1. health and fitness
2. disease
3. cancer

The role of fundraising administrator
Lymphoma Association overview
Introduction
The Lymphoma Association is a national charity which provides high quality patient
information, advice and support to people affected by lymphoma (lymphatic cancer).
We also work with and support the healthcare practitioners who work with lymphoma
patients. In addition, we engage in policy and lobbying work at government level and
within the National Health Service with the aim of improving the patient journey and
experience of people affected by lymphoma.
About lymphoma
Lymphoma is the fifth most common cancer in the UK, with more than 14,000 people
diagnosed every year. While the majority of people diagnosed with lymphoma will be
over the age of 55, lymphoma is also the most prevalent cancer among those aged
under 30. Approximately 75,000 people are living with lymphoma in the UK.
About the Lymphoma Association
The Lymphoma Association is based in Aylesbury and currently employs 23 staff
who carry out its services and activities, which can be broadly grouped as follows:
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Patient information – we provide a range of high quality information leaflets and
information, which we distribute via our website and in hard-copy formats to
hospitals and cancer information centres.
Helpline – open five days a week, throughout the year, we deal with more than
6,000 enquiries per year, providing in many cases much-needed emotional
support for those affected by lymphoma.
Support groups – we operate a network of approximately 45 local support groups
across the UK, offering information, support and local communities for people
living with lymphoma.
Buddy scheme – we have a team of over 100 trained buddies whom we link with
people who need additional support or who want to speak with someone who has
shared similar experiences.
Patient events – we run national and regional events for patients and people
affected by lymphoma.
Healthcare events and medical liaison – we run training events and conferences
for, and provide information to, healthcare practitioners working with lymphoma,
including GPs, nurses, registrars and consultants.
Website – our website offers a range of information and support, including
hosting a number of online forums for people affected by lymphoma to share
experiences and seek mutual support.
The charity’s work and strategic objectives are overseen by a board of trustees,
which meets six times a year. The day-to-day operation of the organisation is led by
the chief executive, Jonathan Pearce, and a senior management team comprising:
Alice Strudwick
Pierre du Bois
[Post currently vacant]
Ian Gillespie (interim)
Director of fundraising
Head of communications
Head of business development
Head of finance and administration
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Fundraising administrator – Lymphoma Association overview – October 2014
Financially, we are dependent on our fundraising work, with the vast majority of our
funding coming from individual donors and some grant-making trusts and
organisations. Our annual turnover in recent years has been approximately £1.2m
and we have built up sufficient reserves so that we are now in the fortunate position
of being able to invest those in the future development of charity. The overall aim of
this investment is to increase the reach and impact of our work for those affected by
lymphoma, and to increase the size and operation of the charity.
History of the Lymphoma Association
The charity was founded by patients in 1986, initially running a helpline service from
Tim and Felicity Hilder’s dining room in Haddenham, Buckinghamshire. We began
producing patient information in 1988, launching our first website in 1998. Since then
we have developed as a charity and have a continuing ambition to grow further our
work for people affected by lymphoma.
Future plans
In its nearly 30-year history, the Lymphoma Association has achieved a great deal
and has grown to be a charity of importance for those affected by lymphatic cancer.
Key highlights would include the following
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The pump-priming funding of a number of lymphoma clinical nurse specialists in
key hospitals.
The launch and running of an annual Lymphatic Cancer Awareness Week, which
goes from strength to strength each year.
Our ongoing PITS (persistent lumps, itching, tiredness and sweating) campaign
for younger audiences, which highlights the main signs and symptoms of
lymphoma.
Numerous awards for our patient information and its accreditation under the
Department of Health’s Information Standard.
The accreditation of our Helpline under the Helplines Partnership’s Quality
Standard.
The founding of the international Lymphoma Coalition.
High quality, practice-changing professional education and training events for
both patients/carers and health professionals.
Promoting the voice of lymphoma patients and carers through our policy work,
including involvement in NICE technology appraisals.
Our ethos, work and services are rooted in the importance of patient information and
support, with a strong organisational reputation for professionalism and high quality
services. Alongside that we have an increasingly good standing among health
professionals and the NHS, as a respected organisation and partner. Yet we also
know there is so much more that we could be doing, particularly at a time of great
change within the NHS and in the world of lymphoma treatment and management.
