1. health and fitness
2. disease

South Palm Beach County Chapter
Autumn 2014
www.npfsouthpalmbeach.org
Save the Date...
Fashion Under
the stars
What you need to know:
Date:
Sunday, November 16, 2014
(We will walk, rain or shine!)
Times: Registration starts at 8:00 a.m.
Activities start at 8:30 a.m.
The Solidarity Walk starts at 10:00 a.m.
Walk one step, a mile, or just cheer on other walkers!
Location: FAU Stadium, located in the center of the FAU campus!
(Enter the campus at either entrance from Glades Road and follow
University Drive around. The stadium is at the far north end of the loop.)
thursday, november 20, 2014
6:30 p.m.
the residence of
robert and robin Muir
850 ne 5th avenure
Boca raton, Florida 33432
Food • Fashion • Fun
For further information, please
contact sara teeter at steeter@
parkinson.org or (305) 537-9951
Parking: Park in the new covered lot just to the west of the stadium!
Awards, Prizes, Concert:
*Scholarship awards, raffle drawing, and lawn concert will begin
immediately after the walk.
*Be there as we award two
Scholarships on Moving Day
The South Palm Beach County Chapter of the National
Parkinson Foundation together with the School District of
Palm Beach County have defined and set up a Scholarship
Program to help support two deserving young people
coming out of the Biomedical and Medical Sciences
Academies and who plan to continue their education at
Florida Atlantic University.
The six finalists’ projects will be presented and judged in a
special tent at the Moving Day event.
For more information on Moving Day and the
Scholarships, see pages 4 and 5!
Save the Date
Monday, December 1, 2014
South Palm Beach County Chapter
Richard Okonow
Memorial Charity Golf Tournament
St. Andrews Country Club
Call Chairman Leo Geller at (561) 451-3520
President’s Report
By Bonnie Austin
P.O. Box 880145
Boca Raton, FL 33488-0145
(561) 482-3106
Parkinson
Community Center
21301 Powerline Road
Boca Raton, FL 33433
(561) 962-1702
Board of Directors
Bonnie K. Austin
President
Stuart Perlin
Executive Director
Jack Mueller
Executive Vice President
Florence Schneider
Treasurer/Secretary
Vicky Accardi
Amy Cohen
Jeff Dowd
Annette Fentin
Lillian Gallego
Anyone who uses Facebook and has a sentimental friend or two is
used to seeing lots of platitudes. I’m sure it’s not the first, but it may
be the most famous: the British government had signs printed that
read, “Keep Calm and Carry On,” to use in case of an imminent threat
of German invasion. The sentiment has become so ubiquitous that the
BBC has speculated it might be the greatest motivational poster ever designed.
Our Community has been hit hard through this past summer. Robin William’s suicide has
certainly left a hole in the heart of American pop-culture, but it has more directly left us
with a pit in our hearts and our stomachs thinking about that very dark side of Parkinson
Disease. But we keep calm and carry on.
Closer to home, our dear past President and one of our founding fathers, Irving Layton,
has also left us. In his lifetime, he was the recipient of many honors and accolades for
the work that he did, though he always brushed them off and kept right on carrying on.
Even after he left his work behind, he wanted to keep his hand in on what we were doing
– so much so, that every time I went to see him his first admonition was that I didn’t
come to see him often enough. We carry on.
Summer has come and gone, many of us were able to get away from our Florida heat,
but many more of us stayed here and kept right on working. The Community Center is
starting to come together, but we still have a lot of work to do. Now that autumn and
cooler weather is upon us, we have again come together and we carry on. When you live
with PD that is what you do.
And we couldn’t come together in a more glorious way than with Moving Day! This one
day is the high point of our community for the year. My son asked me once: Is Moving
Day a fund raiser or a participant event? The only right answer is BOTH. If you had no
other opportunity to participate in the work that we do, this is the day to join us. If you
have read the Rainbow Books and found them to be helpful, if you have tucked your
Aware in Care kit away in a handy place to grab if you need to go to the hospital, if you
have come to a support group or lecture, if you enjoy a Surf ‘n Turf, if you listen to the
Parkinson Radio Hour, this is a great opportunity for you to give a little back – and to
pay a little forward. It is our equivalent of the ALS Ice Bucket challenge, and it is so easy
to do something worthwhile: www.movingdaybocaraton.org has all the answers. Make
a few phone calls. Let your friends and family know. It is our biggest fund raiser and it
just about pays for all of our activities for the entire year. This year’s Moving Day will
be especially wonderful. There have been a lot of dignitaries and celebrities invited –
including Dolphin cheerleaders and alumni, so bring a camera and a book for autographs
with you. Remember to tuck a lawn chair or two into the car trunk for the lawn concert
after the walk. Donations can be made through the website, by check to the PO Box
address, or at the registration desk that day.
Robert Hale
Paul Kelly
BethAnn Krug
Marilyn Perlin
Phyllis Riesner
Heidi Rosenberg
Ray Schwartz
Dr. Arlene Teichberg
Board Members
Other events will follow close behind. Last year, we started sponsoring a Fashion Show
and we continue with that the week after Moving Day. This year’s Golf Tournament will
be played on the St. Andrews Country Club course on December 1. Looking forward
to next year, on January 25, we will again have our Zeke Jabbour sponsored Bridge
Tournament. These are our fund raisers. If you want to have a great time and also know
that your money is going to help a great cause, please join us for any or all of these
activities.
Every month we offer a lecture, with speakers that have not only the most relevant
information, but also are often instrumental in our daily wellbeing. We have again
changed our venue – this time to the Community Center in Boca Raton. We always
provide a little something to eat, along with the education. In this intimate and informal
setting you can come and meet some of the top movement disorder specialists, many
LifeLines Autumn 2014
From the Executive Director
of whom we have already spotlighted
on our radio show. Don’t miss these
opportunities. They are priceless!
By Stuart Perlin
This past summer has been an extremely difficult time for our Chapter.
We lost Irving Layton, the President Emeritus and longtime leader of our
Chapter. We can never repay Irving for what he has done for the Parkinson
Community. Please see our the heartfelt tribute to Irving below.
We will be varying the day and times of
these monthly lectures to accommodate
the speakers, but also to avoid
interfering with other activities. They
will always be in the afternoons now,
so they don’t conflict with Surf ‘n Turf
in Boynton Beach, but sometimes they
will be on Monday and sometimes on
Wednesday. Check the Activity Calendar
in this issue and watch for our Save-the
Date cards. If you have any questions,
you can always call the Community
Center at (561) 962-1702. Leave a
message and I will get back to you.
