TRURO & AREA NORTHWESTERN ONTARIO P ROSTATE E XAMINER Thunder Bay Spring Newsletter 2015 Launch of The Aboriginal DVD - A Man’s Story Looking for Support? Martin, an experienced male nurse, talks about the prostate and prostate cancer, its diagnosis, and the treatment options. When detected early, the survival rate of prostate cancer can be over 90%. The family of the late Richard Lyons, a well-known and respected aboriginal Elder and leader, who died from prostate cancer, also shares their story of Richard’s experience with the disease. The common message from all is the importance for aboriginal men to be tested for prostate cancer as early as age 40 and to discuss their health issues with their families. Advisory Committee Special Thanks Translators Bill Vantour, Chair Bill Everitt Nathan Hyder - Sound Fred Jacob Ella Smith Marilyn Junnila Ed Long Bean Production - Photography Bertha Metat Felicia Waboose Maureen Rowlands, PCC Jim Hyder, Director Alex Ostamas Anastasia Weesk TRURO & AREA Bruce Shisheesh Women Available to Talk to You Ev Burki....... 768-8744 ©2014 after 6pm Marilyn Junnila....... 475-5706 after 5pm Beth Long....... 983-2353 Dianne Slack....... 473-8297 Inga Vantour....... 767-8515 Thunder Bay Thunder Bay Thunder Bay Northwestern Ontario Region Atikokan Ron Speck.........807 597-2219 Dryden Horst Lang.........807 223-5516 Fort Frances John Thompson.........807 274-4807 Hearst Marcel Girouard.........705 362-8154 Longlac Dick Mannisto.........807 876-4485 Terrace Bay/Schreiber John St. Amand....... 807 825-9054 PCCN-Thunder Bay officially released A Man’s Story, a video on prostate cancer and the importance of its early detection and treatment, on January 23 at the Thunder Bay Indian Friendship Centre. The video features aboriginal elders Freda McDonald, Gerry Martin, Mark Sault and family members of the late aboriginal elder Richard Lyons who died in 2005 from prostate cancer. The target audience for A Man’s Story is aboriginal men, their families and communities. The video has been translated into Ojibway, Cree and OjiCree dialects. Funding for A Man’s Story was provided by Prostate Cancer Canada and PCCN-Thunder Bay. A Man’s Story A message about prostate cancer for men and their families. A Man’s Story Prostate cancer is one of the three leading cancers in aboriginal men in Ontario and the cause of many unnecessary deaths. It doesn’t need to be this way! In A Man’s Story, aboriginal elders Gerry Martin and Freda McDonald, talk about prostate cancer and the importance of its early detection and treatment. by Bill Everitt Prostate Cancer Canada Network - Thunder Bay Men Available to Talk to You Brian Scott....... 983-2033 Bill Everitt....... 767-5768 Thunder Bay Thunder Bay Duncan Jamieson....... 933-4856 Bill Horde....... 767-1490 Bill Vantour....... 767-8515 Grant Arnold....... 933-4214 Ed Long....... 983-2353 A Man’s Story Phil Junnila....... 475-5706 Steve Dychko....... 577-1881 Denis Perron....... 344-7076 Mel Zobatar....... 767-6081 Jim Hyder....... 933-0124 Marcel Girouard....... 705-362-8154 (en francais) A Man’s Story is presented in English, and Ojibway, Cree, and Oji-Cree dialects. TRURO & AREA The meeting was called to order by Bill Everitt, the MC for the event, who welcomed everyone on behalf of PCCN-Thunder Bay. Aboriginal elders and video narrators, Freda McDonald and Gerry Martin, conducted an opening (smudging) ceremony prior to the formal program. The Indian Friendship Centre was thanked for the use of their facility and it was recognized that the event was taking place on the traditional land of the Fort William First Nations. Prostate Cancer Canada Network - Thunder Bay gratefully acknowledges the funding of this resource by Prostate Cancer Canada. Thunder Bay Thunder Bay Thunder Bay Grant Arnold, Vice-President, brought greetings from the organization on behalf of President Ed Long and spoke of the commitment of PCCN-Thunder Bay over the past 20 years to assist men and their families who are dealing with prostate cancer. Marilyn Junnila, a member of the national prostate cancer Advisory Board and a member of the video Production Advisory Committee, recognized the video participants, presenting