06/02/2015 The Care Act 2014 Luke Clements www.lukeclements.com Care Act 2014 AN The Care Act 2014 ACT TO Make provision to reform the law relating to care and adults and the law relating to support for support for adults carers; Legislation to be repealed • National Assistance Act 1948 • Health Services & Public Health Act 1968 • Chronically Sick and Disabled Persons Act 1970 (but only for adults) • Health & Social Services & Social Security Adjudications Act 1983 • Disabled Persons (Services, Consultation and Representation) Act 1986 • NHS & Community Care Act 1990 • Carers Acts (but not the 1995 Act section 1) • Health & Social Care Act 2001 (DPs) Not s117 MHA 1983 or DFGs 1 06/02/2015 Primary Statute • Principle rights /duties Regulations • Charging / Eligiblity Code of Practice Guidance Status of Guidance Guidance LAs must act under the guidance: Must follow it, unless demonstrate sound legal reasons for not doing so’. (s78 Care 2014) Definitions Adult • ‘in need’ • has ‘a physical or mental impairment or illness’. Carer • an adult who provides or intends to provide care for someone but is not contracted to provide the care or providing the care as formal ‘voluntary work’ (s10). Individual Principles (section 1) Well-being • A general duty • The making explicit of the duty to promote an individual’s well-being – applies when exercising ‘any function under Bill – ‘individual’ includes both ‘adults in need and adult carers 2 06/02/2015 Well-being “Well-being” relates to: (a) personal dignity (b) physical / mental health / emotional well-being; (c) protection from abuse and neglect; (d) control over day-to-day life inc nature of care provided; (e) participation in work, education, training or recreation; (f) social and economic well-being; (g) domestic, family and personal relationships; (h) suitability of living accommodation; (i) the adult’s contribution to society. Well-being “Well-being” LA must have regard to— (a) assumption that the ‘individual’ is best placed to judge wellbeing; (b) individual’s views, wishes and feelings; (c) take into account all the individual’s circumstances (and nondiscriminatory in terms of stereotyping etc); (d) individual participating (with support if needs be) as fully as possible in decisions about them; (e) a balance between the individual’s well-being and that of any friends or relatives involved in their care; (f) the need to protect people from abuse and neglect; (g) any restrictions kept to the minimum necessary. Independent living • The wellbeing principle is intended to cover the key components of independent living, as expressed in the UN Convention on the Rights of People with Disabilities (in particular, Article 19 of the Convention). Supporting people to live as independently as possible, for as long as possible, is a guiding principle of the Care Act Guidance (para 1.19) 3 06/02/2015 Prevention (section 2) Preventing needs for care and support Duty to provide a range of preventative services that will: (a) contribute towards preventing or delaying the development by adults in its area of needs for care and support; (b) contribute towards preventing or delaying the development by carers in its area of needs for support; (c) reduce the needs for care and support of adults in its area; (d) reduce the needs for support of carers in its area. eg carers centres / carers breaks / carer employment support; Adaptations Young carers – LAs should consider how supporting the adult can prevent YC from undertaking inappropriate care (para 2.49) Integration (section 3) Integration with the NHS Duty on LA‘s to promote integration with health provision where it would— (a) promote the well-being of adults with needs & carers in its area; or (b) contribute to the prevention of the development of needs in adults / carers; or (c) improve the quality of care for adults / carers, provided New section (4 Feb 2014 C/ee stage) • Places Better Care Fund on a statutory basis (s223B NHS Act 2006) Information (section 4) Information The provision of a service to provide adults in need / carers with information about care and support; Includes: • how the LA care system operates; • the choice of types of care and support, and the choice of providers in the local authority’s area, • how to access the care and support that is available; • how to access independent financial advice; • how to raise concerns about safety /well-being of an adult who has needs for care and support 4 06/02/2015 Effective high quality providers section 5: Duty to promote effective & efficient markets, to ensure a variety of : • providers; • variety of services; and • variety of high quality services. • Does this require any public services? • Issue of ‘actual cost’ vs ‘usual cost’ • Need to understand demand / self–funding supply Cooperation section 6 ~ general duty to cooperate section 7 ~ specific duty to cooperate Where LA requests co-operation of a ‘relevant partner’ (or vice versa) in relation to an ‘individual with needs’ or a carer, a carer of a child or a young carer, then they must comply with the request unless it would: (a) be incompatible with its duties, or (b) have an adverse effect on the exercise of its functions. Duty to give reasons if refuses Mirrors existing s27 Children Act 1989 Non-delegable (section 79(2) Care & support (section 8) Range of care & support for carers / adults in need a) accommodation in a care home or in premises of some other type; b) care and support at home or in the community; c) counselling, advocacy and other types of social work; d) goods and facilities; e) information and advice. Problems; • Silent on ‘adaptations’ ‘travel’; or ‘holidays’? • Charging for carers, advocacy, social work, information? 