Inova Children’s Hospital Cardiac Outcomes 2012 Table of Contents Introduction. . . . . . . . . . . . . . . . . . . . . . . . . 1 Accomplishments. . . . . . . . . . . . . . . . . . . 2 Cardiac Imaging. . . . . . . . . . . . . . . . . . . . . 3 Congenital Heart Surgery. . . . . . . . . . . 4-7 Interventional Cardiology. . . . . . . . . . . . . 9 Electrophysiology. . . . . . . . . . . . . . . . . . . .9 Adult Congenital Heart Clinic. . . . . . . . . 11 Adult Congenital Catheterization. . . . . . . 11 The Center for Coordinated Fetal Care 13 Single Ventricle Clinic. . . . . . . . . . . . . . . . 13 Experts in Children’s Care . . . . . . . . . . . .14 Research. . . . . . . . . . . . . . . . . . . . . . . . . . .15 Funding for the Future. . . . . . . . . . . . . . . 17 Meet Our Team. . . . . . . . . . . . . . . . . . .18-19 Specialized Transport. . . . . . . . . . . . . . . .19 The Future of Children’s Care in Northern Virginia. . . . . . . . . . . . . . . . . . . 20 Location. . . . . . . . . . . . . . . . . . . . . . . . . . . 21 Pediatric Cardiac Outcomes Dear Colleagues, At Inova, we have a goal not just to provide today’s healthcare, but to be the future of health. This means many things to us—genomics, personalized medicine, disease prevention, research, educating the physicians and clinicians of tomorrow, and constantly challenging ourselves to better the current practice of medicine. The future of health is an even more poignant concept when Inova Children’s Hospital is concerned. Our patients quite literally, are the future of the Washington Metropolitan Region. They are the sons and daughters of our community, and the care that we provide must be nothing less than extraordinary. Over the past year, the Inova Children’s Heart Program has made many advancements. As you will read in this report*, we have added a single ventricle clinic, launched a specialized critical care pediatric ambulance, provided more comprehensive care through the addition of a n inpatient Nurse Practitioner to coordinate complex care, and mended the hearts of hundreds of children so that they might get back to doing what they do best--being kids. 2012 In September, work began on a new home for the Inova Children’s Hospital. A state-of-the-art 650,000 square-foot space dedicated to caring for the women and children of our community. It is with great pride that we invite you to learn more about the Inova Children’s Heart Program. David Ascher, MD Chairman, Pediatrics Inova Children’s Hospital Heather Russell Administrator Inova Children’s Hospital *Report based on 2011 statistics. inova.org/childheart Recent Achievements ■ The Melody Transcatheter Pulmonary Valves are now an option for children and adults with congenital heart defects. Children and adults now have a minimally invasive treatment option for pulmonary valve replacement, saving them from facing difficult open heart surgery. Pediatric Cardiothoracic CME ■ Inova Children’s Hospital joined the National Pediatric Cardiology Quality Improvement Collaborative—a group that is currently focused on improving care for patients with hypoplastic left heart syndrome. ■ Neonatology and Pediatric Cardiology worked together to develop a specific algorithm of care for premature infants with patent ductus arteriosus (PDA). This algorithm guides physicians in determining which children are best candidates for surgical ligation. Melody Valve ■ The 3nd Annual Pediatric Cardiothoracic CME Conference on the topic of Congenital Heart Disease: Maternal Fetal Medicine was held in September 2011. This event is made possible by the Shapiro Heart Education Fund. ■ The Inova Children’s Hospital Heart Program was joined by Meghan Edwards, FNP-BC, who coordinates patient care between cardiology, cardiac surgery, and other disciplines involved in the highly-complex care that pediatric heart patients receive. Shelly Fleischer, PA, has also joined the team. Shelly leads the program’s Single Ventricle Clinic, which provides continuing care for children with hypoplastic left heart syndrome or other forms of single ventricle