FA L L 2013 ISSUE PHOENIX CHILDREN’S HOSPITAL CELEBRATES 30 YEARS S T O R I E S O F I N S P I R AT I O N , C O M PA S S I O N & WORLD-CLASS CARE CELIA - 5 BIRTHDAYS 13232-01d-Book.indd 1 8/16/13 2:30 PM P H O E N I X C H I L D R E N ’ S H O S P I TA L FO U N D AT I O N EDITORIAL HOPES&DREAMS Hopes and Dreams is published by the Phoenix Children’s Hospital Foundation. To share your comments call (602) 933-2668 or email [email protected]. BOARD MEMBERS Phoenix Children’s Hospital Foundation Board Members Chairman – Brian Swartz, Apollo Group, Inc. Vice Chairman - Scott Rehorn, RED Development SENIOR VICE PRESIDENT AND CHIEF DEVELOPMENT OFFICER: Steven S. Schnall Immediate Past Chairman - Larry Clemmensen, Community Volunteer EDITOR: Cheriese Chambers PCH Senior Vice President, Chief Development Officer - Steven S. Schnall PHOTOGRAPHY: Troy Aossey Photography Taylor Burke, Rainy Partners Board Secretary - Sheila Zuieback, Halle Family Foundation PCH President and CEO – Robert L. Meyer Richard Kuhle, Vestar Development Company DESIGN: Anderson Advertising & Public Relations, anderson-adv.com Greg Kruzel, Braun Siler Kruzel PC Mark Love, LKL Partners Manny Molina, Molina Media Group PRINTING: OneTouchPoint – CCI Jonathan Pinkus, Arizona Nutritional Supplements Frank Placenti, Squire, Sanders & Dempsey David A. Ralston, Bank of Arizona David Watson, Revolution Tea Director Emeritus - Herbert J. Louis, M.D. TA B L E O F C O N T E N T S Page 3 Phoenix Children’s Hospital - Our History and Future Page 6 A wish from Steve Schnall Celebrating the Birthdays of 30 Patients Page 7 Jeremy, Nathan & Patrick Page 8 Ethan & Erin Page 9 Maggie & Nathan Page 10 Emma & Amanda Page 11 Sebastian & Ethan Page 12 Kade & Mia Page 13 Jayson & Liam Page 14 Maya & Kyle Page 15 Brian & Cora Page 16 Jake & Jazzy Page 17 Emmett & Zachary Page 18 Aiden & Dana Page 19 Nathaniel & Joel Page 20 Avery & Deanna Page 21 Mackenzie & Hayley Page 22 A Community that Cares Page 26 Join the Party HOPES & 13232-01d-Book.indd 2 DREAMS P2 MORGAN 9 BIRTHDAYS 8/16/13 2:31 PM LOOKING BACK LOOKING AHEAD PHOENIX CHILDREN’S HOSPITAL COMMEMORATES 30 YEARS September 18, 1983 marks the day that the efforts of so many practicing pediatricians in the Valley came to fruition, and Phoenix Children’s Hospital became a reality. For five long years, the doctors – along with other influential community members – had studied, planned, and spearheaded the charge to open a dedicated children’s hospital in Arizona. The current size, breadth, and scope of our institution are astonishing when considered against the history of our humble beginnings. Today we are one of the ten largest children’s hospitals in the country. More importantly, we are among the most respected, with many of our clinical programs ranked as the best in the nation by U.S. News and World Report. 1983 We have transitioned from a community children’s hospital to a full-fledged regional and national powerhouse in the field of pediatrics with more than 70 subspecialties offered. We are now home to six topnotch Centers of Excellence, including Arizona’s only Level 1 Pediatric Trauma Center, a renowned Children’s Heart Center and our world-class Barrow Neurological Institute at Phoenix Children’s Hospital. Over the past three decades, we’ve transformed from a clinically-focused children’s hospital to a pediatric medical center with a laser-like focus on building research infrastructure, recruiting leading physician-scientists, and forging important research collaborations with partners of note from across the country. 2002 The current size, breadth, and scope of our institution are astonishing when considered against the history of our humble beginnings. 2011 P3 13232-01d-Book.indd 3 HOPES & DREAMS 8/16/13 2:31 PM LOOKING BACK LOOKING AHEAD Below are photos of children who were our “firsts”—the initial patients treated by our various departments or to undergo a lifesaving procedure. Like pediatric medicine in general, we have grown enormously in skill and sophistication since we opened our doors three decades ago: • In 1983, the world’s first successful pediatric heart transplant was still a year away. Thirty years later, the Phoenix Children’s Heart Center is averaging one heart transplant per month. • In the early 1980s, nearly 40 percent of kids diagnosed with the most common type of pediatric cancer, acute lymphoblastic leukemia (ALL) would not live five years past diagnosis. Today, nearly 90 percent of those treated for ALL at our Center for Cancer and Blood Disorders will be cured. • Two years ago we joined forces with the Mayo Clinic to institute a formal pediatric liver transplant program at the Hospital. One year later we performed the Valley’s first liver transplant in more than two decades—and its first living donor liver transplant ever. Jesus, heart transplant in 2011 • In 1983, if babies even survived a severe lack of oxygen at birth, they would typically suffer from cerebral palsy, lifelong seizures, and an array of other neurological conditions. The cooling therapy offered in our Neuro-NICU has dramatically changed that. The overwhelming majority of the more than 165 babies treated with the therapy have had near normal outcomes. • In the early 1980s, a diagnosis of HIV/AIDS was essentially a death sentence. Today, the Bill Holt Pediatric HIV Clinic is treating more than 60 children infected with the virus who can expect to live a nearly normal life span. • Before 2003, and the creation of our Ottosen Family Blood and Marrow Transplant Program, patients would need to travel to Tucson (or out of state) to receive a transplant. Now we perform more than 30 each year with one of the highest survival rates in the nation. Daniell, liver transplant in 2012 Macie, cooling therapy in 2009 HOPES & 13232-01d-Book.indd 4 DREAMS Ashley, bone marrow transplant in 2006 P4 8/16/13 2:31 PM We have bold ambitions for our future—and for the future of pediatric medicine locally, regionally, nationally, and even on an international scale. The ultimate objective is to find cures for a host of devastating childhood illnesses. In 2012, we launched the Ronald A. Matricaria Institute of Molecular Medicine. Joining forces with the University of Arizona College of Medicine-Phoenix, and the Translational Genomics Research Institute— and led by two distinguished scientists formerly from Johns Hopkins and USC/Children’s Hospital Los Angeles—the Hospital’s clinical researchers will use the genomic information of patients to develop highly individualized drug therapies for children with cancer. But the ultimate objective is to find cures for a host of devastating childhood illnesses like cancer, type 1 diabetes and more. We plan to further bolster our research infrastructure with investments in people, partnerships, and technologies. We strive to become even more of a magnet for young doctors-in-training through a Ronald A. Matricaria Institute of Molecular Medicine announcement wider array of medical education programs and collaborations—helping our region’s medical schools develop a corps of exceptional medical professionals who will remain in the region for the duration of their professional careers. We have substantial plans to broaden and expand our patient care offerings, and continually