Chronic conditions and co-morbidity among residents of British Columbia Anne-Marie Broemeling Diane Watson Charlyn Black February 2005 “Chronic conditions and co-morbidity among residents of British Columbia” was produced by: Centre for Health Services and Policy Research The University of British Columbia 429-2194 Health Sciences Mall Vancouver, BC Canada V6T 1Z3 Tel: (604) 822-1949 Fax: (604) 822-5690 Email: [email protected] You can download this publication from our website at www.chspr.ubc.ca. This publication is protected by copyright. It may be distributed for educational and noncommercial use, provided the Centre for Health Services and Policy Research is credited. Table of Contents About CHSPR ...................................................................................................ii Acknowledgements ........................................................................................iii 1. Introduction .................................................................................................1 1.1 Why study chronic conditions and co-morbidity?......................................................................... 1 2. Methods .......................................................................................................4 2.1 Study population ......................................................................................................................... 4 2.2 Data source.. 4 2.3 Classifying the study population .................................................................................................. 4 2.4 Classifying chronic conditions ...................................................................................................... 5 2.5 Co-morbidity in the study population .......................................................................................... 6 2.6 Utilization .... 6 3. Results .........................................................................................................7 3.1 Chronic conditions among British Columbia residents, 2000/01 .................................................. 7 3.2 High impact and/or high prevalence chronic conditions ............................................................ 10 3.3 Co-occurrence of chronic conditions .......................................................................................... 14 3.4 Recognizing co-morbidity among individuals with chronic conditions....................................... 14 3.5 Expected resource use by level of co-morbidity ......................................................................... 17 3.6 Chronic conditions, co-morbidity and use of health care services .............................................. 19 3.7 Chronic conditions, co-morbidity and high users of health care services ................................... 22 4. Discussion ..................................................................................................23 5. Conclusions ................................................................................................26 6. Limitations .................................................................................................27 Appendix A: Distribution of study population by patient category ................... 28 Appendix B: Standardized utilization rates of health care services ...............30 Appendix C: Data methods ............................................................................35 References .....................................................................................................36 Chronic conditions and co-morbidity among residents of British Columbia |i About CHSPR The Centre for Health Services and Policy Research (CHSPR) is an independent research centre based at the University of British Columbia. CHSPR’s mission is to stimulate scientific enquiry into issues of health in population groups, and ways in which health services can best be organized, funded and delivered. Our researchers carry out a diverse program of applied health services and population health research under this agenda. CHSPR aims to contribute to the improvement of population health by ensuring our research is relevant to contemporary health policy concerns and by working closely with decision makers to actively translate research findings into policy options. Our researchers are active participants in many policy-making forums and provide advice and assistance to both government and non-government organizations in British Columbia (BC), Canada and abroad. CHSPR receives core funding from the BC Ministry of Health Services to support research with a direct role in informing policy decision-making and evaluating health care reform, and to enable the ongoing development of the BC Linked Health Database. Our researchers are also funded by competitive external grants from provincial, national and international funding agencies. Much of CHSPR’s research is made possible through the BC Linked Health Database, a valuable resource of data relating to the encounters of BC residents with various health care and other systems in the province. These data are used in an anonymized form for applied health services and population health research deemed to be in the public interest. CHSPR has developed strict policies and procedures to protect the confidentiality and security of these data holdings and fully complies with all legislative acts governing the protection and use of sensitive information. CHSPR has over 30 years of experience in handling data from the BC Ministry of Health and other professional bodies, and acts as the access point for researchers wishing to use these data for research in the public interest. For more information about CHSPR, please visit www.chspr.ubc.ca. ii | Centre for Health Services and Policy Research Acknowledgements This project was conducted with funding from an ongoing contribution agreement with the BC Ministry of Health Services. It builds on a collaborative research project with the Vancouver Coastal Health Authority (VCH). The original project with VCH developed a profile of chronic health conditions, co-morbidity, and health care utilization among VCH residents. We are very grateful to Mark Chase, who originally identified the need for information on chronic health conditions to inform health planning and service delivery, and who encouraged the collaborative research between VCH and CHSPR. Funding for the VCH research project was provided in the form of a postdoctoral fellowship (AM Broemeling), with financial support provided both by VCH and the Canadian Health Services Research Foundation. We are grateful for this support and the foundation the VCH work has provided for this provincial project. The results and conclusions are those of the authors and no official endorsement by the funders is intended or should be inferred. Special thanks also go to a number of staff at CHSPR, including Sherin Rahim-Jamal, Bo Green, Peter Schaub and Heidi Matkovich for their assistance with this project. Chronic conditions and co-morbidity among residents of British Columbia | iii 1. Introduction Chronic health conditions have been identified as a key challenge for health care during the twenty-first century.1 Chronic conditions affect a significant proportion of the population, not only in Canada, but around the world.2,3,4 The majority of health care services are used by individuals with chronic conditions5 and the cost of treating chronic conditions is significant.6,7 In Canada, 67 per cent of total direct health care costs and 60 per cent of indirect costs in terms of lost productivity and foregone income are attributed to chronic diseases.8 Chronic health conditions are those expected to persist or to recur, usually beyond one year, and range from persistent skin disorders such as psoriasis, to recurrent psychosocial conditions such as chronic depression, to complex, high impact conditions such as chronic renal failure, congestive heart failure, and cerebrovascular disease. Chronic conditions are significantly associated with increasing age and gender,9 and lower socioeconomic status,10 and include both diseases such as diabetes, and health states involving disability, such as post-stroke impairment. As the population ages, the needs of people with chronic conditions are expected to place increasing demands on health care providers and health care delivery systems. The impact of chronic conditions and the need to introduce chronic condition prevention has been identified as a priority for the newly created Public Health Agency of Canada.11 The Romanow Commission on the Future of Health Care in Canada also identified the needs of those with chronic conditions as an area for future attention,12 and the recent national consultation on health services and policy issues for 2004–2007, Listening for Direction II, identified chronic disease management as an important issue for sustainability in Canada.13 The purpose of this report is to profile patterns of chronic health conditions among British Columbia residents, the presence of multiple conditions (co-morbidity) among those with chronic conditions, and the impact of chronic conditions and co-morbidity on utilization of health care services. 