for communicating and addressing their needs. Of the medications in current use to slow the symptoms of dementia, Namenda, used with Aricept or Exelon, has shown the most notable improvement. The short duration of this improvement leaves room for far more future development! Depression, confusion, altered sleeping habits, the tendency to wander and the loss of such skills as the ability to drive all add to the necessity of a daily routine with emphasis on safety and a regular structure. Spontaneity loses its luster. The Senior Behavioral Health Unit at Unity Point Health Proctor is designed to meet these challenges. Dr. Preston himself treats adults of all ages and values the relationships he has with them. On the other end of the age spectrum are the youngest members of our concern, children being seen with behavioral and psychiatric symptoms. At our March meeting Dr. Lisa Burckhartzmeyer (Dr. B), of the Human Service Center, presented “Childhood Mood Disorders: An Update.” Dr. B displayed a comparison of the most recent diagnostic criteria for children from the DSM 5 to that of the older DSM-IV. (That’s the Diagnostic and Statistical Manual of Mental Disorders) Some specifications have been eliminated and two new diagnoses have been added. Those added are Disruptive Mood Dysregulation Disorder (DMDD) and Premenstrual Dysphoric Disorder. “To address concerns about potential over diagnosis and over treatment of bipolar disorder in children, a new diagnosis, Disruptive Mood Dysregulation Disorder (DMDD) is included…” The onset of DMDD is before the age of 10 and the following symptoms must have been present for at least 12 months: Severe temper outbursts that are out of proportion to the situation Outbursts that are inconsistent with the developmental level of the child Outbursts occurring on average 3-4 times per week Mood between outbursts is irritable or angry most of the day, nearly every day and noticed by everyone at home and at school. The diagnosis is only valid for youth between the ages of 7 and18 years as the symptoms of DMDD will likely change as the child matures. Page 5 Important Contact Information Local NAMI Information NAMI IL – State Headquarters National NAMI Helpline Hult Center for Healthy Living 309.693-0541 http://namitri-county.org 1.800.346.4572 http://il.nami.org 1.800.950.6264 http://nami.org 309.692.6650 www.hulthealthy.org Integrated Health Center 309.671.8084 Methodist Medical Center, Community Behavioral Health 309.672.4103 Children’s Home 309.685.1047 National Suicide Hotline 24-Hour Hotline American Foundation for Suicide Prevention Survivors of Suicide Police – all counties Emergency Response Service: Peoria County Woodford & Tazewell County Human Service Center Tazwood Center for Wellness VA Suicide Hotline 1.800.273.TALK 1.212.363.3500 309.697.3342 309.208.3027 911 309.671.8084 309.347.1148 309.671.8000 309.347.5579 1.800.273.8255 Crisis Intervention Resources Youth: CARES (Crisis and Referral Entry Services); 1-800-345-9049 CARES is Statewide and will assess eligibility for SASS (Screening and Assessment Referral Services) 24-hour crisis lines: Line to Hope 1-855-837-4673 Nat’l Suicide Lifeline: 1-800-273-8255 Peoria County ERS: 309-671-8084 Tazewell & Woodford Counties: 309-347-1148 Dial 2-1-1 for a non-emergency number that connects people with essential community information and services: food, shelter, counseling, mental health, employment, elderly, children & families How to Reach the Community Crisis Center 130 N. Richard Pryor Place, Peoria, Illinois If the individual is at risk: Contact the police department for an initial response. The police will contact ERS when the situation is secure. If individual safety is not a concern: Contact ERS at 309 671-8084 ~ TTY Line: 309 6713566. You will be asked for some brief information to assist our response. Medical Detox: 309 689-3080 Family Forum April—May 2015 Book Review When the War Never Ends: The Voices of Military Members with PTSD and Their Families by Leah Wizelman, Rowman & Littlefield (2011) Review Source: Doug Bradley, NAMI HelpLine Information and Referral Associate This book is a collection of accounts of traumatic events and the continuing effects they have on veterans, their spouses and other family members. Each chapter is told by a service member or other family member describing what exactly triggered the posttraumatic stress disorder (PTSD) and how the symptoms of PTSD manifest themselves in the narrators’ current lives. The good news is that many of the veterans and their families are finding ways to cope. Lower-stress careers, medications, therapy, the support of other veterans and friends are all helpful to those in this book. While there is no magic cure, the people here take advantage of what they can to move on. Like the Vietnam veterans who knew that PTSD was real, these current veterans are on the cutting edge of recovery from this disorder. Page 6 N A M I Tri-County Illinois (309) 693-0541 Officers Pres .................................... Suzanne Spears Vice President .................... Beth Lawrence Secretary..................................Roger Geiss Treasurer ................................ Roger Mohn Past President ........................ Dianne Geiss Editor.................................... Lila Gammon Directors Becky Dorman Larry Fordham Dennis Lester John Mayfield Patricia Edwards Carolyn Jakopin Shelly Lester Clark Wade Family Support Group Facilitators Lila Gammon Denny Lester Marjorie Schwebel Gay Knapp Shelly Lester Suzanne Spears Connections Support Group Facilitators The Invisible Front By Yochi Dreazen, Crown Publishers 2014 Review Source: Joni Agronin, NAMI Communications Coordinator The Invisible Front, written by respected military journalist Yochi Dreazen, tells the story of the journey we have faced as a country growing and learning to understand mental illness in a field that depends on mental strength and stamina. But that’s the difference; mental illness has nothing to do with mental strength. Dreazen’s book primarily follows the life of retired Major General Mark Graham and his family. The Grahams lost one son, Kevin, to depression after he died by suicide when he was in college and another, Jeff, in combat in Iraq. The family was struck by the stark differences in the way their close military community responded to the deaths of their two sons and because of their love for both of them and for the Army, they have since devoted their lives to fighting the stigma that surrounds mental illness, especially in a time of war. The military estimates that almost 153,000 active-duty military personnel have been diagnosed with PTSD since 2001 and that number is unfortunately only growing. The good news is, it’s clear the military is taking steps to improve the resources available to individuals and families facing mental health problems. Larry Fordham Dean Harris Lori Knapp Eymarde Lawler John Mayfield Family to Family Class Instructors Brenda Bleichner Roger Geiss Angie Lamb Bruce Leman Roger Mohn Dennis Staggs Dianne Geiss Carolyn Jakopin Bill Lamb Lisa Marie McKeown Lindsey Naffziger Jean Wallace Peer to Peer Class Instructors Dean Harris Larry Fordham Basics Education Program Instructors Becky Dorman Pat Lindberg Beth Lawrence Pat Sefried For any subject matter of interest or suggestions, please call Suzanne Spears 309 3601143 or Lila Gammon 309 648-5420 Trauma: Healing the Hidden Epidemic By Peter M. Bernstein, PhD, 2013 Thirty Days with My Father By Christal Presley, PhD, 2012, Review at nami.org Christal Presley’s recent memoir Thirty Days with My Father: Finding Peace from Wartime PTSD is a universally meaningful narrative, but is particularly relevant to the NAMI mission. Presley’s story of the diagnosis of posttraumatic stress disorder (PTSD) she shares with her father, a Vietnam veteran, is an eloquent testimony to the fact that mental illness impacts entire families, never just an individual alone. Review: amazon.com What is trauma? Why do its effects last far beyond the event or events that caused it? Why are our human reactions to it so debilitating? Most importantly, how can we help someone heal the deep wounds that it can leave in its wake? April—May 2015 Family Forum Page 7 NAMI TRI-COUNTY ILLINOIS CALENDAR OF EVENTS April & May 2015 ~~Meeting Location Change: Illinois Central College North, 5407 N. University, Peoria, Cedar Hall, Room 134 for Education Meetings and Family Support Group; Room 77 for Connections Support Group~~ April Thursday, April 2, 7:00–8:30 p.m. Monthly Education Meeting, ICC North, Cedar Hall, Room 134. Speaker: Marika Wrzosek, MD, Child & Adolescent Psychiatry. Topic: Current Trends in Child Psychiatry Tuesday, April 7, 7:00 p.m. Survivor’s of Suicide, The Chapel, Proctor Hospital. Hinrichs, 309 697-3342 or Sylvia Murphy 309 208-3027 Thursday, April 9, 6:30–8:30 p.m. Mood-Challenge meeting at Trinity Lutheran Church, 135 NE Randolph Ave., Peoria Thursday, April 16, Monthly Support Groups, ICC North, Cedar Hall Family and friends of people with brain disorders, Room 134. For further information call Sue, 309-360-1143. Connections—individuals participating in recovery, Room 77. For further information call John 309 472-5907. Tuesday, April 21, 7:00 p.m. Survivor’s of Suicide, The Chapel, Proctor Hospital. Hinrichs, 309 697-3342 or Sylvia Murphy 309 208-3027 Thursday, April 23, 6:30—8:30 p.m. Mood-Challenge meeting at Trinity Lutheran Church, 