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2nd Edition
Nationwide Children’s Hospital
Child Development Center
2013
Central Ohio
Autism
Directory
These materials are the product of on-going activities of the Autism Speaks Autism Treatment Network, a funded program of Autism
Speaks. It is supported by cooperative agreement UA3 MC 11054 through the U.S. Department of Health and Human Services, Health
Resources and Services Administration, Maternal and Child Health Research Program to the Massachusetts General Hospital.
Thank you 2013 Sponsors
The 2013 Autism Leadership Reception would not be possible
without the support of the following sponsors:
Autism Intervention Research Network
on Physical Health
Autism Society of Central Ohio
Autism Treatment Network
COSI
Nationwide Children’s Hospital
August 27, 2013
Dear 2013 Autism Leadership Reception Attendees,
Thank you for attending the third annual Autism Leadership Reception! The focus of
this year’s event is Access to Care, Access to Community.
The reception is designed to allow families and professionals the opportunity to meet,
exchange ideas and learn about new initiatives and services that will lead to
improvement in the care and treatment of children and adults with autism.
Following is the 2013 Central Ohio Autism Directory. The directory is a collection of
services, programs, research opportunities, clinics and resources designed to assist
professionals and families in the search for local autism supports and services.
We hope that you find the directory a useful tool when working with children and
adults with autism. Please feel free to share the resources contained in the directory.
Keep up the Great Work!
- the Child Development Center Team
To get an electronic copy of the 2013 Central Ohio Autism Directory, please email us at:
[email protected]
1
ChildChild
Development
Center
Development
Center
Child Development Center at Nationwide Children’s Hospital
Nationwide Children’s Hospital (NCH) Child
Development Center (CDC) provides
comprehensive, coordinated, multidisciplinary, care
to children with autism and other developmental
disabilities and their families.
Coordinated subspecialty care such as Sleep,
Genetics, Neurology and GI as well as Family
participation play a vital role in our Family Centered
Care approach. The CDC at NCH provides diagnostic,
assessment, ongoing care and Care Coordination at
our ATN site. Our dedicated Care Coordination team
supports families in assessing recommendations
and designing next steps for children diagnosed
with autism and at other transitional moments in
their development.
The CDC is focused on:
•
Supporting families during the assessment
and diagnostic process
•
Assisting families in understanding “next
steps” in the treatment process
•
Connecting families with autism to services
and agencies
•
Managing ongoing care and treatment of
autism and co-occurring conditions
•
Working with families in ongoing active
treatment and identifying goals for success
•
Developing way to increase communication
among team members and build a family
centered medical home for all children
•
Building capacity in our community to
promote the health and well-being of
families with autism
Autism Treatment Network at CDC
In 2011, the CDC became an Autism Treatment Network site as part of the Autism Speaks/Autism
Treatment Network (ATN) effort to ensure a consistent, comprehensive model of care and treatment
for children with autism and their families. The ATN is the nation’s first network of hospitals and
physicians dedicated to developing a model of comprehensive medical care for children and
adolescents with autism. The ATN is dedicated to providing comprehensive, multidisciplinary care to
children and youth with autism within their local communities. For more information on the Autism
Treatment Network or local events, please go to:
www.nationwidechildrens.org/autism-treatment-network
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Autism Expansion Planned for 2013
The Child Development Center in
Westerville is about to
expand!
The expansion of space was
initiated with a new waiting
room which includes more
seating for families. The new
space expansion adds an
additional 7500 square feet and
will include clinical offices,
conference rooms, exam rooms
and meeting space. Due to the
volume of children seen at CDC
many families have been
scheduled at other offsite
locations (Dublin and
Westerville Close to Home) to
accommodate the need. The
expansion will allow the CDC to
once again be united under one
The CDC completes approximately
3500 developmental screening
assessments and manages on going medical care to more than
1000 patients annually. To
accommodate such growth, the
CDC includes a robust staff of
more than 60 professionals
including Psychology, Psychiatry,
Developmental and Behavior
Pediatrics, Neurology, Speech and
Care Coordination who have
experience, training and expertise
roof.
in autism.
Thank you to all who have helped to
make this expansion possible!
Construction begins this August
and will be complete in November
2013. We hope you will stop by and
visit once construction is complete
to see our new space. It is an
exciting time at CDC!
For more information about CDC/ATN,
please visit our webpage:
www.nationwidechildrens.org/childdevelopment-center
Have a Question?
Call 614/355-8315 to
schedule an appointment,
or speak to a nurse.
Care Coordination at CDC
The Child Development Center and the Autism Speaks/Autism Treatment Network offers Customized
Clinical Care Coordination sessions for families to assist with building effective treatment teams and
options for children with autism.
Care Coordinators are licensed Social Workers and Child and Family Therapists well versed in working
with families and children with autism spectrum disorder and/or developmental delay. The goal of Care
Coordination is to provide families with comprehensive, accessible, ongoing Family Centered Care. Our
dedicated Care Coordination team supports families in assessing recommendations and designing next
steps for children diagnosed with autism.
Care Coordination appointments can work with children during diagnosis, during school age years and
during transition. Please contact our office at 614/355.8315 to set up an appointment as needed.
3
Specialty Clinics
The Child Development Center partners with a variety of medical
sub-specialty clinics to provide comprehensive, coordinated care for all
children and families with autism spectrum disorders
and other neurodevelopment disabilities. For more information on how to access specialty clinics
through the Child Development Center, please go to:
www.nationwidechildrens.org/child-development-center
or call 614/355-8315
Athens Rural Outreach Clinic
Autism Follow-up Clinic
Behavioral Medicine Consultation Clinic
Bowel Management Clinic
Bronchial Pulmonary Diagnostic Clinic
Child Development Clinic
Complex Care Clinic
Comprehensive Epilepsy Clinic
Developmental Disabilities Clinic
Down Syndrome Clinic
Heinzerling Foundation
Interdisciplinary Developmental Disabilities Clinic
Interdisciplinary Diagnostic Assessment Clinic
Interdisciplinary Feeding Clinic
International Adoption Clinic
International Autism Consultation Program—Brazil
Lead Autism Specialist Clinic Outreach
Myelomeningocele/Spina Bifida Clinic
Neonatology/Neonatal Follow Up Clinic
Neurodevelopment Clinic
Nisonger Dual Diagnosis Clinic
Prader Willi Clinic
Primary Care Engagement Clinic Services
Post Injury Clinic
Williams Syndrome Clinic
Wood County Rural Outreach Clinic
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Family Centered Care
5
Family Centered Care
at CDC/ATN
The Child Development Center Autism Treatment Network believes that families are a valuable part of
the care and treatment for children with autism. We encourage families to ask questions and discuss
concerns during appointments and be a part of the child's care team commonly referred to as a medical
home.
The Medical Home model of care represents an accessible, continuous, comprehensive, coordinated,
compassionate, culturally sensitive, multidisciplinary care approach for children with autism. It
promotes a high standard of coordinated care and focuses on the whole child and family. Families
working with ATN centers will find an environment that provides the highest level of direct care and
clinical expertise and also serves as a resource for families, community physicians, behavioral
practitioners, and educational advocates.
Family Centered Care (FCC) is very important in the planning and management of treatment for children
with autism spectrum disorder. Simply put, family centered care is “an approach to the planning,
delivery and evaluation of health care and serves as the cornerstone of participation between families
and professionals.”
“Family Centered Care is an equal partner in the ATN approach to the care
and treatment of children with autism. The ATN believes that families
are at the center of quality coordinated care.”
-Dr. Daniel Coury
ATN Medical Director
“Whole Care for the Whole Child”
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Family & Professional Lecture Series
Families with Autism Medical Lecture Series (FAMLS)
The Autism Treatment Network at Nationwide Children’s Hospital annually host a series of small
workshops for families and professionals in partnership with the Autism Society of Central Ohio, OCALI
and the Autism Speaks Walk team. The “Families with Autism Medical Lecture Series” or FAMLS series
of interdisciplinary workshops feature local experts discussing medical care and treatment for children
with autism. The series will features professionals in Sleep, Genetics, GI (Gastroenterology), Neurology,
Psychology, Medication, Medication Management and Family Centered Care.
Family Centered Care is a key element in the design and management of effective treatment teams for
children with autism. The FAMLS series offers educational sessions to assist parents as they navigate
the maze of care and treatment options for children with autism. Please visit our website for more
information: www.nationwidechildrens.org/autism-treatment-network.
My Health Series
A new series from the Child Development Center Autism Treatment Network is focusing on family and
caregiver stress when caring for a child with an autism spectrum disorder (ASD). This series provides
sessions just for Mom’s and another session just for Dad’s. Each session will discuss some of the
unhealthier ways parents/caregivers deal with the multi-faceted stress of caring for a child with an ASD.
The sessions will recommended activities that can be incorporated into parents/caregivers lives and
guide attendees toward community resources to increase better health and wellness.
Session participants will enjoy the interactive format of this series as well as the robust discussion that
follows. Series participants will also enjoy the many give-a-way items provided by sponsors.
For more information, please go to events at www.nationwidechildrens.org/autism-treatment-network
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8
Care and Treatment
for Children with Autism
9
Medical: Care and Treatment
The Child Development Center Autism Treatment Network at Nationwide Children's Hospital strives to
provide excellent ongoing care and treatment to children with autism and their families. As part of our
model of care, we recommend an annual medical appointment with a Developmental and Behavioral
Pediatrician (DBP) to all of our patients.
Annual appointments offer families a time to ask questions, review child development and allow
families the opportunity to explore possible care and treatment options for their children. For example, if
your child is not sleeping through the night, a medical appointment with a DBP will explore this issue and
assist with referrals for specialty care which can help in finding appropriate treatment options. Regular
medial appointments also allow families the opportunity to discuss medication options, strategies to
promote the child’s educational, social and/or behavioral skills and other medical concerns.
Top 5 Reasons For Annual Appointments
with a Developmental and Behavioral Pediatrician (DBP)
Developmental and Behavioral Pediatricians review a child’s medical health and look at the following:
1.)
Associated medical issues such as sleep, gastroenterology (GI) I and others that commonly
occur with a diagnosis of Autism.
2.)
Review current medications for effectiveness and discuss any concerns you may have.
Medication changes or additions can be discussed during appointments.
3.)
Review current academic work, treatments and therapies your child is active with and will look
for progress in these areas. A DBP will review your child to see check to see that they are
getting all necessary services and are linking to appropriate services.
4.)
Discuss behavioral issues that may be challenging.
5.)
Needed interventions to help your child progress (medication, therapies, treatments…).
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Psychology: Care and Treatment
After the initial diagnostic evaluation, it will be important to keep a psychologist closely involved in your
child's treatment and progress monitoring. The goal of early intervention should be to speed a child's
development. We want children who have been learning slower than expected to begin learn faster
than their peers so that they can begin to catch up to them. Research has shown that this can happen
for children with autism spectrum disorders.
