N E w S L E T T E R Issue 7 Every moment matters... An Taoiseach meets with Galway Hospice Representatives An Taoiseach, Enda Kenny TD, recently met with representatives of Galway Hospice following their meeting with the Minister for Health, Dr James Reilly earlier that day. The meetings were held to discuss the serious financial challenges facing Galway Hospice, and the need to put additional services and facilities in place to meet the ever-increasing demand for hospice services. Proposals are being considered and further discussions will take place over the coming months. The meetings were positive and constructive towards achieving a resolution of the issues. An Taoiseach came to Galway Hospice last November to visit Hospice Board Member John Cunningham, who was an inpatient of the hospice at the time. During that visit, Mr Cunningham raised with An Taoiseach the perilous funding situation of Galway Hospice, and the urgency of resolving historic funding deficits so that the service could develop to meet the ever-increasing demands. When Mr Cunningham died in February 2012, An Taoiseach gave a public commitment that he would honour the dying wishes of his friend. Photographed after the meeting in Leinster House are (l-r): Sean O’Healy, Chief Executive of Galway Hospice; Dr Ita Harnett, Consultant in Palliative Medicine at Galway Hospice; An Taoiseach, Enda Kenny TD; Joe Connolly, Patron and Board Member of Galway Hospice; and Galway West TD Brian Walsh, who arranged the meeting. Galway Hospice Foundation, Renmore, Galway, Ireland Tel: 091 - 770868 Fax: 091 - 752064 email: [email protected] Web: www.galwayhospice.ie An update from the Chief Executive The past year has been a very challenging but yet exciting time at Galway Hospice. On the positive side, we continue to receive huge support from the people of Galway. Despite the recession, our fundraising income was only marginally down last year on the previous year. This was immensely important, because the demand for our services increased significantly. Last year, we cared for the highest number of patients ever in our Inpatient Unit and through our Home Care service. Because of the unrelenting demand, in June of this year we published a Discussion Paper in which we outlined an ambitious proposal for an “interim” enhancement of services at Galway Hospice, to include 6 additional inpatient beds, and improved Day Care and outpatient facilities. This would be achieved through a modest “add on” to our existing building in Renmore. Long-term, we plan to relocate to a larger site so that we can provide the necessary 26 beds and have space to expand for future requirements. Discussions on both the interim and long-term plans are ongoing with HSE and at a senior political level. A recent very positive development has been the approval of an additional Consultant in Palliative Medicine who will be based at Galway Hospice but who will also provide services at University Hospital Galway and Portiuncula Hospital Ballinasloe. This is part of a strategic plan to improve the integration of services across the county, and underpins the proposed service enhancements at Galway Hospice described above. Linkages with University Hospital Galway have been strengthened and there is a new focus on ensuring that the appropriate care is provided in the appropriate location. Our drive for the highest standards in service delivery continues. Having achieved two world-class standards in 2009 (CHKS accreditation and ISO 9001:2008 certification) we are undergoing a taoiseach visits hospice An Taoiseach, Enda Kenny on a visit to Galway Hospice pictured with (left) Mary Thornton, Health Care Assistant and (right) Rose O’Donnell, Staff Nurse during a private visit to Galway Hospice. full re-inspection this autumn. The commitment of our staff to the quality process and to external audit reflects their passion for ensuring that our patients receive the very best care that can be provided, insofar as is humanly possible. I am immensely grateful to this wonderful team of staff and volunteers who, day after day, provide an incredibly dedicated and compassionate service, despite the staffing and funding challenges that impact considerably on our daily work. One of the biggest challenges facing us is the continuing reduction in HSE funding, at a time when demand for our services continues to increase. In fact, this year we have to part-fund our Inpatient services by up to €200,000, simply to avoid closing beds. This is in addition to the €1.5 million we have to raise every year to fund our Home Care and Day Care services. We would be very discouraged, were it not for the strong political support we have received this past year at a very senior level, and a personal public undertaking by An Taoiseach to ensure that our funding issues are resolved. This Newsletter, once again, includes testimonies from the families of patients, and highlights the vast array of events that are held to fundraise for Galway Hospice. There are amazing groups and people out there who tirelessly organise annual events, or who zealously promote our Weekly Draw, raising very considerable amounts over the years. Others organise individual once-off events, some large, some small, all of which contribute to a wonderful tapestry of public gratitude and affection for what we do. Not forgetting the many volunteers who come to the hospice and perform a myriad of tasks, quietly and unassumingly. We never cease to be amazed at the generosity and goodwill of all these people, serving others through their selfless