Chesterfield Branch September 2011 Issue 124 Ple thr ase pas ow m don’t s m e aw frie e o ay, nd n to tod ay. a In this issue: When things don’t go quite to plan... When Scratching is More than an Itch - Obstetric Cholestasis Cow’s Milk Protein Intolerance and Severe Reflux Elimination Communication - Nappy Free from Birth! Plus Birth Stories, Breastfeeding Advice, Events and more! Covering North Derbyshire, Bakewell and the Hope Valley ©NCT 2011 Alexandra House, Oldham Terrace London W3 6NH, Registered charity no. 801395 Advertising - Canvas factory and Ottertots New Classes in Staveley from September 2011 2 In this issue... Patter Chesterfield Branch Newsletter September 2011 Issue 124 6-7 Recent Events 8 What are the NCT up to? 10-11 Elimination Communication—Beth’s experiences of going nappy free from birth! 12-13 Antenatal Classes with the NCT 14-15 Events Calendar! Pull out and Pin up 16-17 Catherine’s experiences of premature birth 18 Ruth’s Infant Feeding Advice Page 19 New Arrivals A section where we celebrate some new arrivals from over the last few months. 20 - 21 When Scratching is more than an itch—Obstetric Cholestasis 22- 23 Coping with Severe Reflux 24-25 Ask an Expert and Meet a Member! Each issue you’ll get a chance to have your questions answered by our panel and we’ll be interviewing members of Chesterfield’s NCT branch. 26-27 Your Committee Contact Details and NNS Sales in the Area 3 From the editors... Hello and Welcome to Patter! We hope you enjoyed the last issue of Patter with its new features. We’re thrilled to bring you this new issue packed with articles including more of your birth stories, your new arrivals, and your burning questions to direct to our panel of experts. Parenthood is often full of challenges and surprises. In this issue we have some very personal articles sharing experiences of difficult pregnancies, early labours and coping with a child with severe reflux. We also have a follow on article from the last issue of Patter where Beth Roche shares her experiences of Elimination Communication (aka early infant potty training). We hope you enjoy what this issue has to offer and if you’d like to contribute to the next issue please do get in touch with us at [email protected] Best wishes, Gemma and Tara x Disclaimer The following words and phrases used within Patter are all Trademarks: NCT, National Childbirth Trust, Bumps and Babies, Patter Chesterfield Branch Newsletter ©NCT 2011 The National Childbirth Trust, Registered Office, Alexandra House, Oldham Terrace, London, W3 6NH Registered No. 2370573 Charity No. 801395 The line art graphics used within Patter are all copyright and permission to use them must be gained from Michelle Lancaster. No photographs may be reproduced without permission from Chesterfield NCT. The views expressed in this Newsletter are not necessarily those of the editors or the National Childbirth Trust (NCT). Also, the appearance of an advertisement in this Newsletter does not imply endorsement of the company or it’s products by the NCT, nor does it constitute a recommendation. 4 Advertisement: Swimbabes 5 What have I missed? Where does the time go when you’re having fun hey? I can’t believe that I’m writing about our goings on again so soon. To be fair, I have had another babe in the mean time so as you all know....those first few weeks are a blur so I have lost a few weeks / months since I last updated everyone! Well we’ve had some lovely days out since Feb. The most memorable include our trip Sand fun at Chatsworth farm park to the Butterfly House and also Chatsworth Farm Park. The Butterfly House was great if a little chilly thanks to our lovely British climate. We had a good turnout, the little ones enjoyed all the animals and I think the Parrott show got big thumbs up. My own favourite was the actual butterflies; they are so beautiful.....if a little unnerving when they land on you. As mentioned we also had a trip out to Chatsworth Farm Park in May. What a lovely place it is. Again sadly the weather did not play its part but we all had fun despite the cold and rain. The little ones loved the animals and one or two little monkeys got very wet and dirty in the sand pit as can be seen in the photos included. We’ve also been out and about at our usual places such as Linacre Woods and Chesterfield canal, for walks and play. All our get together are fun and it’s great for mums and dads to meet others alike and I’ve certainly built up some excellent friendships over the last couple of years through the NCT. Obviously Out and About 6 What have I missed? it’s great for the little ones too. Sadly I’m leaving the role of Parent Support and Activities lead at the end of the year due to other commitments. I hope I get to meet some of you before then as we’ll still be meeting twice monthly up until the end of Dec 2011. If you’ve never been, do come along as the more the merrier! If anyone is interested in taking on this role in the New Year please feel free to contact me for advice or Rachel Cooke, Chair. Well that’s all for now, see you soon. Lindsay Are You Reading This? Then