Promoting the human rights, interests and dignity of Victorians with a disability or mental illness Community Visitors Annual Report 2011-2012 Mental Health Disability Services Health Services Community Visitors Annual Report 2011-2012 © 2012 Office of the Public Advocate ISSN 1836-3296 Cover: The cover of this annual report is a photo of an art installation by University of Melbourne student Amelia Mellor. Amelia folded 660 origami boats in a rainbow of colors and launched them in the university quadrangle moat one autumn day in 2012. The photo was taken by her cousin. The boats are as diverse as the many Victorians with a disability whose circumstances make them vulnerable to abuse, neglect and exploitation, the theme of this year’s Community Visitors annual report. The Honourable Mary Wooldridge MP Minister for Community Services, Mental Health and Senior Victorians Level 22, 50 Lonsdale Street MELBOURNE VIC 3000 20 September 2012 Dear Minister RE: COMMUNITY VISITORS ANNUAL REPORT 2011-2012 In accordance with the Mental Health Act 1986, the Disability Act 2006 and the Health Services Act 1988 please find enclosed the 2011-2012 annual report of the Community Visitors Mental Health Board, Disability Services Board and Health Services Board. The focus of this year’s report reflects the findings in relation to the disturbing propensity of reports in relation to the abuse, neglect and exploitation of residents and consumers when in the care of others – in this case, service providers. The findings have been drawn from 5104 visits by 360 Community Visitors across the state. The Community Visitors Boards commend the report to you and thank you for your support of the program to date. According to Community Visitors, there is critical work to be done to prevent fellow Victorians with a disability from being abused, neglected and exploited. They look forward to continuing to work with you to prevent this deeply concerning matter. Yours sincerely, Colleen Pearce Public Advocate and Chairperson of the Combined Board Office of the Public Advocate Level 1, 204 Lygon Street, Carlton, 3053. DX 210293 Local Call: 1300 309 337 TTY: 1300 305 612 Fax: 1300 787 510 www.publicadvocate.vic.gov.au Community Visitors Annual Report 2012 1 Ordered to be printed Victorian Government Printer Palimentary Paper No 168, Session 2010-12 Contents 1 Letter of transmission 4Message from the Public Advocate and Chairperson 8Introducing the Community Visitors Boards 10 Introducing Community Visitors 11 Reporting Regions 12Mental Health Statewide themes and recommendations 14 Mental Health Regional Reports 20 21 23 23 24 26 29 35 37 Barwon-South Western Region Eastern Metropolitan Region Gippsland Region Grampians Region Hume Region Lodden-Mallee Region North and West Metropolitan Region (North) North and West Metropolitan Region (West) Southern Metropolitan Region 42Disability Services statewide themes and recommendations 44 Disability Services regional reports 50 Barwon-South Western Region 57 Eastern Metropolitan Region 70 Gippsland Region 71 Grampians Region 75 Hume Region 77 Lodden-Mallee Region 79 North and West Metropolitan Region (North) 83 North and West Metropolitan Region (West) 86 Southern Metropolitan Region 92Health Services statewide themes and recommendations 94 Health Services regional reports 99 101 104 106 106 108 111 112 114 Barwon-South Western Region Eastern Metropolitan Region Gippsland Region Grampians Region Hume Region Lodden-Mallee Region North and West Metropolitan Region (North) North and West Metropolitan Region (West) Southern Metropolitan Region Appendices 117Facilities visited by Community Visitors 2011-12 119 Community Visitors 2011-2012 121Acronyms Message from the Public Advocate and Chairperson “The desire for dignity is universal and powerful. It is a motivating force behind all human interaction – in families, in communities, in the business world, and in relationships at the international level. When dignity is violated, the response is likely to involve aggression, even violence, hatred, and vengeance. On the other hand, when people treat one another with dignity, they become more connected and are able to create more meaningful relationships” Donna Hicks, Dignity –The Essential Role it Plays in Resolving Conflict Abuse and violence Addressing the abuse, neglect and exploitation of people with a disability or a mental illness is a pressing human rights issue, and a key priority area for both my office and Community Visitors. While many people are given caring support by dedicated staff, Community Visitors are encountering an increasing number of people who are victims of abuse, violence including sexual assault, and neglect. The figure on page 5 shows Community Visitor reports of these matters have more than doubled in three years. Government and service providers must act immediately to stop the suffering of vulnerable people with a disability and their families who are being irreparably damaged by abuse. They must also do everything possible to prevent abuse from occurring in the first place and respond with care, concern and immediate action when allegations of abuse are made. This year, Community Visitors reported numerous very troubling cases of assault by staff, serious and unexplained injuries, and people living in fear of violence. In 30 instances, Community Visitors were so concerned for the immediate safety and wellbeing of individuals, I received formal written notifications of these cases. A review of Community Visitors reports and the increasing number of formal notifications reinforces to me, the urgent need for service providers to foster a culture that is alert to signs of abuse, neglect and exploitation, where abuse is not tolerated, where victims and their families are supported without hesitation and incidents are reported immediately and appropriately. Community Visitors have reported allegations of sexual assault in mental health services, Supported Residential Services (SRS) and in group homes for people with a disability. The Health Services Board, so disturbed by allegations of sexual assault in SRS, reported their concerns directly to the Community Services Minister, Mary Wooldridge. 4 In mental health, most services have developed gender-specific areas but Community Visitors still report serious difficulties. At one adult acute unit, the gender-specific area is generally locked at night as it is out-of-sight of the nurses’ station. In other settings, the mix of residents and the pressure on beds makes it hard to justify keeping a separate area available. Not surprisingly, women continue to fear for their safety in many mental health services and SRS where staff struggle to support large numbers of people with a variety of complex needs. In disability services, there have been several wellpublicised cases of sexual assault of residents by staff and other acts of violence against residents. Resident incompatibility and the heightened risk of abuse between residents, continues to be of concern for Community Visitors. In some facilities, people with very different needs are forced to share confined spaces and staff constantly manage potentially volatile situations, resulting in safety concerns or in unnecessary restrictions on an individual’s freedom. Again, this year, Community Visitors cite services where people with violent and challenging behaviours have assaulted other residents and staff. Community Visitors reported multiple incidents of residents being threatened with knives, and of other physical and verbal abuse. In one case, a resident of an SRS murdered another resident. In a mental health facility, a consumer who had been in care for an extended period of time – ‘long-stay’ – was repeatedly assaulted by other consumers, up to three times in a month. Individuals, staff, families and friends, concerned about safety and desperate for help in dealing with challenging situations have accessed OPA’s Advice Service 316 times for advice, support or to request a visit from a Community Visitor. Of particular concern is an increase in reports of significant, unexplained injuries consistent with being caused by assault or trauma. In one case, a forensic physician’s independent review stated that 200 183 180 number of issues identified 160 69 140 120 110 100 91 80 26 27 87 60 66 40 55 20 0 10 17 2009-2010 2010-2011 27 2011-2012 stream Health Disability Mental Health Figure 1. Abuse, Neglect and Assaults across all Community Visitor streams, 2009-2012 ams, 2009-2012 a resident’s injury “does not necessarily require a fall. It does, however, require inappropriate and rough handling as a minimum”. In a different case, the same physician stated, “it is hard to see how such severe injuries could have gone unwitnessed and unrecorded.” If a service provider cannot identify the cause of an injury, how can it guarantee that the person concerned has not been a victim of assault? Moreover, if it is an assault, how will that person be protected from further injury? Neglect Disturbingly, Community Visitors reported cases where fractures and other serious injuries were identified and reported only after bruising, swelling and pain was noted by a third party. While staff report to Community Visitors their struggle in identifying pain in those who are unable to speak, evidencebased, reliable and easy-to-use tools are available to measure and assess pain in such circumstances. It seems these tools are rarely used by staff to assess people with a disability, the consequence being that pain management is minimal, or non-existant causing unnecessary suffering. Poor manual handling practices by staff led to a resident in the Grampians Region nearly having her leg amputated. Comprehensive staff training on manual handling can help prevent injuries to residents with compromised bone density. Community Visitors identified cases where multiple health assessments had been undertaken before fractures were identified. Health professionals often struggle to assess people with a disability who have difficulty communicating, yet Community Visitors report instances where residents are sent alone by ambulance, with no written summary of their communication or health issues and no staff to advocate on their behalf. Consequently, they receive inadequate healthcare that compounds their suffering. Incidences such as these highlight that significant communication and sensory issues may prevent a person raising concerns, and it is imperative that these individuals have access to communication aids. Responding to abuse, violence and neglect The lack of staff training on recognising indicators of abuse and neglect can have dire consequences, with abuse continuing unabated, undetected and unreported. This year’s report highlights an incident where staff witnessed a resident being physically abused by a family member. Staff did not intervene, notify their manager or write an incident report. Abuse can take many forms and it is imperative that staff are trained to recognise physical and behavioural indicators that correlate with abusive situations and are empowered by management to act immediately. Any report of abuse or neglect Community Visitors Annual Report 2012 5 must be taken seriously. Service providers have a responsibility to report all such incidents as soon as possible and ensure people are safe from harm. To create safer environments and to transform a culture that tolerates violence and abuse, a comprehensive abuse prevention program needs to be introduced. Service providers need to develop a staff code of practice that specifically prohibits abusive and neglectful practices. They must also have polices and procedures that clearly explain the process for identifying, reporting and responding to abuse. These policies need to be supported by systematic reviews that demonstrate that they are being followed and are effective. Service providers that do not demonstrate a commitment to such a program risk the loss of community confidence in their organisations. Following a referral from my office and the Ombudsman Victoria’s subsequent report in March 2011, I asked the Department of Human Services (DHS) to adopt a Seven Point Safety Plan regarding allegations of abuse which requires: • protection for the individual by ensuring their immediate and ongoing safety • criminal acts are reported to the police • allegations against staff are taken seriously and they are stood down pending the police and/or independent investigation • incident reports are prepared by the person who observed the abuse, not rewritten by senior management and are available to Community Visitors • an independent investigation of the incident is reported to senior management • the victim of crime is supported to tell their story and provide evidence • notification occurs to the family of the victim. I am pleased to report that, following the adoption of these procedures, there has been a significant improvement in the DHS’ responses to allegations of abuse, neglect and exploitation that has led to improved health, safety and wellbeing of individuals affected. Subsequently, OPA has successfully initiated discussions with the Department of Health as to how the notification process can be adapted for SRS facilities. 6 The people Community Visitors meet have a right to be free from abuse or the fear of abuse. They have the right to be treated with respect and dignity and to receive the best quality of care available. Empowering people by educating them about their rights is an important protective mechanism against any human rights violations. Equally important is promoting self-determination through increased choices and opportunities, encouraging independence and self-advocacy and supporting people to make decisions about their lives. Community Visitors are volunteers and are independent of government and service providers. Their regular, independent and fearless monitoring of mental health and social-care settings continues to point to ways in which organisations can improve services to ensure the protection and promotion of the human rights of people in their care. It is doubtless that these attributes have led our Community Visitors Program to be proposed as one of the monitoring features for the coming National Disability Insurance Scheme (NDIS). The Productivity Commission, in its advocacy for the NDIS, proposed that Community Visitors should help to monitor the NDIS, and called for community visitor schemes to be introduced in jurisdictions that do not have them. It further argued that, in this process, “It is desirable to replicate features of the Victorian model”. My office is very excited by this prospect, and is seeking to ensure that its Community Visitors play an active role in monitoring the NDIS trial in Barwon Region, beginning next year. I am pleased to be able to highlight the work of these tireless champions, because, without Community Visitors, many people with a disability or a mental illness would be in danger of being isolated, marginalised and vulnerable to human rights abuses. I commend their report to you. Colleen Pearce Public Advocate and Chairperson of the Boards Case study – Broken There were serious concerns for the welfare of Cynthia, a resident with a disability in a DHS house. Formerly a resident of Kew Residential Services (Kew Cottages), Cynthia could not speak and needed staff to help her with all her activities of daily living. One evening, staff noticed bruising and swelling to one of her feet. A doctor and the ambulance were called but as the nearest hospital emergency was full, it was decided Cynthia would remain at home overnight. The doctor ordered paracetamol to ease her pain. The next day, Cynthia went to the hospital and was diagnosed with a broken ankle. She was returned home. Two days later, Cynthia went back to the hospital as staff who knew her thought she was in considerable pain. The hospital further diagnosed that both legs were broken. Old fractures to both hips were also identified. She was discharged from hospital two weeks later with minimal staff training provided. Shortly after Cynthia’s return from hospital Community Visitors attended the facility. They were so concerned about her wellbeing, they notified the Public Advocate. They found Cynthia still did not have a mattress to relieve the pressure on her lower limbs or any other appropriate equipment. She also had head lice and diarrhoea. Staff also said they had been told Cynthia had osteoporosis. Some staff told Community Visitors that they were not confident in assessing the pain of someone who could not speak. Management reported that they recognised that staff needed more intensive training in manual-handling but could not say when this would occur. As soon as DHS was notified by the Public Advocate of the Community Visitors’ serious concerns, rapid action was taken to ensure the house had the equipment and staff needed to provide Cynthia with appropriate care. In the response to the Public Advocate’s notification, DHS advised that the “group home concerned was found not to have followed the DHS incident reporting instructions accurately and compounding to this issue was the house office fax was out of order”. A forensic physician was asked to report on the unexplained injuries, but there is still no explanation of how these injuries occurred. The Public Advocate also assigned an advocate to monitor Cynthia’s care. Community Visitors Annual Report 2012 7 Introducing the Community Visitors Boards Dave Parker (Health Services Board); Public Advocate Colleen Pearce; Sophy Athan (Mental Health Board); Dawn Richardson (Health Services Board), Dr Carol Morse (Mental Health Board). Colleen Pearce Chairperson, Health Services, Mental Health and Disability Services Boards Ms Pearce is the Public Advocate of Victoria and, under the relevant legislation, is the chairperson of the Community Visitor Boards. Ms Pearce has almost 30 years experience in the community and health sectors. From 2004, she was Director of the Victims Support Agency (VSA), in the Department of Justice. Ms Pearce has devoted her working life to helping society’s most disadvantaged people, and advocating for a better deal on their behalf. She serves on the Frontier Services Board of Governance. 8 Her previous roles include: • d irector, UnitingCare Victoria and Tasmania, an organisation providing services to more than 350,000 disadvantaged people • e xecutive director at Moreland Hall, a drug and alcohol treatment service providing counselling, withdrawal, prison and court services and statewide drug education • e xecutive officer North Richmond Community Health Centre. Ms Pearce commenced as Public Advocate on 8 September 2007. Sophy Athan (Mental Health Board) Dave Parker (Health Services Board) Ms Athan has held senior positions in local and state government for over 20 years. She has been on numerous committees and boards at all levels of government. Mr Parker is a retired former Royal Australian Navy service man. While in the Royal Australian Navy, Mr Parker spent over six years as an instructor in submarine daily operations and electrical systems. She is on a number of health service committees as a consumer representative. He has completed an Advanced Welfare Officers course. He also volunteers his time as both a Welfare Officer and a Pension Officer for the Warrandyte Branch of the Submarine Association of Victoria. Currently, she is the Managing Director of Euroforce Music Pty Ltd. Ms Athan’s qualifications are BA (Melbourne), Grad. Dip. Lib. (RMIT), Grad. Dip. Soc. Pol. (Swinburne), MA (Adelaide), NATI Level 4. Ms Athan was a Community Visitor from 2003 to 2012 in both the mental health and disability streams. She has made an enormous contribution to the program as an active Community Visitor, Regional Convenor in both streams and as a Board member. Dr. Carol Morse (Mental Health Board) Dr Morse is an academic Health Psychologist with over 30 years of university experience researching and teaching lifespan development, public health and wellbeing among Australian-born, Indigenous Australians and migrant peoples. She is also an experienced clinician in mental disorders and relationship counselling. Her many publications include a recent two-volume book comparing challenges to positive ageing in Australia with Israel and the USA. She was appointed a Community Visitor in the Mental Health stream in 2008. Mr Parker joined the Community Visitors Program in 2004 visiting in the Health Services stream and is currently an appointed Health Services Community Visitor until February 2015. Dawn Richardson (Health Services Board) Ms Richardson has a background in telecommunications, training and disability. She has served on the committee of management for the Communications, Electrical and Plumbing Union and has spent six years in a voluntary position managing Food Relief. She joined the Community Visitors Program in the disability stream in 2006 and transferred to the Health Services stream in 2009. This is her third term on the Health Services Board. Trish Guglielmino and Shiela Winter (Disability Services Board) resigned prior to the preparation of this year’s annual report. Health Services Board member, Dave Parker, receives an award at the Community Visitors annual meeting 2012 Community Visitors Annual Report 2012 9 Introducing Community Visitors Community Visitors are independent volunteers who safeguard the interests of people with a disability. Where an issue cannot be resolved at facility level, it is usually taken to a more senior manager in the agency and/or the DHS/DH regional office. Serious matters may be referred for action within OPA and dealt with as part of the Public Advocate’s broader powers. The Community Visitors Program is part of OPA. While the vast majority of visits are scheduled and unannounced, a significant number are in response to specific complaints. This includes referrals to the program via OPA’s Advice Service. On occasions, repeated visits are necessary to certain facilities over a short period, in response to serious issues identified and at the discretion of the Community Visitors. The program is organised into three streams to reflect the type of services visited: • M ental Health – visits are made to consumers and residents in mental health facilities providing 24-hour nursing care • D isability Services – visits are conducted to institutions and community-based facilities for people with a disability • H ealth Services – visits are made to people who reside in Supported Residential Services (SRS) and require additional support. The ongoing support, training and recruitment of the Community Visitors and the boards is the responsibility of staff in the Volunteer Programs Unit. The legislative framework is derived from the following Acts of Parliament: Stream Visits 11/12 Mental Health 1359 • Mental Health Act 1986 Disability Services 2821 Health Services 924 • Disability Act 2006 • Health Services Act 1988. The legislation establishes three respective boards: Mental Health, Disability Services and Health Services. These boards are responsible for reporting the activities, issues and findings of the Community Visitors to the Victorian Parliament each year, through the relevant minister. Community Visitors are appointed for three years by the Governor in Council. They are empowered by legislation to visit specified facilities, to make enquiries of residents and staff and examine selected documentation in relation to the care of people residing at the facilities. Community Visitors usually make unannounced visits and visit in teams of two or more. At the conclusion of each visit, the Community Visitors prepare a report summarising the findings and indicating items where action is required. A copy of the report is provided to the most senior staff member at the facility or the proprietor in the case of an SRS. 10 Total5104 Figure 2: Number of Community Visitor visits made 11/12 Stream Numbers 11/12 Mental Health 66 Disability Services 215 Health Services 79 Total360 Figure 3: Total number of Community Visitors by stream 11/12 Reporting Regions Barwon-South Western Eastern Metropolitan Gippsland Grampians Hume Loddon Mallee North and West Metropolitan Southern Metropolitan Barwon-South Western Hume The Barwon-South Western Region extends from Geelong and Queenscliff in the east to the South Australian border. The region contains nine Local Government Areas. The Hume Region extends over 40,000 square kilometres of provincial northeast Victoria. The region contains 12 Local Government Areas. It includes Victoria’s alpine areas, some relatively remote farming communities and the major regional centres of Wodonga, Wangaratta and Shepparton. Eastern Metropolitan The Eastern Metropolitan Region includes inner suburbs such as Kew and Hawthorn, large outer metropolitan suburbs such as Ringwood and Boronia, and semi-rural townships such as Healesville and Yarra Junction in the Shire of Yarra Ranges. The region contains seven Local Government Areas. Loddon Mallee The Loddon Mallee Region is located in the north-west corner of Victoria. It is the largest DHS region in geographic area. The region covers ten Local Government Areas. Gippsland North and West Metropolitan The Gippsland Region stretches along the east coast of the state and covers 41,538 square kilometres, representing over 18 per cent of the land mass of Victoria. The region covers six Local Government Areas. The North and West Metropolitan Region covers 14 Local Government Areas. The region is now the most populous region in Victoria, encompassing suburbs from Werribee to Eltham. Grampians Southern Metropolitan The Grampians Region covers an area of 47,980 square kilometres and includes 11 Local Government Areas, stretching from Ballarat through to the South Australian border. The Southern Metropolitan Region is made up of 10 Local Government Areas, ranging from Stonnington to Frankston and the Mornington Peninsula. Community Visitors Annual Report 2012 11 Mental Health statewide themes and recommendations 12 Recommendations Mental Health The Community Visitors Mental Health Board recommends that the State Government: 1.provide adequate levels of funding to health networks to: • e stablish more acute beds in areas with unmet need to reduce waiting times in emergency departments, out of areas transfers and inappropriate discharges • p rovide adequate information and support to all consumers on admission, including people from culturally and linguistically diverse backgrounds (CALD) • e ffectively renovate and maintain mental health facilities 2.create more affordable accommodation and support options to ensure choice and security for people who have a chronic mental illness, and in particular for people with a dual disability and/or complex needs 3.promote the practice of recovery models and holistic healthcare throughout the mental health system and enable psychosocial therapeutic interventions such as counselling services to be widely available within the public mental health system 4.address shortfalls in mental health nursing and allied health staff and establish and maintain a highly skilled, responsive and sustainable mental health workforce 5.revise the existing Mental Health Act as soon as possible with adequate resourcing to enable its effective implementation to: • p rovide service consistent with the government’s human rights obligations • e nable Community Visitors to visit Prevention and Recovery Centres and respond to visit requests from other mental health facilities that provide 24-hour treatment and support • e nsure all services document incidents and Community Visitors are able to access all incident report records • e nsure all consumers have access to independent advocacy support to attend Mental Health Review Board hearings and clinical appointments 6.ensure the National Disability Insurance Scheme includes people who have an ongoing disability as a result of a chronic mental illness, dual disabilities and/or complex care needs 7.ensure the Community Visitors Program has the resources to effectively meet its legislative requirements. Community Visitors Annual Report 2012 13 Mental Health legal rights/dignity 96 medical care 92 discharge planning 86 maintenance information provision Statewide report treatment plan 75 92 52 86 75 52 68 51 63 49 52 42 52 51 37 49 37 42 Issue types identified rights re E.C.T. 96 63 medical care appropriateness discharge planning This year 66 mental health for clients maintenance personal needs/food Community Visitors conducted 1359 visits to facilities and safety issues/hazardsinformation provision treatment plan identified 948 issues on these visits. adequacy of programs appropriateness for clients The graphs in this section provide program staff personal needs/food further information about the nature safety issues/hazards least restrictive environment of these visits and the issues adequacy of programs appropriateness reported. There was an increase in of rooms/areas program staff smoking the number of issues reported in provisions least restrictive28 environment relation to health issues, discharge assaults appropriateness 27 of rooms/areas planning, appropriateness of adequacy of beds smoking provisions 21 facilities and services for clients, assaults restraint & seclusion 20 assaults, safety issues, staffing adequacy of beds safety procedures 16 issues and restrictive interventions. restraint & seclusion security of On a more positive front, there possessions safety11procedures facilities security of 8 was a decrease in the number suitable offor programs possessions facilities reports related to the adequacy of process 5suitable admission for programs admission process programs and maintenance issues. rights re E.C.T. 5 Issue types identified 68 legal rights/dignity 37 37 28 27 21 20 16 11 8 5 5 numberofofissues issuesidentified identified number Many of the key issues reported by Mental Health privacy 4 privacy 4 Community Visitors in previous years remain unresolved and in need of urgent government illicit drug use 3 illicit drug use 3 action and community investment. The regional 0 20 0 40 20 60 40 6080 80 100 100 reports highlight many good things happening in number number Victorian mental health services. The statewide Figure 5. Mental Health Streams number and types of issues identified 11/12 Figure 5. Mental Health Streams number and types of issues identified 11/12 summary has a concentration on the serious issues of concern noted and areas where there is room for improvement. This section also highlights some of Accommodation and bed shortages the key government initiatives and mental health Despite the early promise of some new government board activities undertaken in 2011-12. initiatives in relation to affordable housing and some successful pilot programs over the last decade, the 400 options remain very limited throughout the state. 400 350 The lack of accessible accommodation and support 356 350 356 300 options for people with a severe mental illness, dual 300 250 267 disability and/or complex needs often causes people 250 267 200 to remain in hospitals or Community Care Units 200 169 150 (CCU) for longer than they should. In other instances 169 150 100 they are prematurely discharged. Blockages in the 99 100 99 50 system mean that the demands for beds cannot be 57 50 57 0 readily met for people experiencing acute phases 0 visit/ treatment/ amenities/ activities/ least restrictive of illness. Community Visitors repeatedly report rights resources programs programs services visit/ treatment/ amenities/ activities/ least restrictive rights resources programs programs services that patients are shunted around between units or issue groups issue groups between inpatient care and short-term leave at home Figure 4. Mental Health Stream issue groups 11/12 Figure 4. Mental Health Stream issue groups 11/12 or even discharged prematurely. Beds are constantly juggled on a seeming merry-go-round. These responses to manage demand frequently mean mentally ill people may be placed in situations where 14 No. of units visited No Requested visits Scheduled visits Total Mental Health stream Barwon-South Western 7 6 4 68 72 Eastern Metropolitan 18 12 33 199 232 Gippsland 6 3 4 66 70 Grampians 8 4 4 86 90 Hume 9 7 2 109 111 Loddon Mallee 6 7 7 51 58 Northern Metropolitan 20 7 20 213 233 Southern Metropolitan 27 11 25 185 210 Western Metropolitan 23 9 18 265 283 124 66 117 1242 1359 Region Figure 6. Total visits Mental Health Stream 11/12 optimal care can not be provided, but are simply a place to eat, sleep and receive medication, until they are discharged to the community so that other consumers can enter the system. A shortage of inpatient beds in many hospitals has serious implications for admissions and waiting periods in Emergency Departments (ED). Many services still have large numbers of people who remain in ED much longer than the national target of four hours. Lengthy stays in ED appear to be a problem at a number of hospitals such as Werribee Mercy and Sunshine Hospital which service areas experiencing high population growth. In March of this year, Monash Medical Centre reportedly had ten mental health patients in ED on one night. At the Alexander Bayne Centre in Bendigo in June 2012, Community Visitors reported there were eight patients concurrently in ED. Two of these patients were reported to remain in ED for more than 24 hours and a third patient was sent home after 23 hours but represented an hour or two later. People from rural areas who require specialist services such as eating disorder beds are required to transfer to services in the city away from friends and family or be housed inappropriately in their local area. In the Kerford Unit in the Hume Region, a 12-year-old child was admitted overnight into the adult high dependency unit because there was no other more suitable option available locally. However, the child was placed in a single room and constantly monitored. The shortage of affordable accommodation options and demand for mental health beds often means that unpaid carers are relied on to support their family members when patients are discharged at short notice. People with a mental illness are also often discharged to privately operated Supported Residential Services (SRSs), which are visited by Community Visitors from the Health Services stream of the program. SRSs employ staff with limited formal training who care for up to 80 residents with disabilities, mental illness or substance abuse problems. With shared bedrooms and communal areas, this scenario provides a recipe for disaster. Reports of serious assaults, self-harm and even deaths are not uncommon. Although public mental health services may be reluctant to discharge their patients to SRSs and unregistered boarding houses, there are often no other options available. Discharge planning Discharge plans with adequate supports are essential components of the treatment regimen and should be in place before a person is discharged back into the community. Without comprehensive arrangements being provided, the likelihood of the patient’s mental health and social wellbeing being negatively impacted is increased. In some instances, patients have been left hungry and homeless due to the inappropriate timing of their departure from the hospital. The constant pressure on beds and staff means discharge planning for short stay patients is often done in a rush leaving both patients and carers to feel marginalised in the process. There have also been reported cases of suicide by desperate patients within 48 hours post-discharge when a breakdown occurred without continuing support being available (Report into Inpatient Deaths 2008-2010, Office of the Chief Psychiatrist, 2012). Some patients Community Visitors talk to report feeling anxious and not ready for discharge back into their community. This is especially the case when no reliable support awaits them, or where a guardian is still to be appointed, or no interpreter has been provided to explain the procedures to a person of a CALD background. In other cases, people are keen to leave acute units where beds are urgently needed but the shortage of suitable options prevent them from moving on. Community Visitors in all metropolitan regions have reported people being unable to be discharged Community Visitors Annual Report 2012 15 Mental Health In one concerning case, an individual with autism remained in Upton House acute unit in Box Hill for 92 days as no appropriate accommodation could be found. In another instance, a patient remained in the Maroondah Hospital acute unit awaiting suitable accommodation for more than 100 days. Further data about long-stay patients in mental health facilities in Victoria is presented later in this report. Care and Treatment Serious incidents and assaults In many regions across the state, Community Visitors report serious assaults between patients or between patients and staff. Often these incidents are managed appropriately, but in some cases the police have not been notified despite this being required by hospital policy and guidelines set by the Chief Psychiatrist. Community Visitors are unable to access incident reports at most services, so they typically find out about these events from patients’ family members or other patients calling OPA’s Advice Service requesting either a visit or advocacy. OPA sometimes learns of these incidents through Independent Third Person reports to OPA, when OPA volunteers are called to police interviews. Throughout Victoria, Community Visitors report being unable to obtain documented reports of critical incidents from mental health facilities. Some regional health networks provide de-identified summaries of incidents to Community Visitors on a quarterly basis. While these are helpful, they are no substitute for timely access to the detailed records of incidents. Access to incident reports at the time of visits is essential for monitoring purposes and to ensure that the human rights of patients and residents are upheld. Community Visitors are frustrated that this issue continues to be a problem across the state despite extensive discussions over many years with the Office of the Chief Psychiatrist, the department and local service managers. Hospitals say they cannot provide hard copies of reports or allow Community Visitors online access to reports because of data security or privacy issues. The principle that Community Visitors should have access to incident reports in services they are legislated to visit is not debated in the other streams of the program. Community Visitors hope that this 16 issue can be clarified in the new Mental Health Act if it is not resolved before then. There have been a number of complaints from patients about their treatment by police, security staff, nursing staff or other patients while in hospital. These include a resident put into seclusion to “cool off” after throwing hot coffee at a staff member, a female patient in a wheelchair being held down by eight police from the tactical response squad and shackled in order to be taken into hospital, and a male patient who claimed he was shackled to a bed for 30 hours after being treated violently by police and taken to hospital in the back of a police van. One male patient in the statewide forensic facility was assaulted by other patients on three occasions in a month. There were also allegations of sexual assaults in the Grampians, Loddon Mallee, Eastern Metropolitan and North and West Metropolitan Regions (West) and reports of consensual sexual activity between patients in acute inpatient units in the North and West Metropolitan Region (North) and Southern Metropolitan regions. Patients may be vulnerable while in a psychotic state to other patients whose own cognitive functions are simultaneously compromised so nursing staff need to remain vigilant to ensure people are safe. In most instances, Community Visitors report that allegations of assault and sexual assault have been taken seriously and investigated appropriately in line with guidelines from the Chief Psychiatrist and local protocols. number of of issues issues identified identified number because of a lack of suitable accommodation. In September 2011, Community Visitors reported that eight clients had been in the adult acute unit at St Vincent’s Hospital for more than two months and in May 2012, four people had been in the aged persons’ acute unit at St Georges Hospital for more than 50 days. 30 30 25 25 2727 20 20 17 17 15 15 10 10 10 10 55 00 2009-10 2009-10 2010-11 2010-11 2011-12 2011-12 reporting reportingyear year Figure Figure7.7.Mental MentalHealth HealthStream Streamassaults assaultsand andviolence violence2009-2012 2009-2012 Service charge A new issue identified by Community Visitors this year is the issue of fees and charges. Thomas Embling Hospital, the statewide forensic care facility, recently started requiring their long-stay involuntary and forensic patients to pay patient fees. The fee is 33 per cent of the Disability Support Pension (approximately $17.81 per day). CCU residents are also sometimes charged rent or a service fee but this appears to be inconsistently applied. Thomas Embling is believed to be the first clinical mental health service in Victoria to charge a fee. Community Visitors have been advised that forensic services in New South Wales have been charging fees for some time. Community Visitors will watch with interest to see how the user pays principle is applied elsewhere in the mental health system. The general prison population does not pay ‘rent’ during their period of incarceration so the question remains whether involuntary patients with a mental illness should be subject to these fees. A focus on a mental illness can sometimes result in other medical conditions being minimised or ignored. Community Visitors have reported patient and resident concerns regarding simultaneous medical conditions like toothaches, hearing problems, cancer, or heart and respiratory conditions. One patient, complaining of a raging toothache, waited more than a week to access a community dental service. The provision of low-grade pain medication was inadequate to afford him relief and his daily request for service took a long while to be met. Treatment and medical care Patients and residents commonly experience delays that create feelings of frustration and dissatisfaction and this cements the belief that they are regarded as second-class citizens. These delays include access to the person’s doctor for a personal discussion, communication with a social worker about accommodation or employment needs, and limited or no provision of counselling services or psychotherapy sessions with a psychologist. Other complaints include unexpected postponements to mental health review board hearings, the lack of advocacy support, and complaints that night time nursing staff do not respond to calls promptly. All of these experiences are disempowering and they compromise the recovery and rehabilitation of consumers at a time when they are often most vulnerable. Again this year, many mental health consumers questioned the medications they were prescribed and the application of electroconvulsive therapy (ECT). It is essential that the staff discuss and explain the treatment rationale as many times as required, given that the patient’s mental state is likely to be fluid and shifting. In addition ECT and anti-psychotic drugs can interfere with rational thinking and memory. A common complaint concerns side effects of different drugs particularly when patients and residents have been taking these medications for a long time. Most are very aware of the side effects of different drugs. Occasionally, patients report the treating doctor dismisses their concerns or is unavailable for discussions. A common response is the person refuses to take a particular drug or a certain method of dispensing and is then judged to be non-compliant and difficult to manage. This issue is a common cause of advice calls to OPA. Often all a Community Visitor can do is advise the person they are entitled to a second opinion. Sometimes, Community Visitors work with service providers to convey a patient’s concerns. This can in turn result in adherence by a patient once they feel their views have been heard and taken seriously. Patient anxiety can be exacerbated when a patient does not have English as their first language and staff do not seek out an interpreter to assist. Community Visitors frequently have cause to question the adequacy of supports to patients in adult acute inpatient units and CCUs, especially when diagnoses involve a dual disability of mental illness and intellectual disability. Often these patients find themselves at greater disadvantage as a result of their intellectual disability. They are sometimes isolated from the general population as they are unable to communicate effectively or cope alone without skilled support. Community Visitors urge a more collaborative approach between mental health and disability service providers in order to gain a greater understanding of an individual’s support and care needs. The mental health system can be bewildering to many consumers and carers and this experience is intensified for people from a CALD background. Effort needs to be made throughout the system to keep people informed and to promote the autonomy and participation of consumers and their families. In services where people live for extended periods of time, opportunities for active participation are particularly important. Rehabilitation, education and recreation opportunities In residential facilities such as CCUs, Secure Extended Care Units (SECUs), aged mental health facilities and in Thomas Embling Hospital, patients and residents are on extended stays while they undergo recovery, rehabilitation and retraining or remain in a locked facility because of a supervision order. A frequent complaint is that few or no opportunities for employment or access to education programs and skills training are available. Where staff and managers are enthusiastic and farsighted they seek out and support opportunities for residents. Otherwise, residents complain frequently about the boredom and onerous nature of their lives, which can be unstructured and meaningless. This situation can contribute to excessive smoking, secondary depression and may trigger aggressive behaviours resulting in damage or arguments and fights among residents. Positive collaborations Community Visitors Annual Report 2012 17 Mental Health have been reported to occur at a CCU in Frankston, when some local employers have accepted mental health residents as employees. With support and encouragement from staff and employers, residents have been able to engage in part-time work that has produced wide-ranging benefits to their self-esteem and rehabilitation. This joint enterprise model deserves to be widely replicated. Staffing A frequent request made to Community Visitors is for patients and residents to be able to access allied health services (activity officers, dieticians, occupational therapists, psychologists and social workers). These services experience cutbacks in times of funding constraints yet they are the services that can most assist patients and residents to obtain an enhanced quality of life. Some services have advertised allied health positions but have had difficulty recruiting and retaining staff with appropriate skills and experience. The turnover of mental health nurses and frequent use of casual or agency staff was noted in several parts of the state. This year industrial action was taken by nurses who were members of the Health and Community Services Union (HACSU). The impact of this varied across the state. In some areas, there were bans in relation to the keeping of data and documentation. The introduction of some programs was also reportedly delayed in some services because of industrial action. However, overall a minimal impact on patients and residents was reported by Community Visitors. Smoking The implementation of non-smoking policies in facilities across all regions is a vexed issue. It remains inconsistently applied. Where a ban is required by health network policy, this may be either rigidly enforced or not actively pursued. Many staff are concerned that prohibition of smoking may trigger aggressive behaviours in patients and residents. They believe that it is their role to police the situation and possibly put themselves or other patients at risk in the process. While a common belief is that the provision of nicotine patches or inhalers and information on the Quit program will be all that is required, this is a short-sighted view of what it takes for a long-term smoker to stop. Importantly, the first step in the process to change an addictive behaviour is for the individual to take a determined decision to alter their practices. This is rarely the position of patients and residents who are faced with a blanket demand to cease a lifelong habit. 