personal copies of the videos and packets of tobacco to Freda McDonald, Gerry Martin, Marge Lyons, Verna Legarde, and Kathy Beck. Continued on Page 2 NEXT MEETING Thursday, April 16, 2015 Speaker: Dr. Jaro Kotalik on “How To Talk To Your Doctor” Location: 55 Plus Centre, 700 River St. Time: 7:00PM Launch of The Aboriginal DVD - A Man’s Story (continued) Jim Hyder, the Director for the video, gave a brief background to the video, as did Gerry Martin who had seen previous videos developed by the group, but said, “when I viewed these other videos, as good as they were, I did not see myself or my people in them”. The current video, A Man’s Story, is a direct result of this. A thirteen minute clip of the English version of the video was viewed and was followed by comments from members of the audience. John Rafferty, MP for the federal electoral district of Thunder Bay-Rainy River, complimented PCCN-Thunder Bay for the excellent video and encouraged us to find a way to distribute it as broadly as possible. Ontario Regional Grand Chief Stan Beardy echoed Mr. Rafferty’s comments and pointed out the challenges of providing both preventative and diagnostic activities such as PSA testing in the remote north. He expressed concern that Health Canada emphasizes acute and chronic care activities in the north with very little emphasis on public health. Furthermore, he stated that nurses from southern Ontario are often placed for short periods in northern nursing stations, lacking in both community and cultural awareness. The well attended video launch had over 50 people representing numerous organizations including: Chiefs of Ontario, Fort William First Nations, Whitesands First Nations, Lac des Milles Lac First Nations, several areas of the Thunder Bay Regional Health Sciences Centre, Cancer Care Ontario, Dilico, The Thunder Bay Indian Friendship Centre, and Mishko Bimoadziwin Family Support Services. PCCN-Thunder Bay’s Board of Directors was out in numbers ensuring that the event was well organized. Thanks to the following: Grant Arnold, Bill Vantour, Bill Bartley, Lorne Sampson, Steve Dychko, Ray Turcotte, Denis Perron. Special thanks go to Marilyn Junnila who prepared trays of homemade bannock. Aboriginal DVD Sneak Preview by Anne Scott The focus of the January 15, 2015 meeting was a sneak preview of the new DVD A Man’s Story. The DVD was produced by PCCN – Thunder Bay’s Jim Hyder, along with an advisory group of PCCN – Thunder Bay members: Bill Everitt, Marilyn Junnila, Ed Long and Bill Vantour, as well as First Nation Elders, Gerry Martin and Freda MacDonald. The DVD introduced Prostate Cancer, its symptoms, diagnostic tests and treatments to the aboriginal community in simple, straightforward terms. It has been produced in four languages, English, Ojibway, Oji-Cree and Cree. It emphasizes the use of traditional approaches of dealing with disease and the importance of families and sharing within the community. The audience response of the 32 present was overwhelmingly positive. One man commented on the importance of having Dr. Richard Lyons’ family participate in the making of the DVD as Dr. Lyons was a respected Elder in the aboriginal and Thunder Bay communities, and a member of our group. He died of Prostate Cancer in 2005. The widow of a member who died recently felt that the emphasis in the DVD on early detection and the importance of speaking out about prostate cancer was excellent. Little Lyons Waldorf Daycare & Valley Central School Raise Funds For the Third Year In a Row Our little friends and supporters at the Little Lyons Waldorf Daycare and Valley Central School raised funds for the third year in a row to donate to PCCN-Thunder Bay. The students of the daycare made moustaches and the grade six class of the school made rice crispy squares to sell at the school and raise funds for the donation. The students presented us with a cheque for $252.30, and a commitment to do it again next year. A sincere thank you to all of the students and teachers who continue in their efforts to support men’s health through the mission and work of PCCN-Thunder Bay. 2 pccnthunderbay.org Christmas Social 2014 55 Plus Centre - Tuesday, December 