1.1 Why study chronic conditions and co-morbidity? More than 50 per cent of Canadian adults— and 81 per cent of community-dwelling seniors— report having a chronic health condition.3 Individuals with chronic conditions account for a significant proportion of health services use: in the US, 76 per cent of direct medical costs are for those with chronic conditions.5 A recent study of high users of medical services in British Columbia found that high users were more likely to have multiple conditions, including a combination of chronic conditions and psychosocial conditions, and high users more frequently had specific chronic conditions such as congestive heart failure, cerebrovascular disease, cancer, and cardiac arrhythmia.14 Similar findings were reported among American Medicare recipients, where onequarter of beneficiaries had four or more types of chronic conditions and were responsible for twothirds of Medicare expenditures.15 At the same time, evidence suggests that the quality of care provided to individuals with chronic conditions is less than optimal. Care for chronic conditions has been described as “a poorly connected string of episodes determined by patient problems. Physicians, hospitals, and other health care organizations operate as silos, often providing care without the benefit of complete information about the patient’s condition, medical history, services provided in other settings, or medications Chronic conditions and co-morbidity among residents of British Columbia |1 prescribed by other clinicians.”1 Research suggests that continuity of care contributes to increased use of preventive services, reduced utilization of emergency and acute care services, and improved patient outcomes and satisfaction.16 Receipt of recommended, evidence-based, preventive, treatment, and follow-up care (technical effectiveness) contributes to improved patient outcomes.17 Yet care for individuals with chronic health conditions often focuses on acute exacerbations of persistent or recurrent conditions rather than regular monitoring and preventive care. Many individuals with chronic conditions fail to receive recommended services, preventive monitoring, education, and care for associated functional and psychosocial needs. In British Columbia in 2002/03, only 39 per cent of individuals received recommended hemoglobin testing, 43 per cent received recommended eye examinations, 34 per cent received recommended microalbumin testing, and 78 per cent received the recommended lipid testing for preventive diabetes management.18 Similar results have been reported in other jurisdictions.17,19 In response to concerns about continuity, coordination, and technical effectiveness of health services for those with chronic health conditions, chronic disease management programs have been implemented in a number of jurisdictions, including British Columbia. These programs focus on management of specific chronic conditions with the objective of reducing utilization and treatment costs, and/or improving patient outcomes. Chronic disease management programs most commonly target asthma, diabetes, depression, hypertension, congestive heart failure, and arthritis.20 These initiatives typically include identification of individuals with a specific chronic condition (development of a chronic disease registry) and introduction of one or more 2| Centre for Health Services and Policy Research measures to manage the condition. In many cases (e.g. congestive heart failure, hypertension), disease management focuses on pharmacotherapy regimens. Chronic disease management programs may also include patient education (selfmanagement training), physician decision support (evidence-based guidelines or protocols, training for recommended care, shared care), and clinical information systems with recommended care and follow-up reminders to promote continuity of care. The “chronic care model” emphasizes the combination of measures in an integrated approach to chronic disease management.21 Chronic disease programs often focus on a single condition. However, many people have multiple chronic conditions, which tend to “cluster” in individuals.22,23,24 In the US, more than 40 per cent of individuals with chronic conditions— and almost 70 per cent of those aged 65 and over—had more than one chronic condition.5 Yet little is known about the distribution of people with single or multiple chronic health conditions in Canada. This type of information is critical to planning and organizing health services as the care for individuals with multiple chronic conditions is complex and often involves patients receiving treatment from several providers in various settings. Research from the US and Europe indicates that individuals with multiple chronic conditions use more health care services23,25 and are more likely to experience ambulatory care sensitive or preventable hospitalizations,15,26 activity or functional limitation or disability,27 decreased well-being and quality of life,28 and are more likely to report poor health status.29 As well, individuals with multiple conditions are less likely to receive recommended treatment for other medical conditions,30,31 and are more likely to use multiple pharmaceuticals and complex drug regimens with attendant risk of drug interactions. Individuals with multiple chronic conditions may also be less likely to receive appropriate primary health care and are more likely to experience poor coordination of care.15 This report was designed to address the following questions: • What is the experience of British Columbians with chronic health conditions and co-morbidity? • How do individuals with chronic health conditions and co-morbidity use health care services compared to individuals with no chronic conditions or individuals with chronic conditions and no or low co-morbidity? • How do individuals with chronic health conditions and co-morbidity overlap with high users of health care services? Do chronic disease programs target those with highest use of services? The report profiles the treatment prevalence of chronic health conditions and co-morbidity among residents of British Columbia. The impact of chronic conditions and co-morbidity on both expected and actual utilization of health care services is described. Information is provided to identify the overlap between those with chronic conditions and co-morbidity and high users of health care services. This report is intended to enhance understanding of chronic care needs and to inform the planning for, and management of, chronic care for residents of British Columbia. Chronic conditions and co-morbidity among residents of British Columbia |3 2. Methods 2.1 Study population The study population included adult residents (18+ years of age) of British Columbia registered with the British Columbia Medical Services Plan (MSP). Results are reported for adults who were registered with MSP for 275+ days as well as individuals who died during 2000/01. Sensitivity analyses were performed using varying registration periods (185+ days, 275+ days, 335+ days, 365 days, with and without deaths during the year) to assess the impact of enrollment period on results: diagnoses are an endogenous variable and complete identification of specific conditions could be affected by the length of time individuals were enrolled and receiving services. Detailed analyses were completed for study populations for each of the following years: 1997/98, 1998/99, 1999/00, and 2000/01. Similar results were found for each study year, indicating that the morbidity measurement strategy is reliable and the conclusions were stable over a 4-year period. 2.2 Data source Data were extracted from the British Columbia Linked Health Database (BCLHD) at the Centre for Health Services and Policy Research. Data accessed through the BCLHD included client registry, Hospital Discharge Abstract, Medical Services Plan (MSP), Continuing Care Information Management System, and PharmaCare Plan A & B files. Census-derived information for neighborhood income provided an ecological measure of socioeconomic status. Probabilistic and deterministic linkage methods developed by CHSPR were used to link data from individual administrative files. These methods result in over 95 per cent linkage rates.32 Data were anonymized to ensure confidentiality and protection of privacy. 4| Centre for Health Services and Policy Research Medical services provided by salaried and sessional physicians and service organizations funded through the Alternative Payments Program (APP) were not included since individual-level data are not available from this source. As a result, we likely understate treatment prevalence rates for chronic conditions, overall morbidity, and utilization rates for individuals who rely predominantly on these APPfunded services. During the time frame under investigation, psychiatric, oncology, pediatric, primary care, geriatric, and emergency services were most frequently provided under alternative payments. APP service expenditures have been increasing during the past 20 years.33 2.3 Classifying the study population Chronic conditions were identified using ICD9 diagnoses from MSP claims data and from the Hospital Discharge Abstract data file. Diagnosis codes were grouped into more than 50 specific chronic conditions with an expected duration of more than one year using the Expanded Diagnosis Clusters (EDCs) methodology.34 This methodology groups diagnosis codes into commonly occurring ambulatory conditions and is useful for minimizing the impact of differential coding of common conditions. ICD9 diagnosis codes were also grouped using Adjusted Clinical Groups (ACGs) to summarize the types of conditions and overall morbidity experienced by individuals during a one-year time period. ACG assignments reflect the range and severity of conditions, as well as age and gender.35 Individuals in the study population were classified into the following mutually exclusive categories to reflect both use of health care services and types of diagnosed conditions: Chronic conditions: individuals with chronic conditions were identified using the EDCs grouping methodology for chronic conditions with an expected duration of greater than one year. Individuals with chronic conditions were further categorized as those with: confirmed chronic conditions: those individuals with at least two medical or one hospital diagnoses for at least one chronic condition during the two-year period;* or possible chronic conditions: those individuals with a single chronic condition diagnosis during the two-year period; that is, they may have a chronic condition but this was not confirmed with a second medical diagnosis. Acute conditions: individuals with medical and/or hospital service use but no identified chronic condition(s) were categorized as having acute conditions. 