Sharing Volume 21, Issue 3 May/June 2012 touching lives... healing hearts... giving hope... Mother’s Day / Father’s Day Dear Friends, Trees are in full bloom quite early this year, and the awesome wonders of perennial flowers and green grass are popping up everywhere as spring evolves once again. Some of you may struggle with this season of resurgence, as it feels life is moving on. Your grieving heart may still feel blanketed with the dark days of winter. For others, Cathi Lammert, RN Executive Director this may be a season of hope and you may sense some new found energy. Be present to your feelings and you will evolve when you are ready. As the very special days of Mother's Day and Father's Day approach, please know you are in our thoughts. Often times, these days are two of the most difficult days of the year for bereaved parents. Over the years, parents have looked at me with tear-filled Rose Carlson eyes and asked, “Am I really a parent if my baby is not here with me?” I equate Program Director parenthood with love, the greatest kind of love. Does love stop when a baby dies? Of course not!! Our son Christopher died nearly thirty years ago, and what has amazed me is our love for him has grown, just as it has for our living children. You will always be your child/ren's parent. No one can take this role away from you. If it feels comfortable, take time to acknowledge yourselves on these special days as you deserve this recognition. This issue has many ways one could spend Mother's Day or Gina Haney Development Specialist Father's Day. Explore what feels right for you as you prepare for this holiday. Sometimes, the anticipation can be even more challenging than the day itself. Having a plan in mind may help you have some control over the day. Also, let your circle of loved ones know if you want to be acknowledged, as they may be uncertain how they can best support you. Many have asked me, “How can I best support my daughter/friend?” They also have shared with me they are afraid they Megan Nichols could hurt their child/friend more by doing something to make them cry. I always let Development & PR Director them know bereaved parents will probably cry on these days anyway, so receiving some recognition of being a parent could bring great comfort. I also have bereaved parents tell me, “People should know what I need, and it frustrates me to have to tell someone to remember us.” Trust me, most supporters feel helpless, and once they have a clearer understanding of your needs, the day might be a better one. Jaclyn Nikodym I want to bring to the professional caregiver's attention that the International Development & PR Associate Conference for Pregnancy and Infant Death is less than a year away! The event will be sponsored by Pregnancy Loss and Infant Death Alliance (PLIDA) and Association of SIDS and Infant Mortality Programs (ASIP) once again and will be held in Minneapolis, MN April 18-21, 2013. This conference has normally been hosted in the fall, but due to some conflicts of schedules, the committee decided to move it to the spring. I am honored to be one of the co-chairs. Call for speaker proposals will be available May 1. For more information, check www.plida.org or www.nationalshare.org. More details will follow soon. so mark your calendars! Jeanna O’Leary Share Group Coordinator As Mother's Day and Father's Day approaches, know that Share will remember you as the dearest of parents and will be here for you. With hope, Jennifer Stachula Administrative Assistant Cathi Lammert Contents Features... 4... A Special Dedication 5... Perspectives 6... I Am a Mother, And That’s a Fact 8... Remembrance Jewelry 9... Remembrance Jewelry / I Am Still a Mother 13... Mother’s Day... Bittersweet Day for Some Women 14... Mother’s Day Reflections .................... In Every Issue... 2... Dear Friends 7... In Memory of 10...Discussion Board 12...Mark Your Calendars . vents.. E g n i m Upco ent Tournam lf o G l a Annu Share’s 012 r 10, 2 e b m e t Sep ouis, MO L . t S , e ours k Golf C r a P t s e For r Walk fo e r a h S 012 or the 2 f n uly 1st! io t J a n r t o is s g n Re e ope e & Hop c n a r b 012 Remem er 20, 2 b y, Octo ove Saturda ilboat C a S k r oeur Pa Creve C , MO St. Louis t info for even g r .o e r nalsha tio w.na Visit ww Sharing is partially funded by Employees Community Fund of Boeing St. Louis 3 Mothers Day/Fathers Day May/June 2012 A Special Dedication… To You, on Mother's Day and Father's Day By Lisa Weber, RN Society, in general, is experiencing an evolution in recognizing the significance of the loss parents and families feel when an unborn child dies. From our silent tears of pain to our shouts of anger and resentment, bereaved families are making others sit up and take notice of our grief. The impact of the death of an unborn child is not going unnoticed by those open enough to bear witness to our struggle. Mothers, fathers, sisters, brothers, grandparents, whose empty arms long to hold a live baby, whose voices speak of the sadness of death, whose minds sometimes wander off to dreams of cooing babies, whose nurseries remain untouched and whose lives will always remember the promise of new life, are testimony to this