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NAMI IOWA CMHC UPDATES:
Resources for those who care for and about
children with mental health needs
January 1, 2015 Edition
In this Issue:
For Kids and Families
 Happy New Year! Help and Hope for 2015…
 NAMI KIDS Activities
 Other Fun Activities
For Parents and Guardians, Providers and Educators:
 Make your Voice Heard (Opportunities for Advocacy)
 Knowledge is Power (Upcoming Classes and Conferences)
 Support Groups / Events
Online (Iowa Wide)
Council Bluffs Area
Des Moines Area
Iowa City Area
North Central Iowa
 Resources
 Current Studies Looking for Participants
Non-English Resources
 Recursos en Español (Spanish)
 Tài bằng tiếng Việt (Vietnamese)
Brought to you by the NAMI IOWA Children’s Mental Health Committee: A voice for families
of children with behavioral, emotional, developmental, neurological, or mental health needs.
Working in Partnership with:
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Please help us make this resource more complete by sending information about
support groups and other Iowa resources to: Tammy Nyden at
[email protected]
For Kids and Families:
Happy New Year! Help and Hope for 2015…
Happy New Year to all of you! The holiday season has ended, and we can all get back our
regularly scheduled programs (phew!). Listed below are some resources that may help
2015 get off to a great start…
Mental Health Crisis Planning for Children Workbook
This booklet will help you understand what can cause a crisis, the warning signs of a crisis,
the strategies to help de-escalate a crisis, resources that may be available and how to create
a crisis plan.
http://www.childcrisisresponsemn.org/wpcontent/uploads/2012/01/KidsCrisisBooklet10.25.10.pdf
Medicaid for Kids with Special Needs
If your child is on the Children's Mental Health Wait list and your child is not covered by
Medicaid Title 19, there is another coverage they may qualify for: Medicaid for kids with
special needs. To qualify, your family income must be no more that 300% of the poverty
level (for Title 19 eligibility requires no more that 195%.) So those that do not quality to
Title 19 might qualify to Medicaid for Special Needs - (See Flyer Here):
Mental Health Parity – Know When Your Insurance Company is Breaking the Law
This website explains the law of mental health care parity and how to know when you
insurance is breaking this law by denying mental health coverage for your child:
http://www.communitycatalyst.org/resources/publications/document/parityissue-brief-FINAL-12-9-14.pdf
Organization for Autism Research is pleased to announce the release of the latest
installment of our Life Journey Through Autism series, A Guide to Safety, which is now
available online. A Guide to Safety was written by parents, first responders, educators, and
community members who share their strategies and resources to address safety threats
that commonly arise during childhood, adolescence, and adulthood. This tool will educate
parents about how to prevent and mitigate emergency events, safety threats that may
affect their child in the future, and how to teach safety habits that will build a foundation
for safety in adulthood.
Winter Blues: Seasonal Affective Disorder and Depression – by healthychildren.org:
For some children, the change in season brings with it a shift in mood. Is it a passing phase,
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or something more serious? Here’s what you need to know about depression, SAD, and
your child. http://www.healthychildren.org/English/health-issues/conditions/emotionalproblems/Pages/Winter-Blues-Seasonal-Affective-Disorder-and-Depression.aspx
Support NAMI when you shop, all year long! When you purchase items on Amazon.com
please use this address so .5% of the purchase price will go to help NAMI fund its free
educational programs and advocacy efforts: http://smile.amazon.com/ch/23-7084780
NAMI KIDS Activities
NAMI KIDS ADVOCACY THROUGH ART
We invite children, teens, and young adults (through age 21) to submit artwork that
expresses:
1) What a good day feels like and / or
2) What a bad day feels like. (You may submit either theme, both in one piece or one of
each.)
This is your chance to show Iowa Decision Makers the importance of children's mental
health through your creativity. The artwork will be displayed throughout the 2014-2015
advocacy season at NAMI events (including the NAMI Capital Day, Legislative Listening
Forums, Press conferences, on advocacy materials and online.)
Please send a digital copy, photo or video of your art, poetry, performance, etc., to
[email protected] or mail artwork (not larger than a legal size)
envelope to:
NAMI Iowa
Advocacy Through Art
5911 Meredith Dr., Suite E
Des Moines, Iowa 50322-1903
Entries must be accompanied by this Acknowledgement and Release Form:
Acknowledgement and Release Form for
First name of child
______________________________________________________
Full name of parent or guardian
_______________________________________
Mailing Address
_________________________________________________________
____________________________________________________________________________
Phone
____________________________________________________________________
Do you want to pick up the artwork after the advocacy season? (In June 2015)
_____ Yes
_______ No
I _______________________ (name of guardian) give permission for my child's ____________________
(name of child) artwork to be displayed at NAMI events and for photos / videos of the
artwork to be displayed online or in the media. I understand that the artwork will be
displayed with the first name and county of the artist. ___________________________________________
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(guardian signature and date)
***Artwork is now being accepted. The last day to submit has been extended to January
30, 2014.