The Board of the South Palm Beach/Treasure Coast Chapter of NPF and I again would like to
thank you for your Membership and support. Our Community Center is up and running. We are
very thankful for our Partnership with National in Miami and the Center is a great example of
that Partnership. We have moved our Monthly Seminars to our center. It has become our home.
We have added new classes there as well, such as the Balance, Tai Chi, and Yoga classes.
One of the other posters produced by the
British Ministry of Information in 1939
read, “Your Courage, Your Cheerfulness,
Your Resolution Will Bring Us Victory.”
So, keep a British-style stiff upper lip,
and together we will muddle through.
Bless you all!
Our radio show, The Parkinson Radio Hour, now has over 100,000 listeners in the US and over
10,000 outside of the country. We have become the voice of Parkinson Disease in the US, and
are extremely proud of what the show has become. We receive calls from experts all over the
world who want to be on our show.
We are about to enter our most challenging time ever for our Chapter. We have Moving Day
on November 16, at which time our Scholarship Program will be judged. Our fashion show,
Fashion Under the Stars, takes place on November 20, and our 10th Annual Golf event follows
on December 1, at St. Andrews Country Club. On January 27, we will host our annual Sanctioned
Bridge event, Zeke Jabbour’s Play with the Stars, again at St. Andrews Country Club.
We hope to see all of you at Moving Day and our other events as well. Please join us and
support all of our major events, and continue to help us spread the word and fight the fight
against Parkonson Disease.
A Heartfelt Eulogy for Irving Layton
By Stuart Perlin
What do you say when you lose a hero? How do you express
the sense of loss of a man who changed the world for the better?
Irving Layton was such a man.
In 2001, a neighbor of Irving asked him to help with a small
Parkinson group. Before long, Irving was the president of the
Chapter. That was the start of a Legend.
Irving never had PD; he wanted to help his neighbor who no
longer felt he could help the Chapter. By 2013, when Irving
was in his mid-90s and in less than great health, he resigned the
Presidency of our Chapter. In those 12 years, our Chapter raised
over two-million dollars and granted over one million to support
research and quality of life programs. Our Chapter, to this day,
has raised more money and has more support groups and exercise
groups than any Chapter in the country. We have expanded from
South Palm Beach to the Treasure Coast.
Irving was very close to the founder of NPF, Nat Slewett, as they
were from the same time. There was a special kinship between
the two and when Nat left, he took a piece of Irving with him.
But nothing stopped Irving from his mission. The people who
www.npfsouthpalmbeach.org
knew Irving best had a saying – we were
Irving’d. That meant you were chewed
out by a 95-year old man who kicked
your butt with love. I say this to his sons
and friends: throughout his life, if he
loved you, you were Irving’d.
There is a term: ‘an 800-pound Gorilla’, and there is a photo
of Irving as a visual explanation. Yet, everyone loved him.
Everyone! You couldn’t help it. He did things his way; if you
could convince him to do something another way, you were real
proud, as you knew you were correct. The times it happened were
few and far between, but he did listen and let you know he was
proud of you when you were correct.
He was a legend in business and life. There was only one Irving;
the mold was created and broken with him. What a man. To his
family, we share in the tremendous loss of Irving. He taught me
as much as anyone, except my Dad. I loved him like my Dad.
The world spins a little slower today and the hundreds of
thousands of people he helped, who did not know him, will feel
his loss.
page 3
Third Annual Boca Raton Moving Day is
here! Are you ready?
Sunday, November 16, 2014
In cities all over the United States, the NPF holds events designed to raise
awareness and money to continue the fight against Parkinson Disease. But to us, the
members of the South Palm Beach Chapter, it is much more than that. It is our way
of saying: We will not give in to this! We will stand and fight together!
You can join us to honor your own fight or the fight of a loved one affected by Parkinson Disease. There is still time to start a team made up of
your friends, family, co-workers, or people from your place of worship. Invite them to join us for this one morning.
You can start a team, join a team, contribute to an individual, or find and contribute to an existing team by visiting www.movingdaybocaraton.
org. You can also contribute at the registration table on the morning of the event. Alternatively, you can bring a donation to the Parkinson
Community Center any weekday between 10:00 a.m. and 1:00 p.m. or you can send a check made out to “SPBCC National Parkinson
Foundation” to:
National Parkinson Foundation
PO Box 880145
Boca Raton, FL 33488
(If you want your contribution to be attributed to a walker or a team,
just write the name on the bottom of the check.)
Donations will be accepted for several weeks after the event.
What you need to know:
Date: Sunday, November 16, 2014 (We will walk, rain or shine!)
Times: Registration starts at 8:00 a.m., Activities start at 8:30 a.m.
The Solidarity Walk starts at 10:00 a.m. Walk one step, a mile, or just cheer on other walkers!
Location: FAU Stadium, located in the center of the FAU campus!
(Enter the campus at either entrance from Glades Road and follow University Drive around.
The stadium is at the far north end of the loop.)
Parking: Park in the new covered parking lot just to the west of the stadium!
Awards, Prizes, Concert: Scholarship awards, raffle drawing, and lawn concert will begin immediately after the walk.
Additional information & activities:
Dress comfortably for MOVING! Our Solidarity Walk is short, just
one turn around the FAU Stadium, but you will be walking on an
asphalt pathway. Chairs will be provided in a shaded area for those
who want to wait for the walkers. Bring a hat and, especially if you
are using a Levodopa medication, use sunscreen!
We will have food and water available and medical personnel
available in case of an emergency.
Please bring your children and grandchildren. There will be events
and entertainment for their enjoyment. This is a family event and it
does us all good to see the kids!
Come sing with our Surf ‘n Turfers, dance with the Zumba pro,
practice Yoga and Tai Chi, and learn about things you can do to
improve your balance.
The Movement Pavilion this year will include individual therapy
stations manned by Nova Southeastern and Keiser University therapy
students who will show you things you might be able to do for
yourself.
Our first annual Parkinson Scholarship finalists will be selected!
Come meet all the participants and offer your encouragement.
Pack some lawn chairs in the trunk of your car! After the walk, there
will be a drawing for a wonderful raffle give-away and a two-BAND
CONCERT on the grass!
Come and meet the Dolphin Cheerleaders and Alumni players.
Congressman Ted Deutch and Boca Raton Mayor Sandra Haynie will
be walking with us!