135 NE Randolph Ave., Peoria Tuesday, April 28, 6:00 p.m., —COGS Volunteer Group Meeting at Hardee’s on W. War Memorial, Peoria May Tuesday, May 5, 7:00 p.m. Survivor’s of Suicide, The Chapel, Proctor Hospital. Hinrichs, 309 697-3342 or Sylvia Murphy 309 208-3027 Thursday, May 7, 7:00–8:30 p.m. Monthly Education Meeting, Meet in ICC North, Cedar Hall, Room 134. Speaker:: Roger Mohn, NAMI Tri-County Board Member & NAMI Homefront Instructor. Topic: Dealing with PTSD Thursday, May 14, 6:30–8:30 p.m. Mood-Challenge meeting at Trinity Lutheran Church, 135 NE Randolph Ave., Peoria Tuesday, May 19, 7:00 p.m. Survivor’s of Suicide, The Chapel, Proctor Hospital. Hinrichs, 309 697-3342 or Sylvia Murphy 309 208-3027 Thursday, May 21, 7:00–8:30 p.m. Monthly Support Groups, ICC North, Cedar Hall Family and friends of people with brain disorders, Room 134. For further information call Sue, 309-360-1143. Connections—individuals participating in recovery, Room 77. For further information call John 309 472-5907. Tuesday, May 26, 6:00 p.m., COGS Volunteer Group Meeting at Hardee’s on W. War Memorial, Peoria Thursday, May 28, 6:30–8:30 p.m. Mood-Challenge meeting at Trinity Lutheran Church, 135 NE Randolph Ave., Peoria Save the Dates June 4, 2015, Annual Meeting & Education meeting, ICC North, Cedar Hall, Room 134, Ask the Professionals Panel June 27, 2015, Mental Health Mile—see details on p. 1 August 1, 2015, Hog Roast, Detweiller Park August 6, 2015, Education Meeting, Speakers Dr. Aman Singh and Dr. Jane Larouche on the topic of Sleep and Psychiatry. Survivors of Suicide - Peoria http://www.afsp.org/coping-with-suicide/find-support/find-a-support-group/illinois/survivors-of-suicide-peoria Contact: Rev. Eimo Hinrichs or Mrs. Pat Hinrichs, 309 697-3342 or Sylvia Murphy, 309-208-3027 Meeting Place: Chapel at Proctor Hospital, 5409 North Knoxville Ave., Peoria, IL 61614 Meeting Day(s)/Meeting Time: 1st and 3rd Tuesday, 7:00 p.m. Facilitated by: Peer/Professional Charge: None Brighter Days Ahead 513 NE Madison (309) 222-2012 “Brighter Days Ahead” offers a positive and uplifting environment for people who have experienced a mental illness. Its purpose is for members to have a safe place where they can socialize, receive support, and be part of fun, recovery-oriented activities while envisioning the brighter days ahead. Hours of Operation Monday - Saturday from 9 a.m.–5 p.m. Sunday from 12 noon–5 p.m. If you have any additional questions, we would be happy to talk either by phone 309-222-2012 or at [email protected] Family Forum April—May 2015 Page 8 Post Traumatic Stress Disorder What is Post-traumatic Stress Disorder (PTSD)? Abstracted from: www.nimh.nih.gov/.../post-traumatic-stress-disorder-ptsd/ Submitted by Sue Spears When in danger, it’s natural to feel afraid. People who have PTSD may feel stressed or frightened even when they’re no longer in danger. Causes Genes. Currently, many scientists are focusing on genes that play a role in creating fear memories. Signs & Symptoms PTSD can cause many symptoms. These symptoms can be grouped into three categories: 1. Re-experiencing symptoms: **Flashbacks—reliving the trauma over and over, including physical symptoms like a racing heart or sweating **Bad dreams **Frightening thoughts. 2. Avoidance symptoms: **Staying away from places, events, or objects that are reminders of the experience **Feeling emotionally numb **Feeling strong guilt, depression, or worry **Losing interest in activities that were enjoyable in the past **Having trouble remembering the dangerous event. 3. Hyper arousal symptoms: **Being easily startled **Feeling tense or “on edge” **Having difficulty sleeping, and/or having angry outbursts. Who Is At Risk? PTSD can occur at any age, including childhood. Women are more likely to develop PTSD than men, and there is some evidence that susceptibility to the disorder may run in families. Risk factors for PTSD include: Living through dangerous events and traumas Having a history of mental illness Getting hurt Seeing people hurt or killed Feeling horror, helplessness, or extreme fear Having little or no social support after the event Dealing with extra stress after the event, such as loss of a loved one, pain and injury, or loss of a job or home. Diagnosis: To be diagnosed with PTSD, a person must have all of the following for at least one month: At least one re-experiencing symptom At least three avoidance symptoms At least two hyper arousal symptoms Treatments The main treatments for people with PTSD are psychotherapy (“talk” therapy), medications, or both. Everyone is different, so a treatment that works for one person may not work for another. It is important for anyone with PTSD to be treated by a mental health care