Getting a Life Get-Together October 2008 Holiday Inn, Bloomsbury Coram Street London WC1N 1HT Page 1 Programme Tuesday 7th October 2 - 6pm Arrival, welcome desk, welcome pack, registration and check-in 7pm Welcome reception Talk by Simon Whitehead, Acting National Director – Learning Disabilities 8pm Dinner 9pm Moveable Feast Arts Company Wednesday 8th October 9am Teams to do their display boards 9.30am Welcome back Programme for the day Groundrules 10am Speakeasy 2 members of each group will stay with their board and the rest will move around the room to find out what others are doing Page 2 11am Break 11.15am Our Choice How do We Really Include People With Learning Disabilities in Decision Making? 11.50am What does this mean for us? Each group has 10 minutes to think about what action they will take as a result of the presentation 12 noon Customised Job Coaching: Anne O’Bryan and Steve Parr Anne 12.50pm Steve What does this mean for us? Each group has 10 minutes to think about what action they will take as a result of the presentation 1pm Lunch 2pm How will we know that we are making a difference? Person-centred approaches and evaluation: Jacqui Jo Jacqui Warne, Jo Seddon and Nicola Gitsham Nicola Page 3 2.40pm What does this mean for us? Each group has 10 minutes to think about what action they will take as a result of the presentation 2.50pm Break 3.05pm Getting a Life – The Big Plan 3.05pm Benefits – How Far Can We Go? George McInally George 3.15pm What does this mean for us? Each group has 10 minutes to think about what action they will take as a result of the presentation 4pm Next Steps 4.30pm Home Page 4 Photo gallery/What people wanted from the day Norfolk Andrew Hewson Chris Haley Danusia Latosinski Helen Goddard We have come to find out about Getting a Life Andrew’s carer Meeting everyone, sharing ideas, learning from others, developing plan and crystalising ideas Finding out more-lots of ideas. Time to think about the project. A good time! Marcia Derbyshire Kim Sadler Alison Evans Sara-Jane Sturman Ideas, sharing information, what's going well and a rest Finding out what happens in different regions Networking sharing ideas Information gathering, sharing ideas, making plans for the future steps Steve Sargent Sharing information and ideas. From personal budget team Page 5 STAG/Medway and Kent Dawn Harris Anton Smith Beth Peal Veronica Denny New ideas. Good stories from other families. The whole experience Meeting new people Learning from other sites and sharing experiences Seeing how we can join up services to open opportunities to fulfill people's lives Steven Chapman Des Sowerby Jo Poynter Sheelagh Smith Working with a big group I had been looking forward to meeting people. Getting to know and working together with some new people Sharing regional perspective. Meeting people with similar interests (wine) Mike Walton Jonathan Gardner Jo Kidd Page 6 Getting to know people and sharing good ideas Learning from others and feeling like a national project North Tyneside Ian Walton Anne Cassidy Helen Witton Carol Blake Sharing and getting new ideas Learning from others and sharing what we are doing in North Tyneside Seeing how everyone is getting on with their project plan Getting a Life would be good! New ideas Passionate views Sue Colvin Matthew Ainsley Kathleen Ainsley Vicky Craig Networking and learning from others new ideas - good practice Meeting people Looking forward to the rest of Matthew's (Getting a) Life….. Getting some new ideas to improve services Moveable Feast Arts Ideas and inspiration Page 7 Oldham and Manchester Phil Sykes Anna Fedeczko Ken Stapleton Chris Holliday Setting out on a 3 year journey and beyond! Hearing about the other programme sites and sharing information Looking at innovation around the country and having fun Learn new skills and talk about it Angela Davey Gill Gilling Sarah Lockwood Stephen Blake Planning and pinching Sharing and pinching ideas Finding out what it’s all about Mark Burton Margaret Pritchard Cath Knowles Thinking together Page 8 Real joint planning and ideas A seamless transition from child to young people with opportunities along the way Get some help to make it happen miEnterprise and Herefordshire Tanya Kirby Emrys Roberts Nicki Gilbert Jeremy Godwin Hearing how others are doing and sharing ideas New experiences The enthusiasm of shared ideas Looking for ideas for my book business Mary Godwin Jon Pitts Stephanie Conham Marion Beavan Sharing ideas Hearing what others are doing Listening and Learning Sharing ideas and networking Mel Evans Page 9 WEL steering group and guests Paul McCourt Hearing about progress and plans Office of Disability Issues Anne Williams Learning about Getting a Life! Meeting people. Having a good evening. Getting to know and working together with new people National Director, Learning Disabilities Page 