2nd UK national cystinuria patient study day Saturday the 18th April 2015 10.30 – 4pm Dorothy Hodgkin Building, University of Bristol, Whitson Street Bristol, BS1 3NY Provisional programme: 10.00-10.30 Registration and refreshments. 10.30- 10.45 Welcome and objectives- Richard Coward, Bristol University 10.45- 11.45 “What we have learnt about the genetics, treatments and outcomes of Cystinuria in the UK in recent years - London”- Dr Kathie Wong Guy’s and St Thomas’ hospital. London - The South-West and North-East regions” - Dr Hannah Rhodes, Bristol University. 11.45- 12.15 Advancements in medical treatment of Cystinuria in the past decade. – Dr Shabbir Moochhala, Royal Free Hospital, London 12.15 -1.00 lunch, refreshments and networking 1.00- 1.30. Advancements in surgical treatment of Cystinuria in the past decade. -Miss Kay Thomas- Guy’s and St Thomas’ hospital. London 1.30- 2.15. Where next for improving the treatment and lives of patients with cystinuria? Research and registries. - Dr John Sayer, Newcastle University and Professor Richard Coward, Bristol University and Bristol Children’s hospital. 2.15- 2.45 Refreshments and networking 2.45- 3.45 Understanding what is important for patients with cystinuria (diet, treatments, lifestyles and diagnosis)- an interactive session…. [please bring smart phones/ tablets if possible] Mr Mark Woodward, Bristol Children’s hospital. 3.45-4.00 Future plans and wrap up. This event is free as sponsored by the British Kidney Patient Association. However places are limited, so TO REGISTER PLEASE go to: https://eventbrite.co.uk/event/15828757239/
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