How to Retire When You Have No Retirement Savings / Atomic Veterans Have New Voice on Advisory Board / New Benefit for Catastrophically Disabled Evaluation / 10 Tips To Consider When Shopping for Mobility Conversion And Much More... Page 2 LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE OFFICERS: PRESIDENT: ERIC T. PAYTON VICE PRESIDENT: STEVEN RAY SECRETARY: TOBY GOODMAN TRESURER: JOHN FAY BOARD OF DIRECTORS: JACKIE CHILDRESS CHARLES BRANNON MATT KINGSLEY TRICIA LABAR RICK COE LAUREN BILLINGS NATIONAL DIRECTOR: STEVEN RAY PROGRAM DIRECTORS: HOSPITAL LIASON: RICK COE GOVERNMENT RELATIONS: ROBYN SMITH LEGISLATIVE/ADA: TED SMITH MEMBERSHIP: GLENDON BENTLEY SPORTS: JOHN FAY COMMITTEE DIRECTORS: MS COMMITTEE DIRECTOR: LAUREN BILLINGS SOCIAL: STEVEN RAY HONOR GUARD: JOHN FAY OFFICE STAFF: EXECUTIVE DIRECTOR: GLENDON BENTLEY EXECUTIVE ASSISTANT: ROBYN SMITH RECEPIONIST: MARINETT BRIELLARD Website: www.mypva.org IMPORTANT NUMBERS: Telecare 800-677-8289 Medication Refills 800-849-3594 To Order Online: www.myhealth.va.gov PVA DALLAS OFFICE SENIOR BENEFITS ADVOCATE: PERRY M. DIJKMAN SENIOR SECRETARY: ZELDA HERRERA VA MEDICAL CENTER 4500 S. LANCASTER ROAD SCI UNIT ROOM 1A102 DALLAS, TEXAS 75216 214-857-0105 or 0106 SUMMER 2011 ISSUE Page 3 Magazine Summer 2011 In This Issue: How to Retire When You Have No Retirement Savings 4 Department of Veterans Affairs 5 Multiple Sclerosis Group / MS News 6-7 VA IT Still Falling Short of 21st Century Technology / Legislation Improves Benefits Systems for Veterans and Updates Arlington National Cemetery Requirements 8 Executive Director’s Report / Editorial Cartoons 9 President’s Report 10 Honor Guard / Hiring Heroes Act of 2011 Could Boost Veterans’ Career Opportunities 11 Washington Update 12 - 14 Paralyzed Veterans Sports & Recreation Schedule 15 From Hunting Season To Fishing Season / Presidential Volunteer Service Awarded To Our Own Jackie Childress 16 New Benefit for Catastrophically Disabled Evaluation 17 10 Tips To Consider When Shopping for Mobility Conversion 19 Spinal Cord Injury Research at the Mayo SCI Birthdays The Sam Rayburn Memorial Veterans Center in Bonham 20 - 22 23 24- 27 SCI Calendar for June 28 Crossword: 29 What’s Cooking: 30 - 31 Page 4 LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE How to Retire When You Have No Retirement Savings by Steve Vernon How many of us are either in this situation or know someone who is? Chances are, if I could do a show of hands, it would be a very high percentage. To that end, I received this article from Ms. Bowers in an email and thought this would be an excellent article to share with everyone. It makes lots of sense, but may well need some tweaking given the population we serve, but could have the added benefit of sharing aids for even more savings. In today's economy, creative thinking is what is going to help make life, especially end of life decisions as difficult as they are, even more difficult when you throw in the financial factor we must ALL face in this world. I hope you enjoy the read and get some information that you can use to start planning now. Unless you're Rip van Winkle and have been asleep for the past 20 years, you know about the paucity of Americans' retirement savings and their resulting lack of confidence in their ability to retire. So if you're one of the millions of Boomers approaching retirement age with LOW to NO retirement savings, should you just wring your hands in despair and give up? No way! You'll just have to be resourceful, and make the BEST use of the assets you have. Let me offer an example of how you can be creative to have a good retirement. Suppose you're part of a married couple, both age 60, you're earning about $75,000 per year, and you've earned a similar amount throughout your career, adjusted for average growth in wages. Also suppose your spouse had sporadic earnings and will be relying on the Social Security spouse's benefit based on your earnings record. In this case, your Social Security income at age 66, which is your Full Retirement Age (FRA), will be roughly $2,000 per month. Your spouse would receive an additional $1,000 per month at his or her FRA for a combined income of $3,000 per month, or $36,000 per year. Now consider a move that may sound radical, but is also quite practical: consider hooking up with another like-minded couple in a similar situation, finding a nice three-bedroom house, and living together. Your combined income will be $72,000 per year. Beating the Averages This $72,000 income amount is higher than the national average annual income of $62,857 for household units in 2009, as reported by the U.S. Department of Labor, or the median household income for all American family units of $50,221, as reported for 2009 by the U.S. Census Bureau. It's also higher than the average annual expenditures of $49,067 as reported by the U.S. Department of Labor in 2009 for all U.S. household units. So if an average American family can live on less than $72,000 per year, I'm betting that two resourceful married couples can do the same. And remember that ALL this Social Security income will be increased for inflation, and that retirees pay LESS income taxes on Social Security income than taxes paid on wages earned by working Americans. And there are a number of ways your situation can get better. First, if you delay taking your Social Security income until age 70, your monthly income would increase to $2,640 per month. There's NO reason for your spouse to delay taking benefits beyond age 66, since there's no delayed retirement credit that increases the spouse's income. In this case, you'd want to file and suspend your Social Security income at age 66, so your spouse can start the $1,000 monthly spousal benefit income at age 66. When you reach age 70 and you begin taking your Social Security benefits, your combined income will be $3,640 per month, or $43,680 per year. If both married couples did this, their combined income would be $87,360 per year. It can get even better if both couples start saving like crazy now, and between them save $2,000 per month. If they do that for 10 years, they will have accumulated a little over $150,000 (assuming they earn 5 percent annually on their savings). If they decide to start drawing on that savings for additional income, it could generate $6,000 per year if they withdraw just 4 percent of their savings, and $7,500 per year if they withdraw 5 percent. Don't Spend it All in One Place However, I'd suggest they keep this savings invested for the inevitable day when one or more of them DIE and they lose the resulting Social Security income. In the example above, if either the wage earner or the spouse dies, then the spousal benefit of $1,000 per month stops, and the wage-earner's income continues for the remaining life of the surviving spouse. This amount was $2,000 per month if the wageearner started benefits at age 66 and $2,640 per month if the benefit started at age 70. I'd also suggest that this pair of couples make every attempt to spend LESS than their combined Social Security income and SAVE as much as possible, because it's inevitable that one or more of them will need some form of long-term care. They may be able to take care of the first person needing care, but eventually they won't be able to do this on their own and they'll need to pay for additional help of some kind. I also recommend they make a pact to be as healthy as possible, to reduce the money they'll spend on medical and long-term care bills. All of them can encourage each other to get daily exercise, such as walking together after dinner. They can share meal responsibilities, making healthy food they can all share. They might band together to grow their own food in a vegetable garden. They could share resources, such as appliances, cars, furniture, etc. They could start their retirement with a giant yard sale to get rid of the furniture and appliances they don't need -that would garner even more savings. In short, they've formed a commune! Finally, if one or both of the couples own homes that can be rented, they should do so in order to generate additional income. And the home equity could be tapped if and when one or more of these retirees needs long-term care. I realize that there are many challenges that need to be addressed with such an arrangement, such as compatibility, discretionary spending, sharing of savings, estate issues, and deciding where visiting children or grandchildren will stay. And there will be significant challenges when one person needs long-term care or DIES; they will need to plan carefully for this eventuality. But in the meantime, they'll have had many good years of retirement. This is just one example of how you can be resourceful to make your retirement work. I realize that your circumstances might NOT fit the above example, but I hope this will inspire you to get creative in order to make the BEST of your retirement years. Page 5 SUMMER 2011 ISSUE VA Processing Hundreds of Applications for New Family Caregiver Benefits in First Week In the first week for open applications, the Department of Veterans Affairs (VA) has assisted more than 625 Veterans, Servicemembers and their Family Caregivers in applying for new services under the Caregivers and Veterans Omnibus Health Services Act 2010. ―We are off to a good start having helped hundreds to apply, but we know there are thousands more who will qualify and need to apply today,‖ said Secretary of Veterans Affairs Eric K. Shinseki. ―I encourage eligible Veterans and their Family Caregivers to apply now to receive the benefits they have earned.‖ New services for primary Family Caregivers of eligible post-9/11 Veterans include a stipend, mental health services, and access to health care insurance, if they are not already entitled to care or services under a health plan. The stipend portion of this service will be backdated to the date of the application. Comprehensive Caregiver training and medical support are other key components of this program. also assisted nearly 1,200 other Caregivers in finding more than two dozen other Caregiver benefits VA provides. VA began processing applications for eligible post-9/11 Veterans and Servicemembers to designate a Primary Family Caregiver on May 9, 2011. On top of receiving the 625 plus applications, Caregiver Support Coordinators have Atomic Veterans Have New Voice on Advisory Board Roadman is New Chair for Dose Reconstruction Dr. Charles H. Roadman II, a retired Air Force lieutenant general and professor of military and emergency medicine at the Uniformed Services University of the Health Sciences, assumed duties as the chairman of the Veterans’ Advisory Board on Dose Reconstruction last month. ―General Roadman brings years of medical expertise and leadership experience, a passion for helping his fellow Veterans and a profound sense of urgency to reach all those who may have been exposed to ionizing radiation during their military service,‖ said Secretary of Veterans Affairs Eric K. Shinseki. ―We are committed to supporting his efforts.