2.4 Classifying chronic conditions In order to focus the analysis from chronic conditions generally to a relevant subset of conditions, chronic conditions were further categorized by prevalence and impact using data for 1997/98. Prevalence was estimated using treatment prevalence rates in the study population. Treatment prevalence rates identify individuals who were treated for specific chronic conditions. Individuals who have undiagnosed conditions or who did not seek treatment are not identified. It is important to note that treatment prevalence rates for specific chronic conditions in this study were based on different diagnosis groupings as well as different data sources than those used by the British Columbia Ministry of Health Services to develop provincial chronic disease registries. For example, Ministry registries incorporate additional prescribing data from the PharmaNet database to identify chronic conditions, a data source that was not available for this study. It is anticipated that treatment prevalence rates in this analysis understate chronic condition prevalence and will be lower than prevalence rates reported in the British Columbia chronic disease registries. Impact was based on expected short-term resource use and outcomes as estimated using Adjusted Clinical Groups (ACGs) and hospital/medical cost weights from previous research.36 ACGs measure the range and severity of conditions experienced by individuals during a one-year period and provide a combined measure of expected impact that is predictive of utilization.34,35 Combining prevalence and impact: Chronic conditions were classified according to both prevalence and impact since both prevalence and the expected impact of a chronic condition contribute to the overall impact of that condition on health services utilization in the population. I M PAC T P R E VA L E N C E Non-users: non-users of health care services were identified as those individuals with no medical or hospital service use during the study year (ACG 5200). LOW HIGH HIGH High prevalence & low impact High prevalence & high impact LOW Low prevalence & low impact Low prevalence & high impact * The two diagnosis requirement, along with the decision to exclude laboratory and diagnostic imaging service diagnoses, was used to increase sensitivity and specificity of case identifications and to reduce potential rule-out diagnoses. Chronic conditions and co-morbidity among residents of British Columbia |5 For this study, specific chronic conditions that were high impact and/or high prevalence chronic conditions (HI/HP CCs) were identified in order to recognize the importance of both prevalence and impact for planning chronic care services. 2.5 Co-morbidity in the study population Co-morbidity measures estimate the co-occurrence of additional conditions among individuals with an index condition. The presence of comorbidity was identified using ACGs (e.g. ACG 4330: individuals with 4 to 5 ADGs, age 18–44, 2+ major ADGs) and reflects types of conditions rather than specific chronic conditions. Individuals were identified as having: no co-morbidity (single condition), low comorbidity (2 to 3 types of conditions), medium co-morbidity (4 to 5 types of conditions), high co-morbidity (6 to 9 types of conditions), and very high co-morbidity (10+ condition types). 2.6 Utilization Two measures of utilization were used in this study: expected resource use, and actual utilization. Expected resource use estimates resource use by sub-groups of the population relative to the population average and was based on ACG cost estimates. The average cost for individuals in each group was compared to the population average using an index. This expected resource use index enables comparisons of combined medical and hospital service use by sub-groups, such as those with chronic conditions compared to those with acute conditions. Actual utilization rates were also calculated and recognize the use of home care, home support, and pharmaceutical services in addition to hospital and medical care. Actual utilization rates were calculated and stratified by type 6| Centre for Health Services and Policy Research of user—acute, chronic, those with HI/HP CCs—and by co-morbidity level. Utilization rates were calculated for medical services (GP, specialist, total visits, and expenditures); hospital services (acute/rehab, alternate level of care, total inpatient days); direct home care services (home nursing care, home rehab services, total direct care visits); home support (homemaker hours and expenditures); and PharmaCare (Plan A and Plan B) use by seniors. Crude and age/sex-standardized utilization rates were calculated. Additional data methods are described in Appendix C. 3. Results 3.1 Chronic conditions among British Columbia residents, 2000/01 Figure 2 describes the distribution of residents into non-user, acute, chronic, and possible chronic condition categories by health authority (HA) for 2000/01. In 2000/01, 36 per cent of adult residents of British Columbia had at least one confirmed chronic condition. A further 18 per cent had at least one possible chronic condition, based on a single diagnosis for at least one chronic disease. Thirty-three per cent of residents had acute conditions only. The remaining 13 per cent of residents were non-users of services. The proportion of residents with chronic conditions ranged from 31 per cent in the Northern Health Authority to 39 per cent for Vancouver Island Health Authority, reflecting, in part, the relatively younger population in the North and older age distribution among residents of Vancouver Island. Age/sex standardized rates by health authority indicate fairly similar distribution by patient category (Appendix A). The higher proportion of non-users and lower proportion of residents with chronic conditions among residents of some health authorities may also reflect use of APP services in rural and remote areas and missing Alberta utilization data from which diagnoses are identified. As illustrated in Table 1, the proportion of seniors with chronic conditions was significantly higher: 68 per cent had at least one confirmed chronic condition and a further 15 per cent had possible chronic conditions. Eleven per cent had only acute conditions and less than 6 per cent were non-users of services during 2000/01. Chronic condition prevalence increased with age and a higher proportion of women than men had diagnosed chronic conditions (Figure 1). The proportion of residents with chronic conditions was higher among the residents of the lowest income neighborhoods (38.5 per cent) than among residents of higher income neighborhoods (34.1 and 34.0 per cent). Table 1: Distribution of chronic conditions among adult study population, 2000/01 Adults 18+ years (n=2,933,305) Seniors 65+ years (n=545,059) % distribution Non-users 13.3 5.6 Acute conditions 32.6 11.4 Possible chronic condition(s) 18.5 14.6 Confirmed chronic condition(s) 35.7 68.4 TOTAL 100.0 100.0 Chronic conditions and co-morbidity among residents of British Columbia |7 Centre for Health Services and Policy Research 0 10 % 20 % 30 % 40 % 50 % 60 % 70 % 80 % 90 % 100 % 18-34 years 16.9 47.8 18.1 17.2 35-49 years 16.0 37.8 19.9 26.4 50-64 years 11.5 24.3 20.1 44.1 65-74 years 6.4 13.2 15.8 64.6 By age group 75+ years 4.7 9.4 13.3 72.6 (low) Q1 13.2 30.6 17.7 38.5 Q3 12.8 33.0 18.6 35.6 Q4 13.3 33.8 18.8 34.1 Income quintile Q2 12.9 32.1 18.4 36.6 By income quintile (high) Q5 13.2 33.8 19.1 34.0 18.3 33.5 16.6 31.6 females 8.7 31.8 20.1 39.4 By sex males Figure 1: Distribution of chronic conditions by age group, neighborhood income and sex Percent of residents 8| Non users Acute Conditions Chronic Conditions (possible) Chronic Conditions (confirmed) Patient categories Figure 2: Distribution of chronic conditions by health authority Among adults (18+) in BC... Patient categories by health authority Fr aser HA 12.1 % 32.6 % 18.9 % 36.4 % Patient categories among adults (age 18+) Non-users Acute Conditions Vancouver Coastal HA 14.8 % 33.3 % 18.5 % 33.4 % Chronic Conditions (possible) Chronic Conditions (confirmed) Source: BC Linked Health Database (CHSPR) Vancouver Island HA 11.2% 31.6 % 18.2 % 39.0 % Interior HA 13.0 % 32.2 % 18.0 % 36.8 % Northern HA 18.1 % 33.2 % 18.1 % 30.6 % Province-wide 13.3 % 32.6 % 18.5 % 35.7 % Chronic conditions and