so will your customers Are you a local business that needs to reach families? Patter is produced by families for families and has a circulation of two issues a year covering Chesterfield, Bakewell, Matlock and Hope Valley. Contact us: [email protected] Ex VAT Inc VAT (@ 20%) 1 year (2 issues) Ex VAT 1 year (2 issues) Inc VAT ¼ page advert (B&W) (Colour) £25 £30 £45 £54 £27 £32.50 £48 £57.60 ½ page advert (B&W) (Colour) £35 £42 £60 £72 £38 £45.60 £65 £78 Full page advert (B&W) (Colour) £60 £72 £105 £126 £65 £78 £113 £135.60 If you would like to sponsor an issue this costs £35 +VAT per issue as well as the cost of an advert inside the magazine and allows you to have your company name, logo etc in colour on the front cover 7 NCT UPDATE The Cinderella Service Being a new mother should be a positive experience. Every new parent deserves the support needed to become confident in caring for their baby, themselves and in adjusting to their new role and their new and changed relationships with their baby and partner. Around three quarters of a million women give birth each year in the United Kingdom (UK). The quality of postnatal care provided to women and families in the first days and weeks after birth can have a significant impact on their experience. For more information... http://www.nct.org.uk/ about-us/what-we-do/ campaigning NCT is calling on every health service in the UK to work to improve the support provided to new mothers in the hours, days and weeks following the birth of their baby and end the situation whereby postnatal care is the Cinderella service. Membership from as little as £2! We offer reduced membership of £2 per annum. Individuals or couples are eligible if they receive Employment and Support Allowance or tax credits (excluding child tax credit alone). So what’s stopping you? Join today and you’ll get early access to some of the NCT Nearly New Sales, membership to a fantastic community of friendly mums and volunteers who are here to support you and much, much more! Join online at www.nct.org.uk/home or phone 0844 243 7000 Exclusive membership discounts at NCT Shop As a thank you for becoming a member, we’re launching a great programme of exclusive offers at NCT Shop. Not only will this help you budget for baby, all profits are used to fund our valuable work 8 Advertisement: Waterbabies 9 Elimination Communication—the “no nappy” alternative Elimination Communication (EC) is early potty training. I’d learned about it fairly late on in my 1st baby’s life, but gave it a go. It involved giving my baby lots of “no-nappy” time and having the potty close at hand and putting him on it when I saw him do something which told me he needed a poo or a wee. I found the wee's easier to do – he did what became known as a “wee shiver” a few moments before a wee. Anyway, my son, who started this at 11 months, was out of nappies day and night before last Christmas when he was 21 months old. As this had worked so well for us and our washing bill (we used cloth nappies) I looked into it a bit more during my pregnancy with Autumn. I got hold of a book called Diaper-free baby (all the literature on this is American, as far as I can fathom). The book went into more detail about “Natural Infant Hygiene” or EC, reminding us that as humans we aren’t born to wear Nappies, and we actually train our baby’s to use nappies, which we then have to train them out of at a later stage. We don’t naturally want to soil ourselves, and so as babies, we communicate with our caregiver that we want a poo or a wee, so that they can help us to do so. We accept that babies communicate their other needs with us, such as wanting to eat or sleep, so this idea is simply an extension of that. “That’s all fine and dandy, but how can you actually do that with babies in the real world?” I hear you ask. Well you can do it to greater or lesser degrees, full time, part time or occasional. You’ll still be working towards the same thing – promoting a more active communication with your baby about all his or her needs. It is likely that if you do it full time, you are more likely to get a “Diaperfree baby” earlier than if you do it part-time, but that doesn’t stop it all happening sooner rather than later. For me, the prospect of not having to change nappies for 3 years was rather enticing. So I decided that I’d give it a go with my newborn baby on a part-time basis. During my pregnancy I began looking into more practical aspects of what was involved in doing it with a newborn baby. I found a plethora of information on it, including lots in parenting forums. At nearly 2 months old I only had to wash about 3 or 4 pooey nappies a week, meaning that I caught the rest in the potty. Autumn, really did seem to have got the hang of that side of it really quickly – On day 4 we caught a meconium poo in her potty which was very exciting, and after that we progressed to doing at least one a day in the potty. We gave her a “pottytunity” each time we changed 10 Elimination Communication—the “no nappy” alternative her nappy – if I was out and about, I simply sat on the toilet and had her