Newsletter Volume 1, Issue 1 April 2015 Red Robin Trust launches first newsletter! Welcome redrobintrust.org Welcome to the first edition of the Red Robin Trust Newsletter, with support from so many since our launch in September 2014 we wanted to share with you all the news from our fantastic fundraisers who are supporting and donating, to show our gratitude to each and every one of you and to keep you updated on the Red Robin Trust. The newsletter will be created on a quarterly basis, please get in touch with anything you wish us to add into the newsletters or if you would like any further information about anything in this quarters newsletter. Huge thanks to all that have supported us it is amazing to see how many things have been organised in aid of the Red Robin Trust. Happy fundraising from The Red Robin Trust Team! The Red Robin Trust launched on 1st September 2014, within 6 weeks due to overwhelming aid and support we were able to apply for charitable status and we became a Registered Charity in England and Wales in January 2015. We are now the first Charity to be specifically linked to and aiding Maffucci Syndrome and Ollier’s Disease!! February 2015 Hope campaign supporters! What we’ve been up to! Achieving charitable status Hope campaign Raising money New corporate support New donation methods NEWSLETTER Page 2 Hope campaign– February 2015 28th February 2015 was Rare Disease Day, recognised worldwide as a day to support and raise awareness of Rare Diseases. The Red Robin Trust launched their first campaign, #Ihavehope . Where through social media, individuals showed their support to raising awareness of Maffucci Syndrome and Ollier’s Disease by uploading their fingers crossed selfie representing our individual hope for the future and our unity of belief for answers being found for the future. We had selfies of support from all over the world from England to France, America to Shanghai. We had the youngest selfie from Lily who was only 6 weeks old and the most unique taken by Ed Cooper at the Millennium Stadium Cardiff for the Wales Vs England Rugby Match. Thank you to everyone who took the time to support our Hope Campaign for 2015 Rare Disease Day! To see how you have helped we can confirm the Hope Campaign has; - Raised awareness of Maffucci Syndrome and Ollier's Disease - Made people aware of 'The Maffucci & Ollier's Association' and 'Red Robin Trust ' (don’t forget to like our facebook pages to stay updated on news, future events and activities) - Raised over £200 to date for the Red Robin Trust to support these conditions - Brought together individuals and families working together to share our hope for the future. - Inspired others to organise their own events to support the Red Robin Trust. VOLUME 1, ISSUE 1 Page 3 With so much to fit into our first newsletter we didn’t want to miss any of those who have fundraised in aid of the Red Robin Trust and helped us to be where we are today a huge thank you to….. Donations in lieu of Christmas Cards from the Support Specialist Department at Egerton Rothesay School in Berkhamsted, Catherine Lavery and Sarah Swinhoe. Tony and Annie Thurling choosing Wedding gifts as donations to the Red Robin Trust. Ice Bucket Challenges from from Oliver Jermaine, Debbie & Will Gilchrist and Chris & Sharon Foskett. Christmas Cards made and sold by Iris-May in Bristol and Eleanor Anwyll in County Durham. Chosen Charity for Shoe Tappers in Bedminster Bristol, Sharon's Hair Salon in Bishopsworth Bristol and Sherburn Slimming World in County Durham. A bucket collection organised at Bristol City Football Club. Sponsored events from Jane Brinkley and Patricia Hardman and their sponsored walks to the Junior and Adult BUPA Great North Run participants Ruby Clarke, Charlotte, Oliver and Joey Anwyll and to Abi Moorcock, Sarah and Dunc who participated in the Reading Half Marathon. A muscial concert from the Church of St Leonards and Longwell Green Orchestra Concert Bracelet Merchandise organised by Tor Leak Jones. Handmade Red Robins organised by Ric Canham. Corporate donations from WPS. Itron- dress red day and quiz night. Rotary donations from Rotary Winton Vale. A raffle organised by the Nailsea Mark Lodge Masons…..and of course for the donations, sponsorship and text donations from many, many others – each and every one of you have helped the Red Robin Trust to develop our work further in supporting the conditions Maffucci Syndrome and Ollier’s Disease. VOLUME 1, ISSUE 1 Dates for your diary Saturday 9th May 2015 – The Ollier’s and Maffucci Association, France. Annual Meeting to be held in Paris. Saturday 3rd October 2015 - The Maffucci & Ollier's Association, England Annual Conference 2015 Venue: Novotel Wembley, Wembley, London, UK For more details please email [email protected] Planned Fundraising Activities Sunday 12th April 2015 – Brighton Marathon Jack Moody will be running in the Brighton Marathon in memory of his father who had Ollier’s Disease. https://mydonate.bt.com/fundraisers/jackmoody Friday 24th – Sunday 26th April 2015 – Elephant & Castle Darts Marathon, Hurst, Berkshire A team of darts athletes will be limbering up for a mammoth marathon to complete 26 miles or approx 8,908 trips up and down the oche in aid of the Red Robin Trust. https://mydonate.bt.com/fundraisers/dartsmarathon Saturday 30th May 2015 – Albert Village Junior Football Club, Donisthorpe, Derbyshire Annual Football Presentation and Fun Day in aid of Red Robin Trust Saturday 12th and Sunday 13th September 2015 – Junior and Adult Great North Run, Newcastle, Our sporty trustees Mathew and Charlotte Anwyll, their children Oliver and Joey, along with Philip Anwyll, Ruby Clarke and Chloe Richardson will be participating in the world’s leading half marathon and Junior Run to support the Red Robin Trust after their son Oliver’s diagnosis in 2012. VOLUME 1, ISSUE 1 Trust news…. We are delighted to congratulate one of our trustees Tony and his new wife Anne on their beautiful Wedding. It was a lovely ceremony at their local church with a stunning afternoon tea to follow! We wish them much happiness and love on their new journey together. To find out more about supporting the Red Robin Trust please visit www.redrobintrust.org or email [email protected] Follow us on Facebook – Red Robin Trust To find out more about Maffucci Syndrome and Ollier’s Disease please visit www.maffucciandolliers.co.uk Follow us on Facebook – Maffucci Syndrome and Ollier’s Disease Website We now have many ways to donate Bank transfer Online donations Easyfundraising.org Justtextgiving Visit our website for more details on donating and ideas on organising your own fundraising event in aid of the Red Robin Trust. Outside of England and Wales and want to fundraise?.....No problem! We have had many people asking outside England and Wales if they can support the Red Robin Trust and this is not a problem. All you need to do is follow your own country's guidelines for Fundraising for a Charity outside of your own. If you require any support or guidance with your fundraising please do not hesitate to contact us; [email protected]
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