10 Steve Jackson Hearing about success (no pressure) Charlotte Spencer Department of Children, Schools and Families Hearing about what we can do in Government to help you. Getting to know people over a drink! Catherine Bradshaw Sara Merriman Learning about how the programme is moving forward what's difficult and how they are overcoming the difficulties Department of Children, Schools and Families Cabinet Office Finding out about all the good stuff happening around the country. Council for Disabled Children Sally Hall-Demir Meeting people, watching the drama group and enjoying the meal Office of the National Director, Learning Disabilities Somerset/Roc + Torbay David Maltby Zoe Foster Karen Cotterill Joan Farleigh Moving on - getting my own place and thinking about how Learning about how to get a flat with my fiancee To listen and learn about others and the presentations Meeting others from different areas and meeting job centre plus colleagues getting good practice Mark Anders Rebecca Prewer Keith Brelstaff Richard Salkeld Learn from others around the country To share ideas and experiences with each project and work well together Reflect, share and learn Charlene Collins Carolyn McNair John Brookham Staying in a hotel in London Hearing about how other areas are progressing Learning Getting to know my regional colleagues Page 11 Richmond Caroline Barrett Geraldine Herage Paul Leonard Making progress with our plans and learning from other sites Finding out what others are up to and adding to our plan Better coordination of resources health, education and work Becky Powell Gavin Edwards Ben Finnigan Meeting everyone else and finding out how they are doing Page 12 Stealing ideas and learning new things Nicki Domer Having fun Helpers and speakers Jo Seddon New faces .. Making friends, sharing Inclusion trainer National Development Team Linda Jordan Everyone being here! Building strong links between the Teams GAL Programme Manager Margaret Royle Welcoming everyone, making sure you all enjoy GAL - Administration Nicola Gitsham Seeing the whole team together and how we can support each other to achieve real change so that young people get real lives and paid work GAL Programme Manager Alick Mackenzie Being part of the day, learning more and getting involved Photographer and film maker Simon Whitehead To make sure we are all thinking jobs Interim National Director - Learning Disabilities Anne O'Bryan Learning and thinking of different ways to make more of an impact together George McInally Sharing knowledge and getting to meet people Job coach trainer Employment and Benefits Expert Emma Jenkinson John Hersov Seeing everyone again Website designer Stephen Parr Making jobs something people really want and finding ways to make it happen Job coach trainer Getting to know and working together with new people Advocate and facilitator Page 13 The Sites Oldham Manchester South East with Kent and Medway Richmond Herfordshire with Mi Enterprise Page 14 Somerset Norfolk North Tyneside ROC with Torbay Page 15 Context for Gettling a Life Project Page 16 Plan for Gettling a Life Project Page 17 Presentations Simon Whitehead What we know       Very few people with more complex needs have a job Many people in jobs work short hours Some in jobs they don’t enjoy Jobs are given to the most able people Children with learning disabilities are often not expected to get paid work Many young people repeat the same curriculum in schools and colleges. They do not get jobs at the end. “We need to do away with the notion that some people are capable and others incapable of employment. The issue is more one of what support people need to work and whether we can deliver it here, now and with the resources we have.” What Works, Beyer et al, Shaw Trust 2008 Cross government 3 year employment strategy      Creating the expectation of work - schools, colleges, frontline staff, professionals Disability employment services Benefits Employers Partnership Page 18 Getting a Life    A very important part of the cross government strategy Making systems work together so that young people get jobs and therefore lives We must learn from it - locally and nationally Some of the things we need to learn from you      How to get local leadership and sign up How to make strong local partnerships including people and carers How to tackle the culture and workforce issues How to make all systems and processes work in a person centred way How to use individual budgets and other funding mechanisms together What we need to learn    How to get the right information and support to people Finding and working with skilled employment organisations How to keep to task and measure performance Page 19 Our Choice Westminster Self Advocacy Group How do you become equal partners?       