giving to Galway Hospice. To conclude, we draw our strength from the support we receive from the people of Galway and from the many verbal and written accolades we receive from patients and their families. There are no words to encapsulate what this means to us. I hope that our simple “thank you” will suffice. Art for Hospice Sean O’Healy The Kenny Gallery made an ‘Art for Hospice’ appeal to both local and national artists. The aim of the appeal was to gather original pieces of art to adorn the walls of the Inpatient Unit. An eclectic mix of almost 80 pieces was donated - further enhancing the ‘home from home’ atmosphere that prevails in the Hospice. Galway Hospice is very grateful to Kennys for this initiative and especially to those artists who contributed original works. Conor Kenny of the Kenny Gallery (pictured right) presents Michael Craig of Galway Hospice with one of the ‘Art for Hospice’ original paintings. i Did you know that there is a Galway Hospice Issue 6 Weekly Draw that costs just €1.27 per week to join? Kilimanjaro Climb Well done to Darragh Bailey who presented Orla Feeney (Galway Hospice) with a cheque for €4,000 which he raised through his successful climb of Mount Kilimanjaro in aid of Galway Hospice. Connemarathon in memory of patsy ward R.i.p. Michelle Kelly and her friends Fiona and Christian took part in the Connemarathon in aid of Galway Hospice and in memory of Patsy Ward (RIP). The athletic trio raised a total of €1610 through the event, which they donated to Galway Hospice. Pictured at the cheque presentation are (l-r): Michelle Kelly, Fiona Byrnes, Orla Feeney (Galway Hospice) and Christian Kelly. Launch of Galway Memorial Walk 2012 Pictured at the launch of the 2012 Memorial Walk in aid of Galway Hospice are L-R Sean O Healy, CEO of Galway Hospice and Mayor of Galway Cllr. Terry O’ Flaherty with media sponsors Keith Finnegan of Galway Bay-FM and Dave O’Connell, Editor, Tribune Group Newspapers. Gort Lions Club Well done to the members of Gort Lions Club who raised €2,000 through a Table Quiz, held in Sullivan’s Hotel, Gort. Pictured at the cheque presentation are (l-r): Paddy O’Grady, John Hansberry, Mary Carey, Nell Giblin (President of Gort Lions Club), Sadie McInerney, Emer Molloy (Galway Hospice), Gerry O’Shaughnessy and Frank McDermott. Crowe’s Bar A night of music and entertainment was held in Crowe’s Bar on Easter Sunday last in memory of Absent Friends, with €5373.70 being raised for the Galway Hospice! The Galway Swing Dancers and Irish dancer Colm Connelly provided the entertainment, along with singers Jennifer Flaherty, Geraldine Fahy, and Tina Turner AKA Michelle Chevers. Pictured at the cheque presentation are (l-r): Cllr. Ollie Crowe, Bernie Walsh, Caroline Whyte (Boots Pharmacy), Michael Craig (Galway Hospice) and DJ Lawrence Keleghan. 3 Ballyglunin Races The Ballyglunin Races committee have done it again!!!! The event, which has been running every year since 2003, has become established as one of the biggest events of its kind in Ireland and each year proves to be a very enjoyable day out for all the family. Pictured at the presentation of the cheque for €10,200 to Galway Hospice from this year’s event are: Front Row: Bernie Lambert, Mai Loughlin, Orla Feeney (Galway Hospice), Mattie Ryan, Sharon Gannon, Mairead Kelly. Middle Row: Mattie Loughlin, Francis Connolly, Eugene Whelan, Paddy Igoe, Mick Davin. Back Row: P.J. Connolly, Paddy Joe Joyce, Aidan Loughlin, Kevin Tarpey, Paddy Igoe and Thomas Ruane. Athenry Golf Am AM Many thanks to the organisers of the Golf Am Am which took place in Athenry Golf Club in aid of Galway Hospice. Despite the bad weather, the event proved to be a huge success, raising €6,700 for Galway Hospice. Pictured at the cheque presentation are (l-r): Pat O’Keeffe, Mixie Donoghue (Athenry Golf Club Captain), Mary Tierney (Galway Hospice), John Marley, Julie O’Toole and Eileen Clarke (Clarke’s of Corrandulla). Absent from the photograph are Michael Devaney and John Lardner who also contributed to organising this event. Pat O’Keeffe, John Marley and Michael Devaney are Volunteers at Galway Hospice. Annaghdown 25th Annual Cycle The 25th Annaghdown Annual Cycle was held once again in aid of Galway Hospice. The event was a huge success with 80 cyclists and 20 extra people providing transport and traffic control. A cheque for €20,720 was handed over to the Galway Hospice at a presentation night in Regans of Clonboo on Friday 15th June 2012. Pictured are committee members (l-r): Agnes Fox, Sean Tully, Eileen Regan, Breda King (Galway Hospice) and Winnie Farragher with the plaque presented to them by Galway Hospice for their fundraising efforts. Connemara Loop-A-Thon Well done to Leo Mansfield and the organisers of the Connemara Loop-A-Thon event which raised €3,500 for Galway Hospice. The Loop-A-Thon took place on New Year’s Eve 2011 and involved participants running or walking 5.6km. Pictured at the cheque presentation are (l-r): Event Mascot ‘Conn O’Mara’, Leo Mansfield, Siobhan Stoney, Agnes Stokes (representing Galway Hospice), Caitriona O’Toole, Brian Hughes, Michelle Hughes and Dave Beecher. 