‖ Roadman, who previously served as the surgeon general of the Air Force, succeeded retired Vice Adm. James A. Zimble, physician who served as chairman of the advisory board. Roadman sits on the board of directors of Assisted Living Concepts, Inc., and Air Force Village. He is a member of various non-profit and for-profit scientific advisory boards. As its second chairman, Roadman provides leadership to the board, a federal advisory committee that works with VA and the Department of Defense through the Defense Threat Reduction Agency on issues of importance to the nation’s atomic Veterans. Atomic Veterans include service members who participated in the 1945-1946 occupation of Hiroshima or Nagasaki in Japan, and in atmospheric nuclear testing sponsored by the United States between 1945 and 1962. As part of its charter, the board conducts periodic, random audits of dose reconstructions and decisions on claims for radiogenic diseases and assists VA and DoD in communicating information on the mission, procedures, and evidentiary requirements of the dose reconstruction program to Veterans. VA examines and treats atomic Veterans, or other Veterans exposed to ionizing radiation in service. It also evaluates disability claims and pays compensation to Veterans whose health has been adversely affected by exposure. Roadman retired in 1999 as the Air Force Surgeon General. Since his retirement, he served as president and CEO of the American Health Care Association in Washington, D.C., from 1999-2004. DEPARTMENT OF VETERANS AFFAIRS Page 6 We’ve really had some great luncheons with terrific guest speakers! In February we hosted Master Gardener David Gary and fellow Master Gardener Gene Morrisey. What makes David unique and inspiring is that he is in a wheelchair. He was diagnosed with muscular dystrophy at age 28. David discovered his passion for gardening as a volunteer at the Dallas Arboretum. He showed us how he gardens from a power chair with his own special tools and techniques. He shared with us magnificent slides of his own residence that included paths, trees, bird houses, a multi-level deck and more. It was quite inspirational. If you want to contact him his email is [email protected] and phone is 214-206-7767. Also, Erica Sutton from the National Multiple Sclerosis Society (NMSS) introduced herself and spoke briefly about the MS Walk and wanted us to know that they are a great resource for those with MS. Her contact info is [email protected] and 214-373-1400. In March, Perry Dijkman, Senior Service Officer for the PVA, spoke with us and shared invaluable information with us. Perry is such a terrific resource for veterans with MS and spinal cord injury. I met Perry when I moved to Texas 6 years ago. I had previously worked with a county service officer in Orlando and nothing was happening on my claim. Sometime around the time of my move, I was told that the PVA service officers are the best at helping with claims for those with MS and spinal cord injury. Perry took over the claim and made sure my benefits were increased. We’re currently working on raising those benefits. Patience and persistence are the name of the game with VA claims. I know I have the best advocate on my side and I’m pleased to be able to call Perry my friend. Side note: Several years back he introduced me to Bill Clifford, Glen Bentley (who connected me with Ron and Karen Roland) and some of the terrific team at our PVA Lone Star Chapter. Friendships began to develop and I continue to have the privilege of getting to know many amazing people through my role in the PVA (including the Chapter team and the people in the MS Support group). I’m really grateful for that. LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE Dr. Stuve was our guest speaker in April. He had just been to an MS Conference in Honolulu and shared with us the most up-to-date results of MS research and treatments. He shared with us what was presented and discussed about what’s working, what’s not working, what’s being researched and developed and what’s on the horizon. It’s very exciting! We are very fortunate to have some like Dr. Stuve here at our VA! In May, we had an open discussion moderated by Pat Sykes. Pat’s husband was diagnosed with MS 30 years ago. Her two adult children were later diagnosed with MS. Pat has studied and researched for years to try to find answers and treatments. She is a great resource for this group and it was really great how she opened up topics and encouraged people to participate. Attendees brought up questions and others were able to answer or refer them to a place where they might find the answers. Here are just a few highlights from our meeting: (forgive me if I’ve left out any of our discussion – these are just a few things that I managed to take notes on) Karl is our expert in physical fitness and healthy eating. He teaches by example that staying fit and paying attention to proper nutrition are important to maintaining energy, strength and physical ability. He inspires others (myself included) to do our best so MS has as little of an impact as possible on our bodies. Prentis shared a tip (that came from Karl) about whey protein powder (added to water or milk) helping to give him the energy to help motivate him to exercise. He mentioned that the one he likes is by Jay Robb. I’ve already picked up a sample at the Family Health market to give it a try. I’ve seen it at Kroger, too. John shared his personal experience with long distance swimming. I think he said he was able to work up to a mile (total laps)! But he started small with just one lap. Impact on the joints and overheating is not a concern with swimming. So it’s a great option! He said he loves the YMCA for this We also talked about cooling vests for use during the hot months. I’m not sure now it works outside the VA, but my personal experience was this – Dr. Pacheco referred me to Occupational Therapy and they issued a cooling vest for me. Mine is navy blue and at MULTIPLE SCLEROSIS that time they also had olive green. It’s been great for my son’s soccer games. Along with the umbrella to shade me, I was good to go! Carol shared that Plano Baylor has an Exercise Program that is geared toward those with MS and it’s FREE! She also shared a great tip about…blowing bubbles! You know, the ones the kids love to play with? She said that she was taught that doing this 3-4 minutes per day – and allowing yourself to really expand your belly gets a lot of oxygen into your body, your lungs, your blood and brain! Debbie brought up how massage is so good for us. I mentioned that massage can be covered by insurance. See your doctor our chiropractor or other health care practitioner to find out more. By putting it in the context of the patient (you) having MS – they know that we have special concerns (muscle tightness, etc). I think it was Debbie who brought up stretching as well. Be sure to be stretching each day. Dr. Oz says it’s the very first thing we ALL should be doing every morning! Well, I tried to include as much valuable information as could remember. Our next luncheon is Monday June 20, 2011. Dr. Marder from the VA will be our guest speaker and will be sharing a CCSVI study update. She will also be discussing other studies. Who knows, maybe some of you will want to join a study! Our luncheons take place the 3rd Monday of each month at 12:00 noon, usually at the Dallas VA Hospital in the SCI Dining Room or Gym. We will not be meeting in July or August, but will resume on Monday September 19th 2011. We will be looking forward to more great speakers with great information! As I mentioned last time: If you have knowledge of information about MS that you feel would benefit the members, please send it my way and I will share it with the group. If you know of research studies, clinical trials, opportunities for focus groups, medical breakthroughs and good resources please let me know. For anyone who does not want to receive this information by email, please let me know at [email protected]. You can also reach me by phone at 214-3993535. If you come across great ideas for programs to present at our luncheons, please let me know. And if there’s some way that you would want to help, I welcome that idea too! I look forward to seeing you on June 20th! Lauren Page 7 SUMMER 2011 ISSUE While Probing Activity of New Multiple Sclerosis Drug, NIH Researchers Uncover Inner Workings of the Immune System By Daniel Stimson, Ph.D. Daclizumab is one of the newest therapies under study for treating multiple sclerosis (MS). It quiets the abnormal immune reactions that occur in people with MS by targeting a single molecule on immune cells. Beyond that, how daclizumab works is largely a mystery. Now, research from the National Institutes of Health has revealed insights not only into the drug's effects, but into the basic biology of the immune system. The work was led by Bibiana Bielekova, M.D., an investigator at NIH's National Institute of Neurological Disorders and Stroke (NINDS). She and her colleagues have been testing how daclizumab affects the immune cell responses of people with MS and healthy volunteers. Their latest findings are reported in Nature Medicine.* In MS, the immune system attacks the brain and spinal cord, typically leading to fatigue, weakness, and a loss of vision and other sensations. The disorder affects approximately 400,000 people in the U.S. Daclizumab is based on a molecule first developed in the lab of Thomas A. Waldmann, M.D., a senior investigator in the Metabolism Branch at NIH's National Cancer Institute (NCI). It is approved in the U.S. for preventing organ transplant rejection, and for several years, Drs. Waldmann and Bielekova have collaborated to study its potential for treating MS. In two small trials, the NIH team found that daclizumab given in combination with the MS drug interferon-beta reduced the number of new lesions (areas of damage) in the brain. Just last year, a team based at University of Utah reported the results of the large, placebocontrolled CHOICE study. The study confirmed that using daclizumab as an add-on therapy helped patients whose symptoms had relapsed while they were taking interferonbeta. Meanwhile, the NIH team is steadily unraveling how daclizumab works. Such research may help to predict how patients will respond to the drug, and to generate more potent derivatives. The drug is known to interfere with interleukin2 (IL-2), a key signal that mobilizes immune cells to attack. However, the researchers are discovering that IL-2 signaling involves a surprisingly complex, intimate dance between immune cells. Their findings have relevance beyond MS, to a more general understanding of how the immune system functions in health and disease. "It is difficult to study the human immune system under natural conditions. People are exposed to bacteria, viruses and other pathogens all the time, and they activate different immune cells in response. This makes it nearly impossible to sort out potentially subtle differences in the immune system of healthy individuals from those with a disease," said Dr. Bielekova. "A drug like daclizumab gives us a rare opportunity to study the immune system because it targets a single molecule, and we can measure what the immune system is doing before and after treatment." One function of IL-2 is to activate T cells, which are the mobile infantry of the immune system. When the body is under siege by an infection, IL-2 serves as a clarion call for the T cell army to expand and attack. In MS and other socalled autoimmune diseases, for reasons that are not clear, T cells launch a misguided attack against the body's own tissues. Daclizumab blocks the IL-2 receptor, which is found on T cells and other cell types. The drug specifically targets a piece of the receptor called CD25. When daclizumab was first tested against MS, researchers theorized that it was acting directly on T cells, shutting off their IL-2 receptors. However, in two recent studies, the NIH team found that daclizumab's effects on T cells are mostly indirect. In a previous study, they found that daclizumab stimulates cells called natural killer cells, which MULTIPLE SCLEROSIS in turn suppress T cells. That study was done by analyzing blood samples from MS patients who were taking daclizumab in clinical trials at NIH. Patients with the highest activation of natural killer cells had the most benefit from daclizumab, suggesting that a blood test for natural killer cells may serve as a good indicator of how patients are responding to the drug. The NIH team also found a unique patient who benefited from daclizumab without the natural killer cell response. This prompted the researchers to investigate other effects of the drug. In Nature Medicine, they report that in addition to its effects on natural killer cells, daclizumab blocks CD25 on dendritic cells, whose job it is to prime T cells for battle by presenting them with a target (or antigen). They also discovered that CD25 is the key to an intricate maneuver that takes place between T cells and dendritic cells. Just as people are born with innate talents and skills, T cells are born to recognize specific antigens. When a dendritic cell encounters an antigen, such as a piece of virus, its task is to activate the matching T cell, causing the cell to multiply and produce an army of clones. Dr. Bielekova and her colleagues found that IL-2 and CD25 produced by dendritic cells are essential to this activation process. The findings show that when a dendritic cell finds the right T cell, it activates the T cell by releasing IL-2 at the site of contact. Meanwhile, the dendritic cell also simultaneously "lends" the T cell its CD25, because prior to activation, the majority of T cells do not have their own CD25. While the two cell types are in close contact, the CD25 connects with other components on the T cell surface and is assembled into a complete IL-2 receptor. "This mechanism allows the dendritic cell to restrict the IL-2 signal only to the T cell that reacts to the right antigen," explains Dr. Bielekova. "This is an incredibly intimate type of crosstalk between the two cell types." These findings could have relevance for how MS and other autoimmune diseases begin in the first place. With further study of the interleukin system and how it activates T cells, researchers may be able to discern why some T cells go rogue. Indeed, subtle genetic differences in CD25 and IL-2 have been observed in patients with autoimmune diseases. Page 8 LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE VA IT Still Falling Short of 21st Century Technology recent increased funding and staffing. Rep. Bill Johnson R-OH The Subcommittee on Oversight and Investigations held a hearing entitled, ―Reboot: Examining the U.S. Department of Veterans Affairs Information Technology Strategy for the 21st Century.