PERINATAL EMOTIONAL DISTRESS E N H A N C I N G PAT I E N T E D U C AT I O N , S C R E E N I N G , A N D T R E AT M E N T - R E F E R R A L P R O C E S S E S I N M AT E R N I T Y , P E D I AT R I C , A N D FA M I LY- H E A LT H C A R E S E T T I N G S S A R A H B E S T , L M S W T H E S E L E N I I N S T I T U T E seleni.org/provider TRAINING OBJECTIVES 1. • Review diagnostic and epidemiological data for mental health concerns associated with pregnancy and the postpartum period 2. • Identify care management strategies–including patient education, preliminary screening, and treatment referral processes–to implement in family health practices 3. • Access publicly available educational materials for staff, patients, and families 2 seleni.org/provider PERINATAL MENTAL HEALTH: OVERVIEW 15-20% experience a perinatal mood or anxiety disorder (PMAD). ~80% experience the “Baby Blues.” 0.1-0.2% (1-2 in 1000) experience postpartum psychosis. 85% of childbearing women experience significant emotional distress during or after pregnancy. 3 seleni.org/provider PERINATAL MENTAL HEALTH: BABY BLUES “Baby Blues” Experienced by up to 80% of childbearing women Symptoms include tearfulness, irritability, anxiety, and overwhelm Onset within the first week postpartum Not a mental health disorder; further Generally selfassessment resolving within indicated if 2-3 weeks symptoms do postpartum not resolve by 3 weeks postpartum 4 seleni.org/provider PERINATAL MENTAL HEALTH: “PPD” vs. “PMAD” “Postpartum depression” (“PPD”) was historically used as an umbrella term to describe clinically significant emotional distress following childbirth. Specialists now recognize that a number of distinct mental health disorders, beyond depression, are common during pregnancy and in the first year postpartum. The phrase “perinatal mood and anxiety disorders” (“PMADs”) is now used to describe this range of disorders. 5 seleni.org/provider PERINATAL MENTAL HEALTH: PMAD EPIDEMIOLOGY PERINATAL MOOD AND ANXIETY DISORDERS = PMADs More common than Most Experienced gestational common by 15-20% of diabetes, complication childbearing preterm labor, of pregnancy women and low birth weight Symptoms typically develop 2-3 months after delivery Symptoms CAN develop during pregnancy or up to 1 year postpartum 6 seleni.org/provider PERINATAL MENTAL HEALTH: PMAD EPIDEMIOLOGY PMAD Risk Factors Personal or family history of depression or anxiety Lack of social supports/ marital strain Life stressors: poverty, job loss, death in family Adolescent pregnancy History of physical or sexual abuse Unplanned pregnancy 7 seleni.org/provider PERINATAL MENTAL HEALTH: PMAD ETIOLOGY BIOLOGICAL Heredity, hormones, nutrition, medication, sleep, birth control, history of depression or anxiety SOCIAL Finances, culture, employment, others’ expectations, responsibility load, support network PSYCHOLOGICAL Thought processes, distress tolerance, personality traits, interpersonal history, core beliefs 8 seleni.org/provider PERINATAL MENTAL HEALTH: PMAD DIAGNOSIS PMADs: Specialists recognize that symptom patterns consistent with a number of distinct mental health diagnoses develop during and after pregnancy. Major Depressive Disorder Generalized Anxiety Disorder Obsessive Compulsive Disorder Post-traumatic Stress Panic Disorder Disorder 9 seleni.org/provider PERINATAL MENTAL HEALTH: PMAD DIAGNOSIS Major Depressive Disorder: Significant Symptoms Sadness Lack of interest in previously pleasurable activities Poor Sleep changes concentration Guilt Suicidal ideation or behavior 10 seleni.org/provider PERINATAL MENTAL HEALTH: PMAD DIAGNOSIS Generalized Anxiety Disorder: Significant Symptoms Excessive, uncontrollable worry Feeling “on edge” Fatigue Poor sleep and concentration Muscle tension Irritability 11 seleni.org/provider PERINATAL MENTAL HEALTH: PMAD DIAGNOSIS Obsessive Compulsive Disorder: Significant Symptoms Obsessions = Unwanted, intrusive thoughts that cause significant distress Compulsions = behaviors that reduce distress triggered by obsessions 12 seleni.org/provider PERINATAL MENTAL HEALTH: PMAD DIAGNOSIS Perinatal OCD Obsessions are unwanted, intrusive thoughts or images Obsessions usually focus on baby’s safety Mom often fears that she will harm baby. Perinatal OCD Obsessions cause mother great distress. Distress (anxiety) is clinically reassuring. Distress indicates that thoughts are ego-dystonic. Ego-dystonic intrusive thoughts pose no increased risk of harm to baby. Ego-dystonic thoughts are inconsistent with mother’s values, beliefs, and behavior Differentiated from psychotic thoughts, which DO make sense to mother and DO increase risk. 13 seleni.org/provider PERINATAL MENTAL HEALTH: PMAD DIAGNOSIS Panic Disorder: Significant Symptoms • Panic Attacks: sudden episodes of intense fear or distress • Physical symptoms