4 Marks & Spencer Well done to Marks and Spencer (M&S) who organised a collection in aid of Galway Hospice, raising €1403.79 in the process! Pictured is Shaun Burke of M&S presenting the cheque to Michael Craig of Galway Hospice. i The average length of stay in the Galway Hospice Issue 6 Inpatient Unit was 16.5 days in 2011. The (Male!) Nurse’s PerspectivE... Ten years ago I joined the Galway Hospice Foundation, following a move back from the ‘hustle and bustle’ of London to start a new life with my partner in the West of Ireland. I trained as a nurse in the U.K. with a background in Oncology, however, my instinct and personal philosophy would direct me towards Palliative Care. Essentially an approach with the emphasis on quality of life for patients and their families, Palliative Care aims to prevent and relieve suffering in those with a serious and often life-threatening illness. While there may be physical symptoms like pain and nausea to address, there is equal significance put on psychosocial and spiritual issues. It is under this umbrella of Palliative Care that the medical, nursing and therapeutic ethos of Galway Hospice is practiced. programme of care designed around that person and their family. Fortunately in Ireland we live in a society where the essence of family is still so important. In our profession the use of the word ’family’ can be wide-ranging. For example it could mean that the patient is under the loving care of staff in a Residential or Nursing Home. In other cases, ‘family’ might comprise a solitary loyal friend, or even a beloved pet. Individually, as a Clinical Nurse Specialist, I do hundreds of home visits each year. As the only male nurse on the team, I suppose it is inevitable that when people meet me for the first time, it can challenge the image they may have had of the ‘Hospice Nurse’. I’ve had serious convincing to do over the years that I wasn’t the oil delivery man, the plumber, the insurance salesman, and at one point I spent a good ten minutes in a farmyard pleading for someone to believe that I wasn’t the A.I. man! It never fails to amaze me how Galway Hospice has such a place in the hearts and minds of so many people. Although established from humble beginnings and predominantly with the support of the people of Galway and the West of Ireland, it has developed into a highly specialized, internationally Although traditionally seen as a service that deals accredited institution. Despite this, the Home Care predominantly with the effects of cancer, our role diversifies Department is still run solely on charitable donations. It is, to other illnesses that may be advanced or life-threatening. and has been, a great place to work. Collectively, our aim here This could include illnesses like Motor at the Hospice is to have a positive and lifeI meet extraordinary affirming effect on those for whom we care. Neuron Disease, Dementia and Cardiac people doing this job. Failure. It is a service that is available to People who display those of any age. I meet extraordinary people doing this job. amazing strength. People People who display amazing strength. People who are vulnerable and who are vulnerable and sometimes very ill, I work as a Clinical Nurse Specialist in sometimes very ill, but but who can channel immense adversity the Home Care (Hospice at Home) who can channel Department at Galway Hospice. The into profound courage. I meet babies who immense adversity into aren’t old enough to know their own name, team includes a Consultant in Palliative profound courage. Medicine, Doctors, Clinical Nurse yet have inspired more people in their short Specialists, Social Workers, Therapists lives than most of us could dream of doing in and Pastoral Care. As Clinical Nurse Specialists we are ten lifetimes. I meet men and women with the life experience required to have advanced training and qualifications, and are of many, many decades, who will not let the small matter of a independently accredited. non-curative illness get in their way of living a life. I meet the families of these extraordinary people who give selflessly of As part of my role at Galway Hospice, I often find myself themselves. In sporting terms, I meet the kind of people you dispelling the myth of what Hospice Home Care signifies. would want at your back. In a world where words like ‘hero’ A referral to us does not mean that all hope is lost. It does are used loosely, I’m privileged to meet the real deal as part of not mean that the pleasures of daily life will stop. In fact it is my working life. our aim to empower the patient to live at home with dignity, while being able to access a professional and compassionate Kevin Finnegan, Clinical Nurse Specialist The Drive for 10,000! The Galway Hospice Weekly Draw has been the bedrock of our fundraising since the Draw started in 1988. Currently there are close on 4000 members contributing every week, providing a steady flow of funding that is so important for service delivery. With the everincreasing demand for our services, we are planning to expand our Home Care and Day Care services, and provide six more inpatient beds. This is an ambitious short-term plan, given the economic challenges we all face, but it can be achieved. So, later this year we will be launching “the Drive for 10,000”, a campaign across every parish in County Galway to achieve 10,000 members in our Weekly Draw. This would make a huge difference in helping us to provide the level of services that the people of Galway need, and deserve. For as little as €1.27 per week, every additional Membership of the Draw will help us to meet that need, help us to make a difference in the lives of those for whom “every moment matters”. 