Other Fun Activities
Super Hero Nights for Families with Children with Special Needs
Iowa Children’s Museum – No cost.
The last Sunday of each month from 6:00-7:30 PM.
Super Hero Night is designed especially for families with children who have special
needs. During this special museum time, our Playing is Learning environment will be
quieter with fewer guests and feature specially designed play activities that have been
adapted to be inclusive. For more information: http://www.theicm.org/whatshappening/super-hero-night
Camp High Hopes Spring 2015 Sessions
Register now for Camp High Hopes Spring 2015 programs available for youth and adults!
Camp High Hopes offers camp sessions focused on providing a fun, safe, adaptive
recreational environment for people with disabilities, their friends, and families. Fall
sessions
will
be
offered
September
through
December.
http://camphighhopes.com/programs/
Courage League Sports Check it out!
http://www.courageleaguesports.com/en/programs/
For Parents and Guardians,
Health Care Providers and Educators:
Make Your Voice Heard:
Parents Creating Change Facebook Group
https://www.facebook.com/pages/Parents-Creating-Change-in-Iowa/
We use this space to communicate about advocacy resources and opportunities. We share
information and support that helps us in advocating for our individual children in the
schools and health care system. Further, we share opportunities for political advocacy to
bring about positive change for Iowa’s children with mental health needs. To join, e-mail
[email protected] with “join advocacy group” in the subject line and we
will send you an e-mail invitation to join. (This is a closed group to protect the privacy of
the posts.)
Follow NAMI CMHC on Twitter and Facebook for advocacy opportunities to improve
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children’s mental health care in Iowa:
Twitter: @cmhcIowa
Facebook page: Parents Creating Change in Iowa
Opportunities to be an advocate for your child 2015-2016
https://www.facebook.com/grassley - link to Senator Grassley's page, where you can find
when he will be in your county. He is kicking off his 99 county tour of meetings to speak
with the people! If you would like a chance to share your story with him, please look up
when he will be in your area.
Public Meeting on Prior Authorization Rule for Medications
Tuesday, January 6, 2015 Time: 10:00 AM
Location: Iowa Insurance Division Office, Two Ruan Center, 4th Floor, Des Moines
Olmstead Task Force Meeting
Friday, January 9, 2015 Time: 9:30 AM - 3:30 PM
Location: Pleasant Hill Public Library, 5151 Maple Drive, Pleasant Hill
NAMI GDM Board Meeting
Wednesday, January 14, 2015 Time: 4:30 PM - 6:00 PM
Location: Central Iowa Shelter & Services, 1420 Mulberry, Des Moines
MHDS Commission meeting
Thursday, January 15, 2015 Time: 9:30 AM - 3:00 PM
Location: United Way Conference Center, 1111 9th St., Des Moines
AMOS Mental Health and Substance Abuse Workgroup Meeting
Monday, January 19, 2015 Time: 4:00 -5:00 P.M.
Location: Central Presbyterian Church, 3829 Grand, Des Moines
Survey for parents: The National Federation of Families for Children's Mental Health
(FFCMH), together with the REACH Institute, would like to know more about your
experience as the parent of a child who has received mental health services. We want to
know if you are given a full range of treatment options and if you know what type of
treatment your child is receiving. Please take 10 minutes to complete this anonymous
survey. We will use the information we gather to develop strategies for helping families get
the best mental health treatment for their children. We believe that parents need to be fully
informed about the type of treatment their child is receiving so that they can make
informed decisions on the effectiveness of that treatment.
To complete the survey, just click on the link below:
https://www.surveymonkey.com/s/FFCMH-REACHFamilySurvey
5th Annual Autism Awareness & Advocacy "Day on the Hill"
February 5, 2015 Time: 8:00 AM - 1:00 PM
Iowa State Capitol
Des Moines, IA
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For more information go to http://autismia.com/event/asi-day-on-the-hill/
March 19: Mental Health Capital Day
Des Moines, Capital Building, Come join NAMI and others to show our state government
how important children’s mental health is to us. Bring the kids and wear green (the Color of
children’s Mental Health.) Artwork from the Art Through Advocacy program will be
displayed on the Rotunda. What a great field trip and lesson in civics for the kids. Nothing
beats families speaking to our legislators to help them understand the challenges Iowans
face and what better way to teach our children to self-advocate.
Advocating for Change Day
April 22, 2015 - Save the Date
ID Action
Iowa State Capitol
Paint the State Green Campaign
Mission: To raise awareness and increase the importance for children and adolescent
mental health issues. http://paintthestategreen.weebly.com
Knowledge is Power: Upcoming Classes and Conferences
January 2014: FAMILY TO FAMILY IOWA TO ROLL OUT PARENT MENTORING
INITIATIVE
Parents as Partners in Mentoring
Family to Family Iowa, a project of ASK Resource Center, is launching a parent to parent
mentoring initiative called Parents as Partners in Mentoring-a statewide network of
parents providing support to other parents of children with a disability or special health
need. The goal of Parents as Partners in Mentoring is to empower parents by giving them
the skills and supports needed to help their child reach their full potential. Parents are
matched with trained, volunteer parent mentors who offer their knowledge and
experience, provide guidance and emotional support, and serve as a valuable "been there
before" resource to parents of children with a disability or special health need. The first
parent mentor training workshop will be held in January 2015 in Davenport.