provider who is experienced with PTSD. Some people with PTSD need to try different treatments to find what works for their symptoms. Medications The U.S. Food and Drug Administration (FDA) has approved two medications for treating adults with PTSD: sertraline (Zoloft) paroxetine (Paxil) Both of these medications are antidepressants, which are also used to treat depression. They may help control PTSD symptoms such as sadness, worry, anger, and feeling numb inside. Taking these medications may make it easier to go through psychotherapy. Developing and Treating PTSD Submitted by Roger Mohn with some excerpts from nami.org What is trauma? Why do its effects last far beyond the event or events that caused it? Why are our human reactions to it so debilitating? Most importantly, how can we help someone heal the deep wounds that it can leave in its wake? The experience of trauma is far more common than most of us realize—many of us are affected by this hidden epidemic. Veterans of war and survivors of terrorism, crime, accidents and disasters are not the only people who suffer from PTSD. Unless effectively treated, trauma can cause havoc in lives and relationships, keeping our dreams forever out of reach. To develop PTSD, a person must have gone through a trauma. Almost all people who go through trauma have some symptoms for a short time after the trauma. Yet most people do not get PTSD. A certain pattern of symptoms is involved in PTSD. There are four major types of symptoms: reexperiencing, avoidance, arousal, and negative changes in beliefs and feelings. Post-traumatic Stress Disorder (PTSD) can occur after you have been through a traumatic event. A traumatic event is something terrible and scary that you see, hear about, or that happens to you, like: Combat exposure Child sexual or physical abuse Terrorist attack Sexual or physical assault Serious accidents, like a car wreck Natural disasters—fire, tornado, hurricane, flood, earthquake During a traumatic event, you think that your life or others' lives are in danger. You may feel afraid or feel that you have no control over what is happening around you. Most people have some stress-related reactions after a traumatic event; but, not everyone gets PTSD. If your reactions don't go away over time and they disrupt your life, you may have PTSD. (Developing cont. on page 9) April—May 2015 Family Forum Page 9 Post Traumatic Stress Disorder (Developing cont. from page 8) In his book, Trauma: Healing the Hidden Epidemic, Dr. Peter Bernstein says this, “Some trauma sufferers minimize their traumatic events or don’t even remember them at all. Others are reluctant to seek treatment for trauma because its very effect leaves them feeling hopeless.” Dr. Bernstein’s book, written primarily for trauma victims and their friends and family (although therapists and other mental health professionals will find much of interest), educates readers in all forms of trauma and offers personable guidance for healing. On NAMI’s website there is an article written by Joni Agronin that also says “Twenty percent of Iraq and Afghanistan veterans experience PTSD, half of which may never seek treatment.” She goes on to say that according to the National Center for Post-Traumatic Stress Disorder, about 60% of men and 50% of women will experience a traumatic event in their lifetime and the numbers are even higher for the members of the armed forces. Yet, why do so few people seek treatment for it? I think I have one answer for that: STIGMA! Getting treatment for a mental illness is still looked upon in “mainstream America” as taboo or as anyone needing mental health treatment is not strong enough to “pull themselves together.” Those of us who are involved in NAMI know this is what prevents so many people from getting the help they need. We read about it, hear about it and many of us actually experience it personally. As already stated, you didn’t have to be in a battle zone to experience the effects of something that can cause PTSD. So many factors can produce PTSD, but the ones we most commonly think about and the ones that we see on the news every day involve our military veterans. People with PTSD may also have other problems. These include: Feelings of hopelessness, shame, or despair Depression or anxiety Drinking or drug problems Physical symptoms or chronic pain Employment problems Relationship problems, including divorce In many cases, treatments for PTSD will also help these other problems because they are often related. The coping skills you learn in treatment can work for PTSD and these related problems. If there is one thing we try to get across to everyone in NAMI, it is the fact that “you are not alone!” You may feel alone, overwhelmed