5 06/02/2015 Delegation section 79 Enables LAs to delegate all of their functions under the Act – with few exceptions (eg safeguarding); (6) Act / omissions by delegated body to be treated as done / omitted to be done by the LA. Many carers support groups already doing what are in effect LA ‘assessments’ Jumping the gun The Contracting Out (Local Authorities Social Services Functions) (England) Order 2014 Charging Principles (para 8.2) • not charged more than reasonably practicable to pay; • be comprehensive, to reduce variation in the way people are assessed and charged; • Clear/ transparent, so people know what will be charged; • promote wellbeing, social inclusion & support the vision of personalisation, independence, choice and control; • support carers to look after their own health and wellbeing and to care effectively and safely; • be person-focused … ; Charging Principles (para 8.2) • apply the charging rules equally so those with similar needs or services are treated the same and minimise anomalies between different care settings; • encourage and enable those who wish to stay in or take up employment, education or training or plan for the future costs of meeting their needs to do so; and • be sustainable for local authorities in the long-term. 6 06/02/2015 Charging & assessments section 14(4) • A charge … may cover only the cost that the local authority incurs in meeting the needs to which the charge applies. The Minister of State [DoH] Norman Lamb • the Bill does not give a power to local authorities to charge for carrying out a needs or carer’s assessment in any circumstances. 14 January 2014 column 154 Public Bill Committee Assessment of adults in need section 9 Mirrors existing s47 NHS&CC 1990 duty Duty ‘to involve carer’ Care & Support (Eligibility Criteria) Regulations reg 2(3) an adult in need is unable to achieve an outcome if only able to do it with assistance • LAs must consider all of the adult’s care … needs, regardless of any support being provided by a carer. … information on the care that [the carer provides]… can be captured during assessment, but it must not influence the eligibility determination.(para 6.15) Assessment adults in need An adult’s needsof meet the eligibility criteria if— (a) the needs are caused by a physical or mental impairment or illness; (b) as a result of the adult’s needs the adult is unable to achieve two or more outcomes; and (c) as a consequence there is, or is likely to be, a significant impact on the adult’s well-being. 7 06/02/2015 Significant Guidance ‘Significant’ is not defined • LAs must consider whether whether the … inability to achieve the relevant outcomes will have an important, consequential effect on … independence and their wellbeing’ (para 6.110); • ‘Needs may affect different people differently … Circumstances which create a significant impact on the wellbeing of one individual may not have the same effect on another’ (para 6.111) Significant SCIE ‘resource’ ‘significant’ in a consequence of a cumulative effect: • ‘the individual may have needs across several of the eligibility outcomes, perhaps at a relatively low level, but as these needs affect the individual in various areas of their life, the overall impact on the individual is significant. • eg ‘an adult is struggling to manage and maintain their nutrition, personal hygiene and toilet needs as their standards are reducing due to low social interaction and decreasing mobility around the home. The adult is consequently very close to becoming unable to meet most of the outcomes. Significant SCIE ‘resource’ • It could be argued that the adult does not meet condition 3 of the eligibility criteria for adults … due to the level of needs being relatively low. However, taking a holistic view of the level of impact of the individual’s mobility needs, and the accumulation of a number of the ‘low/medium’ levels of needs, this adds up to a ‘significant impact’ in the adult’s wellbeing. • Significant impact could be a consequence of a domino effect: this means that currently the individual may have needs in relation to few eligibility outcomes, but it can be anticipated that in the near future other outcomes will be affected, causing a significant impact on the individual’s wellbeing. 8 06/02/2015 Unable to achieve 2 or more of: Assessment of adults in need (a) managing and maintaining nutrition; (b) (c) (d) (e) (f) (g) maintaining personal hygiene; managing toilet needs; being appropriately clothed; being able to make use of the adult’s home safely; maintaining a habitable home environment; developing and maintaining family or other personal relationships; (h) accessing and engaging in work, training, education or volunteering; (i) making use of necessary facilities or services in the local community including public transport, and recreational facilities or services; and (j) carrying out caring responsibilities the adult has for a child. unable to achieve an outcome if — (a) is unable to achieve it without assistance; (b) is able to achieve it without assistance but doing so Fleshing out the detail causes the adult significant pain, distress or anxiety; section 12 to achieve it without assistance but doing so (c) is able endangers or is likely to endanger the health or safety of the adult, or /ofcare others; or • Assessments & support plans in regulations (d) is able to achieve it without assistance but takes • Subject to statutory and practice guidance etc. significantly longer than would normally be expected. • Select C’ee recommend Code of Practice (section 50) section 13 • Eligibility criteria (FACS) to be put in regulations; Guidance on meaning of ‘outcomes’ Question If social services decide that an outcome a person is ‘unable to achieve’ has a ‘significant’ impact then: to what extent does the way the guidance defines an outcome create an expectation that the local authority will meet that outcome in the way it has been described? • The McDonald question? • Section 1 principles ~ ie the assumption that the ‘individual’ is best placed to judge well-being; 9 06/02/2015 Guidance para 6.107 managing and maintaining nutrition. • whether the adult has access to food and drink to maintain nutrition, and that the adult is able to prepare and consume the food and drink. maintaining personal hygiene • LAs should, for example, consider the adult’s ability to wash themselves and launder their clothes. managing toilet needs • LAs should consider the adult’s ability to access and use a toilet and manage their toilet