SSM Cardinal Glennon Children’s Medical Center A closer look at some of the specialties that make SSM Cardinal Glennon Children’s Medical Center the very best in pediatric patient care PEDIATRICS FOCUS ON TM 2013 cardinalglennon.com Medical news from SSM Cardinal Glennon Children’s Medical Center and the physicians of Saint Louis University School of Medicine Our hospital is constantly evolving. New physicians join our team monthly so we can see more patients in a timely manner. Every year we acquire new technology and enhance our facilities so we can continue to provide exceptional care. Communication with you, our physician partners, remains at the forefront of our priorities. As we continue to grow and improve, we want to make sure you are part of that process. For this reason, we continue to bring you new issues of our Focus on Pediatrics magazine. Beginning in 2013, the magazine will transition to an annual publication that focuses on quality and provides a broader look at the many specialties that help make SSM Cardinal Glennon the very best in pediatric care. Please take a few minutes to review the 2013 Focus on Pediatrics issue. We think you’ll find at least a few new opportunities for you and your patients. If you have questions about anything you read or suggestions about how we can better serve you, please feel free to contact us. As our physician partners, your feedback is valued. Sincerely, Sherlyn Hailstone, President [email protected] Robert Wilmott, MD, Chief of Pediatrics [email protected] Dennis Vane, MD, Surgeon-in-Chief [email protected] Robert Wilmott, MD, Chief of Pediatrics 1 Sherlyn Hailstone, President Dennis Vane, MD, Surgeon-in-Chief PEDIATRICS FOCUS ON TM Since 1956, SSM Cardinal Glennon Children’s Medical Center has offered the highest level of care as the country’s only free-standing, non-profit Catholic children’s hospital. Located in St. Louis, Mo., SSM Cardinal Glennon is a pediatric medical care destination. Every year, the medical center provides hope to thousands of children with complex medical conditions from Missouri, Illinois and beyond. SSM Cardinal Glennon is a 190-bed teaching hospital affiliated with the Saint Louis University School of Medicine. In every way, SSM Cardinal Glennon lives out the SSM Health Care mission: “Through our exceptional health care services, we reveal the healing presence of God.” SSM Cardinal Glennon is home to: 2013 cardinalglennon.com Medical news from SSM Cardinal Glennon Children’s Medical Center and the physicians of Saint Louis University School of Medicine Table of Contents Message from Leadership.......................................................... ..............1 Hospital Overview.......................................................................................2 Medical Education and Access Center................................................3 Diagnostic Imaging.....................................................................................4 >> Physician experts in more than 60 medical specialties >> Missouri’s first Level 1 Pediatric Trauma Center, at the Dan Dierdorf Pediatric Emergency and Trauma Center. SSM Cardinal Glennon’s Level 1 status is granted in both Missouri and Illinois. Cardiology and Cardiothoracic Surgery.........................................5–6 Critical Care Medicine (PICU)............................................................7–8 >> The Dana Brown Neonatal Intensive Care Unit, a Level IV NICU (the highest level of designation) with a dedicated transport team, private rooms for every family and staffed 24/7 by attending neonatologists Emergency Medicine..........................................................................9–10 >> The Dorothy and Larry Dallas Heart Center, home to St. Louis’ only pediatric hybrid catheterization suite and the most experienced pediatric cardiothoracic surgery team in the region Gastroenterology / Hepatology.....................................................13–14 >> The Bob Costas Cancer Center, including a 16-bed inpatient unit, day hospital and stem cell transplant unit Endocrinology........................................................................................11–12 Hematology /Oncology ....................................................................15–16 Neonatology..........................................................................................17–18 >> Pediatric Intensive Care Unit, staffed 24 hours a day by in-house, critical care attending physicians Neurosurgery.......................................................................................19–20 >> The St. Louis Fetal Care Institute, the most comprehensive program in middle America to provide diagnosis and treatment of fetal developmental issues including open and fetoscopic surgery Pulmonology.......................................................................................21–22 >> The Knights of Columbus Development Center, providing evaluation and care for children with autism and other developmental disabilities The St. Louis Fetal Care Institute..................................................25–26 >> The Missouri Poison Center, which responds to more than 190,000 child and adult poison exposure calls each year >> The St. Louis Cord Blood Bank, one of the world’s largest public banks of life-saving and non-controversial cord blood cells (derived from the umbilical cord and placenta) Surgery..................................................................................................23–24 Transport and Trauma......................................................................27–28 Additional Pediatric Specialties..................................................29–30 Modern, Kid-Friendly Facilities....................................................31–34 For comments and suggestions, please email [email protected]. 2 Pediatric CME Earn free CME credit online, on your own time with Pediatrics On Demand. New lectures are posted every month. It’s easy – watch a presentation from your computer, take a quick, five-question quiz, complete an evaluation, and within 48 hours a CME certificate will be sent to your e-mail. To view a presentation: Log on to www.pediatricsondemand.com Username: ds\r010-online Password: webcme To earn 1 CME credit from Saint Louis University School of Medicine: For more information on education opportunities through SSM Cardinal Glennon and Saint Louis University School of Medicine, scan the QR code. Choose the link icon above the presenter’s window. Click TEST LINK. Register (if you haven’t already), take the quiz and finish the evaluation. CME certificates are sent to your e-mail address within 48 hours. For additional CME/CEU opportunities, see Education Connections at cardinalglennon.com, For Physicians, Education, Education Connections. Direct Access for Physicians to Expert Care >> 24/7 attending physician consultations >> Emergent transfers >> Urgent appointments >> Direct admissions All calls answered 24/7 by pediatric transport nurses 3 Diagnostic Imaging Lowest dose, most advanced technology in diagnostic imaging is at SSM Cardinal Glennon Kid-Friendly Space Interactive suites include personalized lighting, music and image displays that help reduce the need for sedation. Technology 1.5T and 3.0T MRI: Detailed image quality, feet-first imaging and wide bore access for larger and critically ill patients. Two 128-Slice CT Scanners: Lowest dose technology (up to five times less than standard pediatric doses), quicker scan times and spectral imaging. To make an appointment, please call: 314-577-5652, opt. 1 To obtain results, please call: 314-577-5652, opt. 2 Fax orders to: 314-268-6472 Scan the QR code with your phone to see FOX2News coverage of the Imaging Center open house. 4 Cardiology and Cardiothoracic Surgery Cardiac services continue to grow the most experienced team in the region CGCMC Echocardiograms 8000 >> 10 pediatric cardiologists, 7000 6000 one of the fastest growing cardiology programs in middle America 5000 4000 2010 7,343 2009 6,581 99% 6,134 7000 2000 6000 1000 50000 5,996 4000 8000 3000 2011 2012 7,343 6,581 2000 5000 1000 survival rate for patients who received treatment for congenital heart defects at SSM Cardinal Glennon in 2011 and 2012. 6,134 3000 5,996 CGCMC Outpatient Clinic 2012 Visits 2009 2010 2011 0 4000 5000 3000 4000 2000 4,366 0 2009 2010 2011 2012 2009 2010 2011 2012 4,366 1000 4,242 2000 0 4,242 No deaths following Norwood procedure for the past three years. 3,852 3000 1000 3,852 >> 2 cardiothoracic surgeons, Ten pediatric cardiologists. Two pediatric cardiothoracic surgeons. The only pediatric hybrid cardiac catheterization suite in the St. Louis region. The fastest growing pediatric cardiology program in middle America. These are just a handful of many benefits available to your pediatric heart patients at the Dorothy and Larry Dallas Heart Center at SSM Cardinal Glennon Children’s Medical Center. 