co-morbidity among residents of British Columbia |9 3.2 High impact and/or high prevalence chronic conditions Both prevalence and impact are important when assessing the overall impact of specific chronic conditions. Both prevalence and impact are also important when planning to meet needs for health care services and management of chronic health conditions. Treatment prevalence rates for selected chronic conditions varied significantly in the study population, with recurrent depression and hypertension the most prevalent chronic conditions among adults in British Columbia. Aplastic anaemia and chromosomal anomalies were among the conditions with lowest treatment prevalence rates. The expected impact of different types of chronic conditions also varied significantly. Conditions such as allergic rhinitis had a relatively lower expected impact, while congestive heart failure and cerebrovascular disease were higher impact chronic conditions. Treatment prevalence rates and impact information were combined to categorize chronic conditions by prevalence and impact, with mid-points used to group conditions into high impact/lower impact and high prevalence/lower prevalence (Figure 3). Chronic obstructive pulmonary disease/chronic bronchitis/emphysema (COPD), cardiac arrhythmia, and ischemic heart disease were high impact as well as high prevalence conditions. Hypertension, diabetes, and degenerative joint disease were high prevalence but lower impact, while conditions such as endometriosis were lower prevalence and lower impact. HIV/AIDs, chronic renal failure, and a small number of other chronic conditions were high impact but lower prevalence. Many high prevalence conditions were lower impact (e.g. depression, hypertension, asthma, diabetes) whereas the highest impact conditions, including cerebrovascular disease, congestive heart failure, and chronic renal failure, were less prevalent in the population. In order to identify a subset of chronic conditions for detailed analysis, chronic conditions that were high impact and/or high prevalence were identified using combined prevalence and impact data. Conditions to the upper right of the curved line in Figure 4 represent the mix of high impact and/or high prevalence conditions. These specific high impact/high prevalence chronic conditions (HI/HP CCs) were: recurrent depression,* hypertension, asthma, diabetes, degenerative joint disease, ischemic heart disease (IHD), cancer,† cardiac arrhythmia, chronic obstructive pulmonary/chronic bronchitis/emphysema (COPD), congestive heart failure (CHF), and cerebrovascular disease. A number of these conditions (diabetes, hypertension, congestive heart failure, asthma, chronic lung disease, depression, arthritis) were also identified as priorities for chronic disease management in British Columbia,37 and two conditions (diabetes and congestive heart failure) have been the focus of chronic disease collaboratives. As illustrated in Figure 5, a significant majority of those with confirmed chronic conditions had at least one HI/HP CC in 2000/01. The proportion of the population with chronic conditions and one or more HI/HP CCs varied only slightly across the province. * Depression was defined as two or more medical diagnoses or one or more hospitalizations with depression in order to focus on persistent or recurrent depression rather than a short-term episode. † Cancers were defined as malignant neoplasms and excluded skin cancers and benign tumours. 10 | Centre for Health Services and Policy Research Chronic conditions and co-morbidity among residents of British Columbia | 11 Prevalence 0 5 10 15 20 25 30 35 90 0 ADD Chronic Cystic Dis Breast Obesity 2 Congenital anom: limbs MS CF 4 Personality disorders Chromosomal Devt dis IBD Seizure Malignant neoplasm of skin Prostatic hypertrophy Autoimmune / conn. tissue Glaucoma Endometriosis Psoriasis Deafness / Hearing loss Allergic Rhinitis Dis Lymphoid Metab. Thyroid Dis Asthma Diabetes Hypertension Degenerative joint disease Depression Peripheral vascular disease Cardiac valve dis Chronic liver dis Dementia / delerium 8 Chronic renal failure Chronic skin ulcer Cerebrovascular disease Congestive heart failure Cardiomyopathy Blindness Impact 6 HIV /AIDS HAnem Generalized atherosclerosis Kyphoscoliosis MD CHD Parkinson’s Osteoperosis MIDPOINT Schizophrenia/ affective psychosis Diverticular dis. of colon COPD Cardiac Arrhythmia Cancers Ischemic heart disease Figure 3: Treatment prevalence and expected impact of chronic conditions MIDPOINT 10 Aplastic anemia Centre for Health Services and Policy Research 0 5 10 15 20 25 30 35 90 0 ADD Chronic Cystic Dis Breast Obesity 2 Congenital anom: limbs MS CF 4 Personality disorders Chromosomal Devt dis IBD Seizure Malignant neoplasm of skin Prostatic hypertrophy Autoimmune / conn. tissue Glaucoma Endometriosis Psoriasis Deafness / Hearing loss Allergic Rhinitis Dis Lymphoid Metab. Thyroid Dis Asthma Diabetes Hypertension Degenerative joint disease Depression Peripheral vascular disease Cardiac valve dis Chronic liver dis Dementia / delerium 8 Chronic renal failure Chronic skin ulcer Cerebrovascular disease Congestive heart failure Cardiomyopathy Blindness Impact 6 HIV /AIDS HAnem Generalized atherosclerosis Kyphoscoliosis MD CHD Parkinson’s Osteoperosis Schizophrenia/ affective psychosis Diverticular dis. of colon COPD Cardiac Arrhythmia Cancers Ischemic heart disease Figure 4: High impact and/or high prevalence chronic conditions Prevalence 12 | 10 Aplastic anemia Figure 5: High impact and/or high prevalence chronic conditions by health authority, Among adults with at least one chronic condition... Among adults (18+) in BC... Patient categories by health authority Percentage with HI/HP CC Fr aser HA 12.1 % 32.6 % 18.9 % 36.4 % 78.8 % of that 36.4 % Vancouver Coastal HA 14.8 % 33.3 % 18.5 % 33.4 % 77.2 % of that 33.4 % Vancouver Island HA 11.2% 31.6 % 18.2 % 39.0 % 80.5 % of that 39.0 % Interior HA 13.0 % 32.2 % 18.0 % 36.8 % 82.4 % of that 36.8 % Northern HA 18.1 % 33.2 % 18.1 % 30.6 % 79.0 % of that 30.6 % Province-wide 13.3 % 32.6 % 18.5 % 79.4 % 35.7 % of that 35.7 % Patient categories among adults (age 18+) Non-users Acute Conditions Chronic Conditions (possible) Chronic Conditions (confirmed) Those with any confirmed chronic condition Source: BC Linked Health Database (CHSPR) Chronic conditions and co-morbidity among residents of British Columbia | 13 3.3 Co-occurrence of chronic conditions Many individuals had more than one chronic health condition, and common co-occurring conditions were observed. Co-occurrence of specific chronic conditions was evident for each HI/HP CC. Thirty-one per cent of individuals with diabetes also had hypertension and 11 per cent of individuals with diabetes had depression (Table 2). Ten per cent of individuals with diabetes and hypertension also had depression, accounting for 3 per cent of all diabetes cases. The co-occurrence of specific chronic conditions was significantly higher than expected, using regression analyses and adjusting for age and sex, supporting the view that chronic conditions tend to cluster in some individuals. 3.4 Recognizing co-morbidity among individuals with chronic conditions In light of the finding that some individuals had multiple co-occurring chronic conditions, it is important to understand the extent of comorbidity (presence of conditions in addition to an index chronic condition) among individuals. Co-morbidity was estimated as the range of condition types experienced by individuals during one year. Figure 6 describes the distribution of comorbidity in the study population and by patient group. For the total study population, 11 per cent had high co-morbidity (6 to 9 condition types) and 2 per cent had very high co-morbidity (10+ condition types). Table 2: Common co-occurring HI/HP chronic conditions among individuals with diabetes Proportion of adults with diabetes (n=117,274) AND: (%) Hypertension 31 Proportion of adults with diabetes and hypertension (n=35,987) AND: (%) Depression 11 10 IHD 10 13 17 Degenerative joint 6 8 11 12 Cardiac arrhythmia 4 6 7 16 Cancer 4 4 6 7 CHF 4 5 6 21 Cerebrovascular 3 4 6 11 Asthma 3 3 5 5 COPD 2 2 3 5 14 | Centre for Health Services and Policy Research Proportion of adults with diabetes, hypertension, depression (n=3,746) AND: (%) Proportion of adults with diabetes, hypertension, depression, IHD (n=637) AND: (%) Among adults with only acute conditions, comorbidity was relatively low: only 2.5 per cent had high or very high co-morbidity. On the other hand, for those with confirmed chronic conditions, 30 per cent of adults with chronic conditions had high or very high co-morbidity. Similar results were found for those with one or more high impact/high prevalence chronic conditions. Across health authorities, the proportion of residents with HI/HP CCs and very high comorbidity (10+ condition types) ranged from 6 to 7 per cent. A further 23 to 27 per cent of HI/ HP CC residents had high co-morbidity (6 to 9 condition types). Lower proportions of residents with high and very high co-morbidity in the Northern Health Authority may be due to missing Alberta hospital utilization and diagnosis data. Figure 7 indicates the proportion of the population with HI/HP CCs by co-morbidity level across British Columbia. Figure 6: Co-morbidity by patient category Co-morbidity level none low medium high very high HI/HP CC 9.0 % 27.9 % 30.7 % 25.9 % 6.7 % Chronic conditions (confirmed) 9.8 % 30.0 % 30.2 % 