THE CAREGIVING TRAP
Solutions for Life’s Unexpected Changes© THE CAREGIVING TRAP Pamela D. Wilson, CSA, MS, BS/BA, CG © Pamela D. Wilson, All Rights Reserved OVERVIEW Understand the “bigger picture” of the short- and long-term effects of the role of caregiving Acknowledge relational aspects of caregiving to gain a better understanding of family challenges and dynamics that have the potential to damage family relationships Advocate for beneficial care by understanding health care industry and health insurance company constraints that often surprise families when they realize that health insurance or Medicare “does not pay” © Pamela D. Wilson, All Rights Reserved STICKER SHOCK – WHO REALLY PAYS? Effects of caregiving on health, in the workplace, and in retirement Chronic disease is prevalent Poor health is expensive Challenges for employee caregivers © Pamela D. Wilson, All Rights Reserved STICKER SHOCK – WHO REALLY PAYS? Risks of caregiving for women © Pamela D. Wilson, All Rights Reserved STICKER SHOCK – WHO REALLY PAYS? Costs of care In home care Retirement and communities of care Rehabilitation and skilled nursing Care navigation How will you pay? © Pamela D. Wilson, All Rights Reserved STICKER SHOCK – WHO REALLY PAYS? Literacy and health 50% of U.S. adults are unable to read a book written at the eighth-grade level 46% of American adults can’t understand the labels on their prescription drugs © Pamela D. Wilson, All Rights Reserved STICKER SHOCK – WHO REALLY PAYS? Exercise: Time Off © Pamela D. Wilson, All Rights Reserved CAREGIVING RELATIONSHIPS Common caregiving traps There is nothing either good or bad, but thinking makes it so. (William Shakespeare) © Pamela D. Wilson, All Rights Reserved CAREGIVING RELATIONSHIPS Oblivion and assumptions Perceived “competence” Failure to notice the little things Refusal to ask for help Lack of practical discussions Lack of planning © Pamela D. Wilson, All Rights Reserved TOXIC CAREGIVING RELATIONSHIPS The helpless or avoidant The self-centered or narcissistic The unmotivated The paranoid © Pamela D. Wilson, All Rights Reserved CAREGIVING RELATIONSHIPS Setting boundaries © Pamela D. Wilson, All Rights Reserved CAREGIVING RELATIONSHIPS Exercise: Identifying Caregiving Traps © Pamela D. Wilson, All Rights Reserved ADVOCATING FOR BETTER THAN AVERAGE The Affordable Care Act Medical appointments and physician relationships Naiveté and potential exploitation Managing the “low road enterprise” © Pamela D. Wilson, All Rights Reserved ADVOCATING FOR BETTER THAN AVERAGE Exercise: Learning to Advocate © Pamela D. Wilson, All Rights Reserved SUMMARY The role of caregiving poses unexpected costs to the caregiver Caregiver and care-recipient relationships are imperfect Advocacy is mandatory if you wish to receive “better than average” care © Pamela D. Wilson, All Rights Reserved PAMELA D. WILSON, CSA, MS, BS/BA, CG http://www.TheCareNavigator.com http://www.PamelaDWilson.com 303-205-7877 [email protected] © Pamela D. Wilson, All Rights Reserved
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