3,459 catheterization suite in the St. Louis region 3,459 >> Only pediatric hybrid cardiac 300 250 Heart conditions have 200 no age limit. The cardiology/cardiothoracic surgery team of 12 physicians, physician assistant and three pediatric nurse practitioners treat 150 300 congenital heart patients from birth through adulthood. 285 220 50 200 207 227 100 250 1500 Interventional cardiology procedures in 2011 and 2012 with 100 percent 2009 2010 2011 2012 survival rate include, but are not limited to, the following: 100 50 Cardiothoracic Surgeons Dr. Charles Huddleston and Dr. Andrew Fiore 0 ASD device closure 50 175 285 2011 2012 173 100 100 100 100 100 100 100 100 152 300 Coarctation PDA closures: Aortic and pulmonary angioplasty device and stent valvuloplasty and coil placement 2011 survival rate 5 300 173 2010 100 150 250 VSD 100 device closure 200 100 100 100 100 25 2009 152 200 100 From left to right: 175 220 250 0 207 50 75 227 100 Hybrid Electrophysiology procedure study with cryoablation and radiofrequency ablation 2012 survival rate 2011 and 2012 cardiothoracic surgery procedures and survival rates 2011 2012 100 100 100 100 100 100 100 100 100 100 100 100 100 100 25 Ranked among the country’s top pediatric heart programs 0 Coarctation PDA closures: Aortic and VSD ASD Hybrid Electrophysiology procedure Best study with in U.S. & World Report’s 2013-2014 Children’s Hospitals pulmonary angioplasty device device deviceNews cryoablation and closure closure valvuloplasty and coil and stent placement radiofrequency ablation 2012 survival rate 2011 survival rate 2011 and 2012 cardiothoracic surgery procedures and survival rates 2012 2011 ASD VSD AVC TOF Norwood Arterial Switch SubArotic Stenosis TAPVR Coronary Anomalies Glenn shunt Fontan RV-PA conduit, Pulmonary Valve Replacement (PVR) Aorta Aortic Valve Replacement (AVR) Other- Pump Cases B-T Shunt Hybrid Pacemaker Procedures 100% 100% 100% 100% 100% 100% 100% 100% 100% 100% 100% 100% 100% 100% 100% 89% 80% 100% 100% 100% 100% 100% Kenneth Schowengerdt, MD Director Wieck-Sullivan Professor of Pediatrics at Saint Louis University School of Medicine 100% 100% 100% 100% 100% 100% 100% Saadeh Al-Jureidini, MD 100% 100% 100% Saar Danon, MD 100% 100% Andrew Fiore, MD Director of Cardiothoracic Surgery 89% 100% 100% 100 75 Total 50 25 0 98% 100 75 50 25 0 Total ASD VSD AVC TOF Norwood Switch SubAS MVR TAPVR Coronary Glenn Fontan RV-PA, PVR Aorta AVR Glenn/DKS B-T Shunt Hybrid Pacemakers Cardiology and Cardiothoracic Surgery Faculty 99% Comprehensive care includes: >> Fetal echocardiography testing >> Interventional cardiology, including hybrid procedures >> Cardiothoracic surgery >> Heart transplantation >> Mechanical circulatory support >> Comprehensive arrhythmia management and ablation procedures >> Collaboration with obstetrics, maternal-fetal medicine and neonatology to deliver babies with congenital heart defects in need of immediate intervention at SSM Cardinal Glennon Jason Garnreiter, MD Susan Haynes, MD Charles Huddleston, MD Cardiothoracic Surgery Wilson King, MD Renuka Peterson, MD M. Babak Rahimi, MD Jamie Sutherell, MD Angela Sharkey, MD Appointments: 314-577-5674 Service Locations: Having the only pediatric hybrid cardiac catheterization suite in the region allows our cardiologists and cardiothoracic surgeons to work together to provide the best options for patients. This state-of-the-art suite allows our heart experts to diagnose and fix complex heart problems, in the same room and in one procedure, for safer care and a faster recovery for our patients. SSM Cardinal Glennon St. Louis, Mo. Southeast Missouri Hospital Cape Girardeau, Mo. St. Luke’s Hospital Chesterfield, Mo. The Center for Maternal Fetal Care Columbia, Mo. SSM St. Mary’s Pediatrics Jefferson City, Mo. SSM St. Joseph Hospital West Lake St. Louis, Mo. Anderson Hospital, Maryville, Ill. Good Samaritan Regional Health Center, Mount Vernon, Ill. 6 Critical Care Medicine and the Pediatric Intensive Care Unit >> PICU attending in-house 24/7 >> Experts in extra corporeal membrane oxygenation (ECMO) >> Zero central line infections during an eight month period (2012-2013) >> In 2011 and 2012, unadjusted mortality was 2.5 percent and 3.2 percent respectively and risk-adjusted mortality tracked consistently lower than predicted The bulletin board in the Pediatric Intensive Care Unit (PICU) staff lounge is full of pictures and thank you notes from patients and families grateful for the care they received. If asked, most would tell you that they neither wanted to come to the PICU, nor were they unhappy to leave, but they were very happy it was there when they needed it the most. Without the PICU facility or its critical care experts, successful outcomes for the most extreme cases admitted by pediatricians, surgeons and subspecialists would not be possible. In the past year, more than 1,000 of the most critically ill and injured pediatric patients received care delivered and coordinated 24/7 by seven board-certified pediatric intensivists, four acute care-certified nurse practitioners, 80 registered nurses, pediatric trained respiratory therapists, occupational and physical therapists, social workers, pastoral care staff and other professionals. 3.2% The PICU Patient (2011 - 2012) Age Range Length of Stay 30 6 29% 21% 15 21% 20% 3 4.3 days 1.7 days 0 5% Under 1 - 23 1 Month Months 5% 2-5 Years 6-12 Years 13-18 Over 18 Years Years 0 Average length of stay Median length of stay Patients with stays longer than 1 week represent 20 percent of admissions and the most complex diseases that require unique critical care needs Reasons for admissions: >> 30 percent of PICU patients underwent surgery for congenital heart disease >> 15 percent of PICU patients required intervention by surgeons and neurosurgeons for traumatic injuries or tumor resections (our pediatric intensivists help provide the best care to injured organs without damaging other less injured organs) >> More than 50 percent of PICU admissions are non-surgical due to acute illness or existing conditions such as respiratory failure, septic shock, diabetic ketoacidosis or status epilepticus 56 percent of all patients receive some form of mechanical ventilation support (more than just supplemental oxygen). Our clinicians are experts in extra corporeal membrane oxygenation (ECMO) for children requiring heart and lung bypass assistance. 7 PICU Quality Program The PICU Quality Program focuses on infection rates, unintended extubations, adverse drug events, readmission rate within 24 hours and 100 percent review of all deaths, resuscitations and the ongoing patient care plans for those patients requiring longer than seven days of ICU care. 0 CLIs Following the initiation of the PICU quality program, zero central line infections were detected for eight consecutive months (2012-2013). Critical Care Medicine and the Pediatric Intensive Care Unit Faculty Lia Lowrie, MD, Director Professor of Pediatrics at Saint Louis University School of Medicine Robert Ream, MD, Medical Director Teresa Andreone, MD, PhD Nandini Calamur, MD New look to match exceptional level of care This year, the PICU will undergo a complete renovation that will include 18 private beds. While the exceptional level of patient care will be enhanced with a new layout and equipment, the facility will also provide a more welcoming, cheerful atmosphere for patients and their families. Gordon Gale, MD Procedural sedation Jeremy Garrett, MD Christina Mannix, MD Procedural sedation Jason Werner, MD Michael Zahra, MD Critical Care Medicine Division Director Dr. Lia Lowrie proudly pins a picture from a child on the bulletin board in the PICU. Critical Care Medicine Academic Office: 314-577-5395 8 Emergency Medicine >> 90.2 percent patient Our top priorities while providing exceptional patient care to more than 49,000 children every year: quick, easy access to the emergency department (ED) and satisfaction for you and your patients. >> 83 percent of patients Innovations Input/Access – Call one number to speak with an attending physician 24/7, have your patients seen quickly upon arrival and for emergent transfers. satisfaction in 2012 seen by an emergency medicine provider in less than 30 minutes from arrival in 2013 (YTD) >> Average 18+ years experience among team of 12 pediatric emergency medicine physicians Throughput – Any Patient, Any Bed In November 2011, “Any Patient, Any Bed” was initiated so that patients would have a shorter stay within our ED. The result is exactly that. Patients are walked from the waiting room to patient care rooms where triage assessments are performed at the bedside. We “pull until full” 24 hours a day, 365 days a year. Arrival to Room (Mean-Minutes) 20 15 5 0 2012 5000 11 min. 13 min. 12 min. 10 Jan. 2013 Feb. 2013 Door to Provider 4000 of patients seen by provider in less than 30 minutes): (Percent 3000 100 2000 80 8000 9 7000 6000 5000 150 100 7000 6000 5000 4,984 pt. vol 75% . 