A psychological evaluation every 10 to 12 months during the preschool years will help to monitor
the effect any intervention or educational programming is having on a child with an autism
spectrum disorder. At each yearly evaluation, the psychologist can help make
recommendations for continuing or changing aspects of the child's therapy or educational
programming.
Once a child enters grade school and into adolescence, psychological evaluations can be more
spaced over time, but no less than every three years.
Helpful Hint:
It is also important to see a psychologist whenever a family recognizes that a child's developmental
progress has stalled or when disruptive behaviors such as tantrums, aggression, or self-injurious
behaviors have interfered with a child's learning. Neurodevelopment Clinical Psychologists can
assist teachers, other school staff, and ABA providers in assessing and planning intervention for
these problem situations. Similarly, children who have struggled with important daily activities such
as feeding, toilet training, or regulating sleep may benefit from focused psychological intervention
for a brief period of time.
Finally, a psychologist can be helpful in coordinating behavioral and educational interventions with
medical treatments by working closely with your child's physicians. Any child who has been
prescribed a medication for any behavior problems or any biomedical intervention for autism would
likely benefit from coordinated care with a psychologist and their physician.
11
Get Involved!
Getting involved in your community can be fun, inspirational and
educational for you as the parent of a child/adult with autism. You can
start with small community volunteer opportunities and see where the
path may lead.
A simple way to start is to get involved with your local Autism Society of
Central Ohio Chapter or the local Autism Speaks Walk team. Take a look at
the following pages and GET INVOLVED!
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The Autism Society of Central Ohio:
Supporting local families and
professionals since 1995
The Autism Society of Central Ohio (ASCO) offers families and professionals educational
opportunities to learn about autism at a local and national level. ASCO strives to offer a variety of
workshops, family supports and informational sessions by local and national leaders on an annual basis.
During 2013 ASCO supported the following:
My Health Series— in collaboration with ATN, is a series focusing on the health of caregivers and
parents of children with autism. This is an exciting new series and is planning Fall 2013 sessions.
Loose the Training Wheels—in partnership with the Downs Syndrome Association of Central Ohio,
ASCO sponsors children to learn to ride a bike.
COSI—Autism Awareness and Activities Day—twice a year ASCO sponsors a COSI autism friendly
day for families and their children. The next COSI day will be held on October 25, 2013.
Additionally, ASCO offers IEP assistance, personal consultation to families in need and has
provided iPad grants to many.
ASCO is also partnering with OCALI, the Autism Treatment Network at Nationwide Children’s Hospital and
Autism Speaks local walk team to offer the Families with Autism Medical Lecture Series, known as
FAMLS. FAMLS presenters are local autism medical experts presenting on a variety of topics. Fall
presenters include Dr. Emily de los Reyes presenting on Neurology and Autism. ASCO is always looking for
suggestions, so if you have an idea, please feel free to email or call the chapter office.
ASCO is also a proud sponsor of the Autism Leadership Reception, bringing leaders in autism together to
learn about research, programs, services and resources.
ASCO delights in offering a friendly session with Santa every year. Remember to visit our webpage this
winter to schedule an up close and personal meeting with Santa……he and his staff come every year and
offer kids and families a non-mall like experience. Bring your camera to get pictures with the jolly man!
Support Central Ohio
The Autism Society of Central Ohio is a dynamic chapter partnering with The
Ohio State University, OCALI, Nationwide Children's Hospital and other
leaders in autism to provide the best for Central Ohio!!!
Donations to our chapter are used to support families and professionals in
Central Ohio, so make a donation today!!!
Make a donation to ASCO at:
www.autism-centralohio.org
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WALK NOW FOR
AUTISM SPEAKS
Sunday, October 13, 2013
Huntington Park
8:30am Registration; 11:00am Walk Start
Join Autism Speaks as we walk to change the future for all who struggle with autism!
Our 2013 Columbus Walk will be held at Huntington Park on October 13th. Registration begins at
8:30AM, with the Walk starting at 11:00AM. Come prepared for an exciting day that you won't forget!
Walk Now for Autism Speaks is a fun-filled, family friendly event and is our single most powerful force
to fund vital research that will lead us to the answers we need. Experience the power of thousands
united by a single cause by joining Walk Now for Autism Speaks. Autism is the fastest-growing serious
developmental disorder in the U.S. – we need more volunteers to join our fight. Whether this is your
first walk or the 10th, take the first step and register today. You will not only raise funds, but you will
become a part of a fun and supportive family-focused community.
We look forward to seeing you at our Walk!
For more information or to access resources, please visit
www.autismspeaks.org
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How to use the Directory
Directory Format
Each directory entry follows the format below:
Agency/Program/Research Title
Contact Information
Description of the listing
Puzzle Pieces:
Three Key words that describe the listing are highlighted
next to the Blue Puzzle Pieces.
Programs and Services.…………………………………….Pages 16-45
Research…………………………………………………….Pages 46-52
2013 Upcoming Events……………………………………...Pages 53-54
15
16
Programs and Services
17
Achievement Centers for Children’s Achieve Consulting
Program
Development
Consultation
Services
Autism &
Behavioral
Trainings
Achievement Centers for Children
4255 Northfield Road
Highland Hills, Ohio 44128
216.292.9700
[email protected]
www.achievementcenters.org/training
Achieve Consulting offers consultation and training services throughout the United States
to public school systems, private schools and agencies with a focus on building expertise
to best serve children with ASD. Our highly-trained and knowledgeable staff is educated
and experienced in a wide variety of evidence-based treatment methods for individuals
with autism. We offer a variety of customized trainings on-site, off-site and online to
address the specific needs of the district, classroom, or individual students. Topics have
included social skills curriculum, communication strategies, data collection and analysis,
visual supports, Positive Behavior Supports, Asperger’s and high functioning autism, and
curriculum modifications.
Akron Children’s Hospital:
Division of Developmental-Behavioral Pediatrics
Diagnosis
Medical
Management
The NeuroDevelopmental Science Center-Akron Children’s Hospital
One Perkins Square
Akron, Ohio 44308
330.543.8050
www.akronchildrens.org
[email protected]
Diagnosis and medical management of delayed development, including autism.
[email protected]
18
Applied Behavioral Services—Cincinnati
Applied Behavioral Services-Cincinnati
4850 Madison Road
Cincinnati, Ohio 45227
513.861.0300
[email protected]
http://www.appliedbehavioralservices.com/
Applied Behavioral Services is an educational placement program specializing in serving
children and adolescents with Autism Spectrum Disorder as well as other cognitive and
developmental delays. We are an Autism Scholarship Provider as well as a John Peterson
Scholarship provider with the Ohio Department of Education and are proud to offer
small classroom ratios, highly individualized curriculums, and behavioral management programs all overseen by one of our highly trained BCaBA's or BCBA's. Our programs and
classrooms are very individualized based upon the assessment and needs of the student. A student may begin our program in a 1-1 or 1-2 setting and then move to our StepUP
Programs where social skills, academics and classroom routine are stressed as a priority.
Small classroom
ratios
Highly
Individualized
Curriculum
Behavioral
Management
programs
Autism Society Central Ohio
Autism Society Central Ohio
P.O. Box 272
Worthington, Ohio 43085
614.284.6323
www.autismcentralohio.org
[email protected]
Autism Society Central Ohio is a chapter in Autism Society of America-the nation’s oldest
grassroots autism organization. We exist to improve the lives of all affected in autism. We
provide assistance to families in navigating the educational, funding and healthcare
systems on a one to one basis. The most important benefit of chapter membership is the
opportunity to talk with other parents and professionals - to share information and to
realize that you are not alone. Our chapter offers a variety of education, support and
advocacy services, including:
• Guest speakers
• Bi-monthly mailings
• Information and referral
• Individual support and suggestions about issues affecting families and individuals
• Networking opportunities
• Training conferences
• Assistance with IEPs
Check out our webpage for upcoming LOCAL events.
www.nationwidechildrens.org/autism-treatment-network
Supporting the
Central Ohio
Autism Families
Contact with
Parents who
Have “Been
There”
Provides
Educational
Opportunities
19
Autism Society of Ohio
Autism Society of Ohio
470 Glenmont Ave.
Columbus, Ohio 43124
614.487.4726
www.autismohio.org
[email protected]
Information
and Referral
Support
Resources
The Autism Society of Ohio is dedicated to improving the lives of all affected by autism in
Ohio by providing information and referrals, individual, family and professional support,
advocacy, education and training, raising awareness and developing resources. The
Autism Society of Ohio is the voice for autism in Ohio, advocating for individuals with
autism, their families and those who work with them by working with all of the different
state agencies and the General Assembly to improve and increase services. Our Programs
include Neighbor to Neighbor support, Lose the Training Wheels, family activities;
Resources include a Parent Manual, Resolving Problems with Your School, Choosing an
Autism Scholarship provider, an information packed website (www.autismohio.org) and a
weekly e-newsletter. Offices are located in Columbus, Greater Akron and the Mahoning
Valley (Youngstown).
•
Check out upcoming events at www.autismohio.org and click on ‘Calendar’
Beat Autism Now
Volunteer Parent
Advocate
Beat Autism Now
5405 Blackhawk Forest Drive
Westerville, Ohio 43082
614.554.0802
614.882.8793
[email protected]
Poker fundraiser
For furniture
Industry
The purpose of Beat Autism Now, is to raise money for other charities to help them succeed with their missions to help families with individuals with Autism. Beat Autism Now is
a 501 © 3 based in Ohio.
Ante4autism.com
[email protected]
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Center for Child Development:
Bowling Green, Ohio
1037 Conneaut Ave, Suite 203
Bowling Green, OH 43402
419.354.3295
Psychologists from NCH Child Developmental Center have developed a relationship with
Sherri Thomas, MD, director of the Center for Child Development (CCD) in Bowling Green,
Ohio. Psychologists and pre-doctoral interns travel to Bowling Green once per month to
provide targeted psychological evaluations to CCD patients. This type of specialized
service for children with intellectual and developmental disabilities is not available in
Northwest Ohio. This partnership was started last year and has been very successful for
Dr. Thomas, NCH CDC, and the patients.
CDC psychologists travel to the CCD once per month (2nd Wednesday of the month).
Information can be found by calling (614) 355-8315.
Psychological
Evaluations
Collaborative Care
Rural Outreach
The Center for Systems Change
The Center for Systems Change
470 Glenmont Ave.
Columbus, Ohio 43214
614.410.1020
www.centerforsystemschange.org
[email protected]
The Center for Systems Change (CSC) is a social and disability policy think tank. We
address issues affecting people with developmental and other disabilities. We have
special concentration on autism, mental illness and poverty.
Policy Analysis
Research
Our audience is government, service providers, clinicians and the general public.
Our website contains articles, policy briefs, blogs, videos, interviews and news briefs.
We also consult with public and private entities.
Our partners include Harvard University, The Ohio State University College of Social Work,
The Ohio State College of Medicine and the Ohio Department of Developmental
Disabilities.