5 Forging ahead Galway Hospice was presented with a cheque for €11,000 by the Forge Pub Moylough and Mountbellew Vintage Club. The funds were raised through the raffle of a 1966 Morris Minor car, which was donated by the late Paddy Conneelly (RIP). The members of the Mountbellew Vintage Club spent approximately 200 hours meticulously restoring the car to its former glory. The car (which was the main attraction of the night of the presentation!) still has its original vehicle user manual and tax book and looks great despite its 45 year vintage status. Pictured are (l-r): PJ Glynn, Orla Feeney (Galway Hospice), Veronica Kelly (The Forge Pub) and Danny Glynn, with the Morris Minor Car. Nestors Supervalu Ballybane The staff of Nestors Supervalu Ballybane organised a Sponsored Walk and a Bag Packing event in aid of Galway Hospice, which raised €1,165. Pictured at the cheque presentation are (l-r): Barbara Haredinska, Fiona McKinnon (Galway Hospice), Charlie Devlin, James Houlihan, Una Greaney, Stephanie Moran and Kieran Greaney. Regina Luft’s Coffee Morning Regina Luft held a Coffee Morning for Galway Hospice at her home in Oranmore, Galway. Regina’s event was well supported by her many friends and work colleagues. The event raised €760 for Galway Hospice, which is very much appreciated! Pictured (l-r) are: Olive Fahy, Michelle Henahan, Regina Luft and Cathy Keating, enjoying their Bewley’s Coffee on the day. If you are interested in hosting a Coffee Morning contact the fundraising office at Galway Hospice for more details. Kilrickle 5k Walk The people of Kilrickle and surrounding areas turned out in large numbers to be part of a cheque presentation following their very successful 5k Walk, which was held in aid of Galway Hospice. The Walk took place on May Day, Sunday 1st May 2011, and proved to be a huge success, raising the very impressive total of €7263.77. Pictured at the cheque presentation are organisers Carmel Lawlor and Ita Daly, with Colette Dodd of Galway Hospice (centre). 6 i The number of admissions to the Galway Hospice Issue 6 Inpatient Unit in 2011 was 230. Remembering Eithne Mulvihill bright, airy flower-filled space greeted me with a smiling, welcoming receptionist. I was taken down to Eithne’s room where I found her quite content. Having been in total denial of her condition, it was as though she had finally become resigned to her situation. The staff were so attentive to her every need – the ethos of the hospice by Joan Mulvihill on behalf of the seemed to be totally patient and family oriented. Nothing was too Mulvihill Family much trouble. All her needs, physical, emotional and spiritual were fully met at all times. The staff were always on hand to answer any ur sister Eithne was the fifth of seven children born to our questions we had and to allay our fears, while at the same time being parents in Athlone. She came to Galway in her early twenties, totally open regarding the inevitable outcome. We had their support loved the city, especially the Salthill area and worked diligently until and guidance at all times, day or night. They listened, discussed and she took early retirement in her fifties. She was an intensely private kept us fully informed on a daily basis. The kitchen was available to us person, fiercely independent, stubborn on occasions, a loyal, gentle for sustenance and the reviving cup of tea or coffee on a 24-hour basis. and loving friend with a wicked sense of humour, trustworthy and The family visited regularly and were always welcomed with a friendly very discreet. Walking was her passion; every day, no matter what word. Eithne’s condition deteriorated fairly rapidly and eventually she the weather brought, sometimes covering between 12 and 18 miles. was moved into a single room where we could spend the remaining She loved the outdoors, the sea and the sun and, once she discovered few days of her life with her. Words fail me in trying to describe those Lanzarote, an annual trip there was essential! precious days. The compassion and support the family received was quite astonishing; one would imagine we were the only family going through the trauma of a loved one’s passing. The staff were constantly In November 2005 I had a call from my brother informing me checking on Eithne and reassuring her with gentle words. As she that Eithne had collapsed in her apartment and had been taken by slipped into a coma all the family sat with her for several hours at ambulance to UCHG where she was seriously ill. She had been a time. I sat beside her bed all through her last night. Nurses and suffering from headaches for some time. It transpired, much later, doctors came in to check on her regularly as her life slowly drew to that she had been staggering and falling for some time but hadn’t a close. As dawn broke and she drew her last breath, a nurse was mentioned those facts to anyone! checking her pulse and then turned to me and said “she is gone” – it was so peaceful that I actually After a few days the dreaded news was it was so peaceful that I actually didn’t didn’t notice her drift away. She died exactly broken to us – Eithne had an inoperable tumour on her lung and there was nothing notice her drift away. three months after her collapse. The loving care I that could be done. After Christmas, she received for the following few hours is something had radiotherapy on the tumour, following which it was time to I shall never forget – each of the staff in turn came in to console and discharge her from UCHG. But where would she get the care she sympathise with me and offered all the help I needed. needed? It was a desperate time for all the family; how would we look after our sister? Imagine our relief and gratitude when Eithne agreed Our family were so fortunate to have the dedicated team in the Galway Hospice to give our sister the exceptional care she received, so