Download Report

advocacy
11
advocacy day directions
Wednesday, March 4
Advocacy Day, March 4, 2015
Subject Speaker
Breakfast
Advocacy Day Overview Christopher Kush, Soapbox Consulting
Shuttles from Hyatt to Capitol Hill ‐ Garfield Circle
Group Picture upon arrival
Congressional Appointments
Shuttles to Hyatt from Capitol Hill ‐ Peace Circle
Start Time End Time
7:30 AM
8:00 AM
8:45 AM
Location
Haverford and Baccarat Ballrooms
8:30 AM Haverford and Baccarat Ballrooms
Please consult your personal schedule which will be given to you that morning
5:30 PM
Nursing Forum (This is a session for medical professionals only)
Nursing Forum Moderators: Mary Hesdorffer, NP, Executive QUESTIONS ABOUT MEETINGS Director, Meso Foundation
Melissa Culligan, RN, University of Maryland
Logistical Questions (Time/ Location)
Liz Darlison, RN, Mesothelioma UK
Soapbox Consulting 202-362-5910
Nursing Forum Lunch
Content Questions (The ASK)
Melinda Kotzian 703-879-3825
GROUP PHOTO
We will take a group picture of advocates as soon as the buses arrive on
Capitol Hill. In case of inclement weather, we will take the picture in the foyer
of the Hart Senate Office Building. If you have a meeting scheduled at that
time, your meeting should take precedence over the picture.
EXTRA TIME BETWEEN MEETINGS?
Staff and Advocates will meet in the Longworth Food Court on the House
side, and in the Dirksen North Servery Cafeteria.
BUS INFORMATION
The Martz Group will provide buses for Advocacy Day. The buses will be
leaving at 8:45 a.m. from the entrance of the hotel and will drop off on
Capitol Hill at 1st and Maryland Avenue SW on the east curb of Garfield
Circle. A bus will depart Capitol Hill at 5:30 p.m. to return to the Hyatt. The
bus will leave from 1st and Pennsylvania Avenue SW on the east curb of
Peace Circle (just north from the drop off location). The buses will have a
Foundation sign located in the front window to make it easier to identify.
METRO
If you finish your appointments and wish to return to the hotel, you can take
the metro. A map has been provided in your book. You can also choose to
take a cab. The cost will be approximately $20.
GENERAL QUESTIONS
Meso Foundation staff members on the Hill:
Melinda Kotzian 703-879-3825
Maja Belamaric 703-879-3822
Beth Posocco 703-879-3817
Diane Blackburn-Zambetti 703-879-3797 x. 3827
12
10:00 AM
12:00 PM
12:00 PM
1:00 PM
the ask and talking points
What is Mesothelioma?
•
Mesothelioma is among the most painful and aggressive of cancers, invading the lining of the lungs, heart, or stomach. The latency period
from exposure to onset of symptoms can be up to 50 years.
•
Mesothelioma is known to be caused by exposure to asbestos. Contaminated vermiculite can still be found in 35 million attics in the United
States today and has not been banned by the United States.
•
There is an established history of asbestos exposure in military service, and elevated risk of mesothelioma in the military population.
Approximately one third of mesothelioma cases have been shown to involve exposures to Navy personnel or civilian workers in Naval
shipyards.
•
There is only one FDA approved treatment for mesothelioma – the chemotherapy extends life by an average of only three months.
•
Funding for mesothelioma research is the key to the development of new treatments and potential cures.
Ask #1: Congressionally Directed Medical Research Programs (CDMRP)
•
The CDMRP fund the best scientific and medical research aimed at eradicating diseases.
•
As military personnel are disproportionately affected by mesothelioma, it is of utmost importance that the Department of Defense supports
the research necessary to find a cure.
•
We applaud Congress for including in the FY 15 budget $50 million for peer-reviewed cancer research programs, which include dollars for
mesothelioma research.
•
We urge you to support maintenance of this funding level in the FY 16 budget to continue to elucidate treatments and cures for this deadly
disease.
Ask #2: Patient Registry
•
Currently, there is no formal registry to keep track of mesothelioma patients, their demographics, and other important information that could
help identify gaps in current mesothelioma treatment.
•
We urge you to support The Centers for Disease Control and Prevention (CDC) in establishing the National Mesothelioma Patient Registry
to collect the scientific data needed to evaluate existing medical services and identify resources needs for mesothelioma patients.
•
Information gleaned from the registry would be used to:
○○
○○
○○
○○
○○
Establish priorities for successful outcomes
Develop and revise standards of care and treatment best practices for patients with mesothelioma
Share evidence-based information between physicians across the country
Implement benchmarks to improve care in mesothelioma clinics
Identify centers that provide the most beneficial care to patients
13
map of the U.s. capitol
Bus
pick-up
in PM
Bus
Drop-Off
in AM
group
photo
14
eateries and shops
Need to Rest and Relax?
(All facilities are open to the public)
U.S. Senate Dining Areas:
Russell Carry-Out: Open 7:30 AM to 5:00 PM, Monday through Friday (located in the Russell Building Basement, NW corner).
Call 202-224-8083.
Dirksen North Servery: Open 7:30 AM to 3:00 PM, Monday through Friday (located in the Dirksen Building Basement, NW
corner). Call 202-244-2263 for more information.
Dirksen South Buffet: Open 11:30 AM to 2:30 PM, Monday through Friday (located in the Dirksen Basement, South Side). Call
202-224-4249 for more information.
Dirksen South Convenience: Open from 8:00 AM to 4:00 PM, Monday through Friday (located in the Dirksen Basement
South). Call 202-228-2810 for more information
The Hart Senate Chef: Open 8:00 AM to 6:30 PM, Monday through Friday (located in the Dirksen/ Hart Ground Floor Connecting
Corridor). Call 202-224-4587 for more information.
U.S. House Dining Areas:
Cannon Carry-Out: Open 7:30 AM to 4:00 PM, Monday through Friday. Call 202-225-6230 for more information.
Longworth Food Court: Open 7:30 to 2:30 PM, Monday through Friday (located in the Longworth Building Basement).
Call 202-225-0878 for more information.
Rayburn Cafeteria: Open 7:30 AM to 2:30 PM, Monday through Friday. Call 202-225-7109 for more information.
Rayburn Pizza Plus: Open from 11:00 AM to 7:00 PM, Monday through Friday. Call 202-225-3504 for more information.
Ford Cafeteria: Open 7:00 AM to 3:00 PM, Monday through Friday (located in the Ford Building, first floor). Call 202-225-2238 for
more information.
Ford Carry-Out: Open 7:00 AM to 4:00 PM, Monday through Friday (located in the Ford Building, first floor). Call 202-225-2238 for
more information.
U.S. Congress Gift Shop:
Longworth House Office Building Room B 218
Dirksen Senate Office Building Basement Level
15
dc metro map
taxi cab directions
Washington is a taxi cab city. You will most likely have the ability to hail a cab outside of the hotel and on Capitol Hill.
If you need to call for a taxi: D.C. Yellow Cab
+1 202 544-1212
+1 202 544-1212
+1 202 TAXICAB
Taxis cost $3.25 for the first eighth of a mile and 27¢ for each additional eighth of a mile. There is no rush hour fee, although meters do charge 25¢
for each minute stopped in traffic or traveling under 10 mph. Cabs are REQUIRED to accept credit cards. All D.C. taxicab meters have the ability to
print receipts on request.
Extras:
Taxicab passenger surcharge, twenty-five cents per trip $0.25
Telephone Dispatch, two dollars
$2.00
Additional passenger, one dollar
$1.00
(regardless of the number of additional passengers)
16