Down Syndrome Prader Willi Syndrome Fetal Alcohol

Down Syndrome
Prader Willi
Syndrome
Fetal Alcohol
Syndrome
Amanda Blake
SPED PPT
EDT 7860
An Introduction
to Intellectual
Disabilities
Table of Contents
Down Syndrome
Description
Tips for Parents
Tips for Educators
Tips for Students
Technology Resources
Internet Resources
Prader Willi Syndrome
Description
Tips for Parents
Tips for Educators
Tips for Students
Technology Resources
Internet Resources
Fetal Alcohol Syndrome
Description
Tips for Parents
Tips for Educators
Tips for Students
Technology Resources
Internet Resources
1.Description
1.Tips for Parents
1.Tips for Educators
1.Tips for Students
1.Technology
Resources
1.Internet Resources
Down
Syndrome
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Down Syndrome:
Description
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•
•
•
Cause: chromosomal
abnormality that most
often results in moderate
level of mental
retardation.
Affects about 1 in 691 live
births.
Types: Trisomy 21,
Mosaicism, &
Translocation.
Characteristic physical
features include short
stature; flat, broad face
with small ears and nose;
upward slanting eyes;
small mouth with short
roof.
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Down Syndrome: Tips for Parents
1.
2.
3.
4.
5.
Keep track of your
child's chronic health,
treatments, &
education records.
Find good doctors,
therapists, &
specialists.
Remember your child
is a child first.
Prioritize
communication with
your child.
Focus on your child’s
strengths.
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Down Syndrome: Tips for Educators
1.
2.
3.
4.
5.
Learn as much as
possible about Down
syndrome.
Talk candidly with
your student’s
parents.
Be as concrete as
possible with the
student.
Divide new tasks and
large tasks into
smaller steps.
Give the student
immediate, concrete
feedback.
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Down Syndrome: Tips for Students
1.
2.
3.
4.
5.
Take adequate time to respond to
questions.
Ask for visual or tactile cues and
explanations.
Stay involved in social activities.
Advocate for yourself. You are an individual
and you know you.
Always remember that you are not
handicapped, a victim, and your disability
does not define you.
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Down Syndrome: Technology Resources
Slantboard
Page fluffers
Software
Track ball
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Down Syndrome: Internet Resources
1.
www.parents.com/health/downsyndrome/down-syndrome-resources/
2.
www.nichcy.org/disability/specific/downsyn
drome
3.
www.ndss.org
4.
www.kidshealth.org/parent/medical/geneti
c/down_syndrome.html
5.
www.cdc.gov/ncbddd/...downsyndrome.ht
m
1.Description
1.Tips for Parents
1.Tips for Educators
1.Tips for Students
1.Technology
Resources
1.Internet Resources
Prader Willi
Syndrome
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Prader Willi Syndrome: Description
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Prader-Willi syndrome (PWS) is
the most common known
genetic cause of lifethreatening obesity in children.
Although the cause is complex
it results from an abnormality
on the 15th chromosome.
Affects about 1 in 15,000 live
births.
Typically causes low muscle
tone, short stature if not
treated with growth hormone,
incomplete sexual
development, and a chronic
feeling of hunger that,
coupled with a metabolism
that utilizes drastically fewer
calories than normal, can lead
to excessive eating and lifethreatening obesity.
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Prader Willy Syndrome: Tips for Parents
1.
2.
3.
4.
5.
Look for ways to
engage in physical
activity without calling it
exercise.
Maintain a regular
schedule.
Improve your own
eating behavior and
choose healthy foods.
Make sure you have a
good physician and
dietitian who are willing
to learn about Prader
Willi Syndrome.
Keep food out of sight.
Out of sight, out of
mind.
Menu
1.
2.
3.
4.
5.
Incorporating reallife experiences and
concrete examples
into lessons.
Break up tasks into
sections.
Maintain a
consistent routine
during the school
day.
Social skills may
need to be explicitly
taught.
If the student
becomes
disengaged, take
breaks.
Prader Willy
Syndrome: Tips for
Educators
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Prader Willy Syndrome: Tips for Students
1.
2.
3.
4.
5.
Get involved in school
clubs, activities, and sports.
Pack your lunch! School
lunch does not provide
food options necessary for
your diet.
Respect your limitations.
They are in place to keep
you healthy and happy.
Advocate for yourself. You
are an individual and you
know you.
Always remember that you
are not handicapped, a
victim, and your disability
does not define you.
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Prader Willy Syndrome: Technology Resources
Diversion Activities
Word Processing
Organization
Learning Manipulative
Daily Schedule
Align Math Tasks
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Prader Willy Syndrome: Internet Resources
 www.pwsausa.org/syndrome/
 www.fpwr.org/about-prader-willi-syndrome
 www.pwsaohio.org/
 www.ipwso.org/
 www.nationwidechildrens.org/prader-
willi/clinic
1.Description
1.Tips for Parents
1.Tips for Educators
1.Tips for Students
1.Technology
Resources
1.Internet Resources
Fetal Alcohol
Syndrome
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People with FAS
might have abnormal
facial features,
growth problems,
and central nervous
system problems.
People with FAS can
have problems with
learning, memory,
attention span,
communication,
vision, or hearing.
Each year in the
United States, an
estimated 40,000
babies are born with
an FASD.
Fetal Alcohol
Syndrome: Description
FAS represents the severe
end of the FASD
spectrum. Fetal death is
the most extreme
outcome from drinking
alcohol during
pregnancy.
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Fetal Alcohol Syndrome: Tips for Parents
1.
2.
3.
4.
5.
Establish predictable
routines.
Use rewards rather
than punishment.
Use the services of an
occupational therapist
or a professional skilled
in sensory and /or
auditory integration
therapy.
Focus on social skills
and living skills.
Help the child with
transitions.
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Fetal Alcohol Syndrome: Tips for Educators
1.
2.
3.
4.
5.
Repeat, repeat, repeat.
You may need to reteach
information multiple times.
Follow a routine. Routines
help students with FASD
know what to expect and
decrease their anxiety.
Keep it simple. Students
with FASD learn better in a
simple environment with
few distractions. One-onone or small groups work
best when possible.
Be specific. Say exactly
what you mean. Give
directions step by step.
Break large tasks into
smaller tasks. Use pictures,
charts, or other visual aids.
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Fetal Alcohol Syndrome: Tips for Students
1.
2.
3.
4.
5.
Find strategies to
avoid overstimulation
at school. Utilize quiet
spaces.
Inform teachers on
how they can make
learning more
comfortable. (Visually,
Explanatory, etc.)
Take your time. FAS
students are known as
“ten second people in
a one second world”
Create visual cues for
lack of memory.
Stay involved in social
activities.
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Fetal Alcohol Syndrome: Technology Resources
Reduced Anxiety
Model Behavior
Quiet Stations
Multi Sensory
Visual Reminders
Reduced Stimuli Classroom
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Fetal Alcohol Syndrome: Internet
Resources
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http://kidshealth.org/p
arent/medical/brain/fa
s.html
http://www.nofas.org
http://www.cdc.gov/n
cbddd/fasd/index.html
http://www.doublearc.
org
http://www.odh.ohio.g
ov/features/odhfeatur
es/notasingledrop.aspx