FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health 2. Maternal and child health In Chapter One we outlined the importance of the health, education and welfare sectors in enhancing child development and thus in addressing a key social determinant of health across the life course. In the two chapters following this one, regarding the relationships between health and education and health and welfare, we discuss how primary health care services can contribute to the success of these other sectors, and how by working with them they can most effectively achieve their own goals of improving the health of the community. However, the logical place to start is with the role of primary health care services in enhancing the health of mothers and children. Maternal and child health services are ‘core business’ for the primary health care sector and the accessibility, appropriateness and effectiveness of these services is central to the concept of family-centred primary health care. This focus is directly on the health of children and on mothers because of the importance of pregnancy outcomes for children. As noted in Chapter One a familycentred approach to maternal and child health requires primary health care services to focus on the child’s whole family, as the health of all those caring for children is important to the health of children. This chapter draws on the extensive literature on maternal and child health but includes lessons that can be extrapolated to the provision of health services to all families.32 We will briefly review the evidence on maternal and child health amongst Aboriginal and Torres Strait Islander communities in Australia, followed by a overview of the links between child and maternal health and health later in life. We will then outline a number of key intervention points for primary health care services, together with the challenges that taking a child development focus and a family-centred clinical approach raise for this service menu. Last we will summarise a number of service models which already embody a family-centred primary health care approach. TP PT 32 This chapter draws upon the summary of the evidence contained in Eades 2004 op cit ), by team member Dr Sandra Eades, formerly of the Menzies School of Health Research in Darwin. Her paper was part of a series commissioned by OATSIH; its summary of the literature is a key reference point for those wishing to get an overview of the literature in this field. TP PT MATERNAL AND CHILD HEALTH Page 19 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health A summary of the evidence The Health of Indigenous Women and Children It is well known that Aboriginal and Torres Strait Islander women have considerably poorer general health than other Australian women. This remains true despite recent gains in Aboriginal women’s health in the Northern Territory, which saw an increase in Aboriginal women’s life expectancy of almost three years (from 65.0 to 67.9 years) between 1996-2000 and 2001-2003.33 TP PT Not surprisingly, Indigenous women also have poorer maternal health than other Australian women: higher rates of chronic disease, poorer nutrition, and higher levels of genital and urinary tract infections can all complicate pregnancies. Furthermore, they have higher smoking rates and, while it appears that proportionately fewer Aboriginal women than non-Aboriginal women drink alcohol, the hazardous use of alcohol amongst Aboriginal women of child-bearing age is of great concern.34 TP PT They are more likely to become pregnant during the teenage years (22.6% of births, compared to 4.2% for non-Indigenous mothers35) and are less likely to access early antenatal care – in the Northern Territory, for example, the proportion of Indigenous women who received antenatal care in the first trimester of their pregnancy was around half of that for non-Indigenous women.36 TP TP PT PT Consistent with this picture, Indigenous babies are over twice as likely as nonIndigenous babies to be born of low birth weight (12.9% compared with 6.1%37) with little improvement nationally since 1991.38 TP TP PT PT The immediate effects of low birth weight are seen in poorer health in childhood reflected in a higher risk of dying in the first years of life and a greater susceptibility to illness and hospitalization.39 Beyond these physical manifestations, low birth weight is associated with neurological complications and psycho-social and cognitive problems TP PT 33 DHCS (NT Department of Health and Community Services) (2006) NT Health Gains Fact Sheet http://www.nt.gov.au/health/docs/hgains_factsheet_mortality2006.pdf) TP PT U U 34 ABS and AIHW (Australian Bureau of Statistics and Australian Institute of Health and Welfare) (2005) The Health and Welfare of Australia's Aboriginal and Torres Strait Islander Peoples. ABS Catalogue No. 4704.0, AIHW Catalogue No. IHW14. Commonwealth of Australia. TP PT 35 TP PT 36 TP PT 37 TP PT ibid. Eades 2004 op cit. AIHW 2005 op cit. 38 Plunkett A, Lancaster P & Huang J (1996) Indigenous Mothers and Their Babies, Australia 1991–1993, cat. no. PER 1 (Perinatal Statistics Series No. 4), AIHW National Perinatal Statistics Unit, Sydney; ABS and AIHW 2005 op cit. TP PT TP 39 PT AIHW 2005 op cit p37. MATERNAL AND CHILD HEALTH Page 20 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health – for example, even in teenage years, children of extremely low birth weight are less likely to perform well at school.40 TP PT In their early years, Aboriginal and Torres Strait Islander children continue to have poorer health than the Australian average. While infant mortality improved nationally in the decade from 1993 (decreasing by around 3.3% per year) the mortality rate for those in their first year of life remains almost three times that of other Australian infants (13.0 per 1,000 live births compared to 4.5 per 1,000 live births).41 Note again that this is despite improvements in infant death rates in the Northern Territory, which have fallen by over one third in the period 1996-2000 to 2001-2003.42 TP P PT P A higher burden of hospitalisations in general, and illness from infections, in particular respiratory infections, typifies the health profile of many Indigenous children throughout their childhoods.43 TP PT Intervention points for maternal and child health Although best practice primary health care already encompasses many of the following interventions, making explicit the links between maternal and child health and the development of a long and healthy life is an important task. This section seeks to identify the key interventions in the primary health care sector that are critical to contributing to health throughout the life course. For the sake of clarity we divide these into two groups: those interventions focused primarily on the health of the mother (and hence directly or indirectly the baby) before and during pregnancy, and those focused on the child in its infancy. Interventions primarily focused on women before and during pregnancy Tobacco Smoking during pregnancy is generally agreed to be the single most important area for action to improve low birth weight and infant mortality.44 It is associated with preterm birth, birth anomalies and perinatal deaths45, obstetric complications as well as increased risk of sudden infant death syndrome, asthma, lower respiratory tract TP TP PT PT 40 Saigal S (2000) ‘School difficulties at adolescence in a regional cohort of children who were extremely low birth weight’ Paediatrics 105:569–74. TP PT 41 TP PT 42 TP PT 43 TP PT AIHW 2005 op cit p13. DHCS 2006 op cit. ibid. 44 AIHW 2005 op cit p 41; Eagar K, Brewer C, Collins J, et al (2005) Strategies for Gain — the evidence on strategies to improve the health and wellbeing of Victorian children. Centre for Health Service Development, University of Wollongong p56. TP PT TP 45 PT Walsh R A, Lowe J B, and Hopkins P J (2001) ‘Quitting smoking in pregnancy’ MJA 175: 320–323. MATERNAL AND CHILD HEALTH Page 21 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health infections, middle ear diseases and stillbirth.46 In addition, exposure to environmental smoke among infants and young children increases the risk of respiratory infections, asthma and otitis media. TP PT Of particular concern is the high proportion of Aboriginal women who smoke during pregnancy: the WA Aboriginal Child Health Survey found that 47% of Indigenous mothers had smoked tobacco during pregnancy, while even higher rates (over 65%) have been found by at least two other studies.47 Although still serious, maternal smoking rates in the general community are considerably lower, documented at around 18%.48 TP TP PT PT Primary health care services are well placed to deliver quit smoking interventions for women in general and pregnant women in particular and a recent review demonstrated that smoking cessation programs during pregnancy apparently reduce smoking, low birth weight and preterm birth.49 TP PT Alcohol The consumption of alcohol by pregnant women is significantly related to increased risk of foetal death and low birth weight, even in cases where the drinking is in the moderate range.50 This effect can be related to even the earliest weeks after conception, before a woman may be aware that she is pregnant. TP PT Aboriginal women are more likely to consume alcohol at a dangerous level than nonAboriginal women: the 1995 National Health Survey, for example, found that 9% of Indigenous female drinkers were classified as high-risk drinkers, three times the rate for the population as a whole.51 These drinkers are at the greatest risk of damaging the unborn child as it develops. TP PT Brief interventions from primary health care services are effective in reducing alcohol consumption of women of child bearing age: education, advice and counseling have been shown to be effective in reducing alcohol consumption in the short term, and dangerous levels of drinking over the long-term, especially for women who become pregnant in the period after the initial intervention.52 TP 46 TP PT PT Zubrick et al 2004 op cit. 47 de Costa C & Child A (1996) ‘Pregnancy outcomes in urban Aboriginal women’ MJA 164: 523–526; Eades S & Read A (1999) ‘Infant care practices in a metropolitan Aboriginal population’ Journal of Paediatrics and Child Health 35: 541–544. TP PT 48 TP PT AIHW 2005 op cit p xiii 49 Lumley J, Oliver S, and Waters E (2003) Interventions for promoting smoking cessation during pregnancy (Cochrane Review). The Cochrane Library. Oxford, Update Software. Issue 1. TP PT 50 Little R E, Asker R L, Sampson P D, and Renwick J H (1986) ‘Fetal Growth and Moderate Drinking in Early