One of the Lymphoma Association’s major strengths has been its ability to look
ahead to understand the potential future needs of patients and their families and
friends, and to try to seize the opportunities that lie ahead to improve the lives of
those affected by lymphoma. It’s in that spirit and in that context that we have
recently formulated a new set of strategic priorities for the organisation, which will
guide our work over the next three to five years:
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To broaden our existing information and support services for patients and
carers.
To increase patient involvement in both the strategic development of the
charity and its operation.
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Fundraising administrator – Lymphoma Association overview – October 2014
C
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To build a membership network of health professionals and provide an
education, training and information programme aimed to meet their continuing
professional developmental needs around the management and treatment of
lymphatic cancer.
To develop and implement a campaigns strategy and plan.
To develop a stronger online patient engagement strategy.
To broaden and increase our fundraising, through approaching statutory and
development funders, and developing a major donors programme.
To increase and diversify the organisation’s income streams.
To launch an income-generating information/publications programme (to sit
alongside our free patient information programme).
As part of working towards these priorities, we have reviewed our staffing and
organisational structure. During May and June we undertook a staff consultation and
reorganisation, which resulted in decisions to change the work of some existing roles
and teams and to create two new teams – a business development team and a
finance and administration team – to work with our existing fundraising and
communication teams. In addition, we have decided to invest in new staff resources
in the areas of business and regional development, fundraising, PR and public
affairs, and finance and administration.
It is an exciting time for us and if we get these plans right, then we will continue with
an ethos of patient-focused work and decision-making, but will change the way we
work and what we achieve so that we can:
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Produce more information and resources for patients and carers.
Increase the range and type of support services we offer to patients and carers.
Deliver better support, education and training for health professionals about
lymphoma.
Provide more local and regional activities and events for patients, carers and
health professionals.
Generate a higher awareness of lymphoma among the public.
Exert a greater influence on health policy as it affects lymphoma.
It means we will need to be more outward-looking in what we do, alongside
improving our understanding of the lived reality of those affected by lymphoma, and
building strong relationships and partnerships with the parts of the NHS that work
directly with lymphoma patients. An important part of these changes and
developments will be involving patients and carers even more closely in our work and
plans, ensuring that we learn from, and are inspired by, those closest to us.
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Fundraising administrator – Lymphoma Association overview – October 2014
The role of fundraising administrator
The Lymphoma Association’s fundraising department is responsible for raising more
than £1 million each year from a broad range of activities. Our varied fundraising
programme attracts volunteers across the UK, many of whom are lymphoma patients,
their family members and friends.
We’re a small, diverse team and operate a centralised community fundraising model.
We rely on voluntary income (nearly half of which comes from local fundraising events
including coffee mornings, cake sales, dress down days, balls and music events), so
maintaining excellent standards of supporter service is crucial.
You will be part of a team that includes the following roles, all of whom report to the
director of fundraising, Alice Strudwick:
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Challenge events fundraiser.
Community fundraiser.
Individual giving manager.
Database officer.
Working closely with colleagues across the organisation, the fundraising administrator
role is key to reaching out to potential and existing supporters, building strategic
journeys and developing long term relationships.
Benefits
 You will receive 22 days’ annual leave, rising by 1 day for each year’s service up
to a maximum of 27 days (for full-time staff; pro rata for part-time staff).
 After a qualifying period, you will have the opportunity to join the Lymphoma
Association’s occupational pension scheme; the charity will make a contribution
equal to 5% of your gross salary and you will have option to make additional
employee contributions.
 After a qualifying period, you will have access to a life assurance and permanent
disability scheme.
 Subject to length of service requirements, you will have enhanced entitlements to
maternity, paternity and adoption leave and pay.
 Subject to length of service requirements, you will have entitled to our enhanced
contractual sick pay scheme.
How to apply
If you are interested in applying for this role, then please complete the accompanying
application form and return it to the Lymphoma Association, along with your
completed equal opportunity monitoring form.
The closing date for applications is 5.00 pm on Friday 7 November 2014.
Shortlisted candidates will be invited to attend an interview in November 2014.
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Fundraising administrator – Lymphoma Association overview – October 2014