action Issue 46, Summer 2011 INSIDE What is good CBT? Advocacy – what we have achieved Stakeholder meeting & AGM Plus regular features and listings Issue 46, Summer 1 Issue 46, SUMMER Welcome Dear Friends, Welcome to the latest edition of Action. Since the last newsletter in the winter, the Charity has been exceptionally busy. OCD Week was a huge success, our advocacy volunteers are up and running, we have produced new materials and a website as part of the schools project and continue to support people on-line and on the phone. In the last issue, I mentioned that I have been working with our director, Joel, on how the Charity can continue to measure the impact of the work that it does. We have now done some serious and detailed analysis of our frontline services and will be sharing the results with you. In this issue of Action we will be covering our Advocacy Service and we will look at the other services in future editions. We know that OCD Action changes lives, but as a Charity we need to ensure that we have the information we need to make the right decisions about how to spend our resources. Times are tough and the Charity certainly has felt the pressure. As a Trustee team we have had to work hard to manage resources and ensure that the Charity is fit and healthy for the future. Now more than ever what we need is help from you. You will see in this newsletter how some of our supporters have helped to raise funds for OCD Action– perhaps you can join them! With best wishes Daniel Page 8 : Learn all about CBT Contents Change your membership over to Direct Debit. Paying your Membership via Direct Debit helps the Charity to save time and money. It’s also the best way to ensure you keep your membership up-to-date and continue to receive your newsletter. In this issue you will find information on how to recognise good CBT, a report from the recent AGM and an update on our Advocacy Service and the wonderful work it does. As ever, if you have any comments or would like to submit any contributions, please contact the OCD Action office. Stakeholders Meeting ���������������������������������������������������������������������������� 5 OCD Action Suite 506 – 507 Davina House, 137-149 Goswell Road, London EC1V 7ET Tel 020 7253 5272 Email [email protected] Helpline 0845 390 6232 AGM Report������������������������������������������������������������������������������������������������ 6 What is good CBT?������������������������������������������������������������������������������8-10 Book Review���������������������������������������������������������������������������������������������� 11 Advocacy - What we have achieved��������������������������������������������12-13 ‘OCD at School’ Project��������������������������������������������������������������������14-15 Member’s Story ����������������������������������������������������������������������������������16-17 Member’s Poem��������������������������������������������������������������������������������������� 17 Fundraising Challenges��������������������������������������������������������������������18-19 Listings������������������������������������������������������������������������������������������������ 22-26 To find out how to convert your membership to Direct Debit today, call the office on 0207 253 5272 OCD Action’s vision is of a society where Obsessive Compulsive Disorder (OCD) is better understood and diagnosed quickly, where appropriate treatment options are open and accessible, where support and information are readily available and where nobody feels ashamed to ask for help. Newsletter design: www.neographica-creative.com 2 Issue 46, Summer 3 Have Your Say Can you help us Spread the word? As part of our OCD at School project we’re looking for volunteers to visit their local schools and help spread the word about OCD. We provide the training, support and materials you will need and will work with you to make sure that the schools you visit know how to spot OCD and how to support young people with OCD so they can have the same chances and opportunities as their friends. For more information please contact the OCD Action office on 020 7253 5272 or email [email protected] Also take a look at our new OCD at School website www.ocdaction.org.uk/school 4 Stakeholder event and AGM Tuesday 3rd May 2011 Stakeholders Meeting On the 3rd May this year OCD Action held its Stakeholder & AGM event. This event was designed to give members and the people who use our services the chance to help shape the Charity’s plans for the year ahead. P articipants worked in teams looking at fundraising, raising awareness, mapping services, campaigning and delivering services. Each team discussed what they thought the Charity should be doing and aiming to achieve in their given area and then shared their ideas with others. It was incredibly refreshing to see so many excellent ideas coming forward and to be able to share the great knowledge and experiences of participants. There were a number of ideas and issues that especially stood out: Fundraising All participants felt that the Charity needed to do more community fundraising. Without fundraising we are limited in the services we can provide and community fundraising encourages people to raise money on our behalf. While there has been some good progress in this area (see later in this newsletter) we can certainly be doing more and over the next year the Charity will keep encouraging its members and service users to take action on its behalf. Mapping services & campaigning We all felt that not enough is known about what NHS services are available in different locations. The Charity needs to have a clear service map to be able to really understand where the gaps are and where it needs to campaign for better services. Service delivery One issue that came up here was the need to extend the advocacy service which all participants felt was doing an excellent job. Also on the to do list is the need to work more with the network of local support groups and help them to ensure that they are providing an excellent service to their members. Raising awareness All participants felt that the OCD at School project was a great move forward but that the Charity should do more to raise the profile of OCD by using celebrity endorsements. This is something that we will be looking into for next OCD Week. Finally, a huge thank you to all those who took part, both on the day and on the online forums - your input has been incredibly valuable. Issue 46, Summer 5 AGM Report D The OC ual n n A Action eeting M l Genera mediately d im followe er the aft lder Stakeho event. D aniel Nabarro, the Charity’s chair, talked through the accounts for the year 2009-10. He highlighted the fact that the Charity had received a substantial legacy during the year and this had played a crucial role in ensuring that the Charity could maintain its services. Following this, members approved the accounts for the year 2009-10 and agreed that the Charity should continue to use Baginsky Cohen accountants as its auditors. Joel, OCD Action’s Director, and Daniel then told members that they felt there was a need to make a change to OCD Action’s constitution. The original constitution stipulated that Trustees should retire for one year following six consecutive years of service. Trustees felt that while this was good governance practice, the 6 Charity would be