CANADIAN THESES TH~SESCANADIENNES I AVtS The quality of this microfiche is heavily dependent upon the qiairty of the wigtrwl thesis submitted for microfihning. Every efforthasbeenmadetoecrsuretheh~quaktyoBreproductiort possible S'ii manque des pages. veuiliez communiquer avec I'univer- sitequiamW8tegrade. Some pages may have indistinct print specally if the ongaral pages were typed with a p a x typewritef ribbon or ifthe Imiversity sent us an mferior photocopy. ~eproductiorrintuli~ingartofttrisfilmis~vemedb~tne Camdim CoWrigM Act. R.S.C. 1970, c. G30. Piease read . . m which accompany this thesis. theauthorrtatKx\ f HAS BEEN MICROFILMED EXACTLY AS RECEIVED - i n a Preventive Hedicine Clinic - 7 - ri PROGR)V1 ATTITUDES RESEARCH: AND SYCSPTOn REMtCTIOW I N A PREVENTIVE REUICIHE CLINIC B.A.. Sinwul Fraser ttntvergity, 1979 - A THESIS SlfSnIllED I N PARTIAL FULFILLMENT OF THE REQUf RERENTS FOR THE MGREE OF W E R OF ARTS i n the Departaent Psychology @ Jacqttel ine Douglas 1983 S I M FRASER UNIVERSITY June 1983 All rights reserved. This thesis nay mot be reproduced i n whole or i n part, by photocopy or other rtreans, w3thout p e m l s s b n o f the author. Nanre: - Jacquel ine &Anne Douglas = Degree: # Master o f Arts T i t l e o f thesis: ' Program Research: Attitudes and Syraptom Reduction i n a Preventi-ve Medicine C l i n i c Examining Conwittee: .- , w -. .-r- - t Senior Supervisor External Examiner V i s i ti ~g Professor kpartrrPnt of Psychology Simn Fraser U n f m s i t y L Oate ,Approved: Septwhar 26, 1983 - I hereby grant to S i m Fraser Unf v e ~ stiy the right to I-d y thesis or d t r g e r t r t f m (the t i t l e of which i s shawtr bdw) to users of the Simon Fraser Unlverslty Library, and t o make p a r t i a l o r singlap copies only f o r susir users o r i n response t o a request fras the l i b r a r y * m u l t i p l e copying o f t h i s thesis f o r scholarly purposes may be granted by me o r the Dean o f Graduate Studies. I t I s understood t h a t copying publication o f t h i s thesis f o r f i n a n c i a l gain s h a l l not be allowed I thout my w r i t t e n permission. T i t l e o f Thesls/Dissertation: entive P l e d = i wC l f n f c Author: {signgtur Jacauel f ne 3 0 - h e h & l as (-1 / - Abstract Tkrapeutfc prograns can supply c#s@r(cbrsw i t h scarce ct5nfcaT a populations , large sl.pTes and long-term &st4 ng opportunities. - -- - - -- Harnr. i t can be d i f f i c u l t to acammhte both sxprhmtat rigow& the - - - 0 ' - -exigencWs--Wan - advantage o f the above fact~?%within a Preventive M i c i n e program Syarptorn reduction and attitudes toward personal responsfbility f o r health were invkstigated: 233 61ients who had completed a Cornel 1 Hedical Index upow entering * such a program were retested a f t e r 2 years o r .more. A significant decrease i n symptomatology was i d e n t i f i e d related t o sex or nt,@ey;of , . In- subject visits for (e=0.0021), which was not the sample, - subsample, scores on the Krantz HeaftnrOplnion Survey and the Wallston Health Locus o f Control f o r Health were not ti - - --- - - -- -- - -- - related t o symptom reduction, nor were age, sex arereducation. Stnoking and alcohol consumption, while also not related t o symptom reductkm, should be retested since base measures w ep very lay. _D-w strong - selection bias i n Ule sample, these results cannot be generalized t o the overall population.. -&* - - shrinkage, too few measuring f n s t ~ t s poorly , validated measures, lack o f invol v g e n t with the program and i t s staff, no c o n t r o f gmup and other -- - genralizability. m i l e i t i s iqortant for resbrchelIs to regain flexible in Uleir approach to &fmg program evallatfms and o w resea-tzh i n cl inicat settings, 4n this case the obtained results and efforts expended i n obtaini-ng these data. - - ABSTRAcl... .............................................. *..*..*'*.*.w . .................................................v. TABLE OF mmS... - ...................r,a..................f ..................6 .......................... Responsibility as an Issue i n ~ & ! b t i o n . . ....................I*...'13 Prevention 2, n 0 The Present Study ............................................... l ..............................................................D The Setting ......................................................... 19 - - - . - - - MWD Applicability of the Settfng ...................................21 . * Data Set B...... 44 .....*.*.....*.***..................*.......~~........ The Process?..........................................................54 The OutAttl- Phase..................................................... 58 and Smta Reduction........................................bl .'List o f Tables - + - - * L* Table 1: Wonnative Data f o r the Krantz Health Optnfon Survey........32 .-33 Table 2: Wonetlve bata f o r the ~ a l k t o nHealth Locus of ControT.. . Table 3: fable 4: Table 6: Table 7: Table 8: Table 9: . Table 10: ....41 Analysis o f Variance Betneen Drop-outs and Opm Files.. Logistic Regressfen f o r Group bbership.. ................-43 ....;...........*...15 R e l i a b i l i t i e s f o r CHI: Data Set A.. ...................... ..'M ... " Stepwise h l t i p l e &gresTm to Descrfptivc Statistics f o r Data Set 8.1. ................. ..49 Hagnitude o f E f f e c t f o r Attitude and Demographics.. ........48 Descriptive Statistics f o r Data Set A,. .Vl . - Table 11: Testing kam for Data Set 0: CMI Scores, Age & Education..%) Table 12: 7-tests Between Hales and Females f o r A11 kasures: ............,. .................................51 - Data Set -- L B.. Table 13: R e l a t h s h i p BeBeken Sex and Group W e n h i p . . t > -- L .........:.+52 / Figure 1: Details o f Saple Shrinkage for Data Set A . ..............67 8.. ............. -67 Table A: Praportion o f Sarrgle Decrease: Data Set A., Table 0: Proportion e l c Dcnslse: Data &t Data Set 8..66 ABpndix B * Table C: Table 8: Table E: ............ ..A8 F r s q u e n d a for OII Sawrs: Data kt .B : .,. ........ , ...W Frequencies f o r FkC and flDS xores: wtta St B ........... Freqwncies for Cnf Scores: Data Set A,. . - freqtm€ly have d i f f i c u l t y @kining access t o c l i n i c a l populations, s h l d be based OR researched principles and techniques. -11 The a s s u p t i o k underlying a proposed treatment plan can then be recognized. researdr can be sooght tk support o i refute these assusptions, and necessary slodificaiions can be made before the c l i e n t i s treated. In # i s way. needless.constmptim of the a d possibly himfu'l aspects of the proposed intervention can be Prinirfzed or eliminated, In m n i n g a set o f &elmtiours to identify areas where changes C - - t a n ~ ~ ~ t t ~ ~ ~ u a r p ~ ~ O t f e n I r a acausal e a D links o u r or e relatbnships illsong physfological and'psychosocial factors. A within a behavioural systew provides the =st j u s t i f i a b l e basis'for planning effective interventions. These behavioural systg?r are usually colaplex, and clinicians are expected t o &sign effective treatrrents i n the presence o f m t t i p l e , interactive factors. cases, the intervention service delivery. lrrtst I n sbsre be integrated into a larger program of I n order t o maximize tke expectation that interventions w i l l be sucessful, many c l i n i c f a m study oledJcal and psychological 1iterature i n search o f infomation that can k directly appl f e d t o a trea-t plan. A coaprehensi w working knarledge of the w o u s system o r of B behavioural research soaretimes yields a useful intervention strategy. b u t very often i t does not. - Why is i t so caAlraan for t h e b e s t e x p e r i m t a l minds t o spend t k i r working lives researchingljn a particutar area of befwiourih $nvest+gation, yet their many discoveries are of limited use t o the clinician? ' I t may be that the clinician i s often dealing w i t h behaviours and disorders on a very - - - - -- - - - - -- - -- - -- - - - - ---- - - - - -- - - - In the different level than .S s usually investigated by researchers. f interest of attain ng experiwental rigour, experimentalists often must narrow the question o r field of investigation, while practicing clinicians are usually concerned w i t h a much broader segbent of a physiological or psychosocial system. or acute strebs, defined somewhat loosely, here as, 'a generai concept I &racing a l l circmstances, good and bad, that require bodily adaptation by the autonomic and endocrine systems," (Buck, 1973, pg.30), behave very differently than under normal conditions, or severe organic disease. If this is sa, i t i s not unreasonable t o suggest that reseakh based on well functioning people or on those suffering from serious organic i n s u l t may not be o"fch - - - - - - ---- --- p p - help i n treating the large -- - group of cl tents seen by clinical psychologists today for stress induced motivational system disorders. Animal research provides an understanding of the nervous system - - - - - - --- p - r-- - --- and the physiological aspects of such disorders as anorexia neyosa .b L - - -- ---- ---ep-- -- t (Bemis, 19781, obesity (Crisp, 1978) and other disorders (Bloom, Segal # & Gqi 1lemin, 1976). - Althqugh other aspects of behaviour disorders ar& ' 1 studied i n animals a s uetl, i t can be d i f f i c u l t t o relate these t o a therapeutic situation with human clients. Clinical reseiirch w i t h humans has provided a large b d y of knowledge about t h e aetiology, s y & t a ~ t o l oand ~ ~ treatment of - disorders (Bemis , 1978; Crisp & Stonehi 11, 1971 ; Jenkins, 1979; P-rleau - - & Brady, 1979; Selye, 1956; Vigersky, 1977; Yakelihg, - - -- - - - - --- - -- - - - - pp - - -- -- -- - -- - DeSouza b Beardwood, 1977). However, only some of the conditions i n an actual intervention setting are reproduceable i n the laboratory, and i t can be d i f f i c u l t t o generalize laboratory results t o operating programs of intervention. Much of the research done w i t h i n existing . programs is d i f f i c u l t to apply, as we1 l . Frequently, the need for 4 experimental rigour + n & & h e r - - ~ t ~ i considera g ~ l tktr~-(e.g.~~------time and monetary constraints) determine the nature of the research design. T h i s can result i n a restricted study or a change i n the In t h i s situation ,/the type of treatment actually quekions asked. 0 investigated bears l i t t l e resemblance t o that received by the Q program's clients. T h i s leaves an important gap between research and application. - Intervention teEhniques must be studied under tightly control led - conditions. - - - However, there i s also a need to investigate both t h e - - nature and the outcome of t r e a t m n t as i t actually occurs. Related t o t h i s , are the issues o f cooperation w i t h , program - - ---- -- managers, and gaining access t o long-term data. - - - - - - - --- ~ I t has been suggested (Cowen, 1978: Hackler, 1979) that program evaluation and p g r a m related thegretical research should be done non-intrusively w i t h i n existing programs. ' Cwen states that the effectiveness of com&i ty service programs w i 11 ultimately be assessed by combining results f m many poorly designed studies. This is because a number o f obstacles t o doing well designed outcome,research arise from differences i n values and objectives between evaluators and program staff. Hackler recomnds t h a t traditional scientific procedures be reversed, so that questions are limited by the data a t hand. 4 Rather than beginning with theories and designing research to t e s t them, he suggests that researchers use available data to evaluate programs. He further suggests g i v i n g aid to program staff and government departments i n csllecting a large body of data, as a f i r s t step. Rigorous methods and complex issues could then be slowly apprlo_ached, as mesearchers and program directors become more aware of one another's needs and m r e trusting of one another's intentions. Hadkler's views have been criticized on a number of points (Corrado, 1981). Hackler suggests that val i d experimnts should not be done ( a t least i n i t i a l l y ) , because they are difficult t o carry out w i t h i n politically and organizationally sensitive programs and because their frequently negative results could exacerbate the - - - - --- - situation by causing marginally useful programs to be cancelled. He further concl ~ d & - ~ t h a t t h e d i f f i c ' u ~imp1 * f ementati on and the frequency o f negative results (Corrado 1abels this the "nothing works" position) together contribute to the scarcity of valid - - experiments i n t h e s e mttings. Corrado suggests that Hackler's conclusions are both contradictory and based on invalid assumptions. He ,offers alternative explanations for the paucity of experiments and for the frequency of negative results. Corrado also gives examples of interpretation errors i n negative evaluation reports and points out that experimental studies have found some programs either partially o r who1 l y effective. .