2nd UK national cystinuria patient study day
Saturday the 18th April 2015 10.30 – 4pm
Dorothy Hodgkin Building, University of Bristol, Whitson Street Bristol,
BS1 3NY
Provisional programme:
10.00-10.30 Registration and refreshments.
10.30- 10.45 Welcome and objectives- Richard Coward, Bristol University
10.45- 11.45 “What we have learnt about the genetics, treatments and
outcomes of Cystinuria in the UK in recent years
- London”- Dr Kathie Wong Guy’s and St Thomas’ hospital. London
- The South-West and North-East regions” - Dr Hannah Rhodes, Bristol
University.
11.45- 12.15 Advancements in medical treatment of Cystinuria in the
past decade. – Dr Shabbir Moochhala, Royal Free Hospital, London
12.15 -1.00 lunch, refreshments and networking
1.00- 1.30. Advancements in surgical treatment of Cystinuria in the past
decade. -Miss Kay Thomas- Guy’s and St Thomas’ hospital. London
1.30- 2.15. Where next for improving the treatment and lives of patients
with cystinuria? Research and registries. - Dr John Sayer, Newcastle
University and Professor Richard Coward, Bristol University and Bristol
Children’s hospital.
2.15- 2.45 Refreshments and networking
2.45- 3.45 Understanding what is important for patients with cystinuria
(diet, treatments, lifestyles and diagnosis)- an interactive session….
[please bring smart phones/ tablets if possible] Mr Mark Woodward, Bristol
Children’s hospital.
3.45-4.00 Future plans and wrap up.
This event is free as sponsored by the British Kidney Patient Association.
However places are limited, so TO REGISTER PLEASE go to:
https://eventbrite.co.uk/event/15828757239/