Pregnancy’ American Journal of Epidemiology 123: 270–278; Faden V B, Graubard B I, and Dufour M (1997) ‘The relationship of drinking and birth outcome in a US national sample of expectant mothers’ Paediatric and Perinatal Epidemiology 11(2): 167–180. TP PT 51 TP PT TP 52 PT Eades 2004 op cit p21. ibid MATERNAL AND CHILD HEALTH Page 22 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health It is also important to observe that Aboriginal primary health care services have often played important roles in public campaigns around the broader political economy of alcohol, in particular around availability, licensing and pricing. Sexual health Poor sexual health, especially sexually transmitted infections, and other genitourinary infections are associated with preterm and/or low birth weight babies. Indigenous communities typically have high rates of STIs and other infections. A Western Australian study showed that just over half of Aboriginal and Torres Strait Islander women who gave birth to low birth weight babies had a genitourinary tract infection compared with only 13% of other women.53 TP PT Antenatal care Late presentation for antenatal care is associated with poor birth outcomes among Indigenous women.54 TP PT While schedules for antenatal visits vary across Australia, the most commonly accepted standard is monthly visits until 28 weeks, fortnightly visits from 28 to 36 weeks, and finally weekly visits after 36 weeks. There is little published information documenting the frequency of Aboriginal women’s attendance for antenatal care, though a study has identified that amongst antenatal attendances at a major urban obstetric hospital, over one in ten Indigenous women did not receive their first antenatal care until after 31 weeks of pregnancy.55 TP PT Primary health care services are well placed to identify and reach out to pregnant women earlier in pregnancy than they may otherwise seek out antenatal care. This requires both effective population age-sex registers as a cornerstone of good primary health care management and effective community/family engagement and cultural safety strategies on the part of the primary health care service. Family planning Short intervals between pregnancies has been shown to be associated with low birth weight and preterm births56 as this allows less time for a woman’s body to recover nutritionally and also because of the added stress of caring for more than one young child. TP 53 TP PT 54 TP PT PT ibid ibid p6 55 Najman J M, Williams G M, Bor W, Andersen M J, and Morrison J (1994) ‘Obstetrical outcomes of Aboriginal pregnancies at a major urban hospital’ Australian and New Zealand Journal of Public Health 18:185–9. TP PT TP 56 Khoshnood B, Lee K S, Wall S, Hsieh H L, and Mittendorf R (1998) ‘Short Interpregnancy Intervals and the Risk of Adverse Birth Outcomes among Five Racial/Ethnic Groups in the United States’ American Journal of Epidemiology 148:798–805 PT MATERNAL AND CHILD HEALTH Page 23 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health Similarly, low birth weight is also associated with a low maternal age. Indigenous women tend to have children at a younger age than the overall female population, with more than one in five Indigenous mothers being aged under 20 years, compared with less than one in twenty-five non-Indigenous mothers.57 TP PT Family planning support and advice are important to enable Aboriginal and Torres Strait Islander women to make informed decisions about the timing of their pregnancies. There is evidence that pregnancy counseling services for young mothers (under twenty years) have a significant positive effect on birth weight.58 Again this is a core primary health care service requiring effective community / family engagement and effective cultural safety strategies on the part of primary health care services. TP PT Nutrition and folate While maternal nutrition is obviously an important determinant of a healthy birth, it has been the subject of much debate in the literature. It appears that the provision of nutritional advice alone has little effect, but there is some evidence that actual dietary supplementation can have an effect for disadvantaged women, although a number of other problems have been raised with this approach relating to expense and ‘compliance’.59 TP PT A particular issue deserving attention is that of folate (a vitamin found in leafy green vegetables, fruits, beans and peas) which is essential for the healthy development of the foetus. It has long been known that folate supplementation significantly reduces the incidence of neural tube defects amongst babies. Indigenous mothers are about 40% more likely to have a baby with a neural tube defect than non-Indigenous mothers. In 1998, folic acid fortification of a large variety of cereal products became mandatory in Canada. An evaluation of the impact of this measure found that the prevalence of neural tube defects decreased from 1.58 per 1000 births before fortification to 0.86 per 1000 births, a 46% reduction. The magnitude of the decrease was proportional to the pre-fortification baseline rate and regional differences in rates of neural tube defects almost disappeared after fortification began.60 TP PT The mandatory fortification of food with folate is currently a matter being considered by all Australian Governments. 57 AIHW (Australian Institute of Health and Welfare) (2006) Australia’s health 2006. AIHW cat. no. AUS 73. Canberra: AIHW. TP PT T T T P 58 Eagar et al 2005 op cit p60 59 ibid p58 60 De Wals P, Tairou F, Van Allen M I, Uh S H et al. New England Journal of Medicine. 357(2):135-42. MATERNAL AND CHILD HEALTH Page 24 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health Social support and education It has been argued that social support and health education programs directed at disadvantaged women would be likely to decrease the incidence of low birth weight. A comprehensive review of such programs (which include counseling, advice, and support with practical matters such as transport and household tasks) found no significant reductions in the probability of a low birth weight baby, although some other psychological benefits for mothers were noted.61 A similar conclusion has been reached for Indigenous women in Australia.62 TP TP PT PT However, social support and health education for pregnant mothers is often provided embedded within a broader antenatal program – as exemplified by programs such as the Mums and Babies program in Townsville – and in this context may contribute to the success of these services. Part of the effectiveness of such integrated programs may be in the improvement of family engagement with health care services and their cultural safety. In this sense cultural safety is not just a matter of “safety” in terms of Indigenous sensitivities but also specifically from the point of view of women and children. This is one of the success factors cited as a result of the creation of a specific “mums and bubs” clinic in the Townsville example63 (see below). TP PT Interventions primarily focused on the child after birth Breastfeeding Breastfeeding is one of the most important health behaviours to impact upon the survival, growth, development and health of children in their first years. The mother’s antibodies present in her milk help protect an infant while its own immune system is developing and has a protective effect against conditions such as diarrhea, respiratory infection, otitis media, meningitis, sudden infant death syndrome (SIDS), diabetes, eczema and asthma. It has also been associated with positive health effects for the mother and improved emotional bonding between her and her baby.64 Breastfeeding has also been positively associated with later child cognitive outcomes.65 TP TP PT PT In Australia, there is conflicting evidence about breastfeeding rates amongst Indigenous mothers. Some data suggests that the proportion of babies being fully breastfed at 4 months was lower among those with Aboriginal and Torres Strait Islander mothers than for those with non-Aboriginal and non-Torres Strait Islander 61 Hodnett ED, Fredericks S (2003) Support during pregnancy for women at increased risk of low birthweight babies. Cochrane Database of Systematic Reviews, Issue 3. T T 62 Zubrick et al 2004 op cit. 63 Dr K Panaretto, personal communication 64 AIHW 2005 op cit p31 65 Pollock J I (1994) ‘Long-term associations with infant feeding in a clinically advantaged population of babies’ Developmental Medicine and Child Neurology 36:426-440 MATERNAL AND CHILD HEALTH Page 25 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health mothers66. Nonetheless, the Western Australian Aboriginal Child Health Survey showed that the breastfeeding rate for children at age 12 months was considerably higher for Indigenous mothers than for Western Australian women in general.67 TP PT TP PT Nutrition While breastfeeding is probably the most important activity for ensuring good nutrition for infants, the introduction of solid foods to infants’ diets and dietary guidelines for infant feeding are also important. If infants’ dietary requirements for growth and development in the first year of life are not met, they can be susceptible to a whole range of illnesses and infections. In many regions of Australia, Indigenous infants have been shown to have higher rates of failure to thrive and anaemia.68 TP PT It is important to note that being overweight is also an issue for some Indigenous children – one study in the Northern Territory found an excess of both underweight and overweight children in urban areas, while remote areas had a large excess of underweight children.69 The proportion of over nourished babies (born over 4500g) has also been reported as an emerging concern in the Torres Strait, a community with very high rates of Type II Diabetes with very early onset.70 TP PT TP PT Programs to monitor infant growth and development, treat anaemia and infections among and to provide support and advice to parents about infant feeding is an important part of primary health care. Further, primary health services can play an important role in advice and activism around the availability of nutritious food, especially in remote areas where the simple lack of access to nutritious food is often the base problem which must be addressed if any other intervention is to succeed. In Chapter Four we will review the evidence on the relationship between child health and child welfare services. Child welfare staff have sometimes raised concerns that one unintended consequence of a focus on monitoring infant growth and development in primary health care services can be an increase in notifications of disadvantaged children for “neglect” without any concurrent action to improve food supply, support for family budgeting or other public health measures that might more effectively address the needs of infants “failing to thrive.”71 This concern has implications for the skills and clinical approaches of primary health care services. TP 66 AIHW 2005 op cit p33 67 Zubrick et al 2004 op cit. 68 Eades 2004 op cit. PT 69 Mackerras D (2001) ‘Birthweight changes in the pilot phase of the Strong Women Strong Babies Strong Culture Program in the Northern Territory’ Australia and New Zealand Journal of Public Health 25: 34–40 70 Dr Ashim Singha, outreach physician Cairns Base Hospital, personal communication. 