physiology. Ecuadorian physicians Gerardo Davalos, MD and Jaime Ochoa, MD with Lucas Collazo, MD ■ Tom Hougen, MD, led a team including Lucas Collazo, MD, James Konigsberg, MD, Ruben Munoz, CPA, Russell D’Sa, RCIS/RCVT and clinical nurse specialist Beth Suddaby on a medical mission to Ecuador. The team was able to perform life-saving cardiac surgery and interventional cardiac catheterizations on children with little or no resources or access to care. ■ The Neonatal Intensive Care Unit was the first in the nation to receive the Joint Commission’s Gold Seal of Approval for the specific care of newborns needing specialized care. ■ The ECMO Program held its first on-sight training program for ECMO specialists to prepare nurses and respiratory therapists in this role. 2 Patient Referral: 703.776.6552 Cardiac Imaging The basis of diagnosis and treatment of congenital heart disease is the use of imaging techniques to visualize anatomy and understand the unique physiology of each congenital patient. Inova Children’s Hospital uses all possible modalities to obtain the most information about the patient’s problems, in order to make the best decisions for their care, including: ■ MRI ■ Low-radiation cardiac CT ■ Echocardiography, including transesophageal and 3D imaging ■ Cardiac catheterization. Improvements in non-invasive imaging such as echo, TEE, 3D echo, MRI, and CT have significantly reduced the need for invasive diagnostic catheterizations. At the same time, newer techniques have evolved allowing transcatheter interventions to treat certain heart abnormalities, sparing many children from the need for heart surgery. Coronary Fistula inova.org/childheart 3 Pediatric Cardiac Outcomes Congenital Heart Surgery Inova Children’s Hospital takes on the most difficult cases and is advancing the field using new techniques. Congenital Heart Surgery Irving Shen, MD Medical Director, Pediatric Cardiac Surgery Lucas Collazo, MD Associate Medical Director, Pediatric Cardiac Surgery Surgical Director, Adult Congenital Heart Clinic Dr. Lucas Collazo uses Twitter to give the world a glimpse into the thoughts of a pediatric cardiac surgeon. Follow the quick response code or go to twitter.com/drCollazo to see what he’s sharing. 6 Patient Referral: 703.776.6552 The cardiac surgery program provides highquality care with low surgical mortality. In 2011, our cardiac surgery team performed 276 pediatric and 43 adult congenital surgeries with a 98.6% survival. We participate in the Society of Thoracic Surgeons Congenital Heart Surgery National Database in order to compare our results to those across the nation. It is difficult to benchmark pediatric outcomes because of the variety of types of congenital surgery. Coarctation of Aorta Inova Children’s Hospital takes on the most difficult cases and is advancing the field using new techniques. Our surgical team includes dedicated pediatric cardiac anesthesiologists with the assistance of cardiac nurse anesthetists, cardiac perfusionists and cardiac operating room nurses, in addition to pediatric cardiac surgeons and surgical physician assistants. Once our patients leave the operating room, they are cared for in the pediatric intensive care unit. This multidisciplinary collaboration results in the best care possible for children with congenital defects. That collaboration continues as the patient advances toward home with the surgical team, cardiology and our inpatient nurse practitioner guiding care. Pediatric Cardiac Anesthesia At the Inova Children’s Heart Program, pediatric sub-specialists read cardiac imaging, provide intensive care in the NICU or PICU, perform cardiac surgery and provide cardiovascular care. This same sub-specialization occurs in the area of pediatric cardiac anesthesia. Inova Children’s Hospital’s Department of Anesthesiology includes physicians specially trained in caring for the tiniest of patients, particularly those with heart conditions. The team provides comprehensive anesthesia services for children in the operating rooms, catheterization and electrophysiology labs, and