Running head: MUSIC THERAPY FOR DEMENTIA Music Therapy for Older Adults with Alzheimer's Disease and Other Dementias: A Grant Proposal Jamie Morales Maria Rodriguez Sherri Soto California State University San Marcos Committee: Luis Terrazas, Ph.D., Chair Jacky Thomas, Ph.D. 1 MUSIC THERAPY FOR DEMENTIA 2 Abstract Alzheimer’s and other dementias continue to be a rising concern in the cognitive health of the older adult population. Currently, there is no cure for these dementias; however, researchers continue to explore the impact of dementia on brain health and to direct efforts toward prevention of this disease. This project and grant proposal focus on the low-cost intervention of music therapy as a complementary and alternative form of treatment for patients with dementia in order to alleviate the symptoms of depression and agitation. The purpose of the grant proposal is to obtain funding to adopt a music therapy intervention utilizing iPads, iPods, and iTunes at Villa Pomerado skilled nursing facility in Poway, CA, targeting patients affected by Alzheimer's and other dementias. Music therapy will promote mind and body stimulation, increase positive emotional responses, and ultimately enhance social engagement for patients with dementia. It is also hoped that such alternative interventions may reduce the use of psychotropic medications to manage symptoms, and enhance the quality of care and well-being of patients struggling with this disease. Keywords: Alzheimer’s disease, dementia, older adults, music therapy, depression, agitation, skilled nursing facility, iPods, iPads, iTunes, individualized playlist, psychotropic drugs, anxiety MUSIC THERAPY FOR DEMENTIA 3 Acknowledgments We would like to thank Dr. Luis Terrazas and Dr. Jacky Thomas for their commitment to our grant proposal project committee. We greatly appreciate their dedication and guidance throughout our journey. We would also like to thank Lindsay Gumm, MSW at Villa Pomerado for sparking our interest in the subject of the well-being of older people affected by dementia. As students of the first graduating cohort, we would like to extend our gratitude to Dr. Luis Terrazas for his relentless effort and perseverance in a collaborative effort to start the Master of Social Work program at California State University San Marcos. MUSIC THERAPY FOR DEMENTIA 4 Table of Contents Page Abstract ............................................................................................................................................2 Acknowledgments............................................................................................................................3 Chapter 1. Background of the Problem .........................................................................................................6 Purpose of the Project ..........................................................................................................7 Definition of Terms..............................................................................................................9 2. Literature Review.......................................................................................................................13 Description of Review Process ..........................................................................................14 Current Research ................................................................................................................14 Brain-Music Connection ....................................................................................................15 Music Therapy Treatment ..................................................................................................16 Medication Management Treatment ..................................................................................18 Alternative Treatment Strategies .......................................................................................20 Challenges ..........................................................................................................................21 Conclusion .........................................................................................................................21 3. Methods .....................................................................................................................................23 Project Selection ...............................................................................................................23 Identification of Potential Funding Source .......................................................................23 Criteria for Selection of Actual Grant ..............................................................................24 Submission Process ...........................................................................................................24 Target Population ..............................................................................................................25 Host Agency......................................................................................................................25 Needs Assessment and Collection of Data .......................................................................26 MUSIC THERAPY FOR DEMENTIA 5 4. Grant Proposal ..........................................................................................................................27 Executive Summary ..........................................................................................................27 Problem Statement ..........................................................................................................28 Music Therapy ..................................................................................................................30 Community Served ...........................................................................................................31 Needs Addressed .............................................................................................................31 Organizational Background ............................................................................................32 Project Description ..........................................................................................................32 Project Goals and Objectives ............................................................................................32 Activities and Timeline .....................................................................................................33 Project Evaluation .............................................................................................................34 Applicant Capability .........................................................................................................35 Budget Request ...............................................................................................................36 5. Discussion ................................................................................................................................. 37 Identification of Need .......................................................................................................37 Strategies to Enhance Funding..........................................................................................38 Social Work Relevance .....................................................................................................39 References .....................................................................................................................................41 Appendix: Patient Health Questionnaire-9 (PHQ-9) .................................................................... 45 MUSIC THERAPY FOR DEMENTIA 6 Music Therapy for Older Adults with Alzheimer's Disease and Other Dementias: A Grant Proposal Chapter 1 Background of the Problem With the rapid increase in the number of older adults in the U.S., treatment of chronic diseases of aging such as Alzheimer’s disease and other dementia cannot be overlooked. The older adult population, many of whom are affected by dementia, is living longer than ever before. Approximately 5.2 million Americans are living with Alzheimer’s disease or other forms of dementia (Alzheimer’s Association, 2015). Unless a cure is discovered, by the year 2050 more than 13 million Americans will be affected by some form of dementia (Alzheimers.net, 2015). By 2030, the number of Californians suffering from dementia will nearly double to approximately 1.1 million, affecting all racial and ethnic groups (California Department of Public Health, 2015). For baby boomers aged 55 years and older in California alone, the risk for developing Alzheimer’s disease is one in eight and one in six for developing dementia (Ross, Brennan, Nazareno, & Fox, 2009). Dementia is a disease that results in deterioration of the brain, decline in memory, and other impairments in cognitive functions, leading to behaviors such as agitation, depression, and anxiety. Members of this vulnerable population deserve an individualized treatment plan which is customized to meet their needs. Preventing further decline of cognitive functioning is vital to the well-being of those affected by dementia. Due to behavioral and psychological symptoms of dementia, individuals suffering from this disease often experience poor quality of life (Sakamoto, Ando, & Tsutou, 2013). MUSIC THERAPY FOR DEMENTIA 7 Purpose of Project The implementation of music therapy can reduce psychological and behavioral issues accompanying dementia. Utilization of a personal playlist has been shown to decrease agitation, stress, and anxiety in individuals with Alzheimer’s and other dementias, thus reducing the need for psychotropic drugs. Furthermore, familiar music can enhance fond memories of one’s past leading to a better quality of life (Cohen-Mansfield, 2013; Cooke, Moyle, Shum, Harrison, & Murfield, 