71 J Vadivaloo, Child Protection expert, NT, personal communication MATERNAL AND CHILD HEALTH Page 26 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health Immunisation Ensuring that all children are appropriately immunised is obviously a key aim of primary health care maternal and infant health services. It appears that there is some uncertainty about the level of vaccination coverage for Indigenous children, with some estimates being much lower than the general population to others indicating that they are similar to other children. Indigenous children from remote areas tend to have higher immunisation rates than those in urban areas.72 TP PT In remote communities even a barely adequately resourced primary health care service should have the capacity, access to children and record systems to support the maintenance of high vaccination rates. The priority of this activity is self evident to professionals in such services. In urban settings, primary health care services may have a higher proportion of occasional clients and not have a clear picture of a child or families ongoing care requirements. It is possible that the lower immunisation rates reported in some urban Indigenous populations also represents a paradoxical lack of actual service access or health seeking behaviour on the part of Aboriginal and Torres Strait Islander families. This is clearly a priority for all urban primary health care providers with Indigenous clientele and requires cooperation between those service providers. Home visiting programs Finally in this section we examine the potential of primary health care staff visiting pregnant women and young families at home as a key intervention both to improve the health of mothers and children and a number of other long term outcomes for children. There have been models of health staff visiting the home of mothers with young children for decades and there are many such models from which to choose. Recent interest has been captured in Australia by the work of David Olds and his colleagues in the USA, with the Australian Government allocating $40 million to a rigorous pilot of a similar model in seven rural and remote Indigenous communities. The importance of Olds’ studies73 is that they are based on a detailed, structured and documented model, clarity about workforce requirements and training, and a rigorous approach to evaluation. The model has Randomised Control Trial results in three different United States jurisdictions. They show that, provided the model is followed TP 72 PT AIHW 2005 op cit p33 73 Olds D L, Eckenrode J, Henderson C R, Kitzman H, Powers J, Cole R, Sidora K, Morris P, Pettitt L M, Luckey D (1997) ‘Long-term effects of home visitation on maternal life course and child abuse and neglect: fifteen-year followup of a randomized trial’ JAMA 278:637-43; Olds D, Henderson C R, Cole R, Eckenrode J, Kitzman H, Luckey D, Sidora K, Morris P & Powers J (1998) ‘Long-term effects of nurse home visitation on children's criminal and antisocial behavior: fifteen-year follow-up of a randomized controlled trial’ JAMA 280:1238-1244; and especially Olds D L, Henderson C R, Kitzman H J, Eckenrode J J, Cole R E and Tatelbaum R C (1999) ‘Prenatal and Infancy Home Visitation by Nurses: Recent Findings’ The Future of Children Home Visiting: Recent Program Evaluations 9(1):4465. T T MATERNAL AND CHILD HEALTH Page 27 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health and for the populations he has studied, there are positive results in a number of key outcome measures. Positive outcome measures included a number of health measures – such as increased birth weights of babies born to young and smoking mothers, reduced attendances in Emergency Departments as a result of safer home environments, smoking rates among mothers and greater father involvement, eg in birthing classes. As well there was a trend to higher developmental scores at 6, 12 and 24 months and babies in the interventions group cried less, were less likely to be punished and were exposed to a greater number of appropriate play materials. There was no impact on education outcomes at age 4, nor was there a reduction in incidence child abuse, although there was a reduction in severity. Mothers in the control group were also found to be less at risk of rapid successive pregnancies, which are a major impediment for women to successfully complete education and/or get jobs, with consequent long-term effects on themselves and their children74. TP PT Olds also notes, however, that when he substituted paraprofessionals for nurses the gains fell away, as it did when other essential program elements were modified. There is a general lesson, that taking the “idea” of an intervention is not as effective as implementing that idea in a disciplined way. It is also likely that, in common with many other interventions, the presence of severe violence or significant illicit drug use in a home makes home visiting much less likely to succeed. The importance of this body of work for the development of family-centred primary health care is that it points to the importance of design integrity and not watering down interventions for disadvantaged populations; that sustained home visiting has been shown to produce a number of very important outcomes (though not as a panacea) in areas that are both important and difficult for service providers; and that it offers a well documented, indeed manualised, intervention. Models in Aboriginal and Torres Strait Islander maternal and child health In this section we examine a number of successful models of primary health care innovation to improve the effectiveness of maternal and child health services in Aboriginal and Torres Strait Islander communities. There are a limited number of published evaluations on successful interventions in the field of Aboriginal and Torres Strait Islander maternal and child health. The following is a sample of some of the 74 Olds et al 1999 op cit. p 47 MATERNAL AND CHILD HEALTH Page 28 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health key programs cited in the literature.75 We have selected these particular service for variety in governance structure, program and location, and because they illustrate some of the varied paths to success. TP PT We follow the case studies with a list of some of the key factors for success. Mums and Babies Program – Townsville Aboriginal and Islander Health Service 76 P P Established in 2000 to address community concern regarding pregnancy, birth and infancy outcomes in the Indigenous community in Townsville, this multidisciplinary team provides comprehensive antenatal care, postnatal care, immunisations, growth monitoring, developmental screening and hearing screening for pregnant women, families, infants and young children.77 TP PT While run from an Aboriginal community-controlled health service, the Program has close working links with a number of Queensland Government programs, as well as Centrelink, James Cook University, and the Townsville Division of General Practice. An evaluation of this program indicated a large increase in services provided and evidence of some reductions in both low birth weight and perinatal death.78 TP PT Congress Alukura Alukura was developed by Central Australian Aboriginal Congress in Alice Springs during the mid-1980s as a women’s health and birthing centre for the Aboriginal women of Central Australia. It is an important centre for the delivery of maternity and women’s health services for women (particularly those from Alice Springs), providing home visiting, transport, specialist / hospital liaison, a limited mobile bush service and health education. It is staffed by a multidisciplinary team including a doctor, midwives, Aboriginal Health Workers, nurses, a liaison officer, health educators, with the assistance of traditional Grandmothers. From the period 1986-1990 to the period 1996-99, the average birth weight of Aboriginal infants in the Alice Springs urban area increased from 3,168g to 3,268g, an increase of 100g.79 TP PT 75 For a more complete list, see Eades 2004 op cit and Herceg A (2005) Improving Health in Aboriginal and Torres Strait Islander Mothers, Babies and Young Children: A Literature Review, Office for Aboriginal and Torres Strait Islander Health 76 We understand that in recent times this program has essentially ceased, with some key staff leaving the Townsville Aboriginal and Islander Health Service. Undoubtedly, the reasons for this are complex and will be the subject of further investigation. 77 Panaretto K (2003) Mums and Babies Project: Project Report. Townsville, Townsville Aboriginal and Islanders Health Service Limited. 