make good on the core mission that has motivated and sustained us for the past three decades: to offer hope, healing, and the very best pediatric healthcare available anywhere. Period. So in honor of our 30th birthday we applaud the heroic efforts of our staff and our patient success stories. We celebrate 30 years of additional birthday parties, days at the beach, picnics, school recitals, proms and graduations. We commemorate 30 years of special moments, both big and small. We observe a history of achievements, breakthroughs, and numerous lives saved. P5 13232-01d-Book.indd 5 HOPES & DREAMS 8/16/13 2:31 PM A WISH FROM STEVE SCHNALL Dear Friends: Birthdays are one of the most anticipated days of the year. For a child, it’s a day of fanfare with family and friends that is all about them. Time seems to pass more quickly as we grow older, and our own birthdays pose less significance. For parents, the joy of commemorating another year shifts to our children. As my kids (below) have blown out the candles on their cakes, I’ve made many wishes of my own. Most of all, I wish them happiness and health. I hope they discover, question, contribute and feel empathy towards others. I want them to have the confidence to pursue their dreams and find contentment in the choices they make. I’m not alone. These are the things most of us wish for our children. Phoenix Children’s Hospital turns 30 this year, and I’m honored to serve an organization that has given more birthdays to our patients, and offered their parents hope that what they desire for their children can be realized. In this issue of Hopes and Dreams we celebrate the birthdays that have been reached, and the wishes granted. For some, the care our patients received saved their lives. Others, we gave quality of life. Many have chronic diseases that impact their lives in ways most of us will never understand. Here, bonds have been shared and friendships forged that will last a lifetime. A handful of them were impacted so strongly by their stay at Phoenix Children’s that it changed the course of their career paths. But these 30 patients who have celebrated a total of 348 birthdays all have one thing in common: A hospital where everything we do, and every decision we make, is decidedly focused on giving them a brighter future. I hope that you’ll celebrate this milestone year with us, and join Phoenix Children’s in our resolve to make even more birthday wishes come true for our patients and families. Sincerely, STEVE SCHNALL SENIOR VICE PRESIDENT & CHIEF DEVELOPMENT OFFICER HOPES & 13232-01d-Book.indd 6 DREAMS P6 8/19/13 1:12 PM JEREMY NATHAN & PATRICK JEREMY 30 Birthdays Jeremy was transferred to Phoenix Children’s Hospital at just 4 months old after suffering severe congestive heart failure. He was one of the Hospital’s very first patients. Diagnosed with a single ventricle and transposition of the greater arteries, Jeremy was essentially born with half of a heart. At the time, this heart defect was nearly always fatal, and it continues to be one of the most challenging forms of congenital heart disease to treat. Jeremy has undergone five open heart surgeries to reconfigure his heart. He still sees his Phoenix Children’s cardiologist, Dr. Roy Jedeikin, every six months. Beating the odds, Jeremy says, “I owe my life to Phoenix Children’s.” NATHAN & PATRICK 5 Birthdays each Nathan and Patrick were born conjoined from the chest to the hip. Five months after their birth they were separated at Phoenix Children’s during a complex 18-hour surgery that included more than 20 doctors and nurses. Since then, the boys have had additional surgeries, but are happy and healthy. According to their mom, Dana, the two have an incredible bond. “It doesn’t surprise me. For the first few months of their lives they were connected not just physically, but emotionally,” she says. “Our wish for them is that they have the same strength and determination they’ve had since they were born, and to realize they are two very special people who can overcome anything together - and on their own.” P7 13232-01d-Book.indd 7 HOPES & DREAMS 8/16/13 2:31 PM ETHAN & ERIN ETHAN 16 Birthdays Two years ago Ethan left to spend the night at a friend’s house. His mom, Kristine, got a call from a police officer less than an hour later saying there had been an accident. Ethan’s friend, not knowing a gun was loaded, had shot Ethan in the upper left pelvic area. The blast severed Ethan’s femoral artery. He lost so much blood at the scene that by the time he arrived at the Hospital’s Level 1 Pediatric Trauma Center he had virtually no blood flow left in his body. Ethan’s parents rushed in to find their son surrounded by a team of surgeons. “We didn’t know if he was going to make it. As a parent it was horrible to see that and not be able to help your son. You’re so helpless,” recalls Kristine. Surgeons operated through the night, first to save Ethan’s life – then to save his leg. They did both. “It really is a miracle what they did. Ethan would not have lived if it had been a different hospital. We’re lucky that we have a miracle story.” ERIN 19 Birthdays Born premature, Erin spent the first six weeks of her life in the Phoenix Children’s Hospital Newborn Intensive Care Unit. Little did her parents know that four short years later she’d be back with a much more alarming diagnosis; a brain tumor. Doctors were able to surgically remove the tumor, but she spent months at Phoenix Children’s learning to walk and talk again. Erin is now a volunteer at the Hospital and hopes to someday return in a different role - as a nurse. “Phoenix Children’s is so important to me because it’s been a part of my life for so long. They gave me a second chance and helped me become the person I am today.” HOPES & 13232-01d-Book.indd 8 DREAMS P8 8/16/13 2:31 PM MAGGIE & NATHAN MAGGIE 4 Birthdays Maggie was the seventeenth newborn to be treated with cooling therapy at Phoenix Children’s. “If it didn’t save Maggie’s life, it certainly gave her a life she wouldn’t have had without it,” explains her mom, Kristin. Maggie was airlifted to the Hospital after suffering a severe lack of oxygen following her birth, and underwent the therapy for 72 hours. It was long enough to halt the cascading effect of brain damage that can occur without oxygen – a situation that can be fatal or result in cerebral palsy, lifelong seizures and other neurological issues. Like the overwhelming majority of children treated in our Neuro-NICU, Maggie made a full recovery. “I can’t imagine if she hadn’t had access to this technology. There’s no doubt in my mind that Phoenix Children’s Hospital gave our daughter quality of life.” NATHAN 8 Birthdays “Cystic Fibrosis is a disease with no mercy,” says Nathan’s mom, Lesli. She knows all too well. Her son was diagnosed with the disease at just 10 weeks old. The chronic disease clogs the lungs and can lead to life-threatening infections. It can also render the body unable to break down and absorb food. Today, approximately 220 children and 150 adults are cared for at our Cystic Fibrosis Clinic at the “High Five Hospital” – what Nathan has called Phoenix Children’s since he was a small child and could see the hand in heart logo from the freeway. Nathan has recurring medical issues and for five