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Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Objectives
Managing Community Resources
for TBI Survivors
• Share resources to help brain injury survivors from the onset of coma to returning to their community
Kim Gully, MS, CCC, CCM, CBIST
Rehab Without Walls, Southern California
Executive Director
[email protected]
800.741.1164 ext. 222
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quality of life and inclusion
social support
transportation/driving
life skills
fitness/ leisure
education and continued learning
financial resources
How to Use this Info
Core Concept
This material is designed to give an overview of the selected categories with ideas for how to identify and locate resources appropriate for the survivor according to their individual needs. Including an individual into a community, family, work site, school, etc. is the overarching goal of the rehabilitation process.
The information includes useful resources that provide global information on a broad range of topics related to traumatic brain injury as well as useful links to related information.
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Our society has a tendency to sort people by likeness and exclude those who are different.
This is where the concept of “inclusion” is critical to embrace.
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Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Inclusion
Helping Survivors & Families
• Navigating through the complex course of traumatic brain injury is a daunting process
• Families and survivors are faced with many overwhelming situations
• Identifying resources is a service we as professions provide
• Share the info, having a resource for later is just as important as immediate needs
“Inclusion brings people to the community regardless of their differences. It does not try to change or alter differences against the person’s will or capacity. It does not try to create forced similarity. Inclusion respects differences, honors diversity, and invites full community participation. It is a term that implies a welcome to all.”
From The Essential Brain Injury Guide, Edition 4.0, Brain Injury Association of America, 2007
Review of the Literature
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Kim’s Top 10 Websites (That you May or May Not Know About)
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Brain Injury Portal – www.northeastcenter.com
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Brain Injury Resource Center ‐ www.headinjury.com
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Brain Trauma Foundation ‐ www.braintrauma.org
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Defense & Veterans Brain Injury Center ‐ www.dvbic.org
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Disability Resources ‐ www.disabilityresources.org
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Learn Net – www.projectlearnet.org
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Preventing, Treating & Living with TBI ‐ www.brainline.org
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TBI Survival Guide ‐ www.tbiguide.com
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Understanding Brain Injury – A Guide for the Family http://mayoresearch.mayo.edu/mayo/research/tbims/upload/ubi_families.pdf
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While you are Waiting ‐ http://waiting.com/comawaiting.html
http://www.thebarrow.org/Education_And_Resources/Barrow_Quarterly/205271
Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Living with Brain Injury
www.biaa.org
www.passitoncenter.org
• 4 Centers in Southern Ca
– ATEC (Assistive Technology Exchange Center) Santa Ana • www.atec‐oc.org
• Serves Orange, Riverside, San Bernardino, LA and San Diego Counties
– Dayle McIntosh Center – Garden Grove
• www.daylemc.org
– Independent Living Resource Center, Inc – Santa Barbara
• www.ilrc‐trico.org
– Free Loan of Durable Medical Equipment – Pasadena • http://cas1.org
• San Gabriel Valley ‐ to include Glendale and Burbank
Social Support
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Alternative Medicines
Assistive Technology
Behaviors
Caregiver/Family Stress
Depression
Driving
Employment
Falls
Fatigue
Financial Issues
Children and Brain Injury
College/Return to School
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Headaches
Legal Issues
Medications
Pain
Research/Clinical Trials
Seizures
Severe Brain Injury
Sexuality
Sleep
Spasticity
Speech/Communication
Substance Abuse
Taste and Smell
Vision
Where to locate Support Post injury isolation from family, friends, work associates and social networks is a reality for many brain injury survivors. Finding a support group to assist the survivor and the family cope with the changes in their lives through local hospitals, rehabilitation centers and by seeking out professional input from a therapist specializing in traumatic brain injury is highly recommended. 11
• Brain Injury Association of America –
www.biausa.org
• The Social Support Network for TBI –
www.wearetbi.org
Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Career Options
• Returning to the work force for many who are recovering from a brain injury is challenging
• Resources to help you discover career opportunities of interest and how to move towards those goals are included
www.onetonline.org
Content Model ‐ Anatomy of an occupation
Taxonomy ‐ A spectrum of occupations
Data Collection ‐ Real‐world information
Career Exploration ‐ Tools Professional assessment instruments
• My Next Move ‐ Get started on a new career –
Online Interest Profiler – can be used to determine interest levels in general
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Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
www.onetonline.org/skills
Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
www.mynextmove.org
Transportation
• Public Transportation –
www.publictransportation.org
• American Automobile Association – ‐ Road Wise Review DVD ‐ www.aaa.com
• Dept. of Motor Vehicles – www.dmv.com –
disabled drivers, handicap placards/plates and their newest feature – facebook page
• DMV YouTube ‐
www.youtube.com/californiadmv
Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Online tests give you immediate feedback http://www.dmv.ca.gov/pubs/interactive/tdrive/exam.htm
Answer Keys available for each sample test
Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Driver‐ZED
Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Sports/Leisure/Productivity
• Pursuing leisure activities following a brain injury is possible.