The Center for Systems Change is located at The Ohio Center on Autism and Low
Incidence (OCALI). OCALI is Ohio’s clearinghouse for autism education and resources.
www.nationwidechildrens.org/autism-treatment-network
Consultation
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Columbus Speech and Hearing
Individual Speech
Therapy and OT
Small Group
Therapy
Classroom
Based
programs
Columbus Speech and Hearing Center
510 E. North Broadway
Columbus, Ohio 43214
614.261.5493
http://www.columbusspeech.org/
Speech-language delays in children may impact future success in school. However, early
diagnosis and treatment can help to minimize or eliminate these challenges. Our Speech
and Language Pathologists provide evaluation and treatment in the areas of:
• Articulation/Phonology
• Receptive Language
• Expressive Language
• Social Interaction
• Voice
• Stuttering
• Apraxia
• Hearing impaired and/or cochlear implant
Small groups focus on helping children to interact in a group setting. Activities are
designed to encourage speech-language skills and social communication skills.
The Dick & Jane Project
Musical Education
Achieving the
Unthinkable
Community
Building
The Dick & Jane Project
PO Box 82342
Columbus, Ohio 43202
614.598.4432
[email protected]
www.thedickandjaneproject.org
The Dick and Jane Project is an assemblage of experienced producers, songwriters, and musicians
who partner with middle school students to create radio ready songs. They are musically
proficient individuals (producer, songwriter, vocalist, musician) that are excited to use their
experience, talents, and knowledge to bring the musical vision of a young person to life with a
song that is “radio ready”, meaning that the performances, recording, and production are of high
quality.
During a workshop, students are partnered with professional music producers to create
songs. Students focus primarily on the lyrics of the song and give musical direction to the
producers who assemble a team of musicians to record the song. Workshops span a total of three
weeks, including eight in-class workdays lasting one hour per day, plus out-of-class time via The
Project’s state-of-the-art online application, DJP Labs. Musicians professionally record the song
during the months following a workshop while maintaining contact with the students. The
culmination of each workshop is the release of the song on the radio. The cost of a workshop is
based on the number of songs created, starting at $1,500 per song. E-mail The Dick & Jane Project
at [email protected] to start planning a songwriting workshop!
[email protected]
22
Easter Seals Central and Southeast Ohio, Inc.
Easter seals Central and Southeast Ohio, Inc.
3830 Trueman Court
Hilliard, Ohio 43026
614.598.5162
[email protected]
www.centralohio.easterseals.com
Easter Seals is the country’s leading non-profit provider of services for individuals with
autism, developmental disabilities, physical disabilities and other special needs.
Easter Seals partners with families and communities to offer a wide variety of services for
school aged children and youth, including those with Autism Spectrum Disorder.
Services include our “Out & About” respite, “Make the First Five Count” Early
Intervention, Summer Day Camp, After School, and therapy programs. Through home,
community and center based services we provide independence options many adults with
Autism never thought possible. For more than 85 years, Easter Seals has been offering
help and hope to children and adults living with Autism and other disabilities, and to the
families who love them.
Early
Intervention
Respite
Adult &
Senior Services
Franklin County Board of Developmental Disabilities
Franklin County Board of Developmental Disabilities
www.fcbdd.org
The Franklin County Board of Developmental Disabilities operates a county agency
providing direct or contracted services on a daily basis. The Board provides educational,
employment and support services to children and adults of all ages, who have mental
retardation of other developmental disabilities. Services are provided in early childhood
programs, schools, ARC Industries Sheltered Workshops, and in a variety of other settings
where support is needed. Similar to public schools, most services are provided at no cost
and are supported by local, state and federal funds. Services are provided to residents of
Franklin County who meet the eligibility requirements.
www.nationwidechildrens.org/autism-treatment-network
Developmental
Disabilities
Public Agency
Services and
Supports
23
Help me Grow
Early
Intervention
Part C
Child
Development
Help Me Grow
246 North High Street, 5th Floor
Columbus, Ohio 43125
c/o Bureau for Children with Developmental & Special Health Needs
614.644.8389
www.ohiohelpmegrow.org
[email protected]
Help Me Grow, as part of Ohio’s prenatal to age three early childhood system of supports,
is designed to assure that children in Ohio are born healthy and have the best possible
start in life and their families have the knowledge, support and confidence to promote
their children’s health and development. The services offered by Help Me Grow equip
parents with resources to help their child with the early building blocks for long term
success. Ohio’s Help Me Grow Early Intervention Program is designed to identify and
serve children under the age of 3 with developmental delays or disabilities as provided for
under the federal individuals with Disabilities Education Act (IDEA Part C).
Parents with concerns about their child’s development can have their infant or toddler
evaluated by a multidisciplinary team at no cost to the family. Children are evaluated for
delays in the areas of adaptive, cognitive, communication, physical, and social-emotional
development. When determined necessary, individualized services are provided to the
child and family.
Helping Hands Center for Special Needs
Education and
Therapy Center
Autism Spectrum
Disorder
Non-Profit
Organization
Helping Hands Center for Special Needs
2500 Medary Avenue
Columbus, OH 43202
614.262.7520
[email protected]
www.helpinghandscenter.com
Helping Hands Center for Special Needs is a non-profit organization with a mission to
meet the educational and therapeutic needs of children with Autism and other
developmental disabilities.
The Education Center serves grades preK-8, providing instruction based on each
student’s need and learning style. Teaching methodologies include curriculum
adapted from the State of OH Academic Content Standards, Applied Behavior
Analysis (ABA), and Discrete Trial Training (DTT). Classrooms are supervised by
Master’s level educators, Board Certified Behavior Analysts and two Psychologists.
Helping Hands serves individuals of all ages through its Therapy Center with
certified music, occupational, physical and speech therapists working one-on-one,
in small groups and in co-treatments sessions.
[email protected]
24
Janet Hansen, Ph.D., BCBA-D, LLC Psychologist
Janet Hansen, Ph.D., BCBA-D
3663 Ridge Mill Dr., Suite 103
Hilliard, Ohio 43026
614.219.1510 Fax 614.219.1511
www.janethansenpsychologist.com
[email protected]
Dr. Janet Hansen is a clinical psychologist who specializes in children and developmental
disorders. Her services encompass developmental and psychological evaluations,
individual and group interventions (home and office-based), as well as consultative
services. Her office is committed to providing evidence-based intervention services to
children and adolescents with autism spectrum disorders and their families so that they
may achieve their highest potential in all aspects of their daily functioning. A unique
strength of the program lies in her highly qualified staff and family-centered focus.
Behavioral consultants under Dr. Hansen’s supervision have either completed or are
currently working toward BCBA certification. Funding sources for services may include
FCBDD, insurance or Autism Scholarship Program.
Psychological
Evaluation
ABA/Behavioral
Intervention
Social Skills
Group
Recently added small group intervention services focus on a variety of topics including:
generalization of individual goals to small group setting, social skills, social
communication with AAC devices, leisure and prevocational skills based on strengths and
interests, and functional life skills.
The Learning Spectrum
The Learning Spectrum
125 Dillmont Drive
Columbus, Ohio 43235
614.844.5433
www.thelearningspectrum.com
The Learning Spectrum (TLS) was formed in 2004 by two special education teachers and a
parent who saw a need in the community for a wide variety of services for children with
ASD. As Autism Scholarship providers, The Learning Spectrum is able to create
individualized education programs as well as work within the IEP to help meet specific
educational goals. In addition, The Learning Spectrum offers support in inclusive settings
as well as therapy services. The overall goal of all intervention is to help children grow
and prosper in their natural environments. TLS focuses on using Applied Behavior
Analysis (ABA) to analyze problem behaviors and to in turn create appropriate behavioral
interventions that allow for their clients optimum learning of academic, social, and
communication skills.
Other Locations:
TLS
TLS
36
Harrison
Street
100 Washington Street
Sunbury, Ohio 43074
Canal Winchester, Ohio 43110
www.nationwidechildrens.org/autism-treatment-network
Autism
Scholarship
Provider
Educational and
Behavioral
Supports
OT, SLP,
And Music
Therapy
25
Nationwide Children’s Hospital:
Athens Rural Outreach Clinic
Rural Health
Developmental
Assessment
Nationwide Children's Hospital Child Development Center
187 W. Schrock Road
Westerville, OH 43081
614.355.8315
The Rural Outreach Assessment Clinic at Nationwide Children's Hospital provides specialty
assessment in Autism Spectrum and related disorders in two Mental Health Professional
Shortage Areas and Medically Underserved Areas of Ohio.
Dr. Caroline Murphy joins the Southeastern Ohio Interdisciplinary Assessment Team in
providing developmental and ASD-specific assessments of children ages 0 to 6 in a rural
five-county region.
The Rural Outreach Assessment Clinic team helps NCH to achieve its goal of providing
specialty care to populations in need beyond its traditional catchment area.
Interdisciplinary
Care
Nationwide Children’s Hospital:
Behavioral Medicine Consultation Clinic
Behavioral
Problems
Nationwide Children’s Hospital
700 Children’s Drive
Columbus, Ohio 43205
614.355.8080
Medical And
Psychiatric
Care
Our clinicians include doctors and advanced practice nurses from Developmental
Behavioral Pediatrics and Child and Adolescent Psychiatry. We aim to help families better
understand emotional and behavioral problems in young children through
adolescence. We provide diagnostic evaluations and work with families to develop
recommendations for intervention. Treatment options available through our clinic may
include brief counseling, parenting programs, or medication, when appropriate.
Community
Resources
We are available to work with families for short term consultation or for on-going
care. To support the needs of our Behavioral Health system, our clinic specializes in providing medical and psychiatric care to families living outside of Franklin County, or those
who have other mental health providers in the nearby community. There is a
medical social worker available to assist families in finding community resources.
[email protected]
26
Nationwide Children’s Hospital:
Bowel Management Clinic
Bowel Management Clinic-Developmental Disabilities at Nationwide Children’s Hospital
455 Executive Campus Drive
Westerville, Ohio 43081
[email protected]
Children with autism spectrum disorders who are experiencing constipation receive
interdisciplinary treatment from an advanced nurse practitioner and psychologist. The
clinic’s nurse practitioner conducts a medical examination and prescribes any necessary
medications to alleviate bowel management problems, and the psychologist provides
behavioral management strategies to improve bowel management training as well as
assist with other toilet training concerns.
