Down Syndrome Prader Willi Syndrome Fetal Alcohol Syndrome Amanda Blake SPED PPT EDT 7860 An Introduction to Intellectual Disabilities Table of Contents Down Syndrome Description Tips for Parents Tips for Educators Tips for Students Technology Resources Internet Resources Prader Willi Syndrome Description Tips for Parents Tips for Educators Tips for Students Technology Resources Internet Resources Fetal Alcohol Syndrome Description Tips for Parents Tips for Educators Tips for Students Technology Resources Internet Resources 1.Description 1.Tips for Parents 1.Tips for Educators 1.Tips for Students 1.Technology Resources 1.Internet Resources Down Syndrome Menu Down Syndrome: Description • • • • Cause: chromosomal abnormality that most often results in moderate level of mental retardation. Affects about 1 in 691 live births. Types: Trisomy 21, Mosaicism, & Translocation. Characteristic physical features include short stature; flat, broad face with small ears and nose; upward slanting eyes; small mouth with short roof. Menu Down Syndrome: Tips for Parents 1. 2. 3. 4. 5. Keep track of your child's chronic health, treatments, & education records. Find good doctors, therapists, & specialists. Remember your child is a child first. Prioritize communication with your child. Focus on your child’s strengths. Menu Down Syndrome: Tips for Educators 1. 2. 3. 4. 5. Learn as much as possible about Down syndrome. Talk candidly with your student’s parents. Be as concrete as possible with the student. Divide new tasks and large tasks into smaller steps. Give the student immediate, concrete feedback. Menu Down Syndrome: Tips for Students 1. 2. 3. 4. 5. Take adequate time to respond to questions. Ask for visual or tactile cues and explanations. Stay involved in social activities. Advocate for yourself. You are an individual and you know you. Always remember that you are not handicapped, a victim, and your disability does not define you. Menu Down Syndrome: Technology Resources Slantboard Page fluffers Software Track ball Menu Down Syndrome: Internet Resources 1. www.parents.com/health/downsyndrome/down-syndrome-resources/ 2. www.nichcy.org/disability/specific/downsyn drome 3. www.ndss.org 4. www.kidshealth.org/parent/medical/geneti c/down_syndrome.html 5. www.cdc.gov/ncbddd/...downsyndrome.ht m 1.Description 1.Tips for Parents 1.Tips for Educators 1.Tips for Students 1.Technology Resources 1.Internet Resources Prader Willi Syndrome Menu Prader Willi Syndrome: Description Prader-Willi syndrome (PWS) is the most common known genetic cause of lifethreatening obesity in children. Although the cause is complex it results from an abnormality on the 15th chromosome. Affects about 1 in 15,000 live births. Typically causes low muscle tone, short stature if not treated with growth hormone, incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and lifethreatening obesity. Menu Prader Willy Syndrome: Tips for Parents 1. 2. 3. 4. 5. Look for ways to engage in physical activity without calling it exercise. Maintain a regular schedule. Improve your own eating behavior and choose healthy foods. Make sure you have a good physician and dietitian who are willing to learn about Prader Willi Syndrome. Keep food out of sight. Out of sight, out of mind. Menu 1. 2. 3. 4. 5. Incorporating reallife experiences and concrete examples into lessons. Break up tasks into sections. Maintain a consistent routine during the school day. Social skills may need to be explicitly taught. If the student becomes disengaged, take breaks. Prader Willy Syndrome: Tips for Educators Menu Prader Willy Syndrome: Tips for Students 1. 2. 3. 4. 5. Get involved in school clubs, activities, and sports. Pack your lunch! School lunch does not provide food options necessary for your diet. Respect your limitations. They are in place to keep you healthy and happy. Advocate for yourself. You are an individual and you know you. Always remember that you are not handicapped, a victim, and your disability does not define you. Menu Prader Willy Syndrome: Technology Resources Diversion Activities Word Processing Organization Learning Manipulative Daily Schedule Align Math Tasks Menu Prader Willy Syndrome: Internet Resources www.pwsausa.org/syndrome/ www.fpwr.org/about-prader-willi-syndrome www.pwsaohio.org/ www.ipwso.org/ www.nationwidechildrens.org/prader- willi/clinic 1.Description 1.Tips for Parents 1.Tips for Educators 1.Tips for Students 1.Technology Resources 1.Internet Resources Fetal Alcohol Syndrome Menu People with FAS might have abnormal facial features, growth problems, and central nervous system problems. People with FAS can have problems with learning, memory, attention span, communication, vision, or hearing. Each year in the United States, an estimated 40,000 babies are born with an FASD. Fetal Alcohol Syndrome: Description FAS represents the severe end of the FASD spectrum. Fetal death is the most extreme outcome from drinking alcohol during pregnancy. Menu Fetal Alcohol Syndrome: Tips for Parents 1. 2. 3. 4. 5. Establish predictable routines. Use rewards rather than punishment. Use the services of an occupational therapist or a professional skilled in sensory and /or auditory integration therapy. Focus on social skills and living skills. Help the child with transitions. Menu Fetal Alcohol Syndrome: Tips for Educators 1. 2. 3. 4. 5. Repeat, repeat, repeat. You may need to reteach information multiple times. Follow a routine. Routines help students with FASD know what to expect and decrease their anxiety. Keep it simple. Students with FASD learn better in a simple environment with few distractions. One-onone or small groups work best when possible. Be specific. Say exactly what you mean. Give directions step by step. Break large tasks into smaller tasks. Use pictures, charts, or other visual aids. Menu Fetal Alcohol Syndrome: Tips for Students 1. 2. 3. 4. 5. Find strategies to avoid overstimulation at school. Utilize quiet spaces. Inform teachers on how they can make learning more comfortable. (Visually, Explanatory, etc.) Take your time. FAS students are known as “ten second people in a one second world” Create visual cues for lack of memory. Stay involved in social activities. Menu Fetal Alcohol Syndrome: Technology Resources Reduced Anxiety Model Behavior Quiet Stations Multi Sensory Visual Reminders Reduced Stimuli Classroom Menu Fetal Alcohol Syndrome: Internet Resources http://kidshealth.org/p arent/medical/brain/fa s.html http://www.nofas.org http://www.cdc.gov/n cbddd/fasd/index.html http://www.doublearc. org http://www.odh.ohio.g ov/features/odhfeatur es/notasingledrop.aspx
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