Put a couple of extra dollars in your pocket. NPF merchandise items
will be available for sale. Get them here and avoid the shipping
charges.
page 4
LifeLines Autumn 2014
Our NEW Scholarship Program
If there must be trouble, let it be in my day, that my child may have
peace. -Thomas Paine
The generations don’t stop coming and
the best hope we have for a world that
exists without Parkinson Disease may
rest with our young people who are
getting ready to graduate. The South Palm
Beach County Chapter of the National
Parkinson Foundation together with the
School District of Palm Beach County
have defined and set up a Scholarship
Program to help support two deserving young people coming out of
the Biomedical and Medical Sciences Academies and who plan to
continue their education at Florida Atlantic University.
The students must meet a minimum requirement of a 3.5 GPA and
demonstrate exemplary community service. Thirty participants will
be selected by their teachers, who will provide a written teacher
recommendation to complement the student’s written biography.
Each student is also required to submit a narrative in the form of an
inspirational essay describing their own relationship to Parkinson
Disease. Finally, each student will put together a project that will be
reviewed and judged. The six finalists’ projects will be presented and
judged in a special tent at the Moving Day event.
We are grateful to Florida Atlantic University, Florida Power and
Light, The Snow Foundation, and Scripps Foundation of Jupiter
for financing the scholarship. These are organizations that see and
understand what we are striving to do and why we do it. We are
especially grateful to Dr. Miguel Benavente of the Palm Beach
County School District Department of Choice for seeing and
believing in our vision.
Please stop by the Scholarship Tent when you join us at Moving Day.
Say hello to our new young friends and their families, and let them
know that we are grateful for their efforts to understand our pain and
sense of urgency. With their help, maybe our generation will be the
last to experience PD!
Balance Workshop with
Allegiance Home Health and
Rehab
Afraid of falling? It could be a disaster and something that
PD’ers especially need to be concerned about!
Please mark your calendar: The wonderful Balance Workshop
activity will continue on the following dates: November 26,
December 3, December 17, January 14, January 28, February 11
and February 25.
Join Allegiance at the Parkinson Community Center on these
Wednesday afternoons at 1:00 p.m.
From the Clipboard
of Jack Mueller
Jack’s Story!
My story starts in November 2000, when
I tripped and fell on my right side and bruised my shoulder.
About mid-December, I started getting an slight tremor in my
right hand, but I didn’t think anything of it.
When that once-in-a-while tremor became an everyday thing
I started to get worried that something was wrong. My annual
exam at my doctor was set for April, so I waited till then.
When I told my doctor what had happened she sent me to the
orthopedist for my shoulder and a neurologist for the tremor.
At that point I didn’t know a single thing about PD, and did
not even have the slightest hint that I might have PD.
Once diagnosed, over the next five to six years, my wife and
I went to every type of meeting to learn more about PD, so I
could try to keep active and stay fit in body and mind.
All the groups that I joined (Take Charge, A.P.D.A., N.P.F.,
and SPBCCNPF) all agreed:
#1 Keep yourself busy!
#2 Take your meds on time.
#3 Keep exercising at least 3 to 4 days a week,
What does it mean to keep yourself busy? Find a hobby or
find a student that you could teach that hobby. An active mind
and a good outlook mean no room for depression.
When you are on time with meds it means your mind and
body are both on an even keel.
When you exercise you keep your body and mind in shape.
Now for the #1 thing to remember:
I MAY HAVE PARKINSON, BUT PARKINSON DOES
NOT HAVE ME! I will never give up my body and mind
to PD.
Try to remember those last two lines and say them every day
Find one thing that makes you happy to do and you will get
loads of pride from it! I feel that by me getting PD, it was
like a blessing, because I am able to help many more folks
through the learning phase of PD.
THINK POSITIVE AND YOU GET A GREAT
FEELING!
Call Bonnie at (561) 445-3708, for more information.
www.npfsouthpalmbeach.org
page 5
People with PD Can’t Sing and
Dance!
Have I got your attention? This prejudiced lie is the theme for
our musical theatre presentation, Sing Anyway. One of the most
meaningful lines of the song, which shares the same name as the skit,
is “Life isn’t always what you had in mind. Some of the harmony
gets left behind. Sing anyway!”
Music therapy has become a mainstream treatment to help people
with Parkinson Disease maintain their breathing and vocal quality.
Our approach offers patients an outlet to practice the skills that they
learn from speech pathologists through therapy. It is threefold:
First, we have a support group meeting led by licensed social
worker Arlene Teichberg, who is well-versed as both a counselor
and patient of 29 years.
Second, we teach vocal aerobics, which helps us to maintain our
speaking and singing voices.
And finally, we sing! …And now we will act!
Similar to the Tremblecleffs and the Sing for PD program in
Brooklyn, we work on specific breathing techniques and clear
pronunciation of the lyrics. Most importantly, we have a lot of fun.
Yes, we serve breakfast refreshments, too.
Parkinson Disease Exercise
Program BIG & LOUD
Presented by
BETHESDA HEALTH
OUTPATIENT REHABILITATION
In Partnership with
South Palm Beach County Chapter
NATIONAL PARKINSON FOUNDATION
Time: 10:30 a.m. – 11:30 a.m.
COST: FREE
Class Schedule
November 11, 25
December 9, 23
Please note: Dates are subject to change
Location:
Bethesda Hospital East
2815 S. Seacrest Boulevard
Bethesda Heart Hospital
3rd Floor Conference Center
Boynton Beach, FL 33435
(561) 292-4950
Program:
10:30 a.m. – 11:00 a.m.
LSVT® BIG
Rebecca Latino, PT
LSVT® BIG certified
11:00 a.m. – 11:30 a.m.
Voice/Music Program
BethAnn Krug
Our Surf ‘n Turfers meet every Wednesday from 10:30 a.m. – 12:00
p.m. at the Parkinson Community Center, located at 21301 Powerline
Road (at Boca Grove Boulevard), Suite 300.
Come and see whether people with PD can sing and dance! It will be
a happy surprise.
Call BethAnn Krug at (561) 573-6387 for more information.
Because We Can •••
We’ll Sing Anyway!
The Surf ‘n Turfers have prepared some songs that
will inspire you and encourage others with PD, to Sing
Anyway! Our vocal aerobics class invites you to join
us and enjoy a musical production of songs, theater,
and even a little dance.
Sunday, November 9, 2014
2:00 p.m. – 3:30 p.m.
Parkinson Community Center
21301 Powerline Road, Suite 300, Boca Raton, FL
Light refreshments served.
Donations will be appreciated. All donations for this
event will go toward Moving Day.