Constipation
Interdisciplinary
Care
Behavioral and
Medical
Intervention
Nationwide Children’s Hospital:
Center for Autism Spectrum Disorders
Nationwide Children's Hospital Center for Autism Spectrum Disorders (NCH/CASD)
187 W. Schrock Road
Westerville, Ohio 43081
614.355.8315
www.nationwidechildrens.org/autism
[email protected]
The Center for Autism Spectrum Disorders at Nationwide Children’s Hospital provides
comprehensive care focusing on evidence-based treatments, education, research and
advocacy for children with the diagnosis of an ASD. Our mission is to provide assistance to
every child and family affected by ASD who is in need. Center for Autism Spectrum
Disorders Services include:
• Intensive Behavioral Intervention (ABA)
• Behavioral Consultation
• Severe Behavior Services
• School Support Services / Educational Consultation
• Asperger’s Counseling Services, Psychotherapy Groups, and Social Skills Groups
• Parent Education
• Community Outreach, including Autism Academy, Aide Training, Buddy Camp, and
SibShops
Please contact an Autism Resource Coordinator to initiate your pathway of care.
www.nationwidechildrens.org/autism-treatment-network
Asperger’s
Services
Social Skills
Behavioral
Consultant
Parent Training
27
Nationwide Children’s Hospital:
Child Development Center
Developmental
Diagnostic
Assessments
Comprehensive
Ongoing
Medical Care
Clinical Care
Coordination
Psychological
and Speech
Services
Nationwide Children's Hospital Child Development Center (NCH/CDC)
187 W. Schrock Road
Westerville, Ohio 43081
614.355.8315
www.nationwidechildrens.org
www.nationwidechildrens.org/autism-treatment-network
Nationwide Children's Hospital Child Development Center (NCH/CDC) has become an
Autism Treatment Network site – an elite designation in the field of autism treatment and
research.
NCH/CDC provides multidisciplinary diagnostic assessments for families seeking
developmental evaluations. As part of the ongoing commitment to Family Centered Care,
NCH/CDC provides comprehensive, coordinated, multidisciplinary, care to children with
autism and their families. Coordinated subspecialty care such as Sleep, Genetics,
Neurology, Psychiatry and Gastroenterology as well as family participation play a vital role
in our Family Centered Care approach. Our dedicated Psychology, Medical and Care
Coordination team supports families in assessing recommendations and designing next
steps for children diagnosed with autism. Nationwide Children's believes in and practices
“Whole Care for the Whole Child".
Nationwide Children’s Hospital:
Comprehensive Epilepsy Center
Epilepsy
Interdisciplinary
Care
Developmental
Evaluations
Pediatric Epilepsy Center at Nationwide Children’s Hospital
Nationwide Children’s Hospital
700 Children’s Drive
Columbus, Ohio 43205
614.722.4625
[email protected]
The Pediatric Epilepsy Center is an interdisciplinary clinic that serves children with
epilepsy and their families. The team consists of neurologists, developmental and
neuropsychologists, pharmacists, and social workers. We evaluate and care for children
from the onset of seizures, through therapeutic interventions, and advanced epilepsy
surgery when appropriate. Medical, behavioral, and developmental evaluations are offered. Families can be linked with appropriate treatment services and community
resources as necessary.
[email protected]
28
Nationwide Children’s Hospital:
Developmental Disabilities Clinic
Nationwide Children’s Hospital
700 Children’s Drive
Columbus, Ohio 43205
614.355.8315
The Developmental Diagnostic Clinic at Nationwide Children’s Hospital is dedicated to
evaluating children with developmental concerns. It provides diagnostic evaluation and
on going follow-up care for children with known or suspected physical and/or cognitive
impairments. Clinicians in the clinic include Developmental-Behavioral Pediatric physicians
and nurse practitioners, psychologists and a medical social worker.
Diagnostic testing performed by the clinic usually includes a variety of developmental
assessments, physical and neurodevelopmental exam and parent interview. Additional
testing (labs, X-rays, etc.) may also be ordered. Referrals to other specialists are made as
needed.
While at the clinic, families can be linked to medical, educational, social and financial
resources in the community.
Diagnostic
Evaluations
Multidisciplinary
Approach
Community
Resources
Nationwide Children’s Hospital:
Down Syndrome Clinic
Down Syndrome/Developmental Disabilities Clinic at Nationwide Children’s Hospital
700 Children’s Drive
Columbus, Ohio 43205
[email protected]
Children with Down Syndrome, Autism Spectrum Disorders, and other Developmental
Disabilities receive comprehensive medical care coordination through the clinic’s
Developmental Behavioral Pediatrician or Advanced Nurse Practitioner as well as behavior
management consultation for a range of issues like tantrums, noncompliance, and
aggression with the Psychologist.
Down
Syndrome and
Autism
Behavioral
Intervention
Medication
Management
www.nationwidechildrens.org/autism-treatment-network
29
Nationwide Children’s Hospital:
Follow-Up Clinic
Behavioral
Intervention
Developmental
Disabilities
Child Development Center
187 W. Schrock Rd.
Westerville, OH 43081
614.355.8315
[email protected]
Children with developmental delays (e.g., intellectual disability, autism spectrum disorder,
genetic conditions) and behavior problems and their caregivers are seen in this clinic by a
group of psychology faculty and trainees at the Child Development Center. The purpose
of this hour-long treatment appointment is to assess the frequency, duration, and
intensity of the child’s behavior problems and develop a treatment plan to be carried out
in the child’s home, school, and/or over the course of additional outpatient therapy
appointments. Follow-Up Clinic is held twice monthly during the academic year.
Autism
Spectrum
Disorder
Nationwide Children’s Hospital:
Gastrointestinal Clinic
Gastrointestinal
Disorders
Nationwide Children’s Hospital-Gastroenterology/Nutrition-Kent Williams, MD
700 Children’s Drive
Columbus, Ohio 43205
614.722.3450
www.nationwidechildrens.org/kent-c-williams
Toilet Training
Kent Williams, MD, is an attending pediatric gastroenterologist at Nationwide Children’s
with clinical and research interests in GI disorders in children with autism spectrum
disorders. As a clinician at Nationwide Children’s Hospital, Dr. Williams provides clinical
services for GI issues in children with ASD, such as constipation, recurring abdominal pain,
reflux, and toilet training. As a clinical investigator, he conducts, translational research
into the diagnosis, treatments, and causes of gastrointestinal disorders in children with
ASD. Dr. Williams is currently the chairman of the Autism Treatment Network’s
gastroenterology committee, a multi-center work group that establishes guidelines and
recommendations for treatment of GI issues in children with autism spectrum disorders.
Transitional
Research
[email protected]
30
Nationwide Children’s Hospital:
Interdisciplinary Development Evaluation (iDDC)
Courtney E. Rice, Psy.D., Psychologist
Child Development Center
187 West Schrock Rd
Westerville, OH 43081
614.355.8315
[email protected]
Interdisciplinary Developmental Evaluations (iDDCs) consist of a developmentalbehavioral pediatrician and a psychologist to serve young children who are experiencing
global delays in development who may benefit from a joint medical and psychological
evaluation. These evaluations are typically most suited for children under six years of age
who have not received extensive evaluation in the past. A medical evaluation is
conducted and the child undergoes individualized standardized assessment of
developmental functioning. Assessment results are communicated to the family and
individualized recommendations are offered to assist in their plan of care.
Interdisciplinary
Care
Developmental
Evaluations
Nationwide Children’s Hospital:
Interdisciplinary Feeding Clinic
Interdisciplinary Feeding Evaluation Clinic at Nationwide Children’s Hospital
Dublin Close to Home
5675 Venture Drive
Dublin, Ohio 43017
[email protected]
Children who are demonstrating delayed feeding skills and/or restricted eating
participate in an interdisciplinary evaluation of their feeding difficulties with a physician,
dietician, psychologist, speech therapist, and occupational therapist. Clinic team
members evaluate the types of difficulties the child is demonstrating, discuss beginning
recommendations with the family, and help refer the child to the appropriate ongoing
treatment.
Feeding
Difficulties
Interdisciplinary
Care
Feeding
Evaluation
www.nationwidechildrens.org/autism-treatment-network
31
Nationwide Children’s Hospital:
International Adoption Clinic
International
Adoption
Interdisciplinary
Care
International Adoption Clinic at Nationwide Children’s Hospital
Westerville Close to Home
433 N. Cleveland Ave.
Westerville, Ohio 43081
614.722.4452
[email protected]
The International Adoption Clinic at Nationwide Children’s Hospital serves families prior to
and following adoption. Post-adoption services are usually provided 2 weeks and then 6
months following adoption. Families will meet with a physician, psychologist, physical
therapist, speech therapist, nurse, and nutritionist. Medical, behavioral, and
developmental evaluations are offered. Families can be linked with appropriate
treatment services and community resources as necessary.
Psychological
Evaluations
Nationwide Children’s Hospital:
Neonatology/Neonatal Follow Up Clinic
Interdisciplinary
Care
Autism
Screening
Developmental
Evaluations
Neonatal Long-term Follow Up Clinic at Nationwide Children’s Hospital
Child Development Center
187 West Schrock Road
Westerville, Ohio 43081
614.355.8315
[email protected]
The Neonatal Long-term Follow Up Program partners with the Neonatology Clinic and
the Neuropsychology department to serve children with a history of prematurity.
Children are initially followed by the neonatology clinic from birth until 2 years old.
Subsequently, their development is followed by either the Child Development Center or
Neuropsychology. Children referred to the Child Development Center are screened for
autism and if suspected of meeting criteria for this disorder are referred for an
autism-specific evaluation. Children not suspected of having autism are seen by a
Developmental Behavioral Pediatric provider and psychologist to undergo an
interdisciplinary developmental assessment. Assessments in this program begin at age 3
and recur yearly. Assessment results are communicated to the family and individualized
recommendations are offered to assist in their plan of care.
[email protected]
32
Nationwide Children’s Hosptial:
Prader-Willi Multidisciplinary Clinic
Nationwide Children's Hospital
700 Children’s Drive
Columbus, Ohio 43205
[email protected]
The Multidisciplinary Prader-Willi Syndrome (PWS) is treated at Nationwide Children’s
Hospital by a multidisciplinary team. We emphasize early intervention and a proactive
approach to assessment of and treatment for the possible complications that can be
associated with PWS. Our team includes an endocrine nurse coordinator,
endocrinologists, a geneticist, a genetic counselor, dietitian, psychologist, and social
worker that attend each PWS Clinic. We have a close relationship with clinicians from a
number of supporting disciplines, and our patients referred to Ophthalmology, ENT, Sleep
Medicine, Behavioral Health, Urology, Physical/Occupational/Speech Therapy and
Dermatology as needed.
The PWS clinic meets at Nationwide Children's Hospital. More information can be found
by calling (614) 722-4436.