other settings, including providing sedation for imaging. Pediatric Cardiac Outcomes Congenital Surgical Volume 2007-2011 ■ Adult Congenital ■ Pediatric Closed ■ Pediatric Open 18 2 0 0 7 179 147 27 2 0 0 8 169 133 42 2 0 0 9 152 126 26 2 0 1 0 186 117 43 2 0 1 1 135 141 0 50 Procedure 100 150 200 2008 Volume 2008 Survival 2009 Volume 2009 Survival 2010 Volume 2010 Survival 2011 Volume 2011 Survival 4-Year Average Ventricular Septal Defect (VSD) 26 100% 24 100% 27 100% 14 100% 100% Tetralogy of Fallot (TOF) 8 100% 7 100% 10 100% 11 91% 97% Atrial Septal Defect (ASD) 10 100% 6 100% 4 100% 6 100% 100% Arterial Switch for TGA 7 100% 4 100% 9 78% 6 100% 92% Valves/Conduits 25 100% 31 100% 20 100% 13 100% 100% Atrioventricular Canal Repair (AVC) 8 100% 8 100% 6 100% 7 100% 100% Total Anomalous Pulmonary Venous Return (TAPVR) 3 66% 4 75% 2 100% 3 100% 84% Partial Anamlous Pulmonary Venous Return (PAPVR) 5 100% 5 100% 5 100% 2 100% 100% Caval Pulmonary Connections (Glenns and Fontans) 15 100% 18 100% 7 100% 17 100% 100% Coarctation of the Aorta 10 100% 15 93% 9 100% 10 100% 98% Systemic-Pulmonary Shunt 8 100% 2 100% 10 80% 9 100% 93% Pacemakers and ICDs (primary and replacements) 21 100% 14 100% 20 100% 13 100% 100% Norwood/ Damus-Kaye-Stansel/ Hybrids 10 90% 7 85% 10 80% 15 93% 88% ECMO Support 9 77% 5 60% 12 55% 12 58% inova.org/childheart 7 photo of electrophysiology screen or for cardiac cath screen for child here/ Shot cath lab shot on facing page will not crop in this space and the vertical shot shows only the doctor. Is there a headshot of thompson without mask? Interventional Cardiology Pediatric Cardiac Outcomes Cardiac Catheterization Volume 2007-2011 Interventional Cardiology Our pediatric interventional cardiology team performed 234 cardiac catheterizations in 2011. Interventional catheterization cases totaled 130 and diagnostic cases totaled 104. In order to benchmark our catheterization outcomes, we participate in Improving Pediatric and Adult Congenital Treatments (IMPACT), an arm of the National Cardiovascular Data Registry of the American College of Cardiology. Inova Children’s Hospital and the Inova Heart and Vascular Institute were early adopters of the Melody Transcatheter Pulmonary Valve. In many cases, this pulmonary valve replacement spares children and adults the need for open heart surgery. We support children undergoing catheterization with just-in-time preparation on the day of the procedure by our cardiac child life specialist, making our program child-friendly as well as technically expert. ■ Diagnostic 2 0 0 7 110 116 2 0 0 8 2 0 0 9 2 0 1 0 116 98 163 79 88 120 2 0 1 1 104 130 0 50 100 150 200 250 Interventional Catheterization by Type 2007-2011 ■ Balloon Dialations ■ Coils ■ASD ■ PDA ■ Septostomy ■ Hybrids 200 1 150 48 Electrophysiology 5 100 From infancy through adolescence, rhythm disturbances can cause sudden and devastating effects. Our children’s pediatric electrophysiology (EP) program is dedicated to identifying and treating these problems. Techniques and procedures range from sophisticated EP studies and ablations to the Ted Freihling, MD implantation of devices such as pacemakers Medical Director, and ICDs. In 2011, our electrophysiology team Electrophysiology conducted 74 procedures, the majority being Laboratory radiofrequency ablations. ■ Interventional 50 41 39 28 28 2007 40 2008 62 20 7 5 34 2 48 2009 11 38 32 4 6 5 7 48 3 40 0 2 39 2010 2011 Electrophysiology Procedures 2007-2011 ■ Pacers ■ ICD 120 100 10 8 12 14 7 7 80 60 ■Ablations 5 ■EP 13 7 10 79 73 69 56 49 13 10 12 15 18 2007 2008 2009 2010 2011 40 20 and Electrophysiology 0 inova.org/childheart 9 Bucket Handle Aortic Arch Graft in Adult Patient Adult Congenital Heart 10 Pediatric Cardiac Outcomes Adult Congenital Heart Clinic One of the unique aspects of our program is the ability to provide congenital cardiac care from before birth through adulthood. Statistically, more adults than children are in need of congenital heart treatment, the adult congenital heart disease program has become a major focus of the Inova Heart and