2010; Goodall & Etters, 2005; Sung, Chang, & Lee, 2010). The purpose of this project is to obtain a grant to fund equipment needed in order to produce individualized playlists of music, a form of music therapy, for individuals with Alzheimer’s and other dementias. Equipment needed to implement this project includes iPods, iPads, iTunes cards and headphones. Our primary goal is to obtain funding for the supplies so that staff members at Villa Pomerado Skilled Nursing Facility in Poway can implement the program with their patients. The data staff obtains will add to the research on older adults with various types of dementia. Villa Pomerado is a 129 bed skilled nursing facility which houses 26 long term patients affected by Alzheimer’s or other dementias. Long term patients are defined as those who have resided in the facility for longer than 180 days, do not have a discharge plan, and are unable to return to the community. Villa Pomerado is affiliated with Palomar Health in Poway, California in San Diego County (Palomar Health, 2014). Music & Memory (2015) is a nonprofit organization that trains nursing home staff to create personalized playlists of music using iPods that enable those struggling with Alzheimer’s and other dementias to reconnect with the world through music-triggered memories (Music & Memory, 2015). Many nursing homes across the U.S. are currently utilizing personal playlists MUSIC THERAPY FOR DEMENTIA 8 for their patients. Nursing home staff members are collecting data regarding the use of music and its effects on those with Alzheimer’s and other dementias. By obtaining equipment for Villa Pomerado skilled nursing facility, patients with dementia will experience reduced depression and agitation as they cope and live better, while listening to music which engages them with memories of their past. This matter is vital due to the rapid increase in the older adult population and the issues revolving around the disease of dementia. The loss of independent functioning for the individual struggling with dementia carries its impacts over to families, caregivers, and the healthcare system. Long-term care and medical costs need to be considered for adequate care; therefore, it is necessary to look at alternatives and effective methods to prevent declines in independent functioning and problematic behavior. Caregiving is often difficult and poses emotional, physical, and economic challenges. There are significant implications for families, businesses, and communities. The rapid growth in the prevalence of Alzheimer’s disease and other dementias will impact California’s health care costs. With the disease as a major contributor to Medi-Cal insurance expenditure, state costs will increase significantly (Ross et al., 2009). As more and more nursing homes implement music therapy through the use of personal playlists, data collection will add to the research base either supporting the program or leading to the implementation of other methods to decrease behavioral issues among this population. Furthermore, the community will benefit from the data collected and may use Villa Pomerado as a model to emulate. Music therapy through the use of a personal playlist is not limited to nursing homes. Members of the community can utilize this method of reducing behavioral issues with family members or friends who are affected by Alzheimer’s and other dementias. MUSIC THERAPY FOR DEMENTIA 9 In this project, we will explore the emotional and behavioral symptoms of Alzheimer’s and other forms of dementia as seen in the older adult population. We will also discuss current treatments available for this disease with a strong focus on music therapy. Although not well researched in comparison to other forms of treatment, music therapy may prove to be an alternative and effective intervention for treatment of symptoms associated with neurocognitive disorders. Additionally, it is an inexpensive and viable intervention to promote mental health in individuals affected by dementia. Furthermore, this paper will provide a literature review analyzing existing research for dementia treatments and the significance of introducing music therapy to older adults with dementia. An explanation of how the human brain is hard-wired to connect music with long-term memory will clarify how reconnecting with others through listening to a personal playlist assists in an improved quality of life for those affected by dementia. Definition of Terms Dementia: The essential features of dementia are multiple cognitive deficits that include memory impairment and disturbance in executive functioning. In other words, the ability to think abstractly and to plan, initiate, monitor, and stop complex behavior becomes hindered. Memory impairment is generally the most prominent early symptom. Individuals with dementia have difficulty learning new material and retaining new information from present and past experiences (American Psychological Association, 2015). Alzheimer’s disease: Alzheimer’s disease is the most common form of dementia. This disease affects the patient’s memory and other intellectual abilities significant enough to interfere with daily functions. Alzheimer’s is a progressive disease, meaning dementia symptoms MUSIC THERAPY FOR DEMENTIA 10 gradually worsen over time. Currently, there is no cure for Alzheimer’s disease or other forms of dementia (Alzheimer's Association, 2015). Agitation: Agitation is commonly defined as either inappropriate verbal or word functioning, vocal or voice utterances, or motor activity that is not explained by needs or confusion alone. In the older adult population, agitation can be provoked from a combination of unmet needs and confusion. Agitation can be classified in the following three syndromes: (1) aggressive behaviors (e.g., kicking, cursing, hitting), (2) physical non-aggressiveness (e.g. pacing, restlessness), and (3) verbally agitated behaviors (e.g., complaining, negativism, repetitious phrases) (Gerdner, 2010). Anxiety: Anxiety is commonly presented as having constant worry or fear to the point where it may interfere with everyday function. In older adults, these disorders can occur at the same time as other illnesses. People with an anxiety disorder often experience constant worry and have a difficult time relaxing. They may be easily startled, and have trouble falling or staying asleep. They may also have physical symptoms such as feeling tired, experiencing headaches and muscle aches, and having a hard time concentrating (National Institute of Senior Health, 2015). Depression: Depression is a common problem in older adults. Depression is often described as experiencing sadness, helplessness, and/or hopelessness. Signs and symptoms of depression in older adults include irritability, unexplained or aggravated aches and pains, anxiety and worries, memory problems, lack of motivation and energy, and loss of interest in socializing and hobbies (American Psychological Association, 2015). Skilled Nursing Facility (SNF): A skilled nursing facility provides care for patients who require intense skilled medical care. A SNF must be licensed by the state’s Department of MUSIC THERAPY FOR DEMENTIA 11 Health Services and meet regulation and inspection requirements. Patients remain under the care of skilled nurses and doctors who specialize in the care of the elderly. SNFs provide short-term and long-term care rehabilitation services for people with acute medical conditions (Medicare, 2015). iPods, iPads, and iTunes: iPods and iPads are electric devices that carry the capability to store and play digital media files. These devices come in different sizes and storage capability. They are capable of playing music and movies, while others with touch screens can provide Internet access via wireless technology. iTunes cards are gift cards redeemable for music downloads through iTunes, a Web site to buy and store music. The music bought through iTunes can be stored in an iPod and/or iPad device (Apple, 2015). Psychotropic drugs: Psychotropic medications are any medications capable of affecting the mind, emotions, and behaviors of a person. These medications are commonly used to treat mental disorders (National Institute of Mental Health, 2015). Individualized playlist: The individualized music that has been integrated into the person’s life and is based on the person’s playlist. If the patient is unable to verbalize personal preference of music, selections can also be made knowledgeable by the patient’s family members and friends. Music from the time period in which one grew up may also be utilized (L. Gumm, personal communication, 2015). Older adults: Older adults is the term used to identify people who belong to the age group that includes adults age 65 years and older (County of San Diego, HHSA, 2015). Music Therapy: Music therapy is the clinical and evidence-based use of music interventions to address physical, emotional, cognitive, and social needs of individuals in order to accomplish individualized goals within a therapeutic relationship by a credentialed MUSIC THERAPY FOR DEMENTIA 12 professional who has completed an approved music therapy program (American Music Therapy Association, 2015). MUSIC THERAPY FOR DEMENTIA 13 Chapter 2 Literature Review The prevalence of dementia is steadily rising worldwide in epidemic proportions. The incidence of individuals affected by Alzheimer’s and other dementias is expected to increase to over 13 million adults by the year 2050 (Melzer et al., 2008). Dementia causes severe intellectual deterioration resulting in loss of memory, a decline in communication skills, and personality changes which interfere with a person’s social and occupational functioning. As the disease progresses, behavioral patterns emerge such as depression, extreme agitation, wandering, confusion, and aggression. Agitation presents as inappropriate