adversely affected by the loss of considerable trustee talent and skills. Members agreed and voted that this clause in the Charity’s constitution should be removed. Two Trustees, India Haylor and Robert Eddison, stood down and were offered for reelection. Members voted them back onto the Trustee Team. Daniel informed members that two Trustees, Colin Putney and Peter Jennings had stepped down. Members thanked them for their contribution to the Charity. Finally, members elected two new Trustees, Jordan Rapaport and Paul Growney onto the Trustee team. Jordan (London Based) has been involved with OCD Action for over four years both as a volunteer and as a member of staff. Jordan brings to the team an excellent understanding of how the Charity’s services can best meet the needs of people affected by OCD. Jordan also works closely with the Charity’s team of over 50 volunteers ensuring that their own needs are met and that they have the skills and resources to help OCD Action to have a major impact on the lives of service users. Paul (Liverpool Based) comes to OCD Action with a great deal of expertise and understanding of the commissioning of services by local authorities and of how charities can best measure the impact of their services. OCD Action believes in the provision of the highest possible services for people with OCD and having Paul on the Trustee team means that the Charity can ensure it has the processes in place to properly measure and analyse its work so that it can identify areas of improvement and maintain quality. The Trustee team now consists of, n 5 People with personal experience of OCD n 3 Healthcare professionals n 2 Carers of people with OCD Daniel thanked members for their participation and concluded by saying that he felt the Charity had the right team of Trustees and staff for the future and that with the help of members and stakeholders, OCD Action could continue to go from strength to strength. Full minutes of the AGM are available from OCD Action. E T A D E H SAVE T National Conference Saturday 26th November 2011 Full program details and booking available at the end of August. For more information call the 020 7253 5272 office or email Ilana on [email protected] Issue 46, Summer 7 What is good CBT? What is Good CBT for people with OCD? 3. Content of sessions The content should stay very focused on the OCD problem for most of the time in most of the sessions (and not mainly other problems, although sometimes other issues may be dealt with later in therapy). 4. Setting of goals The therapist should help you develop and work towards an agreed set of goals for and after treatment. These should be specific and achievable and described in terms of what you will do (e.g. to hold my baby; to sit on a public toilet seat). T he National Institute for Health and Clinical Excellence (NICE) is the organisation responsible for setting guidelines for the NHS on how to treat Obsessive Compulsive Disorder (OCD). According to these guidelines, if you have been diagnosed with OCD, you should be offered Cognitive Behavioural Therapy (CBT). People with OCD sometimes contact OCD Action to say that they are receiving some therapy but are not sure if this is CBT. Some people also contact the Charity to say that they are not 8 sure if the CBT they are receiving is of the quality that it needs to be to help them. If you have any doubts about the therapy that you are receiving, you can use this checklist to compare your own treatment with what has been demonstrated to be the most effective out-patient CBT therapy. 1. How long should sessions last? Sessions should last at least 45 minutes on average with an agenda that is agreed at the start of each session. Some sessions may be longer especially if confronting feared situations or objects. 2. Who else can attend the session? Depending on your age and circumstances, with your agreement some sessions might involve your parents or other family members. Sometimes sessions may involve a spouse or other household member. This can be essential to help family members understand the nature of OCD for example how they can best help you by not accommodating your rituals and giving you reassurance. 5. An explanation of how your OCD works You should be provided with a clear rationale and explanation of how your OCD works, what keeps it going and therefore what you need to do to overcome it. This is usually called a formulation and might consist of a diagram. Different therapists may place a different emphasis on either the cognitive or the behavioural aspects of OCD. A more cognitive explanation may focus on the meaning that you attach to your obsessions (for example “Because I have thoughts about being a paedophile it must mean that I could act upon them and I am bad for having them” or “When I feel contaminated and do not wash, then I think I might lose control and it will go on forever”). This approach allows you and your therapist to look for an alternative understanding of the intrusive thoughts and feelings (for example, “I worry about harming children because this is the worst thing that I can imagine”). You might also understand how the criteria you use to finish a ritual, such as feeling right, comfortable are a problem and keep the OCD going. A more behavioural explanation might emphasise education about anxiety, how anxiety is experienced in the body, how facing up to your fears may initially increase but then become easier each time you repeat the task. Whatever the emphasis, the important thing is you have a good understanding of what keeps your OCD going and what you will need to do to overcome it. 6. Therapist aided exposure The therapist should do at least some exposure or behavioural experiments with you in the sessions to test out your predictions and allow yourself to experience anxiety. Ideally this should occur at least once in your home or where the OCD is worst. Alternatively the therapist might demonstrate the exposure task first in front of you (e.g. touching a toilet seat in front of you first). You should feel involved in this process, and not just be told to do it. Exposure and behavioural experiments should be negotiated and you should understand why there is a need to do them. 7. Negotiated homework The therapist should negotiate relevant homework tasks to do between the sessions. This is also likely to consist of exposure tasks or behavioural experiments to test out your predictions and should be relevant towards achieving your goals. The outcome of these tasks should be recorded and reviewed when you next meet. Alternatively homework might consist of keeping a record of the frequency of your checking. 8. Encouraged to do exposure You should be consistently encouraged or requested to perform activities that involve exposing yourself to activities, situations or thoughts that you avoid. Difficulties should be discussed and an agreed plan of action is made cooperatively. 9. Encouraged to resist your rituals You should be consistently encouraged and supported to resist rituals (for example the urge to seek reassurance or to check or put things right). 