APRIL 2015 Ode to the White Cane Precious Perez is a 17-year-old Chelsea High School student and a talented singer/songwriter. She hopes one day soon to go to college and become a music teacher. teach her independent mobility. She credits her “Awesome!” O&M Specialist, Kara Peters with helping her become the confident traveler she is today. She’s been using a cane ever since she was a youngster. e Carroll Center for the Blind sent an Orientation and Mobility Specialist to her house to orient her to her home, and later, her school, and to “at’s not to say I don’t have room for improvement,” Precious said. “Knowing the cardinal directions comes hard for me, and I want to get better at making routes, but I intend to keep learning and sharpening my skills.” inking about how she will traverse a college campus is an excellent motivator. She will want to know where she is at all times and be able to get there quickly and confidently. Precious once wrote a song dedicated to the white cane. It is a parody of a Taylor Swi song, but it expresses her feelings, nonethe-less. “The Carroll Center was a lifechanging experience for me.” “I used to be painfully shy,” she said. “I was the only kid who was blind in my elementary school, and it made me feel different. I was shutting down.” at was before she came to e Carroll Center for the Blind. “e Carroll Center was a lifechanging experience for me,” she said. “It gave me a connection to people my age who were also blind, some of whom I still count as friends today. We were all using canes, and so were the teachers who were blind. e biggest step parents can take is to allow their child to interact with people who know what they need and who can provide those resources to them and establish a foundation they can build on.” Recently, Precious was featured in a national ad campaign for skincare products. e experience was exciting and exhausting, but for Precious it was something more. It was a chance for her to speak out about what it’s like to grow up as someone who is blind and help dispel misperceptions about blindness. She wants people to see her as a person first, not her blindness. Her powerful message to the world is, “My blindness doesn’t define me. e real me is unstoppable!” Visit the Carroll Center Facebook page and click “Like” when you enjoy an article or photo. 770 Centre Street • Newton, MA 02458-2597 • 800-852-3131 or 617-969-6200 (P) • www.carroll.org UPCOMING EVENTS APPLE MONDAY Do you ever wonder about the significance of the white cane used by people who are blind or visually-impaired? We talk a lot about the importance of independent mobility. But what do we mean by it? And how is it achieved? In this issue of our newsletter we are going to share stories of 3 clients at very different stages of their lives. For each, the independence they received from our Orientation and Mobility Program helped them achieve their personal and very different goals. In the years during and following World War II, Reverend omas Carroll worked with blinded veterans to help them reintegrate into civilian society. In addition to opening the first facility for the newly blinded in the U.S. (now e Carroll Center for the Blind) and an outspoken advocate for the rights of the blind and vision impaired, he developed a new mobility program for which the white cane is a defining element. In his book “Blindness: What it is, What it does, and How to Live with it”, Father Carroll said, “Significant loss of vision results in a loss of independence and in the ability to negotiate the environment. Newly blinded persons may be afraid to move around their homes on their own. ey are without a sense of freedom, security, and control in their environment and feel very dependent on others.” At the Carroll Center, we help people get through these losses and regain control. Dave, Precious, and Betty have suffered the temporary loss of mobility. But through training, perseverance and hard work, they have mastered the orientation and mobility techniques that will give them the freedom to be independent. Your consistent and unwavering support helps clients go from isolation to inclusion, loneliness to a feeling of camaraderie and from loss to gain. Your continued generosity is deeply appreciated. Sincerely, Joseph F. Abely, President ank you for supporting e Carroll Center. For more information about all our programs for the visually impaired or to donate visit us at www.carroll.org. A publication of The Carroll Center for the Blind May 4 and June 1, 2015 9:00 – 12:00 p.m. – IPAD instruction 1:00 – 4:00 p.m. – IPHONE instruction $20 fee for EACH session Please bring your own devices; none will be provided. Contact Maureen Foley at 1-800-852-3131 or [email protected] to register. INFORMATION DAY May 6 and June 3, 2015 Attend a monthly information day to get answers to frequently asked questions about programs and services for the visually impaired. Contact Maureen Foley at 1-800-852-3131 for reservations. Friends and family welcome! TECHNOLOGY FAIR WEST May 30, 2015, 10 a.m. to 2 p.m. Chicopee Public Library 449 Front Street, Chicopee, MA 01013 Spend the day learning about the latest assistive technology options for individuals with vision loss. Visit with vendors, attend workshops and view product demonstrations. THE CARROLL AWARDS Thursday, June 4, 2015, 3:00 p.m. The Carroll Awards recognize blind and visually impaired employees who have made significant contributions to their companies by their outstanding ability and job performance. They demonstrate the contribution to the workforce that can be made by the worker who happens to be blind or visually impaired. Visit www.carroll.org for latest details. CARROLL CENTER SUMMER PROGRAMS Each summer The Carroll Center provides educational and fun programs for students ages 8-21 that empower them to develop socially, academically and independently. Visit our website www.carroll.org for more details or contact Dina Rosenbaum at [email protected]. 