For detailed information about this initiative, or to schedule a free parent mentor training
workshop in your area, contact Paula Connolly, Family to Family Iowa Project Coordinator
at ASK Resource Center, [email protected] or (515) 243-1713. Click here for the
flyer.
NAMI GDM Monthly Education meeting
Tuesday, January 13, 2015 Time: 6:30 to 7:30 PM
Topic: Essential Oils
Location: former Green Grounds Cafe in Valley Junction, West Des Moines
January 14, 28, February 18, March 4, 8-4:30 pm: OTTUMWA RESPECT TRAINING TO
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START IN JANUARY
CEUs and other training credits now available! RESPECT training is a four-day program
focused on training participants in relationship building and conflict resolution. This
training is ideal for family members, educators and other professionals who serve on IEP
teams.
Location: Bridgeview Center, 102 Church Street, Ottumwa, IA 52501
Foster Parent In-service Credit: 24 credits
Social Work Credit: 24 credits
Graduate Credit: 2 credits
RESPECT training is FREE of charge for all participants. All meals and training materials
will be provided, and the following stipends are available:
Parent stipends ($50 per day)
Educator stipends to defray the cost of substitute teachers (up to $100 per day)
To register go to askresource.org or call Ashley at ASK Resource Center (515) 243-1713
or toll-free (800) 450-8667
January 29: (6:30-8:00 pm): Collaborative Autism Team: Topic: Peer Awareness &
Bullying
Education Services Center
1725 N. Dodge St., Iowa City
Professional Development Center, Rooms A&B
Purpose: Provide an avenue for parents to have an open dialogue with the Iowa City
Community School District administrators and staff regarding best practices for students
with autism spectrum disorders, and share information about resources and learning
opportunities. The goal is improved outcomes for all ASD students, so these meetings are to
focus on the big picture rather than personal stories. If you know or work with a student on
the autism spectrum, please come!
Paraeducators please note: attendance CAN be counted toward your 12-hour inservice
requirement.
February 4: (6:30pm-8pm): University of Iowa Children’s Hospital Autism Center
Presents:
Understanding Autism: Practical Help for Parenting Children with Autism 2015
Workshop Series
“How to Change Challenging Behavior at Home Using Coaching through Telehealth”
In this presentation, we will summarize the results of projects conducted directly in
children’s homes, in regional outpatient clinics using telehealth, and in the children’s
homes using telehealth. In all projects, parents, with coaching from trained applied
behavior analysts, conducted functional
analyses (FA) of their children’s problem
behavior, then implemented functional communication training (FCT) to replace problem
behavior with more appropriate communication. Parents across all projects achieved
reductions in problem behavior of around 90% and rated the FA + FCT program as being
very acceptable. A description and summary of these results will be presented along with
video clips showing several parents working with their children. The speakers will be
available for a question and answer session immediately following the presentation. To
register for a workshop email: [email protected] or call: 319-467-5658.
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Basics to Start February 6th in Davenport
Location: Rick’s House of Hope, 5022 Northwest Blvd., Davenport
Dates: February 6 through March 12 (Thursdays)
Time: 6:00-8:30 PM
Contact: [email protected]
March 5: (6:30-8pm): University of Iowa Children’s Hospital Autism Center Presents:
Understanding Autism: Practical Help for Parenting Children with Autism 2015
Workshop Series “Understanding Your Child’s Unique Way of Thinking and Visual
Strategies to Support this Thinking Style”
Each and every day parents, teachers and family members see the unique thinking style of
children with ASD. In recent years information has centered on understanding this thinking
style. In this presentation we will look at how Executive Functioning, Theory of Mind and
Central Coherence skills impact thinking. These titles may sound daunting, but when
understood clearly help us see why visual supports are so effective in helping individuals
with ASD. Upon leaving, you will not only have a greater understanding of how your child
sees the world (and why) but you will also walk out the door with tools ready to use. To
register for a workshop email: [email protected] or call: 319-467-5658.
March 5-6, 2015: Brain Injury Alliance of Iowa Conference
23rd Annual Best Practices in Brain Injury Services
"Making a Difference When Everything is Different"
Sheraton Hotel, West Des Moines, IA
April 2, 2015 (6:30-8:00 pm): Collaborative Autism Team: Topic: STAR & LINKS
Examined
Education Services Center
1725 N. Dodge St., Iowa City
Professional Development Center, Rooms A&B
Purpose: Provide an avenue for parents to have an open dialogue with the Iowa City
Community School District administrators and staff regarding best practices for students
with autism spectrum disorders, and share information about resources and learning
opportunities. The goal is improved outcomes for all ASD students, so these meetings are to
focus on the big picture rather than personal stories. If you know or work with a student on
the autism spectrum, please come!