We have good communication with people we work with. We keep on telling people what we want until they listen. Papers for the meeting have pictures and easy words. We prepare for the meetings to give us confidence to speak up. We have lots of breaks in our meeting. We give people rules on how to work with us. Our Choice Rules               We will treat all people with equal respect Respect means being polite Polite means giving eye contact, being friendly, listening, giving everyone time to talk Understanding means giving us accessible information We will treat all people with equal respect Understanding means giving us easy information Bullying is not allowed Traffic light cards let us stop the meeting when we do not understand. We get help to get to the meetings. We use a building which meets everyone’s needs. We keep trying to find the best way of working. We make sure we have extra time in meetings for people to think. We sit in groups at the meeting with people we like. We have good support from Our Choice for events like London Forum, Big Days Page 20 X     We have contact with the Police and Transport For London. They tell people how we want to be treated. We run disability awareness training for the Police and staff in Westminster. We interview staff that work with us. This makes us feel in control. We look at paper work and help make it easier to understand. Sarah Jane’s story       I get direct payments to employ someone to work for me. I get time to prepare on my own. I get one to one support This helps me to have a voice in meetings. We have one topic at a time in a meeting. We get paid for being on the Partnership Board just like anyone else. Stephen’s Story       The job of the co-chair was advertised. I applied for it and went for an interview. I got the job and I get paid for this. I have a job coach and support from our Choice and the learning disability team. We use videos in the meetings. In meetings we have to remember that not everyone uses speech to communicate. Sarah Jane uses a communication book. Page 21 Getting a Life through a Life Changing Job Anne O’Bryan and Stephen Parr It couldn’t be a better time to aim at a real career!      Disability Discrimination Act, Public Sector Duty and Reasonable Adjustment Benefit Reform and Refocus Social Inclusion Target Valuing People Now - Person Centred Planning and Employment as a priority In Control and Self Directed Support What is our approach? Customised Employment     An individualised route to open paid work A negotiated job role which works for both employee and employer Offers equal support to the employer and the person It can lead to full citizenship Page 22 Anne Stephen Customised Employment - the milestones Discovery and profiling  Gathering information about a person to develop the ideal job What we need to do for successful Customised Employment      Identify the person’s contributions and tasks that they can already do Learn the environments, supports and strategies where the person is at their best Understand how the person’s disability impacts on their life Identify what supports are needed in work Develop a training/support plan Information gathered in Discovery    Already existing information, From people who know the person best In environments that make sense for the person. How do we gather the information?     Visit the person at home. Talk to people who know the person well. Look for strategies that work for the person. Look for interests, contributions and skills. Page 23 Through Discovery we learn about:     Connections to people and the community Interests and preferences Individual contributions Support needs and strategies or adaptations used by the person or their supports Planning meeting This creates a plan that includes the person’s:      Job conditions Preferences and interests Contributions - Skills, Personality, Experiences, Qualifications, References Task list they can offer an employer Prioritised local employer list and contacts Planning meeting design    No more paid staff than family and friends Comfortable place with facilitator and flip charts Employment is the goal - the meeting belongs to person Vicky’s Planning Meeting Employer Discovery and Negotiation   Gathering information about local employers that offer the type of work that interests the person And the art of securing an ideal job! Page 24 Local employers for Vicky to try Information gathered in Discovery    What do we know about someone? What will be helpful to an employer? How to present information to employers? During Employer Discovery we learn about:         What kind of people are employers looking for? What are the ‘must have’ skills, what can people learn over time? What are the rules and how important are they? For each employer what does success look like? What makes a place of work ‘tick’ How do they hire, what other ways might they consider What support is available when people start, what would they think about a job coach What’s the actual job they have in mind. Vicky Ken at work What can we negotiate?         