by events and circumstances that are/were beyond your control, but you do not have to suffer in silence dealing with it. Help is out there and we want to do everything we can to educate people to that fact. Any time you feel in crisis, need help and don’t know exactly where to turn, please call this number: 1-800-950-NAMI (6264) or [email protected]. In Peoria Country call 671-8084 and in Tazewell and Woodford County call 347-1148. For veterans, besides NAMI’s website, please visit: http://www.ptsd.va.gov/ So much help is available, yet so few people seek it when they need it, especially our military families. It’s our job to fight the stigma of mental illness by continuing our support of NAMI. In that, NAMI national has developed a program called NAMI HOMEFRONT, exclusively geared to help military families. It is a free 6 week course offered to military families, friends and loved ones of those service members and veterans living with PTSD. We have not yet scheduled a class, but as soon as we can get 10 to 12 people to sign up, we will begin. For more information please visit NAMI.org and key in “Homefront” in the search block. To sign up, please contact Roger Mohn, 309 696-1824 or Bill Bott, 309 370-9424. I encourage you not to suffer in silence, but to seek help so in turn you can help others. After all, that is what NAMI was built on and everything we do is based on the principle of helping those in need. Understanding PTSD Treatment Excerpts from ptsd.va.gov Today, there are good treatments available for PTSD. When you have PTSD, dealing with the past can be hard. Instead of telling others how you feel, you may keep your feelings bottled up. Talking with a therapist can help you get better. Following are several types of treatment for PTSD. Cognitive behavioral therapy (CBT) CBT is one type of counseling. Research shows it is the most effective type of counseling for PTSD. The VA is providing two forms of cognitive behavioral therapy to Veterans with PTSD: Cognitive Processing Therapy (CPT) and Prolonged Exposure (PE) therapy. To learn more about these types of therapy, see the fact sheets listed on http:// www.ptsd.va.gov/public/treatment/therapy-med/ cognitive_processing_therapy.asp. Cognitive Processing Therapy (CPT) helps you by giving you a new way to handle these distressing thoughts and to gain an understanding of these events. By using the skills learned in this therapy, you can learn why recovery from traumatic events has been hard for you. CPT helps you learn how going through a trauma changed the way you look at the world, yourself, and others. The way we think and look at things directly affects how we feel and act. The four main parts of CPT are: Becoming aware of thoughts and feelings Learning skills to understand your PTSD symptoms Help you question or challenge your thoughts and feelings Understanding changes in beliefs about safety, trust, control, self-esteem, other people, and relationships Prolonged Exposure Therapy: Exposure therapy is a type of therapy that helps you decrease distress about your trauma. This therapy works by helping you approach trauma-related thoughts, feelings, and situations that you have been avoiding due to the distress they cause. Repeated exposure to these thoughts, feelings, and situations helps reduce the power they (Understanding PTSD cont. on page 10) Family Forum April—May 2015 Page 10 Post Traumatic Stress Disorder (Understanding PTSD Cont. from page 9) Medications have to cause distress. The four main parts of Exposure therapy are: Education about symptoms and treatment Breathing to help you relax Real-world practice of situations that have been frightening Talking through the trauma with therapists Selective serotonin reuptake inhibitors (SSRIs) are a type of antidepressant medicine. These can help you feel less sad and worried. They appear to be helpful, and for some people they are very effective. SSRIs include citalopram (Celexa), fluoxetine (such as Prozac), paroxetine (Paxil), and sertraline (Zoloft). Chemicals in your brain affect the way you feel. For example, when you have depression you may not have enough of a chemical called serotonin. SSRIs raise the level of serotonin in your brain. Other medications that have been used with some success. Eye Movement Desensitization and Reprocessing (EMDR) EMDR is another type of therapy for PTSD. Like other kinds of counseling, it can help change how you react to memories of your trauma. While thinking of or talking about your memories, you'll focus on other stimuli like eye movements, hand taps, and sounds. For example, your therapist will move his or her hand, and you'll follow this movement with your eyes. Experts are still learning how EMDR works, and