‖ Committee members hoped to receive a positive progress report from VA regarding IT improvements following ―More than four years have passed by since the Dole-Shalala Commission recommended a shared DoD-VA database for transitioning veterans,‖ stated Rep. Bill Johnson (OH-06), Chairman of the Subcommittee on Oversight and Investigations. ―And yet today, despite advances in technology and increased funding, VA has yet to implement, or even begin to implement, a seamless, shared database with the Department of Defense. There is absolutely no reason that in 2011 this has not moved an inch.‖ VA’s antiquated systems for processing numerous services for veterans, many still paper-based, include benefits to compensation claims to medical records. ―Historically, VA has struggled to manage IT developments that successfully deliver desired results within cost, schedule, and perfor- mance objectives,‖ said Belinda Finn, Assistant Inspector General for Audits and Evaluations, Office of the Inspector General at VA. ―Our [ongoing] audit results should provide valuable information to VA and Congress as VA moves forward in managing its technology investments.‖ Rep. Johnson commended VA’s successes. He also highlighted, however, that more progress was necessary to ensure an efficient utilization of resources in the future and eliminate redundancies within VA’s IT architecture. ―We expect VA to implement a timeline for the VA-DoD integration of an electronic health record. We also want to know why there remains a lack of system integration, a lack of program management, poor IT contracting practices, and overall oversight at VA,‖ questioned Johnson. Legislation Improves Benefits Systems for Veterans and Updates Arlington National Cemetery Requirements The Subcommittee on Disability Assistance and Memorial Affairs favorably reported three bills to the House Committee on Veterans’ Affairs. The bills are expected to go before the Committee as early as next Thursday, May 12, 2011. America’s Jewish War Chaplains. This legislation is long overdue and provides the Department of the Army with guidelines to ensure groups wishing to memorialize service, above and beyond, can do so in a timely manner without Congressional inference.‖ ―With the recommendation to move this legislation forward we are ensuring benefits for veterans are in line with today’s economic climate. We have also taken appropriate action, regardless of rank, to protect against new burial reservations at Arlington National Cemetery,‖ stated Representative Jon Runyan (NJ-03), Chairman of the Subcommittee on Disability Assistance and Memorial Affairs. H.R. 1627, as amended, also takes into consideration Arlington National Cemetery’s concerns voiced at Tuesday’s subcommittee hearing, allowing for exceptions to family member burial practices and further transparency in the process for placing monuments at Arlington. ―This is the time to restore the public’s trust in our country’s most hallowed ground, Arlington National Cemetery,‖ said Rep. Jeff Miller (FL-01), Chairman of the House Committee on Veterans’ Affairs. ―By passing this bill, we not only once again reaffirm our deepest gratitude to those who have made the ultimate sacrifice as we approach Memorial Day, but we also commemorate the service of The three pieces of legislation favorably reported to the full Committee are: H.R. 1407, the Veterans’ Compensation Cost -of-Living Adjustment Act of 2011 (introduced by Rep. Runyan, Rep. LoBiondo, and Rep. Stutzman) – as amended. H.R. 1484, the Veterans Appeals Improvement Act of 2011 (introduced by Rep. Filner) – as amended. H.R. 1627, To amend Title 38, United States Rep. Jon Runyan R-NJ Code, to provide for certain requirements for the placement of monuments in Arlington National Cemetery, and for other purposes (introduced by Rep. Miller, Rep. Johnson, and Rep. Roe) – as amended. Page 9 SUMMER 2011 ISSUE I know this might sound like a broken record, but I feel it needs to be said, and here goes. This past Sunday we held our General Membership & Election Meeting where the results from the chapter elections were tallied. I first want to thank everyone who ran for the offices, everyone who voted, a huge thank you to the Oak Lawn Band who did a fantastic job playing for the membership. Congratulations to all the members who won the election results are as follows; Eric Payton, President, John Fay, Treasurer, Tricia LaBar and Matt Kingsley, Board Members. It will be an honor to have them on the Board again for a two year term. Now for the unpleasant part, it was shameful that we had such a small turnout for such a big event, it is pitiful when we can’t even get five of the ten Board of Directors to attend the event. Now granted we did know of a few BOD members that had legitimate reasons for not being there, but come on you are the leadership of this chapter and you need to attend these events. I will be bringing this up at the BOD meeting next month as well. On top of that we only had not including the BOD members and staff in attendance approximately ten voting members of the organization there. Now that is not what we as a chapter want, we moved the meeting to central location within the DFW area per some of the members request, they said it’s not fair that they should have to travel to Dallas for every membership meeting, so we moved it in hopes of getting more people to attend, and we move the day and time too so that more could attend. But then when I looked around the room that day we had the same people that always come to the meetings, and I am sure they would come no matter where we held the meeting. This is YOUR chapter, please take an active role in it, we have just under 500 members in the chapter, you would think we could get more than 10 members attending a General Membership Dinner with free food and entertainment. If you think there is a better way to get participation, please let me know so that we can try that. We need support from our membership to make this the best chapter possible. Ok enough about what is wrong, now on to what we at the chapter have been up to. These past few months have been busy with several Honor Guard events, the PVA PAWs Month activities and getting ready for our up-coming Bass Tournament. For PAWs Month we tried to schedule an event every week and for the most part we did, the caregivers had a chance to do a day at the Spa and from all the feedback we got they just loved that. They even suggested that we do it once a month. But I think our pocketbook wouldn’t let that happen…(nice try though). We also had a small disability expo at the Dallas VA that went real good, some of the patients and families got to see several different types of vehicle for the disabled and we also had some sporting activities set up too. One week we hosted a cookout at the SCI Center and as always it was a hit with the patients and staff, so thanks to all the volunteers that made it possible. I want to thank everyone who had a hand in making the PVA PAWs month a success and look forward to doing upcoming event with our volunteers. So as you see we are busy here and that is a good thing and we look forward to continuing to do great things with the chapter. Page 10 LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE Mobility Fair happen. This quarter was a very busy time. We had a lot going on, April was PVA awareness Month. The first week was kind of sponsoring a craft class called Stampin Up where Marin made arrange- ments with Ms. Ruth Castleberry to come and show the Caregivers how to have fun making personalized greeting cards. The week ended by Robyn slow paced we started out with Open house, the second week we hosted a BBQ and an Air Rifle orientation and In furthering nurse’s education we sent 1 nurse to a wound care classes and we are sending 6 nurses and the 2 OT’s, 2 PT’s, 2 social workers, and the SCI AO to the SCI Summit 2011 + EXPO: Delivering Excellence, Achieving State-of-the-Art Health Care PVA will be hosting on September 16-18, 2011 in Orlando, Florida. In Sports we sponsored 12 veterans & volunteers to Mid-America ―OKIE OPEN‖ PVA Bass Tournament Hosted by Mid-America PVA, April 29-May 1, 2011, Lake Eufaula, Eufaula, OK. We are also sponsoring 6 veterans to the National Veterans Golden Age Games, May 26 - May 31, 2011 - Honolulu, Hawaii. & Marin taking two groups of caregivers to the Hollywood spa for a day of much needed pampering followed by practice at the Dallas VA SCI Center The third week was dedicated to the caregivers, we started out the week by a luncheon at La Madeline’s. They had a short discussion on making preparation for when you or your loved one passes away. The last week we held a Mobility Fair at the Dallas VA. I would like to thank all the volunteers who made all these events possible and the Organizations and Mobility Companies who made the Other items we sponsored last quarter were the MS luncheon at the Dallas VA May 16, 2011, coffee, soda’s, water and other stuff for the Internet Café, a Pee Wee football team in Oak Cliff and one in Waco, and helped 2 families with household emergency. I am honored to be reelected for another term as your President and to represent the community and our great chapter. Page 11 SUMMER 2011 ISSUE Membership Report: 221 Service Connected 254 Non Service Connected 475 Total Membership During the last month we had 13 of our members pass. If you wish to join the chapter you can get applications from the Chapter office or Perry Dijkmans office. Please fill out completely sign and date wherever required and attach a copy of your DD214 and mail or fax it to the Chapter at 3925 Forest Lane, Garland TX, 75042 or fax 972-276-5350 or scan and email to [email protected]. All applications must have DD214’s attached to them to be accepted by the National office. Hiring Heroes Act of 2011 Could Boost Veterans’ Career Opportunities Legislation moving through Congress to help new veterans transition back to work in the public sector is being welcomed by Paralyzed Veterans of America. The Hiring Heroes Act of 2011, introduced by U.S. Senator Patty Murray, would boost transitional job skills training and provide more public sector job opportunities for veterans. ―Opening-up a pipeline to good jobs and careers for all veterans — and particularly the estimated 85% with severe disabilities who are unemployed — must be a top national priority, both for the public and private sector. The new legislation could help open-up that pipeline for new veterans,‖ said Bill Lawson, national president of Paralyzed Veterans, home to one of our nation’s most innovative public-private initiatives to tackle