verbal, vocal, or motor activity that is not explained by an attempt to meet one’s needs. Agitated behavior can be challenging for caregivers and often times results in the decision to medicate the person struggling with dementia (Cohen-Mansfield, 2013; Cooke et al.; 2010; Goodall & Etters, 2005). Alzheimer’s disease can be diagnosed with up to 90% accuracy; however, it must be confirmed by an autopsy. During the autopsy, pathologists look for plaques and tangles in brain tissue. “Probable” Alzheimer’s disease can be diagnosed by a clinician who assesses the medical history of the patient and conducts a physical exam, lab tests, and brain scans. Additionally, a clinician will conduct neuropsychological tests that gauge memory, attention, language skills, and problem solving abilities. It is important to rule out vitamin deficiencies and thyroid problems as these can be treated, whereas Alzheimer’s is not reversible. Rather, early diagnosis makes it easier to manage symptoms and plan for the future (Alzheimer’s Foundation of America, 2015). MUSIC THERAPY FOR DEMENTIA 14 This review evaluates complementary and alternative approaches to older adults with Alzheimer’s and other forms of dementia. The emphasis is on music therapy as an effective form of treatment for these conditions. Description of Review Process The articles selected for this literature review were found through a search of peerreviewed journals pertaining to older adults diagnosed with some type of dementia. A majority of the articles were collected from the California State University San Marcos research database, accessible through the Kellogg Library Web site. Additional articles were found through the Music & Memory (Music & Memory, 2015) Web site, which focuses on the implementation of music intervention for older adults with dementia. All articles used to complete this literature review were selected primarily because they examined the issues of alternative treatments for Alzheimer’s and other dementias. More specifically, the articles described how music therapy greatly impacted the emotional and behavioral symptoms of older adults with this disease. Additionally, references were gathered from academic textbooks focusing on health care in order o gather information pertaining to different modalities of treatment for older adults with dementia. Current Research Individuals with dementia present with multiple needs that can be challenging to caregivers. Often times these needs go unmet. They include the need for social contact, support, and the need for stimulation in order to alleviate boredom and stimulate the mind. Challenging Alzheimer’s and dementia related behaviors present as inappropriate verbal, vocal, or motor activities that are not explained by an individual’s attempt to meet a need or a state or situation in which many things are happening in a way that is not controlled or orderly. Sensory MUSIC THERAPY FOR DEMENTIA 15 interventions in the form of listening to music are geared to alleviate boredom and sensory deprivation (Cohen-Mansfield, 2013; Cohen-Mansfield, Marx, Thein, & Dakheel-Ali, 2010). Brain-Music Connection The human brain is hard-wired to connect music with long-term memory. Many individuals are aware of this by hearing a song associated with a former relationship and instantly recalling the event. One processes music through the primary auditory center in the temporal lobe (Goodall & Etters, 2005). This part of the brain interacts with the frontal lobe and one feels things like rhythm, pitch, beat, and melody. When one hears the words, different areas of the brain allow one to understand the meaning of the words. The visual cortex may play a role as well. The motor cortex plays a role in our tapping to the music. The prefrontal cortex stimulates memory, principally long-term memory of a particular song. Those affected by Alzheimer’s may have difficulty communicating names, places, and facts, but music can tap deep emotional recall. When people hear a song, they may begin to reminisce about the past. Music accesses parts of the brain and reawakens the parts that still work. Beloved music has been shown to calm disorganized brain activity and enable the listener to engage in the current moment in order to connect with others. This reconnection with others assists in an improved quality of life for the individual (Music & Memory, 2015). The benefits of personalized music have been well-studied and documented by various professionals, including the executive director of the Institute for Music and Neurologic Function (IMNF), Dr. Concetta Tomaino, as well as IMNF co-founder and neurologist, Dr. Oliver Sacks (IMNF, 2015). Individuals with dementia may appear confused, agitated, or lethargic but will respond to music, especially if the songs are familiar to them. While listening to music individuals will smile, keep time, and join in while regaining a part of their identity they lost as a MUSIC THERAPY FOR DEMENTIA 16 result of the disease. One’s personal memories which cannot be accessed directly are embedded in music. According to Sacks, “the past which is not recoverable in any other way is embedded, as if in amber, in the music, and people can regain a sense of identity” (Music & Memory, n.d., para. 2). One does not have to be musical to respond, receive, or react to music emotionally. Everyone can continue to do so despite severe dementia because memory, emotion, and moods are accessed through parts of the brain which respond to music. Those with dementia may have lost their life stories but they can have a sense of regaining them through the use of familiar music (Music & Memory, 2015). Patients in the stage of advanced dementia possess a reduced ability to understand verbal language. Yet, music has a remarkable effect on decreasing behavioral problems among those affected by dementia (Goodall & Etters, 2005; Music & Memory, 2015). It is processed in many different parts of the brain and acts as a means of communication for those with a decline in language ability. Music accesses many different parts of the brain through rhythm, pitch, melody, and vibrations, particularly the right hemisphere and the limbic system which deal with emotions. Since a function of the left hemisphere includes language, combining language and music through song provide a greater chance to activate intact neurological pathways than using language alone (Goodall & Etters, 2005). Music Therapy Treatment Significant evidence exists supporting music therapy as a means to reduce agitation in people affected by dementia (Cohen-Mansfield, 2013; Cooke et al., 2010; Goodall & Etters, 2005). Music therapy is defined as “the clinical and evidence-based use of music interventions to accomplish individualized goals within a therapeutic relationship by a credentialed professional who has completed an approved therapy program” (American Music Therapy MUSIC THERAPY FOR DEMENTIA 17 Association, 2005, para. 1). However, more recent evidence suggests that music therapy, through the use of a personal playlist administered by a trained caregiver, is sufficient in reducing agitation among those affected by dementia (Gerdner, 2010). Studies show that familiar music of one’s choice, through the use of a personal playlist, can evoke a more positive response than unfamiliar music as familiar music reconnects an individual with memories of past events (Gerdner, 2010; Sung et al., 2010). A key factor contributing to the effectiveness of music therapy is the ability to assess and identify individually meaningful music selections. This may require assistance from family members for those who are severely affected by dementia (Gerdner, 2010; Goodall & Etters, 2005; Sung et al., 2010). This type of music therapy is relatively inexpensive, non-invasive, accessible, and easily implemented with agitated individuals (Sherratt, Thornton, & Hatton, 2004a). Additionally, very little training is required by caregivers to use this technique. The benefits of music are simply not limited to enjoyment but improve the quality of health and life by providing peace of mind to individuals without the use of medication or restraints (Goodall & Etters, 2005). Although music therapy has been shown to be an effective way to combat behavior and psychological symptoms of dementia, this type of therapy is something that needs to be continued in order to maintain effectiveness. Svansdottir and Snaedal (2006), found music therapy to be a safe and effective method for treating agitation and anxiety in patients presenting with moderately severe and severe Alzheimer’s. In the study conducted in two nursing homes and two psychogeriatric wards, 38 patients were assigned to either music therapy or a control group. The Behavior Pathology in the Alzheimer’s Disease Rating Scale (BEHAVE-AD) showed significant reduction in the sum of scores pertaining to activity disturbances, aggressiveness, and anxiety in the music therapy group. However, four weeks later, the effects MUSIC THERAPY FOR DEMENTIA 18 disappeared (Svansdottir & Snaedal, 2006). It is important to note, however, that this study did not include listening to a personal playlist. “Preferred music listening is an inexpensive and viable intervention to promote mental health of those with dementia” (Sung et al., 2010, p. 1062). Music therapy has shown to be a practical and less costly intervention to manage agitated behaviors in older adults with Alzheimer’s disease and other dementias (Sung & Chang, 2005). With studies demonstrating that music intervention has positive outcomes in reducing the occurrence of agitated behaviors in older adults with dementia, this type of intervention is considered to have potential and may be more cost-efficient than interventions involving psychotropic drugs or physical restraints (Cohen-Mansfield, 2013; Gerdner, 2010; Goodall & Etters, 2005; Sherratt et al. 