there is disagreement about whether eye movements are a necessary part of the treatment. Group therapy Many people want to talk about their trauma with others who have had similar experiences. In group therapy, you talk with a group of people who also have been through a trauma and who have PTSD. Sharing your story with others may help you feel more comfortable talking about your trauma. This can help you cope with your symptoms, memories, and other parts of your life. You learn to deal with emotions such as shame, guilt, anger, rage, and fear. Sharing with the group also can help you build self-confidence and trust. You'll learn to focus on your present life, rather than feeling overwhelmed by the past. Brief psychodynamic psychotherapy In this type of therapy, you learn ways of dealing with emotional conflicts caused by your trauma. It helps you understand how your past affects the way you feel now. Your therapist can help you: Identify what triggers your stressful memories and other symptoms Find ways to cope with intense feelings about the past Become more aware of your thoughts and feelings, so you can change your reactions to them Raise your self-esteem Family therapy PTSD can affect your whole family. Your kids or your partner may not understand why you get angry sometimes, or why you're under so much stress. They may feel scared, guilty, or even angry about your condition. Family therapy is a type of counseling that involves your whole family. A therapist helps you and your family to communicate, maintain good relationships, and cope with tough emotions. Your family can learn more about PTSD How long does treatment last? CBT treatment for PTSD often lasts for three to six months. Other types of treatment for PTSD can last longer. If you have other mental health problems as well as PTSD, treatment may last for one to two years or longer. What if someone has PTSD and another disorder? Is the treatment different? It is very common to have PTSD at that same time as another mental health problem. Depression, alcohol or drug abuse problems, panic disorder, and anxiety disorders often occur along with PTSD. In many cases, the PTSD treatments described above will also help with the other disorders. The best treatment results occur when both PTSD and the other problems are treated together rather than one after the other. PTSD Caused By Disasters Disasters can be natural (floods, tsunamis, earthquakes) or caused by accidents or by humans. Any of these disasters can certainly cause PTSD symptoms. Lack of space prevents a discussion of this but information is available at: http://www.ptsd.va.gov/public/types/disasters/index.asp where you will find Resources for Survivors, Effects of Disasters, and how Media Coverage of Traumatic Events affects individuals. Additional Resources nami.org—NAMI web site http://www2.nami.org/Content/NavigationMenu/ Find_Support/Veterans_Resources/ Veterans_Resource_Center.htm—Numerous Veterans Resources http://www.ptsd.va.gov/public/treatment/therapy-med/ index.asp—more veterans resources nimh.nih.gov/—National Institute on Mental Health nih.gov—National Institutes of Health childpsychiatry.thehastingscenter.org/—research results samhsa.gov—substance abuse & mental health services administration psychcentral.com—getting help for a variety of mental illnesses http://www.adaa.org/—Anxiety and Depression Assn. of America helpguide.org—help for mental & emotional help Family Forum April—May 2015 The Michelle Effect Source: nami.org Not long ago the phone rang. It was a young lady who asked if I was Michelle with NAMI. Recently, she had been released from a 21-day stay in a local psychiatric hospital and had been given my name and phone number to contact for support groups. She said she had depression and that her husband didn’t believe she had a mental illness. I shared my story about my husband, who also has depression and OCD. We talked about how difficult it was when family members didn’t understand what it was like for those experiencing the symptoms of mental illness. She began to cry and said I was the first person she’d ever talked to who understood what she was going through. She asked, “How did you come to understand your husband’s illness?” This question brought me back to where I was 12 years ago. My husband had been ill about 25 years and wouldn’t seek treatment. I was at the end of my rope and thought I had nowhere to turn. A friend of a friend shared a church bulletin that listed a course called NAMI Family -to-Family. It said it was for relatives of an adult living with mental illness. My friend jumped at the chance to take the course and begged me to come along. I thought I knew it all, but figured I might make some new