10. Keep a record of outcome The therapist should have some record of outcome (for example by a questionnaire or rating scale) that is specific for OCD. Issue 46, Summer 9 What is good CBT? 11. Relationship with your therapist There should be a good enough relationship with your therapist who you can trust and can support you. You should feel your views are sought and you are involved in the process. The therapist should generally have high expectations about your ability to change. The therapist is always encouraging and positive about your ability to make improvements, seeing problems as a way of learning better ways of dealing with the OCD. The following are optional but good CBT might also involve: Being asked to listen to recordings of the sessions or keep written summaries of the sessions and your homework. 1 2 Being recommended or given appropriate reading material to help you further understand what keeps your OCD going. With thanks to : In CBT you would NOT expect to have: n Spent most of the sessions talking about your childhood. n Spent most of the sessions with your therapist silent. n Been encouraged to challenge your thoughts or keep thought records especially when you have intrusive doubts. n Been caught up seeking reassurance about your worries or repeatedly been provided with reassurance with your therapist. n Been encouraged to try and control, stop or block your intrusive thoughts, images or urges. n Been given a mantra or phrase to repeat to yourself or reassure yourself when anxious. n Felt that you are being given tasks that you don’t understand the rationale for. Simon Darnley, Director, Anxiety Disorders Residential Unit, South London and Maudsley Trust. Elizabeth Forrester, Consultant Clinical Psychologist, Centre for Anxiety Disorders and Trauma, South London and Maudsley Trust. Isobel Heyman, Consultant Child and Adolescent Psychiatrist, The Maudsley Hospital, South London and Maudsley Trust. Blake Stobie, Consultant Clinical Psychologist, Centre for Anxiety Disorders and Trauma, South London and Maudsley Trust. Paul Salkovskis, Professor of Clinical Psychology and Applied Science, University of Bath and Visiting Professor, King’s College London. David Veale, Consultant Psychiatrist in CBT, Centre for Anxiety Disorders and Trauma and Anxiety Disorders Residential Unit, South London and Maudsley Trust. If you are not happy with the treatment that you are receiving there are things that you can do. OCD Action’s helpline and advocacy service may be able to help. Please call the Charity on 0845 390 6232 3 Being asked by your therapist to summarise what you have learned, and other ways of making sure that the therapist and client have some shared understanding of the OCD and how it can be dealt with. 10 summarise You may be asked by your therapist to what you have learned Book Review TAKING CONTROL OF OCD by David Veale and Rob Willson T he authors of Taking Control of OCD have collated stories from OCD sufferers often not discussed outside their immediate circle. With varying forms of the illness – contamination, intrusive thoughts including those taboo subjects people are scared to admit they think about, to death and social acceptance – the reader can share in very private and genuine stories. Rich details, intriguing people and interesting outcomes are some of the reasons why we love stories and this book is no different. The human aspect is a refreshing change from reading so many text books. Story telling is one of the best tools we have for sharing what we know in a way that compels the other person to pay attention, listen, and recall what is said. We think we can deal with OCD ourselves – if there’s one vital message from the real life tales in this book, it’s that you cannot. Help is there, and although it might seem like a mountain to climb, it is clearly illustrated here how it can be done, but professional help, and the right professional help is paramount. Stories help us relate much better to each other by connecting our experiences on the way to improving our understanding. The difference between this book and a text book is how the reader appreciates the feelings of the sufferer and in most cases can relate to familiar emotions of their own. How the writer felt when in counseling illustrates excellently how beneficial, not daunting, the process can be. We get a remarkable sense of how easy it is to appear from the outside like nothing’s wrong, but inside we’re tormented beyond belief. The most inspirational feature of these heart rendering stories of survival is that of motivation. It is what makes people finally admit a problem, that it is OCD and what drives them to find the right help. A common hurdle with sufferers in taking the first step towards help is embarrassment and having to admit to someone, exactly what their thoughts and fears are. We learn that in real life the health professional does not judge and is not disgusted by unpleasant thoughts. Stories make things personal for us and for those with whom we share them. So many aspects of the recovery process are terrifying at first. ERP (Exposure and Response Prevention) especially and also group therapy. Reading a personal account and how it fits into the bigger picture, makes it easy to grasp how it works. It comes across more logical, not so alarming and by seeing the beginning (suffering), middle (therapy) and end will encourage people to finally seek the help available. The reader can take a lot away from the life lessons of these writers. We are inspired by the examples of success and how they took the long journey to recovery. From the importance of getting the right kind of CBT, telling your therapist everything to the shocking reality of ERP and how new OCDs can replace old ones. It’s not just about the cure but life afterwards; the wisdom achieved and the focus they now have on their lives going forward. To order a copy of Taking Control of OCD at the special price of £7.99 incl. p&p (RRP £9.99) call 01206 255 800 and quote OCD ACTION. Issue 46, Summer 11 ADVOCACY CHANGED MY LIFE Advocacy Client Feedback Feedback forms are sent to all Advocacy Service clients and they are asked to measure how they feel both before and after working with the service. – What we have achieved We are really proud of our Advocacy Service. Over the last year we have worked with clients to challenge the ignorance and discrimination that they face in all aspects of their lives and secure the rights and support that they are entitled to and that they need. We also work to give people the skills OCD Action’s Advocacy Manager also reviews all cases to measure how successful that service has been in achieving the outcomes that a client has desired. From this review we can see that in the four main areas where the service provides support there have been a number of real successes. Care and Treatment (68 recorded cases) Improved access to care and treatment 53% Increased knowledge of treatment rights and options 96% Work (30 recorded cases) Job position now more secure 30% Improved knowledge of rights at work 100% Increased confidence in asserting rights under equality law 100% Reasonable adjustments made to accommodate client Increased confidence in asserting rights under equality law 100% Can’t access the treatment you need? OCD Action’s could help you. 75% How would you rate the advocacy service? 11% 56% n Not sure Did the service achieve your desired outcome? 