18 Legal rights and access to information All regions report instances of patients and residents feeling that they had not been given adequate information about their rights as well as the risks and benefits of various treatment options. Concerns include lack of explanation about changed status from voluntary to involuntary patient and the restrictions to freedom which accompany that; lack of provision of treatment plans or discharge plans; lack of explanation about the process to appear at mental health review board hearings; and a perceived negative attitude towards consumers from some service staff. Obtaining information and appropriate support is a major challenge for people from CALD backgrounds with limited understanding of English. While interpreters are generally arranged for important meetings, these patients can be isolated for days at time. Patients and residents have also raised concerns regarding meals, meal sizes, food choices and security of their possessions. Requests for soymilk and vegan food have been reportedly dismissed by staff and some patients have been expected to consume foods like pork that contravene their religious practices. Cultural and dietary requirements of patients and residents must be considered within all services and efforts made to respect these requirements. Residents in one aged persons’ mental health unit complained that personal items went missing from their bedrooms as their bedroom doors were not locked. Issues related to the storage of possessions for long-stay patients has also been raised. Unfortunately, services do not have the capacity to store possessions so patients sometimes have to forfeit their possessions or pay for private storage. Appropriateness of facilities Building design and gender-sensitivity issues Several mental health facilities utilise dated buildings and stock that do not conform to the standards expected in the 21st century. While adjustments may be made, the design can make observation of patients difficult or compromise patient conditions. Most services have attempted to implement gender sensitive guidelines, and to create areas specifically designated for use by women. However, the existing design of buildings, the pressure on beds, gender mix of patients, and staff/client ratios all impact on the ability of services to manage facilities in a gender sensitive way. Maintenance and cleanliness Government initiatives Maintenance delays and cleanliness issues continue to be reported by Community Visitors. This year, the State Government funded a number of projects to improve mental health services and reduce homelessness and ED presentations. These projects include home-based outreach services and a pilot program to enable people to enter the rental market. Funds have also been provided for the integration of mental health services in North East Victoria, and an expert taskforce to deliberate on reforms to eating disorder services. Community Visitors have reported concerns about the clinical care received by patients with eating disorders so this taskforce is welcomed. The government also announced $18.5 million for a step-down facility as a result of the Community Visitors work on the long-stay project. Some of these issues have serious health and safety implications such as call bells or lights in courtyards not working and consumers having to rely on others to call staff for help. Other concerns include poor cleaning practices such as body fluids and rubbish in courtyards and inoperable public phones. Outdoor areas were often unable to be used by those in a wheelchair or present a risk to older residents. Community Visitors believe that patients and residents have a right to experience pleasant and well-kept facilities while residing in care and for maintenance issues to be dealt with in a timely manner. Mental Health Board Activities This year the Combined Board had three meetings with parliamentary secretaries. One of these meetings focussed on mental health issues and members of the Board discussed their concerns regarding the pressures in the Victorian mental health system. In addition, the urgent need for more safe and affordable accommodation for people with complex needs was raised including examples from the coalface. Quarterly meetings with the Chief Psychiatrist and the department representatives have also been useful to foster collaborative relationships, discuss patient and resident complaints and provide opportunities for enhanced understanding of the government policy. Work on the protocol that guides the relationship with services was progressed. A forum was established with a range of mental health advocacy organisations to enable valuable information exchange and identify common ground for concerted action. The Mental Health Board notes the Community Visitors Program has been inadequately resourced for many years. A reduction in extra funding to OPA exacerbated pressures on the volunteer programs. Volunteers need the support of paid staff to assist in the recruitment, selection and training of volunteers; to process and analyse data arising from visits and to follow-up on serious issues that require investigation or advocacy. Funding concerns and the need for government to adequately resource and support the program is a recurring theme from previous years that provokes frustration and dissatisfaction among Community Visitors who give their own time and lifelong expertise willingly and unstintingly. Increased funding by government is urgently required to enable the program to meet its legislative requirements. The Report into Inpatient Deaths 2008-2010 prepared by the Office of the Chief Psychiatrist, which examined how services responded in the event of unnatural/unexpected or violent death of mental health inpatients, was also timely and informative. It was encouraging that 12 of the 15 recommendations were accepted by government. Community Visitors are heartened that recommendations were included relating to additional staff training and enhanced security procedures. The Mental Health Act 1986 (the Act) has been in place for more than 20 years and a major consultation regarding the new Act commenced in 2008. When consultations regarding changes to the Act commenced that year, it was envisaged that a new Act would be introduced to Parliament in 2010. However, the change of government led to a rethink of the previous exposure draft, due to the sector’s critical response to it. Community Visitors welcomed the opportunity afforded by the current government to contribute further to this process. Community Visitors are keen to see a new Mental Health Act based on human rights principles enacted as soon as possible. However, Community Visitors believe it is essential that adequate resourcing is provided to ensure its effective implementation. Long-stay project This year marks the fifth year that Community Visitors have been collecting information on long-stay consumers in mental health facilities. Long stays are identified as more than three months in an adult acute unit and more than two years in a CCU SECU. Commencing in 2006-07, the project has seen many successes. In the 2009-10 budget, the Victorian State Government funded 50 intensive psychosocial rehabilitation support packages, some which Community Visitors Annual Report 2012 19 Mental Health enabled the discharge of long-stay SECU patients into the community. In 2010-11, Disability Services commenced building a purpose built facility to house long-stay patients from the Austin SECU with dual disabilities. Community Visitors are happy to report this year that the original six patients with dual disabilities at the Austin identified by Community Visitors in 2007-08, have been discharged into suitable and supported accommodation in the community. These people had a primary diagnosis of intellectual disability and had lived in a SECU-type setting for between eight and 21 years. The success of the project is a testament to the willingness of government departments to work together to secure the human rights of these patients. Community Visitors are also happy to report success in another region with a long-term patient with a dual disability who had lived in an institutional setting for around 15 years. Disability Services has provided intensive funding to this individual who has now been discharged into a suitable home-like environment where she can participate in the life of the community. This year, Community Visitors have identified 72 long-stay patients. The number is slightly lower this year as Community Visitors did not collect data on patients in aged adult acute units. These patients accounted for 22 long-stay cases last year. Some other patients who Community Visitors know have spent extended periods in facilities this year, are also not included in our 2011-12 figures because they had either transferred to another service or been discharged to the community just prior to the data collection period in April to May 2012. Community Visitors identified 22 long-stay patients in SECU this year and two patients in the statewide Brain Disorders Unit, 16 of whom have been in these environments for four years or more. Most have been previously identified by Community Visitors. These patients have multiple and complex needs – a mental illness combined with acquired brain injuries, intellectual disability and substance abuse problems. Community Visitors encourage further collaboration between the department and DHS, the provision of more supervised 24-hour care models and additional individualised funding packages to secure the transition of more long-stay patients into the community. Community Visitors identified 36 long-stay patients in CCUs and 12 patients in adult acute units. While some consumers may require this level of support over the long term to develop or relearn skills for community living, their long stay has the effect of blocking entry into much needed beds for other patients. Community Visitors note that many families express a desire for their significant other to remain 20 in a CCU setting rather than move. It may be the case that in the absence of adequately supported community-based alternatives, that additional CCU beds are required. The Mental Health Review Board (MHRB) recently held a forum for its members and included the issue of long-stay patients in mental health facilities. The Public Advocate, Colleen Pearce, spoke at this forum and is keen to be supporting the MHRB work. Community Visitors are pleased that their work is being taken up by other bodies concerned for the rights of people in mental health facilities. Regional Reports Barwon-South Western Region South West Healthcare and Barwon Health manage the mental health services in the Barwon-South Western Region. These services consist of two adult acute inpatient units, one aged persons mental health residential unit, two CCUs, one Prevention and Recovery Care (PARC) and two EDs. A total of 72 visits were made by seven Community Visitors. Four of these visits were requested by consumers and others. Legal rights and information provision Four cases occurred where patients requested attendance of a Community Visitor regarding a desire to seek a second opinion, how to obtain legal services or in one case a complaint about lack of respect and dignity. Care and treatment Admission process ED visits by Community Visitors ceased because in the Warrnambool Hospital the majority of cases are admitted directly to the acute ward and do not go through the ED. In the case of the Geelong Hospital, Community Visitors obtained data from the ED regarding mental health patients rather than visiting the ED personally. Appropriateness of rooms and areas Adequacy of programs The adult acute inpatient unit has created a female-only corridor as well as a lounge for women. It has been observed that the Aged Care Mental Health Residential Facility is very clinical with little differentiation between wings. This has been discussed repeatedly with management and it is accepted by Community Visitors that given the level of cognition of the residents, sufficient has been done for the residents’ benefit. The need for shade cover at the Geelong Hospital in outdoor areas has been mentioned a number of times and it is still being considered. Staff at the Community Rehabilitation Facility have assisted two of their long-stay residents to commence gradual re-integration into the community. Similarly the staff in Ward 9 and the Extended Inpatient Care Unit at Warrnambool Hospital should feel very satisfied that success is imminent with a long-stay patient being gradually re-integrated into the community. Appropriateness for clients Both the Community Rehabilitation Facility, which is combined with the PARC, and Geelong Hospital have instituted a sensory modulation room. Work has only recently commenced at Geelong Hospital, to modify an existing, unused bathroom into a sensory modulation room. The final outcome is eagerly awaited. Case study A 21-year-old man has frequently been admitted to several mental health units throughout the region. The man has autism and mild intellectual disability and his local GP suspected a psychotic illness. His subsequent admission to an adult acute unit did not support this diagnosis and his symptoms were considered to be behavioural in origin. In 2009, the man was living with his mother and by 2011 he obtained accommodation within Disability Accommodation Services where he remained for one year. Following a number of violent episodes in which police and ambulance attended, he was again transferred to a mental health unit due to his previous label of psychosis. He refused to return to his disability service accommodation so was placed in an SRS. Police again attended numerous times so he was sent back to the mental health acute unit until accommodation could be found. For a short while, the man resided with another resident with a disability in a Department of Housing residence. Questions are raised in this case study about the system’s inability to find suitable accommodation for a vulnerable individual with complex needs. Program staff A continuing concern is the need for a social worker appointment at Geelong Hospital. As it has not been possible to appoint an experienced person, the position is now being opened up to recent university graduates in the form of an internship in the hope that a person will fill this role on an ongoing basis. Eastern Metropolitan Region Eastern Health and St Vincent’s Hospital manage mental health services visited by the Eastern Metropolitan Region Community Visitors. The services comprise four adult acute units, two aged persons’ acute inpatient units, four aged persons’ mental health residential units, one child unit and one adolescent inpatient unit, three CCUs, three EDs and one specialised personality disorder unit. Twelve Community Visitors conducted a total of 232 visits, 33 of which were requested by consumers and others. Legal rights and information provision The Community Visitors found that patients in acute adult units often feel that their opinions are being ignored and even that they are not being treated as adults. Community Visitors regularly give advice on avenues for seeking a second opinion or asking for a MHRB hearing. Recently a consumer consultant was appointed to Normanby House who will provide advocacy support to the patients there. Care and treatment Assaults Community Visitors have heard of alleged assaults this year in all units both by consumers on staff, staff on consumers and consumers on others. All incidents were handled well by staff and one aged care acute unit is seeking to modify the environment to better contain difficult behaviour. Community Visitors had several call outs regarding alleged sexual assaults, again these were handled well by staff. Community Visitors Annual Report 2012 21 Mental Health Good Practice Appropriateness of rooms/areas A woman admitted to Maroondah Hospital had a heightened fear of sexual assault as a result of her mental illness. Staff worked with her and her family to ascertain the best approach for her and what level of supervision and observation she was most comfortable with. She was accommodated in the women’s only corridor and her stay at the hospital passed without incident. New security provisions are being implemented at St Vincent’s Hospital and Normanby House particularly regarding safety after hours. There was an incident at the Peter James Centre in the acute ward where one patient is alleged to have assaulted another. The family of the man assaulted were very upset at the perceived lack of supervision and shortage of staff. Both men involved in the incident are sufferers of dementia with behaviours that are difficult to manage. It was difficult therefore to ascertain all the facts. The Peter James Centre was one of the first hospitals to be built after the closure of the institution, Willsmere, and the needs of the clientele have changed over time. There is an increase in consumers suffering from dementia and the corridors on the ward are hard to supervise adequately. There are plans now to adapt a bathroom at the head of one of these corridors to a nurses’ office that should make management easier. Adequacy of beds All adult acute units have experienced difficulty in accessing SECU beds for patients needing specialised care. There have been delays of many months before a bed is available. EDs in Eastern Health have on occasion not been able to find beds for patients needing admission to acute inpatient wards. Discharge planning There continues to be long delays while patients wait for suitable accommodation before discharge. Difficulty finding employment is also a factor in delayed discharge from CCUs. Patients in the specialist unit are concerned that community support services in regional areas have difficulty in meeting their needs in some circumstances. St Vincent’s ED has started a program of mental health enhanced triage where patients discharged home after presenting to ED are followed up to ensure referrals to other services have been acted on. Upton House has renovated the adult acute unit to incorporate gender specific areas such as a separate courtyard and are planning a gender specific bathroom in the High Dependency Unit. St Vincent’s are converting a corridor into a female only area. Unfortunately, the women’s areas at Maroondah Hospital are often unlocked as the swipe cards are lost. Patients and residents with a dual disability needing treatment can have great difficulty settling into an acute unit as it cannot meet their particular needs. This was a traumatic experience for one person admitted to Upton House. One acute aged care unit is investigating ways to modify the environment to cope with disruptive or aggressive behaviours. Following an incident in the garden area of the adolescent unit, young people must now be supervised while outside. Staff find it difficult to free people for this duty and modifications to allow for better observation have not yet happened. Community Visitors have many discussions with management over this unacceptable situation. On the positive side, a mural created in cooperation with a community group has brightened the area considerably. One aged care residential unit with old infrastructure has renovated the area to provide a more home-like environment. There is new lounge furniture and televisions positioned to allow for better viewing and there are also more activities available. Personal needs Community Visitors have noted that patients in the aged care acute unit at the Peter James Centre often wear pyjamas throughout the day. Carers have not brought in sufficient clothing and laundry facilities are limited. Washing machines at St Vincent’s have often been out of action and there have been long delays before new machines were installed. One adult acute unit has a supply of donated clothing available for those in need. Least restrictive environment The level of aggressive behaviours and the risk of absconding are reasons given for units being so often locked despite an open ward policy. The CCUs report an increase in the acuity level of consumers being admitted and who, therefore, need a higher level of care. 22 Maintenance There are often long and frustrating delays in getting repairs attended to but all matters reported for attention are now completed. Refurbishment that requires painting or furniture renewal is an ongoing issue. Several units have been able to achieve much this year to meet this need. Gippsland Region Rehabilitation, educational and recreational opportunities A lack of educational and recreational opportunities was of concern for most of the year with the responsible staff member, a recreational worker, absent on sick leave for an extended period. Community Visitors were advised that during June 2012 this staff member returned to duties and there was the appointment of an occupational therapist. Hopefully, some enjoyable recreation activities will be added to existing programs. The Latrobe Regional Hospital manages the mental health services in the Gippsland Region. Community Visitors were greeted pleasantly on each visit and co-operation by staff and management in dealing with enquiries and resolving issues of a minor nature was appreciated. These services consist of one adult acute inpatient unit, one SECU, one aged persons inpatient mental health unit, one adolescent inpatient unit, one CCU and one ED. Grampians Region A total of 70 visits were made by three Community Visitors. Four of these visits were requested by consumers and others. Legal rights and information provision Generally, legal rights and information provision were not an issue, with no concerns expressed by patients or residents. Care and treatment No complaints were received from patients on their care and treatment but a continuing shortage of available beds made management difficult, as patients were often discharged earlier than desirable. Re-admission numbers within 28 days were high during some periods of the year as a direct result of the rapid turnover. There are ongoing issues with a shortage of housing in the region and this was exacerbated with the closure of a caravan park this year. People trying to access medical practitioners after discharge faced a three to four week wait for appointments in some areas. On a positive note, consumers and carers are invited to participate in a range of committees including clinical governance and clinical risk. Appropriateness of rooms and areas The standards of the facilities are appropriate although maintenance issues arose several times, and continual requests to have graffiti removed from courtyard walls have not been attended to. Ballarat Health Services manage the Grampians Region mental health services. The services located in Ballarat consist of one adult acute unit, one aged persons acute inpatient unit, one-aged persons mental health residential unit, one CCU, one SECU and one ED. There are also six funded mental health beds for aged care in two nursing homes located in Stawell and Nhill, managed by Stawell Regional Health and Wimmera Health respectively. Ninety visits were undertaken to these facilities by five Community Visitors, of which four visits were requested by patients and residents. Patient/resident visit requests have been actioned within a 24-hour response time. Regular meetings are held every three months with hospital management who are very supportive of the Community Visitor role and actively respond to local issues raised in a timely manner. The meetings are informative and outcomes are positive. Accommodation, treatment and appropriateness of facilities The lack of housing options is an ongoing issue at the CCU when residents are ready to move back into the community. There are difficulties experienced in locating suitable housing and long waiting periods before being offered accommodation through the Office of Housing. At times, this delays a person’s return to the community and may affect their wellbeing and treatment plans. A smoking policy has been a persistent issue, particularly at Eastern View CCU where staff attempt to enforce the policy but with limited success. An accumulation of butts has been exposed at the perimeter of the facility. At the time of Community Visitors’ visits residents have been sighted openly Community Visitors Annual Report 2012 23 Mental Health smoking on their verandas or in the grounds, with butts often discarded into the shrubbery creating a fire risk. Patients and residents know the smoking policy is in place and signs are displayed. A call to OPA’s Advice Service was received regarding the smoking issue at the adult acute unit. The patient only wanted the Community Visitor to obtain permission for her to go outside for a cigarette, which was denied. No other issue was discussed. Upgrading the facilities in the time out or seclusion area is long overdue and plans are underway to improve this area. The aged care residential unit provides a very caring environment with a wide variety of innovative outings, activities and interests for the residents with volunteers both young and old supporting the programs. This gives residents one-on-one time with a visitor showing a personal interest in them, while it frees up staff time. The kitchen, and lounge area of the unit have been recently upgraded with fresh paint, new curtains and a television provided by the Womens’ Auxilliary. Life stories of residents are displayed in attractive frames and provide a great source for a chat. Community Visitors often receive positive comments from residents’ families regarding the care provided to their loved ones and there is opportunity for them to have input at the regular unit meetings. Iona House in Nhill seldom has vacancies and the six funded beds are fully utilised. There is a high standard of care provided. Community Visitors have continuing concerns regarding the delay in the provision of a set of special scales necessary to weigh a resident needing regular dialysis. A request was submitted last year but the scales have not yet been purchased. The Macpherson Smith Nursing Home in Stawell has been unable to fill most of the six funded beds with mental health residents and an average of only two or three residents are visited by Community Visitors. These people appear well cared for and settled in this environment. Access to incident reports Community Visitors express concern at the lack of current incident reports being provided on request at the time of visits to all units. This is part of the Community Visitors’ role but little information is given on enquiry. Reports made available in this region are limited in content and are received two or three months after the event when the resident has often been discharged and the file is unavailable. 24 Gender sensitivity The SECU unit consists of 12 beds with a predominately male population, and at times, with disturbed residents, it becomes volatile. On occasions, hospital security is called on for assistance. For the past few months there have only been two females, and in recent weeks only one female in this unit. At times, there have been two sittings in the dining room to alleviate safety concerns. Community Visitors express continuing concern about the vulnerability and safety of female residents. This has been a reoccurring problem reported over recent years, which is constantly raised with staff, as there is no separate women’s area or lounge available. Community Visitors have been told there is no funding available to redevelop the unit, which is long overdue for an upgrade. It is pleasing to report that the adult acute unit now has a user-friendly women’s lounge, tastefully furnished, and also used for visiting purposes. Adequate activities are also provided to occupy younger children who visit the facility. External doors are locked at all times in this unit. There were initial issues of concern to Community Visitors with the access door being locked and residents having to request use of the lounge. One resident indicated she was too frightened to use the lounge and others stated they were unaware the lounge existed. There is now a notice on the door, but the location is isolated from the nurses’ station, and needs to be physically monitored for safety and security purposes, as there is no CCTV to this area. Hume Region Goulburn Valley Health, Beechworth Health Service, North East Health and Albury Wodonga Health Services manage Hume Region mental health services. The visited services comprise two adult acute units, one-aged persons’ acute inpatient unit, two aged persons’ mental health residential units, two CCUs and two EDs. Seven Community Visitors conducted a total of 111 visits. Two of these were requested by a patient or resident. Legal rights and information provision Community Visitors reported positively on the provision of information and supports to staff and residents on the passing of a staff member at the Benambra CCU. This was handled in a considered and respectful manner. Documented evidence of incidents was not made available to Community Visitors at the time of their visit for a large part of the year. This has improved recently with some mental health service providers, Blackwood aged persons unit, Kerferd adult acute inpatient unit, and the Willows CCU, so Community Visitors are encouraged by this. Patients and residents often voice their concern to Community Visitors about their legal rights, treatment, medication and discharge planning from the facility because of either misunderstanding or being unclear of the information initially provided to them by staff. Care and treatment After initial concerns regarding the potential loss of aged persons’ acute beds at the Rosewood Unit and the impact of renovations on the Grutzner Unit, it is very pleasing to report that renovations were completed with no impact to the support and care of patients and no patients having to move. No beds were lost in the renovation. Community Visitors note an increase in the number of people with high needs dementia and young adolescents being specialled in the Wanyarra adult acute unit and the Kerferd adult acute unit resulting in additional pressures on existing staff and budgets. Community Visitors report positively an increase in mental health services from two to four hours per fortnight at the Grutzner aged persons’ mental health unit. A further increase in available hours may be of benefit to residents. Standard and appropriateness of facilities Community Visitors note an increase in admissions to the Wanyarra and Kerferd adult inpatient unit of not only drug and alcohol affected people but also young adolescents. As there appears to be a lack of appropriate short-term support options for these people, there should be greater consideration of professional services and support options in this area. Community Visitors are concerned that there appears to be few community based allied mental health services to minimise readmissions. Readmissions place additional pressures on the availability of inpatient beds. SECU funding for long-term residents has been well received and resulted in more appropriate accommodation and support services. This has been to the benefit of two residents from the Willows and one resident from Kerferd being more appropriately accommodated and supported. Community Visitors look forward to other eligible residents being considered and supported in a similar manner. After reporting vacancies at some facilities, Community Visitors now report improved occupancy rates at Blackwood and the Willows. The generous donation of significant funds to the Gruztner aged mental health residential unit from a local community club enabled a new family room area to be provided for visitors. Smoking provisions The implementation of a consistent approach to considering the non-smoking policy and impact on patients and residents deprived of liberty and freedom of movement continues to be an ongoing concern with few positive solutions in sight. Some residents are subjected to negative community bias as a result of having to smoke in front of the Wanyarra adult acute inpatient unit. The area remains littered with drink containers and cigarette butts adding to the overall shabby presentation on entering the facility. There are no protected areas for residents to smoke at this unit so people are exposed to the elements. Maintenance New furniture was eventually provided at the Grutzner Unit to replace old and tattered chairs and meet OH&S requirements of staff supporting residents sitting down and getting out of their chairs. New televisions have replaced the old analogue sets in all services. Damage caused by residents appears to be quickly addressed and rectified. However, Community Visitors regularly report lengthy delays in repairs and fault rectification at Wanyarra, the adult acute unit in Shepparton. Matters such as painting of marked and scuffed walls; graffiti removal; cleaning of floors and whitegoods; rubbish removal including cigarette butts, coffee cups, soft drinks bottles and repair/replacement of a clothes dryer are often reported. Delays in repairing or replacing air conditioners at the Gruztner and Blackwood Units have now been addressed. Repairs to a toilet at the Blackwood Unit, which was damaged after a resident’s fall, have now occurred. As a result of a federal accreditation review, the laundry at Gruztner, the aged persons’ mental health unit, was earmarked for upgrade. However, this has not occurred as yet because of financial constraints. Recent rain damage to carpets and ceilings from a water overflow was rectified very quickly and positively at the Willows CCU. Safety issues/hazards Community Visitors noted staff at the Kerferd Unit found a knife in the high dependency unit. Fortunately, nobody was injured prior to its removal. Community Visitors Annual Report 2012 25 Mental Health Community Visitors were issued personal alarm devices for the first time after an upgrade to the emergency response system at the Wanyarra Unit. Although little information was provided as to why this was now required of Community Visitors this appeared to be in their best interests and is regularly provided and worn when visiting this unit. One-off funding from the Commonwealth Government to provide support and advice training in sexual health was welcomed for all residents at the Gruztner aged mental health unit. Rehabilitation, educational and recreational opportunities Community Visitors noted an incentive was provided to residents at the Willows Unit to attend activities with an allowance each month for participation. While initially the activities officer was unaware of this, this issue was clarified and remedied very positively. Activities and opportunities are wide and varied when staff are available to coordinate and support residents undertaking activities. For example, trips to Queenscliff and other outings such as meals and coffee at local venues, attending football matches, ANZAC parades and in-house activities like vegetable gardens, indoor bowls, billiards, daily walks and a one-off ‘clowning around’ activity have been organised. With the unfortunate passing of a resident who was supported independently long-term in a threebed unit, the Willows now plans to use this unit for varied day activities for the benefit of the remaining residents. This is a positive resolution to ongoing discussions regarding a ‘Green Shed’ option for on-site resident activities. Community Visitors also support this facility being used for on-site consultations as an alternative to residents having to travel off site for appointments or assessments. Community Visitors have regularly reported on the fluctuating workforce among occupational therapists, activity officers, nurse unit managers and other staff positions. Clearer communication about some aspects of staffing would minimise Community Visitor confusion in this area. Currently management and the union are negotiating their Enterprise Bargaining Agreement and staff have taken some industrial action. Community Visitors hope there will be little to no impact on the direct care and supports to patients and residents while this is being negotiated. Loddon Mallee Region Bendigo Health and Ramsay Health Services manage the Loddon Mallee Region mental health services located in Bendigo and Mildura. The services visited comprise two adult acute units, one aged persons’ acute inpatient unit, one aged persons’ mental health residential unit, one CCU, one SECU and one ED. Seven Community Visitors conducted a total of 58 visits and seven visits were directly requested by residents and others via OPA’s Advice Service. Legal rights and information provision Community Visitors believe that non-provision of incident reports adversely affects patient and resident protections. The reason most often given for restricting Community Visitor access to reports is that the Riskman information technology system used does not provide sufficient privacy protections for staff. This situation hinders adequate enquiry following consumer reports of incidents, or when Community Visitors wish to review incidents, which have previously, or are currently, affecting patient and resident care. Consideration of the use of staff ID numbers on Riskman may mitigate concerns regarding staff confidentiality. Community Visitors have reported several times that the Community Visitor notice is not displayed for patients at the Alexander Bayne Centre acute unit. Care and treatment On occasions, patients have been required to stay much longer than the targeted time of four hours while waiting for bed availability at the adult acute unit. In June of this year, Community Visitors noted that two of eight patients in the ED one weekend had spent over 24 hours there and a third patient was sent home after 23 hours but represented an hour or two later. Treatment plans are not routinely provided to patients in a timely manner at the adult acute unit. When there is no alternative, patients less than 16 years of age may be required to stay in the adult acute unit. Should this be necessary, they are admitted to a single room and monitored individually. Another patient was also concerned about the length of time he spent in the high needs area of the same unit. At that time, he had been in high needs area for nine days. The lack of suitable and affordable rental properties and government housing available to people with a mental health illness remains a huge concern 26 and needs addressing urgently. Many patients are staying in CCUs much longer than is required making badly needed beds unavailable. Health Services Community Visitors spoke to someone who had been a mental health patient who was now living in an SRS after spending some time in a SECU. The resident said he was too young to be in the SRS, did not fit in and would like to find a rental property. Some months later, this resident was told he was to be evicted and given two weeks to find somewhere else to live. The proprietor of the SRS told Community Visitors that he would most likely have to live in a caravan park. This patient requires stable housing with a caring environment, anything less would have a severe impact on his mental and physical health. A permanent caseworker needs to be provided to this person to protect them from becoming lost in the system. management and an investigation took place with the involvement of an advocate. However, as the incident was alleged to have occurred some months previously, and the patient who has an ABI was confused about the dates and details of the alleged assault, the matter was not pursued any further. Standard and appropriateness of facilities Appropriateness of rooms/areas Case study The adult acute inpatient and SECU both provide gender sensitive care with separate wards and both mixed and separate lounge areas. Sometimes women were allocated a room in the men’s section of the acute inpatient unit due to ‘logistics’. While this was undesirable, when it was necessary, the room allocated was in ‘line of sight’ and closest to the office for added security. One consumer was in the high needs area of an acute unit for a period of 117 days. Management said she had assaulted several staff during this period. The consumer said she attacked a nurse due to frustration following “too many questions”. Incident reports were not available to Community Visitors. The consumer was eventually accommodated at the SECU. The aged persons’ mental health residential unit provides separate wards for men and women, separate and shared lounges, and shared outdoor areas. The non-gender specific outdoor area provides the perfect setting for combined activities such as themed activities and meals provided on Australia Day and other occasions. In the SECU, separate wards and both mixed and separate lounge areas are provided. A new separate outdoor area was also added in 2011-12 for residents to spend time individually with family and friends. Assaults The aged persons’ acute inpatient unit provides separate bedrooms opening onto shared lounge and outdoor areas. For the most part, designated gender specific areas were being used appropriately. Four assaults have been reported, including one in the last case study. Smoking provisions One incident was between two patients and required a medical check, occupational therapist advice and X-rays for one of them. Police were called by staff, but did not attend. The unit manager advised the injured patient that she could phone police herself if she wished. A patient reported a sexual assault to Community Visitors and this was reported to management. The incident report was unavailable to Community Visitors. The patient had a long history of making accusations against others, decided she did not want the matter pursued and has now been discharged. A patient told Community Visitors he had observed another patient dragged into the high dependency unit by staff, following an incident in the courtyard. After the patient concerned confirmed the allegation, Community Visitors reported the matter to Despite research outlining the benefits to mental health patients who quit smoking while in hospital, patients who initially enter the high dependency unit may gain more from being allowed to smoke in that area. Since a non-smoking policy was implemented staff reported increased agitation and stress to patients. When admitted, patients who are smokers not only need to adjust to treatment for their medical condition, but simultaneously to the effects of withdrawal from nicotine. While patches may be prescribed, benefits are not immediate and not a replacement for smoking in the short-term. Some patients are also aware that, when on the open ward, smoking is permitted in the attached courtyard. Many patients, residents and staff believe denying access to cigarettes is an infringement of consumers’ human rights; however, four staff members have expressed a wish that the smoking ban is maintained. A fire in the unit was also reported Community Visitors Annual Report 2012 27 Mental Health recently when a patient brought a lighter into the high dependency unit. While consideration of the rights and needs of non-smoking patients/residents and staff is of equal importance, it may in the short-term be possible to monitor smokers who are well enough to smoke in the high dependency courtyard by using targeted rostering of staff in this area. Meanwhile, as plans are being drawn up for the new hospital acute ward, careful consideration should be given to planning for safe smoking areas in the new high dependency unit. There would be a need to consider ‘air curtain’ doorways or specially designed smoking booths and other measures to ensure the safety and wellbeing of both patients/residents and staff. Appropriateness of rooms/areas In the acute inpatient unit, new lounge furniture and dining tables and chairs and new floor coverings have made a tangible difference to the comfort and wellbeing of patients. New furniture and floor coverings have been provided in the ECT waiting area. A total of $36,000 to $38,000 has been made available for a safety audit of the adult acute inpatient and the secure extended care units. Ashtrays are still required for the courtyard area of the adult acute unit. It is currently littered with butts, and requires more regular cleaning until these are provided. High cleaning of cobwebs from under the eaves and also cleaning of outside windows to the men’s lounge area would also provide more agreeable surroundings for patients. Patients in the high dependency unit have benefited from the provision of new couches, however, when the unit is at capacity there is still seating room only for four instead of five. The dining table-bench unit was also replaced during 2011-12, but patients and staff are dissatisfied with it. It is made of stainless steel and is an immovable combination design. However, it does not provide back support or allow patients to place their feet on the floor or reach the table when eating or reading the paper. Patients are uncomfortable when eating or reading and, in some cases, their circulation is cut causing pain in their legs. The table-bench combination lacks ergonomic design, and has been described by patients and staff as looking aesthetically unpleasing. It urgently needs replacement with a more appropriate table/bench combination or breakfast bar/stool arrangement. Toilet seats would enhance comfort and safety of patients in the high dependency unit. Currently, the toilet is being shared by both men and women; it is in the same room as the shower and is often wet, either from the shower or urine. 28 The adult acute unit at Mildura had been given a grant of $60,000 to assist clinical staff to improve service delivery to patients in remote areas through the use of ipads and modern technology. Staffing In June, a patient in the adult acute inpatient unit in Mildura reported to Community Visitors that they were are unable to access a psychiatrist from Friday to Monday. There was some staff disruption during work bans for better staff/patient ratios and remuneration. Effects on patients have included that nursing staff will not make toast for breakfast or enter patient data. Staff at the aged persons’ acute inpatient unit, feel that staff numbers are limited. Two staff members said that they felt “stressed and battered” and were worried that the situation could not lead to good outcomes for patients, and paperwork was not being done. The staff had worked at the unit for many years. At the SECU, nursing staff are required to attend to patient meals as there is no kitchen staff. Meals are delivered in foil packs, with some fresh food added, and then re-heated in a household-size oven taking considerable time. Nurses have been told they may not use the on-site commercial oven, due to lack of training. The task of meal preparation consequently takes more time and when emergency situations arise, as is quite common in the SECU setting, other patients meals are delayed and safety of meals is not ensured. Patients and staff are concerned with the quality of the food and say it is degrading to be served all their meals from these foil packs. One patient also missed her usual, planned activity time due to staff being needed in the kitchen. The new pathology team for Bendigo Hospital now sends staff to take blood tests from patients at the Alexander Bayne Centre (the acute unit in Bendigo) and this will free up nurse time. More courses are also being offered to nurses on trauma-based care, which aim to enhance the already high standard of care offered to patients. Rehabilitation, educational and recreational opportunities Art therapy provided for patients at the acute unit is proving to be a very valuable aid to recovery for a number of patients. The therapist making the difference here should be congratulated for her dedication to this program. A new exercise bike has also recently been installed at the adult acute unit Good practice Staff at the aged persons’ mental health residential unit should be congratulated on the initiative shown in producing ‘story boards’ which are displayed on the walls of patient rooms and are compiled in co-operation with families. The storyboards comprise a written and photographic ‘life story’ which provides all staff with a quick reference tool, and greatly enhances staff ability to communicate with consumers. One family said they were extremely pleased with the level of care at this particular unit, especially in relation to the respect and dignity shown to consumers at all times. Legal rights and information provision Information provision Community Visitors report consistent good practice across all units in the provision on noticeboards of timely, up-to-date and relevant information on patient rights, complaints procedures, contact numbers for Victoria Legal Aid, the Community Visitors Program, other advocacy and support organisations, recovery and treatment information, and weekly and daily program activities. Information displays make increasing use of colour and graphical presentations for effective communication. Cultural and Linguistic Diversity (CALD) North and West Metropolitan Region (North) Austin Health, Northern Area Mental Health Service (NAMHS) and Forensicare manage the mental health services in the region. Austin Health manages a mother and baby unit, an adult acute inpatient unit, a SECU, a child unit and an adolescent unit, a specialist brain disorder unit, a specialist veterans post traumatic stress disorder unit, and an ED. NAMHS manages two adult acute inpatient units located in the Northern Hospital, a CCU, an aged persons’ mental health residential unit and an aged persons’ acute inpatient unit. An ED is also located at the Northern Hospital. Forensicare manages the Thomas Embling Hospital, a seven-unit forensic mental health hospital. This hospital is reported separately in this section because of the unique nature of forensic mental health care. A total of 233 visits were made by seven Community Visitors. Twenty of these visits were requested by consumers and others. Melbourne’s multicultural community and the cultural and linguistic diversity that follows is reflected in the patient population in mental health units. Diversity of language is a challenge to the immediacy of effective treatment. While the Victorian Government interpreter service is available and is used, hospital staff increasingly reflect the wider cultural and language mix of our community. In particular, some Northern Hospital staff who are Arabic speakers have provided timely assistance to patients of that culture. The general community in the Northern Hospital area contains a strong Arabic cultural presence. Legal rights/dignity A number of complaints and questions were made by patients in acute units challenging their involuntary status. Most of these complaints were made in the very early stages of the patients’ admission to hospital when they were often seriously ill and confused. On occasion this confusion was exacerbated by the transfer of the patient from one hospital to another as part of the day-to-day operational bed management that occurs as unit staff balance cross-regional bed demand with availability. In all instances, Community Visitors referred the complaints or questions to hospital staff and were able to ensure that patient requests for second opinions were properly addressed and that patients were updated on their legal and medical situation. Community Visitors Annual Report 2012 29 Mental Health Mental Health Review Board (MHRB) Case study Community Visitors were contacted by the parents of a patient in the Brain Disorder Unit expressing their concern about a MHRB direction to arrange the discharge of their son who had been a long-term patient. The patient’s brain disorder had been as a result of an accident some 20 years earlier. The disorder had resulted in a long history of inappropriate and offensive behaviour towards women. The parents were concerned about the high likelihood of continuing offences on discharge. The Public Advocate became involved through the guardianship role, and the clinicians at the hospital were also concerned so an appeal to the MHRB was organised. The outcome was an adjustment to the MHRB direction so that the unit increased the number and degree of community familiarisation exposures, escorted and then unescorted, with a further review in three months time. The purpose of this case study is to note that balancing patients’ rights and community safety is a difficult task where there is mental impairment and a propensity to offend. While there is no easy answer to such cases, Community Visitors note that there was an appeal process, relevant clinical, community safety and human rights concerns were addressed, and an outcome negotiated that responded to these factors. Care and treatment Admission process Initial admissions to acute units generally come via the EDs of the hospitals or by direct transfer between different mental health units as part of balancing the demand and supply of available beds. Government standards set an 80 per cent compliance rate with a target of four hours from admission at EDs to transfer to a mental health bed. This is a significant increase over the former 30 standard of eight hours. Overall, the region is generally performing at a 40-50 per cent compliance rate with the four-hour standard. In part, this is caused by bed availability. At the Austin, the delay is exacerbated by the geographic distance between the ED and the acute unit and the regulatory requirement for such moves to be made in a fully equipped and serviced ambulance. Medical care Community Visitors have responded to a number of patients with concerns about their medication, their involuntary status, their desire for a second opinion or about their general health. All of these concerns were referred to the primary nurses or shift leaders and Community Visitors often observed the nurses going immediately to the patient to commence follow-up on the issue. Hospital transfers and complaints Case study A patient was transferred from another hospital and admitted to Austin Acute Adult Inpatient Unit as an involuntary patient. The patient submitted a series of complaints about his treatment in the previous hospital, about his status as an involuntary patient and about a number of patient management practices. The patient was articulate, well-versed in the mental health system, and very aware of his rights. Community Visitors discussed the patient’s issues in a long interview with him, were assured he was aware of the complaints procedures and advocacy organisations available, and referred his issues to the unit manager. The manager responded in detail and in writing. The patient recovered enough to be discharged within a couple of weeks. He was separately pursuing his complaints against the previous hospital. Community Visitors mention this incident as an example of the difficulties that can arise when patients are moved between hospitals. Long stays – Discharge Smoking provisions Community Visitors are concerned about the number of hospitalised patients who are ready for discharge but for whom no appropriate accommodation can be found in the general community. In a practical sense, this ties up beds that would otherwise be available but in a more profound sense, it limits the person’s enjoyment of life. Two patients with acquired brain injury (ABI) who are long-stay patients, one over 20 years and one over three years, have recently completed rehabilitation programs. They are assessed as suitable for discharge to ‘suitable supported accommodation’, however, the search for such accommodation is continuing. Smoking continues to be variously managed in acute units. There are blanket bans on smoking on hospital property. These are strictly enforced in some units to the extent that escorting duties off-site for an arbitrarily limited number of cigarettes a day are loaded onto staff duties. In other units where garden areas or external courtyards are available, smoking by patients continues unabated and there is tacit acceptance at operational levels. Community Visitors observe that smoking is consistently claimed by patients to have a calming effect and that attempts to forcibly restrict smoking adds to their level of agitation. In one specific case, a CCU patient who is ready and willing for discharge, is unable to find appropriate accommodation in regional Victoria. OPA has become involved in a guardianship role. The case is ongoing. Standard and appropriateness of facilities Appropriateness of rooms/areas Assaults While incidents were appropriately entered on patient records, aggregated statistics on assaults were not available due to the industrial action by mental health nurses. Rehabilitation, educational and recreational opportunities The basic structure of facilities provided are sound. The acute adult inpatient unit, mothers and babies unit, SECU, ABI and veterans units are all purpose designed, make good use of natural light, and include specific activities and counselling rooms. Most units have courtyard or garden facilities included in the design and these are generally well maintained. The child and adolescent unit has a primary school on-site and an excellent playground. Adequacy of programs No separate female units are available. However, bedroom allocation is managed to co-locate the female patients in specific room areas. Community Visitors note that NAMHS is investigating the practicality of a ‘women only’ room with TV and other facilities in their acute units. Patient advocacy – consumer consultants Community Visitors are concerned at the standard of decor in the common rooms in the SECU. The main common room, while bright with natural light and with high ceilings, presents an austere and stark appearance. There is little colour and no soft furnishing to moderate noise, so it lacks warmth and any sense of homeliness. SECU patients remain in the unit for prolonged periods and Community Visitors believe a more home-like appearance is essential from a human rights, if not a recovery, perspective. Austin management have acknowledged the situation and indicated they will address this over the coming year. Community Visitors have observed a wide range of music, art, gym, gardening, speech, pet, peer support, community visits, community engagement and other more technical therapy programs in operation. Nursing staff have been considerate of, and responsive to, requests for information and situation reports. Community Visitors noted the presence in Austin Health of consumer and carer consultants (who have personal consumer or carer experience themselves) with a mandate to visit patients, identify and raise patient issues and report to senior management meetings attended by all unit managers. This initiative has been established for several years. Apart from the identification of patient issues to a person who shares the patient experience and which might not be revealed to a ‘staff’ person, it serves as a model in demonstrating hope of a successful recovery to patients during the more severe stages of their illness. This approach also operates through the Veterans Liaison Group at the Veterans Post Traumatic Stress Disorder Unit and at the adolescent unit, which operates a ‘graduate’ system whereby former patients now successfully established in life return to speak to current day patients. Community Visitors Annual Report 2012 31 Mental Health Least restrictive practice Least restrictive environment Community Visitors observed that the practices across all units involving early intervention, talking calmly, the use of low intensity rooms and alert observation are all consistent with a least restrictive environment approach. Community Visitors observed two separate incidents that exemplify the approach. In one acute unit, a patient became loud, argumentative and abusive with nursing staff over a perceived grievance regarding food and cigarettes. Community Visitors observed nursing staff respond to the episode with two nurses attending to the patient and managing the incident successfully, without recourse to more restrictive options. In another unit, a patient experienced an episode of irrational fear when approached by another patient; nurses successfully managed the patient by calm talking. Restraint and seclusion Episodes of seclusion continue to decline across all acute units. Community Visitors note that staff at Austin and NAMHS (and Forensicare) are confident this trend will continue and therapeutic approaches and developments are directed to this end. New initiatives Veterans’ post-traumatic stress disorder improvements The unit manager briefed Community Visitors on the establishment of the Australian Defence Force Mental Health Team to coordinate mental health treatment to serving Australian Defence Force personnel. The ward staff have initiated contact with the team to develop a liaison and information protocol and improve the process for referring serving personnel. Austin Health – New CCU and PARC Austin Health has a new 22-bed CCU under construction on its Heidelberg campus. Seven of the beds are earmarked for Forensicare and will ease the demand for acute beds. The CCU is planned to open in March 2013. Austin Health is developing a new ten-bed PARC in Heidelberg West, due to open in March 2014. 