78 Atkinson R (2001) Antenatal care and perinatal health – how to do it better in an urban Indigenous community. th Proceedings of the 6 National Rural Health Conference, Canberra. MATERNAL AND CHILD HEALTH Page 29 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health NSW Aboriginal Maternal and Infant Health Strategy The New South Wales Aboriginal Maternal and Infant Health Strategy began in 2001 with an overall goal of improving the health of Aboriginal women during pregnancy and decreasing perinatal morbidity and mortality. The strategy included targeted antenatal / postnatal programs for Aboriginal women and infants; a state-wide training and support program for midwives and Aboriginal health workers who provided these services; and an evaluation of the pilot program. In five of the six former Area Health Services where the strategy was implemented, a community midwife and Aboriginal health worker team were established to provide community based services for Aboriginal women in conjunction with existing medical, midwifery, paediatric and child and family health staff. The sixth region commenced their program later in response to identified community need. The final evaluation showed that services across the program were provided to 321 women in 2003 and 368 women in 2004. A number of results were documented80: TP PT • births to women aged less than 20 years decreased from 24% in 1996-2000 to 21% in 2003; • the proportion of women attending for their first antenatal care visit before 20 weeks gestation increased significantly from 65% in 1996-2000 to 76% in 2003; • the proportion of women who reported smoking in the second half of their pregnancy decreased from 59% in 1996-2000 to 55% in 2003; • the proportion of women who gave birth to preterm or low birth weight babies was unchanged for women in the program in 2003 compared to 1996-2000; and • the perinatal mortality rate decreased from 20.4 per 1000 live births in 1996-2000 down to 9.4 per 1000 live births in 2003, although this finding was not statistically significant. Strong Mothers, Strong Babies, Strong Culture The Northern Territory Government’s Strong Women, Strong Babies, Strong Culture (SWSBSC) program began in 1993 with the aim of increasing infant birth weights by earlier attendance for antenatal care and improved maternal weight.81 TP PT 79 Ah Chee D, Alley S, Milera S (2001) Congress Alukura – women’s business. Proceedings of the 4th Australian Women’s Health Conference, Adelaide, 19-21 February 2001. 80 NSW Health (2005) NSW Aboriginal Maternal and Infant Health Strategy Evaluation. Available: http://www.health.nsw.gov.au/pubs/2006/evaluation_maternal.html 81 Mackerras 2001 op cit. MATERNAL AND CHILD HEALTH Page 30 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health Amongst other results, evaluation has shown twice the increase in birth weight in the three pilot communities compared to non-participating communities (171g compared to 92g). There was also an increase in the proportion of women attending their first antenatal visit in the first trimester of pregnancy. Nganampa Health Council Over many years, Nganampa have run an antenatal program in the Anangu Pitjantjatjara lands of South Australia, also reaching women travelling from neighbouring communities in the Northern Territory and Western Australia. The program aimed to encourage early provision of antenatal care and at least five antenatal care visits for each pregnancy. An independent review82 of the period between 1984 and 1996 found that perinatal mortality rates had decreased dramatically (from 45.2/1000 to 8.6/1000) and that the proportion of babies born of low birth weight decreased from 14.2% to 8.1%. Average birth weight also increased. TP PT Daruk Health Service Western Sydney’s Daruk Health Service has an antenatal clinic which provides home visits, transport to clinics, ultrasound screening, support in labour and postnatal care.83 Since beginning, the program has seen an increase in the number of antenatal visits by local Aboriginal women, as well as a higher proportion presenting earlier in their pregnancy. TP PT Principles for success One of the lessons from the delivery of primary health care services to Indigenous communities in Australia is that what the evidence tells us and what local communities are capable of and want to do, are both important in creating successful programs. If Aboriginal community engagement in the delivery of health services is crucial to their success, equally important is the involvement of policy makers, researchers and health professionals – in short, those who can advise and work with the community of some of the key interventions described above. Many of the programs described in the literature are multifaceted as well as being delivered alongside other programs from both within and outside the primary health care service. Under these conditions it is vain to try to identify a single part of the program that delivers success – or even sometimes, to isolate what part the whole program plays in population level health changes. 82 Sloman D, Shelly J, Watson L, & Lumley J (1999) Obstetric and Child Health Outcomes on the Anangu Pitjantjatjara Lands, 1984–1996: A preliminary analysis. 5th National Rural Health Conference, Adelaide. 83 DOHA (Department of Health and Aged Care) (2001) Better Health Care: Studies in the successful delivery of primary health care services for Aboriginal and Torres Strait Islander Australians. Department of Health and Aged Care, Canberra. MATERNAL AND CHILD HEALTH Page 31 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health Despite this, we identify eight key principles for success exemplified by the above programs as follows: 1. Local community engagement with the program, including employment of local Aboriginal people as key service deliverers and planners; 2. A named commitment to a focus on child and maternal health, where efforts are backed from the governance level of the service; 3. A professional multidisciplinary workforce dedicated to the program and supported with the relevant training; 4. Properly resourced, including over time to enable a sustained effort; 5. Good clinical and management systems; 6. Collaboration with other local services (hospitals, Government/nonGovernment health services, other primary health care services) 7. Easily accessible, either through the provision of transport or through outreach and/or home-visiting programs; 8. A space or location set aside for the service and specifically safe for women and children. MATERNAL AND CHILD HEALTH Page 32 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health CHAPTER SUMMARY: MATERNAL AND CHILD HEALTH 1. Maternal and child health services are ‘core business’ for the primary health care sector. Their accessibility, appropriateness and effectiveness are central to the concept of family-centred primary health care. 2. Key areas for primary health care intervention include: a) Predominantly focused on women before and during pregnancy: • Tobacco • Alcohol • Sexual health • Antenatal care • Family planning • Nutrition and folate • Social support and education b) Predominantly focused on the child after birth: • Breastfeeding • Nutrition • Immunisation c) Home visiting: There is strong evidence from overseas that nursing staff visiting pregnant women and young families at home can deliver positive results in the health and development of children. However, design integrity and sustained programs are critical for success. 3. Principles for successful primary health care interventions, include: • Local community engagement, including employment of local Aboriginal people • A commitment to a focus on child and maternal health; • A professional multidisciplinary workforce supported with training; • Proper resourcing to enable sustained effort; • Good clinical and management systems; • Collaboration with other local services; • Accessibility (provision of transport / outreach / home-visiting programs); • A space that is safe (and if possible, separate) for women and children. MATERNAL AND CHILD HEALTH Page 33 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health 3. Education and Health We have seen in the previous section how the health of a mother during pregnancy, and the experience of the infant in utero and through the first years of life can have far-reaching consequences for health over the life course. The first few years of life set children on life trajectories that become progressively more difficult to remedy as social disparities widen and associated cultural reinforcements kick in.84 TP PT We have also seen that, from a child development perspective, health, education and welfare thinking may be focused through different disciplinary lenses but are all essentially about the same set of issues in the early years. Accordingly, a key site for intervention is the education sector, with a voluminous literature showing a strong link between educational attainment and health in later life. Unlike child and maternal health services, interventions to address early educational deficits or to continue a positive educational start to build a healthy platform for life, fall outside even a comprehensive model of primary health. However, the question that needs to be asked is: how can the primary health care sector contribute to the greater effectiveness of the education sector – how can it complete the circuit? In this chapter we will look first at the evidence on the relationship between education outcomes and health outcomes, then following the same path as Chapter Two we will examine the education outcomes for Australian Indigenous children, and examine key intervention points linking health and education, especially at the challenges that this raises for primary health care practice. A Summary of the Evidence The relationship between health and education There is strong evidence linking early childhood development to literacy, social competence and success in school, and in turn, that education attainment is linked to personal health status and socio-economic position later in life. Put at its simplest, those with poor social and health environments at the beginning of their lives are likely to have poor education outcomes, and then poorer health outcomes later in their lives, whether measured by health knowledge, intermediate 84 Shonkoff and Phillips 2000 op cit. EDUCATION AND HEALTH Page 34 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health disease markers, measures of morbidity, general health status, and use of health resources.85 Similarly, improved education can independently override these effects. Writing in this field began in the 1970s with work on the social determinants of health and developing country transitions demonstrating the impact of socio-economic disadvantage at a community and neighbourhood level in terms of poorer health outcomes86. Educational attainment consistently ranked as a key indicator and mediator of such disadvantage. Since then, an extensive literature has developed that demonstrates the links between child development, education and health along the life course: at an individual level, at the level of the family, and of the community. Children who can read and write and numerically calculate are most likely to be longlived, healthy, and have a positive place in society.87 On the other hand, children that are brought up experiencing disadvantaged, neglectful or abusive early childhood development conditions may show antisocial behaviour by the time they enter the school system, and have reduced performance throughout their school years88. Further literature indicates an association between IQ in childhood, and health later in life.89 There are a number of interconnected pathways by which this effect may be expressed. First is the importance of work and class, or socioeconomic status. Education is the key to one’s place in a stratified economy90 where educated children are more likely to grow up into adults with better socioeconomic status which is strongly associated with better health, a greater ability effectively to access health services and lower mortality.91 Second, education is associated with better social-psychological resources: stressors, hardships, beliefs and behaviours are not randomly distributed but are socially structured. The sense of control over one’s own life increases with education, 85 Dewalt D A and Berkman N D (2004) ‘Literacy and health outcomes: a systematic review of the literature’ Journal of General Internal Medicine 19. 