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PAT H WAY S
AHEAD
–
OCTOBER
2014
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Barb Butler - Edi
2014 Brain Injury Canada
Conference Chair
This newsletter brings you the 2014 conference in pictures as well as the usual informative articles and stories. Enjoy!
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
1
Book Launch
Marie-Christine Ouellet
Marie-Christine Ouellet
Tatyana Mollayeva
Daniel
D
Bax
Dr.
D Paul Comper
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
2
From the Desk of the
Executive Director,
Harry Zarins
As I write this message after Thanksgiving weekend,
I think of all of the people who have moved forward
from their brain injury and the caregivers who have
supported them. This includes all of the health
professionals, friends and colleagues who support
people with brain injury and for those less fortunate
who are supported through shelters. Thank you for
being there at this time of Thanksgiving.
The month of September was a time for new
beginnings. After months of deliberation, we have
moved to re-brand the Brain Injury Association
of Canada as Brain Injury Canada. Over the next
few months, we will be moving towards rolling out
our new logo and name. We also launched our new
website www.braininjurycanada.ca with the help of
funding from the Dave Irwin Foundation. We were
able to complete this project and over the next few
months we will be phasing out our present website.
Brain Injury Canada has been a member of the
Neurological Health Charities Canada (NHCC)
since its inception. Over the years the NHCC
has accomplished much. Just prior to the end
of September the landmark study titled “The
National Population Health Study of Neurological
Conditions” was released. You can ﬁnd it at this site:
http://www.mybrainmatters.ca/en What the study
uncovered was that the national study of neurological
conditions show costs highest for traumatic brain
injury 7.3 billion for 2011 to $8.2 billion in 2031.
· Partnership with MODC with shared governance
model
· Alignment of the partners to the directions of
NHCC (some slides attached here)
· Directions towards alliances with provincial/
territorial brain injury associations consistent with
NHCC messaging
· Conference was an excellent example of bringing
researchers, clinicians, and end users together
directed to a common cause
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
3
Ottawa medicine Class presenting cheque to Barb Butler
Allison Woyiwada
y
and Robert McMechan
Tamara Bushnik
Enrico Quilico
Students performing
at book launch
Dr. Joanny Lui
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
4
Message from the Co Presidents of
Brain Injury Canada - Rick Riopelle and Barb Butler
These are exciting times for
brain injury in Canada. We,
formerly known as the Brain
Injury Association of Canada,
have changed our name to Brain
Injury Canada. As part of this
rebranding we have formed a
partnership with March of Dimes
Canada with whom we have a
shared governance model. This
partnership positions us well
to move towards alliances with
provincial/territorial brain injury
associations consistent with
Neurological Health Charities
Canada messaging within which
both partners are members.
What does this mean to you?
This will become more apparent
as we move forward but quite
simply it means together we will
become stronger.
We have just ﬁnished our
eleventh
annual
national
conference in Gatineau and by
all reports it was a huge success.
Survivors, caregivers, family,
Rick Riopelle
Barb Butler
service providers, therapists,
medical personnel researchers,
and politicians all attended to
listen, share and network. April
will ﬁnd us in Halifax, N.S.;
planning has just begun led by
a very enthusiastic group from
Halifax. It will be an event
not to be missed! Our annual
September conference’s location
is yet to be determined.
Our website has moved to
www.braininjurycanada- it is
a work in progress so please be
patient as we grow.
We invite you to email any
thoughts you may wish to
share to either Rick Riopelle at
[email protected] and/
or Barb Butler at
[email protected]
Barb Butler & Rick Riopelle
Co-Presidents
Brain Injury Canada
“
Conference Testimonials
”
“It was a wonderful conference - a beautiful balance of inspirational survivor stories,
the latest in cutting edge research, and a wealth of practical strategies to take away
and immediately integrate into our own practice. I also found it to be a great
networking opportunity where I was able to reconnect with colleagues on a
national level who share our passion for the work that we do.” Arden MacGregor
Random conference comments from evaluations
“Survivor stories were amazing”
“Inspirational and motivating”
“One of the best conferences on T.B.I. that I have attended”
“Awesome”
“WOW!!!”