Call BethAnn Krug (561) 573-6387 if you would like
to reserve seats for your group.
page 6
LifeLines Autumn 2014
Joys of Aging
Paradise Home Health Care
Invites you to spend an evening with awardwinning author Harry J. Getzov and
“2,000 of his closest friends.”
“gOLD – The Extraordinary Side of Aging”
Wednesday, January 21, 2015 – 7:00 p.m.
At Abbey Delray South
1717 Homewood Blvd.
Delray Beach, 33445
Raffle Prizes include: a 2-Night Stay
at the Boca Raton Marriott & More!
Tickets: $25.00/two for $40.00. Refreshments served.
Make Checks & Donations payable to:
SPBCC National Parkinson Foundation.
All proceeds will benefit persons and families living with
Parkinson Disease through the South Palm Beach County
Chapter of the National Parkinson Foundation.
Young Onset Parkinson Disease
The South Palm Beach Chapter of the National Parkinson Foundation
invites you to our support group for people affected by Young Onset
Parkinson Disease. Our support group offers emotional support,
guidance, and hope to those individuals affected by Young Onset PD.
We also provide vital information on new medications, upcoming
treatments, and new techniques associated with Parkinson Disease.
Meetings are held on the first and third Wednesday of the month
7:00 p.m. – 8:00 p.m.
Parkinson Community Center
21301 Powerline Road, Suite 300
Boca Raton, FL 33433
Our primary goal is to improve the quality of life for those who
have Parkinson Disease, including their care-partners, and family
members. An estimated 60,000 people in the Parkinson community
can benefit from our Chapter's work.
Support programs of the South Palm Beach County Chapter of the
National Parkinson Foundation are available throughout Palm Beach
County and in St Lucie County. For more information, contact Paul
Kelly: (954) 684-4703 or Lilli Gallego: (718) 749-2863.
Passionate and Precise, the
Tango is Also Therapeutic
By Amy Ellis Nutt
The Washington Post
Scientists in the United States have confirmed what
researchers around the world have suspected for some
time: "Slow ... slow • quick-quick-slow,” the basic steps
to the dance pattern known as the tango, are good for your
mental and physical health.
At the University of Washington School of Medicine,
Gammon Earhart, a professor of physical therapy, found
that tango dancing in patients with Parkinson Disease,
a neurodegenerative disorder, improved their motor
symptoms and balance over a two-year period. Parkinson
patients have trouble walking and especially turning while
walking.
"Participation in community-based dance classes over two
years was associated with improvements in motor and
non-motor symptom severity, performance of activities of
daily living, and balance in a small group of people with
PD,” the study's authors noted in the September 5 online
edition of the Journal of Alternative and Complementary
Medicine. "This is noteworthy given the progressive
nature of PD and the fact that the control group declined
on some outcome measures over two years.”
This is not the first time the tango has made headlines.
In 2005, a study out of McGill University in Montreal
found that after ten weeks, elderly tango dancers showed
boosts in everything from self-esteem and multitasking to
memory and motor coordination.
In 2009, patients in Buenos Aires' largest psychiatric
hospital took part in regular tango sessions where they
danced with doctors and nurses.
"Treatment is not just about therapy and drugs, it's about
giving them a nice time to enjoy themselves,” Trinidad
Cocha, a psychologist who taught the weekly tango class
at the hospital told reporters at the time. "They relax
and all the labels disappear. We're not doctors, nurses,
musicians or patients. We're just tango dancers.”
The therapeutic effects of tango span Alzheimer's patients,
where it helps memory, to couples undergoing counseling,
where the tango's tight embrace and backward walk
require not only intimacy but communication and trust
between the dance partners.
''With tango, you have the advantage of having many
different styles of dancing to fit each specific patient,”
Martin Sotelano, founder of the International Association
of Tango Therapy, told Reuters in 2009. "You focus on the
embrace and communication for couples’ counseling; the
eight basic steps of tango for Alzheimer's; and the tango
walk that requires so much grace and rigidity can help a
patient with Parkinson.”
www.npfsouthpalmbeach.org
page 7
Chapter Activity Calendar
BOCA RATON
(a SPBCC NPF program)
When
Where
Contact Info.
PD Education
Wed, Nov 19, 2:30 p.m. Dr. Sengun
Mon, Dec 8, 1 p.m., Dr. Moore
Mon, Jan 12, 1 p.m., Dr. Luca
Parkinson Community Center
21301 Powerline Road, Ste. 300
Boca Raton, FL
Office: (561) 962-1702
Bonnie: (561) 445-3708
Surf n’ Turf
Caregivers Support
Group
Every Thursday, 11:30 a.m.
when Palm Beach schools are in session
Peter Blum Family Center
6631 Palmetto Circle South
Boca Raton, FL
Eunice: (914) 282-7791
Karen: (561) 385-3487
Caregivers only
Support Group
Concurrent with Balance Workshop:
Wednesday, 1 p.m.
11/26, 12/3, 12/17, 1/14, 1/28
Parkinson Community Center
(561) 962-1702
Early Onset
Support Group
1st and 3rd Wednesdays, 7:00 p.m.
Parkinson Community Center
Paul: (954) 684-4703
Activities
Surf n’ Turf:
Tuesday and Thursday – 11:30 a.m.
Peter Blum Family Center
Office: (561) 962-1702
Yoga: Fridays, 11:00 a.m.
Tai Chi: Fridays, 12:00 p.m.
Parkinson Community Center
Office: (561) 962-1702
Vocal Enhancement:
Wednesdays 10:30 a.m.
Parkinson Community Center
BethAnn: (561) 573-6387
Balance Workshop: Wednesdays 1 p.m.,
11/26, 12/3, 12/17, 1/14, 1/28
Parkinson Community Center
Office: (561) 962-1702
DELRAY BEACH – Abbey Delray South
PD Education
When
Where
Contact Info.
Last Friday, 12:30 p.m.*
(except Dec) 10/24, 11/21, 1/30, 2/27
1717 Homewood Boulevard
Delray Beach, FL
Ron Arflin: (561) 454-5242
* Please RSVP one week ahead for lunch count.
DELRAY BEACH/BOYNTON BEACH
When
PD Education
Support Group
Caregivers-only
Support Group
Activities
(a SPBCC NPF program)
Where
2nd Thursday, 10:00 a.m.
11/13, 12/11, 1/8, 2/12
2nd Thursday, 11:00 a.m.
2nd Thursday, 11:00 a.m.
