Other Sources of Scoliosis Information National Scoliosis Foundation 5 Cabot Place Stoughton, MA 02072 Call 781.341.6333 or 800.673.6922 www.scoliosis.org Scoliosis Research Society 6300 N. River Road Suite 727 Rosemont, IL 60018-4226 Call 847.823.7186 www.srs.org The Scoliosis Assn., Inc P.O. Box 811705 Boca Raton, FL 33481-1705 Call 561.994.4435 www.scoliosis-assoc.org American Academy of Orthopaedic Surgeons 6300 N. River Road Rosemont, IL 60018-4262 Call 847.823.7186 or 800.346.AAOS www.aaos.org International Federation of Spine Associations www.scoliosisrx.com American Association of Neurological Surgeons www.neurosurgery.org The Scoliosis Association (UK) www.auk.org.uk British Scoliosis Research Society www.ndos.ox.ac.uk/pzs/ A personal web site with good links about adult scoliosis: www.users.nac.net/mina/scolilin ks.html A personal web site focusing parent information relating to scoliosis: http://www.bebpublishing.com/s coliosis.html Check out Axial Biotech research (1.888.992.9425): http://www.axialbiotech.com SCOLIOSIS INFORMATION RESOURCES Pediatric Orthopaedics Yale New Haven Children's Hospital YALE-NEW HAVEN CHILDREN’S HOSPITAL We have gathered the following website links for families impacted by scoliosis for both educational and support purposes. Remember, every scoliosis patient is unique, so it is important to discuss all concerns directly with your medical provider. Yale New Haven Children's Hospital www.yalemedicalgroup.org Visit our site to learn more about scoliosis and other conditions. American Academy of Orthopaedic Surgeons www.orthoinfo.org Pediatric Orthopaedic Society of North America www.srs.org/patients Society of orthopaedic surgeons devoted to the care of children and adolescents. Scoliosis Research Society www.srs.org/patients Society of spinal surgeons specializing in scoliosis with member names available by state and country. Idiopathetic Scoliosis www.iscoliosis.com Includes many articles and information appropriate for children affected by scoliosis. Spine Kids www.spinekids.com An online community dedicated to children and parents dealing with scoliosis. 4 Copyright © 2008, Yale-New Haven Hospital. All rights reserved. Spine Health www.spine-health.com Includes in-depth coverage for many issues that patients ask about. Frequently updated; clear animations of spine anatomy, conditions and procedures. WebMD www.my.webmd.com WebMD develops strong relationships with leading healthcare information providers to deliver the most comprehensive, credible, reliable, and relevant medical information. Spine Universe www.spineuniverse.com Spine Universe came into being with the initial support and investment of spine specialists and medical companies around the country. Spine Doctor www.spine-dr.com Monitored by a group of “patient oriented” spinal surgeons across the country, this site offers many studies about spine surgery, pain management and includes a doctor’s Q&A forum. Quack Watch www.quackwatch.org Covers all kinds of health fraud and “quackery” with personal stories and studies. Johns Hopkins Hospital http://www.hopkinshospital.org/health_info/Bones/Services/ais.html This genetic study at Johns Hopkins Hospital is trying to ferret out common genes associated with Scoliosis. Get involved in this study if at least three members of your family have scoliosis in order to help prevent this deformity from being passed on to coming generations. Prescription List www.rxlist.com Detailed descriptions, usage directions, and side effects of prescription drugs approved for the US market, searchable by drug name. Learn more about the medications commonly prescribed to adult Scoliosis patients, for example, NSAIDs, pain medications, muscle relaxants, and antidepressants. 2 Patient Travel www.patienttravel.org This nonprofit organization helps to arrange and subsidize travel to medical facilities for treatment. It may be useful for the scoliosis patient who needs to travel long distances, particularly by air, to a specialized doctor for treatment. Americans with Disabilities Act 1990 http://www.usdoj.gov/crt/ada/statute.html Read the 1990 Americans with Disabilities Act found here so that you know rights as an adult scoliosis patient to obtain special devices such as chairs or accommodations such as rest breaks that can help you at your workplace. National Library of Medicine www.nlm.nih.gov This site has a searchable database with abstracts that summarize studies written by spinal surgeons specializing in scoliosis printed in the journal “Spine.” The full articles can be ordered online for a fee, or can be obtained at good medical libraries. Call ahead to see that any particular medical library is open to the public. National Scoliosis Foundation www.scoliosis.org This site provides information and links to items such as: education, information, forums, research and resources. The Scoliosis Association, Inc. www.scoliosis-assoc.org This site provides a review of different types of scoliosis types, non-surgical treatments, scoliosis facts, spinal problems, and conferences. There is also a list of support groups for Teens with scoliosis. Scoliosis World www.scoliosis-world.com Private site with scoliosis links and polls. 3