17% 33% n Good n Very Good 83% n No n Yes Comments and thanks from service users Your information on housing was so helpful. I have a real fear of people coming to my home and worry about how I will cope with housing authorities and landlords. Now I know that I have rights for my OCD to be considered and discussed. Thank you for giving me my confidence back. Working with the Advocacy team has enabled me to approach my consultant more like the old me rather than the pathetic person I had become. Thank you for getting me the specialist therapy I needed, it has turned my life around. I am sleeping in my own bed, walking in town and have even been able to pop to the shops. My anxiety is better and I feel more confident about the future. 100% Please contact us on Housing (11 recorded cases) Tenancy more secure 55% Greater support from housing services 82% Increased knowledge of housing rights 100% 12 Having difficulty with your employer or a landlord? ADVOCACY service Education (4 recorded cases) Improved support from University / College and confidence needed to feel empowered and able to face future challenges. A few months ago we undertook a review of 120 recent cases. We produced a full report and this is available to download from the Advocacy section of the OCD Action website. Here are some of the highlights. 0845 390 6234 www.ocdaction.org.uk Thank you so much, you have given me the knowledge and skills to move on and look after myself. I just cannot find the words to express how much I appreciate your support. Issue 46, Summer 13 SCHOOLS PROJECT OCD at School OCD Action’s new OCD at School project is up and running and already showing success. OCD affects 1-2% of young people, meaning that for every 100 students there is a chance that 1 or 2 suffer from OCD with varying degrees of severity. W e are working in cooperation with the South London and Maudsley Hospital, a centre of excellence on OCD, and The City Bridge Trust, to increase awareness of OCD in schools, help educators to spot the signs of OCD and to provide support to pupils with the disorder. Since launching a few months ago we have made great progress, with: n new information packs available to school personnel, parents and young people. n a dedicated group of volunteers who have already visited several schools in the Greater London area n a new OCD at School website n planned meeting days 14 We are promoting the importance of building a strong relationship between parents, teachers, and health professionals to provide the best support possible for pupils. Progress is more likely to be made when consistent messages are given to the young person and agreement on when to accommodate and when to challenge their OCD. OCD at School website We have launched a new website specifically aimed at those who can benefit from the OCD at School project. This special website has lots of useful information and includes n forum for young people n forum for teachers n forum for parents n case studies n and lots more ... School personnel training One of the key aspects of the project is going into schools and meeting face-to-face with personnel at all levels, including school heads, nurses, teachers and SENCos (Special Educational Needs Coordinators) to go through the education packs and train staff to use them. Through these sessions we can make sure staff really engage with the project and feel confident to do as much as they can for their students. So far we have visited seven schools and have several more who are interested in having someone come in to speak to staff. Information Packs These packs have been developed in conjunction with clinical psychologists at the South London and Maudsley Hospital and are all downloadable from the OCD at School website. The Teacher’s guide provides information on OCD and the signs to look out for in the classroom. It also includes practical tips about some of the things which teachers can do in the classroom to help a young person with OCD. Also included is a lesson plan written by a SENCo to ensure that other young people at school learn about OCD, hopefully leading to open discussions in class. The Parent’s Guide explains what OCD is and how it affects their child, and this and the Young Person’s Guide both explain the importance of working together with school personnel to help them get better. Meet-up days We are planning two events to take place later this year. The first is a training day for educational professionals which will provide an opportunity to come together and share ideas and experiences. The second will be a day for young people with OCD and their parents, providing a friendly and supportive environment to meet with others in a similar position and provide mutual support. We hope these events will also encourage feedback on the work done so far to find out how we can better serve the schools and young people. Volunteers We had wonderful feedback from our request for volunteers in the last OCD Action newsletter. Some of these people have been running the school personnel training, while others have been initiating contact with schools in their area to publicise the project and arrange for volunteers to go in to run the training with staff. ion on OCD The Teacher’s guide provides informat and the signs to look out for in the classroom. If you’d like to offer your time please call the office on 020 7253 5272. We are especially keen to hear from parents of young people with OCD either currently in school or who have recently left. By going into secondary schools in London and talking about OCD and bringing in your insight you can generate much needed awareness and support for young people at a time when they need it the most. Take a look and tell us what you think of the new website www.ocdaction.org.uk/school Issue 46, Summer 15 Member’s story Gerry McEvilly The Day I buried my demons I have been suffering from OCD and other anxiety disorders since 1971, all starting with germs and worries about my health. The OCD started getting worse in 1974 and became really bad with intrusive thoughts, which I found very distressing. I felt enormous guilt, was afraid to tell anybody and thought I was a bad person for years. In 1999 my father died making my anxiety problems worse. The following year I was referred to a psychiatrist and a psychologist and I was diagnosed with OCD and prescribed exposure therapy. I responded well to the treatment but soon started having setbacks. My medication was changed and I started to feel depressed. In August 2002, my mother died suddenly and my whole world fell apart. I had to move house and my OCD and anxiety went through the roof. I became more depressed and would go to bed hoping not to wake up, over estimated danger and had 16 severe phobias. I telephoned the Samaritans, No Panic helpline and talked to my staff counselor regularly. I was a complete wreck, with low self esteem and loss of confidence. I received bereavement counseling and at the end of the sessions, the counselor told me I was a very good person and wished me all the best for the future. Soon after, things started improving; I started enjoying life again. I had a few setbacks but kept going. I took a ten week introduction to counseling course at South Thames College, though at the end of the course, I decided not to progress with it. In May 2007 I became a volunteer warden for the National Trust, assisting the full time warden with duties on Box Hill and Headley Heath. I litter picked the area, checked on cattle and sheep, and really enjoyed my time there. On one occasion I was sent by the duty warden to look for a sheep