struggle. The journey through grief is filled with ups and downs. The “up” moments don't seem to come around often enough. The “down” moments are exhausting and seem to last for days. Bereaved parents are forced to learn patience. You can't rush grief; the healing process takes time. We learn ways to accept, embrace, and even understand that death is a part of our lives. Grieving moms and dads do not “get over” their loss. We do not deny our feelings; we learn to incorporate them into our lives. Gradually, we focus on our future, as a person, as an adult, and always as a parent. Our identity is determined by many factors: What we do, the job we have, where we live, and many more factors. For some, being a parent is a major part of our identity. There are those of us who have no living children. I do not believe that makes us any less parents. We nurture our children even before they are conceived. We have dreams of the glow of pregnancy, delivering a healthy baby, the impact a child will have on us as a family, as partners raising a toddler to young adulthood. We nurture the expectations of parenthood, of being called “mommy” and “daddy.” Even though the differences in a family who have experienced death and those who have not are complex, the similarity of our desire to raise a family cannot be denied. I have a son. I have a daughter. I am a mother. I am a father. I do not take my child to the park like some parents do—but I take my baby everywhere in my heart. She was denied this earthly existence. I don't know why. He will play catch in the stars, not on the ball field. She will never shop for a prom dress at the mall, and he will never ask for the keys to my car. But they are our children nonetheless. I will wear her birth stone around my neck. I will think of him everyday. Acknowledge me on Mother's Day. Wish me a pleasant Father's Day. I need that support and acceptance as much as you. I am a parent. Mother's Day is to honor all mothers. Father's Day is to honor all fathers. As spring brings forth new life following the quiet healing of winter, let us welcome a rebirth of hope in our own lives. In recognition of childless parents, and those who have loving children but also have felt the heartache of the death of a child, this Mother's Day and Father's Day, my wish for you is one of peace, love, and to call to mind the dignity of parenthood. Share this newsletter with family and friends. It may help others understand our struggle to be recognized as unique parents. A Father’s Perspective... Perspectives Written by John Stuart, Daddy to Kieran My story is probably no different than anyone reading this newsletter. Our only child, Kieran, was born premature and only saw one sunrise. There were many hopes and dreams that went with his passing. He was our only successful conception in over 4 years of trying. So when we were originally informed of our good fortune, much of our life during those 22 weeks was focused on his arrival and preparing for our new future. How people experience their grief and how they cope is as different as snowflakes. The losses we experience are very personal and often difficult to quantify. I was devastated by the prospect of not seeing him everyday and not being able to watch him interact with the world. For the first several months, I coped by immersing myself in other distractions and withdrew from all of life's optional dealings. I lost the ability to focus on all but the simplest, singular tasks. And it hurt to experience most any emotion, good and bad. Father's Day was just 17 weeks after Kieran's birth. As it approached, I was keenly aware of its meaning and that I was now among the honored. This was not how I envisioned joining the ranks and I felt uncomfortable. This was compounded by wanting to acknowledge my own father. My child could not do the same for me. It's difficult to express how I came to grips with my emotions. I felt sorry for myself and I knew that was destructive. I needed to alter my perspective. I realized that the honor of being a father was not an external acknowledgment but in my own, internal perception. I am happy to have a son. Although he was not physically with me on Father's Day, he was with me in spirit, as he continues to be. The world doesn't have to acknowledge that I love my son, because he knows and I know. My wife also knows, and loves our son and me. We managed to make it through Mother's and Father's Days because we respect that the world is full of complex emotional triggers and these holidays are very big triggers. Our reactions to the triggers are usually different, but we're able to look beyond the reaction and see the underlying response as emotions of love and loss. Outward expression of these emotions can be manifested in negative ways. But we remember that what the other person is reacting to is valid even if the reaction seems irrational. We need to vent our emotions even if the emotional release is misdirected. There are many holidays on the calendar that are intended to cause you to pause and consider how a particular group of people has affected your life. For me, Father's Day has taken on multiple facets. I think about my son, for without him, I