4,941 pt. vol 70% . ov 8000 D ec 4,884 pt. vol 69% N . O ct 3,848 pt. vol 87% 4,366 4,388 pt. vol 78% . Se p 4,242 ug . . Ju l 2012 2012 A 3,465 pt. vol 82% 3,852 3,648 pt. vol 74% 3,459 4,304 pt. vol 70.3% 2011 . pr . Ju n 200 A 250 2010 M ay 4,942 pt. vol 52% 2009 300 . . 0 4,945 pt. vol 46% 10 Ja n Emergency Department Division Director Dr. Robert Flood comforts 4-yearold Brandon who has a high fever. 0 M ar 4,119 pt. vol 75% 20 Fe b. 40 4,555 pt. vol 61.4% 1000 60 60 60 40 40 CPB 0 Cases 3.2% Non-CPB Cases 2010 2011 131 2012 2010 75 40 80.3% 0 2009 2011 212 112 131 126 74.2% 42 49 40 80.3% 70.3% 112 49 2010 2011 CPB Cases Non-CPB Cases 2012 2011 20 2012 75 33% 100 212 60 42 100 20 0 2012 7,343 6,581 Robert Flood, MD, Director Associate Professor of Pediatrics at Saint Louis University School of Medicine Hemina Bailey, MD 0 2010 2011 2010 2012 2011 Rachel Charney, MD 47.2% 100 44.3% 100 80 0 20 7,343 6,134 2009 2011Percent 2012 2010 of Patients 2011 2012 Patients Admitted <4 hours Admitted <4 hours 80 2009 ec . 0 Emergency Medicine Faculty 2009 2010 of Percent 47.2% 300 1000 150 50 D N ov ct . O Se D epc .. 0 173 2000 80 126 74.2% 70.3% 1000 3000 150 50 40 010 5000 4000 2011 20002012 200 100 A N uog v JOu clt. . 09 2010 2009 2011 2012 2010 2011 2012 Percent of175Patients Percent of Patients 152 173 175 300 152 250 Discharged <3 Discharged hours250 <3 hours 200 5000 4000 3000 7,343 0 7,343 6,134 5,996 6,134 Output – Discharged/Admitted 1000 6000 33% 2010 2012 7000 6000 220 2009 2011 285 207 0 2010 220 6,581 227 3000 0 2009 2000 207 6,581 227 5,996 50 8000 7000 6,581 5,996 100 8000 44.3% 1006000 2012 6,134 150 5,996 285 2012 8000 150 7000 5000 50 4000 SJue np. . 200 M Aa ugy JAup lr. . JMua nr. Fe M aby. Ja A pnr. . ar . M . eb 200 Ann DiMaio, MD 2012 Faye Doerhoff, MD Patient Satisfaction Jim Gerard, MD Patients Left Without Being Seen Press Ganey: Out-Patient Likelihood to Recommend 100 75 3.0 83.1% 87.1% 88.6% 90.2% 25 Steve Laffey, MD 3.2% 2.0 Al Nakanishi, MD, MPH. 2% John Peter, MD 1.0 <1% 0 <1% 0 2009 2010 2011 2012 John Gleeson, MD 2009 2010 2011 2012 Teresa Schiff, MD Trevor Tredway, MD, PhD Contact: 314-577-5666 SSM Cardinal Glennon pediatricians are close to home in the ER at: SSM DePaul Health Center Bridgeton, Mo. SSM St. Clare Health Center Fenton, Mo. SSM St. Joseph Hospital West Lake Saint Louis, Mo. SSM St. Joseph Health Center St. Charles, Mo. The Dan Dierdorf Emergency and Trauma Center Learn more about SSM Cardinal Glennon’s Level 1 trauma team and multi-disciplinary transport team on page 27. St. Anthony’s Medical Center South St. Louis County Anderson Hospital Maryville, Ill. 10 Endocrinology >> One of 15 sites participating in the NIH-funded multi-center type 2 diabetes study >> Created diabetes transition program for teens transitioning to adult care Type 2 diabetes is an epidemic in the pediatric population, and SSM Cardinal Glennon’s endocrinology team is at the forefront of prevention and treatment. SSM Cardinal Glennon/Saint Louis University is one of 15 sites participating in the multi-center “Treatment Options for Type 2 Diabetes in Adolescents and Youth (TODAY)” study, funded by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) of the National Institutes of Health. In response to the growing epidemic of type 2 diabetes in childhood, the research protocol was designed to evaluate the efficacy of three treatment regimens (metformin alone, metformin plus rosiglitazone, and metformin plus intensive lifestyle intervention) on time to treatment failure based on glycemic control. Nationwide, 1,211 subjects were screened, 927 subjects proceeded to run-in, and 699 subjects were randomized into one of the treatment regimens and were treated for at least two years, as shown in Figure 1. Baseline 2-6 months 7,000 7,000 clinic visits in 2012 at SSM Cardinal Glennon and four regional outreach clinics Screening N = 1211 2-6 years Primary outcome Failure to maintain A1C < 8% x 6 months or inability to wean from temporary insulin Run-in N = 927 Randomization N = 699 At SSM Cardinal Glennon/Saint Louis University, 54 subjects were screened, 48 subjects proceeded to run-in and 39 subjects were randomized. Figure 2 compares the performance of the SSM Cardinal Glennon and Saint Louis University site with the entire TODAY Study group. The percentages of screened participants entering run-in, participants successfully completing run-in and randomized, and randomized participants that have been retained were higher at the SSM Cardinal Glennon and Saint Louis University site. Study Group SLU 100 80 60 40 0 Screened participants entering run-in 11 Participants successfully completing run-in and randomized Randomized participants retained 94.9 80.4 81.2 75.4 88.9 10 76.5 20 Overall, 72.2 percent of screened participants were randomized at Saint Louis University (compared to 57.7 percent study-wide) and 94.9 percent of randomized participants have been retained (compared to 80.4 percent study-wide). The primary outcome of the TODAY Study was published in the New England Journal of Medicine in June 2012. Of the 699 randomly assigned participants (mean duration of diagnosed type 2 diabetes, 7.8 months), 319 (45.6 percent) reached the primary outcome over an average follow-up of 3.86 years. Metformin plus rosiglitazone was superior to metformin alone (P = 0.006); metformin plus lifestyle intervention was intermediate but not significantly different from metformin alone or metformin plus rosiglitazone. Endocrinology Faculty Sherida Tollefsen, MD Director Professor of Pediatrics at Saint Louis University School of Medicine David Dempsher, MD, PhD Mark Eddy, MD Susan Myers, MD Diabetes Transition Program The endocrinology team recently initiated a Diabetes Transition Program in an effort to improve clinical outcomes for high school seniors with diabetes transitioning to adult care. High school seniors attend several education sessions with a diabetes nurse educator, dietitian and social worker if needed. Important topics such as preparing for college life, handling sick days, safe driving and refilling prescriptions are reviewed. Participants also receive a binder with relevant handouts and resources. A research study comparing outcomes of program graduates to those of teens leaving our practice prior to the program is underway. Appointments: 314-268-4010 Service Locations: SSM Cardinal Glennon St. Louis, Mo. St. Luke’s Hospital Chesterfield, Mo. Clayton Oliver has been a patient of Division Director Dr. Sherida Tollefsen since he was 2 years old. Now 16 years old, Clayton celebrates his good glucose numbers with Dr. Tollefsen at his recent visit. But that’s not all Clayton has to celebrate. Just hours before his appointment at SSM Cardinal Glennon, Clayton passed his driver’s license test. St. Anthony’s Medical Center, South St. Louis Southeast Missouri Hospital Cape Girardeau, Mo. Anderson Hospital Maryville, Ill. 12 Gastroenterology and Hepatology >> One of seven pediatric hospitals taking part in the Non-alcoholic Steatohepatitis Clinical Research Network to find treatments for obesity-related liver disease >> Multidisciplinary team includes two dedicated GI PNPs, adolescent psychologists and feeding and weight management specialists No matter the condition, the goal is the same – “Identify the problem early, start treatment and minimize impact on the patient and family,” says Dr. Jeffrey Teckman, Division Director of Gastroenterology and Hepatology. The gastroenterology and hepatology team at SSM Cardinal Glennon is specially trained to treat a variety of conditions involving the intestines, liver, growth and nutrition. The team consists of five physicians, two nurse practitioners and three registered nurses. Endoscopy Lab Built in 2009, the endoscopy lab at SSM Cardinal Glennon is a state-of-theart suite equipped with full pediatric anesthesia coverage. More than 1,500 endoscopies are performed here yearly. >> Active celiac disease 1200 900 1,590 2006 1,398 2005 1,199 300 1,033 600 882 Between 1/1/09-6/30/11 1500 766 1 year graft survival and patient survival rate of liver transplant patients has been 100% 1600 680 100% Endoscopic Procedures 530 program and focused clinical care and research in eosinophilic esophagitis 0 2007 2008 2009 2010 2011 2012 Special areas of interest and research conducted by the gastroenterology and hepatology team include: Inflammatory Bowel Disease (IBD) – Crohn’s Disease and Ulcerative Colitis The gastroenterology and hepatology team includes a dedicated IBD coordinator and follows more than 150 patients with IBD. With all pediatric gastroenterology cases, an in-depth evaluation is performed when diagnosing IBD when one or more signs are present. GI Division Director Dr. Jeffrey Teckman visits with his patient Gabe Heller who is receiving a Remicade infusion for Inflammatory Bowel Disease. 