* These criticisms severely weaken the val i d i t y of Hacl ker ' s recomnendations . Whether o r not these recomnendations are justifiable on the basfs gf his evidence, some of the issqes raised shou* be investigated. I t i s important to deal w i t h the issue of doing valid research w i t h i n the program setting. There i s also a need for research that can be directly applied to the design of intervention plans. I n the foregoing discussion, hJo problem areas haw t e n addressed. First, i t i s dften difficult for practicing clinicians t o use of experimental findings. Second, i t has been suggested 7 hat i t would be well to make, use of existing data, because professionals are often loathe to have researchers "interfering" w i t h their clients. In conjunction w i t h this, there are often large samples and long-term data available w i t h i n ongoing therapeutic programs that are not easily accessible to researchers from other sources. - - - -- -- In effect, i t i s suggested (Hackler, 1979) that i n order to be - -- , - - -- relevant to the treatment situation, to maximize cooperation from * practitioners, ,and to use existing data well, r e s e a r c e s should be - t a i l o r i n g projects t o f i t established programs and data bases. It i s . Vurther suggested t h a t t h i s be done i n a non-instrusivi manner f o r both program eval uat ion and other types o f research. Prevention Pre'ventive intervention i s one area where these issues can be addressed. Experimental data on the aetiology and e a r l y treatment of disorders are p a r t i c u l a r l y relevant t o t h i s type o f intervention. - Preventive treatment pfans generally deal with comparatively large A numbers of pe e, making programs based on t h i s model p o t e n t i a l l y - useful as a way t o spread the expertise o f a few professionais m n g many recipients. Some aspects o f the intervention can be allocated t o non-professionajs o r t o the c l i e n t . Preventive programs can'reduce the r i s k o f severe problems developing, while encouraging c l i e n t s t o p a r t i c i p a t e i n t h e i r own health care. I n the mental health f i e l d , three levels o f prevention have been defined (Caplan, 1964) according t o the point a t whfch intervention occurs and the type of target population. Primary prevention occurs / earliest n the process of disorder development. . This i s l e a s t closely 1 related t o the work tradf t i o n a l l y done by mental health specialists i n t h e i r efforts t o eliminate disorders. This type o f prevention -- -- involves intervening before sm& occur so t h a t a disorder i s prevented f m i3evelopTngF Giiiry prevention-hasbeen defined 'as a comuni ty concept which involves lowering the r a t e of new cases in a poputatlon over time. Its takget i s not the individual. I t s aim rather, is to reduce the risk of developing 'illness f o r a whole population so that'feuer people w i l l become ill. I Secondary prevention seeks to lower the incidence o f a particular disorder w i t h i n an "at rjsknkpopulation. T h i s is usually attained by treatment of existing cases to Thus, sen their s e w r t t y and duration. ')r the relevant factor i n secondary prevention identified cases. is decreasing Specificity is important here i n terns of disorder, so #I& pr&i@s m idestiiie8 ea4+hR8eidkzdsxH&ee -4veeeme - I epidemic or more severe w i t h i n the target group. Tertiary prevention can be Wewed as primarily a patch-up masure. Here, intervention occurs well after a disorder has developed, and its focus i n on the individual. Cosmunity wide rehabilitation is attempted by individual treatment. T h j s type of intervention i s closest t o the - - r - - - - - - practises of most comglnity mental health and medical treatment centres, i n that problems are seldom attacked until they areAwelt'entbriched. A1 though Cap1an ' s three level &fin4 tion of prevention was developed explicitly t o f i t a c m u n i t y wide concept o f prevention 6 which is distinct from the conventional psychiatric practise of cme-onL one intervention, its concept of levels can also be applied to individual treatment. , el *hate w* fx t o r s -, In t h i s way, lifestyle changes designed to whi ctr m t d ' f e a ~ d 3 s e a s ~ c z 1 n 3-ifc:*das w of i t- G 1 development of a syndrome can be seen as secondary prevention, and various forsts of d i r e c t t~~ e# well es*-l isMdiscmks em be viewed as tertiary t r e a m t on an individual level. For the purpose of prevention, only primary and secondary intervention are of genuine interest. Tertiary intervention can be viewed as preventing disease progression o r preventing mortality. - t However, these are not geneqal l y the goals of prevention programs, Preventive Medicine i I n p r e k t i ve medicine programs, there is an interface between psychology and medicine. In s t r i v i n g t o prevent the development of P degenerative disease, physical complaints a p addressed before they - 7 - - - - --- - - - - - -- -- -- --- -- - - occur. Thi s i s general I y acconrpl i shed through attempts sto reduce risk factors. Some of the risk factors involved, such as hypertension and obesity , are of interest t o physicians as predi sposers t o degenerative disease, and they are widely studied by psycho1 ogi s t s , as we1 1. These complaints are particularly intiresting to those who study behavioural laedicine (Pomerleau 4 Brad-y, 19791, --- - - - - - - - -. In the past, programs of prevention have been aimed primarily a t reducing risk factors w i t h i n a fairly large segment of the population. Three related methods of intervention have been widely used t o counteract the spread of degenerative disease. Personal heal t h e services such as uaccination, educational measures Bnd envi rotmental action have a l l been found useful t o various degrees. A t present, several large scale intervention t r i a l s are underway i n Europe 'and the - - - - --- -- -- -- United States (Breslow, 1978; Hall, R o b h s 8 Gesner, 1972; Williams & - Arnold, 1977). The goals of these programs are to t e s t the feasibility of reducing risk factors and, ultimately, to reduce disease. The - Multiple R i s k Factor Intervention Trials (WFIT) used group therapy t o . -- --- @ - + - - f a c i l i t a t e l i f e s t y l e changes in 12.866 people a t r i s k o f coronary heart , These meastires wwe specifically directed a t n u t r i t i o n , disease. Those who readied a c r i t e r i o n r i s k factor smoking and hypertens-ion. reduction were subsequently placed on iba'intenance program (Breslow. A more cost effective pethod was used by the f k n f o r d University . Heart Disease Prevention Program. I n t h i s study, two C a l i f o r n i a u m n u n h e s were the target of extensive mass-media campaigns over ,a two year period. -- - - - - I n one of these,JndiniduaJ c o u ~ e l l ~ w a _alsas - -- - -- - \ provided for a small subsample with a t h i r d comnunity used as a comparison group. The treatment conrnunit i e s received information via television,' radio, billboards, posters -and the mail. They showed a sustained decrease i n r i s k factors over two years, whereas the "untargeted" comparison commnity increased r i s k f a c t o r levels. Evaluators concTuded t h i t these &thod< can-perFudip ;el - ti ch%je t h e i r habits and effectively decrease the r i s k o f heart disease a t -- x. a reasonable cost i n dollars (Breslow, 1979). program were not reported by Breslaw. Actual costs o f bhe However, a cursory comparison of the Stanford and MRFIT programs suggests that the Stanford technique, emphasizing large scale advertising, would be less costly on a per capita basis than the . HRFIT which offered more personal attention. -cardiovascular disease, especially among middle aged males. The goals - o f t h i s project were t o lessen r i s k factors and t o provide tested f i e l d nethods f o r nationwide use i n the control of general _heal+h problems, - -- designed t o run over six years, X-pi?&K#ar I t employed of techniques adtniniStered by individuals or institutions. variety Interventfon wethods included W i a campaigns, environmental changes such as restriction of public smoking, training health care personnel, and providing health information t o the public. Findings a t the end o f four and one ha1f years indicated enthusiastic pub1 ic cgperation, - - - decreased smoking among middle aged males, increased use of l& f a t rr m i 1k , and- decreases i n blood pressure. A decl ine i n the incidence of Several other programs are s t i 11 i n progress. The American Health / Foundatiws "Know Your Body" programs amng New York school children i s monjtoring and trying t o decrease raised blood cholesterol, high blood pressure, smoking, obesit; and other risk factors ( ~ iliains l & P Arnold , 1977) , There is a1so a program i n Swi tzerl and s e t up to en1i s t comnunfty resources i n .the reductron o f c a r d i o E u 1a r - r l s k f G t o i F i n t h e population slow, 1978), and the Health Hazard Apprai sal Program which was developed a t the Indianapolis Methodist Hospital is used throughout, North America t o evaluate indi v i dual risk 1eve1 (Hal l , Robbins & Gesner, 1972). Several of these progr*ms (for example the Stanford and North Karelia projects) concentrate their efforts toward .envirdnmental change on comnuni ty-wide education. * a more individual level approach prevention on - -- -- - - --- -- . - Others, such as MRFIT, * - There i s already some evidence that t h e Stanford and North Karelia projects have had a t least some effect on cardiovascular risk factors, a1though some of the necessary control comparisons have not -been made. - - - - - - - --- - - * programs is the possibility of confounding by a general trend toward lowered incidence of such risk factors as smoking and hypertension i n control groups. T h i s effect has been attributed t o a general increase i n health awareness over the past decade (Breslow, 1979). I t may be difficult to separate out haw much of t h i s awareness is related t o t h e existence of p r m $ f v e pmgritlrts a d government interest in such matters. The WFIT project has not yet produced clear evaluation results, available from the various studies w i t h i n this relatively new area of intervention, the feasibiltty of preventive programs w i 11 be more easily evaluated. Evaluation of these programs will provide data di, on successful preventive techniques, and could make preventive channelled into those techniques and programs that have been found most useful. Ineffective measures could be dropped o r modified. Furthermore, i f the apparent trend- toward this type of intervention fl holds, efforts t o maintain health w i 11 1i kely focus increasingly on risk Decisions concerning factors rather than on establ i shed diseases. 1 governmental support for such a trend w i l l , hopefully, depend on the results of evaluative studies w i t h i n existing programs. --- - -- - There i s a - - --- ---- - -- - clear need for both process and outcow evaluations i n this area toprovide infomation on which to base these decisions. Evidence is rapidly accunulating that a decrease i n risk factors - - - - -- -- - - - -- ----- ---- %d smm of i ? l health i s due, largely, t o p a r t i c u l a r aspects o f l i f e s t y l e change ( W a y 8 Presley, 1975). A c t i v i t y level, nutrition, I t has smoking and drug use affect both general health and longeuity. been stated/l8feslaw. 1979) that health maintenance requires a posltlve - 1 (active) strategy t o prevent disease and extend l i f e . This could be attained by developing &a1 ~ f u 1lifestyler, tmpmuing #te - - e n v i r o m n t and turning t h e focus o f aedicine t w a r d health maintenance. The type o f preventive e f f o r t s now being advocated by B r e s l w and encompasi additional ~ e f f o r t s ~ ~ ~ o s e _ ph1oPsXLWEU sl others - --- -- __- - - t r a d i t i o n a l physician's o f f i c e . People must also take steps. t o protect 4 t h e i r own health. Yhile post-illness medical care can usuallyvdeal i w i t h syisptans on a f a t y l y 1~mediate1eve1 , preventive medicine extends i n t o a l l facets o f l i f e . This requi,r& types o f r i s k factors i n h m w ~illness. cholesterol levels). poor nutrftion. - systematically attacking two One i s the body changes which Another i s personal habits such as smoking and Breslow suggests t h a t packages o f health care should be geared t o the specific needs of peopl; as they age. Toward t h i s end, the medical profession has become increasingly interested i n the practice of preventive medicine. It has been suggested (~chman, 1979) t h a t during the 1980's there w i l l be an increase i n b q h the qua1i t y - - -- and quantity o f preyentiye m ~ .. By p r a c t i c e , $ p r e v e n v ite pqular--rt v ~ . IS . l.Ckeaj( l t h a t private bhysicians w i l l base t h e i r practices on t h i s concept rather than on the concept of cure.