24.1 % 5.8 % Acute conditions 40.3 % 49.7 % 7.6 % 2.4 % Total 18+ study population 13.3 % 20.1 % non-user 2.4 % pregnancy 33.8 % 17.1 % 0.1 % 11.0 % 2.3 % Chronic conditions and co-morbidity among residents of British Columbia | 15 32.6 % 33.3 % 13.3 % 18.5 % 18.1 % 18.0 % 18.2 % 18.5 % 18.9 % 35.7 % 30.6 % 36.8 % 39.0 % 33.4 % 36.4 % Chronic Conditions (confirmed) Chronic Conditions (possible) Acute Conditions Non-users Patient categories among adults (age 18+) 32.6 % 33.2 % 32.2 % 31.6 % Province-wide 18.1 % Northern HA 13.0 % Interior HA 11.2% Vancouver Island HA 14.8 % Vancouver Coastal HA 12.1 % Fr aser HA of that 35.7 % of that 30.6 % of that 36.8 % of that 39.0 % of that 33.4 % of that 36.4 % Those with any confirmed chronic condition 79.4 % 79.0 % 82.4 % 80.5 % 77.2 % 78.8 % Percentage with HI/HP CC 8 10 8 7 8 7 28 31 29 28 28 31 30 31 31 31 31 26 23 26 27 26 27 Co-morbidity 7 6 6 7 7 7 Source: BC Linked Health Database (CHSPR) of that 79.4 % of that 79.0 % of that 82.4 % of that 80.5 % of that 77.2 % of that 78.8 % 28 Percentage at co-morbidity level none Patient categories by Health Authority Among adults with at least one HI/HP CC low Among adults with at least one chronic condition... medium Among adults (18+) in BC... Figure 7: Co-morbidity among those with high impact and/or high prevalence chronic conditions high Centre for Health Services and Policy Research very high 16 | 3.5 Expected resource use by level of co-morbidity the population average, and those with medium co-morbidity were expected to use slightly more than the population average (1.3). However, individuals with chronic condition(s) and high co-morbidity were expected to use 3.5 times the resources of the population average, and those with chronic condition(s) and very high comorbidity were expected to use almost 10 times the population average. Expected resource use was estimated for those with acute or chronic conditions. Compared with the adult population average (1.0), adults with acute conditions were expected to use, on average, 0.4 times the resources of the adult population (Table 3). On the other hand, those with chronic conditions were expected to use twice the resources of the population average. There were also important differences in comorbidity among individuals with specific chronic conditions. Nine per cent of adults with diabetes had no co-morbidity while a majority had low or medium co-morbidity. Twenty-five per cent of individuals with diabetes were in the high comorbidity group and 7 per cent were in the very high co-morbidity category (Figure 8). Looking further at the impact of co-morbidity, those with a confirmed chronic condition and no co-morbidity had an expected resource use 0.2 times that of the population average. Those with a chronic condition and low co-morbidity were expected to use about 0.5 times the resources of Table 3: Distribution of co-morbidity (CM) and expected resource use index DISTRIBUTION BY CO-MORBIDITY (CM) LEVEL EXPECTED RESOURCE USE BY CO-MORBIDITY (CM) (%) INDEX LEVEL Non user No Low Med High V High No Low Med High V High Total 13.3 20.1 33.8 17.1 11.0 2.3 0.1 0.4 1.2 3.3 9.5 1.0 Acute only 40.3 49.7 7.6 2.4 0.1 0.1 0.4 1.0 2.5 7.8 0.4 Confirmed chronic 9.8 30.0 30.2 24.1 5.8 0.2 0.5 1.3 3.5 9.8 2.0 HI/HP CC 9.0 27.9 30.7 25.9 6.7 0.2 0.5 1.3 3.6 9.9 2.2 Total adults* *The remaining 2.4 per cent are patients with pregnancy ACGs and are excluded due to the significant short-term resource impact associated with pregnancy (Reid RJ, et al. Conspicuous consumption: Characterizing high users of physician services in one Canadian province. J Health Serv Res Policy 2003; 8(4):215–224). Chronic conditions and co-morbidity among residents of British Columbia | 17 Figure 8: Expected resource use by adults with diabetes Expected Resource use index Co-morbidity level 10.0 5.0 3.9 2.4 1.0 Co-morbidity Percent of all adults with diabetes 1.2 Total study pop. 0.1 0.6 none (9%) low (29%) The overall expected resource use for diabetes was 2.4, indicating that individuals with diabetes were expected to use almost two and a half times the resources of the population average. However, the 9 per cent of adults with diabetes and no comorbidity were expected to use only 0.1 times the resources of the population average, while adults with diabetes and low co-morbidity were expected to use about 0.6 times the resources of the population average. Adults with diabetes and medium co-morbidity had expected resource use slightly higher than the population as a whole: 1.2 vs. 1.0. However, adults with diabetes and high co-morbidity were expected to use 4 times the resources of the population average, and adults with diabetes and very high co-morbidity were expected to use almost 12 times the resources of the population average. 18 | 11.5 none low medium high very high Centre for Health Services and Policy Research medium (30%) high (25%) very high (7%) all diabetes (100%) Co-morbidity was more prevalent among adults with congestive heart failure (CHF) than among adults with diabetes (Figure 9). A smaller proportion of CHF patients had no reported comorbidity (3 per cent) and a majority of CHF patients had high (43 per cent) or very high (21 per cent) co-morbidity. Those with high comorbidity were expected to use 6 times as many resources as the population average, and those with very high co-morbidity were expected to use 14 times the resources. As a result of the relatively higher level of co-morbidity, adults with congestive heart failure were expected to use 6.1 times the resources of the population average. For each HI/HP CC, some individuals had no or low co-morbidity and relatively low expected resource use while others had high or very high co-morbidity and high expected resource use. Figure 9: Expected resource use by adults with congestive heart failure Expected Resource use index 15.0 Co-morbidity level none low medium high very high 10.0 6.1 6.0 5.0 2.4 1.0 Co-morbidity Percent of all adults with CHF 14.2 Total study pop. 0.4 none (3%) 0.6 low (12%) The proportion of individuals with very high co-morbidity and expected resource use varied by condition. Only 6 per cent of those with hypertension were in the very high co-morbidity level. Similarly, 7 per cent of those with diabetes, 8 per cent of those with depression, and 11 per cent of those with asthma were in the very high co-morbidity and high resource use group. For COPD, cardiac arrhythmia, ischemic heart disease, and cancer, approximately 14 to 17 per cent were in the very high co-morbidity group. Cerebrovascular disease and congestive heart failure had the highest proportions in the very high co-morbidity group with 19 and 21 per cent respectively. Distribution of co-morbidity was important to the relative expected resource use over and above the presence of a specific chronic condition. medium (22%) high (43%) very high (21%) all CHF (100%) 3.6 Chronic conditions, co-morbidity and use of health care services Individuals with chronic conditions were more likely to use more services than those with acute conditions. As shown in Table 4, on average, individuals with chronic conditions used 4 times the inpatient hospital days, and twice the physician visits of those with acute conditions (age/sexstandardized rates). As well, individuals with chronic conditions used almost 4 times as many direct care visits for home nursing care and home rehabilitation services, and twice as many home support hours as those with only acute conditions. Among seniors, those with chronic conditions used, on average, more than 3 times the PharmaCare benefits of those with acute conditions. Chronic conditions and co-morbidity among residents of British Columbia | 19 20 | Centre for Health Services and Policy Research 140 852 ALC days Total IP days 1903 7701 352564 Specialist visits Total visits MSP $ 608854 Pharmacare $ 35 277 Home rehab visits Total DC visits 2406 62354 Home support hours Home support paid Home Support 242 Home nursing visits Direct Care 4257 Pharmacare scripts PharmaCare Plan A & B 5798 GP visits Medical Services Plan 711 A/R days Hospital Inpatient Services Total adults 36341 1409 105 14 79 212460 2257 244509 5640 1094 4512 318 53 255 Acute only 77336 2974 399 47 348 782022 5183 530651 11492 2996 8479 1322 187 1136 Confirmed chronic 75438 2900 417 48 366 827782 5412 554094 11900 3049 8838 1399 185 1221 HI/HP CC Table 4: Standardized (age/sex) utilization rates per 1000 population by patient category, 2000/01 39094 1508 158 11 144 499136 2842 139607 3709 665 3072 150 14 137 HI/HP CC No CM 45651 1750 164 18 145 624177 3827 252295 6459 1258 5240 185 18 168 HI/HP CC Low CM 58635 2269 258 33 224 760459 5001 459140 10721 2459 8285 603 71 536 HI/HP CC Med CM 88964 3414 532 64 466 973489 6527 765145 15940 4326 11550 1852 239 1638 HI/HP CC High CM 169173 6457 1335 142 1193 1310436 8791 1518141 28367 8772 19287 6308 761 5689 HI/HP CC High CM While there were utilization differences between those with acute conditions and those with chronic conditions, it is also important to recognize the role of co-morbidity in service utilization. Individuals with HI/HP CCs and no co-morbidity used fewer physician and hospital services than those with acute conditions, after adjusting for age and sex. Similarly, individuals with HI/HP CCs and low co-morbidity were relatively low users of health care services. For example, individuals with HI/HP CCs and low co-morbidity used 185 inpatient days/1000 population