that was unaccounted for. I located the sheep but sadly it was dead. I dealt with the situation calmly, radioing the duty warden, who came and we got the sheep down the hill, into the Land Rover and drove back to Warren Farm. After that I carried on as if nothing had happened. The duty warden was very impressed at how I handled the situation, knowing that I suffer from OCD. This was a big turning point for me, giving me enormous confidence. In October 2009, I took a three month course on countryside crafts and estate skills, in preparation for a career change. This involved skills such as fencing, sheep handling, coppicing, hedge laying and tractor driving. The tractor driving was amazing and I really enjoyed it. The tutor said I had done very well (not bad for somebody who cannot drive a car) and so I took a four day course on basic tractor driving. On the first day I got straight into the cab and the tutor showed me the instruments and controls; my anxiety levels were up that day. I then switched on the engine and he got me to drive slowly, to touch the end of a traffic cone. I did not do too well to start with but after lunch, I started to improve and my anxiety levels were down. I learnt several maneuvers including hitching up to a trailer and driving around the circuit and backing the trailer up and unhitching it, and driving at commercial speed. I passed the practical test and I got eighty seven percent in the theory test. The tutors told me I had done really well; I was very pleased with myself. That was the proudest day of my life. Back in 2003, driving a tractor would have been light years away as, for someone who used to overestimate danger, getting into a cab of a tractor and qualifying shows how far I have come. For someone who has OCD, Anxiety Disorder and had severe phobias this is a fantastic breakthrough, giving encouragement and hope to other sufferers. When I took on this four day tractor driving course, I took on the anxiety and won. When I was in the cab of the tractor I was not only doing it for my future career, I was doing it for my fellow sufferers and I was determined not to let them down. I now volunteer at Merrist Wood College, working with tractors for future employment and have just earned an NVQ in customer services, level two. I hope other sufferers benefit from my achievements and make a success of themselves. I believe there is no such thing as ‘‘I can’t’’ and I believe you can if you think you can. Member’s Poem You can call it obsessive-compulsive, or a complex, or something autistic, a symbol of something unconscious, an allergy, blockage, or tic, it’s neither one thing or the other I just know it’s a terrible bother! You can call me a neuro-divergent, nerd, slightly autistic, disabled, original, obstinate, gifted, or, for heaven’s sake, differently abled. I haven’t a regular shelf – I rather like genius, myself! You can call yourself doctor, neurologist, a therapist, counsellor, maverick, a dietary what’s-its-name expert, a psychologist, or a psychic. Call yourself all kinds of quack – just so long as you always CALL BACK! WOMBAT140 Action At OCDget people s, n rie e we oft s poems, storange u le g o h sendinart and a w tional work. a , books e and inspireing creative ir iv b t he , a e le of cr any peop to express t pacts For m cellent way d how it im ted a n x is an e bout OCD a ve now creawcase a a h g e n li W e to sho bmit . fe ir lives ebsite on the rea of our w ite you to sushare new a work and inve work and is is this wn creativ dience. Th your o h a wider auhat you can it wit mple of w re. e a sa find th Issue 46, Summer 17 FundraisinG Challenges Jude Wynne Our Advocacy Manager Jude Wynne works tirelessly throughout the year securing a better deal for people with OCD. This July saw Jude becoming a member of our fundraising team and taking part in her first ever Triathlon. The Deva Diva’s event took place in Chester and consisted of a 750m open water swim, 25km cycle route and finished with a 5k run. After intensive training Jude finished in an amazing time and has raised over £1000. You can read more about Jude’s efforts, including her training blog, in the fundraising section on the OCD Action website. 18 Zuleika Knowles Zuleika Knowles got involved in April by running the Virgin London Mini Marathon - the official UK road running championships for young athletes aged between 11 and 17. Zu set herself a target of raising £500 and absolutely smashed this by raising a staggering £2,125. What Zu said about the day. The mini marathon was great! Although hanging around outside in the cold for an hour before a race wouldn’t be my first choice of activity for 7am on a Sunday, but it was definitely worth it. The race was a challenge especially at the start, with many other uber-competetive, long legged girls kicking and scratching to get to the front. The atmosphere was really great, and I was greeted with a lovely view of London as I ran along embankment. By the end of the race I (almost) didn’t want it to end, however it was a relief to cross the finish line alive. My time was around 23 minutes 10 seconds. To put that into context, the winner did it in 17 minutes 54 seconds. Overall it was a really good day, and I’d love to do it again, and maybe one day do the big one! Kate Watson This July Kate Watson entered the Ride Across Britain challenge to fundraise for OCD Action. Kate undertook the challenge with a group of friends cycling from Land’s End to John O’Groates and covering an amazing 953 miles! Kate chose to help us because of a close family member that is affected by OCD. She and her friends have managed to raise £1,620. David Davies This year marked the 80th anniversary of the historic Round the Island Race and David Davies along with the other members of his crew, The Seasick Six, took part to support OCD Action. The race started at six in the morning with a fleet of over 1700 boats departing from Cowes and travelling round the Isle of Wight. David said “I have never sailed in an event of this type and as an OCD sufferer it’s a challenge that is part of my treatment.” His team has already raised a staggering £5,000 with donations still coming in daily. Issue 46, Summer 19 2011 / 2012 FundraisinG Opportunities There are lots of different ways that you can help OCD Action and there are fundraising opportunities that will suit anyone no matter how much time you have to give. With a little bit of determination you can help improve the life of someone affected with OCD. Below is just a sample of some of the amazing events that we have on offer but if you would like an information pack or to speak to someone about how you can get involved please call Christian in the office on 0207 253 5272. China Trek 2012 OCD Action is excited to offer adventurous volunteers the opportunity to trek through China in 2012. Join the trip of a lifetime and trek the Great Wall, visit Beijing and discover China’s amazing cultural past. The best part is if you raise enough in sponsorship you will get to take part for free! Santa Run Dec 2011 This event is now in its fourth year and a great way to fundraise and get in the festive spirit at the same time. We have spaces for this 5km fun run in Manchester and London and every runner gets a free Santa suit. This event is lots of fun and extremely popular. London to Brighton Cycle Ride On Sunday 11th Sept you will start in