Prader-Willi
Syndrome
Comprehensive
Care
Behavioral
Interventions
Nationwide Children’s Hospital:
Post-Injury Clinic
Courtney E. Rice, Psy.D., Psychologist
Child Development Center
187 West Schrock Rd
Westerville, OH 43081
614.355.8315
[email protected]
The Post-Injury Clinic consists of a child abuse pediatrician, a developmental-behavioral
pediatrician, a physical medicine pediatrician, and a psychologist to serve children who are
victims of abusive head trauma. Children are followed subsequent to initial injury and then
every six months until approximately five years old. This multidisciplinary team provides
subspecialized medical care as well as standardized assessment of development, which
allows for the monitoring of medical complications, improvement in follow-up, and the
ability to measure long-term outcomes for this population. If a child is presenting with
symptoms associated with an autism-spectrum disorder the family is referred for an
autism-specific evaluation. Assessment results are communicated to the family and
individualized recommendations are offered to assist in their plan of care.
www.nationwidechildrens.org/autism-treatment-network
Interdisciplinary
Care
Autism Screening
Developmental
Evaluations
33
Nationwide Children's Hospital:
Speech and Language Pathology
Speech
Language
Evaluations and
Treatment
Individual and
Group based
Sessions
STAR social
Skills program
Speech Language Pathology Department
700 Children’s Drive
Columbus, Ohio 43205
614.722.2200
Nationwide Children’s Speech Language Department provides comprehensive diagnostic
evaluations and therapeutic treatment for speech, language, and voice disorders. The
department provides services for clinical management of children from birth through age
21. Testing is completed based upon the child’s age, needs and diagnosis. Testing and
evaluation help our Speech and Language Pathologists to fully assess the child’s speech,
language and oral motor skills. We also offer complete assessments as a part of several
interdisciplinary clinics across the hospital disciplines. Some of the diagnoses and
problems we treat: Acquired brain injury, Apraxia, Autism, Cleft palate, Auditory
Processing Disorders, Cochlear Implant, Feeding/oral motor disorders, Fluency/
Articulation/hearing and language disorders as well as Paradoxical vocal cord dysfunction.
SMART group
Treatment-ST
And OT
NBC Channel 4:
The Autism Puzzle
Media and
Communications
Awareness
Autism
Resources
NBC4
3165 Olentangy River Road
Columbus, Ohio 43202
www.theautismpuzzle.org
http://www.wcmhblogs.com/autism/
[email protected]
The Autism Puzzle is a multi-year, multi-program commitment by NBC4 to raise
awareness, share information and answer questions about autism. From therapies and
education to personal stories, we’ve introduced viewers to a community many previously
ignored or never understood.
Along with the broadcast, The Autism Puzzle provides experts and resources for
members of the community with questions. A live phone bank and web chat accompany
the broadcast. Answering the community’s need for more resources, expansion to print
editions of The Autism Puzzle magazine are now distributed for free to over 50,000
households, as well as our web portal TheAutismPuzzle.org, which is a centralized source
for all members of the community.
[email protected]
34
OCALI:
Ohio Center for Autism and Low Incidence
OCALI
470 Glenmont Ave.
Columbus, OH 43214
614.410.0321
[email protected]
ocali.org
Our goal is simple: Provide individuals with autism and low incidence disabilities
opportunities for meaningful and successful lives. How do we do it? Through leadership,
professional development, collaboration, and technology. Our six centers channel your
interests and passions and connect you to world-class tools, resources, and information.
In addition, our Center for Systems Change drives continued efforts in leadership and the
informing of public policy.
OCALI Centers
• Autism Center
• Disabilities Center
• Universal Design for Learning Center
• Assistive Technology Center
• Lifespan Transitions Center
• Family Center
• Center for Systems Change
Statewide Clearinghouse
of Information
and Resources
Leadership and
Capacity
Building
Professional
Development
and Technical
Assistance
Ohio Coalition for the Education of Children with Disabilities
OCECD 165 West Center Street
Suite 302
Marion, Ohio 43302
800.382.5452
www.ocecd.org
[email protected]
OCECD is the Parent Training and Information (PTI) Center for the state of Ohio. As a
statewide non-profit organization , OCECD is dedicated to advancing the education
interests of children with disabilities by providing information, training and support to
parents of children with any disability ages birth-26. OCECD offers free in-service trainings
for parents and professionals across Ohio. OCECD also provides State Parent Library
resource materials related to special education and specific disabilities.
Special
Education
Advocacy
Statewide
Non-Profit
Children with
Any Disability
Birth-26
www.nationwidechildrens.org/autism-treatment-network
35
Ohio Department of Developmental Disabilities
Services
Family Support
Interagency
Coordination
Ohio Department of Developmental Disabilities
30 East Broad Street, 12th Floor
Columbus, Ohio 43215
www.dodd.ohio.gov
Peggy Martin 614.466.8706
Jody Fisher 614.466.7317
[email protected] [email protected]
The Ohio Department of Developmental Disabilities (DODD) is responsible for overseeing
a statewide system of supports and services for people with developmental disabilities
and their families.
This system includes Ohio’s 88 County Boards of DD and ten Developmental Centers that
serve approximately 90,000 children and adults. DODD continually strives to lead the
field of DD through specific initiatives so that Ohioan’s with developmental disabilities and
their families will experience lifestyles that provide opportunities for personal security,
physical and emotional well-being, full community participation, productivity, and equal
rights. DODD also has statutory authority to convene Ohio’s Interagency Work Group on
Autism, building partnerships to improve Ohio’s response to autism.
Ohio Department of Health, School & Adolescent Health,
School Nursing Program
Training and
Technical
Assistance
Educational
Resources for
School health
Professionals
Data Collection
Regarding
School health
Services
Ann Connelly, MSN, RN, LSN, NCSN
Supervisor, School Nursing Program
246 N. High St.
Columbus, OH 43215
614.728.0386 Fax 614.564.2503
[email protected] www.odh.ohio.gov
This ODH program supports the provision of quality health services in schools & Head
Start programs to promote student health and success. School Nurse consultants are
available as resource experts to individuals, organizations and agencies interested in
school health. Services include:
• Telephone & e-mail technical assistance
• Development & dissemination of resources, including new “Ohio School Nurse
Human Trafficking Protocol”
• Annual statewide training of new school nurses
• Annual topically focused regional conferences
• Monthly webcasts & online training on a variety of topics for nurses
• Collaboration & recommendations on guidance, policies, procedures & standards of
care for school health services
• Electronic communication through the School Nurse Bulletin Board
[email protected]
36
Ohio Developmental Disabilities Council
Ohio Developmental Disabilities Council
899 E. Broad St., Suite 203
Columbus, OH 43205
614.466.5205
Fax: 614.466.0298
www.ddc.ohio.gov [email protected]
The Ohio Developmental Disabilities Council is one of a national network of state councils,
committed to self-determination and community inclusion for people with disabilities. DD
Council receives federal funding for innovative advocacy, capacity building and systems
change activities. These activities are designed to contribute to a coordinated system of
services, supports and other assistance that is centered around and driven by individuals
with developmental disabilities and their families.
The Ohio Developmental Disabilities Council consists of at least 30 members appointed by
the governor. Members are people with developmental disabilities, parents and guardians
of people with developmental disabilities, representatives from concerned state agencies,
and nonprofit organizations and agencies that provide services to people with
developmental disabilities. The DD Council supports various projects, events and provides
funding for grants in the area of Autism and other related developmental disability issues.
DD Council provided funding for the Living Beyond Autism project and sponsored Nisonger Autism Institute.
Planning and
Advocacy
Grant Funding
Capacity Building
The Ohio State University:
College of Education and Human Ecology
College of Education and Human Ecology at The Ohio State University
127 Arps Hall
1945 North High Street
Columbus, Ohio 43210
614.292.6991
http://ehe.osu.edu
The College of Education and Human Ecology aims to solve pressing problems for
consumers, families, schools and communities through its teaching, research, and
community efforts. It is ranked 9th among public universities and 18th among public and
private institutions in the current U.S. News & World Report graduate program guide.
There are 150 full-time faculty members, who teach 3,900 undergraduates and 1,700
graduate students with degrees and specializations available in special education,
including a focus on autism.
www.nationwidechildrens.org/autism-treatment-network
Educational
Institution
Research
Community
Engagement/
Outreach
37
The Ohio State University:
Disability Studies
Disability
Research
Students
Disability Studies at The Ohio State University
421 Denney Hall
164 W 17th Ave.
The Ohio State University
Columbus, Ohio 43210-1370
614.292.6555
Disability Studies at The Ohio State University addresses the nature, meaning, and
consequences of disability in global culture from an integrated social, political, and
cultural model. It incorporates historical, phenomenological, political , cultural,
ethnographic, medical, sociological, technological, educational, and legal perspectives in
order to provide an enriched and coherent view of disability as part of universal human
experience, by understanding and analyzing disability as a phenomenon that
simultaneously manifests itself at the bodily, person, and societal levels.
Disability studies at OSU offers an undergraduate minor and a Graduate Interdisciplinary
Specialization designed to provide opportunities for research and contexts for
understanding the meaning and experience of difference in society by requiring students
to examine how disability intersects gender, race, class, age, and sexuality.
The Ohio State University Nisonger Center:
UCEDD
Intellectual
Disability
Autism
Spectrum
Disorders
Interdisciplinary
The Ohio State University Nisonger Center
357 McCampbell Hall
1581 Dodd Dr.
Columbus, Ohio 43210
614.685.3192
http://nisonger.osu.edu
The Ohio State University Nisonger Center was founded in 1966, among the first group of
federally funded University Centers for Excellence in Developmental Disabilities. We are
widely respected for our interdisciplinary research, education and clinical services. The
Nisonger Center is proud to be part of The Ohio State University Medical Center and Office of Health Services. We have a strong and dynamic team of researchers, clinicians,
teachers, staff and trainees who strive to improve the lives of persons with disabilities
and their families across the lifespan.
Clinics/Programs include: ASD diagnostic clinic; Interdisciplinary Family Directed Clinic
(Comprehensive Developmental Evaluations); Williams syndrome clinic; Adult Down
syndrome clinic; Aspirations social program for teens and adults with ASD; Transition
programs: employment, post-secondary education, independent living and healthcare;
Dental clinics; Early Intervention/Early Childhood Education classrooms; Next Chapter
Book Clubs: Literacy program; Health promotion and reducing healthcare disparities;
Child & adult behavior support services; Neurodevelopmental psychiatric clinic.
[email protected]
38
The Ohio Statue University Nisonger Center:
Dental Program at Johnstown Road
Nisonger Dental Clinic at McCampbell Hall
1581 Dodd Drive – 614.685.3197
Nisonger Dental Clinic at Johnstown Road
2879 Johnstown Road - 614.342.5795
www.nisonger.osu.edu/dental
The Nisonger Dental Program provides preventative and comprehensive dental care
for patients of all ages with or without Intellectual and Developmental Disabilities and
other special healthcare needs. We have 2 clinics: one is located in the Franklin County
Board of Developmental Disabilities Early Childhood Education Center and the other is
located on the Ohio State campus in the Nisonger Center/McCampbell Hall building. The
dental program is also a training site for dental students and residents as well as dental
hygiene students from The Ohio State University College of Dentistry.