32 NAMHS / Police Ambulance Crisis Emergency Response (PACER) Proposal The Mental Health Service is working with Victoria Police to provide a Police Ambulance Crisis Emergency Response team in the North of the region to respond to emergency calls. The team provides immediate ‘on site/at site’ diagnosis and treatment of mentally ill patients in emergency situations. Seclusion Reduction/Trauma Informed Care The Area Mental Health Service has created a new senior nursing position with a focus on seclusion reduction and trauma-informed care for its acute units. This position will work with the consumers and the treating team to reduce distress, agitation, and adverse events including aggression, violence, restraint and seclusion. Thomas Embling Hospital (statewide service) The Victorian Institute of Forensic Mental Health, Forensicare, is a statutory authority responsible for the provision of adult forensic mental health services in Victoria. Forensicare manages the Thomas Embling Hospital, a forensic mental health hospital providing 116 acute and continuing care beds. Forensic patients have been found unfit to plead or not guilty by reasons of mental impairment and are then committed by a judge to Thomas Embling Hospital. The duration of supervision orders and the nature and severity of the illnesses treated results in forensic patients being treated for much longer periods than non-forensic patients. The average length of stay for a forensic patient is six to eight years and some patients remain in care over 20 years. This prolonged length of stay presents particular challenges to the treatment plans developed for patients at the hospital. Thomas Embling Hospital has seven distinct units within its bounds. They provide specialist male, female and mixed gender units ranging from acutely ill to rehabilitation and independent living treatment regimes. During the year, Community Visitors made 95 visits to the Thomas Embling Hospital units. Eleven of these visits were requested by patients and others. Legal rights and information provision Information provision Community Visitors consistently report the provision on noticeboards of up-to-date information about patient rights, complaints procedures, recovery and other treatment-related information. Legal rights – Patient service charge Patients advised Community Visitors in January 2012 that the hospital intended to introduce a service charge to help defray costs of treatment. Subsequently, Community Visitors were advised of detailed briefings to patients by Thomas Embling management and an on-site discussion forum on the topic involving patients and carers, conducted by the Victoria Mental Illness Awareness Council (VMIAC). Community Visitors also examined minutes of discussions on the topic by patient and consumer committees. The issue of a service charge was discussed in broad terms by the Community Visitors Mental Health Board at a meeting with the Chief Executive Officer (CEO) of Thomas Embling Hospital on 16 May 2012. The CEO explained the background, fee setting, exemptions approach and governance of the proposed charge and the much higher charges in comparable schemes operating interstate. He advised that initial planning proposed the charge be introduced from 1 July 2012. Community Visitors will closely monitor the impact of its introduction. Care and treatment The most common observation by Community Visitors about patients’ general appearance and health is the very high incidence of obesity in both male and female patients. They are advised this is partly a side effect of the medication treating their illness. There are, however, patients under medication who do not progress to abnormal weight gains. The very long-term nature of forensic treatment, its associated medication regimes and correlated patient obesity represent a significant risk to patient health and wellbeing. Patient obesity has been a long-term concern of the clinical staff and a number of initiatives have been introduced over the years. Community Visitors noted the recent introduction of the ‘healthy living program’ with its focus on healthy diet, exercise and taking control and support the hospital seeking solutions to treatment-related patient obesity. Assaults Community Visitors have been involved in the follow-up of a number of patient-on-patient assaults. Full statistics on these matters are not available because of industrial action by most mental health nursing staff. Community Visitors became aware that one patient was assaulted by other patients three times in a month. This matter was referred to the program for follow-up. Community Visitors were informed that hospital protocols were followed in all the assaults of which Community Visitors became aware. Immediate seclusion of the offending patient is generally followed with intense observation and treatment and a review of the patient’s treatment and medication. In some instances, the offending patient has been moved to a different unit. Community Visitor discussions with shift leaders indicate growing staff confidence in observing early symptoms of rising agitation and taking measures to pre-empt potential violent outbursts. Adequacy of beds The Barossa Unit includes female patients in both the acute and sub-acute stages of mental illness. This is a necessity forced by the current capacity of female specific wards. While this arrangement meets gender sensitivity requirements, it causes complications in managing patients in a single unit at different stages of acuity of their mental illnesses. Standard and appropriateness of facilities Appropriateness of rooms/areas The general design of the grounds and facilities are well suited to a long-stay facility with garden areas with shade sails and barbecue facilities. Common rooms include information boards, phone access, TV viewing lounges and adjoining activities and quiet rooms. The broader campus area includes extensive grassed areas, pathways for exercise, trees and shrubs and long unobstructed sightlines. The campus area includes educational facilities, a gymnasium, a pool, and other program facilities. Personal needs/food Treatment units make provision for catered meals or self-catering, and household purchasing and management depending on the stage of recovery. Self-catering includes escorted and unescorted leave to shopping centres to purchase groceries and supplies. This is an important part of recovery and community reintegration. It is highly valued by the Community Visitors Annual Report 2012 33 Mental Health patients and a significant component of patient recovery and an increased exercise of their human rights. Rehabilitation, educational and recreational opportunities Community Visitors understand implementation of the new model of care has stalled, partly as a result of funding and hiring constraints, and partly because of industrial action. Whatever the cause, the delay is a real risk to the planned benefits and improvements to the recovery process. Consumer Advisory Group (CAG) The CAG comprises elected patient representatives from each unit, the senior social worker, hospital management executives and therapists. The CAG meets monthly to discuss and negotiate on patient identified issues covering housekeeping, therapy and operational matters. Executives, therapists, social workers and the contract caterer respond to questions and issues raised by patients. Program availability Some staff have expressed concern that funding constraints are limiting the availability of appropriate rehabilitative programs. Prisoners who are temporarily located in the hospital for treatment comment on the wider range of programs available in prison. Boredom with the programs available is an issue and a risk to patients’ recovery. Work opportunities Engagement in meaningful work is a powerful counter to boredom and an essential element of self-esteem. There are countless examples in the general community where a supportive working environment is a positive influence on improved mental health. Work opportunities are highly valued by patients and an essential element of rehabilitation. However, they arise very late in a patient’s recovery timeline and occur off-site in normal commercial premises. In contrast with prisoners in the corrections system, paid meaningful work is not available as part of the structured day of patients. Community Visitors would support research into the practicality and opportunities for providing on-site paid meaningful work much earlier in the recovery process. 34 Availability of courses including personal improvement options Community Visitors support the on-site TAFE courses and exercise and fitness programs as enormously beneficial to patients. Least restrictive practice Least restrictive environment While each unit is ‘secure’ from the other units, there is generally free access between patient rooms and the main common room. Campus leave (access to the main grounds), both escorted and unescorted, is available depending on the stage of recovery. The Forensic Leave Panel can approve shortterm leave (generally four hours) first escorted then progressing to unescorted as patient health improves, for shopping and other program purposes. These leaves are highly valued by patients and are an essential step in their recovery to full community reintegration. Seclusion Seclusion continues to be an essential but closely managed and monitored practice at the hospital. Seclusion is applied as a last resort measure in the case of immediate risk to safety. The general approach is to minimise the time spent in seclusion. Episodes of seclusion are documented, patient observations are frequent and intense counselling and consultation with the psychiatrist are part of the approach to safely manage the patient back to the general unit community. Specialling ‘Specialling’ is a less restrictive approach than seclusion. The practice refers to arms-length close observation of a patient in an ‘at risk’ state and includes specific assignment of a nurse (or nurses) to the patient, close observations, and quiet talking and walking, generally in the garden area. The practice is noted in the patient record and reported to the nurse unit manager and consultant psychiatrist. Quiet room – Low intensity room In recent years, the hospital has created a number of ‘quiet rooms’ which have soft furnishings, low lighting and a peaceful atmosphere. This year the Barossa (female) Unit has secured funding to convert one seclusion unit to a ‘quiet room’. This will provide a less restrictive alternative in managing patients approaching an ‘agitated’ state. Work is scheduled to be completed by the end of 2012. North and West Metropolitan Region (West) Western Health, Mercy Health Services and Melbourne Health manage the mental health services in the western part of the North and West Metropolitan Region (West). These services consist of four adult acute inpatient units, two aged acute inpatient units, four aged persons’ mental health residential units, one adult rehabilitation unit, four CCUs, one eating disorders and neuropsychiatric unit, one mother and baby unit, two youth and adolescent units, and three EDs. A total of 283 visits were made by nine Community Visitors. Eighteen of these visits were requested by patients and others. Legal rights and information provision At the Royal Melbourne Hospital, patients did not have copies of their treatment plans at the time of the Community Visitor visit. Staff agreed with the Community Visitors that patients should have a copy of their plan and agreed to find out why this was not happening. Staff also told Community Visitors that patients were entitled to a treatment plan on admission, and a weekly care plan on Monday ward rounds. The registrar stated that it was not practical to issue up-dated treatment plans, but the care plans were updated on a daily basis. At Werribee CCU, efforts have been made to improve the process of passing on clinical information about residents to the incoming staff at handover. Previously this information had to be extracted from a number of different locations, but, by using a new standardised framework, all the clinical information about a resident will be presented on one A4 sheet, which should lead to improved service delivery. At the Werribee Mercy acute unit, a patient who did not understand why she had to remain in the facility for one month in order to receive two injections, and did not have a copy of her treatment plan. She signed an ‘Authorisation to Inspect’ document to enable the visiting Community Visitor to access the file copy. The psychiatrist was asked, via a staff member, for the treatment plan but refused to comply with the request stating that the Community Visitors could have a look at the patient’s plan instead. The Community Visitors thought it was inappropriate to pursue the matter at the time due to fairly intense activity taking place between the psychiatrist and other staff members, but reported the matter on the visit report. The refusal of the psychiatrist to comply with a requirement of the Mental Health Act was appropriately dealt with by senior management, who addressed the issue by email to staff in general and verbally with the psychiatrist. Care and treatment Admissions and adequacy of beds All the acute services in the region are subject to high demand, particularly those that service the outer metropolitan growth areas. Constant demand and a shortage of available beds in the region has meant that new patients at the Werribee Mercy and Sunshine hospitals can often wait for more than eight hours in ED. At the Sunshine ED in February this year, Community Visitors recorded that one person with a mental illness had waited in ED for 16 hours; in March, one person waited in ED for 19 hours; and, in April, one person waited 18 hours. At the Royal Melbourne Hospital ED in February, one person who required one-on-one supervision waited for 17 hours and another person waited for 13 hours. The Werribee Mercy adult acute unit constantly operates at full capacity. This is not surprising as the Wyndham Local Government Area (LGA) has experienced a growth in population of 7.8 per cent, the highest of all LGAs in Australia. Detainees from the Marybyrnong detention centre add to the patient load at the service and it is challenging to provide the security required for these patients while trying to provide a least restrictive environment to other hospital patients. A new initiative to streamline and improve discharge planning has been introduced and this will hopefully assist in the management of admissions. Community Visitors have been told that greater efficiency in patient discharge has not led to any noticeable increase in the readmission of patients. Ongoing discussions are taking place in an effort to increase the number and availability of step-down beds. At Werribee, the ED staff are also discussing the establishment of a pool of mental health nurses, which should improve efficiency and reduce response times, but the national target of not exceeding four hours is unlikely to be achieved due to demand pressures. Treatment A resident at a CCU stated that she had been prescribed lithium and was gaining weight. Due to an ongoing friendship with a male resident, she was also told she must have a birth control injection. The nurse unit manager stated that although the lithium injections were part of the resident’s treatment plan, she is not forced to have them, but she had seen Community Visitors Annual Report 2012 35 Mental Health and acknowledged the benefit of these in the recent past. Regarding the alleged weight gain, records show that the resident has a slightly fluctuating weight level that is well within the normally accepted parameters. The nurse unit manager further stated that staff were keeping an eye on the friendship between the female and a male resident at the CCU due to their concerns about the potential for sexual exploitation, but there was no question of trying to force her to have a birth control injection. The CCUs attempt to educate her on potential risks was considered to be justified. A man was admitted to the high dependency area of the Werribee Mercy adult acute unit in January 2010 as an involuntary patient. He was very unwell and, despite the best efforts of staff and clinicians, did not exhibit the expected improvement. During the course of his stay in the HDU his case was brought to the attention of the Chief Psychiatrist who, in turn, enlisted the aid of the service provider’s Director of Psychiatry. His symptoms and the refusal of some facilities to accept him meant it was not possible to move him to more suitable accommodation. He, therefore, remained in the HDU for more than two years. As the result of constant efforts at the adult acute unit there was a recent improvement in the patient’s illness making it possible to transfer him to a SECU. He is reported to be making good progress towards recovery. Assaults A number of serious concerns came to the attention of Community Visitors this year. A 40-year-old man at an adult acute unit made serious allegations of sexual assault. In line with hospital policy, the police were contacted and the patient was taken to another hospital to be independently examined. However, the medical assessment was inconclusive and no perpetrator was identified. Case study The mother of a woman admitted to an adult acute unit rang OPA to say that, when she had visited her daughter, there were no staff available on the floor and her daughter was walking like a “zombie” and wearing an older man’s clothing. The mother claimed she had spoken with a male patient who alleged that both he and another male patient had had sex with her daughter. The mother also said her daughter believed that a staff member who her daughter alleged had raped her at another service was working in the inpatient unit. She also made a number of other allegations relating to the cleanliness and maintenance of the unit and the support and care provided. These issues were reported to the service manager who arranged for the leadership team to meet with the mother, undertake an investigation, and put in place a number of actions to improve the quality of care at the unit. The service said none of the current staff at the service had worked at the service where the young woman had previously been a patient. While OPA is pleased with action reportedly undertaken by the unit, it is of concern that a comprehensive investigation report is still outstanding three months after the mother contacted OPA and the service about these matters. Safety issues and hazards Werribee CCU reported that it is coming under increasing pressure to accept patients who display a higher level of unwellness than previously. This pressure manifests itself in the form of inappropriate referrals to the CCU including some from Thomas Embling. Serious incidents Community Visitors have had difficulty accessing incident reports but recently received a de-identified summary from one service covering the previous five months. During the five months, January 2012 to May 2012 inclusive, the following incidents occurred: At a CCU there were two medication errors, two assaults and five residents attempted self-harm 36 including one jumping off a bridge and two people drinking detergent. At a mother and baby unit, there were three reported events of varying severity: a baby’s head was accidentally knocked against a door by its mother; another mother scalded her finger while putting hot water into a feeding bottle; and, most serious of all, a mother attempted suicide. At an adult acute inpatient unit, there were eleven incidents including two medication errors and a patient was not being seen by a consultant at an appropriate time. Several incidents involved the need for strong behavioural management by staff: one patient threatened staff and damaged property, a second allegedly attempted rape, a third exhibited threatening behaviour toward others; a fourth in open seclusion needed mechanical restraint; and a fifth was aggressive and violent during seclusion from the general ward. One patient absconded while on escorted day leave and another patient was found with an unexplained two-centimetre cut on his forehead. Although Community Visitors asked managers and staff if there had been any serious incidents during the previous month, none of the above incidents were reported to them at the time of their visit. The systemic inability of Community Visitors to access electronic incident log reports means that a high percentage of incidents remain unreported and unknown. The above examples are out of 25 incidents that occurred in three facilities over five months. If this data is extrapolated to cover the 22 facilities in the region, it suggests there may be 35 reportable incidents per month that are unreported and unknown to Community Visitors. Program staff At Orygen youth and adolescent inpatient unit, the level of verbal abuse directed towards the staff has reportedly reduced. The nurse unit manager and other staff attribute this to enhanced training of staff and appropriate use of de-escalation techniques. Rights re ECT A patient in a CCU enjoys engaging with the community and is ready to be discharged. However, he must remain on the ward for a period of up to four hours after treatment for assessment purposes, as he is not permitted to be unaccompanied during that period. He must also be accompanied during his journey home, and, as there is no organisation available that can accommodate these requirements, he must remain in the CCU longer than is clinically necessary. His clinical records must also be carried both ways during this process. Appropriateness of rooms/areas Gender sensitivity funding was applied for by Werribee but the request was unsuccessful. Despite this, the service managed to create gender sensitive areas such as gender specific corridors and lounges. A nurse is undertaking training to broaden the concept and scope of gender sensitivity initiatives beyond the demarcation of geographic areas. A sensory room is being established in one of the bedrooms and staff are being trained in its use. Expressions of interest are also being sought for the formation of a fathers group. Good practice At the Werribee CCU, a support worker has encouraged all residents to become involved in creating a vegetable garden and planting several fruit trees. They have also built their own hothouse to propagate seedlings, and, during one visit, the Community Visitors watched as the support worker demonstrated how to take the seeds out of tomatoes and dry them ready for next season’s planting. There is now such an abundance of fruit and vegetables that a ‘MasterChef’ kitchen has been set up where cooking lessons are held on a regular basis. This initiative offers a great opportunity for the residents to learn the various stages that are involved in getting the produce from the ground to the table. In addition, due to the well-rounded nature of the program, the residents have a unique opportunity to learn skills that will be of real value when their time comes to move on from the CCU and continue life in the outside world. Southern Metropolitan Region The Southern Metropolitan Region mental health services are managed by Alfred Health, Peninsula Health and Southern Health networks. The services visited comprise seven adult acute inpatient units, four aged persons’ acute inpatient units, six aged persons’ mental health residential units, four CCUs, one SECU, one child and adolescent mental health unit, one mother and baby unit, one eating disorders unit and five EDs. Nine Community Visitors conducted a total of 210 visits, 25 of which were requested by consumers and others. Community Visitors Annual Report 2012 37 Mental Health Legal rights and information provision Patients and residents often complain of the limited provision of relevant information by staff about their admission and little support. Concerns reported to Community Visitors include negation of their rights by staff; uncertainty about their diagnosis; confusion about the admission process; little or no involvement in their treatment or discharge plans; unexplained shifts between involuntary and voluntary status; uncertainty about navigating the mental health system and MHRB process; how to obtain second opinions; timely access to allied health services; access to the clinical treating team and their treating doctors; and opportunities to contact their family or employer. Patients want clear information about how a unit operates and what is scheduled, the location of facilities in the unit, the role of the Community Visitors and some require information in languages other than English. A usual staff response is that new patients and residents are provided on arrival with information booklets about these issues. Yet when an individual is experiencing a florid episode, explanations should be given calmly several times, with written information and timetables displayed clearly, in simple language. In an adult acute inpatient unit, one female patient desperately wanted to consult a social worker to discuss the care of her children while she was admitted, fearing they were alone and unsupported. When she learned her mother was taking care of her children she expressed relief, but also anger regarding her mother being unfit to look after the children. The patient’s greatest annoyance was that she had not been consulted about the plans and her wishes were overlooked. The patient lost trust in the staff and harboured strong negative feelings towards them. Case study A patient denied that he was in a psychotic state and expressed distrust of his psychiatrist. He also did not believe the nurses listened to his concerns and was worried that the medication would make it difficult for him to defend his case for discharge. The Community Visitors discussed this with the nurse unit manager who assisted the patient with an application to the MHRB, obtained a second opinion regarding medication and organised independent advocacy. Community Visitors reported that his medication concerns had been resolved, he was calmer and his progress to discharge planning was being assisted by a social worker. Treatment plans Patients continue to question the prescribed medications and the application of ECT. Given the patient’s mental state is likely to be fluid and shifting, and that ECT and anti-psychotic drugs do interfere with rational thinking and memory, the staff must explain the treatment rationale as many times as required. When diagnoses involve a dual disability of mental illness and intellectual disability in acute inpatient units and CCUs, the adequacy of supports to patients may not be sufficient. Often, patients find themselves at greater disadvantage as a result of their intellectual disability and are isolated from the general population as they are unable to cope alone. Community Visitors urge a more collaborative approach between mental health service providers and disability staff to provide greater understanding and rapid response to individuals’ support and care needs. Community Visitors were concerned when four residents with intellectual disability were admitted to a CCU at Frankston. As their needs were complex, the stay was considered long-term not transitional with few suitable options within the disability services system. The residents were eventually supported to move on to appropriate supportive accommodation. Community Visitors have been positively impressed with treatment plans at Michael Court, Seaford, that focus on recovery with relevant goalorientated aspirations. Agreed activity schedules are individually structured, developed conjointly 38 between staff and residents and regularly updated. This approach is welcomed and lauded as best practice that other CCUs could replicate. Community Visitors noted in one CCU some discrepancies and omissions in the recovery plans which were discussed with the nurse unit manager who proposed to update them. Assaults Critical incidents are commonly reported to have occurred within mental health inpatient units and occasionally in residential care facilities. There have been assaults between patients and patients and occasionally between staff and patients. In an adult acute inpatient unit, a patient complained about the use of excessive force when he was taken to the seclusion room and remained in the HDU for a number of days. The service provider advised he was very difficult to manage and uncooperative but was reviewed frequently to see if he was ready to move back to the general ward. Through the OPA Advice Service, Community Visitors attended an adult acute inpatient unit to visit a young patient with mild-moderate intellectual disability and psychotic hallucinations. He was placed in the HDU due to his clinical instability and vulnerability yet he was allegedly sexually assaulted there by another patient. Although the appropriate remedial actions were implemented, Community Visitors remained concerned about the lapse in monitoring by staff and the appropriateness of the treatment plan which was based on a reward/ punishment approach. Given the patient’s disordered thought processes and hallucinations, it is debatable whether the behaviour modification strategies would be effective at that time. Unjustified methods of intervention were reportedly used at an adult acute unit when a patient allegedly was forced to the ground, injected with medication and put into isolation. Community Visitors were advised the patient had absconded and was returned by police in an aggressive and violent mood that necessitated restraint and medication. He remained in isolation until the medication stabilised his mental state. Subsequently, the patient did not recall his request for Community Visitor support, stated there was nothing wrong with him and he did not require hospitalisation. He was referred to the Mental Health Legal Centre. Medical care A focus on a particular aspect of ill-health frequently results in other medical conditions including toothaches, hearing problems, heart and respiratory conditions and cancer illnesses being minimised or ignored. One patient complained of a raging toothache, however, it took more than a week for him to receive dental service. The provision of low-grade pain medication was inadequate to afford relief and his daily request for service met with little response. A resident of an aged persons’ mental health SECU, diagnosed with breast cancer, was refusing treatment. Despite the patient’s cognitive capacity to understand and remember explanations about her condition and treatment options, the service provider initially regarded her decision not to receive treatment as ill-informed. After family and clinical consultations, her right to refuse treatment was respected. Community Visitors regard this as a positive outcome. When the mother and baby unit’s regular doctor was on leave, patients complained of the irregular and untimely attendance of the locum clinical team. In addition, there was dissatisfaction with the very limited time available for counselling services, of only 15 minutes a week to address concerns. The small time allocation of psychological services was reported as inadequate by Community Visitors. A part-time psychologist was eventually appointed and the availability of therapy increased. Discharge planning Patients advise that they are concerned about being discharged too early when they do not feel clinically ready, have limited understanding of their discharge plans, accommodation options, or of the date of their expected return home. Adequacy of beds During the year, increased demand for patient admissions from EDs to the adult acute inpatient units resulted in some patients being relocated into spare beds in the aged persons’ acute units or elsewhere within the hospitals. The transferred patients experienced difficulties with gender/age/ diagnosis mixes and Community Visitors observed that the patients’ psychosocial activities were not adequately met. While the unsatisfactory relocation was acknowledged by service providers and claimed to be a short-term solution only, the practice has continued. Several mental health units hold weekly telephone conferences within their networks about bed availability. This is a useful exercise to determine appropriate accommodation for new and existing patients. A review of the Clinical Practice Guidelines in relation to the transfer of patients was completed and Community Visitors will monitor its implementation. Community Visitors reported concerns regarding two eating disorder beds at Monash Medical Centre relocated to a general medical ward. The patients’ clinical care focussed more on their general medical Community Visitors Annual Report 2012 39 Mental Health condition while the complex eating disorders issues may be relegated to a secondary consideration. These clinical issues require a daily decisional balancing act that can be more challenging when the patients are placed on a general ward where normal meals and medical care are being provided to other patients. Also nursing staff may not be experienced in caring for these mental disorders. Clearly, eating disordered patients require intensive psychosocial therapies in addition to structured weight gain management. Gender sensitivity Community Visitors perceive that the gender specific areas require more active monitoring by staff as male patients regularly use female designated lounges. Female patients have also complained that they felt unsafe due to behaviours of some males. Community Visitors have learned of attempts to separate sleeping areas by gender, however, have observed males sleeping in the female section. In one instance, a female patient was startled to find a male in her bedroom just after she had finished showering. Community Visitors are informed that a gendersensitivity policy is in place, but implementation of the policy remains inconsistent, often driven by inpatient gender mix at a given time. Personal needs Patients and residents continue to raise concerns regarding meals, meal sizes, food choices and security of their possessions. A patient in an adult acute inpatient unit requested soy milk and vegan food. The nurse unit manager advised Community Visitors that she had been eating meat and other foods, which the patient advised she was eating because they were not providing her with vegan food. Community Visitors also noted an issue with a patient who refused to eat pork for dinner. Consideration must be given to the cultural and dietary requirements of patients and residents. Some residents in an aged persons’ mental health unit complained personal items have gone missing from their bedrooms. At the time, none of the residents’ bedroom doors were locked resulting in little security for their personal effects. Non-smoking policy The non-smoking policy continues to be an issue. Some service providers operate an exemption policy or have adopted a common-sense approach by ensuring patients are able to smoke in exterior courtyards with some overhead cover from the weather. This practical approach has been very encouraging although another service provider has adopted a blanket non-smoking approach. 40 Residents have raised concerns regarding an enforced non-smoking policy and Community Visitors have noticed the policy appears to contribute to the escalation of aggressive behaviours and encourages patients to adopt secretive behaviours. Appropriateness for clients A male resident of an aged persons’ mental health residential unit, complained of being bothered by another resident of Greek origin who had also been aggressive when interacting with other male residents. It became apparent the Greek resident was feeling isolated and frustrated with no-one to talk to in his own language and no Greek-specific reading materials or activities. Community Visitors requested the nurse unit manager facilitate contact with an ethno-specific community group to visit and converse with the resident with positive outcomes. Community Visitors are concerned the mother and baby unit at Monash Medical Centre appears inappropriate for its function. Windows are frosted over for privacy reasons from the passing general public, rendering the interior dim and lacking natural light. Bathrooms are also in need of renovation and upgrade. The nurse unit manager advised that renovation plans are awaiting allocation of government funding. Community Visitors support this initiative and trust that funding will be provided to allow the work to be undertaken. Maintenance and safety issues General maintenance and delays to rectification continue to be reported by Community Visitors. Concerns include urine smells around facilities; body fluids and rubbish in courtyard areas not cleaned or disposed of regularly; rooms and bathrooms requiring renovations and not being cleaned frequently enough; cleaners leaving at the end of shift whether the cleaning has been completed or not; bins left unemptied; inoperable public phones; worn furniture requiring replacement and old furniture not removed; call bells not working and patients/residents advising they must rely on others to call staff for help; uncomfortable temperature control within units and rooms; flashing lights in dining rooms; clocks displaying the wrong time and date; mould under eaves; and general weeding and gardening required in residential complexes. Some outdoor areas lack disability friendly access for residents who utilise a wheelchair or are frail and elderly; outside pathways, plants and internal linoleum causing potential trip hazards; and the absence of a hazard strip to identify a change in the incline. Rehabilitation, educational and recreational opportunities Patients and residents have advised that they are bored saying the only activities available are “TV and sleeping” and on occasion making their own activities. There is a lack of choice in music and options of different activities on offer, particularly on the weekends. They have little exercise options available and younger consumers requested more physical activities like gym access and games and yoga. The provision of reading material is often inadequate and patients requested access to more reading material. Positively reported was an occupational therapist who changed the program for consumer activities, which seems to be working much better for them. However, on one visit, it was noted that the planned activities schedule could not be displayed as a consumer had ripped the whiteboard off the wall. It is sometimes the case that disordered behaviours by a few residents compromise the living conditions for all. Unfortunately, funding cuts have meant that two residents at an aged persons’ residential unit can no longer attend their activity group for social interaction, which they very much enjoyed. Community Visitors understand that additional programs are being scheduled. Community Visitors have expressed great appreciation of the implementation of the recovery model of care at an aged persons’ mental health residential unit in Seaford, implementing new ideas and energy in support to residents. This is modelled on a similar program instituted at a local CCU for younger residents. At an aged persons’ acute inpatient unit, Community Visitors observed a female consumer restrained in a chair and noted she was unable to communicate. Staff advised that her mental status was deteriorating rapidly and a transfer to high-level care was approaching. Community Visitors later discovered the patient had been relocated to a high care unit elsewhere where she continued to deteriorate and subsequently died. A resident of an aged persons’ mental health unit was admitted to the ED with bruising to face and body as a result of a recent fall. The resident continued to have falls out of bed and was restrained during the day for her own safety. The bed has been lowered but injuries are still occurring. Community Visitors have been assured that every measure is being undertaken to prevent falls and injuries. Staffing The limited availability of allied health staff continues to be a problem. Patients and residents often experience delays in seeing their activities officer/ occupational therapist, social worker or psychologist. Shortages are reportedly because of illness, annual or maternity leave. Importantly, the network’s budget rarely provides for temporary replacements so the patients’ needs remain unfulfilled. An associated concern is the high usage of agency staff. Nurses also often cover double shifts due to the difficulty in filling short-term vacancies. Least restrictive practice Community Visitors continue to report that units are locked requiring a key code to gain entry. The explanation is that the patients are at risk of leaving the facility or that patients must be protected from unlawful entry by the public. The Mental Health Act requires services to provide a least restrictive environment, however, this often does not occur. The voluntary versus involuntary status of patients and residents is a vexed area that appears to be applied indiscriminately and without explanation. A voluntary patient in an aged persons’ acute inpatient unit was unhappy he was not allowed to go out when he wished. The nurse unit manager indicated that, although he has voluntary status, the treating team would like him to have escorted leave at this stage but often staff are not available. He has voluntary status so long as he complies with treatment, instruction and orders. Community Visitors Annual Report 2012 41 isability Services D statewide themes and recommendations 42 Recommendations Disability Services The Community Visitor Board recommends that the State Government: 1.require disability service providers to have policies and procedures for identifying, reporting and responding to abuse and neglect to ensure safe environments 2.protect human rights by ensuring that no resident is subjected to unauthorised restrictive interventions 3.as a priority, ensure residents participate in planning processes and are given the opportunity to express real choice in the way they live. Those who cannot speak for themselves must be provided with alternative communication support to enable this to occur 8.immediately increase funding for respite accommodation so families can access services when and where they need them 9.develop a strategy and timetable for the closure of Colanda and Sandhurst and the remaining congregate care facilities such as the Oakleigh Centre 10.implement the Productivity Commission proposal that Community Visitors monitor the NDIS 9.adequately fund the Community Visitor Program to ensure it meets its legislative requirements. 4.as a matter of urgency, provide better accommodation options for people with complex needs 5.fund healthcare professionals to support staff and manage health care planning for residents with complex health needs 6.uphold the principles of the Disability Act 2006 by ensuring that residents are supported by adequate numbers of appropriately trained staff 7.ensure staff have the skills needed to provide optimal and individualised support to residents through the development, delivery and evaluation of an ongoing sector-wide training plan Community Visitors Annual Report 2012 43 health care needs staff support/care/ assistance from support staff individual plans/ individualised or person-centred plans personal safety 500 Disability Services 328 288 198 incident reports 152 aids and equipment upkeep of building and fittings Statewide report fire safety health care needs 126 555 120 500 staff support/care/ external presentation/ assistance from 117 outdoor areas support staff In 2011-12, 215 Community ambience and individual plans/ Visitors undertook 2821 visits to individualised or comfort person-centred plans residential services provided by personal safety other incident reports the Department of Human Services enabled access aids and equipment (DHS), Disability Accommodation to the community leisure activities and recreation fire safety Services (DAS) and Community environmental safetypresentation/ external Service Organisations (CSO) outdoor areas ambience and and visited in a range of different dignity/rights comfort participation/ other accommodation settings, including engagement/inclusion in the community enabled access group homes, respite houses for to the community choice/decision making leisure activities both adults and children, and and recreation compatibility institutions. environmental safety 90 financial managementdignity/rights 74 89 328 110 288 198 105 152 94 126 93 120 90 117 89 110 105 issue types identified 79 94 75 93 74 issue types identified Fifty-nine trainees were recruited to the program structureparticipation/ and 51 appointed by the Governor in Council. It is building 69 andengagement/inclusion design in the community expected that this increase in Community Visitors choice/decision making 48 will see visit numbers improve in the 2012-13 facilitating/encouraging independence reporting year. compatibility heating and cooling 79 75 74 42 financial management The Board is very pleased to report the positive staff training/ 35 engagement of the government with the Communityattitudes building structure presented and design Visitors Program. Parliamentary Secretary for ageing and planning 34 facilitating/encouraging Families and Community Services, Andrea Coote, independence of attended three meetings of the Combined Board in staff awareness heating and 30cooling Visitors order to hear first hand the views and concerns of Communityprotocol staff training/ Community Visitors. Following each meeting, she attitudes presented 27 resident complaint took up a range of important issues on behalf of the ageing and planning program. The program looks forward to continuingrestraint & seclusion 24 staff awareness of this positive relationship. Community Visitors security 660 Eastern 124 Gippsland 301 Grampians 225 Hume 195 Loddon Mallee 228 Northern 537 Southern 238 Western Figure 8. Disability Services Stream number of visits by Community Visitors 11/12 69 48 42 35 34 30 protocol 19 resident complaint 313 Barwon-South Western 74 27 unmet need 17 restraint & seclusion in accommodation 24 security 16 19 unmet need in accommodation 15 abuse/neglect 17 restrictive practice/ locks restrictive practice/ 14 locks 16 access abuse/neglect respite issues 15 13 access 14 insititutions and 9 issues congregate respite care settings 13 insititutions and congregate 8 reportable deathscare settings 9 reportable deaths 8 landlord issues 7 landlord issues 7 preventative 5 health carepreventative 5 health 0 care100 0 200 100 300 400 200 300 400 number number 500 500 600 600 Figure 9.Services Disability Stream Services number Stream number and types of issues identified 11/12 11/12 Figure 9. Disability and types of issues identified 44 Dignity, respect and rights No. of units visited No. of CVs Requested visits Scheduled visits Total Disability Services Stream Barwon-South Western 79 25 3 310 313 Eastern Metropolitan 249 54 15 645 660 Gippsland 47 15 4 120 124 Grampians 82 13 6 295 301 Hume 64 15 5 220 225 Loddon Mallee 60 9 3 192 195 Northern Metropolitan 132 17 6 222 228 Southern Metropolitan 206 49 29 508 537 Western Metropolitan 95 18 8 230 238 1014 215 79 2742 2821 Region Community Visitors regularly report that residents have limited opportunities to realise their individual capacities. This might due to poor access to affordable transport or staff shortages or inadequate support. In many cases, residents are not able to make genuine choices about such things as who they live with, activities they engage in or even when they retire. Sadly, many people still have unmet communication needs, so are unable to actively participate in the decisions that affect their lives or to understand the information that might help them to do so. The principles of the Disability Act state that people with a disability have the same rights as other members of the community to: • • • • • • • respect for their human worth and dignity live free from abuse, neglect and exploitation realise their individual capacity for physical, social, emotional and intellectual development exercise control over their own lives participate actively in the decisions that affect their lives and have information and be supported where necessary to enable this to occur access information and communicate in a manner appropriate to their communication and cultural needs services to support their quality of life. In practice, it is often difficult for people living in residential services to fully exercise these rights. Figure 10. Total visits Disability Services Stream 11/12 number of issues identified Abuse, neglect and personal safety 100 90 80 70 60 50 40 30 20 10 0 87 66 55 2009-10 2010-11 2011-12 reporting year Figure 11. Disability Services Stream abuse, neglect and assaults 2009-2012 This year, there was an increase in the number of reports of serious incidents involving abuse, neglect and personal safety. Since the tabling of the Ombudsman Investigation, Assault of a Disability Services Client by Department of Human Services Staff 2011, there is greater awareness of the role of Community Visitors. This has resulted in an increase in calls to the Office of the Public Advocate’s Advice Service requesting visits by Community Visitors. Calls are often from staff in residential services who do not feel confident about raising concerns within their organisations or, in the case of some agency and casual staff, do not know who to go to with their concerns. Some calls were from family members, friends and, in a matter in the Eastern Metropolitan Region, a concerned taxi driver who reported that a resident he picked up from a group home had a large red welt across his face. Community Visitors across the state reported on assaults and personal safety of residents. In the Barwon-South Western Region, a Colanda staff member assaulted a resident and a man living in a group home was assaulted twice by people who Community Visitors Annual Report 2012 45 Disability Services he lives with. In the Eastern Metropolitan Region, residents were assaulted and threatened by a housemate, and a woman was discovered by staff to have suffered unexplained bruising and a fractured arm. In a CSO house in the Eastern Metropolitan Region, a staff member was charged by police with the sexual assault of a number of residents. North and West Region Community Visitors reported that staff who witnessed a family member assaulting a resident did nothing to intervene and, in another case, two residents suffered multiple, unexplained fractures. Incident reporting Notification of serious and significant matters to the Public Advocate Community Visitors reported a large number of issues with the implementation of the new policy, including a lack of clarity about the management of records and variations in the application of the instruction. In both DHS and funded agency services, there was inconsistent practice across regions and, in some cases in different houses of the same provider. In 2011, the Public Advocate negotiated a protocol with the DHS Disability Services Division to ensure protection for residents subject to abuse, neglect or assault. Following notification by staff of a serious and significant incident, the Public Advocate assesses the matter and, in most instances, refers it directly to the Executive Director, Disability Services Division, for immediate attention. The first element of the response from DHS must be an assurance of the immediate safety of the resident identified as being at risk. This year, there were 21 notifications to the Public Advocate covering a range of matters including: assault, unexplained injuries, inadequate behaviour support, and poor standards of care. The department’s responses to matters have been prompt and generally thorough. In some instances, Community Visitors were not satisfied. For example, in a matter in the Eastern Metropolitan Region, a young resident with violent behaviours continues to live with older housemates, whose physical circumstances leave them vulnerable to his threats and assaults. In other matters, DHS investigations have failed to identify the likely cause of serious injuries sustained by residents. The Ombudsman’s report recommended that DHS review its critical incident reporting forms and consider the implementation of a web-based reporting system “to provide a more efficient and immediate reporting process”. DHS did not implement a web-based system, however, it did review its incident reporting requirements. In December 2011, it introduced a new policy, the Critical Client Incident Management Instruction 2011 which applies to all departmental services and those provided by funded agencies. The understanding of the instruction’s specific requirements varied greatly. For example, the requirement that an incident report is written by the most senior staff member present at the time of the actual event. Many Community Visitors reported that they were told by senior managers that they routinely rewrote the original report because the handwriting was illegible or to provide clarity, correct poor grammar or remove inappropriate comments. In some organisations incident reports were not accessible to Community Visitors. This was most common in CSOs where documents are often only kept in an electronic format, but it also occurred in DHS houses where casual and agency staff, in particular, told Visitors that they themselves were unable to access incident reports. This year, the Board began negotiating the protocol covering the interaction between the program, the department and CSOs. During this process, there have been discussions about the formal inclusion of the notification process in the protocol to guide future arrangements to protect residents at risk of abuse or neglect. Community Visitors reported concerns about the incorrect categorisation of incident reports. For example, in the Barwon-South Western Region, a resident was assaulted by a housemate; police and ambulance were involved but the incident report was recorded as a category two and not a category one which would be usual in the circumstances. When questioned about this, the CEO of the organisation told Community Visitors that it was not a serious incident and that the resident had been “putting on a bit of an act”. DHS and CSOs must go further and prevent abuse from happening in the first place. They must have a zero tolerance of abuse and encourage staff to report any actual or suspected abuse or neglect. Responses to incidents must be swift and decisive with police involved where appropriate or independent investigations undertaken. Residents and families must be kept informed and their support needs properly addressed. The new reporting instruction did away with the requirement to report category three incidents, instead, service providers are required to maintain a record of non-critical events for each client. Community Visitors in the Southern Metropolitan Region have noted that, in some services, incidents that have been recorded as non-critical would, under the previous reporting instruction, been reported as a category two. 46 In response to Community Visitors’ feedback on the implementation of the instruction, the department conducted extensive training with its own staff. It also convened a meeting with the Board and National Disability Services to discuss incident reporting issues and clarify requirements. These discussions led the department to plan a project, to be undertaken in 2012-13, to train staff in CSOs. Community Visitors watch with interest the effect the changed reporting requirements will have on the management of critical incidents. They continue to report concerns that the new system does not require a central register of serious incidents to be maintained in each house, that it is still a possibility that no incident report will be prepared at all, and that serious incidents will escape unnoticed due to incorrect categorisation. Individual Support Packages Last year, the Board expressed concerns that Community Visitors were unable to visit people who were on an Individual Support Package and who purchased their supports through different service providers. This year, the Disability Amendments Act 2012 redefined residential services and clarified that the accommodation and support services in a residential service may be provided by different providers and, as a consequence, Community Visitors can now visit more houses. While it will place greater demands on the program, the Board believes that everyone who is entitled to the protections afforded by Community Visitors should have access to them. There have been a number of occasions during the year when Community Visitors have sought clarification from the department about whether Community Visitors could visit. They are concerned, however, that services only came to their attention incidentally and that there is currently no system in place to ensure that they are informed of all services eligible for visits. This is a matter that the Board will pursue in the coming year. Healthcare The treatment of people with a disability in the health system varies greatly. Health care issues reported in all regions include: delays in seeking medical attention; lack of up-to-date health care plans; incorrect administration of medications; lack of access to general practitioners in rural areas as well as poor treatment and understanding of patients with a disability in the medical system. In one case, a non-verbal person was sent unaccompanied by ambulance to a rural hospital. It took three presentations at a hospital before several fractures were identified and appropriate treatment provided. While they waited for appropriate treatment they would have suffered constant pain and distress. The Public Advocate was so concerned about the standard of care provided to this person that a complaint was lodged on their behalf with the Health Services Commissioner. Concerns about the capacity of staff and the system to manage the changing needs of an ageing population were also consistently reported. Community Visitors have pushed for people with a disability to have the same choices as other Victorians to ‘age in place’ and in their own home if they choose to do so. However, current staffing models often impede this. Monitoring of this issue will be a focus of Community Visitors’ work over the coming year. In the Hume Region, a number of residents were admitted to mental health facilities and Community Visitors reported there was not always enough open communication between the mental health services and house staff to enable appropriate supports for a person with dual disability. In the North and West Metropolitan Region, a resident fell in the shower and sustained a head injury but staff delayed seeking medical attention for three days. In the Gippsland and Southern Metropolitan Regions, Community Visitors reported matters involving poor quality care and the apparent lack of staff capacity to adequately support residents. In the Gippsland Region, Community Visitors responded to a call from staff at the local hospital who were concerned that a woman had been taken to hospital multiple times suffering from hypothermia. In the Southern Metropolitan Region, they reported concerns about the high use of agency or casual staff in a group home where a number of the residents have complex medical support needs. Community Visitors reported on a number of relatively young residents who have a diagnosis of reduced bone density and who have suffered serious fractures. The development of preventative programs aimed at minimising the potential for painful, disabling and costly fractures must be a priority. Community Visitors understand that early intervention to minimise osteoporosis can improve quality of life and reduce the cost to the community. Staff capability and support While many Community Visitors reports noted the excellent work staff were doing, it remains a concern that care standards can vary widely. Some residents are fortunate to be supported by appropriately trained staff with whom they are familiar. Others live with a constant stream of ‘strangers’ in their home, some of whom do not have the skills to adequately care for them. Community Visitors Annual Report 2012 47 Disability Services In the Grampians Region a house with three residents who require one-on-one staffing consistently operates with one or two staff supporting five residents. In other houses, two residents suffered serious injuries from falls when staff failed to follow proper procedures. A shortage of staff in the disability sector generally has put pressure on rosters and affected the ability of services to recruit and retain skilled staff. Community Visitors reported persistent shortages of permanent staff and the high use of agency staff. Agency staff often lack the specific skills required to work with the group of residents to which they were assigned and Community Visitors reported that they often missed out on the induction and orientation necessary to provide adequate care and support to residents. Chronic staff shortages lead to poor quality care; high use of casual and agency staff often means that only the most basic support tasks get done, and more long-term activities such as person-centred active support fall by the wayside. An emerging issue is the lack of communication between staff in day programs and house staff. There is an expectation that there will be close collaboration between house and day program staff, but Community Visitors have noted issues that have arisen in day programs that have affected a person’s wellbeing at home. In some cases, medication has been missed, in others residents have been involved in incidents that have not been communicated to house staff. Family relationships Many people living in residential services have good family relationships that add a positive and satisfying dimension to their lives. However, in a few instances, Community Visitors documented abuse in these relationships or interactions with family that have led to adverse outcomes for the resident. Community Visitors urge vigilance on the part of service providers to protect residents from abuse, neglect or exploitation in all their relationships. Planning A range of issues have been reported relating to individual planning. Some people still do not have person-centred plans (PCPs), but most commonly, Community Visitors have reported that, while plans are in place, they are out-of-date, not updated when a person’s circumstances change or that they lack meaningful goals, strategies and evaluation. In some cases, staff are unfamiliar with a person’s plan or goals are not realistic, given the person’s financial circumstances. 