sat in front of me . We used a ‘cue’ to do her wee – a “sssss” in the ear for wee’s or a grunty sound for a poo. By the age of six months she had gone a few nights and not weed in her nappy at all... instead she wiggled furiously until I put her on her potty, when she proceeded to wee into it. She did this three times that night which I thought was brilliant! I’m really impressed that my husband has really got into this as well, and really tunes into her needs. He astounded a room full of women at a birthday party -she started making her poo sound - a repeated grunting - and he quickly whipped her up off the floor, took her nappy off and popped her on her potty where she did an enormous poo straight away! The women were aghast at this, not just because of the baby on the potty thing, but because of a dad being so in tune with his baby! I was very proud. Autumn is now 14 months old, and she has been out of nappies completely for about 5 months. She no longer wees at night, choosing to hold it until her first sit on the toilet after her morning feed. The transition was fairly gradual... we continued taking her to the toilet at regular intervals, particularly transition points, like the end of a feed, when she wakes and when she gets out of a fixed seat. She will invariably wee at these times when we take her, but she will also come over to us and make her wee sound (tends to be a sort of mini cry or uuu uuu uuu) and we would then take her to the toilet. We decided to ditch the nappies completely when I found that each time I went to take her for a wee, her nappy was completely dry so we moved to simple training pants instead. I find that even if we miss her wee, she does a kind of "pre-wee", which is a small amount of wee, like a warning, then when we take her to the toilet, she will finish off. I've loved this journey with Autumn, and feel pleased that we embarked upon it. Like with newly toilet trained toddlers she will have the odd accident, but that doesn't put us off continuing with it. And goodness me, what a lot of money it has saved us in nappies and nappy washes! Happy EC'ing Beth Roche, Sheffield Branch 11 Antenatal Classes with the NCT NCT Antenatal Classes in Chesterfield From where to give birth to knowing when your contractions are really getting underway, NCT antenatal classes are a great way to find answers to all your questions about labour and birth. Samantha Forde, our NCT Antenatal Teacher, runs courses in Chesterfield once every 2 months that focus on providing you with the information and skills you need to make your own decisions about your labour and birth. Each NCT antenatal class is flexible to allow each group to focus on their own needs and spend more time on the topics that are most relevant to them. Some of the topics we cover include: Practical skills for labour, including breathing, massage and birth positions Your pain relief choices Realistic information on what happens during birth Early days with your baby - practical baby care skills, relationships changes, emotions after childbirth and often a visit from new parents with their newborn to share their experience with you Each NCT course also includes a session with a qualified breastfeeding counsellor. These friendly sessions provide practical information to help you to start breastfeeding and to consider what life will be like with a new baby. Courses take place over a weekend - Saturday & Sunday, from 1-6pm with the breastfeeding session on an evening, during the following week (from 7-9.30pm). All courses are run at the Grassmoor Community Centre. You can find out more about local courses on the NCT website : http://www.nct.org.uk/courses/antenatal/antenatal-courses OR email [email protected] OR Contact Samantha Ford, our Antenatal Co-ordinator for more information at [email protected] 12 Antenatal Classes with the NCT (continued) 13 Ask for a copy of Patter at an NCT Event Dates For Your Diary Non members welcome - email or text Lindsay if you want to check if the event is still on: [email protected] or 07766244047 Date: Tuesday 13th September Details: Walk along Chesterfield Canal—Meet at Tapton Lock 10am Date: Friday 30th September Details: Stay and Play Queen’s Park—Meet outside Frederick’s Café 2pm Date: Tuesday 13th September Details: Walk along Chesterfield Canal—Meet at Tapton Lock 10am Date: Tue 2nd Oct Details: Walk in Chatsworth Park—Meet at main car park in Baslow 10am Date: Fri 21st Oct . Details: Play at the Jungle soft play area—meet 2pm. Date: Tue 1st Nov Details: Walk around Linacre Woods—Meet 10am at bottom car park Fri 18th Nov – NCT parents’ night out. Time and Venue to be confirmed Don’t forget Sure Start groups... Including Holiday Play Schemes, Baby Weigh & Play, Stay & Play Sessions, Music Workshops, Baby Peeps, Baby Massage, Breast Feeding Groups, Dads’ Events and much more. There is something on most days in most areas. For a full schedule, please call South Lodge on 01246 283030, or pop into any of the Sure Start Centres for a flyer. 