- -- - -- - - -- - -- y * - - -- - - - - - - - -- -- Respomibili t y f o r decreastng r i s k factors rests, ultimately, w i t h the individual. lilany o f the steps cons1dered necessary, such as decreasing health threatening habits o r removing harmful factors from one's iainediate e n v i m t , occur through changes i n behaviour. Persona1 responsibility f o r individual health care i s one aspectof the larger issue o f personal responsibility f o r one's orsn well being. fnvolving the c l i e n t i n his/her own health care has been used t o - aid i n lowerim-risk factors, a = - -- - - -- L o n g 4 d t h ~ ~ ~ One type o f intervention which involves both self-involvement and , . ~ ~ . personal control with respect t o w i n g preventive achon i s contiflgency or behavioural contracting. This f o m o f i n w e n t i o n was introduced by H a r m , Csanyi and Rechs (1969) as a device f o r altering classroom behaviour, and has since been used i n the treatment o f - a1cohcil isll (Hi 11er. 1972; M i 1le< t&oi - - - -- - - & ~i-. 1974) , drug abuse - --- - (Boudi n, l972), marital problems (3acobson, 1977; Stuart, 1969) , sumking reduction ( E l l i o t t & Tighe, 1968; Winnett, W 3 ) , and i n self-treatment of a number o f problem behaviours (Kanfer, 1980). Of particular interest, here, i s the effect . o f personal involvemnt and personal control on therapeutic outcome. these factors as 'outcome I n looking a t ~di ctors, Vani c e l l i (1979) found a negative . controlling alcohol abuse ana aftercare p a r. t l c w . - To # e d e g r e that cooperation i n Phe form o f voluntary post-treatment contact can 'be 5 considered .an outcane, mere self-in"fl~8nent i n d e f i n i n g ~ k _ ~ : m t & A - - - - - - - resulted i n a more positive outconle (continued cooperation) for t h i s S e l f - i n v r r l v ~ ti n treatment 4nf tiation also affects outcome. ,Using attendance rates a t alcohol treatment centres as an outcome Rosenberg and tif t i k (1976) found that 1nvol untary referrals mas&, were significantly wore littely t o attend than were voluntary referrals. f Another study [Davis & D i m * l96@ f o d no Qffference h-the eutcw! measure of attendance. O t h e r interventfon outccli~emeasures also s k d no df fference mre orl~~~felf-faualuearent,lfc~--*= as an indicator of self-involvenient, no difference was found i n length # of abstinence during the f i r s t year post-treatnmt (Aharan, 1967). Simi lar results were found (Voegler, 1976) using absolute alcohol h consuaption as an outcome criterion. However, t h i s finding did not T hold across a11 studies itsing decision to seek help as an indicator of -- - sel f-invol v k n t . ---- Wexberg (1953) f w d that sel f-referrals were Mce a s likely to have &wed alcohol conslraption six mnths a f t e r treatment began, and were more likely t o experience self-repbrted "social improvement" than were those coerced i n t o treatment. I n their revie* of t h i s researchbunha. L Lss (1982).con+luded that the studies contained several mthodologi cal problems, especially a selection bias. Dunha and Mass attempted t o clarify the smewht referral for trea-nt and .various chmgr@&c, (P.- okipation, prior t r e a t m t ) , on "stab1e abstinence" after - - treatment ceased. , They found t h a t coercion resulted i n s i g n i f i c a n t l y higher success rates than d i d s e l f r e f e r r a l f o r m s t patient types. One interesting subgroup label T& " i n s t i t u t i o n a l l y dependenta, was' found most successful i n t h i s treatment program. Group members bere referred by agencies f o r treatment, and were judged highly dependent individuals. A s i g n i f i c a n t d i f f e m c e i n outcome between these and the group i d e n t i f i e d as independent ( s e l f referral group), who were 1east successful , was dif#kse&iiLl noted. This indicated a personal it y r e l p e d SUCCESL~&~ fQll-%k€-4- control i n a t least one phase o f treatment. axd&r - Lack o f responsibility f o r decision making ( t o the degree that thi-s can be considered the relevant variable i n r e f e r r a l by an external source) seems t o r e s u l t in a more positive outcame f o r dependent individuals. The opposite effect i s fotmd f o r independent personality types w i t h i n the alcohol abusing Along w i t h t h e i r effects on c l i e n t cooperation and on other outcome measures, personality variables are related t o a variety o f physical complaints. Sow personality factors that have been shown t b r e l a t e t o physical symptomtology are self concept ( G o t t m n & Lewis, 1982). state-trai t anxiety (Auerbach , 1973; Spiel berg, 1973) and assertiveness (Keane, Martin, Berber, Yooten, Fleece & Williams, 1982). Furthermore, ' - - ---- whether i t is used as a treatment outcome measure, i t is of interest i n a study of preventive intervention. I t is especjal ty applicable where the decision t o carry out preventive measures is pr$marily. up t o the individual, as i t is i n a small scale private program. Here, i i t may be important both i n treatment i n i t f ation and i n carrying out suggested 11fes tyl e changes. A number of factors have been found to influence a client's use of Belief Model o f preventive health behaviour. This mdel "states that x cooperation w i t h preventive regimens can be predicted by susceptibility t o a particular disease, degree of sever3t y OF disease contracted, \ believed efficacy of preventive action, barriers to action such as physical or financial difficulties etc., and presence of -a cue to action - - - - -- -- - - / that enhances the client's awareness of hSs/her feelings about the condition. This model has been used t o predict participation i n a number of preventive programs (Ekcker, Kaback, Rosenstock & Ruth, l975), and iaswnization of various types ( C m i n g s , Jette, Brock & Haefner, In addition t o health beliefs, intention has also been found important i n predicting cucperati on w i t h preventive programs. 1967) and tuberculosis screening participation (Uurtel e, Roberts, & beper, -mz)have &I A strong&- --&** o ft a outcomes other than compliance has also been well supported (Ajzen & 4 Fishbein, 1977; B)agozri, 1981; ~ i s h b e i n& Ajzen, 1974; Weigel & In addition) t o its relationship to o u t c m s of various sorts, attitude has been found t o relate t o personal involvement. Petty, - Cacioppo & old#& (1981) concluded that under conditions o f high personal re1 evance, attitudes are prinari ly influenced by qua1 i ty of information. - J Under ton involvement conditions, the source is more - impurtsnt. - - ---- T - - - - . - In the preventive health care field, therefore, i t may be that information i s more important for some client subgroups (e.g., those who perceive the issue as one of high personal relevance) ,whi 1e the actual setting and i t s staff may be m r e salient for others (e.g., h those who perceive the issue of l i t t l e personal relevance). If this i s each group toward changes i n lifestyle. The Present Study .oar v clearly,- the relationship of aaitudes to health related behaviour $ and. its o u t c m s i s not a simp1e one. Personality variables, intention and compliance are stme of the factors involved i n t h i s complicated issue. One of the many questions needing further study is the A well established private preventive medicine clinic provided a - - setting within which t h e following issues could be addressed: I. Investigation of the process involved i n seeking clear, useable outcome data frwr a past-hoc, non-intrusive evaluation, as measured by symptom reduction. 2. Advantages and problems in such an undertaking. 'Does the quality of results support the use of these techniques? 3. Investigation of a psychological question under the above condj tions. I s there a relationship between a t t i t u d e toward health care, feelings of personal control over health, and degrke of symptom reduction? 19 - ". Met hod The Setting, The Vancouver Preventive Medicine Centre. This program was established i n response to a perceived need i n Vancouver for a positive program of health maintenance. Two physicians founded the centre i n February, 1977 w i t h five doctors now on staff. There has been a number of newspaper reviews and several other types o f media coverage since the centre opened. This coverage has a l l been positive, and public opinion i s clearly i n favour of such a program. I t i s s t i l l to be determined, however, whether i t i s effective. - The centre operates on a self-referral basis, w i t h the aim of ; identifying and decreasing risktfactors for the development of disease. The primary intent is t o induce clients to modify harmful aspects of their lifestyle. For each patient, risk factors are determined through interviews, physical examination and appropriate laboratory tests. Plasma triglycerides, cholesterol, glucose levels and uric acid are measured. Doctors counsel improved eating, habits i n an attampt t o b r i n g elevated levels of the above f a c t ~ r st o acceptable levels. -4 Coronary risk analysis i s calculated based on laboratory tests-and various personal habits, and expressed as a numerical value. T h i s score is - calcutate$ i n such a way t h a t i t correlates positijely w i t h degree of , risk of coronary problems. Further to this, a Health Hazard Appraisal (Mi l s m , 1978) is done. This computer scored, and the client's "effective age" i s calculated. Effective age i s an expression of physical degeneration, and i t o f t e n d i f f e r s markedly from chronological age.. Where t h i s occurs, information i s given on how t o a t t a i n a more desireable e f f e c t i v e age. Since elevated e f f e c t i v e age i s a strong r i s k f a c t o r f o r a number o f diseases (Milsum, 1 9 n ) , p a t i e n t s are encouraged t o make concrete e f f o r t s toward decreasing i t . The p a t i e n t ' s s t r e s s l e v e l i s a l s o monitored u s i n g the Social Readjustment Rating Scale (Holmes & Rahe, 1967)- Those experiencjng h i g h scores on t h i s measure are informed t h a t they a r e a t r i s k o f developing problems i n b o t h p h y s i c a l and psychological health* They are i n s t r u c t e d i n m e t h d s o f decwasing stress f a c t o r s i n t h e i r environment, e i t h e r through m o d i f i c a t i o n o f t h e i r own h a b i t s o r o f s t h e i r environments. A computerized d i e t a r y analysis reveals s p e c i f i c n u t r i t i o n a l d e f i c i t s and i n s t r u c t i o n s on improved d i e t are given where necessary. I n a d d i t i o n t o a l l o f t h i s , a personal data sheet i s kept t o m n i t o r each p a t i e n t ' s progress. During the i n i t i a l interview, past and present symptoms are moqQored using t h e Cornell Medical Index Health Questionnaire (Brodman , Erdmann , Lorge, & Wol ff , 1949). 4 T h i s information i s used i n i n i t i a l diagnosis, as w e l l as t o manitor ' general l e v e l s o f health. I Physicians a t t h e centre were very cooperative i n p r o v i d i n g data and access t o a l a r g e subject pool f o r the study. As a r e s u l t o f the apparent success of t h e i r efforts, they were a n x h s to kave,tk+r program eval uatgd, H m e e r , since these doctors feel stm@y that- p a t i e n t s should not be inconvenienced and since they do n o t have time ' o r funds t o c o n t r i b u t e t o t h e research, the s e t t i n g presents a - - -- particularly challenging situation for doing 'Vesearch. Since established treatment programs frequently present similar situations, i t would be interesting to explore the possibilities offere& by this program. There have been few evaluative studies of preventive medicine of any description. w Of the several government sponsored health care programs now running, only a few have been i n enough to yield any evaluation data. Furthermore, there have been no evaluation studies found on preventive medicine i n private practice. As the medical profession's interest i n this aspect of medicine and 9 i t s comnitmnt of time and resources are increasing (Geyman, 1979; Sloane, 1979), there i s a real need for evaluation of preventive medicine i n family practice. Applicability of the Setting. The issue of personal responsibility for health care i s also of primary importance in this p-ogra&t, because preventive lifestyle changes are ultimately l e f t up t o the patient. Evidence i s rapidly acc,mulating t o support the idea that eating, smoking, exercise and other lifestyle changes result i n decreased risk factors for disease. Activity level , nutrition, smoking and drug use affect both general health and longevity, and these can only be control led, barring legislative changes, by the individual (Breslow, 1978; HcCamy & Presley, 1975). ~es'pmsibilityfor decreasing risk -- factors rests, finally , w i t h the individual s i n c e r i s k factor reduction -- i s accompljshed through behaviaur change. Researchers i? the area of psychosomatics have long been aware of the intimate connection between dC- I- - psychosocia 1 and physi olli ml factmx i n t h e w Attitudes W a r d