Surf n’ Turf: Mondays,
Wednesdays, Fridays, 10:00 a.m.
Weisman Delray
Community Center
7091 W. Atlantic Ave.
Delray Beach, FL
Weisman Delray Community Cntr.
Weisman Delray
Community Center
DeVos-Blum Family Y
9600 So. Military Trail, Boynton Bch.
Contact Info.
(561) 558-2157
Kosher
Karen: (561) 385-3487
Karen: (561) 385-3487
(561) 738-9622
ROYAL PALM BEACH
When
PD Education/
Support Group
1st Monday, 10:30 a.m.
Caregivers Support
Group
4th Monday, 10:30 a.m.
Activities
Chair-based exercise:
Mondays, Wednesdays, 10:30 a.m.
Where
Royal Palm Beach Recreation
Center: 151 Civic Center Way
Royal Palm Beach, FL
Royal Palm Beach
Recreation Center
Royal Palm Beach
Recreation Center
Contact Info.
Bernice:
(561) 798-7798
(561) 798-7798
(561) 798-7798
LifeLines Autumn 2014
WEST PALM BEACH
(a SPBCC NPF program)
When
Where
Contact Info.
PD Education
3 Wednesday, 1:00 p.m.
YMCA of the Palm Beaches
2085 S. Congress Avenue, WPB
Christina:
(561) 968-9622
Activities
Surf n’ Turf: Tuesdays and
Thursdays, 10:30 a.m.**
YMCA of the Palm Beaches
(561) 968-9622
Tai Chi: Mondays 12 p.m.,
Saturdays 9 a.m.
YMCA of the Palm Beaches
(561) 968-9622
Qi-Gong: Saturdays 8:15 a.m.
YMCA of the Palm Beaches
(561) 968-9622
rd
** This Y has opened all of their activities to our chapter members. Call Christina for more information.
JUPITER, NORTH PALM BEACH, PALM BEACH GARDENS AND TEQUESTA
When
Where
Contact Info.
PD Education/
Support Group
3rd Friday, 12:30 p.m.
Jupiter Community Center
200 Military Trail, Jupiter, FL
Nancy: (561) 744-1442
Social Support Group
1st Friday, 2:30 p.m.
Jupiter Community Center
(561) 744-1442
Activities
Surf n’ Turf:
Tuesday 9:30 a.m.
Jupiter Med Cntr, Outpatient Rehab
(located behind the main hospital)
1004 So. Old Dixie Hwy., Jupiter
(561) 263-5775
STUART
When
Where
Contact Info.
PD Education
2nd Monday, 1:00 p.m.,
11/10, 1/12, 2/9
On 12/16 join with Port St. Lucie
for a holiday party!
Movers and Shakers
Grace Place Church
1550 SE Salerno Rd., Stuart, FL
Laura: (561) 209-6124
Support Group:
Following PD Education
Laura: (561) 209-6124
PORT ST. LUCIE
When
Where
Contact Info.
PD Education
3rd Tuesday, 2:00 p.m.
11/18, 12/16, 1/20, 2/17
Harbor Place
3700 SE Jennings Road
Port St. Lucie, FL
Laura: (561) 209-6124
Activities
Surf n’ Turf:
Thursdays, 11:30 a.m.
Brennity at Port St. Lucie
10685 SW Stony Creek Way
(772) 345-2700
gram)
VERO BEACH
(an NPF-supported program)
When
Where
Contact Info.
Support Group
Last Tuesday, 2:45 p.m.
Alzheimers & Parkinson Assoc.
2300 5th Avenue
Vero Beach, FL
Peggy Cunningham:
(772) 563-0505
Activities
Surf n’ Turf:
Mondays, 11:30 a.m.
Brennity at Vero Beach
7975 17th Lane
Vero Beach, FL
VIP America Home Health Care,
Janet Wild: (772) 631-4458
Qi-Gong: Thursdays, 1:30 p.m.
Alzheimers & Parkinson Assoc.
(772) 563-0505
Parkinson Exercise:
Tuesdays, 2:45 p.m.
Tremble Class Voice
Enhancement: Fridays, 1:00 p.m.
Alzheimers & Parkinson Assoc.
(772) 563-0505
Alzheimers & Parkinson Assoc.
(772) 563-0505
Visit the Alzheimers & Parkinson Association website at http://www.alzpark.org/
The Effectiveness of Exercise in
Slowing Parkinson Disease
By Arlene Teichberg, Ph.D, ACSW
This is a mini report on the effectiveness of exercise in slowing Parkinson
Disease. The background of this study is as follows: The South Palm Beach
County Chapter of the National Parkinson's Foundation runs Surf n’ Turf
Programs at several YMCAs in Palm Beach County; Surf meaning the aquatic
component and Turf meaning the land exercise component. At the Boca
YMCA, Noah Fields, the aquatic instructor, presented an idea for an exercise
program to Irving Layton, then President of the Chapter. Anna Palermo, the
exercise instructor for the Turf part of the program at the Boca Y began testing
participants in the land exercise program every five to six months, from 2009 to
May 2014.
These records suggest that continuous exercise plays a role in slowing down,
and in a few cases, improving standardized test scores. Eighteen subjects were
listed as having Parkinson and completing testing three or more times over a
period of at least 17 to 18 months. (This was my criteria.) Anna listed 45 people
who participated, but were not included because they either dropped out of the
exercise program, were snowbirds that left Florida, or they had died.
Six standardized tests were included: (1) chair sit to stand for 30 seconds; (2)
arm curls eight times for women with a 5 lb. weight, eight times for men with an
8 lb. weight; (3) being timed when getting up from a chair, walking eight feet,
turning around a cone, walking back to the chair and sitting down; (4) sitting and
reaching forward with the same arm and same extended straight leg; (5) the back
scratch: placing one arm over the back of your neck and the other arm under your
back trying to make both hands touch; and (6) step-ups, where you stand and
march in place, timed for 30 seconds (instead of 120 seconds). The scores were
then multiplied by four.
Parkinson's is a variable disease. Some people could not perform certain tests
because they had walkers or wheelchairs, and they received non-applicable
scores for those tests. Some people were at the end of their medication
dose when they took the tests. For others, the slide in scores was due to the
progression of their illness. Other significant factors influencing test outcomes
related to the small sample size and rater reliability.
Four questions were asked and each person's score for each test during the
two or more years of testing was separately measured. No comparison was
made between test subjects, because they were all at a different level of disease
progression. Preliminary observation sought the following information:
Question 1. How many people showed four or more improvements in the six
categories of tests?