unemployment for veterans with disabilities. The Paralyzed Veterans’ PAVE (Paving Access to Veterans Employment) program — with offices in six U.S. cities — empowers veterans with disabilities with the services and tools they need to reintegrate into the job market, while matching them with businesses and organizations offering career positions. Established in 2007, LSPVA Honor Guard By John D. Fay The Lone Star Chapter, Paralyzed Veterans of America Honor Guard was formed in 1995 and was the first wheelchair Honor Guard in the nation. The Honor Guard allows members to be of service to our country even though we are in wheelchairs. Anyone who is a member of the chapter, uses a wheelchair to get around, has reliable transportation, and is a dependable person, may join the Honor Guard. We currently have 16 people on the Honor Guard Roster and only half of them participate on a regular basis. We really need more people to join the Honor Guard, we have so many events we currently have to turn some down. We will never turn down a funeral though because we feel that it is our highest priority to give the veteran his or her last Military Honor for their service to our great nation. Families of the deceased really appreciate what we do and it helps bring solace to the grieving families. To join the Honor Guard all you have to do is call the office and contact the Honor Guard Commander, which is myself, John Fay. If you don't want to fire a rifle, no problem you don't have to. We also do numerous events that only require us to Present the Colors. We have several members that don't want to use a rifle. We do not have regular meeting scheduled, we meet several times a year to clean weapons and when major events are scheduled like Veterans Day, and Memorial Day. When you join, I will meet with you at the office to order your uniform and answer any questions you may have about the Honor Guard. I will also go over the com- the program is a partnership between Paralyzed Veterans of America, businesses, philanthropy, and the U.S. Department of Veterans Affairs. ―Paving access to veterans employment is an urgent priority for Paralyzed Veterans of America,‖ said Sherman Gillums, acting associate executive director of Veterans Benefits, himself a graduate of the Paralyzed Veterans’ program. ―The Hiring Heroes Act could help to further empower new veterans with the skills they need to transition back to work. It also formally recognizes the world-class skills, training and experience they received while in the service when it comes getting a good career in the public sector.‖ Everyone has a role to play in solving the puzzle of unemployment in a tough economy, says Lawson. ―All sectors must hire more veterans—including the private sector where the lion’s share of jobs are created. My message to CEOs is: hiring more veterans is both good for business and great for America. Businesses get great employees. America sons and daughters who have served, get a fairer shot at the American Dream, a good job and career.‖ mands and motions with you until you feel you are ready, then before an event the Honor Guard will practice with you. After several events it becomes second nature and you will be mentoring others who want to join. The Honor Guard is a good way, and a very visible way to volunteer for the chapter. It is also a way to let everyone know what branch of the service you were in and what you did. You get to wear the ribbons and other awards that you earned while you served your country. It’s pivotal in allowing members to continue to serve their country by showing respect to fallen soldiers and their country. We do numerous funerals and other events that sometimes draw the media. I personally think that it is an honor to serve on the LSPVA Page 12 VA IMPLEMENTS NEW FAMILY CAREGIVER PROGRAM FOR POST—9/11 VETERANS On May, 9, the Department of Veterans Affairs (VA) began accepting applications from family caregivers who care for severely wounded post—9/11 veterans and wish to seek support services from VA. Such services are available to eligible caregivers through the newly implemented Family Caregiver Program which was established by Public Law 111-163, the ―Caregivers and Veterans Omnibus Health Services Act 2010.‖ The VA Family Caregiver Program was created to provide support for primary family caregivers of veterans or service members from the Iraq and Afghanistan wars. Veterans and their family caregivers must apply to participate in the program, and both veterans and caregivers must meet all VA eligibility requirements in order to receive services. Additionally, if a veteran is not enrolled in the VA health-care system, he or she will need to apply for health care enrollment when completing the Family Caregiver Program application. The services available to eligible caregivers include a stipend, mental health services, access to health care coverage, and caregiver training. Although post—9/11 veterans are the primary recipients of the Family Caregiver Program, all caregivers of veterans can access other VA services for respite care, caregiver education and training, and support groups through their local medical center. To assist veterans and their families with obtaining information on this new program and application for caregiver services, VA has Caregiver Support Coordinators at all medical centers. PVA’s legislative staff will continue to follow the implementation of the Family Caregiver Program and provide feedback to Congress and VA as the program develops. Additional information about the program’s eligibility criteria and the application process is available at www.caregiver.va.gov. LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE SUBCOMMITTEE ON HEALTH HOLDS HEARING ON PROGRESS OF THE FEDERAL RECOVERY COORDINATOR PROGRAM On May 13, the House Committee on Veterans’ Affairs, Subcommittee on Health held a hearing on the Federal Recovery Coordinator Program (FRCP) entitled, ―From Concept to Reality.‖ The purpose of the hearing was to assess the progress and challenges of the FRCP and identify potential ways in which the program can be improved in order to fulfill its mission. PVA provided a statement for the record. The FRCP was created as a joint program between the Department of Veterans Affairs (VA) and the Department of Defense (DOD) to provide severely injured, ill, or wounded veterans and service members with individualized assistance obtaining health care and benefits. The FRCP was also designed to help veterans and their family members manage rehabilitation and reintegration into civilian life after a disability. Through the program, veterans and service members are assigned a Federal Recovery Coordinator (FRC) and create a Federal Individual Recovery Plan that consists of long-term goals for the veteran and his or her family members. Currently, FRCs are located at VA medical centers in Houston, Texas; Providence, Rhode Island; and Tampa, Florida. While many changes have taken place to further develop and enhance the services of the FRCP, PVA believes that more work must be done in order for the program to adequately meet the needs of veterans. Specifically, PVA’s testimony discussed the need for VA, DOD, and Congress to continue working together to address program challenges in the areas of continuity of care, care coordination, and program awareness. PVA also encouraged VA to partner with PVA, and other veteran service organizations, to identify veterans who may benefit from FRC services and to help educate WASHINGTON UPDATE veterans and their families on the FRCP. PVA’s legislative staff will continue to monitor the progress of the FRCP to ensure that it fulfills the purpose for which it was created—to provide guidance to veterans and service members who have sustained a catastrophic injury or disability so that they are able to make informed decisions involving their health care and benefits, and focus on their recovery and future endeavors. HOUSE VA SUBCOMMITTEE ON DISABILITY ASSISTANCE AND MEMORIAL AFFAIRS CONDUCTS LEGISLATIVE HEARING On May 3, the House Veterans’ Affairs Subcommittee on Disability Assistance and Memorial Affairs conducted a hearing to consider legislation regarding Arlington National Cemetery, the Department of Veterans Affairs (VA), claims and appeals process, and the Veterans’ Compensation Cost -of-Living Adjustment Act (COLA). Representative Jon Runyan, (R-NJ) serves as Chairman of the Subcommittee and Representative Jerry McNerney (D-CA) serves as Ranking Minority Member. In a statement for the record PVA supported H.R. 811, the ―Providing Military Honors for our Nation’s Heroes Act.‖ This bill would authorize the Secretary of Veterans Affairs (VA) to reimburse a member of a veterans’ service organization or other organization approved by the Secretary for transportation and other appropriate expenses incurred in connection with the voluntary provision of a funeral honors detail at the funeral of a veteran when family members or the funeral home request the honors. Additionally, PVA and other VSOs support H.R. 1407, the ―Veterans’ Compensation Cost-of-Living Adjustment Act of 2011.‖ This bill would increase the rates of compensation for veterans with serviceconnected disabilities and the rates of dependency and indemnity compensation (DIC) for the survivors of certain disabled veterans. Page 13 SUMMER 2011 ISSUE Unfortunately, for the past two years, there has been no increase in the rates for compensation and DIC because the Social Security index used to measure the cost-ofliving adjustment did not increase. However, many disabled veterans and their families who rely heavily or solely on VA disability compensation or DIC as their only means of income have struggled during these difficult times. As inflation continues to rise, it is imperative that they receive a COLA. H.R. 1441 would codify the prohibition against reserving gravesites at Arlington National Cemetery prior to the death of an eligible veteran. Additionally, this bill would prohibit the assignment of more than one gravesite to a veteran or member of the Armed Forces eligible for interment at a national cemetery and their eligible family members. PVA does not oppose passage of this legislation. PVA strongly supports H.R. 1484, the ―Veterans Appeals Improvement Act of 2011,‖ which seeks to improve the appeal process. Section 2 of the bill would allow a claimant to submit new or supplemental evidence in support of a case for which a substantive appeal has been filed, directly to the Board of Veterans’ Appeals and not to the VA Regional Office of jurisdiction. This provision does, however, preserve the claimant’s right to request VA Regional Office consideration of the new or supplemental evidence should they prefer that option. H.R. 1627 seeks to clarify the statute regarding the requirements for placement of markers or monuments in Arlington National Cemetery. The bill would codify specific requirements related to the type, purpose and designated areas for emplacement of monuments, as well as the authorization or approval process and sponsoring individuals or organizations required. PVA does not oppose passage of this legislation. PVA supports H.R. 1647, the ―Veterans’ Choice in Filing Act of 2011.