years couldn’t eat food, receiving all of his nutrition through a feeding tube. But the disease hasn’t slowed Nathan down or hampered his zest for life. He says his greatest accomplishments are being a friend to others and making people laugh. P9 13232-01d-Book.indd 9 HOPES & DREAMS 8/16/13 2:31 PM EMMA & AMANDA EMMA 1 Birthday Emma was born with several birth defects; cloacal exstrophy, spina bifida aculta, a clubbed foot and short gut syndrome. “We had the best team of surgeons a person could ask for,” says her mom Jacque. Emma is still followed by an entire team of specialists – all under one roof. “Our little girl is a fighter and we know in our hearts that she will continue to defy the odds and amaze all of her doctors and surgeons. With the team we have anything is possible!” AMANDA 23 Birthdays “Having a team of specialists on hand was especially important in Amanda’s situation. There was so much going on all at the same time that made her situation very critical. We understand how truly amazing and skilled the Phoenix Children’s doctors are, and know that’s why Amanda is still with us today,” says Amanda’s mom, Julie. Amanda was 16 when she became violently ill. Diagnosed with the extremely rare Lemierre’s syndrome, an emergency surgery at Phoenix Children’s saved her life. She had six surgeries in five weeks and spent nearly two months recovering at the Hospital, with more than 50 people involved in her care. The experience changed her life in many ways, including the career path she would eventually take. Amanda earned her BSN and is now a registered nurse at Phoenix Children’s. HOPES & 13232-01d-Book.indd 10 DREAMS P10 8/16/13 2:31 PM SEBASTIAN & ETHAN SEBASTIAN 7 Birthdays Sebastian was born weighing only 2 pounds, 5 ounces. He was also born with Prader-Willi Syndrome, a rare genetic disorder. Sebastian spent the first five months of his life at the Hospital. When he did finally go home it was with a ventilator, feeding tubes, oxygen tank, suction machine and apnea monitor. The family spent the next five years making multiple trips each month to the Hospital from Surprise. But the 40-mile drive was worth it. “I don’t know of any other place that makes sure the patient is taken care of so well, not just while you’re in the hospital, but once you take your child home,” says his mom, Cindy. Today she calls her son a walking miracle. “If you don’t think you’ve ever seen a miracle just stop by Phoenix Children’s.” ETHAN 6 Birthdays Four years ago Ethan’s mom said, “We just got placed on the kidney transplant list. My hope for Ethan’s future is for him to have a kidney and be even more of a boy than he is now.” Wish granted. Four months later Ethan underwent a successful kidney transplant at Phoenix Children’s. The donor was his grandma. Ethan was diagnosed at 6 months with a genetic disorder that makes the kidneys unable to filter protein. Prior to his transplant, Ethan underwent eight surgeries – including two to remove his kidneys. He spent years on dialysis, and months at a time at the Hospital. “It’s so amazing to watch our son grow along with a great hospital like Phoenix Children’s. Our family has seen so many wonderful stories come from this Hospital and we’re honored to be one of them.” P11 13232-01d-Book.indd 11 HOPES & DREAMS 8/16/13 2:31 PM KADE & MIA KADE 6 Birthdays Kade was age 2 when his mom, Brooke, brought him to Phoenix Children’s for a second opinion. The medications her son had been prescribed to control his epileptic seizures weren’t working. He was still having up to 100 each day. Kade was evaluated in our Pediatric Epilepsy Monitoring Unit so doctors could determine where the seizures were originating, what type they were, and whether medication or surgery was the best option. Doctors at Phoenix Children’s put Kade on a new combination and dosage of medications. He hasn’t had a seizure since and went off all of his medications one year ago. “Kade actually loved going to the hospital. He loved the pet therapy dogs, and the child life specialists would bring him games, puzzles and coloring books. The nurses and physicians thought outside of the box and really provided personal care,” says Brooke. “Every birthday is a special celebration for Kade as we look back to where he was, and how far he has come because of Phoenix Children’s Hospital. I will always be grateful for the excellent care he received. It’s been life changing.” MIA 16 Birthdays A fun day on the lake quickly turned to horror five years ago. The float tube inside the family’s boat caught wind and soared out of the boat, with the slack of the rope tangled around Mia’s right foot. The force of it not only pulled Mia into the water, it virtually severed her foot from her leg, leaving it attached only by a few tendons. Airlifted to the Hospital’s Trauma Center, Dr. Jozef Zoldos and Dr. Greg White operated on Mia for eight hours that first night to reattach her foot. A series of four more surgeries were performed over the next 12 days to reconstruct the nerves and transfer ligaments and veins from her left leg to her right. “It’s impossible to put into words how much we love and appreciate everyone at Phoenix Children’s for not only saving Mia’s foot, but providing the entire family with safety, security and a sense of peace that we all so desperately needed,” says her mom, Angela. “My wish for Mia is that as each year passes she grows more and more proud of the physical scars that are left behind. Instead of them being a bad memory, I hope they become a constant reminder of what a strong young lady she truly is.” HOPES & 13232-01d-Book.indd 12 DREAMS P12 8/16/13 2:31 PM JAYSON & LIAM JAYSON 6 Birthdays Jayson was just 2 when his grandma found him face down in the bottom of her swimming pool. The two had been playing with the dog in the backyard when Stephanie got distracted for just a moment. A moment was all it took. When she pulled him out he was unconscious. Lifeless. She and a neighbor performed CPR before he was brought to the Phoenix Children’s Hospital Emergency Department. “I don’t know why we were one of the lucky ones,” she says now. Jayson made a full recovery and Stephanie is now an advocate for water safety. She says the day they were released from the Hospital the nurse wheeling Jayson out told Stephanie that she couldn’t wait to see what Jayson grows up to be, because it’s going to be something really special. We couldn’t agree more. LIAM 9 Birthdays Liam was diagnosed with acute lymphoblastic leukemia when he was 7, and is now in remission. “The care we have received from Phoenix Children’s has been extraordinary. All the doctors and nurses have been more than compassionate. They value our opinions and trust our instincts. They just don’t treat, they care. They laugh with us and cry with us,” says his mom, Michelle. “We wish for more birthdays to come than have passed, and to have them be healthier and happier than any ever before.” P13 13232-01d-Book.indd 13 HOPES & DREAMS 8/16/13 2:31 PM MAYA & KYLE MAYA 6 Birthdays Maya was diagnosed at age 3 with skeletal dysplasia, a condition that is associated with abnormalities in the size and shape of arms, legs, trunk and skull. She’s had a series of surgeries at Phoenix Children’s that enable Maya to walk and ensure that