14 — Pull out and Pin up! See also www.nct.org.uk/in-your-area/ NCT Nearly New Sales in the Area Chesterfield Branch Date: Saturday 8th October 2011 Time: 10am - 12pm Venue: Annunciation Parish Centre, Queen Street, S40 4SF Amber Valley Branch Date: Saturday 12 November 2011 Time: 10am-12pm Venue: All Saints Church Hall, Smedley St, Matlock Derby Branch Date: Saturday 19th November 2011 Time: 10am-12pm (9:45am for NCT members) Venue: Woodlands School, Blenheim Drive, Allestree. DE22 2LW Derby Branch Date: Saturday 4th February 2012 Time: 10am-12pm (9:45am for NCT members) Venue: Alvaston Junior Community School, Elvaston Lane, Alvaston, DE24 0PU Volunteers Wanted!! Do you feel you have something to offer your local NCT branch? Volunteering needn’t be time consuming and it can be a good way of making friends and building confidence and enjoying your new role as a parent. We need volunteers to fill key roles or just to write an article for Patter or help out at our nearly new sales etc. Contact us at [email protected] if you would like to help. 15 Catherine’s Birth Story Each issue we feature a unique and inspirational birth story from one of our members. This issue we have Catherine’s story of experiencing premature labour not just once but twice. If you have a story you’d like to share, please send it to [email protected] and it could be our story next time. I have two children Thomas age 4 and Benjamin age 15 months, both born prematurely at 35 and 34 weeks. My waters broke with both boys on exactly the same date – 30th April which was slightly spooky! Thomas was born on the 1st May 2007 weighing 5lb 13oz (he shares his birthday with my mum). My pregnancy was fairly straightforward, the only problem I’d had was an abnormality found at my 12week scan, I was referred to Jessops for further test which all came back normal. I was somewhat surprised when my waters broke in the middle of the night at 35 weeks. I went into hospital for them to confirm this, and they decided to keep me in and start off my labour. Once Thomas was born we were able to spend some time together before he was transferred to the SCBU. My husband went with him, and I followed later before being transferred to the post-natal ward. This was a really emotional time for us, this was our first baby and we weren’t expecting any complications. The nurses in the SCBU were lovely, and explained everything to us in detail. Within a day or two we were able to hold Thomas, and start changing his nappy and giving him a wash. I’d spent some time with the Infant Feeding Advisor, and had started to express breast milk in readiness for Thomas to be fed by a naso-gastric tube. Once he was strong enough I was able to start to breast feed, this was a really special and precious time for us. He developed jaundice which was treated with light therapy treatment. I was fortunate to be able to stay on the postnatal ward whilst Thomas was in hospital, I was able to visit anytime and he was able to feed on demand. We were discharged one week later. When I discovered I was pregnant again, I expressed my concerns about having another premature baby. My midwife advised that this was unlikely to happen 16 Catherine’s Birth Story again and there was no medical reason for my previous early delivery. Again, I went on to have a straightforward pregnancy. I had decided this time to finish work early at 30 weeks, to spend some time with Thomas before the new baby arrived. We were on holiday when my waters broke, we came back home and went to hospital for this to be confirmed. I was even more upset this time, as I had been reassured this was unlikely to happen for a second time. My labour started fairly quickly and was stopped a couple of times for medication to take effect to help mature Benjamin’s lungs. The decision was made to keep me in hospital and wait for my labour to start again. Benjamin was born on the 4th May weighing 5lb 1oz, as my labour had progressed very rapidly my husband missed the birth, my mum works at the hospital and I asked if they could contact her, She was with me when Benjamin was born. Similarly with Thomas, I was able to spend some time with Benjamin before he was transferred to the SCBU. I felt more prepared this time for what I was about to see and the emotional side of things. Although, I was conscious about how I would explain everything to Thomas. I stayed in hospital for one day before being discharged home. This was a really difficult time for me, I struggled with leaving my new baby in hospital, but also missed Thomas and wanted him to be as settled as possible. The nurses in the SCBU were very reassuring and I was able to phone anytime to be updated. I really wanted to breast feed again, my milk supply wasn’t good, the birth was traumatic and this had affected my supply. I was advised to take some medication to help this, it worked straight away and I was able to express milk ready for Benjamin to be fed via a tube. He was in hospital slightly longer than Thomas just because he weighed less and he took longer to establish feeding. He was discharged home after 2 weeks. There was an excellent service of follow up care delivered to us by the Community