‖ This legislation would authorize a 24-month pilot program to allow veterans served by certain poor performing VA regional offices the option to submit a claim for benefits at any regional office of their choice. Under the proposal, five regional offices would partici- pate in the pilot based upon criteria to be established by the VA Secretary. Upon completion of the pilot program, the Secretary would be required to send a final report to Congress containing recommendations about the future allocation of resources amongst VA regional offices. This bill is intended to serve as a catalyst to improve and/or reorganize poor performing VA regional offices through a sense of competition. Of the bills introduced, three—H.R. 1407, H.R. 1484, and H.R. 1627—were reported to the Full Committee in a mark up on May 5th and will be considered by the full committee. PVA will continue to monitor the activity on this legislation SUBCOMMITTEE ON ECON O M I C O P P O RT U N I T Y HOLDS HEARING ON PROPOSED LEGISLATION On May 3, the House Committee on Veterans’ Affairs, Subcommittee on Economic Opportunity held a hearing to discuss several new bills introduced in the 112th Congress. Representative Marlin Stutzman (RIN) serves as Chairman of the Subcommittee and Representative Bruce Braley (D-IA) serves as the Ranking Minority Member. The Subcommittee subsequently marked up and approved the bills on May 5, 2011. ―These bills are fiscally responsible, meet the needs of our veterans, and are supported by both sides of the aisle,‖ stated Chairman Stutzman. Although PVA did not testify at the hearing, we did submit a statement for the record. Included in the hearing and markup was H.R. 1383, the ―Restoring GI Bill Fairness Act of 2011,‖ introduced by Representative Jeff Miller (FL), Chairman of the House Committee on Veterans’ Affairs. PVA does not support H.R. 1383 as it is currently introduced. We support the concept of H.R. 1383 that will temporally preserve higher rates for tuition and fees for programs of education at non-public institutions of higher learning. However, PVA opposes Section 3 of H.R. 1383. This section will limit the cost of living increases of the monthly stipends for veterans who rely on this funding to support themselves and their families while they prepare for a career. With the cost of WASHINGTON UPDATE fuel rising each month, which effects the cost of living, PVA believes the GI Bill’s monthly stipend must be adjusted each year to help these veterans remain in school. PVA supports H.R. 1657, which calls for enforcement penalties for misrepresentation of a business concern as a small business owned and controlled by veterans or, owned and controlled by service-disabled veterans. PVA also supports H.R. 802, a bill to direct the Secretary of Veterans Affairs to establish a VetStar Award Program to recognize businesses that exceed established goals in hiring veterans. Iraq combat veteran and PVA member, Andrew Connolly from Dubuque, Iowa, was invited to testify for the May 3 hearing by Ranking Member Braley. He spoke in favor of H.R. 1671, the ―Andrew Connolly Veterans’ Housing Act.‖ Connolly had many months of difficulty and delay using the adaptive housing grant after his diagnosis of a tumor in his spinal cord. With the support of Congressman Braley, he eventually gained access to the housing grant. H.R. 1671 would extend the specially adapted housing assistance to individuals residing temporarily in housing owned by a family member for five years. PVA supports the extension of this benefit. All four bills were voted out of the Subcommittee on May 5 and will soon be addressed by the Full Committee on Veterans’ Affairs. COMPLETE STREETS LEGISLATION IN HOUSE On May 5, Representatives Doris Matsui (DCA) and Steven LaTourette (R-OH) introduced the ―Safe and Complete Streets Act of 2011‖ (H.R. 1780). H.R. 1780 would help ensure safe travel for millions of Americans by directing states and regions to adopt policies to provide for the needs of all users of public transportation and public rights of way, including people with disabilities. The bill is based on successful state and local policies that require every road project to create a safer environment. A federal provision would lead to policies in every state and every Metropolitan Planning Organization that will transform transportation planning practices to routinely provide for everyone using the roadway —whether they Page 14 LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE are walking, pushing a wheelchair, using canes or crutches, have sensory impairments, bicycling, driving, or catching the bus or train. It will likely be folded into the federal transportation authorization bill. Complete Streets policies require accessible crosswalks with sufficient time to cross, curbcuts, safe, even and wide sidewalks, accessible bus stops, etc. Twenty-three states and more than 200 regional and local jurisdictions have adopted Complete Streets policies to date. H.R. 1780 was referred to the House Committee on Environment and Public Works. A Senate version of the bill is expected soon. Complete Streets Policy Analysis 2010: A Story of Growing Strength (http:// ww w.c omp lete stre ets .org/ webd ocs / resources/cs-policyanalysis.pdf.) SOCIAL SECURITY WEBINARS ON MAY 19 & JUNE 1 The Consortium for Citizens with Disabilities [CCD] Social Security Task Force is sponsoring two Social Security webinars on May 19 and June 1. The webinar on May 19 is a basic "Social Security 101" course to help participants understand the importance of Social Security to people with disabilities. It will take place from 1 to 3 pm EDT. To register follow this link. Space is limited. Reserve your May 19 webinar seat now at: https:// www3.gotomeeting.com/ register/560244470 This webinar will explain the basics of the social insurance safety net that is created by the Social Security retirement, disability, and survivors programs. The webinar will include information on the current design of the programs, how the programs are funded, how workers are covered by paying into the system, and how benefits help people with disabilities, retired workers, their families and their survivors. This webinar will also outline the general and mostdiscussed options for reforming Social Security to ensure its long-term solvency and maintaining benefit adequacy. It will also provide some basic principles through which reform proposals can be evaluated. The webinar on June 1 will also be broadcast from 1 to 3 pm EDT and builds on the first webinar. It will explain the specific reforms that have been proposed by organizations/commissions and those contained in bills introduced by Members of Congress. It will explain their likely effects on the solvency of the Social Security trust funds. A primary focus of the webinar will be to examine the impact of these proposed changes on benefits received by program beneficiaries, specifically, how the proposals, if implemented, would affect people with disabilities, the elderly, and families who rely on the Social Security safety net. It will also provide information on the response of the national disability advocacy community to the reform proposals. To reserve your webinar seat now for June 1 go to: https:// www3.gotomeeting.com/ register/594886950 Space is limited so please register now. After registering you will receive a confirmation email containing information about joining the webinar. DOJ SIGNS AGREEMENT WITH INDEPENDENCE, KANSAS On April 28, the Justice Department reached an agreement with the city of Independence, Kansas through its Project Civic Access program. This agreement is the 189th under the initiative. According to census data, the city population is 9,846, and 23 percent of Independence residents have a disability. Under the agreement, within three years, Independence will: Make physical modifications to facilities so that parking, routes into the buildings, entrances, service areas and counters, restrooms, public telephones and drinking fountains are accessible to people with disabilities; Survey other facilities and programs and make modifications wherever necessary to achieve full compliance with ADA requirements; A toll free number is available if you cannot participate without it. Please listen through your computer or use the number provided in the confirmation email you will receive if you can. Email Lisa Ekman at [email protected] if your organization cannot participate without a toll free number. Ensure that buildings and outdoor facilities built by or for the city comply with the ADA’s architectural requirements; JUSTICE DEPARTMENT REACHES ADA SETTLEMENT ON ACCESSIBLE LAW SCHOOL APPLICATIONS Begin the modifications to ensure equal, integrated access to emergency management for individuals with disabilities, including emergency preparedness, notification, evacuation, sheltering, response, clean up and recovery; In late April, the U.S. Department of Justice reached agreement with Atlanta’s John Marshall Law School and the Law School Admission Council (LSAC) regarding accessibility of its online application service. The online process, which is widely used by many law schools, was not accessible to individuals who are blind and use a screen reader. As a result of these agreements, LSAC’s online application service will modify its software and train its personnel, and enable each law schools to insert specific features using the accessible software. Install signs at any inaccessible entrance directing individuals with disabilities to an accessible entrance; and Publish a notice to inform members of the public of the provisions of Title II and their applicability to the city’s programs, services and activities; Implement a plan to improve the accessibility of city sidewalks and provide for the installation of accessible curb ramps throughout the city This settlement can be found at: http:// www.ada.gov/independence_ks/ independenceks_sa.htm Check Out! WWW. MY PVA.ORG WASHINGTON UPDATE Page 16 LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE Presidential Volunteer Service Awarded To Our Own Jackie Childress The most exciting thing in the volunteer world this quarter was Mr. Jackie Childress was recognized by the President of the United States for helping to address the most pressing needs in his community and our country. He received the Presidential Volunteer Service Award which was awarded to him at the VA North Texas Health Care System Volunteer Recognition Celebration, April 18, 2011 at the Municipal Ballroom in Sherman Texas. Congratulations Jackie and thank you for your service to our veterans. The VA Hospital in Dallas SCI Internet Café (IC) has been opened since the summer of 2010. The IC is operated by SCI Volunteers MON – FRI 10:00 am-2:00 pm. Some days the IC opens early & stays open later. The IC has 2 desktop computers with Internet WiFi access, coffee machine with many favors, bottled water, sodas & 52” flat screen for all SCI patients, family members and staff. We are located across from OT & PT if you have appts. please come by and visit us. If you care to Volunteer contact the SCI ADMIN. Office or the IC. At this time all the Volunteer positions are filled at the IC. We want to thank the LSPVA for there help & donations to the IC.I SMILEY WALLACE SMILEY WALLACE 214-704-9046 From Hunting Season To Fishing Season By Jim Sifers Well the regular hunting season is over and fishing season is in. I want to thank Tire Kingdom's World of Adventure for annual duck hunting show in southeast Texas for giving THE LONE STAR CCHAPTER of PVA the opportunity to promote ourselves this year as in the past. Also I would like to thank Jon and Tim Peters of PINTAIL OUTFITTERS for their promotion of us and providing the venue for the hunt. The new season for the PVA BASS Tour began in October and there has currently been three tournaments. Congrats to those who have made a good showing and best wishes for the follow- ing journeys. The next tournament will be held in Illinois this month followed up by our own hosted tournament on Ray Hubbard in Garland, Texas. The work that goes into these venues are phenomenal but I know thru our chapter's dedication and Paul Offill's guidance we will once again put on the greatest PVA BASS tour of the year. While travelling on the tour I have been approached by many participants who cannot say enough about how they look forward to our hosted tournament. If you are not involved with the chapter, I highly recommend you begin because it not only helps others but yourself as well. One last "HAT'S OFF" to our officers and staff for their work and dedication to our members! See you on the water! Page 17 SUMMER 2011 ISSUE NEW BENEFIT FOR CATASTROPHICALLY DISABLED EVALUATION There are many veterans receiving medical care from the VA Medical Center who struggle to make co-payments for the medical care and medications provided to them. That is why the new law, which provides exempt status for medications and medical services, is such welcomed news. Under Caregiver and Veterans Omnibus Health Services Act of 2011, public Law 111-163 (2010). Section 511 of act added new