personal responsibility for health care is one psychosocial variable that may affect both compliance w i t h treatment and sel f-referral . These actfons, i n t u r n , may affect symptom reduction. T h i s setting provides the opportunity to look a t the relationship between individual attitudes toward health care, feel ings of personal responsibility for health care, and physical symptoms. Additionally, provides an opportunity to examine t h e p s i bi 1i t i e s for answering research questions w i t h i n an ongoing intervention program, usfng' non-intrusive data collection methods. Tests Cornel 1 Medical Index Health Qoestionnaire. The Cornel 1 Medical Index (CMI.) was chosen as a symptom checklist and as a future evaluation tool by t h e medical practitioners a t the formation of ihe Vancouver Preventive Medicine Centre. This i nstrwnt had already been b i n use for three years prior to the beginning of this study. It provided the only useable long-tern pretest data for identifying a change i n symptomatology for the Centre's client popu'lation. The WI is a sel f-admini sterid. sex-speci f i c questionnal r e given to people older than 13 years of age. Administration time i s estimated a t 10 to 30 minutes for the 125 items, each answered "yes" or *nom. The questions are informally mrded to make them s u b b l e - f o r % administration t o a varied population, and their seleclicm was has4 on questions generally asked by physicians i n a comprehensive medical - history (Brodman, e t a1 ., 1949). The questions are clustered according - - - - to particular organ systems, into subgroups.for the following content areas: A - , eyes and ears; B - resp$ratory; C - cardigvasuclar; :- - digestive; E - musculoskeletal; F - s k i n ; G - nervous system; H - genitourinary; I - fatigueability; 3 - frequency of illness; K - rniscellaneous diseases; L - habits; M - inadequacy; N -. depression; 0 - anxiety; P - sensitivity; Q - anger; R - tendon. Analysis of t e s t D s results are often further divided into sections A-L f o r 'various s m t i c symptoms and M-R for psychological symptoms. J In an attempt tn p w i & coateat ualiditj~.B r o w Erxhm, Lorge L Uolff (1951) showed 94% agreement w i t h hospital examinations , on general diagnoses and 87% on specific .i 1lness categories. In later studies , Brodman , Erdmann , Lorge , Gershenson , and Wo1 f f ( 1952) and d Brodman; van Woerkm, Erdmann, and Goldstein (1959) were abie t o \ discriminate between a ntrmber of groups 'using CMI patterns of In addition t o its usefulness as an indicator of physical i l l heaith, i t has been used to indicate emotional disturbance. In this regEd, the original studies carried out by the developers of the t e s t were not convincing. -- Using a sample of 5,121 medical and surgical patients f m New York City Hospital , a 526 patient subsample of Fhese who were diagnosed as neurotic during subsequent examination, ele ?wl&??Fjt s e k t e d #ew Ye& t.esMeRts, t - - P l 311 l ;m certain patterns of response on the CMI could be an indication of c emotional disorder. BroQRan and his colleagues found that 30 o r m r e nyes" responses were given by 76% of psychiatric outpatients, 65%.?f females i n the neurotic group and 52% of males i n the neurotic g m u b Excluding the 5,121 hospital patients group from.which the neurotic group was selected, the next highest proportion w i t h a score of f 30 or more occurred for females i n the "normal" New York residents. These proportions were, appakently, compared subjectively w i t h proportions of these groups who had scores of 10, 20, 40, 50, 60 and - - - - - - - - - -- For the category of "20 yes responses", 70 "yes" responses on the CMI. the differences betweqn the " n o m l u groups and the emotionally \ disturbed groups were 30" category. bt as subjectively striking as i n the "score of Only the hospital employees group occurred markedly I less often t h a n the other groups i n the "20 yes response" category (5%males; 13%females~, However, s h c e no s t a t i s t i c a l 'comparisons were reported, these scoring categories may not be a valid. -discriminator amng groups, based on these data. This group of researchers also reports that emotional disturbance .L can be assumed fm answering both 'yes" and "non on 3 or more questions. o m i t t i n g 6 o r more questions, o r ' from adding 3 or mre However, this conclusion i s remarks or question modifications. based on frequency of occurrence w i t h i n the 5,121 hospital patjents, - - - - - - -- -- - -- - -- -- -A w i t h no other group used for comparison. Since no comparisons were - - - p reported, the concl usions are unwarranted. Other researchers have found differences among general medical patients and neurotics. B- and Fry (1962) found that the mean total - --- - - - - - -- --- -- of *yesn %sponses f o r two samples of subjects taken f r o . general I practitioners' patient loads were 15.4 and 17.4, while two neurqtic sampl M a s defined by elevated scores on Eysenck I had mean totals of 29.8 and 41.3. s neuroti ci sm s c a l d In another study, Desroches and 4 Larson (1963) reported total scores of 45.3, 58.0 and 69.7 for dmicil iary, general medical and psychiatric patients respectively. - These 'subjects were selected from patients attending a veteran's i hospital. Scores for a l l groups i n thi4s study were well above those found by Brwn and Fry t o separate psychologigal disorders from other -- - types of complaint. - - Reasons for t h i s are not clear. - - - - - -- However, these f i n d i n g s do bring into question the validity of either the samples used or of the CMI as a discriminator of psychological disorder. Further studies have correlated either the total CMI scores or various subsection scores.with established tests of emotional disorder (Dudley, 1976; McDonald, 1967; Harks, 1967; V-hese, - 1970; Weiss, 1969). A typical criterion 'for emotional disorder has been the 30 or more "yesn ksponses on the total CMI found by Brocfiwn e t a l . (1952), a1though others have been identified. Ryle and Hamil ton (1962). i n screening &wried couples for neurosis, defined CMI scores o f 0-15 as normal, 16-30 as intermediate, and m r e than 30 as highly neurotic. Pond, Ryle, and H a m i l ton (1963) found that mo,m than 16 'yesm indicate neurosis i n a working class population. A total score of 30 or more, or a score of 10 or m r e on sections H-R was used as a : '2. criterion for n e u f o t i ~ i s .i n 234 general hospital patients (Johns, 1972). - -- - -- - -- - - M d k a ~ - a f m s e a r c breparts have accepted raised CNI ~(3b~res ' as an lndicatiod of emtional disturbance, the validity of these assumptions has been frequently criticized. Some researchers (Abramson, 1966; Desroches & Larson, 1963) argue for the importance of t, local n o m . Others (Amoff, Strough I S e p u r , 1956) s t a t e that the tool for gathering valuable infomation i n a standardized, - - usefulness of the CHI is not on a statistical level, but rather as a ecmical and objective manner t o aid clinicians i n medical examination. The CMI has some face validity as a symptom checkljst and as a i - - - - -- - - - - - -- conserver of physician hours, b u t it i s not feasible as a quantT=ve measure of psychological adjustment. -- - - - - Levitt (1974) suggests that when only a total score is r e q u i r e d there are a number of measures available which are mre easily and quickly acbnini stered. However, when used as a symptom checklist the CnI can provide jnfomtion about 1 - 5 patients' total health i n a manner @at i s easily accessed b ~ b u s y medical practitioners. - b s t objections t o the MI as a valid quantitative masure of psychological adjustment seem t o be, based on the simplicity of design form, subjective basis of original f ters selection and lack of normative data. With regard t o its lack of norarative data, most research has been concerned w i t h emotionally o r chronically physically IF1 patients, or for very select subgroups of 1954; Cal h e c k - b a n - -- -- , 1x6;tawton, 1959; Richman, St ade - 1966; Stout, Wight & Bruhn, 1969; White, Reznikoff & Evelv, 1958). Scores are affected by childhood experiences and marital adjustment - - (Ryle & Hamilton, 1962), by age and possibly by social class. Reportedly, the CHI has shuwn l i t t l e predictive validity for specific physi ca1 disorders, b u t does correlate fairly we1 1 (correlation val ue unreported) w i t h physf cians ' appraisals of emotional heal t h (Abramson, 1 Terespolsky, B m k & Kark, 1965). Sex. education and ethnic g~oup d 4- appear to have littTe or no effect on its validjty. In order t o deal w i t h s a w of the criticisms of the CMI and t o supply more essential nodtive data, Seymour (1976) studied 1046 male that those diagnosed with other measures as neurotic scored higher on the CMI than those diagnosed normal. In addition, there were several patterns of response which distinguished a group of "high responders" from "1ow responders*. Overall, Seymour concluded that the' CMI provided substantial predictive validity i n the context of -health . - care for this sample. However, the skewed distribution of responses to - different subsectinns indicated that equal weights cannot be given t o each response. He stated that i t is unreasonable to consider seven "yesu responses on sections J (frequency of illness) , C (cardiovascular), ' and D (digestive) t o be equivalent. suggest that i t slay ~ h e s eresults and conclusions not be wise t o consider the number of "yes" responses, alone, as an indicator of emotional disorder. be a poor basis fojdistinguiishing b I t may also e ~ ~ ~ u ~ w i t h igeneral i t h e pojW'Gation. Rather, t h e pattern of response may be more i m p o r t a n t a s an indicator. Seymur tested s&&Zs IWce, with a 14-l6 weekTn€erval between t - t e s t s , i n an attempt t o provide v i l i d i ty data. The 041 was administered i n i t i a l l l , and another ( o m unreported) physician's check1ist was given after the interval. Because there was significant correlation between the scores on these two measures ,'i t was concluded that sane measure of reliability was given for the CHI. This i s an extremely Certainly; a clearer weak argument for reliability of this measure. picture would have emerged had i t also been administered a f t e r the 14-16 week interval. tkm k k y dET a . These data indicate more about symptom stability - M t h e elin 4t-ei%itrt'fi€y. H M r , 3 n i no 6tWr reliability data have been located for this measure, i t has been - = reported here. Another study (Clum, Flag & Holberg, 1970) investigated the differential stability of individual CMI items during Marine recruit \ training. While there was a Jack of stability .for historical~itemsi n - - - - - the Index, i t was concluded that subjects were under stress and were therefore, highly atypical. This, then, was thought to indicate that the lack of re1 iabil i t y demonstrated on this area of the questionnaire may not generalize to other situations. However, since no reliability was demonstrated for parti cular subsections either , the measure does not appear t o be quantifying a stable t r a i t . Short interval test-retest reliability i s also lacking i n the WI f5urjevi ch ., m6). fi a sample of miEPmiTftary-outjiiitients ,-theem Based on the above studies, i t must be concluded that t h i s measure i s rat4er wtstab'te over time. However, a symptom checklist i s expected t h i s purpose. Generally, t h i s t e s t has gone out of fashion i n recent years a s a research instrument because of i t s unwieldiness and the avai l a b i ~ 4 t of l shorter and l e s s subjectively derived t e s t s . One reviewer strongly questions i t s use ds a psychometric i n s t r u m e n t ( ~ ~ k k e n1972). , Although i t has been shown as a poor measlire o f most psychological disorders and is not a re1 iable measure of any t r a i t t h a t can be monitored over time, i t is s t i l l used as a symptom checklist by physicians i n medical practice. Since i t apparently has face and content val i d i t y f o r the purpose of identifying ma1 functioning organ systems and particular physical disorders, i t s continued use i n t h i s s e t t i n g is understandable. However, its use as a research tool i n any b u t the broadest sense is indefensible. The only parameter t h a t this i n s t r u m e n t can be assumed t o indicate w i t h any measure of certainty is number of symptoms of i l l health being experienced a t time of administration. For the purpose of this study, the scores reported f o r subjects o the CMI will be interpreted only as number of reported symptoms. I t cannot be assumed t h a t a decrease i n overall symptom number-actually indicates improved health. That kind of interpretation would require careful scrutiny of both number and type of item by a qualified medical practitioner. The "meaning" of the responses given i n this research - w i l l , ther fore, not be sought. A Since t h i s i n s t r u m e n t has been used by the Preventive Medicine -- - - - -- - - - -- Centre a t patient intake interviews from the program's i v e p t i o n , i t o f f e r s a useful wuge of increase o r decrease i n nmber of symptom of i l l health before and a f t e r treatment a t the Centre. The change i n quantity of symptoms is considered t o be a useful measure of overall patient discomfort (Brodman e t a l . , 1951). Where the change is large, i t may even indicate a change of s t a t e from psychological disturbance t o an undisturbed s t a t e ( f o r example, a change fm 30 "yes" responses \ t o 5 "yes" responses, overall). Therefore, the CMI will be considered but indicative of general di scomfort. Krantz Health Opinion Survey. T h i s t e s t was developed and validated i n 1980 as an attempt t o provide a measure of individual a t t i t u d e s toward d i f ferent treatment approaches ( Krantz , Baum & Wi11i ams , 1980). Since previous research-suggested t h a t patients prefer various Fevets of active participation i n t h e i r own health care, Krantz and his colleagues reasoned t h a t a 'valid measure of patient : related t o treatment outcomes. references would be T Scales were constructed t o measure two important aspects of self-involvement. These a r e acceptance of information offered by medical practitioners and active involvement i n s e l f care. The sixteen item t e s t was developed from a pool of 40 original - questions, using a 359 subject sample. - Behavioural involve men^ - -- - -- Factor analysis yielded a - --- - -- -- - - -- Subscale (11 items) and an Information Subscale ( 7 items).