2004a; Sherratt et al. 2004b). There are progressive and positive benefits of music providing support for persons with Alzheimer's disease and other dementias. Since music therapy affects emotional and psychophysiological pathways, music has been shown to significantly improve mood, communication, and autonomy in individuals (Cooke et al., 2010; Goodall & Etters, 2005). Likewise, it reduces anxiety, and alleviates phases of depression and aggressive behavior (Raglio et al., 2008). Medication Management Treatment While there has been a significant increase of the older adult population in society, there is still no known cure for dementia. This makes for a limited number of medical treatment options for older adults living with dementia. People live longer due to the expansion of western medicine. Older adults struggling with Alzheimer’s disease and other forms of dementia are commonly prescribed medication to help alleviate behavioral and psychological stressors. As described earlier, there is an increase of agitation and combative behaviors in older persons with MUSIC THERAPY FOR DEMENTIA 19 this condition. Medication management has demonstrated modest improvement in minimizing psychosis and agitation (Dewing, 2010). Through the use of cholinesterase inhibitor medications such as Donepezil, Rivastigmine, and Galantamine, the patient’s symptoms of aggression and agitation decrease. These medication treatments work by increasing the amount of a chemical called acetylcholine, which helps messages to travel around the brain. Individuals with dementia have a shortage of this chemical; therefore, potential benefits for complying with this treatment include improvements in motivation, anxiety levels, confidence, daily living, memory, and thinking. In addition, this medication could also delay the symptoms of dementia (Alzheimer’s Association, 2015). This allows a sense of safety for the patients as well as caregivers and clinicians who are attending to the patient’s needs. These distressing symptoms of dementia can often be managed without medication. However, individuals with Alzheimer’s and other forms of dementia have frequently been prescribed antipsychotic drugs as a first choice of treatment potentially due to the limited options for treatment. Older adults receiving medication treatment to help alleviate symptoms of dementia are at a high risk of having dangerous side effects (Alzheimer’s Association, 2015). Antipsychotic drugs have been used inappropriately in a variety of settings. For example, an Alzheimer's Society report on dementia care in general hospitals found that psychotropic drugs are widely used to treat people with dementia in a hospital environment and a quarter of nurses surveyed believe that this use is inappropriate (Alzheimer’s Association, 2015). The side-effects of antipsychotics can be very harmful and can rob individuals of their quality of life (Dewing, 2010). Recent research has shown that there is a high probability of experiencing a stroke in the first four weeks of psychotropic medication treatment (Asanuma, Sumi, Fujii, & Sasaki, 2013), MUSIC THERAPY FOR DEMENTIA 20 and that there is almost a doubling in the risk of mortality (U.S. Food and Drug Administration, 2015). Side effects include excessive sedation, dizziness, and unsteadiness, which can lead to increased falls and injuries, as well as Parkinson’s, body restlessness, reduced well-being, social withdrawal, and accelerated cognitive decline (Asanuma et al., 2013; Rhee, Csernansky, Emanuel, Chang, & Shega, 2011). Despite the potential side effects medication may cause to the patient, there is still a noticeable decrease in agitation, significant enough where it continues to be the most popular form of treatment for dementia. While pharmacological interventions may calm clients, they often times lead to further decline. Caregivers who opt not to utilize medicine often times use restraints, but this results in further agitation as the client lacks control. Furthermore, restraints can result in injury to the client. Non-pharmacological approaches are advantageous in that they focus on the psychosocial well-being of the client as well as the environmental explanations for behavioral occurrences. Additionally, they avoid side effects associated with medication and they address the problem rather than mask it (Evans, 2002; Goodall & Etters, 2005). Alternative Treatment Strategies There are several complementary and integrative treatments which offer potential benefits to patients with dementia as well as their caregivers. In the case of most progressive dementias, including Alzheimer's disease, there is no cure or treatment that slows or stops its progression; hence, the tendency to use drugs may temporarily improve symptoms. Symptoms of dementia may present themselves differently in each individual; therefore, it is important to consider various forms of treatment when looking to alleviate symptoms for this disease (Dewing, 2010). Other forms of treatment include mind-body therapies such as relaxation techniques, meditation, guided imagery, hypnosis, psychoeducation, biofeedback, and cognitive MUSIC THERAPY FOR DEMENTIA 21 behavioral therapy (Asanuma et al., 2013; Rhee et al., 2011). Patients and caregivers can also be encouraged by professionals to engage in healthy lifestyle changes such as following a healthy diet, disengaging from alcohol/drug use, and increasing body movement activities. Also, making changes to the patient’s environment could potentially decrease the symptoms associated with Alzheimer’s and other forms of dementia. Examples of environmental modifications include adjusting the lighting in the room to suit the individual patient, providing pleasant sounds, body/mind stimulation, pets, and positive engagements with others. These sensory activities can minimize behaviors associated with this condition (Dewing, 2010). Challenges Many challenges must be considered before implementing a new intervention. Challenges to music therapy may be selecting individual choice of music, headphone or earphone discomfort, and controlling high volume to avoid ear damage. To begin with, many patients with dementia lack the ability to select a personal playlist. Caregivers must rely on family members or friends to select the music (Gerdner, 2010). Questions to consider in the music selection include: Are friends and family truly selecting music that the client enjoyed in the past or are they selecting music from the time period in which the individual grew up? Selecting music from a particular time period is a method of selection if all other modes are exhausted (Sung & Chang, 2005). To address the challenge of possible discomfort due to headphone use, staff may want to utilize stereos and speakers instead or restrict volume settings on the music devices. Addressing challenges before implementing a new intervention can result in a smoother transition. Conclusion Research indicates that music intervention is a strong predictor of de-escalation of MUSIC THERAPY FOR DEMENTIA 22 behavioral and emotional symptoms in individuals affected by Alzheimer’s and other forms of dementia (Cohen-Mansfield, 2013; Cohen-Mansfield et al., 2010; Cooke et al., 2010; Evans, 2002; Goodall & Etters, 2005; Music & Memory, 2015; Raglio et al., 2008; Sherratt & Hatton, 2004a; Sherratt & Hatton, 2004b; Spiro, 2010; Sung & Chang, 2005; Sung et al., 2010; Svansdoltir & Snaedal, 2006). The implementation of music therapy proves to be effective in reducing agitation and in increasing the creative expression of older adults with dementia (Sierpina, Sierpina, Loera, & Grumbles, 2005). The use of music therapy also appears to be a strong support for care providers as it helps increase healthy social engagements in dementia patients, limiting the role of medication as the main source of treatment for this disease (Dewing, 2010). Clearly, a need for continuous research remains. Dementia is a disease which presently has no cure. However, there is sufficient evidence suggesting the viability of music therapy as a means toward decreasing agitation and depression, thus regulating the emotional and behavioral outbursts in older adults with this condition (Cohen-Mansfield, 2013; Cohen-Mansfield et al., 2010; Cooke et al., 2010; Evans, 2002; Goodall & Etters, 2005; Music & Memory, 2015; Raglio et al., 2008; Sherratt et al., 2004a; Sherratt et al., 2004b; Spiro, 2010; Sung & Chang, 2005; Sung et al., 2010; Svansdoltir & Snaedal, 2006). Music therapy can contribute to maintaining or rehabilitating functional cognitive and sensory abilities, as well as social skills (Raglio et. al., 2008). Embracing the use of music therapy through the use of personal playlists among individuals affected by Alzheimer’s or other forms of dementia could produce significant changes in problematic behavior. Identifying ways to move patients away from a state of despair can lead them towards a more hopeful and meaningful life while living with the challenges of the disease. MUSIC THERAPY FOR DEMENTIA 23 Chapter 3 Methods Project Selection The process of selecting a project began with identifying a population in need. We were informed of a need within the population of individuals affected by Alzheimer’s and other forms of dementia at Villa Pomerado skilled nursing facility in Poway, California. During a staff meeting at Palomar Hospital in Escondido, California, where one of the authors of this project grant proposal was a social work student intern, a social worker from Villa Pomerado described behaviors that affect individuals with dementia. Agitation and depression present as common behaviors among this population. Current research supports music therapy, primarily listening to a personal playlist, as a way to decrease these behaviors in individuals affected by Alzheimer’s and other forms of dementia. The Villa Pomerado social worker identified