SCBU nursing team, midwife and health visitor, who visited almost daily for the first week. Both boys are growing very well, and there have been no significant complications following their early delivery for which I am most grateful. Catherine Nicholson 17 Infant Feeding Ruth’s page Breastfeeding when things don’t go according to plan Below are four fairly common situations that could affect the way you feel about breastfeeding and include some self-help suggestions... Situation How might I feel? What can I do? Unplanned Caesarean section Tired, frustrated, like everything has gone wrong. Restricted – awkward to pick baby up. Uncomfortable tummy, tricky to find a suitable feeding position. Stay positive – many women have caesareans, wounds heal, babies learn how to breastfeed Sore nipples Painful – puts you off feeding; reluctance to offer breast when you know baby is ready to feed; tempting to cut feeds short because it hurts (these things can all reduce your milk supply) A small adjustment may be all that is needed to resolve this. **Key points – hold baby close, with whole body facing the breast – ear, shoulder & hip in-line. Baby’s head free to tilt back, nose in line with nipple, wait for baby to have a really wide gape – baby’s lower lip touches breast first, well away from the base of the nipple. Baby is relaxed, has a full mouth, soon starts long deep sucks that don’t hurt, swallows milk and on letting go of the breast, your nipple is not misshapen or damaged. Have your partner there & ask for someone with appropriate skills to watch baby attach. Suggestions made are then heard by both of you. Remind yourself that soreness is temporary and fixable. Look at the world through the eyes of your baby. Be patient, sensitive to mood & watch behaviour– a crying baby does not attach easily, see tips above * **. Avoid using teats & dummies, express milk and give by cup, have lots of skin-to-skin contact with baby, offer breast frequently Disappointed – it’s not supposed to hurt Baby won’t latch-on Frustrated, rejected, puzzled, surprised, upset, helpless Mum and baby separated Baby in SCBU Premature birth – shock, unprepared, physically unwell Poorly baby – worried, emotional, stressed and tense *Keep baby really close by, or next to your skin; use pillows to support your arms *Ask staff to help, try laid-back position, with baby ‘draped’ across you, gravity helps take baby’s weight, rather than your arms Visit baby / have photo of baby / contact with SCBU. Important to kick-start the milk supply asap – ideally within 6 hours of birth. Express milk for baby 8-10 times in 24 hours (by hand initially, then with a pump). Small amounts lead to ounces over a few days. Ask about Kangaroo care (s-t-s contact) with baby; remember to express in the night – helps make more milk. Expressing milk is one of the most positive contributions to the health of your baby 18 New Arrivals Breastfeeding Support Each issue we announce as many births that we hear about from members of the NCT. We’re looking forward to sharing in your special news and sharing it for you so if you’ve had a special delivery recently, why not let us know [email protected] So special CONGRATULATIONS and WELCOME to our New Arrivals… Amanda & Chris Heason and their baby girl, Mia born 22.02.11 Vicky Green & Ben Greaves with a baby boy, Jude born 12.02.11 Gilly & Mark with a baby boy, Alfred (Freddie) born 02.05.11 Stephen & Nicola and their little boy, Henry born 13.05.11 Katie & Steven who have had a boy, named Robin born 16.05.11 Lindsay and Gareth Lewis on the arrival of their baby girl, Caitrin Alys, 20.06.2011 Raymond & Helen have had a little girl, Isabella born 24.06.11 Phil & Helen, have had a little boy, Felix born 24.6.11 Bec & James and their baby girl named Olivia, born 24.06.11 Tricia & David have had a little girl, Charlotte born 01.07.11 Terri & Chris with a baby girl, Isabel born 7.7.11 Rachel & Andrew have had a boy named Matthew, 22.07.11 Melanie & Simon and their little girl, Francesca born 09.08.11 Dave & Sam have had a boy, Zachary born 16.08.11 Tom & Gil have had a little girl born 19.08.11 and finally, Jon & Abi and their baby girl named Sophie born 24.08.11 Thank you to Samantha Forde for passing the news on to us, Best wishes to you all from Patter xxx Local and National Breastfeeding Support Help lines Ruth Chesterfield 01246 450074 Sophie Sheffield Susan Buxton 01298 214213 0114 268 3520 National Helpline 0844 2090920 Breastfeeding Network 0844 412 4664 National Childbirth Trust 0300 3300771 Supporterline in Bengali / Sylheti 07944879759 La Leche League 08451202918 Association of Breastfeeding Mothers 0844 412 2949 19 Obstetric Cholestasis This is my second pregnancy and so far it’s not been too bad. I’ve had the occasional mood swing; tiredness; nausea that lasted far longer than it did in my first pregnancy; but all pretty standard second pregnancy complaints. Until, that is, I reached 29 weeks and my hands and feet started to itch. When it first started I was happy to put it down to normal pregnancy itching everyone says can happen and I was able