Paraeducators please note: attendance CAN be counted toward your 12-hour inservice
requirement.
May 2, 2015 (8:00-5:00 pm): “Together We Can: Conference”
Des Moines, Iowa
Organized by ASK Resource Center
For more information: http://www.askresource.org/events-trainings.html
Support Groups / Events
New Online Support Group: NAMI IOWA Casserole Club (NICC)
To join, e-mail [email protected] and an e-mail invitation will be
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sent to you. We are a support group of parents and caregivers of children with mental
health needs in Iowa. This is a safe place to find support and understanding. We are not
"Casserole moms" - as they say, that is, when your child is seriously physically ill, it is
common for neighbors, friends, and community members to bring casseroles, offer to help,
etc. But when your child has a serious mental illness or mental health crisis, people often
do not know how to respond and often simply don't. So let us be a casserole club - let us
offer those needed kind words of encouragement, a listening ear, and yes, maybe even from
time to time casseroles! In supporting each other in times of crisis, we can model for our
friends and communities how to help families dealing with mental illness and help them
see that our needs are much the same - to be supported, and not isolated, when crisis
occurs. Please feel free to invite others to join - this group is limited to those in Iowa who
are primary care givers to children with childhood-onset mental illness / brain disorder. It
includes foster parents, grandparents, relatives, etc., that are involved in the daily care of
the child. This is a Facebook "secret" group with two purposes: 1) to be an online support
group, 2) to help people network and form in-person support groups in their area. The
"secret group" setting means that no one outside of the group can see our posts or who is in
the group. It also means that people will not be able to search Facebook to find us. Any
group member can invite another to join the group. All Iowa caregivers to children with
mental health needs are welcome to join – so please spread the word.
AMOS is in need of volunteer school mediators
School Mediation Training Scheduled
Wednesday, January 14, 2015
Plymouth Church, 42nd & Ingersoll, Des Moines
8:30 am -4:30 pm
Council Bluffs Area
Family Support Group
Last Tuesday of each Month: 7:00-8:30 pm
Alegent Creighton Health, The Peer Connection, 622 South 4th Street, Council Bluffs,
IA
Do you have a child or loved one with a mental illness? Join our Support Group for Families
to find help and support. For more information, call 402-689-5913
Des Moines Area
Adoption Support Group
First Thursday of each Month: 6:30-8:30 pm
8600 NW 16th Street, Ankeny, IA 50023
At the Tri-B Farm Horse Ministries, a non-profit Christian organization. Childcare is
available with trained providers and the children get to work with the horses while parents
talk.
Eating Disorder Coalition of Iowa (EDCI) - Parent Support Group
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2nd Monday & 4th Sunday - Parent(s) who have a loved one struggling with an eating
disorder and would like to connect in a supportive effort with other parents
Website: www.edciowa.com
Location Our Lady's Immaculate Heart Church
Address: 510 E. 1st St, City: Ankeny, IA
NAMI - Parents and Caregivers Support Group - 4th Monday
4th Monday of the month 5:30 - 7:00 pm
A support group for Polk County parents and caregivers of children and adolescents with
severe emotional disturbance (SED) or mental illness
Location: Capitol Hill Lutheran Church
Address: 511 Des Moines St, City: Des Moines, IA
Iowa City Area
Parent Support Group and Parent Education Classes
Saturdays 9-10 am Children’s Center for Therapy, 1552 Mall Drive
Offered by Children’s Center Charities
The group is free and open to all parents and caregivers who have a child with a disability
or suspect that their child has a disability. No registration needed, but to register for the
free childcare, please call 319-351-5437. For information on dates and topics:
http://childrenscenterfortherapy.org/charity/parent-support-group/
Parent Manantial Hispanic Support Group
Every other Friday from 11-1 pm. Children’s Center for Therapy, 1552 Mall Dr.
Meetings conducted in Spanish
Offered by Children’s Center Charities
Grupo Manantial is a Hispanic parent support group for children with special needs. More
specifically, we target families with children age 0-5 years old. Our goal is to have a place to
meet where parents can find the support and understanding no matter the circumstance. A
family oriented group who work together on building relationships with one another and
being supportive in any way possible. We work on parent education and advocacy. We have
relationships throughout the community and strive on helping and understanding our
children.
Iowa City Area Autism-Asperger Syndrome-PDD Family Support Group
Monthly Meeting
Parkview Church, 15 Foster Road, Iowa City
First Tuesday of every month at Noon – 2pm
Contact: Meigen Fink, 319-339-1866, or Kathleen Kingman, 319-930-9424
North Central Iowa
NAMI North Iowa Caring & Sharing Support Group
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Support Group for family members of children or adults diagnosed with mental illness.