Comprehensive
Pediatric dental
Care for Patients
of all ages
Dental Home for
Children with or
Without special
Needs and
Developmental
Disabilities
Affiliated with
OSU Dental
College and
Nationwide Children’s Hospital
The Ohio Statue University Nisonger Center:
Early Childhood Education
Nisonger Center Early Childhood Education
McCampbell Hall
1851 Dodd Drive
Columbus, Ohio 43210
http://nisonger.osu.edu/ece
[email protected]
Preschool
Inclusion
The Nisonger Early Childhood Education Program is an inclusive preschool program for
children ages 1-6. Children who are typically developing and children with developmental
disabilities participate in child-directed, developmentally appropriate, play-based
classroom activities. A team of teachers and therapists work with families and one
another to develop individualized educational objectives to optimize each child’s
development.
Therapy
www.nationwidechildrens.org/autism-treatment-network
39
The Ohio Statue University Nisonger Center:
Neurodevelopmental Psychiatry Study Program
(formerly Dual Diagnosis Clinic)
Diagnostic
Consultations
Psychiatric
Services
Nisonger Clinics
395 McCampbell Hall
1581 Dodd Dr.
Columbus, Ohio 43210
614.685.6701
http://nisonger.osu.edu/
The Nisonger Neurodevelopmental Psychiatry Study Program (formerly Dual Diagnosis
Clinic) provides outpatient psychiatric services to children and adults with IDD and mental
health needs with support from the Franklin County Board of MR/DD and the Franklin
County ADAMH board. The study program provides diagnostic consultation services to
community physicians and ongoing psychiatric services and medication management. Referrals come to the center through IDD service coordinators, Netcare and Franklin County
mental health centers
Medication
Management
The Ohio State University Nisgoner Center:
Toy and Technology Library
Lending Library
Consultation
Assistive
Technology
Toy and Technology Library—The Ohio State University Nisonger Center UCEDD
286 McCampbell Hall
1581 Dodd Drive
Columbus, OH 43210
614.688.3431
http://nisonger.osu.edu/ttlibrary
[email protected]
The Toy & Technology Library is an exciting, non-profit resource for Ohio’s children with
disabilities, their families and professionals who serve them. The library houses over 1500
developmental, adapted, switch-activated toys, switches and light tech communication
devices for families to borrow for 30 day loan periods. A computer lab is available to
preview software and try out hardware. Our staff is highly skilled and knowledgeable
regarding software and computer access products as well as other areas of assistive
technology. This is a free service for families. Please call or email to schedule an
appointment.
[email protected]
40
The Ohio Statue University Nisonger Center:
Williams Syndrome Clinic
Williams Syndrome Clinic
Developmental & Behavioral Pediatrics
700 Children’s Drive
Columbus, OH 43205
Contact: Andrea Subler, M.S.W.
614.722.4050 http://nisonger.osu.edu/williams
The Williams Syndrome Clinic is a multidisciplinary clinic that addresses the medical,
behavioral, and educational needs of individuals with Williams syndrome. The Williams
Syndrome has specialists across a wide range of disciplines from both Nationwide
Children’s Hospital and Nisonger Center of The Ohio State University. The multidisciplinary
nature allows for comprehensive and individualized care for those who have Williams
syndrome.
The Williams Syndrome Clinic Team includes: Developmental/Behavioral Pediatrician,
Licensed Psychologist, Speech/Language Pathologist, Nurse, Occupational Therapist,
Physical Therapist, and Genetics Counselor. Psychology trainees also have the opportunity
to be involved in our monthly multidisciplinary Clinic.
Williams
syndrome
Medical
care
Behavioral
care
Multidisciplinary
clinic
The Williams Syndrome Clinic meets the 2nd Tuesday of each month. Additional activities
are organized for families through the Williams Syndrome Program at The Ohio State
University’s Nisonger Center http://nisonger.osu.edu/williams
REACH Autism Program
Reach Autism Program
Columbus City Schools-Sullivant Elementary
791 Griggs Avenue
Columbus, Ohio 43233
614.365.6524
[email protected]
The REACH Autism Program provides the children and families affected by autism
spectrum disorder (ASD) living in the Columbus City School district with a comprehensive
instructional program based on best practices for students with autism.
Through collaboration, consensus building, regular open communication, and expanding
roles across education and service boundaries, highly qualified team members provide
integrated services for children and their families. Team members share responsibility
and are accountable for how each child’s instructional plan is implemented. Educational
environments are designed to foster optimal growth across all developmental domains by
capitalizing on students’ strengths while supporting the unique learning and behavior
challenges faced by individuals with ASD.
www.nationwidechildrens.org/autism-treatment-network
Intensive Early
Intervention
Preschool to
Primary
MultiDisciplinary
41
Red Treehouse
Resources to
meet needs
Overcome
challenges
Promote
well-being
Linda Kresnye, Program Manager—Red Treehouse
Ronald McDonald House® of Cleveland, Inc.
10415 Euclid Avenue
Cleveland, OH 44106
216.229.5757 x 1126
[email protected] www.RedTreehouse.org
RedTreehouse.org is a statewide, online resource for families and professionals to
promote the well-being of children and young adults prenatal to age 25. Whether needs
or challenges are immediate or long term, RedTreehouse.org can help you discover
answers to questions or concerns about specific needs and challenges, and the needs of
the whole person; and make connections to community-based health, social service and
education organizations, support networks, and events in your community for help and
encouragement.
Red Treehouse is a collaborative effort of the Ronald McDonald House ® of Cleveland,
Inc., and Ohio Family and Children First.
ResearchMatch.org
Research
participation
Autism research
Volunteer registry
ResearchMatch.org
www.researchmatch.org
Contact in Columbus [email protected], Institutional Liaison at OSU
614.293.4198
ResearchMatch has a simple goal – to bring together two groups of people who are
looking for one another: (1) people who are trying to find research studies, and (2)
researchers who are looking for people to participate in their studies. It is a free and
secure registry that has been developed by major academic institutions across the
country who want to involve you in the mission of helping today’s studies make a real
difference for everyone’s health in the future. A new Autism Spectrum Disorder
sub-registry has just been launched within ResearchMatch.
Research volunteers change the future of health care…one discovery at a
time. Volunteers of all ages, both healthy and those with specific medical conditions, are
essential to the progress of research and better health care.
Register as a potential volunteer any hour of the day. Children under the age of 19 or
those with a guardian can be registered by a parent or guardian. Only 5% of children with
autism spectrum disorder in the US participate in clinical research. For discoveries,
research needs volunteers.
[email protected]
42
Richland Newhope
Richland Newhope
314 Cleveland Avenue
Mansfield, Ohio 44902
419.774.4200
www.rnewhope.org
We are a county board program that offers a person-centered approach to services and
supports in our community. We believe that the individual and their families are better
able to articulate their needs and direct their resources rather than have a program
dictate their needs. However, we also strive to be proactive in meeting the growing
needs of the citizens in our community who have various developmental disabilities, and
of special concern is the growing numbers of children and adults being diagnosed with
ASD. We have developed a committee of dedicated staff who are working with
community partners that include other agencies such as the Mental Health Board, the
Rehab Center servicing the north central Ohio, the university campuses of North Central
State College and OSU/Mansfield, plus other schools and programs in our community as
we seek better ways to support individuals with ASD. We have brought a nationally
recognized speaker to address parents, professionals, and caregivers in our community
and to help educate our community to understand how we can respond in a way that will
allow the individual and family to achieve optimal outcomes for their futures.
Services
Supports
Collaboration
Skylight Financial Group: Special Needs Planning Team
Sara Canterbury and Bernie Garrah, ChFC, CLU, CFBS, ChSNC
Skylight Financial Group
5455 Rings Road, Suite 125
Dublin, OH 43017
614.790.9806
[email protected] [email protected]
At Skylight Financial Group, we know that your first priority is making sure all of the needs
of your loved ones are met. Our priority is delivering solutions to families, businesses and
organizations with a focus on their special needs. We are proud to specialize in serving
the special needs community, and understand that your situation requires careful
guidance from specialists who share a commitment to the cause. We are innovators in
providing the special needs community of Ohio with access to information, a network of
resources, education and financial strategies through a process that encourages ongoing
communication with all those involved.
www.nationwidechildrens.org/autism-treatment-network
Life Care
Planning
Fully
Integrated
Dynamic
Financial
Planning
43
Shopworks Theatre Company
Day Services
Theatre Company
Personal
Development
Shopworks Theatre Company
Cary Johnston, Creative Director
MADLAB, 227 North 3rd Street, Columbus, Ohio 43215
1060 Kingsmill Parkway, Columbus, Ohio 43229
614.848.4357 ext. 204 614.588.5812
[email protected] CoriCare.com
Shopworks Theatre Company supports self-expression and personal development
through the performing arts. Cast members participate in all aspects of theatre: writing,
acting, designing sets, creating costumes, running sound and lighting, filming and
marketing their original productions. Engagement in the Company builds the performers’
self-confidence, self-awareness and self-expression. Shopworks prides itself on “building
lives one act at a time.”
Shopworks also serves the larger community as a destination entertainment center
designed to welcome a variety of populations to enjoy a show in a laid back and accepting
atmosphere.
Southeastern Ohio Center for Independent Living (SOCIL)
Educational
Programs
Community
Resources and
Services
Life Skills—
Transitions
Southeastern Ohio Center for Independent Living
418 South Broad Street
Lancaster, Ohio 43130
740.689.1494 x12
[email protected]
Southeastern Ohio Center for Independent Living (SOCIL) is a non-profit consumer
controlled organization that serves all ages with all types of disabilities in Fairfield and
Hocking Counties. SOCIL’s educational series of programs are designed to offer
continuous opportunities to learn about the latest information and resources available to
assist individuals with autism and other disabilities, and their families. Everyone from
parents and grandparents, general and special education teachers, administrators,
speech and occupational therapists, and any other professional working with individuals
with a diagnosis of an autism spectrum disorder is invited to attend these free programs
presented by researchers, doctors and therapists. Topics cover information to meet the
diverse needs of parents and educators with newly diagnosed children, clear up to
planning and preparing for the transition into higher education, employment and
independent living. SOCIL also offers free programs for adults with aging parents, and
older adults with chronic health conditions.
[email protected]
44
Step by Step Academy, Inc.
Step by Step Academy, Inc.
445 East Dublin Granville Road
Worthington, Ohio 436085
614.436.7837
www.stepbystepacademy.org
Step by Step Academy is a CARF accredited Mental Health Agency that provides
comprehensive, individualized treatment programs for adults, adolescents and children
that are built around a person-centered plan. Step by Step Academy specializes in Autism
Spectrum Disorders including autism, PDD and asperger's. In addition, our staff brings
years of experience in diagnosing and working with other disorders such as Obsessive
Compulsive Disorder, Attention-Deficit, Hyperactivity Disorder, Attention-Deficit Disorder,
Developmental Delays, Speech Delays, Anxiety Disorders and Pica. Step by Step Academy
excels through the interaction with individuals we serve, we focus on empowerment in
the community to bring about outcomes of improved quality of life functioning.