she’ll have a better quality of life in the future. “If she hadn’t had these surgeries she’d be wheelchair bound,” says her mom, Elizabeth. Maya is now in first grade and can do almost everything her classmates can. “She’s actually learning to jump rope in P.E.! We are so grateful for Phoenix Children’s Hospital.” KYLE 3 Birthdays Kyle was born at just 26 weeks at a hospital in Chicago. During his stay in the Newborn Intensive Care Unit he developed necrotizing enterocolitis, a condition where the lining of the intestinal wall dies and the tissue falls off. Following seven surgeries in Chicago, the family moved to Phoenix. Kenneth, Kyle’s 5-year-old brother also has cerebral palsy. Knowing they would both need continued care, and that Kyle would eventually require a kidney transplant, their mom says that finding the right medical home for her sons was challenging. “Phoenix Children’s Hospital was the fourth facility we tried, and it’s been amazing to say the least,” says Kyla. “Dr. [Mark] Joseph is so good with Kyle. I’ve never seen a doctor get along so well with children.” HOPES & 13232-01d-Book.indd 14 DREAMS P14 8/16/13 2:31 PM BRIAN & CORA BRIAN 28 Birthdays Brian’s left arm was severed completely from his body when he was hit by a truck in a parking lot at age 7. He was airlifted to Phoenix Children’s Hospital where surgeons performed a complex 10-hour surgery to reattach it. “Although my accident was tragic, being at Phoenix Children’s put everything in perspective. At the end of the day, I’m alive, healthy and still have my arm,” says Brian, who founded the Foundation’s Patient and Family Alumni Leadership (PALs) program. He underwent a total of 21 surgeries and extensive physical therapy to regain use of his arm, and received follow-up care for the next six years. “I got to know many other children while I was there who had conditions that were terminal. Their smiling faces and attitudes made me realize how lucky I really was. These people had a larger impact on my life than the accident did.” CORA 5 Birthdays It’s fitting that Cora returned home on Valentine’s Day following her heart transplant at age 4. The transplant was a last resort, following years of surgeries and months of hospital stays to correct the serious heart defect that doctors found just hours after Cora’s birth. “It’s a huge deal. You want your daughter to get better, but somebody loses a child for your daughter to get better, so you have guilt. We never wished for a new heart. We wished and prayed that she would get better, but she just kept getting sicker and sicker,” explains her dad, Dana. Healthy and now keeping up with her big brother, Cora is home for good. And today, her parents’ wishes can be firmly focused on the future. “Our wish for Cora is that she will succeed at whatever she wants to do in life.” P15 13232-01d-Book.indd 15 HOPES & DREAMS 8/19/13 10:37 AM JAKE & JAZZY JAKE 9 Birthdays “Type 1 diabetes is one of those diseases you’ve heard of, but you don’t realize the impact that it has on a child’s life until your own child is diagnosed with it,” says Jake’s mom, Brandi. Jake learned he had the disease when he was just 4. Now insulin-dependent, Jake checks his blood sugar levels several times each day and counts his carbohydrates before he eats or drinks anything. The goal is to keep his blood sugar level as close to normal as possible. Low blood sugar can cause seizures. High blood sugar can cause long-term damage to organs. Jake is now on an insulin pump, which freed him from the several insulin shots he once needed each day. But it hasn’t freed him of the 24/7 management of the disease. Brandi says endocrinologists at Phoenix Children’s have helped them keep Jake’s blood sugar under control, and her son attended a weeklong camp for patients with Type 1 this summer. “Even eating a piece of birthday cake requires some serious forethought now. You grow accustomed to it, but you never stop holding out hope for a cure someday. That’s what we always wish for when we blow out our birthday candles.” JAZZY 16 Birthdays Jazzy had always been a dancer. So at age 12 when her leg began hurting she thought it was just a knee injury. Instead, it was bone cancer. Unlike younger children who are diagnosed with cancer and unfamiliar with the word and what it means, Jazzy was old enough to know how this was going to affect her life. “I asked if I was going to die. You see it on TV and how it looks and what people go through. It was terrifying,” she says. Jazzy would need chemotherapy, along with surgery to remove her tibia and replace it with a steel rod. Last year doctors removed two cancerous tumors from Jazzy’s right lung. “My journey with cancer is nowhere near over, but my faith will not be shaken. It has changed me as a person and showed me that life can change in an instant. But it’s made me stronger than I was before.” HOPES & 13232-01d-Book.indd 16 DREAMS P16 8/16/13 2:31 PM EMMETT & ZACHARY EMMETT 3 Birthdays It was supposed to be a celebration of Emmett’s first birthday, but something was wrong. Karla and Michael’s son was lethargic, coughing up mucus, wouldn’t eat and couldn’t sleep. Little did they know he had swallowed a small battery that had fallen out of the back of their TV’s remote control. For days it had been stuck in Emmett’s throat, burning a hole in his esophagus. Since then, little Emmett has undergone several reconstructive surgeries, a complete replacement of his esophagus, and has spent nearly a year in the Hospital’s Pediatric Intensive Care Unit. Emmett has chronic lung damage and is on a feeding tube and trach tube for breathing. But his family is just grateful that he survived. “There were times when we weren’t sure he’d make it. I can’t express how much we love this Hospital and everything they have done for Emmett and our entire family,” says Karla. ZACHARY 19 Birthdays Zachary was misdiagnosed until age 14 when Dr. Rupali Drewek, director of the Sleep Clinic at Phoenix Children’s, heard of his case. Zachary’s mom, Dennise, had known since elementary school that something wasn’t quite right. Zachary would fall asleep in class or on the bathroom floor. There were even times he wouldn’t come home from school and she would find him asleep in the bushes along his route home. And when he did sleep, it was so deep she couldn’t wake him. Zachary has narcolepsy, but had been diagnosed with everything from attention deficit hyperactivity disorder to restless leg syndrome. They’d been to several different hospitals, and tried various medications that never seemed to help. Thanks to Dr. Drewek they got a definitive diagnosis, and a treatment that is working. “Because of Dr. Drewek, Zac has now been given a true opportunity to lead a fulfilling life. His doors are wide open and it’s so empowering,” says Dennise. “The new Phoenix Children’s tower is beautiful. But it’s not about the building, it’s about the people inside. Great things happen there.” P17 13232-01d-Book.indd 17 HOPES & DREAMS 8/16/13 2:31 PM AIDEN & DANA AIDEN 9 Birthdays Aiden plays basketball, swims, and last year at heart camp climbed the rock wall all the way to the top – one of his proudest moments. These are all things his mom, Jennifer, worried he wouldn’t be able to do when she learned during her