86 Caldwell J C (1986) ‘Routes to Low Mortality in Poor Countries’ Population and Development Review 12:171-220; Flegg A T (1982) ‘Inequality of Income, Illiteracy and Medical-Care as Determinants of Infant-Mortality in Underdeveloped-Countries’ Population Studies 36:441-458; Rogers R G and Wofford S (1989) ‘Life Expectancy in Less Developed-Countries – Socioeconomic Development or Public Health’ Journal of Biosocial Science 21:245-252. 87 Mustard 2006 op cit. 88 Tremblay R E (1999) ‘When children’s social development fails’ In Keating D & Hertzman C (Eds.) Developmental health and the wealth of nations: Social, biological, and educational dynamics (pp. 55-71). New York. Guilford. 89 Chandola T, Deary I J, Blane D and Batty G D (2006b) ‘Childhood IQ in relation to obesity and weight gain in adult life: the National Child Development (1958) Study’ International Journal of Obesity 30:1422-1432; Hart C L, Taylor M D, Smith G D, Whalley L J, Starr J M, Hole D J, Wilson V and Deary I J (2004) ‘Childhood IQ and cardiovascular disease in adulthood: prospective observational study linking the Scottish Mental Survey 1932 and the Midspan studies’ Social Science and Medicine 59:2131-8. 90 Ross C E and Wu C (1995) ‘The Links Between Education and Health’ American Sociological Review 60 (5):719745) 91 Hertzman and Wiens 1996 op cit. EDUCATION AND HEALTH Page 35 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health employment and income.92 Some Australian literature points to pathways between educational attainment and impact on the social and emotional well-being of Indigenous peoples.93 TP TP PT PT Third are some of the practical skills that come with better education, allowing individuals to be better able to manage their health (e.g. to access services, comprehend health messages, and advocate on their own behalf).94 Many ‘lifestyle factors’ such as eating well, drinking moderately, not smoking and preventive health care are strongly associated with better education.95 These ‘individual choice’ capacities are enabled by affluence and means, to which education once again contributes. TP T PT T TP PT Fourth there is considerable international literature connecting the educational attainment of parents, in particular the mother, and child health outcomes. In developing countries a clear relationship is found between education of the mother and reduced infant child mortality, which is thought to be related to the greater autonomy and control of women over their lives and the lives of their children.96 In addition, poor maternal education in industrialised countries leads to increased risk of developmental delay for their children.97 TP TP PT PT The Australian Indigenous context A note on the evidence As with other fields noted in this report, there is a general paucity of evidence for ‘what works’ in the Indigenous domain, compounded by an overall lack of solid research and quality evaluation into/of early childhood, parent support and family interventions in Australia.98 Much valuable work remains in the heads of people as practice based wisdom and is not written up. TP PT The majority of efficacy studies come from the United States, as a result of their heavy investment in early intervention programs and theorising in the 1960s and 92 Ross and Wu 1995 op cit; Marmot and Wilkinson 1998 op cit. 93 Corrigan M and Mellor S (2004) The Case for Change: A Review of Contemporary Research on Indigenous Education Outcomes. Australian Council on Educational Research; Hunter B H and Schwab R G (2003) Practical reconciliation and recent trends in Indigenous education. Centre for Aboriginal Economic Policy Research. Available: http://hdl.handle.net/1885/41585. T T HT TH T 94 Berkman N D, DeWalt D A, Pignone M P et al (2004) Literacy And Health Outcomes Evidence report/technology assessment Number 87 prepared for Agency for Healthcare Research and Quality (AHRQ) US Dept Health and Human Services) 95 Ross C E and Wu C L (1996) ‘Education, age, and the cumulative advantage in health’ J Health Soc Behav 37:104-20 96 Caldwell 1986 op cit; Caldwell 1990 op cit; Sandiford P, Cassel J, Montenegro M and Sanchez G (1995) ‘The Impact of Women's Literacy on Child Health and its Interaction with Access to Health Services’ Population Studies 49(1):5-17. T T T T 97 Shonkoff & Phillips 2000 op cit. 98 Herceg 2005 op cit EDUCATION AND HEALTH Page 36 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health 1970s, and equally heavy input of foundations in evaluative research and longitudinal trials. Australia does not have this legacy to draw upon, and the applicability of these overseas interventions to the Australian – and particular the Australian Indigenous – context is a matter of some debate. On the one hand there are those who would argue that only local, grassroots solutions that are developed through appropriately paced action research methods will have a chance of working. On the other, there are arguments that ‘children are children’ wherever they are and the overseas evidence is applicable universally. These two points of view need not be mutually exclusive. In fact we believe the tension between the two can be used creatively with programs designed and implemented locally, based on principles proven to work universally. Central to the success of such an approach is the need for engagement with the community and its capacities, coupled with the critical reflection and robust evaluation of programs. The skills and capacities built up in the health research sector, applied to studies of the link between health and educational outcomes is a productive area for further work – indeed, the exchange of skills between health and education can operate not just at the level of service development and implementation, but also at the level of applied research as well. Aboriginal education Measured by both participation and achievement, Indigenous children in Australia are receiving poorer education than their non-Indigenous counterparts. The nationally agreed literacy and numeracy benchmarks for Years 3, 5 and 7 represent minimum standards of performance below which students will have difficulty progressing satisfactorily at school. In 2001, the preschool participation rate for Indigenous children was 46% compared with 57% by other Australian children, while later in school, the proportions of Indigenous students meeting the national benchmarks for reading and writing were consistently lower than those for other children.99 TP PT From that point on in their life course, and at all levels of measurement, large gaps remain between Indigenous and non-Indigenous students. The most recent National Report to Parliament on Indigenous Education and Training (2006) confirms that while there have been nation-wide improvements in measures of enrolment and retention, overall, achievement gaps that appear in Grade Three tests widen as the student ages. As Indigenous children grow older, the gap widens at a rate of about nine months for every year at school.100 P 99 P AIHW 2005 op cit pxiv 100 Commonwealth of Australia (2006) National Report to Parliament on Indigenous Education and Training, 2004 Australian Government Printer. Canberra. pp 40-45. EDUCATION AND HEALTH Page 37 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health The Western Australia Aboriginal Child Health Survey also reported poor educational outcomes for Indigenous children. Approximately, 57% of Aboriginal children had low academic performance compared with 19% of all children101. TP PT While the developmental education disparities are already evident when Indigenous children enter school and widen from there in the absence of active intervention, the number of Indigenous children accessing child care services remains lower than for non-Indigenous children across Australia.102 In the Northern Territory, an estimated 2000 children who are eligible for preschool or early care and learning programs do not currently access such a service. TP The links between education and health PT TP The recent publication Social determinants of Indigenous health103 summarised the Australian literature on the link between educational attainment and health. According to this study, the causal pathways underlying interactions between Indigenous participation in mainstream education and health outcomes are complex. P P Confirming this, the international research identifies multiple pathways connecting health and education, to the point where one researcher has said it is “one of most powerful relationships in social science, yet it is perhaps the most difficult to explain”.104 P P The difficulty partly lies in the fact that the relationship is bidirectional: health status impacts on the capacity to be educated and vice versa, although there is more evidence that initially, better education lead to better health outcomes (and not automatically the other way around). Additionally, the relationship between education and health is neither static nor linear: life course and cohort processes bear directly upon both domains.105 It is hard to disentangle educational attainment from its links with income and class status. Yet for all this, those with more education have better health for all levels of income, and fewer income-based disparities exist among the well educated than among the less well educated. P P 101 Zubrick S R, Silburn S R, De Maio J A, Shepherd C, Griffin J A, Dalby R B, Mitrou F B, Lawrence D M, Hayward C, Pearson G, Milroy H, Milroy J and Cox A (2006) The Western Australian Aboriginal Child Health Survey: Improving the Educational Experiences of Aboriginal Children and Young People. Curtin University of Technology and Telethon Institute for Child Health Research. 