Question 2. How many people showed three or more improvements in the six
categories of tests?
Question 3. How many people had three or more stable scores?
Question 4. How many people had three or more scores that declined?
There was a high rate of variability in test scores between subjects, possibly
relating to the degree of Parkinson's symptoms present. Approximately 50
percent of the people maintained relatively stable test scores and about 6 percent
showed improvement in four out of six test scores.
Exercise programs highlight the need for expanded studies to determine the
relationship between stable or improved test scores and Parkinson's quality
of life. This local Chapter is to be commended for developing a preliminary
research design, which warrants expansion into a larger study with more recruits
and more tailored exercises.
page 10
Is Parkinson Disease
Hereditary?
Did you know that about 10% of all cases of
Parkinson Disease (PD) are genetic? In fact, a
gene called LRRK2 is the greatest known genetic
contributor to PD and is found more commonly in
some ethnic groups than in others. For example, a
mutation in the LRRK2 gene is found among 15
percent of Parkinson Disease patients of Ashkenazi
Jewish ancestry.
While having a mutation in the LRRK2 gene can
increase your chances of developing Parkinson’s
disease, many people with the mutation will not go
on to develop the disease. The LRRK2 gene is the
subject of intense investigation by Parkinson Disease
researchers around the world because of its potential
to lead to medical breakthroughs for all people with
PD, not just those with a genetic form.
Over the past decade, studies focused on the genetics
of Parkinson Disease have revolutionized the pursuit
of a “disease-modifying treatment” – a therapy that
can slow or stop the progression of PD. To date, no
disease-modifying treatment has been discovered
– it is the single greatest unmet need of Parkinson
patients today. For this reason, families of Ashkenazi
Jewish heritage that carry a LRRK2 mutation have a
vital role in this research.
One study in particular, the Parkinson Progression
Markers Initiative (or, PPMI for short), is seeking
to learn more about how the LRRK2 gene can
sometimes lead to Parkinson Disease. PPMI is the
landmark study of The Michael J. Fox Foundation
for Parkinson’s Research and is taking place at 32
clinical sites worldwide. The goal of PPMI is to
identify indicators of PD progression to ultimately
enable early and accurate detection and potentially
help identify new and better treatments for future
generations of people with Parkinson.
Today, PPMI needs volunteers to participate in this
study and is seeking individuals who meet either of
the following criteria:
• People with PD who are of Ashkenazi Jewish
ancestry
• People without PD who are related to someone
with PD AND who are of Eastern European
Ashkenazi Jewish ancestry
Because PPMI is an observational study, participants
do not take any experimental drug or placebo.
Individuals who meet either of these criteria may
be eligible to receive genetic counseling and
testing at no cost to determine if they may qualify
to participate in PPMI. Find out how you can
get involved by visiting www.michaeljfox.org/
FLgenetics or calling (888) 830-6299.
LifeLines Autumn 2014
There’s a New
Movement Disorder
Neurologist in Town!
Meet Dr. Arif Dalvi
Arif Dalvi, MD, MBA is leading the
Comprehensive Movement Disorders
Program at Palm Beach Neuroscience
Institute and has recently joined the
Advanced Neuroscience Network – an
integrated delivery system of medical professionals and hospitals
focused on offering a full continuum of neurological care throughout
South Florida.
He is a board-certified neurologist and has conducted research for
more than 15 years on the surgical and pharmaceutical treatments
of Parkinson disease. He is a member of the International Parkinson
Study Group and is on the advisory board of the International
Essential Tremor Foundation. He has been awarded the Doctor of
Excellence Award by the Dystonia Medical Research Foundation. He
was formerly Director of the Neurology Residency Program at the
University of Chicago, Pritzker School of Medicine.
Dr. Dalvi is fellowship trained in Parkinson Disease from Columbia
University in New York. His research interests have included novel
treatments such as deep brain stimulation and nerve growth factors,
e.g. glial cell-derived neurotrophic factor (GDNF) for Parkinson
disease. He has also worked on clinical trials for many of the recently
FDA-approved drugs for Parkinson Disease, as well as on the study
of genetic factors in Parkinson Disease.
Dr. Dalvi has published widely on Parkinson Disease in a number of
peer-reviewed journals including the Journal of Neurosurgery, Annals
of Neurology and Movement Disorders. He also has published book
chapters on Parkinson disease, Alzheimer’s disease, Parkinson-plus
syndromes, tremor disorders, normal pressure hydrocephalus and
dystonia.
Controlling the
Causes of Drooling
In patients with Parkinson Disease, drooling may occur due
to "hypersalivation," but more often, it occurs because one
forgets to swallow as often as needed. Phlegm and mucus
are not at all uncommon among PD sufferers. Here are a few
suggestions to help alleviate the problem:
1) Alkalol: Medications, breathing through the mouth,
sleeping with the mouth open, using medications that cause
dry mouth, and other conditions can sometimes lead to a
buildup of sticky mucous that is difficult to swallow. If
drooling occurs, ask your dentist whether it might be helpful
to try swishing the mouth, or gargling, with Alkalol, a
mucous solvent. Its ingredients include thymol, eucalyptol,
menthol, camphor, benzoin, potassium alum, potassium
chlorate, sodium, bicarbonate, sodium chloride, and oils of
sweet birch, spearmint, pine, and cinnamon, plus 2/100 of
one-percent alcohol. It is commonly used as a mouthwash,
nasal spray, and gargle, to cut mucous. People with sleep
apnea, singers with throat irritation, and others use Alkalol,
but it is fine as a daily mouthwash also. Alkalol is available
at most U.S. drugstores; if your dentist agrees it might be
useful, ask the pharmacist to point it out. If they don't carry
it, the pharmacist can order it from The Alkalol Company,
Taunton, Massachusetts 02780-0952.
2) Sips of pineapple juice (not pineapple drink or juice
with sugar…just plain juice) or papaya (the fruit) will help
relieve the throat of mucous and excess saliva.
3) The combination of fenugreek and thyme has helped
a number of people who have problems with drooling or
excess mucous. It can be obtained in capsule form at many
health food stores.
Dr. Dalvi has three convenient locations in Palm Beach County,
with the main location in West Palm Beach at 901 Village
Boulevard, Suite 702. His Palm Beach Gardens office
is at 3375 Burns Road, Suite 101, and the Delray Beach
office is at 5162 Linton Boulevard, Suite 106. Dr. Dalvi is
also on staff at Good Samaritan Medical Center in
West Palm Beach.
www.npfsouthpalmbeach.org
page 11
Genetic Variations Related to Gastrointestinal System
Linked to Parkinson Disease
A new study bolsters the theory that Parkinson Disease (PD) may begin in the digestive system. In research published
in the May 17 online edition of Movement Disorders, scientists report that variations in the genes for certain intestinal
proteins responsible for keeping the gut healthy may be associated with an increased risk of PD.