13 Alpha-1-Antritrypsin Deficiency Alpha-1-antitrypsin deficiency, a genetic condition that can result in serious liver and/or lung disease, is often misdiagnosed due to the unfamiliarity with the condition and because liver problems can masquerade as other diseases. Because of this, the GI team tests for Alpha 1 during all liver problem evaluations and sometimes even when evaluating failure to thrive or poor growth. For nearly 20 years, Dr. Teckman has been leading Alpha-1 research efforts and studying basic liver chemistry. SSM Cardinal Glennon and Saint Louis University are part of a leading network of pediatric hospitals across North America sponsored by the National Institutes of Health to study and develop treatments and cures for a range of cholestatic liver diseases including Alpha-1. For questions or to learn more about the studies, please contact Dr. Teckman at 314-577-5647. Fatty Liver Disease With funds from the National Institutes of Health, SSM Cardinal Glennon and Saint Louis University are one of seven pediatric hospitals taking part in the nationwide Non-alcoholic Steatohepatitis Clinical Research Network to find treatments and diagnostic modalities for pediatric non-alcoholic steatohepatitis (NASH) and non-alcoholic fatty liver disease (NAFLD). Gastroenterology and Hepatology Faculty Jeffrey Teckman, MD, Director Professor of Pediatrics, Biochemistry and Molecular Biology and Associate Chair for Pediatric Research at Saint Louis University School of Medicine Tom Foy, MD Ajay Jain, MD Nisha Mangalat, MD Jerry Rosenblum, MD For questions or to learn more about the study, please contact Dr. Ajay Jain at 314-577-5647. Liver Transplant For more than 20 years, pediatric liver transplant outcomes have been consistent with or above national transplant benchmarks. This successful program is staffed by physicians board-certified in transplant medicine and specialized nurse coordinators with national accreditation, all of whom are members of the MidAmerica Transplant Association and affiliated with the United Network for Organ Sharing (UNOS). Hepatitis B “While there are treatments for Hepatitis B, the best options for children at different stages of the disease are not clearly known,” says Dr. Jeffrey Teckman. In an effort to better diagnose and treat pediatric patients with Hepatitis B, SSM Cardinal Glennon and Saint Louis University joined the national Hepatitis B Research Network (HBRN), which consists of seven leading pediatric hospitals and is funded by the National Institutes of Health. For questions or to learn more about the study, please contact Rosemary Nagy, RD, at 314-268-2700 (ext. 6144) or [email protected] or Dr. Teckman at 314-577-5647. Short Bowel Syndrome SSM Cardinal Glennon has a multi-disciplinary team of GI physicians, surgeons and therapists. The team provides intestinal rehabilitation, bowel lengthening and nutritional management as well as home nutritional technology and appliance placement. For questions or to learn more about the program, please contact Dr. Thomas Foy at 314-577-5647. 10,000 Greater than 10,000 patient contacts annually at SSM Cardinal Glennon and three regional outreach clinics Appointments: 314-678-2178 Service Locations: SSM Cardinal Glennon St. Louis, Mo. St. Luke’s Hospital Chesterfield, Mo. SSM St. Joseph Hospital West Lake Saint Louis, Mo. St. Anthony’s Medical Center South St. Louis County 14 Hematology/Oncology >> First federally designated pediatric Comprehensive Hemophilia Treatment Center in the St. Louis area >> 89 percent survival rate for blood and marrow transplant procedures >> 80-90 percent overall average rate of PCP communication generated by ambulatory encounters (4th quarter 2010-2012) Our hematology-oncology team treats children and adolescents who have a variety of malignant tumors. We also have a large sickle cell program and the first federally-designated pediatric comprehensive Hemophilia Treatment Center in the St. Louis area. The distribution of malignancies reflects the overall incidence of childhood cancer cases, with leukemias and lymphomas being most common, followed closely by central nervous system tumors (see Table 1). Multidisciplinary teams provide specialized care for children with brain tumors and bone/soft tissue sarcomas and are part of a robust long-term follow-up clinic. Blood and Marrow Transplant Program Our Blood and Marrow Transplant Program has a special interest in advancing use of umbilical cord blood as a stem cell donor source (see Table 2). According to the latest data from the Center for International Blood and Marrow Transplant Research, our program has a one-year survival of 89 percent, which is well above the network mean of 65 percent and the second-best survival among comparable transplant programs. SSM Cardinal Glennon is home to the St. Louis Cord Blood Bank, one of the largest public cord blood banks in the world. Hematology/Oncology Division Director Dr. William Ferguson jokes with Lauren Lee during a checkup and chemotherapy treatment. Lauren, who was diagnosed with Hodgkin’s Lymphoma in Dec. 2010, says she didn’t like doctors until she met Dr. Ferguson. 15 Table 1 Frequency by Diagnosis, 2010-2012 Central Nervous System Astrocytoma Glioma Medulloblastoma Glioblastoma muliforme Ependymoma Atypical Teratoid Rhabdoid Tumor PNET Benign/Other 45 19 9 4 3 2 1 1 6 Leukemia ALL AML CML JMML 42 34 6 1 1 Lymphoma Hodkin's Non-Hodgkin's 16 8 8 Neuroblastoma Wilms Tumor Rhabdomyosarcoma Osteosarcoma Ewings Sarcoma Malignant Germ Cell Tumor 10 11 4 6 3 5 30 Other Teratoma 12 Ganglioneuroma 5 Nasopharyngeal carcinoma 2 Desmoplastic Small Round Cell Tumor 2 Hepatoblastoma 1 Hepatocellular Carcinoma 1 Melanoma 1 Malignant Peripheral Nerve Sheath 1 Epithelioid Sarcoma 1 1 Synovial Sarcoma 1 Pancreatic neuroendocrine carcinoma 1 Inflammatory myeloblstic tumor Soild pseudopapillary tumor of pancreas 1 TOTAL 172 Table 2 Blood and Marrow Transplant Procedures, 2010-2012 Marrow Source Autologous Allogeneic related bone marrow unrelated umbilical cord blood Diagnosis Leukemia/MDS Lymphoma Immunodeficiency Neuroblastoma CNS malignancy Aplastic Anemia Relapsed Ewings 11 10 4 6 5 3 4 4 3 1 1 21 Communication Communication failure is increasingly recognized as a central cause for avoidable medical errors. Starting in TOTAL 2010, our team focused on improving communication with primary care physicians following outpatient visits and providing accurate discharge instructions for patients admitted to the hospital. As shown in the chart, the percentage of ambulatory encounters that generate communication with the PCP has increased from 26 percent to a consistent overall rate averaging between 80 and 90 percent; additional analysis shows that almost all of the remaining outpatient visits will have had a letter sent within 30 days. This ensures that patient encounters will result in a recent communication with the primary care provider. In terms of discharge instructions, we have focused on providing accurate information on how to contact the Hematology-Oncology service following discharge; and ensuring accurate instructions for discharge medications, specifically looking for PRN medications without indications and for medications lists with conflicting information. The frequency of correct contact information has increased from zero to over 90 percent; similarly, the number of medication lists that are free of conflicting instructions increased from a baseline of 40 percent to over 90 percent. Q4 2010 Q2 2011 Q1-2 2012 William Ferguson, MD Director Professor of Pediatrics at Saint Louis University School of Medicine Deepika Bhatla, MD Communication Initiatives 100 Hematology/ Oncology Faculty Q3-4 2012 90 Christopher Hugge, MD John Puetz, MD 80 70 Shermini Saini, MD 60 50 40 30 20 10 0 PCP communication (outpatient visits) Contact information correct at discharge No discharge medication conflicts Complete indications for PRN medication We strive to provide a friendly, comforting environment where patients and families are not only treated as individuals, but as partners in working toward a cure. - Dr. William Ferguson Division Director The centerpiece of the Bob Costas Cancer Center is our day hospital, which provides a comfortable setting for children to receive prolonged treatments without having to be admitted to the hospital. The Center also has facilities for performing minor procedures under sedation, thus avoiding pain or discomfort. It is conveniently located near the hospital entrance and other important hospital services. Family members and friends can accompany patients during their treatments in quiet, private accommodations. Appointments: 314-268-4000 16 Neonatology >> Recognized as a Neonatal Recognized as a Neonatal Center of Excellence by the American Accreditation Healthcare Commission, the Dana Brown Neonatal Intensive Care Unit at SSM Cardinal Glennon Children’s Medical Center provides tertiary/quaternary levels of care for the most acute pediatric