48 In the Eastern Metropolitan Region, Community Visitors commented that one of the keys to effective planning was ensuring that people were able to communicate their goals and that, in many cases, residents have not had adequate communications assessments, so are unable to provide active input into their personal plans. In the Southern Metropolitan Region, Community Visitors reported that they found it difficult to track the implementation of plans due to inconsistent recording of progress notes; they noted that consistent staffing leads to better recording of information. The unauthorised use of restrictive interventions is a serious breach of human rights. Community Visitors have reported a lack of Behaviour Support Plans (BSPs) for people who require them and BSPs that have not been lodged with the Office of the Senior Practitioner (OSP). In the Barwon-South Western Region, staff in a CSO house told Community Visitors that a resident was subject to chemical restraint but did not have a BSP. In the Eastern Metropolitan Region, Community Visitors reported that a young man who had violent outbursts may have been subject to chemical restraint but, as he did not have a current BSP, they could not be sure. Community Visitors report that, in some regions, there was a lack of holiday planning for residents but, in others, residents have taken a variety of different holidays. A large number of residents from Colanda, in the Barwon-South Western Region, not only went on holidays for the first time, but went on holidays interstate and without the support of Colanda staff. However, in the Grampians Region, it was again reported that a number of residents with high support needs have been unable to take annual holidays. Community Visitors continue to report concerns about lack of long-term planning for the accommodation needs of an ageing population in residential services. The approach to ageing appears to vary widely across regions and within DAS and CSOs. The support of ageing residents continues to prove challenging with concerns around transport, retirement options and increased health needs. In the Barwon-South Western, Eastern Metropolitan and Hume Regions, Community Visitors reported that a number of people have moved into nursing homes as residential services could no longer provide them with the support they needed to stay in their homes. Community Visitors have also reported on the lack of environmental planning. They expressed concerns about the poor maintenance of many DAS and CSO houses and about the future replacement of old and inadequate houses. In the Barwon-South Western Region, it was reported that a number of DAS houses had unsafe floor coverings; in one, this had caused many falls. A house managed by a CSO was so unsuited to the needs of the residents who lived there that one man, who uses a wheelchair, needs assistance to navigate the way to his bedroom or he risks hitting his head against the architraves. Community Visitors have always believed that institutions and congregate care facilities deny residents their basic human rights. They call on the State Government to plan for the closure of the remaining institutions and congregate facilities so that Victoria’s policy of quality community-based support for people with a disability is finally fully implemented. With the end of the Strategic Replacement and Refurbishment Plan, Community Visitors are concerned that more and more residents will be forced to live in poorly maintained and inadequate housing. Draft Victorian State Disability Plan 2013 – 2016 Respite A range of respite service issues were reported. Most concerning was the shortage of respite beds and their use to accommodate people for reasons other than genuine respite. In the Barwon-South Western Region, Community Visitors reported that parents at one service were getting only half the respite they required and that, in a six-bed facility, three residents were taking up four places on a long-term basis. In the Hume Region, the demand for respite continued to be greater then the beds available and, in the Eastern Metropolitan Region, waiting lists for services are exacerbated by places taken up by people in full-time care. In the North and West Metropolitan Region, Community Visitors reported on a young girl who was moved from one long-term placement in a CSO respite service into another seemingly permanent placement in a DAS respite service. The respite situation is simply unacceptable. Families who desperately need services are being denied them, while people who deserve a secure home languish in temporary circumstances where they are denied the same rights as residents living in permanent accommodation. Closing institutions and congregate care facilities Today more than 100 people continue to be institutionalised at Colanda and Sandhurst and many more live in medium and large group facilities that have more in common with an institution than a home in the community. DHS released a draft State Disability Plan for comment in June 2012. Community Visitors support its direction: addressing the “disadvantages that people with a disability, their families and carers experience as part of their everyday lives”. Community Visitors found that the draft plan was more in the nature of a policy framework, rather than an actual plan. The state plan should properly outline the leadership, service delivery and coordination role of government in advancing the social inclusion and citizenship of people with a disability. Community Visitors commented on the draft plan and will monitor its further development. Healthy Living Survey Inspired by the release of the Victorian Population Health Survey of People with an Intellectual Disability 2009 in late 2011, OPA and the Board decided to undertake a survey of residents in residential services and, between 1 March and 31 May 2012, Community Visitors collected information in relation to 697 residents. The residents Fifty-six per cent of people surveyed were male and 44 per cent were female. The majority were under 60 years old, with just one in seven aged 60 years old or more. One-third of the people surveyed needed assistance to walk, while two-thirds were able to walk unassisted. This year marks the 20th anniversary of the closure of the Caloola Centre, following Community Visitors reports into the terrible conditions for residents. The closure of Kew Cottages’ was announced ten years ago, after a long series of Community Visitors’ reports detailing its unsuitability. Community Visitors Annual Report 2012 49 Disability Services Physical activity 40% Responses showed that four out of five residents had undertaken some form of physical activity in the last week and 40 per cent had met the minimum recommended physical activity guideline of half an hour of physical activity on five or more days per week. This is lower than the equivalent rate for the general Victorian population. The survey asked if the person was physically able to undertake more vigorous activity than they had in the last week. Overall, more than one in three residents (36 per cent) were thought able to undertake more vigorous activity. This varied by resident age (see Figure 10.) 30% 20% 10% 0% 18-39 years 40-59 years 60+ years Sports group Church group Community action group Member of at least one group Figure 13. Proportion of residents who are members of various sorts of community groups, by age group 11/12 80% 70% 60% Person-centred plans 50% The vast majority of residents had up-to-date person-centred plans that were being implemented. Where this was not the case, the most common reason given was inadequate staffing ratios. 40% 30% 20% 10% 0% 18-39 years 40-59 years 60+ years Could do more vigorous activity Couldn't do more vigorous activity Don't know Figure 12. Proportion of residents thought able to undertake more vigorous activities, by age group 11/12 Community engagement Eighty per cent of residents had attended a community event in the last two months. Eighty-seven per cent had done so in the last six months, compared to 53 per cent of the general Victorian population. Residents were more likely to belong to a community action group than a sports or church group (22 per cent compared to 19 per cent and 12 per cent respectively). The general Victorian population is less likely to belong to a community action group (19 per cent) but more likely to belong to a sports or church group (26 per cent and 16 per cent respectively). Overall, more than one in three residents (36 per cent) were members of some sort of community group. This varies by age group, with residents aged 40-59 years the most likely to belong to a community group. Regional reports Barwon-South Western Region Geelong and Colac Planning With good transition planning, some residents have relocated to more appropriate settings or to be closer to their family. Staff have made tactile and memorial areas in some houses and the availability of a room allows ageing residents to participate in day programs in their home. Choice and decision-making Increasingly, residents are making their own choices about the things that matter to them, such as day programs that match their interests, pets, paint colours, furniture, holidays and activities. Many residents regularly spend time with their families. One resident has a ride-on mower and a dune buggy and is paid to mow the grass. Staff support Residents are well-supported by staff who have assisted them to visit housemates in hospital, attend a housemate’s funeral and maintain contact with 50 ageing residents who have moved into nursing homes. In one house, they continued to support two residents to spend time together. Some staff are very creative in their support, for example, producing a calendar with photos of the year for residents and their families for Christmas, a photo album of a resident’s life for his 21st birthday, and a tribute photo board to commemorate a resident who died. ‘The Farm’ staff team were finalists in the Team Support Worker Award for working with residents to keep them safe and involved with living. This team is small with regular staff and regular casuals. The personal gains by the residents in their care are a testament to this staff team’s great work. Nursing support in the My Future My Choice houses is vital as many residents have complex healthcare needs. One resident was significantly affected by the lack of nursing support; outcomes for him were positive when he moved from a house without support to one with it. There will be a significant need for palliative care support in these houses if the wishes of some residents to remain in their own home is to be respected. One resident returned from hospital to the house for palliative care. While the resident was in hospital, house staff supported him for one hour at each staff changeover and, when at home, two active night staff assisted with palliative care. Facilitating and encouraging independence Person Centred Active Support (PCAS) is enabling residents to become increasingly independent. Apart from household chores, residents are learning many new skills including: making cappuccinos; managing their medication; using public transport; participating in meetings; becoming more independent in personal hygiene; using keys; and managing finances. Some are studying at TAFE, and one receives payment for sitting on interview selection panels for staff. A few residents have moved into independent units and one resident has regained independence by using a lighter wheelchair, which she can propel herself. Very occasionally, parents object to efforts by staff to encourage independence. One group of residents, which has moved from Colanda, are enjoying their spacious new home. They have a spa bath but, unfortunately, the wrong model was installed and there are no handrails, making it only accessible by hoist. One resident regularly uses a hoist, but for four mobile residents, hoisting them into the bath would be undignified. Residents are encouraged to take an interest in cooking, but electric hot plates, which give no indication they are hot, are an accident waiting to happen and will only be replaced at the residents’ expense. Three banks of lights in the 30-metre long passage of one new house are all controlled by a light switch inside the front door. The living area is at the end of the passage and there is no two-way switch to provide the residents with the opportunity to turn their passage lights on and off. Participation and engagement Residents access the community for family contact and outings. Some residents, enjoyed helicopter rides for birthdays and others enjoyed ‘high tea’ at the Windsor Hotel. Many residents participate in organised sporting activities, such as competitions, swimming, gym, surfing and Tai Chi. Some take part in community events such as Relay for Life, while others choose more solitary activity like going for long walks to the local library. Other residents prefer arts-based activities with dance, drama and music proving very popular. A number of residents entered their artwork in local exhibitions. Inadequate transport options continue to affect the ability of some residents to access the community. For example, in one house, the designated vehicle was not wheelchair accessible; at a respite facility there was no designated vehicle and at another house wheelchair issues and the number of staff needed to support the residents prohibited a group outing. An outing to the Melbourne Aquarium was terminated when the designated vehicle was unable to access the carpark because of its height. Residents regularly go out for meals and two residents had their first opportunity to have a family Christmas when staff invited them home to join their celebrations. There has been considerable effort by staff to keep residents in contact with their friends who still live at Colanda. Enabled access to the community Moving younger people out of nursing homes and into the community should improve their quality of life and give them a real chance to make choices about how they live. Residents who live in My Futures My Choice houses have complex needs, including healthcare, but this should not be a barrier to their involvement in the community. Some problems with the establishment of these services have been addressed, but, in some cases, timeframes for resolution have been unacceptable. Improved access to the community can only be achieved if the appropriate equipment and aids are available and repaired in a timely manner. Staff must be alert to every opportunity to engage residents with the community and organisations have a responsibility to ensure the staffing is sufficient to facilitate these opportunities. Community Visitors Annual Report 2012 51 Disability Services Community access has been restricted for residents who use wheelchairs because of inadequate access and amenities at local sports venues. The local pool has a broken hoist and a shortage of chairs for pool access. While construction is underway at Simonds Stadium, there is reduced access for people who use wheelchairs. One resident, who lives in a My Future My Choice house, had no community access for two to three weeks because his manual wheelchair presented a personal risk and another resident was housebound for seven months. One resident has hydrotherapy once a week instead of the three scheduled sessions because he needs the support of two staff. Community access and socialisation for a resident who has chosen to be nocturnal has been very limited. On one occasion, staff overlooked a diary entry for a dance outing, consequently residents missed an opportunity to socialise. The lack of wheelchair funding for ageing residents impacts on family finances. Repairs to a standing frame have been delayed and the repairs short-lived. Plans by the two service providers to share aids and equipment in the future should help to avoid some lengthy waiting times. Leisure activities and recreation Residents travelled widely for holidays, supported by house staff or staff from other organisations such as day programs, mental health agencies and holiday companies. Some residents had holidays with their families. Some residents have lost weight after becoming involved in a walking program which won the DAS Award for Perpetual WorkSafe Week. In contrast, a resident in a house built on a busy through road is missing being able to walk freely around the Colanda grounds. Healthcare needs Some residents required medical and dental checks to be performed under general anaesthetic. A resident was hospitalised with pressure sores. Common issues included swallowing difficulties and medication reviews. There are many strategies to assist residents to lead healthier lifestyles. One house has a swing, a treadmill, a bike, a trampoline, a basketball ring and soccer balls to promote exercise, and another has a shed with bike and exercise equipment. Residents are encouraged to walk to suit their circumstances and abilities. Residents who use walkers do laps of a ‘circuit’, some residents walk laps around outside tables, while others venture around the block or 52 even further. There are programs promoting healthy eating and keeping fit and a few of the houses have treadmills. Aids and equipment New beds, walkers, wheelchairs, and electronic shower chairs have improved the quality of life for many people. A young resident has a new trampoline and a three-wheeled bike and another bought a massage chair. A hoist was installed for a new resident in one house, however, in other houses, there is still a need for hoists and an adjustable shower chair. Communication aids are being trialled to relieve a resident’s anxiety over being unable to communicate to staff. Specialised electronic equipment needs regular servicing if it is to operate as expected and a lifting hoist was unable to be fixed over the holiday season. One resident’s bedrails were considered to be restrictive and were not to be used. The resident, who experiences drop seizures, got out of bed and knocked his head causing injury. The bedrails were subsequently reinstated. Personal safety Unlocked medication, un-regulated hot water, a broken auto-ignition on a gas oven, white-tailed spiders, a lack of shower grab rails and no cooling in a unit were all issues for residents. In some instances, episodes of escalated behaviours by one resident have had an impact on all residents. For example, a resident was breaking energy efficient globes and the other residents and staff had to evacuate the house because of the mercury content. In another house, escalated behaviours resulted in considerable property damage, police attendance and disruption to planned social activities. Ageing and planning Staff undertook dementia training to address the need at some houses. A variety of approaches to meet the needs of ageing residents were undertaken: one resident moved closer to family, another moved into a house with 24-hour staffing and three ageing residents moved into nursing homes. In one house, a man moved into a larger room closer to toilet facilities and was able to stay in his home and with his sister. Respite A young, long-term respite user moved into a group home but three homeless residents were living in a respite facility taking up four of the six respite beds. On one occasion, two respite users were sent home to allow two emergency respite placements. On occasions there were concerns about the deployment of staff in respite services, for example, five residents with high-care needs were supported by only two staff. In contrast, two staff were required to monitor one permanent resident in a respite service. There is a lack of recreational activities at a Geelong respite facility where many users are physically active. At one respite facility, it was reported that parents are getting half of the respite they used to receive. Ambience and comfort Residents of one house chose outdoor furniture, worked on an outdoor makeover and made a DVD of their project for the Geelong PCAS presentation. Residents at another group home had as much input as possible into their outdoor make-over and the house supervisor made the outdoor furniture. Veggie gardens across the region are flourishing. A seat and handrails were incorporated into new planter boxes in a Colac backyard to provide residents with independent access and a place to sit and watch the birds in the aviary. A wonderful sensory wall depicting a rural scene is also being completed at this house. There were considerable improvements made to outdoor areas with café and shade blinds but there is a need for an appropriate outdoor surface at one house for a resident who crawls. Building structure and design Houses have been improved in a range of ways: rearranging living areas; moving a TV so residents can also see what is going on in the kitchen; moving wheelchairs behind a craft area; brightening with photo displays and artwork; new furniture for lounges and bedrooms; new furnishings and interior decorating. A new house with an independent unit opened in Geelong. Modifications to existing structures included the installation of a shower in a unit, bathroom renovations and converting one unit into two. The conversion of a former sensory room into a second bathroom in a Camperdown house has stalled. Some bathrooms in Geelong CSO houses are outdated and an independent unit continues to be stale and stuffy. Five residents who use wheelchairs live in a Colac house which is unsuited to their needs. It has narrow passageways and doorways, small bedrooms and unsheltered access to the house. For many years, Community Visitors have been reporting on the unacceptable conditions in which these residents live and, while they are pleased that the department has undertaken to work with the CSO to address the issues, they are disappointed that the promised renovations were still not completed at the end of the reporting period. In one house, families have purchased a massage chair and swing. In another, house staff are providing sensory opportunities by making a number of plaques in picture frames which are hanging on the wall. Sensory toys hang from the handrail and small sensory balls are enjoyed by residents. Heating and cooling In some houses, the heating level does not always match the needs of residents who spend a lot of time sitting. After many months, the lack of heating in a new house was found to be due to vents not being reopened after the heating was tested. Eastern facing bedrooms get very hot in summer and need outside awnings. The most accessible outside area needs retractable shade if the residents are to safely use this space all year. External areas The water issues at a Gateways house have been overcome and there is a new car shell on a concrete pad and a new basketball ring and court. Along with a bike, swing, table tennis table, trampoline, chook house, raised veggie garden and space for a game of cricket, this provides an ideal setting for the residents of the houses to gather for social activities. Case study A male resident who uses a wheelchair has difficulty accessing his room as he slumps sideways in his wheelchair. Staff assist him to navigate the narrow passageway and guide him through his doorway to his room, so he doesn’t hit his head on the architraves. The inappropriate design of this house is preventing him from maintaining his independence. Community Visitors Annual Report 2012 53 Disability Services Colanda Colanda is home to 99 residents. There is a positive atmosphere, with staff planning for the future. Finch Unit closed in November 2011 and eleven clients transitioned to Wren Unit. Increased staffing provided residents with greater opportunities for individuality and community access. Planning Some clients moved into group homes or between units to better address their needs. For one client, it was their third move and, for another, their fourth. There was no opportunity for transition for a client who transferred to a Geelong nursing home at short notice. Eagle Unit is being transformed and is moving away from the use of restraint. Staff had specialised training and the unit was unlocked in May. The seclusion room has become the ‘reflection room’ and is the final stage in behaviour management. It has been painted and will have a mural, soft chairs and piped music. Day programs were reviewed and changed. Ageing clients will have shorter sessions with more intensive support and residents who use wheelchairs will have increased uptake of part-time day programs, where available. Choice and decision-making Independence is encouraged in many other ways: one resident is learning to self-administer their medication; another mows the grass with his hand mower and one man now communicates by typing into a tablet computer that speaks for him. In preparation for the inaugural Colanda Ball, residents have had dance lessons and have brought suits and dresses with the assistance of staff. A hand rail in a day room and a small easily manoeuvred wheelchair encourage independence but in Hostel Unit, clients are no longer able to wash their clothes as their new washing machine is an ‘industrial’ model. Participation and engagement Residents are encouraged to keep in touch with their families, some of whom live in Melbourne and Geelong. Skype is being trialled for less mobile clients. Some residents participated in community events, others enjoyed regular facials and massages and Hostel Unit residents went on an outing to Birregurra. Residents attending the OPUS After Hours Program have the opportunity to mix with people from group and private homes and 19 residents went to the OPUS ball. While residents had regular community outings, at times the community came to Colanda: Delta Dogs visited Robin Unit fortnightly and two staff members regularly brought their dogs in for pet therapy. The aged clients in Martin Unit have more opportunity to be involved in decision-making. For example, breakfast is made in the unit, instead of the central kitchen, and there are a number of lounge areas, including a new ‘quiet lounge’. Considerable efforts were made to maintain friendships with former Colanda clients who had moved. However, since the closure of Finch Unit, former residents visiting Colanda are having difficulty associating with their friends. Wren Unit clients have a greater choice of activities at weekends. A pampering room has been set up in the aged unit where clients can have massages and nail care. A shelter has been built, overlooking Forest Road, for a resident who has spent much time there over the past 30 years. Leisure activities and recreation Facilitating and encouraging independence Staff supported clients in hospital, in rehabilitation and through medical procedures and assisted some clients to walk around the Colanda grounds. Innovative approaches encourage residents to get out walking; a blue line was painted on the footpath so residents can independently find their way to the day program and administration buildings, and one client has a two-way radio which he uses to communicate with staff when he is out. 54 All Robin Unit residents had holidays this year, some for the first time. Queensland was a popular destination. One woman, who was unable to go interstate, enjoyed a long weekend in Warrnambool. Short holidays are being planned for other residents. It is difficult to find accommodation for some residents who have high support needs such as PEG feeding. Residents enjoy a variety of interests and have bought a range of equipment to enhance their leisure options. Other residents enjoy massages for relaxation and playing music. Abuse and neglect Late in 2011, the manager at Colanda notified Community Visitors that a resident had been assaulted by a staff member. The assault was witnessed by two other staff members who were prompt in reporting the incident. The staff member, who no longer works at Colanda, was stood down immediately and the incident was reported to the police for investigation. Healthcare needs Residents have regular access to allied health professionals including a dietician, a speech therapist and a physiotherapist. A resident for whom PEG feeding is unsuitable had chest infections and had been hospitalised on a number of occasions; he has benefitted greatly from the dietician’s recommendations and has not had a recurrence. To maintain flexibility, the residents of Martin Unit have physiotherapy sessions three times a week. As they are ageing, they are also kept home from day program at the first sign of being unwell or if the weather is extreme. A video link was used for a specialist check-up and saved an ageing client a round trip to Geelong. In Robin Unit the filing of health records has improved and a health information folder now accompanies residents to medical appointments and hospital. South West Planning Planning is generally well-managed, however, it was reported that some PCPs and BSPs were not updated as required. In one instance, a resident was chemically restrained but his BSP was out-of-date. Choice and decision-making Two residents living in accommodation provided by the same CSO told Community Visitors they would like to live elsewhere and would like help to explore alternative accommodation options. Staff support A young man who lives in a CSO-managed house is aware that he has difficulty managing his temper and asked Community Visitors if they could get him help. He said he wanted a case manager to arrange counselling support and that he did not want to be using medication. Community Visitors understand that the resident is subject to chemical restraint and that his BSP is out-of-date. They raised the matter with the organisation but have had no response. Aids and equipment Individuals have benefited from new pressure relieving cushions, low-profile PEGS and easily tilted matrix chairs. Allied healthcare workers, based at Colanda, continually review clients needs for beds, wheelchairs, helmets and other types of equipment and aids. External areas The large outdoor area of Robin Unit is being transformed into an adventure playground. Clients are purchasing playground equipment and students from Colac College are involved in the veggie garden makeover. A resident has purchased a large bird aviary, which is home to some brightly coloured birds. To address fire and safety concerns the eaves of Swan Unit were replaced and large trees in the grounds were felled and undergrowth was removed. Community Visitors Annual Report 2012 55 Disability Services Abuse and neglect Case study A man living in a group home managed by a CSO was assaulted on two separate occasions by two different housemates. His parents informed Community Visitors of the assaults and said that they were having difficulties making a complaint to the CEO of the organisation. The man said that, during the first assault, he was dragged out of a car and punched around the head and during the second he was pulled out of his wheelchair; police and ambulance attended on both occasions. The man also said he wanted to make a complaint to the CEO but was prohibited from doing so. Community Visitors reported difficulties accessing incident reports and expressed concerns about their accuracy and categorisation. They met with the CEO and senior managers who confirmed that the incidents occurred. When questioned about the categorisation of the incidents, the CEO told them that the second one was not really a serious assault and that the resident, who he said was smiling and laughing afterwards, had been “putting on a bit of an act”. He said that the first incident had been recorded as a category one, but that it had been “downgraded” by DHS to a category two. Concerns about the matter were raised with DHS and a Quality Service Review has been commenced with the organisation. Financial management In reviewing assets registers in DAS houses, Community Visitors noted that some residents own goods of considerable value; in more then one report they asked if arrangements are made to insure residents’ possessions but, as yet, have received no response. One CSO did not have assets registers, however, Community Visitors were told they were being prepared. 56 Compatibility Resident incompatibility was consistently reported. In one house, a resident was assaulted by housemates and, in others, the behaviours of residents with complex support needs affected the quiet enjoyment of other residents. A young man who is quite capable lives with older residents who have poor communication skills. Community Visitors have questioned whether this young man would benefit from living in a house where he has more in common with his housemates. Healthcare needs Concerns were reported about the experiences of residents within the medical system. In one case, a resident had to wait four hours in a hospital waiting room and Community Visitors questioned whether concessions could be made in these circumstances for people with a disability, especially when they are elderly. Sometimes medical staff discharged residents from hospital with little understanding of the capacity of the group home to provide adequate supports during recovery. Community Visitors suggested that the department develop a resource for hospital administrators and doctors to help address this issue. Aids and equipment In two DAS houses, there were issues with hoists: in one the remote for the hoist has not worked for over 12 months and, in the other, a woman has been told that she must purchase her own hoist sling. The fairness of this was questioned as the sling, once installed, becomes the property of the house. Incident reports Concerns were raised about an organisation’s handling of incident reports. After being informed of three separate incidents in the house, Community Visitors and staff could initially not locate the reports and then had concerns about their accuracy and categorisation. They raised their concerns with the house’s management and the department with the result that a Quality Practice Review is now underway. Case study A resident said he lost his temper with a staff member who he believed had spoken to him in an inappropriate way and that, during the argument, the staff member pushed him onto the bed. The incident report agreed with the resident’s account of the incident but did not make any mention that the staff member had pushed him. A staff member on duty corroborated the resident’s account, including that he had been spoken to inappropriately. Community Visitors met with the organisation’s CEO and senior managers who told them that the staff member’s behaviour during the incident had only come to light a few days after the report was written, so had not been included and that the staff member had been counselled and disciplined. Upkeep of buildings A wide range of issues were reported in DAS houses. Floors were of particular concern including trip hazards caused by uneven surfaces and worn carpets. One report noted a floor was often slippery due to a resident’s incontinence and had caused many falls. Other issues were a rotting beam in a pergola, unkempt gardens and poor drainage at the bottom of a ramp. Community Visitors reported a bathroom with pooling water, a shower tap handle that kept coming off and lack of a handrail to assist people in and out of the shower. from the organisation’s management. The majority of service providers respond to this request in accordance with the protocol with Community Visitors, however, it should be noted that some providers, including DHS, have not provided responses to Community Visitor reports this year. In a house run by a CSO, the staff member on duty was not aware of Community Visitors and their role; she seemed unnerved by their presence so Community Visitors left and took the matter up with the organisation’s management. The organisation has ceased operations and its services have been taken over by another CSO. Eastern Metropolitan Region DHS Disability Accommodation Services In 2012, relationships improved between the Community Visitors and the DHS in the region. Meeting protocols were revised so that official liaisons between the two organisations were more efficient and relevant to service improvement. The Community Visitors issues response protocol was reinforced by training and workshops delivered by Community Visitors to departmental staff. These initiatives have improved working relationships between the two organisations. Despite this hard work, it is disappointing to note that there are still many overdue responses to issues raised by Community Visitors. There have been instances where house supervisors have been unaware of the protocol between the Community Visitors Program, DHS and National Disability Services. The protocol requires Community Visitors’ reports to be sent to the regional office for response. In other cases, no reasons were provided for a lack of response or responses were deemed inadequate. Two houses managed by STAY and owned by the Director of Housing require urgent bathroom modifications. In January and June 2012, STAY informed Community Visitors that it had provided the Office of Housing with referrals from an occupational therapist and builders’ quotes for both houses but the office had not responded. Acknowledging Community Visitor’s frustrations with the situation, STAY undertook to follow-up reasons for the delay. Community Visitors hope that this problem will become less of an issue in the coming year, but are concerned that some organisational ‘inertia’ overcomes the best efforts of most in the department to deliver the best outcomes for residents. Constant management reshuffling creates an atmosphere of uncertainty and lack of accountability, which affects results. Some issues may remain unresolved because there is no-one at the appropriate management level to make decisions. Awareness of Community Visitors protocol Incident reporting Community Visitors in the far west of the region visit group homes managed by DHS and five different CSOs. They are generally able to address any issues that arise at the time of the visit, however, sometimes they need to request a written response Incident reporting procedures were scrutinised at the instigation of Community Visitors. A survey of incident reporting in the inner-east found many departmental processes were not being adhered Community Visitors Annual Report 2012 57 Disability Services to. Incident reports were generally unavailable for review by Community Visitors, reasons given were variously: inaccessible on the computer, archived or missing altogether. There did not seem to be a system in place to write, register or file incident reports. Staff were also unclear about proper reporting processes. Examination of incident report forms is a critical part of a Community Visitor’s role and, accordingly, these should be readily accessible, especially given that there is no alternative independent third-party scrutiny of incident reports. In response to a report by Ombudsman Victoria in 2011, new incident reporting procedures were implemented for all service providers. These involve new guidelines regarding the preparation and storage of reports and address some of the concerns that Community Visitors have raised. Community Visitors remain concerned that these provisions do not address some fundamental problems with the incident reporting process. Central registers of critical incidents are not available at each house. Current procedures allow for reports to ‘disappear’ from the house and there may be no record remaining in the house files. The new reporting process can take many weeks and, while there is supposed to be a hard copy in the house, Community Visitors often cannot locate them. There is still a real possibility that no incident report will be prepared in the instance of staff-to-resident abuse. Case study Community Visitors received a referral from the OPA Advice Service. A person had contacted OPA alleging that residents in a group home were being abused. When they visited the house Community Visitors were told that a staff member had been stood down and that an investigation was underway but they were not provided with any details. When Community Visitors returned a few days later they found the front page of a report which mentioned an incident relating to the alleged sexual assault of a client. Community Visitors could not find the completed incident report, nor has there been any follow-up or response to issues raised about the alleged assault. 58 Abuse and neglect Despite the improvement overall, some very serious issues involving allegations of abuse, assault and neglect arose. In many cases, the processes that the department undertook to investigate these issues have been transparent and open, and involved extensive consultation with Community Visitors, as well as other authorities. However, in some cases, there has not been an adequate response from DHS. People with a disability have the same rights as other members of the community. One of these is the fundamental right to live in safety both at home and in the community. When considering instances of abuse, neglect or assault, it is important to consider all the circumstances in which a person might find themselves in a position of threathowever it occurs. DHS procedures and practices are rightly aimed at ensuring staff are appropriately placed and trained to care for and support the residents in their care. Sometimes, these processes fail, or staff are ignorant of proper procedure, or are deficient in training. Case study A taxi driver called the OPA Advice Service to report an alleged assault on a resident in a group home. The caller reported a red welt about an inch or two wide, starting from behind the left cheek, moving horizontally across the man’s face to his nose and, while there did not appear to be any bruising, the welt was raised. When asked what had happened, the resident replied that a man hit him, and then clearly identified a staff member from his house. The Public Advocate referred the matter to DHS Disability Services Division, and the staff member was immediately stood down, pending an investigation. Sometimes it is other residents who abuse, and assault the people that they live with. It is the department’s responsibility to ensure that all residents are safe at home, and when this doesn’t happen, the impacts on residents can be significant. Case study A young man has mild intellectual impairment but Community Visitors could find no evidence of any behavioural assessment or diagnosis. He was placed in a house on a temporary basis, but is still there 18 months later. He may be subject to some form of chemical restraint, however, Community Visitors have found that his BSP is not current. Community Visitors have been reporting their concerns for this man for a number of years, having visited him in three different group homes. He has violent outbursts and threatens other residents and staff. The other residents are all older men who have high personal care needs and little in common with the young resident. There have been multiple calls to OPA’s Advice Service: in one, a house staff member said they felt “stressed to breaking point”. When Community Visitors spoke to the man he seemed to be upset about living in the house. He seems to communicate this unhappiness by being aggressive, and on occasion has used weapons to threaten himself and other residents. He had also assaulted staff, and the police have been called to the house on a number of occasions. Other residents were suffering and distressed because of his behaviour. Community Visitors reported that some were not eating and others were soiling themselves when the man was screaming and shouting in the house. There are many casual or agency staff working at this house, who operate without guidance from an experienced person who knows the men well. Community Visitors progressed this matter as far as they could within the region. Concerned for the safety of other residents in the house, the Public Advocate referred it to DHS Disability Services Division. DHS outlined the measures put in place to address the issues, including the appointment of a new house supervisor and the establishment of a care team to “implement a coordinated approach to review ... current supports and determine if further supports are required”. While Community Visitors appreciate the efforts being made to provide adequate support for this young man, they have little confidence that staff can do this while still ensuring the safety of other residents. It is debatable whether a failure by DHS to take all reasonable steps to protect residents in their own home amounts to neglect. Sometimes, other factors influence the capacity of staff to provide an adequate standard of care. Community Visitors Annual Report 2012 59 Disability Services Case study Case study A staff member called the OPA Advice Service to share her concerns about the welfare of a resident. She had raised her concerns with management, but said there had been no action. A distressed agency staff member called the OPA Advice Service about a resident who was “in agony” as a result of what appeared to be serious injury. The Community Visitors Program contacted the DHS regional manager and made a notification to the Public Advocate, who contacted DHS. Community Visitors visited the home that day. The resident has limited verbal skills and mobility. Due to the seriousness of her medical condition, and her high personal care needs, she is particularly vulnerable. Staff told Community Visitors that they believed the woman’s safety and wellbeing were at risk when she stayed away from the group home, saying her health deteriorated - sometimes resulting in hospitalisation. Community Visitors reported their concerns for the woman’s wellbeing to regional management and referred the matter to the Public Advocate. The Office of the Public Advocate, DHS and Community Visitors are working together to address the woman’s needs and improve her quality of life. Unfortunately, in another instance, procedures and processes failed to protect and support a person who had suffered an injury. While an incident report had been completed when the injury was identified, there was no report of how the injury actually occurred. The injury occurred on a Friday, the DAS manager did not receive the incident report until the Monday and was only preparing to act on the Tuesday, when notified by the program about the injury. DHS requested that a forensic medical specialist review the injury; he found that the injury was so significant and substantial that it was unlikely that it had not been witnessed. The resident had a fractured arm and extensive bruising relating to the fracture, but there was also bruising to the back of her shoulder, chest and hip. This woman’s discomfort was exacerbated because health professionals have limited experience in assessing people with a disability who are unable to speak. The house staff did not send a health summary or history with the resident to the hospital. The specialist recommended that DHS empowers staff to clearly advocate for residents. The specialist also noted reduced bone density of this resident and suggested that DHS should put in place practices that manage and prevent osteoporosis for those in care. Healthcare On the whole, the healthcare of residents has been better managed during this reporting period. It is clear that following many years of reporting by Community Visitors on this issue, that the department is addressing training needs to ensure 60 house supervisors and key staff have the skills required to support residents’ appropriately. The importance of appropriate healthcare and its impact on the quality of life of those with complex care needs cannot be underestimated. Healthcare is one of the most frequently reported issues by Community Visitors. Issues of concern ranged from a lack of up-to-date Health Care Plans, the improper administration of medication, medication given to the wrong person, the management of healthcare records, inadequate discharge planning following hospitalisation, and the lack of timely annual health checks. More frequently, residents require dementia assessments as they age, and require other age-related health checks such as pap smears, mammograms and prostate checks. There were several reports of Epilepsy Management Plans being out-of-date and CHAPS not being completed. Planning A fundamental part of achieving real outcomes for people with a disability is getting the life plan right. Plans should include input from all stakeholders, but priority must be given to the individual’s personal goals. The ability to communicate those goals is a crucial part of the planning process. Those who cannot communicate have no active input into their own plans, defeating the whole purpose of the planning process. Visitors report that some plans are out-of-date, or in disarray, and require updating for current circumstances. In other cases, there are no holidays planned for people. Staff should be better trained to understand that sometimes plans need to change to better reflect a person’s expectations as they age. Some people would like to spend more time at home because they are ageing and find day programs tiring. In other instances, BSPs are out of date, meaning staff do not know how to adequately support a person who has behaviours of concern. These should be active documents which change as a person’s behaviour stabilises, or should reflect any changes in behaviour which might relate to other issues. Lack of proper planning leaves residents vulnerable, as more resources might be required to manage a situation when behaviour deteriorates. In other cases, residents are left feeling vulnerable at home because of another resident’s behaviour. Case study A woman called the OPA Advice Service complaining about the abusive behaviour of a fellow resident, saying she was verbally bullied and physically attacked. Incident reports supported her complaint, indicating that confrontations were frequent, with the complainant confined to her room for safety reasons. Little had been done to restrain the other resident’s abusive behaviour. Community Visitors questioned management as to what the complainant had described and were told that management had not visited the house, nor spoken to the resident about the situation. Management confirmed that the resident with behaviours of concern had a BSP and that there were strategies in place to help her calm down and manage her grievances. Regular meetings were planned regarding this resident’s behaviour support strategies, health plans and family relationships. The manager eventually visited the house and spoke to the complainant, and shortterm strategies were put into place to help her feel safer in her home. A lack of appropriate support has a huge impact on a person’s quality of life and negatively impacts on the quality of life of those who share a home with that person. This results in an unhappy home where all residents feel unsafe and at risk. Community Visitors Annual Report 2012 61 Disability Services Dignity, respect, and rights Case study A woman has a long history of impulsive and violent behaviours. She is aggressive towards other residents and has destroyed furniture and fittings in communal areas. She shouts and swears and exhibits very challenging behaviour, which the others have to tolerate. Various specialists have recommended medications to help the resident control her unpredictable and aggressive behaviour, but it seems none of these recommendations have been put into place. Staff report the resident’s family are resistant to the use of medication. The resident is ostracised at home and at day care, she cannot form nurturing and meaningful relationships and is lonely. Her access to the community is restricted. One-on-one support has been put in place for this resident and active night staff mitigate some of the effects of her behaviour on other residents. However, Community Visitors are concerned that the residents’ needs continue to be unmet. Another important consideration is what happens once the plan is made. Community Visitors are concerned that where plans appear to be wellformulated, it is difficult to ascertain how effectively they have been applied. Often, progress notes are incomplete, and it is difficult to find out by asking the residents if they are satisfied because, many cannot speak or communicate in other ways. Sometimes, Community Visitors resort to analysing financial records, or the vehicle logs to see what funds were spent, and where the residents went in the house bus. It is pleasing to note that DHS is benchmarking the success of the person-centred planning process. The region is participating in a La Trobe University PCAS research project to evaluate active support in achieving personal goals and measure if residents’ aspirations are facilitated by the planning process. Eight group homes have been selected to participate in this important five-year project. 