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Clinics Serving Children and Adults who have OI: 2013
People who have OI sometimes receive some of their medical care through a special clinic at a large medical center. These clinics go by many names, including “bone dysplasia center,” or “medical
genetics clinic.” A clinic offers the benefit of a medical team experienced with OI and able to coordinate care. OI Clinics offer a wide range of services to children and adults. Regular appointments
include time with a primary care doctor, orthopedist and members of the rehabilitation team. Additional appointments with other specialists are available as needed. Upon request, the clinic will
send reports to hometown doctors if the family lives in a different city. Children and adults who must travel to an OI Clinic also need a local primary care provider who will handle their routine and
emergency needs.
This Clinic Directory is one step in the process of locating good medical care. It is the responsibility of parents and adults with OI to verify whether a particular medical team meets their needs. Only
by asking questions can you determine if a particular place is a good fit for you. This list is offered as a service. Being listed does not imply endorsement by the OI Foundation. More information
about developing a good working relationship with your primary care doctor or orthopedist is available in the OI Foundation fact sheets, Talking with your Primary Care Physician and Talking with
Your Orthopedist, available under the Resources tab of this website. For more information about individual clinics in this directory send an email to [email protected].
City
State
Hospital Name
Clinic Name
Clinic Director
Birmingham
Tucson
Los Angeles
Los Angeles
Madera
Oakland
Sacramento
Washington
Wilmington
Tampa
Honolulu
Chicago
Indianapolis
Lexington
Shreveport
Baltimore
Bethesda
Boston
St. Paul
Minneapolis
AL
AZ
CA
CA
CA
CA
CA
DC
DE
FL
HI
IL
IN
KY
LA
MD
MD
MA
MN
MN
University of Alabama Hospital
Shriners Hospital for Children- Los Angeles
UCLA School of Medicine
Children's Hospital Central California
Kaiser Permanente
Shriners Hospital for Children- Northern CA
Children's National Medical Center
A.I. duPont Hospital for Children
Shriners Hospital for Children- Tampa
Shriners Hospital for Children- Honolulu
Shriners Hospital for Children- Chicago
Riley Hospital/Indiana University
Shriners Hospital for Children- Lexington
Shriners Hospital for Children- Shreveport
The Kennedy Krieger Institute
National Institutes of Health
Children's Hospital Boston
Gillette Children's Specialty Healthcare
Shriners Hospital for Children- Twin Cities
Bone Dysplasia and Connective Tissue Disorders Clinic
Maria Descartes, M.D.
Children's Clinic for Rehabilitative Services (CCRS)
Sydney Rice, M.D.
Osteogenesis Imperfecta Clinic
Gayle Tyerman, M.D.
Pediatric Bone and Mineral Clinic
Isidro Salusky, M.D. & William Oppenheim, M.D.
Medical Genetics/Metabolism Program
Susan Winter, M.D.
Skeletal Dysplasia Clinic
Katherine Dawson, M.D.
Osteogenesis Imperfecta Clinic
Jennette Boakes, M.D.
Skeletal Dysplasia Clinic/Department of Genetics
Kenneth N. Rosenbaum, M.D. & Dina J. Zand, M.D.
Skeletal Dysplasia Clinic
Richard Kruse, D.O. & Michael Bober, M.D., Ph.D.
Osteogenesis Imperfecta Clinic
Dennis Grogan, M.D.
Osteogenesis Imperfecta Clinic
Craig Ono, M.D.
Osteogenesis Imperfecta Clinic
Peter Smith, M.D.
Division of Clinical Genetics & Metabolism/Bone Dysplasia Clinic
Bryan E. Hainline, M.D.
Osteogenesis Imperfecta Clinic
Osteogenesis Imperfecta Clinic
Philip Gates, M.D.
Bone Center and OI Department
Jay Shapiro, M.D.
Osteogenesis Imperfecta Program
Joan Marini, M.D., Ph.D.
Osteogenesis Imperfecta Team
Samantha A. Spencer, M.D.
Center for Orthopedics
Stephen Sundberg, M.D.
Osteogenesis Imperfecta Team
Ken Guidera, M.D.
Rochester
MN
Mayo Clinic- Rochester
Mayo Clinic OI Team
Peter Tebben, M.D.
Kansas City
St. Louis
St. Louis
Columbia
Omaha
New York
New York
Rochester
MO
MO
MO
MO
NE
NY
NY
NY
Children's Mercy Hospital and Clinics
Shriners Hospital for Children- St. Louis
Barnes-Jewish Hospital- St. Louis
University of Missouri- Columbia
Children's Hospital & Medical Center
Hospital for Joint Diseases
Hospital for Special Surgery
University of Rochester Medical Center
OI Services through Children's Mercy Kidney Center
Research Clinic
Division of Bone and Mineral Diseases
Skeletal Dysplasia Clinic
OI Clinic- The Tiny Bones Program
Pediatric Initiative for Bone Health
Center for Skeletal Dysplasias and OI Clinic
University Orthopedics
Tarak Srivastava, M.D.