102 OECD (2006) Starting Strong II: Early Childhood Education and Care. Organisation for Economic Cooperation and Development 103 Carson B, Dunbar T, Chenhall R D, and Bailie R (eds.) (2007) Social Determinants of Indigenous Health. Allen and Unwin. U U 104 Lynch S M (2003) ‘Cohort and life-course patterns in the relationship between education and health: A hierarchical approach’ Demography 40:309-331 (p 309) 105 ibid; Ross and Wu 1996 op cit. EDUCATION AND HEALTH Page 38 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health While the evidence from elsewhere is clear on the existence of a fundamental interconnection between health and education (if less clear on the key causal links), there are no publications that clearly demonstrate for Indigenous people in Australia that higher levels of education lead to better health. Similarly, there is limited evidence available on the relationship between maternal education and child health outcomes for Indigenous Australians, despite this being one of the longer standing associations in the international epidemiological literature.106 P P Intervention points for education and health In Chapter Two, regarding maternal and child health, we saw how appropriate care for pregnant women and infants in their first years delivered from the primary health care sector can play a role in building the long-term health of populations. The evidence we have just outlined demonstrates education’s strong positive effect on health throughout life and how, conversely, a poor start in education can become another cumulative disadvantage for a child. This is not about parents who are ‘failing’ – it is about addressing deficits in the environment in which a child grows up. While a number of the health conditions that interrupt learning are addressable within comprehensive primary health care systems conventionally understood, the most important interventions here are likely to be from outside the primary health care sector, and in this section we will briefly outline some of the key interventions which might assist early development and better education for Indigenous children, before turning to the question: what can the primary health care sector – using a ‘familycentred’ approach – contribute? How can it intervene in such a way as to ensure that Aboriginal and Torres Strait Islander children are getting the best education they can, and setting themselves up for a longer, healthier life? Key features of interventions to enhance education outcomes Early intervention / school readiness Early childhood intervention programs (EIPs) aim to provide some protection against the various risk factors that can impact adversely on healthy child development in the years before school entry. The benefits of early intervention for children and their families are well documented. While EIPs are highly varied in their objectives, their targets, and the age of child on 106 Boughton B (2000) What is the Connection Between Aboriginal Education and Aboriginal Health? CRC for Aboriginal and Tropical Health Occasional Paper Series, Issue No 2 2000.; Caldwell J C 1986 op cit. EDUCATION AND HEALTH Page 39 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health which they focus, overall they have been shown to reduce disparities between families107 and their benefits appear to be greatest in populations at “highest-risk”, that is, those characterised by poverty, social isolation, cultural and linguistic diversity, with poor health, educational and social outcomes.108 P P P P Additionally, current evidence suggests that the greatest gains are achieved by intervening early in the life course.109 Programs that intervene in the first six or eight years of life are more successful at improving core developmental outcomes than later interventions. Further, the evidence suggests that the ‘neural sculpting’ of the child’s brain in the first three years is critical and that to have well-educated children it is important not to leave the acquisition of language and familiarity with numbers until the years of formal schooling. Of particular relevance to the Indigenous context, this period is also critical for the acquisition of a second language. Unfortunately, it is also one of the least well-resourced areas of Indigenous social service delivery.110 P P P P Family support and parenting programs Relationships of a child to parents and other care-givers are critical to their healthy development. Strong, caring relationships strengthen the child’s development and while the mother-child relationship is usually the most important, in the Aboriginal context in particular, a number of care-givers may be important to the child. One approach ameliorating the risks faced by a disadvantaged child is to focus on these care-givers with family support and parenting programs. This has been a focus also in the education sector. The evidence is that localized and specific programs focusing on the family and parenting can improve children’s early literacy skills.111 Again, these interventions are varied in scope, target, and objective, and once more the literature is heavily weighted towards overseas examples. P P Structured playgroups and quality child care There is good evidence that, especially for disadvantaged children, access to structured playgroups and quality child care services with an educational component is advantageous in terms of educational achievement. This gain is, however, dependent on the quality of the program and presence of trained staff, including in child care, early childhood educators.112 P 107 Karoly et al 1998 op cit. 108 Olds et al 1997 op cit; Olds et al 1998 op cit. P 109 Carneiro P & Heckman P J (2003) Human Capital Policy. Discussion Paper No.821. The Institute for the Study of Labour (IZA). Bonn. Germany. Available: http://ideas.repec.org/p/iza/izadps/dp821.html 110 A point made in Anderson P and Wild R (2007) Little Children are Sacred: Report of the Northern Territory Board of Inquiry into the Protection of Aboriginal Children from Sexual Abuse. Northern Territory Government. Darwin. 111 Shonkoff and Phillips 2000 op cit 112 Mustard 2006 op cit; Mustard 2006 op cit; Low et al 2005 op cit; Karoly L, Kilburn R, Cannon J (2005) Early Childhood Interventions: proven Results, Future Promise. RAND Corporation Report (www.rand.org) T T EDUCATION AND HEALTH Page 40 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health There is some debate about whether programs targeted at children/families at risk are the best approach compared to universal, population based programs. This often arises in relation to the importance of access to quality child care. One argument is that universal quality child care benefits all children so a population approach will benefit a greater number of at risk children wherever they are located, as well as securing broad societal support.113 Others argue for targeted programs as a way of addressing social and economic disparities in society114, and overcoming the skewed manner of social service provision, with educated and well-off families getting better access to and better quality versions of whatever ‘universal’ programs are on offer. P P P P We would argue that both universal and targeted programs are needed: while some interventions for at risk families and children can have impressive results, the outcomes do not nearly match those of advantaged children who had greater opportunities from the outset115 – and consequently there remains a key political task ‘upstream’ in terms of minimising the social and economic disadvantage of families in the first place. P P Key factors for success Much literature has focused on what family or early childhood interventions are most likely to lead to improved child development and educational attainment. Overall there seem to be some key features of successful programs: 1. Parental involvement – social interventions in the child care arena have greatest chance of beneficial outcomes if they reach the child through the parent. Accordingly, childhood development programs should encourage their voluntary participation, so that parents can simultaneously learn parenting techniques116; P P 2. Content matters – successful programs are not simply a matter of providing good community day care but have a focus on developmental goals117 and attention to the development of cognitive skills including the development of letter and number recognition, pre-reading and language skills118; Programs need to be outcome orientated according to the three key domains of early child development: physical, cognitive and socio-emotional-behavioural; T T P P 113 P P McCain and Mustard 1999 op cit 114 Low M D, Low B J, Baumler E R and Huynh P T (2005) ‘Can education policy be health policy? Implications of research on the social determinants of health’ Journal of Health Politics Policy and Law 30:1131-1162. 115 Hertzman C and Wiens 1996 op cit 116 Mustard 2006 op cit. 117 ibid 118 Low et al 2005 op cit EDUCATION AND HEALTH Page 41 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health 3. Staffing – programs have well-trained staff (preferably four-year trained)119 with low client to staff ratios120; P P P P 4. Be home or centre-based – both can work (including home visiting121) depending on frequent contact with program staff122; P T TP P PT 5. Local and specific – especially for high-risk families facing multiple problems, general parenting and family support programs that are overly general seem to yield little benefit123. Halpern in particular issues some caution regarding so-called comprehensive programming, which often relies on a “vague” system of referral and case management across organizations.124 P P P P Opportunities for a direct primary health care contribution Given this evidence of the link between health and education and the key interventions in this field, what role can primary health care services play to support children and families to maximise educational outcomes? As noted, a child's health is crucial to their participation and success at school. Primary health care programs to ensure that children are healthy and ready to learn while at school are best seen as working integrally with family support programs such as those described above. Nutrition As well as having long-term health implications for healthy development, poor nutrition of infants and preschool children has been shown to affect cognitive function and this can last into the school years125, being specifically associated with delayed motor development, impaired cognition, and poor school performance. Iron deficiency has also been associated with poor cognitive function and delay in psychomotor development, in preschool and young school-age children.126 Anaemia has been found to be very prevalent in some Aboriginal communities, with rates recorded as high as 39% found in some remote communities.127 Iodine deficiency in school