needs. Guidance para 6.107 (d) being appropriately clothed. • LAs should consider the adult’s ability to dress themselves and to be appropriately dressed, for instance in relation to the weather to maintain their health. (e) being able to make use of the home safely • the adult’s ability to move around the home safely, which could for example include getting up steps, using kitchen facilities or accessing the bathroom. This should also include the immediate environment around the home such as access to the property, for example steps leading up to the home. Guidance para 6.107 (f) maintaining a habitable home environment. • whether the condition of the adult’s home is sufficiently clean and maintained to be safe. A habitable home is safe and has essential amenities. An adult may require support to sustain their occupancy of the home & to amenities, such as water, electricity, gas. (g) developing & maintaining family / relationships • whether the adult is lonely or isolated, either because their needs prevent them from maintaining the personal relationships they have or because their needs prevent them from developing new relationships. 10 06/02/2015 Guidance para 6.107 (h) accessing /engaging in work, training, education or volunteering • whether the adult has an opportunity to apply themselves and contribute to society through work, training, education or volunteering, subject to their own wishes in this regard. .. includes physical access to any facility & support with participation in the relevant activity. Guidance para 6.107 (i) making use of necessary facilities or services in the local community including public transport and recreational facilities or services • the adult’s ability to get around in the community safely and consider their ability to use such facilities as public transport, shops or recreational facilities when considering the impact on their wellbeing. LAs do not have responsibility for the provision of NHS services such as patient transport, however they should consider needs for support when the adult is attending healthcare appointments. Guidance para 6.107 (j) carrying out any caring responsibilities the adult has for a child • LAs should consider any parenting or other caring responsibilities the person has. The adult may for example be a step-parent with caring responsibilities for their spouse’s children. 11 06/02/2015 Fluctuating need SCIE ‘resource’ • an accurate assessment of care needs – must fully explore ‘the “good” and “bad” … over a suitable period of time to provide as complete a picture of the range of fluctuation as possible. • It is important to note that “suitable” length of time in this instance will vary from person to person. Assessment of adults in need Guidance • Where appropriate, an assessment may be carried out over the phone or online. … • local authorities should consider whether the proposed means of carrying out the assessment poses any challenges or risks for certain groups, particularly when assuring itself that it has fulfilled its duties around safeguarding, independent advocacy, and assessing mental capacity Appropriately trained assessors Guidance • social workers and occupational therapists can provide important support and may be involved in complex assessments which indicate a wide range of needs, risks and strengths … • assessors must be ‘appropriately trained’. • if an ‘assessor does not have the knowledge of a particular condition or circumstance, they must consult someone who has relevant expertise’ 12 06/02/2015 Proportionate assessments SCIE ‘resource’ Aproportionate assessment involves (among other things): • both hearing and understanding the initial presenting problem • not taking this at ‘face value’ • ensuring any underlying needs are also explored and understood. Carers Assessments (s10) Duty to assess • Largely codifies the existing Carers Acts – but drops – the ‘regular & substantial’ requirement – the ‘request’ s10(3) defines a carer as ‘an adult who provides or intends to provide care for another adult’ (but excludes paid carers / volunteers) Carers Assessments (s10) What is ‘care’? • both practical and emotional support (para 6.18) • Section 1 physical /mental health /emotional well-being? Previous guidance • may relate to being ‘anxious and stressed waiting for, or actively seeking to prevent, the next crisis’. • encompasses both the notion of ‘caring about someone’ as well as ‘caring for them’ 13 06/02/2015 Carers Assessments (s10) Basic principles • whether the carer able / willing to provide and continue to provide the care; • the impact on the carers ‘well-being’; • the outcomes the carer wishes in day-to-day life; • whether the carer works or wishes to (and / or) to participate in education, training or recreation. Carers Assessments Private / combined assessments • ‘only if the adult to whom the needs or carer’s assessment relates agrees’ – s12(5) • if ‘either of the individuals concerned does not agree to a combined assessment, then the assessments must be carried out separately’ (ra 6.74 ) Advocacy / support • LAs must involve ‘any person whom the carer asks the authority to involve’. s10(7) Eligibility criteria ~ carers ( reg 3) A carer’s needs meet the eligibility criteria if • The needs arise as a consequence of providing necessary care for an adult • The effect of the carer’s needs is that any of the circumstances specified below apply to the carer • As a consequence there is, or is likely to be, a significant significant impact on the carer’s well-being. ‘Significant’ is not defined Should have its ‘everyday meaning’ (para 6.130) LAs must consider whether the carer’s needs and their inability to achieve the outcomes will have: • an important, consequential effect on their daily lives, their independence and their own wellbeing (para 6.130) Circumstances which create a significant impact on the wellbeing of one individual may not have the same effect on another (para 6.131) 14 06/02/2015 1. Needs arise as a consequence of caring for an adult; 2. One of the circumstances listed below exits; 3. A significant impact on the carer’s