would not be a father. I think about my wife, for without her, I could not have a son. And about my parents, for without them I would not know what it means to be a parent. I love and am grateful for all of them. ............................................................................................................................. Mother’s Perspective... Submitted by Suzanne Phillips, Mommy to Kieran Mother's Day has been a hard, complicated day for me for many years. It's the annual reminder that, “I don't belong in the mommy club.” My husband and I struggled a long time to become parents, only to lose our precious boy. Although I am Kieran's mommy, because he lived so briefly, my “mommy credits” fall short. I feel left out of the club when I see other mothers and babies – in the park, coffee shop or congregation. I know first hand about sleepless nights, but I don't have stories of Kieran's firsts: the first time he held his head up on his own, rolled over, pulled himself up, crawled, teethed, babbled or stepped. It's hard for other mommies to listen to my baby's short story. He's not wiggling around, demanding attention. For a long time, I avoided Mother's Day. I avoided the saccharin cards, speakers and mother-daughter banquets which celebrated motherhood. Then my husband and I began to do something special that weekend without it being “mother” or “father” focused. We have gone camping, picnicked at an outdoor jazz festival, and attended local arts festivals. For me, camping has been the most successful because most families don't camp in May. It's easy to enjoy nature with our dogs as we set up camp, hike and are buzzed by local hummingbirds. Last Mother's Day (2007), the first without Kieran, friends invited us to go sailing. The focus was on friendship and catching up. They talked about Kieran. At the end of the day, they gave me a Mother's Day card – the only one I received. I cherish it as recognition of our friendship and Kieran. There are no Share support groups in our area. However, the local Children's Hospital sponsors an annual Memorial Service for bereaved parents between Mother's and Father's Days. This service is a safe place to openly remember and mourn our babies. We are not isolated. This recognition of our loss validates the pain and grief we feel, particularly when it seems the world celebrates parenthood as only having living children. Whether or not you chose to participate in Mother's or Father's Day, I recommend you take steps to care for yourself on that day. It's OK to simply avoid the whole event. It's OK to ask others for what you need. If it feels right, find a moment to remember your baby and honor yourself as your baby's parent. For these two days, my husband and I each created our own bracelet with Kieran's name, his birthstone and his animal. This creative action honored our child and our new title as parents, despite other's conflicting opinions of our parental status. In honoring ourselves as parents, we also honor our babies. 5 Mothers Day/Fathers Day May/June 2012 I Am A Mother, and that’s a fact By Marilyn L. Hartman I am a mother, although some might argue this fact. I may not know my child's gender, but I am a mother none the less. I may not be able to hold my child in my arms, but you can bet I will always hold my child close to my heart. I am a mother, although some might argue this fact. I may not have issued a name, but I am a mother none the less. I will never see my child's little face, but you can bet I will always treasure this child in my heart. I am a mother, although some might argue this fact. I will never see my child grow, but I am a mother none the less. I will never hear my child's first words, but you can bet I will always hear the silence in my heart. I am a mother, although some might argue this fact. I will never see my child take a step, but I am a mother none the less. I will never hear my child cry, but you can bet I will always hear the cries in my heart. I am a mother although some might argue this fact. I will never change a soiled diaper, but I am a mother none the less. I will never have 3 a.m. feedings, but you can bet I will always long for them in my heart. I am a mother, although some might argue this fact. I may not have carried to full term, but I am a mother none the less. On Earth, I won't be blessed with my child, but you can bet In Heaven I have an angel who I love with all my heart. ............................................................................................................................. The National Share Office is now on Pinterest! Follow us for ideas and information on Memory Making, Jewelry, Grief Support Resources, Books and Holiday Traditions. If you have ideas for pins that we can share, please email [email protected]. We look forward to providing additional resources to you. ............................................................................................................................. Online Chat is Back The Share bereaved parent and pregnancy after loss chat is back! Please join us on Mondays at 9 PM EST for a moderated bereaved parent chat and on Tuesdays at 9 PM EST for a moderated pregnancy after