pregnancy that Aiden had tricuspid atresia. He was missing the valve that controls blood flow from the right atrium to the right ventricle. Aiden had his first surgery at Phoenix Children’s at 6 months, and more at ages 2, 3 and 9. “Many times I look at him with amazement because he will never know all that he’s gone through. But I do, and I’m so proud,” says his mom, who considers her family Phoenix Children’s “alumni” now. “We know how strong we are now, and we don’t sweat the small stuff because you never know what the future holds.” DANA 16 Birthdays When Dr. David Notrica, surgeon and trauma medical director, came out of surgery with Dana he told her mom, Susan, that he was surprised Dana had even been able to function. He presumed he would need to remove about seven inches of Dana’s small bowel. But during surgery he found so much scar tissue that he needed to remove 32 inches. Prior to that, Dana had endured years of severe stomach pain. She had stopped growing and eventually became frail and weak. “She basically started to deteriorate from a lack of nutrients,” says Susan. Even though doctors had been warned of their family’s history of Crohn’s disease, it was dismissed. One night after rushing Dana to the emergency department at another hospital, they transferred her to Phoenix Children’s where the family finally got a definitive diagnosis of Crohn’s. But medication wasn’t helping, and a small bowel resection surgery was the only option. “When you go there, they make you feel like your child is their number one priority. And thanks to Phoenix Children’s, my daughter is now living a happy, healthy life and doing all of the things a 16-year-old girl should be doing.” HOPES & 13232-01d-Book.indd 18 DREAMS P18 8/16/13 2:31 PM NATHANIEL & JOEL NATHANIEL 9 Birthdays It all started one year ago when Nathaniel began complaining of arm pain. The next day his wrist was swollen and hot to the touch. The family’s pediatrician suspected cancer and sent them from their home in Safford to Phoenix Children’s. An MRI confirmed that Nathaniel had bone cancer. “When you hear cancer, you automatically think defeat,” his mom, Christiana, said. Nathaniel had other plans. He began chemotherapy immediately, but his arm couldn’t be saved and was amputated at the elbow. Nathaniel took it in stride and taught himself to write – and even play Xbox 360 – with his left hand. He recently had to have emergency surgery, and further tests revealed cancer in his lung and femur, which will require additional treatments. But that doesn’t deter Nathaniel. Just two days after his recent surgery he visited the San Diego Zoo and Sea World. For his next round of treatments, Nathaniel’s mom feels confident in his care at Phoenix Children’s. “Everything about the Hospital is so nice, and I love it. It’s just for kids, so I can’t imagine a better place for him.” JOEL 5 Birthdays When Joel was 4-months-old his mom took him to his pediatrician for a regular checkup. What she expected to be a 15 minute appointment lasted two hours after the doctor recognized light brown spots on his skin. Those spots turned out to be the telltale sign of neurofibromatosis type 1, a condition where tumors grow along the nerves of the skin, brain, spinal cord and other parts of the body. Neurosurgeons found a tumor in his cervical spine area, and Joel had surgery to remove his C4 vertebra and fuse his C3 to C6 vertebrae. “Dr. [Nicholas] Theodore was one of only 12 surgeons in the country who could perform that surgery, so we felt very lucky that Joel was in his care,” said Joel’s mom, Jolyn. Joel continues to be monitored for tumors and an optic glioma, which could cause blindness if it grows. “We’re not out of the woods, but he’s such a spirited, happy-go-lucky little boy. Life gives us challenges and the families here all have their own battles. Phoenix Children’s is here for the big and little dramas raising children can bring.” P19 13232-01d-Book.indd 19 HOPES & DREAMS 8/16/13 2:31 PM AVERY & DEANNA AVERY 9 Birthdays At the start of every school year, Avery stands in front of his class and explains his condition. He’s just like them; he likes to swim and go to the movies. But he’s dealing with more than most 9-year-olds. Avery was born with autosomal recessive polycystic kidney disease (ARPKD), which causes clusters of fluid-filled cysts to form in the kidneys. The disease often leads to kidney failure, and more than one-fourth of infants with ARPKD will die within hours or days after birth due to breathing difficulties. “Phoenix Children’s has cared for Avery since he was 1-month-old,” says mom Adrian. “More than that, they have cared for us.” At age 4, Avery received a kidney from his mom. Three days later, he ate food for the first time in his life, no longer receiving nutrients from a port. Unfortunately Avery lost his mom’s kidney in April, but he is a fighter and is currently undergoing dialysis. Looking to the future, Adrian says, “My wish is for Avery to see the world. I have agreed to be his tour guide if he’ll have me!” DEANNA 18 Birthdays A typical teenager, Deanna saw her world turned upside down last year when she suddenly experienced an extremely painful headache. Her mom called an ambulance, and the next thing Deanna remembers, she woke up at Phoenix Children’s, having had two surgeries for a ruptured aneurysm that caused a stroke. “I had to relearn everything – walking, talking, everything,” she says. “It was a shocking experience.” Deanna spent a few weeks in the Hospital, focusing on speech and physical therapies. Today she continues her own type of therapy in the form of dancing, writing, walking and exercising. Her future looks bright, as she focuses on her senior year of high school and prepares for college. Deanna’s wish for the future is to study respiratory medicine so that she can help fellow sufferers of asthma and allergies. She feels she had some great role models in the doctors at Phoenix Children’s. “The doctors there are really great. If not for them, I wouldn’t be here today.” HOPES & 13232-01d-Book.indd 20 DREAMS P20 8/16/13 2:31 PM MACKENZIE & HAYLEY MACKENZIE 17 Birthdays Mackenzie recalls what she wore that day, what she had for breakfast, trying to help her twin brother and screaming for help. Then it gets a little fuzzy. The next thing she remembers, she woke up at Phoenix Children’s and found out the car that she and her brother had been traveling in was involved in a head-on collision with a semi-truck. It seemed like a dream, but she had the brain injury, fractured skull, broken shoulder, broken nose, broken jaw and blood clots to prove that it wasn’t. After multiple surgeries, extensive therapy, and two months at Phoenix Children’s, Mackenzie was able to go home and is excited about being back in school. Since the accident, Mackenzie has changed her outlook on life and appreciates everything she has. That appreciation extends to her care team at Phoenix Children’s. According to Mackenzie, “They were wonderful. They did everything they could to heal my body and make me who I am today.” HAYLEY 15 Birthdays Hayley says that before her family arrived at Phoenix Children’s she felt like she had an “old person’s” disease. But approximately 300,000 children in the U.S. have some form of