NOW I DECIDE!
Project Zero in Austria
Innsbruck
23 April 2015
Jamie Bolling
Executive Director
European Network on Independent Living
Contents
-
Who am I?
ENIL
Independent Living
Swedish Model of PA
Strengths and Weaknesses
Why Personal Budgets?
Jamie Bolling
3 Passports
2
1
European Network on
Independent Living
Members from Georgia to
Iceland!
ENIL
- Network, cross-disability for Independent Living
- Grassroots organisation
- Values: Self-determination, Self-representation, Deinstitutionalisation, Choice and Control
- Access to society - social services, personal
assistance, barrier-free environment, housing options,
technical aids
- ENIL Freedom Drive
ENIL Freedom Drive
Institutions is the worst solution!
Close the Institutions!
Independent Living
Choice
Control
Participation
Inclusion
Adolf Ratzka: Definition of Independent Living
Just to be ordinary people!
Independent Living = same range of options
and same degree of self-determination taken
for granted by non-disabled.
LSS - Measures
1. Advice and support
2. PA
3. Escort service
4. Personal contact
5. Relief service in home
6. Short stay away from home
7. Supervision children
8. Housing arrangements – children young people
9. Housing arrangements – adults
10. Daily activity
LSS – Swedish reform for
disability
• Three groups
• People with intellectual disability or
autistism
• Brain damage
• Lasting physical or mental functional
impairment
Choice for Administration
•
•
•
•
Municipality
Own company
Cooperative
Assistance company
Personal Assistance law and
strengths
Weaknesses
• 20 hours limit – ping pong boll between State and
Municipality.
• Assessment tool with a counting of minutes – an
attempt to standardize needs
• Assessments vary in different parts of Sweden
• Assessments can be arbitrary - don’t always take
UN CRPD into consideration
• Right to employment
• Excludes blind deaf – no PA
• Threat – survival of the fittest! Tendency Assistance to survive not live!
Ideal legislation
• Personal assistance a responsibility of the
state to allow for freedom of movement
• Based on needs and rights according to
the UN CRPD
• Individual assessment based on needs
and not standardised time
• PA for all types of disability – the
categories lead to special treatment
Thank you!
Danke!
[email protected]
ENIL
www.enil.eu