to the suggestion of the palliative care team at UCHG to go to the fortunate to have such precious memories of her last days, so fortunate hospice as soon as there was a bed for her. that she was enabled to have a peaceful, pain free and dignified death. Two days later Eithne was admitted to Galway Hospice. Not having We will be forever grateful to all the staff – we can never thank them had any previous experience of hospice care, I had imagined it would enough. They were there in our time of greatest need. The people of be a sad, sombre place. On the contrary what I experienced on Galway are so very lucky to have the services of the Galway Hospice. entering the front door was a sense of peace and tranquility. A O Why not register now to host a coffee morning in aid of Galway Hospice? www.galwayhospice.ie 7 remembering galway hospice Board Member John Cunningham Fond Memories of Board Member John Cunningham, who died on 7th February 2012 at Galway Hospice. This photo was taken on 2nd October 2010 during the visit of the then Taoiseach, Brian Cowen, to Galway Hospice. Little did we know at that time that the next Taoiseach, Enda Kenny, would be visiting John as a hospice patient just a year later. John was a tremendous ally of Galway Hospice and his legacy is only beginning to unfold. May he rest in peace. Monivea Centenary Celebrations Many thanks to the committee members who organised the 1911 Monivea Centenary Celebration, which raised €6,023 for Galway Hospice. Pictured at the cheque presentation are (l-r): Jackie Conneely, Michael Connelly, Orla Feeney (Galway Hospice), Joe Kelly, John Flaherty, Mal Dolly and Noel Flaherty. 40th Anniversary celebrations Michael and Maura O’Grady celebrated their 40th Wedding Anniversary and raised €2,500 for Galway Hospice by requesting family and friends to donate to Galway Hospice in lieu of anniversary gifts. Pictured at the cheque presentation are (l-r): Maura O’Grady, Emer Molloy (Galway Hospice) and Michael O’Grady. Abbeyknockmoy Set Dancing Many thanks to the Abbeyknockmoy “Wednesday Night Set Dancing Club” who held a Ceili in the Abbey Inn, Abbeyknockmoy in aid of the Galway Hospice. Geraldine Healy along with members of the ‘Wednesday Night Set Dancing Club’ presented Mary Tierney (Galway Hospice) with the proceeds from their event. Cappataggle Arts and Drama Group Many thanks to the Cappataggle Arts and Drama Group, who presented Galway Hospice with a cheque for €700.00 which they raised through staging a play in aid of Galway Hospice. 8 i There were 1259 attendances by patients to the Issue 6 Hospice Day Care Centre in 2011. Margaret Ridge memorial walk Once again the annual Margaret Ridge Memorial Walk proved to be a huge success, raising €8,704 this year for Galway Hospice. This walk has been taking place since 2002 and to date, it has raised a total figure of €100,560.73 for Galway Hospice. Pictured at the cheque presentation are (l-r): Louis Ridge, Maureen O’Sullivan, Coleman Cooke, Margaret Forde (Galway Hospice) and Mary Ann O’Sullivan. Galway Golf Club Am-Am Auction A Golf AmAm was held in Galway Golf Club in aid of Galway Hospice . Pictured is Joe Lyons (www. golfwithamember.com) presenting a cheque for €3995 to Michael Craig of Galway Hospice. Group 4S walk in memory of Pat Moran Many thanks to the colleagues, friends and family of Pat Moran who walked in memory of Pat, a former employee of G4S, in the Galway Memorial Walk and raised €5864 in the process. Pictured at the cheque presentation to Michael Craig (centre, front row) are: Front row (l-r): Pat’s family – Nathan, Justin, Mary (Pat’s wife), Colin & Shona. Back Row (l-r): Frank Cassidy, Peter Glennon, Eugene Nolan, Sean Beegan, Angus McDonagh & Neville de Lappe. Carna Bay Hotel New York marathon run Mary Cloherty (right) of Carna Bay Hotel presented Mary Tierney of Galway Hospice with a cheque for €1408.36 which was raised by Mary’s two sons Michael and Paraic, who participated in the New York City Marathon on behalf of Carna Bay Hotel, in aid of Galway Hospice. 9 Croagh Patrick Fancy Dress Climb Well done to all the climbers who took part in the fancy dress Croagh Patrick Climb in memory of Susie Downey Grealy. Susie’s family and friends donated the proceeds of this event jointly to Galway Hospice and Cancer Care West. Pictured are Rosie and Olivia Downey presenting a cheque for €4,235 to Orla Feeney of Galway Hospice, and some of the participants on the day pictured in the mist at the top of Croagh Patrick. GENBAND Ireland Ltd Staff of Genband Ireland Ltd organised and took part in a sponsored walk in aid of Galway Hospice. The walk was held on June 1st as part of Genband’s Global Day of Service and raised €2770 for Galway Hospice. flora mini marathon Galway Hospice was again the chosen charity for the Burke Ladies, who participated in the 2012 Flora Women’s Mini Marathon in aid of Galway Hospice. These fantastic ladies are huge supporters of Galway Hospice each year through their participation in this mini marathon and yet again this year, their efforts proved successful, raising €2,110 in the process. Pictured at the cheque presentation are (l-r): Joan Burke, Marie Burke, Sarah Burke and Bridie Fitzgerald (Galway Hospice). Cookstown Textile Recyclers Clothes recycling has proven to be a runaway fundraising success for Galway Hospice, with receipt of a further cheque for €22,149 from Cookstown Textile Recyclers. This was raised from clothes recycling in 2011. Textile Recycling Banks operate in association with Galway County Council and a list of sites can be found on our website www.galwayhospice.ie Pictured are Billy Conway (Cookstown Textile Recyclers) presenting the 2011 proceeds to Fiona McKinnon (Galway Hospice). 