MEASURING FACILITY/ PROVIDER INDEX OF STIGMA AND DISCRIMINATION IN KENYA 1 The Presentation Outline 1. 2. 3. 4. 5. Introduction Objectives Methodology Results Conclusion 2 Introduction In many countries, S&D associated with HIV/AIDS is widespread S&D a barrier to the maximization of the benefits of interventions targeted at fighting HIV/AIDS pandemic. The negative effects call for measures to combat S&D However, no standardized method is available for capturing and measuring all the aspects of S&D. 3 Introduction… Against this background, the USAID Interagency Working Group on S&D Indicators developed specific tools to measure S&D in the communities, facilities/providers, and, among the PLHIV 4 Objectives The main goal - field-test the USAID IWG indicators measuring HIV/AIDS-related S&D and determine its validity and reliability in the Kenyan context, focusing on facilities and providers of health services. The specific objectives were: • • Estimate indicators of HIV/AIDS-related S&D for facility/ provider indicators. Use the derived indicators to determine HIV/AIDS related S&D sub-index for Kenya 5 Methodology A non-probability multistage sampling method was adopted 5 provinces out of the total of 8 provinces in Kenya selected including two provinces with the highest prevalence rates of HIV A similar procedure was adopted to select the districts for the study out of which a sample of facilities and providers was selected for interviews The facilities and providers stratified by • • • ownership (public, private, FBO/NGO) level of HIV and AIDS care (comprehensive care centers (CCC), semiCCC, voluntary counseling and testing centers and clinics) Occupation (doctors, nurses etc) for providers only 6 Methodology… A total of 118 facilities were sampled in the 5 provinces Public sector6 (17 CCC, 37 semi-CCC and 12 VCT/clinics Private-for-profit health sector (4 CCC, 49 semi-CCC and 8 VCT/ clinics) FBO/NGO facilities (15 CCC, 28 semi-CCC and 18 VCT/clinics A total of 671 providers were interviewed • • • 270 were from public facilities 207 from private facilities 194 from FBO/ NGO facilities. 7 Methodology… The instrument was based on the indicators and questions recommended by the USAID Interagency Working Group on S&D Indicators Tailored to the local conditions The questions covered the following indicators: • • • • • • • • 1) health facilities with policies protecting PLHIV against discrimination; 2) facilities enforcing policies protecting PLHIV against discrimination; 3) providers aware of policies protecting PLHIV against discrimination; 4) providers with nondiscriminatory attitudes; 5) providers reporting nondiscriminatory care; 6) providers reporting blame; 7) providers reporting shame; 8) providers reporting fear of casual contact 8 Level of Care Type of Ownership Public Private FBO/NGO Total Sample Province CCC[1] Semi-CCC VCT/ Clinic Total Central 5 8 2 15 Coast 8 5 4 17 Nairobi 1 1 2 4 Nyanza 1 11 2 14 Rift Valley 2 12 2 16 Sub-total 17 37 12 66 Central 1 13 4 18 Coast 2 10 1 13 Nairobi 0 1 0 1 Nyanza 1 9 0 10 Rift Valley 0 16 3 19 Sub-total 4 49 8 61 Central 7 3 5 15 Coast 3 4 2 9 Nairobi 1 1 1 3 Nyanza 2 7 5 14 Rift Valley 2 13 5 20 Sub-total 15 28 18 61 36 114 38 188 9 Findings Existence of policies: All public facilities have policy guidelines from the Ministry of Health 28 out of 55 facilities with policies in private for profit 22 out of 56 facilities with policies FBO/NGO sector Based on the data, an indicator of 35% of facilities without polices was computed 10 Using the same methodology, the indicator for discriminatory care by type of ownership was estimated. The indicators were 30.35% in the public sector, 31.04% at private facilities, and 30.29% at FBO/NGO facilities, implying that it did not vary a great deal among the different ownership types (see Figure 3.1). 35% 30% 25% 20% Level 30.35% 31.04% 30.29% 15% 10% 5% 0% Public Private FBO/ NGO 11 Findings… Implementation of policies: A few facilities (27%) were reported as implementing policies to protect PLHIV and therefore the indicator for the proportion of facilities not implementing policies protecting HIV positive clients against discrimination was computed at 73% Providers’ awareness of policies: Majority (75%) of the providers were aware of the policies The indicator of the percentage of providers not aware of the policies protecting HIV positive clients against discrimination was therefore calculated to be 25%. 