=' High scores represent positive attitudes toward both s e l f directed and informed treatment. Items i n both subscales r e f e r t o routine aspects -of health; care, rather than..to severe i l l n e s s . For this reason, i t was d e e d particularly suitable f o r use i n t h i s study. since preventive health care as practiced a t the Vancouver- Preventive Medicine Centre deals primarily with routine health improvement measures and changes i n l i f e s t y l e , rather than w i t h i l l n e s s , per se. The t o t a l Krantz Heilth Opinion Survey (HOS) showed a Kuder\ Richardson Re1 iabi l i t y of .77, .74 and "above .74" when admi n n t e r e d t o three separate college student samples. - Test-retest re1 iabi t i t y was - - -- Validity of t h i s t e s t was established through administration t o unselected residents of a college dormitory, students reporting t o a college infirmary f o r minor i l l n e s s and students enrolled i n a medical The three samples which represented extremes i n preference for different types of treatment scored as predicted, -and the t e s t s discriminated between these groups. Norms a r e provided i n Table 1, The t e s t correlated .31 w i t h the Wallston Health Locus of Control Scale, which measures expectancies of a b i l i t y t o control one's orm health. I t showed "only modest" correlation w i t h repression- sensitization (value unreported), and low or near zero correlation with the Crowne-Harlowe Social Desirability Scale and w i t h the .Hypochondriasis Scale of the MPI . Ov~ra'll, the t e s t was found t o be a r e l i a b l e , val id measure of patient a t t i t u d e s toward self-involvement i n health care. - - - V - 7 4 f o r the t o t a l HOS Scale over a seven week period. self-help course. - - . Table 1 Normative Data f o r the Krantz Health Opinion Survey Group SDa N Mean Score College Dormitory Residents 56 7.84 3.25 Users of Col lege f nfi rmary 81 7.31 3.45 Students i n Self-help Class 12 10.75 3.79 a Standard Deviation. Wallston Health Locus of Control Scale. This eleven item s c a l e was developed as an area-speci f i c measure of expectancies regarding 1ocus of control in health issues (Wallston, Kaplan & Maides, 1976). I t has been shown t o p;ovide discriminant validity from R o t t e r ' s (1966) Locus o f Control Scale. I t was a l s o found t o ' b e almost t o t a l l y f r e e of social d e s i r a b i l i t y b i a s , a s shown by a correlation of -0.01 with the Crowne-Marlowe scale. Furthermore, "internals" a s measured by t h i s instrument who value health highly sought more health related 8 .information than other groups. Weight control patients reported k i n g more s a t i s f i e d w i t h the program when i t was consistent w i t h t h e i r Health Locus of Control type. Norms a r e -provided f o r primari 1y black, hypertensive outpatients, college dormitory residents and older college students who do not 1ive on campus (see Tab1 e 2) . 33 - . _Table 2 Nonnative Data f o r the Wallston Health Locus o f Control Scale -M Group Mean Score SD" - College studentsb 185 34.49 6.31 College Students 94 33.08 5.35 38 40.05 6.22 C m u n i ty Res idents Hypertensive Outpatients a standard Deviation. Two separate groups o f College students were tested. Subjects Data Set A. T e s t - r e t e s t data were obtained from 233 of the 729 p a t i e n t s who attended the Vancouver Preventive Medicine Centre, 1743 West 10th Ave., Vancouver, B.C., between August, 1977 and August 1979. The primary data source was p a t i e n t f i l e s kept by the Centre, f o r % c l i e n t s who had completed a C M I during t h e i r f i r s t v i . s i t . Some o f the f i l e s had been closed because p a t i e n t s no longer maintained contact, w h i l e others were s t i l l open. continues. For the open f i l e s , a c t i v e involvement Of t h e 729 p a t i e n t s ' f i l e s f o r which a C M I had been administered a t the i n t a k e interview, 20.9%,(153 p a t i e n t s ) had not continued a f t e r the i n i t i a l v i s i t . This group was l a b e l l e d "drop-outs". An attempt was made t o obtain r e t e s t data from both drop-outs and p a t i e n t s w i t h continued contact (sample shrinkage shown i n Appendix A ) . For t h i s phase o f the i n v e s t i g a t i o n , drop-outs were l a b e l l e d " c o n t r o l group" and those who had v i s i t e d t h e centre a t l e a s t twice were the experimental group. t h e Centre a number o f times. Most o f t h e experimental group had v i s i t e d Howewr, actual number o f v i s i t s was n o t recorded on most o f these a c t i v e f i l e s . These two groups were separated i n an attempt t o i d e n t i f y a treatment versus a non-treatment group. These two groups were subsequently combined under t h e l a b e l "responders" (N=231) f o r f u r t h e r analyses. were dropped. Ss A t t h i s p o i n t , two male - One-had completed t h e female version of Section H, and t h e other had completed both male and female v e r s i o ~ so f t h i s section. A second group o f p a t i e n t s were selected who had been given t h e CHI. during t h e i r i n t a k e interview, b u t who had n o t returned the second (mai 1ed) q u e s t i o h a i re. This group o f 236 "non-responders" was randomly selected from the t o t a l Vancouver Preventive Medicine Centre p a t i e n t population, excluding those used i n the f i r s t phase o f t h e investigation. The number was chosen t o be approximately equal t o t h e responder sample. This group, along w i t h 229 o f the responder sample comprised Data Set A. Two more o f the responder group were dropped a f t e r r e l i a b i l i t i e s f o r t h e CMI had been calculated. .- .!- These two subjects were' found t o be out1 i e r s w i t h i u a .subsample of ;this gpoup (Data Set B) and were, therefore, dropped from both samples. Appendix A explains sample shrinkage. :Data Set B. The o r i g i n a l sample f o r t h i s section o f t h e i n v e s t i g a t i o n consisted of 126 (54%) o f the o r i g i n a l 233 member wresponc&rugroup used % i n the f i r s t phase of the project. These 126 .subjects represent a l l of those people i n the responder sample for whom data on smoking, alcohol consumption, miles driven per year and seat belt use had been collected a t their original v i s i t t o the Centre. Since smoking and alcohol consumption were to be monitored for changes and included i n the analyses, only the 126 subjects were used. Testable data were obtained from 60 of these (21 males ,239 females), representing 47,6% of the original su8sanple. high scores on the CMI. Two male s u b k c t s had very Since these scores were important variables i n subsequent regression analyses w i t h i n t h i s sample, these two subjects ' results were judged t o unnecessarily bias the sample. These out1 iers were, therefore, dropped from b o t h Data Set A and Data Set B. shrinkage for Data Sets A and B are detailed i n Appendix A. I Sample Procedure * A1 1 patients who had come t o the Vancouver Preventive Medicine Centre (WC) and completed a CHI prior t o August, 1979 were sent a I second copy by mail. Both active and inactive f i l e s Are used. A covering l e t t e r briefly explai~edthe purpose of the & I , absured the patient of confidentiality, and made a plea for cooperation. A s t a y e d sex f-&drsseci e~vefepwas i ~ c f u c k d~ 4 t htke +wstkmrxtire - t o f a c i l i t a t e return rates; The f i r s t mail in4 consisted of 576 experimental subjects and 153 controls. In an attgmpt t o separate out a control group of untreated patients, experirnentals were those who had continued a f t e r f i r s t contact with the PMC. had visited the centre only I Controls were those who one% Data Set A This mailout yielded, a f t e r 11 weeks, 197 experimental subject returns (34%of experimental subject pool), and 33 controls (21.5% of control subject pool). A telephone campaign aimed a t increasing return rate resulted i n five more returns out of 162 recontacts. point, efforts t o increase response rate ceased. A t this Overall, 202 experimental returns and 33 control returhs were received. Two - experimental subjects were deleted because only half of the questions - - - had been answered. The final sample comprised 34.7% o f the experimental subject pool and 21.5% of the control pool. This was a somenhat disappointing amount of analyzable data. However, many o f the - - - non-returns had moved, leaving no forwarding. address. For those who. /- were contacted more than once, i t was decided t h y e t another reminder may be i n t e r p r e t e d as i n t r u s i v e and would r e f l e c t badly on t h e - ' Time and money were a l s o important considerations i n t h e decision PMC. t o proceed w i t h a t o t a l o f 233 subjects. Each subject was t e s t e d twice, f o r a t o t a l o f 466 completed C M I 's. Since one subsection o f t h e questionnaire d i f f e r e d f o r males and females (H - genitourinary), there were 126 separate questions f o r females and 124 0 ' f o r males. used f o r data analysis. HTS raw data f i l e s were analyzed using analysis of variance f o r repeated measures ( B W P ~ V )Total . nunber of "yes" responses on the C M I over sex, group (experimental o r c o n t r o l ) and-iime (intake-Time 1; r e t e s t = T i m 2) From t h e 496 p a t i e n t s who d i d n o t r e t u r n a useable CMI, 236 were randomly selected to roughly coincide w i t h the 233 member responder group. - The 236 subjects were l a b e l l e d nnonresponders". Two responders were deleted who had questionable patterns of response on t h e CMI, and t h e r e s u l t i n g sample of 467 c l i e n t s was used t o t e s t r e l i a b i l i t y o f t h e masure. SPSS ~obptw~ram Pearson C o r r e l a t i o n between odd and even items was used, along w i t h . t h e Spearman-Brown Correction f o r basic odd-even r e l i a b i 1i t i e s . ' Year of b i r t h , sex and education were recorded for a l l 236 non-responders. Age data were recorded for 203 responders and sex and education levels for 205 responders. The resulting combined sample of responders and non-responders was analyzed using a stepwise logistic regression (BMDPLR) for "group membership". From an original pool of 229 responders and 236 non-responders, those subjects w i t h missing data or CMI scores of 85 or more were deleted for this analysis. While this 'I would not have affected the large sample, analyses using the smaller - /' I , subsample (Data Set B) would be strongly influenced by outliers. Since the number of subjects w i t h scores above 85 waj small for b w p l e s .