A L Z H E I M E R ’ S O F C E N T R A L A L A B A M A The Alzheimer’s Update A Local Organization Helping Local Families Fall 2014 Dementia: Watching a Video of Life in Reverse If it’s a skill you learn, Alzheimer’s can cause you to unlearn it. We teach children to walk, talk, feed themselves, bathe, use the toilet and act properly. Teenagers learn manners and selfcontrol. This learning is stored on nerve cells. Those skills diminish over time as dementia kills brain cells. The dying brain causes adult behavior to reverse. Early stage patients need supervision much like teenagers. As patients progress, they need custodial care and function like a 5 to 10 year old. End stage patients require nursing care much like an infant. independence by demonstrating the task, using a gentle touch and communicating in short clear sentences. Patients are still adults who deserve dignity and respect. As self-care skills diminish, support their independence as long as it is safe and appropriate. You cannot change their behavior by rationalizing and reasoning. Seek to foster ACA Development Campaign ACA’s 2014 development campaign is well underway. With a matching gift of $40,000, we launched our first annual campaign that will help families who are hurting today and in need of our services, education and support. Permanent gifts to ACA’s Endowment Fund offer donors a way to make a gift now or through a planned gift in their estate. Every dollar makes a difference. Your donations to ACA stay in Alabama helping Alabama families. These generous donors have demonstrated exceptional leadership and support through their gifts and commitments. These gifts and pledges are from September of 2013 to September of 2014. Named endowment gifts-Legacy Gift Charter Members with gifts ($25,000 level & above): Legacy Gift Club Annual Campaign Charter Members – Leadership Donors Inaugural year current ($1,000 & above): Ken and Nina Botsford Patsy and Charles Collat, Sr. The Engel Family Miller and Phil Piggott Susan and David Silverstein in Memory of Carolyn Tilson Harry Bayer Jeffrey Bayer Emmie and Herman Bolden Cheryl and Charlie Collat, Jr. Susie Collat Lynn Campisi Mary and Eddie Cummings Sarah Curatella Shelia and Doug DeMedicis James S. M. French Nancy and Glenn Goedecke Ann K. Kirkland Caki and Larry Mendel Susann Montgomery-Clark and Rod Clark Susan and Greg Womack A or planned gifts ($1,000 level & above): Judy and Hal Abroms Frances and Claude Bennett Barbara and Chris Blackerby Christine Clark Patsy and Charles Collat, Sr. Shelia and Doug DeMedicis Carolyn and Henry Frohsin Elizabeth Crooks and David Geldmacher Sarah and Mike Harfield Lindy Harrell Becky and Steve Hendricks Susan and Tom Lowder Susann Montgomery-Clark and Rod Clark Miller and Phil Piggott Murray and Joseph South Nancy and Murray Smith Anne and Mike Warren Jeri Kronenberg Wolff Jewell and Leon Zalenski The “A’s”of Alzheimer’s Acceptance is the first step to coping. Change what you can – like your attitude; accept what you can’t. Arguments are useless. Attempts to rationalize and reason only frustrate you and your loved one. Try distraction instead. Assess and reassess often. This disease is progressive. What works today may not tomorrow. Assuming your patient can comprehend may lead to communication breakdowns. Even patients who are verbal may not comprehend. Agitation can be reduced when the caregiver is calm and respectful and offers reassurance. alzca.org Telling Stories Appropriate activities help pass the time, reduce agitation and boredom. Simple repetitive activities like folding towels are better than staring at the TV. Patsy and Charles Collat Appreciate good moments and good days. Seize the laughter and cherish little things. Awareness of the impact of caregiving means that you take care of yourself too. Sleep, eat and exercise right. See your doctor when necessary. Self-monitor for depression. Find time for pleasurable activities. 205.871.7970 or 866.806.7255 ACA’s 2015 calendar, “Telling Stories,” features artwork by dementia patients participating in arts programming in local assisted living facilities and adult day care centers. Calendars are $10 each, including shipping and are the perfect holiday gift. Special Thanks to Charles Collat for his Leadership Two years ago, Charles Collat realized ACA could not continue to meet the growing needs of Alzheimer’s patients in our community through special events and grant writing. With waiting lists for services that have never been longer, Charles was inspired to do more. Through his leadership, ACA has established an Endowment Fund at the Community Foundation of Greater Birmingham. His children made the initial donation to the fund. Charles has pledged $1 million to honor his wife. This transformative gift gives ACA permanence. Charles’ generosity is inspiring others to make commitments. The Endowment Fund ensures ACA will be better equipped to care for patients now and in the future. Thank you Collat Family! facebook.com/alzca ALZHEIMER’S OF CENTRAL ALABAMA Walking to Remember Save the Following Dates: Thanksgiving Arbor October 22 - November 12 On display at Brookwood Village. Share a memory you are thankful for Statewide Day of Prayer Sunday, November 9 November 1, 2014 Walking to Remember is going RETRO!!! Grab a friend, form a team or walk as an individual, inside the Riverchase Galleria, for this fun, three-mile Walk to raise money for services, education and research. Call 205-871-7970 for a registration packet or email [email protected]. Candle Lighting Service and Annual Meeting Join us in the Food Court Area Registration – 7:30 a.m. • Walk – 8:30 a.m. Walkers raising a minimum of $50 receive a tie dyed T-shirt! Must be present to collect, while supplies last. Friday, November 14 Homewood Library, 8:30 a.m. Located at: 300 Office Park Drive, Suite 225 Birmingham, Alabama 35223 Post Office Box 2273 Birmingham, Alabama 35201-2273 (205) 871-7970 www.alzca.org Our 2014 Corporate Sponsors ALZHEIMER’S OF CENTRAL ALABAMA Non-profit org. U.S. Postage PAID Permit No. 1564 Birmingham, AL Caregiver Tips for Dealing with Dementia Alzheimer’s of Central Alabama is Consult your higher power; that’s what keeps us going. Pray daily for patience. Don’t take things personally. Just love on your loved one. a local organization helping local families. Our caregivers shared advice to help you on your journey: My Mother enjoyed helping people and nursing them back to health. Now it’s hard to get her to get out of the chair once she sits down. Sometime I get her up by saying, “Madea come here, I need you to help me.” She’ll say, “OK, I’m coming” and try to get up. Join a support group or find a kindred caregiver to talk and share with. Have a lot of patience. Don’t force them to do anything. When agitated, back off. Treat the individual as a person. Talk to them. Listen to them. Hug and love them. Take care of yourself physically. Get some sleep. Have some fun. Realize you cannot do it all! Lillie Mae and Brenda Get clothing with elastic. No more belts, zippers or buttons. be. I can’t control this situation or change it. I can only change the way I respond to it and I try to respond with love. Find compassion…I didn’t have it in the beginning. Accept your loved one for where they are and not where you want them to Control your temper. Talk to them in a soothing voice. If you show that you are agitated, they will become more agitated. You must take care of yourself first in order to take care of your loved one. Cherish every moment of every day. Find sometime to take a few minutes for yourself each day. Pace yourself and let some things go.
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