loss chat. In the coming weeks, we will also be adding a day time opportunity for both chats. Mothers Day/Fathers Day May/June 2012 Thank you for your Gifts! In loving memory of... Avery Ann Humphries Happy 5th Birthday Avery. Thinking of you and your Mommy and Daddy who miss you very much. By: Michelle & David Garris Christian Hopco By: Joanne & Matthew Walsh Jason Aaron Turner Our "little bud," you are always in our hearts. It's still difficult, but we know we will be with you again one day. By: Mr. & Mrs. James R. Casey Lisa Unnerstall By: Melissa Hardage By: Ginny Buller By: Dave Chamberlain By: Howard T. Devane Jr. By: Vivian Haman By: Jennifer Merlo By: Anne & George Mosinski By: Grace Porter By: Helen & Joseph Sandza By: Denise Stouffer By: Ellen and Larry Umlauf By: Richard & Mary Black With sympathy and prayers. By: Mary Jo & John Nischwitz Regina Poppy Knobbe By: Joann Hoffman Sarah Blanchard In Memory of our loving Granddaughter Sarah. May God bless her loving family and support them in this time. By: Linda & Ronnie Blanchard Colin Daniel Williams Happy 1st Birthday & Angelversary Colin. By: Daniel & Lauren Williams Mason Zachary Bobby Forever in our thoughts. By: Liese Hearth Olivia Hammond By: Tom Renken In Honor Of... Noah James Backer In celebration of the safe arrival of Noah James Backer. We are so glad you are here safe and sound! By: Stephanie Grant Owen Backer Thoughts of you & your family. By: Christy Parson Remi Isabella Goebel By: Brett, Kecia and Shane Therioin Philip Joseph Jehle Williams By: Barbara & Steven Harter By: Belinda Henderson Friends of Share... I didn't know Philip personally, but I have heard about him. As was told to me, he sounded like a great little boy, and while I can’t understand your pain fully, I have grieved with you. By: Laura Peurrung Elizabeth Meixner Heather Pallardy Savvis Matching Gifts Kalee Sayre United Way of New York City Karen Zerr Rich & Brenda Hecht Mandy Murphey Lisa & Ray Holt Lori Zaitz Wayne Alexander Jennifer Begley Kathleen Campanella, Jr. Cathy Daub Mary Haake Madeline Isenberg April Kavanagh Brooke Lund Cheryl Moellenhoff Carol Piontek QuikTrip Corporation Baptist Memorial Health Care Metro Detroit Share Group Mike & Vicki Kiefer Joanie Rosenbaum Matthew & Monica Hans Christine Amato Darrin Ward Teresa & Patrick Gavin Brittany Aceves Kathy Collier Amanda Davis Eveready Energizer Matching Gift Program Heidi Hardcastle Indiana Association of United Ways Tracy & Pete Keinrath Laura McEwen Janice McKie-Maxwell 7 Remembrance Jewelry Parents who experience the death of a baby often yearn for ways to weave the baby into the fabric of their lives and are often comforted by collecting items to commemorate their baby. Especially at this time of year when everyone is celebrating moms and dads, finding a special treasure such a garden ornament or piece of customized jewelry can help you feel close to your baby and is a wonderful way to honor yourselves as the parents you are. Share keeps an extensive resource list of online places to purchase special memorial items, and you can view this list on our website (http://www.nationalshare.org/online-memorial-resources.html), and following are a few of our favorites that offer unique jewelry for both moms and dads. The Vintage Pearl (engraved jewelry for Moms and Dads) http://www.thevintagepearl.com/Default.aspx SueElla Signatures (unique lockets and other memorial jewelry for both Moms and Dads) http://sueellasignaturedesigns.blogspot.com/ Birth Designs (engraved jewelry for parents, there is a good selection of memorial jewelry, and also jewelry for Dads) http://www.birthdesigns.com/ nelle and lizzy (unique charms, bracelets, interlocking rings, key chains, and men's jewelry) http://www.nelleandlizzy.com/ Mothers Day/Fathers Day May/June 2012 Remembrance Jewelry (cont) Lisa Leonard (hand-stamped silver jewelry) http://www.lisaleonardonline. com/ Labelle Dame (custom remembrance jewelry) http://www.labelledame.co m/ My Forever Child (remembrance jewelry and infertility jewelry for men and women) www.myforeverchild.com I Am Still a Mother Written by Kristina Marie Coombs When Mother's Day arrived just a few months after my first baby had been born still, I wasn't sure how I would get through the day. What I really wanted to do was pretend it didn't exist at all, but I knew I needed to find a way to celebrate it for my mother and my husband's mother. My biggest fear was that no one in my family would honor ME as a mother since my only child, my daughter Reagan, had died. As the day approached, I really struggled. The year before, I had announced my pregnancy to my family on Mother's Day. I had told my mom a few days before, and she had a special “Congratulations to the Mom to be” card for me. She wrote in the card that she couldn't wait until next Mother's Day when she could celebrate her first Mother's Day as a grandmother. So I not only longed for a way to celebrate myself as a mother, but I longed for a way to celebrate my mom as a grandmother. I know that most people in my family didn't consider her a “real” grandmother since she had no living grandchildren, but I know she did, and I know I did too. My mom loves to garden, and