arthritis. She has the most crippling form, juvenile rheumatoid arthritis. She was 7 when she was diagnosed, the disease so painful at times that she’s confined to a wheelchair. Her treatment regimen includes regular cat scans, MRIs, pulmonary function tests and echocardiograms to see how the disease is affecting her organs and lungs. She spends one night at the Hospital each month for IV treatment, takes several pills each morning and gives herself two shots each week. But this singing, acting, painting and piano playing teen hasn’t slowed down. “My wish for the future is to have more painfree days, and no physical limitations,” says Hayley. “Phoenix Children’s is the place you come when you find out that your life will never be the same. But the care I’ve been given there is what has given me the ability to dream big dreams, and achieve my goals.” P21 13232-01d-Book.indd 21 HOPES & DREAMS 8/16/13 2:31 PM A COMMUNITY THAT CARES “Friendship is essentially a partnership.” -Aristotle As we turn 30, we celebrate the time, talent and resources of our friends and partners for their recent contributions to Phoenix Children’s. Valley Walmart and Sam’s Club locations raised a whopping $1,055,922 during their annual campaign for Phoenix Children’s held in May and June. In addition to asking customers to give at the registers, employees held softball tournaments, golf tournaments, black tie affairs and more. Walmart has now raised more than $7 million for the Hospital. Desert Schools Federal Credit Union raised $300,000 for the Hospital’s 1 Darn Cool School during their annual Desert Schools Golf Tournament in March at Encanterra Golf Club. Costco stores raised an incredible $1,015,256 for Phoenix Children’s during their May campaign at Valley locations. Customers gave at the registers, while employees held BBQs, bake sales and other fundraisers. The location on Thomas Road was the highest fundraising location in the entire country for Costco, and three cashiers at various stores each raised more than $5,000 at their registers. That’s a lot of asking! Sands Chevrolet and the Desert Sands Corvette Club raised more than $30,000 for the Phoenix Children’s Hospital Specialty and Urgent Care Center in Avondale during their 4th Annual All American Car Show held in May. During April’s El Tour de Mesa, 22 riders participated in honor of a Phoenix Children’s patient through our Miracles in Motion program, raising $5,500 for Phoenix Children’s. HOPES & 13232-01d-Book.indd 22 DREAMS The Jalapeño Inferno Bistro Mexicano hosted a Cinco de Mayo celebration with live music, food and fun, raising $1,500 for Phoenix Children’s. The inaugural DHL Express Charity Golf Tournament held in June at ASU’s Karsten Golf Course raised $1,500 for Phoenix Children’s. Walgreens raised more than $195,000 for Phoenix Children’s during their annual campaign held in March and April. In addition to selling icons at Valley locations, they hosted bake sales and other creative fundraisers. Another $40,000 was raised during the Walgreens LPGA Golf Tournament. The Legends Tour, the official senior tour of the LPGA, featured some of biggest names in women’s golf. Michelle Redman, a two-time LPGA tour winner took home the trophy. Leadership Circle members raised $419,000 and awarded six grants. In April, Hospital leadership and physicians presented their proposals at the Paradise Valley Country Club, with the 232 members voting on how their donated funds would best benefit the Hospital. Members funded the purchase of 11 NM3 monitors, which will give critical care physicians real-time information on a patient’s lung status, thereby reducing complications. Another grant will provide genome sequencing for patients with brain tumors that have had a high mortality rate, helping to find alternative treatments through molecular medicine and accelerate discovery of new therapeutic treatments. P22 8/16/13 2:31 PM Held in April, the 3rd Annual Desert Peaks Golf Invitational hosted by Desert Peaks Pizza and Grille raised $5,500 for the Hospital. More than 100 Kohl’s Department Stores A-Team community volunteers hosted their fifth “Day of Play” for our patients in May. Kohl’s associates read books to our patients, participated in craft activities and passed out stuffed animals. The patients were able to practice their medical skills on the stuffed animals at “wellness check” stations. Since 2003, Kohl’s has donated more than $2.9 million to Phoenix Children’s. ABC15 hosted their 2nd annual Telethon benefiting Phoenix Children’s in April, raising more than $332,000. While broadcasting live from the Hospital, the station’s on-air personalities interviewed patients, families and special guests. In honor of the Hospital’s 30th birthday, viewers making a $30 donation had a stuffed PetCake delivered to a hospitalized patient in their name. Thank you to the event’s sponsors: Desert Schools Federal Credit Union, Hungry Howie’s Pizza, Sanderson Ford and Wells Fargo. And supporters: Arizona Central Credit Union, Big Two Toyota, Charleston’s Restaurant, Culver’s, Dolce Salon & Spa, IM=X Pilates, Jersey Mike’s, Curacao, Lerner & Rowe, Macy’s, Panda Express, Papa Murphy’s, Rural/Metro Southwest Zone, Sagicor Life Insurance, Total Freedom Dental Implant Center, Walgreens, Walmart, Zerorez and Zevia. How many Phoenix Children’s employees and candy stripers will fit in the second employee transport van donated to the Hospital by Toyota? That would be 25. It was the Load-a-Toyota event held in June to thank Valley Toyota Dealers for contributing more than $700,000 in support of the Hospital over nearly a decade. Raising $104,000 for Phoenix Children’s and the Children’s Cancer Network, the Grand Canyon University – Run to Fight Children’s Cancer held in March hosted more than 4,000 runners and patrons. March’s Rock N’ Glow 5k Race Series presented by Hi5F Events held in downtown Phoenix and Glendale was a unique combination of 4,000 glow-in-the-dark participants, and a rockin’ after-party that raised more than $5,000 for Phoenix Children’s. Green Street Realty, LLC partnered with Phoenix Fashion Week for an evening that celebrated local clothing designers and boutiques. A fashion show was held on Green Street Realty’s rooftop overlooking Phoenix that raised $9,800. During their Month of Giving in March, Dolce Salon & Spa raised nearly $12,000. Each Tuesday they donated all proceeds from select services to the Hospital, and for every customer who donated $5 to Phoenix Children’s, Dolce donated an additional $2. P23 13232-01d-Book.indd 23 HOPES & DREAMS 8/16/13 2:31 PM A COMMUNITY THAT CARES Ethan Maurice is a former patient of Phoenix Children’s who was born with a rare blood disorder, and suffered a stroke while in high school. He wanted to give back to the hospital that saved his life, and rode his bike from coast to coast this summer to raise money for Phoenix Children’s. Starting in Virginia, Ethan and his brother Reid, pedaled more than 4,000 miles. So far the two have raised more than $20,000 for the Hospital. You can still give to their “Pedaling with Purpose” campaign by visiting www.PCHPedalWithPurpose.com or texting “PEDAL” to 50555 to make a $10 donation. The Sereno Soccer Club held their first ever 24-hour soccer marathon in April that raised $15,000 for Phoenix Children’s. Students at the Glendale TaeKwonDo Academy held a “Board Break-AThon” in May that raised $10,000 for our patients and families. The McLane Sunwest Golf Tournament held in May at Greyhawk Golf Club raised $56,500. The 4th Annual “A Night to Shine for Reese Golf Tournament” held in March at the Belliar Golf Course raised nearly $8,000. Jersey Mike’s Subs raised more than $54,000 for Phoenix Children’s during their March Month of Giving. Their customers gave at the stores, and on March 27, all sales from all Valley Jersey Mike’s Subs were donated to the Hospital. The 11th Annual Golf Tournament hosted by Arizona Precision Sheet Metal raised nearly $12,000 for the Hospital. It was held in April at the 500 Club in Phoenix. The McDowell Mountain Music Festival celebrated its 10th anniversary in March, raising $20,000 for Phoenix Children’s. Held at the Margaret T. Hance Park, more than 14,000 people attended the festival. HOPES & 13232-01d-Book.indd 24 DREAMS Zevia donated $5,000 to Phoenix Children’s and sponsored the Hospital’s ASU Dance Marathon and ABC15 Telethon. Guests brought their suitcases packed, hoping to win the grand prize of jetting off to Sonoma for a luxury weekend. The Phoenix Suitcase Party presented by Lexus was held in April at Scottsdale Airpark. It was hosted by the 20-30 Club of Phoenix and raised $16,000 for our patients. During the month of April, Hungry Howie’s Pizza donated $1 from every deep dish pizza sold to Phoenix Children’s. Along with their customers’ donations, the campaign raised $5,000. During the ABC15 Telethon, Hungry Howie’s also surprised one of our patients with two suite tickets to the Taylor Swift concert. P24 8/16/13 2:31 PM Sela, Alex and Ari Poulos are triplets who were cared for in our Newborn Intensive Care Unit. They formed the band Triple Firrre, and performed at Desert Stages Theatre for a concert fundraiser in May that rocked $1,550 for the Hospital. Wendy’s raised $30,000 for Phoenix Children’s when their more than 80 locations in the Valley and northern Arizona sold $1 Frosty Key Tags, which entitle holders to a free Jr. Frosty on every Wendy’s visit through December. With $1 from every Mini Murph pizza kit sold in February and March going straight to Phoenix Children’s, Papa Murphy’s locations in the Valley and northern Arizona raised more than $9,300. On May 21, Valley Dunkin’ Donuts locations offered guests a small iced coffee for just 31 cents, with all proceeds benefiting Phoenix Children’s and raising nearly $2,000. America’s Taco Shop raised $2,100 for the Hospital during their Carne for a Cause event. On June 1, 20 percent of all proceeds from their Valley locations supported Phoenix Children’s. Fundraising never looked so fashionable. White House Black Market, Soma and Chico’s raised more than $20,000 during their May campaign for Phoenix Children’s. Emerging Leader members hosted their first happy hour in April at Searsucker of Scottsdale, with 45 guests attending to learn about the new program. In May, members held a joint Speakers Panel with Young Valley Professionals and the Greater Phoenix Chamber of Commerce, with Susan Anable, Vice President of Cox Communications and Jay Parry, CEO of the Arizona Super Bowl Host Committee sharing how they achieved success in their careers at a young age. The Phoenix Children’s Patient and Family Alumni Leadership (PALs) group, along with Valley Leadership, funded the free Simply Sayin iPhone and iPad application that explains medical terminology in kidfriendly terms. JOIN US If you or your company would like to partner with Phoenix Children’s Hospital, call (602) 933-4483 or email [email protected]. P25 13232-01d-Book.indd 25 HOPES & DREAMS 8/16/13 2:31 PM JOIN THE PARTY 30 ways you can help our patients as Phoenix Children’s Hospital celebrates 30 years of gifting birthdays. Donate $30 for 30 years at HappyBirthdayPCH.com KTAR Give-A-Thon September 24 and 25 Pledge your support for us during the KTAR Give-A-Thon. News-Talk 92.3 KTAR and Arizona Sports 620 will broadcast live from the Hospital as we celebrate our 30th birthday, filling the Phoenix airwaves with amazing stories of courage and hope from our patients, families and staff. Become a Miracle Maker and have a teddy bear delivered to a hospitalized patient with a one-time donation of $300 or a pledge of $30 per month. During the event call in at (602) 933-4567 or donate anytime at GiveathonforPCH.com. Ignite Hope December 14 Walk with us during our 2nd Annual Ignite Hope candlelight walk. Participants will walk 1.7 miles from Central Phoenix Plaza to the Hospital, where patients will join in the celebration and watch the program and ceremony from their rooms. Guests may also bring a toy to place under the Hospital’s holiday tree. The event begins at 5:30 p.m. Visit PCHIgniteHope.com to register. Miracles in Motion Marathon - January 19 • Bike Race - April 5 Get in motion for our patients. Run or walk in the P.F. Chang’s Rock n’ Roll Marathon and Half Marathon or bike in El Tour de Mesa. Both races are part of our Miracles in Motion program. We’ll help you train, while you compete in honor of one of our MVPs (Most Valuable Patients) and pledge to raise $1,000 for the Hospital. We’ll help you do the fundraising and reach the finish line! Visit PCHMiraclesinMotion.org for more info and to register. Leadership Circle Join the Leadership Circle and have a direct voice in how your donations are put to work. Each Leadership Circle member gives a minimum donation of $1,000, with many members giving more. These annual gifts are pooled and fund highpriority clinical needs through a competitive grant process. For information email [email protected] or visit PCHLeadershipCircle.com. HOPES & 13232-01d-Book.indd 26 DREAMS P26 8/16/13 2:31 PM Festival of Trees Bid on a beautiful holiday tree during the annual Festival of Trees December 2-5 at the Montelucia Resort & Spa. The trees are decorated by Valley interior designers, displayed throughout the event, and auctioned off to the highest bidder. You can bid online at PCHFestivalofTrees.com. Join us on December 3 for a special Cocktail Party from 5:30-7 p.m. or the event’s Luncheon on December 4 at 11:30 am. For more information call (602) 933-2663 or email [email protected]. PCH Golf Tournament Get teed off. It’s the 15th Annual Phoenix Children’s Hospital Golf Tournament on November 22 at Troon North Golf Club. The Valley’s premier charity golf tournament will also include an exclusive “Night BeFORE Party” on November 21 at The Casablanca Lounge in Scottsdale. Visit PCHgolf.com or email [email protected]. Children’s Fight for Life Casino Night November 2 Get your poker face on for the Children’s Fight for Life 8th Annual Casino Night at the Montelucia Resort & Spa with dinner, cocktails and rolling of the dice. All proceeds benefit our Center for Cancer and Blood Disorders. Visit ChildrensFightForLife.com. Beach Ball 2014 March 1 We’re celebrating west coast style with a Malibu-themed gala at The Phoenician. All proceeds will benefit the Hospital’s Ronald A. Matricaria Institute of Molecular Medicine. Visit PCHBeachBall.com. Blue Jeans Day September 18 Go casual at the office. Encourage your employees to wear blue jeans to work for a $5 donation in