well-being occurs Outcomes (a) the carer’s physical or mental health is, or is at risk of, deteriorating; (b) the carer is unable to achieve any of the following outcomes i. carrying out any caring responsibilities the carer has for a child; ii. providing care to other persons for whom the carer provides care; iii. maintaining a habitable home environment in the carers home (whether or not this is also the home of the adult needing care); iv. managing and maintaining nutrition; v. developing and maintaining family or other personal relationships; vi. engaging in work, training, education or volunteering; vii. making use of necessary facilities or services in the local community, including recreational facilities or services; and viii.engaging in recreational activities. Carer eligible vs adult non-eligible section 20 (7) A LA may meet … a carer’s needs for support in a way which involves the provision of care and support to the adult needing care, even if the LA would not be required to meet the adult’s needs … . (8) Where a LA is required by this section to meet some or all of a carer’s needs for support but it does not prove feasible for it to do so by providing care and support to the adult needing care, it must, so far as it is feasible to do so, identify some other way in which to do so. Care & support plans Respite and replacement care • The guidance refers to support where the LA meeting a carer’s needs by providing a service directly to the adult needing care as ‘replacement care. • Divya example (p196 guidance) • Caring for father who has a DP and her 4 children: • Divya received a carers’ direct payment, which she uses for her children to attend summer play schemes so that she get some free time to meet with friends and socialise when the family member providers care to her father. 15 06/02/2015 Care & support plans Respite and replacement care • Where the carer is eligible for support but the adult being cared is not – and accordingly ‘does not have their own personal budget or care plan’ (para 11.42) – the carer could (eg) request a direct payment, and use that to commission their own replacement care from an agency (para 11.44). • If such a type of replacement care is charged for… then it would be the adult needing care that would pay, not the carer, because they are the direct recipient of the service (para 11.45) Care & support plans Respite and replacement care • For the purposes of charging, the PB which the carer receives must specify the costs to the LA and the costs to the adult, based on the charging guidance …. • In this case, “the adult” refers to the carer, because they are the adult whose needs are being met. However, in instances where replacement care is being provided, the carer should not be charged; • if charges are due to be paid then these have to be met by the adult needing care. Any such charges would not be recorded in the personal budget, but should be set out clearly and agreed by those concerned. Care & support plans Replacement care & NHS continuing healthcare? What if the replacement care (identified in carer’s assessment) is for an adult in receipt of NHS CC funding? • NHS would be responsible for this. • What if it failed / refused to provide this? Social services could make a section 7 request Where LA requests co-operation of a ‘relevant partner’ in relation to an ‘individual with needs’ or a carer, a carer of a child or a young carer, then it must comply with the request unless it would: (a) be incompatible with its duties, or (b) have an adverse effect on the exercise of its functions 16 06/02/2015 Care & support plans Carers Services • relaxation classes, training on stress management, gym or leisure centre membership, adult learning, development of new work skills or refreshing existing skills (so they might be able to stay in paid employment alongside caring or take up return to paid work), pursuit of hobbies such as the purchase of a garden shed, or purchase of laptop so they can stay in touch with family and friends. para 11.41 Care & support plans section 25 ~ Care and support plans Similar to current – but makes PBs mandatory for adults in need and carers section 26 Amount of a PB is • The cost to the local authority of meeting the adult’s needs Care & Support Plans Key components of any care and support plan (para 10.36): • the needs identified by the assessment; • the extent to which the needs meet the eligibility criteria; • how the LA is going to meet the needs; • the desired outcomes of the adult ‘in need’; • the outcomes the carer wishes to achieve (inc work, education and recreation); • the personal budget …; • information / advice on what can be done to reduce the needs / prevent or delay development of needs ; • where a direct payment … , the needs to be met via the DP, the amount and frequency of the payments. ??? A review date ??? What if all needs being met by universal services / the carers? 17 06/02/2015 Care & support plans Funding Panels ~ Legally dubious Due regard should be taken to the use of approval panels in both the timeliness and bureaucracy of the planning and sign-off process. In some cases, panels may be an appropriate governance mechanism to sign-off large or unique personal budget allocations and/or plans. Where used, panels should be appropriately skilled and trained, and local authorities should refrain from creating or using panels that seek to amend planning decisions, micromanage the planning process or are in place purely for financial reasons. … (para 10.85) Care & support plans ‘Needs’ vs ‘outcomes’ • outcomes aim to identify the person’s ‘aspirations, goals and priorities’ • assessments that focuses on these break free from the shackles thought processes tied to existing service models • outcomes focused research identifies the importance of avoiding prescriptive ‘tick box’ questionnaires and of the need for a strong human relationships with assessors who have the skills and time to enable this approach to succeed • increasing disconnect between what service users / carers say and related evidence, and the thinking of government and policy-makers