What is a Stroke? Simon Kirwilliam Our Vision: To lead out-of-hospital community healthcare What is a Stroke? A stroke happens when the blood supply to the brain is suddenly interrupted 85% 15% What is a TIA? A transient ischaemic attack (TIA) is sometimes referred to as a ‘mini-stroke’ It is not a full stroke The symptoms are similar to a stroke, however, they are more mild and last only 24 hours because the interruption of the blood supply is temporary A TIA is a SIGNIFICANT warning sign and ALSO require seeking emergency treatment at A&E Within 3 months of a TIA, up to 15% of people will have a full stroke if left untreated. Within 2 years, 25% of all people who have a TIA will have a stroke if left untreated. Risk Factors Inherent risk factors • Age – greater likelihood of a stroke over the age of 65 year • Family history – if a close relative has had a stroke • Ethnicity – people of South Asian, African, and Caribbean background due to rates of diabetes However - stroke is largely preventable, simply by reducing controllable risk factors Manageable risk factors • Smoking • Irregular heart beats, e.g. atrial fibrillation • High blood pressure • Other heart conditions, e.g. mitral valve disease • Obesity • High cholesterol levels • Excessive alcohol intake • Use of certain illicit drugs (e.g. cocaine) PLEASE SEE YOUR GP IF YOU ARE EXPERIENCING IRREGULAR HEART BEATS Stroke prevention The BIG four 1. Eat a healthy diet 2. Regular exercise – 150 minutes per week 3. Do not smoke 4. Avoid excessive alcohol consumption Other good practices 1. Monitor your blood pressure 2. Take the medications prescribed by your doctors 3. See your GP if you are having irregular heart beats or palpitations 4. Check blood sugars with GP 5. Seek help to manage diabetes http://www.nhs.uk/LiveWell/ Stroke Symptoms Immediate Symptoms ACT • FACE - drooping of the face, mouth, or around the eye. • ARMS – unable to lift arms or keep them in the air • SPEECH – speech may become slurred, they may not make sense when talking • COGNITION – people can become confused and disorientated to where they are Call 999 NOW • PAIN – people may experience severe headaches Ongoing Problems Physical Cognitive Weakness in arms/legs Fatigue Mobility problems Memory problems Attention problems Problem solving difficulties Speech & Language Emotional/Psychological Problems speaking Problems understanding others Problems with reading Behaviour/personality change Fluctuating mood Depression CLCH stroke services Nicola Lorena Our Vision: To lead out-of-hospital community healthcare 7 8 Prevention services • No one specific service focused on stroke prevention • Risk factors are minimised by a range of services and programmes 9 Stopping smoking CLCH smoking cessation services • A personal quit plan tailored to individual needs • Prescription for stop smoking medications to help beat cravings • Motivational tips on how to stay on track • Choice of the type of service: one to one, group, or telephone support • In Hammersmith & Fulham, Kensington and Chelsea, Westminster; https://www.kick-it.org.uk/ • In Barnet; 0845 111 4000 10 Eat a healthy diet Group education and advice • Cook and Taste – 6 week programme on planning and preparing healthy meals - 0207 313 3024, cook&[email protected] • Open Age – “Food and friends programmes Individual tailored advice • Nutrition Support Service. Need to be referred by GP 11 Regular exercise Exercise on prescription • The scheme is for adults who have some of the risk factors associated with heart disease. This includes being overweight, being a smoker, having high cholesterol, high blood pressure or a very stressful lifestyle. • 2 sessions with a trainer,12 weeks of reduced gym membership • Referral via GP or Practice Nurse 12 Health checks • Regular visits to GP/Practice Nurse • Monitor Blood pressure • Monitor Blood sugar levels 13 Stroke Rehabilitation Services 14 Stroke care pathway HYPER-ACUTE Emergency medical attention Thrombolysis (drugs that dissolve blood clots) ACUTE REHABILITATION Continued medical management and start of rehabilitation