the need for equipment, specifically iPods, iPads, iTunes cards, and headphones in order for staff members at the facility to provide innovative services to this population, and to obtain data on the benefits of using music as a form of intervention. We were intrigued with the idea of a non-invasive intervention for individuals affected by Alzheimer’s and other forms of dementia. We decided to develop a grant in order to bring the idea to fruition. Identification of Potential Funding Source The process of identifying a potential funding source began with an Internet search via Google as well as links and resources provided by the California State University San Marcos Kellogg Library Social Work link. With the assistance of the CSUSM Social Work librarian and using key words such as Alzheimer’s, dementia, agitation, depression, music and therapy, we selected and searched several Web sites to locate organizations that fit the criteria as potential MUSIC THERAPY FOR DEMENTIA 24 funders. Five potential funders were identified: Robert Wood Johnson Foundation, Music & Memory, Alzheimer’s Association, Hartford Foundation, and Alliance Healthcare. Criteria for Selection of Actual Grant Based on a thorough assessment of the five potential funders, Alliance Healthcare was the most appropriate fit for this project as this foundation is dedicated to advancing health and wellness for those in need. The Alliance Healthcare vision statement is as follows: “We envision a San Diego and Imperial County region where equitable health resources lead to universal health and well-being” (Alliance Healthcare Foundation, 2015, para. 4). The mission statement states: “Alliance Healthcare Foundation (AHF) works to advance health and wellness for the most vulnerable-the poor, working poor, children and homeless in San Diego and Imperial Counties” (Alliance Healthcare Foundation, 2015, para. 2). This project meets criteria to apply for a Responsive Grant which funds a one-time immediate needs project for an organization to continue its work. An immediate needs project may also include organizational and leadership development activities that better position the organization for the future (Alliance Healthcare Foundation, 2015). Submission Process Prior to the submission of the grant proposal to Alliance Healthcare Foundation, we must submit a completed grant proposal to Palomar Health Development, Inc., for review. Palomar Health Development is the 501(c)(3) corporation through which grant monies are channeled for use at Palomar Health facilities. Palomar Health Development staff will edit the grant proposal to comply with the standards of both Palomar Health and Palomar Health Development. Upon completion, the Palomar Health grant writers will determine whether they or the authors of this MUSIC THERAPY FOR DEMENTIA 25 project grant proposal will submit the actual proposal to Alliance Healthcare Foundation (T. Howell, personal communication, February 9, 2015). Alliance Healthcare Foundation proposals for responsive grants are accepted throughout the year with no deadlines. This type of grant meets the needs of projects that are time sensitive and designed for organizational development. Prospective grants will be reviewed for the geographic location of the program, target population, AHF priority, funding area, evidence-base for program design, and strengths and weaknesses in the request and budget. Responsive grants should be e-mailed to the Executive Director or Program Officer at Alliant Healthcare Foundation. They can also be mailed to the Alliance Healthcare Foundation. Target Population The target population consists of long term patients affected by Alzheimer’s and other dementias who reside at Villa Pomerado skilled nursing facility in Poway, California. These long-term patients have resided in the facility for over 180 days. They do not have a discharge plan as they are unable to return to the community. Host Agency Villa Pomerado is affiliated with Palomar Health, a local healthcare district organized under Division 23 of the California Health and Safety Code, and is committed to providing a continuum of care for a variety of adult patients with post-acute and long-term needs. This skilled nursing facility offers a continuum of care for a variety of adult patients with post -acute and long-term needs, including rehabilitation, respite, and hospice. Staff consists of highly trained nurses, nurse practitioners, social workers and physicians who work together with patients, family members and physicians toward the best possible outcomes. Staff members are MUSIC THERAPY FOR DEMENTIA 26 professional and empathetic as they strive to meet the needs of the patients in this home-like atmosphere (Palomar Health, 2014). Needs Assessment and Collection of Data Dementia is a disease resulting in brain deterioration and a decline in memory and other cognitive functions. These cognitive impairments lead to behaviors such as agitation, depression, and anxiety. Individuals affected by Alzheimer’s and other forms of dementia in this vulnerable population require an individualized treatment plan which is customized to meet their needs. This is vital to the well-being of this population to prevent further decline in cognitive functioning. The behavioral and psychological effects of Alzheimer’s and other forms of dementia often result in a poor quality of life for these individuals (Sakamoto et al., 2013). Therapeutic activity, such as music therapy, has been shown to provide adequate levels of meaningful stimulation. This improves quality of life and helps manage behavioral symptoms associated with Alzheimer’s and other dementias (Sherratt et al., 2004a). MUSIC THERAPY FOR DEMENTIA 27 Chapter 4 Application and Proposal Executive Summary Alzheimer's and other dementias are general terms used to describe the decline of cognitive abilities severe enough to interrupt daily activities (Alzheimer’s Association, 2015). Research indicates that dementias are caused by damage to the brain cells that interfere with the ability for brain cells to communicate with each other (Alzheimer’s Association, 2015). When the brain cells cannot communicate normally, thinking, behavior, and feelings can become affected (Sierpina et al., 2005). Many dementias are progressive, meaning symptoms start out slowly and gradually increase to the point where the ability to complete daily tasks becomes difficult. Individuals struggling with this disease experience a significant number of symptoms associated with a decline in thinking skills and memory retention. Other significant symptoms include the increase of agitation and depression in patients affected by this disease (Dewing, 2010). Ongoing research for Alzheimer’s and other dementias continue to add to the knowledge base on how to treat this disease as there is no current cure for dementia. However, the treatment of mood symptoms, such as agitation and depression, in this population remains a challenge for physicians and other professionals (Sierpina et al., 2005). There are very limited treatments for dementias since a cure is yet to be discovered. The most commonly used form of treatment being used to treat the symptoms of dementia is medication, which results in a temporary alleviation of the symptoms. This grant proposal focuses on increasing the use of non-medication treatments to help decrease agitation and depression symptoms in persons with dementia. A promising treatment MUSIC THERAPY FOR DEMENTIA 28 recently gaining popularity with this population is music therapy. Music therapy presents as a low cost intervention with a wide range of benefits, such as improvements on measures of depression, agitation, and a variety of cognitive functions (Sherratt et al., 2004a). Music therapy consists of vocal and instrumental strategies to improve functioning and/or facilitate changes that contribute to the quality of life for individuals struggling with dementia (Sherratt et al., 2004a; Sherratt et al., 2004b). This proposal emphasizes strengthening the use of music therapy through the utilization of a personal playlist that individualizes the music to the patient’s liking in order to decrease moods of depression and agitation for individuals with dementia (Spiro, 2010). The beneficiaries of this funding would be dementia patients residing at Villa Pomerado nursing care facility in Poway, California in San Diego County. By supplying this facility with music products such as iPods, iPads, iTunes Cards, and headphones, patients would be able to make use of music therapy treatment to treat depression and agitation symptoms associated with their dementia. This treatment will be administered by the facility staff members who have received previous training in music therapy. The devices will be available to the patients on a daily basis and staff will be documenting progress notes reflecting the patient’s response to treatment. Music therapy will be an ongoing form of treatment for patients diagnosed with Alzheimer’s or other dementias. Problem Statement Currently, dementia affects approximately 5.2 million Americans aged 65 years and older, a growing number expected to reach 7.7 million by 2030 (Alzheimer’s Association, 2015). This disease has significant damaging effects on the functional quality of life of patients. Although there has been extensive research examining potential disease modifying drugs to combat dementia symptoms, the number of individuals diagnosed with the disease is rapidly MUSIC THERAPY FOR DEMENTIA 29 increasing, generating great urgency to implement non-medication interventions that may help improve the daily functioning and quality of life of persons with dementia (Sung et al., 2010). Memory loss, mood disturbances, and inability to complete basic daily tasks are more prevalent among individuals diagnosed with dementia than other diseases impacting the