Cystic Fibrosis Association of North Dakota NOT AFFILIATED WITH CYSTIC FIBROSIS FOUNDATION OR THEIR NORTH DAKOTA CHAPTER VOL. 31 March/April 2015 NO. 5 Take a Swing at Cystic Fibrosis! Golfing is a fun way to help our friends with CF to breathe easier! The snow has melted, the days are growing longer. This can mean only one thing! Golf season is near! Two of our long-standing fundraisers are the golf tournaments that we host each summer. We open the season with our Bismarck/Mandan tournament scheduled for June 5, at Prairie West Golf Course in Mandan. We close out our season on August 7, with our Fargo/Moorhead tournament at The Meadows in Moorhead. These two tournaments are one of the big ways that we help our friends with cystic fibrosis to breathe easier! Here are some things that we are looking for: • Corporate and Individual Sponsors for teams and tee boxes. For more information, or to download registration forms, please visit: CFANorthDakota.com • Golfers of all skill levels who are ready to have fun. For sponsorship information or to register over the phone, call Pam at 701.222.3998. • Donations of goods and services for our door prizes and raffles. We hope to see you on the links this summer! Taco John’s Contributes to Fight Against CF Area Taco John’s stores have been helping area families fighting cystic fibrosis for close to two decades and this year is no exception. As this is being written, more than $18,000 has been received from the Christmas 2014 promotion so far, and more will be coming as spring progresses. Taco John’s Nachos Navidad® has many fans throughout the upper Midwest and holiday sales of this item, combined with sales of “Whiplash” ornaments, are the driving forces behind the large donations that have contributed some $200,000 to CFA since the promotion began. The promotion was the inspiration of Mike Sartwell, but Mike is always quick to point out that it couldn’t be a success without the willing cooperation of so many area Taco John’s store managers and their staffs. We are very grateful to Mike and all those affiliated with Taco John’s area stores for your continued contribution to helping young people with cystic fibrosis. The assistance CFA provides covers medications, equipment, scholarships and lung transplants. Each order of Nachos Navidad® and each Whiplash ornament helps us to help those with CF. We couldn’t do it without your help. Giving Hearts Day Continues to Grow Below, is a letter from some of the leaders of the Dakota Medical Foundation whose idea, “Giving Hearts Day,” has grown to what it is today. “Feb. 12 was a tremendous day for charities in North Dakota and western Minnesota. As the hosts of Giving Hearts Day, our foundations want to extend a heartfelt thank you to the generous donors who gave $6.9 million to make our region a better place to call home. This unprecedented generosity has grown at an astounding rate over the eight years since Giving Hearts Day was born. This year, donors made 30,476 gifts, which is an increase of 6,000 over the year before. New and long-time donors together gave $1.2 million more than last year. We continue to be amazed by the collective power of the generous people of this region. Giving Hearts Day has become a statewide “Day of Giving” in North Dakota. When first instituted, it was limited to charities in the Red River Valley. It then began to spread throughout North Dakota and has become probably the largest single “Day of Giving” of the year. The Cystic Fibrosis Association has been a part of Giving Hearts Day for several years now and each year the contribution to CFA has grown. We are very appreciative of those who participated by helping CFA with their contribution on that day…and for that matter, every day. We are finding some new donors each year and some other donors that have contributed to help CFA throughout the year, are choosing Giving Hearts Day as the day to boost their giving. Thank you to all who participated. We continue to help North Dakota people with cystic fibrosis with your help. The money you donated is already at work in countless ways across 287 charitable causes. You are making it easier for disabled people to access the world around them. You are helping children develop a love of the arts. You are saving the lives of homeless animals by supporting foster care; giving dental care to impoverished youth; providing beds to homeless families. You are feeding your hungry neighbors and teaching children to dance. You are helping people with dyslexia learn to read, and people with Parkinson’s continue to walk. There are too many stories to illustrate here, but we have the privilege of hearing them from our partner charities every day. Your gift made a difference to someone. Thank you for giving.” ~By J. Patrick Traynor, Don Scott, Dan Carey and Rondi McGovern from Fargo Traynor is president, Dakota Medical Foundation and Impact Foundation; Scott is executive director and trustee, and McGovern and Carey are trustees, Alex Stern Family Foundation. Donations Directed Toward Ongoing Need Our thanks is again extended to area friends for the ongoing giving taking place that helps us to provide the programs serving our young members with cystic fibrosis. We are fortunate that more and more of our members are able to consider higher education because of the improvement in their conditions through new medications and treatments. This is the time of year when we encourage them to start preparing for college and to contact CFA about the scholarship program we offer to members with CF. All of this costs money, but it also allows them time while at college to continue their therapies. We receive thanks from members for these programs, and it is our turn to pass along that appreciation. Donations to CFA through a variety of means help us to provide this service to our