(See Appendix B) they were deleted. This, along w i t h deletions for missing data, resulted i n a 436 subject group being used for the logistic regression. An SPSS Partial Correlation between group membership and CMI Time1 score was done to examine the relationship of these two variables. A - chi-square was also calculated for number of males and females i n each group. \ Data Set B. The Krantz Health Opinion Survey ( W S ) and the Wallston Health Locus of Control (HLC) were mailed t o a 126 member subsample o f t h e 229 subject responder group. A stamped, self-addressed envelope was mclosed to f a c i l i t a t e returns, along w i t h a covering l e t t e r - - - - - requesting subject cooperation and written permission t o use the data - for research purposes. r&urned. - - - - Only 52 of these packets were originally Telephone contact w i t h 50 o f thi remaining patients yielded ' r eight more returns, f o r a total of 60 useable subjects (21 male and 39 female). These 60 subjects composed Data Set B of the study. (See C ' Appendix A). Test scores, year'of b i r t h , sex, years of education, smoking habits (increase, decrease, no change) and alcohol consumption (increase, Some behaviour decrease, no change) were recorded for each subject. change measures were included i n an attempt to monitor compliance w i t h suggested 1ifestyle changes. Y - - I t was expected that actual behaviour change would correlate w i t h either ckange i n symp€oma€o?o~or wtth .locus of control for health. Smoking habits and alcohol consumption were chosen because pre-test data were available for these variables from a subgroup of the original data pool. i Age, sex and education were chosen as demographic variables because' they tend t o covary w i t h number of symptoms of i l l health on the CMI (.Abramson e t a1 ., 1953) and - w i t h Locus of Control -- con otter, 1966). Originally, - m i les driven per year and seat be1 t use were alsd to be included i n the analyses. However, since no change i n these behaviours over ,the two year period was reported for .the 60 avai 1able subjects, these variables were d'ropped. Outliers were deleted, and the resulting subject pool of 58 was analyzed using a stepwise mu1 tip1 e regression (BPIDP2R). Change score over a two year period was the dependent variable and CMI Time 1 score, - - - - - - -- -- - - - -- - - - iCtC score, HOS score, age, sex, education level, smoking behaviour, and aTcoho7 consua@tiOn as independent variables. This was donekin order to d tennine the best predictor(s) of decrease i n symptoms. For further 5 cormberation, the data were standardized and another regression was run I -- -- - -- using CMI Time 2 score as dependent variable and retaining the same independent variables. In order t o determine the magnitude of the effect, SPSS Subprogram Regression analyses were done on these data i n standard and non-standardized uform, u s i n g CMI change score as dependent variable . >w and two different s e t s o f independent variables. he f i r s t regression used CMI rime 1 score, HLC score, HOS score, age, ex, education level, smoking behaviour and a1coho1 consumption as independent variables. The, seccmd regression used cm'iy CHI Time 1 score as an independenk uarktde, a retaining the same dependent variable. The difference between these two \ R-square values was then taken as a measure of the magnitude of the " effect of the group of independent variables, excluding CMI Time 1 score. I These data were also.'submitted to t-tests between males and females w i t h i n the three t e s t s and the demographic variables. A t - t e s t between CMI Time 1 and CMI Time 2 was done on the 58 subject sample, as well as a t - t e s t between the CMI Time 1 and CMI Time 2 scores for t h i s sample and the 229 member responder group from Data Set A. Titests between groups were used to detennine whether the 58 subjects were representative. A chi-square for sex between this group and the 205 responders w i t h this Results Data Set A The f i r s t step i n the i n v e s t i g a t i o n was analysis o f variance (BMDP2V) between t h e uW) experimental (open f i l e ) and 33 c o n t r o l (drop-out) subjects gained f r o m t h e CMI mailout. S i g n i f i c a n t effects from t h i s analysis were f o r Time o f Administration i n c l u d i n g section H (genitourinary) and Time of Administration excluding s e c t i o n H (see Table 3). fable 3 Analysis o f Variance Between Drop-outs and Open F i l e s CMI i n c l u d i n g section H Time 9.66 1,227 .002 1 &MI excluding s e c t i o ~H Time 9.43 1.227 *. 0024 There was no s i g n i f i c a n t d i f f e r e n c e found between males and females i n t h e number o f "yes" responses, n o r were there s i g n i f i c a n t differences between those who had v i s i t e d t h e PMC o n l y once (drop-outs) and those w f t h continued m t a c t (open fi-te). Further m v e r t i g a t m r r meate&tkt p r e f e r r e d h e a l t h h a b i t s - a t f i r s t contact. Since t h i s comprises a l a r g e p a r t o f t&e prevention aspect o f the Ce~tre'sa c t i v i t i e s , ns real d t f f e r e n c e i n preventive treatment couTd be j u r t i i a % ? y assumed. 6 i n t h a t these c l i e n t s a r e a self-selected group'from t h e outset, a l l o f whom receive a t l e a s t p a r t of the same "treatment",jand given t h a t the analysis of variance between groups was n o t s f g n i f i c a n t , these samples were combined f o r f u r t h e r analyses. - Since both c o n t r o l and experimental subjects were self-selected, it 4 cannot be assumed from these data t h a t t h i s sample i s representative o f Q , t h e population i n general. . Additionally',' the PMC p a t i e n t sample was narrowed f u r t h e r by the, f a i 1ure o f many c l i e n t s t o r e t u r n a compl eted CMI questionnaire. Therefore, t h e 233 responders also cannot be assumed t o represent t h e t o t a l c l i e n t population a t the PMC. However, i f group membership i s n o t r e l a t e d t o o r i g i n a l i n t a k e scores on the CMI, then i t can be suggested t h a t the people f o r whom ah improvement over t i h e has been shown (responders) are from t h e same population as t h e e n t i r e p a t i e n t p o l a t t h e Centre. A logisttc regression (BMDPLR) on 436 of these subjects who had scores o f 85 or l e s s and were n o t missing r e l e v a n t demographics was calculated, A score o f 85 was chosen as a cut-off p o i n t because i t was w e l l above the highest' score reported' i n the 1i t e r a t u r e (Desroches & Larson, 1963) as a representative mean t o t a l f o r - a p a t i e n t population (69.7). It was I decided t h a t 85-plus could be considered extreme i n t h i s case without excluding any r e l e v a n t population. Frequency d i s t r i b u t i o n s o f scores on - - t h e CMI, HOS and HLC a r e provided i n Appendix B. This regression showed t h a t group membership could be predicted by education, age, sex and the age-by-education i n t e r a c t i o n (see Table 4) , but not by CMI Time 1 score: In order t o examine t h e relationship of group membership and CMI Time 1 scores, alone, an SPSS Partial Correlation' of these 'two variables was calculated. education were he1 d constant. Sex, age and No significant correlation was found between original intake CMI score and group membership (r=0.03, p 0.50). Both the l o g i s t i c regression and the partial correlation showed that these groups do not d i f f e r relative t o original scores on the sjmptm check-list. They can, therefore, be considered t o be from t h e s a m population with respect t o the v y i a b l e i n question. Table 4 d < Logistic Regression for Group Membership Term Entered df - Education 1 Log like1 i b d -301.033 Improvement: x2 - 24.756 e step # 1 0 .OOO 5 Age 1 -288.655 1 -278.800 Age x Education 1 -274.160 . Sex + -.'.: ; . \ ---, , h ', The distribution o f sex . w i t h i n groups was examined,, as well, for Data Set A, A chi-square f o r frequency of~malesand .females .showed that -e there was a significant relationship between sex and group membership within t h i s sample (see Table 5 ) . Given that the responder and non-responder groups differed harkedlp on number of males and females, the responder group cannot be assumed t o be t o t a l l y representative of J the type of client who attends the PMC. The 'logi s t i c 'regression also indicates that these groups d i f f e r on a group of demographic variables. However, since group membership cannot be predicted by CMI Time 1 score, responders can be cautiously assumed to be representative on that dimension. Descriptive data are provided for responder and - non-responder grpups i n Table 6. Table 5 , Relationship Between Sex and Group ~embershipb ' Group Umber o f Females Responders 155 on- responders 156 Total Number of Males Tota 1 50 205 311 The CMI was tested for r e l i a b i l i t y within the 467 member group who had been administered the t e s t during the intake interview. separated by group and by sex. As can be seen from able These were 7, for a l l o f the combinations and' groupings tested, re1 i abil i t i e s were above .85. Data Set 6 from a combination of attitudes and other variables, a Stepwise Multiple Regressicm (BWDP2R) nas run, udrtg CHI Change score as depertbt'variable. $5 - - - --- ,. Table 6 * Descriptive S t a t i s t i c s f o r Data Set A Vari ab1 e N Data S e t A : CHI Time 1 Year of B i r t h Education Responders: CMI Time 1 -< CMI Time 2 Year of B i r t h Education * ,7 r 1 Nonresponders : CMI Time 1 Year of B i r t h Educa t i on a Mean age = 41 y e a r s b ~ e a nage = 43 y e a r s %an age = 39 y e a r s Mean SD - L Range Table 7 b R e l i a b i l i t i e s f o r CMI: Data Set A Sex CHI Time (1,2) N~ t r Adjusted r Responder Group: Fema 1e Ma1 e ,-- - Female Pooled Pwled I pooled 114 .94 .96 pooled 348 .93 .95 2 231 .89 .94 1 231 .92' -95 Nonresponder Group: Ma1 e Fema l e Pooled a ~ o m p u t e rwas instructed t o i d e n t i f y sex based on section H (genitourinary) o f the CMI. analysis. x Therefore, a l l 231 responder subjects were included i n the Independent variables were CMI Time 1 score, HOS score, HLC score, sex; 3 year of bi r t h , years of education, smoking habits (increase, decrease, no change) and a1 coho1 consumption (increase, decrease, no change). Best predictor of change in CMI score f r o m intake t o readministration two or more years l a t e r was found t o be original number of symptoms '+ (CMI T i m e 1 score). No other variable included i n the analysis contributed enough v a r i a b i l i t y t o be entered into the equation. Another BMDPZR using standardized input data revealed t h a t the best predictor of CMI Time 2 score was also CMI Time 1 score (see Table 8 ) . Table 8 Stepwi se Mu1 t i ple egression to Predj c t CMI Improvement DV Condition ~ e r mEntered R~ CMI Change CMI Time 1 Non-standard data St. Error F t o enter 0.14 8.74 9.16 b Standard data . CMI Time 2 CMI Time 1 0.58 78.43 0.65 Independent variables were CMI Time 1, WS, HLC, sex, age, education, smoking and alcohol consumption. t i / Aside frm the strorig correlation between CMI Time 1 and CMI Time 2 scores (r=0.76), few other interesting correlations were t o be found. There was a noticeable correlation between age and education within the samp'le (r=0.32), and between smoking increase and a ' l c o h ~ l n t l r e a s e (r=0.38), a1 though these are not particularly strong. & / For t h i s sample, mean Time 1* score was 23.14 and mean Time 2 score was 16.3. It should be noted t h a t these scores are w e l l below thos c i t e d i n the 1i t e r a t u r e as i n d i c a t i v e of psychoneurosi s (Brodman e t 1952; Ryle 8 Hamil ton, 1962) unless accompanied by a congruent diagnosi s by a physician (Pond e t a1 ., 1963). D e s c r i p t i v e data f o r 'a1 1 measures w i t h i n t h i s sample a r e shown i n Table 10. The magnitude o f e f f e a t f o r the independent variables on CMI Change score was examined. Two SPSS Subprogram Regression analyses were used, w i t h CMI Time 2 score as dependent variable. The f i r s t used CMI Time 1 score p l u s a l l previously mentioned a t t i t u d e and demographic variables as. independent variables. A second regression used o n l y CMI Time 1 score as a p r e d i c t o r . (see Table g ). Subtracting these two R~ val w s revealed t h a t whqn t h e e f f e c t o f o r i g i n a l CMI score i s taken i n t o consideration, only approximately 10% of. t h e variance i n f i n a l CMI score combined (3% w i t h adjusted r2). i s contributed by a l l other variables: Table 9 Magnitude o f E-ffect f o r A t t i t u d e and ~emographics* H Condition , C CMI Time 1 + a l l R' Adjusted 'R C M I Time 2 0.672 0.602 8,504 CMITJAIg? Q. !xi3 9.535 8.333 0.089 0.027 DY S t . Error desct-iptors CM1Time lalone Magni tude : * SPSS Subprogram ~e~ression,i/ Table 10 -4 Descriptive i t a d s t i c s f& Datq S,et B 0 .. Variable . E( Krantz HOS 58 Wallston HLC 'Year o i Birth Education d CMI Time 1 CMI Time 2 + CMI Change A1 coho1 Increpse Alcohol Decrease Smoki ng Increase Smoking Decrease - - -- %ean age = 44 years Mean 4.57 SD Range 3.62 0 - 14 A t - t e s t t o ensure t h a t a significant change had occurred over time for t h i s sample was significant. However, no signficant difference was found 'between this iample and the 229 member respdnder group on CMI scores, age, or education level. (see Table 11). here fore, t h i s small sample can be assumed t o represent the larger group from uhieh i t was drawn with respect t o these dimensions, Table 11 , Testing Means f a r Data Set 0: CMI Scores, A* a d Ecksthn - - -t df CMI Time 2 (same group) 5'-57 57 0 .OOO CMI Time 1 (229 responders) 0.28 57 0.50 0.22 57 0.50 0.19 57 0.50 0.09 57 0.50 Variable CMI Time 2 with: CMI Change Score w i t h :, % CMI Chanye (229 responders) Age w i t h : Age (229 responders) Education with: B