10 i The Galway Hospice Home Care Nursing team Issue 6 cared for 454 patients in 2011. MYLES KING When we discovered that Myles (my husband) had been diagnosed with a Brain Tumour our whole world seemed to collapse. A very insignificant glitch in his speech during a drive home from Galway on a lovely sunny day in June 2010 prompted us to go straightaway to his G.P. who referred him for a scan, which showed the presence of a brain tumour. Brain surgery in Beaumont revealed a GBM grade 4 tumour and Myles returned to UHG where a programme of combined radiation and chemotherapy was set up. Traversing back and over from UHG for radiation as an outpatient, and having chemotherapy at home etc. was scary. Parking at UHG was difficult and the support package provided was not flexible enough to relieve fatigue and stress. If only Myles had been referred direct to the hospice team ……. UHG and helped an awful lot with adjusting medication etc. On another occasion I got a bit worried and contacted the Hospice – it was on a Sunday, at 10.a.m. The Home Care Nurse gave me some advice and, as she was going to Clifden to visit another patient, she called in to Myles on her way back that evening at about 6.00pm. That visit helped us such a lot. I felt bad knowing she was on the road all day and on a Sunday! It is a shame to think that the only funding the Home Care Nurses and Care staff receive is from collecting on the streets of Galway, from any proceeds from the sale of Galway Hospice Christmas Cards, and other fundraising events. Early in February 2011, while Myles was an inpatient at the hospice, we attended the Neurologist in UHG to get Myles’ medication adjusted to correct his sleep patterns. The Hospice Consultant and her doctors kept in constant contact with the Consultant Neurologist UHG to manage and review these new adjustments. Once his medications were adjusted, Myles hoped to return home again. I called in to Myles at the hospice before lunch one day to find that he had slept in and was enjoying his breakfast! He was scraping the last morsels of a bowl of porridge (his favourite food) and had a plate of lovely buttered toast in front of him, and was already talking Then Galway Hospice phoned us, offering a home visit, which was about his lunch! Shortly afterwards I had to call the Nurse who was followed up with more visits/phone calls followed by two Doctors and they wrapped Myles in asking how we were doing, and getting to It was very re-assuring thermal blankets as he seemed to be getting a chill or know Myles and getting to know us. to see everything similar. They were only marvellous and he was made possible being done for comfortable with a drip for antibiotics etc. It was very When they encouraged us to visit Day Myles. re-assuring to see everything possible being done for Care at the Hospice, I had some misgivings Myles. in case Myles would not be comfortable visiting the Hospice, but from our first visit there things began to change. Firstly there were I was very concerned that our son had gone to India for a week and he no parking problems! We were made to feel most welcome. The was expecting to see his father at home on his return. I called him on Hospice Day Care was a hive of activity, with people going about their my mobile and both the Doctor and the Hospice Consultant spoke to various activities i.e. some getting their hair done, others having tea our son to update him on the unfolding situation. Myles died in his and scones, reading Newspapers, others meeting with the doctor in sleep later that night in a lovely calm tranquil environment, in the care attendance, others having Aromatherapy treatments etc. of ‘his pals’. In the midst of all this I was not ignored! I found myself being called to one side regularly to see how I was coping. The staff listened carefully and figured out that while Myles was availing of their facilities on Tuesday mornings I could get some shopping done, and then both of us would have lunch together in the hospice Restaurant. Myles really enjoyed these lunches and it was just like ‘being out to lunch’. Apart from that it felt like a very safe environment. Myles really looked forward to those Tuesday outings to the Hospice and even more so when he discovered they had a Jacuzzi. It was nice to see Myles chatting away with the staff whom he referred to as ‘his pals’. And so our relationship with the Galway Hospice began. Weren’t we so lucky to be able to go there when the chips were down… As time progressed we had many ups and downs. On one occasion there was an episode at home and the only place I felt I could get help was the Hospice and they came on the phone and talked me through the situation whilst calling an Ambulance on my behalf and staying in contact until it arrived. They followed up on all these situations and in due course Myles had overnight / short stays in the Hospice, and the Hospice Doctors worked closely with the Neurology Dept of What makes this Galway Hospice so special? In our opinion it is their ability to work together as a team. Each and every one of them - the Consultant, Doctors, Nurses, Carers and support staff - add value by way of providing help where they see it is needed. They are completely flexible. In fact they are Stars. For me I will never again buy an imported Christmas card when Galway Hospice Cards are available. You just have to ask for Galway Hospice cards. Some shops