compared with 318 days/1000 population for those with acute conditions and 852 days/1000 population for the total study population (age/sex-standardized). Similar patterns were found across geographic areas in British Columbia. Individuals with HI/ HP CCs and very high co-morbidity used 3.5 to 4.5 times more physician visits and 6.5 to 10 times more hospital days than the population average, after adjusting for age and sex differences. They also used 4 to 8 times the direct care (home nursing and home rehabilitation) and 2 to 4 times the home support services as the population average, and 2 to 2.5 times the PharmaCare costs of seniors in general (Appendix B). We found a consistent trend to increased utilization with increasing co-morbidity, with service utilization rates increasing substantially among individuals with high or very high comorbidity. Hospital inpatient utilization, including alternate level of care hospital days, was notably higher for individuals with HI/HP CCs and high or very high co-morbidity. Similar patterns were observed for physician, home nursing care, home rehabilitation, and home support services, as well as seniors’ use of PharmaCare services. Those with HI/HP CCs and very high co-morbidity used 7 times the inpatient hospital days, almost 4 times the medical visits, almost 5 times the direct care visits, and 2.5 times the home support hours of the population average, after adjusting for age and sex. This suggests that the combination of conditions and overall morbidity experienced by individuals is an important determinant of health services utilization. Chronic conditions and co-morbidity among residents of British Columbia | 21 3.7 Chronic conditions, co-morbidity and high users of health care services In light of these findings, further analysis was undertaken to compare those with chronic conditions and co-morbidity to high users of health care services. High users—the top 5 per cent of physician services users—have been shown to use 17 per cent of visits to general practitioners, 30 per cent of specialist visits, 36 per cent of hospitalizations, and 63 per cent of hospital days in British Columbia during 1996/97.14 Applying a similar definition of high users to this 2000/01 study population identified 146,666 adults as high users (Table 5). Only 1 per cent of those with acute conditions were high users of services. By comparison, 11.6 per cent of those with chronic conditions were high users of health services. The proportion of individuals who were high users increased steadily as co-morbidity increased, from 1 to 2 per cent of those with HI/HP CCs and no or low co-morbidity, to 65 per cent of those with HI/HP CCs and very high co-morbidity. Clearly, co-morbidity is an important factor influencing utilization of health care services. Table 5: High users by patient category, 2000/01 High users (n=146,666) n Not high users (n=2,786,639 ) TOTAL % distribution Total adults 18+ 2,933,305 5.0 95.0 100.0 Acute conditions 954,803 1.3 98.7 100.0 1,046,954 11.6 88.4 100.0 HI/HP CC* 815,648 12.8 87.2 100.0 HI/HP CC No CM 73,041 0.8 99.2 100.0 HI/HP CC Low CM 227,221 1.6 98.4 100.0 HI/HP CC Med. CM 250,183 6.4 93.6 100.0 HI/HP CC High CM 210,826 23.2 76.8 100.0 HI/HP CC V. High CM 54,377 65.1 34.9 100.0 Chronic conditions *Excludes those with HI/HP CCs and pregnancy ACGs due to significant short-term resource impact associated with pregnancy. See Table 3. 22 | Centre for Health Services and Policy Research 4. Discussion In 2000/01, a significant portion of the adult population of British Columbia—at least 36 per cent—had one or more chronic conditions and a further 18 per cent had one or more possible chronic conditions. Both prevalence and impact of chronic conditions are important factors in planning health services to meet population needs. Some chronic health conditions—recurrent depression, hypertension—had very high treatment prevalence rates affecting a significant proportion of the population. Other conditions— congestive heart failure, cerebrovascular disease—were lower prevalence but had very high impact and use of health services. Moreover, the highest prevalence conditions were relatively lower impact, while many of the lower prevalence conditions were higher impact. Focusing only on prevalence risks overlooking chronic conditions that have a very high impact for a smaller proportion of the population but are, nonetheless, important to overall utilization. The combination of prevalence and impact must be recognized in planning and allocating limited health care resources. Prevalence and expected resource use also varied according to the specific chronic condition and associated co-morbidity. Two-thirds of diabetes patients had no, low, or medium co-morbidity and were not expected to consume significantly more resources than the population average. However, one-third of those with diabetes had high or very high co-morbidity, with those in the very high co-morbidity category expected to use almost 12 times the resources of the population average. Among those with congestive heart failure, 64 per cent had high or very high co-morbidity and were expected to use 6 and 14 times the population average, respectively. Similar results were found for each high impact/high prevalence chronic condition in this study, although the distribution of individuals with high and very high comorbidity and impact varied from a relatively lower proportion for depression, hypertension, and diabetes to higher for those with congestive heart failure and cerebrovascular disease. Therefore, in addition to prevalence and impact of specific chronic conditions, it is important to recognize co-morbidity when planning and delivering chronic care services. For the overall adult population, 11 per cent had high co-morbidity and 2 per cent had very high comorbidity. Among those with acute conditions, 2.5 per cent had high or very high co-morbidity and 1 per cent were identified as high users of services. However, 30 per cent of adults with chronic conditions had high or very high comorbidity. Both expected and actual health services utilization increased as co-morbidity levels increased and those with HI/HP CCs and very high co-morbidity were more likely to be high users of health care services. Focusing on specific chronic conditions fails to fully describe the need for and use of services by individuals. The finding that health services utilization rates increased as co-morbidity increased was consistent with a number of other studies. Wolff et al. reported significantly higher utilization rates for American Medicare beneficiaries with chronic conditions and co-morbidity, as well as increased likelihood of ambulatory care sensitive condition hospitalizations.15 Reid et al. found that high users were likely to have multiple conditions14 and Roos et al. reported that presence of three or more coexisting conditions was significantly predictive of physician visits by hypertension patients.38 Programs focusing on a specific disease fail to address the range of chronic conditions, overall morbidity, and broader needs of individuals with multiple chronic conditions.25,39 These diseasespecific programs do not recognize the complexity of 30 per cent of the chronic condition population who have high or very high co-morbidity and who Chronic conditions and co-morbidity among residents of British Columbia | 23 are likely to have high utilization of services. In order to fully recognize the health service needs of individuals with chronic conditions, it is essential to understand the full range of conditions experienced and to provide services appropriate to those needs. Focusing on a specific chronic condition also fails to recognize the amenability of individuals to specific interventions. Individuals with a chronic condition and low co-morbidity may be amenable to programs offering regular monitoring, preventive care, and self-management education, while those with chronic conditions and medium co-morbidity may require more active follow-up to augment monitoring and self-management and to coordinate services and care for multiple conditions. However, the 30 per cent of adults with chronic conditions and high or very high co-morbidity will have very different needs, which may include active case management and coordinated care for the spectrum of conditions which they experience. The importance of co-morbidity contributes to “the futility of reductionistically carving up patients on the basis of individual conditions and sending them to the diabetes program on Monday, the cardiac program on Tuesday, the arthritis program on Wednesday, and the depression program on Thursday. What is needed is a model of care that addresses the whole person and integrates care for the person’s entire constellation of co-morbidities.”39 While many components of chronic care may be similar for individuals with multiple chronic conditions (e.g. use of evidence-based guidelines, clinical information systems, and multi-disciplinary care), there will be additional needs for coordination and active management of care. As an example, some chronic disease programs focus on drug therapies to manage 24 | Centre for Health Services and Policy Research specific conditions. The risk of drug interactions and conflicting care advice is compounded as comorbidity increases. Benefits associated with care management may also vary. A recent evaluation of nurse care management for low risk congestive