section 1730A to Chapter 17 of title 38, United States Code, which provides that catastrophically disabled veterans are now provided exempt status from copayments for hospital care and medical services received at the VA Medical Center, which include copayments for prescription drugs, is such welcomed news. The key to obtaining the benefit is to request appropriate assessment to be placed in category 4, which is reserved for veterans who are in receipt of increased pension based on a need of regular aid and attendance or by reason of being permanently housebound, and other veterans who are catastrophically disabled as determined by VHA. Benefits of Priority 4 inclusion include elevation of the veterans’ existing enrollment priority status and the opportunity to enroll and receive VA healthcare services for those who may otherwise be ineligible due to a Priority Group enrollment restriction. And now also provide exempt status for medical services provided and prescription drugs. How Do I Get Enrolled? Speak with your treating physician at your local VAMC about the issue and request an evaluation to be rated catastrophically disabled. VA Form 10-0383, Catastrophically Disabled Veteran Evaluation, may be initiated at the request of the veteran, representative of the veteran, or the facility. Note: to be rated as catastrophically disabled you must meet certain criteria. Veterans are considered to be catastrophically disabled who have a permanent severely disabling injury, disorder, or disease that compromises the ability to carry out the activities of daily living to such a degree that the individual requires assistance to leave the home or requires constant supervision to avoid physical harm to self or others as defined by Title 38 Code of Federal Regulations (CFR) Section 17.36 (e). Catastrophically disabled (CD) means to have a permanent severely disabling injury, disorder, or disease that compromises the ability to carry out the activities of daily living (ADL) to such a degree that the individual requires personal or mechanical assistance to leave home or bed or requires constant supervision to avoid physical harm to self or others. If you have any questions about this article contact your local PVA service officer or speak with your treating VA physician or social worker at your local VA Medical Center. Timothy T. Hicks National Service Office, PVA, Jackson, Ms VARO Greater Dallas Veterans Council LSPVA has been proud members of the greater Dallas veterans council since the early 90's . The council is made up of many different veterans organizations such as Vietnam veterans, marine corp leauge, American of foreign wars and Disabled American Veterans to name a few, it's mission is to protect the service provided by the va to veterans. The monthly General Membership Meetings are attended by Delegates from the member Organizations, other interested parties and guests. All veterans are welcome at any meeting. The meetings are held to disseminate and collect relevant and current information. The meetings are attended by senior staff from the VA Medical Center (usually the Director) who update us on current events at the VAMC and respond to questions. Local events of interest to veterans are also brought to the attention of the Delegates.. We have seen many changes over the years but The last four years the Greater Dallas Veterans Council has been loosing veterans organizations, they went from being represented by 54 organizations to only 24 probably due to the aging population of many of the organization. We really need to push for all veterans organiza- tions to join together in the GDVC to continue to help the VA deliver quality care to it's veterans. We especially need to call into action the younger generation veterans it's their time to shine the older Veterans have really paved the way for the newer OEF, IEOF veterans to receive the quality of care that is now given at the VA and it's up to the younger generation to pave the way for those who will follow after them. To join please contact Martin visor at the Dallas VA or call LSPVA for more information. Page 19 SUMMER 2011 ISSUE Top 10 Tips To Consider When Shopping for Mobility Conversion Upgrades for 2010 By Warren Clarke, Automotive Content Editor Submitted by United Access These days, there is a wide variety of conversion options available for mobilitychallenged drivers and passengers who seek to upgrade their vehicles. If you're new to the world of mobility conversions, stepping into a dealership can be an overwhelming experience. However, by doing the proper research, you can acquire the knowledge necessary to shop with confidence. Below are 10 points to keep in mind when shopping for conversion upgrades and conversion vehicles. BraunAbility is the world's largest provider of wheelchairaccessible minivans. The company's president, Nick Gutwein, was kind enough to contribute to this article by sharing his insight. Know your options. Thankfully, you have many alternatives from which to choose when it comes to mobility upgrades. You could install a scooter lift on your vehicle that lifts your scooter or chair and puts it in the trunk. You could install seats that articulate and lift the driver into and out of the vehicle. And of course, you could also opt to convert your vehicle with a ramp for wheelchair access. Which upgrade is best for you? The answer will depend largely upon just how mobile you are. Tap your dealer's expertise. An informed dealer can help you make sense of the various choices available to you, and can guide you toward the upgrade that best suits your needs. "Maybe the most important thing is to have a local dealer who understands your disability," says Gutwein. "The dealer can help you decide whether to go for a scooter lift, articulating seat or a full van conversion." Choose an accredited dealer. Mobility dealers differ from regular car dealers in that they need to have 24-hour, 7-day-a-week service capability; if your conversion vehicle has a breakdown, your dealer is expected to be on call to help you address the problem. The dealer's mechanics are also expected to have training that meets certain standards. The National Mobility Equipment Dealers Association (NMEDA) is an organi- zation dedicated to advocating for the provision of safe, reliable modifications in the conversion market. NMEDA offers a Quality Assurance Program (QAP) that's the only nationally recognized accreditation program for the adaptive mobility industry. Dealers who participate in the QAP must meet high standards regarding the services that they provide. Notes Gutwein: "If it's not a QAP dealer, it's a crap shoot." Know the value of experience. The industry has a lot of people who do customized conversions. You want to avoid someone with a garage shop whose work in this segment is limited to three or four conversions a year; it's very important to choose a dealer who has a history and track record of performance. Look at the number of vans they've converted. How big is the company? Do they have customer satisfaction information? Is there data that shows that customers who've bought from them are happy with the product? Get references. Dealers or manufacturers should be able to provide you with recommendations of people who've purchased from them in the past. Get in touch with these references, and find out whether they're happy with the service they've received. Consider the warranty. If you're converting a new vehicle for wheelchair access, you'll want the conversion to offer the same warranty coverage that you get on the chassis: If there's 3-year/36,000-mile coverage on the chassis, for example, that's what you should get on the warranty. Though not all companies provide this, you'll get this level of coverage from a handful of top-tier converters. Get the right fit. If you're looking at potential conversion vehicles, one of the most important things to consider is the fit. Is the vehicle big enough, given your chair and your size, for you to easily enter and move around in? Also, is it big enough to accommodate the number of passengers that you typically carry? For some, a smaller SUV like the Honda Element will be large enough to do the trick, while others may have to opt for a minivan. Decide whether you want a rear-entry or side-entry modification. With conversion vehicles, you'll have the option of having your modification accommodate either rear or side entry. In a side-entry van, you can access both the mid-section and front of the vehicle while remaining in your chair. With rear-entry vans, you can typically only access the rear and mid-section of the vehicle while remaining seated. How narrow is your parking space? If you frequently face tight parking spaces, you might be better served by a rear-entry van. "Eighty-seven percent of the market is side entry, but it's still an important question," opines Gutwein. Know the pros and cons of purchasing the chassis separately versus buying the vehicle pre-made. If you're shopping for a conversion vehicle, you have the choice of either purchasing the vehicle pre-made, or buying a new chassis and then taking it to a conversion shop. There are time savings and convenience benefits associated with buying the vehicle pre-made. However, there may be cost savings associated with buying the chassis separately, if you're able to get a better deal from a non-mobilityfocused dealer. Prepare for a long day. In the mobility market, the dealer works as a consultant, carefully analyzing your needs with the aim of coming up with the product that represents the best solution. As a result, the selling process is typically a long one. Expect to spend at least a few hours in the dealership. You can shorten the process by arriving at the dealership with a clear picture of what your needs are, and what you'd like to accomplish with the conversion. Page 20 LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE Helping Patients to Walk Again: Nerve Regeneration Researchers at Mayo have completed animal studies that are the first steps in showing that nerves can regenerate in the spinal cord system. Anthony Windebank, M.D., a neurologist, molecular neuroscientist, and director of Mayo's Molecular Neuroscience Program is co-principal investigator of the research team. Michael Yaszemski, M.D., Ph.D., a spine surgeon and chemical engineer who directs the Tissue Engineering and Polymeric Biomaterials Laboratory, is the other coprincipal investigator. In October 2003, the research team received a $1.3 million National Institutes of Health grant that underscores the early success of their animal studies. "I am optimistic that we will be conducting human clinical trials within ten years," says Dr. Windebank. "This project is so exciting that I can't wait to get into the lab." Dr. Yaszemski agrees. "It is exciting to imagine that we might make a contribution to helping patients with SCI walk again," he says. The research team that Drs. Windebank and Yaszemski assembled for this project is remarkable for the breadth of its collaboration. Areas involved include: spinal cord system." Department of Neurology Department of Orthopedic Surgery Department of Neurologic Surgery Summary Department of Physiology and Biomedical Engineering Mayo Clinic researchers know that patients with spinal cord injuries (SCI) are concerned with two main questions: Will I walk again? Will I breathe by myself again? This article describes Mayo Clinic research efforts to, some day, allow physicians to be able to answer "Yes" to these questions and to provide new treatments for secondary problems that relate to SCI. And it's about the teamwork Mayo's hallmark that's necessary to bring researchers and physicians from a variety of disciplines together so advances made in seemingly unrelated labs can be accessed and modified to benefit each others' projects and, more importantly, to benefit patients with SCI. Department of Biochemistry and Molecular Biology Molecular Neuroscience Program Biomedical Engineering Program Tissue Engineering and Polymeric Biomaterials Laboratory Nuclear Magnetic Resonance Facility "We have developed the biotechnology that supports nerve regeneration," says