and what they seem to be doing Care & support plans Local authority financial difficulties • Current law remains (ie Gloucestershire judgment) • LAs can ‘take into reasonable consideration’ of their finances, they ‘must comply’ with their legal obligations. A local authority’s finances are relevant when it decides how to meet the eligible needs of an individual ‘but not whether those needs are met’. (para 10.27) • LAs ‘should not set arbitrary upper limits on the costs [they are] willing to pay to meet needs through certain routes’ (para 10.27) 18 06/02/2015 Care & support plans Local authority financial difficulties LAs may: • take decisions on a case-by-case basis which weigh up the total costs of different potential options for meeting needs, and include the cost as a relevant factor in deciding between suitable alternative options for meeting needs. This does not mean choosing the cheapest option; but the one which delivers the outcomes desired for the best value. (para 10.27) Care & support plans section 25 .. In preparing a C&S plan the LA must involve: (3) the adult for whom it is being prepared, • any carer that the adult has, and • …. • … any person who appears to the authority to be interested in the adult’s welfare. (4) the carer for whom it is being prepared, • the adult needing care, if the carer asks the authority to do so, and • any other person whom the carer asks … . Copies Guidance The assessment • the individual ‘must be given a record of their needs or carer’s assessment’ (para 6.98). Care Plan • the local authority must give a copy of the final plan in a format that is accessible to the person for whom the plan is intended, any other person they request to receive a copy, and their independent advocate if they have one. (para 10.87) 19 06/02/2015 Reviews / reassessments Section 27(1) • Duty to keep under review care and support plans • Expectation that plans will reviewed at last every 12 months and light-touch review 6-8 weeks after the plan and personal budget signed off’ (para 10.42 / 13.32) • Reviews must person-centred, accessible and proportionate: must involve the ‘person needing care and also the carer where feasible’ (para 13.2) • Purpose is identify if the person’s needs / circumstances have changed’ (para 13.4). • The ‘review must not be used as a mechanism to arbitrarily reduce the level of a person’s personal budget’ (para 13.4). • . Personal Budget Guidance: • The personal budget must always be an amount sufficient to meet the person’s care and support needs • Must include the cost to the LA of meeting the person’s needs which the LA is under a duty to meet, or has exercised its power to do so. • This overall cost must then be broken down into the amount the person must pay, following the financial assessment, and the remainder of the budget that the authority will pay. Personal Budget • The expectation that PBs will change as the care and support planning process progresses. • Start with an ‘indicative amount’; • ‘final amount of the personal budget confirmed through this process’ (para 11.7). • No for a Resource Allocation System (RAS) to generate a figure – a LA might have (eg) a simple set of ‘bands’ • ‘complex RAS models of allocation may not work for all client groups’ (para 11.23) • ‘regardless of the process used, the most important principles in setting the personal budget are transparency, timeliness and sufficiency’ (para 11.24). 20 06/02/2015 Independent personal budget section 28 • An independent personal budget is a statement which specifies what the cost would be to the local authority of meeting the adult’s eligible needs for care and support section 29 ~ care account • must specify the amount that is attributable to the adult’s daily living costs; • must specify the amount that counts towards the expenditure cap and the amount attributable to daily living costs. Duty to provide care & support section 18 ~ support for adults in need Duty to provide applies where: • Individual is ordinarily resident in LA area; and • Individual has eligible needs: and • Individual’s finances below maximum allowance; or • Individual’s finances above maximum allowance and they ask the LA to provide Self funder support delay Given the nature of the concerns arising in the consultation, and recognising the need for further evidence, we have decided to delay the implementation of this provision for one year, until April 2016, insofar as it relates to people whose needs are to be met in care homes. This additional time will allow for further analysis and a better common understanding of the issues, to identify risks to the care and support system and to individuals, and to develop strategies for implementing this most effectively. 21 06/02/2015 Duty to provide care & support section 18 ~ support for adults in need Duty to self funders; • ADASS believes an extra 180,000 to 230,000 people being assessed and an extra 440,000 to 530,000 reviews in 2016-17; • Likely to distort care market • May be a charge for this service The ‘cap on costs’ Cap on costs sections 15-16 Dilnot (2016) • • • • In 2012 - 24,500 people sold homes to cover care costs; Recommended cap at £35,000 (max £50,000); Cap will be £72,000 for those on state pensions in 2016 Board & accommodation (Daily Living Costs) assumed to cost £12,000 pa (2017 prices); • DLC liability continues even when cap ‘hit’; • Lower cap / no cap for young disabled people ‘Taxi meter’ 22 06/02/2015 Cap on Care Costs • Vast bureaucracy /increase in assessments / care plans; • Care account to be retained for 99 years (section 29) • Deferred payments (sections 34-36) £23,250 cap Cap on Care Costs Capital changes £118,000 upper limit if a house taken into account; £27,000 upper limit if no house taken into account; £17,000 lower limit in residential care; • Interest £1 per week per £250 above lower limit • Thus £117,000 capital ? • deemed to generate £20,000 pa Adult with £118,000 assets gains virtually nothing due to: (a) The above interest charges; and (b) The loss of their AA (higher rate or c £87pw at 2016 rates) Lord Lipsey House of Lords Hansard 16 July 2013 : Column 727 at www.publications.parliament.uk/pa/ld201314/ldhansrd/text/130716-0003.htm Charging self funders section 14(1) • may charge for ‘for putting in place the arrangements for meeting’ needs’ section 14(4) • only the cost a LA incurs in meeting the needs. Care & Support (Charging and Assessment of Resources) Regulations 2014 reg 5 • only cover the cost that the LA incurs in putting in place the arrangements for meeting the needs 23 06/02/2015 Charging self funders 8.58 Arrangement fees charged by LA must cover only the costs that the LA actually incur in arranging care. Arrangement fees should take account of the cost of negotiating and/or managing the contract with a provider and cover any administration costs incurred. 