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
5
Matthew Sanderson
Janic Gorayeb
Judy Gargaro
Leslie Burkitt
Laurie-Anne Corbin-Berrigan
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
6
Tyrone was 32, three years out of graduate school
and enjoying a successful career when
brain injury struck. He spent 27 months
in three hospitals, in the ﬁrst three of
which, he was totally mute.
However, aggressive therapies
in a rehab program have
worked miracles. Fortunately,
his setbacks were temporary
and not cognitive. After 15 years,
his balance is still compromised,
but improving.
(This is the third of three parts on numbers
b
relating
l ti to
t
the occurrence of brain injury)
… AND STILL EVEN MORE NUMBERS
Upon sustaining a brain injury, some of the
possible steps through which a survivor must
traverse include acceptance, hospitalization and
rehabilitation. Eventually, (if it is possible), one
must resume school, work or life in general. Most
employees strive to be among that 20 % who resume
work (though with reduced load). Considerations
such as age, pre-injury productivity and education
are important factors which may impact return-rate.
Very often, overall productivity depends on year 1
post-injury.
Every year in Canada, some 50,000 people suffer
strokes, which often cause acquired brain injuries
(ABIs). Of these, 50% don’t recover fully and 20
% resume work but with a reduced output. About
16,000 of these die. Without considering other ABI
causes, strokes are the fourth leading cause of death.
Also, an estimated 300,000 Canadians live with
the effects of strokes - varying degrees of disability.
Most people, who suffer brain injuries, in fact 72%,
sustain their TBIs from motor vehicle accidents,
often causing similar disabilities as strokes.
Most traumatic brain injury (TBI) survivors are
young adults in the prime of their working lives. At
the time of rehabilitation, the survivor tends to see
the future as being very uncertain. Unfortunately,
many who survive TBIs are not able to go back to
work or school. This number has a shockingly large
range from 12.5% to 80%. In one national survey,
75% of TBI survivors were not working. Of the
people working, 66% reported that they needed
help with daily activities. This need presumably
extends to work/jobs. Also, 90% of survivors have
ongoing difﬁculties with social integration. The
amount of support given to post-injury workers
makes a big difference. Without support offered in
the workplace, one study reported that there was
a 54% reduction in the willingness of survivors to
seek employment post-TBI. Individuals need help
to ﬁnd employment, then, to keep it. In one study,
without getting this needed help only 30% got work
versus a 92% who had pre-injury employment.
Returning to work after a brain injury is very
important, and causes much anxiety, but desired
since this is how self-worth is often measured.
During my rehab, there was lady, 35 years old and
ready to return to work as an accountant. She had
an accident and was now extremely anxious about
a slight cognitive and communication setback.
(About 80% of people with brain injuries have
communication disorders). She resettled into her
job very nicely.
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
7
Dr. Suresh Kumar
Vichwa Bush
Dr Shauna Kingsnorth
Kim McDonald Taylor and Harry Zarins
Dr Sandy Shultz
Vincy
V
Chan
MadeleineWelton
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
8
A Glimmer
of Hope
Angela Chao is a camera
assistant in the ﬁlm industry.
A year ago, she had her ﬁrst
concussion at work. She had never
had mental illness, depression or
personality changes before her
injury.
Angela suffered a 6-month
long headache, until a stuntman
suggested craniosacral therapy.
Edwin from Hands for health in
Mississauga, Ontario, worked on
her head for an hour. Terrible
irritability transformed into a
feeling of fulﬁllment and purpose.
With each breath she took, her
post-concussion
symptoms
melted away and she felt normal,
at last.
Angela went home feeling
refreshed, relieved, and creative
and poured her emotions into
painting a plate. She didn’t know
what she was drawing; she just
knew she had to.