62 An essential element of being human is the ability to communicate. Where a person has complex and multiple disabilities, the ability to speak may be compromised. For many years, Community Visitors have reported the distressing situation of observing people trying to communicate without the support of augmentative communication. The region is home to many people who were housed in institutions like Kew Cottages, where communication support was negligible. It was hoped that moving into the community would present more opportunities for people to become more independent in this area, but it has taken many years for this to eventuate, and then only in a few houses. Other people have also waited many years for communication support. In one house, it is distressing to note that, despite reports from Community Visitors for many years, a person who urgently required communication support has, as yet, had nothing done to achieve this. This person regularly tries to communicate with Community Visitors, using gestures, and attempts at speech, but is unintelligible, which is undignified and upsets everyone concerned. It is important that all people’s right to advocate for themselves is recognised and facilitated so they are able to speak on their own account. Often staff report that they know what a person is saying, but being dependent entirely on another to speak on their behalf reduces a person’s independence, self-determination, and, on occasion, affects their personal safety. It was very pleasing, therefore, to note that a Complex Communication Project is being trialled in five group homes which house people with multiple disabilities, where a need for communication support has been identified by both Community Visitors and the department. It is hoped that this pilot results in new policy and that speech assessments and augmentation become routine in all houses in the region. Staff training is also an important issue. In some instances, people with a disability have learned sign language, such as Auslan, but none of the support staff in the house are trained to use it, rendering this person ‘speechless’. The dignity of work is something that many take for granted. It is important that people with a disability have the opportunity to contribute by being involved in meaningful and paid employment, if this is what they choose. Community Visitors reported that people employed by a local disability enterprise had been stood down and were concerned the rights of these residents to continue working were not being respected, because due to funding arrangements, no other placement opportunities were available. In some cases, family members were concerned that this would affect their ability to continue to pay for their accommodation, which might require them to seek alternative housing arrangements that might not suit their needs. Community Visitors raised this issue with DHS which reported that, due to the recent economic downturn, the enterprise had lost some long-term contracts, and could not offer consistent employment. DHS undertook to look into alternative employment and activity options for this group of residents. There are some very positive outcomes for people who work for this enterprise. Their art studio supports 12 artists with a disability who augment their funds by selling their work through the gallery in the restored Kew Courthouse precinct. Earlier this year, the latest exhibition was opened by the local Member of Parliament and the community came together to celebrate their work. The artists appeared to gain great satisfaction from selling their art and talking about their work. Restrictive practices There are some people who need support to be able to live in the community. In some cases, this is in the form of behaviour support to assist them control antisocial or challenging behaviours in the residential environment. Practices which restrict a person’s rights or freedom of movement, that are restrictive practices, even if applied in order to help a person control such behaviours, must always be supported by a properly authorised BSP which has been lodged with the OSP. During this reporting period, it became clear that there is some confusion among staff regarding the reporting of restrictive practices. The application of restrictive practices varies, from the removal of all restrictive practices to the implementation of a restrictive practice which affects all the other residents, when only one resident’s rights are involved. Case study In one house, two men suffered from compulsive eating. One man ate everything in the pantry and put on too much weight. The other did the same and this caused ulcers on his legs which meant that he couldn’t work. In both cases, their unrestricted access to food affected their health and quality of life. For a number of years, cupboards were locked, as were the fridge and pantry. This was supported appropriately by BSPs. If other residents required additional food, they asked for it. The two affected men lost weight, and the ulcers resolved so that the resident could return to work. Then policy changed, and management decided that this was an unnecessary restrictive practice. Cupboards were unlocked and a dietician recommended a broader diet including sweet and some fatty foods. Both men gained weight, and the ulcers returned. Dialogue with the department revealed that it was considered that there should be no restrictions applied despite the known risks. The resident with the ulcers commented that if the food was there, he couldn’t help himself and he would eat it. The department is now treating the issue of the ulcers as a vascular condition, which is not resolving while these men continue to have unrestricted access to food. Community Visitors Annual Report 2012 63 Disability Services Staff training Case study A female resident has a long history of overeating and obesity. On occasion, this becomes so extreme that it is life threatening. In order to stop her compulsive overeating, staff removed snacks and other food from the kitchen and locked it in the laundry to restrict access to it. Other residents, who were not overweight and did not suffer any food-related health issues also had access to these foods denied by this restrictive practice. Community Visitors questioned this practice and changes were made to allow the other residents unrestricted access to this food, by storing some of their favourite snacks in their own bedrooms, which were locked by residents who had their own keys. In one house, Community Visitors were told that the restrictive practice of putting bed rails up on all the residents’ beds to prevent them getting out of bed and injuring themselves did not require a BSP because it was part of a therapeutic plan. This is at odds with the guidelines which require a BSP for all restrictive interventions involving mechanical restraint. Other inappropriate behaviours may be the result of ignorance about a person’s needs. There are a number of people who display inappropriate sexual behaviours and whose requirement for sexual relief is consistently ignored by staff and family. Antisocial sexual behaviour can occur when they are not given the appropriate support to control their urges, or to relieve them. While the reluctance to face this issue among carers and parents is understandable, the rights of the person should be paramount, and they should be supported to manage their sexual needs with dignity. 64 For many years, Community Visitors have reported that some staff do not appear to have been sufficiently trained to properly support the residents in their care. This negatively impacts on the standard of care that residents receive. Many reported issues are due to the lack of staff training on procedures, specialised care, behaviour support, medical processes, communication support, and planning processes. Sometimes there are no entries in the resident’s progress notes or the Shift Report Book, so that there is no record of activities or other incidents. At other houses, there are no staff specially trained in autism, diabetes and epilepsy management, or in sign language, and residents suffer because staff cannot offer appropriate support. In other houses, staff are not trained to recognise when residents require additional support. In one house, there was no speech and communication support for residents, because staff did not think it was required. In this house, one resident displays inappropriate sexual behaviour, but there has been very little support provided by staff who do not recognise the problem. Lack of consistency of house supervisors and permanent staff Lack of consistency of house supervisors and permanent staff was again raised as an issue of concern in the region. Generally, lack of consistent house supervision, and use of non-familiar staff results in poor outcomes for residents. Residents depend on staff for their care. They may form long and lasting relationships with those they see regularly. They need consistency of care and time to form meaningful relationships where trust is established, and the person is comfortable with the level of intimacy that they must endure from those that they are not related to. This continuity of trust and care is lacking in situations where staff are nonfamiliar, or key workers and house supervisors are continuously replaced with new staff. Staff who do not know residents well, have insufficient information about them to make decisions regarding their care, as often there is little time for handover at the end of shift, and it takes time to read a person’s file. When non familiar staff are routinely used, there is usually a training deficit and these staff, however well-meaning, are unable to offer the unique care that is often required. Good practice Community Visitors were happy to find that the men in a house had settled and their challenging behaviours declined because staff who knew them were working there again. Once the residents had settled down with familiar staff, other quality-of-life issues have been progressing positively. One resident, who did not like the texture of food and had a PEG feed, has now been encouraged to eat food normally. One man, who was socially isolated, is now speaking to staff and had a conversation with Community Visitors with support from staff. In houses where there are complex medical or behavioural issues, the use of non-familiar staff can make the situation worse. Case study A resident with autism lives with two others. She is verbally and physically abusive and aggressive towards the other residents and is causing physical damage to their property and home. BIST intervention is ongoing, but the behaviours have progressed. The situation is exacerbated by the poor relationship between the woman’s family and staff. Staff turnover is high and the new house supervisor has only been there for a short time. The staff have not been given training in autism, and this means that they are unable to respond adequately to support residents who display behavioural extremes. Strategic Replacement and Refurbishment Plan update Community Visitors remain concerned about the condition of some houses in the region. The impact of badly maintained or designed buildings on the quality of lives of residents cannot be underestimated. This also affects the capacity of staff to give adequate care, and sometimes costs the residents money, because they have to pay high utility bills, which means that their outings and other personal expenditures are limited. The maintenance budget is only $1 million for the entire region, which is insufficient, given the issues around poor condition of buildings, and lack of maintenance that are continuously reported. Community Visitors have received no advice that there will be a new strategic replacement plan. This means that there will be no identification process for new builds and no replacement of unsuitable housing. Maintenance of existing properties is, therefore, a priority. Kew, Main Drive Community Visitors met with the Parliamentary Secretary for Families and Community Services, Andrea Coote, to discuss: the lack of appropriate footpaths for the passage of wheelchairs around the Main Drive site; lack of community facilities; lack of adequate allied health supports for residents; the ‘institutional feel’ of some houses; and the lack of community interaction between residents and other people who live at Main Drive. Since the meeting, Community Visitors have been informed by the department that the entire matter is now being reviewed by the Minister. Community Visitors await the positive resolution of these issues in favour of residents. Community Service Organisations This year, in roughly 210 reports, an issue of concern was raised. These ranged from minor comment worth noting for reference, to major concerns regarding the safety, wellbeing and rights of those who live in the house. The major concerns are the substance of this report. Several new houses have been built and others replaced in this reporting year; one CSO handed over its houses and care of residents to a larger organisation. Community Visitors tend to work with one or two organisations and visit the same houses Community Visitors Annual Report 2012 65 Disability Services throughout the year. They get to know the residents and support workers and are often well able to sort out issues as they arise. Residents often see Community Visitors as ‘our CVs’ and welcome them as friends. Planning PCPs come in a variety of shapes and sizes, from butcher’s paper and cartoons to complex computergenerated documents, perhaps with photographs added for explanation. The majority of PCPs are thoughtfully written with input from many people important to the residents. There are still occasions when Community Visitors question the language of people’s PCP – formal, therapeutic vocabulary, albeit in first person, does not fit well in the context, especially when written in the first person. The main issue with PCPs is the lack of access to them and the accuracy with which they are updated, annotated and filed. On several occasions there were discrepancies serious enough to raise as matters of concern. These concerns do make Community Visitors wonder if staff have similar difficulty at change-over and after leave. Community Visitors often find file notes, progress notes or day books are more often available and comprehensive. In several houses, support workers add a comment to a resident’s file on a daily basis as a matter of course; this is especially useful for incoming staff and where there are residents with behaviours of concern, illness or specific needs. Choice and decision-making Residents often make their preferences known to Community Visitors ranging from making a will, to who they would prefer to live with, or not to live with. Day placement preferences are accommodated by the CSO and the happiest people seem to be those who go to work; this is where independence, choice and competence show up best. Dignity and rights While most households are harmonious, incompatibility must be acknowledged, especially where a resident has behaviours of concern and where people’s residence is determined by others. It also brings into sharp focus conflicting rights. In two instances, residents were causing such concern that others locked themselves in their rooms. In one instance residents told Community Visitors and house staff they did not want a particular man in their home, they were afraid of him yet he has a right to be housed. Eventually the man moved to a new home. In another instance the target of aggression was moved and is very happy, but others remain in the house. The issue becomes who should 66 be moved: the victim or the aggressor? And then what happens to the person with behaviours of concern? These issues are never simple, nor are they easily resolved; all too often it is a balancing act for the support workers and CSO management. Staff support While the staff support is generally good in CSO-managed houses in the region, Community Visitors have consistently reported concerns about an organisation that has seemed to struggle to provide adequate supports in some of its houses. The organisation has been undergoing a significant organisational restructure; staff turnover has been high and management inconsistent. Case study There are concerns for residents in a house that has a room with padded and carpet-covered walls. Community Visitors had previously been told that this room was not used for ‘seclusion’ of residents. It appears that this room was used for seclusion of a resident who had assaulted another resident and a staff member, as well as causing property damage. It was not clear from the records how long the resident was secluded. The on-call manager refused permission to give ‘asrequired’ medication and later suggested that the staff member call police to assist the staff member to administer medication to calm the resident. The staff member had sustained a head injury but was told by a manager that she could not leave the house to seek medical assessment until a replacement staff member arrived at the house. It was some two hours later that the staff member was relieved by an on-call manager. Community Visitors are concerned about the effectiveness of behaviour management strategies in this house and, consequently, the safety of the other residents. It is also of concern that this incident was not rated as the highest category. Staffing Community Visitors report that residents feel well-supported by committed and competent staff, especially those who are open to new ideas, suggestions and ways of thinking. There are many examples of outstanding staff ‘going the extra mile’, sourcing special equipment, organising camping holidays and birthday outings. Staff mediate with families, who may have different perspectives on a resident’s care, take residents to doctors and make sure their clothes are clean and ready for the day. Casual staff are obviously going to be necessary; some CSOs have their own pool of casual staff, however, these may cover the whole metropolitan area and so unfamiliar people go into peoples’ homes. One house has seven regular staff and 22 listed as casuals. There are five men living in the house. While Community Visitors acknowledge there are some CSOs who allow four days or so for induction into the organisation, this does not necessarily induct them into the house in which they will work. Some allow for ‘shadow shifts’ where the new support worker follows an experienced worker and so learns about the people and culture of the house and its members. Of concern is communication between residents and new support workers who are not familiar with local vernacular, humour or expectations. Community Visitors are concerned that support workers should be able to support residents where needed, including personal hygiene, bathing and menstruation. They were told by a family member of a support worker who, for religious or cultural reasons, cannot look at a naked person. Community Visitors believe there is a necessity for staff to be provided with support and processes where they are able to safely self-assess, update their skills and self-appraise with peers. It appears rare that CSOs hold full staff meetings where informal and formal networking takes place. Community Visitors are told there is not the budget and that staff will not attend if they are not paid. Community Visitors strongly recommend that time and processes are provided for such exchanges to take place. One CSO has had a major staff restructure over the past year which Community Visitors report has caused a great deal of anxiety in residents as well as staff. Individual house managers have been replaced by a service manager effectively removing one staff member from the pool available. Many residents claimed they had not been advised of the changes, were unaware and confused; some families banded together to seek to modify the changes. The changes have created disquiet and instability. Community Visitors repeatedly expressed concerns that new, inexperienced staff are left in charge of this CSO’s facilities, especially where there are people with complex needs. Despite meetings with the CEO and senior management, these practices still remain. Community Visitors are pleased to report, however, a great reduction in the use of agency staff, who might not be familiar with residents. Facilitating and encouraging independence Looking into the fridges of some houses it is clear that the quality and standard of food is very high and thoughtfully purchased; fresh meat and cheeses – some for lunches and some for cooking – and a mass of fresh vegetables and fruit. One CSO invariably has three bowls of fruit on the kitchen bench or the table: apples and pears, oranges and, even when they were at top price, bananas. In these homes the food is there to be eaten as desired. In one house, a man’s care plan told his responsibility in pictures: picture one is of a full sugar jar; picture two is an empty sugar jar and picture three is a shopping list and bag of sugar. Compare this approach to the home where a support worker decides and shops for the food to those houses where there is a group discussion and whoever proposes the meal gets to help cook it. Similarly, in some houses people return home from their day at work, clear out their lunch box and prepare it for the following day; they then help with the evening meal. In most homes everyone has a job – it may be to make one’s own lunch for the following day, make sure dirty clothes are in the laundry, make your own bed. In others the person who chose the day’s menu at the planning meeting does the cooking – or helps. People are on a roster to shop with the support worker for the weekly food and other needs. There may be a roster for laundry, clearing the table, cleaning the house, clearing the garden. In other houses, people come home and sit and wait for tea. There are still some houses where support workers, ‘kindly’ and in a ‘motherly way’, do it all. One approach produces independence, the other does not. Participation and engagement The majority of residents attend day placement or work away from their homes and are at home at weekends. Many people use public transport, although the majority go out in the house bus. Community Visitors report that most residents regularly help with household shopping or shop for themselves and enjoy a coffee with a support worker. Residents participate in a range of entertainment and leisure activities including dances, cinema trips and attend exercise classes. Community Visitors Annual Report 2012 67 Disability Services People who use a wheelchair do have difficulty going out or doing something on their own. Funding for support workers makes it impossible for everyone to do something different at the weekend. Where there are four people with two staff on duty they are able to take it in turns over the course of a month to each have a one-on-one outing. This is more problematic where those left at home have higher support needs or simply do not all want to do the same thing. In some instances, funding only allows for one worker to be on duty for a weekend; the funding model being five days in care and two days with family. Transport too can be problematic, although staff in some CSOs work together to pool their time and vehicles to take groups out. One of the strongest links with the wider community is through footy, rarely soccer or rugby. Residents do go to the footy, they wear the colours and barrack loud and strong. The easiest way to start a conversation is to ask someone how their team went. Each year, two organisations build into their culture ‘The Show’. Monkami and Nadrasca put on a musical in which the majority of performers live with each other and have often grown up together. The Show is the highlight and culmination of the year’s activity, when residents, family, friends and community members join together to celebrate their achievement. Abuse and neglect Community Visitors reported a number of instances of abuse. Of particular concern was an allegation of the sexual assault by a staff member of a number of residents from the same house. Case study Early in 2012, Community Visitors were notified that a resident had been interviewed regarding a sexual assault by a staff member. When seeking information about the incident they were told by senior management of the CSO that when the resident had complained of the assault the police were notified and the interview took place. Another resident then also came forward as a victim of assault and was also interviewed. Community Visitors were told that a similar allegation had been made some time earlier about the same staff member while he was working at another house. Police investigated, no charges were laid and the staff member was moved to another house. While the CSO notified the next of kin of the people who were able to say they were assaulted, it took some time for all the relatives at houses where the staff member worked to be notified regarding the incidents. A number of the residents said that they were fearful the alleged offender would return. Counselling had been offered. The CSO reports it is reviewing how it recruits, supervises and trains staff. The staff member has been charged by police. Incident reports The changes introduced this year in reporting incidents have created some confusion, but is gradually being sorted out. Access for Community Visitors is an ongoing concern, because more documentation is being kept on computer and because the importance of the incident report register is not clear to many support workers. While the new processes were intended to promote accountability it doesn’t seem to have worked in some organisations. A senior manager of a large CSO rewrites original reports, claiming it is to correct language and spelling. Many CSOs do keep incident reports well, and still keep records of minor incidents as a way of improving procedures. 68 Community Visitors are concerned that there is no process at present for incidents which take place at day placement to be acknowledged in an incident report and filed at the house. Institutions and congregate care The improvements at the Oakleigh Centre were welcomed. However, passageways are narrow and maintenance, poor safety and hygiene issues are still not addressed. Considerable work could be done to make the houses feel safer, more respectful of peoples’ needs and more welcoming. Community Visitors reported that the ageing of its residents will become a challenge. Documentation is still inadequate and there are many cases where it needed updating. Incident reports were another issue; staff language skills are sometimes so poor, it is claimed by a manager, that reports need to be rewritten. The original facility is now quite old and will need to be replaced soon. There is only so much that can be done to make it liveable. A congregate care facility run by Wesley Mission Melbourne caters conscientiously to the needs of residents. They have a volunteer co-ordinator who ensures: residents have friends, with whom they maintain their hobbies and interests; residents run an in-house newspaper; their dietician and cook work closely together to cater to the tastes and needs of residents. In addition to exercise and movement therapies, Wesley run music therapies and the outside space is well-used. With support from family and staff, residents decorate their rooms as they wish. Community Visitors reports indicate that this is a good place to live. Ageing and planning An ongoing concern is how to better care for people as they age. Some people want to retire from work and day placement, to stay home for the day. Community Visitors acknowledge that some people are less inclined to go out as they get older, even when encouraged. Many people like to stay in bed longer but this is rarely possible where shifts end at 9.30am and restart at 3pm. For many people, ageing and its attendant needs mean they are forced to move from the home they have known for many years to a nursing home. The issue for CSOs is how to budget for this in the best interests of those whose homes they service and support. Respite The need for respite places for children and older family members continues to be an issue for families who have one or more children with high care needs. The stability of the family often depends on respite. Villa Maria’s four houses have 22 beds. They currently have five children living permanently in respite and an additional child was recently placed in foster care. Villa Maria is supporting the arrangement with regular respite so it can successfully continue. Villa Maria supports about 100 families and has significant waiting lists. Community Visitors see significant unmet demand, exacerbated by respite places being used for full-time care. CSOs also run recreation community-based weekends, school holiday programs and camps. Ambiance and comfort CSO houses are first and foremost a home and furnished and decorated as such, for comfort and safety. They are well-maintained in the main, especially where the CSO employs maintenance people on staff and, in these houses, repairs are attended to quickly. In other instances, where there is a ‘landlord’, delays may well occur; in other houses there is a distinct lack of furnishings and decoration, which may have been due to the behaviours or anticipated behaviours of individuals. Community Visitors would contend that while a building may no longer be appropriate or ‘best practice’ so far as width of corridors and doors are concerned, there is no reason for doors to be jammed or locks on people’s doors broken, creating lack of privacy for residents. Similarly, lack of light bulbs or bulbs of sufficient wattage make corridors dim and spooky. These are maintenance issues which the CSO management has a responsibility to fix. In two instances, management decisions made the difference to residents while their home was being repainted. In one instance, people moved out of the house for a few days while the whole place was repainted. In the second instance, in a house where most of the residents use wheelchairs, the residents remained in their home while it was painted. The men had to avoid the wet paint as well as put up with the smell. Building structure and design New houses do not always take into account the particular needs of the clients the house was built for. For example, a group of residents with significant behaviours of concern was moved into a new, purpose-built home but it was not possible to close the cooking area off from the rest of the kitchen so Community Visitors Annual Report 2012 69 Disability Services one resident could help the support worker prepare food. Issues with other residents required the removal of cupboard doors so they were not yanked off, and the fridge had to be locked, as did the cupboard containing the fire blanket. External presentation and outdoor areas Much is reported about the tidiness and neatness of the environment surrounding residents’ homes. Of greater importance to residents is access to the garden or yard. One man in particular was seen as an irritant by those with whom he lived; constantly running up and down the corridor, banging doors and generally making a nuisance of himself. Moved to another house with a large and accessible back yard, he runs around, waves his arms and looks at the trees and the sky. There is no longer mention of him being an irritant to others. Gippsland Region Responses to visits have been positive and, overall, residents are treated well. The introduction of active supports for residents has been a welcome and positive outcome. Visit numbers are down slightly but Community Visitors are pleased to report the recruitment of new Community Visitors to East Gippsland and facilities in this area are once again being visited. Planning Some houses have been slow to review support plans such as BSP. Management has been made aware of the importance of these plans and the situation is reportedly being addressed. Healthcare needs Gaining weight can be a health problem for some residents. One person gained weight very quickly. This situation is being monitored by the person’s doctor, staff and family. This is a common enough problem where exercise is difficult and temptations are many. Case study The OPA Advice Service was contacted by hospital staff who were very concerned about the care of a resident who had been taken to hospital twice in eight weeks suffering from hypothermia. In both instances, it was day placement staff who noticed the illness and transferred the resident to hospital. A care coordination meeting was held involving all parties relevant to the resident’s wellbeing, including her family, medical guardian, physiotherapist, doctor, house supervisor and key worker at day placement. A plan was developed that included the need to dress the resident in thermal-wear to protect her from suffering hypothermia again. Upkeep of buildings and fittings Maintenance issues, particularly for the older houses, continue to be problematic in West Gippsland. A lack of resources seems to be the main problem. One house in Drouin had been waiting for renovations for over 12 months before having some of it done just before the end of the financial year. Houses in East Gippsland appear to be very well-maintained with new furnishings and maintenance being completed. Leisure activities and recreation Some residents attend a painting club and classes at their local community house in Bairnsdale and their paintings decorate the walls of their home. One resident, who is particularly talented, has regularly exhibited his paintings in the local community, and has been assisted to exhibit at a show in Adelaide. Ageing and planning Ageing residents in some houses have health issues such as dementia. In one house, a person with dementia tended to wander off causing concern for staff and the other residents. In another house, a mature-aged person wanted to stay at home on occasions during the day instead of going to day placement. Community Visitors were pleased that DAS was able to accommodate his wishes. 70 Grampians Community Visitors divide the region into two areas: Inner and Outer Grampians. Inner Grampians includes Ballarat and its surrounding towns, and Outer Grampians includes Horsham, Ararat and Stawell In both parts of the region, the introduction of the new incident report system and the challenging paper trail was consistently an issue. Often the original was not available, with a poor chronological order of later reports. Casual staff, when requested by Community Visitors, often could not find paperwork such as incident reports. Service providers should ensure all staff can locate important information readily in case of an emergency. Across the Grampians, individualised choices for residents improved. Many residents reported being able to go on assisted holidays and overall participation in community activities appeared to increase, such as attending community events and personal shopping. PCAS plans were also well-implemented in most DHS houses. Inner Grampians Choice and decision-making In many houses, residents rooms are decorated to reflect individuality and interests, for example, murals, colours and themes - some are even allowed to be a bit messy. One resident, who had no available information about his past, was able, with the help of staff, to get his birth certificate and find a niece and nephew. Unfortunately, the sister he remembered had died. Some residents have moved to a different home that better suits their needs and provides a better resident mix. For example, before a resident with autism moved to a new home, the staff prepared for his needs by working with the staff in his old home. The kitchen area was modified to make a safe area and decisions were made so as not to compromise other residents. Good practice Staff at a Tipping home with two residents with dual disorders have established, with the support of mental health services, a detailed mood chart for one of the residents. There are six colour-coded categories and this is filled in every hour. This will increase to eight categories and be recorded every 15 minutes. This extremely high level of support will hopefully bring about a better outcome for this resident. A transition house has a display of photos and notes about previous residents and what they are doing now as an incentive for others to improve their skills so that they too can live independently. At one CSO house, weekend breakfast in bed is enjoyed by residents, evidence of how far some staff will go to make a house a home. Enabled access to the community One resident, who had been offered a move to another house, was concerned that she would not be able to access the community as she had previously. The staff at the new house have supported her in her requests to continue to go to church, meet with her friend and travel on the public bus. Good practice Sadly, a resident passed away but staff and neighbours ensured that his life was celebrated and that his funeral was very special. The man endeared himself to all who knew him. A staff member wrote a poem that captured his personality and read it at his funeral. A young neighbour, who enjoyed visiting the residents and helped them to bring in the shopping, was invited to the funeral and asked to act as a pall bearer. His school principal invited him to share his experiences with his fellow students. Personal safety Concerns have been expressed regarding the safety of residents when accessing the front door of some houses. In one instance, where a lady is in a unit alone, there is no security door. A resident has gone missing from one facility on two occasions and run across nearby busy roads. On the second occasion, the resident was not noticed as missing for quite some time, so the SES and police were required. Community Visitors Annual Report 2012 71 Disability Services At another home, one resident was in conflict with another, resulting in other less assertive residents fearing for their safety, while in another house, a female resident remains targeted by a male resident and staff have to be constantly aware of where each resident is in the home at all times. To increase the safety of a resident with severe epilepsy, her bedroom door has been removed and replaced by a lovely curtain. This improves access to the room if the resident happened to fall in the doorway. Reported in last year’s annual report was the reluctance of a resident to relocate. She expressed a wish to live with her fiancé but DHS felt that she would be at risk if she lived without supports. The woman chose to live with her fiancé and has now been doing so successfully for the past eight months. However, she still pays rent for DHS accommodation in which she doesn’t live, and community supports for her have not yet been put in place. Community Visitors hope that regional management will be able to gain alternative funding and support for her and that her unit can be reallocated if she does not need to live there. Grampians Outer Planning As reported in 2011, a young man has only homebased daytime activities and Community Visitors continue to ask why he cannot be supported to participate in meaningful activities in the community. Community Visitors raised concerns with DHS regional management about the lack of consistent support for the complex needs of residents in two day placement organisations and the affect that this is having on their wellbeing. The conclusion reached seems to be that there is a need for staff training and more formal communications between staff from both the group home and ATSS. Staff support Community Visitors have recorded concerns about counselling for residents and staff resulting from traumatic events. While DHS responds that, where a death has occurred, “courses have been run for palliative care which incorporates grief and bereavement”, there does not appear to be a formal practice to support residents through the process. Unmet need in accommodation In July 2011, a new house opened for young people who may have had to move to a nursing home because of their high needs. Prior to the house opening, staff received extensive training in the different conditions such as ABI, multiple sclerosis and cerebral palsy. The house has a separate area where residents can entertain their family or share a meal away from other residents. In a unit attached to the house, a resident lives almost independently. She has training on public transport so she can eventually travel by bus to day placement or work. Another service provider is extending its services to provide intensive support for two residents with dual disabilities and is to be commended on their commitment to stabilising the lives of these young people. Two new facilities have been built in Ballarat over the past financial year for young people who have a disability. A new, spacious respite facility for school-age children was opened in September 2011. Paintings done by the children, prior to moving to the new location, line the walls. Separate areas for recreation are available indoors and a large outdoor space with paths for bikes encourages play for active children once they return from school. 72 Case study A resident fell from a shower chair while being assisted by one staff member and it was reported that the safety belt was not in use at the time. The resident was treated by the local medical service for a mild head injury and returned home. Staff felt that something else was wrong so requested further investigation, which revealed a broken leg. The resident was again sent home to be treated “conservatively”. The resident was taken to a regional hospital for a second opinion. It was reported to Community Visitors that the hospital refused to assess the resident as only the X-ray report accompanied the resident. Again the resident was sent home. The staff at the home are already caring for very high needs clients. They had no specific training in assessing pain or in managing the care of a person with a fractured femur. This year, several people have moved, some to group homes in other towns. The lack of local transition training and the de-commissioning of homes were cited as the reasons for some of these relocations. In one case, the reason for the move was not clear and the impact for the resident was likely to be negative. Another man was expected to move to another town which did not offer any different support than he currently receives. The Community Visitors Program was alerted, a guardian appointed and the proposed move was averted. Case study One CSO house in the region has a history of accommodating residents with very complex care needs, including dual disabilities. Three residents in this house required one-on-one support. Despite this need, at times there are one or two staff looking after all five residents. While staff attempt to care for the residents to the best of their ability, they acknowledge the risk is very high that care could be compromised. Community Visitors reported that incident reports could not be found for the serious incidents that had occurred. Abuse and neglect Case study For over five years, residents of a house have been verbally and physically assaulted and property damaged by a housemate. At times the house has had to be locked down to protect the residents from assault. Recently, this resident scalded a housemate by throwing boiling water over him. Efforts were made to manage the situation by isolating the resident but this was unsuccessful. Early in 2012, the DHS Regional Director asked the Office of the Senior Practitioner to conduct a review of the house. In April 2012, the review was completed and an advisory group formed to consider its 30 recommendations. In June, Community Visitors were informed that the house was again in lockdown. They continue to report their concerns for the safety of these residents and question the lack of trauma counselling for them. Community Visitors were so concerned about the risk to residents that a notification was made to the Public Advocate. Leisure activities and recreation A small number of residents with challenging behaviours have been unable to successfully undertake annual assisted holidays. Community Visitors have had reassurance from DAS that individual applications may be made to management for staff-assisted short holidays. Several men were supported to meet together once a month in a men’s workshop environment. When it was closed due to confusion about who was ‘in charge’, these men made their concerns quite clear to Community Visitors. Their ‘castle’ has been re-opened due to some creative thinking by local staff and other citizens. Community Visitors Annual Report 2012 73 Disability Services Healthcare needs Case study A non-verbal, paraplegic resident who was being transferred to bed was left with only one other staff member while lifting equipment was stored. The bed rails were not in place and the resident rolled off the bed and appeared to be in considerable distress. The resident was unaccompanied on her trip to hospital in an ambulance. No X-ray was taken during this trip to the hospital or the next, despite house staff concerns. Ten days later when an X-ray was finally taken, a broken leg was diagnosed. After surgery and a return home, staff were still very concerned about the resident who appeared to be in significant pain some weeks after surgery. Another trip to hospital was required. When the hospital advised of imminent discharge back to the house, the house supervisor requested a delay as house staff had visited the resident who still appeared in significant pain. Further X-rays were ordered and re-fractures of the leg were diagnosed. A meeting was held to discuss options including possible amputation of the leg. At this time it was also suggested that the resident, in her late thirties, had severe loss of bone density. Community Visitors notified the Public Advocate who appointed an advocate and later applied to VCAT for the appointment of a guardian to ensure appropriate care was provided to this resident. House staff have since received further training and equipment to assist them to safely provide for the very high care needs of this resident who, after many months in a nursing home, has returned to the house with her leg intact. 74 Aids and equipment Aids and equipment purchases continue to be a problem due to delays in occupational therapy assessments, modifications to equipment, staff training requirements and funding. Several new ergonomic tilting shower chairs have been purchased following significant falls when transferring residents; this has alleviated the use of extra moves from hoists. Respite It is pleasing to note that after reporting for many years about the depleted state of respite services in rural country towns, upgrades are planned. The last resident who has been living for years in a respite facility will soon move to live in a local group home. The facility had been under administration but is now managed by a Ballarat CSO. A congregate care facility in another town has been gradually transitioning ageing residents to more appropriate accommodation and there is a more vibrant atmosphere and freedom of movement for the younger residents. It is also pleasing to note more person-centred activities in evidence. Building structure and design Community Visitors continue to raise the problem of a group home where four females and two males share one toilet, which is located in the bathroom. DHS has responded saying no current funding is available to build an extra toilet and the house is not considered as appropriate for renovation. This is despite the fact that a similar house in the same town was renovated successfully to provide an extra bathroom, a fourth bedroom and an office. Community Visitors will continue to press this case. While three new group homes have been built to replace decommissioned houses, several others, which were purpose-built following the closure of two country institutions in the late 1990s, are now in need of refurbishment and new soft furnishings. This is unlikely to occur in the near future. Hume Region Planning While the electronic lodgement of residents’ BSP with the OSP has remedied the problem of overdue plans, it is disappointing for Community Visitors to continue to report individual plans being out-of-date or in need of a review. Community Visitors question how effectively residents are supported if staff do not have the time for administration. This is of great concern when agency or casual staff are unaware of where to find residents’ plans. If documentation cannot be found Community Visitors wonder how adequately staff can support the residents’ particular needs. Community Visitors have also regularly reported an inability to view incident reports at the house, as they are either on a computer, which staff advise they cannot access, or are too complicated to view, consider and reflect on through the computer filing system. Dignity and rights Community Visitors report limited opportunity for residents to choose who will fill vacancies in their home or have their interests met in respite or new accommodation. Community Visitors also report difficulties in viewing transitional plans for residents, particularly those looking to live more independently. In one example, it was noted that, despite there being no transition plan evident, a resident was moved into an independent living unit. Further complicating this is the Disability Support Register, which appears largely crisis-placement driven, offering little choice for residents to determine where they live and with whom. One resident, who enjoyed watching the passing traffic and pedestrians, is now unable to do this in her new home because of a fence blocking her view. While recognised that residents benefit from the new purpose-built houses, Community Visitors believe that more consideration should be given to residents’ likes and interests in the planning stages. Case study Community Visitors continue to report on the plight of a resident who, while having much clinical support, remains dangerously overweight. He is very unhealthy as a result of poor diet choices and inadequate personal hygiene. Clothes he owns no longer fit him and expose body parts inappropriately. He does not have the funds to buy specially made garments. While he has support with both short and long-term goal-setting the achievement of these goals is routinely undermined by a failure to follow through with strategies. Unfortunately, he resides in an independent unit with less immediate staff support available to him than when he resided in the group-home setting. Hygiene and cleanliness are major health concerns, with urine and excrement throughout the unit and rubbish strewn both inside and out. He is unable to sleep in his bed due to his size and is finally being supported in gaining a supportive chair more suitable than the one he tries to sleep in. While attempts have been made to improve his health, Community Visitors feel more focussed support for this resident should be made. Meanwhile his dignity and wellbeing continue to suffer. Staff support Community Visitors report difficulties recruiting and retaining staff. In an extreme case, a house could not be staffed so it was closed and residents relocated at short notice. This house remains closed, its future uncertain. A high number of medication errors were noted at one house staffed with a high ratio of casual staff. While Community Visitors appreciate transparent documentation, it is doubtful whether this number of errors would have occurred with permanent staff. In the laundry of one house, residents’ clothing was left smelling strongly of urine. Active support plays a vital role in supporting residents, and dealing with clothing in a soiled and unhygienic state should be considered as a priority. Community Visitors Annual Report 2012 75 Disability Services Enabled access to the community Personal safety Community Visitors would like to see each house considering the most appropriate transport options to enable full access to the community for residents and the means to pursue their individual needs and interests. Vehicle-sharing imposes limitations on all residents as it relies on much forward planning by staff, leads to greater use of taxis at much expense to residents and limits community inclusion. More consideration should be given to individual activities and outings. Community Visitors report a female resident who accepted a lift in a car with a stranger, a resident not returning home for days on end failing to advise staff, and a resident being dropped off at their house with no staff present. Such behaviours can place a resident at great risk and greater consideration and supports should be provided where these risk factors exist. Residents carry a greater financial burden than that of other members of the community for outings and socialising. On occasions, residents have had to pay for staff support so they can attend social activities. As community inclusion is a key element of the State Disability Plan, 2002-12 Community Visitors believe service providers should give greater consideration to reducing the financial burden for residents to ensure better outcomes. Community Visitors reported a new purpose-built house was locked to ensure the safety of one of the residents. Unfortunately, no consideration was given to reporting to the OSP and development of a BSP to implement supports to ensure the least restrictive environment. However, when the matter was raised, the service provider and DHS acted very quickly to liaise with the OSP and develop strategies to support the resident. The resident is now attending some day activities on his way to a less-restrictive life. Compatibility The impact of residents’ incompatibility over a long period of time is very damaging. In one house, while support services are in place, there is continual conflict, destruction of windows, fixtures and fittings and ongoing disharmony. This residence is neither homely nor welcoming. Community Visitors have reported instances where skilled staff support has resulted in a new resident with disruptive behaviours settling positively with their fellow residents. However, this is not always the case and residents sometimes find themselves trapped with few alternative accommodation options, and facing lengthy waits for other vacancies to become available. Healthcare needs A number of residents have been noted as having admissions to the local adult mental health service for various periods. Community Visitors express concern that there is not always enough open communication between mental health staff and house staff to enable a complete understanding of a resident with an intellectual disability. This lack of knowledge and understanding by mental health providers adversely affects support given. Aids and equipment Delays in residents receiving aids and equipment like wheelchairs and communication devices are often reported. Being without essential items like these limits a resident’s ability to communicate and be heard, as well as to access the community independently. 