12 Findings… Discriminatory attitude: • A number of questions that were posed in order to compute an indicator for discriminatory attitudes towards people living with HIV/AIDS gave an average index of 30.43% for this indicator. Discriminatory care: • The questions which were used to examine whether or not the health delivered to HIV patients was discriminatory in nature produced overall results showing an average of 25.76% for reporting use of discriminatory care. Blame: • The responses to the questions were averaged to obtain an indicator of blame of 19.8%. 13 Indicator of discriminatory attitudes by level of care 40% 35% Level of indicator 30% 25% 20% 36.56% 38.44% 31.93% 15% 10% 5% 0% CCC Semi-CCC VCT/ Clinic 14 Indicator of discriminatory attitudes by type of personnel 35% 33.54% 32.18% 31.77% 29.73% 30% 31.30% 26.82% 23.82% Level of indicator 25% 20% 15% 10% 5% 0% Medical Officer Clinical Officer Nurse Counselor Administrator Other prov iders Lab Technologist 15 Levels of discriminatory care by type of personnel 45% 38.39% 40% 33.40% 33.31% 35% 34.32% 31.26% 27.96% 30% 26.41% 25% 20% 15% 10% 5% Te ch n ol o gi st r La b pr ov id e O th er to r st ra in i Ad m C ou n se lo r ur se N ce r O f fi ica l lin C M ed ic al O ff i ce r 0% 16 Levels of “blame” by type of facility ownership FBO 17.83% Private 20.03% Public 16% 20.94% 17% 18% 19% 20% 21% 22% Indicator le v e l 17 Levels of “blame” by type of health personnel 27.68% Lab Technologist 40.00% Other provider 25.64% Administrator 18.40% Counselor 29.43% Nurse 30.10% Clinical Officer 20.85% Doctor 0% 5% 10% 15% 20% 25% 30% 35% 40% 45% Indicator level 18 Levels of “shame” by type of facility ownership 9.69% FBO Private 15.42% 10.79% Public 0% 5% 10% 15% 20% Level of indicator 19 Level of “shame” by type of personnel 15.63% Lab Technologist Other providers 6.67% Administrator 6.84% Counselor 11.11% Nurse 11.00% Clinical Officer 12.81% Doctor 12.12% 0% 2% 4% 6% 8% 10% 12% 14% 16% 18% Level of indicator 20 Level of “fear” by level of care VCT/ Clinic 19.38% Semi-CCC 16.90% CCC 16% 18.42% 16% 17% 17% 18% 18% 19% 19% 20% 20% 21 Level of “fear” by type of personnel 30% 25% 25% 21% 20% 19% 18% 18% 16% 14% 15% 10% 5% 0% Doctor Clinical officer Nurse Counselor Administrator Other providers Lab Technologist 22 Findings… Shame: • The method followed to measure indicator for the “Shame” domain was similar to that used the “Blame” domain, and it produced 11.90%. Fear of casual contact: • The responses on twelve different questions used to capture providers’ fear of casual contact with PLHIV due to a worry of contagion of the virus were analyzed, and gave overall value equal to 17.5% for this indicator. 23 Overall Index The values of the 8 indicators were used for constructing indices for S&D in Kenya for the facility/providers The domains on policies were considered very crucial in fighting stigma and discrimination, and were allocated 50% of the total of the weights • • existence of policies taking 20% implementation of the policies taking 30%. The remaining 6 domains assigned equal weights of 8.3% towards the index With these assumptions, the score for the overall estimated index was 40%. This index is positively related to stigma and discrimination, that is, the higher the level of this index, the higher the level of S&D 24 Conclusion The tool faces several limitations: One: • • • the questions tend to guide the providers on what is being sought (that is measuring S&D) Since the informants are relatively more knowledgeable, they are inclined to provide favorable responses to suggest the absence of, non-existence or limited S&D The actual level of S&D may therefore be much higher than calculated. Two, • there is no mechanism to cross - check the responses by the providers Three • the weights allocated to the various indicators in constructing the overall index subjective and could easily influence the magnitude of the final result These limitations, notwithstanding, the tool is valid and reliable in measuring S&D in the Kenyan context. 25 Conclusion, cont’d HIV/AIDS related stigmatization and discrimination (S&D) provides a major constraint to effective and sustained response to prevention, treatment and care at the individual, family and community levels. Arguably, the increasing incidence of S&D poses great potential to wipeout the gains already realized in the fight against HIV/AIDS including scale-up efforts. 26 The results of the analysis are: • • • • • • • • Existence of policies Implementation of policies Providers’ awareness of policies Discriminatory attitude Discriminatory care Blame Shame Fear of casual contact 27 Thank You 28
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