her flowers and plants are admired by everyone. So, I decided I would give her a special plant for her garden that would remind her of my Reagan. My mom loves all types of flowers and plants, and I had a hard time choosing. Since Reagan had been born in the winter, nothing was blooming in our cold climate, so that gave me no ideas. I finally decided to give her a white rose bush because it reminded me of the snow that was softly falling on the day we buried Reagan. I also bought one for myself, even though I didn't inherit my mother's green thumb. Three years later, both rose bushes are thriving, and every year around Mother's Day, my mom adds another white flower to her garden in memory of Reagan. The next year, I bought my mom and I both flat stones for our gardens. I plan to add something new to our gardens each year, and I have started a scrapbook only for pictures of Reagan's gardens. Something else that was important to me on that first Mother's Day was for my family to acknowledge me as a mother, even though my child was not there celebrating with us. I told my mom this, and imagine my surprise when at dinner at my mom's house, everyone there, even my grandmother who had not been supportive of me at all had a card for me, placed in a small white basket that my mom had decorated with pink and green ribbons. I cried when I read each of those cards. To this day, I keep them in the basket on a shelf in my living room. When I am feeling blue, I love to look through the cards. Even though I still do not have a living child, my family members still give me cards on Mother's Day, and over the years, my collection has grown. Each year, I put the cards in that pretty little basket. Someday, I hope to have a living child, and I will add the congratulation cards to the basket. That basket is one of my most treasured keepsakes because it reminds me daily that even though my child is not here, I am still a mother. 9 Discussion Board Mother’s Day / Father’s Day Mother’s Day and Father’s Day are often some of the most difficult holidays for bereaved parents to get through. We thought it would be helpful for those to hear what others do to honor their baby(ies). We asked our Facebook nation to share with us ways you plan to celebrate Mother’s Day and Father’s Day and what have you done in the past to honor yourself as a parent? Here are your responses... “We will be going to the memorial brick dedication at the Angel of Hope on May 6th. I hope to make it a tradition we do every year.” -Abby L. “This is not our first. The hospital hosts their annual Share walk the day before Father's day.” -Matt G. “We try to donate time or goods in Luke's honor on days like that, angelversary, due date, etc. The act of giving counters the act of losing.” -Katie P. “I am so grateful to be able to celebrate motherhood with my 3 year old, and I plan to focus my attention and love on him that day. But in my heart I am a mother of two, so I will still take some private time that day to look at the ultrasound and reflect on the love that I will always hold in my heart for our sweet angel baby.” -Jennifer W. “I was thinking of getting her footprints as a tattoo with butterflies around it. Every morning, I say good morning and ask her for guidance since her urn is with us in our house. Prayers and thoughts of happiness to everyone.” -Tiffany S-M “I've been trying to figure out a way to memorialize our baby with something permanent, and a tattoo might be perfect.” -Jennifer W. “We always go to his grave on his birthday and holidays. My husband and I don't have a ritual we do every year on Mother's Day/Father's Day but we always include our kids. We have done things like make a scrapbook with the belongings the hospital gave us plus what we already purchased. We have made a shadow box. We have both got tattoos. We try making it positive for our other kids instead of a sad day.” -Nikki M. “I put a Balloon at my daughter's grave the night before Father's Day that said love you Dad. It was a pleasant but hard surprise for him.” -Tisha M-H “These are always tough days. I wrote about Mother's Day and Father's Day as well as offered a great Father's Day article at www.robinlentzworgan.com” -Robin L-W Mothers Day/Fathers Day May/June 2012 With Gratitude S hare thanks those who have so graciously given these monetary donations in memory of a baby, relative, friend, and in honor of all loved ones and through Matching Gift Programs. Gratuitous donations are also accepted from anyone who wants to help Share in its mission. We gratefully acknowledge these gifts, which help us continue to reach out and fulfill the daily needs of bereaved parents. Share’s services are available free of charge to bereaved parents, family and friends, or anyone whose life has been touched by the loss of baby. When you make a donation in memory of a/your baby(ies), please include the name(s) of the baby(ies), the birth/death date(s) and the parents name(s). If you donate in memory/honor of a special loved one, please include their name(s) and pertinent information. A short message may also be included with any donation. Please remember to include your return address and the addresses of those you