The human intestines are lined with trillions of microorganisms, some helpful and others harmful. Several lines of
evidence point to a role for the digestive tract early in PD. For example, clumps of alphasynuclein – the hallmark of PD
in the brain – have been found in nerve cells of the colon in people who later developed PD. In addition, constipation is a
common early symptom of PD, as are inflammation of the gut and an overgrowth of certain bacteria in the small intestine.
Researchers, led by Samuel M. Goldman, M.D., M.P.H., at the San Francisco Veterans Affairs Medical Center,
wanted to understand whether genetics can explain why some people develop PD and others may not. Following
up on the gut-PD link, they asked whether variations in the genes encoding key proteins in the intestines may be
correlated with increased or decreased risk for PD. These gut proteins are called peptidoglycans and help the
body’s immune system recognize and respond to bacteria. But the components of these proteins can vary slightly from
person to person.
To test whether variations in the genes for the peptidoglycans proteins were associated with PD risk, the researchers
analyzed DNA in blood samples collected from 518 people with PD and 543 healthy individuals. Participants were drawn
from two earlier studies.
Results
• Common variants in three of four genes encoding peptidoglycan proteins were associated with an altered risk of
PD – both decreased and increased risk.
• The results were similar in two distinct populations of people with PD.
What Does It Mean?
This study is the first to link genetic variations in bacteria-responsive gut proteins called peptidoglycans to
Parkinson Disease. In light of other associations between the gut and PD, the authors suggest that peptidoglycan proteins
may play a role in causing the disease by influencing a person’s immune response to bacteria in the gut. Because this
epidemiological study did not actually demonstrate that these genetic variations actually precipitated PD, further research
is needed to discover the mechanisms by which these proteins are linked to PD. Nevertheless, this study helps define a
new direction for scientists to pursue an understanding and potential treatment for Parkinson disease.
This article was originally published as part of Parkinson’s Science News: What Does It Mean? on the Parkinson’s
Disease Foundation (PDF) website on June 17, 2014.
page 12
LifeLines Autumn 2014
Treating Hearing Loss
May Help Prevent Falls
Hopeful News from the
Foxfeed Blog
Every year, approximately one-third of American adults 65 and older experience
a fall, according to a report from the Healthcare Cost and Utilization Project. The
direct medical costs for fall-related injuries among the elderly exceeds $20 billion
annually, and is expected to increase as the U.S. population continues to age.
Parkinson Vaccine Safe in Phase I Trial
A treatment that could slow or stop Parkinson
Disease today took one step closer to pharmacy
shelves when the Austrian biotech AFFiRiS AG
announced positive results of its Phase I safety
trial of a vaccine against alpha-synuclein.
In discussing how to prevent falls, we typically talk about obvious causes, such
as uneven floors or outdoor surfaces, slippery bathtubs, loose rugs, and health
conditions. New research points to another possible cause: hearing loss, which
affects an estimated 10 percent of the U.S. population and nearly one-third of
adults 60 and older.
People with even a mild hearing loss of 25 decibels are three times more likely to
fall than those in the normal-hearing population, and each additional 10 decibels
increases the risk of falling by 1.4 times, according to a Johns Hopkins University
School of Medicine researcher who studied 2,000 adults ages 40 to 69.
Researchers aren’t certain why hearing loss contributes to the risk of falling.
They hypothesize that people who can’t hear well may not have a good overall
awareness of their environment, making them more susceptible to tripping and
falling. Hearing loss may also place a large “cognitive load” on individuals,
interfering with their ability to maintain balance and gait.
Lastly, people who cannot hear well tend to stay by themselves and may be less
active, according to the American Speech-Language-Hearing Association (ASHA).
Reduced physical activity, in turn, may increase the likelihood of a fall.
If you suspect hearing loss, HearPO providers
are qualified to test your hearing and,
if necessary, provide treatment
with hearing aids. Call (888) 689-6281
or visit www.hearpo.com/legion to
schedule an appointment.
Alpha-synuclein is the sticky protein that clumps
in the cells of people with Parkinson, and AFFiRiS
hopes to stop disease by inducing antibodies
against alpha-synuclein accumulation. The
Michael J. Fox Foundation funded this work. This
is the first drug against alpha-synuclein to reach
clinical testing.
"A treatment that could slow or stop Parkinson's
progression would be a game changer for the five
million worldwide living with this disease and
the many more who will become at risk as our
population ages," said MJFF CEO Todd Sherer,
PhD. "This trial is one of the most promising
efforts toward that goal."
A Few Ways We May Stop Parkinson Disease
Scientists think that aggregates of alpha-synuclein
– called Lewy bodies –- are toxic, killing off cells
and leading to PD symptoms. Therefore, avoiding
or breaking up Lewy bodies is a major focus of
research. Projects that target alpha-synuclein to
stop or prevent Parkinson disease may take one of
four approaches:
• Lower alpha-synuclein levels overall: Scientists
hypothesize that less alpha-synuclein means less
opportunity for Lewy bodies, so they are exploring
ways to prevent the body from making this protein,
such as interfering with gene signaling.
• Break up Lewy bodies in the cells: Since clumps
of alpha-synuclein clog up cells, researchers are
working on a therapy that would break up Lewy
bodies (like untying a knot) and allow the cells to
function properly.
• Help the cells clear out Lewy bodies: A cell may
stay healthy if it is able to rid itself of the Lewy
bodies before they have harmful effects.
• Catch Lewy bodies on the move: One theory
proposes that Lewy bodies are released from cells
and infiltrate others to spread the disease. Another
suggests that the diseased cells give off a signal
to other cells that makes the alpha-synuclein in
those secondary cells start to clump. Either way,
if a drug could stop the disease from spreading
between cells, it would stop its progression.
www.npfsouthpalmbeach.org
page 13
Tribute Program
The South Palm Beach County Chapter gratefully acknowledges the following gifts received through October 15, 2014.
These contributions will help support research designed to find more effective treatments and a cure for Parkinson Disease, and will provide
programs and services to improve the lives of Parkinson patients and their families in our community.