do not stock them because Galway Hospice does not pay commission. The Galway Hospice has everything ‘in situ’. They know how to care for and about people. The Galway Hospice is a wonderful facility. We never had a problem parking. We were never made to feel ‘in the way’. Doctors, Nurses and Carers, all trying to make life as good as possible for us. We were in an awful place until Galway Hospice came to our rescue. Dympna King 11 Students of Scoil Iosaif Naofa and Calasanctius College Well done to the boys from the Scoil Iosaif Naofa and Calasanctius College in Oranmore, Galway, who played their lungs out last Christmas at Oranmore Town Centre, all in aid of Galway Hospice. The boys raised a fantastic €734.90 for Galway Hospice through their exceptional performance. Pictured in action are (l-r): Tina Glynn with Jude MoranNunn, Conor Fogarty, Matthew McKernan, Luke Corrigan, Conor Mullins and Rory Glynn. Oughterard Golf Club Grace Morris (Lady Captain – Oughterard Golf Club) presented Mary Thornton (Galway Hospice) with a cheque for €600 which was raised at the Oughterard Golf Club’s Ladies Open Day. BPW Galway Summer Lunch Newsletter Sponsorship The printing of this issue of the Galway Hospice Newsletter has been sponsored by Advertees. Pictured are: Michael Craig Galway Hospice and Roy Gibson, MD Adertees. Michelle Murphy, President of BPW (Business and Professional Women) Galway, presented Galway Hospice with a cheque for €3,000 which was raised through a raffle at their Annual Summer Lunch. Pictured at the cheque presentation are (l-r): Michelle Murphy (BPW Galway President), Colette Dodd (Galway Hospice), Michael Craig (Galway Hospice) and Aine Feeney (BPW Galway). Nell Feeney coffee morning Nell Feeney held a very successful Coffee Morning and Sale of Work at the Huntsman Inn and raised €3,500 for Galway Hospice. The photo, taken at the Huntsman Inn, shows Nell Feeney presenting a cheque for €3,500 to Orla Feeney (centre) of Galway Hospice, the proceeds from the joint events. The photo also includes Stephen Francis, Proprietor of the Huntsman Inn, who provided the venue for the event. 12 i The Galway Hospice Home Care Team made 5832 Issue 6 “Hospice at Home” visits in 2011 remembering Galway Hospice Board Member Rynal Coen Fond Memories of Galway Hospice Board Member Rynal Coen who died on 6th March 2012. Rynal was a tremendous ally of Galway Hospice since 1988, and was hugely involved in campaigning and fundraising for the building of the hospice in the early 1990’s. May he rest in peace. In this photo, Rynal is pictured greeting the then Taoiseach Brian Cowen during his visit to Galway Hospice on 2nd October. 2010. Monivea Charity Ride The Monivea Charity Ride committee presented Galway Hospice with a cheque for €5,190. Pictured at the cheque presentation are (l-r): Sarah Greaney, Peter Greaney, Mary Byrne, Keelan Dempsey, Orla Feeney (Galway Hospice), Martin O’Brien, Michael Dolan and Fergal King. Photo courtesy of Gerry Ahern Photography. new Physiotherapy unit at Galway Hospice Pictured at the opening of the new Physiotherapy Unit at Galway Hospice are: Deborah Mullen, (Chartered Physiotherapist, Galway Hospice), Bridie Quinlivan (Health Care Assistant, Galway Hospice) and Florrie Connolly (Volunteer). Sponsors of the Galway Hospice Christmas Cards 2011 Sponsors of the Galway Hospice Christmas Cards 2011 were (L-R): Brian Whyte (Radharc Landscaping), Hilary Martyn, (Galway Independent), John O’Reilly (Galway Stationary), and David Martin (the Sweeney Group). Absent from the photo is Joe O’Toole (O’Toole’s SuperValu, Tuam). 13 HP Finance Team You can always count on the Finance Team at Hewlett Packard to deliver on their plans and projections. With stock markets tumbling across the world, the HP Finance team looked upwards rather than downwards, and set their sights on climbing to the peak of Croagh Patrick, all to benefit Galway Hospice. What’s more, they did it, and they have the photo to prove it! Congratulations to all concerned for a very successful climb, which raised €2700 for Galway Hospice. Pictured are the group at the top of Croagh Patrick and presenting the proceeds from their event to Orla Feeney (Galway Hospice). ‘Kick the Wall’ In 2012, Salthill Rotary Club launched a fantastic new fundraising project for local Galway charities. With the full support of Galway City Council, a permanent limestone collection point was erected at the famous ‘Kick the Wall’ location at the end of the Promenade at Blackrock. The collection point incorporates the slogan ‘Small Change, Big Impact’ which will hopefully motivate people to make their traditional kick a ‘powerful one’ through donating their small change to a local charity. The first chosen charity was Galway Hospice and the initiative raised €4,000 over the three month period allocated to Galway Hospice. Ollie Canning Famous Galway hurler, Ollie Canning came to Galway Hospice to present a signed hurley to Cyril Daly from Ballinasloe. Cyril is an avid follower of Galway hurling and a huge admirer of the Canning family’s contribution to Galway hurling over the years. Pictured are (l-r): Deborah Mullen (Chartered Physiotherapist), Seamus Canning (who made the hurley), Mari Gallagher (Director of Nursing), Breda Casserly (Pastoral Care), Dr Ita Harnett (Consultant in Palliative Medicine), and Ollie Canning, presenting the hurley to Cyril Daly (centre, front). remembering lord hemphill 14 Lord Hemphill (Peter Patrick Fitzroy Martyn), a Trustee of Galway Hospice from the very beginning, died earlier this year. He was very influential