wish to receive an acknowledgment. Unless previously authorized to do so, Share will not release any personal information, (address, phone number, e-mail, etc.) except to print donors names in this newsletter. If you wish your name to remain anonymous, please indicate this when submitting your donations. The Mission S hare’s mission is to serve those who are touched by the tragic death of a baby through early pregnancy loss, stillbirth or in the first few months of life. Six times a year, we share information and ideas from parents and professionals to support and provide a sense of friendship for bereaved parents. We hope you will find this newsletter helpful and that you will share it with others you feel it would interest. We encourage you to send your personal articles, stories, poems, artwork and recipes to our newsletters at any time. Please do not submit copied, copyrighted, or web articles. The Newsletter Editor reserves the right to edit your personal submission for content and/or length to fit the needs of the particular newsletter edition in which it will appear. Your submission may be used for the current newsletter, or may be used in a future publication. All submissions become the property of Share. Please include all pertinent personal information so we may identify you and your baby/ies in the respective publication. Your submission grants Share permission to list your personal information with the publication unless instructed otherwise. Newsletter Submission Guidelines: 1. Please provide title, authors’ name and applicable loss information for article submissions. If donating monetarily in memory of a baby, please provide loss information, including the parent’s name(s). 2. Submissions must be received no later than the 1st of the month, one month prior to issue month. If you are making a donation and would like to be recognized, or honor a birthday or anniversary, in the most recent edition of the newsletter, then it, must be received by the 10th of the month, two months prior to the publication. 3. Please type your submissions in single spaced, 10 point, Times New Roman or Arial font when possible. 4. Submissions can be mailed to 402 Jackson, St. Charles, MO 63301, e-mailed to [email protected] or faxed to 636-947-7486. ............................ ............................................................................................................. Would you like to be Sharing Newsletter Information: removed from mailing lists? Sharing Newsletter is published by Share Pregnancy & Infant Loss Support, Inc. If you would like to reprint articles/submissions from Sharing please properly cite Share and the writer by stating the name of the organization, website, newsletter, volume, issue, and author in your acknowledgments. If you would like to reprint an article/submission that is copyrighted by an author or a publishing company, you must obtain permission from the copyright holder to reprint. Email questions to [email protected]. To remove bereaved parents’ names from mailing lists you can visit http://www.privacyrights.org/fs/fs4-junk.htm#MPS -ORSend a letter plus a $1 check or money order to: Mail Preference Service Direct Marketing Association PO Box 643 11 Carmel, NY 10512 SAVE THE DATE The Depot Hotel Minneapolis, Minnesota April 18-21, 2013 www.plida.org www.asip1.org Mothers Day/Fathers Day May/June 2012 Mother’s Day: Bittersweet Day for Some Women Written By Rachel Faldet When I think of Mother's Day, a wealth of images comes miscarriage as a death that can-and should-be mourned. to mind. I see women in restaurants wearing corsages and red roses and baby's breath pinned to their dresses, close to their hearts: Visual symbols of motherhood. I see my mother in the 1960's, wearing a flower-covered puffy hat and a cream-colored coat fastened with buttons the size of half dollars, three children trailing behind her on Mother's Day morning. As usual, we are late for church. People easily sympathize with the death of someone visible, someone whose passage has been marked in legal records, someone with a name. People say, “I'm sorry.” They expect mothers and fathers to grieve. They encourage them to talk. They are compassionate listeners. They offer tangible solace: A gift of food, a lilac bush to plant in the backyard, an appropriate book. But I also see women who are not wearing corsages, who are not necessarily walking with children. These women carry in their hearts a quiet, lonesome sadness. Some are women I know by name; most are strangers to me. They are everywhere: In office buildings, in grocery stores, in libraries, in movie theaters, in airplanes, traveling to new destinations. They are women who have had miscarriages. I am one of them: Part of the sisterhood of unspoken sorrow. On Mother's Day, it is appropriate to acknowledge a woman's loss—particularly if the miscarriage was recent. But even for women who, with the passage of time, have come to terms with their loss, Mother's Day can bring back a sadness. A simple note written on a blank card and sent in the mail is an act of kindness on this day. Miscarriage is common, but not talked about much. Though part of life, it is often a taboo