to ignore it mostly; trying to scratch my feet and drive at the same time was a bit of a problem though. By the following day however, I was feeling tired from itching in the night and as I arrived at work I was starting to itch everywhere. Still prepared to get through the day, it was only on the insistence of a colleague that I got it checked out. I was quickly referred to the Triage at Chesterfield Birth Centre by my midwife and they started talking about ‘Obstetric Cholestasis’. After a quick google I tried to be optimistic that it wasn’t OC or ICP (Intrahepatic cholestasis of pregnancy). They sent me home on that Monday with creams and Piriton and I went back a few days later feeling a little less itchy and sure it was nothing to worry about. The fantastic midwife on AAU that day made sure my bile acids were sent off for testing and I was still confident I was fine. But by Saturday the itch became unbearable, I didn’t feel well, I was exhausted and I was making myself sore with the itching. Luckily the team at CBC Triage were fantastic, chased up my results and with bile acid levels of 24 and raised Liver Function Tests they had enough information to prescribe ursodeoxycholic acid (UDCA) under the belief that I had OC. Within a week the itching was minimal and four weeks later my bile acids have been as low as 4 from a high of 39 on the day I started the treatment. But what is Obstetric Cholestasis and why should you be aware of it? The exact cause is unknown, some studies suggest it is genetic – sisters and daughters of those with it are more likely to inherit problems with their liver too but it’s pregnancy hormones that trigger it off. The increased hormones in pregnancy cause some of the bile acids in the liver to leak into the bloodstream which results in persistent itching. For the mother the problems are; the itching (pruritus) , nausea, feeling unwell, difficulty sleeping, lack of appetite and possible jaundice (the latter develops in 10% - 15% of cases, 2-4 weeks after itching starts). There is also an increased risk of serious bleeding after birth. 20 Obstetric Cholestasis For baby the full effects of OC are unclear although for a time studies found that there was an increased risk of still birth towards the end of pregnancy. More recent studies have found that in pregnancies that are actively managed, with regular monitoring and medication, the risk of still birth is reduced to 3.5% or less. What is clear is that the high level of bile acids in the blood can make baby very unhappy in the later stages of pregnancy and they may pass meconium in the womb leading to serious complications and an emergency situation. All of this information can be overwhelming, especially if OC is diagnosed late in pregnancy, as it often is, in first pregnancies (there is a 60-90% chance of it reoccurring in subsequent pregnancies, although it often presents earlier). Later diagnosis often means there isn’t time to treat the condition effectively using medication so parents endure a worrying, and itchy, wait to get to 36 or 37 weeks before labour is induced or a c-section is planned. From my perspective, I was hoping for a chance at a vaginal birth after my first pregnancy ended in an emergency c-section at 38+5. After discussing this with my consultant I’ve been reassured that as my condition is well managed and stable I’ll get the chance to go to 38+3 before they’ll start trying to encourage baby on. I’ve requested a ‘Trial of Labour’, confident that baby will be well monitored throughout. I’d like a chance to try to deliver vaginally but with the knowledge that as soon as baby seems to be unhappy then a c-section is the best route. At least this way I may succeed, giving me more choice with future pregnancies. I’m grateful my consultant is supportive of this. The reassuring feature of the condition is it should resolve within 2 to 8 weeks after birth although there may always be a sensitivity to certain hormones in the future and this can impact on the choice of contraceptive choice. But for anyone else reading this who has never heard of OC there are plenty of places for information and a fantastic, well run charity and support site for those of you who may be diagnosed with this or are looking for further information. Being so rare the condition can be daunting but there is support and advice out there to help. Gemma Phipps For further information and support visit: http://www.ocsupport.org.uk/ 21 Reflux When our baby started hiccupping most of the night 30 weeks into my pregnancy, I guessed he or she was probably going to follow in the family tradition and have some degree of reflux. I kept my fingers crossed I would be wrong. Our beautiful daughter Lucy arrived two weeks overdue. We had been told hundreds of times how tough it was having a new baby, so we didn’t think there was anything unusual with hourly wakings, small frequent breastfeeds, unsettled times, evening crying, and Lucy being upset lying down even for a moment. Things didn’t improve as the weeks went by but I still thought this was just what life was like with a small