Meets the 2nd Saturday of every month from 9:00 to 10:00 a.m. Contact: Joan Sunde 641590-5436
120 First Street N.E., Mason City, IA, 50401 641- 590-5436
Opportunity Village Family 2 Family Connect Support Group
A support group for parents and caregivers of children with Autism. For information about
the support group or Children's Autism Center, contact Christina Maulsby, project
coordinator, at 641-355-1216.
http://www.oppvill.org/Childrens_Autism_Center.php1200 North 9th Street
Clear Lake IA, 50428 641-355-1216
Resources
NAMI IOWA Children’s Mental Health Resources
A Free E-Book that is an introduction to mental health services, resources, and support for
families of children and teens in Iowa.
http://nami.netimagegroup.netdna-cdn.com/wp-content/uploads/CMHR.pdf
NAMI IOWA Children’s Mental Health Committee
A Voice for families of children with behavioral, emotional, developmental, neurological, or
mental health needs.
http://namiiowa.com/about-us-2/childrens-mental-health-committee/
Access for Special Kids (ASK) Resource Center
“One-stop-shop” for children and adults with disabilities and their families providing a
broad range of information, advocacy, support, training, and direct services.
www.askresource.org / 515-243-1713 or 800-450-8667
American Academy of Child & Adolescent Psychiatry: When to Seek Help for your
Child:
http://www.aacap.org/AACAP/Families_and_Youth/Facts_for_Families/Facts_for_Families
_Pages/When_To_Seek_Help_For_Your_Child_24.aspx
ARC of Southeast Iowa
Provides services and programs for children and adults with intellectual and
developmental disabilities and their families.
http://www.thearcjc.org / 319-351-5017=
Autism Society of Iowa
Provides advocacy, support and information to individuals with autism spectrum
disorders, their families and professionals.
www.autismia.org / 515-327-9075 or 800-722-4799
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Autism Support Program
This program is sponsored by Magellan Behavioral Care of Iowa and the Iowa Department
of Human Services. It begins on April 1, 2014. The program pays for applied behavior
analysis (ABA) services.
http://www.magellanofiowa.com/benefits-and-services-ia/autism-support-program.aspx
Brain Injury Alliance Iowa
Brain injury prevention, advocacy, education, research, and support.
http://www.biaia.org / 1-855-444-6443
Bright Futures:
Bright Futures is a national health promotion initiative dedicated to the principle that
every child deserves to be healthy and that
optimal health involves a trusting relationship
between the health professional, the child, the family, and the community as partners in
health practice. Launched by HRSA's Maternal and Child Health Bureau in 1990, the Bright
Futures initiative is focused at the American Academy of Pediatrics and a collaborative of
other federally- and State-funded Bright Futures projects. http://www.brightfutures.org
Cameron Carico + 10 Foundation
Promote happy and healthy students and families in Central Iowa through suicide
prevention and mental health education.
http://www.ccplus10.org
Child Health Specialty Clinics (CHSC)
The Mission of Child Health Specialty Clinics (CHSC) is to improve the health, development,
and well-being of children and youth with special health care needs in partnership with
families, service providers, communities, and policy makers.
Whom we serve
CHSC serves children and youth, birth through 21 years of age, who live
in Iowa and have a chronic condition (physical, developmental, behavioral, or emotional)
or are at increased risk for a chronic condition and also have a need for special services. For
more information contact (866) 219-9119. (Also see Regional Autism Assistance Program
below.) http://www.chsciowa.org
Child Welfare Emergency Services
http://dhs.iowa.gov/Consumers/Child_Welfare/BR4K/CWES/Child_Welfare_Emergency_S
ervices
Disability Rights Iowa
Gives Information on human and legal rights related to public education, employment
opportunities and residence or treatment in the least restrictive environment.
http://www.disabilityrightsiowa.org / 800-779-2502 or 515-278-2502
Eating Disorder Coalition of Iowa
A centralized resource for prevention, hope and resources for Iowans impacted by eating
disorders.
www.edciowa.org / [email protected] or [email protected]
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FIND (Families of Iowa Network for Disabilities) is an interactive social networking site
designed to give families of youth with disabilities a new way to make connections.
www.findfamilies.org
Foundation 2
Offers crisis intervention programs.
www.foundation2.org / 319-362-2174
Healtychildren.org: Powered by pediatricians. Trusted by Parents. From the
American Academy of Pediatrics.
There is a special sections on ADHD, Developmental Disabilities. Learning Disabilities, and
Emotional Problems
HCBS Habilitation Services Program
Iowa Home and Community Based Waiver program for mental illness.
www.ime.state.ia.us/HCBS/HabilitationServices
IEP Bootcamp: Getting Ready for your Child’s IEP Meeting:
http://www.understood.org/en/school-learning/special-services/ieps/iep-boot-campgetting-ready-for-your-childs-iep-meeting
InfoNet
Provides Iowans with disabilities the information they need to take action.
www.infonetiowa.com
Integrated Health Homes (IHH)
IHH is a community-based program available to children who have Medicaid. The IHH will
help coordinate all of your services or your child’s services and make sure you get the
services you need. Benefits of joining include:
 A peer who knows what it might be like to walk in your shoes
 A nurse who can help make sure you are getting or staying healthy
 A care coordinator who can work with you to get the services and supports you
need
To find an IHH near you: http://www.magellanofiowa.com/benefits-and-servicesia/integrated-health.aspx
Iowa 211
Iowa’s informational and referral database for health and human services.