members. The Drake Knights of Columbus continues to support CFA programs with a donation of $145.40. Miles Grandin of Century 21 Morrison Realty donated $100, as did Mari Wanzek. Thank you to all for each and every gift. You are supporting the programs that help CFA help our neighbors with cystic fibrosis. ••• Foundations, service clubs, corporations, cooperatives, local businesses, public employees, schools, families and individuals recognize the importance of helping young people with cystic fibrosis. Your creative methods of remembering young people with cystic fibrosis are much appreciated. We will continue to help them – with your assistance. Thank you to all! Don’t forget that donations may also be made at www.cfanorthdakota.com. The City of Minot Employees continued their long-standing support of CFA programs with a $400 contribution. Heather Goroski used her Tastefully Simple business to contribute $480 to CFA. A Holiday Gift of $500 was given by Verne Anne Goeppinger. Benito Mar and the Mandan Moose Lodge each contributed $100 to help CFA. Sue Kramer donated $1,000 as part of the Giving Hearts Day promotion. In addition, many of those who donated either “in memory of ” or “in honor of ” friends and relatives made significant contributions. Some even joined together to contribute. For example, St. Mary’s Grade School in Bismarck donated $250 in honor of one of their fellow students with CF. Memorials Giving memorials and honorariums are special ways of remembering and honoring someone who has made a difference in your life. The idea of helping someone else by honoring these individuals extends the positive impact of their lives in our world. Our thanks to those who remember… and to those they remembered. Many of those listed in this issue were received as a part of Giving Hearts Day donations. In Memory Of Gwendy Dissell Shelly Kuntz Michelle Mielke In Memory Of Shane Wilhelmi Pam Wohlwend In Memory Of Bryce Thalmann Dan Lien In Memory Of Stanley Heng Dean & Sylvia Fatland In Memory Of their daughter, Jan Dan & Phyllis Lien In Memory Of Allan Johnson Jodi Buchholz In Memory Of Jodi Jahner-Mossett Leah Parmer Mark & Bridget Belter Andrea Stewart Les & Paula Balliet Melanie Jangula Gena Blaine In Memory Of Sonia Balliet-Heidenreich Tamie Aberle In Memory Of Tim Wentz Dan & Annette Peterson In Memory Of Jordan’s organ donor Janna Ness Paul Leintz In Memory Of Ryan Thorson Sherry Skuza Mary Moen In Memory Of Jeff Skuza Mary Mattern In Memory Of Jessika Erickson Mary Mattern In Memory Of Hermina, Frank & Tom Mattern Donna Fricke In Memory Of Tom Mattern Lynette Bender In Memory Of Gaylen Marzolf Dan & Phyllis Lien In Memory Of Pearl Lien Donna Dreckman In Memory Of Debra Sudenga Roger & Juneal Dahnke In Memory Of Earl Johnson Jeff & Connie Gross In Memory Of Dallas Gross In Honor Of Elaine Brown In Honor Of Travis Skuza’s College Graduation Carol Bruce In Honor Of Gunnar Bruce Pam Wohlwend In Honor Of Kole & May Lee Kathi Burd In Honor Of her parents Donna Haustveit In Honor Of Shayne Haustveit Pat Julson In Honor Of Marcia Julson Kim Jones In Honor Of Marci Julson Valerie Cossette In Honor Of Ryan & Lily Stroup Andrea Howe In Honor Of Becky Dahl-Dwyer Debby Barth In Honor Of Michael Barth Don & Michelle Murray In Honor Of Kyle Hardy Beth Wharam In Honor Of Maria Wharam Peg Seidel In Honor Of Ben Roxanne Smedsrud In Honor Of Chelsey Haukos Jan Bashus Stanley & Donna Zimmerman Cari Frisk Tena Lindahl St. Mary’s Grade School In Honor Of Addie Zimmerman Adelle Salveson In Honor Of Mandy Anderson Brandy Randall Chris & Nikki Hahn In Honor Of Logan Hahn Janelle Kyllo Jody Paulson In Honor Of Ashlee Rudolf Jeannie Wosepka In Honor Of Tyler Jahner Josh Krieg In Honor Of Mia Fabre Debra Mund In Honor Of Carly Buchanan Megan Grundstrom In Honor Of MaKenna Sartwell Anonymous In Honor Of Jaken Kasper Anonymous In Honor Of Karen Cossette Mildred Vonschell In Honor Of Tarah Gackle post-34th birthday Thank you to all who donated! Time to Start Thinking CFA Scholarships CHANGES IN CFA SCHOLARSHIP POLICY Those CFA members who are taking advantage of, or are planning to take advantage of, CFA’s scholarship policy will face some changes next semester. State requirements for the manner in which scholarships are awarded by charities require that payments be made to the institution or to the institution with the student co-signing. Tuition payments as well as those for books and fees must be made by CFA to the institution or the institution and the student together. Since CFA scholarships go only to members who have cystic fibrosis and those persons can have special needs for off-campus housing and meals, CFA has received a waiver from this rule with respect to room and board. Some things still remain as they have in the past, however. CFA policy still requires that you file your FAFSA application and contact CFA with a copy of your letter of eligibility once you receive it in order to qualify for CFA’s scholarship. You must also list any scholarships or grants that do not require repayment and make that list available to CFA as well. If you plan to attend post-secondary education next fall, you should be starting that process now. If you have any questions, please contact us at 701-222-3998 or at [email protected]. Non-Profit Org. U.S. Postage PAID Permit No. 419 Bismarck, ND 58501 921 South 9th Street, Suite 115 Bismarck, ND 58504 ADDRESS SERVICE REQUESTED Jeffrey L. Gross President Kenneth Karls Executive Director and Newsletter Editor 4/26 Kyle Hardy 4/20 Karen Cossette 4/18 Ryan Pritchett 4/9 Deanna Seibold 4/8 Jennifer Rothschiller April 5/31 James Lund 5/29 Mikaela Moore Shane Jahner John Loudermilk Patrick Meyer Jordan Klima Makenna Sartwell May Bir thdays 5/26 5/14 5/13 5/8 5/5 Dedicated to Taco Johns and Giving Hearts Donors
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