770 Centre Street • Newton, MA 02458-2597 • 800-852-3131 or 617-969-6200 (P) • www.carroll.org On The Road David Dunham was diagnosed with retinitis pigmentosa when he was 25, but it progressed slowly. Now, at 55, he’s coming to grips with the puzzling effects of an increasingly narrow field of vision. “It was so slow, it was hard to identify the point at which I should hang up my car keys, or take other actions,” he said. “I probably should have done it sooner. Hindsight is 20/20…but in this case,” he joked, “I guess it’s worse than that.” A former certified planner for the Defense Department and other government agencies, he ventured into the private sector in real estate development, but the real-estate crash in 2008-9 le him unable to recover losses. He and a partner are now in the business development stages of a new venture, which hopes to help municipalities and commercial facilities retrofit to solar energy. e future is beginning to look bright again. “But it’s been a long road,” he said. “Just as my business was crashing, that’s when I started losing more of my vision. I was worried about making a living. It’s not like I didn’t know the vision loss was coming, but I guess I kept thinking I’d find a way to beat it. You don’t necessarily beat it; you just find another arrangement with it.” “This is a tremendous training In 2012, Dave hung up his program. I’ve seen what it’s done for others, and I know what it’s done for car keys, was declared legally me. I’ve got a new confidence now.” blind, and was given a white trouble accepting it, but it’s been cane and a one-hour lesson in good. And it’s important for me to how to use it. He promptly put it be able to get around on my own, in a drawer and didn’t take it out and not on the arm of my wife or again until he came to e Carroll someone else. It’s important for Center for the Blind Independent me to look like a confident Living Program. “Just the thought professional.” of coming here was a leap forward for me, but I’m glad I did it,” he “When we talk about mobility,” said. “I was really struggling to he said, “we oen look at it in a deal with the ramifications of vacuum, and forget how being blind, and being seen as important the ‘O’ part of ‘O&M’ someone who is blind. I can make really is. In our communications direct eye contact with people, classes, I’ve learned about walking and for a while, I thought it was GPS and other apps to help me better to try and trick them into orient for transportation and thinking I wasn’t blind. But there mobility. I’ve learned how to comes a time when you realize communicate effectively when you’re not doing yourself any asking for directions, and how to good.” ease people’s anxiety around talking to someone with a cane. “For the first few days here, I Cooking classes and manual arts walked around with a support are critical for developing cane—it was sort of an interim “I’ve been using the white cane orientation skills around the most step for me. But from my second here and at home on the weekends. dangerous parts of the home – the class on, I’ve been using the white I thought I’d have more trouble kitchen and the garage/workshop. cane here and at home on the accepting it, but it’s been good.” weekends. I thought I’d have more (continued on page 3) 770 Centre Street • Newton, MA 02458-2597 • 800-852-3131 or 617-969-6200 (P) • www.carroll.org “ There is a phrase that is often used in the non-profit arena to describe the many ways that people can give. Some people give time, others give talent and many give treasure. Joe Kolb, an Orientation and Mobility instructor at The Carroll Center, has been giving all three in his 30 history of working with blind and visually impaired clients. He represents all the talented and dedicated staff who make daily contributions to The Carroll Center through their selfless work with clients. According to Joe, fear and lack of trust are two of the biggest impediments to mastering orientation and mobility skills. The instructor’s job is to create an environment or present a circumstance for positive adjustment and incremental success. “When you are dealing with people who are fragile, vulnerable, or angry you have to know what the boundaries are very clearly.” It is not always easy and requires patience, collaboration, creativity and time. “The Carroll Center has a very precious and special kind of mission. I give to The Carroll Center because I know that lives You Know You’re Not the Only One Betty Burns began losing her sight 10 years ago to macular degeneration. “I’m completely in the dark—24/7,” she said. But she’s pragmatic about it: “You’ve got to live with it. You do what you can, when you can. You do your best.” Betty lives at Sunrise Senior Living in Arlington, and at 90, doesn’t go out much, but learning to use a cane has helped her navigate the building. It’s helpful for her to be able to get around independently, especially aer her On The Road These former clients demonstrate the importance of the white cane for independence and mobility. will be changed for the better. Everyone should be able to live as full a life as possible.” ” husband passed away last year. “You have to go with the flow,” she said. She enjoys socializing with a group of blind and visually impaired seniors in Arlington. “e Carroll Center for the Blind was a big help to me,” she said. “When I first went there, I’d go once a week, and a group of us would sit around and talk. It was good to be around other people who were losing their vision. You know you’re not the only one.” “I’m 90 and I can’t see, and these two canes are my lifelines. They help me stay independent and mobile.” (continued from page 3) Low vision adaptations help maximize both orientation and mobility. Sensory development is very much a part of all of these areas. So it’s not just about the ‘M’, it’s about ‘O&M’, as all of these areas of training are integral to a comprehensive ORIENTATION package that makes successful MOBILITY possible.” “is is a tremendous training program,” he said. “I’ve seen what it’s done for others, and I know what it’s done for me. I’ve got a new confidence, now; I walk around with my head held high. I felt beaten down before, but here, they raise you up to your potential. I can’t say enough thanks.” 770 Centre Street • Newton, MA 02458-2597 • 800-852-3131 or 617-969-6200 (P) • www.carroll.org
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