patients. >> Extra Corporeal Membrane In 2013, the NICU at SSM Cardinal Glennon will grow from 60 private rooms to 65 private rooms to better welcome more patients and their families who need the help of the 18 board-certified neonatologists. In addition to neonatologists, our multidisciplinary teams of pediatric specialists are available 24/7 to provide the highest level of care for the most complex diagnoses. Center of Excellence by the American Accreditation Healthcare Commission Oxygenation (ECMO) and mobile ECMO capabilities available 24/7 >> Infant mortality rate at SSM Cardinal Glennon for babies less than 1000 gm is 20 percent (National average is 26 percent as reported by the Vermont Oxford Network) >> Attending neonatologists in-house 24/7 A low ratio of patients to nurses ensures each patient receives continuous personalized care from dedicated, specially trained neonatology nurses. Our 24-hour pain management team members keep patients comfortable throughout their stay. Ongoing support is also available for families through parental support groups and patient support groups for NICU graduates. The parental advisory committee gives parents an opportunity to provide feedback and helps to improve our parental support services. Admissions ≤ 1000g 2009 105 2008 106 103 100 111 Admission rates for babies less than 1000 gm each year 124 150 50 0 2010 2011 2012 Mortality in babies ≤ 1000gm 2008 2009 CG 2010 2011 26% 20% 26% 19% 26% 21% 22% 26% 0 28% 15 25% Infant mortality rate for babies less than 1000 gm is 20 percent (national average is 26 percent as reported by the Vermont Oxford Network) 30 2012 VON Extra Corporeal Membrane Oxygenation (ECMO) Neonatologists and a skilled multidisciplinary ECMO team allow for 24-hour access to ECMO for neonates who require it. Mobile ECMO capabilities are also available 24 hours a day. Neonatology Division Director Dr. Farouk Sadiq and Division NICU Noon Conferences on Demand Director of Cardiothoracic Every month an SSM Cardinal Glennon and Saint Louis University School of Surgery Dr. Andrew Fiore Medicine neonatologist presents a case conference on a topic that addresses the visit with Baby Cosmo who is CLABSI in roles the NICU 2008-2011 recovering from pacemaker of pediatricians, OB/GYNs and nurses. These presentations are available placement surgery. online and free of charge10,000 for CME credit at www.pediatricsondemand.com. 30 17 See page 3 for details. 7,500 Ranked among the country’s top neonatology programs in U.S. News & World Report’s 2013-2014 Best Children’s Hospitals Continuous Quality Improvement efforts shown by reduction in Central Line-Associated Bloodstream Infection (CLABSI) events from 2008-2011 CLABSI in the NICU 2008-2011 30 Neonatology Faculty 10,000 7,500 5,000 15 0 2008 2009 Infections 2010 Farouk Sadiq, MD, Director Associate Professor of Pediatrics at Saint Louis University School of Medicine 2,500 Mohamad Al-Hosni, MD 0 Ayoob Ali, MD 2011 Line Days Dedicated Neonatal Transport Team The specially trained neonatal transport team stabilizes and transports critically ill newborns from around the region to the Level IV NICU at SSM Cardinal Glennon 24/7. For each transport, the team includes a registered nurse and respiratory therapist, both with extensive training in the stabilization, treatment and transport of neonates. Physicians also accompany the transport team when appropriate or requested. Each member of the team has completed advanced training, such as: Connie Anderson, MD Thomas Bender, MD Greg Booth, MD Robert Brooker, MD Laura Cerny, MD Cathy Cibulskis, MD Robert Fleming, MD Heather Hall, MD Tom Havranek, MD Noah Hillman, MD >> Two years of critical care pediatric nursing in the Neonatal Intensive Care Unit, Pediatric Intensive Care Unit or Emergency Department William Keenan, MD >> Classroom training and eight to ten weeks of mentor/preceptor training with an SSM Cardinal Glennon transport nurse Akihiko Noguchi, MD >> PACTS (Pediatric Advanced Life Cardiorespiratory and Trauma Support) for Life and PALS (Pediatric Advanced Life Support) courses Marya Strand, MD >> A minimum of eight hours of continuing education in trauma nursing per year >> One pediatric intubation per quarter >> Neonatal resuscitation Joyce Koenig, MD Kimberly Spence, MD Contact: 314-577-5663 Neonatology services available throughout the St. Louis metro area at: The neonatal transport team also has access to a dedicated ambulance and a helicopter, “Cardinal Glennon Air.” These critical care vehicles are mobile ICUs used to stabilize and care for neonates in transit. Having sole access to these vehicles allows the most critical patients to travel with the care they need, as quickly as possible. SSM Cardinal Glennon St. Louis, Mo. The Dana Brown NICU features privacy, comfort and access to resources for families, including: SSM St. Joseph Hospital West Lake Saint Louis, Mo. >> Unlimited visiting hours for parents, siblings and family >> Private in-suite nursing areas, breast pumps, lactation consultants and personal refrigerators for milk in each suite for nursing moms SSM St. Joseph Health Center St. Charles, Mo. >> In-hospital Ronald McDonald room and nearby Ronald McDonald house for families and guests >> Dedicated social workers, pastoral services and mental health services available for families SSM DePaul Health Center Bridgeton, Mo. SSM St. Clare Health Center Fenton, Mo. SSM St. Mary’s Health Center Clayton, Mo. St. Anthony’s Medical Center South St. Louis County Memorial Hospital Belleville, Ill. 18 Neurosurgery >> One of the fastest growing fetal myelomeningocele repair programs in the United States Brain Tumors In 2011, under the new leadership of Division Director Dr. Samer Elbabaa, the total number of brain tumors removed at SSM Cardinal Glennon more than doubled from that of 2010. In 2012, brain tumor volume increased again. Brain Tumors 30 25 invasive neurosurgery 22 >> Experts in minimally 15 9 rate in 2012 and only 4.44 percent infection rate over four years (2009-2012) Excellent outcomes are dependent on surgical planning, coordination and collaboration. The neurosurgery team at SSM Cardinal Glennon Children’s Medical Center works tirelessly, collaborating with multiple pediatric subspecialties in preparation for surgery to achieve the best outcomes for patients and their families. 21 >> 1.4 percent shunt infection 0 2009 2010 2011 2012 Pediatric Brain Tumor Clinic This multidisciplinary clinic meets bi-monthly to continue care of patients who have had brain tumors removed. Following diagnosis and surgery, patients are typically seen once every three months for a year, depending on the patient. Specialists from a variety of fields are available to help care for our patients with brain tumors, including: >> Neurosurgery >> Neurology >> Neuro-Oncology >> Neuro-Psychology >> Radiation-Oncology >> Endocrinology >> Audiology >> Social Services Shunts vs. Infections In comparison to the number of shunt procedures performed since 2009, the infection rate is extremely low – 4.44 percent over four years. In 2012, the infection rate was just 1.40 percent with 71 shunt procedures performed. Shunts Infections 80 71 70 51 7 60 54 49 40 20 Neurosurgery Division Director Dr. Samer Elbabaa removes a posterior fossa cerebellar tumor from a 16-year-old boy. 19 10 4 2 3 1 0 2009 7.84% 2010 4.08% 2011 5.55% 2012 1.40% Minimally invasive neurosurgery In the last 10-15 years, the practice of minimally invasive neurosurgery has grown and become standard of care for the management of certain conditions at institutions with proper surgical expertise and technology. In contrast to an open neurosurgical procedure, minimally invasive neurosurgery requires just a few small incisions, shortens recovery time and reduces pain, blood loss and scarring. The surgery, which typically lasts only 30-60 minutes, requires a tiny endoscope, small pump, video camera and a special light source. Dr. Elbabaa’s clinical and research specialties involve the practice of minimally invasive neurosurgery. Neurosurgery Faculty Samer Elbabaa, MD, FAANS, FACS Director Associate Professor of Neurosurgery at Saint Louis University School of Medicine Saleem Abdulrauf, MD Endoscopic applications performed by the team include: Richard Bucholz, MD >> Endoscopic third ventriculostomy (ETV) for obstructive hydrocephalus Ann Marie Flannery, MD >> Endoscopic tumor biopsy and removal for intraventricular tumors >> Endoscopic fenestration of arachnoid cysts >> Endoscopic resection of colloid cysts >> Endoscopic simplification of multi-loculated hydrocephalus >> Endoscopic placement of ventricular catheters in shunts >> Endoscopic trans-sphenoidal surgery for sellar and supra-sellar tumors >> Endoscope-assisted microsurgery >> Endoscopic strip craniectomy for craniosynostosis >> Endoscopic choroid plexectomy >> Endoscopic aqueductoplasty >> Endoscopic spinal surgery Fetal Myelomeningocele Repair In partnership with the St. Louis Fetal Care Institute at SSM Cardinal Glennon, Dr. Elbabaa performs open fetal operations on babies with the most severe form of spina bifida. Prenatal treatment helps reduce, or even eliminate, the major complications of Myelomeningocele, which include hydrocephalus, Chiari malformation and lack of movement in the lower extremities. The St. Louis Fetal Care Institute has one of the fastest growing fetal myelomeningocele repair programs in the country. See page 25 for more information. Our skills and specialized training allows our pediatric neurosurgery team to successfully perform complex surgeries others won’t attempt. -Dr. Samer Elbabaa Division Director Contact: 314-577-5306 20 Pulmonology 75 50 1.0 25 75 50 1.0% 100 0.82% pediatric-focused sleep lab in Missouri Asthma Readmission Rate Inpatient Asthma Core Measures 0.96% >> Only accredited 3.2% Asthma Strict adherence to asthma protocols and admission order set ensures quality care for pediatric patients. 