honor of our birthday. We’ll provide “I’m Casual for Kids” stickers for employees to wear to show their support. The three companies that raise the most in donations (minimum of $5K) will be invited to our KTAR Give-A-Thon on September 24 and 25 to present their check live on-air. Call us at (602) 933-2649 or email [email protected]. P27 13232-01d-Book.indd 27 HOPES & DREAMS 8/16/13 2:31 PM JOIN THE PARTY Battle of the Bands October 19 Rock on. It’s the 7th Annual Battle of the Bands at Cityscape Phoenix. Gates open at 6:30 p.m. for this epic struggle for rock ‘n’ roll bragging rights while we raise money for our patients. Join us for music, dancing, beverages, food and fun. Email [email protected] or visit phoenixchildrens.com/BattleoftheBands. Check out our new website at PCHFoundation.com Support Partner Campaigns Say “yes” at the cash register. Look for campaigns supporting Phoenix Children’s at our following partner locations: Love’s from August 19 to September 30, Valero Corner Stores and Great Clips from October 1 to 31, and Carl’s Jr. from August 27 to September 23. On September 17 and 18, California Pizza Kitchen is celebrating our birthday by donating 20 percent of all sales to the Hospital and accepting new toys for our patients at all Valley locations. The Refreshing Hour September 25 “Wine down” with us for the final Refreshing Hour at Beckett’s Table in Phoenix from 5:30-7:30 p.m. Tickets are $10 and include a signature Refresh Glass product and cocktail. To RSVP visit phoenixchildrens.com/RefreshingHour. Be an Emerging Leader – young entrepreneurs and professionals who advocate, fundraise and volunteer for Phoenix Children’s. Email [email protected]. HOPES & 13232-01d-Book.indd 28 DREAMS P28 8/16/13 2:32 PM Moon Valley Grasshopper Bridge Run September 28 Walk or run for our patients in the Moon Valley Grasshopper Bridge 5K Run, 5K Walk, or 2-Person Relay. It’s at Moon Valley Park, with all proceeds benefiting the Hospital. Visit mvgrasshopperbridge5K.com. Para los Niños Radiothon December 12-14 Escuchar during the Para los Niños Spanish Language Radiothon. It’s the fifth year that Entravision Communications will simulcast their 3-day radiothon for Phoenix Children’s on each of their Spanish language stations – 710AM ESPN, 106.9/107.1 Jose and 103.5 Tricolor – with callers pledging their support. Sold On PCH Help us build a better hospital. The Sold On PCH program brings the real estate community together with pledges to make a contribution to Phoenix Children’s at the close of escrow for every home sold, after every appraisal is given, or following every inspection. For more information, email [email protected]. Dance Marathon February (date tbd) Get your groove thing on Sun Devils! Join the 2nd Annual Dance Marathon, held at Arizona State University. Ask your friends and family to sponsor you, then dance the night - and morning - away for our patients. Visit ASUDM.com. Hands of Promise October 12 Make a promise. The Hands of Promise event benefits Phoenix Children’s at the Arizona Grand Resort with dinner and cocktails. Visit HandsofPromise.eventbrite.com. P29 13232-01d-Book.indd 29 HOPES & DREAMS 8/16/13 2:32 PM JOIN THE PARTY Zehring Car Rally October 19 Get revved up for the 7th Annual Zehring Car Rally at the Walmart at 2621 S. Market St. in Gilbert. The event begins at 9 a.m. and will be the largest Zehring Brothers car rally ever, with more than 150 cars on display. All registration fees will benefit the Barrow Neurological Institute of Phoenix Children’s Hospital. For info or to register your car call (480) 628-9553 or email ZehringBrothersBenefi[email protected]. Carols and Candlelight December 7 Join us for the Carols and Candlelight event at the Terravita Country Club in Scottsdale at 6 p.m. Enjoy the Dickens Carolers, cocktails, dinner and a champagne toast during this intimate holiday celebration that will benefit the Hospital’s Ottossen Family Blood and Marrow Transplant Program. Visit carolsandcandlelight.com. Follow us. Facebook.com/FriendsofPCH Twitter.com/FriendsofPCH ArtWorks Buy holiday cards created by our patients diagnosed with cancer. ArtWorks is the Center for Cancer and Blood Disorders’ signature fundraising program. The festive cards are available at all Valley Safeway stores or online at PCHKidsArt.org. Be a PAL – a member of our Patient and Family Alumni Leadership program. PALs are former patients and family members who give back to the Hospital through events and personal fundraising. Email [email protected]. HOPES & 13232-01d-Book.indd 30 DREAMS P30 8/16/13 2:32 PM Gym & Swim Festival November 2 Bring your kids to the Gym & Swim Festival at the Arizona Sunrays Dance Center & Hubbard Family Swim School from 2:30 – 6 p.m. There will be open gym, swim and dance classes, live music and food. Email [email protected]. McDowell Mountain Music Festival March 28-30 Mark your calendar for the 2014 McDowell Mountain Music Festival. This “party for the people” brings together a number of bands from all over the world across a variety of genres. It’s all for charity, with a portion of the proceeds benefiting Phoenix Children’s. The event will be held at the Margaret T. Hance Park in downtown Phoenix. Visit mmmf.net. Duel in the Desert Golf Tournament September 26 Get to the greens for the 12th Annual Duel in the Desert Golf Tournament hosted by McLane Foodservice. It’s at the Ocotillo Golf Resort in Chandler. Email [email protected]. Teach your kids that change is good through the Piggy Bank Club. Kids get a free piggy bank and decorate it at the Hospital. Children save their coins, with parents encouraged to match their child’s donation. For more information, email [email protected]. Torch Relay October 14 Join the Torch Relay for Children’s Miracle Network. Taking place in multiple cities across the country, our own local 5K walk will raise money for Phoenix Children’s and will be held at the JW Marriott Desert Ridge. Visit torch-relay.org. P31 13232-01d-Book.indd 31 HOPES & DREAMS 8/16/13 2:32 PM 2929 E. Camelback Road, Suite 122 • Phoenix, AZ 85016 PHOENIX CHILDREN’S HOSPITAL FOUNDATION www.PCHFoundation.com (602) 933-4483 facebook.com/FriendsOfPCH twitter.com/FriendsOfPCH PHOENIX CHILDREN’S HOSPITAL MAIN CAMPUS 1919 East Thomas Road, Phoenix, AZ 85016 (602) 933-1000 | (888) 908-KIDS (5437) www.phoenixchildrens.com SPECIALTY & URGENT CARE CENTER EAST VALLEY - (480) 833-5437 5131 E. Southern Ave., Mesa, AZ 85206 SPECIALTY & URGENT CARE CENTER NORTHWEST VALLEY - (623) 972-5437 20325 N. 51st Ave., Ste. 116, Glendale, AZ 85308 SPECIALTY & URGENT CARE CENTER SCOTTSDALE - (480) 922-5437 6990 E. Shea Blvd., Scottsdale, AZ 85254 SPECIALTY & URGENT CARE CENTER SOUTHWEST VALLEY - (623) 312-2000 1665 N. Avondale Blvd., Avondale, AZ 85392 YUMA CENTER SPECIALTY CARE - (855) 372-0664 1501 W. 24th St., Suite 203, Yuma, AZ 85364 30 Years of Gifting Birthdays In celebration of 30 years, you can help us give a patient another birthday with your gift of $30. With a one-time donation of $300 or more, or a pledge of $30 per month, a Phoenix Children’s teddy bear will be delivered to a hospitalized patient in your name. LOGAN 7 BIRTHDAYS 13232-01d-Book.indd 32 Visit HappyBirthdayPCH.com 8/16/13 2:32 PM
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