baby, and got used to never having more than two hours’ sleep. I knew Lucy had a degree of reflux, so we did all the usual things…. raising the cot and changing mat, keeping her upright after feeds. I really didn’t want her to use medication unless she had to, so we put off trying gaviscon (which helps to settle stomach acid) for several weeks. When we did try it, it didn’t work- it just constipated her and made her more unhappy. Then things got worse. She started screaming during and after feeds (not fun when you are on your own breastfeeding in M&S and it feels like the whole world is watching you). Her nappies were always full of mucous, and explosive. After a feed, she would be beside herself for prolonged periods, arching her back repeatedly, and we had to find all kinds of ways to help soothe her. She was totally unable to settle herself and her reflux was always worse in the evenings- we got used to having a tough few hours followed by waking every 30 to 60 minutes during the night. Over the space of a few days when Lucy was 3 months old, things deteriorated further. She started to spend long periods arching her back in a really odd way, and then blood appeared in her nappy. We ended up in hospital where she had blood tests and ultrasound scans to see if she had a surgical bowel condition. In the end, it was decided her symptoms were due to an infection, but the penny had dropped with me. She had cows’ milk protein intolerance (CMPI). I had been wondering this for a while, but kept telling myself I was probably worrying too much, making a fuss, overmedicalising things, but I was sure now. I cut all dairy from my diet, but needed to know that I was not a mad, sleep-deprived 22 Reflux anxious Mum, so we saw a paediatric gastroenterologist who confirmed the diagnosis of CMPI. He felt that she was also intolerant to soy. We were told that she is likely to outgrow these intolerances, although some children never do. But at least I knew I could help her, I just needed to change my diet. This was incredibly hard. I managed to stick to a dairy free and soy free diet (and I’m already vegetarian) and breast fed her until she was nearly 9 months old. This is more of a challenge than it sounds, and than I anticipated it would be. There are dairy and soy products in just about everything from bread to pasta sauce. The thing I missed the most was a cuppa. Take it from me, rice, oat, pea or coconut milk do not cut it in a mug with a brew. I could never grab a bite to eat in a café, and had to take packed lunches to special occasions. Within 2 weeks, there was a huge change in Lucy- she still had reflux, and she was started on Ranitidine (a medicine to stop the stomach producing so much acid) but she was much more settled, the change was unbelievable. This is when the guilt I already felt got much worse. It was my fault she had been struggling, it was down to what I had been eating, what my breastmilk was doing to her, and I felt I should have known or acted sooner. I realise now that actually having a diagnosis by 3 months is pretty goodlots of little ones struggle on for much longer without a CMPI diagnosis, especially if they are breastfed. The symptoms are much more obvious and often picked up earlier in a formula fed baby. Then when I felt that I really needed her to start having some formula, the guilt got worse. I had been made to feel by the Consultant that sticking on the diet and breastfeeding her indefinitely would be a walk in the park, and that considering using formula was a ‘cop out’. It really wasn’t. Knowing that she may not tolerate dairy for many years made me keen to try to introduce an alternative milk before she got too old and wise! Luckily I met a wonderful dietician who was impressed by how Lucy was thriving, and totally understood the challenges for me and also for weaning Lucy (I wish so much at times I could give her a yoghurt!!) She felt that starting to add in a hypoallergenic formula would be beneficial for Lucy as my diet was so restricted she may have not been getting all the nutrients she needed. Lucy is now nearly 10 months old. She is beautiful, funny, and loves dancing and ducks. She is gradually increasing the volume of formula she can manage, and usually enjoys her food (without any butter, milk, cheese….) She still has nasty reflux, and has just started a new medication- Omeprazole. Feeding and sleeping are still not straight forward, but I honestly believe that having difficult times in these early months has made us amazingly close and connected, I feel probably more so than if she had been a super-sleeping, super-feeding baby. Reflux and intolerances do not make for an easy ride, but I wouldn’t change a thing about her. She is brilliant, just the way she is. Catherine Donohue 23 Ask the Experts Have you got a burning question you’d like to know the answer to? Here at Patter we’re fortunate to have some excellent volunteers who are able to offer a wealth of knowledge in other areas. Each issue they will be answering your questions on a whole variety of issues to do with childcare, parenting, feeding