99.6% and accredited care center by the Cystic Fibrosis Center 99.48% >> Nationally recognized At SSM Cardinal Glennon our experienced pulmonology specialists provide expert treatment for all pulmonary disorders from asthma to cystic fibrosis. No matter the severity, our specialists take the time to connect with each patient at their routine checkups, making for lifelong bonds between patient and caregiver. 97.66% above 99 percent in 2011-2012 97.33% >> Asthma core measures 25 0 0 2009 2010 2011 2012 2010 2011 2012 Asthma Pathway In July 2012, an asthma pathway project was implemented to standardize care and provide efficient weaning of beta-agonists. Based on standard analysis utilizing control charts, the pathway significantly decreased the length of stay and decreased the variation in care for asthma patients. With this decrease in the length of stay, the asthma patient readmission rate has remained essentially zero and the assessment score has improved communications between physicians and respiratory therapists. 40.2 hours Mean length of stay before pathway implementation 34.9 hours Mean length of stay after pathway implementation Cystic Fibrosis The pulmonology team is accredited by the Cystic Fibrosis Foundation and recognized for “Outstanding QI Processes and Accomplishments”. Pulmonology Division Director Dr. Blakeslee Noyes checks in on Jordyn after an inpatient hospital treatment. Dr. Noyes has been treating Jordyn for Cystic Fibrosis for 5 years. 21 Quarterly visits are recommended as part of the CF national care guidelines. Our goal is to establish consistent quarterly clinic visits for our CF patients. Percent Quarterly CF Visits 100 75 50 25 0 2009 2010 2011 2012 80 2009 2010 National Average 60 2011 SSM Cardinal Glennon Children’s Medical Center 2010 2011 National Average SSM Cardinal Glennon Children’s Medical Center CF patients (6-17 years of age) with nization for CF patients CF patients (6-17 years of age) with Influenza Immunization for CF 2patients more than 4 visits, 1 culture, PFTs of age and older) more than 4 visits, 1 culture, 2 PFTs (6patients months and older) CF patients patients (6-17 (6-17 years years of of age) age) with with Influenza Influenza Immunization Immunization for for CFCF patientsof age CF Pulmonology Faculty 80and more than visits, 1 culture, 2 PFTs (6(6 months ofof age and older) more than 44 visits, 1 culture, 2 PFTs months age older) 100 80 100 100 Mean BMI percentile for patients 2-19 years 8080 70 90 9090 2010 7070 60 80 2011 8080 2009 2009 SSM Cardinal Glennon 2010 2010 2010 2009 2010 6060 2011 2011 National Average National National Average Average 60 2011 2011 2010 2010 55 SSM Cardinal Glennon National Average Children’s Medical Center SSM Cardinal Glennon Children’s Medical Center Children’s Medical Center National National Average Average SSM SSM Cardinal Cardinal Glennon Glennon Children’s Children’s Medical Medical Center Center Blakeslee Noyes, MD, Director Professor of Pediatrics at Saint Louis University School of Medicine 70 60 2010 2011 Gary Albers, MD 2011 2011 National Average SSM Cardinal Glennon SSM SSM Cardinal Cardinal Glennon Glennon Children’s Children’s Medical Medical Center Center Kurt Sobush, MD 50 Mean BMI percentile for patients 2010 2011 for patients Mean BMI percentile 2-19 years Robert Wilmott, MD Mean Mean BMI BMI percentile percentile for for patients patients 2-19 years ofGlennon Pediatrics National Average SSMChief Cardinal 60 2-19 2-19 years years 60 Children’s Medical Center Jamie Wooldridge, MD 6060 55 55 5555 50 2010 5050 50 2011 2010 2010 2010 SSM Cardinal Glennon Children’s Medical Center National Average National Average National Average 2011 2011 National Average SSM Cardinal Glennon SSM Cardinal Glennon Children’s Medical Center Children’s Medical Center 2011 SSM Cardinal Glennon Children’s Medical Center Supplemental feedings (oral or via gastrostomy tube) for children 2-19 years of age with BMI <50th percentile 73% 84.4% National SSM Cardinal Glennon tal feedings (oral or via gastrostomy Average tube) for Children’s Medical Center Supplemental feedings (oral or via gastrostomy tube) for 2-19 years of age with BMI <50th percentile children 2-19 years of tube) age with BMI <50th percentile Supplemental Supplemental feedings feedings (oral (oral oror via via gastrostomy gastrostomy tube) for for children children 2-19 2-19 years years ofof age age with with BMI BMI <50th <50th percentile percentile 2011 National Average Shalini Paruthi, Children’s Medical MD Center Director of Sleep Medicine 84.4% 73% 73% National National Average Average SSM Cardinal Glennon Children’s MedicalNational Center Average 73% 2011 2011 2011 84.4% 84.4% Appointments: 314-678-2173 84.4% SSM Cardinal Glennon Service Locations: Children’s Medical Center SSM Cardinal Glennon SSM Cardinal Glennon is home to the only 2011 St. Louis, Mo. pediatric-focused sleep lab in Missouri SSM St. Mary’s Pediatrics Jefferson City, Mo. accredited by The American Academy of SSM St. Joseph Hospital West Sleep Medicine. Lake Saint Louis, Mo. SSM SSM Cardinal Cardinal Glennon Glennon Children’s Children’s Medical Medical Center Center And erson Hospital Maryville, Ill. 22 Surgery >> Skilled surgeons in We know surgery can’t always wait. Patients in the womb through young adulthood have immediate access to our team of pediatric surgeons who are trained in a wide range of state-of-the-art procedures and perform surgery in state-of-the-art operating suites. >> Kid-friendly, state-of-the- Designed with Kids in Mind The 10 technologically integrated operating suites at SSM Cardinal Glennon were remodeled and expanded in 2007 and are physician- and patient-friendly. Each 700-square-foot OR allows for increased mobility with portable monitors and improved traffic flow with equipment booms that are attached to the ceiling keeping the floors clean and clear. The suites are equipped with the latest surgical technology, specifically installed for minimally invasive procedures. Large flat-panel televisions that double as monitors let patients fall asleep to a DVD of their choosing and provide surgeons imaging to navigate through 3-mm incisions. general, minimally invasive and 16 pediatric subspecialties art operating rooms Parents can be with their children until the very last minute before surgery. During the surgery, families wait comfortably in the brand new waiting room with access to a surgery concierge. Beepers are also provided, which allow parents to be reached throughout the hospital. Less Pain, Quicker Healing Procedures that once required 6-inch incisions can now be completed with a .5 inch incision thanks to minimally invasive surgical procedures like single-port splenectomy and laparoscopic cholecystectomy and pyloromyotomy. Pediatric patients who are candidates for this type of surgery have less pain, less blood loss, less scarring and recover quicker. Many patients leave SSM Cardinal Glennon the next day. Surgical Subspecialties Our surgical subspecialists utilize the most advanced intraoperative imaging techniques and minimally invasive procedures to provide the most advanced surgical care available in the region. Our surgeons manage issues of reconstruction, injury and advanced diseases in ways that not only provide surgical access to areas thought previously to be inaccessible, but also minimize discomfort for our children. Surgeon-in-Chief Dr. Dennis Vane performs a laparoscopic cholecystectomy to remove two-year-old Corwin’s gallbladder. The two-hour procedure required a few small incisions and a short stay in the hospital. 