The blackbird Angela produced
that evening represented her,
being freed from her imprisoned
mind. It was liberating to know
she could think for herself.
Since then, she has tapped into
a hidden artistic reservoir and has
created more than one hundred
and seventy pieces of art in six
months. Drawing helps Angela
relieve anxiety, sadness and
hopelessness. Her style changes
from abstract, to realism, suiting
her emotions at the time.
She can’t say she is back to
normal but she now holds onto a
glimmer of hope.
Angela Chao
Mindlessdoodle.ca
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
9
Jeff Latimer
Niki Guerriero
Rachel Micay
Sandhya Mylathula
Laurie-Anne Corbin-Berrigan
Andrew Lapointe
A
Aneesha Sravanapudi
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
10
2014 BRAIN INJURY CANADA AWARD RECIPIENTS
Award of Merit
Employer Award
Jennifer Hooper, Ottawa, ON
Les Good, Moose Jaw, SK
Nicholas Eustace, Toronto,ON
Dan Hamilton Performance Management Consultants, Ottawa, ON
Prevention and Awareness Award
Communication Award
Yvonne Nielson, Terrace, BC
Kenneth Murnaghan, Charlottetown, PEI
Brain Injury Society Of Toronto
Brainworks Rehab, London, ON
Fundraising Award
Medicine Class of 2017, University of Ottawa
Sophie Diebold - Head Strong, Ayr, ON
Dr. Shelina Babul, BC Injury and Prevention Unit
Troy Adams, Troy’s Run
Special Recognition Award
Dr. Nick Reed - Holland Bloorview Kids Rehab Hospital
Community Head Injury Resource Services - Toronto, ON
Dr. Terence Sheridan - St. Michael’s College School
Dr. Hugh Mirolo - St. John’s, NL
Dr. Jane Gillett Research Award
National Partner Award
March of Dimes Canada, Toronto, ON
Dr. Peter Rumney, Holland Bloorview Kids Rehab Hospital
Dr. Roger Zemek, Children’s Hospital of Eastern Ontario
Corporate Leadership Award
Volunteer of the Year Award
Rx&D, Conference Sponsor
Brainworks Rehab, Casey’s Journey of Hope
University of Toronto - Brain Injury Canada
Cecile Proctor - Saint John, NB
Debbie and Trevor Greene Award
Barb Butler - Regina, SK
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
11
More award
winners from the
2014 conference
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
12
Barbara Csenge
Adora Chiu
A
Fantastic Frank
Sandhya Mylabathula
Jane Clark Foster
Dr. Lee Tasker
D
Dr
Micheal Hutchison
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
13
The World Focuses on Brain Issues
By Jean Oostrom [email protected]
This week the world is
focusing on brain issues that
include traumatic brain injury,
depression, bipolar, PTSD
and a host of other “buzz”
words that describe the mental
torment people go through just
to exist in our world.
Before brain issues become
last week’s news it is important
I write about things that I
have learned on my journey to
“Mental Wellness”.
I have written often about
“the place where the brain has
had enough”, and how it is
the loneliest, scariest, darkest
place that cannot be described
in words. It is a place where
nothing makes sense. It is a
place where my brain seems
to choose to think negative
thoughts all on its own,
with no regard for the truth,
compassion or the hurt it is
causing.
That is when My Brain is like
a delinquent child who needs
discipline. What have I learned
to do during these dark times?
I have learned to have
direct conversations with that
delinquent child brain that
sound like this: “You are not
going to take me to that dark
place” or “Not Today” or
“Give me a break….Again? or
“I can’t handle this today so
please just leave me alone”.
The fancy scientiﬁc name for
this process is “neuroplasticity”
which simply means “I can
train my delinquent child brain
to think properly, and sit up
and take notice, and make it
very clear that the delinquent
child brain is not in charge.
Until we train every
individual who treats people
with brain issues about
“neuroplasticity”, then we will
continue to read about how
creative people have chosen to
“leave this world”, and leave us
all of with the question “could I
have made a difference”.