Memoriams
In MEMORY of Irving Layton
Jack Mueller
Marilyn Perlin
Paula and Jerry Greenblatt
Jeff and Bonnie Austin
Mr. and Mrs. Peter J Weidhorn
Wendy and Bob Steinert
Carol Goldstein
Marilyn Rudne & Seth Schlegel
In MEMORY of Marian Brems
Mr. and Mrs. Jack Pollock
Robert E. Kinker
Ann Jamo
Jeanne and Don Kiser
Patricia Dahl
Connie and Mike Haglage
The Management and Staff of
Azimuth Capital Management
Mr. and Mrs. Henry C Gessing
Mr. and Mrs. Mark Stebbin
Veo and Jim Martin
Robert & Ann Iams
Donald & Jeanne Kiser
Margery Walz
Kathleen Brickley
In MEMORY of Howard Isaacs
William & Elaine Goldstein
Bobbie & Allen Pilnick
Robert & Jerome Bernstein
Pearl & Leon Hyman
Rochelle & Irwin Kossack
In MEMORY of Bill Weil
Lucille Wisbaum
Leah and Allan Lipman
Sheila Trossman and Bud Anthone
Neil and Judy Kugel
The Saperstein Family
Susan Howard (Mehr)
In MEMORY of Norman Hernberg
Renee and Alan Miller
Lila Bashe and Seymour Sarrel
Joan and Fred Brunswick
David and Joan Demyan
Janice and Bernard Berger
Ms. Ricky Rapoport
Royal Lakes Community
Edith Klein
Rita and David Wachs
In MEMORY of Evelyn Greenberg
From Ruth Palefsky
In MEMORY of Janet Levy
Helaine Gurgold
In MEMORY of Vivian Snyder
Ms. Ricky Rapoport
In MEMORY of Ruth Weinstein
Sylvia Weiss
Mr. and Mrs. Gerald Kershanbaum
In MEMORY of Evelyn Imperial
Ray Imperial
SOUTH PALM BEACH COUNTY CHAPTER N.P.F.
I want to support the mission of the
National Parkinson Foundation by becoming a
MEMBER of the South Palm Beach County Chapter.
Name:
Address:
City:
State/Zip:
Phone:
Email:
page 14
In MEMORY of Robert S. Levy
The Seattle Mariners
In MEMORY of Miriam Sobel
Carol Goldstein
In MEMORY of Norman Hernberg
Muriel Hernberg
Rita Wachs
David & Joan Demyan
Haskell & Ricky Rapoport
In MEMORY of Anna Yang
Margaret Chowdhay
Donations
Renee Miller
Norman Nirenberg
Shirley Vallieres
Dona Kahn
M. Berman
Mary Roderick
Joyce Heitner
Allan Katz
Elaine Christman
Raza Waseeman
Sylvia Weiss
Lila Bashe
Veo Martin
Sally Stebbins
Raymond Imperial
Ruth Palefsky
Mary Roderick
q $25 per person, Annual Membership
q $_________________ Additional Contribution (optional)
q $200 per person, Lifetime Membership
Enclosed is my check payable to the
SOUTH PALM BEACH COUNTY CHAPTER N.P.F.
Return to: P.O. Box 880145, Boca Raton, FL 33488-0145.
For more information, call (561) 306-2090.
STOP PARKINSON’S DISEASE
BEFORE IT STRIKES
SOMEONE WE LOVE!
THANK YOU FOR CARING.
LifeLines Autumn 2014
Holiday Gift Ideas
The holidays are just around the comer. Here are some gift
suggestions that are both thoughtful and beneficial.
National Parkinson Foundation
Featured Products:
Smart Spoon Lift Labs' Liftware – The vibrating spoon/fork makes
eating easier by counteracting tremors.
Whatever It Takes Bracelets (20-pack) $20
A Special Cup So Her Grandpa with Parkinson Disease Can
Drink Without Spilling – Lily, an l l-year-old Skokie, Illinois
girl, designed the Kangaroo Cup. It has three legs to stabilize it,
preventing spills.
Weighted Pen – Makes writing easier. Made for those who have
difficulty controlling their movements. There is an option to add
weight according to your comfort.
Ring Pen – These pens are useful for those who have problems
gripping a pen. Inserting your index finger in the ring space on the
pen, will give more control when writing.
MagnaReady Shirts – Maura Horton designed shirts with magnetic
buttons to help her husband diagnosed with Parkinson Disease tackle
his clothes.
Pretzels for Parkinson – For a special treat, Pretzels for Parkinson
sells scrumptious delicacies that everyone will enjoy.
Food Warmer Dish – This dish is designed for individuals who
require extra time to finish a meal. The plate is kept warm by filling
a chamber beneath it with hot water. It includes a funnel and is
dishwasher safe.
Whatever It Takes Men and Women T-Shirt $18
Whatever It Takes Hat $16
Whatever It Takes Bag $12
Whatever It Takes Mug $11
Whatever It Takes Buttons (5-pack) $10
Massage Therapy Sessions – Massage reduces
symptoms of Parkinson Disease, Massage
Magazine.
Health Benefits of Laughter – Studies have shown
that laughter can help relieve pain, brings happiness,
and even increases immunity. Laughter is healing.
Purchase/rent a comedy DVD or go see a funny
movie.
Yoga Classes – Music, meditation and deep
breathing can help restore a sense of calm. There
are Yoga classes tailored to Parkinson patients.
Renew your Annual Membership to
our Chapter or make a contribution
in your name.
Honor someone for a special achievement or occasion,
encourage a speedy recovery from illness, or pay homage
to a person in memory, and give that tribute meaning by
making a donation in his or her name, to the
South Palm Beach County Chapter National Parkinson Foundation
P. O. Box 880145, Boca Raton, FL 33488-0145,
Or contact Amy Cohen at (954) 415-9996 or [email protected]
We will be happy to send a card letting that person know that
you made a contribution in their honor to HELP FIND A CURE.
What better way to say how much they mean to you!
www.npfsouthpalmbeach.org
Volunteers Needed…
The South Palm Beach County Chapter of
NPF asks for your help:
With administration • With pre-event
planning • With event activities
You can devote as much time as you can
spare, and make a valuable contribution to our
community. If you can help in any way,
please call Bonnie Austin at
(561) 445-3708.
page 15
South Palm Beach County Chapter
NON-PROFIT ORG
U.S. POSTAGE
PAID
BOCA RATON, FL
PERMIT NO. 1949
P.O. Box 880145
Boca Raton, FL 33488-0145
Celebrate victory – don’t dwell on defeat, and count your blessings every day!