general population (Cohen-Mansfield, 2013). Current research shows individuals diagnosed with Alzheimer’s or other forms of dementias experience increased agitative and depressive symptoms (Cohen-Mansfield, 2013). Dementia-related behaviors present as inappropriate verbal responses, vocal utterances, or motor activities that are not explained by an individual’s attempt to get needs met. Individuals with dementia present with a significant number of unmet needs such as the need for body and mind stimulation, social contact, and support. There have been increasing concerns about the use of pharmaceutical drugs in individuals with dementia (Asanuma et al., 2013). There are significant issues when providing this type of treatment to patients in terms of patient safety and quality of care. Medication management appears to be the most popular treatment used in patients with dementia compared with other non-medication treatments (Rhee et al., 2011). The potential benefits of receiving pharmaceutical treatments, however, may be outweighed by the overall risks of the medication. Medication often produces fast results in eliminating aggressive behaviors commonly seen in dementia patients, but at some cost to the patients (Dewing, 2010). For example, a patient who is being verbally insulting and physically aggressive might be administered antipsychotics to eliminate the symptoms of aggression when perhaps the patient is expressing frustration for other misunderstood and unmet needs. This treatment does not provide good quality of care for patients struggling with this disease. Many of the prescribed medications lead to other health problems stemming from medication side effects (Cooke et al., 2010). It is clear that the current MUSIC THERAPY FOR DEMENTIA 30 level of use of antipsychotic medication for persons with dementia demonstrates a significant issue in terms of quality of care, negative impacts in patient safety, clinical effectiveness, and most importantly, the patient experience (Cooke et al., 2010). Music Therapy Music therapy is aimed at providing patients with opportunities for self-expression and engagement. Current research studies indicate how music may reduce agitation and improve behavioral issues commonly seen in the middle and ending stages of dementia (Goodall & Etters, 2005). Music therapy provides patients with a way to connect, even after verbal communication has become problematic. The individualized playlist will be composed with music that is familiar and enjoyable to the patient. Music will become audible through the use of iPods and iPads where music cannot be interrupted by commercials, which in some cases could cause confusion or frustration in patients. Music therapy will aim at creating the mood desired for the patient (Goodall & Etters, 2005). For example, a soothing song may potentially help create a calm environment, while an upbeat song from a patient’s childhood or young adulthood may boost the patient’s spirit and arouse happy memories. This therapy will also encourage patients to engage in movements such as clapping and dancing to make their music experience more memorable. Overall, this music model will provide patients with a safe space where the patients could connect with past experiences that will ultimately help alleviate agitation and depression, and improve their quality of life and personal well-being. Patients struggling with Alzheimer's and other dementias could greatly benefit from music therapy treatment. Music therapy helps stimulate the mind, promote memory, and build a sense of self in the treatment of older adults with dementia (Gerdner, 2010). By accessing a personal playlist, it is hoped that patients with dementia will be able to increase their memory MUSIC THERAPY FOR DEMENTIA 31 functions resulting in positive changes in moods and emotional states (Evans, 2002). This lowcost and effective intervention will help improve the overall physical and mental well-being of dementia patients. Community Served Individuals with Alzheimer's and other dementias are in need of support and care. Patients at Villa Pomerado will greatly benefit from the implementation of music therapy as a potential treatment for their dementia. Villa Pomerado nursing care facility provides services to 129 patients who are struggling with a physical and/or cognitive disability. Of the 129 patients, there are 26 long-term patients currently receiving medical treatment for their mild to severe stage of dementia. The patients who would benefit from the implementation of music therapy would be the 26 patients receiving long-term care for dementia. The patients are older adults, both male and female, the majority of whom are covered by Medicare insurance. Needs Addressed Older adults diagnosed with dementia should be presented with options for treatment. Individuals who struggle with depression and agitation due to recurrent symptoms of dementia would benefit greatly from engaging in music therapy treatment. Music therapy will help patients connect with past memories, stimulate the body and mind, and ultimately enhance mood. By providing iPods, iPads, and headphones patients will be able to listen to a personal playlist and benefit from the sound of music. As music therapy slowly emerges as a promising form of treatment for people with dementia, there is a need for personal listening devices in order to implement this treatment. MUSIC THERAPY FOR DEMENTIA 32 Organizational Background Villa Pomerado is affiliated with Palomar Health, a local healthcare district organized under Division 23 of the California Health and Safety Code, and is dedicated to providing quality care to a variety of adult patients with post-acute and long-term needs, including rehabilitation, respite, and hospice care. Villa Pomerado is a 129-bed skilled nursing facility located in Poway, California. The facility is equipped with the necessary tools and professionals to give appropriate care to patients in need. Staff includes highly trained nurses, nurse practitioners, social workers, and physicians who work closely with the patients and family members to ensure the best possible outcomes (Palomar Health, 2015). Project Description Music therapy is an innovative treatment and a fairly unexplored option for families, caregivers, and patients who are living with dementia. The implementation of music therapy will assist in alleviating symptoms of depression and agitation for people with dementia. Patients will be provided with an iPod or iPad with access to a personal playlist composed by the patient’s family, friends, and the patient if possible. Patients will have these devices accessible to them on a daily basis under the supervision of hospital staff members who have undergone training in music therapy. Patients could use the music devices at appropriate times where the music should be soothing and/or energizing with minimal distractions and a safe environment. Patients will be able to select their music through their personal playlist. Project Goals and Objectives The primary goal of the project is a decline in agitation and depression among dementia patients as a result of music therapy. This will be accomplished by setting up personalized playlists using iPad and iPod technology, and iTunes cards to download songs. This technology MUSIC THERAPY FOR DEMENTIA 33 will provide a therapeutic intervention in the form of quality music listening. Villa Pomerado is in need of a well-researched therapeutic intervention that can provide an alternative to medication to aid in improving the quality of life for patients. The following three objectives for the grant are: (1) obtaining equipment (iPads, iPods, iTunes cards, case covers, and headphones), (2) setting an individualized playlist for each targeted patient, and (3) implementing an individualized playlist intervention. Activities and Timeline The objectives listed below will be completed by the following activities and timeline in order to meet the project’s goal: Objective 1: Obtaining equipment Activities and Timeline: The Social Worker at Villa Pomerado will purchase the iPads and iPods through Best Buy, an American consumer electronics corporation. The Apple iTunes cards will also be purchased through Best Buy. The other protective accessories including cover cases and headphones for the iPad/ iPod will be purchased through Amazon. All purchases will be made in month one, upon receiving the grant (see Table 1, for line item budget). Objective 2: Setting up an individualized playlist Activities and Timeline: Foremost, the Villa Pomerado social worker will obtain consent from patients or their families to participate in the personalized music playlist intervention project. After consent is received, a personal music playlist is established. Patients will be asked to identify music that they enjoy or have enjoyed from the past. If the patients with Alzheimer’s and other dementias cannot identify or remember any music, family members will be consulted by Villa Pomerado staff. Family can be key members in establishing a personalized playlist by providing music from past events such as weddings, songs patients used to sing, or music from MUSIC THERAPY FOR DEMENTIA 34 other important events in their lives. Another way to establish an individualized playlist, if the patient is unable to make selections and family input is not available, includes going back to the time period in which the patients grew up. For instance, if the individual grew up listening to music in the 1960s, a genre of music from that decade can be shared with the individual to see what they prefer. The selection of music to establish an individualized playlist will take place in month two. Objective 3: Implementing an individualized playlist intervention Activities and Timeline: Villa Pomerado long-term patients impacted by Alzheimer’s disease and other dementias from