76 Restrictive practices Building structure and design Community Visitors report positively on the new purpose-built homes. Aside from some normal minor warranty maintenance matters, the design very much supports and considers the needs of residents. While renovations were being undertaken, Community Visitors reported a safety and evacuation risk because of blocked emergency exits and inactive smoke alarms. However, the service provider addressed these concerns promptly. Residents deserve to live in homes that do not have a neglected and uncared for appearance and where safety standards are routinely maintained. Community Visitors report ongoing concerns with unacceptable delays to repair or replace essential household items and address damage to fabric and essential fittings like dryers, washing machines and dishwashers. Other inadequate maintenance matters have included squeaking and sagging floor boards, broken windows, poor drainage, rusty guttering, holes and cracks in plaster walls, damaged blinds and curtains, uneven pathways causing potential trip hazards, slippery kitchen and bathroom tiles, worn floor coverings and damaged eaves. Ageing and planning A number of residents have aged in place well or moved to aged care as their support needs go beyond the training and experience of the staff. More consideration should be given to discussing retirement-like activities and options with residents so that they can give up some of their daily activities at a pace which suits them. Unmet need in accommodation Staff support The number of people needing respite continues to exceed the places available. While the policy of segregating adults and children is commendable, it makes for added constraints to placements in respite care. Most staff are to be commended for their dedicated support of residents but there were two matters involving staff that were of serious concern. Community Visitors believe it is entirely inappropriate to have residents living long-term in a house that is designated as a respite, contingency or transitional. After lengthy discussions with a service provider, the request by a resident to have a lock on his door, in a house used by others for day activities, is finally being considered. A positive initiative has been the new home in Wodonga built from My Future My Choice and Older Carer funding. The house is purpose-built and management has sought to ensure that residents are fully engaged in their immediate local community and beyond. The Hume Reconfiguration Project has modelled good practice in supporting long-term residents in respite to find permanent accommodation. The initiative also provided an opportunity for family input to the most appropriate accommodation for residents. The region is also trialling a new respite booking service, initially for DAS houses and eventually rolling out to all houses. This is a very positive initiative in supporting families and clients in determining availability of respite services across competing priorities. Awareness of Community Visitor protocol Community Visitors feel more education from service providers would provide a better understanding of the Community Visitor role as many staff still seem unaware. This has delayed access to information and has taken away direct-care time. Loddon Mallee Region Planning In general, Community Visitors have been impressed with the efforts of staff to address the individual needs of clients in both DHS and CSO-managed houses. Most residents have current individual plans, however, the steps taken to implement these are not always clear. Community Visitors visited a DHS house following a complaint that a house supervisor restricted client activities in response to behavioural issues. There were also allegations of possible financial mismanagement at this house. When Community Visitors reported these issues to DHS management, they were promptly investigated and the situations addressed. Community Visitors also visited a unit managed by a CSO to find two residents with complex needs left unattended in a locked unit. After approximately 20 minutes, a staff member returned in a work vehicle. An investigation was conducted after Community Visitors reported this incident to the service manager and the staff member involved is no longer employed with this agency. Enabled access to the community Transport is a major issue for clients who use wheelchairs, where the house does not have a dedicated vehicle. For example, three DHS houses in Mildura share one wheelchair-accessible bus and this makes it difficult for residents to participate in community activities without planning in advance. Residents at one DHS house in Bendigo travel in a maxi taxi to and from their day placement. The bus had broken and unsafe steps for many months and clients were often picked up late. The bus was finally replaced after an accident. Limited staffing also affects the participation of residents in activities they enjoy. At one CSO house, there is only one staff member on duty, so if a resident has an appointment all residents have to go along, even if they have just arrived home from day placement, as they cannot be left unsupervised. Healthcare needs Healthcare needs of residents seem to be responded to effectively in most houses. A psychiatrist who has been working with Sandhurst clients has also reviewed the medications of several DAS residents and this has reportedly been very positive for the people concerned. In one CSO house in Swan Hill, extra staffing hours were provided to enable a resident to receive palliative care. However, one very frail client in a DHS house in Bendigo required two staff to turn her to prevent bed sores. This could not be done at night with only one staff on sleepover and as a result the resident suffered significant pain and her health deteriorated. She was eventually hospitalised and Community Visitors Annual Report 2012 77 Disability Services then moved to aged care. Community Visitors have also reported that a couple of residents have had falls and that issues related to obesity are common. Compatibility of residents remains an issue in some homes with one resident attacking other residents and affecting their quality of life by playing loud music late at night and damaging their property. In one DHS house, one resident was secluded 15 times in a three-week period because of her behaviour and incidents, many involving other residents. One-on-one support throughout the day was introduced for this resident and she is now starting to self-manage her behaviour. Community Visitors have also noted increased efforts to carefully fill vacancies in houses and create positive home environments. Upkeep of buildings and fittings Not surprisingly, given the large number of houses in the region, there are frequently issues related to the upkeep and maintenance of buildings, fittings, and outdoor areas. Fortunately, most of these have been minor. A number relate to broken doors and gates which are not locking properly and these issues have security implications. A stove at a CSO house was out of order for months because it required a new seal. Maintenance issues at some CSO houses seem to take a long time to resolve. This is complicated by the fact that the houses are not owned by the agencies that manage the houses. New houses have been built and some DHS houses have had major renovations in order to better meet resident needs. Sandhurst Community Visitors note a marked improvement in the way Sandhurst residents are supported. There is real effort to improve the lives of the residents who remain at Sandhurst and to assist them to move to more independent living situations. The number of Sandhurst residents has reduced to 29, enabling staff to provide more individualised support to those who remain. The reduction of six residents to three in Unit 6 has enabled renovations to give residents with challenging behaviours more individual space. This has resulted in a reduction in incidents and a much more relaxed lifestyle for the residents remaining. This unit was once locked all the time but is now unlocked most of the time. 78 Choice and decision-making While staff try to promote individual choice and decision-making, the institutional environment limits some aspects of this, for example most residents still have their main meals prepared centrally. Small but significant gains have been promoted within these constraints. Residents have been observed making their own morning tea or hot drinks on their return from day placement and some residents who are preparing to move on from Sandhurst have been actively encouraged and assisted to prepare meals, and do their own housekeeping and laundry. During renovations, residents were consulted about the colours they would like in their bedrooms and living areas. VALID has continued to support a resident group called the Sandhurst Self-Advocacy Team which meets monthly. This group has come up with suggestions like the introduction of water coolers and developed a poster about resident rights. Staff support Staff tell Community Visitors about the positive work occurring and the growth and development of Sandhurst residents. Staff training has been ongoing and included training on ageing and individualised planning. One female resident moved to a transition unit a short distance from Sandhurst and was very excited to get her own key. She has been employed in the laundry at Sandhurst on supported wages, increasing her income and gaining valuable work experience. She continues to have contact with staff who can monitor her progress in living independently. Her work is seen as a stepping-stone to further independence. Good practice A resident, who Community Visitors have known for some time, has blossomed this year. He appeared non-verbal and to have limited understanding of what was going on around him and his communication was often aggressive. Since the resident moved into his own area, he has begun to speak more often and has begun to read the paper and undertake more tasks on his own. There has been a significant reduction in challenging behaviours. Photos of a holiday by the sea showed his obvious delight in experiencing the ocean. Staff assist him to plan other outings and holidays for the future. The resident now recognises and responds warmly to Community Visitors and staff. Healthcare needs Approximately half of Sandhurst residents have increased health needs related to ageing. Some have required hospital stays and two residents moved to an aged-care facility. Restrictive practices The use of seclusion at Sandhurst has reduced significantly; from 148 incidents in 2010-11 to 64 in 2011-12 with only 11 instances recorded in the last six months. This is a credit to the efforts of Sandhurst management and staff in redesigning some units and relocating residents to promote compatibility and quality of life. Upkeep of buildings and fittings The use of funds and creative efforts of staff to improve the residential environment has been terrific. There have been a handful of maintenance and cleanliness issues such as a roof leak, missing tiles and the need to replace a clothes drier but these are insignificant given the improvements throughout the facility with new carpets, colourful painting and the use of photos to brighten and individualise living areas. New fire equipment has been installed and there are regular drills. North and West Metropolitan Region (North) Planning Community Visitors have seen significant effort made to improve PCPs so they are ‘working documents’ and there are many examples of residents being assisted to exercise their choices. These include residents planning and participating in holidays, household activities or external activities with the assistance of staff. There are still areas of concern in relation to individual plans in some CSO-managed houses, while others are of an exceptional standard. Key worker reports have been implemented in all DAS homes and are gradually being introduced into many of the CSO houses. There is a need for these reports to be used more effectively so they reflect what is actually occurring in the lives of each person. Family members have been seen to overturn the decisions of some residents. Agencies need to find a way to ensure the choices of residents are respected where people have the capacity to make their wishes known. Good practice Each resident is to have his own activity roster board in his bedroom. The board provides details of ‘requests, community activities, home based activities, and things I would like to talk about’. The pictorial illustrations are actual photos which are laminated and which have a magnet on the back. This means that residents who are non-verbal can move the photos and indicate what they are interested in doing. Residents are enthusiastic about this. Similar boards are planned for menus and food selection. Community Visitors Annual Report 2012 79 Disability Services Staffing In a number of houses a stable staff team results in good outcomes and support for the residents. However, there are a number of houses where many staff positions are vacant. These continue to be filled by various casual and agency staff and not all of them are adequately trained to meet the needs of the residents. On visits to houses which employ a large number of casual staff, issues are often reported of goals not being achieved for the residents. In two DAS houses, Community Visitors have commented on the need to continue with staffing which is active overnight; DHS has said it will consider this as part of its general roster reviews. Leisure activities and recreation Many residents are supported to lead very busy lives and to participate in an amazing array of activities. However, staffing levels and limited access to accessible forms of transport can restrict the access of clients to community activities. Residents from one house were unable to stay in a holiday house as planned because the house bus was unsuitable for access. At one house, a DVD player was not replaced for some time as it was unclear who was to pay for the replacement when it was broken by a resident. In another house, a resident received a TV and DVD player for Christmas but it took some months for DHS to organise for this to be mounted on the wall for him. Funding for day placements is also an issue for some residents Healthcare needs Residents are generally well-supported in relation to their healthcare needs, however, Community Visitors have reported a number of very serious issues this year. Case study Community Visitors reported concerns about a resident who sustained a head injury when she fell to the bathroom floor while staff were changing her continence aid. Despite bruising, the resident was not seen by a doctor until three days later. Staff were told after this event that any resident who hits their head should be seen by a doctor as soon as possible. 80 There were also a number of serious incidents involving unexplained or undiagnosed fractures and inadequate medical support. Case study A caller to OPA’s Advice Service reported some very serious concerns, which prompted extensive follow-up. The medical examination of a non-verbal woman with osteopenia and other complex health needs had discovered the young woman had three leg fractures which had occurred at different times over the previous six months. The resident also had bruising and swelling to her face on one occasion, allegedly from a hoist incident in the house. The resident’s private guardian had not been able to establish how the fractures occurred nor had been able to access relevant incident reports. Community Visitors viewed all the available documentation. The matter was reported to DAS area management who conducted their own investigation and organised for a review by a forensic medical specialist. Meetings with the resident’s guardian and the family were held. However, the investigation did not establish how the fractures occurred. A number of strategies have been put in place to reduce the likelihood of further injuries occurring. In one complex case, a woman who is unable to speak sustained unexplained fractures to both her legs and received very poor medical support. In addition to this, there were delays in notifying her family of her injuries and in fulfilling incident reporting requirements. Compatibility Compatibility of residents continues to be a serious problem in some houses. One active resident was placed in a DAS house with residents who have complex needs and who are virtually non-verbal. She told Community Visitors she felt isolated and unhappy. She was promised a full-time day placement but still has only minimal part-time hours. Despite some months of advocacy, an application to the Disability Support Register to enable a move had not been completed when Community Visitors last met with DHS management. One resident from a CSO house over-indulges in alcoholic drinks daily and places himself at risk in the community, assaults staff, and frightens his housemates. He is frequently brought home by police and is at risk of serious harm. Community Visitors contributed to the appointment of an independent advocate. A number of ‘expert’ disability providers are trying to improve his lifestyle. This remains complex and ongoing and his housemates remain disadvantaged. In a number of other houses, there are residents who are either violent towards staff or other residents or unsuited to shared living. Community Visitors acknowledge these situations are not easy to resolve but still find it unacceptable to expect more passive, gentle people to live in fear for years on end. External presentation There are many maintenance issues such as damaged floors, carpets and curtains, walls in need of painting, taps that fall off or cannot be turned on, broken exhaust fans, missing tiles, damaged fencing, a chipped kitchen bench, and dirty heating ducts. One house with five adult residents has been without a dishwasher for more than a year. When Community Visitors enquire about these issues they are usually told a maintenance request has been submitted. In liaison meetings, management staff explained that the budget for maintenance is inadequate to address all maintenance issues and that there is a need to prioritise. And, if urgent, serious, structural bathroom or kitchen issues arise, then the majority of the budget may be spent on just two or three houses in the region. Plenty Residential Services Unlike Sandhurst and Colanda, which have no admissions policies, this site continues to be used as ‘accommodation of last resort’ for some people with complex needs and personalities who have challenged the system elsewhere. These people require a situation where, if they should experience an instance of traumatic behaviour, an alarm system is available to alert nearby staff to respond effectively. The outcome of this has been the dislocation of long-term residents from Plenty Residential Services (PRS). Community Visitors reported a lack of fire evacuation drills at two houses. They have also noted some unsuitable backyard and outdoor areas and weeds, lawns and yards in need of attention. This was exacerbated during the mild, wet summer months when there was unusual growth and DAS must maintain safe and usable garden areas for residents. Building structure and design Several houses which were closed in the past year were outdated or inappropriate to client needs. A number of other design issues have been noted. In one Housing Choices Australia house, two men are forced to share a bedroom. This house is located on a busy and potentially dangerous road. There is also no ramp at the front door so the house is not accessible to one of the resident’s family members and one resident who had broken her foot has found access difficult. One CSO-managed house has a sloping property and is inappropriately designed. In another house, the doorway of a bathroom is not wide enough for walkers and ageing residents. Some houses have only one shower or one toilet for five residents. Community Visitors Annual Report 2012 81 Disability Services Case Study A resident was accommodated in a house at PRS late in 2009.The two existing residents at that time were required to be moved urgently to accommodate him. This followed a decision by a court to have this man removed from prison, as he had been found unfit to plea in court. Very high staff levels were required to support this man as a result of his very restricted situation in prison and severe disengagement from staff. The back-up duress alarm system was also a requirement. It has taken two years to regain this man’s trust and present him with a slightly improved quality of life. In January 2012, Community Visitors noticed a new house being built on the edge of the PRS site. Information was that this was for this resident. He now lives alone in this house with a reduced level of staff support from PRS as a transition situation towards, hopefully in the future, being able to move back into the community. Many of the residents at PRS could live in the community. If DHS provided them with this opportunity then this site could be used for the specific purpose of accommodating people with special needs as a duress alarm system is available for staff to call for assistance when severe behaviours of concern are manifested. It is the opinion of Community Visitors that it would be in everyone’s best interest to review the future of PRS and develop a clear vision for the service consistent with both the Victorian Charter of Human Rights and Responsibilities Act 2006 and the principles of the Disability Act. Planning and community access Most residents have a PCP. Community Visitors continue to question the implementation of the planned actions from these lifestyle plans. Despite the introduction of monthly key worker reports to assist in monitoring the plans, the reporting is not in sufficient detail to provide a clear ‘picture’ of what is or is not happening in an individual’s life. 82 Community Visitors have advocated for months that PRS arrange an Italian-speaking service or volunteer to visit an Italian-speaking resident who is isolated because of her visual impairment, communication needs and intellectual disability. So far, there appears to have been few efforts made to address her situation. In instances where goals are for increased community access, lack of access to vehicles or insufficient staff support are often reasons given for why goals are not being implemented. These are strong indications of inequality for the people who are housed at PRS. The situation is so dire that some residents are now using their own savings to pay agency staff to take them out, for example, to have a meal, visit family, or go to a disco. At one visit, an agency staff member arrived and all five men surrounded him, hoping that it was their turn to be going out. Such a sad situation to experience, and one that emphasised how deprived they are of normal opportunities. It is the opinion of Community Visitors that both additional staff support hours and additional vehicles are required to ensure opportunities for equality in human rights for these people. Staffing Rosters are historical and the legacy of this is that staffing hours are often suited more to needs of the staff than the needs of the residents. At the end of the reporting year, Community Visitors were pleased to be informed that a project officer has been appointed to address the findings of the Review of Supervision Arrangements – Plenty Residential Services, August 2011. However, the slow progress on this front continues to disadvantage the residents of PRS. Leisure activities and recreation In a number of houses, residents sit around with no opportunity to engage in any leisure activity. Various reasons are given for this, for example, residents who are blind may trip and fall over items, people with autism may put the items in the rubbish, over the fence, or down the toilet. During the year, Community Visitors have noted from client files, interest in such activities as riding three-wheeler bikes and using trampolines. This has been brought to the attention of management to make such equipment available. Abuse and neglect Planning In last year’s annual report, Community Visitors expressed concern about the impact of one woman’s aggressive and assaultive behaviours on the other residents in the house where she lives. This resident has not been moved and Community Visitors remain concerned that other residents live in fear and have been observed cowering in their own home because of the abuse and aggression of this resident towards them. In many houses there is a lack of continuity in the documentation with no clear connection between PCPs and key worker reports. Residents’ goals are often written as statements such as, “I want to have a healthy life”. Where residents have goals to which they aspire included in PCPs, they are sometimes not documented in action plans. External presentation During summer, the grounds around the three courts of what is PRS became very overgrown. A gardening service employing people with a disability has now been contracted to address this. Most houses have large backyards of which many are very under-developed or uncared for. These areas could provide increased activity for residents. When PRS was developed there were five maintenance staff employed. As PRS houses are regarded as community houses, these positions have not been replaced as they became vacant. External contractors are supposed to be utilised. It seems this is often not done with staff being unused to this practice. The houses at PRS are now approximately 20 years old and require upgrades in such areas as the bathrooms and toilets and particularly in external and internal re-painting. The present level of budget for minor maintenance does not allow this to be done. Community Visitors request that the government address this by increasing the budget to this area. North and West Metropolitan Region (West) In comparing this year’s annual report with last year’s, it would seem that nothing much has changed. The problems with person-centred planning, maintenance, retaining permanent staff, the use of casual staff, transport, and financial constraints are perennial issues. However, the Community Visitors come across many very dedicated and hard-working staff in these houses and applaud them. Community Visitors continue to strive to uphold the rights of the people they visit. DHS recently had training for all house supervisors and domain managers in person-centred thinking skills. It is hoped this training will improve the implementation of PCPs and that they will be an accurate reflection of each resident’s goals. Hopefully, there will be more actions linked to these goals and that Community Visitors will see more diversity in the goals within each house. There have been many reports of paperwork not filed or filed incorrectly. This is frustrating for Community Visitors because they cannot find the required documents. Dignity and rights A number of houses are having regular house meetings with the residents. Many are using inventive ways to help residents express their choices in everything from outings to the weekly menu. Some houses call for agenda items prior to the meeting. In another, one of the residents takes the minutes and in another, days for the meetings are rotated so that all staff have an opportunity to attend sometimes. Where all residents are non-verbal some houses use chat sheets at meetings, others find one-on-one talks work better. Unfortunately, there are still too many houses where such meetings are not held and Community Visitors are told that the staff know what residents like to eat or where they like to go. Staffing It appears to Community Visitors that more casual and agency staff are being used in the houses. This obviously affects residents in many ways. Houses where there are residents with high needs and serious behaviour problems seem to have many temporary staff and staff changes. Understandably, this affects residents. Community Visitors know that it must be very stressful working in some houses. It is felt that more support for staff and residents could be given. The residents are noticeably more settled when there are permanent staff, with whom they are familiar. Community Visitors Annual Report 2012 83 Disability Services Good practice A young woman in a house managed by a CSO was quite disruptive when all residents were preparing to attend their day programs. The house supervisor devised a range of strategies to help her manage better in the mornings. These included a pictorial program of steps to follow each morning to get ready for her day program and a ‘feelings’ book, to help staff identify problems she might have had that day. She also had one-on-one time with a staff member at the end of each day where, over afternoon tea, she is asked to pick a face which best describes her feeling that day; if there are three unhappy faces in a row, staff note this and follow up. These strategies have been very successful and the resident is much happier. Well-planned arrangements were made for residents who have moved out of their homes. One new house has opened and the residents were pleased to show the Community Visitors their new home. Three other new houses are being built in this region. Residents from another house where there were serious structural problems are now settled into other houses where bedrooms were painted and wardrobes installed. There are many maintenance problems in the houses, however, a number of houses have been painted and other improvements made. Communication Communication both verbally and by other means is such a vital way for us all to relate. It is wrong that so many residents are being denied access to speech therapists and other experts in this area because they cannot afford to pay for such services and because the waiting lists are so long. While most permanent staff say they understand nonverbal residents’ needs and wishes, this certainly cannot apply to the many casual and agency staff that are frequently in the houses. Some staff are to be congratulated on the ways they have devised to communicate with residents. It is vital that all residents are given expert help to assist them in communication. Participation and engagement In many houses, residents go on regular annual individual holidays and some also have short breaks away. It does seem that the high cost of support for residents who need one-on-one assistance for such holidays is beyond their ability to pay in some cases. Other residents did not go on holidays because their families do not want them to go away or they choose not to. 84 Family involvement is strongly encouraged. One resident’s family provides the house with lots of fruit and vegetables and has arranged for a local butcher to supply most of the meat to the house. Once a week, all the residents have free fish and chips from another local shop. Many residents have close family and it is pleasing to find that these ties are respected and encouraged by staff who often drive long distances so residents can visit family. In some houses, these drives are combined with an outing for the other residents. One house arranges for a resident’s mother to sleep on a folding bed when she visits from interstate. Enabled access to the community Most DHS houses share transport. A variety of timetables for sharing have been agreed, to best suit the houses involved. However, sharing vehicles does mean that the opportunity for spontaneous community access is limited. This is particularly felt during holiday periods. Each house has access to a vehicle from DHS in Footscray each weekend. As houses are as far away as Melton, Sunbury and Werribee, collecting the vehicle on Friday evening in peak hour traffic and returning it on Sunday evening is onerous. It also means that sometimes houses are not fully staffed while this pickup is occurring. Also, some residents who use taxis to take them to day placements or appointments find they either come late or not at all. Good practice Staff arranged for a resident to go to a new physiotherapist who suggested a different style of walker. It has given the resident mobility and freedom to move and to make decisions about where he wants to go in the house. This was not possible before, as he was reliant on staff to assist him to move around. Abuse and neglect Community Visitors reported the assault of a man in his home by a family member. It was a serious concern to them that staff who witnessed the assault did not intervene; there was a delay in seeking medical treatment and a category one incident report was not completed as required. Case study A telephone call from a concerned staff member alerted Community Visitors to a case of abuse in a DAS house. Staff advised that a family member had a dispute with a resident who was forcefully sat down, resulting in bruising that was still very visible four days later. While two staff members witnessed the incident at the time, they did not intervene to protect the resident, did not immediately report to management and an incident report was not made on the day. Other residents were also present and were very upset following this incident. The resident was not taken to the doctor until two days later. A category one incident report was only completed when the domain manager became aware of the incident. On learning of the incident, the domain manager took the doctor’s report to police who declined to take any action, but noted the incident. The domain manager advised that the house would engage VALID to assist the resident to deal with his family. Incident reports Incident reports are not always available in hard copy when Community Visitors ask to see them. When sighted, they do not always have followup, outcomes or recommendations to prevent a reoccurrence. DHS houses have implemented the non-critical incident register as required by the department’s incident reporting guidelines in late 2011. Community Visitors will be observing, with interest, what results will come of this change. Compatibility Residents should be able to feel safe in their own home. Unfortunately, there are a number of instances where one resident’s disruptive behaviour is having an impact on the lives of the others in the house. Two residents from one house were moved to other houses (at their request) because of another resident’s behaviour. While they have settled into their new homes, this did mean they had to leave a place which had been their home for years. DHS has brought in an expert from BIST to help formulate strategies to help staff with such behaviours. Unfortunately, these strategies are not always followed. This could sometimes be explained by the lack of permanent staff in some houses. Another house continues to grapple with ongoing friction between two residents and with another resident who sometimes becomes violent. When this happens most know to stay in their rooms but one resident refuses to do this and often gets assaulted. The problems of ageing and dementia have to be faced in a number of houses. Staff are given training to help such residents. However, it is a concern that other residents are missing out on activities and outings because of staffing levels. Ambiance and comfort Residents and staff have made many houses into homes. Photos of family, holidays and outings are displayed. Ornaments, DVDs, magazines and flowers are around. Written directives displayed on walls are kept to a minimum. Residents have been involved in choice of colour and decoration in their bedrooms. The continuing work of ‘theming’ each resident’s bedroom in one house has resulted in the bright and personalised rooms that the residents obviously love. The house supervisor is leading this work. Residents’ likes and interests are considered in the choice of theme and colours. Unsuitable floor covering is mentioned in a number of reports. Surely it is important that the floor covering in the bedroom of a resident who vomits frequently should be washable. Duct tape has been used to patch up floor coverings in living areas and bathrooms. This is a tripping hazard and looks unattractive and water gets under the tape, causing more problems. It is unfortunate that these tripping hazards are often left a long time. One house in Sunbury has not been able to use the back steps for years. These steps should be the exit from the laundry to the outside clothesline but because one resident fell and hurt her ankle badly three years ago, residents and staff were told not to use that door. Too often curtains are left hanging by just a few rings or strips of Velcro when all that is needed is to have them re-attached. Old furniture and junk is left piled up both inside and outside houses waiting for hard rubbish collection or until families remove it. In some houses, there are reports of water not draining away from the shower, mould on the ceiling, loose and leaking toilets, and holes in the walls. In one house, the metal coil around the flexible shower hose had been broken leaving a sharp edge at both ends. For months, residents had to eat at an old Community Visitors Annual Report 2012 85 Disability Services plastic table that had a sharp edge where it had been broken. In situations where a resident has damaged or destroyed furniture or white goods they are expected to pay for the replacement. This sometimes means that all the residents are disadvantaged. Would it not be possible for these items to be replaced immediately and paid for later? Respite issues As reported in last year’s annual report, respite houses are still being used for ‘temporary residents’. One young girl was moved from a CSO children’s respite house, where she had been living for a long time, to a DHS respite house where she is to live on a seemingly permanent basis. Surely a better option could be found so that she has a real home rather than this temporary one. Case study A very assertive young woman gets angry and frustrated when her personal desires are not being met. She informed Community Visitors that she had been hit with a remote control by a staff member; they did not see an incident report about this or other issues. It was reported that a staff member left half way through the shift; the reply from the facility indicated the staff member was replaced for the remainder of the shift. The house manager has explained the reasons the young woman’s requests have not been fulfilled, as staff have to try to balance her needs against the needs of the other residents in the house. This house is a respite house and the Community Visitors feel that this woman has been there too long, resulting in her provoking other residents and causing unwanted problems. Living in a respite situation appears to be a trigger in escalating her behaviours. Southern Metropolitan Region Community Visitors in the Southern Metropolitan Region were pleased to report that there were nine new houses built under the Older Carer and the My Future My Choice funding initiatives. These homes were purpose-built with resident support needs a primary focus. DHS also built and operates a well-considered and designed house for residents with complex behaviours that support their individual needs. Planning The quality of plans overall reflects residents’ individuality, however, clear documentation of implementation is not always evident. A majority of activities take place at formal day programs and, unless day program agendas are available, Community Visitors find tracking goals and aspirations difficult. Consistent staffing in houses leads to better outcomes in recording of this information. DHS has implemented a section in the Day Report Book for notations regarding resident’s activities. There should be consistency in describing the progress of each resident’s goals and aspirations. When the focus of a resident’s person-centred support is on their abilities, not their disabilities, Community Visitors have observed great progress in the resident’s quality of life. Often documented evidence of activities is not available for Community Visitors to monitor and reflect on how the plans are being implemented, achieved or updated. Delays in preparing, updating or finalising residents’ support documents continue to be reported. House staff are often required to write information in a number of different documents, not only taking away direct-care time of residents but also when the documents are archived they are not available to reflect on. Community Visitors note that where a house consists of permanent staff, the resident support documentation is generally well-maintained. Dignity and rights There are excellent examples within houses of communication dictionaries with individualised focus, photo cards for meal choices and My Day communication boards. However, communication support for many non-verbal residents is still lacking. SCOPE has trained a staff member in individualised communication needs within some houses in this area. Community Visitors report the Let’s Talk project has proved rewarding for both staff and residents. SCOPE is currently evaluating the data collected 86 from this project, with the aim to source ongoing funding for its implementation in all SCOPE houses. Community Visitors remain concerned with the lack of clear guidelines regarding the use of an independent person, as required under the Disability Act. There is also a lack of clarity regarding who can be used as an independent person; this is an important role for ensuring that a resident’s fundamental rights are upheld. Case study Community Visitors report a female resident with autism who needs more consideration of her privacy and dignity given she is living with four males. In addition to a sliding door, she has a screen door to her bedroom as she is fearful of not being able to see out. The sliding door is often damaged and cannot be closed leaving an open view to her bedroom while she dresses. Even though house staff open her wardrobe door to block some of the view there is no clear plan being considered to address her rights to privacy and dignity. Community Visitors report that, in one house, the toilet door has been removed and replaced by a curtain due to the decreasing mobility of the residents. This impacts on the privacy and dignity of the residents. Recognising the ageing and associated mobility issues of the residents, the urgent need for a new bathroom is still not actioned, despite several years of Community Visitors reporting about this issue. Staffing Permanent staffing ratios remain a concern, particularly in houses where residents have high support needs. Community Visitors note dramatic changes to the quality of life for residents caused by heavy usage of casual staff who are not familiar with the residents’ individual programs or needs. Houses subjected to this occurrence often change from a ‘no issue’ house to one with multiple issues. Community Visitors welcome the gradual change from the cottage parent/24-hour model to the eight-hour model of care. Where this has occurred, Community Visitors have reported positive changes and a person-centred approach leading to greater independence and enhanced quality of life for residents. It is noted that the cottage parent model culture is based on dependence with little opportunity for independence even when people become adults. Independence in all aspects of lifestyle in houses where the person-centred approach is evident has been reported. Appropriate individualised communication methods are also noted in other sections of this regional report as essential for independence. Community Visitors reported concerns regarding the Behaviour Support Team’s capacity to meet increasing needs of both staff and residents. Five team members cover a wide area of need, from the resident’s home, family home, day programs and other support providers. Intensive, brief and secondary consultations are afforded on individual cases and prioritised by urgency. Depending on caseload it may take up to six months for a consultation. This team requires additional resources and support to ensure early intervention and a proactive, not reactive, approach. Community Visitors report that the health and safety of residents with high medical or support needs are at risk where casual or agency staff are utilised in the absence of specifically qualified staff members. The lack of appropriate training and instruction for these replacement staff to meet the complex healthcare needs of residents is a great concern. Case study Community Visitors have been concerned that a house that accommodates a number of residents with high needs is often staffed with agency or casual staff who may not have had orientation to the house and who may not have the qualifications related to caring for people with a disability. It was of concern that while a number of residents require tube feeding the agency or casual staff filling in the shifts may not have had training in managing this type of feeding. This places resident health at risk as these staff may not recognise some of signs of the complications related to tube feeding. Security of Community Visitor reports and responses has been an issue. In many cases, requests for copies of reports due to the loss of the original has occurred, after a follow-up request for a response was made to the service manager. Community Visitors Annual Report 2012 87 Disability Services Facilitating and encouraging independence Good practice Community Visitors are impressed by a program initiated by DHS staff to enable one of their residents to work towards moving into more independent living. The plan is called a STEPS program and focuses on undertaking small steps with an ultimate goal. A resident who moved from Kew to a group home six years ago, had been limited in house activities due to her aversion to wearing seatbelt restraints. The resident, who has mobility and balance difficulties, has been severely stressed when seatbelt restraints have been applied and when, for safety reasons, a belt has been used to take her out in her wheelchair. While Community Visitors have identified many issues over the past 12 months, they have also reported many instances of caring and dedicated staff who find innovative ways to enrich the lives of the people they support. An example, which proved very successful for the residents of one house, was when a staff member arranged to take two of the residents ice-skating while they were sitting in their wheelchairs. Many other residents have enjoyed attending live theatre performances in the city, also concerts and meals in local cafes and coffee shops. Community Visitors note individual birthdays are often a reason for celebration in many houses with photos displayed to enable everyone to continue to enjoy the occasion. In a respite house for adults, the staff placed pictures on the doors of the kitchen cupboards displaying the items stored inside. Another house conducted a client satisfaction survey and an innovative staff member and resident of another house have designed and built a chook shed with a run, which can be moved to different locations around the garden. These are just a few examples of many, and Community Visitors believe it is important that dedicated and caring staff are recognised for taking the time and making the extra effort to improve the quality of residents’ lives. Staff training and attitudes Community Visitors report concern with the training and information provided to agency and casual staff. Without appropriate orientation, support needs will barely be met with the little time staff have available to familiarise themselves with the residents. Community inclusion Community Visitors are pleased to report increased sourcing of options by staff for community inclusion of residents. Overall, inclusion and residents’ choices are met, although there is still room for improvement within some areas of this region. 88 Staff sought professional advice and, for many months concerted efforts were made to make her feel comfortable, but without success. However, Community Visitors are delighted to report that a major breakthrough occurred recently with the resident now picking up the house keys and waving them at staff, indicating her desire to go on the bus. Regular outings now occur and her quality of life has been enhanced considerably. Community Visitors commend the ‘never say never’ approach of staff in supporting this woman to overcome her fears. Community Visitors continue to report that a major barrier to residents’ participation in their community, or in pursuing individual interests, is the lack of readily available or dedicated vehicles or suitable low-cost transport options. Residents can spend large amounts on taxis going to work, leaving little money for leisure activities. When one vehicle is shared between houses, a range of problems become apparent. Holiday options are generally provided. However, for residents with complex health or high support needs, holidays and outings are limited due to high costs. This is further complicated where staff and management are in dispute about appropriate payment of staff wages when supporting residents on their holidays. Abuse and neglect Community Visitors reported a number of allegations of abuse and neglect. In one instance, two residents were involved and staff advised of their difficulty in having the matter investigated by the police. While no charges were laid, the police agreed to attend and speak with all the residents. A number of additional supports were implemented with counselling sessions and information provided about appropriate behaviour, respect and sexual relations. Aids and equipment Case study Community Visitors note a marked improvement for residents in a DHS house previously the subject of abuse and neglect concerns. Following renovations to the rear of the house, one resident now has independent living. He feels safer and in control of his environment and has interaction, by choice, with the other residents. The introduction of two residents into the main house has led to little disruption. There has been a stabilisation of permanent staff, a reduction in incidents and staff are still active in improving the quality of life for all residents. Compatibility Incompatibility continues to be raised as an issue by Community Visitors in the region. Residents of widely varying ages and abilities can be placed together and, in one house, a woman lives with four men. The Disability Support Register and vacancy management process continues to be crisis-driven with little opportunity for resident choice. Community Visitors would like to see greater autonomy afforded to existing residents in choosing new residents when vacancies occur in their own home. This would lead to fewer incompatibility issues, while also acknowledging the need for DHS to provide accommodation for homeless people or emergency placements. In these circumstances, normal transition processes do not occur which results in placement of incompatible residents, which often has safety implications. Healthcare needs For many years, Community Visitors have reported concerns about a resident whose family will not permit him to undergo certain medical procedures, such as blood tests and dental care, as they think they would be too distressing for him. Community Visitors are of the opinion that the resident has the right to health monitoring and have observed varied methods utilised by health professionals to overcome any anxieties this creates. Community Visitors have ascertained that the delays of new custom-made wheelchairs can be caused by the lack of qualified personnel. The long process of evaluation sometimes takes 18 months. This can lead to a need for further equipment changes as a result of changing needs. Financial concerns can also cause delays when State-wide Equipment Program (SWEP) funding leaves a substantial amount to be found by the resident for the equipment. In fire-prone areas, Community Visitors regularly report inadequately stocked evacuation packs that are missing items like radios, torches or items that were past their use-by date. These items are replaced quickly. It was also reported, with concern, a drop out in internet connection to certain houses in the region, causing delays in updating or receiving electronic information from the main office. Personal safety Concerns are expressed for a resident who is capable of unlocking the front door of the house, which is on a busy highway. The snib on the wire door is now employed as extra security, however, Community Visitors feel this is not an adequate safety measure. Community Visitors are concerned that the staff sleepover room in one house is upstairs and the residents’ rooms are downstairs. The residents are vision and hearing impaired and, in an emergency, there is no way to communicate with staff. Incident reporting Community Visitors continue to report difficulty in accessing documents; often staff do not know how to locate or access them. The lack of incident reports in hard copy remains an impediment to Community Visitors fulfilling their responsibilities under the Act. Viewing reports by computer has proved very timeconsuming as it takes approximately eight minutes to scroll through one report. The recently introduced incident reporting guidelines, thought by Community Visitors to rectify access concerns, has been implemented inconsistently across DHS and CSO houses. At a number of CSOs, staff email or advise their manager who grammatically edits the report, categorises the incident and advises DHS. Community Visitors believe that this process lacks transparency and the new guidelines should be implemented across all houses. Community Visitors Annual Report 2012 89 Disability Services The new reporting system only includes the requirement to report category one and two incidents. Service providers are required to keep a non-critical incident register for each resident, however, it appears that some services are using this to record incidents that would have been reported as a category two under the previous system. Upkeep of building and fittings A funding allocation has enabled many longstanding painting and minor maintenance projects to be completed, however, most older houses are not purpose-built and disadvantage residents. Bathrooms with one toilet are shared by up to five people and are not compatible with a resident’s right to maintain dignity. DHS has acknowledged houses are in need of a rebuild, however, funding is subject to financial constraints. Community Visitors again report many maintenance issues. Matters reported include: rotting window sills and door jambs, dirty ceiling vents, nails protruding from ageing fences, guttering choked with vegetation, shade cloth requiring replacement, trip hazards in slippery steps and flooring, holes in living room walls and leaking showers. Some houses seem to be in a state of ‘limbo’ awaiting a decision on whether their ownership will transfer from the Director of Housing to DHS. Community Visitors have been advised that the Disability Leasing Model only applies to 23 CSOmanaged, Secretary-owned facilities in the region. Ageing and planning Accommodating the needs of ageing residents continues to be a challenge, with concerns regularly reported about inadequate transport, increased health needs, poor retirement choices, and houses unsuitable to the changing mobility needs of residents. 