Mr Christy Lynch, CEO KARE

UNCRPD
(United Nations Convention on the Rights of Persons with Disabilities)
• 
Paradigm Shift
• 
Internationally Binding
• 
Rights Based
• 
Progressivity
• 
Article 12
• 
Defines THE Destination
• 
? Ratification
NATIONAL DISABILITY
STRATEGY
• 
Disability Act and Sectoral Plans
• 
EPSEN Act
• 
Investment Programme !
• 
Mainstreaming
• 
Disability Stakeholders Group + +
NATIONAL DISABILITY POLICY
The Gap Between What People
Want & Current Provision
Sustainability of Current Provision
-  Economic Climate
-  Changing Demographics
- Changing Expectations
Full Inclusion & Self-Determination for
People with Disabilities
Underpinning Principles & Values
-
Citizenship
-
Control
-
Informed Choice
-
Self-Determination
-
Responsibility
-
Inclusion
-
Participation
The Creation of a Cost-Effective, Responsive &
Accountable System which will Support the Full
Inclusion & Self-Determination of People with
Disabilities.
Underpinning Principles & Values
-
Equity
-
Person-Centred
Quality
Effective
Efficient
Sufficient
Accountable & Transparent
PROGRESSING CHILDREN’S
SERVICES
• 
Primary Care Teams when the Child’s Needs
Can be Met There
• 
Network Generic Early Intervention & School
Age Teams
• 
Support as Needed from Specialist teams in
Areas of High Expertise
ANTICIPATED OUTCOMES
• 
A clear Pathway to Services for Every Child who
Needs them
• 
Equity & Consistency Across the County
• 
Effective Teams working in Partnership with
Parents
• 
Resources Used to the Optimum
• 
Health & Education Working Jointly to Achieve Best
Outcomes for Children
“MOVING ON FROM
CONGREGATED SETTINGS”
-  All Provision in Dispersal Housing in the
Community
-  Housing Responsibility of Department of
Environment.
-  Health Related Supports Responsibility
of Mainstream Health Service.
- Specialist Agencies Focus on the
Provision of Individualised Social
Supports.
REPORT
“Time to Move On from Congregated Settings”
A Strategy for Community Inclusion.
Available:
http://www.fedvol.ie/Key_Policy_Documents/Default.1693.html
NEW DIRECTIONS
Equip People
• To make choices and plans to support personal goals.
• To have influence over the decisions which affect their lives.
• To achieve personal goals and aspirations.
• To be active, independent members of their community &
society.
New Directions
Core Values
•  Person-Centeredness
•  Community Inclusion and Active Citizenship
•  A Quality Service
New Directions
Other Relevant Policies
•  The Review on Autism
•  NCSE Policy Advice re Special Education
•  New Resource Allocation Model in Special
Education
•  National Housing Strategy for People with
Disabilities.
•  Comprehensive Employment Strategy for People
with Disabilities.
Innovations.
•  Progressing Childrens Services
•  Genio Projects
•  Next Steps Project
“Change is the law of life and those
who look only to the past or present are
certain to miss the future”
- John F. Kennedy.
“It is not the strongest of the species
that survive, nor the most intelligent,
but the one most responsive to
change”
Charles Darwin 1809-1882, English Biologist & father of the Evolution Theory.
“Everybody has accepted by now that
change is unavoidable. But that still
implies that change is like death and
taxes – it should be postponed as long
as possible and no change would be
vastly preferable. But in a period of
upheaval, such as the one we are living
in, change is the norm”
- Peter Drucker - Management Challenges for the 21st Century (1999).
Challenges
•  Scale of the Change / Leadership
•  Attention Deficit Implementation Disorder (ADID)
•  The Irish Reality
•  Timing
•  Poor Data on Costs.
Challenges
•  Lack of Therapists / Psychologists
•  Managing Challenging Behaviour in Schools
•  Lack of Capital Resources
•  Conflicting Goals – High Quality Low Costs
•  Lack of Research & Evaluation.
Challenges
•  How we Un-bundle Funding
•  How do we Scale Up
•  No Two Agencies are the Same
•  Getting Parents / Families / Service Users on
Board
•  Are we Prepared to Pay for What we Want?