http://www.211iowa.org/ Call 2-1-1
Iowa Area Education Agencies
Regional service agencies which provide school improvement services for students,
families, teachers, administrators and their communities. See Parent $ Educator Connection
program below.
http://www.iowaaea.org
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Iowa Association of Community Providers
Information to locate a provider of mental health, residential and vocational services in
Iowa.
http://www.iowaproviders.org/ 515-270-9495
Iowa Consortium for Mental Health
Conducts and supports mental health services research focusing on the occurrence,
recognition, and treatment of serious mental illness in community-base setting.
www.ICMentalHealth.org / 319-353-5436
Iowa Department of Human Service (DHS)
Division of Mental Health
Information about the Division of Mental Health and Developmental Disabilities and county
plans/policies and procedures; staff contact; and links to other disability resources or the
Iowa Dept. of Human Services
Resource to all parties involved in the delivery of
psychological services for people eligible for Medicaid in Iowa
www.dhs.state.ia.us / 515-281-5874
Iowa Department of Public Health
The Iowa Department of Public Health (IDPH) partners with local public health,
policymakers, health care providers, business and many others to fulfill our mission of
promoting and protecting the health of Iowans.
www.idph.state.ia.us / 515-281-7689
Iowa Developmental Disabilities (DD) Council
Gives people affected by disability the information, skills, and confidence to stand up and
take action.
http://iddcouncil.idaction.org / 515-281-9082
Iowa Federation of Families for Mental Health
Offers guidance, resources, and direct support to parents, guardians, and caregivers of
children / adolescents who may experience social, behavioral, learning differences, or
mental health needs.
http://www.iffcmh.org / 319-462-2187
Iowa Foster & Adoptive Parents Association
Includes useful links to special needs and disabilities resources.
515-289-4567 or 800-277-8145
www.ifapa.org
Iowa Legal Aid
Along with attorneys from Volunteer Lawyer Projects, helps those facing basic issues of
health, safety, and survival.
www.iowalegalaid.org / 800-532-1275
Iowa Legislature General Assembly
Senate Switchboard 515-281-3371
House
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Switchboard 515-281-3221
Information on the Iowa Legislature including bills, legislators, and history.
www.legis.state.ia.us
Iowa Medicaid Enterprise
An endeavor that unites State staff and “Best of Breed” contractors into a performancebased model for administration of the Medicaid program. Medicaid is a state/federal
program that provides health insurance for certain groups of low-income people.
www.ime.state.ia.us / 515-725-1001
Iowa Office of Consumer Affairs
The Office of Consumer Affairs offers a variety of services and supports to other state
agencies, providers and persons and families with behavioral health recovery and
disabilities challenges.
http://ocaiowa.org 515-281-7274
Iowa Parent Information Resource Center
Linking Iowa parents and educators for student success.
http://www.iowaparents.org/
Iowa Program for Assistive Technology
http://www.iowaat.org
Iowa Safe Schools
Works to improve the school climate to increase the personal safety, mental health, and
student learning of lesbian, gay, bisexual, transgender, and questioning (LGBTQ) students
through public awareness, education, and policy.
http://www.iowasafeschools.org/ 515-729-4121
Iowa Tourette Syndrome Association Support Group
A state-wide support group with monthly meetings that move around the state. A source of
a lot of valuable information.
http://www.itsasupportgroup.org/319-551-1127
Learning Disabilities Association of Iowa (LDA)
http://www.lda-ia.org/ 888-690-5324
Magellan Health Services: Iowa Plan for Behavioral Health
Healthcare management company in charge of state mental illness Medicaid recipients’
care.
http://www.magellanofiowa.com/ 800-317-3738
National Association of Social Workers, Iowa Chapter
Ethics plus information
515-277-1117
http://www.iowanasw.org/
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Online Mental Health Training
The challenging behaviors of children with mental health concerns present both difficulties
and opportunities for home and school. Through participation in this three-part interactive
online instructional program, parents and caregivers will gain both competency and
confidence in improving their child's behavior and serving as an ongoing advocate. They
will actively develop written plans for immediate use.
http://www.understood.org/en/school-learning/special-services/ieps/iep-boot-campgetting-ready-for-your-childs-iep-meeting
Organization for Autism Research
The Organization for Autism Research (OAR) was created in December 2001–the product of the
shared vision and unique life experiences of OAR’s seven founders. Led by these parents and
grandparents of children and adults on the autism spectrum, OAR set out to use applied science
to answer questions that parents, families, individuals with autism, teachers and caregivers
confront daily. No other autism organization has this singular focus.
http://www.researchautism.org
Parent & Educator Connection program (PEC)
The PEC program in each AEA is staffed by a parent who has experienced having a child
with disability and on an IEP and an educator whose expertise is special education – who
are paired to work together in order to provide information, supports, referral to
community supports and connections to other supporting activities that are topical and
important to families and educators. The connections help develop the partnerships that
support families and student in navigating the educational systems. Find a link to your AEA
program at:
https://www.educateiowa.gov/pk-12/special-education/parent-information/parenteducator-connection-pec#AEA_Contacts/
Regional Autism Assistance Program (RAP)
The Regional Autism Assistance Program (RAP) connects families to services for their child
with Autism Spectrum Disorder (ASD).