90 Unmet needs in accommodation Community Visitors acknowledge new models of care to accommodate residents who, due to their complex support needs, have difficulty coping with shared support arrangements. However further allowances in future planning for this increasing need is necessary. One respite house, operated by SASI, caters specifically for children with autism in this area and another operates only on weekends and school holidays. A respite house which is run down and lacking comfort is still being used despite land being purchased some time ago. Families who desperately need respite are reluctant to use this house in its current state, although Community Visitors are impressed with the care provided by the staff. Restrictive practices Community Visitors have continued to report houses where fridges, cupboards or kitchens are locked for ‘safety reasons’. However overall, restrictive practices regarding locks has improved, with positive support provided by the OSP to educate services. Community Visitors General Meeting 2012 Community Visitors Annual Report 2012 91 ealth Services H statewide themes and recommendations 92 Recommendations Health Services The Community Visitors Health Services Board recommends that the State Government: 1.establish a team of behaviour management specialists that support proprietors to maintain a safe, home-like environment to minimise abuse, neglect and violence 2.audit the implementation of the ‘Information Sharing and Referral Practices Between Supported Residential Services and Mental Health Services’ protocol to ensure the appropriate placement of people in the SRS sector 3.ensure that the record of incidents and injuries is accessible to Community Visitors at all times 4.improve the viability of the sector by increasing the pool SAVVI funding to enable those SRS that would now meet the eligibility criteria to be able to participate 5.develop an information campaign that ensures proprietors and staff fully understand the roles and powers of Community Visitors so they are treated with dignity and respect 6.provide adequate funding to ensure the Community Visitors Program meets its legislative requirements. Community Visitors Annual Report 2012 93 Health Services guidelines for SRS closures • c ollaboration around addressing the palliative care needs of some long-term SRS residents • the fostering of a more collaborative working relationship between the Community Visitors and Authorised Officers under the newly proclaimed Supported Residential Services (Private Proprietors) Act 2010 and Regulations. Total • Scheduled visits The Board commends the Department of Health SRS executive team for the other positive response to issues they raised and highlights the following outcomes achieved this year: Health Services Stream Requested visits The Board is very pleased to report the positive engagement of the government with the Community Visitors Program. Parliamentary Secretary for Families and Community Services, Andrea Coote, attended three meetings of the Combined Board in order to hear firsthand the views and concerns of Community Visitors. Following each meeting, she took up a range of important issues on behalf of the program. The program looks forward to continuing this positive relationship. This year, there were 79 Health Services Community Visitors appointed, and another 23 trainees in the stream. Recruitment of volunteers is always challenging and, with a shortage of Community Visitors in many areas, any delay in transitioning trainees to appointed Community Visitors has an impact on the ability to recruit and retain volunteers. Unfortunately, processing delays occurred this year due to system hold-ups and changes in the paperwork required. However, Eastern Region Health Service visits are up substantially from last year’s record low as the new team of Community Visitors have taken up their roles. No. of CVs In 2011-12, 79 Community Visitors in the Health Services stream conducted 924 visits to 171 SRS across nine regions of Victoria. Thirty-two of these visits were referred by OPA’s Advice Service. Appointment of Community Visitors No. of units visited Statewide report Barwon-South Western 10 8 1 73 74 Eastern Metropolitan 49 10 13 151 164 Gippsland 6 5 0 31 31 Grampians 13 6 1 75 76 Hume 2 5 0 23 23 Loddon Mallee 7 8 2 53 55 Northern Metropolitan 19 10 0 113 113 Southern Metropolitan 51 21 14 272 286 Western Metropolitan 14 6 1 101 102 171 79 32 892 924 Region Figure 14. Total visits Health Service Stream 11/12 94 incident records 82 abuse/neglect/ violence 69 other hazards 54 staffing/support 54 care plans & referral information Statewide findings 50 cleaning 46 healthcare The following table and series of graphs financialincident records provide an overview of the visits made by matters Community Visitors and the issues of concern abuse/neglect/ meals & violence raised by them. beverages 155 82 41 69 41 other hazards 54 During the year, Community Visitors identified maintenance staffing/support 880 issues that affected the lives and wellbeing care plans 32 of people living in SRS. A number of common resident mix & referral information themes were identified and, while many cases cleaning30 reflect the patterns of previous years, the fire safety highest number of matters reported related financial individuality matters to health issues, which is a change from last 28 & choice meals & year’s report. issues types identified number of issues identified issues types identified complaint processes 14 privacy 13 community interaction 12 4call system 8 grooming/ clothes 5 residential statements 4 chemical storage 4 routines 4 4 4 3 3 food safety 3 lighting 3 2 confidentially 50 relationships of choice Pe rs on H al ea C lth En Ho are / vir m on e-l m ike en t S af Di et gn y ity & , Pr Ch iva oi cy ce So Ac cia tiv lI itie nd ep s en de nc e Fi Co na m nc pl In ai fo es nt rm Pr a oc tio es n se & s 19 5 100 0 19 8 0 12 20 heating/ religious/ cultural choice 22 22 12 cooling 0 45 25 rec/education opportunities support to 14 move/ relocations access to 13 information citizenship 43 28 19 confidentially 53 30 medication lighting 189 32 individuality & choice 19 250 150 39 fire safety 20 food safety 200 41 22 routines 250 41 resident mix these SRS have complex physical and mentalheating/ cooling health needs, more than can be addressed with current funding. complaint 284 46 maintenance rec/education opportunities SRS, by their nature, provide for those whose support to age, mental or physical health, social or financial move/ circumstance make them vulnerable. SRS do relocations not provide nursing or high-care support, noraccess are to information they mental health facilities, yet many people in 300 50 25 Health and personal care processes 54 beverages medication Healthcare issues dominated reporting in the Health Services stream this year. Residents privacy continue to be accepted by pension-level SRS, community often without appropriate referral informationinteraction and at inconvenient times. Residents also call system continue to transfer from one SRS to another without documentation that would support their grooming/ continuity of care. Another pressing issue in clothes some SRS is that residents are given little orresidential no choice in their medical practitioner and in some statements cases, all appointments are booked for the chemical same day. storage 39 2 citizenship 0 religious/ cultural choice 0 0relationships 0 of choice 0 20 0 4020 60 40 6080 80 100 100 120120 140 140 160 160 number number Figure 16. Health Services Stream number and types of issues identified 11/12 Figure 16. Health Services Stream number and types of issues identified 11/12 Figure 15. Health Services Stream issue groups 11/12 Community Visitors Annual Report 2012 95 Health Services Care plans continue to be inadequately maintained. In many cases, these documents are simply updated with a new review date and there is often no evidence of resident involvement in their development. Community Visitors continue to report instances where care plans remain locked in offices and are inaccessible to both staff and Community Visitors. Residents’ healthcare, interests, and life goals are vital to the ongoing welfare and wellbeing of residents and regular reference to care plans can lead to better support and outcomes for residents. The high incidence of resident falls and lack of appropriate monitoring of residents’ subsequent support and healthcare needs in both pension-level and pension-plus SRS means that fall prevention guidelines are urgently needed. Community Visitors noted that some pension-level SRS had implemented falls prevention programs. One of the most pressing health issues identified by Community Visitors this year was the lack of support for SRS residents with mental health problems. In the worst cases, this led to repeated evictions with proprietors and staff unable to deal with the problems the individual created. The program would like to see the ‘Information Sharing and Referral Practices Between Supported Residential Services and Mental Health Services’ Protocol audited for its effectiveness and to ensure the appropriate placement of potential SRS residents. The Combined Board at its May meeting met with the Parliamentary Secretaries for Families and Community Services and for Health and discussed the case of a resident who has now lived in three metropolitan regions and who had been evicted from at least ten SRS. Each time he moved SRS or region his connection to the service system diminished until he fell through the cracks, leaving the proprietor to manage the erratic behaviour caused by his ill health. The SRS and mental health branches within the departments have agreed to review this case and see what can be done to support this individual. The Board looks forward to a positive outcome to this particular case and hopes that the service system can respond more effectively to this and other cases that Community Visitors have highlighted over the year. 96 Case study Since 1999, John has been a client of public mental health services with at least seven admissions between 2003 and 2008. His diagnoses include bi-polar disorder, schizophrenia and post-traumatic stress. In a three-year period, John was evicted or forced to move from at least ten SRS across three regions due to behavioural issues associated with his mental illness that prevented him from successfully integrating into the community. The longest stay was a year where staff worked tirelessly to support John despite his repeated threatening and violent behaviour. Community Visitors have assisted John through regular visits, including responding to Advice Service calls to help support him. At various times John is alleged to have: • pushed a resident to the floor • been unpredictable and out of control • bullied other residents • been verbally and physically aggressive • self-administered medication or was not taking his medication John has had very patchy mental health support and one of the reasons cited for this is ‘confidentiality’ which translates to no records being kept of where he goes to live, where he did live, what day placements he attended, what behaviours and issues of concern, as well as what therapies and strategies have been used to assist him. John continues to fall through the service system gaps which has had adverse consequences for him and those he has lived with. In some SRS, concerns have been expressed about the general cleanliness and hygiene of residents. Dignity must surely be a concern with some residents going into the community in a dishevelled and unwashed state with clothes stained by the previous meal. Privacy continues to be an issue in situations where there are shared bedrooms. Abuse and neglect There has been an increase in violence, abuse and assaults in a number of SRS this year. In the most serious case, a resident was alleged to have murdered his roommate. Residents and staff remain traumatised by this event. Other incidents where residents faced serious risk included alleged sexual assaults and rapes, a suicide on a property adjoining an SRS, physical assaults and other violence. Concern about the prevalence and seriousness of sexual assaults reported by Community Visitors this year prompted the Board to work with OPA’s Policy and Research team on a report detailing the most serious of these as case studies. Subsequently, there have been fruitful negotiations at a statewide level about improving the responsiveness of SRS to allegations of sexual assault. Specific work in relation to enhancing responses to allegations of sexual assaults in SRS included: • • • • • the development of a checklist for SRS staff the development of a protocol with Centres Against Sexual Assault information on responding to allegations of sexual assault included in SRS resources/ training a review by Authorised Officers of immediate and post allegation response to ensure appropriate steps were taken the development of a protocol between OPA and the SRS Program for responding to a notification of a serious allegation of abuse, neglect or exploitation. The Board looks forward to a positive conclusion of these negotiations with the department SRS executive team early in the next reporting year, and consider this work by Community Visitors has contributed to significant long-term benefits for residents from the work of Community Visitors. Community Visitors would like to see a more proactive response to potentially serious issues to avert situations deteriorating. Unfortunately, some staff have neither the knowledge nor skills to diffuse conflict situations that arise between residents and which sometimes escalate far beyond what they should. Staff may then be at a loss as to how they support residents in the aftermath of these events. All SRS must ensure the residents’ safety and wellbeing so that they can feel safe in their own homes. It is important that documentation and records are maintained, staff training deficits identified and serious issues are not allowed to deteriorate. In many cases, action is only taken following the involvement of Community Visitors and/or the Public Advocate. Community Visitors would like to see additional supports for proprietors to enable them to deal effectively with these difficult situations. number of issues identified Dignity, privacy and choice 80 70 60 50 40 30 20 10 0 69 27 26 2009-10 2010-11 2011-12 reporting year Figure 17. Health Services Stream abuse, neglect and violence 2009-2012 Home-like environment The majority of SRS provide good quality care and a home-like environment for residents. However, resident mix and compatibility issues continue to compromise the environment residents are entitled to enjoy. Instances of aggressive behaviour, often drug and/or alcohol-fuelled impact on resident safety which is not a pleasant way to live. The cleanliness of some SRS and the lengthy delays for minor repairs in others continues to be an issue. The right of residents to have pride in their home should be respected. Community Visitors Annual Report 2012 97 Health Services Activities At most SRS, the activities which are offered positively support residents’ community inclusion and are reflective of their interests. Often this is a result of thoughtful staff and positive community connections through local groups or council. Meaningful community engagement is an entitlement that neither age nor disability should impede. Therefore it was concerning for Community Visitors when visiting some pension-level SRS to observe residents sleeping in bed and only leaving their bedroom for meals or sitting in chairs sleeping throughout the day. In other SRS, Community Visitors observed that with a little imagination and creativity everyone can be meaningfully engaged and residents can have a more fulfilling life. Finances Residents have raised concerns regarding their financial administrators and the difficulty they have in communicating with them. Community Visitors have supported these residents to raise their concerns with the person or agency involved. However, more consideration should be given to ensuring that residents are linked with financial counselling services that can assist them to understand their finances. Concern has been expressed about the potential for the carbon tax to be used to justify rent increases although the program has no evidence to substantiate this. Community Visitors will monitor this issue. Information and complaint processes Residents, out of fear of eviction or other ramifications, are reluctant to complain and often only advise Community Visitors of their concerns ‘in confidence’. The new legislation provides a mechanism of support for residents who feel they have been treated unfairly or face eviction. Community Visitors will monitor and report on the impact of these legislative changes and believe it will provide better protection for residents. Viability of the sector Eight SRS closed in the state this year. This equates to a loss of 309 beds for people needing low-level support and placing significant pressure on many other areas of community services and housing. Community Visitors support the government’s commitment to explore and develop new and innovative accommodation options for people requiring low-level support and housing and see the implementation of this as a matter of urgency. Further, Community Visitors are concerned about the lack of appropriate accommodation options for those residents whose care and support needs exceed those that the SRS sector can provide. 98 The Supporting Accommodation for Vulnerable Victorians Initiative (SAVVI) funding continued to be reported positively. This year, the focus appeared to be primarily on supporting proprietors to meet the new legislative requirements. The Board is concerned about the inequity between SAVVI-funded SRS and SRS that would now meet the SAVVI criteria. It is unfortunate that SAVVI is now closed. The financial and business pressures on pension-level SRS continue to grow and SAVVI funding has enhanced the viability of participating SRS while simultaneously improving the lives of residents. The Board would like to see additional funding to support SRS that would now meet the SAVVI criteria. This needs new funds as the Board would not like to see a diminution of the funds available to SAVVI-funded SRS. Recognition of Community Visitors’ role The legislated role of Community Visitors is to support the independence and dignity of SRS residents as well as identify system failures It is unfortunate that, this year, the Board needs to report that there has been an increase in inappropriate and threatening behaviour towards Community Visitors. In some instances, Community Visitors have been refused entry or requested to leave. It is unacceptable and extremely disappointing that Community Visitors are treated in this way and challenged to such a degree. The department was notified in all instances where proprietors have not acted in accordance with their obligations under the Act. These challenges led the program to work creatively with the department to address these problems. Consequently, ‘roundtable’ meetings were organised in a number of regions. These ‘roundtable’ meetings, facilitated by an experienced mediator, allowed each party to better understand the other’s roles, the pressures faced by them and how departmental staff and Community Visitors can collaborate to protect vulnerable SRS residents. These sessions have led to significant improvements in the working relationships between the Community Visitors and the SRS Program. In addition, two training sessions between Authorised Officers and Community Visitors, to develop skills in dealing with difficult conversations and creative problem-solving were held this year, with another planned for early next reporting year. These sessions provided a solid foundation for ensuring any future problems are dealt with swiftly and effectively. Funding for the Community Visitors Program The Board was disappointed that no additional funding was provided to support the Community Visitors Program. The importance of the program as an independent protector of vulnerable Victorians is highlighted by the fact that some of the criticisms by proprietors of volunteers followed the identification of system failures in these SRS. Community Visitors are often the only ones speaking for these residents, as many have no family or friends to act on their behalf. It is essential that the program is funded and staffed appropriately. Regional reports Barwon-South Western Region Eight Community Visitors conducted 74 visits to ten SRS throughout the Barwon-South Western Region. Of these, one visit was at the request of a resident or another person. Five of these are pension-level SRS and the remaining five pension-plus SRS. One pension-plus SRS has remained unoccupied. Health and personal care In this region there are some very positive developments in healthcare management with a podiatrist funded by a service provider visiting three pension-level SRS every eight weeks to meet resident needs. A diabetic nurse from the GP association attends one pension-level SRS monthly to follow-up GP referrals. A SAVVI-funded ‘Men’s Business’ group visited one pension-level SRS to discuss men’s health issues, while a nurse health educator presented at pension-level SRS to support residents to quit smoking and offered to personally assist anyone who wanted to quit. One pension-level SRS is making positive steps in addressing medication errors, while another pension-level SRS had to contact a hospital to find out a resident’s medication needs when she returned without her medication. Staff at a pension-level SRS continued to support two young residents to manage their diabetes and, pleasingly, one was recently able to move into independent accommodation. Residents with terminal illnesses were wellsupported by caring staff in the initial stages of their illness, often augmented by palliative care and community nurses, generally moving to higher care as their illness progressed. In one case, to support such a move, staff made a photo book for the resident and her family of her time in the SRS. Abuse and neglect Community Visitors are concerned about the impact of repeated moves between SRS on the mental health of one very vulnerable resident. The female resident with mental health issues and exhibiting behaviours of concern moved from Melbourne to Geelong three months ago. On a recent visit, the resident told Community Visitors that she had been asked by the proprietor to move back to Melbourne to another SRS he runs, as staff can no longer manage her behaviour. This will be her sixth SRS in two years and this pattern will continue while her underlying support needs remain unaddressed. Community Visitors regard the failure to assist her as ongoing neglect. Resident evictions are an issue in one pensionlevel SRS because staff were unable to effectively manage residents with complex behaviour and support needs. Police and ambulance services have frequently attended and other residents are frightened when these behaviours escalated. These incidents eventually led to some residents being evicted. Home-like environment SAVVI funded improvements to pension-level SRS included painting, maintenance, heating repairs, new floor coverings and furniture as well as plants in one courtyard. It was also used to buy new clothes and footwear for residents. Resident activities were in some cases funded by SAAVI. These included bus trips to Warrnambool, where residents enjoyed sports and a BBQ, while in Ballarat they went ten pin bowling. A pension-level SRS took residents to Werribee Zoo, Sovereign Hill and fishing. Other benefits have included Tai Chi sessions, a Christmas lunch and the purchase of pets such as a lorikeet and a fish. The source of a much-reported smell of rot and urine at a pension-level SRS was identified when the vinyl was recently replaced. It was noted that the previous proprietor had used SAVVI funding to lay vinyl over the existing, rotting floor. This highlights the need for SAVVI-funded improvements to be audited. A number of residents at a pension-plus SRS joined a ‘Food Focus Group’ and raised concerns with staff. This resulted in a four-week menu plan with good variety and choice and it included vegetarian options. One SRS changes the menu every three to four weeks, yet another pension-level SRS had no menu on display. During a subsequent visit when it did display a menu on a whiteboard, it did not match the meal being served. On two occasions, lunch at a pension-level SRS was finished by midday. At one pension-level SRS, mealtimes were disrupted by escalated behaviours. Community Visitors Annual Report 2012 99 Health Services A flourishing vegetable garden at a pension-level SRS continued to provide fresh produce for meals. A SAVVI-funded dietician is assisting the proprietor and cooking staff of one SRS with ‘Healthy Ideas’, while a resident’s case manager helped make a herb garden in another. Community Visitors reported on the inadequacy of the air conditioner in one pension-level SRS on a very hot day and the fact that staff needed prompting to provide water for residents. Community engagement with SRS saw a community group knit matching scarves and beanies for all residents and a Rotary project will provide quilted blankets to all residents at another. In one SRS, a resident feels the need to have his wallet kept in the office to avoid theft while another resident’s door handle has been broken for some time, so was concerned about the security of their possessions while on holidays. Safety Residents’ falls are of concern. Some falls are caused by drinking; some are the result of selfharming behaviours; and others are age-related. Some residents have been hospitalised for medication reviews and for medical conditions, and one after an accident. A pension-plus SRS has improved resident safety with the installation of clearly visible yellow strips to the stairs leading to the second level. Security cameras were installed at two SRS to address safety and theft issues. The smoking area at the rear of the newly opened pension-level SRS presented a number of safety issues and is no longer used. At a pension-level SRS, blood was observed being taken at a dining room table while afternoon tea was in progress. Activities At one pension-level SRS some residents are supported to undertake training while others have the option to access libraries, go to pampering sessions, see movies as well as participate in walking groups. One SRS has bikes available for resident use and residents are supported to make billy carts on-site and sell them at a local market with profits donated to the Geelong Hospital. Residents of one pension-level SRS went to a community centre to learn ballroom dancing and have ballroom dancing in their SRS on Saturday nights. Residents who are talented singers, actors and artists continue to perform in choirs and concerts while one resident recently performed in London with ‘Back to Back’ theatre. 100 Art plays a big role in the lives of some residents with their work displayed on SRS walls. One pension-level SRS has an ‘artists in residence’ program where residents paint with watercolours. Their paintings will be framed for an art display later in the year. There is unmet need in the region for art/craft programs for residents with complex needs arising from mental health issues. Computer access is now available at a pension-level SRS and a local community centre member comes to assist the residents. A newly opened pension-level SRS lacks activities for residents. The closure of activities for four to six weeks during the holiday season impacts adversely on SRS residents with boredom resulting in problematic behaviours. Consideration should be given to a holiday program to supplement ‘in-house’ activities. The region’s encouragement of best practice in pension-level SRS led to a DVD featuring behaviours and activities being produced as well as an activity calendar being adopted in all SAVVI pension-level SRS. Good practice One pension-plus SRS has provided a range of activities to engage residents. Residents and their families were supported to participate in a quilt exhibition with two quilts made by them on display, including a ‘Cats’-themed quilt. This quilt was used as the background for photos taken of residents when a Geelong Football Club representative brought the premiership cup to the SRS. A resident knitting group makes rugs for the charity,‘Cottage by the Sea’, and scarves for Australian soldiers. There are many opportunities for those residents who enjoy music with activities such as visits from church choirs, a harpist and a musical entertainer. This SRS is fortunate to have a former professional pianist in residence who regularly plays for on-site church services or just to entertain the residents. Finances Increasingly, residents at pension-level SRS find themselves with financial issues. Community Visitors noted difficulties communicating with administrators, the inappropriate use of a resident’s money to support their partner’s smoking habit, and the inability to access money due to the lack of a bank account. Community Visitors noted that a financial administrator provided insufficient evidence to VCAT resulting in the postponement of a scheduled review. The move from a NSW administrator to one in Victoria was a good outcome for one resident. Payments by administrators can be slow and drawn out, which impacts on resident behaviour. In one case, a resident had sufficient funds to purchase a new digital television. She chose a television and placed her order. Unfortunately, the administrator sent the cheque to the wrong store and this could not be rectified until they returned from leave. It took four weeks before the resident received her TV. Staff at a pension-level SRS supported a resident to prepare a budget to manage her finances, though a resident at another SRS has been asking for help with his superannuation for a long time, to no avail. Viability of the sector Resident numbers at Sea View House have declined over the year due to the uncertainty of its future. Currently, there are only five residents although higher numbers are needed for the SRS to be viable. A public meeting was held in May 2012, resulting in the establishment of a local steering committee to consider retention options. An extension of time was sought from Portland District Health in order to develop a business plan. The steering committee aims to take over the SRS in early 2013 to provide accommodation and support for the existing residents, people with a disability or those affected by road trauma or an acquired brain injury. Community Visitors are hopeful that this initiative will be successful, as it would provide continuity for the existing residents and additional regional accommodation options. A Geelong pension-plus SRS was converted to an aged care facility and all but one of the existing residents was accommodated by the new service. This remaining resident moved to another SRS and the timing of the family information session allowed for maximum involvement of families in the process. One pension-plus SRS closed to undertake renovations and all residents were happy to move to another SRS operated by the same proprietor. The opening in January 2012 of a pension-level SRS put enormous strain on Barwon Health’s Surf Coast Mental Health Team when eight residents with mental health issues moved from Melbourne to Geelong and sought local caseworker support. This lack of planning and consultation with the local mental health services meant supports were delayed. There was some community angst because this SRS had changed from one that accommodated aged residents to younger people with mental health issues. Eastern Metropolitan Region For much of this reporting year, there was a full complement of committed Community Visitors who made 164 visits to 49 SRS. Of these, 13 visits were at the request of a resident or another person. The region has nine pension-level SRS and 40 pension-plus SRS. One pension-plus SRS closed permanently and one temporarily during the reporting year. Health and personal care Older residents living in an SRS as an alternative to a nursing home often have family to assist, support and advise and, in most SRS, there is a warm and comfortable atmosphere. Case managers working with people who have Individual Support Packages (ISP) or mental health concerns vary in their attitude. Community Visitors are concerned that some case managers will not communicate with proprietors regarding the health and care needs of a client. Too often, mental health facilities send clients home with little or no paperwork, promising it later. In one case, the hospital sent a bag of medications but there was no follow through. The proprietor or personal care co-ordinators assist residents who do not have a case manager. Community Visitors were notified by the OPA Advice Service about a proprietor who saw administering activities paid from a client’s ISP as too much ‘red tape’. As a result, the resident concerned was unable to attend a day program. The health and personal care of clients is sensitively and warmly managed in most SRS, but, too often, people with complex mental health needs have no option but a pension-level SRS. Community Visitors have contact with a man residing in his fourth SRS and, in between, has been in hospital. He appears to have no on-going support, is adamant that he is able to manage his finances, however, has left owing money. Community Visitors respect his right to manage his own life but are concerned that there may come a point where this right will be removed. Community Visitors are delighted to report a doctor visits several pension-level SRS with a mental health nurse. This partnership ensures a full understanding of the circumstances and concerns of clients, care is delivered where people live, and proprietors are given advice on follow-up care and medications. Community Visitors Annual Report 2012 101 Health Services Good practice Abuse and neglect On a visit to a pension-plus SRS, Community Visitors found Hannah in a wheelchair pushed into a table in front of a television. She appeared very unsettled, was slumped down in the wheelchair, dribbling and unable to feed herself. The proprietor advised that Hannah was from Eastern Europe originally and had reverted to the language of her childhood. Eviction of residents with mental health issues is a problem in this region and, in one case, has resulted in three evictions in a matter of months. On the next visit, she was sitting upright and alert in her wheelchair. The proprietor had found DVDs in Hannah’s native language and a doll that she absolutely loves. Hannah cuddles and talks to the doll as well as planting several kisses on its face and head. Hannah looked totally different to the previous visit. She was still in her wheelchair in front of the television but was now singing. Dignity, privacy and choice Maintaining independence is important to dignity and residents are encouraged to do as much as possible for themselves and their decisions are respected. A resident recently told Community Visitors that what she loved about her SRS was being “independent but still dependent”. While acknowledging the need to enter people’s rooms to clean or to check they are well, many SRS respect resident privacy and most rooms have locks. Community Visitors responded to a call from the OPA Advice Service from a resident in a shared room, who was unable to sleep because her roommate played music all night. Community Visitors were dismayed to find her room very cramped with approximately two metres between the beds. Community Visitors suggest that minimum space requirements could be reviewed for shared rooms in SRS. Recently, Community Visitors were invited into a room where a man told them that he had not received a residential agreement and had no recollection of signing one. During the discussion, a staff member entered his room without knocking. The next visit, another resident stressed his difficulties with the SRS, his concerns about his health and his fear of the people who made noise at night. Community Visitors observed two staff members outside his window clearing up the courtyard, and listening to the conversation. These breaches of privacy were reported, however, “the investigation found this matter could not be substantiated.” Community Visitors remain concerned about this lack of privacy. 102 The placement of young people in SRS with much older people is of concern. These young people may have come from children’s residential care, rehabilitation units or hospital and often they are not able to fit with other residents, simply because of age, lack of experience and insight into themselves. They tend to ignore rules and courtesies designed for communal living such as letting someone know when they intend to miss a meal, are staying out all night, drinking alcohol or taking drugs, playing basketball in the corridor or playing music loud and late. Most pension-level SRS have had young people through the course of this year, often with poor outcomes. There is an urgent and increasing need for provision for them in this sector in order to ensure they are not neglected or for alternative accommodation options. Home-like environment SRS in the region range in style from a four-star hotel to older ‘comfortable’ facilities. The care of clients varies with some treated as honoured guests, others as family and still others as ‘patients’ with ‘behaviours of concern’. Costs to residents range from the purchase of room plus payment of $700 a week for board and care, to an average payment of 84 per cent of pension and rent allowance for board and lodgings. Community Visitors have seen changes and improvements, especially in those SRS supported by SAVVI. These improvements range from an increase in staff, to lights in corridors being left on during the day increasing the feeling of safety, to better quality food and residents’ understanding of nutrition. What constitutes a home-like environment can be a subjective judgment. There is general agreement, however, that the floor should be free and clear to avoid accidents and should be vacuumed regularly. In many SRS, the cook discusses with residents their taste preferences. Many SRS with older residents rarely serve pasta or rice; however, these tend to be staple items of the diet in pension-level SRS. Community Visitors were told it is a matter of cost. In SAVVI-funded SRS using dietary advice, the standard and quality of food is rated highly by residents perhaps because they have had input into the menu. Some residents have access to herbs and vegetables from an SRS garden. At one SRS, the women saw quiche and fresh fruit as a delight while the men referred to it as ‘rabbit food’. Asked what they would prefer, the men said “meat”. Community Visitors responding to a call to the OPA Advice Service about complaints about lack of meat and no BBQ found, when they attended the SRS, roast pork and vegetables had been served that day. As falls are a major concern in many SRS, Community Visitors have queried whether falls prevention strategies could be instituted to help overcome this problem. One personal care worker tries to make sure she is in the resident’s room when they go into the shower so she can put out clean clothes for them. “I like them to look nice,” she says. Recognising the close tie between confidence and self-care, a Maroondah church group has set up a community scheme so that every resident in the three pension-level SRS has a year’s supply of toiletries. Corridors are usually well-lit increasing perceptions of safety, while kitchens are closed. Where possible, Community Visitors check night bells and can report that one SRS has introduced touch or noise pads which set off an alarm if a client gets up at night so personal care staff can check that all is well. A local health group prepared posters showing dental care (cleaning dentures, brushing teeth, care of gums and mouth) using the residents as models, giving them a reminder and a confidence boost. On a recent visit, Community Visitors observed the personal care coordinator’s weekly haircut and beard trim session. Good practice The proprietors decided to ‘do up’ the communal areas of the pension-plus SRS so it was more clientcentred and less food centred. At the next visit, the Community Visitors found the area transformed. Chairs were no longer arranged ‘cinema’ style around a TV, a table had games on it, a billiard table installed and the fireplace, previously hidden behind chairs, was accessible and the fire was lit. A resident had taken to playing Mahler and Mozart on the uncovered piano. A second TV devoted to the sport channel has an exercise bike in front of it and a Hawthorn supporter exercises as she watches her team play. The smokers’ area, given over to an above-ground garden, is sunny and well-used. A table football, infrequently used by residents, is now used by their grandchildren who loved it and are happy to visit because they have ‘something to do’. One man paints and others, who had not previously done so, now take walks. Safety Incident reports continue to be an area of confusion. Community Visitors found an example where one SRS that caters for older people had detailed incident reports, acknowledging minor falls or trips. In other SRS, where the clients tend to be less socially able or referred from mental health services, the incident reports only record major incidents or altercations. A personal care coordinator recently commented that the new incident report book will be much easier to use. Community Visitors hope that as SRS transition to this new reporting requirements they will see more detailed and consistent reports. Fire audits are the responsibility of local government and, therefore, require a separate notification to ensure another authority acts which can cause confusion for Community Visitors. The region covers several fire prone areas and this split seems illogical, especially given the stress on safety of clients. Activities Care and respect for residents is often reflected in their activities schedules: hairdresser once a week, craft session and word games in the garden, golf putting in the wide hallway, organised shopping and day trips, or outings for lunch. Community groups are active in taking residents, usually from pension-level SRS out for lunches, swimming and on weekends to church services. Good practice A few older gentlemen with a love of golf find it a bit hard to get around a golf course these days. The proprietor of the SRS organised a putting competition with a well-marked out fairway in the corridor and great fun – and exercise – was had by all. Activities range from putting a rug over a client’s knees as they watch television to being assisted walking around the garden or to a neighbour’s room for a talk about the football. Several staff encouraged group walks around the neighbourhood or to the park, while others have pianos for sing-a-longs, visiting speakers and exercise classes. Many older residents go out with family on a regular basis. For those for whom this is not possible, it becomes even more important that the garden surrounding the SRS is inviting, even if it is only to smell the roses. Maroondah Council has a dedicated social inclusion and wellbeing officer whose role is to work with pension-level SRS to ensure people are assisted to access the community. Finding people were reluctant to go to the gym, a trainer from the gym went to the SRS. Other services include a council bus, using the local pool and a librarian organising a book group. Unfortunately, other councils told Community Visitors that they do not visit people in privately run accommodation. Community Visitors Annual Report 2012 103 Health Services Resident mix Viability of the sector Concerns and conflicts do arise when people live together and especially when there are changes in the residential profile, such as when people arrive straight from hospital with insufficient information and follow-up. While the department advises proprietors to investigate new referrals before deciding whether to take people, often the hospital placement nurse pleads on behalf of the client. Proprietors then accept residents out of sympathy, out of fear of losing a future contact or sometimes because they cannot afford a spare room. Paper work, including medication scripts, usually follows though it can take some time. This year, the region lost 74 beds from the local community after a pension-plus SRS closed, putting additional pressure to other SRS in the region as urgent accommodation for displaced persons reduces regular resident admission. Case study Anna’s mum phoned the police twice in the week before she took out a family violence intervention order against her daughter. Anna’s mother and pregnant sister became increasingly afraid of her and, although Anna was seen by the local mental health service, she was found not to be suffering from psychosis. As she was unable to return to her own home, Anna’s disability case manager persuaded an SRS to take Anna at 5.37pm on Friday afternoon. On the Saturday night, SRS staff called police when Anna smashed the glass doors. She then spent the night at the police station where a number of police were involved in dealing with and caring for her. There was nowhere for Anna to go; the SRS refused to allow her to return and all emergency accommodation was closed and support services do not work weekends. So Anna returned home, where she remained alone until Monday morning. Recognition of Community Visitor role The majority of proprietors embrace the role of Community Visitors enabling them to discuss, and support, proprietors in concerns they may have with their clients. However, the arrangements between proprietors and the department preclude Community Visitors being provided with any action plan issued by an Authorised Officer to address problems in an SRS. Consequently, Community Visitors may continually raise the same issues, unaware of the timeframes or specific expectations set for resolving the issues by these action plans. Gippsland Region Five Community Visitors conducted 31 visits to the six SRS in the Gippsland Region. These SRS have all now been operating in the region for a number of years. There are five pension-plus SRS and one pension-level SRS. Two SRS are solely for frail elderly residents and the other four SRS have a mix of frail elderly residents and residents with mental health, intellectual disability or drug and alcohol issues. Health and personal care SRS staff generally provide a good level of care for their residents and the SRS are usually clean, comfortable and adequately furnished. Care plans have improved and are now usually up–to-date, reflective of residents’ needs and are accessible. Community Visitors noted that although there has been an increase in residents with mental health issues in the region, there was a decrease in mental health support for them. While a common practice at SRS is to have a doctor visit regularly, residents, like other members of the community, have the right to choose their own doctor. 104 Home-like environment Case study Mary, an elderly resident at one SRS, regularly complained of pain and, as a result, was heavily medicated. Although Mary was being treated by the visiting doctor who regularly attended the SRS, she consistently told Community Visitors over a five-month period that she wanted a ‘second opinion’. While Community Visitors regularly passed this message onto management, they claimed that, in their conversations with her, she repeatedly changed her mind. Community Visitors met with Mary and the proprietor and confirmed her request for a second opinion but it took a further two months for this to occur. Eventually Mary’s medication was changed and she appears much happier. Community Visitors persistence led to a very positive outcome for this resident. Dignity, privacy and choice Residents at some SRS can be limited in choice of daily living simply by the mix of young and older residents. At one pension-plus SRS, complaints were made by some older residents that younger residents made noise late into the night or early morning. Similarly, there were complaints from younger residents saying that portions of food served were insufficient, though none of the older residents had complained about this issue. Abuse and neglect Community Visitors noted an incident at a pensionlevel SRS where a female resident alleged she was raped by another resident. The matter was referred to police, with support provided by the SRS for the victim and alleged perpetrator. Community Visitors were satisfied that it was well-handled. Medication issues have been a concerning pattern this year in one pension-plus, where this had not previously been the case. This SRS documented 106 cases over a six-month period with many incidents involving residents refusing medication or missing it due to them being absent at the time of administration. The department implemented a medication review at this SRS, which resulted in revised procedures, staff training and resident education being put in place. Community Visitors were pleased to report on a pension-level SRS that has been undergoing continuous renovation works throughout the year. Improvements include structural, plumbing, carpeting, painting, furnishing and landscaping renovations. The work has resulted in vast improvement to the SRS and its environment in order to promote harmony among the residents. Meals in all the Gippsland SRS usually appear appetising, nutritious, and fresh fruit is available. Safety Community Visitors observed an innovative approach to addressing emergency situations and at one pension-plus SRS for frail elderly people, each resident had an ‘emergency bag’ clearly labelled and prominently placed in their bedrooms. It contains a water bottle, undies, nightwear, blanket and documentation with relevant personal details of residents. There are two pension-plus SRS where residents have reported minor theft from their rooms. Staff are monitoring the situation. At one of these, Community Visitors reported there had been a break-in, so cameras were installed in the hallway to help remedy these problems. At the other SRS, some residents have requested locks be placed on their bedroom doors. Activities Community Visitors report a lack of activities and in several SRS residents sit in the lounge or lie on their beds during the daytime. One SRS finds it difficult to access activities due to its isolation and the requirement of one service provider that residents travel to them rather than programs being provided on-site. The combination of residents lacking the confidence to leave the SRS and the lack of transport meant this was an inappropriate option. Consequently, the proprietor employed an activities co-ordinator to run in-house programs to boost resident confidence and offer a range of options. The situation for these residents has improved markedly with the generous purchase of a bus by one of the residents, thereby solving the transport issue. Good practice Gippsland SRS have higher-than-required staff ratios, are located in pleasant surroundings, are generally well-run and staff are considerate when supporting residents in their care. One pension-plus SRS has long-term residents of 17 years and 20 years who speak well of care provided at this SRS. Community Visitors Annual Report 2012 105 Health Services Grampians Region Six Community Visitors undertook 76 visits to 13 SRS in the Grampians Region. Of these, one visit was at the request of a resident or another person. Of the 13 SRS in this region, nine are pension-level SRS and four are pension-plus. Most SRS in this region are well-managed, providing their residents with excellent care. Health and personal care Community Visitors remain concerned with the ‘motel style’ entrances at two SRS, with no cover and residents being exposed to the elements. Community Visitors were advised that there remains no funding available to remedy this and the ageing fabric at other SRS. Care plans could be improved across the region and Community Visitors urge better quality and consistency in care planning. At one pension-level SRS, residents can only access the office by walking through the smoking area, which may lead to issues for residents with already compromised health. Home-like environment SAVVI funding continues to provide improvements in SRS and Community Visitors noted funding has been used to purchase fridges, carpets and new furniture, Community Visitors were concerned when visiting one SRS on a very cold day in July to find that no heating was turned on. It is concerning the heating was not on until Community Visitors queried this. Community Visitors continue to monitor one SRS after an article in the local paper alerted them to concerns about the quality of its meals. Community Visitors and department staff visited the SRS to ensure residents were receiving appropriate nutrition. It is pleasing to report that a young woman who had an inappropriate long-term placement at a pension-plus SRS has now found more suitable accommodation. This matter was raised in the Community Visitor Annual Report 2010-2011. 