South London, travel through Mitcham, Carshalton, Chipstead, Banstead, Haywards Heath and finally to Brighton having completed 54 miles! No previous experience is required and with a bit of training the 54 mile route should easily be within your capabilities. The spirit of the event is ‘taking part’ not ‘winning’ so you can pedal at your own pace! s ’ n o i t c OCD A t c e j o r P Parents We are proud to announce that this new project will be working with the South London and Maudsley Hospital to develop support and information for parents of young people with OCD. Being the parent of a child with OCD can be incredibly difficult. We get hundreds of calls from parents lost and confused, not knowing what to do. We want to provide both emotional support and information to help them. This project is just at the beginning stages and we hope to develop it alongside parents to make sure we provide exactly what they need. So, if you are the parent of a child (under 18) with OCD we would love to hear your ideas and experiences. Please contact the OCD Action office on 020 7253 5272 or email Ilana at [email protected]. 20 Issue 46, Summer 21 SUPPORT GROUP UPDATES Listings Listings Where Time WHERE Contact group Type Central London Every Thursday 19.0020.30 The Parlour, Hinde Street Methodist Church, 19 Thayer Street, London W1U 2QH Gary Love 07803 721 598 [email protected] 12 Step Programme Obsessive Compulsive Anonymous group Central London Fortnightly on alternate Thursdays. Room available from 18.30 - meeting 19.0021.30 The Poetry Place, 22 Betterton Street, London, WC2H 9BX (upstairs room called the Poetry Studio - use door to left of cafe) Stephen 07976 726 803 OCD Support Group Central London Hoarding Support Group- Eastham Last Wednesday of the month, 18.0020.00 (no meeting in August 2011) Graham Practice, Wordsworth HC 19, Wordsworth Ave, London, E12 6SU Satwant Singhhoarding [email protected] Hoarding Support Group Edgware Second Tuesday of every month 19.3021.00 Royal Free NRC (formerly called Biru Unit), Edgware Community Hospital, Burnt Oak, Broadway HA8 OAD Suzanne or Judy C all OCD Action on 0845 390 6232 [email protected] Support group for people with OCD First Thursday of every month 19.3021.30 The Pembroke Community Mental Health Resource Centre, 90 Pembroke Road, Ruislip Manor, Middlesex HA4 8NQ Beryl 01895 444 804 (between 10.00-19.00 only please) , 07913 464 706 (24hr answerphone) [email protected] OCD Support group Last Friday of every month 14.00-16.00 The Pembroke Community Mental Health Resource Centre 90 Pembroke Road, Ruislip Manor, Middlesex HA4 8NQ Beryl 01895 444 804 (between 10.00-19.00 only please) , 07913 464 706 (24hr answerphone) [email protected] OCD Support group for carers LONDON Hillingdon 1 Hillingdon 2 Ilford (Group 1) Monday 19.00-20.30, Tuesday 18.30-20.45 Redbridge Progress Centre, 497/499 Ley Street, Ilford Essex, IG2 7QX Karon Gordon 020 8262 8891 www.anxietycare.org.uk OCD Support group Ilford (Group 2) Thursdays 11.00-13.00 Anxiety Care, Parish Centre, 326 High Road, Ilford, IG1 1QP Karon Gordon 020 8262 8891 (Mon-Fri 10.00-15.00) www.anxietycare.org.uk OCD Recovery Support Group Southgate First Sunday of every month 19.00-21.00 The Priory Hospital, The Bourne, Southgate, London, N14 6RA Alison Islin 020 8958 5332 [email protected] OCD Support group Southgate - BDD Group Third Sunday of every month 16.00-18.00 The Priory Hospital, The Bourne, Southgate, London, N14 6RA Martin Anson 020 7848 0387 Clinical Psychologist (If there is a voicemail, please leave a message) [email protected] BDD Support group Cam-Mind, Barrere House, 100 Chesterton Road, Cambridge CB4 1ER Aly 01223 311 320 development@cam-mind. org.uk OCD Support Group Ipswich Every second and fourth Thursday, 14.00-16.00 The Friends Society of Quakers 39 Fonnereau Road, pswich, IP1 3JH Paul Maguire 01473 212536 (m) 07922 973916 [email protected] OCD Support Group Kent - Rainham OCD Group Third Wednesday of month 19.15-21.00 St. Margaret’s Millennium Centre, Gate Keeper Chase, Rainham, ME8 9BH Lea Lea 07722075280 [email protected] OCD Support Group Milton Keynes Fourth Monday of month 14.30-16.30 except Bank Holidays City Counselling Centre, 320 Saxon Gate West, Central Milton Keynes, (Behind Christ the Cornerstone Church) MK9 2ES Jane 01908 607 667 OCD Support Group Norfolk OCD Support- Cromer Fortnightly Thursdays Merchants Place, 18.30 - 20.30. Meeting Church Street, on 22nd July and Cromer, NR27 9GW fortnightly thereafter. Keira Bartlett 01263 517 104 [email protected] OCD Support Group Norfolk OCD Support Downham Market 18.00-20.00 every second and fourth Wed of the month MIND centre, 33A Lynn Road, Downham Market, PE38 9NJ Frances Witley (01263) 517104 [email protected] OCD Support Group Norfolk OCD Support - King's Lynn 18.00-20.00 every first and third Wed of the month MIND Centre, Saunders Yard, Kings Lynn, PE30 1PH Jonathan Davis (01263) 517104 [email protected] OCD Support Group OCD Norfolk Every Wednesday 18.00-20.00 Heacham Mind Centre, 4 Poplar Avenue, Heacham, King's Lynn, PE31 7EA 07913 654 533 [email protected] OCD Support Group Norwich - Group 1 First Tuesday of the month 18.00-20.00 Central Norwich Geraldine Scott 01603 619246 evenings OCD Support Group Norwich - Group 2 Every Tuesday evening with the exception of the first Tuesday in the month 19.15-21.00 Central Norwich Geraldine Scott 01603 619246 evenings CBT focussed OCD support group Southend-on-Sea Second Thursday of month, 10.30-12.30 (not July and August) 14 Avenue Terrace, Southend-on-Sea, Essex, SS0 7PL Jackie St John at Trust Links Breakthrough, 01702 346 001 07876 353 547, 01702 346 001 [email protected] Jim Grigg 07876 353 547 [email protected] OCD Carer's Support Group, but people with OCD welcome St. Albans Evenings. Monthly Thursdays 19.0020.00 At Mind in Mid Herts Head Office, 137a Hatfield Road, St Albans, Herts, AL1 4JX Jenny Robinson 07768 639 186 [email protected]. OCD Carers' group St. Albans Evenings. Monthly Thursdays 19.0020.30; Daytime. Monthly Tuesdays 13.00-14.30 At Mind in Mid Herts Head Office, 137a Hatfield Road, St Albans, Herts, AL1 4JX Jenny Robinson 07768 639 186 [email protected]. OCD Sufferer's support group Stevenage Evenings. Monthly Wednesdays 19.0020.30 Daytime. Monthly Thursdays 13.00-14.30 Stevenage Wellbeing Centre, 13 Town Square, Stevenage, Herts., SG1 1BP. Jenny Robinson 07769 639 186 [email protected]. OCD Carers' group Stevenage Evenings. Fortnightly Tuesdays, 19.0020.30; Daytime. Monthly Thursdays 13.00-14.30 Stevenage Wellbeing Centre, 13 Town Square, Stevenage, Herts., SG1 1BP. Jenny Robinson 07769 639 186 [email protected]. OCD Sufferer's support group EASTERN ENGLAND Cambridge Every other Monday, 17.30-19.00 (please call for exact dates) 22 Information correct at time of printing, please visit the OCD Action website for up-dated details Issue 46, Summer 23 Listings SOUTH EAST ENGLAND SOUTH WEST ENGLAND Basingstoke Monthly on the second Wednesday of the month, 18.30-19.30 The Ark Conference Centre Ltd, Binwoodie Drive, Basingstoke, Hampshire, RG24 9NN Charlotte Underwood 07861 378 883 OCD Support Group Bournemouth (Winton) First Tuesday of every month, 19.00-21.00 First Wednesday of every month 18.3020.15 9 Buckingham Road, Brighton, BN1 3RJ Linda 01403 713 123 lin.thornton@btopenworld. com OCD Support Group Eric Chalmers 01929 557 725 07837 179 760 [email protected] OCD