friends so signed up. How wrong I was! I knew the basics about the mental health conditions, but had no clue about communication skills, problem-solving skills, self-care, and that there were so many like me with ill relatives. The biggest thing I was clueless about was empathy. I was so busy trying to keep all the plates spinning in the air taking care of my family that I never considered what it must be like for my husband to have a mental illness. Not for a second did I consider what it was like to have unrelenting thoughts 24/7 and to want to stay in bed the majority of the day. For the first time I got it! That’s what had been missing! I knew the head part about mental illness; it was the heart part that I was missing. For the first time I experienced hope that our lives would be changing for the better. Page 11 Healing Touch with Guided Imagery Shown to Relieve Combat PTSD By Julie Erickson, NAMI Education Program Coordinator According to a recent study, the alternative medical techniques of healing touch and guided imagery can be effective in relieving symptoms of posttraumatic stress disorder (PTSD) in returning active duty military personnel, when combined with regular PTSD treatment. Healing touch therapy employs gentle touch to restore the body’s energy balance and is meant to promote healing, relieve pain and reduce anxiety. Guided imagery uses visualization by the patient in an effort to send a message to the emotional control center of the brain, which then affects the endocrine, immune and autonomic nervous systems. These systems influence vital bodily functions, such as heart rate, breathing rate and blood pressure The study included 123 marines, 55 of whom received regular treatment and 68 whose treatment plan also included healing touch and guided imagery. All participants in this study had been experiencing at least one symptom of PTSD before the trial began. By the third week and the completion of six healing touch and guided imagery sessions, the group whose treatment included these complementary medical techniques showed significantly greater improvement from their PTSD symptoms, when compared to the group who only received regular treatment during that same period. “Scores for PTSD symptoms decreased substantially, about 14 points and below the clinical cutoffs for PTSD,” said principal investigator Dr. Mimi Guarneri in a news release. “This indicates that the intervention was not just statistically significant, but actually decreased symptoms below the threshold for PTSD diagnosis.” Although the research on healing touch has been minimal up until now, the few studies that have been conducted on this technique show it to be effective in postsurgery recovery, anxiety reduction during radiation treatments and pain management for migraines. Guided imagery has been shown in studies to reduce side effects from cancer treatments, pre-surgery anxiety, frequency of migraines and general stress. Wayne B. Jonas, M.D., president and chief executive officer of Samueli Institutes, explains that “Service members are seeking out non-drug complementary and integrative medicine as part of their overall care and approach to wellness.” Healing touch and guided imagery techniques offer patients an opportunity to include alternative medicine as part of their overall treatment plan, without the added risk and side effects that can come along with many modern medicines. Family Forum April—May 2015 Page 12 NAMI Tri-County Illinois P.O. Box 10167 Peoria, IL 61612 309 693-0541 http://namitri -county.org ________________________ An affiliate of the National Alliance on Mental Illness ________________________ We provide education, support groups, and advocacy for families, friends, and individuals with mental illness in Peoria, Tazewell, and Woodford Counties. NAMI Tri-County Illinois Membership Form An affiliate of the National Alliance on Mental Illness Membership dues also include membership in NAMI and NAMI Illinois You may join on line rather than by sending in this form: http://nami.org Open Door Membership $3 OR General Membership $35 Name(s) ____________________________________________________________________________ Address _________________________________________ Phone _____________________________ City ______________________ST ______ZIP __________E-mail _____________________________ Monetary Donation $10________ $25________ $50________ Check enclosed for $______________ $100________ $250________ Other $_______ Donations are tax deductible Complete and mail to NAMI Tri-County Illinois, Attn: Treasurer, P.O. Box 10167, Peoria IL 61612 Make checks payable to NAMI Tri-County Illinois. Phone: 309 693-0541
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