Would the employer consider working interviews? Could the person build to maximum hours over time? Is flexible working offered? Can people ‘get good’ at each element of job without having to be good all at once when they start? Would the employer consider a ‘buddy’ scheme? Can people ‘major’ on some aspects of a job and trade the elements that might be too difficult? Does the employer offer job share? Negotiation offers both parties a winning formula! How can we help you? Introduce Customised Employment for a wider audience  Family led jobs  Person centred job coach training  Links to others working on this Stephen Parr: [email protected] Anne O’Bryan [email protected]  Rosemary at work Will at work ? Page 25 The Inclusion Web Jo Seddon - National Development Team “To support excluded people on our society to get choice and control over their services and supports so they can live the life they want in their local community” The Inclusion web The Inclusion web for Steve Page 26 Jo Seddon Inclusion Spreadsheet The Inclusion Web g g g g g g User-led. Each person uses their personal definition of the important people and places in their life. Rich picture. Qualitative, quantitative and graphic aspects combine. It can be read ‘at a glance’. Promotes individual planning. Encourages the person to make their own plans and review changes. Performance monitoring. Allows monitoring of changes in a population over time. Wide interest – Network covers Lancashire, Oxford, London, Bristol, Worcestershire, Liverpool etc. Page 27 Evaluating Person Centred Approaches Jacqui Warne - Head Teacher Ellen Tinkham School, Devon Everyone will be the best that they can be No-one is excluded Everyone has a voice Core Promise      Person centred review 1 x page profile Communication chart Decision making agreement Personalised home:school agreement What’s Working?        Using one page profiles Person Centred Reviews for all (3 - 19) Individualised learning United community with one vision and moral purpose Person centred thinking driving systems Empowerment Pupils voice policy in action Page 28 Jacqui Warne Making a Difference to Me        Action plans that happen Asking how it went Making it better next time Say what you mean and mean what you say Asking, Listening, Hearing Coaching for facilitators Making learning relevant to improve my life chances Making a Difference to School       The 6th ECM outcome: Dream and Aspire! School development planning Curriculum development and emphasis on skills not stuff Using What’s Working/Not Working and Important for the Future Asking the right questions PCAPs for staff Checking that is has made a Difference         OfSTED Inclusion Quality Mark Investors In People CfBT bid for research project Staff CPD Curriculum evaluations Assessments Action plan evaluations My Plan = My School         Whose school is it anyway? What’s working What’s not working What’s Important for the future Citizenship Model Essential Lifestyle Planning Essential Family Lifestyle Planning A Book!! Page 29 Outcomes and Skills    Every Child Matters (Healthy; Safe; Enjoy and Achieve, Economic Well-being, Positive Contribution) 6 Keys to Citizenship (Self Determination; Direction; Money; Home; Support; Community Life) Ellen Tinkham Key Skills (Daily Living Skills; Improving my Own Performance; Problem Solving and Communication; Physical Orientation and Mobility; Working with Others) School Development Planning Key Priority Area Threads/ Strands Issues Key Data Sources Access Physical access Behavioural/ learning styles Sensory access Student voice/ advocacy Person Centred Thinking Admissions Transition Inclusion Access to learning and opportunity Access to resources/ areas Personalisation processes and planning Transition into adult life and the Citizenship model Every Child Matters/ Keys to Citizenship outcomes Student voice systems and impact Multi agency working Staff training Parent support Admission P.C. processes QA data/ evaluations What’s working/ not working Important for the future Aggregated action plans Student voice data (includes behaviour monitoring data) DDA/ access audits Specialist support feedback/ reports Curriculum Sensory Physical Academic Creative Work related learning ECM 6 Keys to Citizenship Personalised learning strands/ choice Assessment and accreditation Achievement and aspiration Transition into adult life and the Citizenship model Staff training Purpose/ direction Enrichment (Gateway/ D of E) Inclusion and outreach Statutory curriculum offer What’s working/ not working What’s important now What’s important for the future Assessment data Accreditation feedback Student voice data other that PC planning as above Staff training