in the early days of Galway Hospice’s development, particularly in negotiations to secure the operational funding of the hospice Inpatient Unit by the then Western Health Board after it had been built by the people of Galway. He worked quietly behind the scenes, developing networks of support that remain to this day. He was loyal and encouraging to the very end. In his passing, Galway Hospice has lost a true friend. Ar dheis Dé go raibh a anam dílis. i Galway Hospice is the only dual accredited Issue 6 Hospice in Ireland Volunteering at Galway Hospice Foundation I joined Galway Hospice as Volunteer Co-ordinator in October 2005, having worked as a Fundraising Volunteer in the preceding years. At that time there were approximately 30 Volunteers who covered the Hospice Reception Desk for a number of hours on Saturdays and Sundays, and others who came in each weekday evening while the Reception staff had their coffee break. There was also at that time a group of 15 ladies who worked at the Hospice Christmas Shop each year. This shop was operational from mid November until Christmas Eve and for many years raised considerable funds for Galway Hospice. a group from the Carnmore Ladies Club who make cloth pouches for the Syringe Drivers for our Home Care Team. All of these important tasks contribute in their own unique way to the many dimensions of care and service provided by the team at Galway Hospice. All our rostered Volunteers are provided with Induction, Manual Handling, HACCP and Hand Hygiene training as appropriate, and any further training that their particular role may require. Whenever possible we send Volunteers on relevant external courses locally and nationally. In addition to the Volunteers that I look after, there’s literally an army of external volunteers who help out with Fundraising, be it for occasions like Sunflower Day, Coffee Morning, or the Galway Memorial Walk, not to mention those that organise annual fundraising events for the hospice. There’s a large group of Weekly Draw Promoters, many of whom have been Volunteering has been very important to Galway Hospice involved from the very beginning of the Draw, and who are since its very origins, and, remarkably, hugely loyal to the hospice. Every Christmas The generosity of the throughout the county, many shopkeepers and some of our earliest volunteers are still Irish spirit expressed other individuals sell our Christmas Cards, playing a significant role in the life of Galway Hospice. The hospice building through volunteering with the full purchase price returning to Galway is one of Ireland’s opened in December 1997, and we have Hospice. One gentleman has been volunteering greatest treasures. with us for 25 years and continues to help lists of Reception Volunteers going back to 1998. Thankfully many of the original whenever needed, and to promote the hospice group of Reception Volunteers are still at every opportunity. He also represents the serving with us today. Hospice in the annual St. Patrick’s Day parade in his vintage car. These volunteers and Promoters are co-ordinated by the Volunteering at Galway Hospice has grown hugely over the Fundraising Manager and his team. years. There are now 110 active Volunteers all of whom are on a rota which may be weekly, bi-weekly, monthly or bi-monthly. Volunteers are deeply appreciated and valued at Galway Everyone has a role to play and we now have Volunteers in Hospice and without their help and support we would not be almost all areas of the Hospice. Our Reception Volunteers able to offer the level of services to our patients and families still cover for several hours on Saturdays and Sundays, plus that we do, given the difficult economic climate. evening coffee breaks, and more recently have been providing lunch cover each day for our staff Monday to Friday. We also It is my pleasure to work with this wonderful group of people have volunteers in Day Care, Inpatient Unit, Maintenance, who give of themselves so unselfishly, who sometimes attend Fundraising and Physiotherapy. The list includes Drivers in at very short notice, often travelling long journeys and at weekareas such as Day Care, Fundraising and Maintenance. We ends to work with us when required. The generosity of the have Hairdressers in Day Care and in the Inpatient Unit. Irish spirit expressed through volunteering is one of Ireland’s We have volunteer Librarian, Florists, Clerical, Gardeners, greatest treasures. Painters, Beauticians etc., and a team that help with our Remembrance Evenings. There’s a volunteer who moves and Applications for volunteering at Galway Hospice are accepted sets up 100 chairs for each Remembrance Evening and returns at all times, but it sometimes can take a little while to find a them upstairs to the Education Room afterwards. There’s suitable role for those that apply. Unfortunately sometimes we even a volunteer who goes through all the local papers and have to decline applications if we feel that we could not meet extracts all photos and items relating to Galway Hospice, for the volunteer’s expectations or preferences. our archive! For many years, two precious ladies counted milk tokens which in turn translated into considerable income - Rita Grealish Volunteer Co-Ordinator for the hospice, until the tokens were discontinued. There’s 15 galway hospice Memorial walk 2011 Galway Hospice Foundation, Renmore, Galway, Ireland Tel: 091 - 770868 Fax: 091 - 752064 email: [email protected] Web: www.galwayhospice.ie Find us on Facebook Find us on:
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