Download Report

The 2nd Annual
Bay Area
Consortium
Histiocytosis
OUR GOAL IS SIMPLE – TO FIND A CURE
FOR HISTIOCYTOSIS BY 2021
On
The Histio CURE Foundation is proud to
support the second annual Bay Area
Consortium on Histiocytosis Last year, the
event focused on adult Hemophagocytic
Lymphohistiocytosis (HLH) patients. This year,
we are excited to present the latest medical
research regarding both (HLH) and Langerhan
Cell Histiocytosis (LCH). Histiocytosis is a
family of diseases. All Histio-families are
encouraged to join us.
ORGANIZATION
Together we can find a CURE
ADDRESS: P.O. BOX 1104, BELMONT, CA 94002
WEB: WWW.HISTIOCURE.ORG
501(3)(C) FEDERAL TAX ID: 45-2050298
TOGETHER WE CAN FIND A CURE
ORGANIZATION
Our goal is simple – to find a CURE for Histiocytosis by 2021
The 2 nd Annual
Bay Area
Consortium
Histiocytosis
The Histio CURE Foundation (HCF) is a non-profit organization w ith a committed
board of volunteers. Each member has a direct connection to Histiocytosis either as
a parent, patient, or survivor. The Histio CURE Foundation relays 100% of its
funding directly tow ard finding a cure.
TOGETHER W E CAN FI ND A CURE All of our expenses, including this
eventevent,
event, are underw ritten by board members, and
their families and friends.
on
Donations go to doctors working tirelessly to develop safe and effective treatments
for child and adult patients alike.
How to
Get Involved:
Histiocytosis is a family of cancer and cancer-like
diseases w hich impacts 1 in a 200,000 children and
1 in 1,000,000 adults. Because of its rare nature,
the National Institute of Health and other
governmental organizations consider histiocytic
diseases as “Orphan Diseases”. Research tow ard
finding cures for Orphan Diseases is largely funded
through philanthropic organizations like The Histio
CURE Foundation. Please consider joining us for
an existing event, or let us help you start your ow n
fundraising effort.
The Bay Area Consortium on Histiocytosis (BACH) w as
created to educate both medical professional
(providers), patients and families w ith the most up-todate information regarding Histiocytosis.
JUNE 13, 2015
This year’s BACH event is being held at the Lucile
Packard Children’s Hospital (LPCH) located at 725
Welch Road, Palo Alto, CA 94304. The event w ill be
held in the First Floor auditorium. Please park in the
main LPCH parking area. If you have questions or
w ould like to RSVP, please contact Colleen McPeek at
[email protected] or by phone at (650) 7439857
9:00 AM TO 10:30
AM
10:30 AM TO 11:00
AM
11:00 AM TO
12:30 PM
12:30 PM TO 1:30
PM
1:30 PM TO 2:00
PM
The Bay Area
Consortium on
Histiocytosis (BACH)
will host a
patient/provider
forum for medical
professionals.
Speakers will
present the most
current and up-todate research
regarding both HLH
and LCH. Patients
and families are
welcome to attend
this session.
The Histio CURE
Foundation will give a
short presentation
regarding their goals,
current events, and
ways to get involved.
Bagels and coffee will
be served
complimentary of
BACH. This is also an
opportunity to meet
other patients and
families.
This session is
specifically for
patients and
families. Doctors will
present information
on Bone Health after
Therapy and
updated information
from an
Endocrinologist.
Medical
professionals are
welcome to attend,
as well.
Lunch will be
provided by The
Histio CURE
Foundation. Yummy!
This time is intended
for a brief question
and answer (Q&A)
session. If you
choose, please
come prepared to
ask questions of our
panel regarding
research topics and
current treatment
studies.