feedback Leadership Strategy and effectiveness Innovation and capacity to improve Outreach/ Training offer CPD and professional development HR/ Employee relations/induction Finance, Premises, efficiency School improvement Management Capacity and Training Hold safe pupil dreams and aspirations Pupil achievement School coherence and vision Commitment to Core Promise Effective multi agency working Targeting resources What’s working/ not working What’s important for the future Working/ not working/. Important for the future data from professional development Analysis of Access and Curriculum data National/ International initiatives Outside checks eg Ofsted, SIP, IIP Student voice data Monitoring data Page 30 From person-centred reviews to strategic change Nicola Gitsham - GAL Programme Manager Nicola Gitsham We want to use the information gathered from people’s person-centred reviews and plans to infulence what needs to change locally, regionally and nationally. This diagram shows how this can happen. We want all of the Getting a Life sites to use this approach. Page 31 Benefits - How far can we go? North Lanarkshire Supported Employment Service    Set up in 1999 - Real Jobs for Real Pay Full-time Work (16 hours plus) Integrated Work Place George McInally Supported Employment Model      Vocational Profiling Job Description Job Finding Job Support Job Monitoring What has been achieved      210 Service Users 193 Completed Vocational Profiles 17 Vocational Profiles in Progress 128 People Supported in Word 183 Jobs in Total (inc. 2nd/3rd Jobs) Referral     People with Learning Disabilities People with Mental Health Problems People with Acquired Brain Injuries People with Sensory Impairments On Referral  Welfare Benefit Check  Look at Service Users Benefits as Well as Families Paul was 23 years old when referred to the service. Paul (26) started work on 9th July 2006 as a Dining Room Host with McDonalds and works 16 hours per week.    On referral Paul received £59.15 in benefits When employed his income was £226.73 An increase of £167.58 Page 32 Achievements Lynsay worked as an Admin Assistant for the Child Support Agency from January 2001 to March 2006 and worked 35 hours per week. From March 2006 he has worked as an Admin Assistant with Scottish Executive Transport Scotland working 37 hours per week. Overall better off calculation: £235.48 Impact of work on those working 16+ hours a week    Better off financially More self confidence Social integration Benefit to Others     Parents & Carers Savings to the Government and the local council Helps the local economy Better public perception of disability North Lanarkshire Supported Employment Service g g g g g Service Manager 2 Senior Supported Employment Officers 18 Job Coaches Revenue Costs: £800,000 Senior Officer and political support. Strategic vision Partnership Working Service developed by Social Work. Supported by key partners:      Lanarkshire Enterprise Corporate Partners NHS Lanarkshire DWP Private Sector Page 33 Some People who have found work Donna Customer Service Colin General Assistant Ross Warehouse Assistant Martin Roadsweeper Grade 2 Karen Basket Assembly Alan Production Line Operator Asda NLC Council Tesco Stores Boots Distribution Asda, Motherwell Pataks Foods Feedback from the day What do we need to do differently? Accessibility Focussed activities for the young people  A workshop by students in transition how best to involve students - and not be tokenistic  If we are to include people with learning disabilities we need to find ways of making the content more accessible (suggestion - groups to support them) too dominated by the needs of professionals  A lot not accessible  Being inclusive and accessible is about attitude - not pictures and diagrammes  People with learning difficulties are still not meaningfully involved - this needs to change Page 34   Find something for the young people to do while talking (it goes over their head) Presentations       Too full - presentations need to be more snappy Short presentations Some info although useful, too long winded. Needed breaking down You don't absorb information after so many minutes. Too much information Too much information! Did not understand The presentation was too long - at one point 4 people were asleep. People need to shut up Networking        Not enough discussion on issues Mixing teams to share thinking on specific topics allows network/sharing ideas More networking time More time to discuss in our own groups Not enough time to chat amongst ourselves Time elements too rushed - not enough opportunity to discuss what each LA/area are doing as well as the guest speakers More time for talking together General            The day was quite intense - a lot to get through Difficult to hear each group as too many in the room Difficult to hear group presentations due to