8.59. Local authorities must not charge people for a financial assessment, a needs assessment or the preparation of a care and support plan. Direct Payments (ss 31 - 33) Little change – but: 1. The regulations ‘soften’ the presumption against making payments to spouses / partners / relatives living in the same house; • payments can be made ‘if the LA considers it is necessary to do so’; and • payment can include not only the cost of meeting the adult’s need – but also for the cost of providing administrative and management support or services 2. Expected to extend to residential care (from April 2016) • Pilot sites currently running Continuity of care (portability) sections 37-38 • If 1st authority notifies 2nd authority that person is moving; • When move happens: • If 2nd authority not assessed / or put in place care plan for adult in need and/or carer: • Then 2nd authority must meet the same needs as 1 st authority • Until it has assessed / produced care plan If 2nd authority’s assessment of adult / carer differs from 1 st authority’s it must provide written explanation 24 06/02/2015 Ordinary residence (ss39 – 41) Basic principle remains – OR is your ‘base’ Two ‘deeming rules’ 1. If in an NHS facility, OR is were person was based immediately before the NHS accommodation 2. Modification to second ‘rule’ If a LA arranges and funds care in a care home then the person is deemed to be OR in the LA’s area even if the care home is in another area This is extended to cover ‘shared lives scheme’ and supported living accommodation in England. LA responsibility only attaches if the care and support ‘can be met only’ in the specified accommodation Supported living / extra care housing • specialist or adapted accommodation: this means accommodation which includes features that have been built in or changed to in order to meet the needs of adults with care and support needs. This may include safety systems and features which enable accessibility and navigation around the accommodation and minimise the risk of harm, as appropriate to the individual; or • accommodation which is intended for occupation by adults with care and support needs, in which personal care is also available, usually from a different provider. Supported living / extra care housing • shared lives schemes: accommodation which is provided together with care and support for an adult by a shared lives carer, approved by the scheme, in the shared lives carer’s home under the terms of an agreement between the adult, the scheme the shared lives carer and any local authority responsible for making the arrangement. The shared lives carer will normally be providing personal care but they will not need to provide it in every case. The Care and Support (Ordinary Residence) (Specified Accommodation) Regulations 2014 (regs 4 & 5) and The Care and Support and After-care (Choice of Accommodation) Regulations 2014 (regs 7 & 8) 25 06/02/2015 NHS interface section 22 ~ NHS Continuing Care Couglan – prohibits LA providing nursing care that the NHS has a ‘power or duty’ to provide; • section 21 – only prohibits LA providing nursing care that the NHS has a ‘duty’ to provide; NHS interface Minister stated: • The provisions in section 22 are not intended to change the current boundary—let me place that clearly on the record—and we do not believe that they will have that result. The limits on the responsibility by reference, as now, to what should be provided by the NHS remain the same’. Public Bill Committee Report 16 January 2014 (page 205/208) Safeguarding sections 42 - 47 Duty to make enquiries if adult • with care & support needs: • is experiencing, or is at risk of abuse of neglect; and • is unable to protect self against the abuse / neglect Duty to have a Safeguarding Board • No power of entry / removal; • Abolition of s47 NAA 1948 power; • Retains power to protect property (s47) 26 06/02/2015 What is abuse / neglect (para 14.17) Physical abuse / Sexual abuse / Modern slavery Domestic violence / Psychological abuse; Financial abuse (section 42(3)); Discriminatory abuse: • including ‘harassment, slurs etc because of race, gender and gender identity, age, disability, sexual orientation or religion’ What is abuse / neglect (para 14.17) Organisational abuse: • eg ‘neglect and poor care practice’ in a hospital or care home including ‘neglect or poor professional practice as a result of the structure, policies, processes and practices within an organisation’ Neglect / Self-neglect: • a wide range of behaviour neglecting to care for one’s personal hygiene, health or surroundings and includes behaviour such as hoarding Safeguarding Guidance • The decision to carry out a safeguarding enquiry does not depend on the person’s eligibility, but should be taken wherever there is reasonable cause to think that the person is experiencing, or is at risk of, abuse or neglect (para 6.55) • LAs must make enquiries, or cause another agency to do so, whenever abuse or neglect are suspected in relation to an adult and the LA thinks it necessary to enable it to decide what (if any) action is needed to help and protect the adult (para 14.77) 27 06/02/2015 Safeguarding Could a safeguarding concern trigger a duty to meet need? Where a person is at risk of harm or abuse, it is important that LAs act swiftly and put in place an effective response .. . If it appears to LAs that the person