Vascular Institute. We believe it is critical that the care of these patients transition to adult care while continuing to be treated by experts in congenital heart disease. At the Inova Heart and Vascular Institute they can receive this expertise within an environment that specializes in adult cardiac care. Our Adult Congenital Heart Clinic consists of congenital surgeons, pediatric cardiologists and adult cardiologists who manage the care of these patients throughout their lives. Because this is a service shared by experts of the Inova Children’s Hospital and the Inova Heart and Vascular Institute, we are able to provide care through every stage of a child’s life, from before their birth and into their seventies, eighties and beyond. To refer a patient to our Adult Congenital Heart Clinic, contact Tracy Cox, Patient Navigator at 703.776.3599. Adult Congenital Catheterization In 2011, the cardiac catheterization team performed 88 catheterizations for adult congenital heart disease. We continue to close atrial septal defects for adults at risk for strokes or transient ischemic attacks. Other unique procedures include closing perivalvar leaks, particularly of the mitral valve, and mitral valve dilations. Adult Congenital Catheterization Volume 2008-2011 ■ Diagnostic 19 49 25 2008 55 2009 34 76 47 41 0 20 ■ Interventional 40 60 80 2010 2011 100 120 inova.org/childheart 11 Caring for the Caregiver As a pediatric medical-surgical nurse at Inova Children’s Hospital, Catie Ensz spends her days taking care of very sick children. But when her baby Josiah faced a series of life-threatening medical challenges, it was her coworkers’ turn to take care of mother and son. While Catie was pregnant, Josiah was diagnosed with transposition of the great arteries (TGA), a rare and complex congenital heart defect in which the aorta and pulmonary artery are reversed. He would need open heart surgery at birth. Catie and her husband put themselves in the capable hands of her colleagues in the Pediatric Cardiac Program. Patient navigator Kelly Gallo guided them through the medical maze of subspecialists and treatment options, providing critical education and support. “Kelly was our advocate and lifesaver,” Catie says. “It was such a relief to have someone else to answer the medical questions and help make decisions so I could just be mom.” 12 Pediatric Cardiac Outcomes Inova Fetal Care Program When Josiah was born at 37 weeks, pediatric cardiac surgeons Irving Shen, MD, and Lucas Collazo, MD, performed an arterial switch, moving the aorta and pulmonary artery to their normal positions. The fragile newborn was placed on a bypass machine while the surgeons repaired his tiny heart. Afterwards, he spent eight days in the PICU with his chest open because he was too small to close. All told, Josiah spent 37 days at Inova Children’s Hospital. Catie continued to rely on her colleagues in the months following Josiah’s surgery. PICU nurses pulled him through some serious post-operative complications, the Cardiac Feeding Team provided nutritional guidance, and occupational and speech therapists helped with developmental issues. Josiah is now a thriving 17-monthold, fully caught up to his peers in all areas. “In the end, probably more than 100 of my coworkers touched my son, and we are so grateful to every one of them,” says Catie. “This is an amazing program and we feel lucky to have this kind of care.” Using a multidisciplinary approach of specialty physicians and nurses, the Inova Fetal Care Program provides prenatal consultation and pediatric care planning for pregnant women identified as carrying babies with fetal heart abnormalities, birth defects or medical problems. The Program provides the advantage of high-risk pregnancy expertise available at Inova Women’s Hospital with our pediatric surgical and medical specialties. When problems are identified, all of our surgical and medical specialties are available for prenatal consultation, coordinated by our patient navigator, Kelly Gallo, RN, who helps the expectant mother throughout the entire process