I believe that people who
struggle to be mentally well can
get better, and can train their
brains to help them recover.
We must include in the
conversation that people can
recover from brain issues. The
person dealing with the brain
issues must keep searching for
a frontline health professional,
who truly believes they can
recover from brain issues, and
don’t give up until they ﬁnd
one. In 2014 we have the
scientiﬁc tools and conclusive
data that can help with recovery
from brain issues, so it is really
up to the health services to
“change the way people think
about their recovery from brain
issues”.
No matter how many people
write “you are not alone” those
words are not strong enough
to combat the loneliness that
torments people with brain
issues, unless someone tells
them they can recover.
My call to action: to provide
hope that people with brain
issues will ﬁnd better ways
to recover, help people with
brain issues to learn to “live
with their new brains”, and to
encourage people with brain
issues to keep asking questions
until they ﬁnd someone who
will help them recover.
What is your call to action on
the topic of brain issues?
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
14
Jennifer Kuchinka
Cecile Proctor
Dr Jonathan Wareham and Dr Angela Peddlle
Dennis Radman and Arden McGregor
Cecile Proctor
Dr
D
Dr. Jennifer Paige MacDougall
Trang Nguyen
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
15
BRAIN INJURY ASSOCIATION OF CANADA ANNUAL CONFERENCE
April 15 & 16 2015
Halifax, Nova Scotia
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OCT ‘14
16
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Two Octobers ago we ran a picture
showing a young Tess Kostiak with
the caption “You are never too
young to wear a helmet”.
Two years later... great news, she
is still wearing that helmet!
Tess in October 2012
Tess one year later in October 2013
Tess two years later in October 2014
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
17
Jason
Harps,
Butler,, Justin
Theriaullt.
J
Harps
p , Barb Butler
J
McKenna and Richard Theriaullt
Richard Theriault
Jason Harps
Dr Jeff Kreutzer
Alexandra Kelly
Dr.
Dr Ron Wall
D
Josh Furlonger
T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
18
About Our Cause: Acquired Brain Injury
In an instant a life is changed, forever. Every day,
we participate in activities that produce endless risks
for sustaining a brain injury: car accidents, a fall from
a bike, or a blow to the head. It is estimated that
thousands of Canadians incur a traumatic brain injury
(TBI) and mild traumatic brain injury (mTBI), also
known as a concussion, each year, the majority being
young adults. Statistics indicate that the incidence of
brain injury is two times greater in men. Brain Injury
Canada strives to raise awareness of the incidence of
acquired brain injury (ABI) in Canada.
A brain injury may make it necessary for the injured
person to require full time assistance. Families often
become the primary caregiver and support person.
Many families are left to cope on their own. They
sometimes have little understanding of the effects of the
injury and the demands that will be made of them by
an injured family member. Families need support from
others who understand the effects of acquired brain
injury. Brain Injury Canada provides a shared forum
for the support of both families and survivors, and also
advocates for the enhancement support services.
Prevention through public education, and safety
legislation is the key to the reducing the occurrence of
ABI amongst Canadians. Brain Injury Canada engages
Impact News
is here to serve the readers
and is published four times a year (Editor Barb Butler). We invite submissions: professional
articles on rehabilitation, acquired brain injury, and
injury prevention, personal interest, provincial and
local association news, and proﬁles of courage.
in extensive public education initiatives through its
many local community associations across Canada.
Medical and safety research is another key to
addressing ABI. Brain Injury Canada endeavors to
support and promote research in Canada
and internationally.
Advertising rates per issue print
and electronic exposure on our website
Business Card - $100.
1/4 page - $200 • 1/2 page - $300
2/3 page - $400 • full page - $500
Harry Zarins, Executive Director
Phone: 613-762-1222
www.braininjurycanada.ca
Proud sponsors of the
Brain Injury Canada
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T H E N E W S L E T T E R O F T H E B R A I N I N J U RY A S S O C I AT I O N O F C A N A D A
OCT ‘14
19