topic. Even women who have miscarried aren't sure if they should mention their loss to anyone. Pregnancy, childbirth and menopause get more public attention. Women are often not prepared for the complex feelings of loss and grief they must cope with when a baby dies within the first 20 weeks of pregnancy. According to Fran Rybarik, former director of Bereavement Services in LaCrosse, WI, when a pregnancy ends in miscarriage, “The whole person is affected—physically, emotionally, socially and spiritually.” A parent invests in a child's life long before it is born. One day a woman is pregnant, the next day she isn't. She has nothing to carry in her arms. Unless she has had multiple miscarriages, usually she never finds out the reason for the unsuccessful pregnancy. Even then, medical staff may not be able to give her answers. Sometimes, only a few family members and friends know of the pregnancy; sometimes, no one knows except the father. Through tangled emotions, it is hard for a woman to say, “I was pregnant a few days ago, but now I'm not. This is terribly sad for me.” Society doesn't often acknowledge For women who have miscarried, thinking about the lost child is inevitable. They are confronted with rows of greeting cards in gift shops, restaurant advertisements urging early reservations for Mother's Day brunch, phone companies reminding people to call mothers who are far away and bouquets of long-lasting carnations delivered to neighbor's houses. The day of celebration is obvious. As women think about their own mother, they again are reminded of the child or children they do not have. It is bittersweet. Mother's Day, though, can be a day of healing. Women who have a miscarried child should give themselves permission to grieve. They can read about miscarriage, putting themselves in the company of others who have experienced this common, but often publicly unspoken loss. They can talk to family and friends. Given the chance, people will reveal the circumstances of their losses with vividness and compassion. A woman can write about her miscarriage. Through writing, no matter how informal it is, she can put some sort of control on the uncontrollable. Because it is spring, she can plant a rosebush, a maple tree, or a deep red peony in the yard: a visual symbol of “almost” motherhood. On Mother's Day, I think about women whose lives have been affected by miscarriage. Perhaps their hearts—like mine—have been mended over time. Perhaps the pain is fresh and their heartache needs to be acknowledged by family and friends. 13 Mother’s Day Reflections Written By Rachel Cone M “ other's Day.” It is amazing to me the power of these two simple words, and the mix of emotions this day brings for me. Mother's Day is supposed to be a celebration of how life continues from one generation to the next. Throughout my pregnancy, I could not wait to meet my child, and teach him about life, and learn through his eyes. When one of my friends sent me a Happy Mother's Day card during my pregnancy I chuckled, thinking that I was not yet a mother. Sure, I was growing a baby inside me, but it didn't feel like I was a mother, so it was odd to celebrate the day as a mother, and not just a daughter. The following year, I promised myself, I would revel in the joys of motherhood and celebrate Mother's Day as a daughter and a mother! But somehow, during pregnancy, it just didn't feel appropriate to celebrate the day as a mother. Oh how I wish I could turn back the clock sometimes. That was the only Mother's Day that I experienced while David was alive. Sadly, he was a full-term stillbirth, and I never had the chance to feel his breath against my cheek, gaze into his eyes and feel his love, or hear him wish me a Happy Mother's Day. Every year as Mother's Day approaches, my heart aches. For those who have experienced the loss of a child, this is a commonly shared feeling. Spring is in the air, and joy is supposed to accompany this. Fields are lined with blue bonnets, crocuses, tulips, daffodils and other beautiful flowers. There is such serenity in the sights and sounds of nature. Yet, inside me there is turmoil and a range of emotions including anger, resentment, jealousy, sadness, and most of all loneliness. I still remember my very first Mother's Day after David's birth/death. As a single mother, I had to find the strength within me to muster through the holiday. Television commercials, storefront displays, and newspaper advertisements were frequent reminders of all that I was dreading. I wanted to scream to the world that I was a childless mother and I deserved to be noticed and acknowledged. I even got the courage to browse the greeting cards, hoping to find one appropriate for a childless mother. I read every card in the section, while tears streamed down my cheek. None of the cards were appropriate. They were all sappy, loving inscriptions intended to be the perspective from a child to their mother, or from a spouse to the mother of their child. The more I read, the more alone I felt. I could go on and on about the grief of a childless mother, but that is a perspective others can contribute. I want to share my perspective as a single grieving mother because I