of her hospital visit, delivery and surgery. Because the fetal care, birth and pediatric care can all occur in the same setting, the family does not have to be separated from their baby at this critical time. In 2011, Inova Fetal Care Program diagnosed fetal heart defects in more than 36 expectant moms and facilitated their delivery and ongoing care of their child. To refer a patient to Inova Fetal Care Program, contact Kelly Gallo, RN, Patient Navigator at 703.776.6371 or [email protected]. Learn more at inova.org/ccfc. Single Ventricle Clinic In response to our growing population of infants with hypoplastic left heart syndrome or other forms of single ventricle physiology, the Inova Children’s Hospital has created a specialty clinic that focuses on the care of these fragile infants. Using a multidisciplinary approach, children receive cardiology care in concert with nutrition consultation and speech therapy so vital to their growth and development. The Single Ventricle Clinic is our newest endeavor to promote the best outcomes in the most challenging of cases. Contact Jaime Langdon, Patient Navigator at 703.776.5049 for questions about this clinic. inova.org/childheart 13 Experts in Children’s Care At Inova Children’s Hospital, our commitment is to provide world-class care in a child-friendly environment, close to home. This includes the Northern Virginia’s only Pediatric Intensive Care Unit (PICU) and the region’s most advanced Neonatal Intensive Care Unit (NICU). Inova Children’s Hospital’s 75-bed, level III C neonatal intensive care unit (NICU) provides specialized care and observation for the most vulnerable, high-risk infants. Inova Children’s Hospital is home to Northern Virginia’s largest subspecialty NICU, with a highly trained, multi-disciplinary team of board-certified neonatologists, neonatal nurse practitioners, respiratory therapists and lactation consultants on staff around the clock. In 2011, the NICU was the first in the nation to receive The Joint Commission’s Gold Seal of Approval™ for Prematurity. This prestigious certification represents the highest level of care for premature infants. It recognizes the team’s commitment to continuously improve performance around treatment protocols that reduce complications and improve longterm quality of life. As the only Pediatric Intensive Care Unit in the region, the unit is a vital asset to Inova Children’s Hospital and the families of Northern Virginia. The PICU provides critical care to children with life-threatening illness, pediatric trauma, and of course the children of the Inova Children’s Heart Program. Pediatric intensivists, pediatric critical care nurses, and clinicians work with pediatric cardiac surgeons, and pediatric cardiologists to ensure that children and adolescents with cardiovascular concerns receive outstanding care. In 2012, the unit was recognized by the American Association of Critical Care Nurses with the Gold Beacon Award for the outstanding care that they provide. At Inova Children’s Hospital we offer certified Child Life specialists, experts in child development, who promote effective coping through play, procedural preparation, education and self-expression activities. They provide emotional support for families, and encourage optimum development of children facing a broad range of challenging experiences, particularly those related to healthcare and hospitalization. Northern Virginia’s only Pediatric Intensive Care Unit (PICU) and the region’s most advanced Neonatal Intensive Care Unit (NICU). 