is experiencing, or at risk of, abuse or neglect, they must carry out a safeguarding enquiry and decide with the adult in question what action, if any, is necessary and by whom (para 6.54) Where the actions required to protect the adult can be met by LAs, they should take appropriate action (para 6.56) Safeguarding Could a safeguarding concern trigger a duty to meet need? Effective safeguarding is about seeking to promote an adult’s rights as well as about protecting their physical safety and taking action to prevent the occurrence or reoccurrence of abuse or neglect (para 7.25). Consideration of needs should also include the extent to which the needs or a person’s other circumstances may mean that they are at risk of abuse or neglect. … . Where such an enquiry leads to further specific interventions being put in place to address a safeguarding issue, this may be included in the care and support plan (para 10.39) Safeguarding Could a safeguarding concern trigger a duty to meet need? Human Rights obligations In X & Y v Hounslow LBC (2009) the Court of Appeal held no duty on LAs to protect learning disabled adults subjected to severe abuse by third parties – but case subject of a friendly settlement at European Court of Human Rights – UK paying compensation of €57,000 Đorđević v. Croatia (2012) duty on state to protect learning disabled person (and his carer) from abuse by private parties – a positive obligation under Article 3 28 06/02/2015 Independent advocacy sections 67 -68 • Duty to arrange independent advocate if LA considers an individual would experience ‘substantial difficulty’ in participating in (amongst others): • their assessment/ preparation of care & support plan; • a safeguarding enquiry / review • Not apply if LA satisfied some other person who is an appropriate representative (provided that person is not engaged in providing care for the individual in a professional capacity or for remuneration). Independent advocacy sections 67 -68 The LA considers that, were an IA not to be available, the individual would experience substantial difficulty in— (a) understanding relevant information; (b) retaining that information; (c) using or weighing that information as part of the process of being involved; (d) communicating the individual’s views, wishes or feelings Key difference • MCA 2005, s2(1) unable to make a decision … because of an impairment of, or a disturbance in the functioning of, the mind or brain. Independent advocacy For example, a person with mid-stage or advanced dementia, significant learning disabilities, a brain injury or mental ill health may be considered to have substantial difficulty in communicating their views, wishes and feelings. But equally a person with Asperger’s may be considered, as may a frail older person who does not have any diagnosis but is confused as a result of an infection, or a person who is near the end of their life and appears disengaged from involvement and decision-making. Para 7.15 29 06/02/2015 Independent advocacy Government: • allocated £14.5m in 2014-15 for this service; • advising local authorities to ‘map out which staff need to refer people to them and ensure they are trained to know who to refer and how to refer’; and • not to commission too small a service or ‘one that is poor quality’ New statutory appeals process section 72 Regulations to create a new appeals system 1. Flexible local proportionate system avoiding unnecessary bureaucracy; 2. Include an element of independence from the local authority; 3. Will seek to avoid duplication with exiting arrangements for complaints and redress Government will consult further and issue regulations and guidance ‘later this year’ (ie 2014). (Norman Lamb) 4 Feb 2014 Human Rights Protection Section 73 Provision of regulated care or support • Where care or support is arranged by a local authority, or paid for (directly or indirectly, and in whole or in part) by the authority and that care is provided by a registered care provider to an adult or a carer either in their own home or in care home • Then the provider is deemed to be a public authority for the purposes of the Human Rights Act 1998. 30 06/02/2015 s117 Mental Health Act 1983 Patients detained under: • s3 MHA 1983 • (or a criminal provisions) when discharged • free after care services under s117 MHA 1983. • Joint NHS / social services duty s117 Mental Health Act 1983 section 75 • Currently ‘’after-care services’ are not defined • A new subsection (5) limits services to those: (a) ‘arising from or related to the mental disorder’ and (b) reducing the risk of a deterioration of the person’s mental condition (ie that may require re-admission) • Ordinary residence clarified & dispute procedure created Prisons Section 76 provides welcome clarification as to local responsibilities for prisoners who have care and support needs and provides that the responsible local authority for ‘ordinary residence’ purposes is the one in which the prison is located 31 06/02/2015 Prisons Section 76 LAs responsible for prisoners who have care and support needs Responsible LA is the one in which the prison is located On release the prisoner will be presumed to be ordinarily resident in the area resident immediately before the start of their sentence but easily rebutted (para 17.49) suggests that on release a prisoner’s ‘ordinary residence will generally be in the authority where they intend to live on a permanent basis’. Prisons All adults in custody, as well as offenders and defendants in the community, should expect the same level of care and support as the rest of the population. (para 17.9)’ A few Care Act entitlements not be available to prisoners – for example the right to direct payments and to choice of accommodation. Where a LA is made aware that an adult in a custodial setting may have care and support needs, then ‘they must carry out an assessment as they would for someone in the community’ (para 17.24) Transitions ~ Care Act 2015 General formula Where it appears to a LA that: 1. it is ‘likely’ that [person] will have care & support needs after transition 2. it to be of significant