106 Activities Community Visitors in the Grampians Region are pleased to note that most SRS have weekly activities plans, which means the residents are able to further their engagement and involvement with their community. Viability of the sector It is concerning that one SRS in the region will change to an aged care facility in the near future, reducing the number of SRS beds available in the region and placing vulnerable people at risk of homelessness. Good practice After a long delay, a resident at one SRS has had medical treatment which has greatly reduced his discomfort. SRS management and Ballarat Care Connect have been working collaboratively to advocate for this to occur for the last 12 months because of concern for his wellbeing. Hume Region Five Community Visitors conducted 23 visits to SRS in the Hume Region. The region has two SRS, both pension-level and managed by the same proprietor. Health and personal care The engagement of community and health service agencies to support residents continues to be monitored by Community Visitors. The shortage of suitably trained medical practitioners and allied health professionals impacts on resident care and support needs. Over the year, a number of residents have been admitted to hospitals. Several residents have also been assessed by the Aged Care Assessment Service and have moved into aged care. Community Visitors were pleased to note that further care-plan training was provided to staff, in preparation for the new Supported Residential Services (Private Proprietor) Act 2010. Dignity, privacy and choice Case study For almost two years, Community Visitors were concerned about the deteriorating health needs of a regional SRS resident with incontinence. The needs of this resident were complex and challenging for SRS staff and it was difficult to get timely treatment from the local health service. The resident’s condition was reported on monthly due to concerns about his deterioration. While intensive medical support was being explored, the resident was admitted to hospital with severe stomach pain. The resident died following an operation to rectify a blocked bowel. There was a concerted effort prior to his death to coordinate the community health and support agencies, however, the fact he did not recover from surgery after an emergency admission was not considered a Sentinel Event by the hospital. Therefore, it was not reported to the Coroner. Unfortunately, no SRS residents were able to attend his funeral. Both SRS struggle to manage residents with complex health and care needs as well as challenging behaviours though improved support from the area mental health team has seen better outcomes for residents. There were several incidents where medication errors were reported. One SRS was required to accept a new resident who, following discharge from a Melbourne hospital, arrived without paperwork to support their transition or detailing their care requirements. The SRS had no information to assess whether they were able to support this person, although the information was provided a short time later. One resident who was refusing most meals received support from the department with the development of a new eating plan. SRS staff supported the implementation of the plan and the resident agreed to follow it. This was a pleasing result. Good practice Joan, a resident in her 80s, was assessed by the ACAS team as needing a low-care accommodation placement. Joan did not want to move and, when the SRS demonstrated that they could provide the support needed, she was able to remain living at the SRS. This is a positive example of ‘ageing in place’. The ‘no alcohol’ rule now in place at both SRS, has been accepted by residents. Some residents who smoke continue to pose problems for other residents with incidents reported of residents aggressively demanding cigarettes or begging for cigarettes in the community. Abuse and neglect There were a number of incidents where residents demonstrated aggressive behaviour after returning home intoxicated. Accessing support for residents with drug and alcohol issues is difficult and the situation is often compounded by staff not having the training necessary to de-escalate these situations. Case study A young SRS resident was having a psychotic episode in the community. Police and ambulance services were called. The SRS staff were advised by the mental health facility (90 kilometres away) that there were no beds available. The ambulance service was not in a position to transport the resident and, when police became aware of the severity of the situation, the resident was transported to the police station in the same town as the mental health facility. Police were eventually able to get a bed for the resident at the mental health facility. After several weeks of treatment and medication changes, the resident returned to the SRS and is receiving the ongoing support of the mental health service and the SRS staff. This demonstrates how community services in rural regions are often stretched and the difficulty SRS staff have in managing residents who do not always receive the services they need. Community Visitors Annual Report 2012 107 Health Services Home-like environment Finances SAVVI funding continues to be a positive initiative for both SRS. A resident who wanted to manage his own finances was assisted to do so by staff at one SRS. He obtained a photo ID card and was then able to get his own bank keycard. This year, while the fresh fruit initiative continued for a further six months, the main focus was on supporting the SAVVI-eligible SRS to ‘get ready’ for the implementation of new Act. Ongoing maintenance issues at both SRS are regularly reported, though it was pleasing to note that a major kitchen refurbishment was completed at one SRS. Community Visitors would welcome greater support for residents’ independence and a broader range of activities such as the purchase of computers for use by residents. Safety The department finally funded the replacement of the fire safety alarm system in one SRS. However, Community Visitors still report a faulty alarm at the other SRS. Despite this, regular audits of the system by an independent auditor have found the system to be compliant. Community Visitors remain concerned that the intermittent non-emergency tripping of the fire system could lead to resident and staff complacency in a real emergency. Community Visitors regularly check the Emergency Evacuation Packs and have noted that, in some cases, resident lists are incorrect. Activities It is pleasing to note the variety of activities available to residents at the two SRS. A number of residents at one SRS have enjoyed participating in a local Mental Illness Fellowship program of weekly activities. Some residents have also enjoyed short holiday breaks organised by the same organisation. Both SRS have cultivated vegetable gardens and also have chickens. One SRS has a community worker who attends weekly to engage with and encourage this resident activity. One SRS has a weekly swimming and gym program for the residents. A local community organisation has donated fishing rods and stools and fishing excursions will occur when the weather is fine and staff are available. The other SRS has started a regular residents’ meeting to engage with residents and gauge their interest in activities. Community Visitors regard this as a positive initiative. 108 There was one incident where a resident was evicted for failing to pay accommodation fees. Recognition of Community Visitor role It is important that SRS staff understand that Community Visitors are volunteers with specific responsibilities under the Act aimed at supporting SRS residents to lead more engaged and rewarding lives. There were a series of difficult interactions between staff at one SRS and Community Visitors, which at least in one instance, became open hostility. This led the program to work creatively with the department to address these issues. A ‘round table’ facilitated by an experienced mediator took place and allowed SRS Program staff and Community Visitors to discuss perceptions of the others’ role and work through difficult issues. This very productive session improved the relationships and engagement between the Community Visitor and SRS Program. Loddon Mallee Region Eight Community Visitors in the Loddon Mallee Region undertook 55 visits to seven SRS. Two of the visits were requested by a resident or others. The region has four pension-level and three pension-plus SRS. Community Visitors have significantly increased their number of visits within the region and should be congratulated for their persistent hard work and dedication. Health and personal care Care plans in most pension-level SRS are basic and fail to capture the full care-needs of residents. Incident reporting continues to be of concern. One pension-level SRS had an incident report book that was 14 years old and a pension-plus SRS had one that was nine years old. One proprietor said that she kept her own private incident report book. Generally, incident reports contained very little information, with little or no follow-up. Community Visitors look forward to the incident reporting requirements under the new Act, which come into effect at the beginning of the next reporting year. They anticipate that this will provide a wealth of information, which should lead to better protection for vulnerable residents. Community Visitors report an improvement in palliative care for affected residents who received regular visits from their doctor and palliative care nurses. The extra support and monitoring of pain management by staff is vital. Because pension-level SRS staff may not have palliative care qualifications to support residents in these situations, it is essential they receive training One concern reported is residents receiving palliative care in shared rooms. This situation impacts adversely on both the person receiving palliative care and their roommate. Case study Bronwyn is a relatively new SRS resident who previously received lifethreatening injuries, resulting in a lengthy recuperation. She was displaced from her home, has cognitive impairment and still suffers from intermittent headaches. Bronwyn had not found a friend in this SRS, even though there are a number of residents of a similar age. Bronwyn’s long-term goal is to apply for her own unit, so she can be more independent. She indicates that she does not want to be in an SRS for the rest of her life and has difficulty coping with the needs of some of the older residents in the SRS. With intensive assistance and appropriate support, Bronwyn should eventually be able to fulfil her goal of independent living. Dignity, privacy and choice Room-sharing often leads to difficult situations because of the disruptive behaviour of roommates. Residents can feel uncomfortable, offended and even depressed but have little choice because there are limited alternatives. Abuse and neglect An inappropriate mix of residents resulting in arguments, anger and abuse has led to a number of evictions. All residents have the right to live in peace and harmony and not be subjected to violent and anti-social behaviour. A new resident at a pensionlevel SRS complained that he could not sleep due to the constant disruption and noise of his roommate in the same small bedroom. Another resident, so disturbed by the behaviour of other residents, was evicted when they resorted to violence. At another pension-level SRS, a resident with mental health issues who had recently been discharged from a mental health facility was facing eviction because of their behavioural issues. Sadly, due to the lack of alternate accommodation, these residents can end up living without any support in a caravan park. The high incidence of resident falls and lack of appropriate monitoring of subsequent support and healthcare needs in both pension-level and pensionplus SRS, means that fall prevention guidelines are urgently needed. A resident at one pension-level SRS had fallen multiple times causing pain and bruising. After another fall, he was on life support in hospital for a lengthy period before moving to high-care accommodation. One pension-plus SRS reported eight resident falls in two months resulting in one resident breaking their hip and needing rehabilitation. Another resident at a pensionplus SRS fell down a ramp, was hospitalised and subsequently relocated to a nursing home. Community Visitors are now pleased to report that this proprietor is upgrading facilities to minimise the risk of resident falls. A pension-level SRS resident was recently attacked by a dog that was under the supervision of the proprietor. The resident suffered bruising and severe facial lacerations that required multiple stitches. A resident with a mental illness who resides at a pension-level SRS, was found wandering near a main highway. These instances raise concern about the level of monitoring SRS residents receive. Home-like environment Nutrition and the need for meat dishes to be offered to residents was again raised as a concern. In some pension-level SRS, processed and highfat food continues to dominate the menu. Some residents complained that they no longer receive a biscuit with their morning and afternoon tea. The lack of fruit supplied to residents is another issue carried over from the Community Visitors Annual Report 2010-2011. At one pension-level SRS, some residents complained they had not received fruit for two weeks. Residents should not have to wait for the SAVVI-funded fruit initiative to arrive before receiving daily servings of fruit, nor should they be restricted in the amount of fruit they wish to consume. It was pleasing that the fabric of one pension-level SRS had improved using SAVVI funding to provide amenities such as new lounge suites, dining settings or even clothes dryers. A fresh coat of paint to older buildings, and new carpet and tiling has brightened Community Visitors Annual Report 2012 109 Health Services up many areas. The creation of outdoor areas has proved very popular with the residents. On the other hand, it was disappointing that an outdoor billiard table (purchased with SAVVI funding and mentioned in the Community Visitors Annual Report 2010-2011) remains idle. It was disappointing that such a large amount of money was used for this purchase and this has not been of benefit to residents. The SRS should consider selling the billiard table and using the money more productively. Safety Community Visitors are disappointed with the lack of response of a proprietor after repeatedly reporting serious safety concerns at one pension-plus SRS where items, such as bed frames, are partially blocking the small passage that leads to the exit door. In an emergency, many residents would find evacuation difficult, particularly if they have limited mobility or use aids. This will continue to be raised with the department until it is satisfactorily resolved. Activities While residents at pension-plus SRS appear to have numerous and varied activities, residents at pension-level SRS continue to have less opportunity to engage in community and social activities. This is due to varying levels of commitments by proprietors. Good practice Management and staff at one pension-level SRS should be commended for their ongoing commitment to providing in-house activities like cooking and craft days as well as regular outings in conjunction with local agencies. The manager and staff also display a commitment to residents by accompanying them on outdoor and artistic activities. Community Visitors regularly find when visiting that many of the residents are out enjoying life in the community. Residents actively participated in fishing trips, football and other sports-related trips. Some residents formed their own competitive basketball team. Other activities included a holiday to Port Arlington and sightseeing trips on the Sorrento Ferry and the Drysdale train. Residents were also encouraged to enter a regional art competition and one resident won first prize with his ‘Portrait of Mum’. The residents maintain a floral garden which rambles over approximately half an acre and a productive kitchen garden which supplies fresh vegetables for their meals. 110 Finances At one pension-level SRS, only one resident is receiving regular statements from State Trustees Limited, with others having to ask for them. At another pension-level SRS, staff went out of their way to help a resident to complete forms received from the State Trustees Limited. A pension-level SRS resident complained he was paying more in rent than other residents. While the SRS explained that this related to the extra care he received, Community Visitors observations were to the contrary and they will continue to monitor this issue. If rents are increased due to increased pension payments, then this should be fully explained to residents to ensure they understand it. Concern has been expressed about the potential for the carbon tax to be used to justify rent increases, although the program has no found no evidence to substantiate this. Community Visitors intend to monitor this issue in the coming year. Information and complaint processes Residents have raised many issues and complaints with Community Visitors such as finances, fairness, equity, dignity and support. All of these issues were discussed with SRS staff or raised with the department as appropriate. Many of these issues remain unresolved despite the best efforts of the Community Visitors through the agreed protocol process. Community Visitors will continue to advocate for the rights and dignity of SRS residents. Recognition of Community Visitor role It is important that SRS staff understand that Community Visitors are volunteers with specific responsibilities under the Act aimed at supporting SRS residents to lead more engaged and rewarding lives. A number of challenges by SRS staff to Community Visitors training and authority, as well as open hostility in some instances, led the program to work creatively with the department to address these issues. A ‘round table’ facilitated by an experienced mediator took place and allowed SRS Program staff and Community Visitors to discuss perceptions of the others’ role and work through difficult issues. This very productive session improved the relationship and engagement between the Community Visitor and SRS Programs. Good practice Extensive changes have taken place under the new management of a very popular pension-plus SRS. A new upstairs wing caters for transitional care residents and can accommodate up to 22 residents. This area, completely separate from the SRS, offers services including speech therapy, case management, aged-care specific medical services and access to a geriatrician and physiotherapy. Recently built, features include a new office for the transitional care staff, a separate medication room (with a two-way mirror) and another room solely for storing care plans. A lift will be installed to replace the long ramps and there are future plans for a coffee shop and doctors’ surgery. SRS residents have access to the numerous and wide-ranging activities offered by a very diligent activities coordinator. North and West Metropolitan Region (North) Ten Community Visitors conducted 113 visits to 19 SRS in the North and West Metropolitan Region (North). The region has nine pension-level SRS and ten pension-plus SRS. Health and personal care It was noted that care plans and other resident support documentation was generally wellmaintained and up-to-date in the pension-plus SRS. However, some pension-level SRS continue to have out-of-date and unsigned care plans that are not accessible to Community Visitors or even staff. Community Visitors question how staff can support residents when they can neither access care plans or care plans are not reflective of the residents’ current situation. It is concerning that Community Visitors, empowered under the legislation, are denied access to care plans and other relevant documents simply because staff cannot locate them. Community Visitors also reported a lack of soap and towels in a bathroom of a pension-level SRS. This raised health and hygiene concerns for residents, however, it was quickly remedied. Abuse and neglect This year there were serious allegations of sexual assault in one pension-level SRS in the region. This matter was included in a report to the Minister as it raised a number of very concerning issues. Case study Carol, a pension-level SRS resident, was reported missing. A couple of hours later, she was brought back to the SRS by a taxi driver. Blood was found on her underwear and she was taken to the doctor. Carol disclosed to her doctor and an SRS manager that she had been sexually assaulted twice by two different people in the time that she was missing. She also alleged that the male SRS proprietor had previously sexually assaulted her. It was agreed these allegations should be reported to the police but it took two days for this to happen. Carol’s access to justice was compromised when the manager spoke to the female proprietor and then confronted the male proprietor. Carol had disclosed to SRS staff sexual assault allegations about the male proprietor a number of months earlier but nothing was done about it. Carol’s case manager, who had been contacted when she went missing, was very concerned about her state. This, and the fact that the SRS manager felt unsupported and unaware of how to handle the situation, led the case manager to contact OPA’s Advice Service. The Public Advocate visited the SRS with Community Visitors to assess the situation. She also met with the case manager and the department. The departmental response was slow and not as comprehensive as it could have been. Despite the best efforts, Carol remained living at this SRS for a further three weeks. However, it took considerably longer before she was housed closer to her family in another region. Police advised charges would be laid against the male proprietor, however, proceedings ceased when he died. Community Visitors were troubled by the fact that it took so long for staff to notice Carol’s absence and pondered whether Community Visitors Annual Report 2012 111 Health Services these assaults could have been avoided if her absence had been reported to police earlier. It was concerning that Carol did not have the support of an Independent Third Person (ITP) in her dealings with police. ITPs are specially trained OPA volunteers who support anyone with a mental illness or a cognitive impairment during a police interview. Home-like environment Community Visitors continue to support SAVVI funding and note the positive influence it has within the pension-level SRS. In particular, residents appreciate the fresh fruit initiative. Maintenance and housekeeping issues persist at some pension-level SRS with Community Visitors raising concerns about rubbish and clutter, mouldy showers and the serious safety issue of residents’ call buzzers not working. Also reported were lengthy delays to repair a severed phone line. A resident at a pension-plus SRS complained that he could not read due to poor lighting while, at a pension-level SRS, residents complained that they were cold as the heater was inoperable. While it was pleasing that they were promptly responded to, it was concerning that these issues were not dealt with prior to Community Visitors raising them. Concerns relating to meals and food storage continue to be reported, including unlabelled food stored in a freezer and boxes of rotten fruit being left on tables in a recreation area. At one pension-level SRS, there were not enough chairs at the dining tables for all residents, so some residents had their meals in their bedrooms, resting plates on their knees. While this has now been rectified, it should not have happened in the first place. Community Visitors encourage proprietors and staff to support their residents in a positive home-like environment. Safety Some pension-level SRS continue to have difficulty supporting residents with challenging behaviours and this significantly impacts on other residents and staff. At one pension-level SRS, a door thought to be too close to the stairs and creating a potential risk to the residents walking past, has been reported. While a sign has been affixed to the door, Community Visitors remain concerned about the risk to residents and wait on the results of further inquiries. 112 North and West Metropolitan Region (West) Six Community Visitors conducted 102 visits to 14 SRS in the North and West Metropolitan Region (West), of which one was requested by residents or another person. The region has eight pension-level SRS and six pension-plus SRS. One pension-plus SRS closed during the reporting year. Community Visitors are concerned about the lack of pension-level beds available in this region and often residents only choice in living arrangements is to relocate between SRS. Health and personal care Generally, all SRS have positive and inclusive resident care plans, with one exception at a pensionlevel SRS. At this SRS, Community Visitors noted little change from residents’ initial care plans, as well as the filing of resident care plans against the wrong room number in some cases. While residents at one SRS are well-groomed and dressed appropriately for the weather, at another pension-level SRS residents are regularly observed to be dirty and dishevelled. Community Visitors noted that, at some SRS, there is little variation in the menu and residents have few vegetable choices with one pension-level SRS reported as serving boiled cabbage every day. Community Visitors noted that a staff member at a pension-level SRS, who was not rostered on duty, was listed as having signed off on dispensing medication, when some medication had allegedly not been dispensed at all. Community Visitors reported with concern that staff at one pension-level appeared unavailable to support residents at night. A sign was placed on the staff sleep-over door stating ‘Do not knock between 7pm and 7am’. Despite staff advising that they were available should an emergency arise, this sign deterred residents from contacting them. Community Visitors regularly report residents in bed throughout the day with little motivation or alternative activities for them to be more engaged and involved in their community. Dignity, privacy and choice A pension-level SRS resident approached Community Visitors gravely concerned and fearful of being evicted. Despite Community Visitors raising this with the department, nothing could be done, as the eviction threat was not perceived to be imminent. Abuse and neglect Resident complexity and mix at pension-level SRS remains an ongoing concern. Community Visitors have reported concerns regarding violence, abuse and neglect of residents in some pension-level SRS. An increase in aggression and violence potentially stems from residents with drug and alcohol-related problems. Staff organise additional supports for residents where possible but, in many instances, the chaos continues and is only resolved when evictions occur or police are called to intervene. Some residents reported living in fear of other residents who have assaulted and caused injury to both residents and staff. One female SRS resident was fearful that her ex-partner would find her and kill her. Community Visitors were concerned that situations such as this could pose a security risk to other residents. The neighbour of an SRS tragically committed suicide on the adjoining property. Most of the SRS residents were aware of the situation and the department reported that Doutta Galla Community Health Services spoke to all staff and residents. Further counselling was offered but was not taken up by anyone. However, Community Visitors remain concerned about the long-term effect of this incident on residents. Residents also regularly complain about one staff member yelling at them and generally treating them discourteously. This behaviour is not acceptable as this SRS is their home. Community Visitors continue to express concerns with the inadequate and inconsistent reporting and recording of incidents at SRS. At one pension-level SRS, staff were unaware of an alleged assault the previous night and nothing had been documented nor mentioned at handover. In another case, the proprietor could not show Community Visitors any incident reports and was unaware of the procedure to record them. Violence and aggression could be minimised if staff reflected on potential triggers by reviewing incident reports. Community Visitors are eagerly awaiting the implementation of the incident reporting requirements in the new Act in the next reporting year. Home-like environment Community Visitors were impressed by the speed in which minor maintenance issues were rectified in all but one pension-level SRS where the flooring is lifting, large cracks are unrepaired and the toilet broken. When Community Visitors noted in a pension-level SRS that the shower in a resident’s room was not working, staff advised that residents could use another shower in the SRS. Good practice - A pension-plus SRS where the ‘plus’ is a little bit extra When a proprietor noticed a resident taking an interest in the garden, asking questions about various plants and how to bring the old garden back to life, he brought a range of gardening equipment and seeds. Soon plants were propagated, beds raised, lawns came to life, trees fruited, a passionfruit vine covered an old gazebo, and herbs and vegetables were in abundance. A pleasing aspect was the return of many native birds (lorikeets and rosellas) to the garden. Other residents now take an interest in and take pleasure from what happens outdoors. At three pension-level SRS, poor cleaning and hygiene standards are regularly reported. Examples include dirty floors, unwiped tables, black mould around condiment containers, dried food on the dining room walls, bathrooms with mould on showers, bed linen that appears to be infrequently changed, and cigarette butts left discarded around the SRS. While there has generally been an improvement in SRS menu planning and meals, some pensionlevel SRS residents complained they are frequently served dessert before the main meal, they are served stale rolls and broiled chops and boiled cabbage or savoury mince padded with rice and gravy. Community Visitors observed a resident, who had kitchen duties as part of their care plan activities, licking their fingers while making residents’ sandwiches for lunch. Community Visitors note that, every winter, one pension-level SRS is extremely cold. On one occasion, residents were observed wearing beanies and dressing gowns over their clothes to keep warm. Staff advised the heater was broken but had done nothing to organise its repair. This was reported to the department who undertook to ensure the repair occurred promptly and that interim measures were put in place to keep residents warm. Community Visitors Annual Report 2012 113 Health Services Safety Recognition of Community Visitor role Community Visitors at one pension-level SRS reported hazards such as passageway lights being inoperable and lifting and bubbling flooring. One resident cut his foot on exposed nails from a carpet tack strip that had been removed. Residents are entitled to walk safely about SRS. It is important SRS staff understand that Community Visitors are volunteers with specific responsibilities under the Act aimed at making the lives of people in SRS more supported, engaging and rewarding. In a few instances this year, Community Visitors have found themselves in situations where they were challenged or their authority questioned. This led the program to work creatively with the department to address these issues with very positive outcomes. Residents have complained to Community Visitors that boarders from houses on either side of the SRS have entered their rooms, uninvited and stolen money. Residents have requested locks for their bedrooms to protect their belongings but this has not occurred. While there are a number of SRS who have provided very positive and informative evacuation information for their guests and residents, one pension-level SRS failed to provide clear emergency evacuation procedures and information. A Community Visitor injured her hand after the door rail on the stove fell off. Her injured hand took a long time to heal. However, this was also not recorded as an incident by the SRS. Activities It is positive to report that the simple provision of an oval table at one pension-plus SRS encouraged residents who would normally have been sitting around the SRS in chairs to sit around the table reading and talking to each other. At a pension-level SRS, a room was converted into a library/games room and now residents socialise and play games like chess and bingo as well as create jigsaw puzzles. A resident of a pension-level SRS returned to her homeland for a holiday accompanied and supported by a SRS staff member. Her family were supportive of this occurring. Viability of the sector The closure of a pension-plus SRS reduced the available beds in this region by 44. The closure of this SRS not only impacts on the residents forced to find alternate accommodation but on members of the community who would prefer to reside in a low-care facility, rather than in aged care. Community Visitors are also concerned about the lack of pension-level beds available in this region. Resident mix and compatibility issues may mean that the only choice in living arrangements is to move from one SRS to another and back again or be homeless. 114 At one SRS, Community Visitors were constantly unable to observe and report issues. The proprietor verbally abused Community Visitors, aggressively demanding they leave the premises. Residents reported they were told not to talk to Community Visitors for fear of reprisals if they did. At another pension-level SRS, Community Visitors found a sign affixed to a cupboard stating that the department had advised the SRS that Community Visitors were authorised to view incident reports and care plans only and any further documentary requests should be referred to the region’s Authorised Officer. A ‘roundtable’ facilitated by an experienced mediator allowed SRS Program staff and Community Visitors to discuss their perceptions of each other’s role and work through difficult issues. This very productive session had a transformative effect on the relationships and engagement between the Community Visitor and SRS Programs. Southern Metropolitan Region Twenty-one Community Visitors conducted 286 visits to 51 SRS; of these, 14 visits were at the request of residents or other people.The region has 25 pension-level and 26 pension-plus SRS. Health and personal care Most pension-plus SRS continue to provide wellplanned and documented care plans to meet their residents’ support and care needs. However, some residents remain poorly catered for in this area. In one instance, Community Visitors were advised that a local doctor had concerns regarding the inadequate care provided to residents at a pensionlevel SRS so the female doctors in the practice did not visit the SRS due to safety concerns. Care plans continue to lack strategies to support residents with changing physical and medical needs. There is still concern regarding the inadequacy of referral information provided to SRS by various service providers. In the most serious instance, a resident was referred from an acute adult inpatient unit to an SRS late on a Friday afternoon, a time when the SRS has a low roster of staff and not a normal acceptance time. The resident left the SRS almost immediately but was not missed by SRS staff until the morning shift. By then, police had found the person dead in that area. There are concerns that some SRS are either not willing or are unable to provide the level of support that some residents require. A resident, who is diabetic, complained that her support needs were not being met in one SRS and in another, where more then a third of the residents are diabetic, some complained that the SRS did not accommodate their dietary needs. Community Visitors reviewed the menu plans and undertook to raise the resident’s concerns with the proprietor. Community Visitors reported, at times, SRS were being used inappropriately as respite facilities for people discharged from hospitals after major surgery. Often they arrive with no proper discharge notes or medication. Most SRS staff are ill-equipped to support and care for these people. Dignity, privacy and choice Many residents appear happy sharing bedrooms however, privacy and dignity of residents is sometimes compromised. This can become a major issue if incompatible residents have been placed together. Abuse and neglect Community Visitors have reported multiple incidents occurring at many pension-level SRS involving drug and alcohol abuse, inappropriate sexual behaviour, alleged rape and indecent exposure, violence, aggression and attempted suicide. This can lead to police and ambulance being regularly called to these SRS. Residents with mental health issues and complex behaviours, continue to create enormous problems for proprietors and other residents. Staff often do not have the skills or training to manage these issues. At one pension-level SRS, there is a volatile mix of residents with complex needs. While residents have expressed their concerns that the proprietor moves problematic residents between SRS they own, there are no other housing options for these residents and he is reluctant to evict them for fear of homelessness. A number of residents who have threatened and attempted suicide are served eviction notices or not allowed back to the SRS after hospitalisation. One incident report detailed an attempted suicide by a resident who lay in the middle of the road. The resident was transferred by ambulance to hospital and they did not return to the SRS. At another pension-level SRS, 16 incidents were recorded since the beginning of March 2012, with many relating to one resident with issues such as aggression, inappropriate behaviour, threats of suicide, self-harm and repeatedly calling ambulance services. The resident’s mental health caseworker is seeking a more appropriate placement for them, however, this is taking some time. Community Visitors in this region are concerned about the neglect implications of repeated eviction on some residents with complex and challenging behaviours. One of the most serious of these cases is reported in the statewide section of this report. Two residents were evicted twice in six months because of their abusive behaviours to other residents. Some SRS proprietors accept residents without prior knowledge or planning for their complex needs and then their only recourse is to complain about the lack of information and support from case managers or eviction. The timely and appropriate consideration of a prospective resident, their support and care needs and the ability of the SRS to provide safe, supportive and harmonious accommodation for them. Prospective residents and existing residents must be a priority. The ad hoc acceptance of residents has demonstrated an unacceptable risk to members of our community seeking accommodation and support in SRS. Home-like environment The meals and variety in menu is reported as very positive and, overall, residents appear to be very happy to have a roof over their head and three meals a day. Without this, many would potentially be homeless. Community Visitors report that, in some pensionlevel SRS, residents’ drug alcohol use severely impacts on the quality and home-like environment for other residents. All SRS have seen a marked increase in a younger demographic replacing the frail-aged population, and the mix can create a difficult living arrangement for all. This year, SAVVI was more focussed on SRS and staff ‘getting ready’ for the new Act. Funding was provided to the SAVVI-eligible SRS to replace staff so that they could undertake information and training sessions as well as provide managers and proprietors with opportunities to gain business and legal advice to support meeting the requirements of the new Act. The residents welcomed the continuation of the Fruit Initiative for a further six months. Community Visitors Annual Report 2012 115 Health Services Community Visitors also noted the activities of two SRS were included in the publication Stories from SAVVI which demonstrated the positive improvements in the viability of the SRS and provided residents with better support, new opportunities and a more home-like environment. ERMHA which was well-attended by the community and service providers. This provided positive recognition and support of individual skills and achievements and was a welcome opportunity for community inclusion for these residents. While Community Visitors reported an overall decrease in maintenance concerns, there were many reports relating to unclean bathrooms, mouldy showers and curtains, unhygienic toilets and cigarette butts strewn around the SRS. Good practice Safety Smoking in bedrooms continues to be a major concern and ‘no smoking’ policies are not enforced, evidenced by cigarette butts and ashtrays in residents’ bedrooms. Community Visitors noted with concern a number of fires reported to be caused by residents at some pension-level SRS. One resident of a pension-level SRS is alleged to have set some cloth material alight in a bucket in the laundry causing damage to a wall, cupboard and washing machine and a fire erupted when another left cigarette butts in an outside ashtray. A resident of one pension-level SRS deliberately set fire to bedding in his room, badly damaging it, and the room required total refurbishment. Police were involved when the attending fire officer deemed it a crime scene. The resident was evicted from the SRS and the proprietor expressed concern regarding lack of available assistance from various agencies to support the remaining residents. Of serious concern to residents is the risk to residents caused by inactive or inoperable fire alarms or fire panels and blocked fire exits. One SRS advises that there have been delays in the alarm company attending to rectify. One persistent alarm fault was rectified after a resident left the SRS. The department has advised that the local council and/or the fire brigade have authority in these matters and has attempted to liaise with these organisations. In the meantime, residents remain at risk of not being aware of an emergency situation because of a faulty/inoperable emergency alarm system. Activities Activities continue to be positive and engaging for residents with many external service providers providing options for those wishing to participate. At one pension-level SRS, staff place resident special-event photos and trophies in strategic locations around the SRS for all to see. At another SRS, staff held a resident art show supported by 116 Community Visitors were impressed when a local council installed gym equipment in a pension-level SRS and engaged a physiotherapist to ensure correct usage of the equipment by residents. This complements the weekly walking program the council has provided to residents for several years. Finances Concerns have been raised about the potential for the carbon tax to be used to justify rent increases although the program has no evidence to substantiate this. Community Visitors will monitor this issue. Viability of the sector Four pension-plus SRS and two pension-level SRS closed during the reporting year and one pensionplus SRS remains temporarily closed. Residents had been well cared for in two SRS and were distressed when they were slated for closure. These two SRS were placed in the hands of administrators and, although their approach was uncoordinated, all residents were placed by the required time. However, in one case, a resident was not given any choice of accommodation and was placed in a retirement village close to shops, contrary to her documented needs. This person had no family to assist with her placement. Later in the year, one pension-level SRS, where there were grave concerns for the safety of the residents, closed. The department managed the process for relocation and involved all service providers and Community Visitors. It was wellcoordinated and all residents were provided with more than one choice. Some residents had trial stays before they made their decision. Community Visitors monitored resident moves and visited them to ensure they were settling in and had appropriate support. Ten years ago there were over 83 SRS in the region, now there are only 51. This equates to an average loss of about 1150 beds for people in the region. It is very disappointing that so many SRS have closed within this reporting year. Facilities eligible to be visited by Community Visitors 2011-2012 Mental Health providers Disability Services providers Albury Wodonga Health ABLE Australia MacKillop Family Services Alfred Health AGAPI Care Mallee Family Care Inc. Austin Health Alkira Centre - Box Hill Inc. Marillac House Ballarat Health Annecto Inc. McCallum Disability Services Inc. Barwon Health Araluen Centre Melba Support Services Inc. Beechworth Health Services Ashcare Incorporated Melbourne City Mission Inc. Bendigo Health Asteria Inc Melton Shire Council – Melbacc Eastern Health Australian Community Support Organisation Inc. Merriwa Industries Australian Home Care Services Mirridong Services Inc. Autism Plus Transitional Accommodation MOIRA Inc. Bayley House Multiple Sclerosis Limited Forensicare Goulburn Valley Health La Trobe Valley Health Mercy Health and Aged Care Inc. Northern Health North Eastern Psychiatric Services NorthWestern Mental Health Peninsula Health Ramsay Health Services Royal Childrens’ Hospital Southern Health South West Health care St Vincent’s Health Stawell Regional Health Services West Wimmera Health Services Western Health Brighton & District Branch Helping Hand Association for Intellectually Disabled Inc. Carinya Society Colac – Otway Disability Accommodation Inc. Community Connections (Victoria) Limited Community Living and Respite Services Inc. ConnectGV Cooinda-Terang Inc. Department of Human Services EW Tipping Foundation Inc. Family Plus Inc. Focus Gateways Support Services Gellibrand Residential Services Inc. Golden City Support Services Inc. Healthscope Limited Independence Australia Ivanhoe Diamond Valley Community Centre Inc. Jesuit Social Services Limited Jewish Care (Victoria) Inc. Karingal Inc. Kirinari Community Services Inc. Knoxbrooke Inc. Kyeema Support Services Inc Life Without Barriers Lifestyle Solutions Maccro, Mansfield Adult Autistic Services Limited MIND Monkami Centre Inc. Murdoch Community Services Inc. Murray Human Services Inc. Nadrasca Nepean Centre for Physically Handicapped Inc. Northern Support Services for People with Disabilities Noweyung Limited Oakleigh Centre For Intellectually Disabled Citizens Inc. ONCALL Personnel & Training Plenty Valley Community Services Inc. Providing All Living Supports (PALS) SCOPE Victoria Ltd Southern Way Direct Care Services Inc. St John of God Services Victoria Statewide Autistic Services Inc. STAY – Residential Services Association Inc. Sunraysia Residential Services Inc. Uniting Care Harrison Community Services Victoria Deaf Society Villa Maria Society Wallara Australia Ltd Wesley Mission Victoria Wimmera Uniting Care Woodbine Inc. WRESACARE Inc. Yooralla Community Visitors Annual Report 2012 117 Health Services – Supported Residential Services Aaron Lodge Chatsworth Terrace Hambleton House Absalom Chesterfield Hampton House Acacia Gardens Chippendale Lodge Harrier Manor Acacia Place CooRondo Home SRS Hawthorn Grange Achmore Lodge Corandirk House Hawthorns Victoria Gardens Acland Grange Cottisfield Hazelwood Boronia Adare Supported Residential Care Covenant House Heathmont Lodge Airlie Supported Residential Service Cranhaven Lodge Hepburn House Alexandra Gardens Crofton House Highgrove Allbright Manor Crosbie House Hillview Lodge Alma House Crosbie Lodge Hollydale Lodge Alphington Lodge Crystal Manor Home Residential Care SRS Ascot House Darebin Lodge Homebush Hall Aveo Bentleigh Delany Manor Iris Grange Aveo The George Domain Gardens Iris Manor Bacchus Marsh – Browen Lee Doncaster Manor Janoak Villa Balmoral Dorset Lodge Jasmine Lodge Balwyn Manor Dunelm Kallara Residential Care Bamfield House Eagle Manor Karinya Bayview Waters Edwards Lodge Kiah Belair Gardens Elgar Home Kilara Retirement Home Bella Chara Eliza Lodge Kooralbyn Lodge Bellarine Court Eliza Park Kyneton Lodge Bellden Lodge Eltham Villa L’Abri Belmont Lodge Fermont Lodge Landora Care Bentleys Aged Care Ferntree Gardens Lilydale Lodge Berwick House Ferntree Manor Lisson Grove Manor Bignold Park Finchley Court Malon House Blue Dolphin on Bayside Footscray House Manalin House Blue Willows Residential Aged Care Galilee Mayfair Lodge Brighton Lodge Glenhaven Special Care Facility Meadowbrook Brooklea Glenhuntly Terrace Melton Willows Brooklyn House Glenville Lodge Mentone Gardens Browen Lee Home Glenwood Merriwa Grove Brunswick Lodge Golden Gate Lodge SRS Milford Hall Buninyong Lodge Gracedale Lodge Mont Albert Manor Burke Lodge Gracevale Grange Mornington House Burwood Lodge Gracevale Lodge Mt. Alexander Camberwell Manor Grandel Mt. Eliza Terraces Carrington Court Green Ridge Mulvra Casa Serena Greenhaven Mulvra Place Caulfield House Greenslopes Nepean Gardens Caulfield Manor Hamble Court SRS Oakern Lodge 118 Community Visitors 2011-2012 OPA acknowledges and thanks Community Visitors in all streams who stood up for the rights of people with a disability or a mental illness during the year. Parkland Close Aarons, Susan Campbell,Jacqui Pineview Residential Care Abraham, Chrys Caplan, Eve Princes Park Lodge Adair, Ian Carman, Rodney Queens Lodge Adams, Beverly Casbolt, Robert Queenscliff Lodge Ades, Deanne Castanelli, Ken Raynes Park Court Adler, Simon Cesal, Julie Reservoir Gardens Alcock, Jo Chapman, Chris Reservoir Lodge Alexander, Ian Cheary, Patricia Rosewood Downs Alexander,Priya Chesterman, John Rosewood Gardens Amato, Lynne Chew, Siok Royal Avenue Armitage, Shirley Chiang, Peter Sandy Lodge Armstrong,Mary Clarke, Warren Seaview House – Portland SRS Arnold, Lyn Coate, Bruce Sheridan Hall – Brighton Athan, Sophy (RC) Cohen, Jo Sheridan Hall – Caulfield Au, Karina Collins, Max (RC) Sheridan Hall – Malvern Ball, Joyce Cooper, Sandra (RC) Southcare Lodge Bamkin, John Cooze, Christine St James Terrace Bamkin, Sandra Costa, Cathy Stewart Lodge Barber, Alan Cox, Douglas Strabane Gardens Bardella, Ennio Cross, Patricia (RC) Sunnyhurst Gardens Barraclough, Georgina Beard, Jane Crutchfield, Graeme Cull, Robert Bechaz, Vicki Cunningham, Robyn (RC) Becket, Anne-Marie Bink, Judith Blythman, Marion (RC) Cunningham, Cheryl Sydenham Grace Templestowe Manor Templestowe Orchards Retirement Living The Connault The Heights The Manor (Glen Waverley) Themar Heights Trentleigh Lodge Vermont Gardens Veronica Gardens Viewbank House Viewmont Terrace Warranvale Warrina Retirement Village Wattle-Brae Supported Residential Service Waverley Hill SRS Bodenham, Margaret Boland, Dominic Bolton, Sally Borg, Myra Borg, Sam Bowen, John Bowman, Lisa (RC) Bragge, Kathleen (RC) Brown, Geoff Brown, Jeanise, (RC) Brown, Cassandra Brown, Susan Brubacher, Marc Bryan, Peter, D’ Cruze, Noosha Dalrymple, Doreen Daly, William Dann, Aideen Dare, Linda Davies, Aaron Davis, Valmai Davison, Pat Di Iorio, Sonia Dickinson, Graham Dimer, Christine Dimopoulos, Taz Dinner, Stephen Dixon, Sue Doherty, Diane Buckles, Ian (RC) Donohue, Diana Downing, Audrey (RC) Windermere Retirement Lodge Burbidge, Andrew Butler, Ronald Drayton, Robert Woodford Gables Byard, Tennille Duell, Liz Wynalla House Cahill, Pamela Dunbar, Jan Westley Garden Whitehaven Community Visitors Annual Report 2012 119 Dunn, Ian Harrison, Lee McCredden, Stan Phelan, Lyn Dunn, Rita Hart, John McElvaney, Carole Pindard, Charles Eames, Aileen Hawkins, Cliff McKenzie, Celia Pitre, Aldo (RC) Edge, Rosalie Haynes, Carol (RC) McLachlan, Deborah Poynter, Denise Evans,Don Henry, Jennifer McLeish, Heather Price, Nancy Faiman, Marilyn Hickerton, Anne McMillan, Pamela Raftis, Ric Fallshaw, Eveline Hickey, Bill McMinn, Brenda Rankin, Don Faulkner, Pamela Hickey, Robyn McPhee, Louise Rao, Sowmya Ferguson, David (RC) Hoffman, Ruth (RC) McVey, Hilary Rattray, Judy Ferreiro, Oscar Hutchens, Carolyn Michael, Neil Rea, June (RC) Firth, Trudy Iles, Paul Middleditch, Jan (RC) Reese, Harvey Firth, Helen Ingram, Chris (RC) Miles, Sandra Reeve, Keren Fletcher, Max Isaacs, Dallas Milgate, Shirley Reeves, Brian Flett, Lyn Jackson, Terri Miller, Toni Reid, Helen Fontana, Maureen (RC) Jacob, Beverley Miller, Catherine Rewell, Sue (RC) Fowkes, Bruce Jamieson, Rick Miragliotta, Frank Reyment, Joy Franc, Pauline Johnson, Lyn Morgan, Irene Richards, Fay (RC) Fraser, Paulette Jones, Catherine Morris, David Richardson, Dawn Fregon, Janis Jones, M. R. (Taffy) Morse, Carol Richardson, Norman Fung, Joseph Judkins, Lynda Munro, Marj (RC) Ring, Valerie Furey, Dale Juniper, Donald Munshey, Aneeka Roberts, Arthur Furtado, Gemma Kagan, Mariann Murray, Bruce Robinson, Ernest Fyffe, Allan Kelly, Glennyce Musgrave, Pauline (RC) Robinson, Margaret Galgut, Des Kiley, Brian Nankervis, Wal (RC) Roche, David Garland, Shona Kincade, Joan Newman, Paul Rosier, Mick Gauld, Peter Kincade-Sharkey, Katrina Newnham, Geoff Rubinstein, Linda Gilbertson, Edward Gleeson, Kathleen Gleeson, John King, Chris Nichol, Philippa Santowiak, Jeanette Lagerwey, Tineke Nicholson, Judi Scott, Bill Lawrence, David Nirens, Sherry Scrace, Raymond Libbis, Beverley Nutt, Edwina Seavers, Brenda Lippold, Margaret Nyikos, Paul Sedgewick, Amanda Lloyd, Vashti O’Brien, Michael Shafar, Robert Locke, Ken O’Connor, John Shallow, Lois Loxton, Kathleen (RC) O’Neil, Anne Shaw, Rosemary Luke, Graeme Owen, Barbara Shoebridge, Colin MacIntosh, Brian (RC) Pargetter, Faye Shoebridge, Margaret MacKenzie, Keith Park, Sonia Sholl, Eileen Parker, Dave (RC) Sivakumar, Puvana Greenwood, John Mai, Karin Manners, Kaye Marriott, Neville Parrott, Barbara Slattery, Mike Gribble, Alison Martin, Ross Patchett, Wendy Smith, Jenny Grigson, Alan Martin, Raymond Paterson, James (RC) Stafford, Meredith (RC) Groves, Judi Masovic, Bob Pearson, JP, Loes Stannard, Mary Guglielmino, Trish Maugey, Julian Peldys, Roman Steadman, Ray (RC) Gulizia, Donna May, Kathy (RC) Penning, Jillian Sterlus, Erlinda Hadley, Michael (RC) McBeath, Ian Penry-Williams, Peter Stewart, Evan Hammer, Garry McCann, Debra Penson, Barbara (RC) Stickland, Graham Harraway, Susan (RC) McCarthy, James Perry, Jennifer (RC) Stone, Loraine Pfeifer, Wendy Stoneman, Jenny Glenn, James (RC) Glover, Fiona Gold, Una Grace, Audrey Graham, Eddie Graham, Bernie Green, Avril Green, Ernie Green, Hannah Greenland, Linda 120 Acronymns Straney, Suzanne Sullivan, Bernadette Sullivan, Victor Taft, Leon Talati, Jayesh Tarrant, Paul Taylor, Will (RC) Taylor-Barnett, Pamela Terranova, Alessia Thimm, Margot Thomas, Kathryn Thompson, Mark Thornley, Jim (RC) Thurrowgood, Rosslyn (RC) Titman, Cherie Tribe, Helen Trompf, Julie Tune, Marion Tunstall, Merrill Turner, Gary Tyben, Lana Udorly, Michael Vallance, Helen Volk, Christine Wallace-Clancy, Lynne Warren, Elizabeth Waters, Betty Webster, Joy Wellwood, Marion (RC) Wescott, Christine White, Judith Wilde, Dianne BISTBehaviour Intervention Support Team BSP Behaviour Support Plan CALD Culturally and Linguistically Diverse CCU Community Care Unit CRF Community Rehabilitation Facility CSO Community Service Organisation DAS Disability Accommodation Service DH Department of Health DHS Department of Human Services ECT Electroconvulsive Therapy ED Emergency Department HACSUHealth and Community Services Union HCA Housing Choices Australia HDU High Dependency Unit ISP Individual Support Package KRS Kew Residential Services LGA Local Government Area OPA Office of the Public Advocate OSP Office of the Senior Practitioner MHRB Mental Health Review Board NDS National Disability Services PARC Prevention and Recovery Care PCAS Person Centred Active Support PCP person-centred plan PRS Plenty Residential Services SAVVISupporting Accommodation for Vulnerable Victorians Initiative SECU Secure Extended Care Unit SRS Supported Residential Services VDDS Victorian Dual Disabilities Services Williams, Carole Wilson, Carolynne Winter, Sheila (RC) Woodrow, Rhonda Woollan, Ted Wraith, Junia Wright, Julie Wright, Dawn Wyse, Trudy Zammit, Lewis Zammit, Susan (RC) - Regional Convenor Community Visitors Annual Report 2012 121 Office of the Public Advocate Level 1, 204 Lygon Street, Carlton, 3053. 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