14 Patient Referral: 703.776.6552 Pediatric Cardiac Outcomes Research Inova Children’s Hospital is an outstanding site for clinical research because of the size of the patient population served throughout the Washington, DC metro region. Recently completed studies include: ■ Nutritional status and post operative clinical outcomes in children with congenital cardiac anomalies undergoing cardiac surgery. Study of nutritional variables and their impact on surgical complications and outcome. Elizabeth Suddaby, RN, MSN with Girish Hermath MD, MPH, Michelle Yun, MD. Pulmonary Artery Stent Ongoing studies include: ■ National Collaborative to Improve Care of Children with Complex Heart Disease. Consistent data collected on single ventricle patients to assess impact of changes to improve their care. Irene Sadr, MD ■ Multi-institutional Longitudinal Outcome Studies in Congenital Heart Defects. Four studies looking at Tricuspid Atresia, Pulmonary Conduit placement in infants, Left Ventricular Outflow Tract Obstruction and, Anomalous Aortic Origin of the Coronary Artery. Irving Shen, MD ■ Melody Valve HDE. A study of a pulmonary valve placed using catheterization techniques instead of surgery. James A. Thompson, MD Bilateral PA’s and MPA stent ■ Contegra Pulmonary Valve HDE. evaluates the efficacy of this specific type of replacement pulmonary valve. Lucas Collazo, MD ■ Closure of Atrial Septal Defects with the Amplatzer Septal Occluder – is a registry to follow long-term outcome of ASD devices placed in children or adults. James A. Thompson, MD ■ Safety and Efficacy of Intravenous Ketoralac in Infants and Children following Cardiac Surgery – a study of the effectiveness of Ketoraloc to reduce need for narcotics for pain control after cardiac surgery. W. Keith Dockery, MD inova.org/childheart 15 Star Kid 8K Race and Family Fun Run Inova Health Foundation Pediatric Cardiac Outcomes Funding for the Future As a not-for-profit organization, our commitment to world-class pediatric care is made possible through the generous support of donors. Each year, several events take place to raise funds for our children’s heart program. ■ In June 2011, the Bob and Lynda Gibbs Family hosted the 8th Annual Golfing for Grace Tournament. The event raised more than $26,000 to support the heart program. Over the past eight years this event has raised nearly $240,000 for the Inova Children’s Hospital Heart Program. ■ On October 7, 2011, Dell Services Federal Division employees, vendors and friends participated in their corporate golf tournament to support the pediatric cardiology program. This is the third year that Dell has selected the Inova Children’s Hospital Heart Program as their “Charity of Choice”. ■ The Star Kid 8K Race and Family Fun Run took a brief hiatus in 2011, but was back in action in 2012. A record number of walkers, runners, and volunteers braved the rain on April 22 to support the race. The event raised more than $130,000 to support the children’s heart program and the Akl Endowment. Pediatric heart funds such as these were most recently used to purchase pediatric specific surgical instruments. In addition these funds have also allowed for our medical staff to attend national conferences and meetings regarding children’s cardiology care. ■ In September 2011, we hosted the 3rd Annual Shapiro Lecture. The title of the 2011 conference was Congenital Heart Defects: Maternal Fetal Medicine. Experts from around the country gathered to discuss leading techniques, research and diagnoses related to maternal fetal medicine related to congenital heart disease. The conference was made possible by the Shapiro Heart Education Fund, established by a grateful family to honor Dr. Shapiro’s legacy and commitment to helping children with heart issues. For more information on how you can support Inova Children’s Hospital, call the Inova Health Foundation at 703.776.3422. inova.org/childheart 17 Meet Our Team Members Pediatric Cardiac Electrophysiology Arrhythmia Associates, LLP 703.849.0770 Ted Friehling, MD Pediatric Cardiac Surgery Cardiovascular & Thoracic Surgery Associates, LLP 703.208.5858 Irving Shen, MD, Medical Director Lucas Collazo, MD Chuck Bailey, PA Shelly Fleischer, PA Pediatric Cardiology Child Cardiology Associates 703.876.8410 Patrick Callahan, MD Steven Herold, MD Adrienne Kilgore, MD William Kirby, MD Jennifer Lindsey, MD Harish Rudra, DO James Telep, MD James Thompson, MD Jared Hershenson, MD Jennifer O’Neil, MD Christopher Talluto, MD Children Heart Associates, PC 571.292.9940 Mohamed Mardini, MD Children’s Heart Institute 866.645.4055 Hasan Abdallah, MD Rabih Hamzeh, MD