of panic attacks: palpitations, sweating, trembling, shortness of breath, dizziness, tingling, chest pain, GI distress • Psychological symptoms of panic attacks: fear of going crazy, fear of losing control, feeling of unreality • Fear of triggering panic attacks leads to avoidant behavior 14 seleni.org/provider PERINATAL MENTAL HEALTH: PMAD DIAGNOSIS Post-Traumatic Stress Disorder: Significant Symptoms Can develop after one experiences an event that threatens her own or loved ones’ lives (e.g., childbirth trauma, NICU stay) Recurrent, intrusive memories of the traumatic event; nightmares; flashbacks Avoidance of trauma-related thoughts, feelings, or external reminders Mood disturbance; irritability; angry outbursts; difficulty concentrating Physical arousal; hypervigilance; exaggerated startle response; sleep difficulty 15 seleni.org/provider PERINATAL MENTAL HEALTH: IMPLICATIONS OF UNTREATED PMADS MOTHER INFANT Chronic mental health symptoms Insecure attachment patterns Social withdrawal; avoids infant; increased risk for abuse/neglect Learning disabilities Maladaptive coping (e.g., drugs or alcohol) Cognitive and attention deficits 16 seleni.org/provider PERINATAL MENTAL HEALTH: IMPLICATIONS OF PMAD TREATMENT Early Identification Early Intervention Effective Symptom Management 17 seleni.org/provider PERINATAL MENTAL HEALTH: POSTPARTUM PSYCHOSIS Postpartum Psychosis 0.1-0.2%, or 1-2 of 1000, childbearing women Symptoms include: rapid shifts in Onset within Associated mood, days or 2-3 with previous confusion, weeks episodes of erratic postpartum bipolar illness behavior, delusions, hallucinations Psychiatric emergency; risk for increased suicide or infanticide 18 seleni.org/provider PATIENT CARE MANAGEMENT: OVERVIEW The risks of untreated perinatal psychiatric disorders are well established. Medical providers who care for childbearing women and their families serve as important sources of information and support. Specific care management strategies will vary between providers–based on staffing patterns, scheduling challenges, and other practice/program resources. Under all circumstances, however, practitioners should include variations of patient education, preliminary screening, and treatment referral processes. 19 seleni.org/provider Recommendations PATIENT CARE MANAGEMENT: SUMMARY Patient Education Ongoing Preliminary Screening Treatment Referral 20 seleni.org/provider PATIENT CARE MANAGEMENT: EDUCATION Patient education can be provided through a variety of media, including informational posters and education pamphlets. However, one on one conversations between childbearing women and medical or social service providers are considered ideal. Patient-education conversations should begin early in the maternity, pediatric, or family care relationship, with check-ins continued for the duration of care. 21 seleni.org/provider Patient Education should include information about… PATIENT CARE MANAGEMENT: EDUCATION Prevalence Risk Factors Range of Symptoms Prognoses 22 seleni.org/provider PATIENT CARE MANAGEMENT: EDUCATION SAMPLE SCRIPT • “Emotional distress is very common during and after pregnancy.” Prevalence Risk • “It’s hard to predict who might struggle, but paying attention to risk factors–like a personal or family history of depression, anxiety, or other mental illness; recent stressful events; and inadequate social supports–can help us stay alert to any problems that might arise.” • “Be sure to let me know if you are BOTHERED by any thoughts or feelings that you have– whether feelings of sadness, worry, irritability, or even anger. These might be normal, but they Symptoms could also be symptoms of a perinatal mental health problem.” Prognosis • “The earlier we address your symptoms, the faster you can feel better. Perinatal MH disorders can be treated effectively, so please don’t suffer in silence.” 23 seleni.org/provider PATIENT CARE MANAGEMENT: SCREENING INSTRUMENTS Reliable, scientifically validated screening instruments have been developed for a wide range of mental health concerns. But because such a wide range of disorders are associated with pregnancy and the postpartum period, a comprehensive standardized screening instrument demonstrating increased risk for perinatal emotional distress has not yet been validated. 