Villa Pomerado will be assigned either an iPad or iPod device to listen to their personal playlist. These devices will be kept in their rooms since they are living at the facility. Patients can request to listen to their personal devices for relaxation as desired. We expect these personal playlists to alleviate symptoms of depression and reduce agitation. This implementation will occur immediately after the playlist is established. Project Evaluation To measure outcomes, skilled nursing facility staff members will assess the patients every three months. Staff will utilize personal observation of agitated behaviors and will administer the Patient Health Questionnaire-9 (PHQ-9) for depression (Spitzer, Williams, & Kroenke, 2001; see Appendix). The PHQ-9 is a geriatric depression scale which will be implemented to measure any changes in mood and behavior patterns (Centers for Medicare and Medicaid Services, 2015). Patients’ scores will be compared to their baseline scores. A decrease in a PHQ-9 score will signify an improvement in mood. Since PHQ-9 assesses for mood, it will be used to monitor the severity of depression in patients residing at the facility (L. Gumm, personal communication, April 3, 2015). MUSIC THERAPY FOR DEMENTIA 35 The PHQ-9 assessment tool has nine questions on mood behavior that can be asked directly to the patients. These nine questions address how patients rate particular situations or problems. This questionnaire includes the use of a Likert scale (see Appendix). If patients are unable to read the questions, a trained staff member may read the questions to them. Additionally, if patients are not able to answer the questions, a trained staff member or family members can answer the questions based on the patient’s behaviors. Applicant Capability Villa Pomerado is fortunate enough to have a staff that includes a social worker, music therapist, social worker intern, activities director, and an assistant nurse practitioner, who are all part of a team to bring personalized music playlist therapy to life at their nursing skilled facility. They are a dedicated team who share the value of pursuing quality of life for their patients. Staff members already have experience sharing the power and enjoyment of music. Since the facility has an activity room where patients can go and sing karaoke, the team sees the value of music for their residents. Sadly, not all patients go out to the activity room if they are too agitated or depressed to leave their rooms. That is why Villa Pomerado would like to see personalized playlists on iPads or iPods available in their nursing skilled facility. The staff at Villa Pomerado believe in what individualized music playlists will bring to their patients and facility. Staff members are motivated as well as dedicated. They also are equipped with skills by having been trained in music and memory by completing three webinar trainings. This type of background will help ensure continuous participation from patients and reach improvements in levels of mood and behavior. Based on research of evidenced-based interventions in assisting older adults with dementias, we conclude that the attainment of music equipment will help in meeting the central needs of our patients. With the music equipment MUSIC THERAPY FOR DEMENTIA 36 necessary to launch this project, patients will utilize a personal playlist igniting memories from their past, thus reducing agitation and depression. As writers of this grant proposal project, we believe that this project is both a beneficial and practical plan. Budget Request We propose the following budget to implement music therapy at Villa Pomerado skilled nursing facility in Poway, California (see Table 1). The actual final budget amount is subject to approval by Palomar Health. Table 1 Line item budget EQUIPMENT QUANTITY COST (per unit) GRANT REQUEST Apple iPad mini with Wi-Fi-16GB 30 $229.99 $6,899.70 Apple iPod Shuffle 2GB MP3 Player (5th generation) 30 49.99 1,499.70 iTunes cards 50 40.00 2,000.00 Headphones Sennheiser HD201 Lightweight Over-Ear Binaural 50 29.99 1,499.50 Insten - iPad Mini TBU Rubber Gel Skin Case Cover 30 6.39 191.70 Subtotal Sales tax GRANT REQUEST 190 Items $12,090.60 $967.25 $13,057.85 MUSIC THERAPY FOR DEMENTIA 37 Chapter 5 Discussion Identification of Need Throughout our journey to become social workers, we have been taught to serve vulnerable and oppressed populations. On a few occasions, we were assigned to visit and report on residential care for older adults. We noticed that many of the residents who are affected by Alzheimer’s or other forms of dementia lacked activities. We concluded, from our observations, that individuals affected by Alzheimer’s and dementias deserve a quality of life far greater than what we observed. These individuals need mental stimulation to engage with life and to salvage as many memories as possible. Residing in a nursing home can result in feelings of social isolation, particularly for individuals diagnosed with Alzheimer’s or other forms of dementia. In addition, for some, family members may not live nearby and friends may have died. Through music therapy, one can regain a sense of one’s identity by connecting with one’s memories of the past (Music & Memory, 2015). One of the authors of this project grant proposal heard about a project to implement music therapy, through the use of a personal playlist, at Villa Pomerado skilled nursing facility. The Social Worker there described current research regarding the implementation of music therapy and a Web site called Music & Memory. The author asked the social worker if she needed funding to obtain equipment for her project and the social worker enthusiastically accepted the efforts directed toward her project. The author then took the idea to her colleagues, who were intrigued by the concept. We reviewed the Music & Memory Web site together and MUSIC THERAPY FOR DEMENTIA 38 were fascinated with the research, particularly by Oliver Sacks, a neurologist and researcher. According to Sacks (n.d.), individuals with dementia may appear confused, agitated or lethargic but will respond to music, especially if the songs are familiar to them. Individuals smile, keep time, and join in while listening to music, as they regain a part of their identity they lost as a result of dementia. While an individual affected by Alzheimer’s or other forms of dementia may not be able to access personal memories directly, these memories are embedded in music. Anyone can benefit, even individuals with severe dementia, because memory, emotion and moods are accessed through parts of the brain which respond to music (Music & Memory, 2015). We searched peer-reviewed journals regarding the effects of music therapy on individuals affected by Alzheimer’s and other forms of dementia. Our literature review supported the need for advocacy in implementing music therapy in nursing homes. Strategies to Enhance Funding Based on the guidance and support from faculty and staff from the Master of Social Work program at California State University San Marcos, and the Social Worker at Villa Pomerado skilled nursing facility in Poway, California, some important components of completing a grant proposal were identified. These include: Reviewing peer reviewed journals, citing experts in the field, using current research, developing clear goals and objectives, explaining the evaluation plan, building a partnership with the Social Worker at Villa Pomerado based on a shared vision for the patient, and devising a detailed budget with a convincing narrative. These components, together, make for a strong grant proposal worthy of funding. Identifying appropriateness of fit between funder and project is another important strategy to enhance the likelihood of funding. We researched Alliance Healthcare Foundation as MUSIC THERAPY FOR DEMENTIA 39 they work to advance health and wellness for vulnerable populations in San Diego and Imperial Counties (Alliance Healthcare Foundation, 2015). Additionally, Alliance Healthcare Foundation awards Responsive Grants which fund one-time immediate needs projects for organizations to continue their work. They also fund needs projects that may provide organizational and leadership development activities that better position the organization for the future (Alliance Healthcare Foundation, 2015, para. 7). Clear definitions and explanations regarding this population and their needs are vital to gaining support for funding. It is of essence to portray the population of individuals affected by Alzheimer’s and other forms of dementia as human beings with the same needs as anyone else, even though they experience a decline in neurocognitive functioning. Social Work Relevance Older adults continue to be a vulnerable and underrepresented population. Persons with Alzheimer’s and other dementias are navigating a transitional period that not only affects the patient but the family as a whole. Social workers can provide support to individuals and families as they begin to adjust to the changes brought on by the disease. Dementia can be a difficult disease to understand. Social workers work towards providing the patients and their families with a good representation and understanding of the illness, available treatments, and possible prognosis of the disease. In addition, a social worker continuously works to maintain the dignity and respect of the person with dementia will promote autonomy for the patient and family to preserve as much power and control as possible, despite the cognitive decline seen in dementia. The social worker provides families and patients with alternative solutions on how to manage the symptoms of dementia as well as how to cope with significant change brought by the illness and advocates for resources needed to provide optimal care. The social worker facilitates MUSIC THERAPY FOR DEMENTIA 40 communication