heart failure patients found no benefit to rehospitalization rates with care management and found that most emergency department visits and re-hospitalizations were for co-morbid conditions.40 Not only are the care needs of individuals with co-morbidity more complex, but the ability of individuals with chronic disease co-morbidity to undertake self-management of their range of conditions is different. Those with multiple chronic conditions or co-morbidity may be less likely to benefit from self-management.41 Barriers to self-management may include physical limitations, aggravation of one condition by symptoms or treatment for other conditions, medication interactions, and conflicting care recommendations, along with “overwhelming effects” of specific conditions. Some high impact conditions such as congestive heart failure or cerebrovascular disease may inhibit use of selfmanagement techniques or compliance with other disease management recommendations, such as diet and exercise. Case management or care management has been proposed for managing the needs of complex patients with multiple chronic conditions. Care management programs typically use multi-faceted approaches, including education, clinical, and community/social services to provide care to individual patients with high needs.42 The utility of stratifying patients by co-morbidity and risk has been supported with the development of predictive modeling tools to prospectively identify patients at high risk and is used by providers for targeted, intensive management in the US.43,44 Some primary care trusts have also undertaken case management in the UK, often using nurse providers working closely with patients and providers as well as recognizing the interplay of social factors in addition to complex clinical needs.45 The presence of co-morbidity for many individuals with chronic conditions has also led to recommendations for an increased role for primary health care and specifically for care that combines the unique attributes of primary care with important components of chronic care management: first contact, comprehensive, coordinated, and longitudinal care.24 Each of the unique attributes of primary care is important to the management of care for individuals with multiple chronic conditions. First contact care provides an entry point to health care services and referrals to specialty care as required. Comprehensive care addresses the needs for health promotion, prevention, diagnosis, treatment, rehabilitation, and palliative care, depending on the patient’s constellation of needs. Longitudinal care recognizes the need for ongoing care and understanding the patient’s context. Continuity reflects the importance of relational, informational, and management continuity for individual complex needs, and coordination recognizes the need for a coordinating role across the range of services.16 Indeed, some primary care providers in the UK have developed links with social services to meet patient needs.45 Primary care may be uniquely suited to meet the combination of clinical, behavioural, psychosocial, and socioeconomic needs of those with multiple chronic conditions and complex care needs.46 Further work is required to analyze the actual experience of British Columbia residents with chronic conditions and co-morbidity, their use of primary care services, and their continuity of care. Chronic conditions and co-morbidity among residents of British Columbia | 25 5. Conclusions In summary: What is the experience of British Columbians with chronic disease and co-morbidity? At least 36 per cent of adults and 68 per cent of seniors had at least one confirmed chronic condition and a further 18 per cent of adults and 15 per cent of seniors had possible chronic conditions. The majority of adults with chronic conditions experienced co-morbidity and 30 per cent of adults with chronic conditions had high or very high co-morbidity. How do individuals with chronic disease and comorbidity use health care services compared to individuals with no chronic conditions or individuals with chronic conditions and no or low co-morbidity? On average, those with chronic conditions had higher standardized utilization rates across all health care services (acute, medical, direct home care, home support, and seniors’ PharmaCare) compared to those with acute conditions. However, after stratifying by co-morbidity level, it is apparent that those with chronic conditions and no or low co-morbidity had relatively low utilization rates, while those with high and very high co-morbidity had notably higher use of health care services. Standardized utilization rates increased consistently with increasing comorbidity. Similar patterns were evident across health authorities. How do individuals with chronic disease and comorbidity overlap with high users of health care services? Do chronic disease programs target those with highest use of services? Adults with chronic condition(s) were more likely to be high users of health care services than those with acute conditions only. Those with chronic condition(s) and high or very high co-morbidity were much more likely to be high users of health care services than those with chronic conditions and no or low co-morbidity. This research suggests that disease26 | Centre for Health Services and Policy Research specific programs targeting individual conditions do not recognize the importance of co-morbidity in health services utilization and the role of comorbidity in driving utilization of health care services. High users of services were significantly more likely to have high or very high levels of comorbidity and to experience multiple types of conditions. 6. Limitations Data for this study were drawn from administrative data files and were subject to limitations resulting from missing Alberta utilization and Alternative Payments Program (APP) data. This constraint will likely result in an under-estimate of chronic conditions, comorbidity, overall morbidity, and utilization in those areas with significant utilization of Alberta and APP services. Impact and expected resource use estimates were based on hospital and medical costs. Actual utilization rates incorporate home care, home support, and pharmaceutical use by seniors. Information was not available to assess functional status, quality of life, or long-term outcomes for individuals with chronic conditions and co-morbidity. Chronic conditions and co-morbidity among residents of British Columbia | 27 Appendix A: Distribution of study population by patient category Table A.1 Distribution by patient category, health service delivery area and health authority Total adults 18+ Non-users Acute only n Possible chronic conditions Confirmed chronic conditions TOTAL HI/HP CCs % of confirmed chronic % of total Health Service Delivery Areas Fraser East 164,883 11.2 33.0 18.1 37.7 100.0 80.6% Fraser North 376,960 13.2 33.9 18.6 34.3 100.0 77.5% Fraser South 407,954 11.3 31.3 19.5 37.9 100.0 79.1% Richmond 126,983 15.9 33.2 18.5 32.4 100.0 77.2% Vancouver 443,767 15.4 31.9 18.3 34.4 100.0 76.3% North Shore/Coast Garibaldi 194,305 12.8 36.4 19.0 31.8 100.0 79.3% South Vancouver Island 251,129 10.7 32.5 18.2 38.6 100.0 81.0% Central Vancouver Island 174,130 11.3 30.7 17.7 40.3 100.0 80.3% North Vancouver Island 81,218 12.3 30.5 19.4 37.8 100.0 79.3% East Kootenay 55,867 16.0 37.4 16.8 29.8 100.0 81.8% Kootenay Boundary 59,543 14.8 33.6 17.4 34.2 100.0 81.2% Okanagan 226,426 11.2 30.8 18.2 39.8 100.0 83.8% Thompson Cariboo Shuswap 154,756 13.9 31.9 18.4 35.8 100.0 80.9% North West 58,838 20.3 30.8 18.6 30.3 100.0 81.5% Northern Interior 105,089 16.5 33.8 17.9 31.8 100.0 77.4% North East 41,473 18.8 35.2 18.1 27.9 100.0 79.9% Fraser 949,797 12.1 32.6 18.9 36.4 100.0 78.8% Vancouver Coastal 765,055 14.8 33.3 18.5 33.4 100.0 77.2% Vancouver Island 506,477 11.2 31.6 18.2 39.0 100.0 80.5% Interior 496,592 13.0 32.2 18.0 36.8 100.0 82.4% Northern 205,400 18.0 33.3 18.1 30.6 100.0 79.0% 2,933,305 13.3% 32.6% 18.5% 35.7% 100.0% 79.4% Health Authorities British Columbia Note: 9984 IDs had missing geographic information and could not be assigned to HSDAs or HAs. 28 | Centre for Health Services and Policy Research Table A.2 Age/sex-standardized distribution by patient category and health authority Non-users Acute only Possible chronic conditions Confirmed chronic conditions TOTAL HI/HP CCs % of confirmed chronic % of total Health Authorities Fraser 11.9% 31.9% 18.8% 37.4% 100.0% 79.1% Vancouver Coastal 14.6% 32.8% 18.5% 34.1% 100.0% 77.5% Vancouver Island 11.8% 33.3% 18.4% 36.6% 100.0% 81.1% Interior 13.5% 33.8% 18.1% 34.6% 100.0% 81.9% Northern 16.9% 30.6% 17.9% 34.5% 100.0% 80.5% British Columbia 13.3% 32.6% 18.5% 35.7% 100.0% 79.4% Chronic conditions and co-morbidity among residents of British Columbia | 29 Appendix B: Standardized utilization rates of health care services Table B.1 Hospital utilization rates TO T A L H O S P I T A L D A Y S / 1 0 0 0 Total adults 18+ POPULATION (AGE/SEX STANDARDIZED) Acute only Chronic EDCs HI/HP CCs HI/HP CC with V. High CM Health Service Delivery Areas Fraser East 813 363 1,184 1,256 5,784 Fraser North 837 273 1,335 1,431 6,643 Fraser South 841 273 1,266 1,329 5,507 Richmond 721 221 1,240 1,353 6,447 Vancouver 833 276 1,337 1,396 6,527 North Shore/Coast Garibaldi 787 263 1,319 1,422 5,972 South Vancouver Island 838 293 1,223 1,276 5,875 Central Vancouver Island 879 313 1,265 1,350 5,905 North Vancouver Island 988 324 1,520 1,570 