24 seleni.org/provider PATIENT CARE MANAGEMENT: SCREENING INSTRUMENTS Meanwhile, the American Academy of Pediatrics has recommended that pediatricians administer one of two screenings for postpartum depression at infant well-child visits. Though there are limitations to both instruments, either screening is appropriate for antepartum or postpartum screening in maternity and family care settings as well. Edinburgh Postnatal Depression Scale Two-Question Screen 25 seleni.org/provider PATIENT CARE MANAGEMENT: SCREENING INSTRUMENTS Edinburgh Postnatal Depression Scale Two-Question Screen • Publicly available 10-question instrument • Pros: Gold-standard; strong reliability/validity; translated into several languages • Cons: Assesses depressive symptoms only; follow-up needed for comprehensive assessment and diagnosis • Publically available 2-question instrument • Pros: Strong reliability/validity; easily, verbally administered • Cons: Measures general, depressive symptoms only; follow-up needed for comprehensive assessment and diagnosis 26 seleni.org/provider PATIENT CARE MANAGEMENT: SCREENING INSTRUMENTS Edinburgh & Two-Question Screen Screen for depressive symptoms only Providers should therefore follow up by asking, “Is there anything about the way you’re feeling or thoughts you’re thinking that bothers you?” 27 seleni.org/provider PATIENT CARE MANAGEMENT: SCREENING INSTRUMENTS Please note… Screening instruments are not intended to be diagnostic. Positive screening indicates increased risk for diagnosis only. Patients with positive screenings or who report other emotional distress must be referred to mental health providers for comprehensive assessment. 28 seleni.org/provider PATIENT CARE MANAGEMENT: TREATMENT REFERRAL A positive screen should result in referral for comprehensive assessment and/or treatment. REMEMBER the following special circumstances: Tearfulness, irritability, anxiety, and feelings of overwhelm within the first 2-3 weeks postpartum may be the Baby Blues and may not require formal treatment. Active suicidal ideation or signs of psychosis, by contrast, should be connected to psychiatric emergency services immediately. 29 seleni.org/provider PATIENT CARE MANAGEMENT: TREATMENT REFERRAL The availability and quality of perinatal mental health specialists varies widely among communities. Maternity and pediatric care providers are encouraged, nonetheless, to identify and develop professional relationships with at least one board certified psychiatrist and one licensed psychotherapist–whether a psychologist, clinical social worker, family therapist, or professional counselor–who have experience treating emotional distress in childbearing women. 30 seleni.org/provider PATIENT CARE MANAGEMENT: TREATMENT REFERRAL PSYCHIATRIST THERAPIST AVAILABILITY AND QUALITY WILL VARY AMONG COMMUNITIES BOARD CERTIFIED: REPRODUCTIVE EXPERTISE IDEAL LICENSED PSYCHOLOGIST, CLINICAL SOCIAL WORKER, FAMILIY THERAPIST, OR PROFESSIONAL COUNSELOR 31 seleni.org/provider PATIENT CARE MANAGEMENT: TREATMENT REFERRAL TIPS FOR BUILDING A REFERRAL NETWORK: Contact psychiatry chairs at area teaching hospitals to inquire about treatment and referral resources. Contact a local coordinator for the nonprofit group Postpartum Support International (www.postpartum.net) to inquire about local treatment resources, including free and low-cost support groups. Review the referral list for alumni of the postgraduate training program at the Postpartum Stress Center, a premier treatment center for perinatal mood and anxiety disorders, at http://postpartumstress.com/admin/get-help/where-can-i-get-help/ professional-referrals/. 32 seleni.org/provider PATIENT CARE MANAGEMENT: TREATMENT REFERRAL SAMPLE SCRIPT “Feeling down or worried from time to time is normal during and after pregnancy. I’m worried, however, that you might be at increased risk for developing a perinatal mood or anxiety disorder, which is something that up to 20% of new moms experience. Hormones probably play a part, but that doesn’t mean that you can’t feel better. I’d like to refer you to a specialist I trust to take a closer look at whether your thoughts and feelings are getting in the way of enjoying your pregnancy/baby.” 33 seleni.org/provider One one one conversation between provider (physician, nurse, or social worker) and woman Emphasize prevalence, risk factors, symptoms, and prognoses for perinatal mental health concerns Every prenatal, postpartum, or well-child infant visit Edinburgh, Two Question Screen, or unstructured clinical interview Is there anything about your mood or thoughts that seems off to you? Treatment Referral Written materials Ongoing Pre-Screening Patient Education PATIENT CARE MANAGEMENT: TREATMENT REFERRAL Refer to licensed mental health professional for comprehensive evaluation and treatment planning, including decisions regarding medication. Check in with woman at subsequent prenatal, postpartum, or well-child infant visits. With positive screen… 34 seleni.org/provider PATIENT CARE MANAGEMENT: EDUCATIONAL RESOURCES 35 seleni.org/provider THANK YOU FOR YOUR PARTICIPATION. For more information, including a comprehensive reference list, please contact the Seleni Institute at (212) 939-7200 or at [email protected]. 36 seleni.org/provider
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