between other skilled nursing facility staff and family members to ensure the patient’s rights and needs are being met. In dementia care, following a strengths-based approach with older adults with Alzheimer's and their families is significant in order to ensure proper and quality treatment. Throughout the helping process, the social worker should highlight the patient’s strengths and use those specific qualities to empower the patient and family unit. Social workers should be educated and prepared to talk about the hard issues that arise with dementia. They will provide the patient and family members with information with options of treatment and linkage to necessary resources in the community. Furthermore, social workers will possess a strong skillset in disease-specific issues, such as problematic behaviors, delusional thinking, and cognitive decline interfering with daily functions. Ultimately, the social worker will be working as a family and patient partner in establishing a team of professionals to complete interdisciplinary assessments and create an individualized care plan to maximize patient success and quality of life. The inclusion of accessible alternate treatments, such as music therapy, can be a vital part of strengths-based, low-cost, individualized care for older adults with Alzheimer’s and other dementias. The inclusion of accessible alternate treatments, such as music therapy, can be a vital part of strengths-based, individualized care. MUSIC THERAPY FOR DEMENTIA 41 References Alliance Healthcare Foundation. (2015). Retrieved from http://alliancehealthcarefoundation.org/ American Music Therapy Association (2015). Retrieved from http://www.musictherapy.org/about/quotes/ Alzheimer’s Association. (2015). Retrieved from http://www.alz.org/ Alzheimer’s Foundation of America (2015). Retrieved from http://www.alzfdn.org Alzheimers.net. (2015). Retrieved from http://www.alzheimers.net/ American Music Therapy Association, Western Region Chapter. (2005). Retrieved from http://www.wramta.org American Psychological Association. (2015). Retrieved from http://www.apa.org/topics/depress/ Apple. (2015). Retrieved from http://apple.com/ipod/ Asanuma, K., Sumi, S., Fujii, M., & Sasaki, H. (2013). Psychotropics for patients with dementia. Geriatrics & Gerontology International, 13(1), 1-2. California Department of Public Health. (2015). Retrieved from http://www.cdph.ca.gov Centers for Medicare and Medicaid Services. (2015). Retrieved from http://www.cms.gov/ medicare-coverage-database/details/nca-decision-memo.aspx?NCAId=251 Cohen-Mansfield, J. (2013). Nonpharmacologic treatment of behavioral disorders in dementia. Current Treatment Options in Neurology, 15, 765-785. doi: 10.1007/s11940-013-0257-2 Cohen-Mansfield, J., Marx, M. S., Thein, K., & Dakheel-Ali, M. (2010). The impact of past and present preferences on stimulus engagement in nursing home residents with dementia. Aging and Mental Health, 14(1), 67-73. doi: 10.1081/13607860902845574 Cooke, M. L., Moyle, W., Shum, D. H., Harrison, S. D., & Murfield, J. E. (2010). A randomized controlled trial exploring the effect of music on agitated behaviors and anxiety in older people with dementia. Aging & Mental Health, 14(8), 905-16. doi: MUSIC THERAPY FOR DEMENTIA 42 10.1080/13607861003713190 County of San Diego, Health & Human Services Agency. (2015). Retrieved from http://www.sandiegocounty.gov/content/sdc/hhsa/programs/ais.html/ Dewing, J. (2010). Responding to agitation in people with dementia. Nursing Older People, 22 (6), 18-25. Evans, D. (2002). The effectiveness of music as an intervention for hospital patients: A systematic review. Journal of Advanced Nursing, 37(1), 8-18. Gerdner, L. A. (2010). Evidence-based guidelines. Individualized music for elders with dementia. Journal of Gerontological Nursing, 36(6), 7-15. doi: 10.3928/00989134-20100504-01 Goodall, D., & Etters, L. (2005). The therapeutic use of music on agitated behavior in those with dementia. Holistic Nursing Practice, 19(6), 258–262. Institute for Music and Neurologic Function (2015). Retrieved from http://musictherapy.imnf.org/about-us/category/board-ofdirectors/ Medicare.gov. (2015). Retrieved from http://www.medicare.gov/coverage/skilled-nursingfacility-care.html Melzer, D., Ferrucci, L., Singleton, A., Guralnik, J. M., Murray, A., Bandinelli, S.,… Frayling, T. (2008, November). Genetic variation and resilience in human aging: The SAGA study. Paper presented at the Gerontological Society of America 61st annual scientific meeting, November 21-25, 2008, National Harbor, MD. In The Gerontologist, 48(Special Issue 3), 1-770. doi: 10.1093/geront/48.Special_Issue_III Music & Memory. (2015). Music and the brain. Retrieved from http://musicandmemory.org/ Music & Memory. (n.d.). Music and the brain: Oliver Sacks on music, memory and emotion. MUSIC THERAPY FOR DEMENTIA 43 Retrieved from http://musicandmemory.org/music-brain-resources/music-and-the-brain/ National Institute of Mental Health. (2015). Retrieved from http://nimh.nih.gov National Institute of Senior Health. (2015). Retrieved from http://nihseniorhealth.gov/ Palomar Health. (2014). Retrieved from http://www.palomarhealth.org Raglio, A., Bellelli, G., Traficante, D., Gianotti, M., Ubezio, M. C., Villani, D., & Trabucchi, M. (2008). Efficacy of music therapy in the treatment of behavioral and psychiatric symptoms of dementia. Alzheimer Disease and Associated Disorders, 22(2), 158–162. Rhee, Y., Csernansky, J. G., Emanuel, L. L., Chang, C. G., & Shega, J. W. (2011). Psychotropic medication burden and factors associated with antipsychotic use: An analysis of a population-based sample of community-dwelling older persons with dementia. Journal of the American Geriatrics Society, 59(11), 2100-2107. doi: 10. 111/j.15325415.2011.03660 Ross, L. K., Brennan, C., Nazareno, J., & Fox, P. (2009). Alzheimer’s disease facts and figures in California: Current status and future projections. Alzheimer’s Association. Retrieved from http://www.alz.org Sakamoto, M., Ando, H., & Tsutou, A. (2013). Comparing the effects of different individualized music interventions for elderly individuals with severe dementia. International Psychogeriatrics, 25(5), 775-784. Sherratt, A., Thornton, A., & Hatton, C. (2004a). Emotional and behavioral responses to music in people with dementia: An observational study. Aging & mental health 8 (3), 233-241. doi: 10.1080/13607860410001669769 Sherratt, A., Thornton, A., & Hatton, C. (2004b). Music intervention for people with dementia: A review of the literature. Aging & Mental Health 8(1), 3-12. doi: MUSIC THERAPY FOR DEMENTIA 44 10.1080/1360310001613275 Sierpina, V., Sierpina, M., Loera, J., & Grumbles, L. (2005). Complementary and integrative approaches to dementia. Southern Medical Journal, 98(6), 636-643. Spiro, N. (2010). Music and dementia: Observing effects and searching for underlying theories. Aging & Mental Health, 14(8), 891-899. doi: 10.1080/13607863.2010.519328 Spitzer, R. L., Williams, J. B., & Kroenke, K. (2001). Patient Health Questionnaire-9 (PHQ9). New York, NY: Pfizer. Retrieved from http://phqscreeners.com/pdfs/02_PHQ9/English.pdf Sung, H. C., & Chang, A. M. (2005). Use of preferred music to decrease agitated behaviors in older people with dementia: A review of the literature. Journal of Clinical Nursing, 14(9), 1133-1140. Sung, H. C., Chang, A. M., & Lee, W. L. (2010). A preferred music listening intervention to reduce anxiety in older adults with dementia in nursing homes. Journal of Clinical Nursing, 19(7-8), 1056-1064. Svansdottir, H. B., & Snaedal, J. (2006). Music therapy in moderate and severe dementia of Alzheimer’s type: A case-control study. International Psychogeriatric Association, 18(4), 613-621. U.S. Food and Drug Administration. (2015). Retrieved from http://www.fda.gov/Drugs/default.html MUSIC THERAPY FOR DEMENTIA 45 Appendix Patient Health Questionnaire-9 (PHQ-9) Over the last 2 weeks, how often have you been bothered by any of the following problems? More (Use “✔” to indicate your answer) Several Not at all days than half the days Nearly every day 1. Little interest or pleasure in doing things 0 1 2 3 ______________________________________________________________________________ 2. Feeling down, depressed, or hopeless 0 1 2 3 ______________________________________________________________________________ 0 1 2 3 3. Trouble falling or staying asleep, or sleeping too much ______________________________________________________________________________ 4. Feeling tired or having little energy 0 1 2 3 ______________________________________________________________________________ 5. Poor appetite or overeating 0 1 2 3 ______________________________________________________________________________ 6. Feeling bad about yourself — or that you are a failure or have let yourself or your family down 0 1 2 3 ______________________________________________________________________________ 7. Trouble concentrating on things, such as reading the newspaper or watching television 0 1 2 3 ______________________________________________________________________________ 8. Moving or speaking so slowly that other people could have noticed? Or the opposite — being so fidgety or restless that you have been moving around a lot more than usual 0 1 2 3 ______________________________________________________________________________ 9. Thoughts that you would be better off dead or of hurting yourself in some way 0 1 2 3 ______________________________________________________________________________ FOR OFFICE CODING 0 + ______ + ______ + ______ =Total Score: ______ If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people? Not difficult at all � Somewhat difficult � Very difficult � Extremely difficult � Source: Spitzer, R. L., Williams, J. B., & Kroenke, K. (2001). Patient Health Questionnaire-9 (PHQ-9). New York, NY: Pfizer.
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