RAP team members who work with families are:
Advanced Registered Nurse Practitioners (ARNPs)
Registered Nurses (RNs)
Family Navigators (FNs)
The RAP teams use standardized screening tools to identify children at risk for ASD and
help to find diagnostic services. RAP teams are committed to ensuring that Iowans ages 021 years with ASD have access to care coordination services and family-to-family support
in their community.
1-866-219-9119, ext. 2
E-mail: [email protected]
www.chsciowa.org/regional-autism-assistance-program.asp
Tanager Place
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2309 C Street SW, Cedar Rapids, Iowa 52404
Since 1879, Tanager Place has been focused on helping children and families through
mental health treatment, prevention, and research. Today, Tanager Place provides an
extensive array of innovative programs designed to help at-risk children with behavioral,
emotional or psychiatric disorders achieve success. More than 4,000 children each year
find healing through Tanager Place’s comprehensive outpatient Mental Health Clinic,
inpatient, and community-based programs.
www.tanagerplace.org
/ 319-365-9164
Transitions
Preparing youth with disabilities for life after high school and connecting with others.
www.mytransitioniowa.org
/ 515-281-0275 or 800-532-1486
Trauma Informed Care: Perspectives and Resources: A Comprehensive Web-based,
video-enhanced resource tool: This tool comprised of issue briefs, video interviews, and
resource lists tells a story of implementation of trauma informed services and offers
guidance and resources to help you on your implementation journey. The video interviews
are of national, state, tribal, and local leaders in many child-serving systems; developers of
evidence-based treatments and practices; physicians; researchers; administrators of
provider organizations; clinicians; youth and young adults; families; and advocates who
share lessons learned and identify remaining gaps. Youth and their families provide client
perspectives on the need for trauma-informed practices and the impact of traumainformed care on their lives. Stakeholders in selected states share lessons learned over a 1year period of intensive efforts to become more trauma informed. The issue briefs provide
an introduction and overview for each of the tool’s eight modules. The comprehensive
resources lists support users in understanding how to build trauma-informed systems and
organizations.http://gucchdtacenter.georgetown.edu/TraumaInformedCare/index.html
United Action for Youth
Offers programing for teenagers in the Johnson County area and their parents.
http://www.unitedactionforyouth.org/content/ / 319-338-7518
University of Iowa – Center for Disabilities & Development
Lending and resource library of materials on disability issues.
www.healthcare.uiowa.edu/cdd
/ 800-272-7713
WrightsLaw: Parents, educators, advocates, and attorneys come to Wrightslaw for
accurate, reliable information about special education law, education law, and advocacy for
children with disabilities. Begin your search in the Advocacy Libraries and Law Libraries.
You will find thousands of articles, cases, and resources about dozens of topics l New Blog
Posts - See more at: http://www.wrightslaw.com/#sthash.Yz9gtDx5.dpuf
Your Life Iowa
Hotline resource where youth, parents, school personnel and all concerned Iowans can get
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help and information about bullying and youth suicide. Available 24/7 by calling or texting.
www.Yourlifeiowa.org / 855-581-8111
Current Studies Looking for Participants
Parents of Children with ASD Wanted for Online Study
A Doctoral student in school psychology and Applied Behavior Analysis (ABA) at Ball State
University in Ohio is currently working on two research projects under the supervision of
Dr. Susan Wilczynski during which they will examine the use of web-based parent training
in ABA. The student is recruiting parents of children with Autism Spectrum Disorder living
in the Midwest to participate in an online study where parents will have access to webbased
training
in
ABA.
http://origin.library.constantcontact.com/download/get/file/1103452603579459/ParentTraining_CombinedRecruitment_final.pdf
Adolescent Study at U of I
Adolescents between the ages of 12-17 with a relative diagnosed with schizophrenia,
schizoaffective or schizophreniform disorder are invited to participate in a research study
investigating brain connectivity and development in teens. The study is being conducted at
the UI Department of Psychiatry. The study includes 2 MRI scans and requires 3 visits to
the University of Iowa Hospitals and Clinics and 4 follow-up phone calls over a 3-year
period. Compensation of $585 is available over the 3-year period as visits and follow-up
phone calls are completed. For more information, call Julie at (319) 384-6521 or [email protected]. View brochure
To search out clinical trials on all topics by state, go to
http://www.clinicaltrials.gov/ct2/results/map/click?term=Behaviors+and+Mental+Disor
ders%5BCONDITION-BROWSEBRANCH%5D&recr=Open&fund=01&map.x=163&map.y=177
For more studies, go to http://patientinfo.nimh.nih.gov/
Non-English Resources:
Recursos en Español:
Providors Cuidado y Educacion Infantil (Early Care & Education Providers Guide)
https://www.acf.hhs.gov/sites/default/files/ecd/ece_providers_guide_spanish_508.pdf
Del nacimiento a los 5! Informacion y Destacados (Birth to 5! Information & Highlights)
https://www.acf.hhs.gov/sites/default/files/ecd/b_to_5_one_pager_spa.pdf
¡Avanzamos! es la revista de NAMI para la comunidad latina. Contiene información sobre
adelantos científicos en el campo de la salud mental, historias de individuos y familias
afectados por enfermedades mentales, recursos de educación, noticias de NAMI y mucho
más. ¡Avanzamos! es completamente gratis y viene en dos formatos: Para subscribirte a la
versión impresa de esta publicación, visita la tienda virtual de NAMI NAMI Store. Para
recibir ¡Avanzamos! electrónicamente, visita www.nami.org/subscribe/ , crea una cuenta
gratuita de NAMI y elige elr ecuadro de esta publicación.