don't often see this perspective represented. Whatever the reason that brings a mother to be a single parent, it is hard. Grieving as a single parent is virtually unimaginable. In the days when I could hardly get myself out of bed, nobody was there to hoist me up and tell me that I could do it. When I wanted someone to wrap their arms around me and comfort me, I was alone. When I woke up in the middle of the night with phantom kicks, I reached for the empty pillow beside me. When my milk came in days after birthing David, I had to bind the cabbage leaves around my body myself. When I felt strong enough to attend my first bereavement support group, I went alone. I was surrounded by couples who were talking about trying again after a loss. I felt so uncomfortable, as I could not identify with anyone. Yet this was the only place where others knew the pain and suffering of a pregnancy loss. So, I returned regularly. I sought companionship online through support groups, message boards, and chat rooms. An amazing group of women offering words of comfort, validating my feelings, and, just for a moment, making me feel less lonely – until I turned off the computer, and realized I was all by myself and alone in my grief. Over time, the intensity of the grief subsided. I went on to have another child, who entered the world healthy and happy. For the first time in a very long time, I began to experience joy in my life. But it is often a bittersweet joy, celebrating motherhood with my living child, and grieving the missed lifetime with David. It's been nine years since my very first Mother's Day when I was pregnant with David. Each year, the grief changes and manifests itself in different ways, but never fades away. I am able to celebrate the day as a mother with gratitude for having learned that a childless mother is still a mother, with love and devotion to her child so great that death cannot break that bond. I am also grateful for the ability to share this day with my living child, hear him wish me a Happy Mother's Day, gaze lovingly in my eyes, and wrap his arms around me as he tells me he loves me and misses the brother he never knew. Although I treasure these moments with my living child, Mother's Day is like a bee sting – it hurts a lot, swells, and eventually the intensity of the pain subsides. Don't ask me how I feel about Father's Day. That is like adding salt to the wound. It is a vivid reminder that I really am alone in this journey of grief as a single parent. July/August 2012 Share joins the blogosphere! Share your thoughts at nationalshare.blogspot.com Stay Connected with Share on Twitter! @Share1977 Get the newsletter delivered to your inbox today! In an effort to reduce our carbon footprint, we have decided to make the newsletter available online. If you would like to receive a copy via email, we would be happy to add you to our mailing list. Please see the link below to subscribe today! http://nationalshare.org/subscribe.html Connect with us and other bereaved families on Facebook! Search us on Facebook! To connect with other parents and share your story, search: Share Bereaved Parents Peer Support or Share Subsequent Choices Peer Support. Please note, these are closed groups and membership will be approved by an administrator. For updates and information about Share events, perinatal loss research, updates on legislation and much more, search: Share Pregnancy & Infant Loss Support, Inc. Looking for Resources? Check out our Perinatal Bereavement Resource Catalog! It's full of books, pamphlets and other wonderful resources suited for bereaved parents and their families as well as bereavement professionals. Start a Share group and receive a 20% discount on every order! Find our catalog online at http://nationalshare.org/online-catalog.html to download a printed copy of the Difficult Decisions Submission Deadline: June 15 If you have been in the heartwrenching situation of having to make a decision(s) about your baby, we would love to share your story in the next issue of Sharing. We would be honored to hear from those who: *have had to make difficult decisions for their critically ill baby in the NICU *have been given a poor diagnosis during pregnancy *fertilized multiple embryos and then had to decide how to proceed *were touched in a positive way by a professional caregiver at any time throughout your journey *are professionals caring for families either during or after a decision was made Be assured that Share does not take a religious or political stance on this issue, and we provide support to all parents who find themselves in these situations. This special issue of Sharing will provide viewpoints and stories from all sides. Please send your stories to [email protected]. National Share Office 402 Jackson St. Charles, MO 63301 Phone: 800-821-6819 15 2 Sr lkf r a rem& ehmo breance p 012 ha e w o 11th Annual Share Walk for Remembrance & Hope Saturday, October 20, 2012 Creve Coeur Park, St. Louis Sailboat Cove Registration Opens July 1st! Registration Fees: Adults: $25 Children (5-12): $15 Registration includes walk fee, event t-shirt, program, balloons and bottled water.
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