proximity of other groups and tables. Maybe another room next time? Day 2 too packed and room could have been more comfy Solution finding -less philosophy Had to book train months in advance but did not have the programme Key allocation Really sorry to miss George Speakeasy - exhausting and not accessible Noise level difficult at times and space small. Otherwise venue good. Next time more chance to reflect Is there a better way of doing speakeasy? Page 35 Other          We have heard things that we already know Generic support from the wider community of employers Capacity building in local communities Get health input Not heard anything particularly new which is kind of reassuring Some need for clarification about expectations Practical examples of engaging employers Its not broke don't fix it!! People are stretching things to make it sound great-or may be its new to them? What did you like?                     Finding out about the jobs our professionals do in children and adult services Good mix of inputs Food! Meeting everyone, networking, different views and different problems etc Found opportunity to meet areas very informative and interesting but would have liked more time for informal discussion with areas of particular interest Talking with John H last night Good venue Enjoyed the stay Music (last night show) The show last night - GREAT! Moveable Feast Networking very good Moveable Feast A can-do conference HAD A BALL Really buzzing atmosphere Great finding out what others are doing Really interesting Making contacts to follow customised job coaching John and Anne Inspirational speakers Enjoyed real pioneering work in Ellen Tinkham school Page 36                               Good practice Nice venue! Wholefood planet Norwich CIC Gained new independent experience I liked talking to people Presentation and ideas from Jacquie (head teacher) were great The people, the venue, the discussion Moveable Feast - brilliant Hotel feels special Lots of information (perhaps too much) Good overview/nice balance of information Better idea of what we need to focus on The big picture Meeting others from different areas. Finding out how they are progressing Enjoyed seeing what everyone else is doing. Really enjoyed PCP course run by HSA and hearing how it was working today Great networking Sharing information and experiences Information about opportunities for people to gain employment even selfemployment Some good examples of good projects I liked listening to experiences and possible ways forward Real examples of projects The opportunity of hearing what is happening nationally. Interesting speakers Excellent speakers and presentations Opportunity to stand back/reflect, meet others and share ideas Lovely to have the support and experience of other groups Ideas about how to evaluate were useful ie inclusion web The Oldham ideas…..FAB Got a lot of experience to take back home Visited London museum Good range of information Been good talking to people Good venue/Contacts Page 37 Email contacts for people taking part Somerset Keith Brelstaff Richard Salkeld Carolyn McNair John Brookham [email protected] [email protected] [email protected] [email protected] ROC/Torbay Mark Anders Joan Farleigh Rebecca Prewer Karen Cotterill Helen Toker-Lester [email protected] [email protected] [email protected] [email protected] [email protected] Oldham Angela Davey Ken Stapleton Sean Cook Philip Sykes Gill Gilling [email protected] [email protected] [email protected] [email protected] [email protected] Manchester Mark Burton Anna Fedeczro Cath Knowles Chris Hulse Margaret Pritchard [email protected] [email protected] [email protected] [email protected] [email protected] miEnterprise/Herefordshire Marion Beavan Tanya Kirby Stephanie Canham Nicki Gilbert Mel Evans Jane Page 38 [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] Jon Pitts [email protected] Norfolk Marcia Derbyshire Danusia Latosinski Alison Evans Helen Goddard Sara-Jane Sturman Steve Sargent Kim Sadler [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] North Tyneside Helen Witton Sue Colvin Carol Blake Ian Walton Anne Cassidy Kathleen Ainsley Matthew Ainsley Vicky Craig Dave Barras [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] c/o …. [email protected] [email protected] STAG/Medway/Kent Beth Peal Anton Smith Jo Kidd Kathy Melling Sheelagh Smith Michael Dalton Jackie Wright Jonathan Gardam Veronica Denny Jo Poynter [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] Page 39 Richmond Geraldine Herage Gavin Edwards Paul Leonard Caroline Barrett Caroline Kerr-Smith Sharon Madigan Becky Powell Di Manning Ben Finnigan [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] [email protected] Getting a Life Programme Managers Linda Jordan Nicola Gitsham [email protected] [email protected] Easy words and design: www.workingwithwords.org