6,698 East Kootenay 944 520 1,472 1,509 7,229 1,029 471 1,575 1,518 6,641 Okanagan 744 246 1,107 1,171 5,628 Thompson Cariboo Shuswap 976 391 1,517 1,618 8,059 North West 1,305 1,071 2,165 2,135 9,991 Northern Interior 1,112 435 1,904 1,931 9,155 North East 1,210 607 2,136 2,152 11,775 Fraser 834 290 1,275 1,351 5,950 Vancouver Coastal 804 263 1,318 1,396 6,380 Vancouver Island 872 303 1,276 1,338 6,002 Interior 861 349 1,299 1,354 6,472 1,186 647 2,019 2,028 9,776 852 318 1,322 1,399 6,308 Kootenay Boundary Health Authorities Northern British Columbia 30 | Centre for Health Services and Policy Research Table B.2 Medical services utilization rates TO T A L M S P V I S I T S / 1 0 0 0 Total adults 18+ POPULATION (AGE/SEX STANDARDIZED) Acute only Chronic EDCs HI/HP CCs HI/HP CC with V. High CM Health Service Delivery Areas Fraser East 8,190 6,062 11,532 11,842 29,330 Fraser North 7,854 5,862 11,771 12,225 28,758 Fraser South 8,354 5,985 12,019 12,331 28,633 Richmond 7,158 5,417 11,310 11,740 28,304 Vancouver 7,705 5,683 11,875 12,345 27,987 North Shore/Coast Garibaldi 7,423 5,487 11,449 11,896 28,913 South Vancouver Island 8,063 5,609 11,524 11,874 27,437 Central Vancouver Island 7,948 5,518 11,220 11,661 28,021 North Vancouver Island 7,678 5,423 11,277 11,747 28,733 East Kootenay 7,276 6,002 11,151 11,384 26,863 Kootenay Boundary 6,925 5,180 10,623 10,996 28,680 Okanagan 7,671 5,301 10,970 11,353 28,054 Thompson Cariboo Shuswap 7,072 5,286 10,571 10,962 27,790 North West 6,739 5,201 11,533 11,910 29,919 Northern Interior 7,058 5,358 11,354 11,614 29,477 North East 6,374 5,418 10,423 10,568 29,090 Fraser 8,129 5,948 11,837 12,200 28,796 Vancouver Coastal 7,542 5,584 11,680 12,136 28,258 Vancouver Island 7,965 5,551 11,380 11,780 27,851 Interior 7,360 5,373 10,831 11,205 27,952 Northern 6,830 5,329 11,233 11,506 29,558 British Columbia 7,701 5,640 11,492 11,900 28,367 Health Authorities Chronic conditions and co-morbidity among residents of British Columbia | 31 Table B.3 Direct care service (home nursing and home rehab) utilization rates TO T A L D I RE C T C A RE V I S I T S / 1 0 0 0 Total adults 18+ POPULATION (AGE/SEX STANDARDIZED) Acute only Chronic EDCs HI/HP CCs HI/HP CC with V. High CM Health Service Delivery Areas Fraser East 201 75 282 296 856 Fraser North 296 126 419 433 1,417 Fraser South 165 67 226 230 752 Richmond 281 123 419 459 1,280 Vancouver 294 107 424 440 1,369 North Shore/Coast Garibaldi 263 96 406 435 1,412 South Vancouver Island 264 91 364 384 1,154 Central Vancouver Island 303 92 425 463 1,483 North Vancouver Island 308 87 447 471 1,757 East Kootenay 309 98 496 525 2,154 Kootenay Boundary 460 217 649 650 1,748 Okanagan 277 77 398 412 1,425 Thompson Cariboo Shuswap 388 120 579 620 2,122 North West 345 316 524 533 1,738 Northern Interior 359 99 565 582 2,061 North East 580 311 957 1,005 4,521 Fraser 221 92 307 316 1,003 Vancouver Coastal 284 106 419 442 1,367 Vancouver Island 283 91 395 422 1,346 Interior 331 109 482 502 1,689 Northern 399 206 627 647 2,314 British Columbia 277 105 399 417 1,335 Health Authorities 32 | Centre for Health Services and Policy Research Table B.4 Home support service utilization rates TO T A L H O M E S U P P O R T H O U R S / 1 0 0 0 Total adults 18+ POPULATION (AGE/SEX STANDARDIZED) Acute only Chronic EDCs HI/HP CCs HI/HP CC with V. High CM Health Service Delivery Areas Fraser East 2,419 1,331 2,996 3,008 6,424 Fraser North 2,220 1,380 2,664 2,613 5,309 Fraser South 1,949 1,148 2,327 2,261 5,090 Richmond 2,078 943 2,712 2,777 6,100 Vancouver 2,964 1,680 3,669 3,510 7,547 North Shore/Coast Garibaldi 2,173 1,137 2,641 2,663 5,928 South Vancouver Island 2,551 1,574 2,903 2,806 5,813 Central Vancouver Island 2,528 1,312 3,043 3,069 7,111 North Vancouver Island 3,459 2,227 4,284 4,375 11,828 East Kootenay 3,087 1,246 4,228 4,117 11,614 Kootenay Boundary 3,213 2,694 3,755 3,622 7,162 Okanagan 2,082 1,428 2,509 2,433 5,950 Thompson Cariboo Shuswap 2,226 877 2,921 2,968 6,741 North West 2,106 1,229 2,918 2,787 6,583 Northern Interior 2,756 1,122 3,894 3,775 9,132 North East 3,654 2,989 4,725 4,359 9,162 Fraser 2,144 1,279 2,583 2,538 5,376 Vancouver Coastal 2,623 1,395 3,278 3,194 6,963 Vancouver Island 2,647 1,562 3,108 3,069 6,993 Interior 2,353 1,451 2,905 2,842 6,687 Northern 2,752 1,558 3,795 3,622 8,401 British Columbia 2,406 1,409 2,974 2,900 6,457 Health Authorities Chronic conditions and co-morbidity among residents of British Columbia | 33 Table B.5 PharmaCare for seniors’ service utilization rates TO T A L P H A R M A C A RE $ PA I D / 1 0 0 0 Total adults 18+ POPULATION (AGE/SEX STANDARDIZED) Acute only Chronic EDCs HI/HP CCs HI/HP CC with V. High CM Health Service Delivery Areas Fraser East 696,183 248,696 875,747 931,420 1,395,822 Fraser North 616,108 211,645 778,310 828,539 1,302,612 Fraser South 641,856 183,769 797,079 845,375 1,274,903 Richmond 581,148 183,066 771,952 813,651 1,316,502 Vancouver 569,351 197,106 730,710 779,224 1,217,924 North Shore/Coast Garibaldi 564,078 235,670 744,895 791,012 1,274,167 South Vancouver Island 634,915 254,924 788,463 836,566 1,293,308 Central Vancouver Island 627,126 179,295 785,112 840,509 1,354,254 North Vancouver Island 636,310 145,893 802,800 864,563 1,424,088 East Kootenay 581,910 287,908 780,243 825,566 1,481,149 Kootenay Boundary 577,154 202,444 762,781 815,068 1,244,951 Okanagan 634,512 231,116 810,295 857,850 1,405,874 Thompson Cariboo Shuswap 585,788 166,879 763,753 814,447 1,307,155 North West 507,330 135,819 714,974 763,318 1,244,195 Northern Interior 606,725 156,561 789,472 850,006 1,408,889 North East 539,439 173,488 753,700 814,885 1,451,851 Fraser 643,883 210,442 806,469 857,074 1,304,659 Vancouver Coastal 569,681 208,563 740,607 787,586 1,246,394 Vancouver Island 632,321 220,674 789,039 841,488 1,333,374 Interior 610,713 221,259 790,525 839,369 1,369,309 Northern 565,554 153,790 763,005 820,293 1,367,615 British Columbia 608,854 212,460 782,022 827,782 1,310,436 Health Authorities 34 | Centre for Health Services and Policy Research Appendix C: Data methods Use of ICD9 diagnosis codes to determine morbidity has been tested and validated both in Canada and in other jurisdictions.47 Previous analyses comparing treatment prevalence data for Vancouver Coastal residents with self-reported chronic conditions from National Population Health Survey data indicated high specificity and relatively high sensitivity which was further increased by introducing the requirement for two or more medical diagnoses.48 As well, good face validity has been reported for selected conditions in previous analyses. However, it is important to recognize that some conditions may be less likely to be identified using administrative data, particularly for individuals with multiple conditions requiring medical attention. MSP diagnosis information is limited to a single diagnosis per visit, leading to the possibility that secondary diagnoses and lower impact chronic conditions treated mainly with ambulatory care may be under-reported in administrative data files. Geographic home location was based on the resident’s longest home location during the study year. Individuals who moved during the year were assigned to a single home local health area (LHA) based on length of residence. Utilization data for acute care services accessed by British Columbia residents in Alberta hospitals were not included in the BC Linked Health Database and were not available for this study. Missing Alberta data potentially understate chronic condition prevalence and co-morbidity estimates for residents in areas using hospital services in Alberta: i.e. LHAs adjacent to the Alberta border, including Fernie, Cranbrook, Windermere, Golden, North Thompson, Peace River South, and Peace River North. Morbidity in rural and remote areas may also be understated if residents of these areas have relatively less access to health care services since identification of specific chronic conditions was dependent upon receipt of services and recording of diagnoses. Reduced access to medical and hospital services may result in reduced identification of both specific chronic conditions and overall morbidity for residents of rural and remote areas. Utilization rates for individuals with acute, chronic and HI/HP CC conditions were derived using administrative data for each program. Hospital days included all days incurred by individuals with one or more separations during the fiscal year. Acute/rehab days and alternate level of care days were based on hospital discharge abstract data. MSP visits included all visits during the study year for fee payments > $0, excluding laboratory and diagnostic services. Visits were aggregated to a maximum of one visit per patient and provider per day to adjust for multiple billings for the same patient/physician/ date combination. Physician specialty was based on type of practice. Direct care services were based on Continuing Care IMS system records for home nursing care and home rehab (PT/OT) visits while home support utilization was based on home support service hours. Utilization rates were calculated based on all individuals in the category, irrespective of whether they actually used services, and were age/sex standardized to adjust for the impact of increasing age and gender on utilization of health care services. Chronic conditions and co-morbidity among residents of British Columbia | 35 References 1 Institute of Medicine. 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