children has also been associated with impaired cognitive ability and poor school performance. P P P P 119 Mustard 2006 op cit; Low et al 2005 op cit; Karoly L, et al 2005 op cit 120 Karoly et al 2005 op cit 121 Hertzman and Wiens 1996 op cit. 122 Karoly et al 2005 op cit 123 Shonkoff and Phillips 2000 op cit. P P 124 Halpern, R. (2000) Early childhood intervention for low-income children and families, New York, Cambridge University Press p 377 125 World Health Organisation (WHO) and World Bank (2002) Better Health for poor children. A special report. Available: http://www.who.int/child-adolescent-health/publications/CHILD_HEALTH/WHO_FCH_CAH_02.5.htm HT 126 U UTH ibid 127 Paterson B, Ruben A, Nossar V (1998) ‘School screening in remote Aboriginal communities – results of an evaluation’ ANZ Journal of Public Health 22(6):685-9 EDUCATION AND HEALTH Page 42 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health Nutrition and health promotion services have been integrated into family support programs for Indigenous families both here in Australia (the Best Start program in Victoria and Western Australia)128 and overseas (the Aboriginal Head Start program in Canada). The Victorian Department of Health Services ‘2004 Aboriginal Best Start: Status Report’ does not provide a timeline for implementation of the Aboriginal Best Start Demonstration Phases, which were underway when the 2004 report went to print. (Unfortunately, the review team were unable to locate evidence of outcomes of the demonstration phase in either published or unpublished form). In Australia, community based nutrition counseling interventions integrated into primary health care services have been found to have modest benefits in promoting growth amongst children.129 School-based nutrition programs to improve school performance and attendance can distribute healthy meals to students at school as well convey health and nutrition information to the students and their families. The National Aboriginal Community Controlled Health Organisation has called for food supplementation programs to be used as an incentive to school attendance combined with targeted nutritional programs for Aboriginal women in high risk groups.130 A recent review commissioned by OATSIH on effective interventions to improve the social and environmental factors impacting on health noted at the time that there were no nationwide supplementary feeding programs in Australia.131 National programs are of course unusual in school education which is a program area administered by the states and territories. However, since that report went to print, the Australian Government has introduced breakfast programs as part of the suite of emergency measures being introduced in targeted communities in the Northern Territory. The effect of such programs on improved cognition and ability to learn, as opposed to weight gain and such measures as temporarily improved attendance, is unclear. An earlier paper evaluating preschool supplementary meal programs on the nutritional health of Aboriginal children in five New South Wales rural towns used anthropometric measurement and pathology testing. The outcomes were increased 128 Note that the Commonwealth Department of Education Science and Training’s ‘Parent School Partnership Initiatives’ also supports some nutrition projects where the project can be shown to have an effect on school attendance and educational outcomes, particularly literacy and numeracy skills. However, the review team have not been able to source evaluations of such projects. 129 McDonald E, Bailie R, Morris P, Rumbold A & Paterson B (2006) Interventions to Prevent Growth Faltering in Remote Indigenous Communities, Australian Primary Health Care Research Institute, Australian National University, Canberra. 130 NACCHO 2003 What’s needed to improve child health in the Aboriginal and Torres Strait Islander Population. Available: http://www.naccho.org.au/PolicyReports/Reports/ChildHealth.html 131 Black A (2007) Evidence of effective interventions to improve the social and environmental factors impacting on health : informing the development of Indigenous Community Agreements. Department of Health and Ageing. Canberra. Available: http://www.health.gov.au/internet/wcms/publishing.nsf/Content/health-oatsih-pubs -evidence/$FILE/S&E%20Report.pdf EDUCATION AND HEALTH Page 43 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health weight and height, but decreased haemoglobin, vitamin C and ferratin.132 An evaluation of nine projects targeting Indigenous school-age students (ages five to nine) was able to find increased access to nutritious food, attendance and attention in school.133 P P P P Nevertheless, no intervention based on educating disadvantaged families about good nutrition can have a sustained effect where access to nutritious food is non-existent, limited, or expensive. Accordingly, in the Australian Indigenous context – particularly in remote areas – a key primary health care intervention should be to ensure that stores consistently carry nutritious foods priced such that community members can afford to buy them. Hearing health Indigenous children are much more likely than their non-Indigenous peers to have ear disease and hearing problems. Middle ear infections (otitis media) are common, particularly in remote area where the prevalence of otitis media ranges from 40% to 70% compared with only 5% in more advantaged populations internationally.134 Rates of otitis media in Western Australian Aboriginal children aged 5-9 months has been found to be as high as 72%.135 P P P P Hearing loss resulting from middle ear infections is associated with poor school achievement: children who are unable to hear properly are at an obvious disadvantage in the classroom, particularly in acquiring language and reading skills. The problems are exacerbated by the fact that for many, English is not the vernacular or domestic language. Some evidence also suggests that Indigenous children with chronic middle ear disease attend school less frequently than other children.136 P P Primary health care services can contribute in a number of key areas: • infant ear health monitoring and focused treatment before school age; • school-based ear examinations and regular health screenings in schools; • involvement in ensuring that classrooms are designed, constructed and set up to maximise auditory benefit for students. 132 Coyne T, Dowling M and Condon-Paoloni D (1980) ‘Evaluation of preschool meals programmes on the nutritional health of Aboriginal children’ MJA 2:369-375. 133 Miller M, Coffin J, Shaw P, D'Antoine H, Larson A and James R (2004) Evaluation of Indigenous nutrition projects funded by the National Childhood Nutrition Program in Western Australia. Perth. Telethon Institute for Child Health Research, and Combined Universities Centre for Rural Health. T T 134 ABS and AIHW 2005 op cit. 135 Zubrick et al 2004 op cit. 136 ABS and AIHW 2005 op cit. EDUCATION AND HEALTH Page 44 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health Developmental Screening A program addressing the needs of children at risk of poor development and educational outcomes needs some way to ‘target’ those children and families. Primary health care services can play a key role in identifying developmental and health problems as they are likely to be a significant point of contact for young children and their families in the early years of a child’s life. The key principles for such screening have been identified as it being voluntary, culturally safe, carried out by trained staff, confidential, and importantly, directed towards identifying children and families who need further assessment, rather than providing a diagnosis.137 Accessible and effective follow up services that are sustainable and well coordinated with screening are also obviously important to the appropriateness of screening strategies. P P Primary health care services can contribute in a number of key areas: • Identification of clinically significant health, emotional or behavioural problems known to contribute to later conduct, learning and peer problems; • Coordination of professional support for pre-school and early childhood teachers to enable at-risk students to access screening and the follow up clinical interventions for medical conditions; and • Engagement of speech pathology and developmental specialists to ensure children with identified speech and language problems arising from hearing and other disorders have access to language enrichment programs. Primary health care as a site for early learning interventions A further question that the above evidence on the importance of early learning opportunity also raises is whether, as well as ensuring the effectiveness of core health service interventions, primary health care sites could also provide direct access on site to structured developmental programs targeting young children and their carers? A number of international models to which we now turn lend weight to the importance of this question. Models for Intervention Benchmark programs that stand out in the literature on early intervention approaches include the Nurse Home Visiting Program (NVHP)—also known as the Elmira 137 Rosman A, Perry D, Hepburn, K (2005) The best beginning: partnerships between PHC and mental health and substance abuse services for young children and their families. US Department of Health and Human Services. EDUCATION AND HEALTH Page 45 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health Parent/Early Infancy Project138; the High/Scope Perry Preschool Program; and Early Head Start. There are fewer Australian examples to draw upon which have used experimental designs to determine their effectiveness or published their findings outside internal reports, especially in relation to programs aimed at transition to school. Unfortunately, neither Australian nor Canadian indigenous (Best/Head Start) programs have reported findings. The United States based indigenous Head Start Programs are more rigorous, although this once again throws up the question of transferability.139 P P P P It should be noted that the Nurse Family Partnership Program was reported under the previous chapter on maternal and child health as it is an intervention which targets first time mothers, from within a predominately maternal health perspective. Models from overseas Head Start – United States Beginning in the US in 1965, this early childhood intervention program still exists today with over 1300 Head Start centres located across the country providing services to over 700,000 children. The program is designed to promote healthy development in low-income children from the ages of three to five, with a range of individualized services provided from Head Start preschool centres in the areas of education and early childhood development; medical, dental, and mental health; nutrition; and parent involvement. There have been a number of evaluations which have demonstrated that children who received early childhood intervention from the Head Start program were less likely to spend time in special education programs; more likely to graduate from high school; less likely to be teen mothers; five times less likely to be arrested repeatedly; three times more likely to be home owners. Aboriginal Head Start – Canada 140 P P Established in 1995, the Aboriginal Head Start program aims to enhance healthy child development and school readiness of Indian, Metis and Inuit children living in urban centres and northern communities. The program had its origins in the US Head Start programs, but was adapted to an Indigenous context. 