Education (229 responders) 0.43 -- 2- tai 1 probabil i ty CMI Time 1 with: CMI Time 2 (229 responders) - 0.50 Table 12 T-tests Between M a l f s and Femaled for All Measures: Data Set B - t Variable HOS Score HLC Score - - b ' Age Education CMI Time 1 CHI T i m e 2 CMI Change , Smoking Increase Sm k ing Decrease A1 cohol Increase A1 cohol Decrease df - 2 - t a i 1 probabi 1 i t y - ' This sample was a l s o tested f o r dffferences betwee'n males and females on a l l p a s u r e s . No s i g n i f i c a n t d i f f e r e n c e was found between males and females on any o f the variables measured (see Table 12). A d d i t i o n a l l y , when t h e p r o p o r t i o n of males and females w i t h i n t h i s group and the 229 member respunder group was compared, no r e l a t i o n s h i p was found m e r n b e ~ s h i(see ~ Table 13). between sex and Table 13 Re1a t i o n s h i p Between Sex land Graup ~ e m b e r s h i ~ ~ Group Number o f Females Number o f Males Total Data S e t B Responders ( ~ a t Set l A) * Both the HOS and t h e HLC were tested f o r r e l i a b i l i t y w i t h i n the 58 subject group comprising Data Set B. SPSS Subprogram Re1i a b i 1it y produced alpha l e v e l s o f 0.80 f o r the Krantz HOS, and 0.78 Tor t h e Wal i s t o n HLC. Overall, i t i s apparent t h a t the best p r e d i c t o r o f change f o r t h i s sel f-sel ected c l i e n t population i s number o f presenting symptoms. None o f the otheP variables monitored i n t h i s . study contributed s i g n i f i c a n t l y t o t h a t change. Although equivalent on some measures, the Data Se$ B . f i n d i n g s cannot be generalized t o the l a r g e r (responder) o w e v e r y v a r i a b l e k measured i n the study. small group. r The HLC and IXlS findings should be confined t o t h i s Discussion General Considerations Two o f the o b j e c t i v e s f o r t h i s research were t o provide information about t h e outcome o f a preventive medicine program, and t o answer a more t h e o r e t i c a l question concerning the r e l a t i o n s h i p o f h e a l t h care a t t i t u d e s t o symptom reduction. Perhaps an even mare important i'ssue i n . t h i s study was the attempt t o a c c ~ pi sl h these objectives w i t h i n an - - ongoing program, using non-intrusive k t h o d s . Had t h i s method been successful i n answering t h e questions posed, i t would have l e n t support t o t h e suggestion o f Xackler (1979) and others t h a t evaluators and o t h e r researchers must rever'se the research process. f' That i s , they must f i t i t h e i r questions t o t h e data and s i t u a t i o n at-hand when dealing w i U l ongoing programs. A s i m i l a r p o i n t o i view i s put fo'rward strongTy by program managers, l i n e workers and government funders. This argumen? can be very seductive. I t i s e s p e c i a l l y convincing f o r those areas o f research where thewprimary i n t e n t i.s t o provide i n f q n n a t i o n t h a t w i l l be used by p r a c t i c i n g c l i n i c i a n s i n designing i n t e r v e n t i o n s o r by program planners i n r e s o l v i n g funding issues. - Where these are t h e main reasons f o r doing research r a t h e r than more s c h o l a r l y motives, i t can be d i f f i c u l t t o maintain an o b j e c t i v e view. Somg basic methodological p r i o r i t i e s must be maintained, however, l e s t the research L - - process be rendered useless a t t h e program l e v e l . I n t h e present study, some useful' information was obtained from t h e L - rather long and arduous process that evolved. However, the questions that were ultimately answerable i n this situation are of very- limited interest . The process of doing research under the restrictions imposed by t!is , @ program and the problems encountered along the way, provide a convincing argunent for the traditional order of doing research. ' That i s , ask your questions, t a i l o r a research design to directly address those questions and do not lose sight of your objectives. Some was found that symptoms do decrease over a f a i r l y lengthy time period for those clients who self-refer t o the Vancouver Preventive Medicine Centre. - However, these results cannot be general i zed to the population overall, nor can i t be assumed that the decrease i i due to the treatment received. No relationship was found between symptom decrease and a t t i tudes toward health care, locus of control for health or a number of demographic variables. . For t h i s client group, number o f presenting symptoms was the best predictor of change. Given the limited nature of these results, the discussion will centre on problems encountered, rather than the findings, themselves . The Process As t h i s study progressed, both the sample and the possibilities dtminished. A number o f t h e problems encountered related to t h e setting imposed treatment situation, decisions points arose where choices had t o be made between e x p e r k n t a l r i g o u r and o t h e r considerations. As can be expected i n an actual program s e t t i n g , these decisions were n o t always l e f t up t o t h e researcher. I t was considered o f primary importance i n t h i s s i t u a t i o n t o d i s t u r b t h e s e t t i n g and i t s c l i e n t s as l i t t l e as possible. The choice was t o use o n l y those data already a v a i l a b l e a t the Centre, o r some e a s i l y c o l l e c t a b l e additions. Itwas* 9 also decided t h a t the research be kept t o t a l l y out o f t h e way of t h e physicians and t h e i r c l i e n t s . The advantages o f f e r e d by t h i s s e t t i n g which made t h i s prospect seem worth pursuing, were a l a r g e data base, long term t e s t - r e t e s t opportunity and the p o s s i b i l i t y o f c o l l e c t i n g useable data under these conditions. Non-instrusive data c o l l e c t i o n methods were chosen both t o t e s t t h e methodology and t o comply w i t h the program physicians' requirement t h a t p a t i e n t s not be d i s t u r b e d - o r inconvenienced. consequences which affected t h e r e s u l t s . This had a nunber o f The measures used i n the f i r s t phase o f t h e i n v e s t i g a t i o n were predetermined. From an o r i g i n a l . ( expectation of 4 o r 5 useable measures o f d i f f e r e n t aspects o f t h e program, o n l y one materialized. .research purposes. This measure was n o t a good one f o r The a t t i t u d e measures chosen f o r t h e second aspect o f t h e research were short, and the behavioural measures o f change (smoking and d r i n k i n g ) were n o t as s e n s i t i v e as .one would have liked.' Also, the sample became very narmw due t o a high rate af nmresponseI t would have been too i n t r u s i v e and c o s t l y t o expend more resources i n o b t a i n i n g a more representative sample, a t the Centre. S t a f f turnover and differences among physicians i n record keeping h a b i t s a l s o had an eefect. This r e s u l t e d i n missing t e s t s and demographic i n f o r m a t i o n f o r some c l i e n t s . Another d i f f i c u l t y was the Jack o f c o n t r o l o r No such information had been c b l l e c t e d a t an e a r l y comparison data. stage i n t h e p r w a m t o provide long-term comparison o p p o r t u n i t i e s . An attempt t o make up f o r t h i s lack by using program drop-outs as c o n t r o l s was n o t f r u i t f u l . , Proceeding without a c o n t r o l group and w i t h a d i s a p p o i n t i n g r e t u r n rate, steps were taken t o sajvagq s m degree o f general i z a t i o n f o r t h e eventual r e s u l t s - o f t h e analyses. This involved a l o t o f data c o l l e c t i o n and manipulation on t h e outcome phase o f the study, w i t h r e l a t i v e l y l i t t l e return. I n t h e end, l i t t l e could be said about t h e program. More problems were encountered when the second research questioi! .- was addressed. Again, no c o n t r o l group was available. ;he Athods necessary f o r o b t a i n i n g an even marginal l y comparable4 c o n t r o l group were considered e i t h e r too i n t r u s i v e , too costly, o r i n need o f time c&i $00 long a ttment t o be feasible under e x i s t i n g c o n s t r a i n t s ;,-; The sample narrowed d r a s t i c a l l y , again. This was, i n part, due t o poorGresponse but t h e primary f a c t o r i n t h e shrinkage was that,few p a t i e n t s a t the Pt4C had had behavioural masures taken a t f i r s t contact. t Another l i m i t i n g f a c t o r a t t h i s stage was t h a t a r e l a t i v e l y important p o s t - t e s t measure (Health ~ a z a r d~ ~ p rsal a )i was abandandoned because o f cost. Results o f t h i s phase were eveh l e s s generalizable than those o f . the outcome phase. P Overall, the process was f r u s t r a t i n g from a.research p o i n t o f view. / 57 7 Attempting t o evaluate a program o r .answer a. research question while , having almost no c o n t r o l over t h e data base was, i n t h i s case, a wasteful process. Ruch e f f o r t was expended i n d a s c o l l e c t i o n , analysis and changes o f plan as obstacles arose. were o n l y p a r t i a l l y answered. The o r i g i n a l questions A d d i t i o n a l l y , the n o n g e n e r a l i z a b i l i t y o f r e s u l t s renders them r a t h e r t r i v i a l . On a more p o s i t i v e note, t h i s process d i d o f f e r some useful information. There comes a p o i n t where non-intrusive methods l o s e t h e i r usefulness 'as research tools. This study made t h a t f a c t abundantly clear. Here, t h i s method o f maintaining cooperation and t r u s t between program L managers and the researcher n e i t h e r made the process f l o w more smoothly, nor helped provide more meaningful r e s u l t s . Perhaps t h i s method can be used t o advantage i f t h e researcher has been involved i n the o r i g i n a l program planning stages. A t t h a t time, instruments could be b u i l t i n which would e s t a b l i s h a sound data base f o r l a t e r use. F a i l i n g that, t h e reseacher must have c o n t r o l over the measures introduced l a t e r and 9 1 over the data c o l l e c t i o n process. b I n doing research w i t h i n a ongoing program, a f a l l b a c k p l a n o f a c t i o n should be established from t h e o u t s e t - The researcher should be f r e e t o use t h i s strategy when necessary, as we1 1 , if meaningful r e s u l t s are t o be gained. situations. - process, i t F l e x i b i l i t y i s important i n working w i t h r e a l world However, when changes of plan are made i n the middle o f thg is easy t o lose s i g h t of the o r i g i n a l objectives. A well .thought out a l t e r n a t i v e plan can help avoid t h i s situation'. Another important p o i n t t o come out o f t h i s study i s t h a t while * non-intrusive methods may be used t o advantage, this can become obstructive i f carried t o the point of non-involvement. During this project, the doctors a t the Centre were minimally involved w i t h the research. Aside from t h i s , > t h e researcher was, essentially, c u t off from the program being psearched. Carried t o t h i s degree, ' bun-intrusion becomes non-involvement, and good results are h i g h l y unlikely under these circumstances. The Outcome Phase , This stage of the investigation i n symptomatology for those who become involved with the PMC, However, these results are n o t generalizable nor attributable t o an identified treatment plan. I t must not be assumed t h a t the symptom reduction i s actually due t o the treatment. A placebo effect may besoperating such t h a t symptom reduct ion may simply be due to an expectation of I This i s not likely over such a long period as two years, improvement. although further research i s needed before this possibility can be eliminated. B The time span between testing periods on the CMI also makes i t unlikely that the symptom ddrease i s due to a "savings" on the , Second t e s t o r a general tendency t o improve the second tim a t e s t i s taken. Since this i s not &a& one's a learning situation, b u t rather questions heal tb, there are no correct answers to be learned. Since I QQ &tit w e teeat& mmmti-rrg otfrer gr?rops i n stmftar s-r'tuatTons the re1 w a n t compar-isons were not made. I t i s more likely that t h e decrease is due t o a genera? improvement P i n the population's health and increased warenesf of heam ifstles e w r the p a s t several years. I t i s also quite likely t h a t part of the t decrease i s due t o regression toward the mean, since most norms for the CMf in the general population are slightly lower t h a n the:mean CMI Time 1 score for this client group. In addition t o the lack of control group and missing behaviour change measures, the actual measures available posed s t i l l further problems. The PMC had planned t o collect a number of measures on a l l clients who came for consultation. - These measures were also t o be readministered a t regular intervals