16 This was an evening of fun, food, socializing and music, story telling, a few jokes, laughter and goodwill Merry Christmas wishes, Happy New Year and exchanging plans for embracing winter or escaping to the sunny south. A warm welcome to: Dick Mannisto, our new contact from Longlac, and Dr. Sunil Gulavita & his wife, Shanti Thank you to all who made this evening possible: Bill Horde and Ray Dafoe for organizing the event, Rose Horde and Nellie De Dura for arranging the food, Anne Scott for making the gluten free food, Lorne Sampson for the set up of tables and chairs, Steve Dychko for the music, The staff of 55 Plus, And a big thank you to all of you who attended. Thank You Donors & Supporters PCCN-Thunder Bay extends a sincere thank you to all of the businesses, community groups, and individuals who made donations and supported us in 2014. Your donations and support help to fund the vital work of our group to raise prostate cancer awareness, to provide information and support to men with prostate cancer and their families, to network with prostate cancer support groups in Northwestern Ontario, and to help fund research as we are able. Thank You to our Business & Community Group Donors & Supporters Please remember to thank them when doing business and/or engaging with them. Applebee’s Neighborhood Grill & Bar Harbourview Funeral Centre Frank Cava Memorial Golf Tournament Hilldale Boys of Hilldale Lutheran Church Life Labs Flipper Flanagan’s Flat Footed Four Mark’s Work Wearhouse Janssen Inc Stride Orthopedics & Footwear Little Lions Waldorf Daycare & Valley Central School Signs Now Musselwhite Mine Northwestern Ontario Prospectors Association Richard Pepper & Band Used Car Superstore Thunder Bay 55 Plus Centre Spring Newsletter 2015 Lakehead Classic Cars Thunder Bay Border Cats Thunder Bay Telephone The UPS Store #96 3 Gary Cooper On Human Organ & Tissue Transplant Donations By Marilyn Arnold Gary Cooper, a volunteer speaker with the “Trillium Gift of Life Network”, was the guest speaker at the General Meeting on Thursday, February 19, 2015, giving a presentation on “Human Organ & Tissue Transplant Donations”. Mr. Cooper gave a dynamic presentation of his own personal journey as a two times transplant recipient. He stressed the importance of donor recipient compatibility and timely retrieval from the donor to the transplant recipient. Donor recipient information is strictly confidential. Donor cards received with your Drivers License are of no value. Forms to become a donor, using your Health Card, are available at the secure website: beadonor.ca. Statistical information and updates are also available at this website. Lorne Sampson, one of our members, then shared the donor family perspective, with written expressions of gratitude and recognition. A heartfelt thank you was given to Gary and Lorne for sharing their stories and information about transplant donations. An Honorary Membership in PCCN Thunder Bay was presented to Mr. Cooper. Gary Cooper is a retired police officer and the recipient of two liver transplants, the latest one in 2010. He is also a Patient & Family Advisor at the Thunder Bay Regional Health Sciences Centre. In Memoriam Ronald Makinen passed away peacefully at home on Monday, December 15, 2014 with his family by his side. He enjoyed time in the bush, on the farm, at the summer camp and taking road trips with family. Ron was a private person and PCCN-Thunder Bay was the only group to which he belonged in his lifetime. He told others about the value of the group. He was 75. Gunter Spengler passed away on Saturday, December 27, 2014. He was an avid outdoorsman, builder, gardener, history buff, husband, father, grandfather and all around gentleman. Gunter was a founding member of the Thunder Bay Prostate Support Group. He was 80. Don Sutherland passed away suddenly from a stroke on Sunday, February 22, 2014. He enjoyed a teaching career, but his special love was coaching sports. In 2005, he was inducted into the Northwestern Ontario Sports Hall of Fame. Don spent many hours attending his children’s activities, and was proud of them, especially when all three children followed his footsteps into the teaching profession. He was 74. We at PCCN-Thunder Bay send our condolences to their families. 