138 Olds et al 1997 op cit; Olds et al 1998 op cit. 139 Marks E L, Moyer M K, Roche M R and Graham E T (2003) A summary of research and publications on Early Childhood for American Indians and Alaska Native Children United States Department of Health and Human Services; Marks E L and Graham E T (2004) Establishing a research agenda for American Indians and Alaska Native Head Start Programs United States Department of Health and Human Services 140 Budgell, R (2002) Aboriginal Head Start Biennial Report 1998/1999 - 1999/2000. Available: www.hc-sc.gc.ca/dca-dea/publications/biennial_e.html EDUCATION AND HEALTH Page 46 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health The primary goal of the initiative is to demonstrate that locally controlled and designed early intervention strategies can provide Aboriginal children with a positive sense of themselves, a desire for learning, and opportunities to develop fully as successful young people. There are 126 Aboriginal Head Start (AHS) sites in communities across Canada. Principles of local control and design are critical to the program which is organized around six components: culture and language, education, health promotion, nutrition, social support, and parental involvement. Health Canada runs the program and partners with not-for-profit providers to deliver a general half-day program operated five days per week. There is no standard curriculum and the evaluation strategies in place are process oriented rather than on the child’s trajectory once they leave the program. Local project evaluations and ad hoc community reporting claim gains in all areas of children's development and improved parenting skills in parents. A National Process and Administrative Evaluation Survey is conducted annually which collects data regarding AHS's team characteristics, project administration and co-ordination, program participants and their communities, the delivery of and strategies and plans associated with program components, program needs and program finances. A National Impact Evaluation is in progress with the aim of demonstrating the impact that AHS is having on the children families and communities participating in AHS.141 P P Perry Preschool ‐ United States The Perry Preschool Study is among the more famous interventions, mostly for its experimental research evaluation (involving randomised control comparisons) and longitudinal follow up on the impact of the program on participants (annually from age 3 to 11 years, and then at ages 14, 15, 19, 27 and most recently 40 years). Perry Preschool combines child development and school readiness programs within the one intervention, targeting children from low-income families who were originally assessed as being at high risk of school failure. There are notable differences in life outcomes between the two groups. As Zubrick et al142 summarise it, those who received the intervention did significantly better on IQ tests at age 5 years, outperformed non-program children on intellectual and language tests from pre-school through to age 7 years, did better on school achievement tests from age 9–14 years and did better on literacy tests at age 19 and 27 years. As adults those who received the intervention did better economically with better employment, higher earnings, higher levels of home ownership and less use of P 141 P See http://www.phac-aspc.gc.ca/dca-dea/programs-mes/ahs_overview_e.html 142 Zubrick et al 2006 p475; see also Schweinhart L J (2006) The High/Scope Perry preschool study through age 40: summary, conclusions and frequently asked questions. High/Scope Educational Research Foundation. EDUCATION AND HEALTH Page 47 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health social services. By the age of 40 years, the group who received the intervention had sustained fewer lifetime arrests and had served significantly less time in prison. Australian Models Best Start ‐ Western Australia and Victoria An Aboriginal Best Start program has been implemented in both Victoria and Western Australia. The ‘DHS 2004 Aboriginal Best Start: Status Report’143 describes the programs as follows: P P The Best Start program in Western Australia was first initiated in 1993 and is a joint project between the Department for Community Development, the Department of Health and the Education Department in Western Australia. The program focuses on Aboriginal children from birth to five years of age, with the aim of improving their wellbeing and life opportunities and preparing them adequately for preschool and the first year of schooling by improving their participation in early childhood education programs. In 1994, on the basis of level of disadvantage and remoteness, six locations were identified as fulfilling the criteria for the Best Start program, and, following consultation, seven communities at these six locations were selected to pilot the program. In subsequent years, other communities became part of the pilot program and in 1996–97 there were 16 sites in operation. All Best Start programs are owned and managed at the local Aboriginal community level. A range of activities is offered through the program, including nutrition programs for parents and carers, an immunization clinic, regular weekly playgroups for young children, as well as cultural camps for children, parents and other significant members of the extended family. In addition, drinking fountains have been installed in communities to provide clean drinking water. While several interim evaluations have been undertaken, the final evaluation noted that the 15 sites operating between September 2000 and February 2001 had provided services to approximately 166 families, with playgroups the most frequently used service. Problems related to the continuing ‘pilot’ status were noted and a recommendation made that this status should be removed to overcome the insecurity it generates among staff, families and communities. Other concerns centred on the adequacy of resources available, the selection, training and support of suitable staff, problems related to the provision of transport and the suitability of venues. 143 Gillam C (2000) Final evaluation of the Best Start pilot: report to the Interdepartmental Steering Committee, Department of Family and Children’s Services, Perth. EDUCATION AND HEALTH Page 48 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health NT mobiles playgroups In 1997 the NT Education Department established a pilot program of visiting playgroups in remote Aboriginal communities, encouraging the involvement of both parents and children in a range of activities based on storytelling, art and craft and also on introducing books and paper. According to the Learning Lessons Report into Aboriginal Education in the NT, children showed increased receptiveness to literacy and classroom activity at age 5 years.144 P P Ngariprlinga’ajirri Early Intervention School Program, Tiwi Islands, NT Adapted from the Victorian Exploring Together program, this program targeted children aged 6-12 years who had demonstrated behavioural problems including self harming behaviour. It provided skills and strategies for parents as well as working with the children. The program’s review reported teacher perceptions of significant improvements in child behaviour, which were sustained at six months, a perception shared by a similar proportion of children.145 P P This program also demonstrated another common feature of such small scale but successful programs, struggling for five years to secure stable funding, rather than the short term pilot program grants that forced program managers and evaluators to spend inordinate amounts of time attending to the business of securing funding, rather than developing and fine-tuning the program.146 P P 144 NT Department of Education (1999), Learning Lessons: An independent review of Indigenous Education in the NT, Darwin 145 Robinson G and Tyler B (2006) Ngaripirlina’ajirri: An early intervention program on the Tiwi Islands: final evaluation report Charles Darwin University, Darwin 146 Robinson G, personal communication EDUCATION AND HEALTH Page 49 of 101 FAMILY-CENTRED PRIMARY HEALTH CARE Office for Aboriginal and Torres Strait Islander Health CHAPTER SUMMARY: HEALTH AND EDUCATION 1. Strong evidence links early childhood development to literacy, social competence and success in school, and in turn to health status later in life. 2. There is an overall lack of solid research and quality evaluation in Australia on early childhood, parent support and family interventions. However, international evidence can provide insights to what can be expected in Australia. 3. Interventions predominantly from outside the primary health care sector include: • school readiness programs, including pre-schools and day care programs with structured pre-school educational curricula and structured playgroups • family support and parenting programs • early intervention programs that incorporate both elements 4. Direct primary health care interventions include in the areas of • nutrition • hearing health • developmental screening • primary health care services as a possible site for early learning interventions 5. Factors for success for these programs include • • parental involvement content that focuses on developmental needs and prepares children for school T T T • well-trained staff with low client to staff ratios • accessibility ( home or centre-based) • local and specific to the needs of the community • Primary health care programs that work integrally with interventions from outside the PHC sector. EDUCATION AND HEALTH Page 50 of 101
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