• Many organizations exist that offer opportunities for individuals to participate in a wide variety of activities
National Center on Physical Activity & Disability www.ncpad.org – Gene Rodgers Award Winning Video Are You Getting Enough Recreation?
http://youtu.be/kabyfE8NrFM
Gene’s website ‐ www.genosplace.org
If you’re not living on the edge, you’re taking up too much space.
Gene R. Rodgers
Disabled Sports USA
www.dsusa.org
Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Educational/Academic
Education & Continued Learning •
Collaborate with local universities
colleges and community colleges to see if they have structured programs for disabled students, specifically acquired brain injury. •
In addition, there are often academically based clinics that provide physical, occupational, speech therapy, social work, neuropsychology programs services delivered by students at a reduced fee. •
50 States College Locator ‐
http://www.50states.com/college
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American Association of Community Colleges ‐ www.aacc.nche.edu
Learning New Things
• The internet is a useful resource for continued learning. Some websites that offer training on a wide variety of topics include:
• E How – www.ehow.com
• EduSlide –
www.eduslide.net
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Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
100’S OF TOPICS
100’s More Topics
www.ehow.com
www.eduslide.net
Feed Your Brain
Research studies continue to show how that stimulating your brain is important to retain or improve your current abilities
One example of websites to feed your brain ‐ www.braingle.com
Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Try these…
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Technology resources
www.clueword.com
www.discoveryschool.com
www.english‐forum.com
www.free‐online‐jigsaw‐
puzzles.com
www.fun‐with‐words.com
www.thinks.com
www.vocabulary.com
www.yourdictionary.com
Color Match
Lily’s Cards
Memory Matches
Alphabet Match Free
Dogs HD Match
A Memory Game
Sound Match
Stack the States
Memory Accelerator
• Smartphones and tablets are part of our mainstream everyday life
• The following slides have a wide variety of resources for use to manage your day, improve your memory, etc. (FREE unless indicated)
Miniville
Balloonapallooza
Slilly Shape Match
Memory Boost
Memory Apps
Number Match
Free
Balloons Tap & learn
Find The Ball
Cut The Buttons HD
Float Free
Talking Memory Kids
Falldown
10 Pin Lite HD
Paper Toss
Retro Pinball
Memory++
Frisbee
Forever
Can Knock
Down
Field Goal
Shave Me
Zap A Minion
Yummy Burger Lite
Santa Smash
Attention, Scanning, Eye/Hand
Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Aphasia
Choice Creator
iSpeech TTS Large Type
Locabulary
Picture Board
SpeakItToMe
Answers
Words HD Light
iComm
My Talk Lite
VoCalLite
Talk4Me
Phrase Board
CookIt
Meal Planning
Later
Memory & Info
Management
UpNext 3D Cities
Find My Car
Catch The Bus $.99
HopStop
CheckbookHD
Free
RXmindMe
RunKeeper
PackTheBag
Picture Scheduler $2.99
MathBoard
Addition
Basic Math
Daily Leg Workout
Heart Pal Free
Bump
Evernote
Activities of Daily Living
Food Reminder
DriversEd LE California Drivers California DMV DMV Prep Test Test
Prep
Lite
iBioMed
Health Maintenance
CalculatorHD
SeeTouchLearn
Communication Epi
Money
Financial
Management
DishPal
DriversEdCA
Extreme Road Trip
Activities of Daily Living Cut the Rope
Magic Puzzles
ABA Flashcards –
Emotions
ABA Problem Solving
Dave’s Tiles
DotsDeluxeFree
NLC Autism
Four In a Row
Rainbow Blocks Lite
PicknSticks
Skill Game $2.99
Peppers Lite The Bubble Shooter
Game
WordSearchHD
iCruciPuzzle
Miscellaneous ‐ Cognitive
Managing Community Resources for TBI Survivors
Kimberly S. Gully, MS, CCC, CCM, CBIST
Financial Resources
National Underinsured Resources
• Help Paying Utilities ‐
www.helppayingutility
bills.com
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• Patient Advocate Foundation ‐
http://patientadvocate.
org/help4u.php
California Telephone Access Program –
www.ddtp.org or www.californiaphones.org
• Medications ‐
www.needymeds.org
FREE phones for individuals with hearing, visual, mobility or cognitive issues
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Closing Thoughts
More Closing Thoughts
• Being able to provide resources to the family or support system that will benefit the patient along the continuum is a valuable asset. Healthcare providers play an important role in the resource identification and collaboration with patients and their families. • Families often are not aware of or able to process what is ahead of them, being armed with resources and options that will assist them is an invaluable service.
Often times the therapist, social worker, doctor or nurse is the primary contact the person or family looks to for advise. Disclaimer: Use of resources from the internet should be limited to trusted sites from reputable sources. Identification of sites on this presentation does not imply endorsement of the site, rather offers an option the for category listed. 59