Bahram Kakavand, MD Omar Khalid, MD Georgios Hartas, MD Louay Toni, MD Rahel Zubairi, MD 18 Patient Referral: 703.776.6552 Georgetown Pediatric Cardiology Associates 703.717.4070 Karen Ribeiro, CRNA Nellie Todorova, CRNA Christine Walsh, CRNA Thomas Hougen, MD Pediatric Perfusion Pediatric Cardiology Associates 703.573.0504 703.776.3728 Annette Ansong, MD Alan Benheim, MD Robert Escalera, MD Sharon Karr, MD Jin Park, MD Irene Sadr, MD Sherif Tawfik, MD Pediatric Preventive Cardiology and Obesity The Healthy Heart Center 800.784.8590 Wali Gauvin, MD Pediatric Cardiac Imaging Fairfax Radiological Consultants 703.698.4488 James Earls, MD Dana Twible, MD Pediatric Cardiac Anesthesia Fairfax Anesthesiology Associates, Inc. 703.776.3138 Ahmed Elrefai, MD Erin Foley, MD James Konigsberg, MD Jennifer Maher, MD Robert Mesrobian, MD Benjamin Cramer, MD Pediatric Cardiac Nurse Anesthetist Oliver Jordan, CRNA Tricia Frack-Jordan, CRNA Kristin Hughes, CRNA Susan Mesrobian, CRNA Manny Alam, CCP Michael Audette, CCP Dave Fitzgerald, CCP Amy Ging, CCP Ruben Munoz, CCP John St. Onge, CCP Ron Wittig, CCP Pediatric Critical Care Inova Children’s Hospital 703.776.6558 office 703.776.6053 unit Stephen Keller, MD, Medical Director Swati Agarwal, MD Keith Dockery, MD Kathleen Donnelly, MD Cynthia Gibson, MD Peter Grundl, MD William Stotz, MD Michael Vish, MD Charlene Davenport, MD Neonatology Fairfax Neonatal Associates 703.776.6020 John North, MD, Medical Director Margot Ahronovich, MD Robin Baker, MD Rajiv Baveja,MD Robert Beck,MD D. Spencer Brudno,MD Edwin Doe, MD Matthew Eig, MD Mark Fowler, MD Afsaneh Hessamfar, MD Tom Hull, MD Daniele Huntington, MD Pediatric Cardiac Outcomes Jun Kang, MD Georgis Kefale, MD Timothy Kline, MD Raul Lazarte,MD Fern Litman-Mazo, MD Geeta Mathur, MD Tong Park, MD Anil Sharma,MD Alan Silk, MD Stephen Spurr, MD Linda Tribble, MD Rachel Troy, MD Fegegta Workie, MD Adult Congenital Heart Clinic Tracy Cox, RN, MSN Clinical Coordinator 703.776.3599 Pediatric Cardiac Services Meghan Edwards, RN, FNP-BC Pediatric Cardiovascular Surgery Nurse Practitioner 703.776.6552 Beth Suddaby, RN, MSN Quality and Outcomes Clinical Nurse Specialist 703.776.6920 Cardiac Child Life Services Tracy Marrs, CCLS Cardiac Child Life Specialist 703.776.2731 Center for Coordinated Fetal Care Specialized Transport for the Region’s Sickest Children At Inova Children’s Hospital, we understand that sick infants and children need special care. We also understand that our region’s sickest children need specialized transport to our hospital. One Call transfer system coordinates Inova Children’s Hospital’s critical care pediatric ambulance, PHI Aircare, and the transfer and intake process for the region’s sickest children. It takes just One Call to 877.900.9KID (9543) to transfer a child to Inova Children’s Hospital. The state-of-the-art mobile intensive care unit is available 24-hours a day, year round, for the children of our community. The ambulance is able to provide care from the most basic to the highly advanced with its dedicated team of critical care medics and EMTs—with nurse practitioners, neonatal and critical care pediatric nurses, and respiratory therapists available for patients needing a higher level of care. In addition to its highly trained team, the unit is outfitted with leading-edge equipment, including invasive and non-invasive cardio-respiratory monitoring, ventilators, emergency medications, chest drainage systems, and the capability to use nitric oxide and heli-ox if needed to provide safe transport of the patient. PHI Aircare transports patients by helicopter to Inova Children’s Hospital from within a 200 mile radius. The helicopters, equipped as flying emergency intensive care units, contain monitoring equipment, ventilators and defibrillators, allowing nurses and paramedics to begin treatment while in route to the hospital. Kelly Gallo, RN, Patient Navigator 703.776.6371 or [email protected] Single Ventricle Clinic Jaime Langdon, RN Patient Navigator 703.776.5049 inova.org/childheart 19 The Future of Children’s Care