benefit to be assessed; Must assess (with consent / BI assessment) LA must give reasons if it refuses to assess 32 06/02/2015 Transitions ~ Care Act 2015 General formula Where it appears to a LA that: 1. it is ‘likely’ that [person] will have care & support needs after transition 2. it to be of significant benefit to be assessed; Must assess (with consent / BI assessment) LA must give reasons if it refuses to assess Transitions ~ Care Act 2015 General formula Where it appears to a LA that: 1. it is ‘likely’ that [person] will have care & support needs after transition 2. it to be of significant benefit to be assessed; Must assess (with consent / BI assessment) LA must give reasons if it refuses to assess Transitions ~ Care Act 2015 Likely to have need • any likely appearance of any need for care and support as an adult’: • not just those needs that will be deemed eligible under the adult statute. It is highly likely that young people and carers who are in receipt of children’s services would be ‘likely to have needs’ in this context • LAs should carry out a transition assessment for those who are receiving children’s services as they approach adulthood, so that they have information about what to expect when they become an adult. Para 16.9 33 06/02/2015 Transitions ~ Care Act 2015 Significant benefit • it will generally be of ‘significant benefit’ to assess ‘at the point when their needs for care and support as an adult can be predicted reasonably confidently, but will also depend on a range of other factors’ para 16.6 Transitions ~ Care Act 2015 Significant benefit • Transition assessments should take place at the right time for the YP or carer and at a point when the LA can be reasonably confident about what the YP’s or carer’s needs for care or support will look like after the young person in question turns 18. There is no set age when young people reach this point; every young person and their family are different, and as such, transition assessments should take place when it is most appropriate for them. para 16.7 • Para 16.10 checklist Continuity of services on transition section 66 Care Act Complex provisions that mirror the C&F Act provision. • Essentially if assessments of disabled children / young carers do take place before 18 then these will either: • continue to apply until reviewed [treated as a ‘needs assessment under s60 Care Act 2014’]; or • if the LA do not treat it as a continuing obligation – then they must reassess 34 06/02/2015 Young carers Children & Families Act 2014 s96 C & F Act 2014 amends Children Act 1989 (s17ZA) • A Young Carer is “a person under 18 who provides or intends to provide care for another person” (but excluding paid / formal volunteers) • LAs must identify the extent to which there are YCs within their area who have needs for support • Where the person cared for is under 18, the written record must state whether the ‘a child in need’. Young carers C & F Act 2014 s17ZA (1) CA 1989) Duty to assess YCs ‘on the appearance of need’ Draft Young Carers’ (Needs Assessments) (England) Regulations 2015 • Assessments must consider preferences / desired outcomes of YC and adopt a ‘whole family approach’ • Assessor has sufficient competence, knowledge, skills and training to be able to carry out that assessment; • Determine whether any of the caring tasks are inappropriate and whether the needs can be met by providing support services to— • (i) the person cared for [by the young carer]; or • (ii) another member of the young carer’s family . Parent carers C&F Act 2014 s97 [s17ZD CA 1989] Parent carers’ needs assessments • If it appears to a LA that a PC may have needs for support (or is requested by a PC) then it must assess whether that PC has needs for support and, if so, what those needs are. • A PC assessment must include an assessment of whether it is appropriate for the PC to provide, or continue to provide, care for the disabled child, in the light of the PC’s needs for support, other needs and wishes. • A PC is an adult ‘who provides or intends to provide care for a disabled child for whom the person has parental responsibility’. 35 06/02/2015 Parent carers C&F Act 2014 s17ZD CA 1989 The PC assessment must have regard to. • the well-being of the parent carer, and • the need to safeguard / promote welfare of DC cared for and any other child for whom the PC has parental responsibility. • Well-being has the same meaning as s1 Care Act 2014. The PC assessment, must involve: • the parent carer, • any child for whom the parent carer has parental responsibility, and • any person who the parent carer requests the authority to involve. Parent carers C&F Act 2014 s17ZD CA 1989 The LA must give a written record of the assessment to. • the parent carer, and • any person to whom the parent carer requests the authority to give a copy. LAs must take reasonable steps to identify the extent to which there are parent carers within their area who have needs for support. Parent carers C&F Act 2014 s17ZE / F CA 1989 Parent carers’ needs assessments • power to make regulations concerning PC assessments After the PC assessment the LA must decide: (a) whether the PC has needs for support in relation to the care which s/he provides or intends to provide; (b) whether the disabled child cared for has needs for support; and if so (c) whether those needs could be satisfied (wholly or partly) by services s17 Children Act 1989; and (d) if so, whether to provide such services for the PC or the DC 36 06/02/2015 ‘Grandparent’ problem • In relation to a disabled child – the amendment made by the C&F Act 2014 only provides for parent’s carers; • A PC is an adult ‘who provides or intends to provide care for a disabled child for whom the person has parental responsibility’. • This excludes – grandparents; some unmarried fathers / step fathers; other family (eg young carers who have become ‘young adult carers, aunts etc); • This unintended problem now partially remedied by an announcement (4 Feb 2015) that the Carers (Recognition and Services) Act 1995, s1 will not be repealed. 37
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