Support group Brighton Winton Resource Centre, 528 Wimborne Road, Winton, Bournemouth, Dorset, BH9 2EX Bristol OCD Support group Usually the first and third Monday of the month, 20.00 - 21.00. Please email/phone for confirmation. Guildford United Reform Church, 83 Portsmouth Road, Guilford, GU2 4BS Rob / Sally 07968 196 377 07790 397510 [email protected] 12 Step OCD Support group Penpole Community Centre, Oak Tree Court, The Ridge, Shirehampton, Bristol, BS11 0BN Sharon Davies 07729 848 675 [email protected] Guildford - 12 Step Programme Saturdays, 6 week course. Call to register, when there are enough people the course will begin. Taunton New group, call for details Call for details Sharon Davies 07729 848 675 [email protected] OCD Support group Kent - BDD Group Contact for timings MIND, The Almshouses, 18 West Hill, Dartford, Kent, DA1 2EP Sue 0132 229 1380 [email protected] BDD Support group Plymouth Mind Oasis, 8 Woodside, Greenbank, Plymouth, PL4 8QE Joe Higman 01752 254 004 [email protected] OCD Support Group Kent - OCD Group Contact for timings MIND, The Almshouses, 18 West Hill, Dartford, Kent, DA1 2EP Sue 0132 229 1380 [email protected] OCD Support Group Every other Wednesday, 19.0021.00. Please phone to check times Kent - Maidstone Third Thursday of every month 11.0012.30 Maidstone MIND, The Bridges, 23 College Road, Maidstone, Kent, ME15 6YH Merryl / Sally (Maidstone Mind) 01622 692 383 Andrew Hider andrewhider@blueyonder. co.uk OCD Support Group WimbourneObsessions Together Third Wednesday of every month 19.0021.00 Jessop House, Mill Lane, Wimborne, Dorset, BH21 1HG Eric Chalmers 01202 496 267 07837179760 [email protected] Obsessions Together OCD Support Group Exeter Fortnightly Mondays. Please phone /email contact for details before attending. The Lounge Bar, Mercure Exeter Southgate Hotel, Southernhay East EX1 1QF Gemma Gladstone 01392 477899 (with answerphone) gemma. [email protected] OCD Support Group Oxford Once a month, usually on the first Monday of the month, from 19.00-21.00 Michael Young Building, RESTORE, Manzil Way (off Cowley Road), Oxford, OX4 1YH Stephen and Richard 07976 726803 [email protected] OCD Support Group Portsmouth Once a month, usually on the first Saturday of the month 11.0013.00 Cosham Community Centre, Wootton Street, Cosham, Portsmouth, PO6 3AP Stephen 07976 726 803 Reading Every other Monday at 20.00 Trinity Church, Chalfont Close, Earley, Reading, RG6 5HZ South Hampshire (Eastleigh) First Saturday of every month 14.15 - 16.45 Surbiton Brentwood NORTH WEST ENGLAND Alkrington, Manchester Monthly on Mondays 12.30-14.30 The Old Boar’s Head, 111 Long Street, Middleton, Manchester, M24 3UE Bernie/Lindsey 01616 436 729, 07738 225 320 [email protected] OCD Support group OCD Support Group Salford Third Monday of the month 16.00-18.00 Energise Center, 3 Douglas Green, Charlestown, Salford, M6 6ES Christopher Keane 0161 212 7500 (for all initial enquiries contact Jude Wynne Mon-Wed on 0845 390 6234) OCD Support group Melanie Moore 01189 481 139 melanie_j_moore@hotmail. com OCD Support Group Bolton Every other Monday 19.30-21.00 MHIST, 30 Chorley, New Road, Bolton, BL1 4AP Sandra Clarkson, Judith Sumner 01204 527 200 (MHIST)[email protected], [email protected] OCD Support group The Cranbury Centre, Cranbury Road, Eastleigh, SO50 5HT Stephen 07976 726 803 OCD Support Group Leeds 2nd Monday of the month. 19.15-20.45 Oxford Place Centre, Leeds, LS1 3AX Brian 07932266183 OCD Support group Third Thursday of every month 20.00 onward. Group closes at 23.00. Anyone attending is free to leave anytime that suits them. The South Place Resource Centre, South Place (off Ewell Road, ) Surbiton, Surrey, KT5 8RX Les , 020 8390 2648 [email protected] (Please leave enquiries between 16.00 and 18.00 Mon-Fri only. Calls returned as soon as possible and to landlines only. Group enquiries only. Please attend group evening for specific personal information regarding OCD). OCD Support Group Macclesfield, Cheshire Last Tuesday of the month 18.00-21.00 Wykeham Chase, Off Bransdale Way, Macclesfield [email protected] OCD Support group Macclesfield, Cheshire First Tuesday of the month 18.00-19.00 Christ Church, Lord Street, Southport, Merseyside, PR8 1AA Call OCD Action on 0845 390 6232 OCD Support group Merseyside, Wirral Second Friday of every month 20.00 Contact group organisers for details Duncan / Colin 0151 632 2017 0151 228 6455 [email protected] [email protected] OCD Support group Third Wednesday of every month 18.30 -20.00. Donation of £1 to cover costs. 14 Ongar Road, Brentwood, CM15 9AX Tony Robinson 01277 234246 / 263613 OCD Support Group Merseyside, Southport Continues October 2011. Call for more details. Christ Church, Lord Street, Southport, Merseyside, PR8 1AA OCD Action office 0845 390 6232 [email protected] OCD Support group Warrington First Tuesday of every month 10.00-12.00 Allen Street Day Centre 44 Allen Street, Warrington, WA2 7JB Molly McKay Kevin Bennett 01925 652 204 07734 039 456 OCD Support group 24 Information correct at time of printing, please visit the OCD Action website for up-dated details Issue 46, Summer 25 Listings NORTH EASTERN ENGLAND Tyne and Wear/ Northumberland Every Monday 18.00-21.00 except bank holidays Tom Carpenter Centre, Carliol Square, Newcastle on Tyne, NE1 6UF Rachel Silken 0191 226 8776 gatesheadocdgroup@yahoo. co.uk Thisform formisistotobe beused usedinwith the application form overleaf. This conjunction Service Idenification Number Please send thisoverleaf completed instruction to: with the form Originator’s Identification Number OCD Support group OCD Action Please send this completed instruction to: SUITE 506-507, DAVINA HOUSE 137-149 GOSWELL ROAD OCD Action LONDON EC1V 7ET Yorkshire and Humberside Bradford First Monday of month 17.30-19.30 Bradford MIND, Ground Floor, Trade Force Building, Cornwall Place, Bradford, West Yorkshire, BD8 7JT Donna 07711 955 322 [email protected] OCD Support group Halifax First Monday of every month 18.30-20.00 The King Centre, Park Road, Halifax Louisa 07761 384 414 OCD Support group Sheffield Monthly on a Monday at 19.00. The group meets every four-tofive weeks. Knowle House, 4 Norfolk Park Road Sheffield, S2 3QE Helen Frith (until Nov 2011) 01142 796 777 [email protected]. uk OCD Support group Dan at York Mind 01904 647 349 01904 647 014 [email protected] OCD Support group Beverley Sturdgess 01933 675094 [email protected] OCD Support group York If there is enough interest, the group will restart later in 2011 Suite 506-507, Davina House 137-149 and Goswell Road, 7ET Name(s) address of London account EC1V holder(s) Mr/Mrs/Miss/Ms .......................................... Name(s) and address of account holder(s) Address........................................................ Mr/Mrs/Miss/Ms������������������������������������������������������ ...................................................................... Address....................................................................... ............................... Postcode ...................... ��������������������������������������������������������������������������������������� Postcode������������������������������������������������������������������� Bank/Building Society account number EAST MIDLANDS Northants The first Tuesday of the month from 19.00 - 21.00 Northampton and District MIND, Anchor House, 6-7 Regents Square, Northampton, NN1 2NQ Bank/Building Society account number Branch Sort Code - Birmingham, West Midlands Third Saturday of each month, 14.30 - 16.30 Carr's Lane Church Centre, Carr's Lane, Birmingham, B4 7SX John Hinckes, Chairman WMOCD 07977 591 081 johnhinckes@blueyonder. co.uk OCD Support group Contact group for details Ian Hughes 02920 335 555 Ian.Hughes@CardiffandVale. wales.nhs.uk OCD Support group - 07580963454 (Please call for an information message about the next meeting) OCD Support group Glasgow First Wednesday of every month 18.3019.30 Charlie Reid Centre, Elmbank Street, Glasgow, G2 4PB Contact the OCD Action office 0845 390 6232 OCD Support group North Wales, Deeside Every 2nd and 4th Wednesday Aston House, Deeside, Community Hospital, Plough Lane, Deeside, CH5 1XS Keir Harding 01244 834 921 OCD Support group 26 Information correct at time of printing, please visit the OCD Action website for up-dated details - - 2 -0 0 Instruction to your Bank or Building Society Please pay RDS/OCD Direct Debits from theaccount detailed in this Instruction subject Instruction to your assured Bank or by Building Society to the safeguards the Direct Debit Please pay CAF/OCD Direct Debits from the Guarantee. I understand that this instruction account detailed this Instruction subject to may remain withinRDS/OCD and if so, details the safeguards assured by the Direct Debit will be passed electronically to my Guarantee. I understand that this instruction Bank/Building Society. may remain with CAF/OCD and if so, details will be passed electronically to my Bank/Building Society. Signature SIGNATURE Date - - 2 0 0 ��������������������������������������������������������������������������������������� DATE Postcode������������������������������������������������������������������� Banks and Building Societies may not accept Direct Debit instructions for some types of account. OCD Support group - This Thisguarantee guaranteeshould shouldbe bedetached detachedand andretained retainedbybythe thePayer Payer The Direct Debit Guarantee Christina McManus / Kate 07789 104 668 07522 545 258 [email protected] or [email protected] - - NORTHERN IRELAND Imperial Buildings, 72 High St., Belfast, BT1 2BE FOR OFFICIAL FOR CAF OFFICIALUSE USEONLY ONLY - This is This is not part of the instruction not part of the Instruction to your to your Bank/Building Society Bank/Building Society Date of first payment after: Date of first payment on on or or after: Address....................................................................... The Central Library, 7-9 George IV Bridge , Old Town, Edinburgh EH1 1EG 4th Monday of every month, 19.30-21.30 To: The Manager��������������������������������������������������� ............................... Postcode ...................... Third Wednesday of every month, 18.3020.30 Belfast ...................................................................... Edinburgh First Tuesday of every month 18.00-19.30 - To: The Manager .............................. Bank Name and full postal address of your Address........................................................ Bank/Building Society SCOTLAND AND WALES Cardiff 48 39 47 14 67 8 - Branch Sort Code Name and full postal address of your Bank/Building Society WEST MIDLANDS 6 This guarantee is offered by all Banks and Building Societies that take part in the Direct Debit Scheme. The efficiency and security of the Scheme is monitored and protected by your own Bank or Building Society. If the amounts to be paid or the payment dates change, CAF/OCD will notify you at least ten working days in advance of your account being debited or as otherwise agreed. If an error is made by CAF/OCD or your Bank or Building Society, you are guaranteed a full and immediate refund from your branch of the amount paid. You can cancel a Direct Debit at any time by writing to your Bank or Building Society. Please also send a copy of your letter to CAF, Administration Services, Kings Hill, West Malling, Kent ME19 4TA. Issue 46, Summer 27 Application for Membership of OCD Action Membership ID. ����������������������������������������������������������� Member Details Title ............... Forename(s) ....................................... Surname .......................................................... Address ................................................................................................................................................................................................. ................................................................................................................................... Postcode .......................................................... Email ........................................................................................................................ Tel ..................................................................... OCD Action may want to contact you regarding events and other activities taking place within the organisation, please tick this box if you do not want us to contact you OCD Action never gives your information out to third parties. I wish to become a new member I am renewing my membership I wish to pay my membership subscription of: ................... Please note: £17 minimum £17 £20 £30 £50 £100 Other £ ................... Amounts of £20 and above are optional and include a donation to OCD Action. Please complete payment method A, B or C A BY CHEQUE and enclose a cheque for the sum of £ .............................. Please make cheque payable to OCD Action BY DIRECT DEBIT annually on .............................. (date) .............................. (month) Please complete direct debit mandate overleaf BY CREDIT CARD B C I authorise you to debit my account with the amount £ .............................. Card type: MASTERCARD / VISA / DELTA / SWITCH (please circle) Cardholders name ................................................................................................................................... Card number Start date / Expiry date - / Switch issue no. GIFT AID DECLARATION Please complete this section if you are a UK tax payer I am a UK tax payer and I wish all donations/subscriptions I make from the date of this declaration until I notify you otherwise to be tax effective under the gift aid scheme. Higher rate tax payers can claim further tax relief in their self assessment tax return. Signature ............................................................................................................. Print name .......................................................................................................... Date ..................................................................................................................... Benefits of joining: • Admission to the annual conference at a special rate • Newsletters • Being part of a supportive organisation • Being in touch with others who share similar experiences • Supporting the work of OCD Action Please remember to notify us if your circumstances change, i.e. you no longer pay Income Tax or Capital Gains Tax equal to the tax the charity reclaims (currently 28p for every £1 you give). • Up-to-date information and advice on OCD and related disorders • Having a voice through the newsletter, annual conference and AGM • Access to ‘Members Only’ area of the website
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