4 pccnthunderbay.org News From The Region Marcel’s Morsels by Marcel Girouard, Hearst, ON The Power of Numbers In October 2014, Canadian Task Force on Preventive Health Care (CTFPHC) guidelines recommended that prostate-specific antigen (PSA) testing not be used to screen for prostate cancer, based on evidence that (allegedly) shows an increased risk of harm and uncertain benefits. Prostate Cancer Canada (PCC) disagrees with that recommendation and so has launched a full-scale campaign to remind Canadians that the benefits of PSA screening far outweigh the negatives. PCC president and CEO, Rocco Rossi, supported by many prostate cancer survivors, aggressively protested and disagreed with the recommendations by reminding men that early detection using smart screening for prostate cancer can save lives, that men deserve to know where they stand to have a fighting chance and that with early detection, and that the survival rate for prostate cancer can exceed 90 per cent. At the November 2014 Central Canada PCA support group leaders retreat at Huntsville, Rossi asked us to have our members register for the PCC Updates so that he can actually state how many people he speaks for when he approaches governments and sponsors. These support group leaders agreed that a special signup procedure that would allow gun-shy members to opt out of fund raising emails would be desirable. Yaz Maziar, PCC director of digital marketing, has created a link on PCCN’s web page www.prostatecancer.ca/PCCNSubscribe; all contacts will be counted as supporters. However, while I totally agree with this idea, my feeling is that many men of prostate cancer age- at least in my region – are not using computers, or are not yet comfortably computer-literate. Using information technology to increase membership has worked for the Heart and Stroke Foundation of Canada; under Rossi’s directorship, their mail out listings jumped to 35,000 from just 400. One particular statistic that I’ve heard for many years indicates that 25,000 men in Canada are diagnosed with prostate cancer annually, 4,000 of whom die from this disease each year. I don’t know how the bean counters determine these numbers, but they represent a significant number of voters who could benefit from PCC support and research dollars to eliminate this plague. I believe that PCC speaks for them. Don’t quit on PSA screening; early detection can save lives and boost survival rates. Recommended reading: Google - Toronto Star Nov. 2 2014 and read an article by Dr. Larry Goldenberg, chair of Canadian Men’s Health Foundation and UBC professor of urology sciences. Spring Newsletter 2015 5 Visit us at pccnthunderbay.org, or look us up on Facebook. Our newsletters are now available on our website www.pccnthunderbay.org If you would like to receive your copy by email, please email [email protected] Upcoming Events Thursday, April 16: Dr. Jaro Kotalik on “How To Talk To Your Doctor” 7:00 pm, 55 Plus Centre, 700 River St. Note: This presentation will be live streamed from our website. Thursday, April 23: 55 Plus Centre Health & Wellness Expo 10:00 am to 4:00 pm. Thursday, May 21: Michael Sargent on “Talking With The Funeral Director Before You Have To” 7:00 pm, 55 Plus Centre, 700 River St. Thursday, June 18: Annual Beef On A Bun Social (PCCN Members & Families) 5:00 pm, 55 Plus Centre, 700 River St. Newsletter Committee Email: [email protected] Beth Long 983-2353 Brian Scott Grant & Marilyn Arnold Marcel Girouard Ed Long 983-2033 933-4214 (705) 362-8154 983-2353 TRURO & AREA Board Members Ed Long Grant Arnold Bill Bartley Ray Dafoe Jim Holmes Bill Horde Denis Perron Lorne Sampson President Secretary/Treasurer Director Director Contact Us Bill Vantour Vice President Past President Bob Danylko Director Director Director Director Bob Lavoie Director Thunder Bay 1100 Memorial Avenue - Suite 374 Thunder Bay, ON P7B 4A3 807.627.0333 [email protected] www.pccnthunerbay.org Thunder Bay This newsletter is produced with funds from an unrestricted grant provided by Janssen Inc. 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