Dr. Windebank. "And we've completed animal studies that are the first steps in showing that nerves can regrow in the Applying Expertise Beyond the Scientist's Field Dr. Windebank has devoted most of his research career to understanding the mechanisms of peripheral nerve disease. He has extensive knowledge in how peripheral system Schwann cells stimulate regeneration after injury and was well aware that spinal cord nerve fibers also have the capacity to regenerate, but that many efforts have been thwarted by a cellular process that inhibits regeneration and promotes scarring. Dr. Yaszemski is an expert in engineering a variety of polymers that are used as scaffolds to support new bone growth. He is also a firm believer in research that is initiated by patients who have a problem that needs to be solved. As a spine surgeon, he is frustrated that the best he can currently offer a person who comes in with an acute spinal injury, is stabilization of the bony spine that will allow the person to function with paralysis. In casual discussions the two physicians wondered how they could synthesize their combined clinical skills with their cellular biology and engineering expertise and launch an effort to help patients with SCI. Just two years later, they began seeing promising results in studies that evolved from their collaboration. The Project Orthopedic surgeon, Bradford Currier, M.D., and neurosurgeons Richard Marsh, M.D., and Robert Spinner, M.D., help plan experiments and keep the team focused on translating the science to humans. To simulate spinal cord injury a small section of a spine is surgically excised from an anesthetized rat. It is replaced with a trellis-like, biodegradable, polymer scaffold designed to anchor nerve cells, deliver drugs that promote nerve regeneration, and dissolve after a predetermined time to make room for more nerve growth. The goal is to produce a permissive environment that encourages the nerve cells to grow in a predetermined direction. "We're using polymer chemistry to find the ideal combination of plastics," says Dr. Yaszemski. "And we have designed and Spinal Cord Research constructed a variety of these mini scaffolds. Now we're ready to test them to find the architecture that produces maximal nerve growth." Another variable is sorting out which compounds do the best job of promoting nerve growth. "We know that Schwann cells promote nerve growth so we harvest them from the peripheral nervous system and load them into the polymer scaffold," explains Dr. Windebank. "We also introduce neurotrophins - protein growth factors that promote nerve growth by blocking natural cell death. And we are experimenting with compounds that inhibit scar formation." Three months after they injected Schwann cells into rat spinal cords, the research team observed as many as 5,000 nerve fibers growing throughout the length of the polymer scaffolds. There are hundreds of thousands of nerves in a normal spinal cord but Dr. Windebank estimates that it will be possible to restore function with ten percent of the normal number. Page 21 SUMMER 2011 ISSUE The Next Step Helping Patients to Breathe by Themselves While encouraged by their progress, Dr. Windebank cautions that they must find a way to guide nerve terminals to make contact with the correct nerve ending before function can be restored. Severe SCI leads to loss of neurological function below the level of injury. When the injury occurs high in the neck, it involves the upper cervical spinal cord and quadriplegia results. When that happens, the patient stops breathing and life can only be sustained by artificial ventilation. Such patients are far more concerned with being able to breathe by themselves than with being able to walk again. "Thus far we've successfully implanted a scaffold in animals, shown that it supports and directs growth, and functions as a delivery system for drugs," says Dr. Yaszemski. "That says nothing about the nerve fibers actually functioning." Slobodan Macura, Ph.D., a biochemist and an expert in nuclear magnetic resonance microscopy and spectroscopy, helps investigators judge their progress by producing images of the tiny polymer scaffold. Together with spectroscopy studies, he is able to provide information on the composition and concentration of metabolites in body fluids, cells, tissues, and organs. Other basic scientists at Mayo are conducting research that may help when the team is ready to begin the complex process of restoring function. How Do Motoneurons Interact with Muscle Fibers? A motoneuron is simply a nerve with a motor function. It extends out from the spinal cord to innervate skeletal muscle fibers. The drive to breathe resides in the medulla, which is located in the lower brain, while phrenic motoneurons that control the diaphragm are located in the lower cervical spinal cord. So when a patient sustains a severe injury to the upper cervical spinal cord, the connection between the two vital locations is disrupted, and the patient stops breathing. Our rhythmic pattern of inspiration means that phrenic motoneurons are active almost half the day, all day long, every day, making them some of the most active neurons in the body. "When SCI imposes sudden and total inactivity, phrenic motoneurons, diaphragm muscle fibers and the synapses between them display plasticity - each adapts to the change in activity," explains Dr. Sieck. "To devise effective therapies, therapies, such as more effective phrenic nerve pacing. And Dr. Sieck's expertise will be helpful when Drs. Windebank and Yaszemski are ready to focus on coaxing the new nerve terminals to find and connect with the right targets. Gary Sieck, Ph.D., Chair of the Department of Physiology and Biomedical Engineering, has earned continual funding from the National Institutes of Health for more than 18 years to conduct research that may contribute to freeing people with quadriplegia from being tethered to ventilators. The nerve, the muscle, and the junction that connects them, all exhibit degrees of plasticity they adapt to accommodate changing levels of activity. Dr. Sieck's Cell Imaging and Physiology Lab studies the plasticity of neuromotor control of the diaphragm muscle. Greater understanding of this process could contribute to pragmatic we must understand the basis for this neural plasticity." The Role of Neurotrophins in Motoneuron Plasticity While Drs. Windebank and Yaszemski exploit neurotrophins because they help generate nerve growth, Dr. Sieck is intrigued by their role in enhancing neuroplasticity. The system involves brain-derived neurotrophic factor (BDNF), and Neurotrophin 4 (NT4) neurotrophins that are mediated through a receptor called tyrosine kinase receptor B (TrkB). The receptor sets up an intracellular signaling cascade that causes changes in protein expression, which results in changes in the synapse. "We've shown that BDNF and NT4 are expressed in phrenic motoneurons and at the neuromuscular junction," says Dr. Sieck. "We know that the TrkB receptors are present on both the pre- and postsynaptic side of the neuromuscular junction both neurons and muscle fibers. We Spinal Cord Research This cross section of a removed polymer scaffold illustrates (red-brown) nerve fibers regenerating in a rat spinal cord. can enhance synaptic transmission by treating the diaphragm and the nerves with neurotrophins. Or we can hinder synaptic transmission by blocking the TrkB receptors or the intracellular signaling cascade induced by TrkB activation. Clearly neurotrophins play a role in neuroplasticity." Phrenic Nerve Pacing In SCI, the phrenic nerve remains intact so diaphragm muscle fibers can be stimulated to cause breathing. "Surprisingly, the diaphragm muscle doesn't atrophy with inactivity as limb muscles do," explains Dr. Sieck. "Since it's not a weight-bearing muscle, it's assumed that gravity exerts some trophic influence." That's why patients who have been on long-term mechanical ventilation can still generate enough force to breathe when phrenic nerves are electrically paced. Unfortunately, it does not take long for the diaphragm to become fatigued when the phrenic nerves are stimulated. Page 22 Dr. Sieck's research has contributed to understanding the physiology of why that happens knowledge that may lead to treatments that can lengthen the time a patient can tolerate pacing. Dr. Sieck's lab has shown that physiological and metabolic properties vary with different types of diaphragm motor units. Larger motor units are susceptible to fatigue and are recruited when the diaphragm needs greater force such as for sneezing and vomiting. "We have modeled how the nervous system controls motor unit recruitment during different ventilatory and non-ventilatory behaviors of the diaphragm," says Dr. Sieck. "The problem with electrical pacing is that fatigable types of motor units are recruited before the most fatigueresistant ones so pacing studies need to focus on finding ways to encourage the normal recruitment order." In animal models, the Sieck lab transects half of the spinal cord at C2. The rodents can still breathe because the phrenic nerve on the other side remains intact. Interestingly, the animals can still ambulate because locomotor patterns are generated in the spinal cord. So the only result of the SCI is paralysis of the diaphragm on the transected side. Then the lab imposes different patterns of stimulation to try to simulate the normal recruitment order of motor units. Collaboration with the Spinal Nerve Regeneration Project Mayo researchers devote much of their time to educating future leaders in science and educational duties frequently lead to further scientific collaboration. For example, Drs. Windebank, Sieck and Yaszemski are all members of the thesis committee of a graduate student who is working on the polymer scaffolds an activity that keeps them abreast of each other's projects. "Neuron target cell interactions have been best characterized in the motoneuron muscle area," says Dr. Sieck. "Potentially, motoneurons can pick any muscle fiber they want to innervate but they choose very specific types of muscle fibers that express the same contractile and metabolic pro- LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE teins. The same problem exists for nerve axons in the spinal cord as they regrow following SCI. As we increase our understanding of the mechanisms by which neurotrophins mediate neuron-target cell interaction, we can apply that knowledge to developing therapies that will help Drs. Windebank and Yaszemski to steer a newly regenerated nerve in the right direction." Targeting Antibodies to Repair the Myelin Sheath and to Promote Nerve Regeneration Moses Rodriguez, M.D., a basic scientist in the Department of Immunology, and a neurologist in the Department of Neurology, has developed antibodies that may play a critical role in repair of the myelin bodies that promote remyelination will also promote functional recovery." In addition to the myelination projects, Dr. Rodriguez's lab is now developing a whole new set of antibodies that are specifically targeted at nerve regeneration. "We have characterized a series of two monoclonal antibodies that are very effective in promoting neural outgrowth in tissue culture," says Dr. Rodriguez. "We are very excited about testing them in animal models." Next Steps for the Demyelinating Lab While the nerve regeneration project is in its early stages, the remyelination studies are likely to lead to clinical trials in the near future. "We have secured patents and worked with industry to purify the antibodies and produce them in high concentration," says Dr. Rodriguez. "We are currently conducting toxicity studies and could begin clinical trials within a year." As a neurologist, Dr. Rodriguez is most excited that he is focusing on research that could lead to noninvasive treatments for his patients. sheath - the fatty insulation that surrounds most nerves in the brain and spinal cord. He is optimistic that a greater understanding of the mechanisms that promote remyelination will one day result in non-invasive treatments that promote nerve repair. Dr. Rodriguez directs the Demyelinating Laboratory and