23 >> Cancer >> Cardiac (see page 5) >> Chest wall deformities >> Cleft lip/palate and craniofacial >> Ear, nose and throat >> Fetal (see page 25) >> Minimally invasive >> Neonatal (see page 17) >> Neurosurgery >> Ophthalmology >> Orthopaedic >> Plastic >> Solid organ transplant >> Trauma (see page 28) >> Urology 7,743 8,199 7,650 7,427 2,500 7,458 ENT Our ENT specialists provide procedures and interventions not available elsewhere in the region. Using the most advance STEALTH technology available, our surgeons provide interventions dealing with some of the most complex airway, sinus and hearing disorders. From advanced cochlear implants and fetal interventions, to the placement Surgical Case Volume of simple decompressive tubes in the ear, our ENT team provides 10,000 a complete array of services for 7,500 children. 5,000 Plastic Surgery 0 The plastic surgery team and the 2008 2009 2010 2011 2012 St. Louis Cleft-Craniofacial Center at SSM Cardinal Glennon specialize in interventions designed to take the most complex deformities and return the child to as normal a life as possible. The latest technological advances are used to minimize surgery when the situation safely allows. In patients with facial trauma, resorbable plates and screws that slowly absorb in the body are used when possible, rather than using permanent titanium plates and screws in a child who is still growing. Certain patients undergoing craniosynostosis skull reconstruction are eligible for a limited incision endoscopic technique that reduces operation time, blood loss and hospital stay. For face and jaw surgery, advanced orthodontic splinting systems can eliminate the need for incisions in the face. Off-the-shelf tissue matrices are used in certain reconstructions as to eliminate the need to take tissue from elsewhere in the body. While these technologies are not appropriate for every situation, the team strives to use minimal surgery to achieve the best reconstructions. Surgery Faculty Dennis Vane, MD, MBA, FACS, FAAP, Director Professor of Surgery at Saint Louis University School of Medicine Richard Bower, MD Kaveer Chatoorgoon, MD Colleen Fitzpatrick, MD Y. Jose Greenspon, MD Jill Powell, MD Pediatric OB/GYN Betsy Tuttle-Newhall, MD Transplant Fertility Preservation Certain medical conditions can slowly damage a girl’s ovaries, leaving her infertile before reaching adulthood. Likewise, the treatment of other medical conditions, like cancer or rheumatoid arthritis, can also destroy ovaries and leave a young woman infertile. In many conditions, there is a window of opportunity to remove her normal ovaries and preserve them for later use. SSM Cardinal Glennon offers ovarian transplant to pediatric patients, allowing many young adult patients to freeze their ovaries and conceive a child after defeating their condition. Young patients who are eligible for the fertility preservation treatment will have an ovary removed in a safe procedure by specially trained pediatric surgeons at SSM Cardinal Glennon. This procedure will occur prior to beginning treatment for their medical condition. The ovary tissue will be stored until the patient reaches adulthood, at which point the transplanted ovary can be placed back into the body. Contact the Surgery Department at 314-577-5629 for more information. Appointments: 314-678-2180 Service Locations: SSM Cardinal Glennon St. Louis, Mo. St. Luke’s Hospital Chesterfield, Mo. St. Anthony’s Med ical Center South St. Louis County Anderson Hospital Maryville, Ill. 24 The St. Louis Fetal Care Institute >> One of the only comprehensive fetal care centers in middle America >> One of the fastest growing myelomeningocele repair programs in the United States The St. Louis Fetal Care Institute (FCI) at SSM Cardinal Glennon Children’s Medical Center is one of the only comprehensive fetal care centers in middle America. Since 2009, SLUCare high-risk obstetrical specialists at SSM St. Mary’s Health Center and pediatric subspecialists at SSM Cardinal Glennon have worked together to provide the most well-rounded, compassionate and innovative care to mothers whose unborn babies have congenital, structural and genetic anomalies. The new FCI clinical suite at SSM Cardinal Glennon offers patient-centered care with two nesting rooms, an ultrasound examination and treatment room and a large conference/consultation room to allow the family to meet with a larger care team. Deliveries at SSM Cardinal Glennon are available for patients who require immediate specialized pediatric services that may only be accessible at our main campus. The FCI is proud to offer needle-based fetal interventions, fetoscopy and open fetal procedures including: >> EXIT (Ex Utero Intrapartum Treatment procedure) deliveries >> Fetoscopic amniotic band release >> Fetoscopic laser photocoagulation of placental vessels >> Open fetal repair for myelomeningocele >> Prenatal surgery for bladder outlet obstruction >> Radiofrequency ablation >> Open fetal resection for sacrococcygeal teratoma >> Tissue laser ablation for tumors 529 mothers evaluated since 2009 120 25 47 40 44 St. Louis Fetal Care Institute Director Dr. Mike Vlastos with baby Caroline, congenital cystic adenomatoid malformation survivor 68 60 69 87 80 89 103 100 20 0 JulyDec ‘09 JanJune ‘10 JulyDec ‘10 JanJune ‘11 JulyDec ‘11 JanJune ‘12 JulyDec ‘12 12 The St. Louis Fetal Care Institute Comprehensive Team 190 Fetal Interventions Performed since 2009 21 20 15 13 10 15 13 11 4 4 JulyDec ‘09 JanJune ‘10 JulyDec ‘10 2 2 JanJune ‘11 Needle Based Intervention Fetoscopic Surgery 6 4 3 2 1 8 7 4 1 0 11 9 7 5 20 18 2 JulyDec ‘11 2 JanJune ‘12 JulyDec ‘12 Mike Vlastos, MD, FACOG St. Louis Fetal Care Institute Director Kim Martin, MD, FACOG, FABMG Interventional Geneticist/ObGyn Samer Elbabaa, MD, FAANS, FACS Neurosurgeon Open Fetal Surgery EXIT/Deliveries at Glennon Referrals by Diagnosis Rachael Bradshaw, MS, CGC Genetic Counselor 91 100 Katie Francis, RNC-NIC, MSN, CPNP Nurse Coordinator 71 75 61 Amanda Jones, RN, BSN Clinical Nurse 42 51 50 20 18 17 16 15 13 5 Jenny Kaiser, RNC-NIC, BSN Staff Nurse 37 33 26 25 Suzanne Pyle, RN Staff Nurse Experienced Myelomeningocele Repair Team Within weeks of the release of the nine-year-long Management of Myelomeningocele (MOMS) Trial results, the Fetal Care Institute’s team was performing the fetal myelomeningocele repair operation. Nearly two years later, the Fetal Care Institute is one of the fastest-growing centers in the country. Following the MOMS protocols, exclusion and inclusion criteria and ACOG recommended counseling guidelines, the Fetal Care Institute performs this open fetal surgery on qualified patients between 19 and 26 weeks gestation. y og Betty June, RNC-NIC, BSN Database & Research Nurse ep hr di ar C ol ac s le ns tip ul /M U C ro lo gy TT /N TS fo rm at io is is le ch os tr al as N S M G en in go ce es m m lo ye M G en et ic Lu Sy ng nd Le ro C D H s I on G si cs s O rt ho pe di or ds se s/ Tu m an as M A m ni ot ic B al /p lip ft le C O m ph al oc el at e e 0 Fetal Myelomeningocele repair evaluations and surgeries at the St. Louis Fetal Care Institute Cindy Jansen, RDMS Ultrasound Technician Valerie Akerson, MSW Social Worker 40 35 30 25 20 15 10 5 0 21 Number of patients who received surgery 24 Number of patients offered surgery 39 Number of patients screened for fetal myelomeningocele repair surgery from 4/1/11–5/10/13 Following a short stay in St. Louis, many of our mothers return home and deliver via c-section at their local hospital with their original OB/GYN or MFM. Contact: 314-268-4037 or 877-776-3385 E-mail: [email protected] www.stlouisfetalcare.com 26 Transport & Trauma >> Dedicated ambulance and helicopter equipped for pediatric and neonatal patients >> Level 1 Pediatric Trauma Center designated by Missouri and Illinois >> Staff certifications include ECMO, PALS and ATLS Transport Services Our neonatal and pediatric transport team of attending physicians, registered nurses and respiratory therapists have advanced training in the stabilization, treatment and transport of small infants and children of all ages. We provide the highest level of care fast with our dedicated ambulance and helicopter “Cardinal Glennon Air” equipped with life-saving equipment to help the most critical patients. 1st SSM Cardinal Glennon’s Transport Team was the first: >> Pediatric transport team in the St. Louis area to provide mobile Extra Corporeal Membrane Oxygenation (ECMO) >> To staff a satellite base in Cape Girardeau, Mo. In 2011 and 2012 neonatal transfers from Southern Missouri and Illinois increased by 44 percent and pediatric transfers increased by 110 percent. Two locations: SSM Cardinal Glennon St. Louis, Mo. Cape Girardeau, Mo. Transport office: 314-242-5988 Trauma services: 314-577-5629 Dan Dierdorf Emergency and Trauma Center SSM Cardinal Glennon Children’s Medical Center is designated a Level 1 Pediatric Trauma Center by Missouri and Illinois As a state-of-the-art, high-tech pediatric medical center, we are prepared for the most critical child health emergencies. We know that children are not just small adults, but they require special physical, developmental, pharmacological and psychological needs. Call to arrange a transport: Experienced transport nurses answer the Access Center line 24/7! 