Lynn Tramontano:
Financial Advisor
Special Needs Planning at Edward Jones
Lynn Tramontano - Financial Advisor
1500 W. Third Ave
Suite 102
Columbus, Ohio 43212
614.488.4717
[email protected]
As an Edward Jones financial advisor, I bring my full career experience and my passion into my
practice. I believe that it's important to invest my time to understand your family's goals and
we both know the importance of a strategy to help protect your loved one with special
needs. I have worked with families of loved ones with special needs in various capacities for
over 20 years. I have the unique experience and heartfelt passion to work with families of
loved ones with special needs through the complicated maze of government benefits such as
Medicaid and Social Security, utilizing attorneys who specialize in this area and providing
solutions for families with the often conflicting goals of trust funding, retirement and meeting
other financial goals such as college savings. Every day I assist families with difficult issues.
For example:
•"Why are my future plans different than other families?"
•"I find it difficult to start planning because I don't know where to start."
• "I worry about what will happen to my son/daughter when I pass away. What is the best
way for me to leave my estate to my loved one?"
• “I have other financial goals that seem to compete for my hard-earned dollar. How do I plan
for this too?"
www.nationwidechildrens.org/autism-treatment-network
Behavioral
Health
Counseling and
Therapy
Treatment
Psychiatric
Services and
Medication
Evaluation
Adult day
Program and
Employment
Services
Personalized
Approach
Special Needs
Planning
Strategies to
Protect
45
VSA Ohio:
The State Organization on Art and Disability
Cultural Access
Art Education
Professional
Development
VSA Ohio
77 South High Street, 2nd Floor
Columbus, OH 43215
614.241.5325
www.vsao.org
[email protected]
VSA Ohio was founded in 1986 with the mission to empower people with disabilities,
creatively and inclusively, through the arts. VSAO promotes enrichment through the arts
for all abilities, artistic mediums, and ages. VSAO changes perceptions about dis/ability by
connecting people to accessible, creative opportunities that inspire all of us. By bridging
arts, education, and disability, our programs and services constantly evolve to provide
inclusive environments and accessible opportunities for people with disabilities to
celebrate life through the arts.
VSA Ohio programs include an annual visual art and music competition, artist residencies
in inclusive K12 classrooms, professional development for artists, outreach and advocacy,
and a travelling disability film festival.
WorkNet
Customized
Employment
Plans
Job
Development
And Coaching
Follow-Along
Services
Worknet
16900 Square Drive, Suite 100
Marysville, Ohio 43040
937.645.6774
www.ucbdd.org
[email protected]
WorkNet, the Employment Services Division of the Union County Board of DD (UCBDD),
provides employment related services to people eligible through UCBDD. All services are
customized to you, the individual served. Initially, a vocational profile is completed with
emphasis placed on ‘getting to know you.’ Through this tool, WorkNet’s employment
team determines a career goal that matches your strengths and interests. It is our
objective to develop a career, not just a job. Services provided through WorkNet include
Project SUCCESS & SUCCESS Plus (Summer Youth Programs that encompass Job Seeking
Skill Training and community based job Try-outs), Work adjustments experiences, Short
Term Internships, Career Awareness, Job Development, Job Coaching and Follow-along
services.
[email protected]
46
Research
In Central Ohio
47
Nationwide Children’s Hospital:
Autism Treatment Network Biorepository
Genetics
ATN
Registry
Nationwide Children’s Hospital Child Development Center
187 W. Schrock Road
Westerville, OH 43081
614.355.8389
[email protected]
The ATN (Autism Treatment Network) was established to improved the lives of children
and families affected by autism by creating a network of high quality medical care centers
engaged in a systematic approach to improving the care of children with ASD and the
dissemination of practice guidelines into wider clinical practice. The goal of the ATN
Registry is to provide data to identify medical conditions and track medical, behavioral
and quality of life outcomes in children with ASD to help identify best practices and
improve care. The primary aim of this study, the ATN Biorepository, is to expand the data
collection efforts of the ATN to include the collection of biomaterials. The addition of this
data to the ATN Registry will increase depth and breadth of both the ATN data thereby
facilitating genetic studies in autism, accelerating the understanding of causes and varied
courses of ASD, and facilitating discovery of new therapeutics.
Nationwide Children’s Hospital:
Autism Treatment Network Registry
Multidisciplinary
Approach
Multisite
Research
Nationwide Children’s Hospital Child Development Center
187 W. Schrock Road
Westerville, OH 43081
614.355.8389
[email protected]
www.nationwidechildrens.org/autism-treatment-network
The Autism Treatment Network Registry database tracks the care and outcomes of
children seen in network facilities. We are expanding the capacity to collect useful
biological materials for the Registry. In doing so, we are increasing our ability to address a
range of metabolic, genetic and gastrointestinal concerns through scientific research.
These materials also provide the wider autism research community with the resources
they need to advance autism screening and treatment. In addition, our ongoing clinical
research continues to address issues related to diet and nutrition, psychiatric comorbidity
sleep disturbances, neurological problems, metabolic disorders, bone mineral density,
constipation and toilet training, iron deficiency and other concerns. Our researchers are
also looking into maternal cholesterol and autism, improving the measurement of
treatment outcomes, and potential biomarkers in toddlers with autism and regression.
Currently, there are over 6500 children age 2 to 17 enrolled in the ATN registry. To find
out more about the registry, please visit: http://www.autismspeaks.org/science/
resources-programs/autism-treatment-network/what-atn
[email protected]
48
Nationwide Children’s Hospital:
Clinical Research Services
Nationwide Children’s Hospital
Clinical Research Services
545 S. 18th Street, Suite TH485
Columbus, Ohio 43205
614.722.2607
[email protected]
Has your child been diagnosed with an autism spectrum disorder (ASD)? The Department
of Behavioral Health at Nationwide Children’s Hospital is doing a research study for
children with an investigational medicine for the improvement of Thinking, Memory and
Learning in children ages 6 to 12 who have been diagnosed with autism. Qualified
participants may receive the following at no cost: study related medical care, study
medication, compensation for time and travel. If you are interested in having your child be
in this study or would like more information about this study: Please call (614) 722-2650
and ask for Melinda Helton, RN, study coordinator.
Memantine
Research Study
Autism
Nationwide Children’s Hospital:
Preemie Tots Study
Dr. Sarah Keim
Center for Biobehavioral Health
The Research Institute, Nationwide Children’s Hospital
700 Children’s Drive, JW4999
Columbus, OH 43205
[email protected]
Preemie Tots: A Pilot Study to Understand the Effects of Prematurity in Toddlerhood is
designed to compare long chain polyunsaturated fatty acids (LCUPFA) levels between
children born prematurely who are and are not displaying ASD symptoms at a very young
age, and study differences in Oxidative Stress, ASD, and hyperactive behavior after 90
days of a LCPUFA intervention. This clinical trial consists of an intervention (IG) group and
a comparison group (CG). Forty families of children who screen positive on at least one
ASD behavioral screener comprise the IG and are randomized to either fatty acid oil or
placebo oil. The CG is comprised of forty families of children who did not screen positive
on any behavioral screener and are matched to children in the IG.
www.nationwidechildrens.org/autism-treatment-network
Research
Prematurity
Nutrition
49
Nationwide Children’s Hospital:
SynapDx Autism Spectrum Disorder Gene Expression Analysis
Genetics
Developmental
Disabilities
Nationwide Children’s Hospital Child Development Center
187 W. Schrock Road
Westerville, OH 43081
614.355.8389
[email protected]
This study is testing a unique way to analyze the potential genes that could be involved in
causing autism. The new approach tries to maximize agreement between the
classification and a clinical assessment of presence or absence of autism spectrum
disorder. This research is being done at a large number of centers around the country and
is enrolling both children with ASD as well as children with other developmental
disabilities other than an ASD.
Diagnostic
Tool
Nationwide Children’s Hospital:
Treatment Resistant Epilepsy (TRE)
In Children with Autism
Autism
Spectrum
Disorder
Epilepsy
Dietary
Supplement
Nationwide Children’s Hospital
700 Children’s Drive
Columbus, OH 43205
614.722.6931
[email protected]
Children 6-21 with a current diagnosis of Autism
• (The child does not need to have a current diagnosis, TRE study staff can make the
diagnosis)
Child has had treatment resistant seizures
• As defined by trials of 3 or more anticonvulsants with continued seizure frequency of
at least 1 per week, need to use helmet, or vagal nerve stimulator placement
Willingness to participant to:
• Receive a new dietary supplement to treat seizures
• Participate in blood draws
• Complete survey’s and interviews
Qualified volunteers will have a comprehensive mental health history taken, as well as
blood draws and urine tests at no cost to you, and will be compensated for their time for
up to four completed visits. Participants will receive dietary supplements free of charge.
Participation in a research study is completely voluntary.
[email protected]
50
Nationwide Children’s Hospital:
Wireless Moisture Pager
Child Development Center
187 West Schrock Rd
Westerville, OH 43081
Ph: 614.355.8315
Fax: 614.355.8361
[email protected]
The purpose of this study is to develop a treatment protocol for helping children with ASD
achieve independence in using the toilet for urination. The protocol will involve use of a
newly-developed moisture alarm system. When moisture is detected, the pager will send
a signal to an iPod prompting the parent to take the child to the toilet. The study will
therefore evaluate the benefit of adding the alarm system to standard behavioral
treatment of urinary incontinence. Potential participants should be between 3 and 6 years
of age, have an ASD diagnosis, and demonstrate an inability to use the toilet for urination.
Toilet
Training
Intervention
Study
Moisture
Alarm
Nationwide Children’s Hospital and Nisonger Center:
Treatment of Overweight Induced by Antipsychotic
Medication in Young People with ASD
The Ohio State University Nisonger in Collaboration with The Child Development Center at
Nationwide Children’s Hospital
1581 Dodd Drive
Columbus, Ohio 43210
614.685.3219
[email protected]
Atypical (new) antipsychotic medicines are the only medications approved by the Food
and Drug Administration for use in children with autism. Several studies show troubling
increases in weight in children with autism treated with these medications. Atypical
antipsychotic medications are commonly used and are effective for managing agitated
behavior in children with autism spectrum disorders. However, there is a pressing need to
test whether metformin, a medication that helps control the amount of glucose in the
blood, can offset the weight gain often seen in children treated with these drugs. The
purpose of this study is to determine whether or not metformin can help reduce weight in
children (ages 6-17 years old) with ASD who have gained weight from taking atypical
antipsychotic medications. These include Risperdal, Abilify, Invega, Seroquel, and Zyprexa. This study lasts a total of 36 weeks. The first 16 weeks involve a double-blind, placebo-controlled clinical trial of metformin and placebo. This is followed by a 16-week trial
of known metformin for all so that everyone who participates in the double-blind trial
gets a chance to try metformin. Please contact Alexis for more information.
www.nationwidechildrens.org/autism-treatment-network
Autism Spectrum
Disorders
Atypical (new)
Antipsychotics
Weight Gain
51
The Ohio State University:
Shakespeare and Autism
Theatre
Workshops
Intervention
Research
Shakespeare and Autism
Robin Post, Program Director
1849 Cannon Drive
Columbus, Ohio 43210
614.292.0834
[email protected]
Shakespeare and Autism is a research project that implements The Hunter Heartbeat
Method, created by actor and director, Kelly Hunter. The method transforms the
complexities of Shakespeare’s poetry and storytelling into a sequence of games that are
specifically tailored to break through the communicative blocks of autism. The ODU/RSC
partnership fostered a new partnership between OSU’s Department of Theatre and The
Nisonger Center that will enable a research team to evaluate the effectiveness of the
work to change the core features of autism while theatre students lead children on the
spectrum in active experiential theatrical engagement with their peers.