throughout; contact with the Centre. Very few of these measures were actually taken in the f i r s t instance, and almost none were readministered. This posed one o f the most important obstructions to assessing the effectiveness of this four-part program of lifestyle change. The measures originally selected had covered a number of areas of living (e.g., eating habits, syrrtptmato'kgy, physiological measures , such as blood constituents, external stressors, smoking habits, seat belt use, e t c . ) . Upon inspection of client f i l e s , i t became apparent t h a t only the CMI could be used to assess changes. Other measures promised to offer useful' information (e.g., seat belt use, smoking and drinking, Health Hazard Appraisal ) , however none of these were useful in the end. The CMI , a1 though available for most patients, posed problems as well. I t was subjxtively designed as a symptom checklist before factor analysis and other sophisticated t e s t design techniques were widely \ has not yet been objectively shown that this t e s t actually measures those 60 .. , asDects o f health that i t s designers expected, nor i s i t s *reliability unquestioned. However, i t does have a certain measure of face validity. I t can, a t l e a s t , be considered a quantitative measure of "number of complaints", and was shown to reliably measure something f o r t h i s sampl e. Another problem for the CHI i s that i t i s cumbersome. Other symptom chec'klists such as the Cmulative Illness Rating Scale (Linn, L i n n , & Gurel , 1968) and the Pbysical Sympto~sInventory (gahler, 1968) a r e shorter and have demonstrated content validity. These would be better measures 'to use i f more work i s to be done in the area. The two year t e s t - r e t e s t opportunity was an important aspect o f the research. Had the opportunity to introduce a different measure presented i t s e l f the CMI would s t i l l have been retained in t h i s study, because i t was assumed that introducing a nw measure would have answered an entirely different question ( a short term e f f e c t ) . I t would 'now be ' useful to begin using other measures a t intake and to compare these with the available CMI d a t a , both a t intake and for change differences over two years. This would not only provide a clearer picture of the a t t i t u d e versus symptom reduction issue, b u t would also investigate the ' validity of the C M I . T h e validity issue i s an important one, here. had been adhinistered by program s t a f f since the 4 less t h a n Because the measures PMC opened i t s doors with clear plan for future evaluation, a control or comparison group was not s e t up. Nor were the measures chosen researched for t h e i r t 61 Both of these f a c t o r s affected the methodological a p p l i c a b i l i t y . eventual g e n e r a l i z a b i l i t y of r e s u l t s . Even i f a1 1 of the original measures had been a v a i l a b l e , i t i s npt c l e a r t h a t these would pipvide useable research d a t a . Further, in the absence of a non-treatment control group of any s o r t , conciusions based on t h e study r e s u l t s are confined t o self-referred us-ers of the PMC. . Attitudes and Symptm Reduction Results of numerous analyses revealed l i t t l e about t h e relationship of symptom decrease over time t o a t t i t u d e change. No relationship was found between a t t i t u d e toward health care or health locus of control and a decrement i n 'symptmatology f o r t h i s sample: T h e o r i g i n a l supposition 1 of t h i s section of the research was t h a t symptom reduction m u l d be s i g n i f i c a n t l y more e v i d e n t f o r those who wanted a c t i ve,.&rticipation in their own care, and/or f e l t t h a t they have control oGr t h e i r own health. This was not the case. Rather, i f patients actualiy come t o the Centre they are l i k e l y to improve t o the degree that they e x h i b i t t h e type of symptoms sampled by the C M I . F u r t h e n c r e , f o r t h i s sgb-sample, iriprovenent i s l i k e l y t o occur regardless o f a t t i t u d e toward personal cesponsibil it y f o r health. However, these r e s u l t s cannot be generalized t o the overall pgpulation. I t i s a l s o questionable whether they can be assumed t o apply t o the t o t a l c l i e n t group from which t h e 58 subject sub-sample was drawn. 1 1 . -, e t h e sub-sample can be considered representative of the Centre's nn; ~ o p t l i a t i o non several variables (CMI score, sex, age, education), i t i s . $ not clear whether attitudes are generalizable. Therefore, canclusions must be confinedeto the very small 58 subject group. I n order to render these results more widely applicable, a randunly selected sample of the PMC's c l i e n t s could be administered t h e a t t i tude measures for comparison with these data. These measures., a l o n g w i t h demographic d a t a would . i n d i c a t e whether the present small sample was * comparable- I t 5 s interesting t o note t h a t the mean score on the MIS ( 4 . 5 7 ) i s well below n o m s established i n a college population (see T a b f ~1 ) . This g r o u p also scored more externally !50.45) than d s d those subjects used to e s t a b l i ' s h norms for t h e HLC. ( s e e Table 2 ) . Since these subjects demonstrated t h e i r cooperativeness by returning the two sets of questionnaires, and since they also seem less self-directed than the norfi i n health matters, they may represent a specjal ("cooperativeii?j p~pulationsubgroup. Given thdat l i t t l e otner information o f interest has been obtained f r o m t h i s study, and PMC s t a f f was not prepared to a s s i s t w i t h d a t a col iection or t o have the n o w I rout?ne nQt pursue'd. dl s r u p t e d , f u r t n e r avenues were In the process of doing research i n such a situation, there comes a point where further attempts would yield l i t t l e useful information, relative t o the' costs involved. I n t h i s case, the relationship of attitudes to symptom reduction could be investigated elsewhere in a much more rigorous manner, without: intruding further on t h i s s e t t i n g . Sugqestions for Further Research Since most normative data for the HOS and the HLC were gathered from so7 fege samples, i t would be i n t e r e s t i n g to i n v e s t i g a t e t h e relationship between these measures and symptom reduction in s i m i l a r samples. , Information i s a l s o needed on the relationship between personality type and spptom decrease, a n d on personal i ty , a t t i t u d e s and decrement i n s p ~ p t m t d o g y . Intuitively, i t seems t h a t some relationship would e x i s t , but i t is not c l e a r what t h a t relationship m'ight be. I n identifying t h e a t t i tude/symptorn.. relationship, preferences for a particular type o f treatment might' be measured by comparing the subsections of the Krantz H e a l t h Opinion Survey w i t h symptom decrease. These subsections discriminate between those c l i e n t s who prefer active involvement and those who prefer infomation. ' However, i n t h i s study / a i I o f the atti'tade, control and demographic variables together accounted f o r i.3: or l e s s o f the variance in C M I scores. Thus, i t was .icr wssi3:e tc- :rtvestisate t h i s retationship in tt7.i~study, but. i t does sugsest ar area where furtner research may be useful. I t should be noted t h a t the a t t i t u d e and personality measures were taken a t t h e second CVI adminis~ratiofi,z f t e r t h e treztnent had idng been underway. I t could, in f a c t , be considered complete in many cases. h d i f f e r e n t relationship might be found i f a t t i t u d e measures were administered a t i n t a k e . Further information of value may be found i f changes i n - b o t r a t t i t u d e s and symptom number were compared over time. f Another area of inteFest would be whether the P M and other such programs of.prevention a r e more e f f e c t i v e f o r p a r t i c u l a r c l i e n t subgroups such as depende& p e r s o n a l i t i e s , various psychological disturbances, smokers, the aged and others. Private preventive programs could then be monitored t o determine i f some aspects are more effective t h a n others ( i e . education, improved nutrition, decreased s t r e s s o r s ) , and f o r nhom these separate components are most effective. Finally, i t wou1 d be most useful t o know whether the people who receive t h i s type of counselling actually p u t the recornended l i f e s t y l e changes i n t o effect. Furthermore, i f they do, does t h i s result in symptom reduction? I t m y be that information alone would provide a reduction i n s t r e s s or affect the c l i e n t in some other way t h a t results i n decreased symptms, whether or not the physician's advice i s actually implemented. , An a t t e m p t was made during t h i s study t o answer t h i s question.,However, the available behaviour change measures were neither sensitive nor , broadly based enough to o b t a i n answers. I n sumnary, there were numerous problems encountered i n this research endeavour. Some interesting and useful information was gained. h e w r , the most useful knowledge acquired during t h i s study was not r e l a t e d to the actual research questions. T h a t aspect of the research was judged t o have contributed less really conclusive evidence thav the amount o f e f f o r t warranted. The primary gain from t h i s study was the support i t lends t o the need, to maintain ri'gorous research methodology i n doing program related research. I t is no use trying to force a match bet;.;een r i g i d exper',wntal rigour and sloppy r e a l i t y . However, i t is important t o adhere to s o w basic methodological guidelines. The I suggestion o f Hackler (1969j and others t h a t programers and researchers must allow f o r one another's needs i s we?? taken. However, i t must riot - Qfj. be forgotten t h a t this a1 lowance must work both ways. I f metbdology i s stretched too far i n an e f f o r t t o accomnodate c l i n i c a l reality, n e i t h e r the c1 i n i c i a n nor the research comnuni t y will benefit. 66 - Appendix A Figure 1 : D e t a i l s of Sample Shrinkage f o r Data Set A and Data S e t 0 .............. : Mailout o f : ;:; r; I ; r . ~3 = ~ ~ ~ .............. ............ ......... :Non-returns: :............ N=496 :.Returns .......... ....................... :Experimental s: :Controls: : Iq=m . . . .:. :- .R.=.3.5 . . .:. .: : I . . ..... . E . . ............ :Used i n later: :Data Set 8: . . . . . A . .analyses r recorded . * t * ii=205 . t t * . **.-**- . . . . . . .1. . . . Age : recorded . :. . . N=203 ...*..... : . ..N=126 .............. . . . . . . . .f . . . . . 1 :Responders :. R=60 ........... 'f * * * = * - * * * * . * * * * * * * :Used i n Analysis :17=58 "Non-responders" id :Data Set A . 7 : w i t h sex & :education :Hz44 1 . . . . . . . . . . . . a . :Data Set A : ' w i t h age :N=439 : * ................... : ;. . . N=236 ................ . ... .:::r:::::,; ..a. :Data Set A : :with outliers: :and m i s s i n g : :data Ss ................ : D a t a Set B 'Sent A t t i t u d e Measures Randlatly selected: . . . . . . I . . . . . . :Sex & Education: : -. . :. ~=465........... (a1 1 Ss) :. N=229 . " . .]" . . . . . . ................ \ * -. . . . . . .1. . . . . . . . . .4. . :d e l e t e d :. . N=436 ............. Table A Proportion o f Sample ~ S a s e Data : Set A H- Condi t ion Ss - r e c e i v i n g CMI a t i n t a k e . Dropped out a f t e r f i r s t Return Rate ( X ) %of729 729 32.0 (233 100.0 5s) I 153 20.9 N/ A 576 79.0 N/ A 33 4.5 21.5 ( o f 153) "Open-fi l e s " returns (experimentals) 200 27.4 34.7 ( o f 576) T o t a l non-responders t o 2nd CHI N/A visit 2 o r more v i s i t s Drop-out returns ( c o n t r o l s-phase 1) 496 68.0 \ Non-responder group (subsampl e ) 236 32.4 -47.6 ( o f 496) Responder g r o u p with d e l e t i o n s 229 31.4 31 - 4 (of 729) 9 I 465 Data.. Set A 6 3 . 8 ( o f 729) 63.8 . Table 8 Proportion o f Sample Decrease: Data Set Condition N Sswithsmokinqrecarded(Time - % of 729 B % o f 233 % o f 126 126 17.3 54.0 lIIfJ-40 Unprompted returns 52 . 7.2 22.3 41.30 returns 60 8.2 25.8 47.60 58' 8.0 24.9 46.30 Total ' 1) * i U s a b l e records e- - Appendix B Table C Frequencies for CMf Scores: Data Set A w* - Score Hunber o f Ss CMI Tim 2 t Score Nunber o f Ss 60-69 0 70- 79 1 80-89 0 90-99 0 100- 109 1 v f 110-119 110- 119 P 120- 129 120- 129 1 - Total Total 229 Table D J Frequencies.for C M I Scores. Data Set B CMI Time 2 CHI Time 1 Score Number of Ss Score 1-05 0-04 6- 10 5- 09 11-15 10- 14 16-20 115- 19 21-25 20-24 26- 30 25-29 31-35 30- 34 36-40 35- 39 41-45 40-44 46-50 45-49 51-55 50- 54 56-60 55- 59 Tota 1 60-64 65-59 70- 74 Total Nllmber of Ss . CMI ~ h d n s e Score itumber o f Ss Table f E Frequencies for H t C and HOS Scores: Data Set B b HLC Scores HOS Scores Score Number o f Ss Score 26-30 1 0 .Total 58 I Nunber o f Ss 6 71 i References h Abramson, J . 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