27 Specialists in Pediatric Trauma All members of our trauma team are board-certified specialists in pediatric care. This multidisciplinary team includes surgeons, emergency medicine physicians, child protection physicians, emergency and critical care nurses, respiratory therapists, pharmacists, radiologists, child life specialists, social services, laboratory technicians and pastoral care representatives. Experts in the following subspecialties are also trained in trauma and available 24 hours a day: neurosurgery, orthopaedic surgery, plastic surgery, cardiothoracic surgery, genitourinary surgery, trauma surgery, ophthalmology, otolaryngology and anesthesia. Our medical staff is certified in Pediatric Advanced Life Support (PALS) and Advanced Trauma Life Support (ATLS). Our anesthesiologists specialize in pediatric sedation for our young patients. Not only are we dedicated to caring for children with traumatic injury, we strive to prevent such injuries from occurring. SSM Cardinal Glennon is the St. Louis-area sponsor of Safe Kids Worldwide, an organization dedicated to prevention of childhood injury. In the United States, Safe Kids has contributed to a 45 percent reduction in the child fatality rate from accidental injury over its 20 years, saving more than 38,000 children’s lives. Locally, the St. Louis Safe Kids Coalition provides free car seat inspections, bike helmet fittings and education about child safety at home and in the car. 100 % Trauma team is at the bedside 100 percent of the time when patient arrives (within five minutes with no prior notification). 28 Additional pediatric specialties Adolescent Medicine Dianne Elfenbein, MD, Director Victoria Cornelius, MD Marianne Dunstan, MD Meghan Guerra, MD Allergy/Immunology Alan Knutsen, MD, Director Bradley Becker, MD Manoj Warrier, MD Anesthesiology Brenda McClain, MD, Director Naila Ahmad, MD Farid Azzam, MD James DeBoard, MD Tatyana Demidovich, MD Orlando Perez-Franco, MD Marion Svendrowski, MD Child Protection Timothy Kutz, MD, Director Linda Shaw, MD, MSSW Genetics Stephen Braddock, MD, Director Sandra Davenport, MD James Shoemaker, MD, PhD Jacqueline Batanian, PhD Dental Thomas Veraldi, DMD Gynecology Jill Powell, MD, Director Dermatology Elaine Siegfried, MD, Director Hospital Medicine Chris Sallee, MD, Section Chief Marta King, MD Kevin Powell, MD David Wathen, DO Developmental Pediatrics Rolanda Maxim, MD, Director Shula Portnoy, MD Petra Swidler, MD Cristiana Teodorescu, MD Kimberly Twyman, MD Barbara Braddock, PhD Michael Bunis, PhD Sarah Grafeman, PhD Debra Zand, PhD 29 General Academic Pediatrics M. Susan Heaney, MD, MPH, Director Shahnaz Ahmad, MD Elizabeth Babusis, MD Matthew Broom, MD Mark Eddy, MD Kenneth Haller, MD Donna Halloran, MD, MSPH Gene LaBarge, MD Jennifer Ladage, MD Rashmi Narayan, MD Shahida Naseer, MD Jay Noffsinger, MD Heidi Sallee, MD Michelle Sineff, MD Elizabeth Sugarbaker, MD Timothy Warren, MD Infectious Disease Stephen Barenkamp, MD, Director Ed Anderson, MD Dennis O’Connor, MD Nephrology Ellen Wood, MD, Director Elizabeth Abraham, MD Craig Belsha, MD Richard Feldenberg, MD Neurology Sean Goretzke, MD, Director Deepa Arun, MD Thomas Geller, MD Vincent Gibbons, MD Ophthalmology Bradley Davitt, MD, Director Oscar Cruz, MD Gabriela Espinoza, MD Michelle Beck, OD Orthopaedics Elizabeth Engel, MD, Director John Boudreau, MD Adnan Cutuk, MD David Greenberg, MD Meg Grisell, MD Scott Kaar, MD Jasmin McGinty, MD Joao Panattoni, MD Howard Place, MD Aki Puryear, MD Otolaryngology/ENT John Stith, MD, Director Dary Costa, MD Thomas Donovan, MD John Eisenbeis, MD Josh Hentzelman, MD Anthony Mikulec, MD Thomas Sanford, MD Alan Wild, MD Pathology Cirilo Sotelo-Avila, MD, Director Vickie McCullough, Team Leader David S. Brink, MD Miguel Guzman, MD S. Sultan Habeebu, MD Carole Vogler, MD Jacqueline Batanian, PhD Ella Swierkosz, PhD Plastic Surgery Alexander Lin, MD, Director Christina Plikaitis, MD Psychiatry Zafar Rehmani, MD, Medical Director Donna Gfeller, PhD, Director Annmarie Loth, MD Psychology Donna Gfeller, PhD, Director Barbara Barnes, PhD Amy Ford, PsyD Sarah Hanly, PhD Michael Kenney, PhD Jessica Luitjohan, PsyD Joel Nadler, PhD Megan Ubinger, PhD Stacey Woodrome, PhD Radiology Jeffrey Brown, MD, Director Karen Caudill, MD Keith Kronemer, MD Greg Launius, MD Josh Owen, MD Martin Reis, MD Vilaas Shetty, MD Joan Zawin, MD Yihua Zhou, MD Rheumatology Terry Moore, MD, Director Peri Hickman Pepmueller, MD Reema Syed, MD Sleep Medicine Shalini Paruthi, MD, Director Sports Medicine Adnan Cutuk, MD Scott Kaar, MD Toxicology Anthony Scalzo, MD, Medical Director Rebecca Tominack, MD 30 Modern, Kid-Friendly Facilities The Dorothy and Larry Dallas Heart Center is a comprehensive care center with advanced technology including electrocardiogram, echocardiogram, cardiac MRI, oximetry and stress testing. The center makes cardiac care more convenient and accessible for the more than 23,000 patients treated annually. SSM Cardinal Glennon has the region’s only pediatric hybrid cardiac catheterization suite, a unique space that allows a pediatric cardiologist to work alongside the region’s top pediatric cardiac surgeons to find and fix a patient’s congenital heart defect in the same space. Having the ability to diagnose and treat problems at the same time means safer care, faster healing and a better recovery process for our young patients. The Level IV Dana Brown Neonatal Intensive Care Unit offers 60 private rooms, in-suite nursing areas, breast pumps, personal refrigerators and unlimited visiting hours for families. The St. Louis Fetal Care Center clinical suite offers patient-centered care with two nesting rooms, an ultrasound examination and treatment room and a large conference/consultation room for families to meet with a larger care team. 31 Our Imaging Center combines the most advanced pediatric diagnostic imaging in the region with a focus on comfort for children. The kid-friendly CT and MRI suites let patients select a colored theme for their room and movie to view on the ceiling-mounted flat panel television. More on page 4. The 10 technologically integrated, 700 square foot operating suites allow for increased mobility with portable monitors and improved traffic flow with equipment booms that are attached to the ceiling keeping the floors clean and clear. The suites are equipped with the latest surgical technology, specifically installed for minimally invasive procedures. Large flat panel televisions that double as monitors let patients fall asleep to a DVD of their choosing and provide surgeons imaging to navigate through 3-mm incisions. Our specially-trained pediatric anesthesiologists maintain a safe and relaxed state for children during surgery. Following the procedure, children wake up next to their family in the newly remodeled post anesthesia care unit. The Bob Costas Cancer Center provides a comfortable setting for children to receive prolonged treatment in quiet, private accommodations welcome to family and friends. 32 Modern, Kid-Friendly Facilities The Knights of Columbus Developmental Center moved to a brand new space next to SSM Cardinal Glennon in 2013. The comprehensive center’s new observation rooms are equipped with two-way mirrors for parents to observe their children during treatment and advanced video equipment that allows for recording of behavioral changes in patients, valuable for training and research. Families are welcome to make themselves at home in our all-private, spacious inpatient rooms. Our safe, interactive rooftop playground is a fun, fresh-air environment for kids. Indoor play areas throughout the hospital let kids act their age during their hospital stay. 33 The Ronald McDonald Room offers a comforting environment with some of the amenities of home, including a full kitchen, dining area, computers, internet access, shower, laundry facility, cozy couches and television. Our chapel is an interfaith prayer room, open 24/7 for private reflection. Every corner of SSM Cardinal Glennon was designed with kids in mind. Themed clocks with beautiful details for children to take in can be found throughout the hospital. The Café at Glennon offers casual dining and special serving stations for every taste. 34 Non Profit Org U.S. Postage Physician Services Department 1465 South Grand Blvd. Saint Louis, Missouri 63104-1095 Pediatrics on Demand SSM Cardinal Glennon and Saint Louis University School of Medicine pediatric specialists present lectures through the Pediatrics on Demand education program. These presentations are available online, free of charge for CME credit at pediatricsondemand.com. See page 3 for instructions. For more information on education opportunities through SSM Cardinal Glennon and Saint Louis University School of Medicine visit cardinalglennon.com/education, scan the QR code or email [email protected]. PAID St. Louis, MO Permit No. 2412
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