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El autismo en los niños y adolescentes
Autism in Children and Adolescents (Spanish)
http://www.dhs.state.mn.us/main/groups/children/documents/pub/dhs_id_008960.p
df
Parent Manantial Grupo de apoyo hispano Cada dos viernes 11-1 pm.
Children’s Center for Therapy, 1552 Mall Dr.
El Grupo Manantial es un grupo de soporte para padres con niños especiales.
Este es un grupo de soporte para padres con niños con capacidades especiales. Nuestra
meta es tener un lugar en donde los padres hispanos encuentren un apoyo que los ayude a
sobrellevar y entender la situación. Somos un grupo donde estamos unidos por un mismo
sentir y un mismo corazón. Estar juntos en los retos y frustraciones que implica tener un
hijo especial. En Manantial, tendrás una mano amiga extendida para ayudarte y un grupo
de soporte dispuesto a escucharte. (319) 351-5437 http://Childrenscenterfortherapy.org
Facebook: Grupo Manantial
Programa de salud pediátrica integrada (PIH, por sus siglas en inglés)!
PIH es un nuevo servicio único para los miembros de Medicaid. Es un programa basado en
la comunidad. Su hijo tiene acceso al programa a través de su proveedor de atención
médica local. Pertenecer al programa no cambia sus beneficios de Medicaid; simplemente
se agrega a ellos. El programa le ayuda a obtener servicios para todas las necesidades de
salud de su hijo. El objetivo es ayudar a su hijo a vivir de manera más saludable al enfocarse
en su salud integral.
¿Qué es la salud integral?
La salud integral es el bienestar total de la persona. Cuando los médicos consideran su
salud física y mental al mismo tiempo, se denomina "atención integral". Se centran en sus
necesidades de salud total. Esto incluye:
Salud física.
Salud mental.
Necesidades de apoyo social.
Para mas informacíon:
http://www.magellanofiowa.com/media/697611/ia_pih_caregiver_fact_sheet__spanish_.p
df
NAMI En ESPAÑOL: http://www.nami.org/template.cfm?section=NAMI_en_espa%F1ol
NAMI, la Alianza Nacional de Enfermedades Mentales (NAMI, por sus siglas en inglés), es la
organización de salud mental más grande de los EEUU dedicada a mejorar las vidas de
las personas con serias enfermedades mentales y las de sus familiares.
Tras su fundación en 1979, NAMI se ha convertido en la voz de la nación con respecto a los
trastornos mentales. NAMI es una organización nacional que incluye oficinas en cada
estado y en más de 1,000 comunidades locales, alrededor del país, las cuales se reúnen para
alcanzar la misión de NAMI a través del asesoramiento, la investigación, el apoyo y la
educación. NAMI Folleto en Espanol:
http://www.nami.org/Content/Microsites282/NAMI_Waco/Home271/About_Us130/NAM
IBrochureSpanish.pdf
Nueva York Univesrity centro de estudio del niño: Información para familias en
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español:
http://www.aboutourkids.org/espanol
Instituto Nacional de Salud Mental: Publicaciones en Español:
http://www.nimh.nih.gov/health/publications/espanol/spanish-listing.shtml
Academia Americana de Psiquiatría Infantil y Adolescente: Informacion para la
Familia:
http://www.aacap.org/AACAP/Families_and_Youth/Facts_for_Families/Facts_for_Families
_Spanish.aspx
Academia Americana de Psiquiatría Infantil y Adolescente: Various temas en
español: http://www.mentalhealthamerica.net/mental-healthinformation?body_value=&field_audiences_nid=92
Información para la Familia:
http://www.aacap.org/AACAP/Families_and_Youth/Facts_for_Families/Facts_for_Families
_Spanish.aspx
Asociación Americana de Psicología: Centro de Apoyo de APA en Español:
http://www.apa.org/centrodeapoyo/index.aspx
Tài bằng tiếng Việt
BÎnh tâm thÀn t¿ k. nÖi Các TrÈ Em và Thanh niên
Autism in Children and Adolescents (Vietnamese)
http://www.dhs.state.mn.us/main/groups/children/documents/pub/dhs_id_
008963.pdf
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