Teaching Artist
Workshops
The Ohio State University Nisonger Center:
Atomoxetine, Placebo and Parent Training in Autism
ADHD
and
ASD
Impulsiveness,
Impaired
Attention
Overactivity
Parent Training
The Ohio State University
Nisonger Center
1581 Dodd Drive
Columbus, Ohio 43210
614.668.8214
[email protected]
While many children with Autism Spectrum Disorders (ASD) display symptoms of
inattention and overactivity, research has found that children with ASDs do not respond
as well to treatment as typically developing children. Children with ASDs appear to have
more frequent side effects to medications used to treat these symptoms. Therefore, new
treatment options are needed. Interventions for parent use are also needed.
The CHARTS study examines the use of an investigational medication, Straterra
(atomoxetine) and parent training sessions for the treatment of impulsiveness,
inattention, and/or overactivity in children (ages 5-14 years) diagnosed with Autism
Spectrum Disorders. Parent training sessions are intended to help families manage their
child’s challenging behaviors. Individualized sessions of 60-75 minutes are conducted
weekly for families randomized to the behavior intervention condition. The study
involves 10 weekly clinic visits followed by an optional 24 week follow-up study (monthly
visits). There are no costs to participate. Parents receive partial reimbursement for their
time, mileage reimbursement, and parking at each visit.
[email protected]
52
The Ohio State University Nisonger Center:
Memantine Study on Children with Autism
The Ohio State University
1581 Dodd Drive
Columbus, Ohio 43210
614.685.3222
[email protected]
Memantine
Social Disability
Children with autism have difficulty with social interactions, verbal communications, and
repetitive behaviors. Researchers at OSU’s Nisonger Center are conducting this study to
find out if the drug, memantine, can help treat these core symptoms in children with
autism. asperger’s disorder, or PDD-NOS. The study will determine whether participating
children will have a benefit response to memantine. This could show up in verbalization,
social interactions, or cognitive performance. Through the course of this study,
participants will come to Nisonger Center to meet with psychiatrists, clinicians, and other
study personnel. This study is recruiting children ages 6-12 with autism spectrum
disorders. We will provide you with an evaluation to determine study eligibility and
parents will receive some reimbursement for their time and parking at each visit.
Communication
Cognition
The Ohio State University Nisonger Center:
Parent Training Study in Young Children with Autism
The Ohio State University Nisonger Center
1581 Dodd Drive
Columbus, Ohio 43210
614.685.3200
[email protected]
Many young children on the autism spectrum display behavioral issues such as tantrums,
aggression, or self injury. Researchers at OSU’s Nisonger Center are conducting a study
to help parents learn how to reduce these problem behaviors. Specifically, we are
comparing the effectiveness of two programs: structured parent training (PT) and an
intensive psycho educational program (PEP). This six month study involves 11-13 individual
sessions of either PT or PEP (randomly assigned) with a psychologist, along with monthly
assessments.
Preschool
Behavior
Problem
Parent Training
This study is recruiting parents of children 3 to 6 years old with an autism spectrum
disorder and significant behavioral problems. We provide an evaluation to determine
eligibility, and parents are reimbursed for their time, mileage, and parking at each visit.
www.nationwidechildrens.org/autism-treatment-network
53
Upcoming Events in 2013
September 2013
Lil Shoppa Horrors
Hosted By: Shopworks Theatre Company
When:
September 9th ,11th , and 13th at 1pm
[email protected]
Orientation for Nurses New to Ohio
Schools, Reynoldsburg
Hosted By: Ohio Department of Health School &
Adolescent Health School Nursing
Program www.odh.ohio.gov
When:
September 11-13
Special Needs Planning and
Understanding Social Security
Presenter: Lynn Tramontano
Financial Advisor
Edward Jones
Presenter: Heather Dulle
Regional Vice President
Protective Life Insurance Company
When:
September 12, 2013 @ 6:30 pm
Where:
Ohio Bar Association
1700 Lake Shore Dr.
Columbus, Oh 43202
Dinner will be served, limited seating.
RSVP To reserve space for this educational workshop,
please call Janet at (614) 488-4717 no later than Sept. 6.
(for more information contact Janet Weber 614-488-4717
or [email protected])
An Overview of OCALI’s Family Resources
Hosted by: Southeastern Ohio Center for
Independent Living (SOCIL)
Presenter: Julie Short Ohio Center for Autism
and Low Incidence (OCALI)
When:
Thursday, September 12, 2013
6:30 – 8:00 pm
Where:
Ohio University-Lancaster
Brasee Hall
5th Floor Gallery
1570 Granville Pike
Lancaster, OH
There is no cost to attend.
Registration required: Linda McDonald at SOCIL
[email protected]
740/689.1494 x12
FAMLS Session: Neurology and Autism
Presenter: Emily de lost Reyes, MD
When:
September 18th 6:30pm—8:30pm
Where:
OCALI
470 Glenmont Road
Columbus, OH 43214
If you have questions and/or concerns regarding
Neurology for children with autism, then this is a great
session to attend!
Register at [email protected]
October 2013
Integrative Medicine and the
Behavioral Treatment of Autism
Hosted by: Southeastern Ohio Center for
Independent Living (SOCIL)
Presenter: Allen T. Lewis, M.D., Integrative
Pediatrics of Ohio, LLC
When:
Thursday, October 3, 2013
6:30 – 8:30 pm
Where:
Ohio University-Lancaster
Brasee Hall
5th Floor Gallery
1570 Granville Pike
Lancaster, OH
[email protected]
Paraprofessional Training: “Working with
Students with Autism Spectrum Disorder.”
Presenter: Kristin Vigar,
Educational Consultant
When:
October 3-4, 2013
8:30 am – 3:30 pm
Where:
4255 Northfield Road
Highland Hills
Ohio 44128
www.achievementcenters.org/training
54
Upcoming Events in 2013
October 2013 Cont’d
Creative Conversation: Cultural Institutions ReelAbilities Columbus Disability
and Autism
Film Festival
Hosted by: VSA Ohio
When:
Monday October 7, 2013
8:30PM (Film screening at 7:00pm)
Where:
Ohio Historical Society
www.vsao.org
Hosted By: VSA Ohio
When:
October 4-7, 2013
Where:
Multiple Venues
columbus.reelabilities.org for show times,
venues, and program info.
Walking Families Through Government
Halloween Musical Harvest
Hosted By: Shopworks Theatre Company
Benefits: Covering all ages from children to
When:
October 23rd, 25th, and 28th at 1pm
young adults
[email protected]
Hosted by: Southeastern Ohio Center for
Independent Living (SOCIL)
Presenter: Susan Sarlo,
Individual Benefits Coordinator,
Fairfield County Board of DD
When:
Tuesday, October 22, 2013
6:30 – 8:00 pm
Where: Ohio University-Lancaster, Brasee Hall,
5th Floor Gallery,
1570 Granville Pike, Lancaster
There is no cost to attend.
Registration required: Linda McDonald at SOCIL
[email protected]
740/689.1494 x12
COSI: Autism Awareness and Activities
When:
Satuday, October 26th
9am– Noon
Explore COSI and hour before opening in an autismfriendly environment!
$9 Per Person. Free to COSI Members. Pre-registration is
required. Limited Availablity
To register, visit http://cosiautism.eventbrite.com
November/December 2013
Music Therapy: An Enjoyable Way for
Children with Autism to Express
Themselves
Hosted by: Southeastern Ohio Center for
Independent Living (SOCIL)
Presenter: Erin Spring, MM, MT-BC
When:
Tuesday, November 12, 2013
6:30 – 8:00 pm
Location: Ohio University-Lancaster,
Brasee Hall,
5th Floor Gallery,
1570 Granville Pike, Lancaster
There is no cost to attend.
Registration required: Linda McDonald at SOCIL
740/689.1494 x12
[email protected]
OCALICON 2013
When:
Where:
November 20-22, 2013
Greater Columbus Convention Center
400 High St.
Columbus, OH 43215
http://conference.ocali.org/
Turkey Trot to benefiting Easter Seals
Thursday, November 28th, 2013
Thanksgiving Morning
Registration starts at 7:00am
Race begins at 9:00am
http://www.columbusturkeytrot.com
When:
Christmas Carole Mashup
Hosted By: Shopworks Theatre Company
When:
December 16th, 18th, and 20th at 1pm
[email protected]
Autism Awareness &
Activities Days at COSI
Saturday, October 26, 2013, 9am-Noon
$9 Per Person | Pre-Registration Required | Limited Availability
Meet with Nationwide Children Hospital's Autism Specialists and pick up resources from
other community organizations. Enjoy a free continental breakfast sponsored by the Autism
Society of Central Ohio. Registrants will receive discounts on admission that day to COSI’s
Adventure exhibition and Extreme Screen movies!
Pre-registration is required.
To maintain the best possible environment for participating children, early admission to COSI
is open to the first 250 pre-registered guests only. Please note COSI will open to the general
public at 10am on October 26. A limited amount of needbased family assistance funding is available through the
Autism Society of Central Ohio for families. Parking is $5 per
car in the lots surrounding COSI. Parking validation is
required. Please bring your parking stub into COSI with you.
This special COSI event is held in partnership with Nationwide Children's Hospital Child Development Center - Autism
Treatment Network and the Autism Society of Central Ohio
and is exclusively for families with children with on the Autism Spectrum. COSI Members admitted free with advance
registration.
TO REGISTER, PLEASE CALL 614.228.2674
PRE-REGISTRATION IS REQUIRED
COSI |333 West Broad Street | Columbus, OH, 43215
www.cosi.org
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Past Autism Leadership Reception Sponsors
If you are interested in being in the
2014 Directory
please send an email to:
[email protected]
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The Child Development Center (CDC)
Nationwide Children’s Hospital
187 W. Schrock Road
Westerville, Ohio 43081
[email protected]
614/355-8315
Visit us at: www.nationwidechildrens.org/autism-treatment-network
These materials are the product of on-going activities of the Autism Speaks Autism Treatment Network, a funded program of Autism
Speaks. It is supported by cooperative agreement UA3 MC 11054 through the U.S. Department of Health and Human Services, Health
Resources and Services Administration, Maternal and Child Health Research Program to the Massachusetts General Hospital.