and health. So if you have a question you’d like to put to our experts, send it to ‘[email protected]’ and we’ll pick out the most interesting, popular or burning questions for our panel to answer in the next issue. Q: My son has had dermatitis since he was a few weeks old when he reacts to the slightest thing with a bumpy red rash over the affected areas. Although we treat his skin daily with moisturisers we can never get rid of a patch on his left arm and left thigh. Why is this? A: Dermatitis and eczema are very common in young children Fortunately the majority will tend to grow out of it by school age. Emollients (moisturisers) are the mainstay of treatment but some stubborn patches may need a week or two of treatment with a mild steroid cream to settle them down. Your GP should be able to decide if this is necessary and prescribe the correct treatment. Sometimes in older children we can confuse patches of eczema with fungal infections like ringworm which need a totally different approach—see your GP for their advice. TG Samantha Forde Antenatal teacher Tara Jones Health Expert 24 Ruth Oscroft and Jo Glossop Breastfeeding Support Meet A Member In Each issue we’ll be meeting a member of the NCT. For this issue we’ve interviewed Gethin Jones, an NCT Dad Can you tell us a little bit about yourself? My name is Gethin and I am 32. I live with my wife and our two year old daughter in Chesterfield. I work in the telecoms industry. When I’m not working or looking after our little girl I am passionate about motorsport and I have a single seater race car which sadly is in the garage for an engine rebuild at present so I am having to make do with watching the F1 on TV Why did you join the NCT? When my wife was pregnant several of our friends recommended NCT antenatal classes as a way of meeting other parents-to-be and learning about what the birth might really be like. We joined the NCT and went to classes in Sheffield where we used to live then transferred our membership to Chesterfield when we moved south. What has the NCT done for you? The NCT antenatal classes were really good. As a bloke I was totally clueless about labour, birth and babies in general. We made good friends with the other people in the group and it is really good to see their babies growing into confident happy toddlers. The group probably did more for my wife once I had gone back to work and I know she really valued meeting up with another group on mums with children the same age to share horror stories of sleeplessness and food refusal as well as celebrating milestones What would you like to see happen with the NCT in Chesterfield? I think it is a shame that the branch is so small - the NCT has so much to offer and yet many people locally don’t seem to have heard about it at all. A dads and kids group would be brilliant not least so the mums could get a bit of peace and quiet Thanks for your answers Gethin, and for being our first dad to be interviewed! In our next issue we’ll be looking to meet another member – so if you are interested or you know someone else who may be interested in sharing their views on the NCT please contact Gemma or Tara at [email protected] 25 Meet the people who make up Chesterfield NCT branch Branch Chair Rachel Cooke 07721010071 [email protected] Treasurer Caroline Young [email protected] Membership, Patter Distributor and Advertising Co-ordinator Jo Lilleyman 01246 819532 [email protected] Publicity Catherine Nicholson [email protected] Nearly New Sale Co-ordinator Alison Sweet [email protected] Patter Joint Editors Gemma Phipps and Tara Jones [email protected] Events Co-ordinator Lindsay Lewis 07766244047 [email protected] Breast feeding Counsellor Ruth Oscroft [email protected] Area 6 PSA Tara Hamilton [email protected] Antenatal Co-ordinator Samantha Forde [email protected] Area Co-ordinator Claire Annals [email protected] Regional Co-ordinator Jo Wake [email protected] 26 Advertising T Potts Ceramic Cafe 205, Chatsworth Road, Chesterfield, S40 2BA Tel: 01246 221644 www.tpotts.co.uk Get creative and immortalise those tiny hands and feet on tiles and plates (with prices starting from as little as £8) Wanting a truly unique gift for that anniversary or christening then we can help you design a celebration plate, vase, platter, teapot etc personalised to suit your style. T Potts is open Thursday, Friday and Saturday and at other times for children's parties/girlie nights by appointment. 27 Saturday 8th October 2011 10 am— am—12pm At the Annunciation Parish Centre Queen Street Chesterfield S40 4SF The NCT Chesterfield branch proudly presents Chesterfield’s original... Saturday 8th October 2011 10am - 12 pm At the Annunciation Parish Centre Queen Street Chesterfield S40 4SF High Quality Babywear Childrenswear Equipment, Toys, books, Maternity Wear And much, much more! A dm i £1 ssion refr includ only esh ing me nt! For more details contact: [email protected] Please be aware that there are no crèche facilities at any of our sales 28 The NCT is a Registered Charity No: 801395 © NCT 2011
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