Michael Whyte, M.D.
Michael Whyte, M.D.
Daniel Hoernschemeyer, M.D.
Richard Lutz, M.D.
Patricia Poitevien, M.D.
Cathleen Raggio, M.D. & Daniel Green, M.D.
James Sanders, M.D. & Susan Bukata, M.D.
Phone Number
(205) 934-9527
(520) 324-3247
(213) 368-3300
(310) 206-0799
(559) 353-6400
(916) 614-5177
(916) 453-2000 ext. 5010
(202) 476-4167
(302) 651-5916
(813) 972-2250 ext 7530
(888) 888-6314
(773) 385-5579
(317) 274-3966
(859) 268-5740
(318) 222-4296
(443) 923-2707
(301) 496-0741
(617) 355-6808
(651) 290-8707
(612) 596-6105
(507) 284-3300 for children
(507) 538-3270 for adults
(816) 234-3312
(314) 432-3600 ext. 1119
(314) 454-7775 option #1
(573) 884-2522
(402) 955-4157
(212) 598-6412
(212) 606-1631
(585) 275-5321
Services
OI Patients seen last year
(children, adults, genetics)
50 Genetics
29 Children to age 21
200 Children to age 18
30 Children & Adults
28 Children to age 18
9 Children & Adults
42 Children to age 18
40 Children & Adults
75 Children to age 21
99 Children to age 18
30 Children to age 21
150 Children to age 21
60 Children & Adults
30 Children to age 18
35 Children to age 18
250 Children & Adults
60 Children to age 18
100 Children to age 21
45 Children to age 18
25 Children to age 17
45 Children & Adults
76 Children to age 18
50 Children to age 21
Adults
5 Children to age 18
110 Children to 18
55 Children to age 18
60 Children & Adults
35 Children & Adults
Charlotte
Cincinnati
Columbus
Portland
Portland
Philadelphia
Philadelphia
Erie
Greenville
Houston
Houston
Salt Lake City
Seattle
Seattle
Spokane
Madison
Montreal
NC
OH
OH
OR
OR
PA
PA
PA
SC
TX
TX
UT
WA
WA
WA
WI
Canada
Carolinas Medical Center
Children's Specialty Center
Charles P. McKay, M.D.
Skeletal Dysplasia & Connective Tissue Clinic
Cincinnati Children's Hospital Medical Center
Nationwide Children's Hospital
Metabolic Bone Disease Clinic
John D. Mahan, M.D.
Oregon Health & Science University
Bone and Mineral Clinic
Robert F. Klein, M.D.
Legacy Children's Hospital
Pediatric Genetics Program & Pediatric Development & Rehabilitation
George Anadiotis, D.O.
Children's Hospital of Philadephia (CHOP)
Connective Tissue Disorder Clinic
Paige Kaplan, M.D.
Shriners Hospital for Children- Philadelphia
Osteogenesis Imperfecta Clinic
Max Santiago, RN, BSN, MPH, PhD
Shriners Hospital for Children- Erie
Osteogenesis Imperfecta Clinic
William Schrantz, M.D.
Shriners Hospital for Children- Greenville
Osteogenesis Imperfecta Clinic
Whitney Gibson, D.O.
Baylor College of Medicine at Texas Children's Hospital
Skeletal Dysplasia Clinic
Brendan Lee, M.D. Ph.D.
Shriners Hospital for Children- Houston
Osteogenesis Imperfecta Clinic
Lynnette Mazur, M.D.
Shriners Hospital for Children- Salt Lake City
Osteogenesis Imperfecta Multidisciplinary Clinic
Angela Bytheway, RN
Seattle Children's Hospital
Medical Genetics Clinic & Skeletal Health Program
Ian Glass, M.D. & Michael Goldberg, M.D.
University of Washington Medical Center
Medical Genetics Clinic
Peter Byers, M.D.
Shriners Hospital for Children- Spokane
Osteogenesis Imperfecta Clinic
Paul Caskey, M.D.
University of Wisconsin
Midwest Regional Bone Dysplasia Clinic
Richard Pauli, M.D., Ph.D.
Shriners Hospital for Children- Canada
Osteogenesis Imperfecta Clinic
Francis Glorieux, OC, M.D., Ph.D.
(704) 381-8800
(513) 803-2663
(614) 722-4363
(503) 494-5630
(503) 413-4505
(215) 590-3376
(800) 281-4050 ext. 4073
(800) 873-5437
(864) 240-3137
(832) 822-4298
(713) 793-3731
(801) 536-3565
(206) 987-2109
(206) 598-4030
(888) 895-5951
(608) 262-6228
(514) 282-6999
38
20
80
60
unknown
25
unknown
30
26
60
80
50
15
8
25
7
150
Children to age 21
Children & Adults
Children & Adults
Adults
Children to age 18
Children to age 18
Children to age 18
Children to age 21
Children to age 18
Children & Adults
Children to age 18
Children to age 18
Children & Adults
Children & Adults
Children to age 25
Children & Adults
Children to age 21