in Northern Virginia Inova Children’s Hospital and Inova Women’s Hospital officially broke ground in 2012 for a state-of-the-art, 12-story, and 665,000-squarefoot space dedicated to the health of women and children in Northern Virginia and the greater Washington metropolitan region. The hospital will include an expanded 108-bed neonatal intensive care unit, and all-private rooms. Entrance design 20 Potom ac R. Pediatric Cardiac Outcomes Lovettsville ■ The Neonatal in the highlyIntensive Care complex care that Hillsboro Recent Unit was the first pediatric heart develop Poolesville a specific Achievements Purcellville Hamilton in the nation to patients receive. algorithm of care Leesburg 7 receive the Joint Shelly Fleischer, for premature ■ The Melody Rockville 95 Commission’s PA, has also infants with patent Transcatheter Loudoun County Gold Seal of joined the team. ductus arteriosus Pulmonary Valves Ashburn Approval for the Shelly leads the (PDA). are now an option Kensington 495 Potomac 50 Sterling 7 Silver Spring care of specific program’s Single This algorithm for children Bethesda Middleburg newborns needing Ventricle Clinic, guides physicians and adults with Reston McLean Arcola specialized care. which provides in determining congenital heart 50 Falls Church continuing care which children are defects. Children ■ The ECMO Arlington Washington D.C. Chantilly for for children with best candidates 66and adults now Program held The Plains Fairfax hypoplastic left surgical ligation. have a minimally Centreville its first on-sight heart syndrome invasive treatmentHaymarket ■ The 3nd Annual training program Annandale Inova Children’s Hospital Burke or other forms of option for 3300 Gallows Road Pediatric for ECMO Alexandria Fairfax F xC Co Cou County ou Manassas Park Church, VA 22042 single ventricle pulmonary Falls valve 395 Franconia Cardiothoracic specialists to inova.org/childheart physiology. Manassas replacement, Mount Vernon prepare nurses CME Conference Cardiology worked Waterford together to 15 saving them from facing difficult open heart surgery. Newington ■ Tom Hougen, and respiratory Lake Ridge Occoquan Congenital Heart MD, led a team therapists in this Prince William a County Woodbridge Disease: Maternal including Lucas role. Calverton Dale City Fetal Medicine was Collazo, MD, James ■ Inova Children’s Indian Head Montclair held in September Konigsberg, MD, Hospital joined the Dumfries 2011. Ruben Munoz, CPA, Cardiac Imaging National Pediatric This event is made Quantico Russell D’Sa, RCIS/ Cardiology Quality The basis of diagnosis Inova Children’s Hospital –World-Class Heart Care, Conveniently Located RCVT and clinical possible by the Improvement and Shapiro Heart nurse specialist treatment of congenital inCollaborative—a Northern Virginia Education Fund. Beth Suddaby on group that is heart Inova Children’s Hospital Heart Program provides the full spectrum of diagnostic anddisease interventional a medical mission currently focused is the use of ■ The Inova cardiac services as well as electrophysiology, cardiac and thoracic surgery. To refer a patient to Ecuador. The on improving care imaging to the Children’s Hospital Inova Children’s Hospital Heart Program, call 703.776.6552. team was able to for patients with techniques to visualize Heart Program was perform hypoplastic left anatomy joined by Meghan life-saving cardiac heart and understand the Edwards, Follow us on Facebook at surgery and unique FNP-BC, who facebook.com/inovachildrensheart interventional physiology of each patient or scan this coordinates quick-response code cardiac congenital care between catheterizations on patient. Inova Children’s cardiology, cardiac children with little syndrome. Hospital surgery, or no resources or uses all possible and other ■ Neonatology access to care. modalities disciplines involved and Pediatric Patient Referral: 703.776.6552 Nokesvilleon the topic of Brentsville inova.org/childheart Inova Children’s Hospital Heart Program G31648/11-12/20,000 inova.org/childheart
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