in the hospital setting Specialist rehabilitation in a hospital setting ASU Albany UCLH Edgware Community Hospital HASUs UCLH Charing Cross Hospital St. Mary’s Hospital St. Thomas’ Chelsea & Westminster Hospital Northwick Park Northwick Park Rehabilitation COMMUNITY REHABILITATION Medically stable Intensive rehabilitation from a team of different health professionals Early Support Discharge Team (ESD) Athlone House Community Neurorehabilitation Stroke review (6 & 12 months) HASU – Hyper acute stroke unit ASU – Acute stroke unit CLCH rehabilitation teams Speech and Language Therapy Rehabilitation Assistants Physiotherapy Stroke Support Workers CLCH Stroke Rehab Teams Clinical Psychology Occupational Therapy Dietetics Goal focused rehabilitation • Patient focussed and personalised approach to healthcare • The patient chooses the focus of rehabilitation – whatever is meaningful to them e.g. increasing mobility, managing daily domestic tasks, getting back to work…..playing tennis! • Requires close co-ordination of care across multidisciplinary health professionals in the rehabilitation teams • NICE recommended and gold standard approach for stroke rehabilitation 17 Life after a stroke services 18 Ongoing Support: one to one • Stroke reviews – 6 and 12 months • Stroke support worker – support for up to 12 months • Mood – brief therapy • Peer mentoring 19 Ongoing support: groups • Communication groups – Dysphasia group • Exercise – Stroke exercise groups • Stroke groups • Different strokes group 20 Stroke Support Service Our Vision: To lead out-of-hospital community healthcare What is Stroke Support? Helps you and your family prepare for the changes that happen because of a stroke, with information about stroke, practical advice and emotional support. 22 When does stroke support start? Hyper Acute Stroke Units Stroke When Stroke happen HASUs Charing Cross Hospital Stroke Units SUs CXH and CXW At home Rehab At Rehab Centre Life after Stroke Community Stroke Support (stroke survivor, family and carers) Stroke Support Advocacy Support for you, family & carers Depends on your needs Carers Support STROKE SUPPORT Listening Knowledge & Advice About stroke Referring to other services Longer term Support Stroke Support Involves • • • • • • • Support when returning home Benefits and welfare advice Carer support Social inclusion and community access Peer support and groups Health promotion Stroke reviews Brief Therapy for Stroke Survivors Primary Care Psychological Health Lucy Mabbott – Mark McDonagh Our Vision: To lead out-of-hospital community healthcare Joint social and health care project April 2012 Royal Borough of Kensington & Chelsea (RBKC) Central London Community Healthcare NHS Trust (CLCH) 27 Why create this service? Patients report stress at diagnosis discharge from hospital discharge from support at home Transition to ‘life as normal’ Psychological element of physical health – mind/body health 28 Original service • Brief individual therapy – self referrals! • Over 18 survivors of stroke with symptoms of mild to moderate anxiety or depression • Very positive response from professionals • Very low numbers of patients coming for therapy – 10 in the first 6 months! 29 “Talking about it won’t take away my stroke!” Life After Stroke group • To improve patient experience by providing an alternative intervention to 1:1 counselling. • To prevent harm – education; reducing isolation • Smart, effective care – maximise use of resources 30 Activity of service Target (yearly) April – June 2013 July-Sept 2013 Oct-Dec 2013 Jan-March 2014 Referrals 25 5 8 1 2 First Appts 25 4 8 1 2 Follow ups 320 28 counselling 20 group sessions 17 counselling 20 group sessions 10 10 People in groups 10 3 5 1 31 Plans for the future • Self help groups • Early Supported Discharge team - group in their service? • New group in tandem with Hammersmith & Fulham service • Using non-NHS premises 32 Contact us Lucy Mabbott – Lead Therapist Tel: 020 7349 2400 Mark McDonagh – Service Manager Tel: 020 8962 4748 M: 07766 205431 33
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