has dedicated 20 years to researching ways to promote nervous system repair. Though his primary interest is multiple sclerosis, much of what he has learned is applicable to SCI. "Multiple sclerosis results from injury to the myelin sheath and we have developed a series of assays by which we can examine how various antibodies directly stimulate its repair," explains Dr. Rodriguez. "There's strong pathological evidence that demyelination is the cause of dysfunction in many SCI cases. And I believe that some anti- Spinal Cord Research "Seeing patients is a very strong motivator for my research," says Dr. Rodriguez. "It is very exciting to be able to take our laboratory successes and apply them to better care for our patients." The Future of Spinal Cord Research at Mayo Clinic Interest in spinal cord research is growing at Mayo Clinic. Mayo has expertise in all the right areas basic science, clinical studies, Physical Medicine and Rehabilitation, a highly specialized Gait and Motion Analysis Laboratory, and a model system of interdisciplinary collaboration to make a significant contribution to SCI research that can benefit patient care. Mayo provides important base support for SCI research projects by funding necessities not funded by external grants such as space, infrastructure, microscopes, centrifuges, electrophysiological and other critical equipment. Page 23 SUMMER 2011 ISSUE Susan E. Ficklin Abul Hayat Rory E. Bandy Robbie L. Green O. H. Hubbard Patrick D. Magee David W. Pierce Demetrio Lerma Kenneth C. Mumford Taylor W. Offill Eugene Wash Dan A. Narangi Elic T. Knight Clinton Rogers David P. Self Aubarey S. Vernon Warren D. Inman Daniel H. Shaffer Buena Ventura Sandoval Michael B. Silverstein Charles J. Garvey Edward A. Nierengarten Tina A. Schaaf David H. Bergeron Bobby W. Johnson Norman S. Ulmer Michael N. Marcum Joe A. Price Samel E. Seidemann Arthur W. Bauldwin Russell K. Burleson Arthur W. Schilling Cristin Hartman David E. Wall Nancy E. Alexander Jimmie L. Hart Sharon M. Hunter Lola W. Sanderson Charles Carter Richard K. Peterson Jenise Peeples Gavin A. Cox Tammy S. Beeler Ben E. Dobson Robert E. Ross Michael D. Coleman Richard D. Conner Randy E. Brown Alberta Holloway Hugh E. McGee Cheryl D. Smith Rickey L. Black Henry J. Halverson Alton L. Hallmark Gary R. Ogburn Clifton L. Howard Karl L. Cromley Cara L. Combs Richard G. Naze Claudia J. Offill Ignacio Pabon Paul P. Pluimer Jose E. Molinary Ken W. Frosch Phillip N. Smith Michael R. Comer Paul W. Crawford Thomas R. Croxell James E. Hodges G. Neil Adams Jack D. Franklin Jennifer Y. Lyons Robert W. Pustejovsky Joe Traylor Joe M. Royal Lorraine P. Swann Richard T. Thomas Alton Timm Jerry Hinkle Ronald L. Cyrus Bertha E. Johnson Albert V. Patlan Thomas J. Cummings David P. Goodwin Dennis W. Seagroves Leonard W. Brown James T. Murphy Tommy L. Wise Commodore P. Keyes Dean I. Menzies Robert L. Murray Ross A. Temple Russell J. Amaya Brian F. Duffy Terry L. Keller Jay D. Neumann Buddy C. Rogers Jessica E. Swanson Charles L. Biggs Jackie L. Childress Elbert (Don) D. Coxsey Hollie L. Dragoo Stanley L. Hopson Dorothy M. Marshall Ron L. Sykes Jack C. Barber Frances E. Hill Bruce A. Saulsberry Jerry G. Stevens Alfred D. Coe Tommie R. Daniels Billy C. Moon Dorothy F. Walker Ronnie U. Powell-Wade Carroll R. Fuller Darrell W. Madison Angus M. McDonell James B. Ralston Arnold R. Harris John Potter Tony R. Taylor Charles (Tom) Tracy Jeffery K. McGee Paul Parker Martha A. Phillips Steve E. Ehlert James A. Lewis Melvin L. Mosher Paul E. McDougald Tammy V. McIntyre Robert E. Wallace Paul E. Williams Chiletha L. Harmin Paul R. Ward Joanna Luster Kerry R. Morris Lloyd R. Burris Johnny Avery Charles J. Behrends Mamie L. Carter Marvin O. Crawford Michael R. Tully Phillip S. Ross Tyrone D. Foreman Richard J. Holmes Sgt. Gail I. Steen Debbie A. Aulenbacher Claudia Beltram Charles W. Cooper Richard E. Grozier Cruz Martinez John A. Roller Johnny Boyer Charles W. Brannon Timonthy A. Crosby Page 24 LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE SUMMER 2011 ISSUE Page 25 Page 26 LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE SUMMER 2011 ISSUE Page 27 26 Word Find & Self Directed Activities Chapel Service 10:00 Family Visits Puzzle Books & Self Directed Activities Chapel Service 10:00 Family Visits Chapel Service 10:00 Family Visits Soldiers’ Angles 2-4pm Cross Word & Self Directed Activities 12 19 Chapel Service 10:00 Family Visits Trivia & Self Directed Activities 27 20 13 6 TR Staff Mtg 1-2pm Volunteer Snacks & Visits noon-2pm, Outing 3pm and/or Evening Games TR Staff Mtg 1-2pm Volunteer Snacks & Visits noon-2pm, Outing 3pm and/or Evening Games TR Staff Mtg 1-2pm Volunteer Snacks & Visits noon-2pm, Outing 3pm and/or Evening Games TR Staff Mtg 1-2pm Volunteer Snacks & Visits noon-2pm, Outing 3pm and/or Evening Games June National Month of: Perennial Gardening Professional Wellness Rebuild Your Life June National Month of: National Rose National Safety Steakhouse 5 Mon Sun VA Movie Program: Channel 17 (movies rotated weekly). Movie #1: 8:00 am, 3:30 pm and 11:00 pm Movie #2: 10:30 am and 6:00 pm Movie #3: 1:00 pm and 8:30 pm Veterans’ Voices Magazine –write poems and articles Music Lessons: Mon 10:15-11:15 by appointment. Free TX Talking Books Program: Ph: 1-800-252-9605 28 21 14 7 SCI PVA BBQ at noon in the SCI Dining Room Wii Games NVWG Practices: Air Rifles 10-11am and 1-3pm (or 1:1s) Crafts 9am-noon Consults or 1:1s Family Conferences 11 am and/or 1pm Leisure Education/ Community Resources Consults and 1:1s Family Conferences 11 am and/or 1pm Gardening Class Noon in the Atrium Consults or 1:1s Family Conferences 11 am and/or 1pm Leisure Education/ Community Resources www.riseadventures.org www.turningpointnation.org Programs for individuals with physical disabilities Tue 29 22 15 8 Pet Therapy 2 pm Treatment Team 1-3 pm Peer Partner Mtg 3pm Special Forces & ROTC Bingo & Dinner 5-9pm Out Patient Consults Treatment Team 1-3 pm FIMS Training 8-noon IT –Hollodeck Books on Tape Program Treatment Team 1-3 pm SCI Meeting 3pm Crafts 9am-noon Pet Therapy 2 pm Out Patient Consults Treatment Team 1-3 pm Crafts 9am-noon Books on Tape Program 1 Treatment Team 1pm Pet Therapy 2 pm Marine Corps League 6:30 Longhorn Detachment ALA 81 Bingo at Community Center 7pm Wed Thu 30 Crafts 9am-noon Family Conferences 11 am and/or 1pm Pre-4th of July BBQ SCI Gym 11am-1pm Games 2-3pm Family Conferences 11 am and/or 1pm NVWG Practices: Air Rifles & Table Tennis 10-noon and 1-3pm (or 1:1s) 23 NVWG Practice in Fort Worth or Games on Unit Patient Assessments Family Conferences 11 am and/or 1pm 1:1 Visits Family Conferences 11 am and/or 1pm Games on Unit Gardening Activity in Greenhouse by apt Family Conferences 11 am and/or 1pm NVWG Practices: Air Rifles & Table Tennis 10-noon and 1-3pm 3pm NVWG PVA Mtg 16 9 2 Ask CTRS for a listing of community resources Recreation Therapy -SCI June 2011 9am-11am Racer Training Spruce High School or on unit activities Outing or 1:1s 9am-11am Racer Training Spruce High School or on unit activities Outing or 1:1s Library Visits or on unit games Practice Billiards in SCI dining room pm CTRS off CTRS off Practice Billiards in SCI dining room pm Peer Partner Discussion noon Community Resources: www.pva.org Click under Sports & Recreation 24 17 10 3 Fri 25 18 11 4 VA Move Program: Nutrition and Weight Management Classes Please call CTRS FMI at 214-857-1794 ) Self Direct Activities Work on Crafts & Family Visits Request a Pass to Ride the Dart with Family Pet Therapy 10:00 am Outing: PVA Fishing at Lake Ray Hubbard Hobby Crafts 9-noon Turning Point Extravagenza Outing Family Visits & Self Directed Activities Sat VA Chapel Schedule: Fridays: Catholic Mass 10:30 am Sundays: Spiration: 10:00 am, Worship: 1015 am Services are televised on channel 18. Visit the VA Library: call x71251 for same day apt. VA Hobby Craft Hours of Operation, Room 115 x76544: Tues and Thur Crafts Workshop 9:30 am-11:30 am Page 29 SUMMER 2011 ISSUE ACROSS 1. Rest here please, abbr. 4. The compass point that is one point south of southeast 8. A French abbot 12. Own (Scottish) 13. A sword similar to a foil but with a heavier blade 14. River in South Africa 15. A way to decree 17. __ Spumante (Italian wine) 18. A group of similar things ordered one after another 19. Network of nerves 21. Alligator 23. Dish 26. Part with 29. Fulmination 31. Turn tail 32. African cape 33. The compass point that is one point east (clockwise) of due north 34. A way to vanish 36. Crinkle 37. In a way, fed 38. Stake 40. Turkish leader title 42. Spoke 46. Staff of life 48. Coil 50. A way to squeeze 51. Clupeid 52. Queen of Scotts 53. Surrender 54. Hosiery 55. Born of DOWN 1. Letters of the alphabet 2. Rich person 3. Person 4. More dried-up 5. Shows 6. Article of furniture 7. Visionary 8. A visible personification of an abstract quality 9. An imaginary line or standard by which things are measured or compared 10. Eutherian11. __ Lilly, drug company 16. Food grain 20. This (Spanish) 22. About 24. Swedish rock group 25. A way to view 26. In a way, left 27. __ Shankar, Indian musician 28. Exhaled 30. Tumours 32. Sacred writing 35. A way to diverge36. A space reserved for sitting 39. Business 41. Cincture 43. Sir in Asia 44. Bulky grayish-brown eagle 45. Sandy piece of seashore 46. Beginning military rank 47. Wrath 49. The 17th letter of the Greek alphabet Page 30 LONE STAR PARALYZED VETERANS OF AMERICAN MAGAZINE Chicken Fajitas with Spice Rub Ingredients 1 ripe avocado, cut into chunks and tossed in 1 teaspoon of lime juice Salsa Sour cream Fresh ciliantro, chopped 4 teaspoons ground cumin 4 teaspoons chili powder 1 teaspoon dried oregano 1/2 teaspoon salt 2 boneless, skinless chicken breasts, cut in half 1 small red or yellow pepper, sliced 1 onion, sliced 2 teaspoons olive oil 4 8-inch flour tortillas Instructions Place your toppings (avocado, salsa, sour cream and cilantro leaves) in separate bowls and set them on your table. Next, make the rub. Combine the cumin, chili powder, oregano, and salt in a shallow bowl. Lightly rub the spices into the chicken with your fingertips until the meat is coated on all sides. Heat your grill to medium. Grill the chicken on both sides, just until cooked through, about 8 minutes. Remove from the heat, slice thinly, and set it on a platter. While the chicken is cooking, toss the pepper and onion in the olive oil. Set them on the grill, using a vegetable screen, if desired, and cook for 5 to 8 minutes, turning once. Remove from the heat and set on the platter with the chicken. Place the tortillas on the grill for 5 to 7 seconds on each side, turning with tongs, until hot. Set out the grilled chicken, pepper, and onion with the toppings and tortillas. Let guests assemble and roll their own fajitas. Serves 4 to 6. Page 31 SUMMER 2011 ISSUE Lemon Pudding Cake Ingredients CAKE 1/4 cup butter, melted 2/3 cup sugar 1 teaspoon lemon zest (optional) 1/4 cup lemon juice 3 eggs, separated 1/4 cup flour 1 cup milk STRAWBERRY SAUCE 1 1/2 cups fresh strawberries, sliced 1 tablespoon strawberry jam 1 tablespoon sugar Whip up a zesty, double-layer dessert. This suncolored cake emerges from the oven with a sweet surprise: a layer of lem-ony pudding at the bottom. Instructions First, put a kettle of water on to boil and heat the oven to 350º F. In a large bowl, whisk together the butter, sugar, lemon zest if you're using it, lemon juice, egg yolks, and the flour. Stir in the milk. In a separate bowl, beat the egg whites with an electric mixer on medium-high speed until soft peaks form, about 3 minutes. Fold the egg whites into the flour mixture. Pour the batter into an 8-inch baking pan coated with nonstick cooking spray, then set the pan inside a 9- by 13-inch pan. Fill the larger pan halfway with boiling water, then place the nesting pans in the oven (a parent's job). Bake until the top is golden, about 30 minutes. Remove the smaller pan from the water and let it cool for 15 minutes on a wire rack. Cut the cake into 6 servings and top with strawberry sauce (mash 1 cup of the strawberries, the jam, and the sugar in a large bowl, then stir in the remaining berries). 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